201596 VCU Peds Newsletter - Virginia Commonwealth University ...
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201596 VCU Peds Newsletter - Virginia Commonwealth University ...
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The<br />
P E D I A T R I C<br />
C O N N E C T I O N<br />
SUMMER, 2004
Cover Story<br />
B<br />
orn more than three months early,<br />
Matthew started out at a frightening 1 pound<br />
7 ounces.<br />
See Page 2 for<br />
Matthew Manco’s story.<br />
The Pediatric Connection is a publication for the<br />
alumni, faculty and friends of the <strong>VCU</strong> Medical<br />
Center, Department of Pediatrics.<br />
<br />
<br />
<br />
<br />
Joseph H. Laver, MD<br />
Jessie Ball duPont Professor & Chair<br />
Barry V. Kirkpatrick, MD<br />
Vice Chair, Academic & Clinical Affairs<br />
Rebecca Bird-Eichelberger<br />
Community Liaison<br />
Shira E. Cantor<br />
Public Relations Coordinator<br />
Comments may be directed to the editors, 1001 E. Marshall<br />
Street, PO Box 980646, Richmond, VA 23298-0646,<br />
Phone: (804) 828-7035, or Fax: (804) 828-2062.<br />
Visit us on the web at<br />
w w w . v c u . e d u / p e d i a t r i c s
The<br />
P E D I A T R I C<br />
C O N N E C T I O N<br />
Table of Contents<br />
A Birthday Wish Comes True for Matthew Manco! 2<br />
<strong>VCU</strong> Children’s Medical Center Welcomes Pediatric Specialist 4<br />
<strong>VCU</strong> Pediatric Program Earns Full Accreditation 5<br />
Survivors Celebrate Life and High School Graduation 6<br />
A Day in the Life of Tyquan Gould 8<br />
Fun in the Sun 10<br />
Hot Tips for Staying Safe this Summer 10<br />
FAMIS - Ensuring that all Children are Insured 11<br />
KUDOS and Announcements 12<br />
Where Are They Now 14<br />
1
On his first birthday, Matthew<br />
was 27-3/4” and weighed<br />
19 pounds 3 ounces.<br />
When he was born he<br />
was 12” and weighed<br />
1 pound 7 ounces.<br />
A Birthday Wish<br />
Comes True!<br />
Written by Sandra Bailey<br />
Matthew Manco’s Story<br />
Born more than three months early, Matthew started<br />
out at a frightening 1 pound 7 ounces. And not only<br />
was he not supposed to be born that early, he wasn’t<br />
supposed to be born at the <strong>VCU</strong> Medical Center<br />
(<strong>VCU</strong>MC). “One minute, we were at our local hospital,<br />
and the next minute, there they were with a stretcher<br />
and an ambulance, saying that they were going to<br />
take Cindy to <strong>VCU</strong> Medical Center right away,” said<br />
Matthew’s father, Al. “The local hospital staff said<br />
that <strong>VCU</strong> was the best place to be in such a high risk<br />
situation.”<br />
A<br />
s he celebrates his first<br />
birthday, Matthew Manco is<br />
every parent’s dream –<br />
affectionate, curious and<br />
absolutely adorable.<br />
High risk was right. <strong>VCU</strong> Neonatologist, Dr. Henry<br />
Rozycki, met with the Mancos as soon as they arrived.<br />
“We were partners in this from the start,” Dr. Rozycki<br />
said, “and that included making sure that they had the<br />
truth about the medical situation they were facing, with<br />
no false reassurances. We talked together about his<br />
chance for survival and for a normal life. For babies<br />
born so small and premature, the chances were not<br />
very good. In fact, only 25 percent of premature babies<br />
born 16 weeks premature are alive and living a normal<br />
life on their first birthdays A significant number are<br />
handicapped, some profoundly.”<br />
2
From the beginning, Dr. Rozycki and the rest<br />
of the neonatal intensive care team included<br />
the Mancos in all of the medical decisionmaking.<br />
“The Mancos were very involved and<br />
very committed,” Dr. Rozycki said. “Together<br />
we shared the highs and lows -- the moments of<br />
terror and moments of joy. We celebrated too. As<br />
time went on, Matthew gained strength, the highs<br />
and lows diminished, and we got to see what a<br />
survivor he was, what a happy boy.”<br />
“I can’t tell you how wonderful it was to have a<br />
medical team that was truly dedicated to us and<br />
our baby,” Matthew’s mother, Cindy, said. Her<br />
husband agreed. “The doctors and nurses at the<br />
<strong>VCU</strong> Medical Center were always forthcoming<br />
with information. They helped us feel right away<br />
like they’d known us for years.”<br />
That kind of familial treatment is a hallmark of<br />
the <strong>VCU</strong> Children’s Medical Center’s neonatal<br />
intensive care unit (NICU). One reason is the way<br />
the NICU is designed and staffed. There are two<br />
levels. The first is for the really critical patients.<br />
“That’s where Matthew was for a month and a<br />
half, and the care was unbelievable,” said Cindy.<br />
We had a team of nurses who were responsible<br />
solely for Matthew and one or two other babies.<br />
Although I was with him every day, I still had to go<br />
home at night, so I would call and check in, and<br />
they’d let me know how he was doing, give me his<br />
vital signs -- his breaths per minute, temperature<br />
and heart rate. Even though I lived more than an<br />
hour away, I felt like I was always connected.”<br />
Matthew’s condition improved enough that, in less<br />
than two months, he was switched to the second<br />
level, the intermediate NICU. “We still had our<br />
own nursing team, but now we were even more<br />
involved with his care,” Cindy explained.<br />
One key goal in the intermediate NICU is to<br />
teach parents how to bathe, feed, diaper and<br />
dress their babies on a daily basis in preparation<br />
for taking them home. That’s hard enough for<br />
any new parent, but when your baby is as tiny<br />
as little Matthew was, it’s truly intimidating. “I<br />
remember the first time the nurses wanted Cindy<br />
