Many paths lead to discovery - Multiple Sclerosis Society of Canada
Many paths lead to discovery - Multiple Sclerosis Society of Canada
Many paths lead to discovery - Multiple Sclerosis Society of Canada
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2010 atlantic division annual report<br />
<strong>Many</strong> <strong>paths</strong> <strong>lead</strong> <strong>to</strong><br />
<strong>discovery</strong>
Board <strong>of</strong> direc<strong>to</strong>rs<br />
ExEcutivE<br />
Charles J. Ford, Chair<br />
Chris Bourque, Vice-Chair &<br />
Acting Chair, Client Services Committee<br />
Sylvia MacVey, Past-Chair<br />
Sean FitzGerald, Secretary & Treasurer<br />
MEMbErs at LargE<br />
Dr. Gary Altenkirk<br />
Rachel Cameron<br />
Catherine Edward<br />
Joan MacKinnon<br />
Steve Merrill<br />
Byron Murphy<br />
Lisa Park<br />
Liz Wozniak<br />
Honourary LEgaL counsEL<br />
Gavin Giles, Q.C.<br />
Honourary DirEc<strong>to</strong>r<br />
Michael Kennedy<br />
Kin canaDa Liaison<br />
Pat King<br />
Carol MacDonald<br />
staff<br />
PrEsiDEnt<br />
Dena Simon<br />
DirEc<strong>to</strong>rs<br />
Tim Dunlop<br />
Monica Jordan<br />
Sandra MacLean<br />
Jessesar MacNeil<br />
Peter Van Harmelen<br />
ManagErs<br />
Starr Amey<br />
Joanna Hamil<strong>to</strong>n<br />
coorDina<strong>to</strong>rs<br />
Anita Conrad<br />
Vanessa Linehan<br />
Daniel Robinson<br />
Valerie Wilson<br />
aDMinistra<strong>to</strong>r<br />
Ann Thouless<br />
our Mission<br />
To be a <strong>lead</strong>er in finding a cure for multiple sclerosis<br />
and enabling people affected by MS <strong>to</strong> enhance their quality <strong>of</strong> life.<br />
Message from the chair<br />
“What an incredible and<br />
challenging year for the<br />
MS community. It has surely<br />
been one <strong>of</strong> the busiest in<br />
Atlantic Division his<strong>to</strong>ry.”<br />
In 2010, we focused on bringing MS education<br />
sessions <strong>to</strong> as many communities as possible in<br />
Atlantic <strong>Canada</strong>. We continued <strong>to</strong> make good progress<br />
with the work <strong>of</strong> the endMS campaign allowing<br />
researchers in the Atlantic endMS Regional Research<br />
and Training Centre <strong>to</strong> collaborate on new areas <strong>of</strong><br />
MS. We launched an advocacy campaign in New<br />
Brunswick <strong>to</strong> obtain catastrophic drug coverage for MS<br />
therapies. We’ve worked hard <strong>to</strong> ensure our continued<br />
success in fundraising through solid planning, diverse<br />
revenue streams and donor stewardship. And, we have<br />
experienced an unparalleled increase in communication<br />
between the <strong>Society</strong> and the public with MS awareness<br />
at an all-time high.<br />
With the advent <strong>of</strong> a new MS theory called chronic<br />
cerebrospinal venous insufficiency (CCSVI), the MS<br />
<strong>Society</strong> responded by providing immediate funding<br />
<strong>to</strong> study the connection between CCSVI and MS.<br />
Not everyone agreed with this approach. We must<br />
acknowledge these disagreements and understand<br />
why they exist remembering we are all trying <strong>to</strong> reach<br />
the same goal. At the same time, we must recognize<br />
the possibilities that lay before us as we put more time,<br />
attention and money in<strong>to</strong> research that will find a cure.<br />
The differing beliefs arising from the CCSVI theory have<br />
the potential <strong>to</strong> create permanent disharmony and<br />
division. Instead, let us be willing <strong>to</strong> listen <strong>to</strong> each other<br />
<strong>to</strong> find the best way <strong>to</strong> support all members <strong>of</strong> the MS<br />
community.<br />
There are many <strong>paths</strong> we follow <strong>to</strong> help people with MS.<br />
Through client support, advocacy, education, research,<br />
and by raising the funds that allow us <strong>to</strong> do our work,<br />
we strive <strong>to</strong> fulfill as many areas <strong>of</strong> need as we can, while<br />
continuing <strong>to</strong> explore new theories which may <strong>lead</strong> <strong>to</strong> a<br />
cure. <strong>Many</strong> <strong>paths</strong> <strong>lead</strong> <strong>to</strong> <strong>discovery</strong>, and it may just be an<br />
unexpected path that <strong>lead</strong>s us <strong>to</strong> end MS.<br />
On a personal note, as my time as Chair <strong>of</strong> this Board<br />
comes <strong>to</strong> an end, I realize I have gained more personally<br />
than I have given. I also recognize that I have the<br />
opportunity <strong>to</strong> continue <strong>to</strong> support the MS community<br />
in many ways. I will do so in the hope that one day, I can<br />
truly give as much as I have received. I want <strong>to</strong> thank all<br />
<strong>of</strong> my colleagues on the Board over the past 9.5 years for<br />
their collegiality, support and enthusiasm. I have always<br />
been proud <strong>to</strong> be your colleague. To the staff <strong>of</strong> the<br />
Atlantic Division, you have never failed <strong>to</strong> inspire me. You<br />
are the heart and soul <strong>of</strong> this organization. I hope that I<br />
have accomplished what I set out <strong>to</strong> do as Chair, namely,<br />
<strong>to</strong> enable you all <strong>to</strong> work your magic on a daily basis.<br />
I want <strong>to</strong> say a final thank you <strong>to</strong> all the organizations<br />
and all the people who have so generously given <strong>of</strong><br />
their time and personal resources in the fight <strong>to</strong> end this<br />
disease. With your continued support, we will end MS.<br />
Respectfully Submitted,<br />
Charles J. Ford, Chair<br />
1 <strong>Multiple</strong> sclerosis society <strong>of</strong> <strong>of</strong> canada<br />
atlantic division annual report 2010 1
scott Gillis award<br />
Scott Gillis was a dedicated volunteer who<br />
