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Spring - Multiple Sclerosis Society of Canada

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MShope<br />

This issue<br />

i Bringing MS into<br />

the 2009 Election 02<br />

i Planning for<br />

Caregiving 03<br />

i Research Update 05<br />

i Walking because<br />

every step matters 06<br />

i BC Roundup 08<br />

MShope MSheroes<br />

Publications Mail Agreement No. 40063333<br />

Return undeliverables to:<br />

MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, BC Division<br />

1501-4330 Kingsway<br />

Burnaby, BC V5H 4G7<br />

MSheroes<br />

To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality <strong>of</strong> life.<br />

Gabrielle Veto laces up for the<br />

2009 scotiabank Ms Walk<br />

<strong>Spring</strong> Please 2009 share MShope MSheroes with a friend! 1<br />

Across BC & Yukon


MShope MSheroes<br />

MShope MSheroes<br />

New Hope in <strong>Spring</strong><br />

Lynn Hunter at the<br />

Victoria MS Walk<br />

2<br />

It’s February as<br />

we write this<br />

and many <strong>of</strong> us<br />

are living out<br />

the groundhog’s<br />

February 2<br />

prediction <strong>of</strong><br />

an additional 6<br />

weeks <strong>of</strong> winter.<br />

However, by the<br />

time you read<br />

this, spring will<br />

be around the<br />

corner, even for<br />

those MS <strong>Society</strong><br />

members who live in the northern most<br />

parts <strong>of</strong> the BC & Yukon division. Both<br />

the relatively harsh winter and the new<br />

economic conditions that we face are<br />

reminding us all <strong>of</strong> the importance <strong>of</strong><br />

resilience in the face <strong>of</strong> adversity.<br />

Until we end MS, people affected by the disease<br />

face many challenges. The MS <strong>Society</strong> is committed<br />

to ensuring that people with MS and their families<br />

have opportunities to participate fully in all aspects<br />

<strong>of</strong> life. On May 12, BC will hold its provincial election.<br />

Join us to help bring change in four key areas:<br />

Access to equitable health services<br />

Although the provincial government sets province-wide goals,<br />

standards, and performance agreements, MS is not included on the<br />

current list <strong>of</strong> priority diseases being addressed. As a result, there is<br />

inconsistent and inequitable implementation <strong>of</strong> primary care and<br />

enhanced chronic disease management across BC for people with<br />

MS.<br />

What we want to change:<br />

The MS <strong>Society</strong> wants to work with the provincial government,<br />

regional health authorities and a broad group <strong>of</strong> community and<br />

healthcare stakeholders to develop a province-wide primary care<br />

and chronic disease management strategy for MS.<br />

Access to MS therapies<br />

MS neurologists agree that people with MS benefit from<br />

early treatment to reduce the frequency and severity <strong>of</strong> attacks and<br />

to slow the progression <strong>of</strong> disability. In addition, people with MS rely<br />

on prescription drugs to treat a wide range <strong>of</strong> symptoms.<br />

Unfortunately, the disease-modifying therapies and some <strong>of</strong> the<br />

symptom-management therapies are expensive. Discrepancies<br />

between private and public health benefits plans mean that people<br />

receiving provincial support don’t have the same drug coverage as<br />

people with private insurance.<br />

What we want to change:<br />

The MS <strong>Society</strong> wants all disease-modifying drugs and symptommanagement<br />

therapies available for sale in <strong>Canada</strong> to be listed on<br />

the provincial PharmaCare program.<br />

Resilience and hope are qualities that<br />

people dealing with MS call upon every<br />

day. This spring, more than 5,000 people<br />

in 25 communities across the division<br />

will gather together to share our hopes<br />

for an end to MS. This end may be a<br />

cure or it may be a program, service or<br />

treatment that counters the effects <strong>of</strong><br />

the disease. Regardless <strong>of</strong> where you are,<br />

taking part in the Scotiabank MS Walk<br />

this year is more important than ever.<br />

The money we’ll raise is important—it<br />

will let us carry on with supporting<br />

research and providing local services<br />

and programs—but so is the hope and<br />

determination we build when we get<br />

together and move towards a shared<br />

goal.<br />

One might say the victory over MS will<br />

be even sweeter when we look back<br />

AdVocAcy UPdAte<br />

election Alert: Let’s Bring change<br />

because our members and supporters<br />

kept the <strong>Society</strong> moving relentlessly<br />

towards the goal, even when things got<br />

tougher than expected.<br />

Lynn Hunter<br />

Chair, MS <strong>Society</strong>, BC & Yukon<br />

Janet Palm in Surrey with Wendy Baker <strong>of</strong> Scotiabank,<br />

title sponsor <strong>of</strong> the 2009 and 2010 MS Walks in BC &<br />

Yukon.<br />

Access to home care and age-appropriate<br />

long-term care<br />

Nearly 80 percent <strong>of</strong> people with MS are eventually unable to<br />

