Multiple sclerosis and botox - Multiple Sclerosis Society of Canada
Multiple sclerosis and botox - Multiple Sclerosis Society of Canada
Multiple sclerosis and botox - Multiple Sclerosis Society of Canada
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<strong>Multiple</strong> <strong>sclerosis</strong> <strong>and</strong> <strong>botox</strong><br />
Dr. R.B. Egerdie<br />
<strong>Multiple</strong> <strong>Sclerosis</strong> can affect<br />
many aspects <strong>of</strong> your quality<br />
<strong>of</strong> life, but one <strong>of</strong> the most<br />
troublesome, <strong>and</strong> difficult to<br />
manage, is the alteration <strong>of</strong> normal<br />
bladder function that occurs with<br />
the disease. To a greater or lesser<br />
extent, many people as they<br />
age experience bladder control<br />
problems; however, if a neurologic<br />
disease is superimposed upon the<br />
deteriorating bladder function that<br />
occurs with aging, it can become<br />
quite miserable.<br />
Bladder urgency, urinary<br />
frequency, urinary incontinence,<br />
<strong>and</strong> the expense <strong>of</strong> pads <strong>and</strong><br />
medications may become<br />
consuming issues, <strong>and</strong> the available<br />
treatments <strong>of</strong>ten have very<br />
undesirable side effects rendering<br />
them ineffective or intolerable.<br />
But there are options. Botox,<br />
In very small doses, <strong>botox</strong>, or<br />
botulinum toxin, has an amazing<br />
number <strong>of</strong> uses in medicine.<br />
or botulinum toxin, is the most<br />
poisonous substance known to man<br />
<strong>and</strong> causes botulosis. In very small<br />
doses, however, it has an amazing<br />
number <strong>of</strong> uses in medicine.<br />
Botox was first approved for use<br />
in 1989 for the treatment <strong>of</strong> neck<br />
spasms, eye spasms, crossed eyes,<br />
muscle spasms (cerebral palsy, or<br />
after a stroke), abnormal sweating,<br />
<strong>and</strong> for cosmetic purposes<br />
(smoothing wrinkles). Recently<br />
Botox was approved for use in<br />
<strong>Canada</strong> for patients with spinal<br />
cord injuries <strong>and</strong> degenerative<br />
neurologic conditions, including<br />
multiple <strong>sclerosis</strong>.<br />
Botox only acts in the area<br />
where it is injected, <strong>and</strong>, since<br />
it only works locally, it does not<br />
cause the dry mouth, constipation,<br />
blurring <strong>of</strong> vision, <strong>and</strong> other side<br />
effects commonly associated with<br />
medications taken by mouth. Small<br />
amounts <strong>of</strong> Botox are injected into<br />
your bladder, under sedation, in<br />
20 injection sites so that the entire<br />
bladder is treated.<br />
See Botox on page 7<br />
To LIKE our Facebook page, go to www.facebook.com/mssocietywdc<br />
Board <strong>and</strong> staff . . . . . . . . . . 2<br />
Farewell . . . . . . . . . . . . . . . 2<br />
Winter fitness . . . . . . . . . 3<br />
Calendar <strong>of</strong> events . . . . . . .4, 5<br />
Program descriptions . . . .7<br />
An appeal for help . . . . . . . 8<br />
All programming <strong>and</strong> services <strong>of</strong> the MS <strong>Society</strong> are <strong>of</strong>fered in a barrier-free facility
Thank you to an MS advocate<br />
It is with warmest regards that<br />
we say goodbye to our Executive<br />
Director, Susan St. John.<br />
Susan has been with the MS<br />
<strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, Waterloo<br />
District Chapter for the past four<br />
