20.04.2015 Views

program - American Academy for Cerebral Palsy and ...

program - American Academy for Cerebral Palsy and ...

program - American Academy for Cerebral Palsy and ...

SHOW MORE
SHOW LESS

Create successful ePaper yourself

Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.

2013<br />

preliminary<br />

Program<br />

For more in<strong>for</strong>mation visit<br />

www.aacpdm.org


Who We Are<br />

Welcome!<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine (AACPDM)<br />

is an academy of over one thous<strong>and</strong> people of multiple professional disciplines<br />

dedicated to the improvement in the care of people with childhood-onset disabilities,<br />

their families <strong>and</strong> communities. We are pediatricians, neurologists, surgeons,<br />

therapists, nurses, special educators, engineers, <strong>and</strong> scientists from all over the world.<br />

Together we strive daily in our quest to per<strong>for</strong>m the highest quality research, offer<br />

education opportunities <strong>for</strong> ourselves <strong>and</strong> others in the field, <strong>and</strong> work to elevate<br />

society <strong>and</strong> culture by recognizing the value <strong>and</strong> dignity of our fellow citizens with<br />

disabilities.<br />

Each year, about 1,000 medical professionals gather <strong>for</strong> the AACPDM Annual Meeting<br />

to participate in the high-quality dissemination of in<strong>for</strong> mation in the basic sciences,<br />

prevention, diagnosis, treatment, <strong>and</strong> technical advanc es as applied to persons with<br />

cerebral palsy <strong>and</strong> other childhood-onset disabilities.<br />

Meeting Venue<br />

The 67 th Annual Meeting is being held at the Wisconsin Center in Milwaukee,<br />

Wisconsin, on October 16-19, 2013. The Wisconsin Center is located in the heart of<br />

downtown Milwaukee with restaurants, breweries, museums <strong>and</strong> shopping nearby.<br />

The Annual Meeting theme is “Research <strong>and</strong> Practice” <strong>and</strong> there will be a<br />

comprehensive <strong>program</strong> of local <strong>and</strong> international speakers covering a wide range of<br />

topics <strong>and</strong> issues <strong>and</strong> specifically addressing how research <strong>and</strong> practice are bridged in<br />

treating patients.<br />

TABLE OF CONTENTS<br />

Meeting at a Glance ......................4<br />

General Meeting In<strong>for</strong>mation ............5<br />

Location <strong>and</strong> Housing ....................6<br />

About Milwaukee ........................7<br />

Meeting Highlights.......................8<br />

GCMAS Pre-conference Symposium .....9<br />

Pre-conference Sessions ................10<br />

Educational Program <strong>and</strong> Events<br />

Thursday .................................13<br />

Friday ....................................26<br />

Saturday .................................38<br />

Scientific Posters ........................50<br />

Demonstration Posters ..................54<br />

AACPDM Awards ........................56<br />

Connecting with AACPDM ..............57<br />

Meeting Policies <strong>and</strong> Disclaimers. .......58<br />

AACPDM Member Benefits ..............59<br />

AACPDM 67th Annual Meeting<br />

Registration Form .......................60<br />

2<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


2012-2013 BOARD OF DIRECTORS<br />

President<br />

Maureen O’Donnell, MD MSc FRCPC<br />

Child Health BC<br />

University of British Columbia<br />

Vancouver, British Columbia<br />

First Vice President<br />

Richard D. Stevenson, MD<br />

University of Virginia Children’s Hospital<br />

Charlottesville, Virginia<br />

Second Vice President<br />

Darcy Fehlings, MD MSc FRCPC<br />

Holl<strong>and</strong> Bloorview Kids<br />

Rehabilitation Hospital<br />

Toronto, Ontario<br />

Treasurer / Past President (2010-2011)<br />

Scott Hoffinger, MD<br />

Stan<strong>for</strong>d University School of Medicine<br />

Berkeley, Cali<strong>for</strong>nia<br />

Treasurer-Elect<br />

Joshua Hyman, MD<br />

New York Presbyterian Morgan Stanley<br />

Children’s Hospital<br />

New York, New York<br />

Secretary<br />

Annette Majnemer, PhD OT<br />

McGill University<br />

Montreal, Quebec<br />

Secretary- Elect<br />

Johanna Darrah, PhD PT<br />

University of Alberta<br />

Edmonton, Alberta<br />

Past President (2011-2012)<br />

Joseph Dutkowsky, MD<br />

Bassett Medical Center<br />

Cooperstown, New York<br />

Columbia <strong>Cerebral</strong> <strong>Palsy</strong> Center<br />

New York, New York<br />

Directors at Large<br />

Mauricio R. Delgado, MD FRCPC FAAN<br />

Texas Scottish Rite Hospital <strong>for</strong> Children<br />

Dallas, Texas<br />

Unni Narayanan, MBBS MSc FRCS(C)<br />

The Hospital <strong>for</strong> Sick Children<br />

Toronto, Ontario<br />

Jilda Vargus-Adams, MD MSc<br />

Cincinnati Children’s Hospital<br />

Medical Center<br />

Cincinnati, Ohio<br />

Laura K. Vogtle, PhD OTR/L FAOTA<br />

University of Alabama at Birmingham<br />

Birmingham, Alabama<br />

Lesley E. Wiart, PhD PT<br />

Alberta Health Services<br />

Edmonton, Alberta<br />

Gordon Worley, MD<br />

Duke University Medical Center<br />

Durham, North Carolina<br />

Welcome to Milwaukee!<br />

We are excited, thrilled, <strong>and</strong> yes, downright ‘revved’ about the 67 th Annual<br />

Scientific Meeting of the AACPDM that is taking place in a beautiful venue in<br />

the heart of downtown Milwaukee. Thank you <strong>for</strong> making the decision to spend<br />

precious time with us. The planning committee has worked hard so that you will<br />

not be disappointed.<br />

The theme <strong>for</strong> this year’s meeting is “Research <strong>and</strong> Practice” (alternatively Practice <strong>and</strong> Research) <strong>and</strong> we have<br />

developed the meeting content to explore the interrelationships between the two <strong>and</strong> how they necessarily<br />

<strong>and</strong> properly work together to improve care <strong>for</strong> children <strong>and</strong> adults with childhood-set disabilities. The theme<br />

weaves together all of the plenary sessions <strong>and</strong> creates a context <strong>for</strong> all of our sessions together. We look<br />

<strong>for</strong>ward to you joining us in this exploration.<br />

The meeting, as usual, is packed with all kinds of learning opportunities. The pre-conference symposia, the<br />

breakfast seminars, the plenary sessions, the instructional courses, the free paper sessions, <strong>and</strong> the scientific<br />

<strong>and</strong> demonstration posters all provide different modalities to participate in professional education. We<br />

increased the number of free papers from 72 to 90, increased scientific posters from 39 to 67, <strong>and</strong> increased<br />

the number of demonstration posters. The hard-working Scientific Program Committee reviewed 447<br />

abstract submissions this year! And because of the flexibility offered by the venue <strong>and</strong> the quality of the<br />

submissions, we were able to increase the opportunities <strong>for</strong> faculty to present their work.<br />

An essential part of each yearly meeting is the opportunity to connect with friends <strong>and</strong> colleagues from<br />

around the Globe. As with the Toronto meeting, we will be creating in<strong>for</strong>mal <strong>and</strong> com<strong>for</strong>table spaces where<br />

attendees can meet <strong>and</strong> share ideas. Both the hotel <strong>and</strong> the conference center are replete with spaces <strong>for</strong><br />

in<strong>for</strong>mal, planned or spontaneous gatherings, so we hope you will take advantage of them. As with recent<br />

meetings, we will also be incorporating a touch of technology with the introduction of the first Annual<br />

Meeting Mobile App. For those that are tech-savy <strong>and</strong> would utilize this conference management too, we<br />

encourage you to give it a whirl!<br />

In addition to these in<strong>for</strong>mal opportunities to meet with colleagues, join us <strong>for</strong> our social events! Be sure<br />

not to miss out on Wednesday’s President’s Welcome Reception to be held at the beautiful Milwaukee Art<br />

Museum, located on the shores of Lake Michigan. Get reacquainted with old friends <strong>and</strong> meet some new<br />

ones while enjoying refreshments, music, <strong>and</strong> art in this remarkable, iconic structure. During the reception<br />

we will be introducing the LifeShots Photo Gallery, please take a moment to view the gallery as it will strike<br />

a chord with all. Thursday evening is the wine <strong>and</strong> cheese poster <strong>and</strong> exhibit viewing session. Enjoy some<br />

Wisconsin cheeses while perusing the posters <strong>and</strong> exhibits. Finally, on Friday come join us <strong>for</strong> a fun evening<br />

of motorcycles, music, <strong>and</strong> dancing at the Harley-Davidson Museum® just blocks away from the hotel. The<br />

Harley-Davidson® motorcycle has become symbolic of the <strong>American</strong> spirit <strong>and</strong> this museum captures all the<br />

highlights of the “history of the Hog” <strong>and</strong> then some! There will be opportunity to tour the museum, followed<br />

by a mid-west dinner, a live b<strong>and</strong>, <strong>and</strong> the opportunity to dance a bit. There is a little something <strong>for</strong> everyone<br />

at the Harley-Davidson Museum®, so please come!<br />

Finally, we would like to say a big “Thank You” to all our sponsors <strong>and</strong> exhibitors who contribute to the success<br />

of the meeting every year. The innovations <strong>and</strong> products on display will inspire us!<br />

If you have never been to Milwaukee, you are in <strong>for</strong> a treat! The hotel is a 1920’s-era historic building that has<br />

been completely modernized with beautiful, spacious rooms <strong>and</strong> a gorgeous lobby <strong>and</strong> bar that all will enjoy.<br />

The conference center is across the street but connected to the hotel by a skyway that will make walking<br />

back <strong>and</strong> <strong>for</strong>th convenient <strong>and</strong> com<strong>for</strong>table. The RiverWalk is nearby <strong>for</strong> plenty of good shopping, exercise,<br />

food, or beer (yes, it’s true).<br />

We look <strong>for</strong>ward to seeing you here!<br />

Richard Stevenson, MD<br />

Charlottesville, VA<br />

AACPDM First Vice President<br />

555 East Wells Street, Suite 1100 • Milwaukee, WI 53202 • Phone (414) 918-3014 • Fax (414) 276-2146 • www.aacpdm.org • info@aacpdm.org<br />

AACPDM 67 th Annual Meeting • Research & Practice 3


Meeting at a Glance<br />

6<br />

Wednesday, October 16 Thursday, October 17 Friday, October 18 Saturday, October 19<br />

6:00-6:45<br />

Get Fit!<br />

6:00-6:45<br />

Get Fit!<br />

6:00-6:45<br />

Get Fit!<br />

7<br />

8<br />

7:30-8:30<br />

Board & Committee<br />

Breakfast<br />

7:00-7:50<br />

Breakfast Seminars<br />

#1-6<br />

7:00-7:50<br />

Continental<br />

Breakfast in Exhibit<br />

Hall<br />

7:00-7:50<br />

Breakfast Seminars<br />

#7-12<br />

7:00-7:50<br />

Continental<br />

Breakfast in Exhibit<br />

Hall<br />

7:00-7:50<br />

Breakfast Seminars<br />

#13-18<br />

7:00-7:50<br />

Continental<br />

Breakfast in Lobby<br />

area<br />

9<br />

10<br />

11<br />

12<br />

1<br />

8:00-12:00<br />

Gait & Clinical<br />

Movement<br />

Analysis Society<br />

Pre-Symposium<br />

8:30-12:00<br />

Children’s Hospital<br />

Tour<br />

8:30-11:15<br />

Committee<br />

Meetings<br />

11:30-12:45<br />

Board & Committee<br />

Luncheon<br />

8:00-10:15<br />

General session — Opening Address<br />

Welcome & Exchange of gavel<br />

Presidential Guest Lecturer<br />

Lifetime Achievement Award<br />

8:00-10:00<br />

General Session<br />

Cathleen Lyle Murray Award & Lecture<br />

Guest Lectures<br />

EACD Lecture<br />

Mentorship Award<br />

10:00-10:30<br />

Coffee Break<br />

Exhibit Hall <strong>and</strong> Poster Displays open<br />

8:00-10:00<br />

Free Papers<br />

G, H, I 8:00-10:15<br />

Complex Care SIG<br />

10:00-10:15<br />

Coffee Break<br />

Poster Displays<br />

10:15-10:45<br />

Coffee Break<br />

Exhibit Hall <strong>and</strong> Poster Displays open 10:15-12:00<br />

General Session<br />

Gayle G. Arnold Award<br />

10:45-12:45<br />

Free Papers<br />

A, B, C<br />

12:45-2:00<br />

AACPDM Members’ Business meeting<br />

Attendee lunch on own<br />

10:30-12:30<br />

Free Papers<br />

D, E, F<br />

12:30-1:30<br />

Flashpoint Presentation Luncheon<br />

Sponsored by Medtronic<br />

International Affairs Luncheon<br />

Gayle G. Arnold Lecturers<br />

CPRIF Best Poster “People’s Choice”<br />

Mac Keith Press Promising Career Award<br />

12:00-1:30<br />

Attendee lunch on<br />

own<br />

Committee<br />

Luncheon Meetings<br />

2<br />

3<br />

1:00-5:00<br />

Pre-Conference Courses<br />

PC1: Lifespan Care<br />

PC2: Complex Care group with Children’s<br />

Hospital of WI<br />

PC3: Emerging Mobility Technology<br />

PC4: Ultrasound Course<br />

2:00-4:00<br />

Instructional Courses<br />

#1-13<br />

1:30-3:30<br />

General Session<br />

Chambers Family Lifespan Lectureship<br />

Guest Lectures - 2<br />

Fred P. Sage Award<br />

Duncan Wyeth Award<br />

1:30-3:30<br />

Instructional<br />

Courses<br />

#26-38<br />

12:00-5:00<br />

Board of Directors<br />

Meeting<br />

1:00-5:00<br />

Board of Directors Meeting<br />

3:30-4:00<br />

Coffee Break<br />

Exhibit Hall <strong>and</strong> Poster Displays open<br />

4<br />

5<br />

4:30-6:15<br />

General Session<br />

Mac Keith Press Basic<br />

Science Lectureship<br />

Guest Lectures - 2<br />

Corbett Ryan Award<br />

4:00-4:45<br />

Coffee Break<br />

Exhibit Hall <strong>and</strong><br />

Poster Displays open<br />

4:00-6:00<br />

Instructional Courses<br />

#13-25<br />

6<br />

7<br />

6:30-8:00<br />

President’s Welcome Reception<br />

6:15-7:45<br />

Wine <strong>and</strong> Cheese Poster <strong>and</strong> Exhibit<br />

Viewing Session<br />

6:30-Midnight<br />

Evening Celebration<br />

Harley-Davidson Museum ®<br />

4<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


General Meeting In<strong>for</strong>mation<br />

Purpose<br />

The educational <strong>program</strong> of the <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong><br />

<strong>Palsy</strong> <strong>and</strong> Developmental Medicine (AACPDM) is designed<br />

to provide targeted opportunities <strong>for</strong> dissemination of in<strong>for</strong>mation<br />

in the basic sciences, prevention, diagnosis, treatment, <strong>and</strong><br />

technical advances as applied to persons with childhood onset<br />

disabilities. The <strong>program</strong> provides a <strong>for</strong>um <strong>for</strong> discussion of scientific<br />

developments <strong>and</strong> clinical advances in the care of people with<br />

these conditions. By presenting <strong>for</strong>ums which foster interdisciplinary<br />

communication <strong>and</strong> interchange among all allied health care<br />

professionals concerned with individuals with cerebral palsy <strong>and</strong><br />

neurodevelopmental disorders, this <strong>program</strong>’s purpose is to ensure<br />

that the qualified personnel have the skills <strong>and</strong> knowledge derived<br />

from practices that have been determined through research <strong>and</strong><br />

experience to be successful in serving children with disabilities. The<br />

purpose is also to encourage teambuilding within organizations<br />

<strong>and</strong> institutions, encourage multicenter studies, develop in<strong>for</strong>mation<br />

<strong>for</strong> parents, <strong>and</strong> find a consensus on the optimal care of various<br />

conditions.<br />

Objectives<br />

• To disseminate in<strong>for</strong>mation on new developments in applied<br />

<strong>and</strong> translational sciences, prevention, diagnosis, treatment<br />

<strong>and</strong> technology <strong>for</strong> individuals with cerebral palsy <strong>and</strong> other<br />

childhood onset disabilities.<br />

• To create an interdisciplinary <strong>for</strong>um to facilitate communication<br />

<strong>and</strong> team-building between professionals who are providing<br />

services <strong>and</strong> care <strong>for</strong> individuals with childhood onset<br />

disabilities.<br />

• To facilitate the integration between research <strong>and</strong> practice<br />

to improve the well being of people with childhood onset<br />

disabilities.<br />

Target Audience<br />

All health care professionals, clinicians, researchers <strong>and</strong> health<br />

administrators who are concerned with the care of patients with<br />

cerebral palsy <strong>and</strong> other childhood-onset disabilities, including:<br />

Developmental <strong>and</strong> other pediatricians, neurologists, physiatrists,<br />

orthopedic <strong>and</strong> neuro-surgeons, physical <strong>and</strong> occupational<br />

therapists, speech <strong>and</strong> language pathologists, orthotists, dieticians,<br />

rehabilitation engineers, kinesthiologists, nurses, psychologists,<br />

special education teachers <strong>and</strong> educators.<br />

NOTE: All levels of skill will be addressed.<br />

AACPDM Vision<br />

A global leader in the multidisciplinary scientific education <strong>for</strong><br />

health professionals <strong>and</strong> researchers dedicated to the well-being of<br />

the people with childhood-onset disabilities.<br />

AACPDM Mission<br />

Provide multidisciplinary scientific education <strong>for</strong> health profes sionals<br />

<strong>and</strong> promote excellence in research <strong>and</strong> services <strong>for</strong> the benefit of<br />

people with cerebral palsy <strong>and</strong> childhood-onset disabilities.<br />

Online Self-Reporting System <strong>for</strong> CME /<br />

CEU / CE Credits<br />

After the AACPDM 67 th Annual Meeting, all registrants will<br />

receive an instructional email about reporting <strong>and</strong> printing<br />

out their own continuing education certificates. The online<br />

self-reporting will be open by no later than November 2013.<br />

To verify your correct email address, please visit the registration<br />

desk be<strong>for</strong>e you leave the meeting.<br />

Please note: In self-reporting, if you miss more than 15 minutes of a<br />

session/course, it is not considered full attendance, <strong>and</strong> cannot be<br />

claimed.<br />

Certificate of Attendance<br />

All attendees may claim a Certificate of Attendance. Access this<br />

<strong>for</strong>m at the Registration Desk.<br />

ACCME Accreditation Statement<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental<br />

Medicine (AACPDM) is accredited by the Accreditation Council<br />

<strong>for</strong> Continuing Medical Education to provide continuing<br />

medical education <strong>for</strong> physicians.<br />

AMA Credit Designation Statement<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental<br />

Medicine (AACPDM) designates this live activity <strong>for</strong> a maximum<br />

of 33.0 AMA PRA Category 1 Credits. Physicians should<br />

claim only the credit commensurate with the extent of their<br />

participation in the activity.<br />

Physical Therapists / Physical Therapy Assistants<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong><br />

Developmental Medicine is recognized as<br />

an Approval Agency by the Physical Therapy<br />

Board of Cali<strong>for</strong>nia.<br />

http://ptbc.ca.gov/licensees/cc_agency.shtml<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental<br />

Medicine has been approved by the Wisconsin Physical Therapy<br />

Association, WPTA Course <strong>for</strong> up to 33.0 Contact Hours.<br />

Occupational Therapists / Occupational Therapy Assistants<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental<br />

Medicine is an Approved Provider of Continuing Education by<br />

the <strong>American</strong> Occupational Therapy Association (AOTA) #6379.<br />

Occupational Therapists <strong>and</strong> Occupational Therapy Assistants<br />

will be able to claim a maximum of 3.30 AOTA CEU’s. All sessions<br />

during the 67 th Annual Meeting are available <strong>for</strong> credit:<br />

Note: The assignment of AOTA CEUs does not imply endorsement of<br />

specific course content, products, or clinical procedures by AOTA.<br />

Nursing Credits<br />

The <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental<br />

Medicine (AACPDM) is a Provider approved by the Cali<strong>for</strong>nia<br />

Board of Registered Nursing, Provider # CEP 14720, <strong>for</strong> 33.0<br />

Contact Hours.<br />

AACPDM 67 th Annual Meeting • Research & Practice 5


Location <strong>and</strong> Housing In<strong>for</strong>mation<br />

Wisconsin Center<br />

400 W. Wisconsin Avenue<br />

Milwaukee, WI 53203<br />

Milwaukee’s convention center – the Wisconsin Center is located in<br />

the heart of Milwaukee’s dynamic downtown with its wide range of<br />

shopping, dining <strong>and</strong> nightlife, theater districts <strong>and</strong> museums.<br />

One of the most distinctive convention centers in the nation, the<br />

Wisconsin Center showcases Milwaukee’s rich cultural heritage with<br />

a unique collection of $1.2 in public art. Cutting-edge technology,<br />

including free WI-FI will be available <strong>for</strong> all meeting attendees.<br />

Click here <strong>for</strong> in<strong>for</strong>mation on Milwaukee <strong>and</strong> the Wisconsin Center<br />

Welcome to the Hilton Milwaukee City Center<br />

509 West Wisconsin Avenue<br />

Milwaukee, WI 53203<br />

Group Room Rate Single/Double: $159.00<br />

This rate is valid until September 15, 2013<br />

Click here to make your reservation<br />

The Hilton Milwaukee Downtown hotel is a classic art deco hotel with<br />

rich furnishing <strong>and</strong> distinctive architecture built in 1927. Originally<br />

called The Schroeder Hotel, today the Hilton Milwaukee Downtown<br />

is recognized as the city’s largest hotel with a tradition of excellence<br />

spanning nearly 85 years. The hotel features 729 newly renovated<br />

guest rooms with complimentary internet <strong>for</strong> AACPDM guests.<br />

The gracious style of the hotel is reflected in impeccable service <strong>and</strong><br />

attention to every detail provided by a tenured team of hospitality<br />

professionals. The hotel is connected to the city’s convention center,<br />

the Wisconsin Center.<br />

The Hilton Hotel in Milwaukee is steps from many popular<br />

attractions including the Lake Michigan parkl<strong>and</strong> <strong>and</strong> shoreline, the<br />

Henry Maier Festival Grounds (home to the World’s Largest Music<br />

Festival, Summerfest; <strong>and</strong> many other ethnic festivals), the BMO<br />

Harris Bradley Center Sports Complex, the Milwaukee Theatre, <strong>and</strong> a<br />

bounty of boutique shops.<br />

Hungry? Our hotel has something <strong>for</strong> everyone. Start your day with<br />

a Starbucks® Latte or Frappucino, or enjoy a bountiful breakfast in<br />

the Hilton Café. Miller Time Pub is a favorite spot to hang out with<br />

friends, watch a game, or to imbibe in your favorite cocktail. Miller<br />

Time Pub boasts the best burgers in town <strong>and</strong> 18 beers on tap,<br />

including the very popular commemorative signature beer, Copper<br />

Top Ale. Milwaukee Chophouse, known <strong>for</strong> its steaks, seafood,<br />

<strong>and</strong> chops, was recently rated as one of Milwaukee’s “Top Seafood<br />

Restaurants” by Milwaukee Magazine.<br />

The group rate is valid <strong>for</strong> booking made be<strong>for</strong>e, Saturday,<br />

September 15, 2013.<br />

Milwaukee Area Students<br />

If you are enrolled as a student in the Milwaukee area, the AACPDM will provide a special registration rate. You will be asked to provide<br />

your student status. Email info@aacpdm.org <strong>for</strong> full details<br />

6<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


About Milwaukee<br />

Milwaukee – Millions of people visit the greater Milwaukee<br />

area every year. They come from around the world <strong>for</strong> all kinds of<br />

reasons: attending a business conference, visiting family <strong>and</strong> friends,<br />

taking in the world’s biggest music festival or simply enjoying the<br />

area’s natural beauty <strong>and</strong> central Midwestern location. No other<br />

major Midwestern city can claim a location where three rivers flow<br />

into a 22,000-square-mile Great Lake. Our meeting social events<br />

are tied to the water including the Milwaukee Art Museum on Lake<br />

Michigan <strong>and</strong> the riverside Harley-Davidson Museum ® . We will be<br />

celebrating on the water. Once you visit Milwaukee <strong>and</strong> experience<br />

the excitement of our culture, the warmth of our people <strong>and</strong> beauty<br />

of our city—you will be sold.<br />

Milwaukee’s Culinary Jewels – Diverse <strong>and</strong><br />

Exceptional<br />

With everything from sacred institutions like frozen custard,<br />

bratwurst <strong>and</strong> the Friday night fish fry to some of the most dynamic<br />

<strong>and</strong> unique cuisine you’ll find anywhere, Milwaukee’s culinary scene<br />

offers a taste <strong>for</strong> every palate. The city boasts the most famous<br />

German restaurant in all of North America, not one but two James<br />

Beard award winning chefs dazzling diners with their creations<br />

<strong>and</strong> a new twist on our brewing heritage--gastropubs doing beer<br />

pairings with meals. Classic tastes balanced out by modern attitude,<br />

both served with a warm side of hospitality, are waiting here <strong>for</strong><br />

you. A dine around option will be provided during the 2013 Annual<br />

Meeting .<br />

That’s Edutainment<br />

Dozens of museums <strong>and</strong> cultural facilities make Milwaukee the<br />

perfect place to learn while you play. Considered Wisconsin’s<br />

premier arts institution, the Milwaukee Art Museum boasts more<br />

than 20,000 permanent holdings that span antiquity to the present<br />

<strong>and</strong> include works by Degas, Monet, Warhol <strong>and</strong> Picasso, not to<br />

mention one of the largest Georgia O’Keefe collections in the world.<br />

Head next door to Discovery World <strong>for</strong> some interactive fun or pack<br />

a trip around the world into an afternoon at the Milwaukee Public<br />

Museum. Stop by the Grohmann Museum where you will find<br />

the Man at Work Art Collection, the world’s most comprehensive<br />

collection documenting the evolution of organized work. And you<br />

won’t want to miss Marquette University’s Haggerty Museum of Art<br />

where you will find an impressive permanent collection of all media,<br />

ranging from Old Masters to 20th century painting <strong>and</strong> sculpture.<br />

