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Many paths lead to discovery - Multiple Sclerosis Society of Canada

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2010 atlantic division annual report<br />

<strong>Many</strong> <strong>paths</strong> <strong>lead</strong> <strong>to</strong><br />

<strong>discovery</strong>


Board <strong>of</strong> direc<strong>to</strong>rs<br />

ExEcutivE<br />

Charles J. Ford, Chair<br />

Chris Bourque, Vice-Chair &<br />

Acting Chair, Client Services Committee<br />

Sylvia MacVey, Past-Chair<br />

Sean FitzGerald, Secretary & Treasurer<br />

MEMbErs at LargE<br />

Dr. Gary Altenkirk<br />

Rachel Cameron<br />

Catherine Edward<br />

Joan MacKinnon<br />

Steve Merrill<br />

Byron Murphy<br />

Lisa Park<br />

Liz Wozniak<br />

Honourary LEgaL counsEL<br />

Gavin Giles, Q.C.<br />

Honourary DirEc<strong>to</strong>r<br />

Michael Kennedy<br />

Kin canaDa Liaison<br />

Pat King<br />

Carol MacDonald<br />

staff<br />

PrEsiDEnt<br />

Dena Simon<br />

DirEc<strong>to</strong>rs<br />

Tim Dunlop<br />

Monica Jordan<br />

Sandra MacLean<br />

Jessesar MacNeil<br />

Peter Van Harmelen<br />

ManagErs<br />

Starr Amey<br />

Joanna Hamil<strong>to</strong>n<br />

coorDina<strong>to</strong>rs<br />

Anita Conrad<br />

Vanessa Linehan<br />

Daniel Robinson<br />

Valerie Wilson<br />

aDMinistra<strong>to</strong>r<br />

Ann Thouless<br />

our Mission<br />

To be a <strong>lead</strong>er in finding a cure for multiple sclerosis<br />

and enabling people affected by MS <strong>to</strong> enhance their quality <strong>of</strong> life.<br />

Message from the chair<br />

“What an incredible and<br />

challenging year for the<br />

MS community. It has surely<br />

been one <strong>of</strong> the busiest in<br />

Atlantic Division his<strong>to</strong>ry.”<br />

In 2010, we focused on bringing MS education<br />

sessions <strong>to</strong> as many communities as possible in<br />

Atlantic <strong>Canada</strong>. We continued <strong>to</strong> make good progress<br />

with the work <strong>of</strong> the endMS campaign allowing<br />

researchers in the Atlantic endMS Regional Research<br />

and Training Centre <strong>to</strong> collaborate on new areas <strong>of</strong><br />

MS. We launched an advocacy campaign in New<br />

Brunswick <strong>to</strong> obtain catastrophic drug coverage for MS<br />

therapies. We’ve worked hard <strong>to</strong> ensure our continued<br />

success in fundraising through solid planning, diverse<br />

revenue streams and donor stewardship. And, we have<br />

experienced an unparalleled increase in communication<br />

between the <strong>Society</strong> and the public with MS awareness<br />

at an all-time high.<br />

With the advent <strong>of</strong> a new MS theory called chronic<br />

cerebrospinal venous insufficiency (CCSVI), the MS<br />

<strong>Society</strong> responded by providing immediate funding<br />

<strong>to</strong> study the connection between CCSVI and MS.<br />

Not everyone agreed with this approach. We must<br />

acknowledge these disagreements and understand<br />

why they exist remembering we are all trying <strong>to</strong> reach<br />

the same goal. At the same time, we must recognize<br />

the possibilities that lay before us as we put more time,<br />

attention and money in<strong>to</strong> research that will find a cure.<br />

The differing beliefs arising from the CCSVI theory have<br />

the potential <strong>to</strong> create permanent disharmony and<br />

division. Instead, let us be willing <strong>to</strong> listen <strong>to</strong> each other<br />

<strong>to</strong> find the best way <strong>to</strong> support all members <strong>of</strong> the MS<br />

community.<br />

There are many <strong>paths</strong> we follow <strong>to</strong> help people with MS.<br />

Through client support, advocacy, education, research,<br />

and by raising the funds that allow us <strong>to</strong> do our work,<br />

we strive <strong>to</strong> fulfill as many areas <strong>of</strong> need as we can, while<br />

continuing <strong>to</strong> explore new theories which may <strong>lead</strong> <strong>to</strong> a<br />

cure. <strong>Many</strong> <strong>paths</strong> <strong>lead</strong> <strong>to</strong> <strong>discovery</strong>, and it may just be an<br />

unexpected path that <strong>lead</strong>s us <strong>to</strong> end MS.<br />

On a personal note, as my time as Chair <strong>of</strong> this Board<br />

comes <strong>to</strong> an end, I realize I have gained more personally<br />

than I have given. I also recognize that I have the<br />

opportunity <strong>to</strong> continue <strong>to</strong> support the MS community<br />

in many ways. I will do so in the hope that one day, I can<br />

truly give as much as I have received. I want <strong>to</strong> thank all<br />

<strong>of</strong> my colleagues on the Board over the past 9.5 years for<br />

their collegiality, support and enthusiasm. I have always<br />

been proud <strong>to</strong> be your colleague. To the staff <strong>of</strong> the<br />

Atlantic Division, you have never failed <strong>to</strong> inspire me. You<br />

are the heart and soul <strong>of</strong> this organization. I hope that I<br />

have accomplished what I set out <strong>to</strong> do as Chair, namely,<br />

<strong>to</strong> enable you all <strong>to</strong> work your magic on a daily basis.<br />

I want <strong>to</strong> say a final thank you <strong>to</strong> all the organizations<br />

and all the people who have so generously given <strong>of</strong><br />

their time and personal resources in the fight <strong>to</strong> end this<br />

disease. With your continued support, we will end MS.<br />

Respectfully Submitted,<br />

Charles J. Ford, Chair<br />

1 <strong>Multiple</strong> sclerosis society <strong>of</strong> <strong>of</strong> canada<br />

atlantic division annual report 2010 1


scott Gillis award<br />

Scott Gillis was a dedicated volunteer who<br />

demonstrated <strong>lead</strong>ership and personal<br />

commitment <strong>to</strong> the Atlantic Division <strong>of</strong> the MS<br />

