Spring/Summer 2013 - Multiple Sclerosis Society of Canada

Spring / Summer 2013
Our MissiOn
To be a leader in finding a
cure for multiple sclerosis
and enabling people
affected by MS to enhance
their quality of life.
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Atlantic Division Awards
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ATLANT C
VOLume 6 iSSue 2
Volunteers Can Impact
Research Decisions
Inside, read about the impact
researchers are making and
the impact you can have . . .
1dayinmay.ca
5
MS Research Webinar
7
Team MS
www.mssociety.ca

2
A message from Dena
Dena Simon, president, Atlantic Division
Spring is here and with it comes our
annual springtime activities – selling
carnations and building excitement for
the MS Walk. And this May we have
something new to talk about - 1 Day
in May, a fundraising campaign that
encourages us to think about the impact
we can have on our MS community in
just 1 day.
For a person living with MS, 1 day
can mean the difference between being
able to walk to the mailbox or using
a wheelchair. For a caregiver, 1 day
can represent a life changing shift in a
simple outing like having dinner with
a loved one. And for those who give
to the MS Society, 1 day can mean
making a contribution that will make
the future for those affected by MS less
challenging.
I am inviting you to join me in making
an extraordinary gift.
mS Atlantic is a publication of the Multiple Sclerosis
Society of Canada, Atlantic Division and is issued
three times per year in the winter, spring and fall.
Charitable Registration #107746174 RR0001
editor, Writer, Layout: Starr Amey
photo Credits:
Contributors:
Dreamstime Free Images Chuck Hartlen
Jessesar Mitchell
Monica Jordan
Starr Amey
Jessesar Mitchell
Paul Martin
Dena Simon
Cover photo: by Lani Crossman
Go to 1dayinmay.ca, use the 1 Day
Salary Calculator, and donate what
you will earn today to the MS Society
of Canada to support people affected
by MS. You’ll be surprised at how
attainable the goal of giving 1 day is,
and how great your impact will be on
the people in our community. Whether
it’s your tips for the day, the Tooth
Fairy toonie, your birthday gifts, or
your salary, pick one day this month
and donate what you earn.
I am continuing to support our walkers,
cyclists, and this month’s MS Carnation
Campaign. And in addition, this year I
am increasing my commitment to people
living with MS by making a donation in
the 1 Day in May campaign. In fact, by
the time you read this message, I will
have donated one day’s earnings to the
effort.
So this May, as we purchase carnations
in the days leading up to Mother’s Day,
and come together on May 26 th for the
Medavie Blue Cross MS Walk, let’s
think of all the “1 days” when we, as
an MS community, make an impact
and how we can continue to do so. By
making your contribution to the 1 Day
in May campaign, you will bring the end
of MS, 1 day closer to being realized.
Invite your friends and family to join
you one day in May.
executive
Sean FitzGerald – Chair
Dr. Gary Altenkirk– Vice-Chair
& Chair, Client Services
Liz Wozniak – Secretary
Lisa Park – Treasurer
Chris Bourque – Past Chair
members at Large
Ron Butler
Chuck Hartlen
Heidi Hutchings Kays
Steve Merrill
Edith Rogers
Honourary Legal Counsel
Gavin Giles
Kin Canada Liaison
Michelle Harfitt
Barb Yorke
Sincerely,
Atlantic Division
Board of Directors
2013
President, MS Society of Canada
Atlantic Division

Atlantic Division Awards
The mS Society of Canada Awards program was established to recognize the
outstanding contributions made by members, non-members, volunteers, people
living with mS and caregivers. On march 23, the 2012 Atlantic Division Awards
were presented in Halifax.
Zita Kavanagh-Taylor is a force to
be reckoned with. She became
involved with the St. John’s/Mount
Pearl Chapter of the MS Society in
2011, and was immediately elected
Chair. Taking her role very seriously,
she has actively worked to raise
the profile of the chapter in the
community, and to increase chapter
activities.
Zita has reached out to local media
outlets to raise awareness of MS and
chapter activities appearing on the TV
program, Out of the Fog, as well as,
radio. Zita also spreads awareness of
the Society by delivering copies of MS
Atlantic to local physicians’ offices.
Since taking on the chapter leadership,
she has hosted an annual Open
House for MS Awareness Month. In
conjunction with this she arranged for
the City of St. John’s to host afternoon
tea for members and friends of the
MS Society. Zita has made an effort to
connect with the local Kinette Club to
build on the relationship with Kin.
