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Publications Mail Agreement No. 40063333<br />

Return undeliverables to:<br />

MS Society of Canada, BC Division<br />

1501-4330 Kingsway<br />

Burnaby, BC V5H 4G7<br />

<strong>Please</strong> <strong>share</strong> <strong>MShope</strong> <strong>MSheroes</strong> <strong>with</strong> a <strong>friend</strong>!


<strong>MShope</strong> <strong>MSheroes</strong><br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

From the Chair<br />

The new board of directors for the BC<br />

& Yukon Division of the MS Society was<br />

approved at our annual general meeting,<br />

held November 15 at the Laurel Point Inn,<br />

Victoria. At that meeting I assumed the role<br />

of Chair of the board. Later that evening I<br />

was elected as a councillor to Victoria City<br />

Council. To be elected twice in one day is<br />

very special.<br />

New members include Roberta Stewart from<br />

Prince George, she has been involved in our<br />

Volunteer Legal Advocacy Program; Fred<br />

Nenninger, a senior manager <strong>with</strong> Metro<br />

Vancouver, who brings extensive experience<br />

in governance and strategic planning; and<br />

Dr. Peter Rieckmann, a professor and the<br />

<strong>Multiple</strong> <strong>Sclerosis</strong> Research Chair at UBC.<br />

Wearing his UBC “hat”, Dr. Rieckmann<br />

took the opportunity to present a<br />

commemorative plaque to the MS Society in<br />

recognition of our role in establishing the<br />

MS Society Research Chair at UBC.<br />

Members who took part in our annual<br />

general meeting and conference enjoyed<br />

several informative presentations.<br />

2008-2009<br />

Chair<br />

Chair, Government & Community<br />

Relations Committee<br />

Lynn Hunter<br />

Past Chair<br />

Gerry Bramhill<br />

Secretary<br />

Dan Carlson<br />

Treasurer<br />

Iain Ball<br />

Chair, Client Services Committee<br />

Marilyn Lenzen<br />

AdvoCACy UPdAte<br />

Petitioning for<br />

Income Security<br />

Income security can make a huge<br />

difference in how people live <strong>with</strong><br />

a recurring episodic illness, which<br />

is how many people experience<br />

multiple sclerosis.<br />

Over the summer, MS Society<br />

members and supporters engaged<br />

MS Society chapter board members Pippa Blake of<br />

South Vancouver Island Chapter and Cesar Gomez<br />

of Okanagan Chapter urge us to take action!<br />

PAGe02<br />

Dr. Olinka Hrebicek of the Victoria<br />

MS Clinic presented on the topic “MS Clinic:<br />

Past, Present and Future.” Dr. Hrebicek<br />

spoke of the serious challenges facing the<br />

clinic because of provincial government<br />

underfunding.<br />

Dr. Jennifer Rodgers, a clinical psychologist<br />

from University of Alberta in Edmonton<br />

presented about “Coping <strong>with</strong> Cognitive<br />

Changes and Emotional Aspects of MS.” Dr.<br />

Rodgers joined a panel involving 3 couples<br />

who spoke frankly about their strategies for<br />

coping <strong>with</strong> the challenges of MS.<br />

These are among the challenges the new<br />

board will address over the coming year<br />

<strong>with</strong> new energy in the Government<br />

Relations department and<br />

<strong>with</strong> new resources for<br />

research to end MS.<br />

Best wishes to you all for<br />

the new year!<br />

Lynn Hunter<br />

Chair, MS Society, BC & Yukon<br />

BoArd oF dIreCtorS<br />

<strong>Multiple</strong> <strong>Sclerosis</strong> Society of Canada, BC & yukon division<br />

