Spring - Multiple Sclerosis Society of Canada
Spring - Multiple Sclerosis Society of Canada
Spring - Multiple Sclerosis Society of Canada
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MShope<br />
This issue<br />
i Bringing MS into<br />
the 2009 Election 02<br />
i Planning for<br />
Caregiving 03<br />
i Research Update 05<br />
i Walking because<br />
every step matters 06<br />
i BC Roundup 08<br />
MShope MSheroes<br />
Publications Mail Agreement No. 40063333<br />
Return undeliverables to:<br />
MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, BC Division<br />
1501-4330 Kingsway<br />
Burnaby, BC V5H 4G7<br />
MSheroes<br />
To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality <strong>of</strong> life.<br />
Gabrielle Veto laces up for the<br />
2009 scotiabank Ms Walk<br />
<strong>Spring</strong> Please 2009 share MShope MSheroes with a friend! 1<br />
Across BC & Yukon
MShope MSheroes<br />
MShope MSheroes<br />
New Hope in <strong>Spring</strong><br />
Lynn Hunter at the<br />
Victoria MS Walk<br />
2<br />
It’s February as<br />
we write this<br />
and many <strong>of</strong> us<br />
are living out<br />
the groundhog’s<br />
February 2<br />
prediction <strong>of</strong><br />
an additional 6<br />
weeks <strong>of</strong> winter.<br />
However, by the<br />
time you read<br />
this, spring will<br />
be around the<br />
corner, even for<br />
those MS <strong>Society</strong><br />
members who live in the northern most<br />
parts <strong>of</strong> the BC & Yukon division. Both<br />
the relatively harsh winter and the new<br />
economic conditions that we face are<br />
reminding us all <strong>of</strong> the importance <strong>of</strong><br />
resilience in the face <strong>of</strong> adversity.<br />
Until we end MS, people affected by the disease<br />
face many challenges. The MS <strong>Society</strong> is committed<br />
to ensuring that people with MS and their families<br />
have opportunities to participate fully in all aspects<br />
<strong>of</strong> life. On May 12, BC will hold its provincial election.<br />
Join us to help bring change in four key areas:<br />
Access to equitable health services<br />
Although the provincial government sets province-wide goals,<br />
standards, and performance agreements, MS is not included on the<br />
current list <strong>of</strong> priority diseases being addressed. As a result, there is<br />
inconsistent and inequitable implementation <strong>of</strong> primary care and<br />
enhanced chronic disease management across BC for people with<br />
MS.<br />
What we want to change:<br />
The MS <strong>Society</strong> wants to work with the provincial government,<br />
regional health authorities and a broad group <strong>of</strong> community and<br />
healthcare stakeholders to develop a province-wide primary care<br />
and chronic disease management strategy for MS.<br />
Access to MS therapies<br />
MS neurologists agree that people with MS benefit from<br />
early treatment to reduce the frequency and severity <strong>of</strong> attacks and<br />
to slow the progression <strong>of</strong> disability. In addition, people with MS rely<br />
on prescription drugs to treat a wide range <strong>of</strong> symptoms.<br />
Unfortunately, the disease-modifying therapies and some <strong>of</strong> the<br />
symptom-management therapies are expensive. Discrepancies<br />
between private and public health benefits plans mean that people<br />
receiving provincial support don’t have the same drug coverage as<br />
people with private insurance.<br />
What we want to change:<br />
The MS <strong>Society</strong> wants all disease-modifying drugs and symptommanagement<br />
therapies available for sale in <strong>Canada</strong> to be listed on<br />
the provincial PharmaCare program.<br />
Resilience and hope are qualities that<br />
people dealing with MS call upon every<br />
day. This spring, more than 5,000 people<br />
in 25 communities across the division<br />
will gather together to share our hopes<br />
for an end to MS. This end may be a<br />
cure or it may be a program, service or<br />
treatment that counters the effects <strong>of</strong><br />
the disease. Regardless <strong>of</strong> where you are,<br />
taking part in the Scotiabank MS Walk<br />
this year is more important than ever.<br />
The money we’ll raise is important—it<br />
will let us carry on with supporting<br />
research and providing local services<br />
and programs—but so is the hope and<br />
determination we build when we get<br />
together and move towards a shared<br />
goal.<br />
One might say the victory over MS will<br />