to give Matthew a bath; she was so afraid,” said Al<br />
Manco. “You have to try to envision how small he<br />
was. Sure, officially, he was two months old, but<br />
Dr. Rozycki and Matthew in the intermediate NICU.<br />
he still wasn’t even supposed to be born for almost<br />
two more months. And here we were giving him<br />
a bath!”<br />
While he still looked “scrawny,” in Dr. Rozycki’s<br />
words, he was progressing beautifully. “He was<br />
the kind of baby you wanted,” Dr. Rozycki said.<br />
“Everything kept ending up as well as you could<br />
hope for.”<br />
On September 12th, almost three months from the<br />
day he was born, Matthew Manco “graduated.”<br />
He went home weighing a strong five pounds and<br />
looking like a typical healthy newborn. On his<br />
first birthday, he was a virtual heavyweight, more<br />
than 19 pounds strong. Now just over a year<br />
old, his pediatrician says he’s nearly caught up<br />
to where he would have been if he’d been born<br />
full-term. He still returns regularly to the <strong>VCU</strong><br />
Children’s Medical Center for check-ups. The<br />
pediatric team at the Center will monitor him for<br />
a few years, but now it’s all pretty much routine.<br />
A nice change from the first year, which was<br />
anything but.<br />
While the Mancos are endlessly thankful to the<br />
care they and Matthew received at <strong>VCU</strong>, Dr.<br />
Rozycki, places the credit elsewhere. “Really, it<br />
was Matthew. He was a fighter right from the start.<br />
He decided that he was going to do it, and he did.”<br />
3
<strong>VCU</strong> Children’s Medical<br />
Center Welcomes Pediatric<br />
Specialist<br />
Article provided by <strong>VCU</strong> Medlines<br />
Mitchell is Central <strong>Virginia</strong>’s only specialized<br />
pediatric otolaryngologist.<br />
With<br />
the addition of<br />
associate professor Dr. Ron B.<br />
Mitchell to the <strong>VCU</strong> Medical<br />
Center’s Otolaryngology—Head<br />
and Neck Surgery Department,<br />
Central <strong>Virginia</strong>ns now have<br />
access to one of the state’s only<br />
fellowship-trained pediatric<br />
otolaryngologists.<br />
“Children with complicated<br />
airway problems in the<br />
Richmond area have had little<br />
choice but to go out-of-state for<br />
treatment,” said Dr. Aristides<br />
Sismanis, professor and chair<br />
of the Otolaryngology—Head<br />
and Neck Surgery Department.<br />
“Pediatric orolaryngology is a<br />
relatively new specialty, and<br />
we’re pleased that with the<br />
appointment of Dr. Mitchell<br />
to our staff, more complicated<br />
pediatric ear, nose and throat<br />
problems can now can be dealt<br />
with here.”<br />
Dr. Mitchell will be providing<br />
pediatric ear, nose and throat<br />
specialty care, especially<br />
for children with ear, upper<br />
airway, sleep apnea and neck<br />
problems.<br />
“What is important for parents<br />
to know is that my practice is<br />
entirely devoted to children,”<br />
says Dr. Mitchell. “We know<br />
that parents prefer someone<br />
who works exclusively with<br />
children because of their<br />
unique health issues and<br />
special needs.”<br />
Dr. Mitchell explains that<br />
medical advancements<br />
have made it possible for<br />
premature infants to survive<br />
in greater number than ever<br />
before. This means that many<br />
premature infants are born<br />
with underdeveloped airways,<br />
digestive tracts and other<br />
difficulties that will affect them<br />
for the rest of their lives. For<br />
example, many premature<br />
infants must be put on<br />
ventilators for up to six months.<br />
“Ventilators can cause airway<br />
problems and may require<br />
surgical reconstruction and<br />
other treatments,” he explains.<br />
“Twenty years ago, these infants<br />
may not have survived but now<br />
they do and they have unique<br />
medical challenges.”<br />
In addition to his clinical<br />
expertise encompassing the<br />
management of upper airwaydigestive<br />
tract problems and<br />
pediatric otology, Dr. Mitchell<br />
has strong clinical and<br />
research interests, particularly<br />
in pediatric sleep apnea. Dr.<br />
Mitchell is currently studying<br />
the effect of sleep disturbances<br />
on behavior, school<br />
performance, obesity and a<br />
child’s overall quality of life.<br />
In fact, research results<br />
published in the Journal of the<br />
American Medical Association<br />
(Volume 130, February 2004.)<br />
show that there is a direct link<br />
between improved quality of<br />
life for children and resolving<br />
sleep apnea after tonsillectomy.<br />
Dr. Mitchell is in the process of<br />
submitting other research papers<br />
for publication within the year.<br />
For more information on<br />
pediatric otolaryngology<br />
services or to schedule an<br />
appointment please call<br />
(804) 628-4368.<br />
4
<strong>VCU</strong> Pediatric Physical Medicine &<br />
Rehabilitation Program One of the First of<br />
Its Kind to Earn Full Accreditation<br />
T<br />
he <strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong><br />
School of Medicine’s Pediatric Rehabilitation<br />
Fellowship Training program has become one of the<br />
first programs of its kind to earn full accreditation in<br />
the United States from the Accreditation Council on<br />
Graduate Medical Education.<br />
The Pediatric Rehabilitation Fellowship, in the<br />
Department of Physical Medicine & Rehabilitation,<br />
is a one or two-year program that includes<br />
clinical care and research responsibilities.<br />
Fellows also gain experience in intensive care<br />
consultation, inpatient rehabilitation, sub-acute<br />
and coma management, the feeding program, day<br />
rehabilitation, interdisciplinary and multi-specialty<br />
clinics and interdisciplinary and multi-specialty<br />