The museum also mounts several exhibitions each year.<br />

Stroll the RiverWalk<br />

The RiverWalk winds along the Milwaukee River with access to<br />

some of the city’s best restaurants, brewpubs, shops <strong>and</strong> waterfront<br />

nightlife. It’s the site of many Milwaukee events, including<br />

Riversplash! <strong>and</strong> River Rhythms, <strong>and</strong> is home to some of the city’s<br />

most eye-catching public art. With both permanent <strong>and</strong> temporary<br />

pieces done in mediums of everything from aluminum <strong>and</strong> steel<br />

to neon tubing, the RiverWalk has the feel of an outdoor gallery.<br />

The most recent addition to this impressive collection is a bronze<br />

statue of Arthur “The Fonz” Fonzarelli. The King of Cool, complete<br />

with leather jacket <strong>and</strong> signature double thumbs up, now resides on<br />

the southeast corner of Wells Street <strong>and</strong> provides the perfect pop<br />

culture photo opportunity.<br />

Let Us Entertain You – Milwaukee’s<br />

Per<strong>for</strong>ming Arts<br />

A vibrant arts scene located right on the shores of Lake Michigan<br />

awaits you! With a wide range of per<strong>for</strong>ming arts venues <strong>and</strong><br />

theater companies, a unique mix of art galleries <strong>and</strong> museums,<br />

<strong>and</strong> a strong tradition of arts education, Milwaukee rivals even<br />

the largest markets. Milwaukee’s two theater districts are packed<br />

with a powerhouse lineup. The downtown district houses the<br />

Marcus Center <strong>for</strong> the Per<strong>for</strong>ming Arts, the historic Pabst Theater,<br />

Milwaukee Repertory Theater <strong>and</strong> the Riverside Theatre. The<br />

city is also home to the Milwaukee Ballet, the Florentine Opera,<br />

First Stage Children’s Theater, the Skylight Opera Theatre, the<br />

Milwaukee Symphony Orchestra, the Renaissance Theaterworks<br />

<strong>and</strong> the Chamber Theatre.<br />

Milwaukee on Tap<br />

Milwaukee’s long <strong>and</strong> rich brewing heritage dates back to the<br />

1840s. Names like Schlitz, Blatz, Pabst <strong>and</strong> Miller hold a revered<br />

place in the city’s history, establishing the foundation <strong>for</strong> our most<br />

famous industry <strong>and</strong> planting the seeds <strong>for</strong> our reputation as the<br />

quintessential brew city. Today, Milwaukee remains a true brew city<br />

as home to one of the world’s leading breweries, MillerCoors; two<br />

renowned microbreweries, the Lakefront Brewery <strong>and</strong> Sprecher<br />

Brewing Company; the world’s only brewery tour by boat; <strong>and</strong><br />

brewpubs including the Milwaukee Ale House, Delafield Brewhaus<br />

<strong>and</strong> Hinterl<strong>and</strong>.<br />

AACPDM 67 th Annual Meeting • Research & Practice 7


Meeting Highlights & Special Events<br />

Join 1,000 world-leading healthcare professionals <strong>for</strong> an all<br />

encompassing educational <strong>program</strong> that will address all skill levels.<br />

Below are highlights of the various educational <strong>for</strong>mats:<br />

• Featured Plenary Sessions<br />

• Free Papers<br />

• Scientific <strong>and</strong> Demonstration Posters<br />

• Pre-conference Sessions<br />

• Breakfast Seminars<br />

• Instructional Courses<br />

• Wednesday morning symposium with the Gait <strong>and</strong> Clinical<br />

Movement Analysis Society. This could be linked with a Wednesday<br />

afternoon pre-conference session <strong>for</strong> an added day of learning – or<br />

can st<strong>and</strong> alone.<br />

New this year!<br />

LifeShots Gallery! The AACPDM has created a photo contest<br />

to feature a one-of-a-kind gallery that will inspire all viewers <strong>and</strong><br />

patients with cerebral palsy <strong>and</strong> other childhood-onset disabilities to<br />

overcome their many challenges. We ask you to participate.<br />

Here’s what we’re looking <strong>for</strong>…<br />

Photos of patients in the midst of doing what they enjoy,<br />

completing a basic task or celebrating a major accomplishment. The<br />

photos can contain family members <strong>and</strong> care providers but we must<br />

have a photo release <strong>for</strong> each person in the photo.<br />

Then, include a title that is unique to the patient’s ability being<br />

highlighted in the photo. The title/phrase will be mounted next to<br />

the photo. Feel free to create a unique title or you can develop a title<br />

by finishing the following phrase: This is how I roll… Don’t think of<br />

me as being unable, know that I…<br />

Go to www.aacpdm.org/meetings/2013 <strong>for</strong> additional in<strong>for</strong>mation<br />

Tuesday, October 15th<br />

Orthopaedic Surgery Center <strong>for</strong> Motion Analysis Tour<br />

4:00 pm – 6:00 pm<br />

Registration is required. Space is limited.<br />

The Center <strong>for</strong> Motion Analysis (CMA) in the Department of<br />

Orthopaedic Surgery at the Medical College of Wisconsin is<br />

designed to support a broad scope of both clinical <strong>and</strong> researchoriented<br />

projects. Clinically, the center provides gait analysis<br />

services <strong>for</strong> both pediatric <strong>and</strong> adult patients in order to enhance<br />

the diagnosis <strong>and</strong> improve functional outcomes <strong>for</strong> neuromuscular<br />

impairments <strong>and</strong> dysfunction caused by other de<strong>for</strong>mities.<br />

Quantitative motion assessment includes specialty models <strong>for</strong> the<br />

distal extremities (foot <strong>and</strong> ankle, upper extremity, h<strong>and</strong> <strong>and</strong> wrist,<br />

trunk) sports applications with higher speed analysis capability, <strong>and</strong><br />

rehabilitative support (assistive devices, prosthetics <strong>and</strong> orthotics.)<br />

Research applications include studies of surgical intervention,<br />

orthotic <strong>and</strong> prosthetic treatment, <strong>and</strong> therapy upon upper <strong>and</strong><br />

lower extremity motion <strong>and</strong> control.<br />

Wednesday, October 16 th<br />

Children’s Hospital of Wisconsin Tour<br />

8:30 am – 12:00 pm<br />

Registration is required. Space is limited.<br />

Presentations by the Special Needs Program, Neonatal Follow up<br />

Program <strong>and</strong> the Physical Medicine <strong>and</strong> Rehabilitation Departments.<br />

President’s Welcome<br />

Reception at the<br />

Milwaukee Art Museum<br />

The official start of the<br />

Annual Meeting begins with<br />

the Presi dent’s Welcome<br />

Reception on Wednesday<br />

evening, October 16 th . This is<br />

a great opportunity to network in a relaxed <strong>and</strong> fun setting. This<br />

reception will be at Milwaukee Art Museum <strong>and</strong> will feature<br />

great food, complimentary drink tickets <strong>and</strong> most importantly a<br />

chance to reconnect with old friends or meet some new ones.<br />

Step right up to 1,500 works of art waiting <strong>for</strong> you by the lake,<br />

on an Italian marble floor beneath 110 tons of steel wings. Art<br />

Lives Here! The Milwaukee Art Museum collects <strong>and</strong> preserves<br />

art, presenting it to the community as a vital source of<br />

inspiration <strong>and</strong> education. Click here <strong>for</strong> more in<strong>for</strong>mation.<br />

Thursday, October 17 th<br />

AACPDM Members’ Business Meeting <strong>and</strong> Lunch<br />

This ticketed event is about the business of the <strong>Academy</strong> <strong>and</strong> serves<br />

a very important role – but you will have lunch provided <strong>and</strong> see<br />

your colleagues that perhaps you haven’t bumped into yet. Be sure<br />

to come if you are an AACPDM member!<br />

Wine <strong>and</strong> Cheese Poster <strong>and</strong> Exhibit Viewing Session<br />

Always popular <strong>and</strong> well attended. Enjoy a glass of wine <strong>and</strong> light<br />

hors d’oeuvres in the Exhibit Hall <strong>and</strong> Foyer areas while visiting our<br />

exhibitors <strong>and</strong> viewing the scientific <strong>and</strong> demonstration posters.<br />

Posters will be displayed on both bulletin boards <strong>and</strong> at E-Poster<br />

kiosks. This is an opportunity to meet with the 2013 exhibiting<br />

participants who are key contributors to the success of our meeting.<br />

Dine Around<br />

Once on site you can sign up to dine at a great local restaurant at<br />

which reservations have already been made <strong>for</strong> you.<br />

Friday, October 18 th<br />

Flashpoint Luncheon<br />

Each presenter will give a 10<br />

minute summary on issues of<br />

interest to meeting participants.<br />

The presenters are all experts in their topic area <strong>and</strong> will incorporate<br />

state of the art research <strong>and</strong> opinions in their presentation.<br />

Celebrate Friday Night at the Harley-Davidson Museum®!<br />

Join your old friends <strong>and</strong> new colleagues at an Annual Meeting<br />

favorite event. There will be opportunities to tour the Harley-<br />

Davidson Museum® <strong>and</strong> take a stationary ride on a Harley-Davidson®<br />

motorcycle. As is also our tradition, there will be music <strong>and</strong> dancing<br />

later in the evening.<br />

Saturday, October 19 th<br />

Complex Care SIG Meeting<br />

A returning favorite - take note of where it is in the <strong>program</strong> in<br />

case you want to attend! The Complex Care Special Interest Group<br />

meets on Saturday morning <strong>and</strong> you are welcome to attend. This<br />

is a diverse group of health professionals dedicated to the care of<br />

children with medical complexity. They will discuss ongoing projects<br />

including development of an educational curriculum <strong>for</strong> complex<br />

care <strong>and</strong> identification of priorities <strong>for</strong> clinical research.<br />

8<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Wednesday, October 16<br />

8:00 am – 12:00 pm GCMAS Symposium<br />

Changes in Practice Due to Motion Analysis Research<br />

Authors/Presenters: Robert Kay MD, Tom Novacheck MD, Sylvia Õunpuu MSc, Kristan Pierz MD, Susan Rethlefsen PT, Pam Thomason B Phty, M<br />

Physio, <strong>and</strong> Tishya Wren, PhD<br />

Course Level: Beginner, intermediate, <strong>and</strong> advanced.<br />

Purpose: The purpose of this course is to highlight the changes in our underst<strong>and</strong>ing of movement pathology <strong>and</strong> treatment outcomes,<br />

<strong>and</strong> the resulting evolution in treatment paradigms, <strong>for</strong> persons with cerebral palsy <strong>and</strong> other neuromuscular disorders resulting from<br />

motion analysis research.<br />

Target Audience: Clinicians who evaluate <strong>and</strong> provide treatment <strong>for</strong> ambulatory children <strong>and</strong> youth with cerebral palsy <strong>and</strong> other<br />

movement disorders will benefit from this symposium. Prior experience analyzing <strong>and</strong> interpreting motion analysis data is beneficial, but not<br />

required.<br />

Course Summary: This course will provide a detailed review of how research using comprehensive motion analysis techniques has<br />

changed our underst<strong>and</strong>ing of gait pathomechanics <strong>and</strong> treatment outcomes <strong>and</strong>, as a result, has changed the course of treatment in<br />

children with cerebral palsy <strong>and</strong> other neuromuscular disorders. The course will begin with a discussion of how research using motion<br />

analysis has improved our underst<strong>and</strong>ing of movement pathology in a variety of neuromuscular disorders. Specific gait pathologies such as<br />

underst<strong>and</strong>ing transverse plane rotational problems <strong>and</strong> the relationship between dynamic motion <strong>and</strong> clinical examination measures will<br />

be highlighted. We will then discuss changes in treatment approaches resulting from motion analysis research such as the development of<br />

rectus femoris transfers <strong>and</strong> distal femoral extension osteotomies, as well as different orthosis designs. This will be followed by a review of<br />

how motion analysis research has led to an improved underst<strong>and</strong>ing of long-term treatment outcomes. The <strong>program</strong> will conclude with a<br />

discussion of recent research developments advancing the use of motion analysis in clinical applications such as the gait profile score <strong>and</strong><br />

state-of-the-art algorithms to assist in treatment planning.<br />

Learning Objectives:<br />

At the end of the symposium participants will be able to discuss:<br />

1) How motion analysis research has improved our underst<strong>and</strong>ing of motion pathology.<br />

2) How motion analysis research is improving our underst<strong>and</strong>ing of the relationship between pathological movement <strong>and</strong> treatment<br />

decision-making.<br />

3) How motion analysis research has contributed to the underst<strong>and</strong>ing of treatment outcomes (short <strong>and</strong> long-term).<br />

4) How motion analysis research has led to the development of new surgical interventions <strong>and</strong> treatment paradigms.<br />

AACPDM 67 th Annual Meeting • Research & Practice 9


Wednesday, October 16: Pre-Conference Sessions<br />

1:00 pm – 5:00 pm PC 1 - Promoting health-related fitness beyond childhood <strong>for</strong> persons with<br />

childhood onset disability<br />

Co-Sponsored by the Lifespan Care Committee<br />

Authors/Presenters: Garey Norvitz, MD; Jim Rimmer, PhD; Margaret A. Turk, MD; Mark Peterson, PhD; Wilma van der Slot, MD, PhD; Debbie<br />

Thorpe, PT, PhD, PCS.<br />

Course Level: Intermediate<br />

Purpose: Individuals with childhood-onset disabilities are the least physically active members of society, placing them at high risk <strong>for</strong> the<br />

co-morbidities associated with inactivity. This AACPDM specialty day course will focus on the promotion of health <strong>and</strong> fitness <strong>for</strong> adults with<br />

cerebral palsy (CP). By virtue of discussing the type <strong>and</strong> amount of physical activity required by adults with CP to improve <strong>and</strong>/or maintain<br />

their health <strong>and</strong> fitness, this course will provide consumers <strong>and</strong> rehabilitation professionals knowledge with which to help design the most<br />

appropriate health <strong>and</strong> fitness <strong>program</strong>s to promote community participation, help minimize or prevent secondary conditions, <strong>and</strong> enhance<br />

quality of life <strong>for</strong> adults with cerebral palsy.<br />

Target Audience: This course is targeted to health care providers <strong>for</strong> children <strong>and</strong> adults with childhood onset disabilities. It is also highly<br />

relevant to individuals with childhood-onset disabilities <strong>and</strong> their families. We welcome professional <strong>and</strong> consumer organizations, <strong>and</strong><br />

individuals who strive <strong>for</strong> a good lifelong health <strong>for</strong> individuals with childhood onset disabilities.<br />

Course Summary: This course includes various presentations <strong>and</strong> an interactive panel discussion. The speakers will identify the evidence<br />

related to cardio metabolic deficiency <strong>and</strong> recognize the importance of a comprehensive health promotion <strong>program</strong> <strong>for</strong> persons with<br />

childhood-onset disability. Pertinent evidence on health <strong>and</strong> fitness <strong>for</strong> persons with childhood-onset disabilities will be reviewed. Through<br />

discussion, we will explore strategies to design <strong>and</strong> implement successful health promotion <strong>program</strong>s <strong>for</strong> adults with childhood onset<br />

disability. This AACPDM specialty day on lifespan care <strong>for</strong> adults with childhood-onset disability will promote knowledge exchange between<br />

(adult <strong>and</strong> pediatric) health care providers, individuals with childhood-onset disabilities <strong>and</strong> their families.<br />

Learning Objectives:<br />

1) Recognize <strong>and</strong> eliminate barriers to physical activity <strong>for</strong> people with cerebral palsy.<br />

2) Identify key strategies <strong>for</strong> promoting inclusive health <strong>and</strong> fitness among people with cerebral palsy.<br />

3) Underst<strong>and</strong> how to use internet-based self-management <strong>program</strong>s to promote health <strong>and</strong> fitness in people with cerebral palsy.<br />

4) Identify the successes <strong>and</strong> barriers of health promotion <strong>program</strong>s <strong>for</strong> adults <strong>and</strong> children with disabilities.<br />

5) Describe the confluence of factors that contribute to accelerated muscle wasting <strong>and</strong> metabolic dysregulation in cerebral palsy.<br />

6) Identify levels of physical activity, fitness <strong>and</strong> strain in adults with cerebral palsy.<br />

7) Identify a modular treatment to enhance physical activity <strong>and</strong> sports in persons with childhood onset disorders.<br />

8) Integrate in<strong>for</strong>mation from current research <strong>and</strong> model <strong>program</strong>s into the design <strong>and</strong> implementation of fitness <strong>and</strong> physical activity<br />

<strong>program</strong>s <strong>for</strong> adults with cerebral palsy.<br />

1:00 pm – 5:00 pm PC 2 - Bridge to Independence: A model <strong>for</strong> family curriculum development<br />

Authors/Presenters: Simone C.O. Conceição, Ph.D., University of Wisconsin-Milwaukee, Holly Colby, RN, MS, Children’s Hospital of Wisconsin,<br />

Sarah Johaningsmeir, BA, Medical College of Wisconsin<br />

Course level: Beginner to advanced<br />

Target audience: This session is relevant to healthcare or service providers who want to begin teaching families or to improve their<br />

teaching by applying health literacy principles <strong>and</strong> adult education strategies <strong>for</strong> developing their own teaching materials.<br />

Purpose: To teach healthcare professionals how to develop <strong>and</strong> implement teaching <strong>for</strong> families using the Bridge to Independence care<br />

coordination curriculum as the model.<br />

Course Summary: This session will provide instruction about how the Bridge to Independence care coordination curriculum was<br />

developed. The curriculum development process used collaborative design with input from care coordination experts, an adult education<br />

expert, primary care providers, <strong>and</strong> family caregivers. We will demonstrate how to design materials following health literacy principles. Adult<br />

education strategies will be shared to promote optimal learning by family caregivers. We will describe the implementation of the curriculum<br />

with one-on-one teaching by health care providers <strong>and</strong> teaching by family lay trainers to groups. Outcomes from these teaching ef<strong>for</strong>ts will<br />

be shared, including family quality of life, care coordination skills <strong>and</strong> knowledge, <strong>and</strong> measures of Lay Trainer teaching skills. We will discuss<br />

practical challenges encountered, such as finding time to teach <strong>and</strong> attracting an audience. Attendees will use Bridge to Independence as a<br />

model <strong>for</strong> planning, designing, <strong>and</strong> practicing how they will deliver education to family caregivers.<br />

Learning objectives:<br />

1) Gain familiarity with the Bridge to Independence care coordination curriculum.<br />

2) Underst<strong>and</strong> principles of health literacy used in curriculum design <strong>and</strong> implementation.<br />

3) Recognize common challenges to implementing teaching.<br />

4) Apply curriculum design <strong>and</strong> implementation strategies to teach health <strong>and</strong> related in<strong>for</strong>mation to families.<br />

10<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Wednesday, October 16: Pre-Conference Sessions<br />

1:00 pm – 5:00 pm PC 3 - New Clinical Horizons <strong>and</strong> Emerging Mobility Technologies - A Research<br />

Driven Process<br />

Authors/Presenters: Deborah Gaebler-Spira, MD, Adam Graf, MS, Gerald Harris, PhD,PE Katie Konop, MS, Joseph Krzak, PhD, PT, Ben McHenry,<br />

PhD, Susan Riedel, MS, Brooke Slavens, PhD, Peter Smith, MD, Larry Vogel, MD, <strong>and</strong> Li Qun Zhang, PhD<br />

Course Level: Beginner, intermediate, <strong>and</strong> advanced. Prior exposure to motion analysis <strong>and</strong> data interpretation is useful but not required.<br />

Purpose: The purpose of this course is to examine emerging clinical applications resulting from advances in mobility assessment <strong>and</strong><br />

assisted therapy. These research driven applications integrate clinical need with novel technologies to offer more effective methods of<br />

mobility analysis <strong>and</strong> therapeutic treatment.<br />

Target Audience: Clinicians <strong>and</strong> practitioners who assess <strong>and</strong> treat children <strong>and</strong> young adults with movement disorders will benefit<br />

from this symposium <strong>and</strong> the h<strong>and</strong>s-on practicum. The application focus is on children <strong>and</strong> young adults with cerebral palsy <strong>and</strong> other<br />

neuromuscular disorders.<br />

Course Summary: This course will provide significant exposure to emerging applications in human motion analysis <strong>and</strong> robotic assisted<br />

movement therapy. The research driven symposium will offer a balanced presentation of upper <strong>and</strong> lower extremity motion analysis<br />

applications which employ advanced modeling techniques <strong>and</strong> technologies to improve pre-treatment assessment <strong>and</strong> post-treatment<br />

follow-up. The upper extremity applications will address the internal joint dem<strong>and</strong>s of children <strong>and</strong> young adults who use anterior <strong>and</strong><br />

posterior walkers, Lofstr<strong>and</strong> (Canadian) crutches, <strong>and</strong> manual wheelchairs. The lower extremity applications will address the segmental<br />

motion dem<strong>and</strong>s of the hindfoot, <strong>for</strong>efoot <strong>and</strong> hallux in children with equinovarus <strong>and</strong> planovalgus foot de<strong>for</strong>mities who are c<strong>and</strong>idates<br />

<strong>for</strong> both conservative <strong>and</strong> surgical care. Novel fluoroscopic technology will be discussed which allows in vivo examination of the talocrural<br />

<strong>and</strong> subtalar joints during walking while shod <strong>and</strong> with orthotics. An application example of robotic assisted movement therapy will be<br />

presented in terms of setting subject-specific goals which can be modified throughout the progression of treatment. The importance of<br />

integrated gaming strategies <strong>for</strong> upper extremity assessment <strong>and</strong> therapy with a markerless system (Microsoft Kinect) will be presented <strong>and</strong><br />

demonstrated during a h<strong>and</strong>s-on practicum. The session will conclude with a discussion of emerging applications <strong>and</strong> novel technologies<br />

resulting from recent research.<br />

Learning Objectives:<br />

1) How recent research is advancing our underst<strong>and</strong>ing of upper extremity mobility <strong>and</strong> the longer term implications of assistive device<br />

use in children<br />

2) How recent research is advancing our underst<strong>and</strong>ing of segmental foot motion <strong>and</strong> how this knowledge is being used to make better<br />

clinical decisions<br />

3) How fluoroscopic imaging of the hindfoot is increasing our knowledge of bony hindfoot dynamics <strong>and</strong> the potential <strong>for</strong> future clinical<br />

application<br />

4) Important features of robotic assisted movement therapy <strong>and</strong> how this technology can be useful in the clinician’s treatment arena<br />

5) How gaming strategies are integrated with therapy dem<strong>and</strong>s in the current clinical environment<br />

AACPDM 67 th Annual Meeting • Research & Practice 11


Wednesday, October 16: Pre-Conference Sessions<br />

1:00 pm – 5:00 pm PC 4 - Review of Ultrasound Guidance <strong>for</strong> Botulinum toxin Therapy: Didactic <strong>and</strong><br />

H<strong>and</strong>s-On Training Program<br />

Authors/Presenters: Katharine Alter, MD, Florian Heinen, MD, Steffen Berweck, MD, Sebastian Schroder, MD, Hank Chambers, MD, Stephen<br />

Nichols, MD, Robert Cooper, MD, Christine Jansen MD, Rita Ayyangar, MD, Heakyung Kim, MD<br />

Course Level: Intermediate<br />

Target Audience: Physicians (PMR, orthopedics, neurology, developmental pediatrics)<br />

Purpose: Botulinum toxin therapy is a commonly accepted treatment <strong>for</strong> patients with problematic spasticity associated with the upper<br />

motor neuron syndrome. A variety of guidance techniques are used <strong>for</strong> target localization when per<strong>for</strong>ming BoNT therapy. Traditional<br />

techniques have recognized limitations, leading clinicians to explore <strong>for</strong> a more accurate targeting technique. B mode ultrasound is<br />

increasingly recognized as a more accurate alternative to traditional techniques. Access to h<strong>and</strong>s on training in US guidance techniques,<br />

specific <strong>for</strong> BoNT therapy, remains a barrier <strong>for</strong> physicians interested in becoming proficient in these US guided procedures.<br />

Course purpose:<br />

1) Provide a review of US physics.<br />

2) Demonstrate US guidance techniques <strong>for</strong> commonly targeted muscles.<br />

3) To provide participants with h<strong>and</strong>s-on US training relevant <strong>for</strong> BoNT injections, in small group settings.<br />

4) Participants are expected to gain skills in basic US scanning techniques, US muscle pattern recognition <strong>and</strong> in US guided procedural<br />

skills.<br />

Course Summary: This course will be divided into 3 sections; didactic lectures on Ultrasound physic <strong>and</strong> scanning techniques, a<br />

demonstration of US scanning <strong>for</strong> muscles in the upper limb, lower limb, neck <strong>and</strong> salivary gl<strong>and</strong>. The demonstration section will be followed<br />

by small group, h<strong>and</strong>s on scanning sessions where participants will gain experience in US scanning <strong>and</strong> identification of key muscle groups.<br />

The small group sessions will be led by AACPDM faculty experience with using US guidance <strong>for</strong> BoNT injections <strong>and</strong> other procedures.<br />

One practice station will include training in needle visualization/procedural techniques using a blue phantom or technique to simulate live<br />

injection scanning.<br />

During the h<strong>and</strong>s on session of the course participants will scan/work in pairs or small groups with each participant serving as an “ultrasound<br />

model” during scanning. This <strong>for</strong>mat provides participants with the experience in US scanning pitfalls including frequently encountered<br />

individual variations in muscle pattern, depth, size <strong>and</strong> echotexture. To facilitate scanning of limb, head/neck muscles <strong>and</strong> salivary gl<strong>and</strong>s<br />

participants are expected to dress casually in shorts, T-shirts or other com<strong>for</strong>table clothing<br />

The number of participants in the course will be limited to provide h<strong>and</strong>s on training. Participants are expected to work in pair groups <strong>for</strong> scanning,<br />

to wear com<strong>for</strong>table, casual clothing (T-shirts/shorts) to facilitate practice scanning. A few volunteers are needed. Contact meetings@aacpdm.org <strong>for</strong><br />

additional in<strong>for</strong>mation.<br />

Learning Objectives:<br />

1) Attendees will learn the basics of US physics <strong>and</strong> techniques required <strong>for</strong> ultrasound (US) guided chemodenervation procedures.<br />

2) Attendees will identify the advantages <strong>and</strong> disadvantages of Anatomic guidance techniques, EMG, E- Stim <strong>and</strong> Ultrasound guidance <strong>for</strong><br />

BoNT injections.<br />

3) At the end of the course attendees will identify key upper <strong>and</strong> lower limb muscles when using B mode US.<br />

4) Attendees will identify the ultrasound echotexture properties of muscle, nerve <strong>and</strong> tendon in longitudinal <strong>and</strong> cross section. Attendees<br />

will identify 2 procedural approaches used in US guided needle insertion learth.<br />

12<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

6:00 am-6:45 am Get Fit!<br />

Start your day off in an active way! - Activity TBD<br />

7:00 am–7:50 am Continental Breakfast<br />

7:00 am–7:50 am Breakfast Seminars 1-6<br />

BRK 1 - FACTORS THAT INFLUENCE EFFECTIVENESS OF ROBOTIC-ASSISTED THERAPIES IN CHILDREN WITH CEREBRAL<br />

PALSY<br />

Authors: Sebastian Schroeder, MD; Steffen Berweck, PD MD; Deborah Gaebler-Spira, MD; Florian Heinen, MD; Andreas Meyer Heim, PD MD<br />