be even sweeter when we look back<br />
AdVocAcy UPdAte<br />
election Alert: Let’s Bring change<br />
because our members and supporters<br />
kept the <strong>Society</strong> moving relentlessly<br />
towards the goal, even when things got<br />
tougher than expected.<br />
Lynn Hunter<br />
Chair, MS <strong>Society</strong>, BC & Yukon<br />
Janet Palm in Surrey with Wendy Baker <strong>of</strong> Scotiabank,<br />
title sponsor <strong>of</strong> the 2009 and 2010 MS Walks in BC &<br />
Yukon.<br />
Access to home care and age-appropriate<br />
long-term care<br />
Nearly 80 percent <strong>of</strong> people with MS are eventually unable to<br />
work full-time because <strong>of</strong> the severity and unpredictability <strong>of</strong> their<br />
symptoms. Limited housing and care choices, as well as reduced<br />
income, may result in younger adults with MS having to move into<br />
care settings that are totally inappropriate.<br />
What we want to change:<br />
The MS <strong>Society</strong> wants the provincial government and regional health<br />
authorities to work together to increase funding and development<br />
<strong>of</strong> age-appropriate supportive housing, congregate care and longterm<br />
care homes.<br />
Increased MS research<br />
<strong>Canada</strong> is a recognized leader in MS<br />
research, and much <strong>of</strong> this research is<br />
conducted in BC. However, as the small<br />
group <strong>of</strong> outstanding scientists and<br />
clinicians near retirement, replacing the<br />
loss <strong>of</strong> MS research expertise will be a<br />
tremendous challenge.<br />
What we want<br />
to change:<br />
The MS <strong>Society</strong> wants the provincial<br />
government to invest in the <strong>Society</strong>’s<br />
end MS Research and Training Network<br />
to recruit, train, support, and retain the<br />
next generation <strong>of</strong> MS researchers in<br />
<strong>Canada</strong>, and to accelerate their research<br />
activities to find a cure and improved<br />
treatments for MS.<br />
Janet Palm<br />
President, MS <strong>Society</strong>, BC & Yukon<br />
mssociety.ca/bc<br />
<strong>Spring</strong> 2009<br />
<strong>Spring</strong> 2009
WALKers there’s No bring Place hope like to Home end MS<br />
<br />
<br />
<br />
<br />
by Cynthia Khoo <br />
<br />
<br />
Brook Gies is a congenial, caring, busy The next big change arrived<br />
<br />
woman from Vancouver, BC. As a production with a fall Bonnie took<br />
coordinator in film and television, she several years ago, which<br />
regularly works 12 to 14-hour <br />
days. This triggered a major relapse.<br />
past July, however, saw her in the midst <strong>of</strong> After three months <strong>of</strong><br />
<br />
preparations for returning to work after a<br />
rehabilitation in hospital,<br />
three-month hiatus. <br />
Bonnie’s doctors gave her<br />
Brook, along with her<br />
an ultimatum: “These are<br />
brother Brent, took time <strong>of</strong>f to help care for<br />
your options: you’re either<br />
her mother Bonnie, who lives at home with<br />
going into a facility, or we’re<br />
secondary progressive <br />
multiple sclerosis. going <br />
to set up home care<br />
for you.” For the Gieses, the<br />
<br />
decision was obvious.<br />
Bonnie, a cheerful <br />
and independent spirit,<br />
was diagnosed with MS in 1992, though Thus <br />
<br />
began a new stage <strong>of</strong><br />
<br />
likely<br />
Sheroes<br />
lived with the illness since early Bonnie’s <br />
care: setting up a<br />
<br />
1980s. As Bonnie’s <br />
MS progressed, so did comprehensive homecare<br />
the level <strong>of</strong> care she received, moving from system <br />
with Fraser Health<br />
Sheroes<br />
<br />
minor home adjustments to wheelchair- Authority. Although<br />
<br />
accommodating renovations, <br />
to weekly Bonnie and her family had<br />
home support, to currently daily home experience <br />
with homecare<br />
<br />
support. Consequently, she and her family workers, <br />
the few hours per<br />
have experienced first-hand <br />
the issues and week before her fall were<br />
complications that can arise when caring for nothing compared to the<br />
<br />
someone with MS at home.<br />
sheer <br />
volume <strong>of</strong> traffic that<br />
<br />
<br />
Despite what may <br />
be implied by the word, caregiving <br />
is far from a<br />
one-sided affair. As Bonnie and Brook both know, it takes listening,<br />
<br />
organization, compromise, and <strong>of</strong> course, a great deal <strong>of</strong> care.<br />
<br />
<br />