demonstrated <strong>lead</strong>ership and personal<br />
commitment <strong>to</strong> the Atlantic Division <strong>of</strong> the MS<br />
<strong>Society</strong> <strong>of</strong> <strong>Canada</strong>. He had a deep understanding<br />
<strong>of</strong> the needs <strong>of</strong> people affected by multiple<br />
sclerosis and <strong>of</strong> the many issues facing people<br />
with disabilities.<br />
Diagnosed with MS in his late twenties, Scott<br />
became committed <strong>to</strong> representing people living<br />
with disabilities. As a lawyer, Scott defended the<br />
rights <strong>of</strong> persons with disabilities. As an active<br />
community member, Scott chaired and served on<br />
many boards and committees for organizations<br />
such as Big Brothers Big Sisters, Valley Disability<br />
Partnership <strong>Society</strong>, Brain Injury Association <strong>of</strong><br />
Nova Scotia, The Disabled United for Equality <strong>of</strong><br />
Life, Nova Scotia League for Equal Opportunity<br />
and the list goes on.<br />
Scott served on the MS <strong>Society</strong>, Atlantic Division<br />
Board <strong>of</strong> Direc<strong>to</strong>rs from 1998 until his death in<br />
May 2010. During that time he served as legal<br />
counsel, and as a member <strong>of</strong> the Executive<br />
Committee and was involved in fundraising,<br />
government relations and client services.<br />
His encouragement radiated and motivated<br />
staff, volunteers and participants . . .<br />
honouring<br />
a Friend<br />
As Chair <strong>of</strong> the Social Action Committee, he<br />
successfully lobbied the Nova Scotia Government<br />
for drug coverage for the four available MS drug<br />
therapies. Most recently, Scott was the Chair <strong>of</strong><br />
the Client Services Committee where under his<br />
<strong>lead</strong>ership, funding programs were reviewed <strong>to</strong><br />
ensure accessibility and sustainability, and Being<br />
Well with MS – a unique funding program in<br />
<strong>Canada</strong> – was launched.<br />
Scott inspired people with his positive outlook<br />
and accomplishments, and left them challenged<br />
<strong>to</strong> do more in their own lives. His encouragement<br />
radiated and motivated staff, volunteers and<br />
participants <strong>to</strong> work <strong>to</strong>gether <strong>to</strong> achieve the<br />
mission <strong>of</strong> the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />
In November, the Atlantic Division Board <strong>of</strong><br />
Direc<strong>to</strong>rs unanimously agreed <strong>to</strong> establish an<br />
award <strong>to</strong> celebrate and remember the positive<br />
impact that Scott had on every life he <strong>to</strong>uched.<br />
The Scott Gillis Award will be presented annually<br />
<strong>to</strong> a person who exemplifies Scott’s remarkable<br />
traits.<br />
advocacy<br />
New Brunswick is one <strong>of</strong> only two<br />
provinces in <strong>Canada</strong> that does not<br />
have coverage for catastrophic drugs<br />
for its residents. With the costs <strong>of</strong> MS<br />
therapies ranging from $13,000 <strong>to</strong> $40,000<br />
per year, they are unaffordable for many<br />
families, even those with private insurance.<br />
Anecdotes from people with MS needing<br />
<strong>to</strong> make the choice between necessary MS<br />
treatments and the basic necessities <strong>of</strong> life,<br />
signaled a need for change.<br />
In the summer, the Atlantic Division<br />
launched the Campaign for Coverage<br />
website, <strong>to</strong> facilitate an online letter writing<br />
campaign resulting in 500 electronic and<br />
hard copy letters sent <strong>to</strong> the Minister <strong>of</strong><br />
Health.<br />
ccsvi<br />
For many people, the idea <strong>of</strong> chronic<br />
cerebrospinal venous insufficiency (CCSVI)<br />
was a new sign <strong>of</strong> hope – a fairly simple idea<br />
<strong>to</strong> explain MS – that created great interest in<br />
the media and in the MS community. People<br />
looked <strong>to</strong> the MS <strong>Society</strong> for information<br />
and answers that we simply did not have.<br />
For some, the MS <strong>Society</strong> message <strong>of</strong> hope<br />
mixed with caution, and the need for further<br />
research, was disappointing.<br />
It’s time for action!<br />
Meetings were held with Government<br />
representatives and a media campaign was<br />
conducted in newspapers throughout the<br />
province. As a result, the promise <strong>of</strong> coverage<br />
became part <strong>of</strong> the Liberal and Progressive<br />
Conservative Party platforms during the<br />
September provincial election in New Brunswick.<br />
“We’re pleased the Government has<br />
acknowledged the lack <strong>of</strong> catastrophic drug<br />
coverage in New Brunswick is an issue and our<br />
voice is being heard,” says Steve Merrill, Chair<br />
<strong>of</strong> the Atlantic Division’s Government Relations<br />
Committee. “We will continue <strong>to</strong> press the<br />
Government <strong>of</strong> New Brunswick until coverage is<br />
made available for all residents.”<br />
Campaign for Coverage<br />
Acces Medicaments<br />
2 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 3<br />
.ca<br />
The Atlantic Division worked hard <strong>to</strong> assure<br />
people through hundreds <strong>of</strong> phone calls, emails,<br />
presentations, and media interviews that we will<br />
continue searching for answers and that we will<br />
be there <strong>to</strong> provide support and information as it<br />
unfolds and we learn more about CCSVI.<br />
Through our commitment <strong>to</strong> CCSVI research, we<br />
hope <strong>to</strong> determine the relationship between<br />
CCSVI and MS. And we hope <strong>to</strong> further explore<br />
this new path <strong>of</strong> MS <strong>discovery</strong>.
