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Best Medicine Matters Fall 2009 - Mount Sinai Hospital

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FALL <strong>2009</strong><br />

he <strong>Best</strong><br />

<strong>Medicine</strong> <strong>Matters</strong><br />

Heartfelt Thanks: Gavin, Owen,<br />

Ian and Vicki McKenzie celebrate<br />

in utero procedure that repaired<br />

Océane McKenzie’s heart<br />

A PUBLICATION OF THE MOUNT SINAI HOSPITAL FOUNDATION<br />

Giving Thanks:<br />

For rising to<br />

construction<br />

challenges;<br />

For donations<br />

supporting The<br />

<strong>Best</strong> <strong>Medicine</strong>;<br />

For lives saved.


Baby’s<br />

Heart<br />

Repaired<br />

Before<br />

Birth<br />

Dr. Ryan describes the procedure:<br />

“Under ultrasound guidance, we<br />

inserted a needle into the left ventricle<br />

of the baby’s heart and passed a guide<br />

wire and balloon through the narrowed<br />

aortic heart valve, and infl ated the<br />

balloon to open the valve.”<br />

“This intervention was minimally<br />

invasive for the mother and lifesaving for<br />

the baby,” says Dr. Ryan. “Océane’s heart<br />

condition improved almost immediately.”<br />

Océane McKenzie<br />

Vicki McKenzie knows a lot about the<br />

human heart. “I know the valves, the<br />

numbers, the gradients. I would never<br />

have known that a year ago,” she says.<br />

A year ago, McKenzie hadn’t heard the<br />

words that would send her and husband<br />

Ian on an incredible medical journey. “They<br />

Dr. Greg Ryan with Océane McKenzie<br />

said, ‘Your baby has a very sick heart.’” An<br />

ultrasound in Ottawa had revealed that<br />

the valve from her baby’s left ventricle<br />

was severely narrowed. Untreated,<br />

this would lead to a shrunken, scarred<br />

ventricle which would require several<br />

major surgeries to enable baby Océane<br />

to survive and which would drastically<br />

reduce her chances for a normal lifespan.<br />

Three days later, the McKenzies were in<br />

Toronto seeing Dr. Greg Ryan, head of<br />

the Fetal <strong>Medicine</strong> Unit at <strong>Mount</strong> <strong>Sinai</strong>,<br />

and Dr. Edgar Jaeggi, head of the Fetal<br />

Cardiac Program at SickKids. The team<br />

proposed an experimental in-utero<br />

surgical procedure that had never been<br />

successfully carried out in Canada.<br />

“The team were willing to try something<br />

they had never done before to save our<br />

child. It really touches our hearts,” said Vicki.<br />

“What they did in-utero saved her,”<br />

says Vicki. At four months old, Océane<br />

is adored by her brothers, Gavin, 7 and<br />

Owen, 4. She weighs nine pounds and<br />

is doing very well. She is living up to her<br />

name — inspired by the Pacifi c Ocean.<br />

“We named her just before the<br />

procedure,” says Vicki. “The ocean is<br />

deep, strong, stubborn and a miracle on<br />

its own — just like our little girl.”<br />

Donor Role in<br />

Medical First<br />

At a press conference announcing<br />

the successful procedure, Dr.<br />

Greg Ryan said the Philips IU22<br />

ultrasound machines used to<br />

diagnose Océane’s condition<br />

and for the procedure had been<br />

provided by donors.<br />

“These donors are very happy<br />

that their gifts have made such<br />

a tangible difference to this little<br />

girl,” said Dr. Ryan.<br />

“But the remainder of our<br />

ultrasound machines are ageing<br />

models, which urgently need to<br />

be replaced,” he added. “Only<br />

with the best equipment can we<br />

help our tiny unborn patients,<br />

right from the start.”


