Whispers on the Web - October 2005 - WebWhispers Nu-Voice Club
Whispers on the Web - October 2005 - WebWhispers Nu-Voice Club
Whispers on the Web - October 2005 - WebWhispers Nu-Voice Club
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<str<strong>on</strong>g>Whispers</str<strong>on</strong>g> <strong>on</strong> <strong>the</strong> <strong>Web</strong> - <strong>October</strong> <strong>2005</strong><br />
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<strong>October</strong> <strong>2005</strong><br />
Name Of Column Author Title Article Type<br />
Musings From The President Murray Allan Len Librizzi-Casey Cooper News & Events<br />
<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> Columnist Terry Duga IAL <strong>2005</strong> - Bost<strong>on</strong> News & Events<br />
<strong>Voice</strong>Points Liz McGraw Lary Experiences In Peru Educati<strong>on</strong>-Med<br />
Between Friends D<strong>on</strong>na McGary Life goes <strong>on</strong> Experiences<br />
Cruise Clues Pat Sanders NE/Canada Cruise News & Events<br />
Living The Lary Lifestyle Joan G. Burnside Chapter 8 Educati<strong>on</strong>-Med<br />
News You Can Use Scott Bachman Emergency Kit Educati<strong>on</strong><br />
Bits, Buts, & Bytes Dutch Computer Tips Experiences<br />
New Members Listing Welcome News & Events<br />
Murray's Mumbles ... Musings from <strong>the</strong><br />
President<br />
Le<strong>on</strong>ard (Len) Librizzi<br />
Winner of Casey-Cooper<br />
Laryngectomee of <strong>the</strong> Year Award<br />
It was a great pleasure to present Len Librizzi with this coveted and prestigious<br />
Award at <strong>the</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> Annual Dinner held at <strong>the</strong> IAL c<strong>on</strong>venti<strong>on</strong> in Bost<strong>on</strong> <strong>on</strong><br />
Friday, 2 September, <strong>2005</strong> attended by nearly 180 WW members and our h<strong>on</strong>ored<br />
guests.<br />
Len became a laryngectomee in 1990 and decided he would<br />
accept this challenge with dignity. He became <strong>the</strong> President<br />
of <strong>the</strong> Anamilo Speech <strong>Club</strong> of Nassau County and has been<br />
editor of that club's newsletter since 1993. Len is a volunteer<br />
with The American Cancer Society (Eastern Divisi<strong>on</strong>) as<br />
Cansurmount volunteer visitor, a Camp Adventure volunteer<br />
visitor and a Camp Adventure volunteer and for Relay for Life.<br />
Len holds an undergraduate degree from City College in<br />
Electrical Engineering and Masters Degrees in both Computer<br />
Science And Management from Polytechnic Institute of New<br />
York.<br />
It is certainly fortunate for both <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> and <strong>the</strong> IAL that<br />
he has acquired all this knowledge as he has been instrumental in producing<br />
fantastic brochures for both organizati<strong>on</strong>s and of course he is currently both <strong>the</strong> IAL<br />
Treasurer and Editor of <strong>the</strong> IAL News.<br />
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Len has attended every IAL Annual Meeting since 1990 and during those years he<br />
has devoted his time to being Chair or member of practically every committee.<br />
At <strong>the</strong> Bost<strong>on</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> Dinner, Pat Sanders, VP- <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> Informati<strong>on</strong> said,<br />
"Len Librizzi has agreed to accept <strong>the</strong> positi<strong>on</strong> of Informati<strong>on</strong> Library Chair. His<br />
abilities to design, organize and place informati<strong>on</strong> in different formats is going to be<br />
a definite advantage for us in <strong>the</strong> library. Len did a great job <strong>on</strong> "Massaging and<br />
Stretching" in pdf format ( a booklet taken from HeadLines) that has become our<br />
leading download from <strong>the</strong> entire site. This is a great start for us <strong>on</strong> a new expansi<strong>on</strong><br />
for <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> in <strong>the</strong> area of "educati<strong>on</strong>".<br />
Len is a man of h<strong>on</strong>esty, integrity and distincti<strong>on</strong> and it is a extreme pleasure and<br />
h<strong>on</strong>or to have him join this illustrious group of winners of <strong>the</strong> Casey-Cooper<br />
Laryngectomee of <strong>the</strong> Year Award for <strong>2005</strong>. The first winner of this Award was our<br />
founder, Dutch Helms, followed by Pat Wertz Sanders, Mary Jane Renner, and Herb<br />
Sim<strong>on</strong>. WINNERS ALL!<br />
All <strong>the</strong> very best to you and yours.<br />
Take care and stay well.<br />
Murray Allan<br />
President, <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> <strong>Nu</strong>-<strong>Voice</strong> <strong>Club</strong><br />
argus@shaw.ca<br />
<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> Columnist<br />
C<strong>on</strong>tributi<strong>on</strong> from a Member<br />
IAL <strong>2005</strong> - BOSTON<br />
Some Pers<strong>on</strong>al Observati<strong>on</strong>s<br />
by Terry Duga<br />
The Annual Meeting of <strong>the</strong> Internati<strong>on</strong>al Associati<strong>on</strong> of Laryngectomees opens. It is August 31, <strong>2005</strong>.<br />
The singing of <strong>the</strong> Star Spangled Banner is beautifully performed by a Sergeant in <strong>the</strong> Massachusetts State<br />
Police. He has a fabulous set of pipes that do h<strong>on</strong>or to our nati<strong>on</strong>al an<strong>the</strong>m.<br />
Next comes <strong>the</strong> presentati<strong>on</strong> of achievement awards to Dr. Mark Singer and Dr. Eric Blom. Drs. Singer and<br />
Blom revoluti<strong>on</strong>ized alternate speech methods for laryngectomees by inventing <strong>the</strong> TEP and duckbill<br />
pros<strong>the</strong>sis. The sad thing about this presentati<strong>on</strong> is that it is perfunctory. Bob Mehrman, President of <strong>the</strong> IAL,<br />
barely describes <strong>the</strong>ir accomplishment and does not even ask <strong>the</strong>m to come <strong>on</strong> stage to accept <strong>the</strong>ir awards.<br />
Ra<strong>the</strong>r <strong>the</strong>y walk to <strong>the</strong> side of <strong>the</strong> rostrum and are handed <strong>the</strong>ir awards without being allowed to comment or<br />
acknowledge <strong>the</strong> award.<br />
I, pers<strong>on</strong>ally, feel that this is a slight of two men who allowed many laryngectomees to speak without <strong>the</strong> need<br />
of a machine or <strong>the</strong> hours of practice required to try to master some form of esophageal speech. While I am<br />
biased, having been a patient of Dr. Blom?s for over 12 years and thinking very highly of him, I think that my<br />
feelings hit home. Every<strong>on</strong>e with whom I discussed <strong>the</strong> presentati<strong>on</strong> felt that <strong>the</strong> IAL missed <strong>the</strong> boat <strong>on</strong> this<br />
<strong>on</strong>e.<br />
The meeting gets back <strong>on</strong> track with <strong>the</strong> keynote speech by Dr. Daniel Deschler, of <strong>the</strong> Mass Eye and Ear<br />
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Infirmary. He gives a w<strong>on</strong>derfully moving speech in praise of survivors and notes <strong>the</strong> laryngectomees and<br />
o<strong>the</strong>r cancer survivors in <strong>the</strong> audience are a great example. Dr. D?s address was a highlight of <strong>the</strong> morning,<br />
and rightfully so.<br />
Later that day, Drs. Blom, Singer and Deschler joined Dr. Jan Lewin of MD Anders<strong>on</strong> in Houst<strong>on</strong>, TX and Mark<br />
Finfrock, participating in a panel discussi<strong>on</strong> regarding <strong>the</strong> TEP. As a TEP speaker, I found <strong>the</strong> sessi<strong>on</strong> to be<br />
informative and interesting. As a patient of Dr. Blom, I enjoyed <strong>the</strong> easy repartee between him and Dr. Singer.<br />
At sometime during <strong>the</strong> opening sessi<strong>on</strong>, Pat Sanders offered my services to<br />
Carla Gress to take pictures for <strong>the</strong> <strong>Voice</strong> Institute to use in creating a<br />
brochure for <strong>the</strong> <strong>Voice</strong> Institute. This project made me attend more sessi<strong>on</strong>s<br />
than I probably would have o<strong>the</strong>rwise and even to participate.<br />
Besides taking pictures, I get to be an exhibit in a presentati<strong>on</strong> by Tammy<br />
Wiggingt<strong>on</strong>. Tammy explains that <strong>the</strong> puffiness al<strong>on</strong>g my jaw is <strong>the</strong> result of<br />
<strong>the</strong> removal of lymph glands. I have always thought it was just extra fat<br />
finding a home. It has never been an issue, so I had never broached <strong>the</strong><br />
subject with a doctor or <strong>the</strong>rapist, but it is interesting to know that. And it is good to be reminded that after 10<br />
years, I am still learning.<br />
On Friday, I get to attend <strong>the</strong> clinic at Mass Eye and Ear Infirmary. The attendees get up early and take a bus<br />
to <strong>the</strong> hospital where every<strong>on</strong>e ga<strong>the</strong>rs in a training room <strong>on</strong> <strong>the</strong> 3rd floor. While <strong>the</strong> prospective<br />
patients/students wait <strong>the</strong>ir turn, <strong>the</strong>y are introduced to various HME devices.<br />
In <strong>the</strong> meantime, <strong>on</strong> <strong>the</strong> 11th floor, rooms are prepared. InHealth and Atos have<br />
set up tables filled with pros<strong>the</strong>ses and o<strong>the</strong>r materials. VI attendees with<br />
problems are examined by <strong>the</strong> doctors and SLPs including Mark Singer, Jan<br />
Lewin, Tammy Wiggingt<strong>on</strong>, Lynn Act<strong>on</strong> and o<strong>the</strong>rs. SLPs get to watch <strong>the</strong><br />
various inserti<strong>on</strong>s of pros<strong>the</strong>ses and examinati<strong>on</strong> of problems.<br />
Michael Dreisbach proves to be more than a good sport when he allows Tammy<br />
to use him to dem<strong>on</strong>strate an insufflati<strong>on</strong> test. I say that Mike is a good sport<br />
because he has no interest in TEP speech. He has had a puncture and did not<br />
care for it. He uses a Cooper-Rand as his primary AL and a True T<strong>on</strong>e as a back up. He likes <strong>the</strong> Cooper-<br />
