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MAKING<br />
Bringing positive change in the lives of those affected by Acquired Brain Injury<br />
Spring 2010 Issue<br />
Making <strong>Headway</strong> is published by<br />
Inside<br />
Fundraising News 2<br />
Telling Tales 3<br />
<strong>Headway</strong>’s First Annual Bikers’ Run 5<br />
Helping Each Other Out... 6<br />
Research into Practice 7<br />
My Story, My Promise 9<br />
Research Round Up 11<br />
1
Welcome to the Summer Edition<br />
of Making <strong>Headway</strong><br />
Having friends and a social life is something we can easily take for granted but it is<br />
important for our wellbeing that we have both. As Julie, one of our contributors<br />
says – “we are all social beings”. Having a brain injury, or looking after someone with a<br />
brain injury can introduce challenges to getting out and about socially. In this summer<br />
edition of Making <strong>Headway</strong>, some of the articles put a focus on this aspect of life<br />
following injury and I hope you find them stimulating and interesting.<br />
We also have our usual round up of fundraising, research and other news, so I hope you<br />
find plenty to enjoy.<br />
Thanks to each and every one of you who chose to receive Making <strong>Headway</strong> either through<br />
email or post by responding to our survey. As ever, please send your comments, ideas or<br />
contributions to me at stablesr@headway.ie and enjoy the summer!<br />
Richard, Editor, Making <strong>Headway</strong><br />
A Message from the Chief Executive<br />
Dear Reader,<br />
News across the political and commercial<br />
world is continuously negative. However,<br />
services in the voluntary disability sector<br />
continue to be delivered in a positive and<br />
professional manner by caring people<br />
operating with a consistent degree of<br />
enthusiasm and creativity.<br />
In times of difficulty, we tend to renew and<br />
identify with the “meitheal” spirit – the old Irish<br />
word for “connection with neighbour” or “spirit of<br />
community”. The meitheal spirit looks to family<br />
and friends, kindred souls, supporters of a cause<br />
and communities of interest. A problem shared<br />
is a problem halved and difficulties are often<br />
opportunities to better things. The meitheal<br />
spirit encourages us to achieve something and<br />
celebrate that achievement with others.<br />
The “Crazy Rankins”<br />
The communities of<br />
interests in our chain are<br />
our wonderful clients,<br />
their families and carers,<br />
staff, our wider partners in<br />
the voluntary sector, the<br />
HSE, other State agencies,<br />
volunteers and fundraisers.<br />
What we can achieve together is much greater<br />
than what we can achieve individually, but break<br />
the chain and the service is potentially weakened<br />
or damaged.<br />
These are difficult times but we will prevail if we<br />
adopt the meitheal spirit. Now is the time for us<br />
all to embrace it.<br />
Kieran<br />
Front Cover: Pictures<br />
reading clockwise from<br />
top left: (a) Alan Murphy,<br />
<strong>Headway</strong> Cork trainee at<br />
the launch of a boat built<br />
by the group. (b) Crowds<br />
at the first <strong>Headway</strong> Biker’s<br />
Run. (c) Paraic Crehan,<br />
<strong>Headway</strong> Cork, at the<br />
launch of the coracle built<br />
by <strong>Headway</strong> trainees. (d)<br />
Hilda Hastings at the Cork<br />
art exhibition with her<br />
piece “Gratefully Accepted.<br />
(f) Bikers at the Biker’s Run.<br />
(g) Deidre Patel (<strong>Headway</strong>),<br />
Simon McBeth and Emma<br />
Hopwood from Eflow who<br />
have adopted <strong>Headway</strong><br />
as one of their charities<br />
to support. (f) <strong>Headway</strong><br />
Cork Service Users<br />
relaxing with a cuppa. (g)<br />
Dublin Day Service Users<br />
relaxing together. (h)<br />
Ruth (<strong>Headway</strong>) and Ellen<br />
collecting for <strong>Headway</strong><br />
during Brain Awareness<br />
Week.<br />
A huge thank you has to go to the “Crazy Rankins”<br />
who are: Andrew Rankin, Robert Searson and<br />
Lyndsey Rankin (pictured right). They all took<br />
part in The Wicklow Adventure Race on 17th<br />
April and ran, kayaked and cycled a staggering<br />
73km around Wicklow. It took 5hours and 30<br />
minutes to complete the challenge. Between<br />
them they raised a very impressive €2,020 in<br />
aid of <strong>Headway</strong>. We are very grateful and very<br />
impressed by their support.<br />
Andrew, Robert and Lyndsey, aka the “Crazy Rankins”<br />
2
Making <strong>Headway</strong> Summer 2010<br />
Telling Tales<br />
<strong>Headway</strong> Finglas Trainees Troy Donnelly, John<br />
Grundy and Tommy Leonard and are in conversation<br />
with Samantha Whelan about their social and work<br />
lives following brain injury.<br />
John: I’m nearly two years discharged from<br />
hospital after my stroke. For the first few months,<br />
my social life wasn’t great. Since then I see friends<br />
now at least on average two to three time a week.<br />
We usually go out as my apartment is very small.<br />
We might go to the local pub for a coffee and a chat<br />
or to a local restaurant. So in that sense, I would<br />
have a social life, I do get out. The only thing is -<br />
my social life is not fully controlled by me. I can’t<br />
just walk out and go to a pub. I won’t go to a pub<br />
on my own, even for a soft drink. I need somebody<br />
to take me. Likewise, visiting is only done strictly<br />