work full-time because <strong>of</strong> the severity and unpredictability <strong>of</strong> their<br />

symptoms. Limited housing and care choices, as well as reduced<br />

income, may result in younger adults with MS having to move into<br />

care settings that are totally inappropriate.<br />

What we want to change:<br />

The MS <strong>Society</strong> wants the provincial government and regional health<br />

authorities to work together to increase funding and development<br />

<strong>of</strong> age-appropriate supportive housing, congregate care and longterm<br />

care homes.<br />

Increased MS research<br />

<strong>Canada</strong> is a recognized leader in MS<br />

research, and much <strong>of</strong> this research is<br />

conducted in BC. However, as the small<br />

group <strong>of</strong> outstanding scientists and<br />

clinicians near retirement, replacing the<br />

loss <strong>of</strong> MS research expertise will be a<br />

tremendous challenge.<br />

What we want<br />

to change:<br />

The MS <strong>Society</strong> wants the provincial<br />

government to invest in the <strong>Society</strong>’s<br />

end MS Research and Training Network<br />

to recruit, train, support, and retain the<br />

next generation <strong>of</strong> MS researchers in<br />

<strong>Canada</strong>, and to accelerate their research<br />

activities to find a cure and improved<br />

treatments for MS.<br />

Janet Palm<br />

President, MS <strong>Society</strong>, BC & Yukon<br />

mssociety.ca/bc<br />

<strong>Spring</strong> 2009<br />

<strong>Spring</strong> 2009


WALKers there’s No bring Place hope like to Home end MS<br />

<br />

<br />

<br />

<br />

by Cynthia Khoo <br />

<br />

<br />

Brook Gies is a congenial, caring, busy The next big change arrived<br />

<br />

woman from Vancouver, BC. As a production with a fall Bonnie took<br />

coordinator in film and television, she several years ago, which<br />

regularly works 12 to 14-hour <br />

days. This triggered a major relapse.<br />

past July, however, saw her in the midst <strong>of</strong> After three months <strong>of</strong><br />

<br />

preparations for returning to work after a<br />

rehabilitation in hospital,<br />

three-month hiatus. <br />

Bonnie’s doctors gave her<br />

Brook, along with her<br />

an ultimatum: “These are<br />

brother Brent, took time <strong>of</strong>f to help care for<br />

your options: you’re either<br />

her mother Bonnie, who lives at home with<br />

going into a facility, or we’re<br />

secondary progressive <br />

multiple sclerosis. going <br />

to set up home care<br />

for you.” For the Gieses, the<br />

<br />

decision was obvious.<br />

Bonnie, a cheerful <br />

and independent spirit,<br />

was diagnosed with MS in 1992, though Thus <br />

<br />

began a new stage <strong>of</strong><br />

<br />

likely<br />

Sheroes<br />

lived with the illness since early Bonnie’s <br />

care: setting up a<br />

<br />

1980s. As Bonnie’s <br />

MS progressed, so did comprehensive homecare<br />

the level <strong>of</strong> care she received, moving from system <br />

with Fraser Health<br />

Sheroes<br />

<br />

minor home adjustments to wheelchair- Authority. Although<br />

<br />

accommodating renovations, <br />

to weekly Bonnie and her family had<br />

home support, to currently daily home experience <br />

with homecare<br />

<br />

support. Consequently, she and her family workers, <br />

the few hours per<br />

have experienced first-hand <br />

the issues and week before her fall were<br />

complications that can arise when caring for nothing compared to the<br />

<br />

someone with MS at home.<br />

sheer <br />

volume <strong>of</strong> traffic that<br />

<br />

<br />

Despite what may <br />

be implied by the word, caregiving <br />

is far from a<br />

one-sided affair. As Bonnie and Brook both know, it takes listening,<br />

<br />

organization, compromise, and <strong>of</strong> course, a great deal <strong>of</strong> care.<br />

<br />

<br />

To begin with, there is coping with the<br />

turned their quiet home entrance into a<br />

diagnosis itself. In the Gieses’ case, this <br />

revolving door overnight. Brook recalls, “I<br />

process was eased by the mildness <strong>of</strong><br />

Bonnie’s symptoms and the belatedness think the highest count in one week was<br />

