Publication in pdf format - Headway

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Publication in pdf format - Headway

Brain Injury Services & Support

m forever grateful…thanking you so much for all you do…it is really fantas

helped me to deal with some of my memory problems

have

Headway

learned how

training

to speak

centre

out for myself

helped

in Self

me

Advocacy

to

clas

attend a driving school for people with

disabilities and now I’m a successful driver

Headway…has made me stronger in every way.

eadway helped me to control my anger. I now have skills to help me to cope w

The Headway staff were always there building up my confidence an

learned to be assertive

It’s great to mix with people who are the same as myself

Annual Report 2011


CHAIRMAN’S STATEMENT

Headway continued to provide vital

supports to people with brain injury

throughout 2011, with an increase in the

number of service users and a slight

improvement in waiting times for many

of our services. This was a particularly

noteworthy achievement in view of the

pressure on finances being experienced

across the health service at present. In

common with others in the state

supported voluntary sector, funding to

Headway was reduced, with little

potential to fill the gap through fundraising.

There is no likelihood of any

improvement in the funding

environment in 2012 and our priority,

therefore, is to do more with less and at

least maintain service levels. That we

have been able to do

so to date is a tribute

to the dedication and

hard work of our staff,

who continually show

exceptional

commitment to those

entrusted to their care.

Despite our best

efforts, we are

constantly conscious of the inadequacy

of the services structure for brain injury.

Many sufferers fall through the net,

either because they are located in parts

of the country with little or no service

provision or because the services they

do receive are too little too late. There is

still a lamentable lack of service

continuity, partly due to the fractured

nature of the infrastructure. Headway

remains of the view that this can only

be effectively addressed by a significant

reconfiguration of all existing services –

both State and Voluntary – to ensure a

continuum of service provision - from

the initial trauma through the various

therapies and, hopefully, eventual

rehabilitation. Such a reconfiguration,

which is likely to result in the

merger/amalgamation of some existing

service providers, cannot be left to the

discretion of the individual participants:

it needs to be directed, managed and

facilitated by the health service

That we have been

able to do more

with less is a tribute

to the dedication

and hard work of

our staff

authorities. The recent publication of

The National Policy and Strategy for the

Provision of Neuro-Rehabilitation

Services in Ireland may, hopefully,

provide the necessary catalyst for such

intervention.

The quality of service provided by

Headway, evidenced by the very

successful outcomes for many of our

clients, is widely recognised and is

reflected in the excellent relationship we

continue to enjoy with the various

agencies that provide our funding. We

are determined to maintain and

enhance that relationship by clearly

demonstrating our determination to use

public funds wisely and to the maximum

benefit of those we serve.

To this end, we strive to

achieve the highest

possible standards of

corporate governance

and financial oversight. In

the current very difficult

economic environment,

we believe that every

individual and

organisation funded from

the public purse has an obligation to be

frugal in administration and as generous

as possible in caring for those with

special needs.

I want to thank my fellow board

members for their dedication to the

welfare of Headway and its clients and,

in particular, our Chief Executive, Kieran

Loughran, who continues to provide

very effective leadership. My thanks

also to our many supporters whose

voluntary efforts on our behalf are so

important in achieving our goals and

improving the lives of people with brain

injury.

David Holden

Chairman

02

Headway’s mission is to bring positive

change in the lives of those affected

by an acquired brain injury


CHIEF EXECUTIVE’S REVIEW

Last year I spoke of the need to do more

with less – the story remains the same,

how do we do more with even less again.

How do we maintain existing services let

alone reach the many needy people who

have not received any service.

Despite the funding cuts we have

adapted and varied our services to

increase the impact and positive

outcomes for people with brain injury.

The issues that should influence the

future of services in the area of brain

injury rehabilitation is the recently

published Neuro-Rehabilitation Strategy,

referred to by the Chairman and a

document we await on the future desired

outcomes for Day Services called “New

Directions”. From the preparatory work in

the data collection, focus groups and

initial investigation I believe it fair to say

that Headway meets a significant number

of the desired outcomes.

There is a significant drive on for

mainstreaming of services and it is hard

to disagree with such an ambition,

however, all research and direct

experience points to the need for

specialist services for people with brain

injury.

There is also a drive on to have people

rehabilitated in their community and this

will be a prime objective for New

Directions – our services straddle centre

based, group community based and

individual community based and we

believe there is a merit in each as part of

a rehabilitation continuum.

The reality is that some level of centre

based engagement is a very valuable part

of a rehabilitative continuum. A new

service introduced in Dublin on the back

of our experience and research in Cork is

the Community re-integration service

which links and engages people with

brain injury with community activity, social

activity and voluntary and paid work.