at others invitation and also if I can<br />
get transport. I can’t afford taxis all the<br />
time. So the idea of ringing someone<br />
up and saying “would you mind me<br />
calling up for half an hour” - That’s<br />
gone. So my social life is dependent<br />
on others. Luckily I do have loads of<br />
friends.<br />
Tommy: I’m not as badly off as John is. I<br />
don’t think my social life got too much<br />
affected by the injuries I got. I go out, I always did.<br />
I go for a few pints. I also still enjoy going out with<br />
my wife or my daughter to visit museums and<br />
other places of historical interest. Last week I went<br />
to see a show for the first time in the O2 in Dublin.<br />
Strictly come dancing!<br />
Samantha: Were you under pressure to go there<br />
Tommy or did you go under your own free will<br />
Tommy: I had to be encouraged to go! - But I<br />
enjoyed it. It was grand! One thing that put me off<br />
going again though was the large crowd.<br />
Troy: When I came out of hospital, I went into a<br />
nursing home. When I came out, I didn’t really<br />
have a social life. I’m much more sociable now as<br />
I’m coming to the end of my time here. Attending<br />
<strong>Headway</strong> has helped me to be able to socialise<br />
rather than just vegetating at home. Going on<br />
outings with the group has helped me to be able<br />
to go out with my children -my personality is<br />
more outgoing now. <strong>Headway</strong> has helped me to<br />
deal with a lot of anger that I had so I am able to<br />
socialise better. I find it important to have a sense<br />
of humour to deal with people and situations.<br />
John: I went back to work part time. The first<br />
year after my stroke I never ever thought I would<br />
return to work. I spent seven months in hospital.<br />
During the first two months I was<br />
in danger of not making it. I never<br />
...The first year<br />
after my stroke<br />
I never ever<br />
thought I would<br />
return to work...<br />
thought I would see O’Connell<br />
Street again. I certainly never<br />
believed for one moment that I<br />
would ever be able to go back<br />
to teaching. Emotionally I didn’t<br />
think I could go back. My memory<br />
and my general intellect are fine<br />
-the <strong>Headway</strong> neuropsychological<br />
assessment proved that I am<br />
perfectly ok to teach, but I decided I wasn’t strong<br />
enough. During the second year, in the summer of<br />
2009 I was asked by a guy in charge of the night<br />
school to come back. He said ‘John I don’t see why<br />
you can’t come back. You might have a physical<br />
disability but after a while the students will get<br />
used to that. Concentrate on your ability to teach<br />
rather than your physical disability’. I decided to<br />
give it a go, not thinking for one moment that I<br />
would be successful. I thought I might have to<br />
drop out by Christmas. But now, this is going<br />
extremely well, I’m really enjoying it.<br />
This helped with my social life because I have a<br />
number of teacher friends. One guy was very<br />
good by giving me lifts and I enjoy all the chats in<br />
the staff room.<br />
3
Tommy: I was asked if I would like to do voluntary<br />
work in Collins Barracks and I jumped on the<br />
chance. I never thought that would ever be<br />
allowed to do something like that. Imagine me<br />
coming out of the scrubs in Cabra. I thought,<br />
wow, me going into Collins Barracks to work with<br />
artefacts. I remember hearing about a lot of these<br />
artefacts being dug up in the 70’s and there I end<br />
up... I didn’t think it would happen to me. I felt<br />
privileged. I get to clean the artefacts, cut the foam<br />
and re-bag them to keep them preserved. I also<br />
came up with a more efficient way of doing things<br />
which came from my previous work experience.<br />
This was copied throughout the<br />
project and helped everybody.<br />
Troy: Tommy really enjoys it. When<br />
Tommy comes in from the project<br />
in Collins Barracks we can tell by<br />
Tommy’s face. We can all see the<br />
difference in Tommy since he<br />
started in Collins Barracks.<br />
Tommy:…I get a sense of<br />
achievement from doing the<br />
voluntary work. The only thing<br />
missing now is the money. I hope<br />
that the experience I am getting<br />
will help me to get me a job. The people I work<br />
with in the museum are nice. They make me feel<br />
like one of them.<br />
Troy: That’s good. That’s socialising. It’s getting<br />
you back into society.<br />
Tommy: One day, I was there doing my work<br />
and the phone rang. The girl said ‘Tommy It’s for<br />
you’. I was shocked, I was getting a phone call in<br />
an office. It was one of the other girls who works<br />
there thanking me for work I had done the day<br />
before.<br />
John: You deserve it. What you do is appreciated.<br />
You deserve it.<br />
Tommy: I have to say, fair play to <strong>Headway</strong> even<br />
asking me to go in to Collins Barracks. I never<br />
thought I could do it.<br />
Troy... For<br />
anybody coming<br />
into <strong>Headway</strong>,<br />
acceptance is so<br />
important. After that<br />
it’s onwards and<br />
upwards<br />
John: That’s your lack of confidence.<br />
Tommy: Now I tell everybody in the pub about it!<br />
Troy: I’m on the <strong>Headway</strong> advocacy group which<br />
is great. We’ve all got to know each other. One of<br />
my shortcomings is my loss of short term memory.<br />