pain management.<br />
Jacob A. Neufeld, M.D., M.S.P.H., associate<br />
professor and chair of the pediatric rehabilitation<br />
division and director of rehabilitation services and<br />
Eugenio Monasterio, M.D., assistant professor and<br />
director of outpatient rehabilitation, supervise the<br />
program.<br />
“Congratulations to Dr. Neufeld and Dr. Monasterio<br />
for their efforts to earn full accreditation for<br />
our Pediatric Rehabilitation Fellowship,” said<br />
David X. Cifu, M.D., professor and chairman,<br />
physical medicine and rehabilitation. “With this<br />
achievement, our pediatric PM&R division is ‘on<br />
the map’! This will gain instant recognition for our<br />
programs. Along with our expanding clinical and<br />
research activities, our division is clearly one to<br />
watch.”<br />
The fellowship is a joint effort between the <strong>VCU</strong><br />
School of Medicine and Children’s Hospital<br />
of Richmond. Children’s Hospital, a local<br />
rehabilitation hospital, is the primary clinical<br />
training site for the fellowship program. The facility<br />
provides services for children and adolescents with<br />
disabilities and for those recovering from trauma or<br />
illness.<br />
Ranked in the top 20 by U.S. News & World<br />
Report, <strong>VCU</strong>’s physical medicine & rehabilitation<br />
program is one of only five combined pediatric-<br />
PM&R residency programs in the country and one<br />
of only two with an ACGME-accredited pediatric<br />
PM&R fellowship program. It is the only PM&R<br />
program in the nation with accredited fellowship<br />
training programs in pediatric spinal cord injury and<br />
pain management.<br />
<strong>VCU</strong> also has one of the nation’s only brain injury<br />
rehabilitation fellowships. <strong>VCU</strong>’s program offers<br />
comprehensive residency and fellowship training<br />
for all aspects of PM&R, including traumatic brain<br />
injury, stroke, acute and chronic musculoskeletal<br />
injury, spinal cord injury, chronic pain<br />
management, cardiac disease, pulmonary disease,<br />
cancer, vascular disease, amputations, fractures,<br />
joint replacement, arthritis, burns, pediatric injuries,<br />
polytrauma and neuromuscular disorders.<br />
The Accreditation Council for Graduate Medical<br />
Education is responsible for the accreditation<br />
of post-M.D. medical training programs within<br />
the United States. Accreditation is accomplished<br />
through a peer review process and is based upon<br />
established standards and guidelines.<br />
For more information about <strong>VCU</strong>’s Department<br />
of Physical Medicine & Rehabilitation, visit<br />
www.pmr.vcu.edu.<br />
5
Bruce Evans, Jr.<br />
Bruton High School<br />
York County<br />
Mongar Freeman<br />
Mills Godwin High School<br />
Henrico County<br />
Joshua Garrett<br />
Greensville County High School<br />
Greensville County<br />
Kristin Hardaway<br />
Nottoway High School<br />
Nottoway County<br />
Patricia Lee<br />
Nottoway High School<br />
Nottoway County<br />
Aimee Kristen Marshall<br />
Lloyd C. Bird High School<br />
Chesterfield County<br />
Ashley Moody<br />
Essex High School<br />
Essex County<br />
Educational consultant Alma Morgan and guest speaker Bill Heyer.<br />
The <strong>VCU</strong> Children’s<br />
Medical Center Salutes the<br />
2004 Hospital Education<br />
Graduates<br />
Johnathan Parham<br />
Dinwiddie High School<br />
Dinwiddie County<br />
Dana Podgurski<br />
J.R. Tucker High School<br />
Henrico County<br />
Paul Robinson<br />
James River High School<br />
Chesterfield County<br />
Nicholas Suszczewicz<br />
Brooke Point High School<br />
Stafford County<br />
Lakeshia Thomas<br />
Huguenot High School<br />
Richmond City<br />
Brandon Thompson<br />
Thomas Dale High School<br />
Chesterfield County<br />
Benjamin Whanger<br />
Peninsula Catholic High School<br />
Private School<br />
Fourteen high school graduates<br />
from ten <strong>Virginia</strong> school<br />
divisions were honored at the<br />
annual high school graduation<br />
luncheon celebration sponsored<br />
by the Division of Pediatric<br />
Hematology/Oncology and<br />
the Hospital Education<br />
Program. This ceremony was<br />
a unique one as each graduate<br />
celebrated not only his or her<br />
high school graduation—but<br />
also life.<br />
As children, these graduates<br />
overcame more obstacles than<br />
most people face in a lifetime.<br />
The Hospital Education<br />
Program is one of the many<br />
support services provided to<br />
address these obstacles and<br />
ensure a healthy future both<br />
during and after a child’s battle<br />
with illness.<br />
While one graduate had been<br />
diagnosed with a neuroblastoma<br />
at the early age of 2, another<br />
graduate was diagnosed with<br />
acute lymphoblastic leukemia<br />
at age 3. Several of the<br />
graduates endured numerous<br />
surgeries, chemotherapy and<br />
radiation as treatment, and a<br />
few even received bone marrow<br />
transplants.<br />
The 2004 Hematology/<br />
Oncology class did not only<br />
represent childhood cancer<br />
survivors, but also survivors<br />
of blood-related disorders<br />
such as sickle cell disease and<br />
idiopathic thrombocytopenia<br />
purpura.<br />
While the celebration began<br />
with an informal luncheon,<br />
a more formalized program<br />
6
Kristin and<br />
Jessica Hardaway<br />
will always share<br />
a special bond.<br />
Kristin was<br />
diagnosed with<br />
a neuroblastoma<br />
at the age of 4,<br />
and received<br />
a life-saving<br />
bone marrow<br />
transplant from<br />
Jessica.<br />
Smiling sisters, Kristin (left)<br />
and Jessica (right) celebrate life.<br />
Kristin celebrates determination,<br />
survival and high school graduation.<br />
followed where each graduate<br />