Rand because he can hold <strong>the</strong> mouthpiece between his lips as he does his work with <strong>the</strong> Police in Raleigh, NC.<br />
Mike runs breathalyzer tests and does o<strong>the</strong>r processing, including fingerprinting. He testifies in court<br />
regarding <strong>the</strong> tests and he uses his excellent AL speech as a weap<strong>on</strong> in court, throwing <strong>the</strong> defense attorneys<br />
off <strong>the</strong>ir beat. As a lawyer, I appreciate his use of <strong>the</strong> AL. As a lary, I admire his self assurance.<br />
He allows Tammy to run <strong>the</strong> insufflati<strong>on</strong> test. This requires her to run a tube through his nose and down to<br />
allow him to inject air into his esophagus. Mike takes <strong>the</strong> discomfort of <strong>the</strong> tube down his nose like a trooper<br />
and exhibits excellent speech. I, for my part, get a good number of pictures of <strong>the</strong> procedure and take a<br />
couple of videos with sound of him speaking. The SLPs observing <strong>the</strong> test see a good example of a<br />
successful test.<br />
Danny Lee also undergoes an insufflati<strong>on</strong> test. He, also, braves <strong>the</strong> tube down his nose. Danny has had a<br />
jejunum rec<strong>on</strong>structi<strong>on</strong>, so no <strong>on</strong>e knows in advance if he will be a good candidate for a puncture and<br />
pros<strong>the</strong>sis. After a little work, and some discomfort, Danny is able to voice. The nice surprise is that his voice<br />
is not watery. It is soft, but clear. In many ways it reminds me of my early TEP speech, <strong>on</strong>ly a little str<strong>on</strong>ger.<br />
The test shows that Danny could be a candidate for a puncture should he care to try that form of speech. The<br />
SLPs note that he has a stoma shaped to get and keep a seal.<br />
On Saturday, <strong>the</strong> delegates ga<strong>the</strong>r and vote <strong>on</strong> changes to <strong>the</strong> IAL by-laws. They also hear reports from <strong>the</strong><br />
various IAL officers and committee heads. A gentleman from Virginia, attending his first c<strong>on</strong>venti<strong>on</strong>, points out<br />
that <strong>the</strong> board and <strong>the</strong> officers of <strong>the</strong> IAL need to provide better informati<strong>on</strong> to <strong>the</strong> member clubs. Herb Sim<strong>on</strong><br />
moves that <strong>the</strong> Board should report <strong>on</strong> committee meetings within 30 to 60 days of <strong>the</strong> meeting. I suggest that<br />
<strong>the</strong>y can do this over <strong>the</strong> internet to save postage. The officers and executive director seem to balk at <strong>the</strong>se<br />
suggesti<strong>on</strong>s. The executive director tries to reas<strong>on</strong> that <strong>the</strong> Board, not <strong>the</strong> member clubs, should decide such<br />
a matter. The questi<strong>on</strong> is left unresolved. My thoughts are: if <strong>the</strong> Board does not decide to improve providing<br />
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informati<strong>on</strong> to <strong>the</strong> member clubs, perhaps a recall would be in order. We shall see how this plays out in <strong>the</strong><br />
future.<br />
On Friday evening, <strong>the</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> <strong>Nu</strong> <strong>Voice</strong> <strong>Club</strong> held its annual<br />
banquet. This year a record-breaking 175+ people attend. The hours of<br />
thought and effort provided by <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> VP Libby Fitzgerald in<br />
successfully planning and executing this event are clearly evident and<br />
worthy of praise and recogniti<strong>on</strong>. The banquet is preceded with a<br />
recepti<strong>on</strong> hosted by Bruce Medical. Beer, wine, soft drinks and snacks are<br />
provided. People ga<strong>the</strong>r and chat in anticipati<strong>on</strong> of <strong>the</strong> banquet. At <strong>the</strong><br />
appointed time, <strong>the</strong> doors open and <strong>the</strong> diners enter <strong>the</strong> grand hall. Two<br />
buffet tables have been set up at ei<strong>the</strong>r end of <strong>the</strong> room. The menu<br />
includes a really delicious choice of salads and vegetables, Beef<br />
Stroganoff, baked chicken breast with cream sauce, baked scrod with<br />
lem<strong>on</strong> butter sauce and a great assortment of desserts. Thanks to <strong>the</strong> generosity of InHealth and Bruce<br />
Medical, who underwrote half <strong>the</strong> cost of <strong>the</strong> banquet, <strong>the</strong> price has been kept to a reas<strong>on</strong>able amount per<br />
pers<strong>on</strong>.<br />
Len Libizzi is presented with <strong>the</strong> Casey-Cooper ?Laryngectomee of <strong>the</strong> Year?<br />
award. He dem<strong>on</strong>strates surprise at <strong>the</strong> award and humility with his acceptance of<br />
it.<br />
O<strong>the</strong>r awards include a special award to Sabine Paul who<br />
is a n<strong>on</strong>-laryngectomee originally hired to perform data<br />
entry for <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> to allow us to have a directory of<br />
members and addresses. After <strong>the</strong> first m<strong>on</strong>th, Sabine<br />
has refused to accept payment for her work but has c<strong>on</strong>tinued to provide an<br />
invaluable service to WW. I am thankfully allowed to present a posthumus award to<br />
Dr. R<strong>on</strong>ald Hamaker, a WW member who succumbed to col<strong>on</strong> cancer this year. Dr.<br />
Hamaker was a model of what a doctor and surge<strong>on</strong> should be. Besides being a<br />
great surge<strong>on</strong>, he was a complete healer who cared about his patients.<br />
On Saturday is <strong>the</strong> Fun Show. The Fun Show is preceded by a magic act by Laurence Moss, a member of <strong>the</strong><br />
host Bost<strong>on</strong> Cured Cancer <strong>Club</strong>. The magic show is followed by <strong>the</strong> Fun Show. Once again, R<strong>on</strong> Langseth<br />
has proven himself to be a proud successor to Jane Delveccio. In my opini<strong>on</strong>, he has improved <strong>on</strong> what Jane<br />
started. R<strong>on</strong> has <strong>the</strong> laryngectomees speak <strong>the</strong>ir lines and, <strong>the</strong>reby, dem<strong>on</strong>strate various means of speech.<br />
They also show that we can do many things that people d<strong>on</strong>'t think we can do and he does this with humor<br />
and wit. I look forward to future shows.<br />
Saturday ends with <strong>the</strong> IAL banquet. There is a cocktail hour before <strong>the</strong> meal. I am told by <strong>on</strong>e attendee that<br />
my drinking is bad for me. I am shocked at <strong>the</strong> revelati<strong>on</strong>, but c<strong>on</strong>tinue to sip my cocktail. The room is<br />
divided into two areas of tables separated by a dance floor. This year, <strong>the</strong> IAL has wisely chosen to use a DJ<br />
for music ra<strong>the</strong>r than a live band. The DJ plays very nice, older music during <strong>the</strong> dinner. The volume of <strong>the</strong><br />
music is low , which makes c<strong>on</strong>versati<strong>on</strong>s by laryngectomees easy. The meal starts with a nice Caesar salad.<br />
Unfortunately, it goes drastically downhill from <strong>the</strong>re. The entree is a form of Chicken<br />
Cord<strong>on</strong> Blue. The ra<strong>the</strong>r dry b<strong>on</strong>eless, skinless breast is topped by equally dry and<br />
tasteless ham and some sort of cheese with what appear to be a few artichoke leaves for<br />
accent. The chicken is over bland white rice that is closer to minute rice than <strong>the</strong> real<br />
thing. The vegetables are pea pods and carrots. There is a vegetarian plate alternative.<br />
Frankly, I am disappointed both in <strong>the</strong> meal chosen and <strong>the</strong> choice of <strong>the</strong> meal. By this I<br />
mean it seems that <strong>the</strong> cheapest alternative was selected without c<strong>on</strong>cern for whe<strong>the</strong>r or<br />
not a laryngectomee would have trouble eating <strong>the</strong> meal or whe<strong>the</strong>r it would offend certain<br />
cultures or religi<strong>on</strong>s. Note to <strong>the</strong> IAL. If <strong>the</strong> IAL really is an internati<strong>on</strong>al organizati<strong>on</strong>,<br />
some c<strong>on</strong>cern should be given to diverse beliefs and tastes. Frankly, even if it isn't an<br />
Internati<strong>on</strong>al organizati<strong>on</strong>, similar care should be given. Certain religi<strong>on</strong>s forbid <strong>the</strong><br />
c<strong>on</strong>sumpti<strong>on</strong> of pork, and I am not talking about minor religi<strong>on</strong>s. Offering a choice<br />
between a dish with pork or vegetarian is not acceptable. I suggest better care next year and in <strong>the</strong> future.<br />
The meal is ended by an adequate, though not outstanding, Bost<strong>on</strong> Cream Pie.<br />
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The decisi<strong>on</strong> that we are all awaiting is where will next year's meeting be held. In light of Hurricane Katrina,<br />
Biloxi is out. It will be interesting to see what locati<strong>on</strong> is chosen.<br />
As with everything else in life, <strong>the</strong> IAL c<strong>on</strong>venti<strong>on</strong> has it pluses and minuses. But it remains a good learning<br />
and social time for those who attend.<br />
<strong>Voice</strong>Points [ ? <strong>2005</strong> Dr. Jeff Searl ]<br />
coordinated by Dr. Jeff Searl, Associate Professor ( jsearl@kumc.edu )<br />
Hearing and Speech Department, The University of Kansas Medical Center<br />
MS3039, 3901 Rainbow Blvd., Kansas City, KS 66160<br />
Note from Jeff Searl (<strong>Voice</strong>Points Coordinator):<br />
I have not met Liz McGraw in pers<strong>on</strong>, but became aware of her work in South America by<br />
happenstance. The church group through which Liz has been doing her work was educating and raising funds<br />
at an event that I attended. I was struck by some of <strong>the</strong> bios of <strong>the</strong> individuals <strong>on</strong> <strong>the</strong> humanitarian and medical<br />
missi<strong>on</strong>s that were being described. The descripti<strong>on</strong> of <strong>the</strong> young woman trained as a speech <strong>the</strong>rapist, who<br />
now works with <strong>the</strong> poor and indigent in some of South America?s most sou<strong>the</strong>rn countries, stood out in<br />