24 people coming to the house, and that<br />

<strong>of</strong> the diagnosis. “For quite a while things <br />

shocked us all a little bit. So that was really<br />

basically were the same,” says Bonnie. Brook hard at the beginning, it’s draining to have<br />

elaborates, “Because it was progressing for a<br />

to train somebody new every time.”<br />

long time so slowly, there were not these big<br />

decisions that had to be made. There wasn’t For Bonnie, quantity mattered in the way<br />

much that we really had to change because it affected the quality <strong>of</strong> her care: “That’s<br />

she’d already been living with it for a while.” a running battle I’ve had with the home<br />

support people. Unfortunately, they think<br />

That made later changes all the more<br />

they’re sending you a service, not a person.<br />

daunting to Brook, such as the first day Problems increase when neither service nor<br />

<br />

Bonnie<br />

<br />

took to a wheelchair. “That<br />

<br />

was<br />

person may be desired in the first place.<br />

probably the first big thing where my<br />

Brook relates, “When I talk to her about<br />

brother<br />

<br />

and I realized there was going<br />

<br />

to<br />

<br />

having somebody live in, the first thing my<br />

be a lot more, that this was a thing that was<br />

mom says to me is, ‘I don’t want somebody<br />

going to progress, and that we were going <br />

hovering around me all the time’.”<br />

to have to be a part <strong>of</strong> dealing with,” Brook <br />

relates.<br />

Consideration <strong>of</strong> her mother’s independence<br />

<br />

as well as physical well-being<br />

<br />

informs Brook’s<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

The best team you’ll ever be on!<br />

<br />

<br />

<br />

<br />

<br />

<br />

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<br />

<br />

<strong>Spring</strong> 2009<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

MShope MSheroes<br />

MShope MSheroes<br />

<br />

<br />

Captain <strong>of</strong> UBC MS remyelinators, Dr. Peter<br />

Rieckmann will update us on research in the<br />

annual MS <strong>Society</strong> teleconference in May.<br />

Brook and Bonnie Giese collaborate to build caregiving plan.<br />

caregiving decisions, and she maintains the<br />

importance <strong>of</strong> taking her mother’s opinion<br />

into account. She explains, “I sometimes<br />

think if it were me, feeling like I’ve lost so<br />

much control <strong>of</strong> my physical body, and now<br />

people are making these decisions for me,<br />

you just start to feel more and more out <strong>of</strong><br />

control. So I think my job is to bring all the<br />

possibilities and options to her, and in the<br />

end it has to be her decision; otherwise, it’s<br />

not going to work.”<br />

Despite what may be implied by the word,<br />

caregiving is far from a one-sided affair.<br />

As Bonnie and Brook both know, it takes<br />

listening, organization, compromise, and <strong>of</strong><br />

course, a great deal <strong>of</strong> care.<br />

This is the first in a series <strong>of</strong> article focusing on<br />

caregiving and MS. Our next article will look at<br />

the emotional impact <strong>of</strong> caregiving.<br />

BC based researcher Dr. Peter Rieckmann will conduct the<br />

MS <strong>Society</strong> research teleconference in May for MS Awareness<br />

month. Dr. Rieckmann is the MS <strong>Society</strong> Research Chair at the<br />

University <strong>of</strong> BC.<br />

The teleconference will feature an update on Dr. Rieckmann’s<br />

research as well as an overview <strong>of</strong> MS research in general. This<br />

free two hour session is open to all and will be held Wednesday,<br />

May 20, 3:00 – 5:00 pm PST.<br />

Callers will have an opportunity to pre-submit questions to<br />

Dr. Rieckmann for his response during the session. Further details<br />

about how to take part in this event will be made available as we<br />

finalize them. Please refer to our website www.mssociety.ca/bc<br />

and to your chapter newsletters.<br />

<strong>Spring</strong> 2009 3<br />

<br />

Enhancing Quality <strong>of</strong> Life<br />

<br />

<br />

Get on the phone & get<br />

updated about research!


MShope MSheroes<br />

MShope MSheroes<br />

Reading About People (with MS)<br />

Life Side Up, by Ron didur<br />

The story <strong>of</strong> Jay is, at once, familiar and surreal –<br />

dreamlike, yet tangible. Jay is a pilot and songwriter,<br />

married to the love <strong>of</strong> his life, Janet. As we follow Jay’s<br />