Level: Basic<br />

Purpose: To demonstrate <strong>and</strong> discuss interactions between specific patient characteristics, therapy settings, <strong>and</strong> adequate outcome<br />

measures <strong>for</strong> planning <strong>and</strong> assessing robotic-assisted therapies.<br />

Target Audience: Physicians, therapists which are using / planning to use robotic-assisted therapies <strong>for</strong> children with CP.<br />

Course Summary: Robotic assisted therapies are increasingly being used to improve motor abilities in children with CP, but the<br />

effectiveness of these usually expensive <strong>and</strong> time consuming interventions is not clearly determined across the heterogenity of pediatric<br />

movement disorders. Different therapy settings throughout different institutions <strong>and</strong> heterogenicity of patient characteristics (age,<br />

phenomenology, GMFCS level) still limit the value of outcome evaluation using systematic reviews. This session will demonstrate personal<br />

experience gained during more than 7 years of using robotic-assisted treadmill therapy on the levels of function, activity <strong>and</strong> participation.<br />

Factors that influence effectiveness will be presented <strong>and</strong> discussed in relation to WHO-ICF domains <strong>and</strong> will be set into the context of<br />

actual literature.<br />

Learning Objectives:<br />

1) To become familiar with the impact of patient specific factors (e.g. diagnosis, gender, age, GMFCS level, etc.) on effectiveness of robotic<br />

assisted therapy.<br />

2) To become familiar with the impact of treatment specific factors (e.g. the combination with botulinum toxin injections, treatment<br />

intensity) on the effectiveness of therapy.<br />

3) To gain experience with the potential effect size of presented outcome measures on different ICF domains (e.g. using GMFM 66, COPM)<br />

in correlation to the influencing factors.<br />

4) To help to estimate the right expectations about the individual’s outcome <strong>for</strong> communication with the patients <strong>and</strong> parents.<br />

BRK 2 - TREATING COMPLEX FEEDING DISORDERS IN AN INTENSIVE, DAY TREATMENT SETTING<br />

Author: Mary C. Bickley, Med<br />

Level: Intermediate<br />

Purpose: Describe the essential elements necessary to treat children with complex feeding disorders in an intensive, day treatment model<br />

Target Audience: Physicians, therapists, educators<br />

Course Summary: Feeding therapy provided at the local level is traditionally done on a once per week or less basis. This service provision<br />

can be hampered by developmental issues, illness, parent participation <strong>and</strong> therapist availability. Parents frequently report frustration<br />

with slow progress. Mrs. Bickley will discuss an alternative to this traditional service provision that allows <strong>for</strong> concentrated focus on holistic<br />

evaluation, individuation of treatment that is provided in a family centered environment on an intensive basis. Parents report greater<br />

underst<strong>and</strong>ing of their individual child’s difficulties, therapy needs <strong>and</strong> comprehension of the long term plan following admission to this two<br />

week <strong>program</strong>.<br />

Learning Objectives:<br />

1) Participants will identify the barriers to normal eating patterns in medically complex children.<br />

2) Participants will identify elements of holistic evaluation that will allow <strong>for</strong> individualization of treatment.<br />

3) Participants will identify the essential elements necessary to develop <strong>and</strong> promote efficient/effective eating patterns in children.<br />

4) Participants will identify the benefits/drawbacks of intensive day treatment model <strong>for</strong> feeding disorders.<br />

AACPDM 67 th Annual Meeting • Research & Practice 13


Thursday, October 17, 2013<br />

7:00 am–7:50 am Breakfast Seminars 1-6<br />

BRK 3 - MANAGEMENT OF CHRONIC PAIN IN CHILDREN WITH CHRONIC MEDICAL CONDITIONS<br />

Author: Joelle Mast, PhD MD<br />

Level: Intermediate<br />

Purpose: Chronic pain is under recognized <strong>and</strong> undertreated in children with chronic medical conditions such as cerebral palsy <strong>and</strong> sickle<br />

cell anemia. The purpose of this seminar is to increase awareness <strong>and</strong> provide management guidelines <strong>for</strong> the treatment of chronic pain.<br />

Target Audience: Pediatricians, neurologists, psychologists, physiatrists, orthopedic <strong>and</strong> neuro-surgeons, physical <strong>and</strong> occupational<br />

therapists, speech <strong>and</strong> language therapists, nurses, concerned with the care of people who have cerebral palsy <strong>and</strong> other chronic medical<br />

conditions<br />

Course Summary: This lecture will familiarize the audience with the spectrum of pain syndromes, such as CPRS <strong>and</strong> RLS as well as<br />

musculoskeletal pain. Assessment tools, both pain scales <strong>and</strong> functional scales will be reviewed. Management including when <strong>and</strong> how to<br />

use opiate therapy <strong>and</strong> how to treat side effects will be discussed. Risk assessment <strong>and</strong> medico-legal issues will be covered.<br />

Learning Objectives:<br />

1) Underst<strong>and</strong> the presentation of chronic pain in children.<br />

2) Be able to manage chronic pain with both pharmacologic <strong>and</strong> nonpharmacologic interventions.<br />

3) Know treatments <strong>for</strong> side effects of pain medications.<br />

4) Underst<strong>and</strong> the medicolegal requirements of pain management in terms of accountability of both patient <strong>and</strong> practitioner.<br />

BRK 4 - BONE HEALTH IN CHILDREN WITH PHYSICAL DISABILITIES<br />

Authors: Steven Bachrach, MD; Tessa Gresley-Jones, BScN MN NP-Paeds<br />

Level: Intermediate<br />

Purpose: To review the evidence around prevention, surveillance <strong>and</strong> treatment of osteoporosis <strong>and</strong> fragility fractures in children with<br />

mobility restrictions while providing practical strategies to translate knowledge into practice on this topic.<br />

Target Audience: Physicians, nurses, therapists, parents<br />

Course Summary: Children with physical disabilities <strong>and</strong> mobility restrictions are at increased risk <strong>for</strong> developing osteoporosis.<br />

Approximately 20% of children <strong>and</strong> young adults with cerebral palsy who cannot walk independently develop fragility fractures. Fractures<br />

can cause significant pain <strong>and</strong> impairment, as well as impact family functioning. There<strong>for</strong>e, it is important <strong>for</strong> caregivers <strong>and</strong> health care<br />

providers to know how to improve bone mineral density <strong>and</strong> prevent fragility fractures in these children. We will review the evidence around<br />

prevention, surveillance <strong>and</strong> treatment of osteoporosis <strong>and</strong> fragility fractures in children with mobility restrictions. We will also introduce a<br />

clinical practice guideline <strong>for</strong> children with <strong>Cerebral</strong> <strong>Palsy</strong> at risk <strong>for</strong> osteoporosis as well as practical tools to facilitate knowledge translation<br />

of this practice guideline. The presenters will prompt participants to engage in discussion about gaps in the evidence <strong>and</strong> challenges in their<br />

own clinical practice, specifically around monitoring vitamin D levels, use of DXA scans <strong>and</strong> decision making around bisphosphonates.<br />

Learning Objectives:<br />

1) To identify key components of the prevention <strong>and</strong> evaluation of low bone mineral density in children with disabilities.<br />

2) To develop skill in implementing nutrition based interventions <strong>for</strong> preventing <strong>and</strong> treating low bone mineral density in children with<br />

disabilities.<br />

3) To underst<strong>and</strong> how bone density is measured in patients with disabilities <strong>and</strong> what the measurements mean.<br />

4) To underst<strong>and</strong> the evidence <strong>for</strong> treatment modalities of osteoporosis of children with physical disabilities, specifically bisphosphonates.<br />

14<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

7:00 am–7:50 am Breakfast Seminars 1-6<br />

BRK 5 - EVALUATION AND INSIGHTS IN SECONDARY DYSTONIA AND CHOREOATHETOSIS IN DYSKINETIC CP<br />

Authors: Elegast Monbaliu, PT PhD student; Hilde Feys, PT PhD<br />

Level: Basic<br />

Purpose: To improve insights in the clinical presentation of secondary dystonia <strong>and</strong> choreoathetosis in dyskinetic CP.<br />

Target Audience: This training course is relevant to most paediatric health care professionals: medical doctors, physical therapists,<br />

occupational therapists, speech <strong>and</strong> language therapists, kinesiologists<br />

Course Summary: In the past two decades, interest in cerebral palsy (CP) has increased remarkably. However, compared with the spastic<br />

CP type, the assessment <strong>and</strong> treatment of patients with dyskinetic CP are still underreported. This lack of research is underst<strong>and</strong>able in<br />

view of the complexity of dystonia <strong>and</strong> choreoathetosis in dyskinetic CP, rendering it difficult to measure. According to the Surveillance of<br />

<strong>Cerebral</strong> <strong>Palsy</strong> in Europe (SCPE), dyskinetic CP is characterized by involuntary, uncontrolled, recurring, occasionally stereotyped movements<br />

in which the primitive reflex patterns predominate <strong>and</strong> muscle tone varies. Dyskinetic CP is further subdivided into secondary dystonia<br />

<strong>and</strong> choreoathetosis. This breakfast session is subdivided in four parts. First, definition <strong>and</strong> classification of CP will be presented with special<br />

attention <strong>for</strong> the discrimination between dystonia <strong>and</strong> choreoathetosis, based on the definitions of the SCPE <strong>and</strong> the Task<strong>for</strong>ce on Childhood<br />

Motor Disorders. Secondly, pathological signs will be reviewed in accordance with the International Classification of Functioning, Health <strong>and</strong><br />

Disability model (ICF), specifically within the ICF body function <strong>and</strong> structure. The third part will focus on clinical assessment, with special<br />

attention <strong>for</strong> the newly developed Dyskinesia Impairment Scale. In the fourth part, the possibility will be given to discuss <strong>and</strong> to evaluate<br />

dystonia <strong>and</strong> choreoathetosis in an interactive way with the audience using videos <strong>and</strong> clinical cases.<br />

Learning Objectives:<br />

1) To clarify the currently definition <strong>and</strong> classification of dyskinetic CP.<br />

2) To gain insight in the distinction between dystonia <strong>and</strong> choreoathetosis.<br />

3) To illustrate the clinical presentation of secondary dystonia <strong>and</strong> choreoathetosis in dyskinetic CP.<br />

4) To review the currently available clinical assessment scales <strong>for</strong> secondary dystonia <strong>and</strong> choreoathetosis in dyskinetic CP.<br />

BRK 6 - TRANSITIONING YOUTH WITH DISABILITIES TO ADULTHOOD: SUCCESSFUL APPLICATION OF PROVEN MODELS<br />

FOR CLINICIANS AND CARE PROVIDERS<br />

Author: Susan C. Labhard, MSN RN<br />

Level: Intermediate<br />

Purpose: To provide practical innovations in support of successful transition <strong>program</strong>s <strong>for</strong> youth with disabilities beyond medical needs<br />

alone. Concepts applicable to health care professionals in a variety of settings.<br />

Target Audience: Clinicians, therapists, care providers, <strong>and</strong> educators of all disciplines.<br />

Course Summary: Transition is a process that can be especially challenging <strong>for</strong> those with disabilities <strong>and</strong> the people that care about<br />

them. Transition issues from finding adult providers to sexuality in<strong>for</strong>mation (<strong>for</strong> youth with physical or developmental disabilities) will be<br />

illustrated <strong>and</strong> practical solutions discussed with audience. Participants can expect to come away with positive approaches applicable to<br />

youth <strong>and</strong> to their practice setting.<br />

Learning Objectives:<br />

1) Underst<strong>and</strong> the importance of a Transitions Program <strong>for</strong> youth with disabilities citing AAP Guidelines <strong>and</strong> evidence-based practice<br />

outcomes.<br />

2) Learn about tools <strong>for</strong> the development of a “person-centered” Transitions Program beyond medical needs alone.<br />

3) Illustrate the use of a computer-based, Transition Resources Mind-Map to quickly locate adult providers <strong>and</strong> a variety of other applicable<br />

transition resources.<br />

4) Explore innovative methods of providing transition in<strong>for</strong>mation to patients <strong>and</strong> families in a variety of settings from clinic to a successful<br />

Transitions Day Camp.<br />

AACPDM 67 th Annual Meeting • Research & Practice 15


Thursday, October 17, 2013<br />

8:00 am-10:15 am General Session<br />

Welcome <strong>and</strong> Exchange of Gavel<br />

Maureen O’Donnell, President <strong>and</strong> Richard Stevenson, First Vice President<br />

Presidential Guest Lecturer<br />

Peter Rosenbaum, MD, FRCP(C)<br />

Classification in Developmental Disability: Evidence of OCD, or a Step Forward?<br />

Introduction to ICF<br />

Dr. Stevenson<br />

10:15 am-10:45 am Coffee Break - Posters <strong>and</strong> Exhibits<br />

Exp<strong>and</strong>ed breaks throughout the AM <strong>and</strong> PM sessions will give you a chance to visit the exhibits <strong>and</strong> posters. Plan to meet a friend<br />

during one of these times <strong>and</strong> just catch up!<br />

10:45am -12:45 pm Free Paper sessions A-C<br />

Free Paper Session A: Well Being<br />

A1 - SIBLING RELATIONSHIPS: PERSPECTIVES OF CHILDREN WITH CEREBRAL PALSY AND THEIR SIBLINGS<br />

Leanne M. Johnston, PhD; Samantha Walter, MA; Cathryne Lang, PhD<br />

A2 - PSYCHOLOGICAL WELLBEING OF CAREGIVERS OF ADOLESCENTS WITH CP: IMPACT OF ADOLESCENT<br />

CHARACTERISTICS AND FAMILY SUPPORT SERVICES<br />

Leanne M. Johnston, PhD; Breanna Holden, MA; Cathryne Lang, PhD<br />

A3 - COPING WITH CHILDHOOD ONSET DISABILITY AND PSYCHOSOCIAL OUTCOMES: A COMPARISON OF COPING<br />

PATTERNS ACROSS THE LIFESPAN<br />

Alicia M. January, PhD; Erin H. Kelly, PhD; Kathy Zebracki, PhD; Heather F. Russell, PhD; Lawrence C. Vogel, MD<br />

A4 - LOOK AROUND ME: ENVIRONMENTAL CONTEXT FOR ADOLESCENTS WITH CEREBRAL PALSY (CP)<br />

Keiko Shikako-Thomas, PhD; Norbert Schmitz, PhD; Allan Colver, MD; Lucy Lach, PhD; Michael Shevell, MD CM; Mary Law, PhD; Chantal Poulin, MD<br />

CM; Annette Majnemer, PhD<br />

A5 - AN EXPLORATORY ANALYSIS OF FACTORS THAT IMPACT SELF CONCEPT (SC) IN CHILDREN WITH CEREBRAL PALSY (CP)<br />

Greta von der Luft, PT PhD MEd; Betty DeBoer, PhD; Sara Martino, PhD<br />

A6 - STABILITY OF LEISURE PARTICIPATION FROM SCHOOL-AGE TO ADOLESCENCE IN CHILDREN WITH CEREBRAL PALSY<br />

Annette Majnemer, PhD; Keiko Shikako-Thomas, PhD; Mary Law, PhD; Norbert Schmitz, PhD; Michael Shevell, MD CM; Lucy Lach, PhD; Chantal<br />

Poulin, MD<br />

A7 - PREDICTORS OF PARTICIPATION OF ADOLESCENTS WITH CEREBRAL PALSY: A EUROPEAN LONGITUDINAL STUDY<br />

Van M. Dang, MD; Heather O. Dickinson, BSc PhD; Allan Colver, MD FRCPCH; Jérôme Fauconnier, MD<br />

A8 - RELATIONSHIP BETWEEN DAILY PHYSICAL ACTIVITY PERFORMANCE AND FUNCTIONAL MOBILITY CAPACITY AND<br />

PERFORMANCE IN TODDLERS WITH CEREBRAL PALSY<br />

Kristie L. Bell, PhD; Stina Oftedal, RD; Peter S. Davies, PhD; Robert Ware, PhD; Roslyn N. Boyd, PhD PT<br />

A9 - DOUBLE JEOPARDY: MULTIPLE VICTIMIZATIONS AMONG YOUTH WITH DISABILITY IN THE US CHILD WELFARE<br />

SYSTEM VAMONG YOUTH WITH DISABILITY IN THE US CHILD WELFARE SYSTEM<br />

Kristin L. Berg, MSW; Cheng-Shi Shiu, MSW; Michael Msall, MD<br />

A10 - RELATIONSHIP BETWEEN HEALTH RESOURCE COST AND PERFORMANCE OUTCOMES IN PRESCHOOL AGE<br />

CHILDREN WITH CEREBRAL PALSY; ECONOMIC ANALYSIS<br />

Rachel Jordan, BA Physiotherapy; Michael David, PhD; Laura Pareezer, BA; Megan Kentish, MS; Lynne McKinlay, MD; Robert Ware, PhD; Roslyn N.<br />

Boyd, PhD PT<br />

16<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

10:45am -12:45 pm Free Paper Sessions A-C<br />

Free Paper Session B: Therapies <strong>and</strong> Interventions - Part 1<br />

B1 - EFFECTS OF STUDENT-MENTORED PROGRESSIVE RESISTANCE EXERCISE TRAINING ON WORK TASK PERFORMANCE<br />

AND MUSCLE STRENGTH IN YOUNG PEOPLE WITH DOWN SYNDROME: A RANDOMIZED CONTROLLED TRIAL<br />

Nicholas Taylor, PhD ; Nora Shields, PhD; Elin Wee, BPhysio (Hons); Simone O’Shea, PhD; Bo Fernhall, PhD<br />

B2 - EFFECTS OF STRUCTURED VS. UNSTRUCTURED INTENSIVE BIMANUAL TRAINING ON HAND FUNCTION AND<br />

PLASTICITY IN MOTOR CORTEX<br />

Kathleen Friel, PhD; Hsing-Ching Kuo, PT MS; Jaimie Gowatsky, MS; Claudio L. Ferre, MS; Jason Fuller, PhD; Jason Carmel, MD PhD; Arielle Stan<strong>for</strong>d,<br />

MD; Sarah Lisanby, MD; Yannick Bleyenheuft, PhD; Andrew Gordon, PhD<br />

B3 - CONSTRAINT-INDUCED MOVEMENT THERAPY AND BIMANUAL TRAINING IN CHILDREN WITH HEMIPLEGIC<br />

CEREBRAL PALSY PROVIDED IN A SPECIAL EDUCATION PRESCHOOL AND KINDERGARTEN SETTING<br />

Nava Gelkop, PT MSc; Dikla Burstein Gol, OT MA; Anat Lahav, PT MSc; Amichai Brezner, MD; Saleh Oraibi, PT PhD; Claudio Ferre, MSc; Andrew Gordon,<br />

PhD<br />

B4 - RANDOMISED TRIAL OF THE DENSITY AND CONTEXT OF UPPER LIMB INTENSIVE GROUP COMPARED TO<br />

INDIVIDUALISED TRAINING FOR CHILDREN WITH CONGENITAL HEMIPLEGIA<br />

Leanne Sakzewski, PhD OT; Roslyn N. Boyd, PhD PT; Laura Miller, OT; Joanne Bowden, OT; Jenny Ziviani, PhD OT<br />

B5 - EFFECTIVENESS OF A SIX-MONTH PHYSICAL ACTIVITY STIMULATION PROGRAM FOR CHILDREN WITH CEREBRAL<br />

PALSY<br />

Annet Dallmeijer, PhD; Leontien van Wely, MSc; Astrid Balemans, MSc; Jules Becher, MD PhD<br />

B6 - INTRAVENTRICULAR BACLOFEN FOR THE TREATMENT OF SECONDARY DYSTONIA AND SPASTICITY: CLINICAL<br />

OUTCOMES, DOSING, AND SIDE EFFECTS<br />

Taryn M. Bragg, MD MS; Emily Meyer, MS CPNP APNP<br />

B7 - EFFECT OF LIDOCAINE IONTOPHORESIS COMBINED WITH PHYSICAL THERAPY INTERVENTION ON GAIT AND<br />

SPASTICITY IN CHILDREN WITH SPASTIC HEMIPLEGIC CEREBRAL PALSY<br />

Fatma A. Hegazy, PT, PhD; Yasser Salem, PT PhD MS NCS PCS<br />

B8 - BOTULINUM TOXIN INJECTIONS IN LOWER EXTREMITIES INCREASE PHYSICAL ACTIVITY IN UPPER EXTREMITIES IN<br />

CHILDREN WITH CEREBRAL PALSY<br />

Eva Pontén, MD PhD<br />

B9 - RESULTS OF SELECTIVE MOTOR FASCICULOTOMY IN SPASTIC UPPER LIMBS DUE TO CEREBRAL PALSY<br />

Aniruddh K. Purohit, MCh; Srikanth S. Reddy, MS; Aneel K. Puligopu, MCh<br />

B10 - EFFICACY OF UPPER LIMB THERAPIES FOR CHILDREN WITH CONGENITAL HEMIPLEGIA TO IMPROVE ACTIVITY AND<br />

INDIVIDUALISED OUTCOMES: SYSTEMATIC REVIEW AND META-ANALYSIS UPDATE<br />

Leanne Sakzewski, PhD OT; Roslyn N. Boyd, PhD PT<br />

Free Paper Session C: Orthopedics<br />

C1 - THE IMPACT OF COMPLEMENTARY AND ALTERNATIVE MEDICINE ON HIP DEVELOPMENT IN CHILDREN WITH<br />

CEREBRAL PALSY<br />

Kate Willoughby, BPT DPT; Kim Jachno, BSc PGBiostats; Soon Ghee Ang, MBBS; Pam Thomason, BPT MPT; H Kerr Graham, MD FRCS (Ed) FRACS<br />

C2 - RADIOLOGICAL OUTCOME OF HIP SURGERY IN CHILDREN WITH GROSS MOTOR FUNCTION CLASSIFICATION SYSTEM<br />

(GMFCS) IV AND V CEREBRAL PALSY<br />

Nichola C. Wilson, MD FRACS; Shiran Zhang, BHB; Anna H. Mackey, PT PhD; N. S. Stott, MD FRACS PhD<br />

C3 - ACETABULAR REMODELING FOLLOWING FEMORAL VARUS DEROTATIONAL OSTEOTOMY IN CHILDREN WITH<br />

CEREBRAL PALSY<br />

Franklin Chang, MD; Julie Ma, BA; Eduardo Novais, MD; Zhaoxing Pan, PhD<br />

C4 - SHOULD ROUTINE PROXIMAL FEMORAL HARDWARE REMOVAL BE PERFORMED IN CHILDREN WITH CEREBRAL<br />

PALSY?<br />

Walter H. Truong, MD; Tom Novacheck, MD; Eyun-Jung Shin, BS(Hons) MSc; Jasjit J. Lochab, BS MBBS; Ariel Rischall, BS; Andrew Howard, MSc MD;<br />

Unni G. Narayanan, MBBS MSc MD<br />

C5 - SCOLIOSIS SURGERY IN CEREBRAL PALSY SPASTIC QUADRIPLEGIC PATIENTS : IS FUSION TO THE SACRUM ALWAYS<br />

NECESSARY? A MINIMUM 4 YEAR FOLLOW UP<br />

Nicholas O. deGiorgio-Miller, MBChB; Bruce Hodgson, MBChB<br />

AACPDM 67 th Annual Meeting • Research & Practice 17


Thursday, October 17, 2013<br />

10:45am -12:45 pm Free Paper sessions A-C<br />

Free Paper session C: Orthopedics<br />

C6 - REPORTED OUTCOMES OF LOWER LIMB ORTHOPAEDIC SURGERY IN CHILDREN AND ADOLESCENTS WITH CEREBRAL<br />

PALSY: A MAPPING REVIEW<br />

Nichola C. Wilson, MD FRACS; Jimmy Chong, MD; Anna H. Mackey, PT PhD; N. S. Stott, MD PhD<br />

C7 - ORTHOPEDIC ISSUES IN LIPOMYELOMENINGOCELE: HOW DOES IT DIFFER FROM SPINA BIFIDA?<br />

Lee Segal, MD; Wojciech Czoch, MD; William Hennrikus, MD; M. W. Shrader, MD; Paul Kanev, MD; C<strong>and</strong>ice Welsh, BSN<br />

C8 - OPTIMAL PATELLAR POSITION VARIES FOR DIFFERENT WALKING POSTURES<br />

Rachel L. Lenhart, MS; Michael H. Schwartz, PhD; Darryl G. Thelen, PhD<br />

C9 - POSTOPERATIVE PAIN CONTROL IN PATIENTS WITH CEREBRAL PALSY AND SCOLIOSIS: ARE WE UNDERMEDICATING<br />

OUR PATIENTS?<br />

M. W. Shrader, MD; John Jones, MD; Mir<strong>and</strong>a Falk, MMS; Lee Segal, MD; C<strong>and</strong>ice Welsh, BSN<br />

C10 - POSTOPERATIVE PAIN IN CEREBRAL PALSY: ARE PATIENTS WITH CEREBRAL PALSY BEING UNDERMEDICATED?<br />

Joshua Hyman, MD; David P. Roye, MD; Evan D. Sheha, BS; Hiroko Matsumoto, MA; Anthony Essilfie, BS<br />

12:45 – 2:00 pm AACPDM Members’ Business Meeting <strong>and</strong> Lunch<br />

This ticketed event is about the business of the <strong>Academy</strong> <strong>and</strong> serves a very important role – but you will have lunch provided <strong>and</strong> see your<br />

colleagues that perhaps you haven’t bumped into yet. Be sure to come if you are an AACPDM member!<br />

2:00 pm – 4:00 pm Instructional Courses 1-13 & 32<br />

IC 1 - PART I: APPLYING SELECTIVE DORSAL RHIZOTOMY (SDR) TO IMPROVE GAIT AND AMBULATORY FUNCTION IN THE<br />

CHILD WITH CEREBRAL PALSY<br />

Authors: Marcie Ward, MD; Michael H. Schwartz, PhD; Tom Novacheck, MD; Peter Kim, MD, PhD<br />

Level: Intermediate<br />

Purpose: To educate providers regarding SDR, a collaborative approach to evaluating c<strong>and</strong>idates including gait analysis, the surgery, the<br />

rehabilitation <strong>and</strong> outcome data.<br />

Target Audience: Physicians, surgeons, <strong>and</strong> therapists who want to know more about SDR, or consider SDR a potential treatment option<br />

<strong>for</strong> their patients.<br />

Course Summary: This course is Part I of a two part course. It will discuss the selection criteria associated with predictable outcomes <strong>for</strong><br />

tone reduction <strong>and</strong> improved ambulation after SDR. A multidisciplinary approach will be explained <strong>and</strong> include selection criteria which<br />

suggest a favorable outcome can be predicted if SDR is pursued. Applicable gait analysis principles will be highlighted. Surgical technique<br />

<strong>and</strong> postoperative rehabilitation will be discussed. Research will be presented on short term <strong>and</strong> long term outcome data. The audience will<br />

participate through an electronic audience response system.<br />

Learning Objectives:<br />

1) Describe characteristics of patients that are consistent with a predictable positive result following SDR.<br />

2) Learn the benefits of a multidisciplinary collaborative evaluation of the ambulatory patient with cerebral palsy.<br />