Despite the longevity of some of our

services we continually run into difficulty

with appropriate accommodation for our

services and this remains a major

challenge, particularly with the changing

needs of our service users. Magnificent

news during the year was the awarding of

€500,000 to Headway by the JP

McManus Invitational Pro-Am for the

purchase of a premises in Limerick.

Our National Advocacy Group is meeting

regularly and it is intended that they meet

with the Board in early 2012.

During the year we adopted a strap line of

“Brain Injury Services and Supports” to

better describe the work of Headway.

The HSE is continually evolving and

changing it’s structures and mechanisms

of engagement with service providers and

there are legal contracts now in place

which govern our relationship. These

mechanisms can add significantly to the

burden of administration and deflect time

away from service delivery. Despite the

tightening financial situation we enjoy

positive working relationships with our

primary funders, the HSE. We believe,

however, that we can demonstrate

excellent value for money.

We also enjoy excellent working

relationships with Solas and the Family

Support Agency. A challenge that remains

for Headway is to demonstrate to Solas

the rehabilitative benefits of the Headway

Vocational Programme, run in Limerick

only at the moment, and the need to

expand this service to other parts of the

country.

This is a time of uncertainty for many and

I know that uncertainty can breed fear.

The Headway staff have been fantastic

throughout the uncertainty by focussing

on the needs of our clients. The right

thing to do is to always put the person at

the centre of all our planning and actions

and I believe that we can demonstrate

this from the time a person contacts our

service. Our journey to gaining

international accreditation will further

reinforce our commitment to personcentredness

.

I would like to thank our ambassadors

and all those who have contributed in any

way to delivering on our mission of

“bringing positive change in the lives of

those affected by acquired brain injury”.

Kieran Loughran

Chief Executive

Comparative figures between

2010 & 2011

2011 2010

Unique individuals 908 734

attending Headway

services

New cases created 301 284

Needs Assessments 218 168

completed

Open cases at year end 588 658

Helpline contacts 1071 1117

Average age of people 45 43

03


REVIEW OF OPERATIONS

The service

Information

and Support

Richard Stables

In 2011, the service handled 1071 requests, a 4% reduction

on the previous year’s total (which included the results of a

TV and online advertising campaign in 2010). There was an

even split between enquiries from family members (35% of

known sources), professionals (33%) and people with

acquired brain injury (32%). The team delivered

presentations, talks and information stands in a variety of

settings, including a regular presence at the National

Rehabilitation Hospital. In the South East, our Information

and Support Officer has continued to deliver family support

groups, some in collaboration with colleagues in Acquired

Brain Injury Ireland, to complement those on offer in

Headway services elsewhere.

The team collaborated in the development of several new

information and awareness initiatives during the year,

notably the “Images for Awareness” series, the “A to Z of

Brain Injury” produced for National Brain Awareness Week

and the Neuronetwork website www.neuronetwork.ie which

provides information about services in the neurological

sector.

The Headway website continues to attract strong traffic and

this, in conjunction with strong growth in social media

outlets on Facebook and Twitter, has contributed to an

increased reach to online audiences in 2011.

04

The service

Our Services meet the Psychological needs of clients and

their families with a focus on helping them to adjust and

integrate the effects and changes brought about by

Acquired Brain Injury. Education, advocacy, family support,

Neuropsychological testing, as well as collaborating with

The service

Psychology

Services –

Cork/Kerry/Limerick

Barbara Mensenkampff

Senior Clinical Psychologist

Rehabilitation

Services and

Community

Integration – Cork

Liz Owens

Regional Manager South

The number of clients who were referred into our services

during 2011 increased on previous years which impacted

on waiting lists and required services to be creative in order

to address clients needs. With more stroke survivors

coming our way, we began to look at working with the local

stroke group in order to maximize resources.

Validation for FETAC Level 3 for our Rehabilitation training

programme is now pending. Certification is ongoing in the

training centre with options including: arts and crafts,

communications, personal development, personal

effectiveness and health promotion.

other service providers is all part of the service we offer. We

currently provide all persons served with a screening

assessment which puts the person in the driving seat of

any intervention designed to meet their needs. Screening

combines the testimony of the person themselves with

Neuropsychological testing data, information from families

and Clinical observations. The result is a thorough profile of

the person served outlining their social, emotional and

neuropsychological needs.

This person-centred screening process forms the basis of

decisions around engaging in group therapy, 1:1

counselling, family work, further Neuropsychological

testing or the need to access alternative services.

To help us provide services to as many people as possible

we provide learning placements for counsellors and Clinical

Psychologists in training. We also provide training and

consultation to Headway staff involved in rehabilitative

training, day services, specialist rehabilitation services and

community integration.

Clients from Ballincollig services are being supported to

engage in many community based activities including;

return to education courses, boat building and gym.