journey, his diagnosis with MS, his accidental death and<br />

his unexpected rebirth, we are challenged to face our<br />

own existential questions.<br />

Ron Didur, founder <strong>of</strong> the Canadian Disabled Individuals<br />

Association (CDIA) and longtime MS <strong>Society</strong> volunteer,<br />

prefaces his novel Life Side Up by telling us that he is<br />

not a writer and never had any aspirations to be one.<br />

Ron goes on to explain that the components <strong>of</strong> this story<br />

came to him in a series <strong>of</strong> compelling dreams. What<br />

was initially thought to be the makings <strong>of</strong> a short story<br />

blossomed into a 128 page novel.<br />

Life Side Up is available to be borrowed through<br />

the MS <strong>Society</strong>, BC & Yukon Division Library. Contact<br />

604.689.3144.<br />

To learn more about CDIA or to purchase Life Side Up,<br />

go to www.disabledindividuals.ca<br />

You may qualify<br />

for a scholarship<br />

if you are age<br />

25 or under<br />

and either have<br />

a parent who has MS or have MS<br />

yourself. Please note that additional<br />

criteria apply.<br />

This year, the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong><br />

hopes to award up to $75,000 in<br />

scholarships to eligible Canadians.<br />

Each student awarded will receive<br />

$500- $1,000 towards an eligible<br />

undergraduate course <strong>of</strong> study.<br />

Application forms and more<br />

information are available online<br />

www.mssociety.ca/en/help/<br />

scholarship.htm until April 17, 2009.<br />

4<br />

reviewed by Angela Hold<br />

the 2009 MS Scholarship Program is accepting applications<br />

Dear Sonja,<br />

Coordinator, Equipment Provision Program<br />

anks to the generosity and support <strong>of</strong> the<br />

MS <strong>Society</strong> Equipment Provision Program,<br />

I received a power chair.<br />

Because it has a lift that raises me up to<br />

counter height, I am now able to cook, do<br />

laundry, and dye textile projects at the sink.<br />

It is so much easier getting around. I am able<br />

to be mobile and be sitting down comfortably.<br />

I can go outside on the deck for fresh air<br />

and a change <strong>of</strong> scenery. It has restored my<br />

zest for life.<br />

ank you to the MS <strong>Society</strong>, and to you for<br />

your assistance in making this happen.<br />

Aaron Solowoniuk <strong>of</strong> Juno Award-winning Canadian punk rock band<br />

Billy Talent speaks on YouTube about why he chose to initiate the<br />

Scholarship program with the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />

Sincerely, JC in Winlaw<br />

Make your step<br />

the one that ends<br />

multiple sclerosis.<br />

Register today at mswalks.ca.<br />

April 26, 2009<br />

2009 Dates<br />

Langley Richmond<br />

Lower Mainland<br />

North Shore Surrey<br />

Fraser Powell Valley River Tri Cities<br />

Vancouver<br />

April 26, 2009<br />

Whiterock<br />

April 26, 2009<br />

Interior 1.800.268.7582 Bc or 604.602.3221 April 26, 2009<br />

Northern BC & Yukon<br />

Prince George June 7, 2009<br />

Dawson Creek New! June 14, 2009<br />

Whitehorse<br />

Vancouver Island<br />

June 14, 2009<br />

Victoria April 5, 2009<br />

Duncan April 5, 2009<br />

Nanaimo April 26, 2009<br />

Port Alberni April 26, 2009<br />

Comox Valley April 5, 2009<br />

Port Hardy April 26, 2009<br />

You may qualify for<br />

assistance through the<br />

Equipment Provision Program.<br />

Contact us at 604.689.3144 or<br />

visit mssociety.ca/bc/epp.html<br />

<strong>Spring</strong> 2009<br />

<strong>Spring</strong> 2009


Lack <strong>of</strong> secure income is one <strong>of</strong> the biggest<br />

problems facing Canadians with multiple<br />

sclerosis today, and Kim McKay’s story is too<br />

common.<br />

Kim confirmed her MS in 2000, but suffered<br />

symptoms for seven years prior, including<br />

optic neuritis, muscle spasms, bladder<br />

problems, and fatigue. She first worked as<br />

an industrial draftsman, where she was let<br />

go without cause, then in a fire department,<br />

and finally as part-time clerk with the Surrey<br />

Museum. After stopping work at the Surrey<br />

Museum due to difficulties in working due<br />

to MS she moved to Grand Forks with her<br />

partner.<br />

A few years later she became aware <strong>of</strong><br />

<strong>Canada</strong> Pension Plan (CPP) benefits for<br />

people with disabilities and decided to<br />

apply. Kim had to show that she worked and<br />

contributed to CPP for four out <strong>of</strong> the last<br />

six years before she became disabled. This<br />

meant that she had to prove that she not<br />

only was now unable to work due to her<br />

disability but was unable to work several<br />

years previously, in 2003. She was denied<br />

because they did not consider her disability<br />

severe enough to stop working when she<br />

last qualified in 2003 based on the limited<br />

information she was able to gather from her<br />

previous healthcare providers. Kim appealed<br />

ReSeARcH UPdAte<br />

Genetic Study Shows direct Link Between<br />

Vitamin d and MS Susceptibility ‘Gene’<br />

MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> funded researchers<br />

have found evidence that a direct<br />

interaction between vitamin D and a<br />

common genetic variant alters the risk <strong>of</strong><br />

developing multiple sclerosis. The research<br />

suggests that vitamin D deficiency during<br />

pregnancy and the early years may increase<br />

the risk <strong>of</strong> the <strong>of</strong>fspring developing MS later<br />