was recognized for his or<br />
her strength, courage and<br />
perseverance in completing<br />
academic studies while going<br />
through such challenging<br />
times. College scholarships<br />
were awarded to many<br />
of the graduates for their<br />
determination. Family, friends,<br />
school staff, and hospital<br />
staff also offered personal<br />
testimonies.<br />
At age 2, Bruce Evans, Jr., was<br />
diagnosed with a Stage IV neuroblastoma.<br />
Bill Heyer, the guest speaker<br />
and a 2004 graduate of<br />
Randolph Macon College,<br />
stood in the same shoes as the<br />
graduates in 2000 when he<br />
conquered childhood cancer<br />
and graduated from L.C. Bird<br />
High School. He gave his own<br />
personal testimony, stating that,<br />
“family and friends get you<br />
Bruce let nothing<br />
get in his way at<br />
Kindergarten Graduation.<br />
Bruce, a grown up, healthy,<br />
college bound high school graduate poses<br />
with confidence.<br />
through the rough times…and you have to have a little humor to deal with it.” He then shared the story of<br />
losing his hair; when his algebra teacher showed up for his homebound instruction, he told her that the stress<br />
of algebra problems was causing the hair loss.<br />
While the day was spent with laughter, as well as tears, one thing was apparent—the 2004 hospital education<br />
graduates are not just patients of the <strong>VCU</strong> Children’s Medical Center (CMC), but are truly loved by staff and<br />
have become a part of the CMC extended family.<br />
7
We usually reserve our “Day<br />
in the Life of...” article to share the<br />
accomplishments and daily routine<br />
of outstanding <strong>VCU</strong> Children’s<br />
Medical Center (CMC) staff members;<br />
however, we’ve decided to use this<br />
issue’s space to introduce you to a<br />
special member of the hospital family:<br />
Tyquan Gould, a 4-year-old CMC<br />
patient who has a “hospital routine”<br />
as remarkable as anyone’s.<br />
In many ways Tyquan is just like other<br />
4 year old boys—his favorite food is<br />
pizza, his all time favorite cartoon<br />
character is Tigger and he loves to<br />
paint and play with his older brother<br />
DéShean. Tyquan is also a very<br />
unique child—he has spent over 90<br />
percent of his life at the CMC.<br />
Tyquan was born prematurely on<br />
April 4, 2000 at the <strong>VCU</strong> Medical<br />
Center. He was then moved to the<br />
<strong>VCU</strong> Neonatal Intensive Care Unit<br />
(NICU) where doctors discovered that<br />
his bowel and bladder had developed<br />
outside of his body; this would lead<br />
to many complications. Because of<br />
his rare condition, Tyquan spent the<br />
first six months of his life in the NICU<br />
where a team of pediatric nurses,<br />
neonatologists and gastroenterologists<br />
closely monitored his bladder and<br />
bowel abnormalities.<br />
A Day in the Life<br />
of Tyquan Gould<br />
4 year old Children’s<br />
Medical Center Patient<br />
Written by Shira E. Cantor<br />
Child Life Specialists take Tyquan on a wagon ride<br />
— accompanied by his fruits and veggies. A recent<br />
surgery to fix his club foot didn’t slow him down.<br />
As a baby, Tyquan’s condition, as<br />
well as the after-effects of his many<br />
surgeries, prevented him from nursing<br />
a bottle. Feedings began slowly<br />
through a tube, while most of his<br />
calories were given by vein through<br />
a Total Parenteral Nutrition line<br />
(TPN). In addition to special feeding<br />
procedures, an ostomy was created<br />
through his abdominal wall to allow<br />
for the discharge of bodily waste.<br />
Recently, because of problems with<br />
drainage of urine, another stoma was<br />
created for the collection of urine.<br />
This waste is collected through a bag<br />
that covers the ostomy. Tyquan will<br />
most likely have both ostomy bags for<br />
the rest of his life. Both the TPN line<br />
and ostomy bags made him highly<br />
prone to infections, causing extremely<br />
frequent return visits to the hospital.<br />
After Tyquan gained sufficient weight<br />
and strength in the NICU he was<br />
sent home for the first time in his life<br />
— only to return to the CMC the next<br />
day with a serious blood infection.<br />
The CMC shortly became Tyquan’s<br />
second home. “It was hard not being<br />
able to bring Ty home right away,<br />
but the nurses, doctors, child life<br />
specialists and staff have been great.<br />
From explaining his condition to<br />
treating him like their own, they have<br />
become a second family over the past<br />
Tyquan’s Daily Hospital<br />
Schedule<br />
(Tyquan is currently at home! This<br />
schedule represents a typical day<br />
while in the hospital.)<br />
8:00 am: First I get up from<br />
bed. Lights on, shades up!<br />
9:00 am: Then it is time<br />
for morning care. The<br />
nurses take my vital signs<br />
and weight, empty my<br />
bag, provide tube care and<br />
change the bed. Then I<br />
put Vaseline on my lips,<br />
brush my hair, brush my<br />
teeth and get dressed.<br />
9:30 am: Time for<br />
breakfast!<br />
10:00 am - 12:00 pm:<br />
I have school with my<br />
hospital teacher Carol<br />
Snyder on Mondays,<br />
Wednesdays and Fridays.<br />
1:00 pm: Quiet time! Shh!<br />
2:00 pm: I get up from<br />
quiet time, empty my bag<br />
and wash my hands before<br />
leaving the room for free<br />
time. My doctors will also<br />
visit during the day to see<br />
how I am doing.<br />
Afternoon: Free Time! I<br />
can hang out in my room,<br />
go to the playroom with a<br />
buddy from Child Life or<br />
visit with a volunteer.<br />
5:00 pm: Dinner Time!<br />
Sometimes I get to go to<br />
the McDonalds in the<br />
hospital.<br />
6:00 pm: More free time! I<br />
can watch a movie in my<br />
room, visit with friends or<br />