Jeanne macphee accepts the Scott gillis Award
from Chris Bourque, Chair, Atlantic Division.
And her commitment to people
living with MS goes beyond Chapter
activities. When the local self-help
group leader retired, Zita stepped right
in. For Zita, ensuring that people have
someone to talk to is a priority.
“Having a nurse tell you everything
will be okay doesn’t make you feel
any better,” says Zita. “But when you
hear it from someone living with MS,
you can believe it could be true.”
Zita is always thinking of others. She
advocates on behalf of individuals
living with MS, shares information,
and her own story. At the National
Education Series in St. John’s
last spring, Zita brought a client
perspective to the panel discussion.
And during her time as Chapter Chair,
she has faithfully nominated chapter
members and volunteers for divisional
awards. This year, it’s her turn.
For exemplifying the active
involvement of people living with MS,
Zita Kavanagh-Taylor was presented
the President’s Award. Congratulations.
Division Award of merit recipient-non-member
Dr. raymond Wagg from the Kinsmen Club of
new glasgow with Chris Bourque, Chair.
ATLANT C
president’s Award recipient -
Zita Kavanagh-Taylor with Chris Bourque
2012 Atlantic Division
Award recipients
Kay reynolds Lifetime Achievement
Award - Dr. Jock murray, Halifax, nS
Scott gillis Award
Jeanne macphee, Cornwall, pei
president’s Award
Zita Kavanagh-Taylor - St. John’s, nL
Division Award of merit, member
Carl macLeod, Sydney, nS
Division Award of merit,
non-member - Kinsmen Club of new
glasgow, nS
OpAL Award
Leslie Batten - Fox Trap, nL
Client Services Ambassador Award
Sharyn Hennigar, italy Cross, nS
Susan rourke public education
Award - Adam Bowie, Fredericton,
nB
if you would like to read the full
citation for all award recipients
go to: www.mssociety.ca/atlantic/
awards.htm
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4
Self-Help group Leaders Workshop
Susan martin, Theresa Denham and monica Jordan
The Self-Help Group Leaders Workshop was held
in Dartmouth on April 27-28th . The workshop is
held biennially and delegates are invited to participate
in skill-building workshops and sessions designed to
help them facilitate the MS Self-Help Groups they
lead in their own communities.
Chapter Conference Working Together
In March, delegates from the Atlantic
provinces gathered in Halifax at the
Annual Chapter Conference to share ideas
and learn best practices to take back to
their local Chapters of the MS Society.
The conference included round table
discussions, presentations from Atlantic
Division staff and information sessions
discussing changes to the Chapter and
Division operating structures resulting
from the Renewal Initiative.
The conference also coincided with
the Annual General Meeting to allow
attendees to participate in both events.
“It’s wonderful to greet friends and meet
new people around the table each year,”
says Dena Simon, President, MS Society.
MS
Beth Carmichael, from Self-Help Connection, a
not-for-profit organization, gave a presentation
to the group. Self-Help Connection’s aim is to
provide people with the skills to help themselves
by taking control of their own health.
Sue Ehler, a physiotherapist and Liette Connor,
an RN specializing in incontinence, both gave the
Leaders some practical tips and advice to bring
back to their groups.
Monica Jordan, Director of Client Services and
Volunteer Programs says the Self-Help Group
Leaders provide some of the most valuable advice
to each other, gathered from years of collective
experience.
“Some of these volunteers and community leaders
have been running their Self-Help Groups for
a very long time. The wisdom and advice they
have to share with each other is invaluable,” says
Monica Jordan. “We are so grateful for them. It’s
their expertise that is helping people with MS in
communities across Atlantic Canada every day.”
(l-r) Valerie Wilson, Client Services Coordinator with Chapter delegates
Stephanie Boland, Kevin Boland, Amy Cormier, Brian Hanson, Dave
macKinnon, Bernie Touesnard, paul morin, Dan Broderick, Linda morin,
Jennifer Bonnell, Tammy phillips and Zita Kavanagh-Taylor.
MS

Branching Out
Making An Impact
Brenda Munro simply inspires.
She inspires strangers,
friends, family, colleagues and her
teammates at the MS Bike Tour.
The 43-year-old from Halifax
participates in the Nova Scotia MS
Bike Tour as the Team Captain of
the Rockingham Riders who’ve
raised over $60,000 since 2008.
