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MSFocus: - Multiple Sclerosis Society of Canada

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<strong>MSFocus</strong>:<br />

Creating Synergy<br />

in Healthcare<br />

an education event for health pr<strong>of</strong>essionals<br />

October 17 and 18, 2003<br />

Delta Edmonton Centre Suite Hotel<br />

10222 - 102 Street | Edmonton, Alberta


The importance <strong>of</strong> educating allied health pr<strong>of</strong>essionals is<br />

as critical as that <strong>of</strong> educating clients. Early referral leads<br />

to better chances <strong>of</strong> prompt diagnosis. As well, up-to-date<br />

and leading edge symptom management techniques help<br />

those living with multiple sclerosis to realize enhanced<br />

quality <strong>of</strong> life.<br />

The management <strong>of</strong> MS involves a multi-disciplinary team<br />

<strong>of</strong> community health care pr<strong>of</strong>essionals. The delivery<br />

model <strong>of</strong> education chosen for this event entails plenary<br />

presentations addressing general MS education, as well as,<br />

specialty concurrent sessions addressing the diverse<br />

needs <strong>of</strong> medically related disciplines.<br />

Symposium Objectives<br />

Participants will be able to:<br />

• Describe the disease process <strong>of</strong> MS and symptom<br />

management.<br />

• Describe recent advances in MS care research and<br />

treatment.<br />

• Discuss psychosocial implications for persons living<br />

with MS.<br />

• Identify and describe the specialized needs <strong>of</strong> people<br />

with MS.<br />

• Offer relevant information and resources related to<br />

mental health, rehabilitation, nursing, pharmacy, and<br />

general practice.<br />

• Assist people with MS to maintain independence and<br />

receive support from MS <strong>Society</strong> and community<br />

services.<br />

This event will provide an opportunity for networking, as<br />

well as, enhancing skills to effectively meet the needs <strong>of</strong><br />

MS clients and families. There is an exciting line-up <strong>of</strong><br />

experts who will <strong>of</strong>fer current and practical information on<br />

multiple sclerosis and related issues. This conference is<br />

being assessed by Alberta College <strong>of</strong> Pharmacists for<br />

CEU's.<br />

event summary<br />

3


4<br />

event schedule<br />

Friday, October 17, 2003<br />

6:30 pm - 7:00 pm<br />

Registration<br />

7:00 pm - 9:30 pm<br />

Plenary Presentations<br />

• The Multifaceted Nature <strong>of</strong> MS Care: Now and in the Future<br />

• Understanding the Psycho-social Challenges <strong>of</strong> MS<br />

9:30 pm - 10:30 pm<br />

Reception<br />

Saturday, October 18, 2003<br />

7:30 am - 8:30 am<br />

Registration<br />

(for those who did not register the previous evening)<br />

8:30 am - 9:30 am<br />

Breakfast<br />

• Plenary presentation — Coping with MS: A Personal Perspective<br />

Morning Concurrent Sessions (choose one in each block <strong>of</strong> time)<br />

9:40 am - 10:40 am<br />

Concurrent Sessions 1<br />

• Aggressively Treating MS<br />

• Challenges and Opportunities for the Homecare Worker<br />

• Striving for Quality Care in MS Nursing<br />

• Rehabilitation Management in the MS Patient<br />

10:40 am 10:50<br />

C<strong>of</strong>fee Break<br />

10:50 am - 11:50 am<br />

Concurrent Sessions 2<br />

• The Effects <strong>of</strong> MS on Interpersonal and Family Relationships<br />

• MS <strong>Society</strong>: Can We Make a Difference?<br />

• Sexuality and MS<br />

• Pharmacological Management <strong>of</strong> MS Symptoms<br />

Luncheon<br />

12:00 noon - 1:30 pm<br />

• Balancing Workloads Positively


Saturday, October 18, 2003<br />

Afternoon Concurrent Sessions (choose one in each block <strong>of</strong> time)<br />