To begin with, there is coping with the<br />
turned their quiet home entrance into a<br />
diagnosis itself. In the Gieses’ case, this <br />
revolving door overnight. Brook recalls, “I<br />
process was eased by the mildness <strong>of</strong><br />
Bonnie’s symptoms and the belatedness think the highest count in one week was<br />
24 people coming to the house, and that<br />
<strong>of</strong> the diagnosis. “For quite a while things <br />
shocked us all a little bit. So that was really<br />
basically were the same,” says Bonnie. Brook hard at the beginning, it’s draining to have<br />
elaborates, “Because it was progressing for a<br />
to train somebody new every time.”<br />
long time so slowly, there were not these big<br />
decisions that had to be made. There wasn’t For Bonnie, quantity mattered in the way<br />
much that we really had to change because it affected the quality <strong>of</strong> her care: “That’s<br />
she’d already been living with it for a while.” a running battle I’ve had with the home<br />
support people. Unfortunately, they think<br />
That made later changes all the more<br />
they’re sending you a service, not a person.<br />
daunting to Brook, such as the first day Problems increase when neither service nor<br />
<br />
Bonnie<br />
<br />
took to a wheelchair. “That<br />
<br />
was<br />
person may be desired in the first place.<br />
probably the first big thing where my<br />
Brook relates, “When I talk to her about<br />
brother<br />
<br />
and I realized there was going<br />
<br />
to<br />
<br />
having somebody live in, the first thing my<br />
be a lot more, that this was a thing that was<br />
mom says to me is, ‘I don’t want somebody<br />
going to progress, and that we were going <br />
hovering around me all the time’.”<br />
to have to be a part <strong>of</strong> dealing with,” Brook <br />
relates.<br />
Consideration <strong>of</strong> her mother’s independence<br />
<br />
as well as physical well-being<br />
<br />
informs Brook’s<br />
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The best team you’ll ever be on!<br />
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<strong>Spring</strong> 2009<br />
<br />
<br />
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<br />
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<br />
MShope MSheroes<br />
MShope MSheroes<br />
<br />
<br />
Captain <strong>of</strong> UBC MS remyelinators, Dr. Peter<br />
Rieckmann will update us on research in the<br />
annual MS <strong>Society</strong> teleconference in May.<br />
Brook and Bonnie Giese collaborate to build caregiving plan.<br />
caregiving decisions, and she maintains the<br />
importance <strong>of</strong> taking her mother’s opinion<br />
into account. She explains, “I sometimes<br />
think if it were me, feeling like I’ve lost so<br />
much control <strong>of</strong> my physical body, and now<br />
people are making these decisions for me,<br />
you just start to feel more and more out <strong>of</strong><br />
control. So I think my job is to bring all the<br />
possibilities and options to her, and in the<br />
end it has to be her decision; otherwise, it’s<br />
not going to work.”<br />
Despite what may be implied by the word,<br />
caregiving is far from a one-sided affair.<br />
As Bonnie and Brook both know, it takes<br />
listening, organization, compromise, and <strong>of</strong><br />
course, a great deal <strong>of</strong> care.<br />
This is the first in a series <strong>of</strong> article focusing on<br />
caregiving and MS. Our next article will look at<br />
the emotional impact <strong>of</strong> caregiving.<br />
BC based researcher Dr. Peter Rieckmann will conduct the<br />
MS <strong>Society</strong> research teleconference in May for MS Awareness<br />
month. Dr. Rieckmann is the MS <strong>Society</strong> Research Chair at the<br />
University <strong>of</strong> BC.<br />
The teleconference will feature an update on Dr. Rieckmann’s<br />
research as well as an overview <strong>of</strong> MS research in general. This<br />
free two hour session is open to all and will be held Wednesday,<br />
May 20, 3:00 – 5:00 pm PST.<br />
Callers will have an opportunity to pre-submit questions to<br />
Dr. Rieckmann for his response during the session. Further details<br />
about how to take part in this event will be made available as we<br />
finalize them. Please refer to our website www.mssociety.ca/bc<br />
and to your chapter newsletters.<br />
<strong>Spring</strong> 2009 3<br />
<br />
Enhancing Quality <strong>of</strong> Life<br />
<br />
<br />
Get on the phone & get<br />
updated about research!