<strong>Society</strong> <strong>of</strong> <strong>Canada</strong>. He had a deep understanding<br />

<strong>of</strong> the needs <strong>of</strong> people affected by multiple<br />

sclerosis and <strong>of</strong> the many issues facing people<br />

with disabilities.<br />

Diagnosed with MS in his late twenties, Scott<br />

became committed <strong>to</strong> representing people living<br />

with disabilities. As a lawyer, Scott defended the<br />

rights <strong>of</strong> persons with disabilities. As an active<br />

community member, Scott chaired and served on<br />

many boards and committees for organizations<br />

such as Big Brothers Big Sisters, Valley Disability<br />

Partnership <strong>Society</strong>, Brain Injury Association <strong>of</strong><br />

Nova Scotia, The Disabled United for Equality <strong>of</strong><br />

Life, Nova Scotia League for Equal Opportunity<br />

and the list goes on.<br />

Scott served on the MS <strong>Society</strong>, Atlantic Division<br />

Board <strong>of</strong> Direc<strong>to</strong>rs from 1998 until his death in<br />

May 2010. During that time he served as legal<br />

counsel, and as a member <strong>of</strong> the Executive<br />

Committee and was involved in fundraising,<br />

government relations and client services.<br />

His encouragement radiated and motivated<br />

staff, volunteers and participants . . .<br />

honouring<br />

a Friend<br />

As Chair <strong>of</strong> the Social Action Committee, he<br />

successfully lobbied the Nova Scotia Government<br />

for drug coverage for the four available MS drug<br />

therapies. Most recently, Scott was the Chair <strong>of</strong><br />

the Client Services Committee where under his<br />

<strong>lead</strong>ership, funding programs were reviewed <strong>to</strong><br />

ensure accessibility and sustainability, and Being<br />

Well with MS – a unique funding program in<br />

<strong>Canada</strong> – was launched.<br />

Scott inspired people with his positive outlook<br />

and accomplishments, and left them challenged<br />

<strong>to</strong> do more in their own lives. His encouragement<br />

radiated and motivated staff, volunteers and<br />

participants <strong>to</strong> work <strong>to</strong>gether <strong>to</strong> achieve the<br />

mission <strong>of</strong> the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />

In November, the Atlantic Division Board <strong>of</strong><br />

Direc<strong>to</strong>rs unanimously agreed <strong>to</strong> establish an<br />

award <strong>to</strong> celebrate and remember the positive<br />

impact that Scott had on every life he <strong>to</strong>uched.<br />

The Scott Gillis Award will be presented annually<br />

<strong>to</strong> a person who exemplifies Scott’s remarkable<br />

traits.<br />

advocacy<br />

New Brunswick is one <strong>of</strong> only two<br />

provinces in <strong>Canada</strong> that does not<br />

have coverage for catastrophic drugs<br />

for its residents. With the costs <strong>of</strong> MS<br />

therapies ranging from $13,000 <strong>to</strong> $40,000<br />

per year, they are unaffordable for many<br />

families, even those with private insurance.<br />

Anecdotes from people with MS needing<br />

<strong>to</strong> make the choice between necessary MS<br />

treatments and the basic necessities <strong>of</strong> life,<br />

signaled a need for change.<br />

In the summer, the Atlantic Division<br />

launched the Campaign for Coverage<br />

website, <strong>to</strong> facilitate an online letter writing<br />

campaign resulting in 500 electronic and<br />

hard copy letters sent <strong>to</strong> the Minister <strong>of</strong><br />

Health.<br />

ccsvi<br />

For many people, the idea <strong>of</strong> chronic<br />

cerebrospinal venous insufficiency (CCSVI)<br />

was a new sign <strong>of</strong> hope – a fairly simple idea<br />

<strong>to</strong> explain MS – that created great interest in<br />

the media and in the MS community. People<br />

looked <strong>to</strong> the MS <strong>Society</strong> for information<br />

and answers that we simply did not have.<br />

For some, the MS <strong>Society</strong> message <strong>of</strong> hope<br />

mixed with caution, and the need for further<br />

research, was disappointing.<br />

It’s time for action!<br />

Meetings were held with Government<br />

representatives and a media campaign was<br />

conducted in newspapers throughout the<br />

province. As a result, the promise <strong>of</strong> coverage<br />

became part <strong>of</strong> the Liberal and Progressive<br />

Conservative Party platforms during the<br />

September provincial election in New Brunswick.<br />

“We’re pleased the Government has<br />

acknowledged the lack <strong>of</strong> catastrophic drug<br />

coverage in New Brunswick is an issue and our<br />

voice is being heard,” says Steve Merrill, Chair<br />

<strong>of</strong> the Atlantic Division’s Government Relations<br />

Committee. “We will continue <strong>to</strong> press the<br />

Government <strong>of</strong> New Brunswick until coverage is<br />

made available for all residents.”<br />

Campaign for Coverage<br />

Acces Medicaments<br />

2 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 3<br />

.ca<br />

The Atlantic Division worked hard <strong>to</strong> assure<br />

people through hundreds <strong>of</strong> phone calls, emails,<br />

presentations, and media interviews that we will<br />

continue searching for answers and that we will<br />

be there <strong>to</strong> provide support and information as it<br />

unfolds and we learn more about CCSVI.<br />

Through our commitment <strong>to</strong> CCSVI research, we<br />

hope <strong>to</strong> determine the relationship between<br />

CCSVI and MS. And we hope <strong>to</strong> further explore<br />

this new path <strong>of</strong> MS <strong>discovery</strong>.