Golfers chipping on <strong>to</strong> the green at<br />
the Drive <strong>to</strong> end MS <strong>to</strong>urnament.<br />
chapters<br />
In August, 112 golfers teed<br />
<strong>of</strong>f in the first-ever Drive <strong>to</strong><br />
end MS golf <strong>to</strong>urnament at<br />
Granite Springs Golf Club in<br />
Bayside, NS.<br />
Hosted by the Kinsmen and<br />
Kinette Clubs <strong>of</strong> the Halifax<br />
Regional Municipality, the<br />
<strong>to</strong>urnament was held during the<br />
Kin <strong>Canada</strong> National Convention<br />
with the proceeds coming <strong>to</strong> the<br />
MS <strong>Society</strong>, Atlantic Division.<br />
Over $22,000 was raised by our<br />
Kin friends and partners.<br />
DRIVE <strong>to</strong> end MS<br />
Chapters are the spirit, the grassroots <strong>of</strong><br />
the Atlantic Division where participants,<br />
volunteers, ambassadors and people living with<br />
multiple sclerosis come <strong>to</strong>gether.<br />
The Annual Chapter Conference was held in<br />
Halifax at the end <strong>of</strong> March where 14 delegates<br />
from around the region represented their Chapters<br />
with renewed energy, new ideas and enthusiasm<br />
for the MS <strong>Society</strong>’s mission.<br />
One <strong>of</strong> the goals <strong>of</strong> the conference was <strong>to</strong> create<br />
strong connections between people working at<br />
the grassroots <strong>of</strong> the MS <strong>Society</strong> and the work<br />
happening at all levels <strong>of</strong> the organization.<br />
A&W employees at Pleasant St. in Dartmouth<br />
cruisin’ for a<br />
cause<br />
Atlantic Canadians turned out for<br />
the second year in a row <strong>to</strong> support<br />
A&W’s Cruisin’ for a Cause where the<br />
restaurant donated $1 from every<br />
TeenBurger® sold on August 26th. In<br />
addition, paper car cu<strong>to</strong>uts were sold for<br />
$1 and coin box donations were collected<br />
throughout the month contributing <strong>to</strong><br />
over $700,000 raised nationwide.<br />
Brian Hansen, Chapter Chair, <strong>of</strong> the Annapolis Valley<br />
says as he was new <strong>to</strong> the MS <strong>Society</strong>, he wasn’t aware<br />
<strong>of</strong> the many areas or <strong>paths</strong> the <strong>Society</strong> had <strong>to</strong> support<br />
people with MS. The conference really helped <strong>to</strong> bring<br />
him clarity on the workings <strong>of</strong> the organization.<br />
“Finding out the extent and the breadth <strong>of</strong> things<br />
going on in fundraising was an eye opener for me,”<br />
says Brian. “I found it extremely satisfying <strong>to</strong> get <strong>to</strong><br />
meet the people. Putting a face <strong>to</strong> a name and finding<br />
out who’s in charge and who does what – I really<br />
appreciate all the work being done.”<br />
Pho<strong>to</strong>: Beverly Vokey, Susan Martin and Brian Hansen<br />
learning <strong>to</strong> help yourself<br />
and others<br />
Officially, Jeanne MacPhee <strong>of</strong> Nine Mile Creek, PEI,<br />
wasn’t diagnosed with Relapsing Remitting MS until<br />
1989, even though her first MS symp<strong>to</strong>ms began in 1974.<br />
Those were the days before MRIs and <strong>to</strong>day’s modern<br />
diagnostic <strong>to</strong>ols, making it difficult <strong>to</strong> diagnose, and even<br />
more difficult <strong>to</strong> cope with symp<strong>to</strong>ms from a disease that<br />
you don’t know you have. Finally getting a diagnosis was a<br />
relief. Having an MS self-help group <strong>to</strong> turn <strong>to</strong> for support,<br />
made all the difference.<br />
“When I first found out I had MS, the <strong>lead</strong>er <strong>of</strong> the self-<br />
help group was a life saver <strong>to</strong> me,” says Jeanne, who <strong>to</strong>ok<br />
over the group herself in the mid 1990s. “When she couldn’t<br />
do it anymore and no one else wanted <strong>to</strong> pick it up I said,<br />
‘Self-help is <strong>to</strong>o important. We can’t let it go.’”<br />
Now Jeanne <strong>lead</strong>s two self-help groups with partners,<br />
Joanne Daley and Lyn Cowperthwaite. One group is more<br />
structured and they review the latest news and materials<br />
from the MS <strong>Society</strong> hosting regular guest speakers. The<br />
other group is more <strong>of</strong> an afternoon drop-in group which<br />
better suits some people who may be <strong>to</strong>o tired by the end<br />
<strong>of</strong> the day <strong>to</strong> make an evening meeting, or perhaps need<br />
more flexibility. Jeanne says no matter which group she’s<br />
<strong>lead</strong>ing, the most important thing about self-help is that<br />
people have a place <strong>to</strong> talk, share, and learn from each<br />
other’s experiences.<br />
“We become very good friends,” says Jeanne. “A member<br />
came <strong>to</strong> the meeting one night who was very ill and her<br />
husband asked her why she was going. She said, ‘I just have<br />
<strong>to</strong> see my friends.’ Later, he <strong>to</strong>ld her he couldn’t believe how<br />
much better she was when she got home. That gives me<br />
motivation <strong>to</strong> keep doing it.”<br />
The <strong>paths</strong> Jeanne has followed with the MS <strong>Society</strong> have<br />
improved her quality <strong>of</strong> life and helped others. She sits<br />
on the Client Services Committee and has accessed the<br />
equipment and transportation funding programs. Through<br />
the Being Well with MS program, she and her husband,<br />
who is also her caregiver, were able <strong>to</strong> attend the show<br />
River Dance and have plans <strong>to</strong> use the program for more<br />
entertainment. Jeanne also participates in the MS Walk and<br />
has volunteered as a site manager for the MS Carnation<br />
Campaign for the past 16 years.<br />
Fulfilling the mission <strong>of</strong> Client Services<br />
in the Atlantic Division means directly<br />
helping people affected by multiple<br />
sclerosis. Education was the key area <strong>of</strong><br />
focus in 2010.<br />
• More than 30 self-help groups <strong>of</strong>fered<br />
peer support and self-education<br />
opportunities.<br />
• Self-Help Group Coordina<strong>to</strong>rs from PEI<br />