particular. After a brief email exchange, it was apparent that her experiences dealing with head and neck<br />
cancer (and laryngectomy in particular)placed her in a unique situati<strong>on</strong>. It seemed to me that <strong>the</strong>re was much to<br />
be learned and so I invited her to describe some of her work. You should know that she is not involved in her<br />
humanitarian work primarily as a speech pathologist. Ra<strong>the</strong>r, she happens to be a speech pathologist, with a<br />
very big heart, who is doing more general work to c<strong>on</strong>nect with and improve <strong>the</strong> lives of people.<br />
Liz was trained in <strong>the</strong> United States, but has spent most of her time since <strong>the</strong>n in o<strong>the</strong>r parts of <strong>the</strong><br />
world, including Western Africa, Mexico, and now Peru and Chile. I enjoyed her recounting of experiences<br />
related to laryngectomy in Peru for a number of reas<strong>on</strong>s. In part it served to highlight <strong>the</strong> magnitude of <strong>the</strong><br />
issues that folks deal with in trying to train alaryngeal speech in o<strong>the</strong>r countries. Rarely do I think of <strong>the</strong> status<br />
of alaryngeal speech training in anything o<strong>the</strong>r than a modern, wealthy country with a definite Westernmedicine<br />
focus. I also was struck by <strong>the</strong> fact that <strong>the</strong> pneumatic artificial larynx, perhaps <strong>the</strong> most often<br />
overlooked opti<strong>on</strong> in <strong>the</strong> United States and many o<strong>the</strong>r places, is arguably <strong>the</strong> most appropriate choice for <strong>the</strong><br />
folks that Liz has come across.<br />
Laryngectomy Experiences in Peru: KISS (or Keep It Simple Stupid)<br />
By Liz McGraw<br />
For <strong>the</strong> past four years, I have lived away from <strong>the</strong> United States in Mexico, Africa, and now Peru.<br />
Although trained as a speech-language pathologist, that is not my principle role with <strong>the</strong> group for whom I<br />
work. We are a small humanitarian organizati<strong>on</strong> with religious ties that organizes groups of individuals to<br />
assist indigenous people in learning how to farm more efficiently and promote <strong>the</strong>ir needs within <strong>the</strong>ir own<br />
governmental system. Most, like me, have been trained in a particular professi<strong>on</strong>. Although I do not practice<br />
specifically as a speech pathologist in my role here, I certainly have been called up<strong>on</strong> to use my ?expertise?<br />
when <strong>the</strong> need arises, just as my colleagues with agricultural backgrounds take <strong>the</strong> lead in helping <strong>the</strong> farmers<br />
and <strong>the</strong> medical folks in <strong>the</strong> group assisting with healthcare needs. In my 8 m<strong>on</strong>ths in Peru, I have now been<br />
called up<strong>on</strong> to see four individuals who have had a total laryngectomy. I am not necessarily an expert in <strong>the</strong><br />
area, but <strong>the</strong>re was, quite literally, no o<strong>the</strong>r pers<strong>on</strong> in <strong>the</strong> country, that I could track down, to help <strong>the</strong>se men.<br />
With my limited training in alaryngeal speech from a few years back, and with intermittent access to <strong>the</strong><br />
internet to hook-up with o<strong>the</strong>r professi<strong>on</strong>als for guidance and informati<strong>on</strong>, I tried to offer <strong>the</strong>se Peruvians what<br />
I could. This is <strong>the</strong> story that has come toge<strong>the</strong>r over a 12-m<strong>on</strong>th time frame.<br />
I met each of <strong>the</strong>se gentlemen in a different part of <strong>the</strong> country. Peru is quite large and roughly divided<br />
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between <strong>the</strong> ?highlands? (<strong>the</strong> Andes Mountains) and <strong>the</strong> low lying ?coastal regi<strong>on</strong>? with <strong>the</strong> populati<strong>on</strong> divided<br />
between <strong>the</strong>se two. About half of <strong>the</strong> country?s populati<strong>on</strong> are Indian, <strong>on</strong>e third are Mestizo (a pers<strong>on</strong> of mixed<br />
Spanish and Amerindian blood), maybe a tenth are of European decent and <strong>the</strong> remaining are a combinati<strong>on</strong> of<br />
African and Asian. The men that I saw came from indigenous groups of Indians living a fair distance from <strong>the</strong><br />
major cities in Peru. The larger cities in Peru are Lima (populati<strong>on</strong> of about 6.5 milli<strong>on</strong>), Trujillo (populati<strong>on</strong> of<br />
about 600 thousand), and Chiclayo (populati<strong>on</strong> of nearly 300 thousand). In <strong>the</strong>se larger cities, Lima in<br />
particular, <strong>the</strong>re are medical services available, although <strong>the</strong> indigenous folks do not routinely use <strong>the</strong>se<br />
services for a variety of reas<strong>on</strong>s related to <strong>the</strong>ir culture, socio-ec<strong>on</strong>omic status, distance away from <strong>the</strong><br />
populati<strong>on</strong> centers and <strong>the</strong> inability to travel. I am not tied in closely to <strong>the</strong> local medical folks as that is not<br />
our primary missi<strong>on</strong>, so <strong>the</strong>re may be o<strong>the</strong>rs (ENTs, speech <strong>the</strong>rapists) right in Peru whom I could have tapped<br />
for services, but I am not aware of who is <strong>the</strong>re.<br />
To be h<strong>on</strong>est, I cannot relay much to you about where <strong>the</strong>se Peruvians had <strong>the</strong>ir surgeries d<strong>on</strong>e or<br />
o<strong>the</strong>r medical history. Part of my ?lack of knowledge? stems from language barriers. There are a large number<br />
of languages spoken here, even though Spanish is <strong>the</strong> official language. While we have good interpreters, <strong>the</strong><br />
process of communicati<strong>on</strong> is often difficult, particularly for more technical topics for which <strong>the</strong> local language<br />
might not have all <strong>the</strong> relevant vocabulary for describing <strong>the</strong>ir medical c<strong>on</strong>diti<strong>on</strong>s/history. This language barrier<br />
proved somewhat frustrating in working <strong>on</strong> alaryngeal speech opti<strong>on</strong>s, but quite frankly, I have grown<br />
accustomed to communicating with folks with whom I do not share a comm<strong>on</strong> language. In general it did not<br />
get in <strong>the</strong> way. We laughed through our gesturing and mimicry as we tried to figure out what each was trying<br />
to say.<br />
I was shocked that <strong>the</strong>se four gentlemen had a laryngectomy in <strong>the</strong> first place. While <strong>the</strong>re is Western<br />
medicine in Lima and <strong>the</strong> o<strong>the</strong>r larger populati<strong>on</strong> centers, even <strong>the</strong> indigenous folks who live within 50 or 100<br />
miles of <strong>the</strong> centers tend not to access <strong>the</strong> healthcare system. Most groups have <strong>the</strong>re own approaches and<br />
beliefs about health and disease (and how to treat it) that are rooted in <strong>the</strong> history of <strong>the</strong>ir culture. From what I<br />
could ga<strong>the</strong>r, however, <strong>the</strong>re must have been some medical missi<strong>on</strong>ary work passing through some porti<strong>on</strong>s of<br />
Peru about 5-10 years ago. Each of <strong>the</strong>se four had had <strong>the</strong>ir surgeries d<strong>on</strong>e roughly within this time frame and<br />
it sounded as if <strong>the</strong>y had been screened by an itinerant doctor ?from <strong>the</strong> city? who had arranged for <strong>the</strong><br />
necessary surgery and so forth. I have not been able to ga<strong>the</strong>r whe<strong>the</strong>r <strong>the</strong>re are o<strong>the</strong>rs out <strong>the</strong>re who may<br />
have been caught up in this medical sweep. The vastness and <strong>the</strong> remoteness of much of <strong>the</strong> country will<br />
likely keep me from ever knowing much more.<br />
Two of <strong>the</strong>m lived near <strong>on</strong>e ano<strong>the</strong>r and knew of each o<strong>the</strong>r. The o<strong>the</strong>r two lived quite some distance<br />
away. N<strong>on</strong>e of <strong>the</strong> four men were using any verbal communicati<strong>on</strong> at <strong>the</strong> times that I first saw <strong>the</strong>m although<br />
<strong>the</strong>y all appeared to be active within <strong>the</strong>ir families and communities. I?ve always found <strong>the</strong> indigenous people<br />
to take great care of <strong>the</strong>ir family and to diligently look out for those who are sick or in need. The primary<br />
communicati<strong>on</strong> mode for each was via gestures and facial expressi<strong>on</strong>. Mou<strong>the</strong>d speech was also being used<br />
but it seemed to be sec<strong>on</strong>dary. One of <strong>the</strong> Indian men was ?fortunate? in that a fairly elaborate gestural<br />
language was part of <strong>the</strong> culture anyway (this was easy to see after being in <strong>the</strong> village for little more than an<br />
hour as I was reminded of <strong>the</strong> stereotype of Italians using excessive gestures while talking!). Writing was not<br />
an opti<strong>on</strong> for any of <strong>the</strong> men as n<strong>on</strong>e of <strong>the</strong>m could read or write. I suppose drawing could have been an<br />
opti<strong>on</strong>, but n<strong>on</strong>e of <strong>the</strong>m had naturally gravitated toward this as far as I could learn.<br />
The first laryngectomee that I met went by <strong>the</strong> name Ical (that is my best guess at spelling his name<br />
and I do not know how to translate it into English). I was forced to go through my line of thinking in dealing<br />
with his communicati<strong>on</strong> and <strong>the</strong>n met <strong>the</strong> o<strong>the</strong>r three over <strong>the</strong> next few m<strong>on</strong>ths. The situati<strong>on</strong>s were fairly<br />
comparable as was my thinking <strong>on</strong> best means of communicati<strong>on</strong> for all of <strong>the</strong>m.<br />
After my initial shock at seeing a laryngectomee in <strong>the</strong> Andes, I jumped into my usual, n<strong>on</strong>-speech<br />
