CURE: The point of view of people living with HIV

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CURE: The point of view of people living with HIV

“Towards an HIV Cure”

Pre-Conference Symposium

20 & 21 July 2012

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CURE:

The point of view of

people living with HIV

Fred Verdult

Volle Maan

Amsterdam, The Netherlands


Cure


• HOW?

Cure


Cure

• HOW?

• WHY?


Why is a cure important?

The answers of Steven Deeks:


Why is a cure important?

The answers of Steven Deeks:

• Life expectancy


Why is a cure important?

The answers of Steven Deeks:

• Life expectancy

• Long term side effects


Why is a cure important?

The answers of Steven Deeks:

• Life expectancy

• Long term side effects

• Financial reasons


Dan Kuritzkes:


Dan Kuritzkes:

“When can we start a clinical trial?”


Research questions


Research questions

From the PERSPECTIVE of people living

with HIV:


Research questions

From the PERSPECTIVE of people living

with HIV:

• How important is a cure? WHY?


Research questions

From the PERSPECTIVE of people living

with HIV:

• How important is a cure? WHY?

• WHICH cure is preferred?


Respondents


Respondents

• Database of 1,002 names contacted


Respondents

• Database of 1,002 names contacted

• Response: n= 458 (= 46%)


Respondents

• Database of 1,002 names contacted

• Response: n= 458 (= 46%)

• May 15–31 (+ 4 respondents in June)


Uncertainty

“No longer having that feeling of

uncertainty”


Uncertainty

“No longer having that feeling of

uncertainty”

“Having less anxiety about the future”


Risk of infecting

“No longer being afraid of infecting

others”


Stigma

“Not having to deal with the stigma

anymore”


Gggggg

Ggg

Gggh

H

H

H

O

O

O


Gggggg

Ggg

Gggh

H

H

H

O

O

O


Gggggg

Ggg

Gggh

H

H

H

O

O

O


H

O

O

O

Gggggg

Ggg

Gggh

H

H


Gggggg

Ggg

Gggh

H

H

H


Follow-up study

Multinational study to characterize

the willingness of people living with

HIV to participate in cure trials


Meeting on July 23, including:

• Michael Arnold, USA

• Françoise Barré-Sinoussi, FR

• Steven Deeks, USA

• Matthias Eggert, SW

• David Evans, USA

• Sophie Gravat, FR

• Richard Jefferys, USA

• Dan Kuritzkes, USA

• Joep Lange, NL

• Peter Newman, CA

• Veronica Noseda, FR

• Bruno Spire, FR

• Marie Suzan, FR

• Nelson Vergel, USA

• Fred Verdult, NL

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