and NB attended a bi-annual workshop<br />
<strong>to</strong> receive skills training and collaborate<br />
with peers.<br />
• Our <strong>to</strong>ll-free information line answered<br />
an average <strong>of</strong> 11 calls per day related <strong>to</strong><br />
education, information and funding.<br />
• Formal education sessions were hosted<br />
in 28 communities throughout the four<br />
Atlantic Provinces via Telehealth Video<br />
Conferencing, community access cable,<br />
streaming live <strong>to</strong> the web and in person.<br />
• Applications <strong>to</strong> our funding programs<br />
increased by nearly one-quarter this year!<br />
• More than 150 new clients were approved<br />
for funding.<br />
Pho<strong>to</strong>: Self-Help Group Leaders Workshop<br />
Jeanne MacPhee seated far right.<br />
4 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 5
The endMS Summer School is a national<br />
interactive education program <strong>of</strong> the endMS<br />
Network designed <strong>to</strong> enhance knowledge, skill,<br />
and interest in MS research among trainees. In<br />
May, the 2010 endMS Summer School was hosted<br />
in Halifax by the Atlantic Regional Research and<br />
Training Centre at Dalhousie University.<br />
During the five-day endMS Summer School<br />
program, 40 graduate and post graduate trainees<br />
from across <strong>Canada</strong> were immersed in <strong>to</strong>pics<br />
ranging from epidemiology <strong>to</strong> neuropsychology,<br />
genetics and rehabilitation. Sessions were taught<br />
by <strong>lead</strong>ing Canadian MS researchers.<br />
Students at MRI Brain Imaging Analysis Workshop.<br />
The endMS Network is an initiative <strong>of</strong> the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> and the MS Scientific Research Foundation,<br />
funded by the MS <strong>Society</strong>’s $60 million endMS Campaign. It is a collaborative network <strong>of</strong> researchers and<br />
trainees formed <strong>to</strong> accelerate <strong>discovery</strong> in the field <strong>of</strong> multiple sclerosis <strong>to</strong> end MS in the shortest possible time.<br />
endMs summer school<br />
Members <strong>of</strong> the MS <strong>Society</strong>’s Halifax Chapter also<br />
participated by volunteering for the endMS Summer<br />
School workshop entitled, Patient and Family<br />
Perspectives. This gave students the opportunity<br />
<strong>to</strong> interact with people living with MS <strong>to</strong> learn<br />
more about their experiences and gain a deeper<br />
understanding <strong>of</strong> how research affects the lives <strong>of</strong><br />
those <strong>to</strong>uched by the disease.<br />
“I got <strong>to</strong> learn clinical research techniques which<br />
are complementary <strong>to</strong> my field in basic biomedical<br />
research. I also think it’s very special <strong>to</strong> get <strong>to</strong> talk <strong>to</strong><br />
MS patients. This not only taught me the patient’s<br />
perspective, but also motivated me <strong>to</strong> continue MS<br />
research.”<br />
endMS Summer School participant<br />
atlantic endMs research retreat<br />
In Oc<strong>to</strong>ber, the 2nd annual Atlantic endMS<br />
Research Retreat was held in Halifax. Trainees,<br />
clinicians, researchers and guests came <strong>to</strong>gether<br />
<strong>to</strong> share and discuss the findings <strong>of</strong> the Dr. T.J.<br />
(Jock) Murray endMS Summer Studentship Award<br />
recipients.<br />
As a key activity <strong>of</strong> the endMS Network, this<br />
competitive awards program is designed <strong>to</strong> foster<br />
interest in MS research and enable undergraduate<br />
and medical students <strong>to</strong> expand their knowledge<br />
and skill in the field <strong>of</strong> MS. It seems <strong>to</strong> be working.<br />
At the retreat, C.J. MacMillan, a Ph.D. student<br />
studying MS and stroke at Dalhousie University<br />
was inspired by a theory presented by Jacqueline<br />
Vincent, a summer studentship award recipient.<br />
2010 Ms rEsEarcH HigHLigHts<br />
• MS <strong>Society</strong> funds four Canadian CCSVI<br />
research projects for $700,000 <strong>to</strong><br />
determine the significance <strong>of</strong> CCSVI in<br />
the MS disease process.<br />
• Scientists map the points at which<br />
vitamin D interacts with our DNA and<br />
identified over two hundred genes that<br />
it directly influences including those<br />
related <strong>to</strong> MS. Evidence suggests that<br />
vitamin D deficiency during pregnancy<br />
and in early childhood may increase the<br />
risk <strong>of</strong> developing MS later in life.<br />
• Surprise <strong>discovery</strong> by young University<br />
<strong>of</strong> Edmon<strong>to</strong>n Ph.D. student opens new<br />
area <strong>of</strong> MS research. While studying the<br />
gene Calnexin, she discovers that when<br />
the gene is disabled in mice it produces<br />
similar mobility issues and tissue<br />
deformations around the animal’s nerves<br />
as those found in people with multiple<br />
sclerosis.<br />
Jacqueline presented data on MRI imaging in<br />
MS patients and how that correlates <strong>to</strong> cognitive<br />
measures <strong>of</strong> the disease and the changes she<br />
recognized in the thalmus.<br />
C.J. says although Jacqueline’s project was far out <strong>of</strong><br />
her field <strong>of</strong> research, the results really struck a chord<br />
with her and she has decided <strong>to</strong> investigate this<br />
theory in her own work.<br />
“The endMS network has played a critical role<br />
in helping me establish connections with future<br />
colleagues, and senior researchers who have<br />
been assisting me in expanding my view <strong>of</strong> what<br />
MS research is, and how my research can fit in a<br />
productive manner,” says C.J.<br />
Ms rEsEarcH<br />
arEas <strong>of</strong> focus<br />
• Myelin Repair<br />
• Virology<br />
• Paediatric MS<br />
• MRI Studies<br />
• Immunology<br />
• Health & Treatment<br />
• Genetics<br />
• Bone Marrow Transplantation<br />
• CCSVI and MS<br />
6 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 7
Sandra Wood was presented with an award in<br />
recognition <strong>of</strong> 20 years <strong>of</strong> dedicated service at<br />
the RONA MS Bike Tour in July.<br />