pathology role, which involves talking with <strong>the</strong> local women to establish relati<strong>on</strong>ships that can <strong>the</strong>n be built<br />
up<strong>on</strong> and used for subsequent educati<strong>on</strong> programs related to healthcare, farming, and o<strong>the</strong>r issues. But I kept<br />
watching Ical whenever I could. Being in <strong>the</strong> village for several weeks I was able to see him quite often and<br />
watch how he got al<strong>on</strong>g. While he did quite well, and while he and those in <strong>the</strong> village had l<strong>on</strong>g ago figured<br />
out how to communicate with each o<strong>the</strong>r, I couldn?t resist getting to know him. After taking a few more days<br />
to ease into a relati<strong>on</strong>ship with him, I was able to pull him aside with a local translator and get more of his<br />
story. His surgery had been d<strong>on</strong>e about 4 years prior, mainly because he was having trouble breathing during<br />
exerti<strong>on</strong> in <strong>the</strong> fields. He?d been taken to <strong>the</strong> city in a car with a doctor who stayed with him much of <strong>the</strong> time<br />
while in <strong>the</strong> hospital (a stay that lasted for about 3 ? 4 weeks as best I could understand). He returned with this<br />
same doctor and has been healthy ever since. I asked if he would be interested in having a voice. He was. I<br />
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explained it might or might not be possible, given <strong>the</strong> fact that I didn?t know what resources I could track<br />
down.<br />
It wasn?t until a few weeks later when we went back to a larger city that I could get <strong>on</strong> <strong>the</strong> ph<strong>on</strong>e and<br />
<strong>the</strong> Internet to make c<strong>on</strong>tacts, do some investigating, and think through <strong>the</strong> situati<strong>on</strong>. Tracheoesophageal<br />
speech was out of <strong>the</strong> questi<strong>on</strong> for many reas<strong>on</strong>s, most of <strong>the</strong>m fairly obvious. We had no clear cut way to<br />
have a puncture d<strong>on</strong>e. Even if we had, I am about 100% sure that I could never c<strong>on</strong>vince Ical to make <strong>the</strong> trip<br />
to <strong>the</strong> city so some<strong>on</strong>e could put ano<strong>the</strong>r hole in his neck. He?d had enough of ?modern? medical care based<br />
<strong>on</strong> what he?d told me, and in fact was c<strong>on</strong>sidered both ?extremely brave? by some villagers and ?somewhat<br />
foolish? by o<strong>the</strong>rs for even going for <strong>the</strong> first surgery. Cost was a c<strong>on</strong>cern. These are not people with<br />
additi<strong>on</strong>al m<strong>on</strong>ey to spend <strong>on</strong> pros<strong>the</strong>ses or visits to a health professi<strong>on</strong>al. Ready access to care was also an<br />
issue. Although I?ve come to learn that folks in rural parts of o<strong>the</strong>r countries such as <strong>the</strong> United States can<br />
make it work, this is not just rural. It is folks living some distance from care providers and having no quick<br />
means of transportati<strong>on</strong> available as needed. Independence from care providers was a necessity, as was low<br />
cost.<br />
Esophageal speech seemed a possibility. The ability to avoid ano<strong>the</strong>r procedure and independence<br />
from technology and care providers were attractive. There were two main problems. First, I had never taught<br />
any<strong>on</strong>e esophageal speech before. Some of my c<strong>on</strong>tacts had passed al<strong>on</strong>g informati<strong>on</strong> about how to do this,<br />
but my c<strong>on</strong>fidence was not high and I really would have liked a mentor to show me <strong>the</strong> way (and not just over<br />
<strong>the</strong> ph<strong>on</strong>e!). Sec<strong>on</strong>dly, I didn?t know that I would have <strong>the</strong> time to actually engage in <strong>the</strong> <strong>the</strong>rapy itself, even if I<br />
knew what to do. I knew that if my usual schedule were followed, I could be uprooted from <strong>the</strong> village at almost<br />
a moments notice. At best I knew that we would be <strong>the</strong>re for <strong>on</strong>ly a m<strong>on</strong>th more or so. My group moves<br />
around periodically and <strong>on</strong>ce we leave a locale, it is not unusual for us to be away from <strong>the</strong>re for m<strong>on</strong>ths at a<br />
time or perhaps forever.<br />
The electrolarynx might have worked for Ical and I had several folks offer to get <strong>on</strong>e down to us to<br />
work with. However, I was fearful of <strong>the</strong> dependence <strong>on</strong> something mechanical and which also relied <strong>on</strong><br />
batteries that ei<strong>the</strong>r had to be purchased or recharged. Again cost would be an issue (although several offers<br />
of free devices were made). However, <strong>the</strong> access to electrical power to recharge batteries was of bigger<br />
c<strong>on</strong>cern. This was not available to Ical, at least not <strong>on</strong> a readily accessible basis. As it turns out, this issue of<br />
access to electricity would not be an issue for two of <strong>the</strong> o<strong>the</strong>r gentleman that I saw. In additi<strong>on</strong>, I was<br />
c<strong>on</strong>cerned about whe<strong>the</strong>r <strong>the</strong> electrolarynx would make it through <strong>the</strong> fairly rough handling that I envisi<strong>on</strong>ed<br />
with all four of my guys. They all worked hard (three as field farmers and <strong>on</strong>e as a keeper of domesticated<br />
animals) and I kept picturing <strong>the</strong> electrolarynx sliding down <strong>the</strong> steep slopes up<strong>on</strong> which <strong>the</strong>se folks made <strong>the</strong>ir<br />
homes and worked!<br />
Thankfully, I was put <strong>on</strong> <strong>the</strong> trail of a pneumo-larynx. To be quite frank, I hadn?t heard of such a device<br />
before (or if it was menti<strong>on</strong>ed during my training, I didn?t remember). A c<strong>on</strong>tact was made back in Mexico and<br />
a pneumo-larynx was eventually sent to me. It took about 3 m<strong>on</strong>ths and a d<strong>on</strong>key ride down <strong>the</strong> mountain to<br />
get it! I appreciated it?s simplicity and was amazed by <strong>the</strong> t<strong>on</strong>e of <strong>the</strong> device. The children in <strong>the</strong> village<br />
thought it was great fun to blow through it with <strong>the</strong>ir mouth in a musical, rhythmic way. Ical latched <strong>on</strong>to it<br />
fairly quickly. This was ano<strong>the</strong>r b<strong>on</strong>us ? <strong>the</strong> learning was fairly quick. Within about two weeks or so he had<br />
figured out how to use it at a fairly proficient level, at least so <strong>the</strong> interpreter told me. This was fortunate as we<br />
moved out about a week or so after that. I was able to leave him with a very large number of replaceable reeds.<br />
We were able to work out a means of delivering food items and o<strong>the</strong>r items, which will now include <strong>the</strong> reeds!<br />
My experiences with <strong>the</strong> o<strong>the</strong>r three men were similar in many respects. In each case, we were able to<br />
get a d<strong>on</strong>ated pneumo-larynx and fortunately <strong>the</strong>se bright men were able to make <strong>the</strong>m sing! It was such a joy<br />
to see <strong>the</strong>m use <strong>the</strong>ir new voice with <strong>the</strong>ir children, wives, and friends. I still have some fear that <strong>the</strong> devices<br />
might be lost or broken. However, we now have some means of establishing a link back to <strong>the</strong>se folks and<br />
since I moved <strong>on</strong> to ano<strong>the</strong>r country I was able to deliver a back-up pneumo-larynx to each of <strong>the</strong>m. After<br />
leaving Ical and eventually meeting laryngectomee #2 (his name is even harder to translate, but would best be<br />
written as Ashlal), I figured out that I needed to have a way to tie <strong>the</strong> device around <strong>the</strong> neck. It needed to be<br />
available <strong>on</strong> <strong>the</strong>ir body somewhere, but also <strong>the</strong>y needed to be able to drop <strong>the</strong> device to free up both hands<br />
without fear of it landing <strong>on</strong> a hard rock, falling down a slope, or dropping into a crevice from which it couldn?t<br />
be retrieved.<br />
The simplest device made <strong>the</strong> most sense in <strong>the</strong>se cases. Throughout this time with <strong>the</strong> four men, I sometimes<br />
wished that <strong>the</strong>y could be in ano<strong>the</strong>r life with o<strong>the</strong>r opti<strong>on</strong>s for treating <strong>the</strong>ir disease and re-establishing voice.<br />
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But really, those are <strong>on</strong>ly fleeting thoughts that arise when I am at my most frustrated. For <strong>the</strong>se men, <strong>the</strong>ir<br />
villages had accepted <strong>the</strong>m even without a new voice. They were treated quite well prior to my arrival. I was<br />
pleased to be able to help <strong>the</strong>m and <strong>the</strong>y truly seemed to be thankful. I was grateful for <strong>the</strong> c<strong>on</strong>tacts made with<br />
folks from around <strong>the</strong> world that helped me to help <strong>the</strong>m. As much as I learned about electrolarynges and<br />
tracheoesophageal speech, I have come to realize that <strong>on</strong>e of <strong>the</strong> oldest and <strong>the</strong> simplest opti<strong>on</strong>s for talking<br />
after a laryngectomy has a vital role in certain situati<strong>on</strong>s and in certain parts of <strong>the</strong> world.<br />
BETWEEN FRIENDS<br />
D<strong>on</strong>na McGary<br />
"That which does not kill us makes us str<strong>on</strong>ger"<br />
The last time I talked to you,<br />
I ended my journals where I began?<br />
Life goes <strong>on</strong>.<br />
Our lives are not always about <strong>the</strong> cancer nor its l<strong>on</strong>g tentacles which insinuate <strong>the</strong>mselves into our everyday<br />
life. It is oftentimes a strange and difficult journey but <strong>on</strong>ce you get into <strong>the</strong> spirit of things it can be both eyepoppingly<br />
amazing and w<strong>on</strong>drously satisfying- despite <strong>the</strong> odds! Case in point?two roads?which given time,<br />