Golfers chipping on <strong>to</strong> the green at<br />

the Drive <strong>to</strong> end MS <strong>to</strong>urnament.<br />

chapters<br />

In August, 112 golfers teed<br />

<strong>of</strong>f in the first-ever Drive <strong>to</strong><br />

end MS golf <strong>to</strong>urnament at<br />

Granite Springs Golf Club in<br />

Bayside, NS.<br />

Hosted by the Kinsmen and<br />

Kinette Clubs <strong>of</strong> the Halifax<br />

Regional Municipality, the<br />

<strong>to</strong>urnament was held during the<br />

Kin <strong>Canada</strong> National Convention<br />

with the proceeds coming <strong>to</strong> the<br />

MS <strong>Society</strong>, Atlantic Division.<br />

Over $22,000 was raised by our<br />

Kin friends and partners.<br />

DRIVE <strong>to</strong> end MS<br />

Chapters are the spirit, the grassroots <strong>of</strong><br />

the Atlantic Division where participants,<br />

volunteers, ambassadors and people living with<br />

multiple sclerosis come <strong>to</strong>gether.<br />

The Annual Chapter Conference was held in<br />

Halifax at the end <strong>of</strong> March where 14 delegates<br />

from around the region represented their Chapters<br />

with renewed energy, new ideas and enthusiasm<br />

for the MS <strong>Society</strong>’s mission.<br />

One <strong>of</strong> the goals <strong>of</strong> the conference was <strong>to</strong> create<br />

strong connections between people working at<br />

the grassroots <strong>of</strong> the MS <strong>Society</strong> and the work<br />

happening at all levels <strong>of</strong> the organization.<br />

A&W employees at Pleasant St. in Dartmouth<br />

cruisin’ for a<br />

cause<br />

Atlantic Canadians turned out for<br />

the second year in a row <strong>to</strong> support<br />

A&W’s Cruisin’ for a Cause where the<br />

restaurant donated $1 from every<br />

TeenBurger® sold on August 26th. In<br />

addition, paper car cu<strong>to</strong>uts were sold for<br />

$1 and coin box donations were collected<br />

throughout the month contributing <strong>to</strong><br />

over $700,000 raised nationwide.<br />

Brian Hansen, Chapter Chair, <strong>of</strong> the Annapolis Valley<br />

says as he was new <strong>to</strong> the MS <strong>Society</strong>, he wasn’t aware<br />

<strong>of</strong> the many areas or <strong>paths</strong> the <strong>Society</strong> had <strong>to</strong> support<br />

people with MS. The conference really helped <strong>to</strong> bring<br />

him clarity on the workings <strong>of</strong> the organization.<br />

“Finding out the extent and the breadth <strong>of</strong> things<br />

going on in fundraising was an eye opener for me,”<br />

says Brian. “I found it extremely satisfying <strong>to</strong> get <strong>to</strong><br />

meet the people. Putting a face <strong>to</strong> a name and finding<br />

out who’s in charge and who does what – I really<br />

appreciate all the work being done.”<br />

Pho<strong>to</strong>: Beverly Vokey, Susan Martin and Brian Hansen<br />

learning <strong>to</strong> help yourself<br />

and others<br />

Officially, Jeanne MacPhee <strong>of</strong> Nine Mile Creek, PEI,<br />

wasn’t diagnosed with Relapsing Remitting MS until<br />

1989, even though her first MS symp<strong>to</strong>ms began in 1974.<br />

Those were the days before MRIs and <strong>to</strong>day’s modern<br />

diagnostic <strong>to</strong>ols, making it difficult <strong>to</strong> diagnose, and even<br />

more difficult <strong>to</strong> cope with symp<strong>to</strong>ms from a disease that<br />

you don’t know you have. Finally getting a diagnosis was a<br />

relief. Having an MS self-help group <strong>to</strong> turn <strong>to</strong> for support,<br />

made all the difference.<br />

“When I first found out I had MS, the <strong>lead</strong>er <strong>of</strong> the self-<br />

help group was a life saver <strong>to</strong> me,” says Jeanne, who <strong>to</strong>ok<br />

over the group herself in the mid 1990s. “When she couldn’t<br />

do it anymore and no one else wanted <strong>to</strong> pick it up I said,<br />

‘Self-help is <strong>to</strong>o important. We can’t let it go.’”<br />

Now Jeanne <strong>lead</strong>s two self-help groups with partners,<br />

Joanne Daley and Lyn Cowperthwaite. One group is more<br />

structured and they review the latest news and materials<br />

from the MS <strong>Society</strong> hosting regular guest speakers. The<br />

other group is more <strong>of</strong> an afternoon drop-in group which<br />

better suits some people who may be <strong>to</strong>o tired by the end<br />

<strong>of</strong> the day <strong>to</strong> make an evening meeting, or perhaps need<br />

more flexibility. Jeanne says no matter which group she’s<br />

<strong>lead</strong>ing, the most important thing about self-help is that<br />

people have a place <strong>to</strong> talk, share, and learn from each<br />

other’s experiences.<br />

“We become very good friends,” says Jeanne. “A member<br />

came <strong>to</strong> the meeting one night who was very ill and her<br />

husband asked her why she was going. She said, ‘I just have<br />

<strong>to</strong> see my friends.’ Later, he <strong>to</strong>ld her he couldn’t believe how<br />

much better she was when she got home. That gives me<br />

motivation <strong>to</strong> keep doing it.”<br />

The <strong>paths</strong> Jeanne has followed with the MS <strong>Society</strong> have<br />

improved her quality <strong>of</strong> life and helped others. She sits<br />

on the Client Services Committee and has accessed the<br />

equipment and transportation funding programs. Through<br />

the Being Well with MS program, she and her husband,<br />

who is also her caregiver, were able <strong>to</strong> attend the show<br />

River Dance and have plans <strong>to</strong> use the program for more<br />

entertainment. Jeanne also participates in the MS Walk and<br />

has volunteered as a site manager for the MS Carnation<br />

Campaign for the past 16 years.<br />

Fulfilling the mission <strong>of</strong> Client Services<br />

in the Atlantic Division means directly<br />

helping people affected by multiple<br />

sclerosis. Education was the key area <strong>of</strong><br />

focus in 2010.<br />

• More than 30 self-help groups <strong>of</strong>fered<br />

peer support and self-education<br />

opportunities.<br />

• Self-Help Group Coordina<strong>to</strong>rs from PEI<br />

and NB attended a bi-annual workshop<br />

<strong>to</strong> receive skills training and collaborate<br />

with peers.<br />

• Our <strong>to</strong>ll-free information line answered<br />

an average <strong>of</strong> 11 calls per day related <strong>to</strong><br />