Members at large<br />

Jan Petrar<br />

John Folka<br />

Mary Ellen Tabor<br />

Mike Hennessy<br />

John Hadley<br />

Fred Nenninger<br />

Roberta Stewart<br />

Peter Rieckmann<br />

Harmony Poisson<br />

in a successful online campaign<br />

directed at educating and<br />

winning support from the federal<br />

government for basic secure income.<br />

We have now taken the campaign<br />

low tech!<br />

Since early fall, members have<br />

been gathering signatures for a<br />

petition that will be delivered to<br />

Parliament. If you have not yet<br />

signed the petition, please go into<br />

your chapter or division office to<br />

add your name. Each petition must<br />

have 25 signatures and addresses<br />

to be considered valid in the House<br />

of Commons. Completed petitions<br />

must be delivered to the BC &<br />

Yukon Division office at 1501, 4330<br />

Kingsway, Burnaby BC, V5H 4G7 by<br />

December 8, 2008.<br />

Petition to the House of Commons<br />

in Parliament Assembled<br />

We, the undersigned, citizens of Canada, draw the attention of the<br />

House to the following:<br />

WHEREAS:<br />

Dr. Olinka Hrebicek, Medical Director, Vancouver<br />

Island MS Clinic; Janet Palm, President, BC &<br />

Yukon Division; Lynn Hunter, Chair, BC & Yukon<br />

Division and Todd Abercrombie, Executive<br />

Director, South Vancouver Island Chapter.<br />

Janet Palm, President,BC & Yukon<br />

Division; Dr. Jennifer Rodgers;and<br />

Bonnie Pashak, Client Services South<br />

Vancouver Island Chapter.<br />

Peggie Maclagan & Rina Berkshire, North<br />

Vancouver Island Chapter board members,<br />

accept the Symmetry Award for achieving<br />

balanced spending between research<br />

and client services from Ulrike Kleeman<br />

BC & Yukon Division Manager of Chapter<br />

Resources.<br />

1. A lack of a secure, adequate income precludes individuals<br />

from participating and contributing fully as Canadian<br />

citizens;<br />

2. And current disability benefit programs don’t recognize<br />

or accommodate the needs of people <strong>with</strong><br />

episodic disabilities such as MS;<br />

3. And caregivers are integral to the health and well being<br />

of people <strong>with</strong> MS, are most often spouses and have<br />

significant financial and health costs associated <strong>with</strong><br />

their care giving.<br />

THEREFORE, we call upon Parliament to:<br />

1. Make Employment Insurance sickness benefits<br />

more flexible to allow for partial benefits and part-<br />

time work for individuals <strong>with</strong> episodic disabilities;<br />

2. Make the Disability Tax Credit a refundable benefit<br />

so persons <strong>with</strong> disabilities can have more income;<br />

3. Allow spouses to claim the caregiver tax credit.<br />

D e c e m b e r 2 0 0 8<br />

D e c e m b e r 2 0 0 8


Division Opal Caregiver<br />

Award<br />

Belinda Neumann’s<br />

care and support for<br />

her mother Sharon<br />

Howe from 1985 to<br />

2007 exemplifies<br />

the outstanding<br />

commitment<br />

and support<br />

demonstrated by<br />

so many family<br />

members in the face<br />

of MS.<br />

“Care giving really is not glamorous,<br />

it’s mostly done in private and it’s<br />

comprised of countless small everyday<br />

acts,” said Janet Palm, President of the<br />

BC & Yukon Division as she introduced<br />

Belinda. “These acts are done <strong>with</strong> love<br />

and hope and the intent to preserve<br />

someone’s quality of life while we<br />

search for a cure.”<br />

Belinda received her award and took<br />

the opportunity to speak about the<br />

future, “I have been able to recruit<br />

<strong>friend</strong>s and coworkers to join my team<br />

for the MS Walk and I plan on adding<br />

more people every single year. Whether<br />

it’s fundraising or volunteering, we<br />

need as many people involved as<br />

possible. We need to be able to find<br />

a cure and the only way to do that<br />

is to raise awareness and to raise<br />

much needed funds for research and<br />

support.”<br />

Recognizing our<br />

MS Heroes in 2008<br />

Belinda Neuman, Opal<br />

Caregiver Award recipient<br />

Certificate of Exceptional<br />

Achievement (Business or<br />

Corporation)<br />

The enthusiasm and support of employees<br />

from Scotiabank, BC & Yukon Region and<br />

Scotiabank led by Wendy Baker and her<br />

team helped make the 2008 MS Walk<br />

events a huge success across our division.<br />

To top things off, Scotiabank will be the<br />

title sponsor of BC & Yukon Division Walk<br />

events for the next two years!<br />

Wendy Baker, Manager, Nordel Branch Scotiabank;<br />

Paula Springman, MS Society; Janet Palm, MS Society;<br />

and Nilusha Alibhai, District Vice President, North Coast<br />

and Fraser Valley District for Scotiabank.<br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