Donors Keep NICU<br />

Equipment Current<br />

Jason Macartney with donor-funded<br />

equipment in the Valentine Neonatal<br />

Intensive Care Unit<br />

“I can’t express how much this means<br />

to our patients and families,” says Jason<br />

Macartney, Registered Respiratory Therapist,<br />

Clinical Co-ordinator for the Valentine<br />

Neonatal Intensive Care Unit (NICU).<br />

Macartney is talking about equipment<br />

donations. “These gifts allow the<br />

acquisition of infant ventilators that<br />

support the breathing of some of our<br />

smallest patients, infusion pumps that<br />

deliver medications to patients and<br />

transport equipment that allows us to take<br />

patients for diagnostic tests or to a facility<br />

closer to home for the family,” he says.<br />

New physiological monitors are another<br />

critical need. “Physiological monitors<br />

are a much-needed component in the<br />

care of the critically ill neonates,” says<br />

Rheney Castillo, Senior Director, Women’s<br />

and Infants’ Health and Nursing. “The<br />

monitors are designed to measure<br />

specifi c parameters such as temperature,<br />

heart rate, breathing rate, oxygen<br />

saturation, blood pressure. This helps<br />

clinicians to assess the neonate and<br />

make decisions about their care.”<br />

“We are grateful that donors<br />

recognize the immense value of these<br />

sophisticated monitors,” says Castillo.<br />

The benefi ts of equipment donations<br />

go well beyond the hardware. As<br />

Macartney says, “Being able to put the<br />

best technology and equipment at the<br />

bedside for our staff goes a long way in<br />

promoting a culture of excellence in our<br />

workplace. It creates a sense of pride<br />

and commitment and helps us to retain<br />

the best and the brightest people.”<br />

Welcome to The <strong>Best</strong> <strong>Medicine</strong> <strong>Matters</strong>! The timing of this edition, so close to<br />

Thanksgiving, inspired us to gather stories with a ‘giving thanks’ theme.<br />

This theme gives me a perfect opportunity to thank you, our wonderful donors. Every<br />

day, I see the evidence of your contributions — in the new addition to our Murray<br />

Street tower, in new equipment, in every exciting research discovery. I see your<br />

contributions, too, in the heartwarming sight of families taking home their new little<br />

boy or girl — and occasionally both!<br />

<strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong> and the Samuel Lunenfeld Research Institute continue to go from<br />

strength to strength because you have chosen to make us your philanthropic priority. I<br />

am very grateful for all that you do.<br />

I hope you enjoy the stories in this newsletter. And I hope you also enjoy our newly<br />

expanded Giving Catalogue, which we’re promoting in this edition. The Giving<br />

Catalogue and our Holiday Cards offer many wonderful ways to show your gratitude<br />

and appreciation to friends, family and colleagues. With the holiday season fast<br />

approaching, I hope you will be inspired to give great gifts with great meaning.<br />

Warm regards,<br />

Susan Horvath<br />

President, <strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong> Foundation<br />