education, information and funding.<br />

• Formal education sessions were hosted<br />

in 28 communities throughout the four<br />

Atlantic Provinces via Telehealth Video<br />

Conferencing, community access cable,<br />

streaming live <strong>to</strong> the web and in person.<br />

• Applications <strong>to</strong> our funding programs<br />

increased by nearly one-quarter this year!<br />

• More than 150 new clients were approved<br />

for funding.<br />

Pho<strong>to</strong>: Self-Help Group Leaders Workshop<br />

Jeanne MacPhee seated far right.<br />

4 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 5


The endMS Summer School is a national<br />

interactive education program <strong>of</strong> the endMS<br />

Network designed <strong>to</strong> enhance knowledge, skill,<br />

and interest in MS research among trainees. In<br />

May, the 2010 endMS Summer School was hosted<br />

in Halifax by the Atlantic Regional Research and<br />

Training Centre at Dalhousie University.<br />

During the five-day endMS Summer School<br />

program, 40 graduate and post graduate trainees<br />

from across <strong>Canada</strong> were immersed in <strong>to</strong>pics<br />

ranging from epidemiology <strong>to</strong> neuropsychology,<br />

genetics and rehabilitation. Sessions were taught<br />

by <strong>lead</strong>ing Canadian MS researchers.<br />

Students at MRI Brain Imaging Analysis Workshop.<br />

The endMS Network is an initiative <strong>of</strong> the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> and the MS Scientific Research Foundation,<br />

funded by the MS <strong>Society</strong>’s $60 million endMS Campaign. It is a collaborative network <strong>of</strong> researchers and<br />

trainees formed <strong>to</strong> accelerate <strong>discovery</strong> in the field <strong>of</strong> multiple sclerosis <strong>to</strong> end MS in the shortest possible time.<br />

endMs summer school<br />

Members <strong>of</strong> the MS <strong>Society</strong>’s Halifax Chapter also<br />

participated by volunteering for the endMS Summer<br />

School workshop entitled, Patient and Family<br />

Perspectives. This gave students the opportunity<br />

<strong>to</strong> interact with people living with MS <strong>to</strong> learn<br />

more about their experiences and gain a deeper<br />

understanding <strong>of</strong> how research affects the lives <strong>of</strong><br />

those <strong>to</strong>uched by the disease.<br />

“I got <strong>to</strong> learn clinical research techniques which<br />

are complementary <strong>to</strong> my field in basic biomedical<br />

research. I also think it’s very special <strong>to</strong> get <strong>to</strong> talk <strong>to</strong><br />

MS patients. This not only taught me the patient’s<br />

perspective, but also motivated me <strong>to</strong> continue MS<br />

research.”<br />

endMS Summer School participant<br />

atlantic endMs research retreat<br />

In Oc<strong>to</strong>ber, the 2nd annual Atlantic endMS<br />

Research Retreat was held in Halifax. Trainees,<br />

clinicians, researchers and guests came <strong>to</strong>gether<br />

<strong>to</strong> share and discuss the findings <strong>of</strong> the Dr. T.J.<br />

(Jock) Murray endMS Summer Studentship Award<br />

recipients.<br />

As a key activity <strong>of</strong> the endMS Network, this<br />

competitive awards program is designed <strong>to</strong> foster<br />

interest in MS research and enable undergraduate<br />

and medical students <strong>to</strong> expand their knowledge<br />

and skill in the field <strong>of</strong> MS. It seems <strong>to</strong> be working.<br />

At the retreat, C.J. MacMillan, a Ph.D. student<br />

studying MS and stroke at Dalhousie University<br />

was inspired by a theory presented by Jacqueline<br />

Vincent, a summer studentship award recipient.<br />

2010 Ms rEsEarcH HigHLigHts<br />

• MS <strong>Society</strong> funds four Canadian CCSVI<br />

research projects for $700,000 <strong>to</strong><br />

determine the significance <strong>of</strong> CCSVI in<br />

the MS disease process.<br />

• Scientists map the points at which<br />

vitamin D interacts with our DNA and<br />

identified over two hundred genes that<br />

it directly influences including those<br />

related <strong>to</strong> MS. Evidence suggests that<br />

vitamin D deficiency during pregnancy<br />

and in early childhood may increase the<br />

risk <strong>of</strong> developing MS later in life.<br />

• Surprise <strong>discovery</strong> by young University<br />

<strong>of</strong> Edmon<strong>to</strong>n Ph.D. student opens new<br />

area <strong>of</strong> MS research. While studying the<br />

gene Calnexin, she discovers that when<br />

the gene is disabled in mice it produces<br />

similar mobility issues and tissue<br />

deformations around the animal’s nerves<br />

as those found in people with multiple<br />

sclerosis.<br />

Jacqueline presented data on MRI imaging in<br />

MS patients and how that correlates <strong>to</strong> cognitive<br />

measures <strong>of</strong> the disease and the changes she<br />

recognized in the thalmus.<br />

C.J. says although Jacqueline’s project was far out <strong>of</strong><br />

her field <strong>of</strong> research, the results really struck a chord<br />

with her and she has decided <strong>to</strong> investigate this<br />

theory in her own work.<br />

“The endMS network has played a critical role<br />

in helping me establish connections with future<br />

colleagues, and senior researchers who have<br />

been assisting me in expanding my view <strong>of</strong> what<br />

MS research is, and how my research can fit in a<br />

productive manner,” says C.J.<br />

Ms rEsEarcH<br />

arEas <strong>of</strong> focus<br />

• Myelin Repair<br />

• Virology<br />

• Paediatric MS<br />

• MRI Studies<br />

• Immunology<br />

• Health & Treatment<br />

• Genetics<br />

• Bone Marrow Transplantation<br />

• CCSVI and MS<br />

6 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 7


Sandra Wood was presented with an award in<br />

recognition <strong>of</strong> 20 years <strong>of</strong> dedicated service at<br />