Dear Reader, will c<strong>on</strong>verge.<br />
First and foremost, my s<strong>on</strong> and <strong>on</strong>ly child was married Sept 17, <strong>2005</strong> to an absolute swee<strong>the</strong>art of a womanshe<br />
was new in his life when I first got sick and she has never wavered in her support of ei<strong>the</strong>r <strong>on</strong>e of us. She<br />
is such a pretty sweet young thing I am not sure who is more in love with her, my s<strong>on</strong> or myself- she is truly<br />
<strong>the</strong> daughter I never had. At <strong>the</strong>ir wedding- a kind of down-home-ain?t those kids as cute as a bug in a rugtype<br />
thing when it?s a bunch of old Maine Yankees throwing <strong>the</strong> party- I danced with my s<strong>on</strong> to <strong>the</strong> Cyndi<br />
Lauper s<strong>on</strong>g ?True Colors?. I will never be <strong>the</strong> same.<br />
I love his adaptability. There were m<strong>on</strong>ths when I had no voice at all but he was <strong>the</strong> first to suggest that my<br />
Servox batteries could be hidden if I talked too much. He was <strong>the</strong> first to tease me and try it out himself and is<br />
always <strong>the</strong> first to defend me if I am uneasy.<br />
The love and support of my family and friends has always been a major bulwark in <strong>the</strong> <strong>on</strong>going process of<br />
recovery and rejuvenati<strong>on</strong>. Rejuvenati<strong>on</strong> is an interesting word?I AM NOT getting younger, but I have been<br />
forced to re-invent myself repeatedly?perhaps I am not rejuvenating but reincarnating!<br />
Well, I USED to like to talk A LOT, but I can?t. Not <strong>the</strong> same way anyway. And I can?t do imitati<strong>on</strong>s or<br />
voices?.I can?t whisper or shout or sing Christmas Carols or laugh out loud. I can write down words that try<br />
to c<strong>on</strong>vey those expressi<strong>on</strong>s and sometimes I do it very well, but I can not use that certain low voice right in<br />
your ear that says I love you nor laugh out loud at your jokes. I can?t murmur. I no l<strong>on</strong>ger have sweet<br />
undert<strong>on</strong>es.<br />
So it was a bit of a shock to walk into <strong>the</strong> Park Plaza in Bost<strong>on</strong> and hear that distinctive buzz and rasp all<br />
around me. I heard myself at every turn. I saw myself and I was n<strong>on</strong>plussed. You could have knocked me<br />
over with a fea<strong>the</strong>r. And yet I was strangely disquieted. I couldn?t possibly sound like <strong>the</strong>se people. Face it,<br />
D<strong>on</strong>na, we have seen <strong>the</strong> enemy, and it is us! I still was hearing my old voice in my head and it was very hard<br />
to accept that wasn?t me anymore. I knew it?but sometimes it was just too much sitting in a class with all<br />
those terribly well-meaning SLP?s?I mean no disrespect-you all were great- but we have lost our voice and<br />
trying to learn to speak again is a mighty task and <strong>on</strong>e I hope and pray you never have to learn. It was hard for<br />
me to be <strong>the</strong> center of all that c<strong>on</strong>cern and well-meaning pity.<br />
I talk very well using my Servox and love my new T-shirt from Jim Lauder that says ?Servox?We have ways of<br />
making you talk.? I loved being around people who didn?t blink an eye or struggle to understand me, but I<br />
was disquieted. And I was disquieted that I was disquieted. I was uncomfortable seeing so many mirror<br />
images of myself coughing and clearing and discreetly and bravely managing while we buzzed and burped and<br />
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o<strong>the</strong>rwise talked and laughed and flirted and generally carried <strong>on</strong> as if nothing was amiss. Because something<br />
is amiss and it is my voice- it is amiss-ing!!<br />
Although I admit that I bobbed and dodged a bit , <strong>the</strong> experience was invaluable. I look forward to <strong>the</strong> next<br />
IAL?I suspect I w<strong>on</strong>?t be so taken aback by <strong>the</strong> many mirror images of myself.<br />
By <strong>the</strong> way, at my s<strong>on</strong>?s after recepti<strong>on</strong> party, when I finally kicked off my shoes and had a glass of<br />
champagne, I was exchanging ripostes with <strong>the</strong> best man and my s<strong>on</strong> and realized n<strong>on</strong>e of <strong>the</strong> guests still left<br />
nor my s<strong>on</strong> even thought twice about my voice. It is, now, who I am.<br />
"Cruise Clues"<br />
by Pat Wertz Sanders, WW Cruise Coordinator<br />
(See our Cruise Index HERE)<br />
Inhealth "Stars and Stripes" Cruise C<strong>on</strong>test Winners<br />
The Inhealth "Stars and Stripes" Cruise C<strong>on</strong>test changed <strong>the</strong>ir Grand Prize from <strong>the</strong> cruise we originally had<br />
planned for after <strong>the</strong> 2006 Biloxi IAL to <strong>the</strong> same type accommodati<strong>on</strong>s for two <strong>on</strong> our WW Alaska Cruise in<br />
June 2006. Inhealth was able to d<strong>on</strong>ate $1,000 to <strong>the</strong> IAL from extra tickets sold and <strong>the</strong>y drew for <strong>the</strong> winner<br />
at <strong>the</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> dinner held <strong>on</strong> Friday evening at <strong>the</strong> Bost<strong>on</strong> IAL.<br />
The winners, Leo and Jean Autote from Bloomingt<strong>on</strong>, CA now have<br />
reservati<strong>on</strong>s for an inside stateroom for two (prize worth $2200 paid<br />
for by InHealth) for <strong>the</strong> cruise from Anchorage to Vancouver. They<br />
may add <strong>the</strong> 4 day land tour, if <strong>the</strong>y wish, by paying <strong>the</strong> additi<strong>on</strong>al<br />
for <strong>the</strong> pre-cruise tour, or <strong>the</strong>y may enjoy <strong>the</strong> 7 day cruise down <strong>the</strong><br />
coast of Alaska with full fares paid from Anchorage to Vancouver<br />
with our group.<br />
Leo Autote of Fall River, MA and Jean York of Raunds, England met<br />
and married in England in 1956 while Leo was stati<strong>on</strong>ed <strong>the</strong>re with<br />
<strong>the</strong> USAF. Leo had a 22 year career with <strong>the</strong> USAF and retired in<br />
1974 in Bloomingt<strong>on</strong>, CA c<strong>on</strong>tinuing <strong>on</strong> as a firefighter with o<strong>the</strong>r<br />
companies until his cancer and laryngectomy in 1991. Jean enjoyed<br />
catering as a career until she retired as well. They have 4 adult<br />
children out in <strong>the</strong> world "doing <strong>the</strong>ir thing" as Leo says.<br />
They presently bel<strong>on</strong>g to <strong>the</strong> Inland Empire <strong>Nu</strong>-<strong>Voice</strong>s club of <strong>the</strong> Riverside/San Bernardino CA. area; an active<br />
club and Leo presides as <strong>the</strong> CEO <strong>on</strong> <strong>the</strong> Board of Directors for <strong>the</strong>m. They are also members of<br />
<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g>.<br />
After having been <strong>on</strong> <strong>on</strong>e cruise last year, <strong>the</strong>y are really looking forward to this <strong>on</strong>e. Note that next year is<br />
<strong>the</strong>ir 50th wedding anniversary. C<strong>on</strong>gratulati<strong>on</strong>s, Leo and Jean!<br />
Successful New England/Canada Cruise<br />
The <strong>on</strong>ly hard part of this cruise was getting rid of our luggage so we could check in and getting<br />
transportati<strong>on</strong> to leave <strong>the</strong> cruiseport after getting it back again. This al<strong>on</strong>e would keep me from ever using <strong>the</strong><br />
Bost<strong>on</strong> Port again. The cruise itself was spectacular with w<strong>on</strong>derful ports, good service and marvelous food.<br />
The Royal Caribbean ships we have been <strong>on</strong> always have many walls of glass and places to sit or walk where<br />
you can see everything. As you will see, when we have <strong>the</strong> cruise pictures <strong>on</strong>line, it is gorgeous.<br />
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At final count, we had 71 <strong>on</strong> board and 27 were laryngectomees. We had our dinner reservati<strong>on</strong>s every night in<br />
<strong>the</strong> same area but went our own way for lunch and breakfast, although every time I went into <strong>the</strong> Windjammer<br />
(<strong>the</strong>ir buffet dining where I had breakfast every day and lunch most days), I ran into several of our group. We<br />
also had a cocktail party for just our group and a get toge<strong>the</strong>r meeting <strong>on</strong> Saturday morning to chat with each<br />
o<strong>the</strong>r and c<strong>on</strong>sult with our professi<strong>on</strong>als <strong>on</strong> board with us. We usually try to meet twice <strong>on</strong> a 7 day voyage<br />
but, this time, we had 5 ports and stayed in <strong>the</strong>m most of <strong>the</strong> day so it was possible to set up <strong>on</strong>ly <strong>on</strong>e<br />
meeting <strong>on</strong> our at-sea day.<br />
The Ports were fabulous and scenery was great. Some toured, some shopped and all took pictures!<br />
On To Alaska In June 2006<br />
Princess has allowed us 20 more reservati<strong>on</strong>s after we sold <strong>the</strong> original 40 for <strong>the</strong> cruise-tour leaving<br />
Fairbanks <strong>on</strong> June 1, 2006. These are based <strong>on</strong> <strong>the</strong> tour which has limited space <strong>on</strong> <strong>the</strong> train used for <strong>the</strong> precruise<br />
tour. We do have cabins available for <strong>the</strong> cruise <strong>on</strong>ly leaving Anchorage June 5, 2006 and can get more.<br />
Please check our web site for all informati<strong>on</strong> and rates and list of cruisers so far.<br />
http://www.webwhispers.org/pages/cruise/WWCruise06_1.htm<br />
Cruise Out Of New Orleans Canceled<br />
With <strong>the</strong> Hurricane Katrina damage and horrible tragedy al<strong>on</strong>g <strong>the</strong> Gulf coast, <strong>the</strong> IAL is planning a move to<br />
ano<strong>the</strong>r site for <strong>the</strong>ir 2006 Annual Meeting. At <strong>the</strong> time I am writing this, <strong>the</strong> locati<strong>on</strong> has not been decided.<br />
We are canceling <strong>the</strong> cruise planned for August that was to start immediately after <strong>the</strong> IAL<br />
! SPECIAL !<br />
Selected Pictures from<br />
IAL <strong>2005</strong> in Bost<strong>on</strong><br />