Day rehabilitation services in Mallow was expanded during

2011 to include a second day which caters for twice as

many clients. Two clients have taken up positions on the

service users forum and one staff member sits on the

steering committee of the Gilbert centre with a view to

maintaining strong links with the centre in which our

services are based. The success of this outreach location

has inspired us to seek funding for similar programmes

elsewhere in the county and we started negotiations with

our funders to address the needs of clients in Cobh and

surrounding areas.

Community Integrations ladies group moved to complete

independence during 2011.

Family supports are well subscribed through our family

education workshops, carers support group and social

work services and feedback is very positive in terms of how

these meet the needs of family members.

Advocacy has been taken to a new level this year, with the

local group putting forward members to join the Headway

National Advocacy Group.


The service

The Rehabilitative Training Programme is funded by the

HSE and aims to equip clients with social and personal

skills so that they can live as independently as possible.

This programme also aims to empower clients, enabling

them to gain insight into the effects of their particular injury

so as to develop appropriate strategies to compensate for

any deficits they may have. This programme delivers some

FETAC certification, namely at level 3.

The Vocational Training Programme is a 2 year programme

funded by Solas and offers FETAC certification from level 3

to 5. The vocational training programme is designed to

equip clients with the personal and practical skills to move

into education/employment and to empower clients to

develop personal effectiveness and self advocacy skills

with regard to work matters.

Psychological Services offered aim to provide therapeutic

support to individuals with acquired brain injury and to

family members. Core Elements include group and

individual therapy, counselling, psychological assessment,

Rehabilitation

Services – Limerick

Louise Carey

family education workshops, family support groups, acute

family liaison and support and behaviour management

The Limerick centre offers a range of modules including

music therapy, art therapy, speech and language therapy,

assistive technology training, advocacy training and career

and personal development. All training programmes

incorporate FETAC certification.

Clients are active members of the National Advocacy Group.

The service

Headway Day Rehabilitation Service (DRS)

Headway’s DRS Service offers a therapeutic programme of

holistic activities that focus on a person’s cognitive, social

and creative needs. Such activities include health

promotion, yoga, music, art, brain injury education and

compensatory strategies. The programme aims to minimize

individual difficulties, and build on existing strengths, so

that the service user can enjoy increased confidence and

improvement in their general quality of life. In 2011, we also

commenced a half day cognitive skills group where we

focus on cognitive rehabilitation strategies. DRS engaged

with seventy-one service users in 2011.

Headway Rehabilitative Training Service (RT)

The Rehabilitative Training Service offers rehabilitation to

maximize a person’s potential for self –determination and

independence in their own community.

Trainees are offered the opportunity to pursue FETAC

qualifications in modules that aim to promote general

learning, and to enhance cognitive rehabilitation. On exiting

Rehabilitation

Services

Helen Gaynor

& Caitriona O’Connor

the programme, the person will ideally have increased their

potential to engage in employment, education and other

opportunities, so they are able to fulfill a meaningful social

role in their communities. In 2011, thirty-four clients

accessed RT. The Social Club is running fortnightly to offer

ex-RT Trainees chance to broaden their social circle, and is

for those who are living independently in the community.

Headway Community Reintegration Service;

Community Reintegration promotes and facilitates client

independence by sourcing suitable employment, employ,

educational and leisure opportunities in local communities.

The service

In 2011 Psychological services Dublin focused on

maintaining a high standard of service provision while

managing ever increasing demand. We continued to

provide services to those whose lives have been affected

by ABI, offering neuropsychological assessment,

psychotherapy, cognitive rehabilitation and psychoeducation,

as well as group interventions such as peer

support, anger management and memory rehabilitation.

Review of outcome evaluation for 2011, shows that while

our waiting lists remain consistent, direct client contact

hours provided last year increased by 4%.

2011 also saw the completion of the Health Research

Board funded research project “Training Attentional Filtering

in Traumatic Brain Injury Patients” and findings were

presented at an international Brain Injury conference in San

Francisco in April and at the Psychological Society of

Ireland National conference in November. We also began a

new research project, in collaboration with Trinity College

Institute of Neuroscience, exploring the effects of exercise

Psychology Dublin

Sonya Gallagher

on cognitive functioning in

people with ABI.

Input regarding working with

people with ABI continues to be

provided to the Doctorate in

Counselling Psychology in

Trinity College, as well as

continued input to carers

nationally as part of the Acquired Brain Injury Ireland carer

education programme.

Looking towards 2012, we have had a change of

management, as Suvi Dockree is on maternity leave. In the

interim I have assumed responsibility for the department,

and as a team we are looking forward to a challenging but

productive year ahead.

05


A CLIENT’S STORY - BY STUART HIGGINS

My name is Stuart Higgins; this is a short autobiography

on my life to date. I was born in June 1966 to my proud

parents Betty and Tim. I am one of six children with four

brothers and one sister. I was brought up in Limerick city

and lived in an estate called Kennedy Park. I attended the

Christian brothers school on Sexton Street which was an

experience in itself. I left school after doing my inter cert

having passed it with flying colours.