3) Explore the techniques of rhizotomy <strong>and</strong> the benefits of utilizing a selective approach in the procedure.<br />

4) Review the post SDR short <strong>and</strong> long term outcomes data.<br />

18<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

2:00 pm – 4:00 pm Instructional Courses 1-13<br />

IC 2 - EARLY PREDICTION OF CEREBRAL PALSY IN THE YOUNG INFANT BY OBSERVATION OF GENERAL MOVEMENTS<br />

Authors: Colleen Peyton, PT DPT; Lars Adde, PT PhD<br />

Level: Intermediate<br />

Purpose: To bring participants up to date on concepts <strong>and</strong> research related to the early prediction of cerebral palsy in the young infant by<br />

observation of general movements (GMs).<br />

Target Audience: Physicians, physical <strong>and</strong> occupational therapists<br />

Course Summary: Analysis of GMs, observable at less than five months post-term, has been shown to predict the development of CP<br />

with a high degree of certainty. At this age, the characteristics of GMs change if there has been an injury to the nervous system. General<br />

movement assessment (GMA) has been described in several studies, <strong>and</strong> it has been suggested that the method may also predict the<br />

development of neurological disorders other than CP. Emerging evidence suggests that a computerized software tool also has the ability to<br />

predict cerebral palsy through video analysis of GMs. This session is intended <strong>for</strong> clinicians <strong>and</strong> researchers with the goal of underst<strong>and</strong>ing<br />

the current evidence <strong>and</strong> concepts surrounding analysis of infant spontaneous movement <strong>and</strong> the prediction of neurological dysfunction.<br />

Video examples of normal <strong>and</strong> abnormal infant general movements will be presented. The session is not intended as a General Movement<br />

Assessment course, but as an introduction to current concepts <strong>and</strong> research.<br />

Learning Objectives:<br />

1) Discuss the history <strong>and</strong> evolution of infant neurological assessment <strong>and</strong> its clinical implication.<br />

2) Explain neural mechanisms behind spontaneous movements in the infant.<br />

3) Describe normal <strong>and</strong> abnormal <strong>for</strong>ms of infant general movements <strong>and</strong> their predictive value <strong>for</strong> neurological impairment.<br />

4) Discuss current research regarding prediction of cerebral palsy in the infant through analysis of spontaneous movement.<br />

IC 3 - CUTTING EDGE CARE IN EPILEPSY MANAGEMENT, FROM STATE OF THE ART MEDICAL MANAGEMENT THROUGH<br />

SURGICAL OUTCOMES<br />

Authors: Maureen R. Nelson, MD; Dave Clarke, MD; Mark R. Lee, MD PhD; Jeff Titus, PhD<br />

Level: Advanced<br />

Purpose: The knowledge base <strong>for</strong> epilepsy management is exploding currently, with new medications, amazing technology <strong>for</strong> evaluation,<br />

including medication <strong>and</strong> radiographic combinations, <strong>and</strong> advancing surgical decision-making options <strong>and</strong> techniques.<br />

Target Audience: Pediatricians, physiatrists, neurologists, neurosurgeons, physical <strong>and</strong> occupational therapists, speech <strong>and</strong> language<br />

pathologists, nurses, psychologists<br />

Course Summary: This course will cover interdisciplinary, cutting edge approach to the management of children with epilepsy. The latest<br />

technology <strong>for</strong> evaluation will be shown, including neuropsychological evaluation, imaging, <strong>and</strong> how these can be used in combination.<br />

Use of this in<strong>for</strong>mation to optimize care will be discussed. A logical treatment approach, including the use of the latest medications <strong>and</strong><br />

their profiles, dietary management, vagal nerve stimulators, <strong>and</strong> surgery will be presented. Surgical options will be presented, including<br />

rehabilitation interactions.<br />

Learning Objectives:<br />

1) Refine your medical management of children with epilepsy, including post-brain injury.<br />

2) Refine your underst<strong>and</strong>ing of potential problems with use of anti-epileptic medications.<br />

3) Develop an underst<strong>and</strong>ing of the specificity <strong>and</strong> precision possible in epilepsy evaluations.<br />

4) Develop an underst<strong>and</strong>ing of surgical approaches in various types of intractable epilepsy.<br />

AACPDM 67 th Annual Meeting • Research & Practice 19


Thursday, October 17, 2013<br />

2:00 pm – 4:00 pm Instructional Courses 1-13<br />

IC 4 - EREHABILITATION: USING VIRTUAL REALITY TECHNOLOGIES (VRTS) IN REHABILITATION FOR INDIVIDUALS WITH<br />

CEREBRAL PALSY<br />

Authors: Roslyn N. Boyd, PhD PT; Louise E. Mitchell, PT MHSt; Darcy Fehlings, MD MSc; Elaine Biddiss, PhD; Betina Rasmussen, OT; Mette Kliim-Due,<br />

PT<br />

Level: Basic<br />

Purpose: This course will summarize current evidence <strong>and</strong> familiarize attendees with VRTs to assist their integration into clinical practice.<br />

Target Audience: Occupational therapists, physiotherapists, physicians <strong>and</strong> psychologists<br />

Course Summary: This course will provide an overview of the evidence <strong>for</strong> VRTs used <strong>for</strong> ERehabilitation of individuals with cerebral palsy<br />

(CP). The workshop will focus on a) presenting the development <strong>and</strong> current evidence <strong>for</strong> Move it To improve it (Mitii), a virtual, web-based<br />

<strong>and</strong> individualized training system, b) discussing current evidence <strong>for</strong> use of commercially available systems such as “Wii”, <strong>and</strong> c) reviewing<br />

the use of a novel multi-player “Exergame” consisting of a stationary cycling unit powering an avatar in customized computer games. The<br />

workshop will include time <strong>for</strong> attendees to trial these virtual reality plat<strong>for</strong>ms.<br />

Learning Objectives:<br />

1) Review the current evidence <strong>for</strong> the use of VRTs <strong>for</strong> ERehabilitation.x<br />

2) Underst<strong>and</strong> clinical frameworks to guide decision making when using ERehabiliation.<br />

3) Learn current ERehabiliation models adopted in research settings <strong>and</strong> explore how these might be implemented in clinical practice.<br />

4) Become familiar with the application of virtual reality technologies as rehabilitation tools.<br />

IC 5 - WHERE DOES THE HIP SIT? MANAGING HIP DISPLACEMENT WITHIN THE OVERALL CONTEXT OF THE CHILD WITH<br />

CEREBRAL PALSY<br />

Authors: Pam Thomason, MPT; Kate Willoughby, PhD; Paulo Selber, MD; H Kerr Graham, MD<br />

Level: Intermediate<br />

Purpose: This updated course will focus on the practical application of evidence <strong>for</strong> the surveillance <strong>and</strong> management of hip displacement<br />

in children with CP. This course will help participants navigate the management options in relation to complex <strong>and</strong> sometimes competing<br />

needs of the child <strong>and</strong> family<br />

Target Audience: Physical therapists, paediatricians, orthopaedic surgeons, rehabilitation physicians<br />

Course Summary: In the context of previously presented <strong>and</strong> new evidence this course will provide an overview <strong>and</strong> practical approach<br />

to the management of hip displacement. The difficulties of developing <strong>and</strong> implementing management algorithms will be explored.<br />

Participants learning will be enhanced through interactive case studies including management of children with hemiplegia <strong>and</strong> children<br />

<strong>for</strong> whom the complex nature of their disability extends far beyond the hip. The recently revised Australian St<strong>and</strong>ards of Care <strong>for</strong> hip<br />

surveillance will be presented. The outcome of surgical <strong>and</strong> non-surgical management including new evidence of the effectiveness of nonsurgical<br />

options (CAM) explored. Newly developed parent fact sheets will be available along with the revised Australian St<strong>and</strong>ards of Care.<br />

A focus will be interactive case studies that will provide participants with rationale to support their decision making about managing hip<br />

displacement <strong>for</strong> children in their care.<br />

Learning Objectives:<br />

1) Gain knowledge of the evidence <strong>for</strong> management of hip displacement.<br />

2) Underst<strong>and</strong> the rationale <strong>for</strong> <strong>and</strong> timing of surgical intervention.<br />

3) Underst<strong>and</strong> the management of hip displacement in relation to severity of the motor disorder <strong>and</strong> to complex <strong>and</strong> competing needs of<br />

the child.<br />

4) Gain knowledge of the evidence <strong>for</strong> long term outcomes of surgical <strong>and</strong> non surgical interventions.<br />

20<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

2:00 pm – 4:00 pm Instructional Courses 1-13<br />

IC 6 - ORTHOPEDIC SURGERY FOR ADULTS WITH CEREBRAL PALSY<br />

Authors: M. W. Shrader, MD; Garey Noritz, MD; Henry Chambers, MD<br />

Level: Basic<br />

Purpose: This course will present an overview of typical orthopedic surgical procedures that adults with cerebral palsy (CP) may need.<br />

Specifically, the course will present the unique aspects of caring <strong>for</strong> adults with CP undergoing orthopedic surgery, including preoperative<br />

assessment, medical co-management, <strong>and</strong> postoperative rehabilitation.<br />

Target Audience: Physicians, occupational <strong>and</strong> physical therapists, nurses<br />

Course Summary: This course will provide an introductory level discussion of orthopedic surgical procedures that adults with CP may<br />

undergo. Surgery of the foot, knee, hip, <strong>and</strong> spine will be briefly discussed, including indications, patient selection, consent issues, surgical<br />

techniques, <strong>and</strong> postoperative care, including a discussion of the unique rehabilitation requirements <strong>for</strong> adults with CP. A discussion of the<br />

issues regarding medical co-management of this patient population will also be presented. Specifically, the course will focus on preoperative<br />

assessment, where to do the surgery (children’s hospital vs adult hospital), ICU issues, management of complex medical issues, such as<br />

nutritional issues <strong>and</strong> seizure disorders, <strong>and</strong> postoperative complications.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> some details of orthopedic surgical procedures that are per<strong>for</strong>med on adults with cerebral palsy.<br />

2) Participants will learn about patient selection in this patient population, with special emphasis on the consent/assent process.<br />

3) To develop an appreciation <strong>for</strong> the complex issues requiring medical management of adults with CP undergoing surgery, including<br />

preoperative assessment, hospital management, <strong>and</strong> management of postoperative complication.<br />

4) To learn about how postoperative care <strong>and</strong> rehabilitation differs <strong>for</strong> adults with CP undergoing orthopedic surgery.<br />

IC 7 - TRANSLATING RESEARCH TO PRACTICE: CLINICAL USE OF THE GILLETTE FUNCTIONAL ASSESSMENT<br />

QUESTIONNAIRE<br />

Authors: Jean L. Stout, PT MS; Rocio Riveros Charry, PT<br />

Level: Intermediate<br />

Purpose: This course will describe the translation of Rasch Analysis measurement theory research to practice using the Gillette Functional<br />

Assessment Questionnaire. Integration of self-report measures, classification systems (GMFCS) <strong>and</strong> measures of gait pathology will be<br />

described.<br />

Target Audience: Physiatrists, nurses, <strong>and</strong> physical therapists in clinical or school settings who encounter children with cerebral palsy <strong>and</strong><br />

other gait impairments in their clinical practice.<br />

Course Summary: Characterizing function <strong>for</strong> a child with cerebral palsy includes reporting multiple assessments in isolation without a<br />

common context of how each relates to the other. This course will use a series of case studies to describe the Rasch-derived integration of<br />

self-report measures (Gillette Functional Assessment Questionnaire <strong>and</strong> the PODCI), classification systems (GMFCS), <strong>and</strong> measures of gait<br />

pathology (Gait Deviation Index (GDI)).The usefulness of the FAQ in a clinical or school setting to providing direction <strong>for</strong> therapies <strong>and</strong> in<br />

counseling families regarding expectations of skill abilities will be demonstrated. Age dependence of skills <strong>for</strong> typically developing children<br />

will also be discussed.<br />

Learning Objectives:<br />

1) Discuss how the FAQ may be used in the clinical setting to provide direction <strong>for</strong> therapies <strong>and</strong> parent expectation of skill abilities.<br />

2) Explain how GMFCS levels <strong>and</strong> a gait pathology index (GDI ) are related to walking levels <strong>and</strong> skills on the FAQ.<br />

3) Describe the differences in skill difficulty between typically developing children <strong>and</strong> those with gait impairment.<br />

4) Describe the application of Rasch Analysis to the integration of selected measures.<br />

AACPDM 67 th Annual Meeting • Research & Practice 21


Thursday, October 17, 2013<br />

2:00 pm – 4:00 pm Instructional Courses 1-13<br />

IC 8 - THE ICF IN RESEARCH AND CLINICAL PRACTICE<br />

Authors: Stephanie C. DeLuca, PhD; Charlene Butler, EdD; Benjamin J. Shore, MD; Linda E. Krach, MD; Kat Kolaski, MD<br />

Level: Basic<br />

Purpose: Participants will gain underst<strong>and</strong>ing of <strong>and</strong> improve skills in using the International Classification of Functioning, Disability, <strong>and</strong><br />

Health (ICF) framework <strong>and</strong> the ICF version <strong>for</strong> Children <strong>and</strong> Youth (ICF-CY).<br />

Target Audience: AACPDM Members<br />

Course Summary: The ICF is a conceptual framework utilizing specific terminology to describe health across the lifespan. It has been<br />

adopted by over 90 countries <strong>and</strong> endorsed by 191 WHO members. The ICF includes 3 major domains: body function <strong>and</strong> structure;<br />

activities; <strong>and</strong> participation. Domains are supplemented by consideration of environmental <strong>and</strong> personal contextual factors, <strong>and</strong> are<br />

defined within multiple categories using universal qualifying codes to promote precise descriptions. The ICF-CY is designed to capture<br />

specific functional characteristics affecting the developing child. The AACPDM’s Treatment Outcomes Committee’s (TOC) methodology<br />

<strong>for</strong> systematic reviews requires authors report outcomes using the ICF model. As communications become more global, it is increasingly<br />

important <strong>for</strong> clinicians <strong>and</strong> researchers to use a common language when describing outcomes as they critically appraise <strong>and</strong> disseminate<br />

in<strong>for</strong>mation. The ICF framework provides such a common language; however, use of the ICF framework can be challenging. Representatives<br />

of the TOC will present in<strong>for</strong>mation to better enable AACPDM members to underst<strong>and</strong>, access, <strong>and</strong> apply the ICF framework. Presenters will<br />

review the conceptual strengths of the ICF, outline the ICF model <strong>and</strong> its components, give practical illustrations of the coding system, <strong>and</strong><br />

consider its limitations. They will explore <strong>and</strong> highlight the relationship between the ICF-CY <strong>and</strong> available childhood health <strong>and</strong> disability<br />

measures as used by clinicians <strong>and</strong> researchers. Audience members will have an opportunity to discuss ways to promote the ICF measures<br />

when reporting outcomes in future publications <strong>and</strong> presentations.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> the ICF <strong>and</strong> ICF-CY components.<br />

2) To recognize strengths <strong>and</strong> limitations of the ICF model.<br />

3) To underst<strong>and</strong> how currently available childhood disability <strong>and</strong> health measures are aligned with the ICF-CY.<br />

4) To promote discussions about the ICF <strong>for</strong> a wide array of clinical <strong>and</strong> research purposes.<br />

IC 9 - THE YEAR’S TOP TEN ARTICLES ON DEVELOPMENTAL DISABILITIES<br />

Authors: Gordon Worley, MD; Richard C. Adams, MD<br />

Level: Intermediate<br />

Purpose: To present summaries of the ten most important articles on developmental disabilities published in the past year (2012 to 2013),<br />

<strong>and</strong> to encourage discussion about them by participants.<br />

Target Audience: Physicians <strong>and</strong> nurses who treat children with developmental disabilities <strong>and</strong> want to keep abreast of the latest<br />

evidence-based, scientific findings that have the greatest impact on care. Although therapists are welcome <strong>and</strong> some articles may be<br />

relevant to their practices, most papers will have a medical focus.<br />

Course Summary: The top ten clinically relevant articles published in English between Autumn 2012 <strong>and</strong> Summer 2013 will be presented<br />

to the audience. Articles will be chosen from the presenters’ personal experience as well as from searches in Medicine <strong>and</strong> CINAHL (Current<br />

In<strong>for</strong>mation in Nursing <strong>and</strong> Allied Health Literature). Categories from which the articles will be chosen include the following: attention deficit<br />

hyperactivity disorder, autism, cerebral palsy, Down syndrome, mental retardation, spina bifida, <strong>and</strong> spinal cord injury. They will be selected<br />

using the following criteria: (1) impact on clinical care, (2) scientific merit of the study [validity], <strong>and</strong> (3) generalizability to practice. The<br />

presenters will summarize the ten articles in reverse order (saving number one <strong>for</strong> last). Their impact on clinical practice, place in the context<br />

of current care, <strong>and</strong> their implications <strong>for</strong> future research will be discussed. The audience will be encouraged to respond to each article as it is<br />

presented. A copy of the references <strong>and</strong> abstracts will be given to the attendees.<br />

Learning Objectives:<br />

1) Summarize the major conclusions of each of the ten articles presented.<br />

2) Identify areas in which additional research is needed.<br />

3) Evaluate the utility of each of the articles <strong>for</strong> their own clinical practice.<br />

4) Be inspired by the presentations to seek articles on their own.<br />

22<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

2:00 pm – 4:00 pm Instructional Courses 1-13<br />

IC 10 - PEDIATRIC SCI IN INFANTS AND YOUNG CHILDREN<br />

Authors: Lawrence C. Vogel, MD; Kathy Zebracki, PhD; Mary J. Mulcahey, PhD<br />

Level: Intermediate<br />

Purpose: Highlight innovative aspects of caring <strong>for</strong> young children with SCI.<br />

Target Audience: Physicians <strong>and</strong> AHP<br />

Course Summary: Overview of pediatric SCI, including epidemiology as a function of age at injury <strong>and</strong> management of medical/<br />

orthopaedic complications unique in children under 5 years of age. Discuss neurological evaluation <strong>and</strong> classification in young children<br />

with SCI. Highlight psychosocial <strong>and</strong> sexuality issues <strong>for</strong> children with SCI <strong>and</strong> their families. Review rehabilitation <strong>and</strong> habilitation of young<br />

children with SCI. Conclude with 2 case presentations with workshop attendee participation<br />

Learning Objectives:<br />

1) State the incidence of scoliosis <strong>and</strong> indications <strong>for</strong> bracing.<br />

2) State the limitations of using the ISNCSCI in children 5 years <strong>and</strong> younger.<br />

3) Describe major psychosocial issues <strong>for</strong> children with SCI <strong>and</strong> their families.<br />

4) State the youngest age that a child could begin using a power wheel chair.<br />

IC 11 - THE IMPORTANCE OF BEING EARNEST ABOUT SHANK AND THIGH KINEMATICS WHEN DESIGNING, ALIGNING AND<br />

TUNING ANKLE-FOOT ORTHOSIS FOOTWEAR COMBINATIONS (AFO-FCS)<br />

Authors: Elaine Owen, MSc SRP MCSP; Deborah Gaebler-Spira, MD; Stefania Fatone, PhD BPO; Donald McGovern, CPO<br />

Level: Intermediate<br />

Purpose: This course aims to introduce participants to the importance of segment kinematics in underst<strong>and</strong>ing <strong>and</strong> classifying st<strong>and</strong>ing<br />

<strong>and</strong> gait as well as designing, aligning <strong>and</strong> tuning AFO-FCs. This approach will be placed within the context of the International Classification<br />

of Function.<br />

Target Audience: Relevant to clinicians <strong>and</strong> researchers including physical therapists, orthotists, rehabilitation engineers, pediatric<br />

neurologists, pediatric orthopaedic surgeons, pediatric physiatrists, paediatricians, kinesiologists<br />

Course Summary: Maximizing mobility <strong>and</strong> function often includes the use of orthoses. This course presents a fresh approach to the<br />

analysis of normal <strong>and</strong> pathological st<strong>and</strong>ing <strong>and</strong> gait. Many current myths about st<strong>and</strong>ing, gait <strong>and</strong> orthotic intervention will be challenged<br />

<strong>and</strong> their origins explored e.g. the commonly held notion that the ankle angle in an AFO should be neutral. A more objective underst<strong>and</strong>ing<br />

of st<strong>and</strong>ing, gait <strong>and</strong> optimum orthotic intervention will be offered. Video Vector <strong>and</strong> 3D gait lab examples will include use of un-tuned <strong>and</strong><br />

tuned AFO-FCs <strong>for</strong> st<strong>and</strong>ing <strong>and</strong> gait. Printed h<strong>and</strong>outs <strong>and</strong> CD provided<br />

Learning Objectives:<br />

1) Discuss the kinematics <strong>and</strong> kinetics of normal <strong>and</strong> pathological gait <strong>and</strong> st<strong>and</strong>ing, with equal emphasis on segment <strong>and</strong> joint<br />

kinematics.<br />

2) Categorize pathological gait by segment deviation.<br />

3) Discuss a clinical algorithm to determine the optimum sagittal ankle angle in an AFO.<br />

4) Discuss a clinical algorithm to design, align <strong>and</strong> tune AFO-FCs.<br />

AACPDM 67 th Annual Meeting • Research & Practice 23


Thursday, October 17, 2013<br />

2:00 pm – 4:00 pm Instructional Courses 1-13<br />

IC 12 - DIAGNOSTIC APPROACH TO THE ATAXIC CHILD<br />

Authors: Andrea Poretti, MD; Hilary Gwynn, MD; Alec Hoon, MD<br />

Level: Intermediate<br />

Purpose: To provide a diagnostic approach to the ataxic child based on clinical history, neurological examination, <strong>and</strong> in depth<br />

identification of the clinical manifestation of motor, cognitive, <strong>and</strong> additional investigations.<br />

Target Audience: Clinicians involved in the diagnostic evaluation of children with ataxia.<br />

Course Summary: Ataxia comes from the Greek <strong>and</strong> means “lack of order”. In medicine, ataxia refers to impaired ability to coordinate<br />

muscle activity in the execution of voluntary movements. An unsteady, broad-based gait is the main clinical manifestation of ataxia.<br />

Additional clinical findings may be present depending on the etiology of ataxia. Generally, lesions affecting 3 main systems may cause<br />

ataxia: cerebellum, sensory <strong>and</strong> vestibular system. Additionally, ataxia may be functional or psychogenic. According to the amount of time<br />

over which symptoms present <strong>and</strong> evolve, different <strong>for</strong>ms of ataxia have been defined: non-progressive, progressive, acute, episodic, <strong>and</strong><br />

intermittent. Based on selected, illustrative clinical situations, we will discuss how clinical history, neurological examination <strong>and</strong> additional<br />

investigations (e.g. neuroimaging, electrophysiology, laboratory investigations) may help to differentiate between the different <strong>for</strong>ms of<br />

ataxia in children.<br />

Learning Objectives:<br />

1) The participant will identify the different systems that, if affected, may cause ataxia.<br />

2) The participant will recognize the role of clinical history <strong>and</strong> neurological examination in differentiating pediatric ataxia secondary to<br />

cerebellar, sensory, <strong>and</strong> vestibular lesions <strong>and</strong> functional ataxia.<br />

3) The participant will recognize the targeted indication of additional investigations in pediatric ataxia.<br />

4) The participant will identify common etiologies of the different ataxia types in children.<br />

IC 13 - ADVANCES IN THE NEUROPSYCHOLOGY OF CEREBRAL PALSY<br />

Authors: Seth A. Warschausky, PhD; Jacqueline Kaufman, PhD; Heidi Haapala, MD<br />

Level: Intermediate<br />

Purpose: To improve clinicians’ underst<strong>and</strong>ing of attention, executive function, visuospatial <strong>and</strong> other neuropsychological risks associated<br />

with CP including brain-behavior relations that underlie cognitive impairments. To describe neuropsychological applications to medical<br />

practice including monitoring iatrogenic effects, examining treatment outcomes, <strong>and</strong> <strong>for</strong>mulating school recommendations.<br />

Target Audience: This course is designed <strong>for</strong> physicians, therapists <strong>and</strong> educators who treat children with CP, <strong>and</strong> researchers who examine<br />

cognitive factors.<br />

Course Summary: Faculty from the University of Michigan’s Adapted Cognitive Assessment Laboratory (ACAL) illustrate key concepts in the<br />

neuropsychology of CP with findings from the NIH <strong>and</strong> DOED/NIDRR funded studies of 170 children with CP. An overview of cutting edge<br />

underst<strong>and</strong>ings of the neuropsychology of CP incorporates these findings. Practice guidelines <strong>and</strong> empirically grounded applications to<br />

clinical practice are described.<br />

Learning Objectives:<br />

1) To review the nature of neuropsychological assessment <strong>and</strong> new developments in accessible tests of cognitive functions.<br />

2) To refine knowledge of specific neuropsychological risks associated with CP.<br />

3) To refine underst<strong>and</strong>ing of the neuropathology associated with specific neuropsychological risks.<br />

4) To develop an underst<strong>and</strong>ing of the important clinical applications of neuropsychological assessment of children with CP.<br />

24<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Thursday, October 17, 2013<br />

Instructional Course 32 has been added to Thursday, October 17 th Instructional Course Offering<br />

IC 32 - USE OF GAIT ANALYSIS IN SURGICAL TREATMENT PLANNING FOR PATIENTS WITH DEVELOPMENTAL DISABILITIES<br />

Authors: Robert M. Kay, MD; Deirdre Ryan, MD; Susan Rethlefsen, PT DPT<br />

Level: Intermediate<br />

Purpose: To educate attendees in use of gait analysis <strong>for</strong> evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.<br />

Target Audience: Physicians, physical <strong>and</strong> occupational therapists<br />

Course Summary: Faculty will introduce attendees to computerized gait analysis data collection <strong>and</strong> interpretation. They will discuss how<br />

data are used in planning <strong>for</strong> surgical <strong>and</strong> non-surgical intervention in children with CP <strong>and</strong> myelomeningocele. Discussion will focus on<br />

common clinical problems <strong>and</strong> ways gait analysis alters treatment plans. Content will be based on the presenters’ clinical expertise <strong>and</strong><br />

evidence-based review of literature. Computerized gait data, videos, photographs <strong>and</strong> x-rays will be used. Attendees will participate in<br />

breakout sessions in which gait data will be interpreted <strong>and</strong> treatment plans determined <strong>for</strong> sample cases.<br />

Learning Objectives:<br />

1) List common gait problems in CP <strong>and</strong> myelomeningocele.<br />

2) Identify deviations on joint kinematic, kinetic <strong>and</strong> EMG plots.<br />

3) Outline a treatment plan <strong>for</strong> a child with CP or myelomeningocele using gait analysis data.<br />

4) Gain perspective on the complexity of evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.<br />

4:00 pm–4:30 pm Coffee Break - Posters <strong>and</strong> Exhibits<br />

4:30 pm-6:15 pm General Session<br />

Basic Science Lectures<br />

Neurobiology of White Matter Injury in the Premature Brain<br />

Vittorio Gallo, PhD<br />

Brain injury in the premature infant: Have we been thinking about this all wrong?<br />