I might not remember all of their names but we<br />
meet as friends and we ask how each other’s life<br />
is going. I have travelled to Cork and Limerick for<br />
meetings to meet with group representatives from<br />
both counties. It’s a good way to meet new people.<br />
We come up with ways of how we can make more<br />
people aware of <strong>Headway</strong> and<br />
how to try to come up with ways<br />
of raising funds. I then feedback<br />
the information from the meetings<br />
to the group in Finglas. The best<br />
part for me is making a lot more<br />
friends.<br />
I have also started doing voluntary<br />
work two days a week in a day care<br />
centre that looks after the elderly.<br />
It’s great. It’s all good. I help them<br />
with playing bingo, serving meals<br />
and doing the garden. I will be<br />
going out on social outings. I know<br />
I will gain a lot from doing the voluntary work. It<br />
will help with my confidence and with being able<br />
to socialise with people. That’s a big thing for me -<br />
I had a fear of how I would react to people.<br />
John: Coming to <strong>Headway</strong> has helped me to get<br />
closer to the life I had. It will never be total restored<br />
but I have got a lot better. I am trying slowly to<br />
rebuild my life. <strong>Headway</strong> has been really, really<br />
important.<br />
Tommy: <strong>Headway</strong> must be good because we keep<br />
coming in. Even if sometimes there might be bad<br />
days we still come back the next day. I overheard<br />
people talking about me down in the museum<br />
saying Tommy’s very clever. I give them a lot of<br />
information. I feel equal to everybody else there.<br />
Troy: For anybody coming into <strong>Headway</strong>,<br />
acceptance is so important. After that it’s onwards<br />
and upwards.<br />
4
Making <strong>Headway</strong> Summer 2010<br />
<strong>Headway</strong>’s<br />
First Annual<br />
Bikers’ Run<br />
The country’s capital was over-run on Sunday<br />
March 7th for <strong>Headway</strong>’s first ever Bikers’<br />
event. The sun came out and with it, many<br />
leather-clad motor-bike enthusiasts to help<br />
launch the start of a number of events for<br />
<strong>Headway</strong>’s Brain Awareness Week.<br />
South King St. outside the Gaiety Theatre was<br />
a flush with over 60 bikers who registered<br />
for this very exciting event. This was a first time<br />
outing for <strong>Headway</strong> and as it proved to be highly<br />
successful, we are already making arrangements<br />
for next year’s ride-out. We’d like to take this<br />
opportunity to thank the “Valkyrie<br />
Riders Cruisers Club” (VRCC) whose<br />
committee worked tirelessly to both<br />
promote and round up all the bikers<br />
on the day. With the assistance of<br />
98fm, TR O’Reilly & Cassidy Covers,<br />
Dublin city centre was buzzing with<br />
the sound of motor-bike horns<br />
and the smell of gasoline! Even<br />
An Garda Síochana assisted with a<br />
special escort provided to the bikers<br />
to help them exit the city centre<br />
comfortably! <strong>Headway</strong>’s very own<br />
ambassador, Keith Barry, arrived to<br />
entertain on-lookers, while Siobhan<br />
Lee, a member of <strong>Headway</strong>’s Finance Department,<br />
used her face painting talents to entertain the<br />
younger members of the crowd. There really was<br />
<strong>Headway</strong> Ambassador, Keith<br />
Barry, and friends<br />
a great deal of excitement in the air.<br />
Although this was an awareness raising event for<br />
<strong>Headway</strong>, it also proved very successful from a<br />
fund-raising perspective, in total we collected over<br />
€750 on the morning, all of which<br />
will go towards service provision<br />
here at <strong>Headway</strong>. Again, a very big<br />
thank you to all who supported<br />
<strong>Headway</strong>, it was heart warming to<br />
see such support on a very bright<br />
& early Sunday morning. The bikers<br />
could not have received a better<br />
send off.<br />
<strong>Headway</strong> would also like to say<br />
a huge “Thank you” to Ann and<br />
Paul Nolan, Arthur Smith, Cory<br />
O’Connor, Jo Nolan and Ciaran<br />
Nolan for their support in arranging<br />
the day. Don’t forget to keep an eye out on the<br />
<strong>Headway</strong> web-site for more up-coming events<br />
like these.<br />
A Date with Wellness<br />
Seventeen carers made the most of an invitation to<br />
a “Date with Wellness” to mark the start of National<br />
Carers Week 14th to 20th June in our Manor Street<br />
Dublin centre. As well as the opportunity to offer<br />
each other support and advice for coping with<br />
the consequences of brain injury, the participants<br />
benefitted from sessions on relaxation, meditation<br />
and stress management and were treated to<br />
some muffins and a cream tea on a glorious sunny<br />
Saturday morning.<br />
Carers time out at the “Date with Wellness”<br />
5
Helping Each Other Out – The Cork<br />
Ladies Social Club<br />
The Social Club was set up with the support of the <strong>Headway</strong> Community<br />
Integration Rehabilitation team in Cork. Currently in its early stages, it<br />
comprises three women all local to the Cork area. Julie Slattery writes<br />
about setting up the club.<br />
6<br />
The idea for setting up the Social Club arose<br />
from observing and identifying some particular<br />
challenges faced by people following an injury in<br />