in life.<br />

The causes <strong>of</strong> MS are unclear, but it has<br />

become evident that both environmental<br />

and genetic factors play a role. Previous<br />

studies have shown that populations from<br />

Northern Europe have increased risk <strong>of</strong> MS if<br />

they live in areas receiving less sunshine. This<br />

supports a direct link between deficiency<br />

in vitamin D, which is produced in the<br />

Add your power<br />

to the flower.<br />

On May 7-9 buy or volunteer to sell carnations in your<br />

<strong>Spring</strong> 2009<br />

community during the annual Carnation Campaign.<br />

For more information, Jessie Wong Carnation Coordinator at 604.602.3218<br />

or call your local chapter <strong>of</strong>fice.<br />

MShope MSheroes<br />

MShope MSheroes<br />

third time a charm: Appeal Case won with VLAP Help<br />

By Cynthia Khoo<br />

the decision on her own, but she lost the<br />

reconsideration, as well. That’s when she<br />

contacted the MS <strong>Society</strong>’s Volunteer Legal<br />

Advocacy Program (VLAP).<br />

“I went to the MS Clinic in Kelowna,” Kim<br />

recalls, “and they said get in touch with the<br />

MS <strong>Society</strong> and you guys were just awesome.<br />

I would tell anybody in a minute to go that<br />

route if you want to keep your sanity.”<br />

With VLAP assistance, Kim fought through<br />

bureaucracy, forms, and letters to be granted<br />

a final appeal hearing. VLAP Coordinator<br />

April Griffin relates, “Even though everyone<br />

agreed that she could not work now because<br />

<strong>of</strong> multiple sclerosis, she had to prove that<br />

she couldn’t work since 2003. There was<br />

only limited medical information available<br />

from that time, and none that specifically<br />

said multiple sclerosis prevented her from<br />

work earlier than 2003. This lack <strong>of</strong> objective<br />

body through the action <strong>of</strong> sunlight, and<br />

increased risk <strong>of</strong> developing the disease.<br />

“Our study implies that taking vitamin D<br />

supplements during pregnancy and the<br />

early years may reduce the risk <strong>of</strong> a child<br />

developing MS in later life,” says co-author<br />

Dr. Sreeram Ramagopalan. “Vitamin D is<br />

a safe and relatively cheap supplement<br />

with substantial potential health benefits.<br />

There is accumulating evidence that it can<br />

reduce the risk <strong>of</strong> developing cancer and<br />

<strong>of</strong>fer protection from other autoimmune<br />

diseases.”<br />

“This research represents an important<br />

development in our understanding <strong>of</strong><br />

the cause <strong>of</strong> MS,” says Dr. Paul O’Connor,<br />

national scientific and medical advisor for<br />

the <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> and<br />

a neurologist at St. Michael’s Hospital in<br />

Toronto.<br />

evidence and information made her case<br />

extremely difficult because she had to find<br />

a way to show that she was indeed unable<br />

to work several years before she applied for<br />

CPP Disability benefits.”<br />

Finally, with VLAP support Kim gathered<br />

enough medical evidence that her case went<br />

to the CPP Review Tribunal, and won.<br />

Kim is grateful for VLAP, “Just a big thank<br />

you to everyone there, a great big thank you<br />

because it really did help me keep going.<br />

You don’t feel like you’re all alone in all this<br />

bureaucracy. Even if they didn’t have an<br />

answer right away, they’d always call back<br />

and let me know this or that. It really made<br />

a big difference.”<br />

The application process for CPP disability<br />

benefits is complicated and the forms can be<br />

overwhelming. Many people have difficulty<br />

organizing all the necessary information and<br />

remembering small details from previous<br />

years. We suggest that you contact the MS<br />

<strong>Society</strong>’s Volunteer Legal Advocacy Program<br />

for information on how to apply before<br />

you start the application process. Staff<br />

and volunteers can help you to gather and<br />

organize relevant information to increase<br />

chances <strong>of</strong> being accepted for CPP Disability<br />

Benefits with the first application. Contact<br />

information: 1.800.268.7582 or 604.689.3144<br />

or info.bc@mssociety.ca<br />

Dr. A. Dessa Sadovnick, from the University <strong>of</strong> British<br />

Columbia will lead the Canadian Collaborative Project on<br />

Genetic Susceptibility to <strong>Multiple</strong> <strong>Sclerosis</strong> with Dr. George<br />