Stephen A. Back, MD<br />

Sponsored by: Mac Keith Press <strong>and</strong> <strong>Cerebral</strong> <strong>Palsy</strong> International Research Foundation (CPIRF)<br />

Guest Lectureship<br />

Technologies <strong>for</strong> the ASSESSMENT <strong>and</strong> Care of Children with cerebral <strong>Palsy</strong><br />

Gerald Harris, PhD, PE<br />

6:15 pm- 7:30 pm Wine <strong>and</strong> Cheese Poster <strong>and</strong> Exhibit Viewing Session<br />

Always popular <strong>and</strong> well attended. Enjoy a glass of wine <strong>and</strong> light hors d’oeuvres in the Exhibit Hall <strong>and</strong> Foyer areas while visiting our<br />

Exhibitors <strong>and</strong> view ing the scientific <strong>and</strong> demonstration posters. Posters will be displayed on both bulletin boards <strong>and</strong> at E-Poster kiosks. This<br />

is an opportunity to meet with the 2013 exhibiting participants who are key contributors to the success of our meeting.<br />

evening options<br />

Once on site, you can sign up to dine at a great local restaurant at which reservations have already been made <strong>for</strong> you.<br />

AACPDM 67 th Annual Meeting • Research & Practice 25


Friday, October 18, 2013<br />

6:00 am-6:45 am Get Fit!<br />

Start your day off in an active way! - Activity TBD!<br />

7:00 am–7:50 am Continental Breakfast<br />

7:00 am–7:50 am Breakfast Seminars 7-12<br />

BRK 7 - MOTION GAMING TECHNOLOGY FOR INDIVIDUALS WITH MOVEMENT DISORDERS<br />

Author: Peter J. Chung, MD; Eileen G. Fowler, PhD PT; William L. Oppenheim, MD<br />

Level: Basic<br />

Purpose: Describe developments in motion-based video gaming, review the evidence <strong>for</strong> its use in individuals with disabilities, <strong>and</strong> share<br />

work on software development to increase accessibility.<br />

Target Audience: Physicians, therapists, researchers, <strong>and</strong> educators<br />

Course Summary: Video games have been increasingly adopted by <strong>American</strong> households with a majority of families engaging in video<br />

games on a regular basis. Recent advances have introduced novel input devices utilizing motion-based gaming at relatively low-cost.<br />

These technologies have been tried in rehabilitative <strong>and</strong> therapeutic <strong>program</strong>s. The Microsoft (MS) Kinect is a revolutionary game plat<strong>for</strong>m<br />

that uses a depth-sensing camera to capture body movement in space. Unlike other mediums, the MS Kinect does not require fine motor<br />

control. Dr. Chung will review studies on video game technology <strong>and</strong> its applications in people with disabilities; he will also discuss current<br />

work being conducted by the UCLA Center <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> the University of Southern Cali<strong>for</strong>nia-Institute <strong>for</strong> Creative Technology<br />

(USC-ICT) with funding support from the <strong>Cerebral</strong> <strong>Palsy</strong> International Research Foundation on the MS Kinect to increase video game<br />

accessibility <strong>for</strong> individuals with severe movement disorders.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> how developments in commercial video gaming have made the technology more accessible to individuals with<br />

movement disorders.<br />

2) To underst<strong>and</strong> the potential benefits <strong>and</strong> limitations to motion-based video gaming in individuals with severe movement disorders.<br />

3) To become familiar with software development to increase video games access <strong>for</strong> individuals with neuromuscular disabilities,<br />

including three specific games.<br />

4) To provide suggestions <strong>for</strong> directions in software development.<br />

Sponsored by: <strong>Cerebral</strong> <strong>Palsy</strong> International Research Foundation (CPIRF)<br />

BRK 8 - CHRONIC DISEASE RISK AMONG ADULTS WITH CP: THE ROLE OF PREMATURE AGING, OBESITY, AND SEDENTARY<br />

BEHAVIOR<br />

Authors: Mark Peterson, PhD; Edward A. Hurvitz, MD<br />

Level: Intermediate<br />

Purpose: This course will discuss secondary muscle dysfunction <strong>and</strong> chronic disease risk in adults with cerebral palsy (CP), including<br />

in<strong>for</strong>mation pertaining to the health implications of chronic sedentary behavior. We will specifically focus on the negative physiologic <strong>and</strong><br />

metabolic consequences of extreme sedentary behavior, as well as viable strategies to reduce these secondary risks <strong>and</strong> improve function.<br />

Target Audience: Physicians, therapists, nurses, <strong>program</strong> coordinators, exercise physiologists<br />

Course Summary: Evidence indicates that movement proficiency among children with CP is inversely associated with sedentary behavior<br />

<strong>and</strong> positively linked to habitual physical activity. Sedentary behavior has received significant attention as a robust predictor of chronic<br />

disease <strong>and</strong> mortality among adults, <strong>and</strong> moreover, is known to accelerate muscle wasting. Although decrements in muscle mass <strong>and</strong><br />

strength are typically considered the primary contributing factors of gross motor decline in CP, it is likely that these changes are actually the<br />

direct consequence of years spent accumulating extremely sedentary lifestyles. Recent evidence indicates that increasing or maintaining<br />

baseline activity participation is predictive of greater survival in older adults, even among those with obesity or functional limitations.<br />

Thus, reducing sedentary behavior in patients with CP should be the first line of defense <strong>for</strong> improving health, <strong>and</strong> may well be the most<br />

sustainable strategy to ensure preservation of gross function, cardiometabolic health, <strong>and</strong> successful participation in society.<br />

Learning Objectives:<br />

1) To describe the extent of sedentary behavior in CP as compared to a typical inactive adult.<br />

2) To discuss possible etiologies of muscle pathology <strong>and</strong> metabolic decline associated with sedentary behavior, including losses of<br />

function <strong>and</strong> mobility, decreases in muscle quality, alterations in adipose tissue deposition <strong>and</strong> distribution, <strong>and</strong> chronic, aberrant<br />

inflammation.<br />

3) To define possible strategies <strong>for</strong> ameliorating health risk through reducing sedentary behavior in CP.<br />

26<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Friday, October 18, 2013<br />

7:00 am–7:50 am Breakfast Seminars 7-12<br />

BRK 9 - RELATIONSHIPS AND SEXUALITY: AN IMPORTANT ISSUE FOR CARE PROVIDERS TO ADDRESS IN HELPING<br />

INDIVIDUALS WITH PHYSICAL OR DEVELOPMENTAL DISABILITIES TO IMPROVE THEIR QUALITY OF LIFE<br />

Author: Susan C. Labhard, MSN RN<br />

Level: Basic<br />

Purpose: Relationships <strong>and</strong> sexuality are an important part of the transition to adulthood <strong>for</strong> youth with disabilities. Participants will be able<br />

to provide appropriate diagnosis-related teaching in a creative <strong>and</strong> professional manner. Providers will learn that dealing with the sexual<br />

consequences of disabilities may not be a barrier to sexual fulfillment.<br />

Target Audience: Clinicians, therapists, care providers, <strong>and</strong> educators<br />

Course Summary: It is up to the provider or trusted adult, to offer appropriate in<strong>for</strong>mation on sexuality, <strong>for</strong> youth with developmental<br />

or physical disabilities, so they can develop a satisfactory type of relationship--no matter what their ability. To improve knowledge of<br />

the importance of relationships <strong>and</strong> sexuality <strong>for</strong> youth with disabilities, evidence-based <strong>and</strong> diagnosis-based teaching solutions will be<br />

provided. Participants will learn how to approach this subject with renewed confidence.<br />

Learning Objectives:<br />

1) To elevate underst<strong>and</strong>ing of the importance of friends, relationships <strong>and</strong> sexuality <strong>for</strong> youth with disabilities, in helping youth to attain a<br />

satisfactory quality of life.<br />

2) Apply evidence-based practice guidelines <strong>for</strong> teaching youth with disabilities about the importance of social success in developing<br />

healthy relationships <strong>and</strong> sexuality.<br />

3) Learn how to apply useful references <strong>and</strong> resources <strong>for</strong> teaching providers, <strong>and</strong> caregivers about disease prevention <strong>and</strong> options to<br />

traditional sexual expression.<br />

4) Explore with audience, problems <strong>and</strong> solutions in teaching an individual with a disability about relationships <strong>and</strong> sexuality related to<br />

their diagnosis.<br />

BRK 10 - MOTOR DELAYS: EARLY IDENTIFICATION AND EVALUATION<br />

Authors: Garey Noritz, MD; Peter Rosenbaum, MD<br />

Level: Basic<br />

Purpose: To educate pediatric providers about new initiatives in gross motor developmental screening that may impact their practices.<br />

Target Audience: Physicians <strong>and</strong> other pediatric providers, including educators <strong>and</strong> therapists, who work with young children <strong>and</strong> need to<br />

be aware of motor development.<br />

Course Summary: A recent emphasis on developmental screening has improved detection of children with atypical developmental<br />

trajectories, allowing earlier identification, diagnosis <strong>and</strong> treatment. Primary care pediatricians report discom<strong>for</strong>t with the examination,<br />

evaluation, <strong>and</strong> management of children with gross motor delay. In collaboration with the Centers <strong>for</strong> Disease Control <strong>and</strong> Prevention/<br />

National Center on Birth Defects <strong>and</strong> Developmental Disabilities, an interdisciplinary workgroup of the <strong>American</strong> <strong>Academy</strong> of Pediatrics<br />

drafted an algorithm <strong>and</strong> statement <strong>for</strong> medical home providers to improve their recognition <strong>and</strong> management of children with suspected<br />

or confirmed gross motor delays. The major goals of this initiative are to improve detection of neuromotor delays, help primary care<br />

clinicians identify those children that need urgent attention, <strong>and</strong> to drive prompt, appropriate referrals to pediatric subspecialists.<br />

Learning Objectives:<br />

1) Participants will explore the application of a new clinical algorithm <strong>for</strong> the screening of children’s neuromotor development.<br />

2) Participants will recognize the importance of early motor screening by primary care providers <strong>and</strong> the initial steps in management that<br />

guide referrals to subspecialists.<br />

3) Participants will improve their knowledge of neuromotor “red flags”- those signs or symptoms that should alert clinicians that an<br />

expedited referral is needed.<br />

4) By viewing videos of children with neuromotor diseases, participants will improve their detection of young children with neuromotor<br />

delays.<br />

AACPDM 67 th Annual Meeting • Research & Practice 27


Friday, October 18, 2013<br />

7:00 am–7:50 am Breakfast Seminars 7-12<br />

BRK 11 - ENGAGING IN RESEARCH WITH CHILDREN WITH NEURODEVELOPMENTAL DISABILITIES: CONSENT AND ASSENT<br />

ISSUES<br />

Authors: Elaine Stashinko, PhD; Alec Hoon, MD MPH; Leila Jamal, ScM<br />

Level: Intermediate<br />

Purpose: To critically review the federal guidelines on consent <strong>and</strong> assent of children <strong>and</strong> related bioethical issues including research assent<br />

<strong>and</strong> dissent with intellectually challenged children, genetic consent issues <strong>and</strong> consideration <strong>for</strong> establishment of cell lines <strong>for</strong> future stem<br />

cell research. The team will share knowledge <strong>and</strong> experiences related to emerging genetic issues <strong>and</strong> stimulate discussion related to clinical<br />

research within this special population.<br />

Target Audience: Interdisciplinary focus including physicians, nurses, therapists, <strong>and</strong> research coordinators conducting research with<br />

children with neurodevelopmental disabilities <strong>and</strong> their families.<br />

Course Summary: In<strong>for</strong>med consent is one of the primary ethical considerations in human subjects research. Research with children who<br />

have neurodevelopmental disabilities may involve many complex issues including research with vulnerable populations, genetic testing<br />

protocols <strong>and</strong> consent <strong>for</strong> establishment of cell lines. The team will share knowledge <strong>and</strong> experiences related to emerging genetic issues<br />

<strong>and</strong> stimulate discussion related to clinical research <strong>and</strong> the consent/assent process within this special population.<br />

Learning Objectives:<br />

1) Identify the basic ethical principles that underlie in<strong>for</strong>med consent in research with children.<br />

2) Describe practical considerations in implementing the assent requirement in pediatric research.<br />

3) Describe the risks associated with participating in genetic studies.<br />

4) Outline potential conflicts related to the dual provider/researcher role in clinical research <strong>and</strong> implications <strong>for</strong> the consent process.<br />

BRK 12 - SINGLE EVENT MULTILEVEL SURGERY IN SPASTIC DIPLEGIA: UNDERSTANDING THE EVIDENCE<br />

Authors: H Kerr Graham, MD FRCS (Ed) FRACS; Pam Thomason, MPT<br />

Level: Intermediate<br />

Purpose: To discuss the need <strong>for</strong> continuous monitoring of clinical outcomes, how to per<strong>for</strong>m a clinical audit of gait improvement surgery<br />

<strong>and</strong> what is the perfect research design?<br />

Target Audience: Physiotherapists, orthopaedic surgeons, rehabilitation physicians, researchers<br />

Course Summary: New outcome tools including the Gait Profile Score (GPS), Movement Analysis Profile (MAP) <strong>and</strong> Gait Variable Scores<br />

(GVS) have the potential to revolutionize outcomes research <strong>for</strong> any study where the aims of the intervention include improving gait<br />

function. The authors have conducted <strong>and</strong> published the 1st RCT of Single Event Multilevel Surgery (SEMLS) (n=19) <strong>and</strong> more recently<br />

published the outcomes at 5 year follow-up. The RCT outcomes in GPS terms, were similar to the outcomes of a large retrospective study of<br />

SEMLS (n= 121) from the same unit. This intriguing finding will provide a basis <strong>for</strong> a presentation <strong>and</strong> discussion on how to per<strong>for</strong>m a clinical<br />

audit of SEMLS, the need <strong>for</strong> continuous monitoring of clinical outcomes <strong>and</strong> what the perfect research design might look like. Specifically,<br />

does the RCT trump a prospective cohort study?<br />

Learning Objectives:<br />

1) To gain an underst<strong>and</strong>ing of the Gait Profile Score <strong>and</strong> how to interpret changes reported in research studies.<br />

2) To gain knowledge of practical tools <strong>for</strong> monitoring <strong>and</strong> auditing outcomes of gait improvement surgery.<br />

3) To gain an underst<strong>and</strong>ing of the strengths <strong>and</strong> weaknesses of different clinical trial designs <strong>for</strong> gait correction surgery.<br />

4) To gain knowledge of the evidence <strong>for</strong> gait improvement surgery.<br />

8:00 am–10:00 am General Session<br />

Guest Lectureship<br />

Annette Majnemer, OT, PhD, FCAHS<br />

Outcome measures: What’s up with that?<br />

European <strong>Academy</strong> of Childhood Disability<br />

Allan Colver, MD<br />

Quality of life <strong>and</strong> participation of children <strong>and</strong> young people with cerebral palsy<br />

28<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Friday, October 18, 2013<br />

10:00 am-10:30 am Coffee Break - Posters <strong>and</strong> Exhibits<br />

Exp<strong>and</strong>ed breaks throughout the AM <strong>and</strong> PM sessions will give you a chance to visit the exhibits <strong>and</strong> posters. Plan to meet a friend during<br />

one of these times <strong>and</strong> just catch up!<br />

10:30 am–12:30 pm Free Paper sessions D-F<br />

Free Paper session D: Gait Ambulation<br />

D1 - AN INVESTIGATION INTO THE ABILITY OF THREE ACCELEROMETRY-BASED DEVICES TO DETECT THE INCREASED<br />

ENERGY COST OF LOCOMOTION IN AMBULATORY ADULTS AND CHILDREN WITH CEREBRAL PALSY<br />

Jennifer Ryan, B.Sc. (Physio); Ailish McGahey, B.Sc. (Physio); Brenda McLoughlin, B.Sc. (Physio); Michael Walsh, MMedSc; John Gormley, PhD<br />

D2 - VALIDITY OF THE RT3 ACCELEROMETER AT MEASURING PHYSICAL ACTIVITY INTENSITY IN ADULTS AND CHILDREN<br />

WITH CEREBRAL PALSY<br />

Jennifer Ryan, B.Sc (Physio); Ailish McGahey, B.Sc. (Physio); Brenda McLoughlin, B.Sc. (Physio); Michael Walsh, MMedSc; John Gormley, PhD<br />

D3 - HOW ACTIVE ARE THEY? VALIDATION AND COMPARISON OF UNI- AND TRIAXIAL ACCELEROMETERS IN TODDLERS<br />

WITH CEREBRAL PALSY<br />

Kristie L. Bell, PhD; Stina Oftedal, RD; Peter S. Davies, PhD; Robert Ware, PhD; Roslyn N. Boyd, PhD PT<br />

D4 - A GAIT-ACTIVATED NEUROMUSCULAR STIMULATION DEVICE IMPROVES STRENGTH, MUSCLE GROWTH AND<br />

ELASTICITY IN CHILDREN WITH HEMIPARETIC CEREBRAL PALSY<br />

Nathalie L. Maitre, MD PhD; Shirley Gogliotti, PT; Ellen Shaw, DPT; Laura Flynn, PT PCS; Ashley Schilling, DPT; Cherri Rooks, MSPT; Jeremy Chan, BS;<br />

Emily Bush, BA; Erica Wehrwein, PhD; Bruce Damon, PhD;<br />

D5 - CONTROL OF WALKING SPEED IN CHILDREN WITH CEREBRAL PALSY<br />

Jon Davids, MD; Suzy Chen, BS; Mitell Sison-Williamson, MS; Anita Bagley, PhD MPH<br />

D6 - CHANGE IN STRENGTH-TO-WEIGHT RATIO WITH AGE IN AMBULATORY CHILDREN WITH CEREBRAL PALSY<br />

Jon Davids, MD; Donna Oeffinger, PhD; Anita Bagley, PhD MPH; Mitell Sison-Williamson, MS; George Gorton, BS<br />

D7 - CHANGES IN SECONDARY EFFECTS OF LEVER-ARM DYSFUNCTION IN CHILDREN WITH SPASTIC DIPLEGIA<br />

FOLLOWING BILATERAL FEMORAL DEROTATION OSTEOTOMIES<br />

Jean L. Stout, PT MS; James R. Gage, MD; Tom Novacheck, MD<br />

D8 - PREDICTING CHANGES IN GAIT ASSOCIATED WITH ANKLE FOOT ORTHOSIS USE IN CHILDREN WITH CEREBRAL<br />

PALSY<br />

Andrew Ries, MS; Michael Schwartz, PhD; Tom Novacheck, MD; Adam Rozumalski, MS<br />

D9 - THE PHYSIOLOGIC STRAIN OF WALKING IN CHILDREN AND YOUTH WITH CEREBRAL PALSY<br />

Nancy Lennon, M.S., P.T.; Freeman Miller, MD; Kirk Dabney, MD; John Henley, PhD; Katherine Sommers, B.S.<br />

D10 - GAIT PATTERNS IN DIPLEGIC SPASTIC CEREBRAL PALSY - A CLASSIFICATION BASED AT 1805 CASES<br />

Mauro C. Morais Filho, MD; Catia M. Kawamura, PT; José Augusto F. Lopes, MSc; Daniella L. Neves, MD; Michelle Cardoso, MD; Jordana Caiafa, MD<br />

Free Paper session E: Therapies <strong>and</strong> Interventions - Part 2<br />

E1 - IMPACT OF PERSONAL AND ENVIRONMENTAL FACTORS ON MASTERY MOTIVATION IN CHILDREN WITH CONGENITAL<br />

HEMIPLEGIA<br />

Laura Miller, BSc(OT) (Hons) MHSM; Jenny Ziviani, PhD MEd BA BSC(OT); Robert Ware, PhD; Roslyn N. Boyd, PhD PT<br />

E2 - MASTERY MOTIVATION AS A PREDICTOR OF OCCUPATIONAL PERFORMANCE FOLLOWING UPPER LIMB<br />

INTERVENTION FOR SCHOOL AGED CHILDREN WITH CONGENITAL HEMIPLEGIA<br />

Laura Miller, BSc(OT)(Hons) MHSM; Jenny Ziviani, PhD MEd BA BSc (OT); Robert Ware, PhD; Roslyn N. Boyd, PhD PT<br />

E3 - PRELIMINARY RESULTS OF A RANDOMIZED CONTROLLED TRIAL EVALUATING THE EFFECTIVENESS OF AN<br />

INDIVIDUALLY DEFINED, GOAL-ORIENTED PHYSICAL THERAPY PROGRAM IN CHILDREN WITH CEREBRAL PALSY<br />

Inge Franki, PT PT MSc; Kaat Desloovere, PhD; Jos De Cat, PT MSc; Guy Molenaers, MD PhD; Christine Van den Broeck, PT PhD<br />

E4 - IMPROVING CHILD AND PARENTING OUTCOMES FOLLOWING PEDIATRIC ACQUIRED BRAIN INJURY (ABI): AN RCT OF<br />

A PARENTING PROGRAM<br />

Koa Whittingham, PhD; Felicity L. Brown, BS; Kate Sofronoff, PhD; Roslyn N. Boyd, PT, PhD; Lynne McKinlay, FRACP<br />

E5 - PARENTING INTERVENTION IMPROVES BEHAVIORAL AND EMOTIONAL OUTCOMES OF CHILDREN WITH CP: AN RCT<br />

Koa Whittingham, PhD; Matthew S<strong>and</strong>ers, PhD; Lynne McKinlay, PhD; Roslyn N. Boyd, PhD PT<br />

AACPDM 67 th Annual Meeting • Research & Practice 29


Friday, October 18, 2013<br />

10:30 am–12:30 pm Free Paper Sessions D-F<br />

Free Paper Session E: Therapies <strong>and</strong> Interventions - Part 2<br />

E6 - HOME- AND LAB-BASED ROBOTIC PASSIVE AND ACTIVE MOVEMENT TRAINING OF ANKLE IMPAIRMENTS IN<br />

CEREBRAL PALSY<br />

Liqun Zhang, PhD; Lin Liu, MS; Kai Chen, PhD; Chung-Yong Yang, PhD; Liang Wang, MS; Charley Liu, BS; Yupeng Ren, MS; Winnie Wu, PhD; Wei-Qun<br />

Song, MD; Deborah Gaebler-Spira, MD;<br />

E7 - THE EFFECT OF INDIVIDUALIZED PROGRESSIVE RESISTANCE TRAINING ON MOBILITY IN ADOLESCENTS AND YOUNG<br />

ADULTS WITH CEREBRAL PALSY<br />

Nicholas Taylor, PhD; Karen J. Dodd, PhD; Richard Baker, PhD; Kate Willoughby, BPT, DPT; Pam Thomason, BPT, MPT; H Kerr Graham, MD, FRCS(Ed), FRACS<br />

E8 - RELATIONSHIP OF REHABILITATION AND COMMUNITY SERVICES TO GROSS MOTOR, SELF-CARE, AND<br />

PARTICIPATION IN YOUNG CHILDREN WITH CEREBRAL PALSY<br />

Sarah W. McCoy, PT PhD; Doreen Bartlett, PT PhD; Robert Palisano, PT ScD; Lisa Chiarello, PT PhD; Lynn Jeffries, PT PhD; Alyssa LaForme Fiss, PT PhD<br />

E9 - THE IMPACT OF AN INTERACTIVE COMPUTER MULTI-PLAYER EXERGAME CYCLING PROGRAM ON PHYSICAL FITNESS<br />

AND HEALTH-RELATED QUALITY OF LIFE IN YOUTH WITH GROSS MOTOR FUNCTION CLASSIFICATION SYSTEM LEVEL III<br />

CEREBRAL PALSY<br />

Shannon Knights, MD; Nicholas Graham, BS MSc PhD; Lauren Switzer, MSc; Briar Findlay, BS; Zi Ye, BS; Hamilton Hern<strong>and</strong>ez, MSc; Darcy Fehlings, MD<br />

MSc FRCPC<br />

E10 - CONSTRAINT-INDUCED MOVEMENT THERAPY IMPROVES CORTICAL SENSORY PERCEPTION AND UPPER<br />

EXTREMITY FUNCTION IN CHILDREN WITH HEMIPARETIC CEREBRAL PALSY<br />

Nathalie L. Maitre, MD PhD; Gena Henderson, DPT; Lu Wang, PhD; Megan L. Auld, PhD; Jennifer Pearson, OT; Suzanne Satterfield, OT; Sasha Key, PhD<br />

Free Paper Session F: Feeding/Nutrition/Complex Care<br />

F1 - SECONDARY CONDITIONS AMONG YOUTH WITH SPINAL CORD INJURIES<br />

Erin H. Kelly, PhD; Ann Flanagan, PT PCS; Lawrence C. Vogel, MD<br />

F2 - FAT DISTRIBUTION IN CHILDREN AND ADOLESCENTS WITH MYELOMENINGOCELE<br />

Nicole Mueske, M.S.; Deirdre Ryan, MD; Alex<strong>and</strong>er Van Speybroeck, MD; Tishya Wren, PhD.<br />

F3 - BODY COMPOSITION RELATED TO HEALTH AND ENVIRONMENTAL FACTORS IN AMBULATORY CHILDREN WITH<br />

CEREBRAL PALSY<br />

Donna Oeffinger, PhD; Neeley Buhr, MS; Janet Walker, MD<br />

F4 - INTRAMUSCULAR FAT IN AMBULANT YOUNG ADULTS WITH BILATERAL SPASTIC CEREBRAL PALSY<br />

Jonathan J. Noble, MSc BSc; Geoffery D. Charles-Edwards, PhD; Stephen F. Keevil, PhD; Martin Gough, FRCSI; Adam Shortl<strong>and</strong>, PhD<br />

F5 - “LEARN FROM EVERY PATIENT”: FEASIBILITY AND EARLY RESULTS OF CLINICAL CARE AND RESEARCH INTEGRATION<br />

TO OPERATIONALIZE A LEARNING HEALTH SYSTEM<br />

Linda P. Lowes, PhD; Garey Noritz, MD; Abigail Tidball, PT; Amy J. Newmeyer, MD; Lamara Love, RN; Sha Clark, MSW LISW; Michelle Miller, MD; William<br />

Smoyer, MD<br />

F6 - PARENT PERSPECTIVES ON SEASONAL INFLUENZA VACCINATION OF CHILDREN WITH CEREBRAL PALSY,<br />

INTELLECTUAL DISABILITY AND EPILEPSY<br />

Georgina Peacock, MD MPH FAAP; Michael Smith, MD MSCE; Adina de Coteau, MPH; Cynthia Moore, MD PhD<br />

F7 - FACTORS INFLUENCING RECURRENT READMISSIONS AMONG CHILDREN WITH DISABILITIES IN A SPECIALTY<br />

CHILDREN’S HOSPITAL<br />

Mary Braddock, MD MPH; Steven Koop, MD; Lei Zhang, MSc; Ginny Leutgeb, BA; Colette Salmanowicz, MBA; Joyce Trost, PT<br />