Division President’s Award<br />

Claudette Friesen’s work <strong>with</strong>in the MS<br />

Society is far ranging and varied. She has<br />

enhanced the influence and position of<br />

persons <strong>with</strong> MS <strong>with</strong>in the Society while<br />

also encouraging others to participate in the<br />

Society. Her contribution has strengthened<br />

her local chapter to make a difference for<br />

those affected by MS.<br />

Claudette served as Chair of the Lower<br />

Mainland Chapter board of directors from<br />

2002-2004 and has been treasurer and<br />

secretary in the last four years. She helped<br />

develop the Tri-Cities self help group for<br />

which she is a contact person and leader. She<br />

has been involved in many public education<br />

initiatives including one to provide MS<br />

information to physicians in her chapter’s<br />

area. Captain of the “A-Team” a TeamMS for<br />

the MS Walks, she and team members raised<br />

over $10,000 in 2008.<br />

“MS has had a profound effect on my family.<br />

Three siblings, my uncle, two nieces, cousins<br />

and I have MS. My goal is to see every person<br />

<strong>with</strong> MS and their families given the support<br />

they need.”<br />

Claudette Friesen on right accepts BC & Yukon Division<br />

President’s Award from Janet Palm, President.<br />

Certificate of Exceptional<br />

Achievement (Volunteer)<br />

Olive Merrick’s tremendous<br />

energy is inspiring. Now<br />

84 years old, she has been<br />

the key organizer of the<br />

Comox Valley Carnation<br />

Campaign for the last 14<br />

years. Olive also organizes<br />

transportation for the<br />

Comox Valley self help<br />

group year round so that<br />

group members can attend<br />

events including a yearly<br />

Olive Merrick of<br />

North Vancouver<br />

Island Chapter<br />

luncheon that she hosts in her home for<br />

approximately 20 members.<br />

Division Award of Merit<br />

(Non-Member)<br />

Professional photographer Kent Wong<br />

and professional writer Sandy Wiseman<br />

collaborated <strong>with</strong> Kamloops and Area<br />

chapter to create the “Faces of MS” an art<br />

show and public education project that<br />

involved eleven people <strong>with</strong> MS in the<br />

Kamloops area. Kent’s portraits combine<br />

<strong>with</strong> Sandy’s text to convey the variety of<br />

ways that people live <strong>with</strong> and fight <strong>with</strong><br />

MS. Both generously volunteered their<br />

time and talents to this project.<br />

Sandy Wiseman, writer; Marilyn Poncelet, Chair, Kamloops<br />

& Area Chapter; and Kent Wong, photographer.<br />

Division Award of Merit<br />

(Member)<br />

Genevieve Sigalet<br />

is famous for<br />

organizing “Shut<br />

Out MS” <strong>with</strong><br />

talented hockey<br />

goalie son, Jordan<br />

Sigalet and their<br />

many good<br />

<strong>friend</strong>s.<br />

Upon receiving<br />

her Award of<br />

Merit, Genevieve<br />

surprised<br />

everyone by<br />

Genevieve Sigalet and<br />

Debbie Hazlett <strong>with</strong><br />

Vancouver Canucks tickets.<br />

presenting the MS Society <strong>with</strong> a cheque<br />

for $10,000. The donation was raised<br />

partly through sales of a cookbook<br />

compiled by the family members of the<br />

Providence Bruins, the team Jordan and<br />

brother Jonathan played for this past year.<br />

Her next venture? Genevieve and Debbie<br />

Hazlett have beautifully framed Vancouver<br />

Canucks tickets from the opening game in<br />

1970.<br />

For information about the tickets email:<br />

gensigalet@hotmail.com or thehazes@<br />

hotmail.com.<br />

D eD ce ec me mb eb r e r 2 02 0 080 8 PAGe03


<strong>MShope</strong> <strong>MSheroes</strong><br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

Get Active!<br />

Provincial resources<br />

by Cynthia Khoo<br />

Recently, there has been much emphasis by B.C.’s<br />

government on active living. Initiatives such as<br />

BC Healthy Living Alliance, ActNowBC, and the<br />

20% Challenge (increase physical activity of British<br />

Columbians 20% by 2010) have sprung up <strong>with</strong><br />

megaphones blaring into our hitherto contentedly<br />

idle ears. Be active! Be healthy! Act now! GO!<br />

Leading an active lifestyle can bring more benefits<br />

than a sedentary one, (just how much is a question<br />

that UBC researchers are exploring. See “Thanks”<br />

article on page 5) but <strong>with</strong> MS, how exactly do you<br />

incorporate activity into your life?<br />

Well, there are many organizations in B.C. offering<br />

access to physical activities specifically customized<br />

for people <strong>with</strong> disabilities. Whether you want<br />

sailing or hiking, pick-up basketball or Paralympic<br />

skiing, thereís something for almost everyone!<br />

BC Disability Sports (www.disabilitysport.org) is the<br />

leading non-profit in this field, responsible for the<br />

BC Disability Games and related programs. People<br />

participate in a variety of sports recreationally or<br />

competitively, all the way up to the Paralympics!<br />

Similar, associated organizations include SportAbility<br />

(www.cpsports.com/Sportability/sportability.htm),<br />

2010 Legacies Now (www.2010legaciesnow.com),<br />

and Active Living Alliance (www.ala.ca).<br />

reading About People (<strong>with</strong> MS)<br />

the Good Body: A Novel by Bill Gaston<br />

This story explores the intersections between masculinity and<br />

multiple sclerosis.<br />

After a complicated departure from his professional hockey<br />

career in the USA, Bobby Bonaduce heads back to Fredericton,<br />

New Brunswick. Newly diagnosed <strong>with</strong> MS, Bonaduce cheats<br />

his way into graduate school and attempts to reconcile <strong>with</strong><br />