Ebers from Oxford University<br />

Dr. O’Connor cautions that the study<br />

does not provide guidelines on vitamin D<br />

dosage and that any decisions on treatment<br />

or supplementation should be made in<br />

consultation with a trained physician.<br />

For more information:<br />

www.mssociety.ca/en/research<br />

<strong>Spring</strong> 2009 5


MShope MSheroes<br />

MShope MSheroes<br />

Launching the 2009 Scotiabank MS Walk<br />

Walkers and event sponsors ‘tied one on,’ by replacing their plain<br />

white shoe laces with red shoe laces, to mark the beginning <strong>of</strong> a<br />

countdown to over 25 Scotiabank MS Walk events to be held in<br />

towns across BC and Yukon.<br />

Lacing up Andrew Britnell, President, Student Works Painting;<br />

Candy Hodson Senior VP, Marketing, Black Press; Wendy Baker,<br />

Manager Nordel Crossing Branch, Scotiabank; Janet Palm,<br />

President, MS <strong>Society</strong>, BC & Yukon Division; David Poole Senior VP<br />

BC & Yukon Region, Scotiabank; and Lianne Britnell.<br />

6<br />

Lower Mainland April 26<br />

Fraser Valley April 26<br />

Interior Bc April 26<br />

Northern Bc & yukon<br />

Prince George June 7<br />

Dawson Creek New! June 14<br />

Whitehorse June 14<br />

Vancouver Island<br />

Victoria April 5<br />

Duncan April 5<br />

Nanaimo April 26<br />

Port Alberni April 26<br />

Comox Valley April 5<br />

Port Hardy April 26<br />

Making Connections<br />

at Meet Market Adventures kicked <strong>of</strong>f their<br />

fundraising at the anti-Valentine’s day dance.<br />

Almost 250 active singles mingled, danced and<br />

bought carnations from friendly Kiersten Eis and<br />

Earl Von Tapia, members <strong>of</strong> Team MMA.<br />

“We’re doing this in honour <strong>of</strong> our former colleague Jo, as well as the many others<br />

who have had MS touch their lives”. The team aims to beat the $1,700 they raised in<br />

2008. To join the MMA team, go to ‘events in April’ at www.meetmarketadventures.<br />

com<br />

Do it as a team!<br />

Whether you’re walking in the Scotiabank MS Walk<br />

or riding in a RoNA MS Bike tours, it’s more fun doing it as a team.<br />

The best part is, TeamMS is here to help.<br />

Kevin Wood (far left, front) and some members <strong>of</strong> his team,<br />

Progress for MS in Chilliwack.<br />

We Shaved our Heads to end MS!<br />

<strong>Multiple</strong> sclerosis has prevented me from<br />

walking the route at the Chilliwack event for<br />

the last couple years, but MS has not made me<br />

lose hope for a cure. In fact,my Team, Progress<br />

for MS helps me and other people affected by<br />

MS grow our hope each year.<br />

You don’t have to do anything as drastic as<br />

going bald, as a few <strong>of</strong> my team members and<br />

I did, but the money you raise as an MS Walker<br />

helps the MS <strong>Society</strong> provide services to people<br />

affected by the disease and fund research<br />

to bring an end to MS. Over 70,000 people<br />

in towns across the country will take part in<br />

Scotiabank MS Walk events this spring.<br />

I invite you to join us by taking part in your local<br />

Scotiabank MS Walk!<br />

<strong>Spring</strong> 2009<br />

We’ll help you create a fun-filled team <strong>of</strong> people to walk, wheel, or ride with family, friends, co-workers, hockey buddies,<br />

book club members – you get the idea. Experience the camaraderie and excitement <strong>of</strong> TeamMS while helping end MS!<br />

call your local MS <strong>Society</strong> chapter today or contact eilesha Hall 604.602.3200 or eilesha.hall@mssociety.ca<br />