paint and do special art<br />
projects. My doctors and<br />
nurses might stop in to see<br />
how I’m feeling.<br />
8:00 pm: I pick up my<br />
room, wash my hands and<br />
face and brush my teeth.<br />
9:00 pm: Lights off!<br />
10:00 pm: Time to turn<br />
the TV off and go to sleep.<br />
Good night!<br />
8
Dionne Holmes, PCT has watched Tyquan<br />
grow up. “He is always smiling and is so<br />
considerate of others,” Dionne said.<br />
(Photo taken at age 2)<br />
four years,” said Jannette Gould,<br />
Tyquan’s mother.<br />
Over the course of four years<br />
Tyquan was in and out of the<br />
hospital suffering repeated<br />
infections from the intravenous<br />
line, often with a 105-degree<br />
fever, requiring intravenous<br />
antibiotics.<br />
“Over the past four years,<br />
Tyquan’s longest consecutive<br />
stay at home has been one<br />
month,” said Julie Shotwell,<br />
RN. Shotwell has been Tyquan’s<br />
nurse since his birth and has<br />
had the opportunity to watch<br />
him grow physically, mentally<br />
and emotionally. “Tyquan is<br />
an articulate, considerate and<br />
sweet child. All of the nurses<br />
enjoy working with him. He is<br />
always brightening someone’s<br />
day.” Shotwell remembers when<br />
Tyquan was able to take his<br />
first bite of food, “I remember<br />
watching pediatric dietician,<br />
Karen Schmidt, RD, CSP, teach<br />
him how to eat. She showed<br />
him how to peel a banana, told<br />
him to place it in his mouth and<br />
bite down. After taking the first<br />
bite he mumbled, ‘I think I did<br />
it,’” Shotwell said with a smile.<br />
Shotwell has also worked closely<br />
with Tyquan’s mother, hospital<br />
teacher Carol Snyder, the child<br />
life specialists, and the nurses of<br />
the inpatient unit to coordinate<br />
his long stays in the hospital. “We<br />
handle things from procedures to<br />
temper-tantrums. It is important<br />
to structure Tyquan’s time so that<br />
he develops both physically and<br />
mentally,” Shotwell said.<br />
Shotwell and other members of<br />
the GI division think that this<br />
structure and environment have<br />
been truly beneficial. “Tyquan<br />
is an exceptional child, both<br />
as a patient, and just as a kid.<br />
Despite living in the hospital for<br />
most of his life and all that he has<br />
gone through — his development<br />
has been astonishing. He has<br />
continued to have an extremely<br />
close bond with his family. Also,<br />
his speech, reasoning skills,<br />
developmental abilities and sense<br />
of humor have certainly not been<br />
affected,” Dr. Martin Graham,<br />
Chair of the Division of Pediatric<br />
Gastroenterology said.<br />
“We have learned a lot from<br />
this patient,” Dr. Graham added.<br />
Tyquan has taught us that even<br />
though a child spends the<br />
majority of his early years in the<br />
hospital, a loving and structured<br />
environment provided in the<br />
Children’s Medical Center can<br />
allow him to grow into a loving,<br />
caring and healthy child.<br />
A major breakthrough in Tyquan’s<br />
treatment came recently in July<br />
when his TPN line was removed.<br />
This should significantly cut<br />
down on the number of return<br />
visits to the hospital. After a<br />
recent 2-day hospital stay, Tyquan<br />
returned home with his family<br />
to enjoy the summer at the pool.<br />
He will begin preschool in the<br />
fall and his pediatric team has<br />
started to coordinate with the<br />
teachers to ensure a healthy start.<br />
The next time Tyquan is admitted,<br />
he will move to a new area for<br />
his age group—the M7Central<br />
unit. Tyquan has spent the past<br />
four years flirting with the nurses<br />
of M7East, but will surely make<br />
new friends and touch many<br />
more lives on M7Central.<br />
June, 2004 — Tyquan(right) and his older brother DéShean (left) take a minute to pose<br />
while playing in the waiting room before an outpatient checkup. DéShean is a helpful<br />
big brother when Tyquan goes home. DéShean helps change his brother’s bags, fills his<br />
pump and makes sure he has lots of water and Diet Pepsi (with lots of ice)!<br />
9
Fun in the Sun<br />
Pediatric Residents Host 5th<br />
Annual Safety Fair<br />
With summer fun and safety in<br />
mind—children, volunteers and docs<br />
gathered for the 5th annual Summer Safety<br />
Fair at Maymont Park on June 17th.<br />
Nearly 200 children were fitted for free bike helmets at this year’s Safety Fair.<br />
The event educated parents and children<br />
about safety issues such as accidental poisonings, fire safety, prevention of child abuse and gun safety. Children<br />
visited different game stations and received prizes after mastering each safety topic. Booths were staffed by<br />
<strong>VCU</strong> pediatric residents, members of the U.S. Coast Guard, Richmond Police Department, VA Fire Safety and<br />
Prevention, Lifeline Ambulance and more. Radio Disney provided entertainment while participants received<br />
free bike helmets, pizza, and educational material.<br />
Hot Tips for Staying Safe this Summer<br />
As you make summer vacation<br />
plans, the <strong>VCU</strong> Pediatric Trauma<br />
Program and SAFE KIDS of<br />
<strong>Virginia</strong> Coalition of <strong>VCU</strong> Medical<br />
Center urge you to keep summer<br />
safety in mind. Make summer an<br />
even more enjoyable season by<br />
protecting your family from the<br />
sun and water. Use the following<br />
guidelines to help protect you and<br />
your family from serious injury.<br />
Sun exposure is the main cause<br />
of skin cancer, the most common<br />
form of cancer in the United<br />
States. A million new cases of<br />
skin cancer are reported every<br />
year. Not only are sunburns<br />
painful, but they can also lead<br />