his wife Leah (neither of them ever followed through <strong>with</strong> a<br />

divorce) and their son Jason, both of whom he left 10 years<br />

ago.<br />

Initially, I was skeptical that Bobby Bonaduce could be a<br />

believable character. Thankfully, Bill Gaston manages to<br />

create an unpredictable, genuine main character that skirts<br />

stereotypes about hockey players and about MS.<br />

Even if you aren’t interested in hockey (?!) you will find this<br />

novel entertaining. It is humorous, gritty and highly readable,<br />

enriched by characters that are fallible, surprising and<br />

multifaceted.<br />

Bill Gaston is a novelist, short story writer, poet and screenwriter who lives in Victoria BC.<br />

The Good Body: A Novel can be found in some public libraries.<br />

PAGe04<br />

Cowichan Valley members Darcie James (Left) and Sarah Mathison enjoying themselves on the top of Mount<br />

Tzouhalem this summer. The hike was organized through the Cowichan Independent Living’s Adaptive Recreation<br />

program <strong>with</strong> the manpower provided by the local running club!<br />

BC Wheelchair Sports Association<br />

(www.bcwheelchairsports.com) offers<br />

various levels of sports recreation<br />

and competition. Notable is their<br />

Wheelchair Loan Program, for those<br />

<strong>with</strong> no access to sport wheelchairs,<br />

and Bridging the Gap, a hands-on<br />

introduction to wheelchair sports.<br />

BC Blind Sports and Recreation<br />

Association (www.bcblindsports.bc.ca)<br />

may be something for those <strong>with</strong> optic<br />

neuritis, offering eleven sports from<br />

club to Paralympics level.<br />

BC Mobilities Opportunities Society<br />

(www.reachdisability.org/bcmos)<br />

is known for their revolutionary<br />

TrailRider, which allows people <strong>with</strong><br />

disabilities to do wilderness activities<br />

Dear Sonja, Coordinator, Equipment Provision Program,<br />

Thanks a million! The brace has increased my mobility and takes some of<br />

the strain off my foot and lower leg. It has allowed me to continue working<br />

<strong>with</strong> horses, riding, training and instructing as a small source of income to<br />