MShope MSheroes<br />
MShope MSheroes<br />
Reading About People (with MS)<br />
Life Side Up, by Ron didur<br />
The story <strong>of</strong> Jay is, at once, familiar and surreal –<br />
dreamlike, yet tangible. Jay is a pilot and songwriter,<br />
married to the love <strong>of</strong> his life, Janet. As we follow Jay’s<br />
journey, his diagnosis with MS, his accidental death and<br />
his unexpected rebirth, we are challenged to face our<br />
own existential questions.<br />
Ron Didur, founder <strong>of</strong> the Canadian Disabled Individuals<br />
Association (CDIA) and longtime MS <strong>Society</strong> volunteer,<br />
prefaces his novel Life Side Up by telling us that he is<br />
not a writer and never had any aspirations to be one.<br />
Ron goes on to explain that the components <strong>of</strong> this story<br />
came to him in a series <strong>of</strong> compelling dreams. What<br />
was initially thought to be the makings <strong>of</strong> a short story<br />
blossomed into a 128 page novel.<br />
Life Side Up is available to be borrowed through<br />
the MS <strong>Society</strong>, BC & Yukon Division Library. Contact<br />
604.689.3144.<br />
To learn more about CDIA or to purchase Life Side Up,<br />
go to www.disabledindividuals.ca<br />
You may qualify<br />
for a scholarship<br />
if you are age<br />
25 or under<br />
and either have<br />
a parent who has MS or have MS<br />
yourself. Please note that additional<br />
criteria apply.<br />
This year, the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong><br />
hopes to award up to $75,000 in<br />
scholarships to eligible Canadians.<br />
Each student awarded will receive<br />
$500- $1,000 towards an eligible<br />
undergraduate course <strong>of</strong> study.<br />
Application forms and more<br />
information are available online<br />
www.mssociety.ca/en/help/<br />
scholarship.htm until April 17, 2009.<br />
4<br />
reviewed by Angela Hold<br />
the 2009 MS Scholarship Program is accepting applications<br />
Dear Sonja,<br />
Coordinator, Equipment Provision Program<br />
anks to the generosity and support <strong>of</strong> the<br />
MS <strong>Society</strong> Equipment Provision Program,<br />
I received a power chair.<br />
Because it has a lift that raises me up to<br />
counter height, I am now able to cook, do<br />
laundry, and dye textile projects at the sink.<br />
It is so much easier getting around. I am able<br />
to be mobile and be sitting down comfortably.<br />
I can go outside on the deck for fresh air<br />
and a change <strong>of</strong> scenery. It has restored my<br />
zest for life.<br />
ank you to the MS <strong>Society</strong>, and to you for<br />
your assistance in making this happen.<br />
Aaron Solowoniuk <strong>of</strong> Juno Award-winning Canadian punk rock band<br />
Billy Talent speaks on YouTube about why he chose to initiate the<br />
Scholarship program with the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />
Sincerely, JC in Winlaw<br />
Make your step<br />
the one that ends<br />
multiple sclerosis.<br />
Register today at mswalks.ca.<br />
April 26, 2009<br />
2009 Dates<br />
Langley Richmond<br />
Lower Mainland<br />
North Shore Surrey<br />
Fraser Powell Valley River Tri Cities<br />
Vancouver<br />
April 26, 2009<br />
Whiterock<br />
April 26, 2009<br />
Interior 1.800.268.7582 Bc or 604.602.3221 April 26, 2009<br />
Northern BC & Yukon<br />
Prince George June 7, 2009<br />
Dawson Creek New! June 14, 2009<br />
Whitehorse<br />
Vancouver Island<br />
June 14, 2009<br />
Victoria April 5, 2009<br />
Duncan April 5, 2009<br />
Nanaimo April 26, 2009<br />
Port Alberni April 26, 2009<br />
Comox Valley April 5, 2009<br />
Port Hardy April 26, 2009<br />
You may qualify for<br />
assistance through the<br />
Equipment Provision Program.<br />
Contact us at 604.689.3144 or<br />
visit mssociety.ca/bc/epp.html<br />
<strong>Spring</strong> 2009<br />
<strong>Spring</strong> 2009
Lack <strong>of</strong> secure income is one <strong>of</strong> the biggest<br />
problems facing Canadians with multiple<br />
sclerosis today, and Kim McKay’s story is too<br />
common.<br />
Kim confirmed her MS in 2000, but suffered<br />
symptoms for seven years prior, including<br />
optic neuritis, muscle spasms, bladder<br />
problems, and fatigue. She first worked as<br />
an industrial draftsman, where she was let<br />
go without cause, then in a fire department,<br />
and finally as part-time clerk with the Surrey<br />
Museum. After stopping work at the Surrey<br />
Museum due to difficulties in working due<br />
to MS she moved to Grand Forks with her<br />
partner.<br />
A few years later she became aware <strong>of</strong><br />
<strong>Canada</strong> Pension Plan (CPP) benefits for<br />