1:40 pm - 2:40 pm<br />

Concurrent Sessions 3<br />

• Aggressively Treating MS<br />

• Challenges and Opportunities for the Homecare Worker<br />

• Sexuality and MS<br />

• Pharmacological Management <strong>of</strong> MS Symptoms<br />

2:40 pm - 2:50 pm<br />

C<strong>of</strong>fee Break<br />

2:50 pm - 3:50 pm<br />

Concurrent Sessions 4<br />

• The Effects <strong>of</strong> MS on Interpersonal and Family Relationships<br />

• MS <strong>Society</strong>: Can We Make A Difference?<br />

• Striving for Quality Care in MS Nursing<br />

• Rehabilitation Management in the MS Patient<br />

4:00 pm - 4:30 pm<br />

Closing<br />

event schedule<br />

5


6<br />

speakers<br />

Dr. Mary Lou Myles, M.D., FRCPC<br />

Neurologist, Neuroservices Centre, Edmonton AB<br />

Dr. Mary Lou Myles is an Assistant Clinical Pr<strong>of</strong>essor <strong>of</strong> Neurology at the<br />

University <strong>of</strong> Alberta and a clinical neurologist with a special interest in<br />

multiple sclerosis. She is actively involved in teaching <strong>of</strong> medical students<br />

and residents, as well as in the provision <strong>of</strong> continuing medical education for<br />

practitioners. She is also a member <strong>of</strong> the Alberta MS Drug Review Panel.<br />

Dr. Jennifer Rodgers, Ph.D., C.Psych.<br />

Clinical Psychologist, U <strong>of</strong> A, Edmonton AB<br />

Dr. Rodgers is a clinical psychologist at the University <strong>of</strong> Alberta Hospital in<br />

Edmonton and Associate Clinical Pr<strong>of</strong>essor at the University <strong>of</strong> Alberta. She<br />

has been working with individuals who have multiple sclerosis since 1985<br />

both as a psychologist for the Department <strong>of</strong> Neurosciences and as a Board<br />

Member at all levels <strong>of</strong> the MS <strong>Society</strong>. Her research interests and public<br />

presentations, over the years, have focused on adjustment to the changes<br />

imposed by MS on the individual with the diagnosis, as well as family<br />

members. Dr. Rodgers is currently a committee member on the Alberta MS<br />

Drug Review Panel and a Health Research Ethics board member for Capital<br />

Health, Caritas and the University <strong>of</strong> Alberta.<br />

Dr. David Spence, B.Sc., M.D., FRCPC<br />

Psychiatrist, Edmonton, AB<br />

Dr. Spence was born in Montreal and grew-up in Nova Scotia. He was<br />

diagnosed with MS in 1984. Despite the diagnosis he pursued pr<strong>of</strong>essional<br />

training by obtaining both his Bachelor <strong>of</strong> Science and Medical degrees at<br />

Dalhousie University. He then furthered his medical training, graduating<br />

from the U <strong>of</strong> A in psychiatry. Dr Spence formerly worked at Alberta Hospital<br />

with a focus on General Adult Psychiatry. He is currently semi-retired and<br />

lives with his wife and seventeen month old child.<br />

Brenda Robinson, B.A., MED<br />

Brenda is a highly entertaining motivational speaker able to combine<br />

practical living strategies with work related pressures. With twenty years <strong>of</strong><br />

experience in various fields <strong>of</strong> service, she seeks to focus on having a positive<br />

perspective and attitude. Brenda will tickle your funny bone as well as touch<br />

your heart.<br />

Dr. Ken Makus, M.D., FRCPC<br />

Neurologist, Neuroservices Centre, Edmonton, AB<br />

Dr. Makus graduated from the University <strong>of</strong> Alberta Medical School in 1994<br />

and obtained his neurology certification in 1999. Dr. Makus comes with an<br />

impressive background filled with awards, scholarships, research projects,<br />

and pr<strong>of</strong>essional memberships and activities. Throughout his residency, he<br />

has had a special interest in multiple sclerosis. Dr. Makus currently works in a<br />

general neurology practice in Edmonton with a special focus towards<br />

multiple sclerosis and epilepsy.