supplement the CPP disability income. I am so grateful for it.<br />

reviewed by Angela Hold<br />

B.W. in Kelowna<br />

Contact us at 604.689.3144 or mssociety.ca/bc/epp.html<br />

in the great outdoors, such as hiking,<br />

fishing, gliding, and mountain climbing!<br />

BC Therapeutic Riding Association<br />

(www.vcn.bc.ca/bctra) provides horseback<br />

riding therapy, long recognized for its<br />

psychological and physiological benefits to<br />

people <strong>with</strong> disabilities.<br />

Finally, there is the self-explanatory<br />

Disabled Sailing Association of BC<br />

(www.disabilityfoundation.org/dsa), which<br />

also provides disabled kayaking, and the<br />

Disabled Skiers Association of BC<br />

(www.disabledskiingbc.com).<br />

Although physical activity may be<br />

beneficial to many, we encourage you to<br />

consult your doctor before taking up any<br />

new or strenuous activity.<br />

1-800-361-2985<br />

D e c e m b e r 2 0 0 8<br />

100K<br />

MS Society<br />

D e c e m b e r 2 0MS Plane 0Concept 8<br />

FAFFC35E-0708<br />

4C/91M/88Y<br />

You may<br />

qualify for<br />

assistance<br />

through the<br />

Equipment<br />

Provision<br />

Program.<br />

We will never fly.<br />

Be part of something monumental.<br />

Funded largely by the MS Society,<br />

Canadian researchers have<br />

brought the cure for MS<br />

<strong>with</strong>in reach. Let’s take this<br />

last step together.<br />

It’s time. Give now.<br />

11012<br />

Production<br />

Copywriter<br />

Art Director<br />

Version 0<br />

2008.07.1<br />

Account Manager<br />

Account Coordinator<br />

Studio


esearchers say<br />

In the last newsletter we invited members<br />

of the MS Society who are diagnosed <strong>with</strong><br />

multiple sclerosis to participate in our<br />

questionnaire-driven study about physical<br />

activity and quality of life.<br />

Your response was overwhelming! We<br />

greatly appreciate that so many MS Society<br />

members took the time to participate in<br />

this research. We thank everybody who<br />

returned the questionnaire.<br />

You still have time to return questionnaires<br />

if you wish to participate. Every<br />

questionnaire returned will be included in<br />

our study. All information provided will<br />

remain strictly confidential. We are now<br />

working on the analysis of the study and<br />

we plan to let readers of the MS Hopes MS<br />

Heroes know of our progress in the next<br />

newsletter.<br />

Questionnaire return deadline:<br />

December 31, 2008<br />

2009 Walk Dates<br />

Lower Mainland April 26, 2009<br />

Fraser Valley April 26, 2009<br />

Vancouver Island<br />

Victoria April 5, 2009<br />

Duncan April 5, 2009<br />

Nanaimo April 26, 2009<br />

Port Alberni April 26, 2009<br />

Comox Valley April 5, 2009<br />

Port Hardy April 26, 2009<br />

Interior BC April 26, 2009<br />

Northern BC & Yukon<br />

Prince George June 7, 2009<br />

Whitehorse June 14, 2009<br />

Register now at www.mswalks.ca<br />

Questions about the study? <strong>Please</strong> contact<br />

Dr. Verena Strehlau at vstrehlau@brain.ubc.<br />

ca or Michelle Eisner at 604.827.3111.<br />

Thank you from<br />

Dr. Peter Rieckmann & Dr. Verena Strehlau<br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