years <strong>and</strong> during that time has<br />
achieved great successes <strong>and</strong><br />
accomplishments in her mission to<br />
help people in our community live<br />
better with MS.<br />
We wish Susan all the best in her<br />
future endeavors <strong>and</strong> thank her for<br />
the time <strong>and</strong> dedication she has<br />
given us over the years.<br />
DO YOU LIKE US?<br />
Have you visited our Facebook page? We would like to hear from you<br />
about what sort <strong>of</strong> information you would like posted there. We also<br />
welcome discussion. Do you have any issues you want to discuss? Like<br />
us at facebook.com/mssocietywdc.<br />
Contact us<br />
Client Services Coordinator<br />
Carrie Van Lingen, carrie.vanlingen@mssociety.ca, ext. 5<br />
Administration <strong>and</strong> Finace<br />
Craig Stevenson, craig.stevenson@mssociety.ca, ext. 10<br />
Volunteer <strong>and</strong> Event Coordinator<br />
Kim Kay, kim.kay@mssociety.ca, ext. 3<br />
We can be reached at 519-569-8789<br />
The MS <strong>Society</strong> Mission Statement:<br />
The MS <strong>Society</strong> enables people affected by multiple<br />
<strong>sclerosis</strong> to enhance their quality <strong>of</strong> life, raises funds<br />
for local programs <strong>and</strong> services, <strong>and</strong> supports research<br />
toward finding a cure for multiple <strong>sclerosis</strong>.<br />
Board <strong>of</strong> Directors<br />
Past Chair: Sharon Giles<br />
Chair: John Emrich<br />
Vice Chair: TBA<br />
Treasurer: Dianne Ritz<br />
Secretary: Terry O’Keefe<br />
Director <strong>of</strong> Human Resources:<br />
TBA<br />
Director <strong>of</strong> Non-Event<br />
Fundraising: TBA<br />
Director <strong>of</strong> Volunteers: TBA<br />
Director <strong>of</strong> Facilities: Toi Vaino<br />
Director <strong>of</strong> Client Advocacy:<br />
Gord Hill<br />
Director <strong>of</strong> Client Services:<br />
Lissa Kuzych<br />
Director <strong>of</strong> Communications:<br />
Brad Needham<br />
Directors at Large:<br />
Linda Jarrett, Lisa Powell<br />
& Bob McColl<br />
Honorary Member/Consultant:<br />
Dr. Patti M<strong>and</strong>alfino<br />
Board meetings: Fourth<br />
Wednesday, 5 p.m., MS Centre<br />
on Belmont. Visitors welcome.<br />
Client Advisory Council<br />
contact: Cheryl Fisk, 519-<br />
744-4920, fisk@rogers.com
FITNESS<br />
Exercising safely in the cold<br />
By Eliza Reid<br />
Winter weather provides a<br />
number <strong>of</strong> unique opportunities to<br />
get outside <strong>and</strong> be active. Skating,<br />
skiing, snowshoeing, <strong>and</strong> hiking<br />
are all excellent exercises for your<br />
cardiovascular system. Improved<br />
mood, self-image <strong>and</strong> sleep are<br />
only a few <strong>of</strong> the many benefits to<br />
being active all year round.<br />
The cold weather <strong>and</strong> winter<br />
terrain, however, can pose some<br />
unique challenges <strong>and</strong> risks.<br />
The key to enjoying the benefits<br />
<strong>of</strong> exercising outdoors while<br />
minimizing your risk <strong>of</strong> an injury<br />
is to prepare well for the winter<br />
conditions. Here are some tips to<br />
keep you safe outside <strong>and</strong> feeling<br />
great.<br />
Dress for the cold weather. Wear<br />
cold weather boots with adequate<br />
grip on the bottom to help with<br />
navigating safely on snowy terrain.<br />
Wear warm socks, gloves <strong>and</strong> a hat.<br />
A fair amount <strong>of</strong> our body heat is<br />
lost from the top <strong>of</strong> our heads so it<br />