3


Legacy Helps Build Future Science<br />

Three young scientists at the Samuel<br />

Lunenfeld Research Institute of <strong>Mount</strong><br />

<strong>Sinai</strong> <strong>Hospital</strong> have made strides toward<br />

redefining the diagnosis, treatment and<br />

prevention of cancer — work made<br />

possible through legacy gifts. When Doris<br />

Mack made a gift in her will to support<br />

trainees in honour of her late husband<br />

Harold she may not have realized the<br />

impact it would have.<br />

PhD candidate Kelly Seto received a<br />

bursary to work in Dr. Irene Andrulis’s<br />

lab, where she is studying familial<br />

ovarian cancer. “Every day I’m thankful<br />

to be in the presence of such gifted<br />

researchers,” says Seto. “Nowhere else<br />

could I experience such a strong link<br />

between what happens in the lab, and<br />

its application to hospital care.”<br />

Ian Taylor, a PhD candidate and<br />

bursary recipient working with<br />

Senior Investigator Dr. Jeff Wrana,<br />

PhD candidate Kelly Seto, with Doris<br />

Mack’s attorney and executor of her<br />

estate, John Honsberger<br />

contributed to the development of<br />

‘DyNeMo’ — a diagnostic tool for<br />

breast cancer patients. He explains<br />

that donations fund research and help<br />

investigators pay for grant applications<br />

that can attract even greater funding to<br />

the Lunenfeld.<br />

Postdoctoral fellow Nadine Kolas and her<br />

colleagues in Dr. Daniel Durocher’s lab<br />

recently discovered two new genes that<br />

help cells avoid cancer-causing mutations.<br />

“Research institutes need to keep the<br />

best people in science,” says Kolas.<br />

“Thanks to donor support, the Lunenfeld<br />

is showing how to do it.”<br />

For You<br />

Dr. Allison<br />

McGeer, H1N1<br />

spokesperson,<br />

will appear in<br />

the fall series<br />

of <strong>Sinai</strong> Speaks<br />

An exciting fall lecture series debuts<br />

soon. Exclusively for donors, <strong>Sinai</strong> Speaks<br />

features <strong>Mount</strong> <strong>Sinai</strong> experts discussing<br />

hot health care topics.<br />

The first event takes place on November 23.<br />

Andrea Clark, Clinical Dietitian, will reveal<br />

myths about nutrition and offer tips on how<br />

to eat well to live well. Influenza is the focus<br />

of our second lecture, on November 30,<br />

with Dr. Allison McGeer, Director, Infection<br />

Control, and Christine Moore, Infection<br />

Control Practitioner. Dr. McGeer has been<br />

a key H1N1 spokesperson in the media, and<br />

together with Moore, she will discuss<br />

how to protect yourself against the flu.<br />

“<strong>Sinai</strong> Speaks was developed specifically<br />

for our donors,” says Joan Stevens, Vice-<br />

President, Donor Engagement, <strong>Mount</strong> <strong>Sinai</strong><br />

<strong>Hospital</strong> Foundation. “We received great<br />

feedback from previous lecture events and<br />

we know our donors want health information<br />

that’s useful for their daily lives.”<br />

Lectures will be held at 5:30 p.m. in the<br />

<strong>Hospital</strong>’s Ben Sadowski Auditorium on the<br />

18th floor. Presentations will be followed<br />

by a Q&A session. For more information<br />

please visit www.mshfoundation.ca/<br />

NetCommunity/sinaispeaks or contact<br />

Celane Chan at 416-586-8203 ext. 8476<br />

or cchan2@mtsinai.on.ca.<br />

Exclusive Lecture<br />

Series for Donors —<br />

You’re Invited!<br />

November 23<br />

Hot Topics in Nutrition<br />

With Andrea Clark, Clinical Dietitian<br />

November 30<br />

The Flu and You<br />

With Dr. Allison McGeer and<br />

Christine Moore<br />

All events begin at 5:30 p.m.<br />

and take place in the Ben<br />

Sadowski Auditorium on the<br />

18th floor, <strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong>.<br />

Join Us! http://mshfoundation.ca/NetCommunity/sinaispeaks<br />

Sign up now using the<br />

enclosed coupon!


Patients Thank Bright Minds and Big Hearts<br />

Nora Perry<br />

“Not to worry, we’ll help you.” These were<br />

the reassuring words spoken to Nora Perry<br />

when she was recently diagnosed with<br />

breast cancer and reunited with a nurse<br />

who treated her when she was in the<br />

hospital 23 years ago.<br />

Nora has a long history with <strong>Mount</strong> <strong>Sinai</strong><br />

<strong>Hospital</strong>. In 1984, after finding a lump<br />

on her back, she was brought to <strong>Mount</strong><br />

<strong>Sinai</strong> and diagnosed with Ewing Sarcoma.<br />

For 11 months she was in and out of the<br />

<strong>Hospital</strong> undergoing several surgeries<br />

and eight rounds of chemotherapy. “I<br />

fully expected that the cancer would<br />

come back,” says Nora, but in fact she<br />

ended up having 23 perfectly healthy<br />

and cancer-free years. She attributes this<br />

to the wonderful care she received from<br />

doctors and nurses who she describes as<br />

respectful, caring, thoughtful and kind.<br />

About her recent diagnosis, Nora says,<br />

“I wouldn’t want to be treated anywhere<br />

else. If you have to go through something<br />

like this it’s nice to know you’re going<br />

somewhere where the professionals are<br />

so empathetic and kind.” She speaks<br />

highly of all of her <strong>Mount</strong> <strong>Sinai</strong> caregivers,<br />