MS in Hollywood - the Sequel<br />

By Gabrielle Veto<br />

Effective story-telling needs tension and<br />

conflict of all kinds to engage our attention.<br />

When watching movies that portray characters<br />

<strong>with</strong> multiple sclerosis, it’s important to<br />

remember that the goal of the movie is to<br />

entertain, not necessarily to educate.<br />

Movies like Hilary and Jackie<br />

(1998) and Go Now (1995) really<br />

bring that point home.<br />

The first is about celebrated<br />

cello virtuoso Jacqueline Du<br />

Pre. Based on the book written<br />

by her sister Hilary, the movie<br />

was well reviewed and received<br />

two Oscar nominations for the<br />

brilliant work of actresses Emily<br />

Watson and Rachel Griffiths. It<br />

is a tragedy based on coping<br />

<strong>with</strong> the gift of genius and the<br />

lifelong relationship between<br />

two sisters. Jacqueline Du Pre<br />

had a progressive form of MS<br />

that ended her life at age 42.<br />

Explanations about the forms<br />

MS can take are absent from the<br />

movie because MS education is<br />

not the goal of the film. It is an<br />

emotional piece that mistakenly<br />

leaves the impression that MS<br />

is fatal and it confuses the<br />

instability of genius <strong>with</strong> the<br />

emotional challenges of chronic<br />

disease.<br />

In a Legal Crisis?<br />

talk to April Griffin<br />

by Cynthia Khoo<br />

April Griffin facilitates the one-of-a-kind,<br />

BC&Y Division’s Volunteer Legal Advocacy<br />

Program (VLAP). VLAP involves volunteer<br />

lawyers and others who provide legal<br />

assistance to those not eligible for Legal<br />

Aid, on issues such as CPP (Canadian<br />

Pension Plan) and LTD (long term disability)<br />

among other issues.<br />

April, VLAP Coordinator, spends her days<br />

communicating <strong>with</strong> people all over the<br />

province, giving information, advice,<br />

guidance, and support. She also advocates<br />

for and connects them <strong>with</strong> volunteer<br />

lawyers and legal representation if<br />

needed, while doing research, maintaining<br />

statistics, developing resource booklets,<br />

and managing volunteer training.<br />

Asked about the major issues for people<br />

<strong>with</strong> MS seeking legal aid, April first cites<br />

the application forms process, which deters<br />

those <strong>with</strong> cognitive or motor disabilities.<br />

Without aid, people must navigate court<br />

systems themselves, while already under<br />

stress from both MS and their legal<br />

crisis. As April indicates, “It can be an<br />

overwhelming process. Big things are at<br />

stake.”<br />

Moreover, “MS is such a broad disease,<br />

<strong>with</strong> so many different forms, and often<br />

it’s an invisible disease, so it can be<br />

Another wonderful actor, Robert Carlyle<br />

plays a man <strong>with</strong> MS in the made for<br />

British TV movie Go Now (1995). Carlyle<br />

portrays a young Scottish soccer player<br />

and plasterer who falls in love <strong>with</strong> a<br />

waitress. After they move in together<br />

he is diagnosed <strong>with</strong> MS. The physical<br />

and emotional changes he goes through<br />

are portrayed <strong>with</strong> honesty and<br />

sometimes brutal humour.<br />

This movie does not emotionally<br />

manipulate the viewer, but<br />

does take us on the step-bystep<br />

journey of a blue-collar<br />

everyman whose very physical life<br />

deteriorates as his MS progresses.<br />

Go Now is a good example of<br />

a movie combining undistorted<br />

facts about MS, great acting and<br />

honest story-telling into one<br />

package. Perhaps this movie is so<br />

effective because one of the cowriters<br />

has MS.<br />

Like MS, how the disease is<br />

portrayed in our pop culture is<br />

unique and unpredictable. It is<br />

best to remember that when MS<br />

is portrayed or mentioned in our<br />

popular media, it creates a great<br />

opportunity for those of us <strong>with</strong> a<br />

vested interest to refer others to<br />

resources for factual explanations<br />

and education.<br />

hard to prove to someone who doesnít<br />

understand.” For example, April often<br />

deals <strong>with</strong> employers unwilling to<br />

accommodate for MS, or don’t know how:<br />

”We help people articulate what they’re<br />

going through.”<br />

Due to high demand, VLAP is in constant<br />

need of more lawyers or volunteers, so<br />

please contact us if interested. April herself<br />

is currently working <strong>with</strong> CPP to establish<br />

online applications, and encourages<br />

anybody applying for CPP or LTD to contact<br />

VLAP beforehand, to increase your chances<br />

of getting approved.<br />

do you need help <strong>with</strong>:<br />

Canada Pension Plan Disability Insurance<br />

You may qualify for the MS Society’s Volunteer<br />

Legal Advocacy Program.<br />

For information call<br />

604.689.3144 or 1.800.268.7582<br />

D eD ce ec me mb eb r e r 2 02 0 080 8 PAGe055


<strong>MShope</strong> <strong>MSheroes</strong><br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

Fundraising<br />

H E R o E S<br />

Metro Vancouver employees were<br />

rewarded <strong>with</strong> great weather at<br />

their September 14, 2008 Charity<br />

Golf Tournament where a record<br />

135 participants golfed, bid in a<br />

silent auction and bought tickets<br />

for a 50/50 draw. Tara Dong (left)<br />

presents a cheque for $3,394 to<br />

Beverly Matsu.<br />

PAGe06<br />

Glen Wilson, Eliza Lew and Mike Lew<br />

proudly represented the employee driven<br />

Telus “Dollars for Dollars” fundraising<br />

program to deliver a cheque for $11,449.<br />

A big thank you to the Telus employees<br />

and corporation!<br />

MS 100 Hole Golf Challenge<br />

Rising before dawn to play 100 holes of<br />

golf in one day, 24 dedicated MS Society<br />

supporters enjoyed a beautiful day while<br />

they raised an amazing $100,000 to drive the<br />

cure for MS.<br />

While participants each commit to raising<br />

$1,500, each and every golfer almost always<br />

exceeds the minimum.<br />

Top fundraiser by a hair was Colin Daintrey<br />

who raised over $12,441, followed closely<br />

by Sören Schou who raised over $12,439.<br />

Harmony Poisson was third top fundraiser<br />

<strong>with</strong> over $8,300.<br />

Top fundraiser Colin Daintrey <strong>with</strong> Bev<br />

Matsu and Paula Springman, MS Society<br />

The International<br />

Brotherhood of Electrical<br />

Workers (IBEW) local 258<br />

continued their 13 year history of<br />

support for the MS Society <strong>with</strong><br />

an amazing $10,100 donation<br />

raised at their annual golf<br />

tournament.<br />

Right to left: Mark Davison and<br />

Dan Klassen, IBEW local 258 <strong>with</strong><br />

Paula Springman and Bev Matsu,<br />

MS Society of Canada.<br />

The Gujarati Hindu Seniors raised $500<br />

in support of the MS Society. Thank<br />

you to these kind seniors for their<br />

wonderful support!<br />

Pictured: Mrs. Bansi Gandhi, President<br />

of the Gujarati Hindu Senior Society<br />

McGregor Wark, 100 Hole Challenge<br />

Committee member and Dave Major<br />

take the challenge in 2009! Next MS 100 Hole Golf Challenge is Monday, September 14<br />

For information Beverly Matsu 604.602.3202 or beverly.matsu@mssociety.ca I MSgolfchallenge.ca<br />

organize a fundraiser<br />

Call Bev Matsu<br />

604.602.3202<br />

Halloween Headshave Raises Hackles and<br />

MS Hope!<br />

Chelsea Money(right) and Jennifer Nilsen<br />

bared their skulls for Halloween. These<br />

young women held a joint fundraiser<br />

in Saturna Island to raise almost $5,000<br />

in support of the MS Society and the BC<br />

Cancer Society.<br />

D e c e m b e r 2 0 0 8<br />

D e c e m b e r 2 0 0 8<br />

Back Row from left to right: Peter Thanas, Don MacSorley, Don Daintry, Jim Peers, Christian La Roche, Dave Dalbo, McGregor Wark, James Carpenter, Ryan McKenzie, Sean LeFaivre,<br />