<strong>Spring</strong> 2009


Making community<br />

I called the MS <strong>Society</strong> for help and<br />

information when I was diagnosed<br />

with MS 16 years ago. The <strong>Society</strong> is<br />

well organized and a small enough<br />

organization that an individual can<br />

have meaningful input. I fundraise<br />

knowing what the service side <strong>of</strong> the<br />

organization does because I’ve been<br />

involved as a volunteer on that side<br />

and benefited from those services<br />

myself.<br />

Denise Young, currently Chair <strong>of</strong> the White Rock Walk<br />

steering committee moved from Langley where she<br />

was the Chair <strong>of</strong> the Langley MS Walk for seven years.<br />

Lianne Britnell, 2008 Team captain laces<br />

up at the Scotiabank MS Walk launch.<br />

<strong>Spring</strong> 2009<br />

Walking for the Future<br />

2009 Welcomed at the Watermark<br />

McGregor Wark, Shafiq Vallani and Dave Major planned<br />

another great new year’s eve event for 400 <strong>of</strong> their<br />

closest friends at the beautiful beachside Watermark<br />

Restaurant. Their celebration<br />

raised $3,600 towards ending<br />

MS.<br />

Call Bev Matsu to get the scoop<br />

604.602.3202 or Beverly.Matsu@mssociety.ca<br />

MShope MSheroes<br />

MShope MSheroes<br />

I was diagnosed almost six years ago after<br />

the birth <strong>of</strong> my second son. As a young<br />

mother I have had to educate my children<br />

on why I do not do all that other mothers<br />

do. Last year, my four year proclaimed,<br />

“Wouldn’t it be nice mommy if the<br />

doctors cured MS?!” I looked into his<br />

beautiful eyes and told him simply, Yes.<br />

So, I Walk for myself and others affected<br />

by MS. I Walk for my children, the<br />

children that I know and see, and future<br />

generations in hope that one day we can<br />

say that they wonít have to live with MS.<br />

Lianne Britnell<br />

Team member, Success MS<br />

North Vancouver<br />

Can your shoes talk?<br />

Building team & Building tradition<br />

My best friend, Susan, has had MS since she was in her 20s.<br />

“I’ve gone to many conferences and meetings with Susan<br />

and tried to help her in any way that I can. When I first<br />

found out about the MS Walk in Courtenay my daughter<br />

Holly and I recruited others to join us.”<br />

Then I found out we could create a team, so we began to<br />

recruit others in earnest.†We soon had three sets <strong>of</strong> mothers<br />

and daughters Then a husband and wife wanted to join, so<br />

our team name was created: Mothers, Daughters and Friends.<br />

This is an annual family event for us. Susan borrowed a<br />

scooter and joined us for the walk in our second year.”A few<br />

years later she had her own scooter and now participates<br />

every year.” Her granddaughter, Mackenzie is continuing our<br />

family tradition by participating on the team – this lets Susan<br />

concentrate on cheering us on!<br />

Pamela Cathcart (Team Captain)<br />

Mothers, Daughters and Friends<br />

Comox Valley<br />

We invite you to enter a nationwide contest by submitting a picture <strong>of</strong> the shoes that make you feel bold, confident<br />

& empowered. Canadians will vote on their favourite pair with the winner receiving a $1000 prize package from shoe<br />

manufacturer Clarks. For more information: www.ifMyshoesCouldTalk.ca<br />

Thank You!<br />

dMcL chartered Accountants<br />

golf tournament - $2,385<br />

Mr. Lube, a national level supporter <strong>of</strong> the MS<br />

<strong>Society</strong>,contributed over $5,400 raised during their<br />

annual fundraiser<br />

electronics Charity Open golf tournament - $5,100<br />

Thanks also go out to Richard Land who ran 26 miles<br />

at the Victoria Marathon on Vancouver Island and<br />

raised $600<br />

Non-uniform day<br />

Students at several independent schools in the Lower<br />

Mainland got to leave their uniforms at home when<br />

they contributed $2-$3 to the MS <strong>Society</strong> to take part<br />

in, you guessed it, Non-Uniform Day!Thanks go out to<br />

Holy Cross Elementary, Corpus Christi School, Our Lady<br />

<strong>of</strong> Sorrows School, St Francis <strong>of</strong> Assisi School and St<br />

Jude’s School for raising $1,000!<br />

<strong>Spring</strong> 2009 7


MShope MSheroes<br />

MShope MSheroes<br />

BCRoundup BCRoundup BCRoundup BCRoundup<br />

central Island chapter will kick <strong>of</strong>f the<br />

Scotiabank MS Walk on March 11 with a lively Irish<br />

Gala. Music, humour, dance and entertainment by<br />

the O’Brien Irish Dancers will treat team captains<br />

and top fundraisers. Local realtor, Wes Smith and<br />

Flight Centre will reward a lucky person with a trip<br />

for two to Hawaii. Jackie Seabloom <strong>of</strong> Nanaimo-<br />

City Centre Scotiabank and her team <strong>of</strong> 11 will<br />

volunteer to make the Gala great!<br />

ARe yoU A MeMBeR?<br />

As a member <strong>of</strong> the MS <strong>Society</strong> you: Have a<br />