to dehydration and fever. Sun<br />
exposure in early childhood and<br />
adolescence contributes to skin<br />
cancer, premature wrinkling and<br />
cataracts of the eye. Because<br />
children spend more time<br />
outdoors than most adults, 60%<br />
to 80% of sun exposure, occurs<br />
before the age of 18. Your child’s<br />
skin is very delicate and it’s up to<br />
you to protect it.<br />
Sun Safety Tips:<br />
Avoid peak sun intensity hours<br />
by scheduling outdoor activities<br />
before 11 a.m. and after 4 p.m.<br />
Keep infants and small children in<br />
the shade when outdoors.<br />
Plan trips to parks and places<br />
where adequate shade is available.<br />
Sunscreens should be applied to<br />
dry skin 15-30 minutes BEFORE<br />
going outdoors. When applying<br />
sunscreen, pay particular attention<br />
to the face, ears, hands and<br />
arms, and coat the skin liberally.<br />
Sunscreens should be re-applied<br />
every 2 hours or after swimming<br />
or perspiring heavily.<br />
Drowning is one of the largest<br />
causes of accidental death for<br />
American infants and children<br />
under the age of five. It is therefore<br />
important to consider all safety<br />
guidelines for swimming and<br />
diving, and know when it is<br />
appropriate to use a life jacket/<br />
personal flotation device.<br />
Water Safety Tips:<br />
Always swim with a buddy. Never<br />
leave small children unattended<br />
around any body of water.<br />
Be sure everyone in your family<br />
can swim confidently by taking<br />
swimming lessons.<br />
Always wear a U.S. Coast Guard<br />
approved life jacket when you are<br />
in or near an open body of water,<br />
boat or participating in water<br />
sports.<br />
Swim only within designated safe<br />
areas of rivers, lakes and oceans.<br />
For more information please<br />
contact Karen Stewart, Pediatric<br />
Trauma Coordinator at (804) 628-<br />
0948 or Corri Miller-Hobbs, SAFE<br />
KIDS of VA Coordinator at (804)<br />
628-2077.<br />
10
Ensuring that All<br />
Children are Insured<br />
The <strong>VCU</strong> Children’s Medical Center Supports FAMIS<br />
(Family Access to Medical Insurance) Initiatives<br />
S<br />
ince Governor<br />
Mark Warner took office there<br />
have been 94,000 additional<br />
children enrolled in FAMIS<br />
and FAMIS Plus. That is more<br />
people than it would take to fill<br />
the Redskin’s Fed Ex Field! At<br />
a May 10th press conference,<br />
Governor Warner set a new<br />
enrollment goal that will take<br />
the commitment of every<br />
community partner to reach.<br />
He challenged <strong>Virginia</strong> to enroll<br />
6,000 additional children by<br />
September of this year. Once<br />
this challenge is met FAMIS and<br />
FAMIS Plus will have enrolled a<br />
total of 100,000 children under<br />
the Warner administration.<br />
Even with the enormous<br />
success of the programs, help<br />
from all community partners is<br />
needed – including the provider<br />
community – to ensure that<br />
every eligible child has access<br />
to affordable health care.<br />
A good example of a successful<br />
outreach partnership is<br />
the Central <strong>Virginia</strong> Care<br />
Connection for Children,<br />
located at the <strong>VCU</strong> Children’s<br />
Medical Center’s in the<br />
Children’s Pavilion. Staff from<br />
Care Connection work with<br />
challenges everyday and<br />
try to make a difference for<br />
families who have children<br />
with special health care<br />
Governor Warner at<br />
May 10th’s Press Conference.<br />
needs. Through a cooperative<br />
agreement with the <strong>Virginia</strong><br />
Department of Health (VDH),<br />
Care Connection links families<br />
to information and community<br />
resources – like FAMIS and<br />
FAMIS Plus - while assisting<br />
families in coordinating<br />
their child’s health care. In<br />
addition, Care Connection and<br />
the Department of Medical<br />
Assistance Services (DMAS)<br />
have developed a rapid review<br />
procedure at the FAMIS Central<br />
Processing Unit for children<br />
with special health care needs,<br />
expediting their applications<br />
through the system.<br />
Answering telephone calls<br />
about access to health care<br />
coverage happens on a daily<br />
basis.<br />
“We’ve heard a lot of sad<br />
stories from families who are<br />
trying to meet their child’s<br />
medical needs when they<br />
don’t have health insurance.<br />
We try to help families find<br />
answers,” said Tamara Quarles,<br />
Insurance Benefits Specialist.<br />
Tamara and all of the staff at<br />
Care Connection are part of<br />
the extensive outreach effort<br />
in <strong>Virginia</strong> to assist families<br />
in accessing health care<br />
coverage for their children.<br />
Care Connection helps families<br />
complete the FAMIS and FAMIS<br />
Plus application and ensures<br />
that the application moves<br />
through the eligibility process<br />
smoothly.<br />
That’s the way that it happened<br />
when a call was received from<br />
a local pediatrician’s office<br />
asking Care Connection to<br />
assist a family in obtaining<br />
insurance for their child who<br />
had rheumatoid arthritis. Five<br />
years ago, the family had been<br />
told they were ineligible for any<br />
assistance programs and had<br />
not bothered to try again. They<br />
were having trouble purchasing<br />
the medications, and seeing the<br />
child’s primary and specialty<br />
care providers. The family was<br />
nearly at a crisis point and the<br />
child needed medication when<br />
they called Care Connection.<br />
With the staff assisting the<br />
family in the application<br />
process, the child’s eligibility<br />
was reviewed at the FAMIS<br />
CPU. Following the review, the<br />
child was found to be eligible<br />