pursuing their social lives. For example, we found<br />
that after their injury, many of our clients’ social<br />
lives revolved primarily around their families. We<br />
noted comments, such as “I was hanging around<br />
with my mum for a lot of the time”, “I spent most<br />
of my time with my family as well, especially my<br />
sisters”. Also, clients reported that during the<br />
period of recovery following injury, friends often<br />
either moved on with their lives or moved away<br />
from the area.<br />
The Social Club aims to increase participation in<br />
social and recreational activities and increase the<br />
members’ confidence in their own social skills. At<br />
the outset, one aim was that this group would<br />
eventually become fully independent following<br />
initial introductions made by <strong>Headway</strong>. The group<br />
would be in charge of arranging and organising<br />
their own activities and maintaining weekly<br />
contact with each other. The members could<br />
however always contact the team should an issue<br />
arise that they needed support with.<br />
This idea was suggested to three clients with<br />
whom <strong>Headway</strong> had been working individually.<br />
Each client had been living and adjusting to their<br />
brain injury for some time and had also expressed<br />
an interest in meeting others socially. One said<br />
“I wanted to meet other people to improve my<br />
confidence in myself and build up my self esteem.<br />
I wanted to have a social life and meet with others.<br />
I wanted to have friendships.” Another lady said “I<br />
wanted to meet other people, even just to have a<br />
cup of tea and a chat with.”<br />
When the group met up they each introduced<br />
themselves, talked about what activities they<br />
might like to do together and exchanged numbers.<br />
The <strong>Headway</strong> team met with them on the first<br />
few occasions but they now, as was hoped, meet<br />
independently of <strong>Headway</strong>. They meet up on<br />
Wednesday afternoons and decide each week<br />
what they will do the following week and where<br />
and when they will meet.<br />
So far the group have sampled a wide range of<br />
activities. They have made trips to the Crawford<br />
Art Gallery, Fitzgerald Park, Cork City Musem and<br />
the Cork Vision Centre and also to Shandon to ring<br />
the bells. The group say that they are particularly<br />
fond of “doing lunch”! As confidence increases, the<br />
group are planning events further afield including<br />
an upcoming trip to Dublin.<br />
Each member of the group has expressed how<br />
much they enjoy meeting and what it means to<br />
them. One lady said “I enjoy the company. I like<br />
meeting every week and knowing that it’s going<br />
to happen again next week. My sisters call to my<br />
house and we sometimes go out but they have<br />
their own lives as well and I want my own social<br />
life outside of them too. Everyone needs friends<br />
and company and in the social club we all have<br />
something in common”. Another member said “I<br />
enjoy meeting the others and having a chat. Its<br />
something I look forward to. It is nice to spend<br />
time with people outside my family. We all have<br />
different injuries but we can talk about it with each<br />
other.” Another lady said “We have a good old laugh<br />
when we meet. We have good times, good chats<br />
and good laughs and I love the company as well.<br />
This social club gives me friends and something<br />
to look forward to. It also means that I’m not alone<br />
in my suffering because I can talk to the others. It’s<br />
nice to meet with people who we have things in<br />
common with. We can help each other out.”<br />
We are all social beings and need social interaction<br />
in our daily lives and <strong>Headway</strong> clients are no<br />
different. As was eloquently explained by one<br />
member, “everyone needs a social life. You get
Making <strong>Headway</strong> Summer 2010<br />
stuck in your own thoughts and troubles if you are<br />
only in your own company all the time... The social<br />
club is part of my routine now and its something I<br />
enjoy being part of”. The social club brings people<br />
together with similar interests to participate in<br />
activities chosen and organised by them. It is their<br />
club and this may explain why it is so important<br />
to them. When asked if they will continue to<br />
meet up, all replied “definitely”. The support and<br />
companionship they give each other cannot be<br />
underestimated.<br />
Research into Practice: Measuring<br />
Clinical Outcomes using CORE<br />
Dr. Barbara Mensenkampff, Senior Clinical Psychologist, explains<br />
CORE, one of the tools <strong>Headway</strong> uses in its evidence-based approach<br />
to therapy.<br />
As Psychologists working in<br />
<strong>Headway</strong> Cork we provide<br />
assessments, therapy and support<br />
to people with acquired brain<br />
injury. This service extends to the family and carers<br />
also. We work on a one-to-one basis as well as with<br />
groups of clients. Many of you will be aware of the<br />
idea of neuropsychological assessments. These are<br />
the tests we undertake to establish what areas of<br />
peoples’ brains have been affected by their injury.<br />
Once we have this information we are in a better<br />
position to plan rehabilitation or retraining for<br />
individuals. Neuropsychological tests can also be<br />
used to monitor peoples’ recovery. This involves<br />