Brenda recently won a contest
called Share the Love because her
teammate, John Webb, submitted
an entry describing cycling with
Brenda and shared the reasons
why he loves his Team Captain.
“Brenda never complained
about the effects of MS on her
body and mind. She always had
that majestic smile, continuously
talked about how wonderful
the ride was, how beautiful the
scenery, how much fun it was,”
writes John Webb. “While my
glass was teetering below half
empty, hers was always brimming
over. Unbeknownst to her, I would
symbolically hold my glass close to
catch some of hers!”
Diagnosed with relapsing remitting
MS at the age of 25, Brenda finds
the positive in everything. She
says she was very lucky because
While my glass was teetering below half
empty, hers was always brimming over.
Unbeknownst to her, I would symbolically
hold my glass close to catch some of hers!
~Brenda’s Teammate John Webb
Brenda and her father Sandy Munro.
He will celebrate his 80 th birthday as he
cycles in the MS Bike Tour this summer.
at the time, she was working in
healthcare and had swift access to
a neurologist allowing her to be
diagnosed very quickly. Brenda also
has the benefit of having a BSc. in
Health Education. So, she gathered
information and educated herself
about her disease developing a
strict regimine of healthy eating
and exercise that she thinks is
“essential to keeping MS in control
if you are able.”
Brenda trains to cycle in
the Bike Tour and she’s also
passionate about running.
“I can do it, and I can show
other people that they can do
it too,” says Brenda.
Brenda believes that because
her MS symptoms have
been slow to progress, she is
fortunate to have the energy
to live a very full life. Brenda
works full-time, volunteers
her time to others and has
personally raised more than
$22,000 for MS.
Brenda is branching out
and engaging with the MS
Society in other areas too. She
participated in an MS Society
forum where she and other MS
Society members contributed
to a discusion on MS research
priorities.
She describes herself as being
embarrassingly blessed by
having a supportive partner and
family, great friends and a good
job with a healthcare plan. Her
positive attitude serves as an
inspiration to us all. MS
MS Society of Canada
Atlantic Division
109 Ilsley Ave., Unit 1
Dartmouth, NS B3B 1S8
1.800.268.7582
info.atlantic@mssociety.ca
mssociety.ca/atlantic

Thank You
Atlantic Division Supporters - 2012
$90,000 - $100,000
Estate of Donald MacFarlane
$70,000 - $90,000
Estate of Ronald Smith
$40,000 - $60,000
Estate of Audrey Carberry
Healthpartners
Kin Canada Atlantic District 7
Tim Hortons Cape Breton
- Smile Cookie Campaign
$10,000 - $30,000
EMD Serono Canada Inc.
David Foundation
Estate of Harvey Hendsbee
Novartis Pharmaceuticals
Canada Inc.
Pfizer Canada Inc.
$5,000 - $9,999
Biogen Idec
Estate of Gordon Butler
The McCain Foundation
Royal Sun Alliance Insurance
Group
$2,500 - $4,999
Medavie Blue Cross
Newfoundland & Labrador
Construction Association
Estate of Edythe Oxner
Principal Developments Ltd.
$1,000 - $2,499
Alumitech
Anonymous
Atlantic Automatic Sprinklers
Ltd.
Shelley Baxter
Donald Brazier
John Chapman
CLAUDE
Estate of Mildred Colwell
Dexter Construction Company
Limited
Edmonds Landscape and
Construction Services
Deborah Elliott
EMC Emergency Medical
Care Inc.
Elisabeth Fall
The Fredericton Community
Foundation
Gander Goodwill Centre
Shelly Gilby
Graybar Canada/Harris &
Roome Supply
The Greater Saint John
Community Foundation
Greater Toronto Airport
Authority
Wileen Hanshaw
Margaret Higgins
Laura Holden
Elaine Huntsman
Independent - Sunnyside Mall
IWK Community Grants
Program
Christine Linders
M2 Business Solutions Inc.
Don MacDonald
Joan MacKinnon
Paul Mansz
McInnes Cooper
MI Swaco
Michelin North America Inc.
Steve Mullane
Peter Munro
Nova Agri Inc.
Estate of John Pittman
Dr. Ken Porter
RBC Foundation
Alex & Kathleen Ritchie
Margaret Robertson
Theresa Saulnier
Scotiabank
Cathy Seymour
William Skinner
Sobeys Inc.