F8 - PARENT REPORTED FEEDING ABILITY IS ASSOCIATED WITH DIETARY INTAKE, GROWTH AND BODY COMPOSITION IN<br />

PRESCHOOL AGED CHILDREN WITH CEREBRAL PALSY<br />

Kristie L. Bell, PhD; Kelly A. Weir, M Sp Path; Katherine A. Benfer, MPH; Robert Ware, PhD; Richard Stevenson, MD; Peter S. Davies, PhD; Roslyn N. Boyd, PhD PT<br />

F9 - FOOD TEXTURES HABITUALLY CONSUMED BY PRESCHOOL-AGED CHILDREN WITH CEREBRAL PALSY: RELATIONSHIP<br />

TO OROPHARYNGEAL DYSPHAGIA AND FUNCTIONAL GROSS MOTOR SKILLS<br />

Katherine A. Benfer, MPH BSpPath; Kelly A. Weir, MSpPath BSpThy; Kristie L. Bell, PhD BHthSc (Nutr Dt); Robert Ware, PhD; Peter S. Davies, PhD MPhil<br />

BSci; Roslyn N. Boyd, PhD PT<br />

F10 - FUNCTIONAL OROPHARYNGEAL IMPAIRMENTS AND THEIR RELATIONSHIP TO GROSS MOTOR SKILLS IN YOUNG<br />

CHILDREN WITH CEREBRAL PALSY<br />

Katherine A. Benfer, MPH BSpPath; Kelly A. Weir, MSpPath BSpThy; Kristie L. Bell, PhD BHthSci (NtrDt); Robert Ware, PhD; Peter S. Davies, PhD MPhil<br />

BSci; Roslyn N. Boyd, PhD MSc<br />

30<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Friday, October 18, 2013<br />

12:30 pm – 1:30 pm Flashpoint Luncheon<br />

Come <strong>and</strong> listen to a face paced, cutting edge in<strong>for</strong>mation from a recognized expert in 10 minutes!<br />

Luncheon is sponsored by Medtronic. Registration is required.<br />

International Affairs Luncheon<br />

Exhibits <strong>and</strong> Posters<br />

1:30 pm – 3:30 pm General Session<br />

Chambers Family Lifespan Lectureship<br />

Edward Hurvitz, MD<br />

Health <strong>and</strong> Fitness in <strong>Cerebral</strong> <strong>Palsy</strong>: What We Need to Know<br />

Guest Lectureship<br />

Diane Damiano, PhD, PT<br />

How Meaningful is a Mean Group Response to Physical Therapy <strong>for</strong> Children with <strong>Cerebral</strong><br />

<strong>Palsy</strong>?<br />

Guest Lectureship<br />

Kerr Graham, MD<br />

The right treatment <strong>for</strong> the right child<br />

3:30 pm – 4:30 pm Coffee Break - Posters <strong>and</strong> Exhibits<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 14 - AN INTERDISCIPLINARY APPROACH TO FEEDING PROBLEMS IN CHILDREN WITH CEREBRAL PALSY AND OTHER<br />

NEURODEVELOPMENTAL DISABILITIES<br />

Authors: Eric B. Levey, MD; Peter Girolami, PhD; Donna Reigstad, OTR/L<br />

Level: Intermediate<br />

Purpose: To share our approach <strong>and</strong> experience in evaluating <strong>and</strong> treating children with neurodevelopmental disabilities (NDD) <strong>and</strong><br />

feeding problems with special emphasis on children with dysphagia.<br />

Target Audience: Occupational therapists, speech-language pathologists, psychologists, dieticians, pediatricians<br />

Course Summary: Feeding problems in children with NDD are due to a variety of medical, developmental, behavioral, <strong>and</strong> psychosocial<br />

factors, often necessitating an interdisciplinary approach to treatment. Our interdisciplinary feeding <strong>program</strong> at Kennedy Krieger Institute<br />

includes Pediatrics, GI, Nutrition, OT, SLP, Behavioral Psychology <strong>and</strong> Social Work. We have evaluated <strong>and</strong> treated children with a range of<br />

NDD including CP, autism spectrum disorders, <strong>and</strong> Down Syndrome. While most children with NDD, benefit from a gradual, longitudinal<br />

approach to treatment, some children benefit from a burst of intensive feeding therapy provided over a number weeks. We will highlight<br />

some successes (<strong>and</strong> failures) in treating children with refractory feeding problems in our Day Treatment <strong>and</strong> Inpatient Programs. Case<br />

studies will have a special focus on the interdisciplinary management of dysphagia, including the use of oral-motor tools, strategies to<br />

advance textures, <strong>and</strong> combined oral-motor <strong>and</strong> behavioral protocols used to promote safety <strong>and</strong> increase efficiency.<br />

Learning Objectives:<br />

1) To review signs/symptoms of GI dysmotility <strong>and</strong> discuss management strategies.<br />

2) To review oral-motor <strong>and</strong> sensory issues that contribute to feeding problems <strong>and</strong> discuss approaches to therapy.<br />

3) To review commonly used evidence-based behavioral techniques that can be applied to feeding problems in this population.<br />

4) To describe a combined oral-motor <strong>and</strong> behavioral approach to treatment of feeding problems.<br />

AACPDM 67 th Annual Meeting • Research & Practice 31


Friday, October 18, 2013<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 15 - PART II: OUTCOMES OF SELECTIVE DORSAL RHIZOTOMY AND PATIENT SELECTION PROCESS IN GMFCS LEVELS I,<br />

II, AND III: CASE BASED FOCUS SUPPORTED BY OUTCOME DATA<br />

Authors: Michael H. Schwartz, PhD; Linda E. Krach, MD; Rocio Riveros Charry, PT; Michael Healy, MD; Marcie Ward, MD<br />

Level: Advanced<br />

Purpose: This course will highlight Selective Dorsal Rhizotomy (SDR) focusing on outcome data <strong>and</strong> how to apply that data <strong>for</strong> safe patient<br />

selection. Challenging individual cases will be covered with emphasis on audience participation <strong>and</strong> collaborative discussion.<br />

Target Audience: Developmental pediatricians, pediatric neurologists, neurosurgeons, orthopedists, physiatrists <strong>and</strong> physical therapists<br />

who want to discuss more in depth patient selection questions regarding SDR, <strong>and</strong> who consider SDR as a potential treatment option <strong>for</strong><br />

their patients.<br />

Course Summary: This course is Part II of a two part course. It is designed to discuss the outcome data associated with predictable tone<br />

reduction <strong>and</strong> improved ambulation after selective dorsal rhizotomy. Case examples will be reviewed in detail showing preoperative <strong>and</strong><br />

postoperative data. Applicable history <strong>and</strong> physical exam findings, gait analysis principles <strong>and</strong> patient/family goals will be highlighted.<br />

Participant interaction will be accomplished through audience response system software.<br />

Learning Objectives:<br />

1) Evaluate the available research related to selective dorsal rhizotomy outcomes.<br />

2) Recognize patterns in patients which are consistent with appropriateness <strong>for</strong> selective dorsal rhizotomy.<br />

3) Identify the aspects of a patient’s gait that may be improved by selective dorsal rhizotomy in GMFCS levels I - III.<br />

4) Collaborate with colleagues to discuss the merits of SDR <strong>and</strong> avoid pitfalls in patient selection.<br />

IC 16 - BACK TO BASICS - STRETCHING COMBINED WITH EXERCISING<br />

Authors: Deborah Gaebler-Spira, MD; Theresa Clancy, PT; Theresa Sukal-Moulton, DPT, PHD<br />

Level: Intermediate<br />

Purpose: To provide an in-depth evidence based course on stretching, combined with active use. The course will provide in<strong>for</strong>mation<br />

on robotic biomechanical measurements of stretching protocols that gain range of motion, strength, selective motor control <strong>and</strong><br />

reduce spasticity. The contribution of an intelligent robotic stretcher <strong>and</strong> exerciser, provides clinical <strong>and</strong> research treatment, along with<br />

quantification measurement <strong>for</strong> the impairments associated with reduced function in cerebral palsy.<br />

Target Audience: physical therapists, physicians, orthotists, occupational therapists, orthopedic surgeons<br />

Course Summary: Stretching is often a portion of the prescribed physical therapy <strong>program</strong> <strong>for</strong> children with cerebral palsy (CP), but there<br />

is a lack of high-level studies that conclusively support stretching specifically as effective treatment. However, with stretching, voluntary<br />

movement training can be more effective. This course will review the mechanics of stretching, the neural structures <strong>and</strong> tissues involved, <strong>and</strong><br />

the literature evaluating stretching as a treatment modality. A device that controls <strong>for</strong> stretching variables, velocity of stretch, limits of stretch<br />

<strong>and</strong> hold of stretch, followed with motor control training has been used in CP rehabilitation with partial support from the NIDRR RERC.<br />

The device has clinical research capacities as well as therapy intervention. The course will demonstrate the collaboration <strong>and</strong> interaction of<br />

clinicians, bioengineers <strong>and</strong> research scientists to maximize improvements through combined stretching <strong>and</strong> movement control training.<br />

We will describe the challenges <strong>and</strong> successes of adapting a research protocol to clinical care <strong>for</strong> outpatient <strong>and</strong> home use.<br />

Learning Objectives:<br />

1) To provide current neural <strong>and</strong> biomechanical underst<strong>and</strong>ing of muscle tightness, stretching <strong>and</strong> the relationship between the tendon<br />

<strong>and</strong> muscle during stretch.<br />

2) To underst<strong>and</strong> the level of evidence that supports or refutes the use of stretching as part of a rehabilitation <strong>program</strong>.<br />

3) To underst<strong>and</strong> the anticipated clinical gains related to the addition of targeted motor control training following stretching.<br />

4) To underst<strong>and</strong> the advantages of studying a stretching <strong>and</strong> motor control training <strong>program</strong> with controlled variables.<br />

32<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Friday, October 18, 2013<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 17 - ADAPTIVE RECREATION FOR CHILDREN AND YOUTH WITH CEREBRAL PALSY AND OTHER CHILDHOOD-ONSET<br />

DISABILITIES (COD)<br />

Authors: Jennifer E. Miros, MPT; Désirée B. Maltais, PhD PT; Keiko Shikako-Thomas, PhD OT<br />

Level: Basic<br />

Purpose: To help clinicians <strong>and</strong> parents underst<strong>and</strong> the role of recreational activities <strong>for</strong> children <strong>and</strong> youth with COD. This course will also<br />

teach how <strong>and</strong> why to start adaptive recreational opportunities in their area. We will outline the social, psychological, <strong>and</strong> physical benefits<br />

of recreational <strong>program</strong>s.<br />

Target Audience: This course is relevant to clinicians <strong>and</strong> parents/care givers of children <strong>and</strong> youth with COD who are interested in<br />

promoting recreational opportunities.<br />

Course Summary: Adaptive Recreation activities are done <strong>for</strong> enjoyment, amusement, leisure <strong>and</strong>/or pleasure. Children <strong>and</strong> youth living<br />

with a disability need to be given the opportunity to participate in recreational activities. These activities can range from highly organized<br />

physical or sporting activities to unorganized sedentary activities. This course will summarize <strong>and</strong> give examples of effective adaptive<br />

recreation options <strong>for</strong> children <strong>and</strong> youth with COD.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> the benefits of participation in adaptive recreational activities, recreation as a right, the role of recreation in different<br />

intervention <strong>program</strong>s <strong>and</strong> professional role in promoting participation in recreation.<br />

2) To learn about the intrinsic <strong>and</strong> extrinsic factors that influence participation in structured <strong>and</strong> unstructured adaptive recreational<br />

activities.<br />

3) To acquire awareness on the different stakeholders that need to be involved in the development of a successful recreation promotion<br />

plan.<br />

4) To underst<strong>and</strong> <strong>and</strong> evaluate the benefits of participating in an adaptive recreation <strong>program</strong>.<br />

IC 18 - THE ADDITIONAL VALUE OF GAIT ANALYSIS IN THE IDENTIFICATION OF SPECIFIC PHYSICAL THERAPY TREATMENT<br />

GOALS FOR AMBULANT CHILDREN WITH CEREBRAL PALSY<br />

Authors: Inge Franki, PT; Jos De Cat, PT; Guy Molenaers, MD PhD; Christine Van den Broeck, PT PhD<br />

Level: Intermediate<br />

Purpose: 1.To demonstrate how a clinical decision process based on the ICF <strong>and</strong> the HOAC-II can contribute to a reliable identification<br />

of target problems in PT of children with CP 2. To demonstrate how the additional in<strong>for</strong>mation of gait analysis (3DGA) can support the<br />

identification of target problems in ambulant children with CP. 3. To provide a structural basis <strong>for</strong> the definition of specific PT goals in<br />

children with CP<br />

Target Audience: Occupational <strong>and</strong> physical therapists (basic knowledge of 3DGA is required)<br />

Course Summary: 1. Theoretical background A structured clinical decision approach based on the ICF <strong>and</strong> the HOAC-II to identify target<br />

problems in gross motor function of children with CP will be introduced. It will demonstrate how the results of instrumented 3DGA fit<br />

within this context <strong>and</strong> can provide more insight in the specific, underlying motor problem <strong>and</strong> the definition of specific PT goals. 2. Clinical<br />

example An example of a clinical case study will be provided. The results of the clinical examination, gross motor function examination <strong>and</strong><br />

3DGAwill be overviewed. The speakers will demonstrate how the structure of the ICF provided a comprehensive summary of the results. The<br />

HOAC-II contributed to explore the interlinkage between the different levels <strong>and</strong> the definition of underlying target problems. The additional<br />

value of the results of the 3DGA will be underlined <strong>and</strong> specific PT goals will be defined. 3. Group work 3.1 The results of another clinical<br />

example will be presented 3.2 In smaller groups, the target problems <strong>and</strong> specific PT goals <strong>for</strong> this child will be discussed 3.3 A final group<br />

discussion will compare the ideas of the different groups<br />

Learning Objectives:<br />

1) To provide insight in how the ICF can be used <strong>for</strong> a comprehensive overview of the examination results of a child with CP.<br />

2) To provide insight in how the HOAC-II can support the identification of an underlying target problem.<br />

3) To demonstrate how the ICF <strong>and</strong> the HOAC-II can be used in the definition of specific PT goals.<br />

4) To demonstrate the additional value of the results of 3DGA in the definition of specific PT goals.<br />

AACPDM 67 th Annual Meeting • Research & Practice 33


Friday, October 18, 2013<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 19 - THE KNEE IS THE KEY IN SPASTIC DIPLEGIA<br />

Authors: Jillian M. Rodda, PhD; Paulo Selber, MD; Jeffrey Young, MD<br />

Level: Intermediate<br />

Purpose: Examine knee management in spastic diplegia(SD) using evidence based guidelines <strong>and</strong> clinical evaluation pre/post single event<br />

multilevel surgery.<br />

Target Audience: Orthopedic surgeons, PMR, physical therapists<br />

Course Summary: Knee extension in SD is critical to ambulation if it is to be sustained in the long term. Incomplete knee extension,<br />

recurrent flexion de<strong>for</strong>mities <strong>and</strong> associated de<strong>for</strong>mities at other joints post surgery are major issues. Interventions will be discussed with<br />

respect to timing according to GMFCS level, age, severity, <strong>and</strong> pathomechanics1,2,3. Non surgical <strong>and</strong> surgical techniques described include:<br />

PRST, neurolytic blocks, hamstring lengthening <strong>and</strong> transfer, distal femoral extension osteotomy, patellar tendon shortening <strong>and</strong> distal<br />

femoral growth plate surgery. Cases studies with long term follow-up will be presented.<br />

Learning Objectives:<br />

1) Underst<strong>and</strong> biomechanics of the knee <strong>and</strong> sagittal gait patterns in SD.<br />

2) Use of Diagnostic Matrix (integrating physical exam, gait data, radiology, mobility scales) to provide basis <strong>for</strong> development of<br />

management strategies.<br />

3) Distinguish between surgical techniques targeting restoration of knee extension.<br />

4) Appropriate application of surgical techniques to different patients, considering risks/benefits of techniques.<br />

IC 20 - ORTHOPAEDIC TREATMENT OF PATIENTS WITH MYELOMENINGOCELE AND THE ROLE OF EARLY ADAPTIVE<br />

MOBILITY<br />

Authors: Vineeta T. Swaroop, MD; Lauren Rosen, PT MPT MSMS, ATP/SMS; Luciano Dias, MD; Lauro Machado Neto, MD<br />

Level: Intermediate<br />

Purpose: To review the overall orthopaedic care of patients with myelomeningocele including pathology of the hip, knee, ankle/foot, <strong>and</strong><br />

rotational de<strong>for</strong>mities. Course will center around new advances in treatment <strong>and</strong> current evidence-based treatment recommendations, with<br />

a focus on the importance of early adaptive mobility.<br />

Target Audience: This course is relevant to all clinicians caring <strong>for</strong> patients with myelomeningocele including orthopaedic surgeons,<br />

physiatrists, physical <strong>and</strong> occupational therapists, orthotists, <strong>and</strong> pediatricians.<br />

Course Summary: The orthopaedic treatment of patients with myelomeningocele will be covered, focusing specifically on recent advances<br />

in treatment <strong>and</strong> evidence-based care. Whenever possible, case-based discussion will be utilized. Topics addressed will include use of the<br />

Functional Mobility Scale <strong>for</strong> classification; the role of motion analysis in treatment; the case <strong>for</strong> early adaptive mobility; relationship between<br />

crutch- walking, trunk movement, <strong>and</strong> valgus stress at the knee joint; current treatment recommendations <strong>for</strong> hip dislocation; update on the<br />

treatment of clubfoot <strong>and</strong> vertical talus; use of a custom-molded total body splint as an alternative to spica casting.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> the importance of early adaptive mobility <strong>and</strong> review the supporting research.<br />

2) To gain knowledge of how to utilize the Functional Mobility Scale to classify patients <strong>for</strong> clinical, research, <strong>and</strong> outcomes uses.<br />

3) To underst<strong>and</strong> the role computerized gait analysis plays in the assessment <strong>and</strong> treatment of patients with myelomeningocele.<br />

4) To underst<strong>and</strong> the current treatment recommendations <strong>for</strong> hip dislocation/ subluxation, valgus stress at the knee joint, clubfoot/vertical<br />

talus <strong>and</strong> other orthopaedic problems.<br />

34<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Friday, October 18, 2013<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 21 - DOES TRACHEOSTOMY IMPROVE QUALITY OF LIFE FOR CHILDREN WITH UPPER MOTOR NEURON DISEASE AND<br />

FOR THEIR FAMILIES? A DEBATE<br />

Authors: Alex<strong>and</strong>er L. Okun, MD; Garey Noritz, MD; Janine Winters, MD<br />

Level: Advanced<br />

Purpose: 1.To examine whether the benefits of tracheostomy outweigh the risks <strong>and</strong> burdens <strong>for</strong> individuals with compromised upper <strong>and</strong><br />

lower airway function due to severe cerebral palsy or other childhood onset central nervous system disabilities 2. To explore the experience<br />

of families <strong>and</strong> loved ones involved in their care.<br />

Target Audience: Physicians, nurses, occupational, physical, respiratory <strong>and</strong> speech <strong>and</strong> language therapists, home care professionals,<br />

mental health professionals, family caregivers<br />

Course Summary: An in-depth, critical review of medical <strong>and</strong> psychosocial factors pertinent to collaborative decision-making about<br />

tracheostomy in this group.<br />

Learning Objectives:<br />

1) Underst<strong>and</strong> the association of upper motor neuron dysfunction with the risk of significant upper <strong>and</strong> lower airways compromise due to<br />

disturbances of pharyngeal tone, swallowing, h<strong>and</strong>ling of secretions <strong>and</strong> airway protective reflexes.<br />

2) Review current, evidence based, practical <strong>and</strong> balanced recommendations regarding medical <strong>and</strong> surgical treatments, including<br />

tracheostomy, <strong>for</strong> individuals in this group.<br />

3) Integrate research findings on health status, hospitalizations, survival <strong>and</strong> quality of life <strong>for</strong> individuals in this group, <strong>and</strong> the experiences<br />

of family caregivers, into ethically sound decision-making practices to improve their well being.<br />

4) Foster interdisciplinary communication <strong>and</strong> interchange among all allied health care professionals around this topic, anticipating a<br />

diversity of views <strong>and</strong> in<strong>for</strong>ming experiences.<br />

IC 22 - FETAL ALCOHOL SYNDROME<br />

Authors: Peter A. Blasco, MD; Melissa Svoboda, MD<br />

Level: Intermediate<br />

Purpose: To present the evolution of the recognition of the Fetal Alcohol Syndrome as an entity <strong>and</strong> to delineate the clinical diagnostic<br />

features of FAS.<br />

Target Audience: All clinicians involved in the evaluation <strong>and</strong>/or care of children with neurodevelopmental disabilities.<br />

Course Summary: Alcohol is ubiquitous, <strong>and</strong> 15% of women of child-bearing age consume alcohol regularly to a moderate or heavy<br />

degree. In child development clinics the presumed diagnosis of or question of FAS frequently comes up. Less than half of the referred<br />

children will actually have FAS. The diagnostic criteria that have evolved <strong>for</strong> FAS will be discussed, <strong>and</strong> FAS epidemiology will be reviewed.<br />

The pathology <strong>and</strong> physiology of alcohol as a teratogen will be described. Long-term neurodevelopmental problems <strong>and</strong> functional<br />

outcomes will be reviewed. Recommendations <strong>for</strong> alcohol intake during pregnancy, <strong>and</strong> resources available <strong>for</strong> children, families, <strong>and</strong><br />

pregnant women will be covered.<br />

Learning Objectives:<br />

1) To describe the precise criteria <strong>for</strong> making the diagnosis of fetal alcohol syndrome.<br />

2) To provide the tools <strong>for</strong> objectively identifying the physical features of FAS.<br />

3) To underst<strong>and</strong> the pathophysiologic mechanisms by which alcohol acts as a teratogen.<br />

4) To underst<strong>and</strong> the long-term neurodevelopmental problems that children with FAS encounter.<br />

AACPDM 67 th Annual Meeting • Research & Practice 35


Friday, October 18, 2013<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 23 - WHOSE LIFE IS IT ANYWAY? MEASURING MEANINGFUL OUTCOMES FOR CHILDREN WITH SEVERE DISABILITIES<br />

Authors: Unni G. Narayanan, MBBS MSc FRCSC; Shannon Weir, BSc MSc<br />

Level: Intermediate<br />

Purpose: Explore the concepts of QOL/HRQL in children with severe chronic disabilities, using the Caregiver Priorities <strong>and</strong> Child Health<br />

Index of Life with Disabilities (CPCHILD©) Questionnaire as a working example.<br />

Target Audience: Health care professionals involved in the care of, or clinical research with, children with chronic disabilities.<br />

Course Summary: The impact of health care interventions is more meaningfully assessed using patient based outcome measures such as<br />

quality of life. This course will explore the concepts of patient priorities, quality of life (QOL) <strong>and</strong> health related quality of life (HRQL), <strong>and</strong> the<br />

imperative <strong>for</strong>, <strong>and</strong> the challenges involved in, conceptualizing these constructs <strong>for</strong> children with severe disabilities, using the example of the<br />

CPCHILD Questionnaire. The development of the CPCHILD will be used as an example to illustrate the science behind the measurement of<br />

outcomes. Participants will become familiar with the conceptual underpinnings <strong>and</strong> the validation of this instrument as well as the potential<br />

applications of the questionnaire in the evaluation of the effectiveness of the different interventions used to treat children with severe<br />

disabilities.<br />

Learning Objectives:<br />

1) Define the concepts of quality of life (QOL) <strong>and</strong> health related quality of life (HRQL).<br />

2) Discuss the challenges inherent to the measurement of children’s QOL/HRQL <strong>and</strong> the major domains to select <strong>and</strong> evaluate QOL<br />

instruments <strong>for</strong> children. Introduce the framework of patient priorities.<br />

3) Demonstrate how QOL/HRQL instruments are constructed, using the development of the CPCHILD <strong>and</strong> other examples to underst<strong>and</strong><br />

the properties of reliability, validity <strong>and</strong> responsiveness.<br />

4) Discuss the application, scoring <strong>and</strong> interpretation of the CPCHILD Questionnaire.<br />

IC 24 - INNOVATIVE HIGH-VALUE HEALTHCARE DELIVERY MODELS FOR CHILDREN WITH COMPLEX CHRONIC MEDICAL<br />

CONDITIONS<br />

Authors: Irene C. Dietz, MD; Nancy Murphy, MD; Jim Ogan, MD<br />

Level: Intermediate<br />

Purpose: Discuss novel approaches to the care of children with complex chronic conditions<br />

Target Audience: All healthcare providers <strong>for</strong> children with complex chronic conditions <strong>and</strong> disabilities.<br />

Course Summary: Based on the current literature, define <strong>and</strong> discuss children with CMCs associated medical, developmental, functional<br />

<strong>and</strong> psychosocial needs. Panelists will present three unique <strong>program</strong>s contrasting primary care, consultative <strong>and</strong> home-based delivery<br />

models. We will explore the pros <strong>and</strong> cons of these different care models.<br />

Learning Objectives:<br />

1) Define <strong>and</strong> describe children with CMCs <strong>and</strong> disabilities <strong>and</strong> technology dependencies.<br />

2) Discuss healthcare value of three models of healthcare delivery <strong>for</strong> children with complex chronic conditions.<br />

3) Identify the pros <strong>and</strong> cons of healthcare delivery models <strong>for</strong> children with CMCs.<br />

36<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Friday, October 18, 2013<br />

4:00 pm – 6:00 pm Instructional Courses 14-25<br />

IC 25 - ALBERTA INFANT MOTOR SCALE (AIMS): A CLINICAL REFRESHER AND UPDATE ON EVALUATION OF AIMS<br />

NORMATIVE DATA<br />

Authors: Johanna Darrah, PhD PT; Doreen Bartlett, PhD<br />

Level: Intermediate<br />

Purpose: This course will present updated in<strong>for</strong>mation pertaining to the administration of the AIMS, interpretation of scores, <strong>and</strong> the validity<br />

of the normative data.<br />

Target Audience: Physicians, occupational therapists, physical therapists, <strong>and</strong> nurses, preferably with previous experience using the AIMS.<br />

Course Summary: Common scoring issues will be identified <strong>and</strong> discussed. The interpretation of percentile rank scores will be reviewed<br />

incorporating the results of a longitudinal study evaluating the stability of AIMS scores over time. The results of a recent study that reevaluated<br />

the validity of the present normative data will be shared <strong>and</strong> the implications discussed. This study is based on data from the<br />

recent assessments of 650 Canadian infants. Course participants will have an opportunity to view videos <strong>and</strong> discuss their scores together.<br />

In addition, participants will score one AIMS assessment video independently <strong>and</strong> the presenters will provide them with e-mail feedback<br />

regarding their item-by-item agreement with the gold st<strong>and</strong>ard scoring. Previous experience with the AIMS is beneficial as this instructional<br />

course is not an AIMS training course but rather an opportunity to share experiences using the AIMS <strong>and</strong> to ask questions about clinical <strong>and</strong><br />

research uses of the AIMS. Participant discussion will be encouraged.<br />

Learning Objectives:<br />

1) To discuss common administration <strong>and</strong> scoring issues using the AIMS.<br />