Sandy Wood started volunteering with the Nova<br />
Scotia Bike Tour in 1991 and her husband Woody<br />
participated as a cyclist. To bring spirit and support<br />
<strong>to</strong> the <strong>to</strong>ur, Sandy made a cardboard sign <strong>to</strong> hold<br />
up <strong>to</strong> the riders that read, ‘I have MS. Thank you for<br />
your support.’<br />
She used that sign for a few years until she upped<br />
the ante by <strong>of</strong>fering candy <strong>to</strong> the cyclists while<br />
volunteering for the first time at a rest s<strong>to</strong>p, and<br />
from there her legacy began. Soon there were<br />
themed rest s<strong>to</strong>ps with decorations for Santa’s Work<br />
Shop and Beach Fun. Politics even crept in<strong>to</strong> her<br />
themes with a special <strong>Canada</strong> Day port-a-pottie<br />
“Seat in Parliament.” It’s become a covert operation<br />
each year and no one, not even family are in on the<br />
secret theme.<br />
For Sandy and her family, involvement in the MS<br />
Bike Tour and with the MS <strong>Society</strong> has always been<br />
a family affair. Her daughter Denise Corkum always<br />
volunteers at the rest s<strong>to</strong>p with her, Woody her<br />
husband cycles, and we think a few child labour<br />
laws may have been broken over the years as the<br />
grandkids were recruited <strong>to</strong> help out at rather<br />
young ages.<br />
“I remember arriving at the s<strong>to</strong>p when I was<br />
little and so excited <strong>to</strong> eat the treats and help<br />
out,” says Jennifer Corkum, one <strong>of</strong> Sandy’s five<br />
granddaughters.<br />
8 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada<br />
rona Ms Bike <strong>to</strong>ur<br />
The RONA MS Bike Tours in Nova Scotia and New Brunswick were the highlight <strong>of</strong> the summer,<br />
collectively raising over $465,000. Over 600 participants and volunteers <strong>to</strong>ok part this year<br />
either by making a commitment <strong>to</strong> raise funds and cycle, or <strong>to</strong> flag, build, cook, fix, pedal,<br />
drive, count, feed and cheer for the cyclists. Whatever path you chose, thank you.<br />
it’s a Family affair<br />
Denise Corkum and Sandy Wood<br />
“When I was old enough <strong>to</strong> ride my bike in the <strong>to</strong>ur<br />
with my Granddad, I remember how thrilled I was <strong>to</strong><br />
have Nanny’s support when I coasted in<strong>to</strong> her rest<br />
s<strong>to</strong>p, hot and tired.”<br />
Jennifer rides with Team Cycledelics, who raised over<br />
$22,000 this year, but she’s also been involved with<br />
other activities at the MS <strong>Society</strong> for many years.<br />
“When I was little, Nanny would bribe me with<br />
a lobster supper for my time volunteered selling<br />
carnations in the mall,” says Jennifer.<br />
It is immediately apparent <strong>to</strong> anyone who’s met the<br />
Wood family that they have a great sense <strong>of</strong> humour<br />
and a tremendous dedication <strong>to</strong> helping those with<br />
MS through their support <strong>of</strong> the Nova Scotia Bike<br />
Tour.<br />
“We’ve had lots <strong>of</strong> fun and have made many<br />
memories over the past 20 years from the bike <strong>to</strong>ur,”<br />
says daughter Denise. “It’s mom’s favourite weekend<br />
<strong>of</strong> the year.”<br />
Ms Walk<br />
It is inspiring. Each year, participants from communities across Atlantic <strong>Canada</strong><br />
are working harder and – even in <strong>to</strong>ugh times – continuing <strong>to</strong> raise more each year<br />
at the MS Walk. Over $620,000 was raised this year by 2500 Atlantic Canadians<br />
for MS research and services making every step matter.<br />
lina’s Best<br />
She was at the first Walk in Saint John in 1999. Eleven years later,<br />
Lina Toole has raised almost $50,000 for MS – an impressive<br />
accomplishment. At 68, Lina prefers <strong>to</strong> raise funds the old-fashioned<br />
way, by beating the streets and getting pledges from family, friends,<br />
and businesses in her community.<br />
“I go see the people I call my regulars. They know it must be spring<br />
when they see me coming,” chuckles Lina. “I enjoy the Walk and the<br />
people. And I relish those few minutes we have with friends we only<br />
get <strong>to</strong> see once a year. I think it’s important.”<br />
But, the reason Lina does all <strong>of</strong> this, hits a lot closer <strong>to</strong> home. Her two<br />
daughters, Susan and Catherine, were both diagnosed with MS just six<br />
months apart at the ages <strong>of</strong> 25 and 29 respectively. The first diagnosis<br />
came in July 1998 and the second in January 1999. Both women had<br />
very young children at home at the time and it was difficult for the<br />
family <strong>to</strong> process so much at once, but Lina <strong>to</strong>ok the path <strong>of</strong> action<br />
becoming Saint John’s MS Walk Top Fundraiser for more than a decade.<br />
“I hope for the cure so that MS can be eradicated before my granddaughters get<br />
<strong>to</strong> an age where it could happen again,” says Lina. “I just do the best I can.”<br />
you can count on Us<br />
Lina second from left with her<br />
daughter and granddaughters<br />
Every year, volunteers from the Royal Bank <strong>of</strong> <strong>Canada</strong> show up at<br />
MS Walks across the Atlantic Division <strong>to</strong> help with registration and<br />
the banking <strong>of</strong> participant pledges. It’s a lot <strong>of</strong> paperwork and<br />
without the sponsorship <strong>of</strong> the Royal Bank and their employees –<br />
we might still be rolling pennies!<br />
In a further show <strong>of</strong> support, RBC Manager <strong>of</strong> Client Care, Joanne<br />
Stevenson from St. John’s applied for an internal program whereby<br />
the company donates cash <strong>to</strong> a charity based on 10 or more employees<br />
volunteering for the charity on a weekend. The application was<br />
approved and a cheque for $1,000 was gratefully received by the MS<br />
<strong>Society</strong>. Thank you for exploring another path for your generosity.<br />
Pho<strong>to</strong>s Top: RBC volunteers show their spirit in Charlotte<strong>to</strong>wn. Below (l-r): Sheri<br />