from the massage therapists, to<br />

her doctors, to the Reiki therapist who<br />

provided tremendous emotional support.<br />

“This is as good as it gets,” says Nora. “It<br />

does not get any better than <strong>Mount</strong> <strong>Sinai</strong>.”<br />

Hamza Al Mathno<br />

Dear Madam/Sir,<br />

My name is Hamza, I am three weeks old. I<br />

was born at <strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong> on April 4,<br />

<strong>2009</strong>. Many thanks to the professional and<br />

dedicated staff that took care of my mother<br />

and me while we were hospitalized.<br />

I would like to participate in supporting<br />

<strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong> so other kids and<br />

patients can benefit from the care you<br />

provide. Enclosed is my donation to<br />

<strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong>.<br />

Thank you,<br />

Baby boy Hamza Al Mathno<br />

Young donor<br />

Hamza Al Mathno<br />

Christine & John Schuman<br />

When Christine Schuman was 18 weeks<br />

pregnant, an ultrasound revealed that her<br />

unborn baby had a urinary tract obstruction<br />

that was causing problems with his<br />

bladder and kidneys. Christine was referred<br />

to Dr. Greg Ryan and eventually a bladder<br />

shunt was inserted into the baby’s bladder<br />

to relieve the pressure and attempt to<br />

save his kidney function.<br />

“Dr. Ryan and the nurses and fellows<br />

were very compassionate and understood<br />

what an emotional and difficult time we<br />

were going through,” says Christine.<br />

Jack Schuman had<br />

a bladder shunt<br />

inserted before birth<br />

The procedure was successful and<br />

Christine was monitored until her son<br />

was born at 38 weeks weighing 8<br />

pounds 4 ounces. The shunt stayed in<br />

past delivery and did its job preserving<br />

her baby’s kidney function. Christine<br />

and her husband John say they had a<br />

wonderful birthing experience at <strong>Mount</strong><br />

<strong>Sinai</strong> and they can’t thank Dr. Ryan and<br />

his team enough for everything they did.<br />

“We know if it were not for the talented<br />

and committed professionals in the Special<br />

Pregnancy Unit, our son may not have lived,<br />

or if he did, he would have serious kidney<br />

problems,” says Christine. “We are so lucky<br />

to have him and we’re grateful that we are<br />

able to go to a hospital like <strong>Mount</strong> <strong>Sinai</strong>.”<br />

Upcoming Events<br />

For details, please see the Calendar of Events at www.mshfoundation.ca or call 416-586-8203.<br />

Monthly<br />

Online Auction for Chronic Pain at<br />

www.nhl.com, hosted by AJ Sports<br />

World. All proceeds go to Miriam’s<br />

Fund, Wasser Pain Management<br />

Centre at <strong>Mount</strong> <strong>Sinai</strong>.<br />

November 12, 6:30 p.m.<br />

Leadership <strong>Sinai</strong> Dinner with Scientists<br />

<strong>2009</strong>; $180 per person<br />

November 28, 4 p.m.<br />

<strong>Mount</strong> <strong>Sinai</strong> Day at Marlies<br />

$5 from every ticket purchased through<br />

<strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong><br />

December 3, noon to 1:30 p.m.<br />

Leadership <strong>Sinai</strong> Lunch with Leaders<br />

featuring David Rosenberg, Chief<br />

Economist and Strategist, Gluskin Sheff;<br />

members $25; non-members $35


Rising to Construction<br />

Challenges<br />

Patients, visitors and staff have been understanding of disruptions caused during construction of the new Lawrence and Frances<br />