2) To underst<strong>and</strong> the interpretation of an AIMS percentile score <strong>and</strong> how to present it to families <strong>and</strong> caregivers.<br />

3) To discuss the results of a recent study re-evaluating the normative data.<br />

4) To receive personal feedback on scoring of an AIMS assessment.<br />

6:30 pm – midnight Evening Celebration<br />

Celebrate Friday Night at the Harley-Davidson Museum ® !<br />

Join your old friends <strong>and</strong> new colleagues at an Annual Meeting favorite event. There will<br />

be opportunities to tour the Harley-Davidson Museum ® <strong>and</strong> take a stationary ride on a<br />

Harley-Davidson ® motorcycle. As is also our tradition, there will be music <strong>and</strong> dancing later<br />

in the evening. As the evening winds down, we know many of you will choose to walk back<br />

to the hotel or choose to go out to the nearby entertainment district to continue your own<br />

party. Buses will be available throughout the evening <strong>for</strong> those who would like to a lift back<br />

to the hotel.<br />

Harley-Davidson ® motorcycles bring heart-thumping adventure, life-changing freedom<br />

<strong>and</strong> a bit of rebellion into the lives of people around the world. But whether you were born<br />

to be wild - or mild - makes no difference at the Harley-Davidson Museum ® . Much more than a nostalgia trip <strong>for</strong> motorcycle enthusiasts,<br />

the Museum offers a glimpse of <strong>American</strong> history <strong>and</strong> culture like you’ve never seen it be<strong>for</strong>e - through the successes <strong>and</strong> trials of an iconic<br />

<strong>American</strong> company. Interactive, eye-catching exhibits present an unparalleled collection of legendary stories of our nation’s last century.<br />

Located on 20 acres in downtown Milwaukee, the Museum offers a restaurant, cafe, retail store <strong>and</strong> park-like outdoor spaces.<br />

Harley-Davidson ® Motor Company was founded in Milwaukee, Wisconsin <strong>and</strong> just celebrated its 110th Anniversary this year. Since its<br />

inception, Harley-Davidson ® has produced the most enduring <strong>and</strong> recognizable motorcycles in the world. No other motorcycle has the look,<br />

the sound <strong>and</strong> the feel of these two-wheeled pieces of art. The motorcycle defines Harley-Davidson ® , but a wide range of other products<br />

<strong>and</strong> services is available to increase the enjoyment of the experience or give newcomers a taste. Click here <strong>for</strong> additional in<strong>for</strong>mation.<br />

Please join us <strong>for</strong> the fun. Tickets are $50.00 each <strong>and</strong> should be purchased at the time of registration. A limited number of tickets may be<br />

available on site. Dress <strong>for</strong> this event is casual (no shorts please).<br />

AACPDM 67 th Annual Meeting • Research & Practice 37


Saturday, October 19, 2013<br />

6:00 am–6:50 am Get Fit!<br />

Start your day off in an active way! - Activity TBD!<br />

7:00 am–7:50 am Continental Breakfast<br />

7:00 am–7:50 am Breakfast Seminars 13-18<br />

BRK 13 - SPEECH AND LANGUAGE DEVELOPMENT IN YOUNG CHILDREN WITH CEREBRAL PALSY<br />

Authors: Emily McFadd, MS; Kristen Allison, MA; Ashlyn Smith, PhD; Katherine C. Hustad, PhD<br />

Level: Basic<br />

Purpose: To describe findings from recent research characterizing speech <strong>and</strong> language profiles in young children with cerebral palsy <strong>and</strong><br />

its clinical significance, highlighting the need <strong>for</strong> early intervention.<br />

Target Audience: Physicians, therapists, educators, nurses<br />

Course Summary: Our research <strong>program</strong> focuses on identifying <strong>and</strong> describing impairment-based speech <strong>and</strong> language profiles <strong>and</strong><br />

tracking communication development in a longitudinal sample of over 100 children with CP. Speech <strong>and</strong> language impairments are<br />

common in children with CP, but can often be difficult to assess <strong>and</strong> identify at young ages due to wide variability in communication skills<br />

<strong>and</strong> the influence of motor impairment in this population. Underst<strong>and</strong>ing early predictors of later communication outcomes is important to<br />

help identify children who need therapy earlier <strong>and</strong> to tailor intervention to maximize functional outcomes. Presenters will show longitudinal<br />

data <strong>and</strong> discuss the emergence of communication profiles of children with CP during early childhood. Video examples of children with a<br />

range of speech <strong>and</strong> language impairments will be shown, <strong>and</strong> the role of early speech <strong>and</strong> language intervention will be discussed.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> current research evidence on trajectories of speech <strong>and</strong> language development <strong>and</strong> communication profiles in young<br />

children with CP.<br />

2) To recognize challenges involved in identifying speech <strong>and</strong> language impairments in young children with CP.<br />

3) To underst<strong>and</strong> the range of communication challenges observed in this population, <strong>and</strong> describe the impact of both speech<br />

impairment <strong>and</strong> language impairment on communication function.<br />

4) To underst<strong>and</strong> the importance of referring young children with CP <strong>for</strong> speech <strong>and</strong> language evaluations.<br />

BRK 14 - REHABILITATION PROTOCOLS AFTER SINGLE-EVENT MULTILEVEL SURGERY<br />

Authors: Katie Walt, DPT ; Jean L. Stout, PT MS<br />

Level: Intermediate<br />

Purpose: To discuss treatment protocols <strong>for</strong> rehabilitation after single-event multilevel surgery (SEMLS) <strong>for</strong> children <strong>and</strong> adolescents with<br />

cerebral palsy.<br />

Target Audience: Pediatric orthopaedists, physiatrists <strong>and</strong> physical therapists who encounter <strong>and</strong> care <strong>for</strong> children with cerebral palsy after<br />

orthopaedic surgery.<br />

Course Summary: This course will summarize the role of physical therapy post-SEMLS <strong>and</strong> our rehabilitation experience <strong>for</strong> children with<br />

cerebral palsy. Aspects from initial gait analysis <strong>and</strong> pre-operative teaching to specific post-operative protocols will be described. The role of<br />

an inpatient rehabilitation episode of care <strong>and</strong> the patient selection process will be discussed. A brief description of lever-arm dysfunction<br />

<strong>and</strong> its influence on muscle function, strength, <strong>and</strong> the impact on rehabilitation will be included. The course will illustrate <strong>and</strong> emphasize<br />

treatment with appropriate case examples.<br />

Learning Objectives:<br />

1) Describe how lever-arm dysfunction impacts muscle function <strong>and</strong> ability to strengthen be<strong>for</strong>e surgery.<br />

2) Discuss specific post-operative treatment protocols <strong>for</strong> bony <strong>and</strong>/or soft tissue procedures after SEMLS.<br />

3) Identify patients who may benefit from an inpatient rehabilitation episode of care <strong>and</strong> describe components of the <strong>program</strong> structure.<br />

4) Discuss goal setting <strong>and</strong> patient/family expectations.<br />

38<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Saturday, October 19, 2013<br />

7:00 am–7:50 am Breakfast Seminars 13-18<br />

BRK 15 - EVIDENCE-BASED CALCULATIONS OF LIFE EXPECTANCY OF CHILDREN AND ADULTS WITH CEREBRAL PALSY<br />

AND OTHER DEVELOPMENTAL DISABILITIES<br />

Authors: Scott J. Kush, MD JD MPH; Steven M. Day, PhD; Robert J. Reynolds, MPH<br />

Level: Intermediate<br />

Purpose: To describe <strong>and</strong> demonstrate the process of calculating life expectancy based on published medical evidence regarding survival<br />

probabilities <strong>and</strong> mortality rates <strong>for</strong> children with cerebral palsy <strong>and</strong> other developmental disabilities.<br />

Target Audience: Physicians, nurses, therapists, <strong>and</strong> educators<br />

Course Summary: There are great advantages to having an underst<strong>and</strong>ing of longevity expectations in the developmentally disabled.<br />

There is a scientific process <strong>for</strong> calculating life expectancy <strong>for</strong> those affected by cerebral palsy <strong>and</strong> other developmental disabilities. This<br />

process involves knowing the individual’s disability <strong>and</strong> functional abilities, examining the available literature on the condition, using a life<br />

table, <strong>and</strong> per<strong>for</strong>ming a series of calculations. Drs. Kush <strong>and</strong> Day will discuss with participants how to use the life table, locate <strong>and</strong> analyze<br />

the medical evidence, <strong>and</strong> calculate life expectancy <strong>for</strong> children <strong>and</strong> adults with cerebral palsy <strong>and</strong> other developmental disabilities.<br />

Participants will be provided with a basic life table spreadsheet, mortality rates derived from various studies, <strong>and</strong> links to pertinent articles.<br />

They will leave the session with a basic underst<strong>and</strong>ing of the st<strong>and</strong>ard methodology <strong>for</strong> calculating life expectancy <strong>for</strong> persons with<br />

particular medical conditions that affect mortality risk.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> the life table, its history, <strong>and</strong> its use in determining life expectancy.<br />

2) To underst<strong>and</strong> how life expectancy may be affected by cerebral palsy <strong>and</strong> other developmental disabilities.<br />

3) To underst<strong>and</strong> the relationship between peer-reviewed published evidence regarding survival <strong>and</strong> the life table <strong>and</strong> life expectancy.<br />

4) To underst<strong>and</strong> how to calculate life expectancy <strong>for</strong> an individual with cerebral palsy or other developmental disability using evidence<br />

found in published studies.<br />

BRK 16 - PRINCIPLES OF RESPIRATORY MANAGEMENT IN PATIENTS WITH NEURODISABILITY WHO HAVE SECONDARY<br />

PULMONARY COMPLICATIONS<br />

Authors: Robert H. Warren, MD; Denise Willis, BS RRT-NPS<br />

Level: Intermediate<br />

Purpose: To review the basic principles of respiratory care management including aerosol medications, respiratory therapy equipment used<br />

<strong>for</strong> airway clearance, <strong>and</strong> devices <strong>for</strong> stabilization of pulmonary insufficiency.<br />

Target Audience: Physicians, nurses, respiratory therapists, educators<br />

Course Summary: The discussion will demonstrate how individual respiratory care plans using medication <strong>and</strong> equipment are developed<br />

based on the primary neurodisability, the extent to which that disability affects respiratory function, <strong>and</strong> the specific clinical picture of<br />

respiratory symptoms. The concept of a Pulmonary Composite of characteristics present in all patients can be used <strong>for</strong> clinical determination<br />

of the respiratory care plan regardless of the specific diagnosis of either acquired or congenital neurodisability.<br />

Learning Objectives:<br />

1) Identify specific aerosol <strong>and</strong> oral or enterally provided medications used to reduce airway secretions, decrease airway inflammation, <strong>and</strong><br />

create mobilization <strong>and</strong> thinning of secretions to promote airway clearance.<br />

2) Discuss respiratory therapy equipment used in conjunction with medication to provide airway stability <strong>and</strong> prevent <strong>and</strong> reduce severity<br />

of acute respiratory events.<br />

3) Discuss the clinical assessment of respiratory function with emphasis on charting the course of progressive pulmonary insufficiency<br />

over time to include decision making regarding use of mechanical ventilator devices <strong>for</strong> intermittent or continuous support.<br />

4) Discuss the critical role of caregiver underst<strong>and</strong>ing of respiratory symptomatology <strong>and</strong> the tools used to provide that education<br />

to caregivers. Develop the individualized respiratory care plans utilizing a foundation of a knowledge base <strong>and</strong> mastery of clinical<br />

assessment of the patient.<br />

AACPDM 67 th Annual Meeting • Research & Practice 39


Saturday, October 19, 2013<br />

7:00 am–7:50 am Breakfast Seminars 13-18<br />

BRK 17 - Tweet This! Social Media <strong>for</strong> the Medical Professional<br />

Author: Jilda Vargus, MD; Lisa Thornton, MD; Cynthia Frisina<br />

Level: Beginner<br />

Purpose: Introduce participants to major <strong>for</strong>ms of social media utilized in medical practice.<br />

Target Audience: All those curious about social media<br />

Course Summary: Presenters will review social media including Facebook, Twitter, LinkedIn, GooglePlus, blogs, <strong>and</strong> interactive online<br />

plat<strong>for</strong>ms <strong>and</strong> discuss roles <strong>for</strong> enhancing professional medical practices. Participants will gain practical experience utilizing social media, see<br />

meaningful examples of effective social media in medical practice, <strong>and</strong> learn about potential pitfalls <strong>for</strong> medical professionals in the realms<br />

of social media.<br />

Learning Objectives:<br />

1) Describe Twitter, Facebook <strong>and</strong> other social media in common usage.<br />

2) Explain why a medical professional would utilize social media.<br />

3) Create an effective online presence.<br />

4) Have fun.<br />

BRK 18 - THE ART OF MENTORING<br />

Authors: Peter A. Blasco, MD; Peter Rosenbaum, MD; Barry S. Russman, MD<br />

Level: Advanced<br />

Purpose: To discuss/debate the attributes that characterize the good mentor <strong>and</strong> to explore the features essential to establishing a good<br />

mentor - mentee relationship<br />

Target Audience: Individuals striving to make teaching/training a substantial element of their career; individuals in training seeking a<br />

relationship with a good mentor.<br />

Course Summary: Teaching requires a sound grasp of factual in<strong>for</strong>mation but is as much art as it is science. It is an acquired skill <strong>and</strong> is<br />

not easy to do well. The mentor - mentee relationship is a very special one <strong>and</strong> involves many attributes beyond good teaching. Success in<br />

mentoring - - guiding a young or at least relatively naïve learner - - is dependent upon mastery of the elements of teaching <strong>and</strong> conscious<br />

attention to the elements of personal interaction. The entire session will be conducted as a seminar discussion involving panel response<br />

to proposed attributes important <strong>for</strong> the mentor to nurture in him or herself <strong>and</strong> in crafting the relationship with a mentee, coupled with<br />

audience input on each element.<br />

Learning Objectives:<br />

1) To determine if there is or is not consensus on the characteristics of the good mentor.<br />

2) To explore elements of the mentor-mentee relationship.<br />

3) To touch on special considerations of the mentoring relationship; e.g., racial, ethnic, cultural differences; personal <strong>and</strong> personality<br />

interactions.<br />

4) To provide resources on teaching <strong>and</strong> mentoring strategies.<br />

8:00 am–10:15 am Complex Care SIG meeting<br />

A returning favorite - take note of where it is in the <strong>program</strong> in case you want to attend! The Complex Care Special Interest Group meets<br />

on Saturday morning <strong>and</strong> you are welcome to attend. This is a diverse group of health professionals dedicated to the care of children<br />

with medical complexity. They will discuss ongoing projects including development of an educational curriculum <strong>for</strong> complex care <strong>and</strong><br />

identification of priorities <strong>for</strong> clinical research.<br />

40<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Saturday, October 19, 2013<br />

8:00 am–10:00 am Free Paper Sessions G-I<br />

Free Paper Session G: Muscle/Botox/MRI/Brain<br />

G1 - REDUCED SATELLITE CELL NUMBER IN SITU IN CONTRACTURES FROM CHILDREN WITH CEREBRAL PALSY<br />

Sudarshan Dayanidhi, PT PhD; Peter Dykstra, GED; Vera Lyubasyuk, BS; Bryon R. McKay, PhD; Henry Chambers, MD; Richard Lieber, PhD<br />

G2 - REORGANIZATION OF THALAMOCORTICAL PROJECTIONS IS ASSOCIATED WITH DEFICITS IN SENSORIMOTOR<br />

FUNCTION IN CHILDREN WITH CONGENITAL HEMIPLEGIA<br />

Roslyn N. Boyd, PhD, PT; Henry Tsao, PhD PT, MBBS scholar; Kerstin Panneck, BSc; Stephen Rose, PhD Physics<br />

G3 - ASSESSMENT OF THE BRAIN MRI STRUCTURAL CONNECTOME REVEALS ALTERED CONNECTIVITY IN CHILDREN WITH<br />

UNILATERAL CP<br />

Roslyn N. Boyd, PhD PT; Kerstin Panneck, BSc; Stephen Rose, PhD Physics<br />

G4 - SYSTEMATIC REVIEW OF POPULATION-BASED STUDIES OF BRAIN IMAGING PATTERNS IN CEREBRAL PALSY<br />

Susan M. Reid, BApSc MClinEpi PhD; Charuta Dagia, MBBS MD FRCR FRANZCR; Michael R. Ditchfield, MBBS MD FRANZCR; John B. Carlin, BSc(Hons)<br />

PhD; Dinah Reddihough, MD BSc FRACP FAFRM<br />

G5 - TENDON STRUCTURE AND EXTRACELLULAR MATRIX COMPONENTS ARE AFFECTED BY SPASTICITY IN CEREBRAL<br />

PALSY PATIENTS<br />

Nicola M. Portinaro, PhD; Artemisia Panou, PhD; Nicoletta Gagliano, PhD; Isabella Dalle-Donne, PhD; Carla Martinelli, PhD; Aldo Milzani, PhD;<br />

Aless<strong>and</strong>ra Menon, PhD; Graziano Colombo, PhD<br />

G6 - THE EFFECT OF BOTULINUM TOXIN ON MUSCLE VOLUME IN CHILDREN WITH CEREBRAL PALSY<br />

Adam Shortl<strong>and</strong>, PhD; Charlie F. Fairhurst, MCh; Martin Gough, FRCSI; Tanya Forster, MSc<br />

G7 - MUSCLE HISTOPATHOLOGY IN CHILDREN WITH SPASTIC CEREBRAL PALSY RECEIVING BOTULINUM TOXIN TYPE-A<br />

Catherine M. Elliott, PhD; Jane Valentine, FRACP; Vicki Fabian, MBBCh, DTM&H, FFPath, FRCPA; Siobhan Reid, PhD; Katherine Stannage, FRACP;<br />

Christian A. Pitcher, BS; Kevin Ellies, BS;<br />

G8 - BOTULINUM NEUROTOXIN TYPE-A IN SPASTIC CEREBRAL PALSY: A COMPARISON OF MUSCLE SIZE AND STRENGTH<br />

IN TREATED AND UNTREATED CHILDREN<br />

Christian A. Pitcher, BSc(Hons); Caroline Davis, BSc(Hons); Catherine M. Elliott, PhD; Katherine Langdon, FRACP FAFRM; Jane Valentine, FRACP FAFRM;<br />

Siobhan Reid, PhD<br />

G9 - CONFLICT OF INTEREST IN THE ASSESSMENT OF BOTULINUM TOXIN A INJECTIONS IN PATIENTS WITH CEREBRAL<br />

PALSY: A SYSTEMATIC REVIEW<br />

Tae Gyun Kim, MD; Chin Youb Chung, MD; Kyoung Min Lee, MD; Seung Yeol Lee, MD; Young Choi, MD; Soon-Sun Kwon, PhD; Sang Hyeong Lee, MD;<br />

Dae Gyu Kwon, MD; Ki Hyuk Sung, MD; Moon Seok Park, MD<br />

G10 - DETERMINING THE OPTIMUM FREQUENCY OF BOTULINUM TOXIN INJECTIONS TO THE GASTROCSOLEUS IN<br />

CHILDREN WITH CEREBRAL PALSY - A RCT<br />

T<strong>and</strong>y Hastings-Ison, BAppSci PT; Barry Rawicki, MB BS FRACP; Richard Baker, PhD CEng; Christine Blackburn, DipPT(Lon); Michael Fahey, MB BS PhD<br />

FRACP; Pam Simpson, BSc(Hons); H Kerr Graham, MD FRCS(Ed), FRACS<br />

Free Paper Session H: Measures Comorbidity<br />

H1 - CHARACTERISTICS OF PAIN IN CHILDREN AND YOUTH WITH CEREBRAL PALSY<br />

Lauren Switzer, MSc; Melanie Penner, MD; Wen Yan Xie, BMSc; Darcy Fehlings, MD MSc<br />

H2 - DEVELOPING A CEREBRAL PALSY CHRONIC PAIN ASSESSMENT TOOLKIT: A SYSTEMATIC REVIEW OF THE EVIDENCE<br />

Shauna Kingsnorth, PhD; Ellie Adler, MA; Noam Ami, MSc; Tessa Gresley-Jones, NP; Deepali Mankad, MD; Nick Joachimides, RN CRN(cIIWCC MClSc;<br />

Linda Fay, OTREg(Ont); Naomi Slonim, PhD CPsych; Darcy Fehlings, MD MSc<br />

H3 - RASCH ANALYSIS OF THE PEDIATRIC OUTCOMES DATA COLLECTION INSTRUMENT (PODCI) IN 720 PATIENTS WITH<br />

CEREBRAL PALSY<br />

Young Choi, MD; Chin Youb Chung, MD; Kyoung Min Lee, MD; Seung Yeol Lee, MD; Tae Gyun Kim, MD; Soon-Sun Kwon, PhD; Sang Hyeong Lee, MD;<br />

Dae Gyu Kwon, MD; Ki Hyuk Sung, MD; Moon Seok Park, MD<br />

H4 - VALIDATION OF PROMIS IN CHILDHOOD CEREBRAL PALSY<br />

Jilda N. Vargus-Adams, MD MSc; C. Jeffrey Jacobson, PhD; Adam C. Carle, PhD; Jennifer Farrell, MA; Esi Morgan-DeWitt, MD MSCE<br />

H5 - MEASURING PHYSICAL ACTIVITY IN YOUTH WITH CEREBRAL PALSY WHO ARE AMBULATORY<br />

Margaret E. O’Neil, PhD PT MPH; Maria Fragala-Pinkham, DPT, MS; Jeffrey Forman, MD; Nancy Lennon, MS PT; Ameeka George, BS; Stewart Trost, PhD<br />

H6 - SELF-REPORTED QUALITY OF LIFE OF 13-17-YEAR-OLD ADOLESCENTS WITH CEREBRAL PALSY: SPARCLE, A CROSS-<br />

SECTIONAL EUROPEAN STUDY<br />

Heather O. Dickinson, BSc PhD; Allan Colver, MD FRCPCH<br />

AACPDM 67 th Annual Meeting • Research & Practice 41


Saturday, October 19, 2013<br />

8:00 am–10:00 am Free Paper Sessions G-I<br />

Free Paper Session H: Measures Comorbidity<br />

H7 - SPATIAL COGNITION IN INFANTS WITH MYELOMENINGOCELE: TRANSITION FROM IMMOBILITY TO MOBILITY<br />

Monica Rivera, PT MS DPTSc; David Anderson, PhD; S<strong>and</strong>ra Radtka, PT PhD; Campos Joseph, PhD<br />

H8 - WHAT DO ‘SOCIAL COMMUNICATION’ ABILITIES OF PRESCHOOL CHILDREN WITH ASD LOOK LIKE? A QUALITATIVE<br />

CASE STUDY<br />

Briano Di Rezze, PhD; Martha Cousins, MSc; Peter Rosenbaum, MD; Lonnie Zwaigenbaum, MD; Mary Jo C. Hidecker, PhD; Mary Law, PhD; Peter<br />

Szatmari, MD<br />

H9 - THE ACCOMMODATIVE PROCESS IN CHILDREN AND ADOLESCENTS WITH AND WITHOUT CEREBRAL PALSY<br />

Kristina Tedroff, MD PhD; Kerstin Hellgren, MD PhD; Lena Jacobson, MD PhD; Rune Brautaset, PhD; Tony Pansell, PhD<br />

H10 - COGNITIVE PROFILE IN ADULTS WITH CEREBRAL PALSY ACCORDING TO EMPLOYMENT STATUS<br />

Helene Hoye, MS; Grethe Manum, MD PhD; Solrun Sigurdardottir, PhD<br />

Free Paper Session I: Epidemiology Diagnosis<br />

I1 - INFANTS WITH CONGENITAL HEART DISEASE ARE AT RISK FOR ABNORMAL GENERAL MOVEMENTS<br />

Lynn Boswell, PT MS; Lars Adde, PT PHD; Nguyenvu Nguyen, MD; Ragnhild Stoen, MD; Toril Fjortoft, PT MSc; Mary Weck, PT; Annamarie Hayner, M ed;<br />

Raye-Ann De Regnier, MD<br />

I2 - THE TRAJECTORY OF THE ASSOCIATION OF GENERAL MOVEMENTS ASSESSMENT WITH GROSS MOTOR OUTCOMES<br />

FOR CHILDREN BORN PRETERM AT TWELVE MONTHS, THREE YEARS AND SIX YEARS OF AGE<br />

Laurie Snider, OT PhD; Annette Majnemer, OT PhD; Barbara Mazer, PhD<br />

I3 - IS THE DIAGNOSIS OF CP AT AGE TWO STABLE OVER TIME? ASSESSMENT OF A LOW BIRTH WEIGHT COHORT AT AGES<br />

TWO, SIX AND NINE<br />

Steven J. Korzeniewski, PhD MS MA; Jennifer A. Pinto-Martin, PhD MPH; Agnes H. Whitaker, MD; Judith F. Feldman, PhD; John M. Lorenz, MD; Nigel<br />

Paneth, MD MPH<br />

I4 - MOVEMENT DISORDER AND GROSS MOTOR FUNCTION IN CHILDREN WITH CEREBRAL PALSY: CHANGES AT SKELETAL<br />

MATURITY IN A POPULATION BASED COHORT<br />

H Kerr Graham, MD FRCS (Ed) FRACS; Soon Ghee Ang, MB BS; Fiona Dobson, PhD; Pam Thomason, BPT, MPT; Pam Simpson, BSc; Dinah Reddihough,<br />

MD FRACP FAFRM<br />

I5 - CLINICAL PATTERNS OF CHILDHOOD DYSTONIA AND CHOREOATHETOSIS IN DYSKINETIC CP<br />

Elegast Monbaliu, MSc; Els Ortibus, MD PhD; Peter Prinzie, MSc PhD; Paul De Cock, MD PhD; Katrijn Klingels, MSc PhD; Lieve Heyrman, MSc; Hilde Feys,<br />

MSc PhD<br />

I6 - EVIDENCE OF SOCIOECONOMIC AND RACIAL/ETHNIC DISPARITIES IN THE PREVALENCE OF CEREBRAL PALSY AMONG<br />

8 YEAR-OLD CHILDREN IN THE U.S<br />

Maureen Durkin, PhD, DrPH; Matthew Maenner, PhD; Martha Wingate, DrPH; Russell Kirby, PhD; Ruth Benedict, OT DrPH; Deborah Christensen, PhD;<br />

Kim Van Naarden Braun, PhD; Marshalyn Yeargin-Allsopp, MD<br />

I7 - RECENT UPDATES FROM THE CALIFORNIA DATABASE<br />

Jordan Brooks, PhD MPH; David Strauss, PhD FASA; Robert Shavelle, PhD MBA; Linh Tran, MPH<br />