people with disabilities and decided to<br />
apply. Kim had to show that she worked and<br />
contributed to CPP for four out <strong>of</strong> the last<br />
six years before she became disabled. This<br />
meant that she had to prove that she not<br />
only was now unable to work due to her<br />
disability but was unable to work several<br />
years previously, in 2003. She was denied<br />
because they did not consider her disability<br />
severe enough to stop working when she<br />
last qualified in 2003 based on the limited<br />
information she was able to gather from her<br />
previous healthcare providers. Kim appealed<br />
ReSeARcH UPdAte<br />
Genetic Study Shows direct Link Between<br />
Vitamin d and MS Susceptibility ‘Gene’<br />
MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> funded researchers<br />
have found evidence that a direct<br />
interaction between vitamin D and a<br />
common genetic variant alters the risk <strong>of</strong><br />
developing multiple sclerosis. The research<br />
suggests that vitamin D deficiency during<br />
pregnancy and the early years may increase<br />
the risk <strong>of</strong> the <strong>of</strong>fspring developing MS later<br />
in life.<br />
The causes <strong>of</strong> MS are unclear, but it has<br />
become evident that both environmental<br />
and genetic factors play a role. Previous<br />
studies have shown that populations from<br />
Northern Europe have increased risk <strong>of</strong> MS if<br />
they live in areas receiving less sunshine. This<br />
supports a direct link between deficiency<br />
in vitamin D, which is produced in the<br />
Add your power<br />
to the flower.<br />
On May 7-9 buy or volunteer to sell carnations in your<br />
<strong>Spring</strong> 2009<br />
community during the annual Carnation Campaign.<br />
For more information, Jessie Wong Carnation Coordinator at 604.602.3218<br />
or call your local chapter <strong>of</strong>fice.<br />
MShope MSheroes<br />
MShope MSheroes<br />
third time a charm: Appeal Case won with VLAP Help<br />
By Cynthia Khoo<br />
the decision on her own, but she lost the<br />
reconsideration, as well. That’s when she<br />
contacted the MS <strong>Society</strong>’s Volunteer Legal<br />
Advocacy Program (VLAP).<br />
“I went to the MS Clinic in Kelowna,” Kim<br />
recalls, “and they said get in touch with the<br />
MS <strong>Society</strong> and you guys were just awesome.<br />
I would tell anybody in a minute to go that<br />
route if you want to keep your sanity.”<br />
With VLAP assistance, Kim fought through<br />
bureaucracy, forms, and letters to be granted<br />
a final appeal hearing. VLAP Coordinator<br />
April Griffin relates, “Even though everyone<br />
agreed that she could not work now because<br />
<strong>of</strong> multiple sclerosis, she had to prove that<br />
she couldn’t work since 2003. There was<br />
only limited medical information available<br />
from that time, and none that specifically<br />
said multiple sclerosis prevented her from<br />
work earlier than 2003. This lack <strong>of</strong> objective<br />
body through the action <strong>of</strong> sunlight, and<br />
increased risk <strong>of</strong> developing the disease.<br />
“Our study implies that taking vitamin D<br />
supplements during pregnancy and the<br />
early years may reduce the risk <strong>of</strong> a child<br />
developing MS in later life,” says co-author<br />
Dr. Sreeram Ramagopalan. “Vitamin D is<br />
a safe and relatively cheap supplement<br />
with substantial potential health benefits.<br />
There is accumulating evidence that it can<br />
reduce the risk <strong>of</strong> developing cancer and<br />
<strong>of</strong>fer protection from other autoimmune<br />
diseases.”<br />
“This research represents an important<br />
development in our understanding <strong>of</strong><br />
the cause <strong>of</strong> MS,” says Dr. Paul O’Connor,<br />
national scientific and medical advisor for<br />
the <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> and<br />
a neurologist at St. Michael’s Hospital in<br />
Toronto.<br />
evidence and information made her case<br />
extremely difficult because she had to find<br />
a way to show that she was indeed unable<br />
to work several years before she applied for<br />
CPP Disability benefits.”<br />
Finally, with VLAP support Kim gathered<br />
enough medical evidence that her case went<br />
to the CPP Review Tribunal, and won.<br />
Kim is grateful for VLAP, “Just a big thank<br />
you to everyone there, a great big thank you<br />
because it really did help me keep going.<br />
You don’t feel like you’re all alone in all this<br />
bureaucracy. Even if they didn’t have an<br />
answer right away, they’d always call back<br />