Dr. Jim Eliuk, Ph.D, ED. Pysch<br />

Educational Psychologist<br />

Dr. Jim Eliuk currently works in a private practice in Edmonton with a primary<br />

focus on clients struggling with chronic health problems. While completing<br />

his Ph.D in Educational psychology in the early 90's, he began working at the<br />

Glenrose Rehabilitation Hospital where he gained valuable experience<br />

working with a variety <strong>of</strong> chronic medical conditions including <strong>Multiple</strong><br />

<strong>Sclerosis</strong><br />

Cathy Biggs, B.Sc.Pharm.<br />

Pharmacist, Broadmoor Pharmacy and Or<strong>of</strong>acial Pain and Medical Clinic<br />

Catherine graduated from the University <strong>of</strong> Alberta in 1996. You could say<br />

that her career choice was genetic considering both her parents have<br />

worked in the area <strong>of</strong> pharmacology and patient-based care. Since then she<br />

has become interested in many areas, including cardiovascular health and<br />

chronic non-malignant pain. She is also a Past President <strong>of</strong> the Alberta<br />

College <strong>of</strong> Pharmacists and currently is a member <strong>of</strong> the Pr<strong>of</strong>essional Affairs<br />

Committee <strong>of</strong> the Canadian Pharmacists Association.<br />

Linda McClure, R.N., B.Sc.N, M.Sc.<br />

Sexual Health Consultant, Annexa Health Consultants, Nursing Faculty<br />

Grant Macewan College<br />

Linda has been working as a consultant in the area <strong>of</strong> sexuality since 1994.<br />

She provides sexuality education and counselling to individuals, couples and<br />

agencies where the primary concern is that <strong>of</strong> a sexual nature. As part <strong>of</strong> her<br />

provate practice, she has contracts with the Glenrose Rehabilitation Hospital<br />

Sexual Health Service where she provides sexuality education and<br />

counselling to clients <strong>of</strong> the Glenrose. Linda also teaches Nursing and<br />

Human Sexuality at Grant Mcewan College.<br />

Joanne Hodder, R.N., B.Sc.N, <strong>Multiple</strong> <strong>Sclerosis</strong> Certified Nurse<br />

Special Therapies Nurse,<br />

Northern Alberta MS Special Therapies Program<br />

Joanne graduated from Western Memorial Hospital in Corner Brook,<br />

Newfoundland with an honours diploma in Nursing in 1983. She is currently<br />

enrolled in the Masters <strong>of</strong> Nursing Program at the University <strong>of</strong> Alberta. She<br />

has completed all course work and is presently completing a final project<br />

exploring services delivered to meet the needs <strong>of</strong> persons with MS in the<br />

Capital Region <strong>of</strong> Alberta. In the past she has worked as a research and<br />

clinical coordinator with a pr<strong>of</strong>essor <strong>of</strong> medicine and a specialist in<br />

Parkinson's Disease at the University <strong>of</strong> Alberta from 1991 to 1997. Joanne<br />

has published three articles in the area <strong>of</strong> Parkinson's and Shy Drager<br />

Syndrome between 1991 and 1997. Currently, she is the MS Special<br />

Therapies Nurse for Northern Alberta.<br />

speakers<br />

7


8 Jeannine Christopherson, R.N., B.Sc.N, MSCN<br />

Nurse, Northern Alberta <strong>Multiple</strong> <strong>Sclerosis</strong> Patient Care<br />

and Research Clinic<br />

Jeannine provides education and supportive counselling to people with MS<br />

and their family and friends. She assists in the clinical management <strong>of</strong><br />

problems related to MS. Jeannine is a founding member <strong>of</strong> the IOMSN<br />

(International Organization <strong>of</strong> MS Nurses) as well as a member <strong>of</strong> the<br />

speakers<br />

Edmonton Chapter Client Services Committee. She is also an active member<br />

<strong>of</strong> the Canadian MS Nurses Network and has been working in the MS field for<br />

many years.<br />

Dr. Carmen Tuchak, M.D., FRCPC<br />

Dr. Carmen Tuchak, specialist in Physical Medicine and Rehabilitation, works<br />

at the Glenrose Rehabilitation Hospital where she sees persons with MS for a<br />

variety <strong>of</strong> rehabilitation issues including spasticity and problems with<br />

mobility.