the RONA MS Bike Tour in July.<br />

Sandy Wood started volunteering with the Nova<br />

Scotia Bike Tour in 1991 and her husband Woody<br />

participated as a cyclist. To bring spirit and support<br />

<strong>to</strong> the <strong>to</strong>ur, Sandy made a cardboard sign <strong>to</strong> hold<br />

up <strong>to</strong> the riders that read, ‘I have MS. Thank you for<br />

your support.’<br />

She used that sign for a few years until she upped<br />

the ante by <strong>of</strong>fering candy <strong>to</strong> the cyclists while<br />

volunteering for the first time at a rest s<strong>to</strong>p, and<br />

from there her legacy began. Soon there were<br />

themed rest s<strong>to</strong>ps with decorations for Santa’s Work<br />

Shop and Beach Fun. Politics even crept in<strong>to</strong> her<br />

themes with a special <strong>Canada</strong> Day port-a-pottie<br />

“Seat in Parliament.” It’s become a covert operation<br />

each year and no one, not even family are in on the<br />

secret theme.<br />

For Sandy and her family, involvement in the MS<br />

Bike Tour and with the MS <strong>Society</strong> has always been<br />

a family affair. Her daughter Denise Corkum always<br />

volunteers at the rest s<strong>to</strong>p with her, Woody her<br />

husband cycles, and we think a few child labour<br />

laws may have been broken over the years as the<br />

grandkids were recruited <strong>to</strong> help out at rather<br />

young ages.<br />

“I remember arriving at the s<strong>to</strong>p when I was<br />

little and so excited <strong>to</strong> eat the treats and help<br />

out,” says Jennifer Corkum, one <strong>of</strong> Sandy’s five<br />

granddaughters.<br />

8 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada<br />

rona Ms Bike <strong>to</strong>ur<br />

The RONA MS Bike Tours in Nova Scotia and New Brunswick were the highlight <strong>of</strong> the summer,<br />

collectively raising over $465,000. Over 600 participants and volunteers <strong>to</strong>ok part this year<br />

either by making a commitment <strong>to</strong> raise funds and cycle, or <strong>to</strong> flag, build, cook, fix, pedal,<br />

drive, count, feed and cheer for the cyclists. Whatever path you chose, thank you.<br />

it’s a Family affair<br />

Denise Corkum and Sandy Wood<br />

“When I was old enough <strong>to</strong> ride my bike in the <strong>to</strong>ur<br />

with my Granddad, I remember how thrilled I was <strong>to</strong><br />

have Nanny’s support when I coasted in<strong>to</strong> her rest<br />

s<strong>to</strong>p, hot and tired.”<br />

Jennifer rides with Team Cycledelics, who raised over<br />

$22,000 this year, but she’s also been involved with<br />

other activities at the MS <strong>Society</strong> for many years.<br />

“When I was little, Nanny would bribe me with<br />

a lobster supper for my time volunteered selling<br />

carnations in the mall,” says Jennifer.<br />

It is immediately apparent <strong>to</strong> anyone who’s met the<br />

Wood family that they have a great sense <strong>of</strong> humour<br />

and a tremendous dedication <strong>to</strong> helping those with<br />

MS through their support <strong>of</strong> the Nova Scotia Bike<br />

Tour.<br />

“We’ve had lots <strong>of</strong> fun and have made many<br />

memories over the past 20 years from the bike <strong>to</strong>ur,”<br />

says daughter Denise. “It’s mom’s favourite weekend<br />

<strong>of</strong> the year.”<br />

Ms Walk<br />

It is inspiring. Each year, participants from communities across Atlantic <strong>Canada</strong><br />

are working harder and – even in <strong>to</strong>ugh times – continuing <strong>to</strong> raise more each year<br />

at the MS Walk. Over $620,000 was raised this year by 2500 Atlantic Canadians<br />

for MS research and services making every step matter.<br />

lina’s Best<br />

She was at the first Walk in Saint John in 1999. Eleven years later,<br />

Lina Toole has raised almost $50,000 for MS – an impressive<br />

accomplishment. At 68, Lina prefers <strong>to</strong> raise funds the old-fashioned<br />

way, by beating the streets and getting pledges from family, friends,<br />

and businesses in her community.<br />

“I go see the people I call my regulars. They know it must be spring<br />

when they see me coming,” chuckles Lina. “I enjoy the Walk and the<br />

people. And I relish those few minutes we have with friends we only<br />

get <strong>to</strong> see once a year. I think it’s important.”<br />

But, the reason Lina does all <strong>of</strong> this, hits a lot closer <strong>to</strong> home. Her two<br />

daughters, Susan and Catherine, were both diagnosed with MS just six<br />

months apart at the ages <strong>of</strong> 25 and 29 respectively. The first diagnosis<br />

came in July 1998 and the second in January 1999. Both women had<br />

very young children at home at the time and it was difficult for the<br />

family <strong>to</strong> process so much at once, but Lina <strong>to</strong>ok the path <strong>of</strong> action<br />

becoming Saint John’s MS Walk Top Fundraiser for more than a decade.<br />

“I hope for the cure so that MS can be eradicated before my granddaughters get<br />

<strong>to</strong> an age where it could happen again,” says Lina. “I just do the best I can.”<br />

you can count on Us<br />

Lina second from left with her<br />

daughter and granddaughters<br />

Every year, volunteers from the Royal Bank <strong>of</strong> <strong>Canada</strong> show up at<br />

MS Walks across the Atlantic Division <strong>to</strong> help with registration and<br />

the banking <strong>of</strong> participant pledges. It’s a lot <strong>of</strong> paperwork and<br />

without the sponsorship <strong>of</strong> the Royal Bank and their employees –<br />

we might still be rolling pennies!<br />

In a further show <strong>of</strong> support, RBC Manager <strong>of</strong> Client Care, Joanne<br />

Stevenson from St. John’s applied for an internal program whereby<br />

the company donates cash <strong>to</strong> a charity based on 10 or more employees<br />

volunteering for the charity on a weekend. The application was<br />

approved and a cheque for $1,000 was gratefully received by the MS<br />

<strong>Society</strong>. Thank you for exploring another path for your generosity.<br />