and let me know this or that. It really made<br />
a big difference.”<br />
The application process for CPP disability<br />
benefits is complicated and the forms can be<br />
overwhelming. Many people have difficulty<br />
organizing all the necessary information and<br />
remembering small details from previous<br />
years. We suggest that you contact the MS<br />
<strong>Society</strong>’s Volunteer Legal Advocacy Program<br />
for information on how to apply before<br />
you start the application process. Staff<br />
and volunteers can help you to gather and<br />
organize relevant information to increase<br />
chances <strong>of</strong> being accepted for CPP Disability<br />
Benefits with the first application. Contact<br />
information: 1.800.268.7582 or 604.689.3144<br />
or info.bc@mssociety.ca<br />
Dr. A. Dessa Sadovnick, from the University <strong>of</strong> British<br />
Columbia will lead the Canadian Collaborative Project on<br />
Genetic Susceptibility to <strong>Multiple</strong> <strong>Sclerosis</strong> with Dr. George<br />
Ebers from Oxford University<br />
Dr. O’Connor cautions that the study<br />
does not provide guidelines on vitamin D<br />
dosage and that any decisions on treatment<br />
or supplementation should be made in<br />
consultation with a trained physician.<br />
For more information:<br />
www.mssociety.ca/en/research<br />
<strong>Spring</strong> 2009 5
MShope MSheroes<br />
MShope MSheroes<br />
Launching the 2009 Scotiabank MS Walk<br />
Walkers and event sponsors ‘tied one on,’ by replacing their plain<br />
white shoe laces with red shoe laces, to mark the beginning <strong>of</strong> a<br />
countdown to over 25 Scotiabank MS Walk events to be held in<br />
towns across BC and Yukon.<br />
Lacing up Andrew Britnell, President, Student Works Painting;<br />
Candy Hodson Senior VP, Marketing, Black Press; Wendy Baker,<br />
Manager Nordel Crossing Branch, Scotiabank; Janet Palm,<br />
President, MS <strong>Society</strong>, BC & Yukon Division; David Poole Senior VP<br />
BC & Yukon Region, Scotiabank; and Lianne Britnell.<br />
6<br />
Lower Mainland April 26<br />
Fraser Valley April 26<br />
Interior Bc April 26<br />
Northern Bc & yukon<br />
Prince George June 7<br />
Dawson Creek New! June 14<br />
Whitehorse June 14<br />
Vancouver Island<br />
Victoria April 5<br />
Duncan April 5<br />
Nanaimo April 26<br />
Port Alberni April 26<br />
Comox Valley April 5<br />
Port Hardy April 26<br />
Making Connections<br />
at Meet Market Adventures kicked <strong>of</strong>f their<br />
fundraising at the anti-Valentine’s day dance.<br />
Almost 250 active singles mingled, danced and<br />
bought carnations from friendly Kiersten Eis and<br />
Earl Von Tapia, members <strong>of</strong> Team MMA.<br />
“We’re doing this in honour <strong>of</strong> our former colleague Jo, as well as the many others<br />
who have had MS touch their lives”. The team aims to beat the $1,700 they raised in<br />
2008. To join the MMA team, go to ‘events in April’ at www.meetmarketadventures.<br />
com<br />
Do it as a team!<br />
Whether you’re walking in the Scotiabank MS Walk<br />
or riding in a RoNA MS Bike tours, it’s more fun doing it as a team.<br />
The best part is, TeamMS is here to help.<br />
Kevin Wood (far left, front) and some members <strong>of</strong> his team,<br />
Progress for MS in Chilliwack.<br />
We Shaved our Heads to end MS!<br />
<strong>Multiple</strong> sclerosis has prevented me from<br />
walking the route at the Chilliwack event for<br />
the last couple years, but MS has not made me<br />
lose hope for a cure. In fact,my Team, Progress<br />
for MS helps me and other people affected by<br />
MS grow our hope each year.<br />
You don’t have to do anything as drastic as<br />
going bald, as a few <strong>of</strong> my team members and<br />
I did, but the money you raise as an MS Walker<br />
helps the MS <strong>Society</strong> provide services to people<br />
affected by the disease and fund research<br />
to bring an end to MS. Over 70,000 people<br />
in towns across the country will take part in<br />
Scotiabank MS Walk events this spring.<br />
I invite you to join us by taking part in your local<br />
Scotiabank MS Walk!<br />
<strong>Spring</strong> 2009<br />
We’ll help you create a fun-filled team <strong>of</strong> people to walk, wheel, or ride with family, friends, co-workers, hockey buddies,<br />
book club members – you get the idea. Experience the camaraderie and excitement <strong>of</strong> TeamMS while helping end MS!<br />
call your local MS <strong>Society</strong> chapter today or contact eilesha Hall 604.602.3200 or eilesha.hall@mssociety.ca<br />
<strong>Spring</strong> 2009
Making community<br />