Friday , October 17, 2003<br />

7:00 pm - 9:30 pm<br />

The Multifaceted Nature <strong>of</strong> MS Care: Now and in the Future<br />

Dr. Mary Lou Myles, M.D., FRCPC<br />

This presentation will provide an overall review <strong>of</strong> MS, diagnosis, etiology,<br />

incidence and risk factors, symptom management, and therapies.<br />

Participants will gain an understanding <strong>of</strong> multi-faceted research in the field<br />

<strong>of</strong> MS today.<br />

Understanding the Psycho-social Challenges <strong>of</strong> MS<br />

Dr. Jennifer Rodgers, Ph.D., C.psych<br />

This presentation will focus on psychosocial implications <strong>of</strong> MS, incidence <strong>of</strong><br />

depression and cognitive impairment. Participants will gain an<br />

understanding <strong>of</strong> the intensity and diversity <strong>of</strong> challenges that people with<br />

MS encounter everyday.<br />

Saturday, October 18, 2003<br />

8:30 am - 9:30 am<br />

Coping With MS: A Personal Perspective<br />

Dr. David Spence, B.Sc., M.D., FRCPC<br />

This presentation will provide a personal and pr<strong>of</strong>essional perspective <strong>of</strong><br />

living with MS. Participants will gain understanding <strong>of</strong> the everyday<br />

scenarios <strong>of</strong> coping with an unpredictable and uncertain chronic illness.<br />

12 noon - 1:30 pm<br />

Balancing Workloads Positively<br />

Brenda Robinson, B.A., MED<br />

This presentation will provide participants with a new perspective on<br />

balancing workloads in positive ways. Participants are invited to listen, laugh,<br />

and learn new ways to set priorities, lighten up and enjoy what they do.<br />

plenary presentations<br />

9


10<br />

concurrent sessions<br />

Saturday, October 18, 2003<br />

9:40 am - 3:50 pm<br />

Aggressively Treating MS<br />

Dr. Ken Makus, M.D., FRCPC<br />

This session will provide information about diagnostic procedure and the<br />

need for early intervention. Participants will learn about new diagnostic<br />

criteria, MS symptomatic therapies, disease modifying therapies, and the role<br />

<strong>of</strong> the GP to ensure adherence.<br />

Available in concurrent sessions 1 and 3.<br />

Pharmacological Management <strong>of</strong> MS Symptoms<br />

Cathy Biggs, B.Sc.Pharm.<br />

This session will present an overview <strong>of</strong> pharmacological treatment <strong>of</strong><br />

neuropathic pain and spasticity, bladder dysfunction and fatigue.<br />

Participants will be exposed to evidence-based information covering<br />

allopathic and alternative therapies.<br />

Available in concurrent sessions 2 and 3.<br />

Rehabilitation Management in the MS Patient<br />

Dr. Carmen Tuchak, M.D., FRCPC<br />

This session will provide an overview <strong>of</strong> the importance <strong>of</strong> rehabilitation<br />

therapies in the management <strong>of</strong> MS. Participants will learn about practical<br />

aids for daily living as well as programs that maximize the physical health <strong>of</strong><br />

the client.<br />

Available in concurrent sessions 1 and 4.<br />

MS <strong>Society</strong>: Can We Make a Difference?<br />

Adeline Blumer, R.N. and Aileen Steele, B.A.<br />

This session will provide health pr<strong>of</strong>essionals with an overview <strong>of</strong> MS <strong>Society</strong><br />

services and programs. The participants will understand the role <strong>of</strong> the MS<br />

<strong>Society</strong> in educating health pr<strong>of</strong>essionals about MS and providing clients<br />

with referral, information and support.<br />

Available in concurrent sessions 2 and 4.<br />

Challenges and Opportunities for the Homecare Worker<br />

Barb Foxall, B.A.<br />

This session will provide healthcare workers in the homecare field with the<br />

opportunity to learn and share practical information. The participants will be<br />

able to assist their MS clients in day-to-day living strategies.<br />

Available in concurrent sessions 1 and 3.