is important to keep yours covered<br />
up. Dress in loose fitting clothing,<br />
this will allow for a pocket <strong>of</strong><br />
warm air to be created between you<br />
<strong>and</strong> your clothes. Always bring a<br />
spare pair <strong>of</strong> socks <strong>and</strong> gloves so<br />
you can change them if they get<br />
wet. Frostbite most <strong>of</strong>ten occurs<br />
with the fingers, toes, ears <strong>and</strong> nose<br />
so do your best to keep them all<br />
warm <strong>and</strong> dry.<br />
When exercising, our bodies<br />
use energy <strong>and</strong> produce heat at<br />
When exercising outdoors, dress for the cold weather. And always bring<br />
an extra pair <strong>of</strong> socks <strong>and</strong> gloves in case yours get wet.<br />
an increased rate. These actions<br />
occur at the cellular level. These<br />
cells function best when they are<br />
adequately hydrated <strong>and</strong> have<br />
a readily available fuel supply.<br />
To assist our body’s production<br />
<strong>of</strong> heat, we can drink plenty <strong>of</strong><br />
non-caffeinated fluids before<br />
<strong>and</strong> during exercise. Also, eat<br />
a light snack before exercising<br />
in the cold. It is best to avoid<br />
drinking alcoholic beverages<br />
when exercising outdoors as it<br />
impairs the ability to feel the onset<br />
<strong>of</strong> frostbite. It also works as a<br />
vasodilator, which opens the blood<br />
vessels, <strong>and</strong> in cool weather can<br />
lower your body temperature.<br />
Lastly, listen to your body for<br />
signs that it might be time to go<br />
in <strong>and</strong> get warmed up. Move<br />
indoors if you are shivering, if<br />
your coordination becomes worse,<br />
or if you are feeling tired. As with<br />
any exercise program always<br />
All programming <strong>and</strong> services <strong>of</strong> the MS <strong>Society</strong> are <strong>of</strong>fered in a barrier-free facility<br />
begin slowly <strong>and</strong> try to set small<br />
attainable goals for yourselves.<br />
Wishing you all a wonderful New<br />
Year full <strong>of</strong> winter outings.<br />
References:<br />
http://uk.news.yahoo.com/5common-injuries-cold-weathersports-145600200--spt.html<br />
http://www.princeton.edu/~oa/<br />
safety/hypocold.shtml<br />
http://www.ehow.com/<br />
way_5668389_cold-weatherinjury-prevention.html<br />
http://www.medicinenet.com/<br />
frostbite/article.htm<br />
http://www.medterms.com/script/<br />
main/art.asp?articlekey=3522<br />
Eliza Reid<br />
B.Sc. Ex.Sc.,<br />
Certified<br />
Kinesiologist
MS CENTRE January 2013<br />
OUR<br />
MISSION<br />
Sunday Monday Tuesday Wednesday Thursday Friday Saturday<br />
Please detach this calendar <strong>and</strong> post it as a reminder <strong>of</strong> MS <strong>Society</strong> programs.<br />
5<br />
Massage<br />
Therapy<br />
10 am - 12:30 pm<br />
4<br />
2 3<br />
1<br />
Centre Closed<br />
We will<br />
enable<br />
people<br />
affected<br />
by multiple<br />
<strong>sclerosis</strong><br />
to enhance<br />
their quality<br />
<strong>of</strong> life…<br />
New Year’s Day<br />
12<br />
10 11<br />
9<br />
8<br />
Yoga (4)<br />
10:30 - 11:30 am<br />
7<br />
Seated Stretch<br />
11 - 11:30 am<br />
6<br />
Foot care<br />
10:30 - 2:30 pm<br />
Access to Fitness<br />
(tentative)<br />
7 - 9 pm<br />
Lunch Bunch<br />
11:30 - 2:30 pm<br />
18 19<br />
17<br />
13<br />
Please share<br />
your<br />
thoughts on<br />
our programs<br />
by contacting<br />
us at<br />
519-569-8789<br />
or<br />
info.waterloo<br />
@mssociety.ca<br />