I called the MS <strong>Society</strong> for help and<br />
information when I was diagnosed<br />
with MS 16 years ago. The <strong>Society</strong> is<br />
well organized and a small enough<br />
organization that an individual can<br />
have meaningful input. I fundraise<br />
knowing what the service side <strong>of</strong> the<br />
organization does because I’ve been<br />
involved as a volunteer on that side<br />
and benefited from those services<br />
myself.<br />
Denise Young, currently Chair <strong>of</strong> the White Rock Walk<br />
steering committee moved from Langley where she<br />
was the Chair <strong>of</strong> the Langley MS Walk for seven years.<br />
Lianne Britnell, 2008 Team captain laces<br />
up at the Scotiabank MS Walk launch.<br />
<strong>Spring</strong> 2009<br />
Walking for the Future<br />
2009 Welcomed at the Watermark<br />
McGregor Wark, Shafiq Vallani and Dave Major planned<br />
another great new year’s eve event for 400 <strong>of</strong> their<br />
closest friends at the beautiful beachside Watermark<br />
Restaurant. Their celebration<br />
raised $3,600 towards ending<br />
MS.<br />
Call Bev Matsu to get the scoop<br />
604.602.3202 or Beverly.Matsu@mssociety.ca<br />
MShope MSheroes<br />
MShope MSheroes<br />
I was diagnosed almost six years ago after<br />
the birth <strong>of</strong> my second son. As a young<br />
mother I have had to educate my children<br />
on why I do not do all that other mothers<br />
do. Last year, my four year proclaimed,<br />
“Wouldn’t it be nice mommy if the<br />
doctors cured MS?!” I looked into his<br />
beautiful eyes and told him simply, Yes.<br />
So, I Walk for myself and others affected<br />
by MS. I Walk for my children, the<br />
children that I know and see, and future<br />
generations in hope that one day we can<br />
say that they wonít have to live with MS.<br />
Lianne Britnell<br />
Team member, Success MS<br />
North Vancouver<br />
Can your shoes talk?<br />
Building team & Building tradition<br />
My best friend, Susan, has had MS since she was in her 20s.<br />
“I’ve gone to many conferences and meetings with Susan<br />
and tried to help her in any way that I can. When I first<br />
found out about the MS Walk in Courtenay my daughter<br />
Holly and I recruited others to join us.”<br />
Then I found out we could create a team, so we began to<br />
recruit others in earnest.†We soon had three sets <strong>of</strong> mothers<br />
and daughters Then a husband and wife wanted to join, so<br />
our team name was created: Mothers, Daughters and Friends.<br />
This is an annual family event for us. Susan borrowed a<br />
scooter and joined us for the walk in our second year.”A few<br />
years later she had her own scooter and now participates<br />
every year.” Her granddaughter, Mackenzie is continuing our<br />
family tradition by participating on the team – this lets Susan<br />
concentrate on cheering us on!<br />
Pamela Cathcart (Team Captain)<br />
Mothers, Daughters and Friends<br />
Comox Valley<br />
We invite you to enter a nationwide contest by submitting a picture <strong>of</strong> the shoes that make you feel bold, confident<br />
& empowered. Canadians will vote on their favourite pair with the winner receiving a $1000 prize package from shoe<br />
manufacturer Clarks. For more information: www.ifMyshoesCouldTalk.ca<br />
Thank You!<br />
dMcL chartered Accountants<br />
golf tournament - $2,385<br />
Mr. Lube, a national level supporter <strong>of</strong> the MS<br />
<strong>Society</strong>,contributed over $5,400 raised during their<br />
annual fundraiser<br />
electronics Charity Open golf tournament - $5,100<br />
Thanks also go out to Richard Land who ran 26 miles<br />
at the Victoria Marathon on Vancouver Island and<br />
raised $600<br />
Non-uniform day<br />
Students at several independent schools in the Lower<br />
Mainland got to leave their uniforms at home when<br />
they contributed $2-$3 to the MS <strong>Society</strong> to take part<br />
in, you guessed it, Non-Uniform Day!Thanks go out to<br />
Holy Cross Elementary, Corpus Christi School, Our Lady<br />
<strong>of</strong> Sorrows School, St Francis <strong>of</strong> Assisi School and St<br />
Jude’s School for raising $1,000!<br />
<strong>Spring</strong> 2009 7
MShope MSheroes<br />
MShope MSheroes<br />
BCRoundup BCRoundup BCRoundup BCRoundup<br />
central Island chapter will kick <strong>of</strong>f the<br />
Scotiabank MS Walk on March 11 with a lively Irish<br />
Gala. Music, humour, dance and entertainment by<br />
the O’Brien Irish Dancers will treat team captains<br />
and top fundraisers. Local realtor, Wes Smith and<br />
Flight Centre will reward a lucky person with a trip<br />
for two to Hawaii. Jackie Seabloom <strong>of</strong> Nanaimo-<br />