for FAMIS Plus and was able<br />
to receive the needed medical<br />
care she required. The family<br />
was happy knowing that their<br />
child had access to necessary<br />
medical services. “Helping<br />
families, that’s what it’s all<br />
about!” said Tamara.<br />
While Care Connection for<br />
Children assists in getting<br />
Continued on Page 14<br />
11
K<br />
U<br />
D<br />
O<br />
S<br />
Bob A. Archuleta, M.D., Bundy Professor,<br />
Department of Pediatrics, recently received<br />
certification in hospice and palliative<br />
medicine. Dr. Archuleta is one of only<br />
18 pediatricians in the United States to<br />
complete this certification.<br />
Walter Chun,<br />
M.D., Community<br />
pediatrician of the<br />
Pediatric Center was<br />
recently awarded<br />
the Mickael<br />
Kannan Community<br />
Preceptor Award for<br />
his contributions to<br />
pediatric medical<br />
education.<br />
Walter Chun, M.D.<br />
and family.<br />
Gary R. Gutcher, M.D., Professor and<br />
Chair, Division of Neonatal Medicine,<br />
has been appointed to the Governor’s<br />
Working Group on Rural Obstetrics and<br />
Gynecology.<br />
Barbara Harding, RN, BAN, CCM,<br />
PAHM, Program Director, Care<br />
Connection for Children has been<br />
recognized as a Certified Case Manager<br />
by the Commission for Case Management<br />
Certification.<br />
Anne-Marie A. Irani, M.D., Professor<br />
and Chair, Division of Allergy and<br />
Immunology, was recently appointed<br />
associate editor for Annals of Allergy,<br />
Asthma and Immunology.<br />
Sean McKenna, M.D., Assistant<br />
Professor, Division of General Pediatrics,<br />
was recently honored with the pediatric<br />
Housestaff Teaching Award.<br />
Linda Meloy, M.D., Assistant Professor<br />
and Interim Chair, Division of General<br />
Pediatrics, recently published a chapter on<br />
Pediatric Dermatology in the Field Guide<br />
to the Normal Newborn.<br />
Petra Menzel, M.P.H., <strong>Virginia</strong> EMS<br />
for Children program Director, recently<br />
received a grant from the Maternal and<br />
Child Health Bureau in the amount<br />
of $345,000 for the EMS for Children<br />
program. The VA EMSC partnership grant<br />
will address Federal priority areas including<br />
the integration of EMSC into State Public<br />
Health Programs; and presence in State<br />
Disaster Preparedness Activities.<br />
Wei Zhao, M.D., Assistant Professor,<br />
Division of Allergy and Immunology,<br />
recently received a five year KO8 grant<br />
from NIH. The research project is titled<br />
“Regulation of Human Mast Cell Function”<br />
and will be funded from July 2004-July<br />
2009.<br />
2004 Nursing and Professional Advancement Awards. On May 6, during the Week of<br />
the Nurse, special recognition was given to those nurses who have demonstrated the highest<br />
level of care to our patients, staff and community this past year. The Children’s Medical<br />
Center congratulates the following health care providers:<br />
Reba Allen<br />
Donna Allen, RN<br />
Wendy Anthony, RN<br />
Amy Antonik, RN<br />
Patty Atkins, BCA<br />
Tiffany Bachman, RN<br />
Catherine Booker, RN<br />
Vicky Bryant, RN<br />
Ester Chambliss, LPN<br />
Katie Cleveland, LPN<br />
Sharon Cone, RN, MS,<br />
NNP<br />
Sharon Coover, RN<br />
Nancy Doyle, RN, MS<br />
Sandra Edmonds, LPN<br />
Melissa Fortin, RN<br />
Connie George, RN<br />
Lynne Guise, RN<br />
Mary Harris, CP<br />
Adrienne Harris, RN<br />
Crystal Holbrook<br />
Garzoni, RN<br />
Dionne Holmes, CP<br />
Sadie Johnson, RN<br />
Jaime Jones, RN<br />
Cyndi Kemp, RN<br />
Teri Kuttenkuler, RN,<br />
MPH<br />
Carline Lenhart, RN<br />
Shelly Lichvar, CP<br />
Kristy Lynn, RN<br />
Sherri Matters, RN<br />
Zachary McChluskey, RN<br />
Kara McDonald, RN<br />
Marcia McGee, RN<br />
Jennifer Middleton, RN<br />
Katherine Nicol, RN<br />
Christina O’Donoghue-<br />
Foster, RN<br />
Rachael Osborne<br />
Sheila Pedigo, PharmD<br />
Keatrina Reynolds, RN<br />
Susan Richards, RN<br />
Valerie Ritchie, RN<br />
Jennifer Schrecentgost,<br />
RN<br />
Tess Searls, RN, MS<br />
Margaret Sharp, RN<br />
Tammie Shatzer, RN<br />
Suzanne Short, RN<br />
Rebecca Sluys, CP<br />
Jeniece Smith, RN, BSN<br />
Lynne Stockner, RN<br />
Susan Sundem<br />
Karen Swarts, MD<br />
Robin Terry, LPN<br />
Nicole Thomas, RN<br />
Allison Thompson, RN<br />
Kathy Tofferi, RN<br />
Dorothy Walker, CA<br />
Ira Walker, RN<br />
Sarah Wegner, RN<br />
Joyce Williams<br />
Chris Woleben, MD<br />
12
Congratulations to<br />
our “Top Docs”<br />
Physicians from the <strong>VCU</strong> Children’s Medical Center<br />
received high marks from their peers in the latest “Top<br />
Docs” survey conducted by Richmond Magazine. The<br />
regional survey asked licensed medical doctors and<br />
osteopaths which specialists they would chose if they<br />
or their family needed medical treatment.<br />
Allergy-Immunology<br />
Anne-Marie Irani, M.D.<br />
Cardiology<br />
Bill Moskowitz, M.D.<br />
General Pediatrics<br />
Linda Meloy, M.D.<br />
Genetics<br />
Joann Bodurtha, M.D.<br />
Infectious Disease<br />
Bill Koch, M.D. and Suzanne Lavoie, M.D.<br />
Neonatal/Perinatal Medicine<br />
Gary Gutcher, M.D. and Henry Rozycki, M.D.<br />
Neurosurgery<br />
John Ward, M.D.<br />
General Surgery<br />
Jeffrey Haynes, M.D. and Charles Bagwell, M.D.<br />
Surgical Specialists<br />
John Ward, M.D. and Charles Bagwell, M.D.<br />
Psychiatry<br />
Bela Sood, M.D. and Neil Sonenklar, M.D.<br />
Rheumatology<br />
Harry L. Gewanter, M.D. and Lenore Buckley, M.D.<br />
Best Doctors in America<br />
In addition to the regional survey, the magazine also<br />
included an excerpted list from the 2004 Best Doctors<br />
in America database including:<br />
Adolescent Medicine<br />
Richard R. Brookman, M.D.<br />
Child Neurology<br />
Edwin C. Meyer, M.D.<br />
Child Neurology<br />