Rumbolt, Tammy Murphy, Joanne Stevenson and Sharon Locke present Atlantic<br />
Division, Honourary Board Member, Mike Kennedy with $1,000 cheque in St. John’s.<br />
atlantic division annual report 2010 9
treasurer’s report<br />
It gives me great pleasure <strong>to</strong> present the 2010 financial results for the Atlantic Division <strong>of</strong> the <strong>Multiple</strong><br />
<strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />
The Division raised $1.8 million in revenue from all sources in 2010. We are extremely grateful for these<br />
excellent results that could only be achieved through the hard work and dedication <strong>of</strong> our volunteers,<br />
participants, donors and staff.<br />
As a <strong>Society</strong>, we strive <strong>to</strong> achieve balanced spending between research and client service expenditures.<br />
The money raised this year enabled the Division <strong>to</strong> contribute over $222,000 <strong>to</strong> national research<br />
programs and also fund another successful equipment provision program.<br />
The Division remains on a very solid financial foundation, a foundation from which we will bring hope <strong>to</strong><br />
people living with multiple sclerosis every day.<br />
Respectfully submitted,<br />
Sean FitzGerald, Secretary Treasurer<br />
Atlantic Division Board <strong>of</strong> Direc<strong>to</strong>rs<br />
Balance Sheet (unaudited)<br />
As at December 31, 2010<br />
Balance Sheet (unaudited)<br />
Balance sheet<br />
As at December As at December 31, 2010 31, 2010<br />
Assets<br />
December 31<br />
2010<br />
December $ 31<br />
2010<br />
$<br />
December 31<br />
2009<br />
December $ 31<br />
2009<br />
$<br />
August 31<br />
2009<br />
August $ 31<br />
2009<br />
$<br />
Current Assets assets<br />
Cash 416,104 170,044 715,375<br />
Marketable Current assets securities<br />
Accounts Cash receivable<br />
Due Marketable from the securities National Office<br />
Prepaid Accounts expenses receivable and supplies<br />
45,455<br />
42,804 416,104<br />
10,019 45,455<br />
21,754 42,804<br />
101,653<br />
61,304 170,044<br />
54,491 101,653<br />
20,024 61,304<br />
98,147<br />
68,842 715,375<br />
34,112 98,147<br />
14,743 68,842<br />
Due from the National Office<br />
Prepaid expenses and supplies<br />
10,019<br />
536,136 21,754<br />
54,491<br />
407,516 20,024<br />
34,112<br />
931,219 14,743<br />
Capital assets 50,667 536,136 407,516 217 931,219 369<br />
Capital assets 586,803 50,667 407,733 217 931,588 369<br />
Liabilities<br />
586,803 407,733 931,588<br />
Current Liabilities liabilities<br />
Accounts payable and accrued liabilities 62,756 34,531 128,375<br />
Due Current <strong>to</strong> the National liabilities Office<br />
Deferred Accounts revenue payable and accrued liabilities<br />
166,258<br />
62,756 -<br />
15,413<br />
34,531 -<br />
227,119<br />
15,000 128,375<br />
Due <strong>to</strong> the National Office<br />
Deferred revenue<br />
166,258<br />
229,014 -<br />
15,413<br />
49,944 -<br />
227,119<br />
370,494 15,000<br />
Net assets<br />
229,014 49,944 370,494<br />
Unrestricted Net assets<br />
357,789 357,789 561,094<br />
Unrestricted 586,803 357,789 407,733 357,789 931,588 561,094<br />
Approved by the Board <strong>of</strong> Direc<strong>to</strong>rs<br />
586,803 407,733 931,588<br />
Direc<strong>to</strong>r Direc<strong>to</strong>r<br />
Charles J. Ford Sean FitzGerald<br />
statement <strong>of</strong> revenue and expenditures and changes in net assets<br />
For the year ended December 31, 2010<br />
Statement <strong>of</strong> Revenue and Expenditures (unaudited)<br />
For the year ended December 31, 2010<br />
10 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 11<br />
Revenue<br />
December 31<br />
2010<br />
$<br />
December 31<br />
2009<br />
$<br />
August 31<br />
2009<br />
$<br />
Leadership Giving<br />
endMS Research and Training Network 71,581 24,075 59,379<br />
Individual giving 81,804 33,229 69,566<br />
Corporate giving and major donors 82,829 7,726 61,447<br />
Bequest revenue 46,828 500 67,358<br />
Grants from pharmaceutical companies 29,800 10,000 23,400<br />
Grants from governments - - 2,010<br />
Other grant revenue - 7,000 8,250<br />
Total revenue from <strong>lead</strong>ership giving activity 312,842 82,530 291,410<br />
Community based fundraising events 1,087,366 18,927 1,144,369<br />
CCSVI research 1,124 - -<br />
Corporate Partnerships and third party events 68,711 52,781 39,481<br />
Sale <strong>of</strong> goods 163,358 176,615 177,345<br />
Public awareness activities 89,932 235 129,395<br />
United Way and Health Partners 49,019 2,860 51,880<br />
Investment Income 11,947 4,196 6,067<br />
Memberships and Miscellaneous 1,410 990 1,210<br />
Total Revenue 1,785,709 339,134 1,841,157<br />
Direct Fundraising Expenditures<br />
Leadership giving 89,693 33,381 94,796<br />
Community based fundraising 411,721 92,387 494,252<br />
Corporate partnerships and third-party events 16,149 5,971 8,039<br />
Cost <strong>of</strong> goods sold 112,409 118,536 125,482<br />
Total Direct Fundraising Expenditures 629,972 250,275 722,569<br />
Funds Available for Programs and Support Activities 1,155,737 88,859 1,118,588<br />
Expenditures<br />
Client Services 321,247 97,529 279,267<br />
Research 150,316 1,442 201,497<br />
Research – CCSVI 1,124 - -<br />
Research–restricted for endMS Research and Training network 71,581 24,075 84,333<br />
Public education and awareness 202,639 47,432 194,934<br />
Chapter and volunteer support and development 134,358 41,087 141,309<br />
Government and community relations 51,706 16,025 44,167<br />
Administration 179,496 55,991 164,771<br />
Indirect fundraising 43,270 8,583 8,310<br />
Total Expenditures 1,155,737 292,164 1,118,588<br />
Excess (deficiency) <strong>of</strong> revenue over expenditures - (203,305) -<br />
Unrestricted net assets – beginning <strong>of</strong> period 357,789 561,094 561,094<br />
Unrestricted net assets – end <strong>of</strong> period 357,789 357,789 561,094<br />
Note: The MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> changed its fiscal year-end from August 31 st <strong>to</strong> December 31 st effective 2009.<br />
The column titled December 31, 2009 represents the 4 month period from September <strong>to</strong> December 2009.<br />
The column titled August 31, 2009 represents the previous full fiscal year from September 2008 <strong>to</strong> August 2009.