Andrew Levy. Front Row from left to right: Paula Springman (MS Society), Amadeus Nip, Andrew Britnell, Thomas DeSchutter, John Folka, Rick Folka, Dave Major, Craig Lennox, Bev Matsu<br />

(MS Golf Coordinator), Harmony Poisson, Ryan Carr, Sören Schou, Bob Dowbiggin, Darren McLean. Missing from photo: Lindsay Hendy and Blaine Monaghan


unning for Joy<br />

Jan Burghardt set out to raise money<br />

towards ending MS by running 26 miles<br />

for each year her mother, Joy, lived <strong>with</strong><br />

MS.<br />

On Sunday, November 2, her late mother’s<br />

birthday, Jan accomplished her dual goal,<br />

running the New York City Marathon in<br />

5hours and 7 minutes and raising $10,000.<br />

“<br />

In her own words...<br />

The race was amazing. Crowds were lined<br />

up cheering for the athletes and looking<br />

for names on shirts. People read my shirt<br />

as I ran, calling out “Run for Joy.” And I<br />

did. I ran over 5 bridges and high-fived<br />

hundreds of little children who lined the<br />

route for hours to cheer us on in the cold.<br />

My dad had given me mom’s wedding<br />

ring and her half of a 1959 silver dollar<br />

(cut for their wedding day) that I wore on<br />

a necklace. I pulled it out and held onto it<br />

when I needed some inspiration.<br />

I found out later my son in Ottawa was<br />

following my progress online through<br />

the “athlete alert” chip on my shoe. Eric<br />

texted my dad and husband at home as<br />

well as my two daughters who were <strong>with</strong><br />

me in New York. With the information,<br />

Rachel and Annie, used the subway to<br />

The best team you’ll ever be on!<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

Fraser Valley Grape Escape<br />

June 6 & 7, 2009<br />

Vancouver Scenic City Tour<br />

August 9, 2009<br />

Cowichan Valley Grape Escape<br />

August 8 & 9, 2009<br />

Kamloops Thompson River Ride<br />

September 13, 2009<br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

pop up along the route. But as I ran I<br />

didn’t see them in the crowd.<br />

The last 3 miles I found myself counting<br />

my steps, guessing distances between<br />

traffic lights and signs to measure the<br />

distance left to run. I found myself<br />

scanning the crowds for my girls. It kept<br />

me running, hoping to find them, but I<br />

still hadn’t seen my daughters when I read<br />

the sign “The final 300 hundred yards.”<br />

Suddenly I heard them calling me.<br />

Unbelievably, they were against the fence.<br />

I just broke down in tears. They were<br />

wearing their “Run for Joy” shirts, waving<br />

their arms and cheering me on.<br />

I started to run towards them and Rachel<br />

called out “Mom, no! Keep going!” but<br />

there was no way I wasn’t stopping. I<br />

hugged them both! Amid the smiles and<br />

tears I know mom was <strong>with</strong> the three of<br />

us at that moment. I held the necklace<br />

for the final 300 yards and raised my arms<br />

high at the finish.<br />

Mom would have loved every moment of<br />

that weekend.<br />

Happy Birthday, Joy.<br />

Ski for MS<br />

D eD ce ec me mb eb r e r 2 02 0 80 8<br />

PAGe07<br />

“<br />

Help end MS by skiing and raising funds<br />

on February 15th, 2009 at<br />

Mount Washington Alpine Resort.<br />

Register online at<br />

www.mssociety.ca/msfundraising<br />

FoR MoRE InFoRMATIon<br />

call 250.339.0819<br />

toll free 1.877.339.0819 or<br />

email nvichapter@telus.net<br />

BoB for<br />

MS Hope<br />

The members of Team<br />

BOB geared up to be<br />

<strong>with</strong> over 180 riders who<br />

raised $55,000 September<br />

7, 2008 at the Thompson<br />

River Ride. One of four<br />

great events in the RONA<br />

MS Bike tours in BC &<br />

Yukon!