John M. Pellock, M.D.<br />
General Pediatrics<br />
David Draper, M.D. and Bob A. Archuleta, M.D.<br />
Hematology/Oncology<br />
E. Clifton Russell, M.D.<br />
Neurological Surgery<br />
John D. Ward, M.D.<br />
Neurology<br />
Robert T. Leshner, M.D.<br />
Psychiatry<br />
Bella Sood, M.D.<br />
Welcome to Our New<br />
Faculty<br />
Melissa Evans, M.D.<br />
Division of Critical Care, PICU Faculty with a<br />
Laboratory Commitment<br />
Sharon Fitzsimmons, M.D.<br />
Division of General Pediatrics, Director of the<br />
Pediatric Resident Continuity Clinic<br />
David Friedel, M.D.<br />
Pediatric Chief Resident<br />
Guari Gulatti, M.D.<br />
Division of General Pediatrics<br />
Anatole Karpovs, M.D.<br />
Division of General Pediatrics<br />
Carolyn Port, M.D.<br />
Pediatric Chief Resident<br />
Cynthia L. Wright, M.Ed.<br />
Pediatric Residency Program Administrator<br />
Pediatric Residents,<br />
Welcome Aboard!<br />
Rita Al Boustani, M.D.<br />
American <strong>University</strong> of Beirut F.M. - Lebanon<br />
Danny Avula, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Ryan Ballum, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Mary Callahan, M.D.<br />
George Washington <strong>University</strong> S.M.<br />
Christina Castleberry, M.D.<br />
Baylor College of Medicine<br />
Patricia Faria Nunes Eller, M.D.<br />
Federal <strong>University</strong> of Espirito Santo - Brazil<br />
Lynne C. Gehr, M.D.<br />
West <strong>Virginia</strong> <strong>University</strong> S.M.<br />
Elizabeth Iselin, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Mayuri Lakdawala, M.D.<br />
<strong>University</strong> of <strong>Virginia</strong> S.M.<br />
Molly McGinnis, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Alifiya Poonawala, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Sylvia Rozanski, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Whitney Short, M.D.<br />
<strong>Virginia</strong> <strong>Commonwealth</strong> <strong>University</strong> S.M.<br />
Niran Wijesooriya, M.D.<br />
<strong>University</strong> of <strong>Virginia</strong> S.M.<br />
13
FAMIS<br />
Continued from Page 11<br />
access to affordable health care, there are many<br />
opportunities for pediatric providers to assist in<br />
the FAMIS outreach effort. Providers, often the<br />
first in line to interface with an uninsured child,<br />
have a unique opportunity to assist in community<br />
outreach, help FAMIS meet Warner’s challenge,<br />
and help a child get a healthy start in life. It is<br />
easy to do. Actions a provider may choose to<br />
take are:<br />
Include FAMIS information in self-pay<br />
patients bills,<br />
Display FAMIS brochures in patient<br />
waiting areas,<br />
Set up a referral system with an<br />
organization like Central <strong>Virginia</strong> Care<br />
Connection for Children,<br />
Send office staff to a FAMIS training,<br />
Talk to colleagues about the program,<br />
Talk to families already enrolled in FAMIS<br />
about the importance of well-child and<br />
sick-child visits.<br />
For further information about Central <strong>Virginia</strong><br />
Care Connection for Children, call 804-827-1795<br />
or Toll Free 1-866-737-5965. Or take a look at<br />
their website: www.careconnections.vcu.edu.<br />
For further information about FAMIS or FAMIS<br />
Plus or to order materials call outreach staff<br />
at 804-786-3359 or 804-786-0166. Log onto<br />
www.FAMIS.org.<br />
Families: to start a FAMIS application, call<br />
toll-free 1-866-87FAMIS or visit your local<br />
Department of Social Services.<br />
Where Are They Now<br />
Graduates on the Move...<br />
Shannon Beausoleil,<br />
M.D.<br />
Private practice in Connecticut<br />
Tamara Charity-Brown,<br />
M.D.<br />
Infant Jesus Pediatric Center,<br />
Hopewell, VA<br />
Geetu Deogun, M.D.<br />
Allergy/Immunology fellowship<br />
at Rush <strong>University</strong>, Chicago, IL<br />
Fanny Espinal, MD<br />
General Pediatrics position at<br />
Blue Ridge Pediatrics, Raleigh,<br />
NC<br />
Daniel Fitzsimmons,<br />
M.D.<br />
General Pediatrics position<br />
at Goldsboro Pediatrics,<br />
Goldsboro, NC<br />
David Friedel, M.D.<br />
Pediatric Chief Resident at <strong>VCU</strong><br />
Medical Center<br />
Nicole Irwin, M.D.<br />
Pediatric Rehabilitation position<br />
at the Medical College of<br />
Wisconsin<br />
Anatole Karpovs, M.D.<br />
General Pediatrics position at<br />
<strong>VCU</strong> Medical Center<br />
Mun Ting Liu, M.D.<br />
General Pediatric position at<br />
Takai Pediatrics and Adolescent<br />
Medicine, Germantown, MD<br />
Peggy Loda, M.D.<br />
undecided<br />
Jamie Ngo, M.D.<br />
General Pediatrics position in<br />
Houston, TX<br />
Kimberly Northrip, M.D.<br />
General Pediatrics fellowship at<br />
the Children’s National Medical<br />
Center, Washington, DC<br />
LaGora Oliver, M.D.<br />
General Pediatrics position at<br />
Eastern Shore Physicians and<br />
Surgeons Inc., Nassawodox, VA<br />
Carolyn Port, M.D.<br />
Pediatric Chief Resident at <strong>VCU</strong><br />
Medical Center<br />
Donna Sassaman, M.D<br />
Medicine-Pediatrics at Seisinger<br />
Wyoming Valley Hospital,<br />
Wilkes-Barre, PA<br />
Chu Ri Shin, M.D.<br />
Biochemistry research at <strong>VCU</strong><br />
Medical Center<br />
Isca Wilms, M.D.<br />
Infectious Disease fellowship at<br />
<strong>VCU</strong> Medical Center<br />
Yvonne Bremer, M.D.<br />
Cardiology Practice, Knoxville,<br />
TN<br />
Mercedes Cruz, M.D.<br />
NICU position, Las Vegas, NV<br />
Melissa Evans, M.D.<br />
Pediatric Critical Care position<br />
at <strong>VCU</strong> Medical Center<br />
Maria Reyes, M.D.<br />
Allergy Practice, Richmond, VA<br />
1001 E. Marshall Street<br />
PO Box 980646<br />
Richmond, VA 23298-0646<br />
Non-Profit Organization<br />
U.S. Postage<br />
P A I D<br />
Richmond, VA<br />
Permit 869<br />
Address Service Requested