Friends <strong>of</strong> the atlantic division<br />
DivisionaL PartnErs<br />
rona Ms biKE <strong>to</strong>ur sPonsors<br />
national title sponsor<br />
RONA<br />
national sponsors<br />
Atlas <strong>Canada</strong><br />
Brinks Inc.<br />
Louis Garneau<br />
Pedal Magazine<br />
Thule<br />
Big Dog 100.9<br />
Cat Country 99.5<br />
CKEC 94.1<br />
CHSJ Country 94.1 FM<br />
endMs caMPaign suPPortErs<br />
Knowledge circle<br />
$100,000 <strong>to</strong> $249,999<br />
The John and Judy Bragg Family Foundation<br />
KPMG Foundation<br />
Patron<br />
$50,000 <strong>to</strong> $99,999<br />
Jazz Air LP<br />
Leader<br />
$10,000 <strong>to</strong> $24,999<br />
Joe Randell<br />
Teva Neuroscience <strong>Canada</strong><br />
inves<strong>to</strong>r<br />
$5,000 <strong>to</strong> $9,999<br />
Anonymous<br />
Charles J. Ford<br />
Joan MacKinnon<br />
Louis J. Maroun<br />
Lisa & Roger Park<br />
Dena Simon<br />
Waterbury New<strong>to</strong>n<br />
<strong>to</strong>ur sponsors<br />
Cyclesmith<br />
G. E. Barbour Inc.<br />
Premiere Van Lines<br />
C103 & XL 96.9<br />
FRED FM<br />
KOOL 96.5<br />
K-Rock 105.5<br />
Media sponsors<br />
MAX 98.3<br />
Ocean 100.3<br />
Q104<br />
XFM 98.9<br />
Ms WaLK sPonsors<br />
Presenting sponsor<br />
Medavie Blue Cross<br />
national sponsors<br />
Brinks Inc.<br />
Student Works Painting<br />
Chatelaine<br />
97.3 The Wave<br />
590 VOCM<br />
Cape Bre<strong>to</strong>n Post<br />
The Daily Gleaner<br />
regional sponsors<br />
Kin <strong>Canada</strong> Atlantic District 7<br />
Premiere Van Lines<br />
Purola<strong>to</strong>r Courier Ltd.<br />
RBC Financial Group<br />
Walk sponsors<br />
Subway<br />
Tim Hor<strong>to</strong>ns<br />
The Guardian<br />
The News<br />
Metro Halifax<br />
The Miramichi Leader<br />
supporter<br />
$1,000 <strong>to</strong> $4,999<br />
Mitchell McConnell Insurance Ltd.<br />
Dr. Jock & Janet Murray<br />
Jonathan Robbins<br />
friend<br />
$500 - $999<br />
Anonymous (2)<br />
Peter & Dana Burns<br />
Sharon Marie Boutin<br />
Frederic<strong>to</strong>n Church <strong>of</strong> Christ Congregation<br />
Joanna Hamil<strong>to</strong>n<br />
Scott & Trish Murray<br />
Craig Newell<br />
Paul Scott<br />
The Telegram<br />
The Times & Transcript<br />
Truro Daily News<br />
The Western Star<br />
atlantic division supporters<br />
$10,000 - $30,000<br />
Estate <strong>of</strong> Janet Louise Cook<br />
Pfizer <strong>Canada</strong> Inc.<br />
Estate <strong>of</strong> Irene Rioux<br />
$5,000 - $9,999<br />
Anonymous<br />
Estate <strong>of</strong> Gordon Butler<br />
The Employees <strong>of</strong> ING<br />
Real Estate<br />
L D Pattison<br />
Dr. Ed Pineau<br />
$2,500 - $4,999<br />
Ambir Solutions<br />
Biogen Idec <strong>Canada</strong> Inc.<br />
The GlaxoSmithKline<br />
Foundation<br />
The Greater Saint John<br />
Community Foundation<br />
Investment Planning Counsel<br />
<strong>of</strong> <strong>Canada</strong> Ltd.<br />
Louis J. Maroun<br />
Medavie Blue Cross<br />
Scotiabank<br />
$1,000 - $2,499<br />
David Arsenault<br />
Lloyd & Marie Barbara<br />
Bedford Open Golf<br />
Tournament<br />
BMR Structural Engineering<br />
Brian Munro Pr<strong>of</strong>essional<br />
Corporation<br />
Myles Byrne<br />
Caltex Energy Inc.<br />
Ronald H. Cameron<br />
John Chapman<br />
Susan Connor<br />
Shane Dafoe<br />
Dillon Consulting Limited<br />
Estate <strong>of</strong> Mary Edna Dysart<br />
Edmonds Landscape and<br />
Construction Services Ltd.<br />
Elizabeth A. Wozniak Inc.<br />
EMD Serono <strong>Canada</strong> Inc.<br />
EnCana Corporation<br />
Estate <strong>of</strong> Margaret Enman<br />
David Fountain<br />
Frederic<strong>to</strong>n Community<br />
Foundation Inc.<br />
G. E. Barbour Inc.<br />
Gap Foundation Gift Match<br />
Program<br />
Andrew Gittens<br />
Going Mobile Wireless<br />
Graham Munro Charitable<br />
Foundation<br />
Graybar <strong>Canada</strong> Ltd.<br />
Groupe BMR Inc.<br />
Halifax Kinsmen Club<br />
Stephen Halsall<br />
Louise Hartley<br />
Tony Hebert<br />
Harvey Humby<br />
Iona Resources Holdings<br />
Limited<br />
Island View Lions Club<br />