Pho<strong>to</strong>s Top: RBC volunteers show their spirit in Charlotte<strong>to</strong>wn. Below (l-r): Sheri<br />

Rumbolt, Tammy Murphy, Joanne Stevenson and Sharon Locke present Atlantic<br />

Division, Honourary Board Member, Mike Kennedy with $1,000 cheque in St. John’s.<br />

atlantic division annual report 2010 9


treasurer’s report<br />

It gives me great pleasure <strong>to</strong> present the 2010 financial results for the Atlantic Division <strong>of</strong> the <strong>Multiple</strong><br />

<strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />

The Division raised $1.8 million in revenue from all sources in 2010. We are extremely grateful for these<br />

excellent results that could only be achieved through the hard work and dedication <strong>of</strong> our volunteers,<br />

participants, donors and staff.<br />

As a <strong>Society</strong>, we strive <strong>to</strong> achieve balanced spending between research and client service expenditures.<br />

The money raised this year enabled the Division <strong>to</strong> contribute over $222,000 <strong>to</strong> national research<br />

programs and also fund another successful equipment provision program.<br />

The Division remains on a very solid financial foundation, a foundation from which we will bring hope <strong>to</strong><br />

people living with multiple sclerosis every day.<br />

Respectfully submitted,<br />

Sean FitzGerald, Secretary Treasurer<br />

Atlantic Division Board <strong>of</strong> Direc<strong>to</strong>rs<br />

Balance Sheet (unaudited)<br />

As at December 31, 2010<br />

Balance Sheet (unaudited)<br />

Balance sheet<br />

As at December As at December 31, 2010 31, 2010<br />

Assets<br />

December 31<br />

2010<br />

December $ 31<br />

2010<br />

$<br />

December 31<br />

2009<br />

December $ 31<br />

2009<br />

$<br />

August 31<br />

2009<br />

August $ 31<br />

2009<br />

$<br />

Current Assets assets<br />

Cash 416,104 170,044 715,375<br />

Marketable Current assets securities<br />

Accounts Cash receivable<br />

Due Marketable from the securities National Office<br />

Prepaid Accounts expenses receivable and supplies<br />

45,455<br />

42,804 416,104<br />

10,019 45,455<br />

21,754 42,804<br />

101,653<br />

61,304 170,044<br />

54,491 101,653<br />

20,024 61,304<br />

98,147<br />

68,842 715,375<br />

34,112 98,147<br />

14,743 68,842<br />

Due from the National Office<br />

Prepaid expenses and supplies<br />

10,019<br />

536,136 21,754<br />

54,491<br />

407,516 20,024<br />

34,112<br />

931,219 14,743<br />

Capital assets 50,667 536,136 407,516 217 931,219 369<br />

Capital assets 586,803 50,667 407,733 217 931,588 369<br />

Liabilities<br />

586,803 407,733 931,588<br />

Current Liabilities liabilities<br />

Accounts payable and accrued liabilities 62,756 34,531 128,375<br />

Due Current <strong>to</strong> the National liabilities Office<br />

Deferred Accounts revenue payable and accrued liabilities<br />

166,258<br />

62,756 -<br />

15,413<br />

34,531 -<br />

227,119<br />

15,000 128,375<br />

Due <strong>to</strong> the National Office<br />

Deferred revenue<br />

166,258<br />

229,014 -<br />

15,413<br />

49,944 -<br />

227,119<br />

370,494 15,000<br />

Net assets<br />

229,014 49,944 370,494<br />

Unrestricted Net assets<br />

357,789 357,789 561,094<br />

Unrestricted 586,803 357,789 407,733 357,789 931,588 561,094<br />

Approved by the Board <strong>of</strong> Direc<strong>to</strong>rs<br />

586,803 407,733 931,588<br />

Direc<strong>to</strong>r Direc<strong>to</strong>r<br />

Charles J. Ford Sean FitzGerald<br />

statement <strong>of</strong> revenue and expenditures and changes in net assets<br />

For the year ended December 31, 2010<br />

Statement <strong>of</strong> Revenue and Expenditures (unaudited)<br />

For the year ended December 31, 2010<br />

10 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 11<br />

Revenue<br />

December 31<br />

2010<br />

$<br />

December 31<br />

2009<br />

$<br />

August 31<br />

2009<br />

$<br />

Leadership Giving<br />

endMS Research and Training Network 71,581 24,075 59,379<br />

Individual giving 81,804 33,229 69,566<br />

Corporate giving and major donors 82,829 7,726 61,447<br />

Bequest revenue 46,828 500 67,358<br />

Grants from pharmaceutical companies 29,800 10,000 23,400<br />

Grants from governments - - 2,010<br />

Other grant revenue - 7,000 8,250<br />

Total revenue from <strong>lead</strong>ership giving activity 312,842 82,530 291,410<br />

Community based fundraising events 1,087,366 18,927 1,144,369<br />

CCSVI research 1,124 - -<br />

Corporate Partnerships and third party events 68,711 52,781 39,481<br />

Sale <strong>of</strong> goods 163,358 176,615 177,345<br />

Public awareness activities 89,932 235 129,395<br />

United Way and Health Partners 49,019 2,860 51,880<br />

Investment Income 11,947 4,196 6,067<br />

Memberships and Miscellaneous 1,410 990 1,210<br />

Total Revenue 1,785,709 339,134 1,841,157<br />

Direct Fundraising Expenditures<br />

Leadership giving 89,693 33,381 94,796<br />

Community based fundraising 411,721 92,387 494,252<br />

Corporate partnerships and third-party events 16,149 5,971 8,039<br />

Cost <strong>of</strong> goods sold 112,409 118,536 125,482<br />

Total Direct Fundraising Expenditures 629,972 250,275 722,569<br />

Funds Available for Programs and Support Activities 1,155,737 88,859 1,118,588<br />

Expenditures<br />

Client Services 321,247 97,529 279,267<br />

Research 150,316 1,442 201,497<br />

Research – CCSVI 1,124 - -<br />

Research–restricted for endMS Research and Training network 71,581 24,075 84,333<br />