Click HERE<br />
(If you can improve<br />
our capti<strong>on</strong>s, please<br />
Email Dutch or Pat<br />
with your suggesti<strong>on</strong>s)<br />
Living <strong>the</strong> Lary Lifestyle<br />
Copyright <strong>2005</strong><br />
Joan G. Burnside, M.A.<br />
CHAPTER EIGHT<br />
TIPS 71 THROUGH 80<br />
I have learned that success is to be measured<br />
not so much by <strong>the</strong> positi<strong>on</strong> <strong>on</strong>e has reached in life<br />
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as by <strong>the</strong> obstacles overcome while trying to succeed.<br />
- Booker T. Washingt<strong>on</strong> -<br />
TIP # 71: STOP YOUR STOMA FROM SHRINKING<br />
This is a benefit of wearing <strong>the</strong> Bart<strong>on</strong>-Mayo butt<strong>on</strong> or Larytube. It can help your stoma stay <strong>the</strong> proper size<br />
as determined by your doctor. O<strong>the</strong>r alternatives might include a surgical ?revisi<strong>on</strong>? of <strong>the</strong> stoma. Some<br />
people just sleep with a Larytube to maintain <strong>the</strong> opening.<br />
JB?s note: I have heard various coin sizes referred to as <strong>the</strong> ideal size for a stoma, but I d<strong>on</strong>?t think I?ll be<br />
trying any to see which <strong>on</strong>e fits. Stoma size really varies depending up<strong>on</strong> <strong>the</strong> individual and <strong>the</strong> surge<strong>on</strong>. Be<br />
sure to check with your surge<strong>on</strong> or SLP if you think <strong>the</strong>re is a problem.<br />
TIP # 72: CARRY YOUR MEDICAL HISTORY<br />
Keep copies of everything but try to keep it as simple as possible. If you go to a comprehensive cancer clinic,<br />
you w<strong>on</strong>?t need it <strong>the</strong>re. But your hometown internist, local otolaryngologist (ENT) or dentist will appreciate<br />
having it. Be sure to give it to <strong>the</strong> recepti<strong>on</strong>ist or nurse when you sign in. This way <strong>the</strong>re?s a chance <strong>the</strong><br />
doctor will be a little more prepared when she sees you.<br />
JB?s note: I include <strong>on</strong>ly <strong>the</strong> cancer-related treatments or new developments as my doctors already have my<br />
earlier history. If it were for a new doctor, I?d list everything.<br />
TIP # 73: COPE WITH STARTUP STICKING<br />
When your newer model Advantage pros<strong>the</strong>sis w<strong>on</strong>?t work right away, try inserting <strong>the</strong> pros<strong>the</strong>sis brush to<br />
free <strong>the</strong> valve. The manufacturer is working to correct <strong>the</strong> problem, but according to Larys who have it, not<br />
having to use Nystatin is worth this small bit of trouble for now.<br />
TIP # 74: CONFIRM IT WITH YOUR LISTENER<br />
When giving informati<strong>on</strong> over <strong>the</strong> teleph<strong>on</strong>e, ask your listener to read <strong>the</strong> informati<strong>on</strong> back to you. Often,<br />
<strong>the</strong>y?ll do it without your asking. Many people, not just Larys, are not understood well <strong>on</strong> <strong>the</strong> ph<strong>on</strong>e.<br />
Teleph<strong>on</strong>e lines just d<strong>on</strong>?t carry <strong>the</strong> same amount of data that "in pers<strong>on</strong>" communicati<strong>on</strong> does.<br />
TIP # 75: BLAME IT ON YOUR THYROID<br />
If you?re feeling out of sorts, depressed, have weight c<strong>on</strong>cerns, etc., it could be a thyroid problem.<br />
Laryngectomy surgery or radiati<strong>on</strong> often affects this gland. It can?t hurt to ask your doctor for this simple<br />
blood test. Obviously, many problems can make you feel really bad, including radiati<strong>on</strong> sickness, ?regular?<br />
depressi<strong>on</strong>, etc., but your doctor can check those things out to see what is really bo<strong>the</strong>ring you.<br />
JB?s note: I was fortunate to my doctor?s nurse practiti<strong>on</strong>er spot <strong>the</strong> possibility of thyroid trouble. She<br />
ordered <strong>the</strong> tests for me.<br />
TIP # 76: ENJOY CHOCOLATE AGAIN<br />
Chocolate can taste very bitter to radiati<strong>on</strong> and chemo-challenged taste buds. And when it?s also coated with<br />
wax, it?s inedible. It?s hard to know what is going to work, so you?ll have to experiment, but Godiva and<br />
Tobler<strong>on</strong>e have been recommended highly as going down smoothly. The lighter chocolates are much more<br />
tolerable than <strong>the</strong> darker <strong>on</strong>es.<br />
JB?s note: No more See?s chocolates for me--very sad for a native of California, but <strong>the</strong> Godiva is great,<br />
including ice cream products. Also any kind of hot cocoa mix can be good if you use <strong>on</strong>ly half or less of <strong>the</strong><br />
package and use milk instead of water.<br />
TIP # 77: SAVE YOUR SEAL<br />
When <strong>the</strong> seal is blown <strong>on</strong> your baseplate, it might be possible to save <strong>the</strong> c<strong>on</strong>versati<strong>on</strong> by pressing through<br />
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your clothing <strong>on</strong>to <strong>the</strong> leaking edge. When <strong>the</strong>re is a break in <strong>the</strong> c<strong>on</strong>versati<strong>on</strong>, you can go do your repair<br />
work.<br />
JB?s note: At least <strong>on</strong>e Lary has found himself in a habit of holding down <strong>the</strong> baseplate. This can create a<br />
distracti<strong>on</strong> for your listener.<br />
TIP # 78: KEEP EYE CONTACT<br />
Eighty percent eye c<strong>on</strong>tact is <strong>the</strong> norm for c<strong>on</strong>versati<strong>on</strong>. Larys can lose eye c<strong>on</strong>tact because <strong>the</strong>y?re<br />
c<strong>on</strong>centrating so hard <strong>on</strong> speaking that <strong>the</strong>y roll <strong>the</strong>ir eyes back. This is difficult for <strong>the</strong> listener to watch, and<br />
communicati<strong>on</strong> breaks down. To break <strong>the</strong> habit, talk to <strong>the</strong> mirror while looking yourself in <strong>the</strong> eye. You can<br />
draw a soap line to focus <strong>on</strong>.<br />
TIP # 79: SPEAK UP PLEASE<br />
Open your mouth wider, and your speech will be louder. If you d<strong>on</strong>?t believe it, try practicing both ways.<br />
Also, you may be losing <strong>the</strong> last couple of words in a sentence because you are running out of breath. Break<br />
your sentences up into shorter phrases if this is a problem.<br />
JB?s note: After I read about opening <strong>the</strong> mouth wider, I realized I had been muffling myself because I didn?t<br />
want any<strong>on</strong>e to see my missing teeth.<br />
TIP # 80: USING AN EL WHEN YOU WEAR A HEARING AID<br />
The interacti<strong>on</strong> between your hearing aid and your electrolarynx can produce distorted, amplified sound. If<br />
this is happening to you, try placing <strong>the</strong> EL <strong>on</strong> <strong>the</strong> side of <strong>the</strong> neck opposite your aided ear. You can also try<br />
placing <strong>the</strong> EL <strong>on</strong> your cheek or use <strong>the</strong> intra-oral straw device that came with your EL. If n<strong>on</strong>e of this works<br />
well, see <strong>the</strong> audiologist at your cancer clinic or center-- usually in <strong>the</strong> speech pathology department. Let <strong>the</strong><br />
SLP and <strong>the</strong> audiologist know what <strong>the</strong> problem is ahead of time so <strong>the</strong>y can c<strong>on</strong>fer or see you toge<strong>the</strong>r.<br />
LET?S TALK<br />
Are you <strong>on</strong>e of those people who has overcome obstacles before? Does that experience affect how you cope<br />
now? Write comments in your book <strong>on</strong> any of <strong>the</strong> tips, glue in newspaper articles, or arty magazine pictures.<br />
Have you g<strong>on</strong>e back through and reviewed your earlier entries? Have you noticed <strong>the</strong> progress? Have you<br />
developed new ideas and methods?<br />
REPORTS FROM ROBOCOP?S REPOSITORY<br />
Or<br />
News You Can Use ... by Officer Scott Bachman<br />
Hurricane Katrina has devastated <strong>the</strong> lives and property of countless families. Although this singular act of<br />
nature created unimagined results it is still important to be prepared for any type of emergency or disaster, be<br />
it natural or man-made.<br />
The following informati<strong>on</strong> is meant to be a guide and your own needs may require o<strong>the</strong>r supplies or protocols.<br />
If you believe what just occurred in Sou<strong>the</strong>ast Texas, New Orleans, Biloxi and o<strong>the</strong>r areas al<strong>on</strong>g <strong>the</strong> Gulf Coast<br />
could not happen to you, please think again.<br />
Proper planning does beat poor performance, every time.<br />
----------------------------------------------------------------------------------<br />
How To Prepare Your Own Emergency Kit<br />
Emergency Preparedness Survival Disaster Kits - Pre-made or Custom<br />
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Emergency Preparedness Survival Disaster Kits - Pre-made or Custom<br />
Review <strong>the</strong> checklists in this document.<br />
Ga<strong>the</strong>r <strong>the</strong> supplies that are listed. You may need <strong>the</strong>m if your family is c<strong>on</strong>fined at home.<br />
Place <strong>the</strong> supplies you'd most likely need for an evacuati<strong>on</strong> in an easy-to-carry c<strong>on</strong>tainer. These supplies are<br />
listed with an asterisk (*).<br />
Emergencies happen anytime and anywhere. And when an emergency strikes, you may not have much time to<br />
resp<strong>on</strong>d.<br />
A highway spill of hazardous material could mean instant evacuati<strong>on</strong>.<br />
A winter storm could c<strong>on</strong>fine your family at home. An earthquake, flood, tornado or any o<strong>the</strong>r emergency could<br />
cut off basic services--gas, water, electricity and teleph<strong>on</strong>es--for days.<br />
Water<br />
Store water in plastic c<strong>on</strong>tainers such as soft drink bottles. Avoid using c<strong>on</strong>tainers that will decompose or<br />
break, such as milk cart<strong>on</strong>s or glass bottles. A normally active pers<strong>on</strong> needs to drink at least two quarts of<br />
water each day. Hot envir<strong>on</strong>ments and intense physical activity can double that amount. Children, nursing<br />
mo<strong>the</strong>rs and ill people will need more.<br />