<strong>MShope</strong> <strong>MSheroes</strong><br />

<strong>MShope</strong> <strong>MSheroes</strong><br />

BC roundUp<br />

Enjoying ‘A Taste of Nelson’<br />

New Leadership at the Kamloops & Area Chapter<br />

After 10 years at the helm, Marcia Wilson is stepping back from the leadership role at<br />

the Kamloops & Area Chapter. Trina Radford has joined the team in the role of Chapter<br />

Manager & Fundraising Coordinator, and as of December she will begin working on the<br />

organization of the Scotiabank MS Walk and RONA MS Bike Tour.<br />

Trina will also be taking time to get to know local and provincial staff and volunteers as<br />

she settles into her position as team leader. Marcia Wilson will stay on <strong>with</strong> the chapter<br />

in a part time position focusing on public education, communication and advocacy.<br />

<strong>Please</strong> join us in welcoming Trina. Here’s to new ideas, skills and energy!<br />

Are yoU A MeMBer?<br />

As a member of the MS Society you: Have a<br />

say in the future of the MS Society I Allow us<br />

to speak <strong>with</strong> a more powerful voice on behalf<br />

of Canadians <strong>with</strong> MS I Receive Chapter, Division<br />

and national newsletters I Have access to<br />

MS Society programs and resource library<br />

Annual membership $10<br />

Become a member today!<br />

1.800.268.7582<br />

West Kootenay Chapter hosts 5th annual “A taste of<br />

Nelson”, an elegant evening of sampling the signature dishes<br />

of Nelson and area’s finest dining establishments. A silent auction<br />

raised almost $6000 for chapter programs and events. Kudos<br />

to fundraising coordinator Dawn Lang and her great group of<br />

volunteers!<br />

<strong>MShope</strong> <strong>MSheroes</strong> Winter 2008<br />

editor/Writer: Suzanne Jay I Contributors: Cynthia Khoo, Katie Lapi, Danny Jay, Jason Hopkins,<br />

Jackie Connelly, Quincey Cable, Angela Hold, Gabrielle Veto, Marcia Wilson, Cherie Kamenz, Jeff Nelson<br />

and many MS event photographers I designer: Michelle Reaney I Cover design: Katie Lapi<br />

Published 4 X’s a year, MS hope MS heroes is intended to provide news and information to people living <strong>with</strong> MS, their families, caregivers,<br />

medical professionals and other stakeholders. Information/opinions contained in this newsletter are obtained from sources believed<br />

to be reliable, but their accuracy cannot be guaranteed. The MS Society does not approve, endorse or recommend specific products or<br />

services and respects an individual’s right to make their own health management decisions. However, we can provide information to assist<br />

people in their decision process. For specific, personalized information, please consult your physician or other health care professional.<br />

MS Society of Canada I BC & Yukon Division I 1501-4330 Kingsway, Burnaby BC V5H 4G7<br />

Ph. 604.689.3144/1.800.268.7582 I email:info.bc@mssociety.ca I www.mssociety.ca<br />

Charitable Registration # 10774 6174 RR0002<br />

If you are receiving a copy of MS hope MS heroes for the first time – it is because you have been identified as one of our MS heroes who has made a real difference in the fight to end MS.<br />

As a member, donor, sponsor, volunteer, event participant, or researcher – you are part of our world - a world that wants to end MS. If you would prefer to receive this newsletter as an email<br />

– or simply wish to be removed from our mailing list – please contact us at 1.800.268.7582 or info.bc@mssociety.ca. thanks for your support.<br />

PAGe08<br />

GIft wrappers at Metrotown<br />

volunteers inspire MS hope<br />

Volunteers bring boundless energy and<br />

determination to find a cure for MS and<br />

enhance the lives of people affected by the<br />

disease.<br />

An example of the value added by<br />

volunteers: In 2008, <strong>with</strong>in the lower<br />

mainland, fundraising event volunteers<br />

contributed 5,777 hours of time. Valued at<br />

a low $10 per hour, this contribution equals<br />

$57,770.<br />

This is only a specific group of volunteers<br />

in one chapter! So many more people<br />

contribute to the Society in a wide range<br />

of capacities in chapters throughout our<br />

division. We thank you all!<br />

Holiday Festivities<br />

Get your shopping done and gifts wrapped at Metrotown<br />

Shopping Mall in Burnaby!<br />

Marcia Wilson (right) <strong>with</strong> new chapter manager Trina Radford.<br />

Over 150 MS Society volunteers will be taping, wrapping<br />

and finishing <strong>with</strong> a pretty bow thousands of Christmas gifts<br />

beginning November 28 to December 24. This fundraiser always<br />

helps us end the year on a happy note!<br />

Left to right: Volunteers Jason Wong, Coro Mohr,<br />

Rati Aurora, Stacey Bradshaw, Volunteer Coordinator<br />

and fellow volunteer Dario Tolusso enjoyed dinner<br />

together after receiving pins acknowledging their years<br />

of service at the MS Society’s 2008 Recognition dinner.<br />

Help the MS Society<br />

win $5,000 from<br />

the Give a Better<br />

Life Foundation.<br />

Vote online for the<br />

endMS video and tell your<br />

family and <strong>friend</strong>s to vote today.<br />

Vote.giveabetterlife.com<br />

D e c e m b e r 2 0 0 8<br />

D e c e m b e r 2 0 0 8

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