Specialty Health Network,
Shoppers Drug Mart
Sussex Area Community
Foundation
The Haynes Group of
Consultants Inc.
Samantha Tilley
Andre Walsh
$500 - $999
Stephen Adams
Raymond Adlington
Brian Altenkirk
Alward Charitable Foundation
Inc.
Keith Anderson
Ariston Professional
Corporation
Tanya Arsenault
Atlantic Sleep Apnea Services
Shawn Bilerman
Chris Bourque
Brunswick News
Caisse Populaires Acadiennes
Ronald H. Cameron
Canadian Forces Central Fund
CBCL Limited
CBM
Kevin Christie
Peter Clarke
Shirley Clements
Mark Coffin
Conflict Resolution Consulting
PLC
Conseros Software Inc.
Wendy Currie
Dillon Consulting Limited
Viola Doncaster
E. R. Associates Inc.
Jamie Emberley
Fidelity Investments Canada
ULC
Trudy Flynn
Gardiner Realty Ltd.
Peter Giberson
Gavin Giles
Kelly Godbout
GoodLife Fitness Club
(Head Office)
Grand Bank Lions Club
Pam Hamilton
Hammonds Kwik-Way
Mathew Harris
HED Courtier en Assurance Inc.
Shawn Hingley
Jessica Houtsma
Chantale Imbeault
John Irwin
Earl Jessiman
Johnson Incorporated
Kell’s Enterprises Limited
James Kennedy
Kinsmen Club of Dartmouth
David Knowles
Labatt Brewing Company
Limited
Dr. Sylvie LePage
Eileen MacDonald
Joe Macdonald
Elizabeth MacKenzie
Joan MacKinnon
Brad MacMillan
Managed Health Care
Services Inc.
Jaspreet, Mangat
Grant McDougall
Donald Moffatt
Penny Mollins
Jeffrey Muise
Jeff Munroe
Colin Murchison
New Brunswick EMS Inc.
Nova Scotia Power Inc.
Angela Pellerine
Alicia Phillips
Anne Marie Picone Ford
Wayne Pike
Kim Pratten Murray
Robert Pulsifer
Leslie Reid
RJ Bartlett Engineering Ltd.
Elizabeth Ryder
Larry A Sampson
Paul Saulnier
Schiffer Odom Hicks &
Johnson PLLC
Morneau Shepell
Dena Simon
Sisters of Mercy Newfoundland
Ruth Smith
Tina Sobey
Standard Life
Strait Crossing Bridge Limited
Sutherland Family Dentistry
Inc.
The Great West-Life Assurance
Company
The Kings Mutual Insurance
Company
Scott Thompson
Lina Toole
Angela Trenholm
Truefoam Limited
University of PEI
Henk VanLeeuwen
Walmart Canada Inc.
Wawanesa Insurance
Lisa Wiseman
Wolf Collision Ltd.

Thank You
Friends of the Atlantic Division - 2012
DIVISIONAL PARTNER MS BIKE TOUR SPONSORS
National Sponsors
Atlas Canada
Brinks Inc.
Louis Garneau
Pedal Magazine
Thule
Tour Sponsors
Cyclesmith
G. E. Barbour Inc.
Premiere Van Lines
Purolator Courier Ltd.
Community-Based
Fundraising Events
$5,000 - $10,000
Curl for MS, NB
$1,000 - $4,999
Center 200 Craft Fair, NS
Hoops For Hope, NS
Charles P. Allen High School, NS
Tyler Yeaton - Washer Toss
Tournament, NS
KNOWLEDgE CIRCLE
$100,000 to $249,999
Fondation J. Armand
Bombardier
KPMG Foundation
The John and Judy Bragg
Family Foundation
PATRON
$50,000 to $99,999
Jazz Air LP
Teva Canada Innovation
$500 - $999
ECP/Intertape Polymer, NS
Mushaboom Fire Department, NS
Megan Saunders - MS Benefit
Recital, NL
The Witches of Weymouth Tea, NS
Nova Scotia Mustang Club, NS
Service Nova Scotia and Municipal
Relations, NS
endMS Campaign Supporters
LEADER
$10,000 to $24,999
IMP Group Limited
Joe Randell
INVESTOR
$5,000 to $9,999
Anonymous
Bell Aliant
Charles J. Ford
Halifax International
Airport Authority
MEDAVIE BLUE CROSS
MS WALK SPONSORS
Title Sponsor
Medavie Blue Cross
National Sponsors
Brinks Inc.