Striving for Quality Care in MS Nursing<br />

Jeannine Christopherson, R.N., B.Sc.N., MSCN<br />

Joanne Hodder, R.N., B.Sc.N., <strong>Multiple</strong> <strong>Sclerosis</strong> Certified Nurse<br />

This session will provide primary and secondary care providers with<br />

information on symptom management and MS special therapies including<br />

management <strong>of</strong> side-effects <strong>of</strong> the disease modifying drugs. The participants<br />

will come to understand their role in networking to meet clients' physical,<br />

emotional and spiritual needs.<br />

Available in concurrent sessions 3 and 4.<br />

Sexuality and MS<br />

Linda McClure, R.N., B.Sc.N., M.Sc.<br />

This session presents an overview <strong>of</strong> how persons with MS notice changes in<br />

their sexual functioning which impacts their personal relationships and<br />

overall well-being. Participants will better understand how MS affects sexual<br />

functioning, sexual relationships, as well as better understand how to<br />

manage sexual changes.<br />

Available in concurrent sessions 2 and 3.<br />

The Effects <strong>of</strong> MS on Interpersonal and Family Relationships<br />

Dr. Jim Eliuk, Ph.D Ed.Psych.<br />

This session will provide information on both the subtle and obvious effects<br />

<strong>of</strong> the illness on a person's integrity, sense <strong>of</strong> well-being, and interpersonal<br />

and family relationships. The participant will gain an understanding on how<br />

helping the client and family to recognize the “choice points” facing them in<br />

their lives will enable them to make decisions that maximize continued<br />

control <strong>of</strong> their lives.<br />

Available in concurrent sessions 2 and 4.<br />

concurrent sessions<br />

11


12<br />

event registration information<br />

You can register by fax: 780.463.7298<br />

or phone: 780.463.1190<br />

or mail to: <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> - Alberta Division<br />

10104-79 Street, Edmonton, AB T6A 3G3<br />

Registration<br />

Early Bird registration before September 15 - $75.00<br />

Registration after September 15 - $100.00<br />

Student registration fee $50.<br />

(Please note that there is a limited number <strong>of</strong> spaces available for students)<br />

Confirmation <strong>of</strong> registration will be sent when registration form has been<br />

received and payment has been made in full. If registration is received after<br />

September 30, you will receive confirmation in your registration package at<br />

the event.<br />

Registration fee includes, breakfast, luncheon, c<strong>of</strong>fee breaks, sessions and<br />

event materials.<br />

Cancellation Policy<br />

There will be a full refund (less $25 administration fee) until October 6, 2003;<br />

there will be no refund after that date. This policy is void if cancellation is due<br />

to illness or other extraordinary circumstances.<br />

Dress<br />

All sessions and presentations are business/casual.<br />

Accommodation<br />

Delta Edmonton Centre Suite Hotel<br />

10222 - 102 Street, Edmonton, Alberta<br />

1.800.661.6655<br />

www.deltahotels.com<br />

Please make reservations directly by calling the hotel. Rooms have been<br />

reserved under <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> at a discounted rate <strong>of</strong><br />

$109 to $129. The hotel is located in the heart <strong>of</strong> downtown Edmonton in the<br />

newly renovated Edmonton City Centre Shopping Complex, which has over<br />

100 stores and nine movie theatres. All rooms include jetted bathtubs, highspeed<br />

internet access, in room movies, and in room c<strong>of</strong>fee makers.<br />

Registered guest receive free covered parking.<br />

Information<br />

If you require further information about this education event please contact:<br />

Aileen Steele | 780.463.1190 | aileen.steele@mssociety.ca<br />

Barb Foxall | 780.471.3034 | barb.foxall@mssociety.ca


Contact Information<br />

Mr. Mrs. Ms. Miss. Dr.<br />

First Name__________________ Last Name_______________________<br />

Pr<strong>of</strong>essional status___________________________________________<br />

Organization________________________________________________<br />

Mailing Address______________________________________________<br />

City________________________ Province_____ Postal Code_________<br />

Phone____________ Fax____________ E-mail_____________________<br />

How would you like your name to appear on name tag?<br />

___________________________________________________________<br />

Date <strong>of</strong> Registration________________ Today's date________________<br />