Public education and awareness 202,639 47,432 194,934<br />

Chapter and volunteer support and development 134,358 41,087 141,309<br />

Government and community relations 51,706 16,025 44,167<br />

Administration 179,496 55,991 164,771<br />

Indirect fundraising 43,270 8,583 8,310<br />

Total Expenditures 1,155,737 292,164 1,118,588<br />

Excess (deficiency) <strong>of</strong> revenue over expenditures - (203,305) -<br />

Unrestricted net assets – beginning <strong>of</strong> period 357,789 561,094 561,094<br />

Unrestricted net assets – end <strong>of</strong> period 357,789 357,789 561,094<br />

Note: The MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> changed its fiscal year-end from August 31 st <strong>to</strong> December 31 st effective 2009.<br />

The column titled December 31, 2009 represents the 4 month period from September <strong>to</strong> December 2009.<br />

The column titled August 31, 2009 represents the previous full fiscal year from September 2008 <strong>to</strong> August 2009.


Friends <strong>of</strong> the atlantic division<br />

DivisionaL PartnErs<br />

rona Ms biKE <strong>to</strong>ur sPonsors<br />

national title sponsor<br />

RONA<br />

national sponsors<br />

Atlas <strong>Canada</strong><br />

Brinks Inc.<br />

Louis Garneau<br />

Pedal Magazine<br />

Thule<br />

Big Dog 100.9<br />

Cat Country 99.5<br />

CKEC 94.1<br />

CHSJ Country 94.1 FM<br />

endMs caMPaign suPPortErs<br />

Knowledge circle<br />

$100,000 <strong>to</strong> $249,999<br />

The John and Judy Bragg Family Foundation<br />

KPMG Foundation<br />

Patron<br />

$50,000 <strong>to</strong> $99,999<br />

Jazz Air LP<br />

Leader<br />

$10,000 <strong>to</strong> $24,999<br />

Joe Randell<br />

Teva Neuroscience <strong>Canada</strong><br />

inves<strong>to</strong>r<br />

$5,000 <strong>to</strong> $9,999<br />

Anonymous<br />

Charles J. Ford<br />

Joan MacKinnon<br />

Louis J. Maroun<br />

Lisa & Roger Park<br />

Dena Simon<br />

Waterbury New<strong>to</strong>n<br />

<strong>to</strong>ur sponsors<br />

Cyclesmith<br />

G. E. Barbour Inc.<br />

Premiere Van Lines<br />

C103 & XL 96.9<br />

FRED FM<br />

KOOL 96.5<br />

K-Rock 105.5<br />

Media sponsors<br />

MAX 98.3<br />

Ocean 100.3<br />

Q104<br />

XFM 98.9<br />

Ms WaLK sPonsors<br />

Presenting sponsor<br />

Medavie Blue Cross<br />

national sponsors<br />

Brinks Inc.<br />

Student Works Painting<br />

Chatelaine<br />

97.3 The Wave<br />

590 VOCM<br />

Cape Bre<strong>to</strong>n Post<br />

The Daily Gleaner<br />

regional sponsors<br />

Kin <strong>Canada</strong> Atlantic District 7<br />

Premiere Van Lines<br />

Purola<strong>to</strong>r Courier Ltd.<br />

RBC Financial Group<br />

Walk sponsors<br />

Subway<br />

Tim Hor<strong>to</strong>ns<br />

The Guardian<br />

The News<br />

Metro Halifax<br />

The Miramichi Leader<br />

supporter<br />

$1,000 <strong>to</strong> $4,999<br />

Mitchell McConnell Insurance Ltd.<br />

Dr. Jock & Janet Murray<br />

Jonathan Robbins<br />

friend<br />

$500 - $999<br />

Anonymous (2)<br />

Peter & Dana Burns<br />

Sharon Marie Boutin<br />

Frederic<strong>to</strong>n Church <strong>of</strong> Christ Congregation<br />