City Centre Scotiabank and her team <strong>of</strong> 11 will<br />
volunteer to make the Gala great!<br />
ARe yoU A MeMBeR?<br />
As a member <strong>of</strong> the MS <strong>Society</strong> you: Have a<br />
say in the future <strong>of</strong> the MS <strong>Society</strong> I Allow us<br />
to speak with a more powerful voice on behalf<br />
<strong>of</strong> Canadians with MS I Receive Chapter, Division<br />
and National newsletters I Have access to<br />
MS <strong>Society</strong> programs and resource library<br />
8<br />
Annual membership $10<br />
Become a member today!<br />
1.800.268.7582<br />
Fraser Valley, terrific new improvements<br />
for the Fraser Valley Grape Escape. This<br />
2-day cycling fundraiser through one <strong>of</strong><br />
BC’s beautiful wine regions now features<br />
hotel accommodations at the Sandman<br />
Hotel, a gnarly ‘80s party; new shorter<br />
route option and a one day ride option.<br />
Register now for this June 6 & 7 event or<br />
another in this series <strong>of</strong> four great cycling<br />
events in BC that will pedal us towards a<br />
cure. www.msbiketours.ca<br />
Kamloops & Area chapter celebrated<br />
8 years <strong>of</strong> service by dedicated volunteer<br />
Maria Roberton. Since 2001, Maria has<br />
volunteered weekly at the Chapter <strong>of</strong>fice.<br />
Maria’s keen eye and hard work ethic<br />
have made a great contribution to the<br />
work we are able to do as a Chapter.<br />
Thank you Maria!<br />
Cyndi Lion, Chapter staff with Maria Roberton<br />
Kelowna, Victoria and cowichan<br />
Valley all held dynamic team Captain<br />
rallies to fire up TeamMS leaders!<br />
Ashley Hodgins, Tracey Gibson and Vanessa Pickard dressed to<br />
gang up on MS at a Team Captain rally February 12.<br />
Runners and walkers <strong>of</strong> all skill<br />
levels are invited to participate<br />
in the Scotiabank Vancouver<br />
Half- Marathon or 5k Charity<br />
Challenge and to raise funds<br />
for the MS <strong>Society</strong>. We are one <strong>of</strong> only fifteen<br />
charities selected to work in partnership with<br />
the Scotiabank Vancouver Half-Marathon & 5k<br />
Charity Challenge, one <strong>of</strong> the largest running<br />
events in British Columbia. Runners raising<br />
money to support the MS <strong>Society</strong> will get some<br />
wonderful perks including a discounted entry<br />
fee and chances to win great prizes.<br />
More information will be available soon on the<br />
BC & Yukon Division website.<br />
The first ever World<br />
MS day will take place<br />
on Wednesday 27 May<br />
2009. Mark your calendar<br />
now and tell your family,<br />
friends and colleagues to<br />
do the same. Contact your local chapter to find<br />
out about events in your community.<br />
MShope MSheroes <strong>Spring</strong> 2009<br />
editor/Writer: Suzanne Jay I contributors: Cynthia Khoo, Katie Lapi, Angela Hold, Ashley Hodgins, April<br />
Griffin, Dave Doig & many MS event photographers I designer: Michelle Reaney I cover Photo: Katie Lapi<br />
Published 4 X’s a year, MS hope MS heroes is intended to provide news and information to people living with MS, their families, caregivers,<br />
medical pr<strong>of</strong>essionals and other stakeholders. Information/opinions contained in this newsletter are obtained from sources believed<br />
to be reliable, but their accuracy cannot be guaranteed. The MS <strong>Society</strong> does not approve, endorse or recommend specific products or<br />
services and respects an individual’s right to make their own health management decisions. However, we can provide information to assist<br />
people in their decision process. For specific, personalized information, please consult your physician or other health care pr<strong>of</strong>essional.<br />
MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> I BC & Yukon Division I 1501-4330 Kingsway, Burnaby BC V5H 4G7<br />
Ph. 604.689.3144/1.800.268.7582 I email:info.bc@mssociety.ca I www.mssociety.ca<br />
Charitable Registration # 10774 6174 RR0002<br />
<strong>Spring</strong> 2009<br />
If you are receiving a copy <strong>of</strong> MS hope MS heroes for the first time – it is because you have been identified as one <strong>of</strong> our MS heroes who has made a real difference in the fight to end MS.<br />
As a member, donor, sponsor, volunteer, event participant, or researcher – you are part <strong>of</strong> our world - a world that wants to end MS. If you would prefer to receive this newsletter as an<br />
e-mail – or simply wish to be removed from our mailing list – please contact us at 1.800.268.7582 or info.bc@mssociety.ca. thanks for your support.<br />
<strong>Spring</strong> 2009