From there I went to work in London as there was a

recession in Ireland at the time and like many others had

to cross the Irish Sea to find employment. I worked a

variety of jobs including bar work, demolition work and

builders labourer.

I returned to Limerick after a few years and got a job with

a cleaning company which was ok as there was still high

unemployment in the country. This work as it turned out

would shape my working career for the next twenty five

years as I would go on to have my own small cleaning

company, which was both hard and rewarding and give

me a good work ethic which I have carried with me to this

day.

and a half. I was unconscious until it started raining

heavily on me. The rain woke me up. I struggled to get

my phone out of my back pocket. The hospital doctors

thought I had been in a car crash when they saw me. For

the first few months I couldn’t remember – or maybe

didn’t want to remember the accident. That was three

years ago. The local Occupational Guidance Advisor

visited the house and referred me (via my GP) to

Headway. I am attending Headway as part of the

vocational programme which helps people who have an

acquired brain injury. I didn’t know what a computer was

before Headway. Now I do word, excel, email, internet

and lots more. I find Brain Injury Mangagement very

helpful – we learn about and discuss the many

consequences to acquired brain injury. I also find the art

and cooking a great help towards getting back to normal.

It puts structure back into my day and my week. I was

looking at my work folder the other day and was amazed

at the amount of work we do. In Headway, I attend

regular advocacy meetings. I am also the Limerick

Representative for the Headway National Advocacy

Group (NAG). This involves attending meetings in Cork

and Dublin to highlight issues from clients/members

around the country. Since I have been involved we have

introduced trolley tokens to raise awareness and also

have been involved in implementing a national id card

which is coming to fruition soon. We hope to continue

raising public awareness of the issues around ABI and of

the excellent support that Headway provides for people

like me. Recently, we met with the Headway Board of

Directors whom we found to be very approachable and

interested in what we are doing.

My family attend the Headway Family workshop/support

groups and find them very helpful. With the help of my

wife and daughters I am back to good health as without

them I would have struggled.

I have been happily married to Susan for twenty six years

and we have three daughters Nicole, Amanda and Chloe

which can make for an interesting household at times.

In June of 2009 I had a major accident which resulted in

the finishing of my work career as it was. I fell from a

ladder – about twelve or thirteen feet. I injured my head,

wrist, elbow, foot and back. I wasn’t found for an hour

06

For Information and support call:

1890 200 278

Monday to Friday

9am to 1pm, and 2pm to 5pm

Or email: helpline@headway.ie


Financial Statements

Revenue Income and Expenditure Account

For year ended 31 December 2010

2011 2010

€ €

Income 3,457,569 3,471,718

Administrative Expenses 3,470,003 3,424,495

Operating Surplus/(Deficit) (12,434) 47,223

Interest Receivable 36,238 24,192

Surplus/(Deficit) on ordinary

activities before taxation 23,804 71,415

Tax on (deficit)/surplus on ordinary activities — —

Surplus/(Deficit) for the financial year 23,804 71,415

Balance brought forward 539,256 467,841

Balance carried forward 563,060 539,256

Balance Sheet

2011 2010

€ € € €

Fixed Assets

Tangible Assets 236,293 233,247

Current Assets

Debtors 115,795 278,727

Cash at bank and in hand 1,459,245 1,256,034

1,575,040 1,534,761

Creditors: Amounts falling due within one year 777,945 765,602

Net Current Assets 797,095 769,159

Total Assets Less Current Liabilities 1,033,388 1,002,406

Grants 384,604 397,236

648,784 605,170

Reserves

Other Reserves 85,724 65,914

Income and expenditure account 563,060 539,256

Members’ Funds 648,784 605,170

07


Keith Barry

Ambassador

Glen Power

Ambassador

Brain Injury Services & Support

The Board of

Directors:

David Holden – Chairperson

Frank Ahern

John Mills

Allison Bingham

Dr. Orla Hardiman

Pam Kearney

Seamus Mulconry

Martin Naughton

Professor Ian Robertson

Company Secretary:

Kieran Loughran

Solicitors:

Sheridan Quinn Solicitors

29 Upper Mount Street

Dublin 2

Bankers:

Allied Irish Bank

Georges Street

Dun Laoghaire

Co. Dublin

Auditors

Grant Thornton

Chartered Accountants &

Registered Auditors

24-26 City Quay

Dublin 2

Registered in Ireland

No:

198247

Charity No:

CHY 7417

Registered Premises

Unit1-3 Manor Street

Business Park

Manor Street

Dublin 7

www.headway.ie

Tel: 01 810 2066

Fax: 01 810 2070

Web: www.headway.ie

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