testing the person and keeping account of their<br />
results and then re-testing them at a later date and<br />
comparing the scores. We take a similar approach<br />
to therapy. We use measures to establish where<br />
people are at the beginning of therapy and we<br />
re-test at the end of the therapy. In this way we<br />
can ascertain how effective therapy was as well as<br />
monitoring changes in the persons overall situation.<br />
One of the tools we use to do this is called the<br />
CORE – Clinical Outcomes in Routine Evaluation.<br />
In this article I am going to describe the CORE and<br />
speak a bit about why <strong>Headway</strong> Psychologists use<br />
this measure.<br />
In 1996 the Department of Health in the UK carried<br />
out an extensive review of psychotherapy services.<br />
One of the important findings that emerged from<br />
this review was that outcome measures provide<br />
the link between clinical practice and research. In<br />
other words, the review identified that information<br />
from clinical settings needed to be collected and<br />
compared to research information almost as a<br />
quality control measure. One of the difficulties of<br />
evaluating the effectiveness of therapy was that<br />
different professionals were using different tools<br />
to measure therapeutic outcomes. This meant<br />
that comparisons were not possible. The CORE<br />
was developed in 1998 to resolve this problem. A<br />
group of Clinical Psychologists, Psychotherapists,<br />
Psychiatrists and counsellors came together and<br />
designed one questionnaire that everyone could<br />
use. In this way, comparisons could be drawn<br />
between different types of therapy, or different<br />
therapists or different services etc.<br />
The CORE was also designed to provide audit<br />
information on the service. In common with<br />
business practice everywhere Psychology has<br />
had to provide evidence that what we do is<br />
cost effective and beneficial. However because<br />
human beings are not products, we do not look<br />
at production costs or output instead we examine<br />
how we spend our time with clients and what the<br />
outcome is for the client. The information used to<br />
assess the service itself includes items on waiting<br />
times, the appropriateness of the referral, the nonattendance<br />
rates, etc, which allow us to examine<br />
our efficiency and identify if and where changes<br />
need to be made.<br />
So what is the CORE comprised of The CORE has<br />
three main sections: a Therapy Assessment Form<br />
– filled by the therapist; an Outcome Measure –<br />
filled by the person; and an End of Therapy Form<br />
– filled by the therapist.<br />
The Therapy Assessment form collects the kind of<br />
information that most Psychologists would use<br />
at their first session with a person. Details about<br />
who the person lives with, a brief description of<br />
the problem they want help with, whether they<br />
have had therapy previously, medication they are<br />
7
taking, whether they engage in self harm or not,<br />
how they have tried to address the problem etc,<br />
all help the Psychologist and the individual to<br />
develop a collaborative plan of action. This plan is<br />
Doreen<br />
used to direct<br />
Hoerold<br />
therapy and set out the goals which<br />
the person is hoping to achieve. It can also be used<br />
subseqently to ascertain whether the Psychological<br />
intervention was useful or not.<br />
This form also gathers information about the quality<br />
of the service. It monitors how long the client<br />
had to wait for their first appointment, how many<br />
assessments they received, whether they were<br />
offered a follow-up appointment, who referred the<br />
client etc. These details are used to monitor how<br />
well the service generally is performing. Because<br />
the form is filled whether clients undertake therapy<br />
or not, it provides a type of profile of the clients who<br />
come to the service, the ones who stay and the ones<br />
who do not. This information can then be used to<br />
identify inappropriate referrals and maximise the<br />
opportunities for appropriate referrals.<br />
The Outcome Measure is a list of 34 statements<br />
which the client rates from 0 (Not at all) to 4 (Most<br />
of the time). It is examining four dimensions:<br />
1. Subjective well being – e.g. “I have felt O.K.<br />
about myself.<br />
2. Problems – e.g. “I have been troubled by aches,<br />
pains or other physical problems.<br />
3. Life functioning – e.g. “I have felt able to cope<br />
when things go wrong”.<br />
4. Risk – e.g.”I have thought of hurting myself”.<br />
Higher scores indicate someone who is very<br />
distressed, lower scores indicate fewer problems.<br />
The final section is the End of Therapy Form. This has<br />
to be filled by the therapist for every person who<br />
has had more than one session. This form compiles<br />
information on the individual’s attendance record,<br />
how many sessions were offered, the type of<br />
therapy undertaken, the frequency of therapy and<br />
how therapy ended. It also looks at whether therapy<br />
impacted on the person’s insight, coping, planning,<br />
functioning and personal relationships, how well<br />
the person engaged with the therapist, whether<br />
medication was changed as a result of therapy and<br />
whether the client needs to be followed up in the<br />
future.<br />
By gathering information on the person’s experience<br />