say in the future <strong>of</strong> the MS <strong>Society</strong> I Allow us<br />

to speak with a more powerful voice on behalf<br />

<strong>of</strong> Canadians with MS I Receive Chapter, Division<br />

and National newsletters I Have access to<br />

MS <strong>Society</strong> programs and resource library<br />

8<br />

Annual membership $10<br />

Become a member today!<br />

1.800.268.7582<br />

Fraser Valley, terrific new improvements<br />

for the Fraser Valley Grape Escape. This<br />

2-day cycling fundraiser through one <strong>of</strong><br />

BC’s beautiful wine regions now features<br />

hotel accommodations at the Sandman<br />

Hotel, a gnarly ‘80s party; new shorter<br />

route option and a one day ride option.<br />

Register now for this June 6 & 7 event or<br />

another in this series <strong>of</strong> four great cycling<br />

events in BC that will pedal us towards a<br />

cure. www.msbiketours.ca<br />

Kamloops & Area chapter celebrated<br />

8 years <strong>of</strong> service by dedicated volunteer<br />

Maria Roberton. Since 2001, Maria has<br />

volunteered weekly at the Chapter <strong>of</strong>fice.<br />

Maria’s keen eye and hard work ethic<br />

have made a great contribution to the<br />

work we are able to do as a Chapter.<br />

Thank you Maria!<br />

Cyndi Lion, Chapter staff with Maria Roberton<br />

Kelowna, Victoria and cowichan<br />

Valley all held dynamic team Captain<br />

rallies to fire up TeamMS leaders!<br />

Ashley Hodgins, Tracey Gibson and Vanessa Pickard dressed to<br />

gang up on MS at a Team Captain rally February 12.<br />

Runners and walkers <strong>of</strong> all skill<br />

levels are invited to participate<br />

in the Scotiabank Vancouver<br />

Half- Marathon or 5k Charity<br />

Challenge and to raise funds<br />

for the MS <strong>Society</strong>. We are one <strong>of</strong> only fifteen<br />

charities selected to work in partnership with<br />

the Scotiabank Vancouver Half-Marathon & 5k<br />

Charity Challenge, one <strong>of</strong> the largest running<br />

events in British Columbia. Runners raising<br />

money to support the MS <strong>Society</strong> will get some<br />

wonderful perks including a discounted entry<br />

fee and chances to win great prizes.<br />

More information will be available soon on the<br />

BC & Yukon Division website.<br />

The first ever World<br />

MS day will take place<br />

on Wednesday 27 May<br />

2009. Mark your calendar<br />

now and tell your family,<br />

friends and colleagues to<br />

do the same. Contact your local chapter to find<br />

out about events in your community.<br />

MShope MSheroes <strong>Spring</strong> 2009<br />

editor/Writer: Suzanne Jay I contributors: Cynthia Khoo, Katie Lapi, Angela Hold, Ashley Hodgins, April<br />

Griffin, Dave Doig & many MS event photographers I designer: Michelle Reaney I cover Photo: Katie Lapi<br />

Published 4 X’s a year, MS hope MS heroes is intended to provide news and information to people living with MS, their families, caregivers,<br />

medical pr<strong>of</strong>essionals and other stakeholders. Information/opinions contained in this newsletter are obtained from sources believed<br />

to be reliable, but their accuracy cannot be guaranteed. The MS <strong>Society</strong> does not approve, endorse or recommend specific products or<br />

services and respects an individual’s right to make their own health management decisions. However, we can provide information to assist<br />

people in their decision process. For specific, personalized information, please consult your physician or other health care pr<strong>of</strong>essional.<br />

MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> I BC & Yukon Division I 1501-4330 Kingsway, Burnaby BC V5H 4G7<br />

Ph. 604.689.3144/1.800.268.7582 I email:info.bc@mssociety.ca I www.mssociety.ca<br />

Charitable Registration # 10774 6174 RR0002<br />

<strong>Spring</strong> 2009<br />

If you are receiving a copy <strong>of</strong> MS hope MS heroes for the first time – it is because you have been identified as one <strong>of</strong> our MS heroes who has made a real difference in the fight to end MS.<br />

As a member, donor, sponsor, volunteer, event participant, or researcher – you are part <strong>of</strong> our world - a world that wants to end MS. If you would prefer to receive this newsletter as an<br />

e-mail – or simply wish to be removed from our mailing list – please contact us at 1.800.268.7582 or info.bc@mssociety.ca. thanks for your support.<br />

<strong>Spring</strong> 2009

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