? Store <strong>on</strong>e gall<strong>on</strong> of water per pers<strong>on</strong> per day (two quarts for drinking, two quarts for food<br />
preparati<strong>on</strong>/sanitati<strong>on</strong>)*<br />
? Keep at least a three-day supply of water for each pers<strong>on</strong> in your household.<br />
Food<br />
Store at least a three-day supply of n<strong>on</strong>-perishable food. Select foods that require no refrigerati<strong>on</strong>, preparati<strong>on</strong><br />
or cooking and little or no water. If you must heat food, pack several cans of Sterno or a small propane style<br />
burner (with several propane bottles). Select food items that are compact and lightweight.<br />
*Include a selecti<strong>on</strong> of <strong>the</strong> following foods in your emergency Supplies Kit:<br />
? Ready-to-eat canned meats, fruits and vegetables<br />
? Canned juices, milk, soup (if powdered, store extra water)<br />
? Staples--sugar, salt, pepper<br />
? High energy foods--peanut butter, jelly, crackers, granola bars, trail mix<br />
? Vitamins<br />
? Foods for infants, elderly pers<strong>on</strong>s or pers<strong>on</strong>s <strong>on</strong> special diets<br />
? Comfort/stress foods--cookies, hard candy, sweetened cereals, lollipops, instant coffee, tea bags<br />
First Aid Kit<br />
Assemble a first aid kit for your home and <strong>on</strong>e for each car. A first aid kit* should include:<br />
? Sterile adhesive bandages in assorted sizes<br />
? 2-inch sterile gauze pads (4-6)<br />
? 4-inch sterile gauze pads (4-6)<br />
? Hypoallergenic adhesive tape<br />
? Triangular bandages (3)<br />
? 2-inch sterile roller bandages (3 rolls)<br />
? 3-inch sterile roller bandages (3 rolls)<br />
? Scissors<br />
? Tweezers<br />
? Needle<br />
? Moistened towelettes<br />
? Antiseptic<br />
? Thermometer<br />
? T<strong>on</strong>gue blades (2)<br />
? Tube of petroleum jelly or o<strong>the</strong>r lubricant<br />
? Assorted sizes of safety pins<br />
? Cleansing agent/soap<br />
? Latex gloves (2 pair)<br />
? Sunscreen<br />
N<strong>on</strong>-prescripti<strong>on</strong> drugs<br />
? Aspirin or n<strong>on</strong>-aspirin pain reliever<br />
? Anti-diarrhea medicati<strong>on</strong><br />
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? Antacid (for stomach upset)<br />
? Syrup of Ipecac (use to induce vomiting if advised by <strong>the</strong> Pois<strong>on</strong> C<strong>on</strong>trol Center)<br />
? Laxative<br />
? Activated charcoal (use if advised by <strong>the</strong> Pois<strong>on</strong> C<strong>on</strong>trol Center)<br />
C<strong>on</strong>tact your local American Red Cross chapter to obtain a basic first aid manual.<br />
SUPPLIES<br />
There are six basics you should stock in your home: water, food, first aid supplies, clothing and bedding, tools<br />
and emergency supplies and special items. Keep <strong>the</strong> items that you would most likely need during an<br />
evacuati<strong>on</strong> in an easy-to-carry c<strong>on</strong>tainer--suggested items are marked with an asterisk(*). Possible c<strong>on</strong>tainers<br />
include a large, covered trash c<strong>on</strong>tainer, a camping backpack, or a duffle bag.<br />
Tools and Supplies<br />
? Mess kits or paper cups, plates and plastic utensils*<br />
? Emergency preparedness manual*<br />
? Battery-operated radio and extra batteries*<br />
? Flashlight and extra batteries*<br />
? Cash or traveler's checks, change*<br />
? N<strong>on</strong>-electric can opener, utility knife*<br />
? Fire extinguisher: small canister, ABC type<br />
? Tube tent<br />
? Pliers<br />
? Tape<br />
? Compass<br />
? Matches in a waterproof c<strong>on</strong>tainer<br />
? Aluminum foil<br />
? Plastic storage c<strong>on</strong>tainers<br />
? Signal flare<br />
? Paper, pencil<br />
? Needles, thread<br />
? Medicine dropper<br />
? Shut-off wrench to turn off household gas and water<br />
? Whistle<br />
? Plastic sheeting<br />
? Map of <strong>the</strong> area (for locating shelters)<br />
Sanitati<strong>on</strong><br />
? Toilet paper, towelettes*<br />
? Soap, liquid detergent*<br />
? Feminine supplies*<br />
? Pers<strong>on</strong>al hygiene items*<br />
? Plastic garbage bags & ties (for pers<strong>on</strong>al sanitati<strong>on</strong> uses)<br />
? Plastic bucket with tight lid<br />
? Disinfectant<br />
? Household chlorine bleach<br />
Clothing and Bedding<br />
*Include at least <strong>on</strong>e complete change of clothing and footwear per pers<strong>on</strong>.<br />
? Sturdy shoes or work boots*<br />
? Hat and gloves<br />
? Rain gear*<br />
? Thermal underwear<br />
? Blankets or sleeping bags*<br />
? Sunglasses<br />
Special Items<br />
Remember family members with special needs, such as infants and elderly or disabled pers<strong>on</strong>s.<br />
? For Baby*<br />
o<br />
Formula<br />
o<br />
Diapers<br />
o<br />
Bottles<br />
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o<br />
Powdered milk<br />
o<br />
Medicati<strong>on</strong>s<br />
? For Adults*<br />
o<br />
Heart and high blood pressure medicati<strong>on</strong><br />
o<br />
Insulin<br />
o<br />
Prescripti<strong>on</strong> drugs<br />
o<br />
Denture needs<br />
o<br />
C<strong>on</strong>tact lenses and supplies<br />
o<br />
Extra eye glasses<br />
? Entertainment--games and books.<br />
? Important Family Documents - Keep <strong>the</strong>se records in a waterproof, portable c<strong>on</strong>tainer.<br />
o<br />
Will, insurance policies, c<strong>on</strong>tracts, deeds, stocks and b<strong>on</strong>ds<br />
o<br />
Passports, social security cards, immunizati<strong>on</strong> records<br />
o<br />
Bank account numbers<br />
o<br />
Credit card account numbers and companies<br />
o<br />
Inventory of valuable household goods, important teleph<strong>on</strong>e numbers<br />
o<br />
Family records (birth, marriage, death certificates)<br />
SUGGESTIONS AND REMINDERS<br />
? Store your kit in a c<strong>on</strong>venient place known to all family members. Keep a smaller versi<strong>on</strong> of <strong>the</strong><br />
Emergency Supplies Kit in <strong>the</strong> trunk of your car.<br />
? Keep items in air-tight plastic bags.<br />
? Change your stored water supply every six m<strong>on</strong>ths so it stays fresh.<br />
? Rotate your stored food every six m<strong>on</strong>ths.<br />
? Re-think your kit and family needs at least <strong>on</strong>ce a year. Replace batteries, update clo<strong>the</strong>s, etc.<br />
? Ask your physician or pharmacist about storing prescripti<strong>on</strong> medicati<strong>on</strong>s.<br />
CREATE A FAMILY EMERGENCY PLAN<br />
To get started...C<strong>on</strong>tact your local emergency management or civil defense office and your local American Red<br />
Cross chapter.<br />
? Find out which emergencies are most likely to happen in your community.<br />
? Ask how you would be warned.<br />
? Find out how to prepare for each.<br />
Meet with your family.<br />
? Discuss <strong>the</strong> types of emergencies that could occur.<br />
? Explain how to prepare and resp<strong>on</strong>d.<br />
? Discuss what to do if advised to evacuate.<br />
? Practice what you have discussed.<br />
Plan how your family will stay in c<strong>on</strong>tact if separated by an emergency.<br />
? Pick two meeting places:<br />
A locati<strong>on</strong> a safe distance from your home in case of fire.<br />
A place outside your neighborhood in case you can't return home.<br />
? Choose an out-of-state friend as a "check-in c<strong>on</strong>tact" for every<strong>on</strong>e to call.<br />
Complete <strong>the</strong>se emergency steps.<br />
1. Post emergency teleph<strong>on</strong>e numbers by every ph<strong>on</strong>e.<br />
2. Show resp<strong>on</strong>sible family members how and when to shut off water, gas and electricity at main<br />
switches.<br />
3. Install a smoke detector <strong>on</strong> each level of your home, especially near bedrooms; test m<strong>on</strong>thly and<br />
change <strong>the</strong> batteries two times each year.<br />
4. C<strong>on</strong>tact your local fire department to learn about home fire hazards.<br />
5. Learn first aid and CPR. C<strong>on</strong>tact your local American Red Cross chapter for informati<strong>on</strong> and<br />
training.<br />
Meet with your neighbors.<br />
Plan how <strong>the</strong> neighborhood could work toge<strong>the</strong>r after an emergency. Know your neighbors' skills (medical,<br />
technical). C<strong>on</strong>sider how you could help neighbors who have special needs, such as elderly or disabled<br />
pers<strong>on</strong>s. Make plans for child care in case parents can't get home. Use Block Watch strategies to maintain<br />
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order if necessary.<br />
Remember to practice and maintain your plan.<br />
The Federal Emergency Management Agency's Community and Family Preparedness Program and <strong>the</strong><br />
American Red Cross Emergency Educati<strong>on</strong> Program are nati<strong>on</strong>wide efforts to help people prepare for<br />
emergencies of all types. For more informati<strong>on</strong>, please c<strong>on</strong>tact your local or State Office of Emergency<br />
Management, and your local American Red Cross chapter. Ask for "Your Family Emergency Plan" and <strong>the</strong><br />
"Emergency Preparedness Checklist."<br />
Listen to NOAA Wea<strong>the</strong>r Radio or local radio or TV stati<strong>on</strong>s for evacuati<strong>on</strong> instructi<strong>on</strong>s. If advised to evacuate,<br />
do so immediately.<br />
Reference guides:<br />
http://www.fema.gov/rrr/famplan.shtm<br />
http://www.lacetolea<strong>the</strong>r.com/hom.html<br />
http://www.batterysavers.com/Essentials.htm<br />
(1) "MightyFax"<br />
Dutch's Bits, Buts, & Bytes<br />
Like perhaps many of you, I have l<strong>on</strong>g been searching for a simple,<br />
reliable, user-friendly, & inexpensive FAX software to use <strong>on</strong> my<br />
PC and laptop. (I have found <strong>the</strong> FAX software provided with<br />
Windows XP to be ... ummm ... nicely put .. somewhat LACKING.)<br />
Well, I think my search is over & it is worth recommending to those of you who do<br />
not yet have fully satisfactory FAX capabilities <strong>on</strong> your PC.<br />
The software is called "MightyFax" and is available <strong>on</strong>line from:<br />
http://www.rkssoftware.com/mightyfax/overview.html<br />
You can "buy it" immediately for downloading and use OR you can download, install,<br />
and use a trial copy for 30 days free of charge, to make sure you like it. If you do,<br />
you may <strong>the</strong>n purchase <strong>the</strong> complete versi<strong>on</strong> for a <strong>on</strong>e time fee of $19.95. The<br />