Before September 15 - $75<br />

After September 15 - $100<br />

Students - $50<br />

Amount Submitted $___________<br />

Special Meal Requests<br />

Please state any allergies, restrictions, etc._________________________<br />

Do you require a parking pass? yes no<br />

(will be put into your registration package)<br />

Participant Pr<strong>of</strong>ile<br />

Place <strong>of</strong> Employment: Hospital Rehabilitation Home Care<br />

Long-Term-Care Private Practice Clinic Other___________<br />

Percentage <strong>of</strong> practice spent in the care <strong>of</strong> persons or families with MS<br />

0-25 26-50 51-75 76-100<br />

Describe briefly the challenges you experience in your practice when<br />

caring for persons with MS_____________________________________<br />

___________________________________________________________<br />

___________________________________________________________<br />

Questions you would like answered at this event<br />

___________________________________________________________<br />

___________________________________________________________<br />

___________________________________________________________<br />

___________________________________________________________<br />

13<br />

registration form


14<br />

registration form<br />

Sessions Selection<br />

Saturday, October 18, 2003<br />

(please choose one session in each time block)<br />

Morning Sessions:<br />

Concurrent Sessions 1<br />

9:40 am - 10:40 am<br />

Aggressively Treating MS<br />

Challenges and Opportunities for the Homecare Worker<br />

Striving for Quality Care in MS Nursing<br />

Rehabilitation Management in the MS Patient<br />

Concurrent Sessions 2<br />

10:50 am - 11:50 am<br />

The Effects <strong>of</strong> MS on Interpersonal and Family Relationships<br />

MS <strong>Society</strong>: Can We Make a Difference?<br />

Sexuality and MS<br />

Pharmacological Management <strong>of</strong> MS Symptoms<br />

Afternoon Sessions:<br />

Concurrent Sessions 3<br />

1:40 pm - 2:40 pm<br />

Aggressively Treating MS<br />

Challenges and Opportunities for the Homecare Worker<br />

Sexuality and MS<br />

Pharmacological Management <strong>of</strong> MS Symptoms<br />

Concurrent Sessions 4<br />

2:50 pm - 3:50 pm<br />

The Effects <strong>of</strong> MS on Interpersonal and Family Relationships<br />

MS <strong>Society</strong>: Can We Make a Difference<br />

Striving for Quality Care in MS Nursing<br />

Rehabilitation Management in the MS Patient<br />

Payment<br />

If paying by cheque, please make payment to MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>,<br />

Alberta Division.<br />

Cheque Attached<br />

Visa Mastercard<br />

Card #_____________________________ Expiry Date_______________<br />

Print name as it appears on card_________________________________<br />

Signature___________________________________________________<br />

Yes, I have read and understand the Cancellation Policy.


Joanne Hodder, R.N., B.Sc.N, <strong>Multiple</strong> <strong>Sclerosis</strong> Certified Nurse<br />

Special Therapies Nurse, Northern Alberta MS Special Therapies Program<br />

Dr. Ken Makus, M.D., FRCP<br />

Neurologist, Neuroservices Centre, Edmonton, AB<br />

Rose Dehod<br />

Director, Member Services and Programs, Pharmacists Association <strong>of</strong> Alberta<br />

Adeline Blumer<br />

Client Services Director, MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, AB Division<br />

Aileen Steele<br />

Client Services Support Coordinator, MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, AB Division<br />

Barb Foxall<br />

Client Services Manager, MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, Edmonton Chapter<br />

Rosalie Freund-Heritage, MSc.OT, OT(C)<br />

Pr<strong>of</strong>essional Practice Leader, Community Care and Public Health, Capital<br />

Health<br />

Jane Yi, BSc OT, MSc<br />

Pr<strong>of</strong>essional Practice Leader OT, Capital Health, Community Care Services,<br />

Home Care<br />

15<br />

event planning committee


The <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> - Alberta Division gratefully acknowledges the support <strong>of</strong><br />

Berlex <strong>Canada</strong> Inc. | Biogen <strong>Canada</strong> | Pfizer | Serono | Teva Neurosciences<br />

<strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> - Alberta Division<br />

10104-79 Street, Edmonton AB T6A 3G3<br />

Phone 780.463.1190 | Fax 780.463.7298 | Toll-free 1.800.268.7582

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