of therapy, any changes to their quality of life,<br />
how the service functioned, who the Psychologist<br />
was, what kind of therapy they provided, etc., the<br />
Psychology team can learn a lot about the service<br />
we are providing. This information helps us to<br />
understand the needs of our clients better. We<br />
learn about what we are doing well, where we need<br />
to improve as well as identifying changes that we<br />
need to make to improve our service. This process<br />
of evaluating outcomes for people and using the<br />
information to shape the service we offer ensures<br />
that we provide a client-centred rehabilitation<br />
service for people with ABI. It guarantees that our<br />
practice is in line with best practice guidelines (e.g.<br />
evidence based practice). It helps us to contribute<br />
to and develop research for brain injury which<br />
in turn can be used to advocate for the rights of<br />
people with acquired brain injury. In today’s world<br />
where the bottom line is always - can you prove<br />
it - we listen what our clients tell us and respond<br />
accordingly. The CORE is one of the tools that helps<br />
us to do this.<br />
8<br />
Thank You, Thank You, Thank You!<br />
...to the 55 wonderful women who volunteered<br />
to walk, jog and run in the Flora women’s mini<br />
marathon on the 7th June in Dublin. We hope<br />
you all enjoyed the day, we truly appreciate your<br />
support, when you have it all collected please<br />
send in your sponsorship money to Fiona Mc<br />
Keon, <strong>Headway</strong>, 1-3 Manor Street Business Park,<br />
Manor Street Dublin 7. Thank you again for your<br />
continued support.<br />
... to the ladies that took part in the Great Limerick<br />
Run on 2nd May we really appreciate your<br />
support.<br />
<strong>Headway</strong> Ringsend Service Users and Staff<br />
...to Ann and Pat Fitzgerald for hosting a wonderful<br />
fundraising Cabaret night on 2nd May in Carlow.<br />
A great night was had by all and Ann and Pat<br />
managed to raise a fantastic €1,680!<br />
…to all that took part in the pub quiz on 11th<br />
June in Russell’s Pub Limerick a great night was<br />
had by all.<br />
This year you helped us raise nearly €3,000 by<br />
raffling off beautiful Baskets of Butlers Easter Eggs,<br />
Thank you to everyone who took an egg.Rodney<br />
Vickers
Making <strong>Headway</strong> Summer 2010<br />
My Story, My Promise<br />
My name is Warren and this is my story. When I was six years old I fell off a<br />
bus shelter onto my head. I remained unconscious for 10-15 minutes and<br />
on the way to the hospital I stopped breathing, but I made a good recovery.<br />
Then one day, when I was fourteen, I was taking a fast way home with<br />
friends. We had to get over a gate and my ring got caught in the gate and<br />
when I jumped, my finger came off. I lost four pints of blood.<br />
I have been in and out of hospital most of my life.<br />
I didn’t return to school over problems with other<br />
pupils saying things about my missing finger. So<br />
I just left school. I always wanted to be a fireman<br />
but couldn’t because I had lost my finger. I do<br />
think I still have a finger but I don’t. When I tried to<br />
pick things up they used to fall through the gap of<br />
my hand where my finger used to be. It is hard to<br />
cope without it but it does get easier each year.<br />
I used to hang around at the train station in my<br />
local area. One evening I was messing around the<br />
stairwell of the stairs. I was joking as to what would<br />
happen if I fell off the balcony 20 ft high and all<br />
of a sudden I slipped and was left hanging on the<br />
ledge. But I couldn’t hold on as I had a weak right<br />
hand with a finger missing, so I fell to the ground<br />
and busted my head open. I lost a lot of blood<br />
and I was taken to hospital.<br />
I was sent for a scan and they discovered that I had<br />
swelling of the brain and two clots. I was put in an<br />
induced coma for a week, but I did make a gradual<br />
recovery.<br />
I had another fall in April 2008. As other people tell<br />
me, we went to the Phoenix Park and climbed the<br />
papal cross and somehow I lost my balance and<br />
fell down the steps and cracked my head on the<br />
concrete. I was taken to Connolly hospital and was<br />
in intensive care for 27 days. When I awoke I was<br />
unable to move my arm or leg and I was unable<br />
to speak.<br />
It was to be a long struggle to get back to myself,<br />
if I ever will. The Warren that awoke on that day is<br />
a different Warren. I now have to stay off drink in<br />
order to control my anger and stay out of situations<br />
that I can’t control.<br />
I owe my recovery to <strong>Headway</strong>. It is a long, long<br />
road to recovery and there is a glimmer at the end.<br />
But I can see it and it will be a light. I have to say<br />
a big thank you to my parents and family. I have<br />
made their lives hard for the past few years but I<br />
will make it up to them by getting the help I need<br />
and work hard at it.<br />
<strong>Headway</strong> Signs Road Safety Charter<br />
At a recent ceremony in Dublin,<br />
<strong>Headway</strong> joined a group of other<br />
Irish organisations in signing up to<br />
the European Road Safety Charter<br />
in the presence of the European<br />
Commission and the Minister for<br />
Transport, Noel Dempsey TD. The<br />
charter has as its aim to reduce<br />
road deaths by 25,000 across the<br />