Joanna Hamil<strong>to</strong>n<br />

Scott & Trish Murray<br />

Craig Newell<br />

Paul Scott<br />

The Telegram<br />

The Times & Transcript<br />

Truro Daily News<br />

The Western Star<br />

atlantic division supporters<br />

$10,000 - $30,000<br />

Estate <strong>of</strong> Janet Louise Cook<br />

Pfizer <strong>Canada</strong> Inc.<br />

Estate <strong>of</strong> Irene Rioux<br />

$5,000 - $9,999<br />

Anonymous<br />

Estate <strong>of</strong> Gordon Butler<br />

The Employees <strong>of</strong> ING<br />

Real Estate<br />

L D Pattison<br />

Dr. Ed Pineau<br />

$2,500 - $4,999<br />

Ambir Solutions<br />

Biogen Idec <strong>Canada</strong> Inc.<br />

The GlaxoSmithKline<br />

Foundation<br />

The Greater Saint John<br />

Community Foundation<br />

Investment Planning Counsel<br />

<strong>of</strong> <strong>Canada</strong> Ltd.<br />

Louis J. Maroun<br />

Medavie Blue Cross<br />

Scotiabank<br />

$1,000 - $2,499<br />

David Arsenault<br />

Lloyd & Marie Barbara<br />

Bedford Open Golf<br />

Tournament<br />

BMR Structural Engineering<br />

Brian Munro Pr<strong>of</strong>essional<br />

Corporation<br />

Myles Byrne<br />

Caltex Energy Inc.<br />

Ronald H. Cameron<br />

John Chapman<br />

Susan Connor<br />

Shane Dafoe<br />

Dillon Consulting Limited<br />

Estate <strong>of</strong> Mary Edna Dysart<br />

Edmonds Landscape and<br />

Construction Services Ltd.<br />

Elizabeth A. Wozniak Inc.<br />

EMD Serono <strong>Canada</strong> Inc.<br />

EnCana Corporation<br />

Estate <strong>of</strong> Margaret Enman<br />

David Fountain<br />

Frederic<strong>to</strong>n Community<br />

Foundation Inc.<br />

G. E. Barbour Inc.<br />

Gap Foundation Gift Match<br />

Program<br />

Andrew Gittens<br />

Going Mobile Wireless<br />

Graham Munro Charitable<br />

Foundation<br />

Graybar <strong>Canada</strong> Ltd.<br />

Groupe BMR Inc.<br />

Halifax Kinsmen Club<br />

Stephen Halsall<br />

Louise Hartley<br />

Tony Hebert<br />

Harvey Humby<br />

Iona Resources Holdings<br />

Limited<br />

Island View Lions Club<br />

Labatt Brewing Co Ltd.<br />

Law<strong>to</strong>ns Drugs Head Office<br />

Dan Macdonald<br />

Dean MacDonald<br />

P Donald Macdonald<br />

Peter MacDowell<br />

Joan MacKinnon<br />

Archibald McLean<br />

Heidi Mor<strong>to</strong>n<br />

Greg Mullane<br />

Peter Munro<br />

Jeff Munroe<br />

Nova Agri Associates Ltd.<br />

Bill Oldford<br />

O’Neill Foundation Inc.<br />

Beth Peterson<br />

RBC Foundation<br />

Alex Ritchie<br />

Alison Robichaud<br />

RONA Halifax<br />

Valerie Russell<br />

Paul Saulnier<br />

Theresa Saulnier<br />

Sisters <strong>of</strong> Mercy<br />

Newfoundland<br />

William Skinner<br />

Sobeys<br />

Bud and Doe Stewart<br />

Estate <strong>of</strong> Audrey May Trainor<br />

$500 - $999<br />

Dr. Gary Altenkirk<br />

Alward Charitable<br />

Foundation Inc.<br />

Famille Baril<br />

Edward Bates<br />

Margaret Beattie<br />

Duncan Beveridge<br />

Robert Beveridge<br />

William Beveridge<br />

Melvin Borean<br />

Heather Brennan<br />

Helena Breon<br />

Charles Broderick<br />

Thank You for your Generosity<br />

Michael Brown<br />

Brunswick Valley Lumber Inc.<br />

Bunting’s Grocery Ltd.<br />

Peter and Dana Burns<br />

Jude Byrne<br />

Capital District Health<br />

Authority<br />

Carmie’s Pre-School and<br />

Daycare Center<br />

CBJ Inspection<br />

Kevin Christie<br />

Nancy Comeau<br />

Conseros S<strong>of</strong>tware Inc.<br />

Dartmouth Kinsmen Club<br />

Dexter Construction<br />

Company Ltd.<br />

Ernest DeYoung<br />

Viola Doncaster<br />

Caroline Doyle<br />

Dre Hélene Huard<br />

Corporation<br />

Pr<strong>of</strong>essionnelle Inc.<br />

Ellsworth Estates<br />

Jamie Emberley<br />

Emergency Medical Care<br />

Engent, Inc.<br />

Elisabeth Fall<br />

Anonymous<br />

Laura-Lea Fisher<br />

Ford’s Apothecary<br />

Forest Hills School<br />

Stéphane Fortin<br />

Stefan Furey<br />

Paul Gaudet<br />

Frances Geitzler<br />

Peter Giberson<br />

Gavin Giles<br />

Jim and Margaret Gillis<br />

Thomas Hart<br />

Patricia Hastey<br />

Robert Hatheway<br />

Terry Healey<br />

Margaret Higgins<br />

Susan Higson<br />

Jessica Houtsma<br />

Iron Mountain <strong>Canada</strong> Corp.<br />

Wins<strong>to</strong>n Kelloway<br />

James Kennedy<br />

Raymond Kierstead<br />

David L. Knight<br />

Lahave Seafoods Limited<br />

Mike Lovegrove<br />

Eileen MacDonald<br />

Joseph Macdonald<br />

Matt Mackenzie<br />

A.J. MacLean<br />

Greg MacNeill<br />

Managed Health Care<br />

Services Inc.<br />

Wayne Mattice<br />

Mills Heavy Hauling Ltd.<br />

Bruce Mitham<br />

Mit<strong>to</strong>n Hill Enterprises<br />

Limited<br />

Lenore Mombourquette<br />

Isaac Mosher<br />

Maureen Mueller<br />

Alex Mulford<br />

Jennifer Mullane<br />

Jan Murray<br />

Owen Myers<br />

Graham Oakley<br />

Anonymous<br />

Wayne Pike<br />

L. Dawn Porter<br />

Potash Corporation <strong>of</strong><br />

Saskatchewan Inc.<br />

Quispamsis Elementary<br />

School<br />

Douglas Reid<br />

Robin LeBlanc MD Inc.<br />

Serge Roy<br />

Royal Flush Services Ltd.<br />

Sampling Technologies<br />

Maurice Sanford<br />

Scott Blois Au<strong>to</strong>motive Ltd.<br />

Dena Simon<br />

Rebecca Simpson<br />

Cathy Smith<br />

Standard Life Assurance<br />

Company <strong>of</strong> <strong>Canada</strong><br />

Stanfield’s Limited<br />

Brad Stanley<br />

Mark Stewart<br />

Tim S<strong>to</strong>ne<br />

S<strong>to</strong>neworx Design Inc.<br />

Michelle Sullivan<br />

Sun Life Financial<br />

Anonymous<br />

Terrain Group Inc.<br />

The Kings Mutual Insurance<br />

Company<br />

Bruce Towler<br />

United Commercial Travelers<br />

<strong>of</strong> America, Jack Kidd<br />

Counsel #755<br />

Peter Van Harmelen<br />

Kenk Van Leeuwen<br />

Terry Wadden<br />

Walmart <strong>Canada</strong> Corp.<br />

WBLI Chartered Accountants<br />

WTF Holdings Ltd.<br />

12 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 13


<strong>Multiple</strong> sclerosis society <strong>of</strong> canada, atlantic Division<br />

109 Ilsley Avenue Unit 1, Dartmouth, NS B3B 1S8<br />

Tel: (902) 468-8230 Fax: (902) 468-5328 Toll-free: 1-800-268-7582<br />

info.atlantic@mssociety.ca www.mssociety.ca

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