Student Works Painting
Chatelaine
Regional Sponsors
Kin Canada Atlantic
District 7
Premiere Van Lines
Purolator Courier Ltd.
Major Partner
Subway
Walk Sponsor
Tim Hortons
Joan MacKinnon
Louis J. Maroun
Lisa & Roger Park
Dena Simon
The Shaw Group
Waterbury Newton
SUPPORTER
$1,000 to $4,999
Mitchell McConnell
Insurance Ltd.
Dr. Jock & Janet Murray
Jonathan Robbins
MEDIA SPONSORS
Big Dog 100.9
Cat Country 99.5
CHSJ Country 94.1 FM
CKEC 94.1
C103 & XL 96.9
FRED FM
KOOL 96.5
MAX 98.3
Ocean 100.3
The River 99.3
The Tide 98.1
97.3 The Wave
590 VOCM
989 XFM
Brunswick News
Cape Breton Post
Metro Halifax
The Guardian
The Miramichi Leader
The News
The Telegram
The Western Star
Truro Daily News
We apologize for
any errors or
omissions.
FRIEND
$500 to $999
Peter & Dana Burns
Capital District Health
Authority
Fredericton Church of
Christ Congregation
Joanna Hamilton
Jessesar Mitchell
Gail Mosher
Scott & Trish Murray
Craig Newell
Paul Scott

Branching Out
Making Connections
Jordan Warford entered the
endMS Network as a third
year undergraduate science
student studying at Saint
Mary’s University. Ultimately,
his primary goal was to get
“inside of a disease” and work
towards a cure, channelling
his passions for science and
people to one worthy cause.
Upon receiving an endMS
summer studentship in 2008–
he was hooked.
“That was a pivotal moment
in my life where I decided to
devote my life to MS research,”
says Jordan. “That’s why funding is
so important. My motivation was to
become an expert in a disease and
to ultimately find a cure. I didn’t
know what disease I would end
up studying, but the funding from
the MS Society came through and I
went with the endMS Network.
It was the best decision I could
have ever made.”
Jordan moved on to conduct his
honours research with Dr. John
Fisk, Director of the endMS Atlantic
Regional Research and Training
Centre (RRTC) as a result of the
connections he made that summer.
In 2012, the Atlantic Division . . .
“I went with the endMS Network. It was
the best decision I could have ever made.”
~Jordan Warford
He’s also had the opportunity
to spend time with MS patients
in a clincial setting drawing a
connection between his work
and the bedside.
During these past few years, Jordan
has branched out to several other
areas of engagement with the
MS Society and has become an
invaluable member of the local
MS community making himself
available when called upon.
Just in the past year, he’s spoken
at a Self- Help Group Leaders
workshop in Moncton, an HRM
Chapter meeting, a Bridgewater
Self-Help Group meeting and the
MS Bike Tour in Wolfville where he
also participated as a cyclist raising
$1,500 with his team of colleagues.
Jordan serves as an MS
Ambassador and has made it his
mission to make science accessible
to MS patients across Atlantic
Canada. He uses Twitter and
Facebook to share MS research and
scientific information in an easy
way to understand, emphasizing
the impact on the person living
with MS.
“MS patients deserve to be
treated with dignity, they are just
as capable of understanding a
scientific paper as any trained PhD.”
In January 2013, Jordan began work
on his PhD under the supervision of
Dr. Alexander Easton. Dr. Easton is
an involved member of the endMS
Network, where Jordan connected
with him.
Jordan, now 25 years old and
married to Sarah, has just received
funding from the 2013-2014 endMS
Scholar Program for Researchers IN
Training (SPRINT). He knows that
knowledge is power and he is going
to share his knowledge to empower
people living with MS whenever,
and wherever, he can. MS
Answered 3200 inquiries in the areas of funding, information, advocacy, education, referral and support.
Hosted MS education sessions in all four Atlantic Canadian provinces.
Hosted self-help group leaders from New Brunswick and Prince Edward Island for a biennial skill-development workshop.
Distributed 2767 pieces of information to clients, caregivers and healthcare professionals on various topics related to MS.
Approved 1015 applications for funding in four program areas helping to pay for personal emergency response systems,
incontinence supplies, emergency or long-distance travel for medical appointments, mobility aids and personal well-being.