Bloomberg Centre for Women’s and Infants’ Health<br />

“I would really like to thank everyone<br />

for their incredible patience,” says Altaf<br />

Stationwala, Senior Vice-President,<br />

Operations and Re-development at<br />

<strong>Mount</strong> <strong>Sinai</strong> <strong>Hospital</strong>. “This has been<br />

a very challenging undertaking; one<br />

that has been made easier with the<br />

understanding of visitors to the <strong>Hospital</strong>.”<br />

Stationwala is referring to <strong>Mount</strong> <strong>Sinai</strong>’s<br />

ambitious redevelopment project, which<br />

has just reached another major milestone.<br />

The shell of the six-storey expansion of<br />

what will become the new Lawrence and<br />

Frances Bloomberg Centre for Women’s<br />

and Infants’ Health has been completed<br />

and outfitting the space has begun.<br />

Every construction project has its challenges,<br />

but the complex task of upgrading<br />

structures and building new spaces within<br />

the confines of a working hospital takes a<br />

delicate approach. Stationwala has been<br />

responsible not only for keeping the project<br />

on track, but at the same time minimizing<br />

disruption to patients, staff and visitors<br />

caused by construction-related road closures<br />

and out-of-service elevators. It requires<br />

extraordinary timing and co-ordination, and<br />

a generous helping of compassion to ensure<br />

that patients’ safety and comfort are upheld.<br />

Stationwala expects periodic delays will<br />

continue, but he says there is light at the<br />

end of the tunnel. “The impact of the past<br />

year’s disruptions will materialize in this<br />

phase of construction, as we begin to see<br />

the tangible benefit of the new space.”<br />

The new Centre has been designed<br />

to integrate state-of-the-art medical<br />

technology and infection control<br />

processes, allow natural light, conserve<br />

energy, and fulfill the comfort, safety<br />

and privacy needs of patients and staff.<br />

When it opens in 2010, patients and visitors<br />

can expect a warm, welcoming and healing<br />

environment, and an efficient, modern<br />

and comfortable workplace that will help<br />

our doctors, nurses and staff further the<br />

delivery of patient- and family-centred care.<br />

6


Lowering Barriers to<br />

Mammogram Access<br />

When Linda Muraca, Nurse-Clinician in <strong>Mount</strong> <strong>Sinai</strong>’s Marvelle<br />

Koffler Breast Centre, was asked in 2007 by the Centre for<br />

Independent Living in Toronto (CILT) to do presentations on<br />

breast health for women with disabilities, she thought, “That’s<br />

interesting.” And so it was.<br />

“I thought the problems they were sharing with us were<br />

isolated, but I kept hearing more disturbing stories,” said<br />

Muraca. Women told her about going for a mammogram, only<br />

to find that the machine couldn’t move to accommodate them.<br />

They talked about encounters with health care staff who would<br />

speak only to their caregivers or family members. They talked<br />

about entering a mammography room in a wheelchair, and<br />

being asked to “hop up on the table.”<br />

“Many of these women had a family history of breast cancer,<br />

but their doctors would gloss over it, saying they had enough to<br />

deal with already,” says Muraca.<br />

The CILT sessions inspired Gateways to Cancer Screening,<br />

a project that became part of Muraca’s Masters in Nursing<br />

coursework at the Lawrence S. Bloomberg Faculty of Nursing,<br />

University of Toronto. Muraca teamed up with Nancy Barry,<br />

CILT’s peer support and volunteer co-ordinator, whose own<br />

negative mammogram experience inspired her to invite Muraca<br />

to CILT in the first place. Five focus groups were led in Toronto<br />

and Peel Region.<br />

“Accessibility issues are very widespread,” says Barry. Fortunately,<br />

the Marvelle Koffler Breast Centre offers quite good access. “The<br />

doorways are wide enough so that women can comfortably<br />

wheel in, the machines move up and down, and that lowers<br />

the patients’ anxiety,” says Muraca. The change rooms aren’t<br />

wheelchair accessible, but staff now suggest that women with<br />

disabilities simply change in the mammography room.<br />

<strong>Mount</strong> <strong>Sinai</strong> Breast Imaging staff, Muraca adds, have been<br />