16<br />
Massage Therapy<br />
3:30 - 6 pm<br />
15<br />
Yoga (5)<br />
10:30 - 11:30 pm<br />
Kitchen<br />
Independence<br />
10 am - noon<br />
Walk Committee<br />
6 - 7:30 pm<br />
14<br />
Seated Stretch<br />
11 - 11:30 am<br />
Living Well<br />
Discussion Group<br />
7 - 9 pm<br />
Lunch Bunch<br />
11:30 am - 2:30 pm<br />
26<br />
Massage<br />
Therapy<br />
10am - 12:30 pm<br />
25<br />
24<br />
23<br />
Travels to the<br />
Mediterranean<br />
with Donna<br />
11am - 12pm<br />
22<br />
Yoga (6)<br />
10:30 - 11:30 am<br />
21<br />
Seated Stretch<br />
11 - 11:30 am<br />
20<br />
Kitchen<br />
Independence<br />
10 am - noon<br />
Lunch Bunch<br />
11:30 - 2:30 pm<br />
Note:<br />
Programs may<br />
be cancelled in<br />
adverse<br />
Weather.<br />
Board Meeting<br />
5 - 7 pm<br />
31<br />
30<br />
29<br />
Yoga (7)<br />
10:30 - 11:30 am<br />
27 28 Seated Stretch<br />
11 - 11:30 am<br />
Wii Fit<br />
11am - noon<br />
Kitchen<br />
Independence<br />
10 am - noon<br />
Potluck Lunch<br />
Bunch<br />
11:30 am - 2:30 pm
MS CENTRE February 2013<br />
Sunday Monday Tuesday Wednesday Thursday Friday Saturday<br />
TO<br />
REGISTER<br />
FOR<br />
PRGRAMS:<br />
2<br />
1<br />
Movies on the Big<br />
Screen TV<br />
1 - 3 pm<br />
Groundhog day<br />
35 Belmont<br />
Avenue West<br />
Kitchener,<br />
Ontario<br />
N2M 1L2<br />
9<br />
Massage<br />
Therapy<br />
10 am - 12:30 pm<br />
8<br />
7<br />
6<br />
5<br />
Yoga (8)<br />
10:30 - 11:30 am<br />
4<br />
Seated Stretch<br />
11 - 11:30 am<br />
3<br />
Wii Fit<br />
11:00 - noon<br />
Lunch Bunch<br />
11:30 am - 2:30 pm<br />
Phone:<br />
519-569-8789<br />
16<br />
15<br />
14<br />
Wii Fit<br />
11:00 - noon<br />
13<br />
12<br />
Yoga (1)<br />
10:30 - 11:30 am<br />
11<br />
Seated Stretch<br />
11 - 11:30 am<br />
10<br />
Fax:<br />
519-569-8475<br />
Massage Therapy<br />
3:30 - 6 pm<br />
Kitchen<br />
Independence<br />
10 am - noon<br />
Lunch Bunch<br />
11:30 am - 2:30 pm<br />
E-mail:<br />
info.waterloo<br />
@mssociety.ca<br />
Valentine's<br />
Day<br />
Ash Wednesday<br />
Chinese<br />
New Year<br />
23<br />
Massage<br />
Therapy<br />
10 am - 12:30 pm<br />
22<br />
21<br />
20<br />
Foot Care<br />
10:30 am - 2:30 pm<br />
19<br />
Yoga (2)<br />
10:30 - 11:30 am<br />
18<br />
Centre Closed<br />
17<br />
Web:<br />
www.mssociety<br />
.ca/waterloo<br />
Wii Fit<br />
11:00 am - noon<br />
Living Well<br />
Discussion Group<br />
7 - 9 pm<br />
Kitchen<br />
Independence<br />
10 am - noon<br />
Mayor’s Movie<br />
Morning for MS<br />
Facebook:<br />
www.facebook.<br />
com/<br />
mssocietywdc<br />
Family Day<br />
28<br />
27<br />
26<br />
Yoga (3)<br />
10:30 - 11:30 am<br />
25<br />
Seated Stretch<br />
11 - 11:30 am<br />
24<br />
Access to Fitness<br />
7 - 9 pm<br />
Board Meeting<br />
5 - 7 pm<br />
Kitchen<br />
Independence<br />
10 am - noon<br />
Potluck<br />
Lunch Bunch<br />
11:30 am - 2:30 pm
ONGOING PROGRAMS<br />
PHYSICAL WELLNESS<br />
Seated Stretch Exercise<br />
Mondays; No group – Feb. 18<br />
Yoga<br />
Tuesdays; No group – Jan. 1<br />
The first lesson is free. If you<br />
decide to continue for the full<br />
session (8 lessons in total) a<br />
nominal fee <strong>of</strong> $45 will apply.<br />
Financial support is available<br />
(Please speak to the client services<br />
coordinator).<br />
Sunnyside Wellness Centre<br />
Take part in a personal exercise<br />
program designed by a kinesiologist.<br />
Call the chapter to learn<br />
more about our partnership with<br />
the Sunnyside Wellness Centre.<br />
Wii Fit<br />
Interested in using our Wii gaming<br />