This number of approvals has increased by 12% over last year.

mS research Webinar
The Multiple Sclerosis Society of Canada is excited
to announce an MS Research Webinar taking
place on Wednesday, May 15th from 7:00 to 9:00 pm,
Atlantic Time. (7:30 - 9:30 pm in NL)
The MS Research webinar is an audio and video
presentation about the latest in MS research featuring
a panel of leading Canadian scientific and clinical MS
experts. Participants can see materials the presenters
are showing in real-time on screen and hear the
discussion over the telephone. There will be a panel
of four leading Canadian MS experts who will cover
such topics as:
• symptom management and quality of life
• progression and therapies
• cause and risk factors
• nerve damage and repair and much more
A computer with internet access and a telephone
will be needed to participate.
education Sessions
There are MS education sessions
coming up. Keep an eye on your
mailbox, and email for more
information.
navigating mS - Workshops for
people with MS and those who care
for them.
Sydney, NS
Charlottetown, PE
managing energy & Fatigue in mS
Halifax, NS
The mri made easy
Dr. Virender Bhan
Dartmouth, NS
September 26 th
6:30 - 8:30 pm
panel of Canadian mS experts presenting the webinar:
Dr. Amit Bar-Or, Dr. ruth Ann marrie, Dr. Anthony
Feinstein and Dr. paul O’Connor
How to register:
1. Register online at mssociety.ca/researchwebinar or
2. Phone 1-866-922-6065 extension 3194
Dial-in and webinar access information will be provided
upon registration.
Pre-submit your question to the panel or the researchers:
When you register online at mssociety.ca/researchwebinar
By email: teleconference@mssociety.ca
Twitter @MSSocietyCanada
Facebook www.facebook.com/MSSocietyCanada
Join the largest cycling
series in North America!
3 tours in Atlantic Canada
Plains & Pastures
Sussex to Saint John, NB
June 22-23, 2013
Vineyards & Valleys
Windsor to Wolfville, NS
July 27-28, 2013
ATLANT C
Bike the Rock
St. John’s, NL
September 28, 2013
REGISTER NOW | 1-800-268-7582 | msbiketours.ca
5

6
Volunteers Can impact
research Decisions
by Chuck Hartlen
Chuck Hartlen is a member of the Atlantic Division Board of Directors and one of the first Community
representatives invited to sit on the Biomedical grants review Sub-Committee. This is the group of mS experts
who review research proposals submitted to the mS Society for funding. The mS Society made this change, inviting
participation by members to the review granting process, based on feedback received during the renewal initiative.
The following is an edited version of Chuck’s report to the Board describing his experience.
Being very active in the
community has always been a
large part of my role as a Senior Vice
President at Bell Aliant. Recently,
I began to take a close look at the
amount of time I was spending on
volunteer activities and the type
of work I was involved with. I
concluded that I really wanted to
continue, but I wanted to focus on
areas that would strike a personal
chord for me. My daughter was
diagnosed with MS several years ago.
I decided I wanted to get involved
with MS so I looked to the MS
Society and, eventually, I was
elected to sit on the Atlantic
Division Board of Directors. I
began to give serious thought
as to where I might add value.
It was important to me that I
was not just filling a chair. I
wanted to contribute. The topic
of research came up and it had
potential, but I wondered how a
board member could have an impact
on research?
It was a coincidence (and a pleasant
surprise) that just around this time I
received an email soliciting interest
for a Community Representative
on the MS Society of Canada
Biomedical Funding panel.
I became one of two Community
Representatives on the panel. Our job
would be to read and comment on the
Lay Summary of each proposal from
two perspectives.
First, was it simple enough for a
“lay person” to understand? Second,
was it clear how this research could
benefit someone living with MS?
In December 2012, the Community
Representatives from all review
panels received a full-day orientation
session. We were very well prepared
by MS Society research staff for the
journey ahead. A few weeks later, I
received my 20 proposals to review
and had about 4 weeks to submit my
comments. We assembled as a team
in Toronto on January 22-23 rd .
Research really needs to be
viewed as the key to unlocking
a future where generations to
come are no longer burdened
with the challenges of MS.