European Union and has a website<br />
at www.erscharter.eu<br />
“Kieran Loughran, <strong>Headway</strong> CEO (back row 5 from L), joins signatories<br />
to the EU Road Safety Charter<br />
9
Day Rehabilitative<br />
Service Mallow<br />
The <strong>Headway</strong> Day Rehabilitative<br />
Service in Cork now has a new<br />
string to its bow. Since January of this<br />
year, the service has been operating<br />
one day per week to clients living in<br />
the North Cork area. Based in the<br />
newly opened Gilbert Centre in Fair<br />
Street, Mallow, the service operates<br />
from 10.30 until 3.30 on a Tuesday.<br />
At present there are five clients<br />
benefitting from the service on a<br />
weekly basis, supported by two staff<br />
and a volunteer from the <strong>Headway</strong><br />
team in Ballincollig.<br />
So far, the new venture has been a<br />
great success with the five clients<br />
thoroughly enjoying a holistic<br />
rehabilitative service without the need to travel<br />
far from home. The <strong>Headway</strong> staff members also<br />
report a very good atmosphere and camaraderie<br />
amongst the attendees. Activities to date have<br />
included Personal Development, Cognitive<br />
Exercises, Art and Crafts, Exercise and Relaxation<br />
and Brain Injury Awareness. The group were also<br />
involved in putting together an information day<br />
on <strong>Headway</strong> in the Gilbert Centre during Brain<br />
Awareness Week 2010.<br />
<strong>Headway</strong> Limerick celebrated cultural diversity<br />
recently with a Polish-Irish Day held in the centre.<br />
The day was part of the FETAC Level 4 Cultural<br />
Studies module and was delivered by <strong>Headway</strong>’s<br />
own Monika Pilch. Feedback from other clients<br />
was very positive with huge interest in Polish<br />
history and geography and much enjoyment of<br />
the Polish food. ‘Fasolka po bretonsku’ – beans<br />
with pork in tomato sauce and ‘Zurek’ sour rye<br />
soup prepared by clients, proved very popular<br />
with seconds being the order of the day!<br />
<strong>Headway</strong> Service Users Breda Casey and Alan Quinn with Bridget<br />
Hannan (<strong>Headway</strong>, centre)<br />
<strong>Headway</strong> would like to take this opportunity<br />
to thank all of those involved in securing this<br />
vital service for these clients and also to wish<br />
the service further success in the future. If you<br />
would like more details on the North Cork service<br />
please feel free to contact Paul O’Callaghan, Day<br />
Rehabilitative Service Manager Cork at 021 –<br />
4871303 or ocallaghanp@headway.ie<br />
Polish-Irish Day In Limerick<br />
10<br />
Pat O Gorman presenting to fellow clients during<br />
Polish-Irish Day in the <strong>Headway</strong> Limerick centre
Making <strong>Headway</strong> Summer 2010<br />
Research Round Up<br />
In this edition, <strong>Headway</strong> Assistant Psychologist<br />
Doreen Hoerold takes a look at three recent<br />
research papers investigating the theme of social<br />
life and social integration following brain injury.<br />
Levebvrem H., Cloutier, G. & Levert, M.J. (2008).<br />
Perspectives of Survivors of traumatic brain<br />
injury and their caregivers on long-term social<br />
integration. Brain Injury, 22 (7-8), 535-543.<br />
This study used interviews with people affected<br />
by brain injury to explore aspects of long-term<br />
social integration. The researchers spoke to people<br />
who sustained a traumatic brain injury more than<br />
10 years ago, and also their caregivers/family<br />
members. A number of important themes emerged<br />
from the content of these interviews: Firstly, almost<br />
all participants expressed dissatisfaction with<br />
the shortage of services and resources following<br />
rehabilitation. Also, many people reported having<br />
to look to their own resources, and having to<br />
depend heavily on caregivers for their day-today<br />
re-learning of physical, cognitive and social<br />
skills. A survivor’s perception of “successful social<br />
integration” was closely linked with having good<br />
social support, both from friends and family. Social<br />
isolation, by contrast, was linked with depression<br />
and other difficulties, such as addiction, job loss<br />
and subsequent high risk of poverty.<br />
Hux, K., Bush, E., Zickefoose, S., Holmberg, M.,<br />
Henderson, A. & Simanek, G. (2010). Exploring<br />
the study skills and accommodations used by<br />
college student survivors of traumatic brain<br />
injury. Brain Injury, 24 (1), 13 – 26.<br />
An important aspect of successful social and<br />
community integration is meaningful activity.<br />
For many young people who have sustained an<br />
acquired brain injury, this often involves a return<br />
to education or training. This study explored the<br />
difficulties encountered by four college student<br />
survivors of severe traumatic brain injury (TBI).<br />
Most commonly, these challenges include<br />
difficulties with mastering new information and<br />
difficulties with applying known information<br />
to new situations. This often, in turn, creates<br />
unrealistic expectations among those with<br />
TBI, family members, and educators who may<br />
be unfamiliar with the consequences of brain<br />
injury. The results of the study suggest that when<br />
it comes to learning, awareness of one’s own<br />
strengths and limitations is crucial to success in<br />
college. The study also identified much variation<br />