system for fun <strong>and</strong> exercise?<br />
Join us as we prepare to<br />
launch our new personalized<br />
exercise program using the Wii<br />
Fit. We’ll teach you everything<br />
you need to get started <strong>and</strong><br />
even provide a healthy snack!<br />
Massage Therapy<br />
The Canadian College <strong>of</strong> Massage<br />
& Hydrotherapy (CCMHT)<br />
provides a certified instructor to<br />
supervise free 45-minute student<br />
massage therapy sessions<br />
at our chapter. Please arrive 10<br />
minutes prior to your scheduled<br />
appointment to complete waiver<br />
information. Appointments book<br />
fast, call today!<br />
Foot Care Clinic<br />
A registered foot care nurse will<br />
conduct an assessment <strong>and</strong><br />
CHAPTER PROGRAMS: JANUARY/FEBRUARY<br />
Practise making nutritious meals<br />
in our Kitchen Independence<br />
Program, starting Jan. 15.<br />
provide nail care. The cost is<br />
only $30. To book an appointment,<br />
please call the chapter.<br />
SOCIAL AND EMOTIONAL<br />
WELLNESS<br />
Lunch Bunch<br />
Mondays; No group – Feb. 18;<br />
Potluck Lunch Bunch - Jan. 28,<br />
Feb. 25<br />
Looking to meet other people<br />
with MS? Bring your lunch <strong>and</strong><br />
stop by the centre!<br />
Living Well with MS Discussion<br />
Groups<br />
This dynamic group focuses<br />
on exchanging practical lifemanagement<br />
techniques using<br />
a positive non-judgmental<br />
approach. Please call ahead to<br />
indicate your interest in participating<br />
in the sessions.<br />
Jan. 16: Tips for Staying Active<br />
in the wintertime<br />
Feb. 20: Calling all family <strong>and</strong><br />
friends <strong>of</strong> those with MS – Are<br />
you interested in meeting with<br />
other caregivers to discuss your<br />
joys <strong>and</strong> concerns that arise<br />
from supporting someone you<br />
love with MS? Join us to dis-<br />
cuss if there is interest in a new<br />
support group just for you.<br />
SEASONAL AND NEW<br />
PROGRAMS<br />
Kitchen Independence<br />
Program<br />
Tuesday, Jan. 15, 22, 29, Feb.<br />
12, 19, <strong>and</strong> 26: 10 a.m. – noon.<br />
Are you concerned about your<br />
ability to safely make nutritious<br />
meals? Do you find yourself<br />
reaching for the cereal box at<br />
suppertime because you are<br />
too tired to cook? Through our<br />
Kitchen Independence program<br />
small groups <strong>of</strong> people will<br />
practise making nutritious meals<br />
in an accessible kitchen at the<br />
Downtown Community Health<br />
Centre. With the assistance <strong>of</strong> a<br />
dietician/chef <strong>and</strong> occupational<br />
therapy aides, you will learn<br />
how to use adaptive kitchen<br />
tools to create delicious food<br />
that you can then take home<br />
to put in the freezer for those<br />
nights when you are too fatigued<br />
to cook. Space is limited!<br />
Please call the client services<br />
coordinator for more details or<br />
to register for our first six-week<br />
session starting Jan. 15.<br />
Travels to the Mediterranean<br />
with Donna<br />
Wednesday, Jan. 23 11 a.m.noon<br />
Join our volunteer Donna as<br />
she shows us pictures on the<br />
big screen <strong>of</strong> her Mediterranean<br />
Cruise. With sun, s<strong>and</strong> <strong>and</strong><br />
tasty snacks, you’ll forget all<br />
Continued on next page<br />
All programming <strong>and</strong> services <strong>of</strong> the MS <strong>Society</strong> are <strong>of</strong>fered in a barrier-free facility
SEASONAL PROGRAMS: JANUARY/FEBRUARY<br />