~Chuck Hartlen
Each proposal had two evaluators
addressing the scientific merit and
one Community Representative
reviewing the Lay Summary. Each
evaluator ranked the proposals from
1 to 5. Each proposal was presented
in brief by the evaluators and then
discussed by the entire group. When
the discussion was completed and
everyone had their say, the two
presenting scientists came to a joint
consensus score and then the rest of
the group voted within a range of
(+/-) 0.5 points around that score.
The process gave all proposals a
fair and equitable hearing with each
member of the committee having
an opportunity to voice an opinion.
Anything that was not clear was
explained and, in every case, the
group seemed to eventually arrive
at a similar place. The committee
was comprised of an excellent
cross section of scientists from
across Canada with a broad range
of expertise and all were very
experienced in the field of MS.
In closing, I would like to thank the
MS Society of Canada for allowing
me to participate in such an important
undertaking. I felt very privileged to
have been selected to sit on the panel
as a Community Representative. It
was one of the most interesting and
meaningful experiences I have had
in all my many engagements as an
active community volunteer and
makes me proud to be a part of the
MS movement in Canada.
I would also like to commend the MS
Society for taking such a courageous
and important step. I realize that this
is a big change, but one that could
help enrich the granting process
leading to better research outcomes,
expectations, and perhaps, add to the
promotion and general knowledge of
MS research across the country.
The great work of this committee and
the Canadian research community
makes me hopeful that a cure is
within our reach.

Sponsors
ATLANTIC CANADA
Sunday,May 26, 2013
Register at mswalks.ca or 1-800-268-7582
This ad was generously sponsored by
Boosting
Spirits &
Competition
MS Society staff hit the road in April
travelling to Fredericton, Saint
John and Moncton, NB to host Team MS
mixers for MS Walk and MS Bike Teams
in all three cities.
Participants came out to enjoy some Team
MS comraderie and get their competitive
juices flowing as they compared notes
and discussed the different events and
activities they were organizing to boost
their team’s fundraising efforts.
There is still plenty of time to put a team
together and participate in the Medavie
Blue Cross MS Walk on May 26th in your
local community. Go to mswalks.ca
Lace up
for someone
you love
T
MS
mS Society event staff
Brianna macAulay and
Whitney machin
mS Walk Site Location
Team mike
ATLANT C
Bike Tour participants in moncton
medavie Blue Cross
mS Walk Locations
Check-in
Time
Walk
Time
Antigonish Royal Canadian Legion 9:00 am 10:00 am
Charlottetown HMCS Queen Charlotte 2:00 pm 3:00 pm
Clarenville Clarenville Events Centre 1:00 pm 2:00 pm
Corner Brook Pepsi Centre 1:00 pm 2:00 pm
Fredericton Kinsmen Club of
Nashwaaksis
10:00 am 11:00 am
Halifax Canada Games Centre 11:30 am 1:00 pm
Miramichi Beaverbrook Kin Centre 1:00 pm 2:00 pm
Moncton Fundy Chocolate River Station 9:00 am 10:00 am
New Glasgow Trenton Park 1:00 pm 2:00 pm
Saint John Market Square 10:00 am 11:30 am
St. John’s /
Mount Pearl
Reid Community Centre 9:30 am 11:00 am
St. Stephen St. Stephen High School 9:00 am 10:00 am
Sydney The Armouries 1:00 pm 2:00 pm
Truro Bible Hill Central
Elementary School
1:00 pm 2:00 pm
7

8
membership and Donation Form
(circle one)
Name:
Address:
City: Province:
Postal Code: Tel:
Email:
Spouse:
Person with MS Yes No
Individual memberships are $10
Canada Post Publication
Mail Agreement # 40070351
“I donated my allowance to help
kids who are living with MS.”
- Lauryn, age 8
1 Day in May donation
Membership Renewal Yes No
Donation / Fee Enclosed $
Visa Mastercard Direct Debit* Cheque
*Please attach a void cheque for automatic withdrawal from your bank.
Single Debit: $
Monthly Debit: $ x 12 = $
(withdrawn on the 15th day of each month)
Credit Card #
Expiry Date
Signature
This May, pick
www.mssociety.ca
ATLANT C
one day and donate
what you earn to the
MS Society of Canada
so that 1day, there
will be no MS.
Donate at
1dayinmay.ca
unDeLiVerABLe mAiL TO:
MS Society of Canada, Atlantic Division
109 Ilsley Avenue, Unit 1
Dartmouth, Nova Scotia B3B 1S8
phone: 1-800-268-7582
email: info.atlantic@mssociety.ca