extremely supportive. “Some women who have had horrible<br />

previous experiences have come here and been very happy,”<br />

she says. By asking all new patients if they need any special<br />

accommodation, staff ensure that women with disabilities<br />

receive extra appointment time and an extra technician to<br />

assist with the mammogram procedure.<br />

The Gateways momentum continues. Muraca, Barry and colleagues<br />

have received funding from the Canadian Breast Cancer Foundation<br />

to develop an educational strategy designed to improve the breast<br />

cancer experience for women with disabilities.<br />

“The idea is to get the information from the women right to<br />

the health-care providers,” says Barry. The program will employ<br />

scenarios revealed by Gateways to develop DVDs that can be<br />

used in training health-care staff. Barry describes their plan as<br />

“a Disability Awareness 101.”<br />

“We work in a rushed environment at times, but it’s all about<br />

listening and respect,” says Muraca.<br />

7


1001 – 522 University Avenue<br />

Toronto, Ontario, Canada M5G 1W7<br />

<br />

<br />

<br />

<br />

<br />

<br />

<br />

We’re building a better future for women and infants, Right from the Start. See our website for information.<br />

Research Creates The <strong>Best</strong> <strong>Medicine</strong> — read all about it at www.mshfoundation.ca.<br />

Big Thanks from a Little Boy<br />

Cooper White points to his dove<br />

By all accounts, Cooper White’s ninth<br />

birthday party was pretty spectacular. It<br />

was held at a gymnastics facility with<br />

a sponge pit and climbing ropes and a<br />

sponge wall that the birthday boy knocked<br />

down himself. Wrapped up with all the<br />

fun and games was a serious endeavour<br />

— fundraising for <strong>Mount</strong> <strong>Sinai</strong>’s Valentine<br />

Neonatal Intensive Care Unit (NICU). For<br />

the second year in a row, Cooper asked his<br />

friends for donations, instead of birthday<br />

gifts. Cooper’s generosity inspired his<br />

friends to respond in kind, and he raised<br />

over $500 for the NICU.<br />

“I wanted to thank the nurses and I<br />

wanted to help the little babies again,”<br />

Cooper said as he handed his birthday<br />

donation to Melissa Cooper, RN, NICU,<br />

accompanied by his younger brother,<br />

Wyatt, and his parents, Cathy Coulthard<br />

and David White.<br />

Not so long ago, Cooper was one of those<br />

“little babies”. “I weighed about 2.5 lb.<br />

when I was born,” he said. Cooper spent<br />

almost three weeks in <strong>Mount</strong> <strong>Sinai</strong>’s NICU<br />

before he was transferred to a hospital<br />

closer to his family’s Burlington home.<br />

“What he’s done is so great,” said<br />

Melissa Cooper. “It’s amazing to get this<br />

much appreciation.”<br />

“It’s all his own idea,” said Cathy. “He<br />

talks about it a lot, the fact that if people<br />

hadn’t donated to <strong>Mount</strong> <strong>Sinai</strong> before, he<br />

might not be here. He has one of those<br />

doves with his name on it on the wall,<br />

and we used to drop by and look at it.”<br />

“I saw it on the way here today,” said<br />

Cooper. Clearly, he’s a boy who makes the<br />

most of every minute — and every birthday.<br />

1001 – 522 University Avenue, Toronto, Ontario, Canada M5G 1W7<br />

t 416-586-8203 f 416-586-8639 foundation@mtsinai.on.ca www.mshfoundation.ca<br />

Charitable Registration #119048106 RR0001<br />

DM09I<br />

<strong>2009</strong>03155

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