Labatt Brewing Co Ltd.<br />
Law<strong>to</strong>ns Drugs Head Office<br />
Dan Macdonald<br />
Dean MacDonald<br />
P Donald Macdonald<br />
Peter MacDowell<br />
Joan MacKinnon<br />
Archibald McLean<br />
Heidi Mor<strong>to</strong>n<br />
Greg Mullane<br />
Peter Munro<br />
Jeff Munroe<br />
Nova Agri Associates Ltd.<br />
Bill Oldford<br />
O’Neill Foundation Inc.<br />
Beth Peterson<br />
RBC Foundation<br />
Alex Ritchie<br />
Alison Robichaud<br />
RONA Halifax<br />
Valerie Russell<br />
Paul Saulnier<br />
Theresa Saulnier<br />
Sisters <strong>of</strong> Mercy<br />
Newfoundland<br />
William Skinner<br />
Sobeys<br />
Bud and Doe Stewart<br />
Estate <strong>of</strong> Audrey May Trainor<br />
$500 - $999<br />
Dr. Gary Altenkirk<br />
Alward Charitable<br />
Foundation Inc.<br />
Famille Baril<br />
Edward Bates<br />
Margaret Beattie<br />
Duncan Beveridge<br />
Robert Beveridge<br />
William Beveridge<br />
Melvin Borean<br />
Heather Brennan<br />
Helena Breon<br />
Charles Broderick<br />
Thank You for your Generosity<br />
Michael Brown<br />
Brunswick Valley Lumber Inc.<br />
Bunting’s Grocery Ltd.<br />
Peter and Dana Burns<br />
Jude Byrne<br />
Capital District Health<br />
Authority<br />
Carmie’s Pre-School and<br />
Daycare Center<br />
CBJ Inspection<br />
Kevin Christie<br />
Nancy Comeau<br />
Conseros S<strong>of</strong>tware Inc.<br />
Dartmouth Kinsmen Club<br />
Dexter Construction<br />
Company Ltd.<br />
Ernest DeYoung<br />
Viola Doncaster<br />
Caroline Doyle<br />
Dre Hélene Huard<br />
Corporation<br />
Pr<strong>of</strong>essionnelle Inc.<br />
Ellsworth Estates<br />
Jamie Emberley<br />
Emergency Medical Care<br />
Engent, Inc.<br />
Elisabeth Fall<br />
Anonymous<br />
Laura-Lea Fisher<br />
Ford’s Apothecary<br />
Forest Hills School<br />
Stéphane Fortin<br />
Stefan Furey<br />
Paul Gaudet<br />
Frances Geitzler<br />
Peter Giberson<br />
Gavin Giles<br />
Jim and Margaret Gillis<br />
Thomas Hart<br />
Patricia Hastey<br />
Robert Hatheway<br />
Terry Healey<br />
Margaret Higgins<br />
Susan Higson<br />
Jessica Houtsma<br />
Iron Mountain <strong>Canada</strong> Corp.<br />
Wins<strong>to</strong>n Kelloway<br />
James Kennedy<br />
Raymond Kierstead<br />
David L. Knight<br />
Lahave Seafoods Limited<br />
Mike Lovegrove<br />
Eileen MacDonald<br />
Joseph Macdonald<br />
Matt Mackenzie<br />
A.J. MacLean<br />
Greg MacNeill<br />
Managed Health Care<br />
Services Inc.<br />
Wayne Mattice<br />
Mills Heavy Hauling Ltd.<br />
Bruce Mitham<br />
Mit<strong>to</strong>n Hill Enterprises<br />
Limited<br />
Lenore Mombourquette<br />
Isaac Mosher<br />
Maureen Mueller<br />
Alex Mulford<br />
Jennifer Mullane<br />
Jan Murray<br />
Owen Myers<br />
Graham Oakley<br />
Anonymous<br />
Wayne Pike<br />
L. Dawn Porter<br />
Potash Corporation <strong>of</strong><br />
Saskatchewan Inc.<br />
Quispamsis Elementary<br />
School<br />
Douglas Reid<br />
Robin LeBlanc MD Inc.<br />
Serge Roy<br />
Royal Flush Services Ltd.<br />
Sampling Technologies<br />
Maurice Sanford<br />
Scott Blois Au<strong>to</strong>motive Ltd.<br />
Dena Simon<br />
Rebecca Simpson<br />
Cathy Smith<br />
Standard Life Assurance<br />
Company <strong>of</strong> <strong>Canada</strong><br />
Stanfield’s Limited<br />
Brad Stanley<br />
Mark Stewart<br />
Tim S<strong>to</strong>ne<br />
S<strong>to</strong>neworx Design Inc.<br />
Michelle Sullivan<br />
Sun Life Financial<br />
Anonymous<br />
Terrain Group Inc.<br />
The Kings Mutual Insurance<br />
Company<br />
Bruce Towler<br />
United Commercial Travelers<br />
<strong>of</strong> America, Jack Kidd<br />
Counsel #755<br />
Peter Van Harmelen<br />
Kenk Van Leeuwen<br />
Terry Wadden<br />
Walmart <strong>Canada</strong> Corp.<br />
WBLI Chartered Accountants<br />
WTF Holdings Ltd.<br />
12 <strong>Multiple</strong> sclerosis society <strong>of</strong> canada atlantic division annual report 2010 13
<strong>Multiple</strong> sclerosis society <strong>of</strong> canada, atlantic Division<br />
109 Ilsley Avenue Unit 1, Dartmouth, NS B3B 1S8<br />
Tel: (902) 468-8230 Fax: (902) 468-5328 Toll-free: 1-800-268-7582<br />
info.atlantic@mssociety.ca www.mssociety.ca