download is small (under 3.0 MB), is "idiot-proof" to install, and it works great. The<br />
set-up, send, and receive functi<strong>on</strong>s are explained clearly and, best of all, it can send<br />
ANYTHING via FAX that you can normally send to your printer ... that is, letters,<br />
notes, graphics, forms, etc. In short, if you can PRINT IT, "MightyFax" can send it as<br />
a FAX.<br />
I am normally loath to use this venue to recommend ANY commercial products, but<br />
in this case I was so impressed that I felt an excepti<strong>on</strong> might well be justified for<br />
"MightyFax". The above LINK will give you all <strong>the</strong> details you'd like to know if you<br />
are interested. I hope this "hint" is helpful to those members needing or wanting a<br />
"quick and easy" FAX capability <strong>on</strong> <strong>the</strong>ir computers.<br />
(2) Questi<strong>on</strong>: Many times, while <strong>on</strong> <strong>the</strong> Internet, I get annoying Java script error<br />
messages that pop up time after time. They ask if I want to c<strong>on</strong>tinue displaying Java<br />
scripts, but no matter which butt<strong>on</strong> I click, <strong>the</strong> result is <strong>the</strong> same. I have g<strong>on</strong>e into <strong>the</strong><br />
Advanced tab under Internet Opti<strong>on</strong>s and de-selected <strong>the</strong> "Display a notificati<strong>on</strong><br />
about every script error" opti<strong>on</strong>, to no avail. What can I do to exorcise <strong>the</strong>se<br />
absolutely useless messages?<br />
Answer: You came very close to solving your own problem when you unchecked<br />
"Display a notificati<strong>on</strong> about every script error." In this very same menu, all you<br />
http://www.webwhispers.org/news/oct<strong>2005</strong>.htm<br />
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3/30/08 8:22 PM<br />
need do is put a check next to "Disable Script Debugging" and you will cast out <strong>the</strong><br />
dem<strong>on</strong> and be able to browse an Internet chock full of Java errors without being<br />
hounded to debug a single faulty Java script.<br />
(3) Evacuating Houst<strong>on</strong>: In reacti<strong>on</strong> to Hurricane Rita, at 05:30 AM <strong>on</strong> 22<br />
September, your humble <strong>Web</strong>master began to evacuate Houst<strong>on</strong> by car for refuge<br />
with an old friend in Austin, TX (a mere 202 miles away). By 2:00 AM <strong>on</strong> 23<br />
September (20.5 hours later), I had made it as far as Brenham, TX ... <strong>on</strong>e hundred<br />
miles from home ... making an average of 5 miles an hour. I <strong>the</strong>n pulled off <strong>the</strong><br />
highway, took a 4 hour nap, and resumed my travels (and a hunt for gas), eventually<br />
arriving at my friend's house at 1:30 PM, thus completing <strong>the</strong> 202 mile trip in about 32<br />
HOURS! The return trip, <strong>on</strong> 28 September, took <strong>on</strong>ly 3 hours and 10 minutes. My<br />
c<strong>on</strong>clusi<strong>on</strong>: Houst<strong>on</strong> needs to "refine" its evacuati<strong>on</strong> planning!! LOL! Live and<br />
learn! My thoughts and prayers are with all <strong>the</strong> Katrina and Rita victims ... and I<br />
c<strong>on</strong>sider myself blessed in being spared <strong>the</strong> wrath of both. I will c<strong>on</strong>tinue to "knock<br />
<strong>on</strong> wood". Best to all!<br />
ListServ "Flame Warriors"<br />
Terms of Importance<br />
flame<br />
1. n. A hostile, often unprovoked, message directed at a participant of an internet discussi<strong>on</strong> forum. The<br />
c<strong>on</strong>tent of <strong>the</strong> message typically disparages <strong>the</strong> intelligence, sanity, behavior, knowledge, character, or<br />
ancestry of <strong>the</strong> recipient.<br />
2. v. The act of sending a hostile message <strong>on</strong> <strong>the</strong> internet.<br />
flame warrior<br />
1. n. One who actively flames, or willingly participates in a flame war ... (Ano<strong>the</strong>r Example Below) ...<br />
CENTURION<br />
http://www.webwhispers.org/news/oct<strong>2005</strong>.htm<br />
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3/30/08 8:22 PM<br />
Centuri<strong>on</strong> tries to gain tactical advantage in battle by asserting that he is, or was at <strong>on</strong>e<br />
time, in <strong>the</strong> military. He affects <strong>the</strong> brusque demeanor and clipped style of a drill sergeant,<br />
and intimidates opp<strong>on</strong>ents by sprinkling his messages with military verbiage and obscure<br />
acr<strong>on</strong>yms. He reinforces weak arguments by c<strong>on</strong>stantly reminding o<strong>the</strong>r Warriors that he<br />
has ?d<strong>on</strong>e his duty?, or ?served his country?. Sometimes Centuri<strong>on</strong> may even post pictures<br />
of military hardware or images of himself in fatigues brandishing a weap<strong>on</strong>. Centuri<strong>on</strong> may<br />
actually have a military background, or he may just be a nut case - no <strong>on</strong>e really knows.<br />
Above courtesy of Mike Reed<br />
See more of his work at: http://redwing.hutman.net/%7Emreed/<br />
Welcome To Our New Members:<br />
I would like to welcome all new laryngectomees, caregivers and professi<strong>on</strong>als to<br />
<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g>! There is much informati<strong>on</strong> to be gained from <strong>the</strong> site and from<br />
suggesti<strong>on</strong>s submitted by our members <strong>on</strong> <strong>the</strong> Email lists. If you have any<br />
questi<strong>on</strong>s or c<strong>on</strong>structive criticism please c<strong>on</strong>tact Pat or Dutch at<br />
Editor@<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g>.org.<br />
Take care and stay well!<br />
Murray Allan, WW President<br />
We welcome <strong>the</strong> 32 new members who joined us during September <strong>2005</strong>:<br />
Sharell Babin - Caregiver<br />
Maplewood, MN<br />
Pam Biagio - Caregiver<br />
Washingt<strong>on</strong> Boro, PA<br />
Bill Carter<br />
Mantorville, MN<br />
David D<strong>on</strong>alds<strong>on</strong><br />
Kingst<strong>on</strong>, NY<br />
William George<br />
Laredo, TX<br />
Michelle Joyce - Larynx Cancer Patient<br />
O'Fall<strong>on</strong>, MO<br />
Patricia Larimore - Caregiver<br />
Miami, FL<br />
Pier Logo<br />
Plovdiv, Bulgaria<br />
William Ryan<br />
Port Orange, FL<br />
Gerald Shapiro<br />
Miami, FL<br />
Misty Stanfill - Caregiver<br />
Biloxi, MS<br />
Loretta Baker<br />
Henders<strong>on</strong>ville, TN<br />
Martha Carniglia<br />
Worcester, VT<br />
Manny Castillo<br />
Valley Village, CA<br />
Carol Feck<br />
Lexingt<strong>on</strong>, KY<br />
Kathy Gunter - SLP<br />
LaGrange, GA<br />
Jim Kotowski<br />
Milwaukee, WI<br />
Irving Levens<strong>on</strong><br />
North Lauderdale, FL<br />
Jennifer Rettig - SLP<br />
Dayt<strong>on</strong>, OH<br />
Bushra Sameer - Caregiver<br />
Scarborough, Ont, Canada<br />
Margaret Slack<br />
Teignmouth, Dev<strong>on</strong>, UK<br />
Le<strong>on</strong>ard Weinstein<br />
Deerfield Beach, FL<br />
Edward Berube<br />
Pembroke, NH<br />
Lynn Carrier - SLP<br />
Lake Worth, FL<br />
Helmut Dahmen<br />
Racine, WI<br />
Stanley Friedman - Caregiver<br />
Pacific Palisades, CA<br />
Ro Johns<strong>on</strong><br />
Kailua, HI<br />
Jimmy LaFrance<br />
Bertram, TX<br />
JoAnn Levy - Caregiver<br />
Sutter Creek, CA<br />
Norman Rudy<br />
Highland Lakes, NJ<br />
Joy Schiro - SLP<br />
Neptune, NJ<br />
John Sloan<br />
Framingham MA<br />
<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> is an Internet-based laryngectomee support group.<br />
It is a member of <strong>the</strong> Internati<strong>on</strong>al Associati<strong>on</strong> of Laryngectomees.<br />
http://www.webwhispers.org/news/oct<strong>2005</strong>.htm<br />
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3/30/08 8:22 PM<br />
The current officers are:<br />
Murray Allan..............................President<br />
Pat Sanders.............VP- <strong>Web</strong> Informati<strong>on</strong><br />
Terry Duga..........VP- Finance and Admin.<br />
Libby Fitzgerald......VP- Member Services<br />
Dutch Helms.............VP- Internet Services<br />
<strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> welcomes all those diagnosed with cancer of <strong>the</strong><br />
larynx or who have lost <strong>the</strong>ir voices for o<strong>the</strong>r reas<strong>on</strong>s, <strong>the</strong>ir<br />
caregivers, friends and medical pers<strong>on</strong>nel. For complete informati<strong>on</strong><br />
<strong>on</strong> membership or for questi<strong>on</strong>s about this publicati<strong>on</strong>, c<strong>on</strong>tact<br />
Dutch Helms at: webmaster@webwhispers.org<br />
Disclaimers:<br />
The informati<strong>on</strong> offered via <strong>the</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> <strong>Nu</strong>-<strong>Voice</strong> <strong>Club</strong> and in<br />
http://www.webwhispers.org is not intended as a substitute for professi<strong>on</strong>al<br />
medical help or advice but is to be used <strong>on</strong>ly as an aid in<br />
understanding current medical knowledge. A physician should always be<br />
c<strong>on</strong>sulted for any health problem or medical c<strong>on</strong>diti<strong>on</strong>.<br />
************<br />
The statements, comments, and/or opini<strong>on</strong>s expressed in <strong>the</strong> articles<br />
in <str<strong>on</strong>g>Whispers</str<strong>on</strong>g> <strong>on</strong> <strong>the</strong> <strong>Web</strong> are those of <strong>the</strong> authors <strong>on</strong>ly and<br />
are not to be c<strong>on</strong>strued as those of <strong>the</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> management,<br />
its general membership, or this newsletter's editorial staff.<br />
As a charitable organizati<strong>on</strong>, as described in IRS § 501(c)(3), <strong>the</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g> <strong>Nu</strong>-<strong>Voice</strong> <strong>Club</strong><br />
is eligible to receive tax-deductible c<strong>on</strong>tributi<strong>on</strong>s in accordance with IRS § 170.<br />
? <strong>2005</strong> <strong>Web</strong><str<strong>on</strong>g>Whispers</str<strong>on</strong>g><br />
Reprinting/Copying Instructi<strong>on</strong>s<br />
can be found <strong>on</strong> our<br />
WotW/Journal Page.<br />
http://www.webwhispers.org/news/oct<strong>2005</strong>.htm<br />
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