among individual survivors of TBI. The paper<br />
recommends that educators should be made<br />
aware of the potential difficulties experienced by<br />
their students, and should be informed about the<br />
nature of brain injury and its impact on learning<br />
and academic performance.<br />
Fraas, M. & Bellerose, A. (2010). Mentoring<br />
programme for adolescent survivors of acquired<br />
brain injury. Brain Injury, 24 (1), 50-61.<br />
This study describes a 10-week mentoring<br />
programme for survivors of acquired brain injury.<br />
During the programme used in this study, an adult<br />
brain injury survivor mentored an adolescent who<br />
was a survivor of brain injury through encephalitis.<br />
The pair met once per week, to discuss issues of<br />
mutual interest, catch up, play board games, and<br />
attend community meetings together, in a local<br />
health and wellness facility in New Hampshire,<br />
USA. Results from questionnaires administered<br />
prior to and following the 10-week programme<br />
suggest that both the mentor and adolescent<br />
with ABI perceived an improvement in quality<br />
of life. In addition, the adolescent improved on<br />
a number of aspects of adjustment, including<br />
anxiety level, depression, fatigue and appropriate<br />
social interaction. These results are encouraging<br />
in that they indicate the potential efficacy of<br />
such mentoring programmes for survivors of<br />
ABI, however, the authors also caution that these<br />
results are relatively preliminary, and must be<br />
validated in larger group studies in the future.<br />
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Making <strong>Headway</strong> Summer 2010<br />
Contact Information<br />
Head Office<br />
Unit 1-3 Manor St. Business Park, Manor St., Dublin 7<br />
Tel: (01) 810 2066 Fax: (01) 810 2070<br />
Web: www.headway.ie Email: info@headway.ie<br />
Information and Support Line<br />
1890 200 278<br />
email: helpline@headway.ie<br />
Monday – Friday, 9 am to 1 pm and 2 – 5 pm (local call rate)<br />
Dublin Office<br />
Unit 1-3 Manor Street Business Pk, Shea’s Lane,<br />
off Manor Street, Dublin 7<br />
Tel: 01 810 2066 Fax: 01 810 2070<br />
Web: www.headway.ie Email: info@headway.ie<br />
Rehabilitative Training & Day Rehabilitative Services, Employment<br />
Support, Neuropsychological Assessment,Psychotherapy,<br />
Counselling and Information and Support.<br />
Cork Office<br />
Unit B3, Link Road Business Park, Ballincollig, Cork<br />
Tel: 021 487 1303 Fax: 021 487 1305<br />
Rehabilitative Training & Employment Support,<br />
Rehabilitative Day Services and Community Integration.<br />
Cork Psychology & Family Support Services<br />
Kenny Group House, Carrigrohane Road, Cork<br />
Tel: 021 434 7625 Fax: 021 434 7477<br />
Brain Injury Rehabilitation, Neuropsychological Assessment,<br />
Psychotherapy, Counselling, Family Support,and Social Work<br />
Services.<br />
Limerick Office<br />
Jutland Hall, Steamboat Quay, Dock Rd., Limerick<br />
Tel: 061 469 305 or 061 469 306<br />
Rehabilitative Training, Vocational Training Programme,<br />
Supported Employment, Neuropsychological Assessment,<br />
Psychotherapy,Counselling and Family Support<br />
Kerry Office (Psychological Services)<br />
Fairies Cross, Clounalour, Tralee, Co. Kerry<br />
Tel: 066 711 9320 Fax: 066 711 9321<br />
Psychotherapy and Counselling<br />
South East Office<br />
6B Prior’s Orchard, John’s Quay, Kilkenny<br />
Tel: 056 778 6240<br />
Information and Support, Family Support<br />
Diary Dates<br />
Marathons<br />
Following the success of the women in the Flora<br />
mini-marathon, we are launching an appeal for<br />
volunteers to participate in the various upcoming<br />
runs to raise funds for our services. We will supply<br />
your sponsorship form and T shirts and you<br />
register with the chosen run, for more information<br />
please log onto www.headway.ie/runforheadway<br />
or email mckeonf@headway.ie<br />
• Killarney Women’s Mini Marathon on 26th June<br />
• Evening Echo Women’s Mini Marathon Cork,<br />
26th Sept<br />
• Limerick Leaders Limerick Women’s Mini<br />
Marathon, 3rd Oct<br />
• Adidas Dublin Marathon, 25th Oct<br />
Golf Day<br />
The <strong>Headway</strong> Golf Day is on Thursday 2nd Sept<br />
2010. Simply arrive in the beautiful surrounds<br />
of Roganstown Golf & Country Club, Swords, Co<br />
Dublin for 18 holes of golf on the challenging<br />
course designed by Christy O’Connor Jr. A team<br />
of four costs €280, a lunch will be provided. If you<br />
cannot participate on the day would you consider<br />
sponsoring a team Please contact Fiona or Teresa<br />
on Ph: 01 8102066 to book a tee time.<br />
Limerick Ball 2010<br />
The much anticipated Limerick Ball will be held<br />
on 4th Dec in the Radisson SAS Hotel . We are<br />
taking bookings now please phone Denis on Ph:<br />
061 469305. A table of 10 costs €1,000 individual<br />
tickets are available at €100<br />
Art Auction<br />
Limerick Art Auction, Hunt Museum, August (date<br />
TBC) please check on our website for updates<br />
www.headway.ie<br />
Fashion Show<br />
Fashion Show 1st Oct 2010 – The Strand Hotel,<br />
Limerick. Mr. World will be there on the night!<br />
please contact our Limerick office for Tickets on<br />
061469305<br />
Find us on Facebook at<br />
www.facebook.com/<strong>Headway</strong>.ie<br />
Follow us on Twitter at<br />
www.twitter.com/<strong>Headway</strong>Ireland<br />
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