Botox effects last five months on average<br />
Botox, from page 1<br />
The treatment takes five minutes<br />
<strong>and</strong> you go home from hospital the<br />
same day. It may take about two<br />
weeks for the Botox to start having<br />
an effect <strong>and</strong> the effect lasts, on<br />
average, for about nine months.<br />
Continued from previous page<br />
about winter!<br />
Movies on the Big Screen TV<br />
Friday, Feb. 1: 1-3 p.m.<br />
Join us for a completely accessible<br />
movie experience. We<br />
even provide the popcorn <strong>and</strong><br />
drinks!<br />
If you require a personal attendant<br />
at an event, please speak<br />
directly with the client services<br />
coordinator at least10 working<br />
days prior to the scheduled<br />
event so that appropriate arrangements<br />
can be made to<br />
meet your needs.<br />
If possible one week’s advance<br />
notice would be appreciated if<br />
you plan to participate in programming<br />
that involves guest<br />
speakers or the advance purchase<br />
<strong>of</strong> food or other materials.<br />
Unless otherwise stated, program<br />
events will be held at 35<br />
Belmont Ave. W, Kitchener.<br />
Periodically events have to<br />
be cancelled on short notice.<br />
Please call the chapter to confirm.<br />
Although this treatment is not yet<br />
covered, except by private plans,<br />
the cost is comparable to other<br />
treatments.<br />
If you are not tolerating the<br />
medications for your bladder, or if<br />
pads <strong>and</strong> incontinence devices are<br />
causing financial strain, you may<br />
want to discuss this new treatment<br />
option with your doctor.<br />
R.B. Egerdie,<br />
Adjunct Pr<strong>of</strong>essor <strong>of</strong> Urology,<br />
University <strong>of</strong> Western Ontario.<br />
Mayor Zehr’s<br />
Movie Morning to End MS<br />
Family Day, Monday, Feb.18, 2013<br />
Doors open at 8:30 a.m., shows<br />
start at 9:30 a.m.<br />
Empire Theaters – Gateway Park,<br />
135 Gateway Park Dr., Kitchener<br />
There will be tons <strong>of</strong> fun things to<br />
do like our Lucky Loonie Draw,<br />
face painting, <strong>and</strong> come meet<br />
some local celebrities! Every ticket<br />
is eligible for the door prizes draw.<br />
All programming <strong>and</strong> services <strong>of</strong> the MS <strong>Society</strong> are <strong>of</strong>fered in a barrier-free facility<br />
All the proceeds <strong>of</strong> this fourth<br />
annual event will support the MS<br />
<strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, Waterloo Dis-<br />
trict Chapter to help people in our<br />
community live better with MS <strong>and</strong><br />
to fund research to end MS.<br />
For more information, contact<br />
the Waterloo District Chapter,<br />
519-569-8789. Visit the website at:<br />
www.mayorsmoviemorning.com
Supporter<br />
Friend<br />
Champion<br />
Patron<br />
Benefactor<br />
Together . . .<br />
We can help people live better with MS<br />
Up to $199<br />
$200 - $499<br />
$500 - $999<br />
$1,000 - $1,999<br />
$2,000 +<br />
Annual<br />
gift<br />
OR<br />
OR<br />
OR<br />
OR<br />
OR<br />
Monthly<br />
pledged gift<br />
Up to $16.58<br />
monthly<br />
$16.67 – $41.60<br />
monthly<br />
$41.67 – $83.25<br />
monthly<br />
$83.33 - $166.58<br />
monthly<br />
$166.67+<br />
monthly<br />
Find out how to<br />
become a sponsor<br />
for one <strong>of</strong> our many<br />
fundraising or<br />
program events.<br />
Contact<br />
the chapter at<br />
519-569-8789<br />
MAKING<br />
STRIDES
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