I8 - IS THE ASSOCIATION BETWEEN PRE-ECLAMPSIA AND CEREBRAL PALSY MEDIATED SOLELY THROUGH PRETERM<br />

BIRTH? A POPULATION BASED COHORT STUDY<br />

Kristin M. Str<strong>and</strong>, MS; Runa Heimstad, MD PhD; Ann-Charlotte Iversen, PhD; Rigmor Austgulen, MD PhD; Guro L. Andersen, MD PhD; Lorentz M. Irgens,<br />

MD PhD; Torstein Vik, MD PhD<br />

I9 - APOLIPOPROTEIN E REGULATOR GENES AND SEVERITY OF CEREBRAL PALSY<br />

Espen Lien, MD; Guro L. Andersen, MD PhD; Yongde Bao, PhD; Heather Gordish-Dressman, PhD; Jon S. Skranes, MD PhD; Torstein Vik, MD PhD; James<br />

A. Blackman, MD MPH<br />

I10 - SCOLIOSIS IN CEREBRAL PALSY: A POPULATION BASED STUDY<br />

H Kerr Graham, MD FRCS (Ed) FRACS; Soon Ghee Ang, MB BS; Michael Johnson, FRACS; Ian Torode, FRACS; Pam Simpson, BSc<br />

10:00 am–10:15 am Coffee Break - Posters <strong>and</strong> Exhibits<br />

42<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Saturday, October 19, 2013<br />

10:15 am–11:45 am General Session<br />

Gayle G. Arnold Lectureship<br />

Iona Novak, PhD <strong>and</strong> Diane Russell, PhD<br />

You really need a babel fish<br />

12:00 pm–1:30 pm Lunch on your own<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 26 - LINKING STRUCTURE AND FUNCTION: DOSING PARAMETERS AND PROTOCOLS FOR CURRENT AND NOVEL<br />

THERAPIES TO IMPROVE MUSCLE AND BONE OUTCOMES IN CEREBRAL PALSY<br />

Authors: Noelle G. Moreau, PT PhD; Robyn K. Fuchs, PhD; Mary E. Gannotti, PT PhD<br />

Level: Intermediate<br />

Purpose: To review the current state of the science <strong>for</strong> interventions that target muscle <strong>and</strong> bone <strong>for</strong> people with cerebral palsy (CP); <strong>and</strong> to<br />

identify effective dosing parameters <strong>for</strong> frequency, volume, duration, intensity, <strong>and</strong> movement speed.<br />

Target Audience: Pediatricians, physical <strong>and</strong> occupational therapists, orthopedic surgeons<br />

Course Summary: Rehabilitation strategies vary greatly due to vast differences in the dosing of interventions. This course will explore<br />

the state of the science in dosing as it relates to children with CP <strong>for</strong> the musculoskeletal system. The speakers will place an emphasis on<br />

treatment strategies with established criteria <strong>for</strong> dosing—including frequency, volume, duration, intensity, <strong>and</strong> movement speed —with a<br />

focus on structural <strong>and</strong> functional changes of muscle <strong>and</strong> bone. Plasticity <strong>and</strong> recovery outcomes will guide the clinical discussion on how<br />

to use targeted interventions by applying the best available evidence. Minimal <strong>and</strong> optimal dosing parameters will be discussed.<br />

Learning Objectives:<br />

1) Evaluate current interventions <strong>and</strong> their potential to influence structural changes in muscle <strong>and</strong> bone in children with CP.<br />

2) Differentiate between levels of evidence of effective interventions <strong>for</strong> muscle <strong>and</strong> bone adaptation.<br />

3) Analyze what we currently know regarding dosing parameters <strong>and</strong> protocols <strong>for</strong> improvements in muscle <strong>and</strong> bone structure <strong>and</strong> function.<br />

4) Integrate the knowledge of dosing parameters from evidence-based research with clinical expertise.<br />

IC 27 - EMERGING ROLE OF DEEP BRAIN STIMULATION IN DYSTONIC CEREBRAL PALSY<br />

Authors: Warren A. Marks, MD; Eric Levey, MD; Alec Hoon, MD<br />

Level: Intermediate<br />

Purpose: To explain the emerging role of deep brain stimulation in the treatment of medically refractory dystonia due to cerebral palsy.<br />

Target Audience: Physicians, therapists <strong>and</strong> nurses involved in treating children <strong>and</strong> adults with cerebral palsy.<br />

Course Summary: As a background, there will be a review of the pathophysiology <strong>and</strong> classification of cerebral palsies, with an emphasis<br />

on the dystonic component. Dystonia will be defined so that participants will be better able to differentiate spasticity <strong>for</strong>m dystonia. This is<br />

increasingly important as more specific treatment options <strong>for</strong> each <strong>for</strong>m of hypertonia become more widely accessible. The basal ganglia play<br />

a central role in the pathophysiology of extrapyramidal movement disorders. Underst<strong>and</strong>ing the structural <strong>and</strong> neurochemical pathways of<br />

the basal ganglia are vital to underst<strong>and</strong>ing dystonia <strong>and</strong> potential treatment options. Pharmacologic options <strong>for</strong> dystonia will be reviewed.<br />

Direct stimulation of the basal ganglia is emerging as a treatment option <strong>for</strong> various <strong>for</strong>ms of medically refractory dystonia, including dyskinetic<br />

cerebral palsy. The evolving role of DBS in the treatment of cerebral palsy will be explored, including outcomes <strong>and</strong> challenges.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> the different types of abnormal tone that can be part of the cerebral palsy.<br />

2) To underst<strong>and</strong> the central role of the basal ganglia in the pathophysiology of cerebral palsy.<br />

3) To have a basic underst<strong>and</strong>ing of how deep brain stimulation works.<br />

4) To underst<strong>and</strong> the emerging role of neuromodulation (deep brain stimulation) in the treatment of dystonia due to cerebral palsy?<br />

AACPDM 67 th Annual Meeting • Research & Practice 43


Saturday, October 19, 2013<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 28 - SUBJECTIVE VERSUS OBJECTIVE EVALUATIONS FOR LOWER LIMB ORTHOTIC PRESCRIPTION: BELIEFS VS.<br />

EVIDENCE AND THE LABORATORY VS. PATIENT ENVIRONMENT<br />

Authors: Marcie Ward, MD; George Gent, CPO; Sue Sohrweide, PT<br />

Level: Intermediate<br />

Purpose: To explore <strong>and</strong> compare the benefits <strong>and</strong> limitations in subjective clinical evaluation of patients <strong>and</strong> objective gait analysis when<br />

determining ideal orthotic prescription.<br />

Target Audience: Physicians, orthotists, <strong>and</strong> therapists who prescribe, provide or recommend lower limb orthotics <strong>for</strong> their patients.<br />

Course Summary: Orthotic prescription is typically a subjective decision. Function goals <strong>and</strong> alignment goals can conflict. Physicians,<br />

therapists, <strong>and</strong> orthotists may differ in their opinions regarding the type of orthotic to provide. Gait <strong>and</strong> motion analysis offers some<br />

objective evidence to guide this decision making. This course will review some of the available literature guiding orthotic prescription<br />

including consensus recommendations <strong>and</strong> how to apply them clinically. The available in<strong>for</strong>mation gait analysis provides will be discussed<br />

to highlight some pros <strong>and</strong> cons of various orthotic designs in a few commonly treated gait patterns. Case studies will illustrate patients in<br />

whom orthotics may or may not be of benefit. The audience will choose by electronic audience response system the type of orthotic they<br />

would recommend based on first physical exam data, second after the addition of gait video, <strong>and</strong> finally when gait data is added. Discussion<br />

will also include patient care needs <strong>and</strong> goals that may influence the final orthotic that is provided.<br />

Learning Objectives:<br />

1) Discuss typical alignment <strong>and</strong> functional goals in orthotic prescription.<br />

2) Review the available literature guiding orthotic prescription.<br />

3) Explore gait analysis data <strong>for</strong> evidence suggestive of improved function <strong>and</strong>/or alignment with the application of orthotics.<br />

4) Consider the short-term <strong>and</strong> long-term goals in orthotic prescription <strong>and</strong> how patient goals <strong>and</strong> compliance influence prescription<br />

choice.<br />

IC 29 - NEUROPLASTIC RESPONSES TO REHABILITATION IN CHILDREN AND INFANTS WITH CEREBRAL PALSY<br />

Authors: Jill Heathcock, MPT PhD; Andrew Gordon, PhD; Thubi Kolobe, PT PhD; Laura Prosser, PT PhD<br />

Level: Intermediate<br />

Purpose: This course will present the state of the science in rehabilitation <strong>and</strong> dosing as it relates to children with <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong><br />

includes two main topic areas: 1) current <strong>and</strong> novel rehabilitation protocols, <strong>and</strong> 2) brain plasticity specific to dosing <strong>and</strong> early brain injury.<br />

This workshop will help attendees integrate evidence on neuroplastic adaptations to rehabilitation into their clinical practice.<br />

Target Audience: Physicians, occupational <strong>and</strong> physical therapists, speech <strong>and</strong> language therapists, nurses<br />

Course Summary: Using the ICF model this course will familiarize the participant with the current research on the responses of the brain to<br />

pediatric neurorehabilitation. An emphasis will be placed on rehabilitation with known efficacy <strong>and</strong> established criteria <strong>for</strong> dosing including<br />

frequency, intensity, type of treatment, <strong>and</strong> timing. A focus will be on structural <strong>and</strong> functional changes in the context of lower <strong>and</strong> higher<br />

intensity protocols. Plasticity <strong>and</strong> recovery outcomes will guide the clinical discussion on how to use targeted interventions by applying best<br />

available evidence. Minimal <strong>and</strong> optimal dosing parameters will be discussed. The <strong>for</strong>mat <strong>for</strong> this session will include lecture <strong>and</strong> interactive<br />

discussions between presenters <strong>and</strong> attendees. The multidisciplinary panel consisting of researchers <strong>and</strong> clinicians will also guide workshop<br />

attendees through case examples that focus on plasticity <strong>and</strong> rehabilitation.<br />

Learning Objectives:<br />

1) To evaluate current interventions <strong>and</strong> their potential to influence structure-behavior change in children with CP.<br />

2) To evaluate dosing parameters <strong>and</strong> their potential to change brain structure <strong>and</strong> function.<br />

3) To apply relevant pediatric neurorehabilitation evidence to functional outcomes in infants <strong>and</strong> children.<br />

4) To integrate knowledge of brain plasticity <strong>and</strong> recovery in the context of clinical guidelines.<br />

44<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Saturday, October 19, 2013<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 30 - SALIVA CONTROL IN CEREBRAL PALSY: MULTIDISCIPLINARY MANAGEMENT AND RESEARCH FINDINGS FROM THE<br />

AUSTRALIAN AND DUTCH DROOLING TEAMS<br />

Authors: Dinah Reddihough, MD; Karen van Hulst, MSc; Jan van der Burg, PhD; David Chong, FRACS<br />

Level: Intermediate<br />

Purpose: The objectives of this workshop are to - 1. Describe the assessment process <strong>and</strong> the interventions that are recommended <strong>for</strong> poor<br />

saliva control. 2. Present the results of research into assessment, behavioural strategies, the effectiveness of medication, botulinum toxin<br />

injections <strong>and</strong> saliva control surgery.<br />

Target Audience: Physicians, dentists, speech <strong>and</strong> language therapists, occupational <strong>and</strong> physiotherapists, nurses, psychologists, teachers<br />

Course Summary: Drooling impedes socialization, interpersonal relationships, <strong>and</strong> integration into school <strong>and</strong> community life <strong>and</strong> may<br />

limit employment options in adults. Saliva control clinics in Australia <strong>and</strong> the Netherl<strong>and</strong>s have adopted a hierarchical approach to the<br />

treatment of drooling, from the least to the most invasive. The assessment of the child with saliva control problems (anterior <strong>and</strong> posterior<br />

drooling), including the available clinical <strong>and</strong> research tools, will be discussed with the role played by each multidisciplinary team member.<br />

The research evidence underlying the various management options will be presented along with in<strong>for</strong>mation as to how treatment is<br />

selected <strong>for</strong> the individual child.<br />

Learning Objectives:<br />

1) To underst<strong>and</strong> the factors that impede saliva control.<br />

2) To gain knowledge about the various assessment tools that are available <strong>and</strong> the issues to be considered when assessing children with<br />

saliva control problems including oral health, concomitant medications <strong>and</strong> child / family factors.<br />

3) To underst<strong>and</strong> the treatment options: behavioral, speech pathology management techniques, medication, botulinum toxin, palatal<br />

appliances, surgery.<br />

4) To develop an appreciation of the research evidence <strong>for</strong> the various approaches.<br />

IC 31 - CEREBRAL PALSY, NEUROGENIC BLADDER AND OUTCOMES OF LIFETIME CARE<br />

Authors: Kevin P. Murphy, MD; Jenna Katorski, CNP; Charles Durkee, MD<br />

Level: Intermediate<br />

Purpose: To create awareness, basic underst<strong>and</strong>ing <strong>and</strong> skill in the diagnosis <strong>and</strong> treatment of symptomatic neurogenic bladder in children<br />

<strong>and</strong> adults with cerebral palsy (CP).<br />

Target Audience: Physicians, nurses, physical, occupational <strong>and</strong> speech therapists.<br />

Course Summary: Urinary incontinence has been identified as a problem in people with CP. Multiple studies have shown neurogenic<br />

bladder (NB) to be a common cause of incontinence in the population of people with CP present in over 16% of those symptomatic. Many<br />

other causes of incontinence are present in addition to NB in this population <strong>and</strong> need to be identified <strong>for</strong> proper intervention <strong>and</strong> optimal<br />

outcome. This problem of young <strong>and</strong> old, often neglected but easily treated, has a 90% success rate of achieving continence in selected<br />

individuals with conservative care. The course will focus on identifying those individuals needing appropriate diagnosis <strong>and</strong> care both<br />

medical <strong>and</strong> surgical. Nursing interventions will be discussed including specialty catheterization techniques, lifespan care protocols <strong>and</strong><br />

basic computerized urodynamic studies. A surgical discussion will include review of bladder augmentation, urinary <strong>and</strong> ureteral diversion<br />

<strong>and</strong> the Mitrofanoff procedures. Case examples will be presented in the final segment.<br />

Learning Objectives:<br />

1) To list multiple causes of urinary incontinence in people with CP across the lifespan.<br />

2) To identify the appropriate individual with CP most capable of achieving urinary continence within a functional toileting environment<br />

(FTE).<br />

3) To display a basic underst<strong>and</strong>ing of urodynamic testing, catheterization techniques, medications <strong>and</strong> protocols of care as it relates to<br />

the individual with CP.<br />

4) To appreciate the surgical urology options of care <strong>for</strong> the individual with CP including, bladder augmentation, ureteral <strong>and</strong> urinary<br />

diversion <strong>and</strong> the appendicovesicostomy (Mitrofanoff ) procedures.<br />

AACPDM 67 th Annual Meeting • Research & Practice 45


Saturday, October 19, 2013<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 32 - USE OF GAIT ANALYSIS IN SURGICAL TREATMENT PLANNING FOR PATIENTS WITH DEVELOPMENTAL DISABILITIES<br />

Authors: Robert M. Kay, MD; Deirdre Ryan, MD; Susan Rethlefsen, PT DPT<br />

Level: Intermediate<br />

Purpose: To educate attendees in use of gait analysis <strong>for</strong> evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.<br />

Target Audience: Physicians, physical <strong>and</strong> occupational therapists<br />

Course Summary: Faculty will introduce attendees to computerized gait analysis data collection <strong>and</strong> interpretation. They will discuss how<br />

data are used in planning <strong>for</strong> surgical <strong>and</strong> non-surgical intervention in children with CP <strong>and</strong> myelomeningocele. Discussion will focus on<br />

common clinical problems <strong>and</strong> ways gait analysis alters treatment plans. Content will be based on the presenters’ clinical expertise <strong>and</strong><br />

evidence-based review of literature. Computerized gait data, videos, photographs <strong>and</strong> x-rays will be used. Attendees will participate in<br />

breakout sessions in which gait data will be interpreted <strong>and</strong> treatment plans determined <strong>for</strong> sample cases.<br />

Learning Objectives:<br />

1) List common gait problems in CP <strong>and</strong> myelomeningocele.<br />

2) Identify deviations on joint kinematic, kinetic <strong>and</strong> EMG plots.<br />

3) Outline a treatment plan <strong>for</strong> a child with CP or myelomeningocele using gait analysis data.<br />

4) Gain perspective on the complexity of evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.<br />

Instructional Course 32 has been moved to<br />

Thursday, October 17, 2013 2:00 PM–4:00PM<br />

IC 33 - TOE WALKING: HOW DO YOU KNOW WHO TO WORRY ABOUT?<br />

Authors: Kristan A. Pierz, MD; Sylvia Ounpuu, MSc<br />

Level: Basic<br />

Purpose: The purpose of this course is to describe the many variations of toe walking to help clinicians underst<strong>and</strong> the diversity of<br />

presentation, underlying diagnoses, <strong>and</strong> treatment options.<br />

Target Audience: Physicians, mid-level practitioners, physical therapists, orthotists, kinesiologists, <strong>and</strong> others who are interested in a more<br />

detailed underst<strong>and</strong>ing of toe walking <strong>and</strong> how to assess <strong>for</strong> underlying diagnoses.<br />

Course Summary: Toe walking is frequently seen in childhood. Although the idiopathic version is common, caregivers need to be aware of<br />

underlying, often subtle, etiologies that warrant evaluation <strong>and</strong> timely treatment. This course will begin with a selection of videos of patients<br />

who toe walk followed by a brief review of disorders that may result in toe walking (e.g. spasticity/cerebral palsy, weakness/hereditary<br />

sensory motor neuropathies, limb asymmetry/leg length difference/hip dysplasia/joint contractures/tumors, sensory integration disorders,<br />

<strong>and</strong> idiopathic/habitual patterning). The course will provide an overview of the comprehensive assessment of toe walking including the<br />

following: visual/video analysis, physical exam, kinematics, <strong>and</strong> electromyography (EMG) <strong>and</strong> how each of these components can support or<br />

refute differential diagnoses. The initial cases will then be examined in more detail, focusing on the gait parameter differences. Clinical exam<br />

findings, sagittal plane ankle/knee/hip/pelvis kinematic profiles, <strong>and</strong> EMG data will be used to support or refute different diagnoses <strong>and</strong><br />

treatment options.<br />

Learning Objectives:<br />

1) Be familiar with the limitations of assessing toe walking by observation alone.<br />

2) Be familiar with many of the underlying diagnoses associated with the clinical presentation of toe walking.<br />

3) Be familiar with the components of computerized gait analysis relevant to toe walking.<br />

4) Be aware of “red flags” or gait features of toe walkers that warrant additional evaluation or treatment.<br />

46<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Saturday, October 19, 2013<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 34 - REVIEW OF NEUROPHARMACOLOGY IN PEDIATRIC BRAIN INJURY<br />

Authors: John Pelegano, MD; Jilda N. Vargus-Adams, MD MSc; Micah W. Baird, MD<br />

Level: Intermediate<br />

Purpose: This course will present a review of the literature <strong>and</strong> current practices regarding the use of neuropharmacologic agents in the<br />

treatment of children with moderate to severe acquired brain injuries (ABI).<br />

Target Audience: Physicians, physician assistants, advanced practice nurses, occupational <strong>and</strong> physiotherapists, speech <strong>and</strong> language<br />

pathologists, nurses<br />

Course Summary: A 2010 study estimated that the number of hospitalizations <strong>for</strong> Traumatic Brain Injury in children ages 0 -14 years was<br />

just over 35,000 annually. Over the past several years there has been increasing use of pharmacologic agents as adjuncts to the rehabilitation<br />

of these individuals. Though most of the limited number of clinical studies that have been per<strong>for</strong>med to date have been per<strong>for</strong>med in the<br />

adult population these medications are increasingly finding their way into pediatric usage. This course will provide a review of existing<br />

literature on this topic <strong>and</strong> provide a framework <strong>for</strong> the judicious use of these agents in clinical settings.<br />

Learning Objectives:<br />

1) To become aware of the array of neuropharmacologic agents which have been utilized to augment the rehabilitation of children with<br />

ABI’s.<br />

2) To review the available literature on neuropharmacology in ABI including ratings of Level of Evidence.<br />

3) Become familiar with a clinical framework <strong>for</strong> the judicious use of these medications in children with ABI.<br />

4) Become familiar with those areas of neuropharmacology in ABI requiring further study.<br />

IC 35 - “IT IS MY LIFE”. SELF-MANAGEMENT PROMOTION IN ADOLESCENTS AND YOUNG ADULTS WITH CHILDHOOD<br />

ONSET DISABILITY<br />

Authors: Wilma M. van der Slot, MD PhD; Jan Willem Gorter, MD PhD FRCPC<br />

Level: Intermediate<br />

Purpose: This course aims to improve knowledge of age-appropriate treatment of young people with childhood onset disability. We will<br />

share expertise from The Netherl<strong>and</strong>s <strong>and</strong> Canada on interventions to promote self-management capabilities of adolescents <strong>and</strong> young<br />

adults with disabilities.<br />

Target Audience: Health care professionals working with youth <strong>and</strong> adults with childhood onset disabilities or interested in effective<br />

transition <strong>program</strong>s.<br />

Course Summary: Youth with childhood onset disabilities often experience poor healthcare <strong>and</strong> a delayed transition to adulthood<br />

in several life areas. A key element <strong>for</strong> young people with a disability is to learn how to self-manage their health <strong>and</strong> their life. In the<br />

presentation of The Netherl<strong>and</strong>s we will share our experience with a modular transition <strong>program</strong> with a special focus on self-management<br />

<strong>and</strong> autonomy. We will present our novel intervention ‘Manage Your Life’, which provides training of self-management skills in young<br />

adults <strong>and</strong> the Rotterdam Transition Profile (RTP). The Canadian presentation will draw on the ongoing 4-year Transition to Adulthood with<br />

Cyber Guide Evaluation (TRACE) study that entails innovative transition resources <strong>for</strong> youth with chronic health conditions. The TRACE<br />

study investigates the use of two transition resources designed to promote self-care management: the Youth KIT© <strong>and</strong> an online Transition<br />

Coordinator.<br />

Learning Objectives:<br />

1) To learn about models of transitional care in The Netherl<strong>and</strong>s <strong>and</strong> in Canada.<br />

2) To learn methods to promote self-management of young people with disabilities.<br />

3) Illustrate the application of the RTP <strong>for</strong> goal setting.<br />

4) To learn from lived experiences of youth <strong>and</strong> caregivers.<br />

AACPDM 67 th Annual Meeting • Research & Practice 47


Saturday, October 19, 2013<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 36 - THE CVI RANGE: AN ASSESSMENT OF FUNCTIONAL VISION IN CHILDREN WHO HAVE CORTICAL VISUAL<br />

IMPAIRMENT<br />

Authors: Christine A. Roman, PhD; Alan Lantzy, MD<br />

Level: Intermediate<br />

Purpose: The purpose of this course is to provide in<strong>for</strong>mation <strong>and</strong> procedures <strong>for</strong> conducting The CVI Range; a reliable <strong>and</strong> valid evaluation<br />

that determines the degree of affect of CVI in individuals 6 months- 21 years of age.<br />

Target Audience: Pediatric medical providers, therapists <strong>and</strong> parents<br />

Course Summary: This course will provide content that will enable participants to learn the principles <strong>and</strong> procedures <strong>for</strong> conducting<br />

The CVI Range. The CVI Range (Roman, 2007), is a functional vision assessment used to determine the degree of affect of cortical visual<br />

impairment. The CVI Range results place the individual’s level of CVI on a 0-10 scale <strong>and</strong> that numeric range can also be used to guide<br />

intervention strategies. The presentation will include observation, interview <strong>and</strong> direct assessment methods used to obtain the range score.<br />

The CVI Range is designed to investigate the unique visual <strong>and</strong> behavioral characteristics associated with CVI. These characteristics are the<br />

defining elements used to describe <strong>and</strong> define cortical visual impairment. The CVI Range is a valid <strong>and</strong> reliable assessment (Newcomb,<br />

2010) <strong>and</strong> produces stable in<strong>for</strong>mation about visual functioning. Improvements in the functional vision of individuals with cortical visual<br />

impairment is expected to improve; The CVI Range provides a consistent method to monitor improvements <strong>and</strong> to guide intervention<br />

strategies to facilitate future improvements. This presentation will present results of several studies that have evaluated the validity of The<br />

CVI Range <strong>and</strong> use of The CVI Range in clinical <strong>and</strong> educational settings. Video sample of individuals conducting The CVI Range will be used<br />

in this Instructional Course. Participants will be provided with an opportunity to complete <strong>and</strong> score The CVI Range via video assessment<br />

experience.<br />

Learning Objectives:<br />

1) Participants will be able to identify the unique visual <strong>and</strong> behavioral characteristics associated with CVI.<br />

2) Participants will be able to conduct assessment techniques associated with use of The CVI Range.<br />

3) Participants will be able to determine the level of CVI across a range from little or no visual functioning (score of zero) to near agetypical<br />

visual functioning (score of 10).<br />

4) Participants will be able to increase underst<strong>and</strong>ing of the research associated with the use of The CVI Range.<br />

IC 37 - THE FRAMEWORK OF MOVEMENT: UPDATING THE EVIDENCE ON ANTICIPATORY POSTURAL CONTROL IN<br />

CHILDREN WITH CEREBRAL PALSY AND IMPLICATIONS FOR PRACTICE<br />

Authors: Gay L. Girolami, PT PhD; Deborah Gaebler-Spira, MD<br />

Level: Intermediate<br />

Purpose: This instructional course is designed to review the importance of postural control <strong>for</strong> function <strong>and</strong> participation <strong>and</strong> to update<br />

the evidence on the internal <strong>and</strong> external actions which elicit the need <strong>for</strong> feed <strong>for</strong>ward (anticipatory) postural control <strong>and</strong> to present<br />

applications <strong>for</strong> clinical practice.<br />

Target Audience: Physical therapists, occupational therapists, physiatrists, pediatricians, orthopedic surgeons<br />

Course Summary: This instructional course will describe the importance of postural control <strong>and</strong> the prognostic implications <strong>for</strong><br />

participation <strong>for</strong> children with cerebral palsy (CP). A review of the recent evidence on anticipatory postural adjustments (APAs) in children<br />

with typical development <strong>and</strong> CP will deepen the participants’ underst<strong>and</strong>ing of postural control. Application of the research evidence to<br />

clinical practice <strong>and</strong> ideas <strong>for</strong> treatment based on the research will also be presented.<br />

Learning Objectives:<br />

1) The participants will be able to describe the importance of postural control <strong>and</strong> the prognostic implications <strong>for</strong> function <strong>and</strong><br />

participation in children with CP.<br />

2) The participants will be able to explain how impaired postural control can impact all aspects of the ICF model.<br />

3) The participants will be able to discuss activity <strong>and</strong> participation implications of altered APAs <strong>and</strong> strategies to improve these postural<br />

mechanisms in children with CP.<br />

4) Based on the evidence presented, the participants will be able to design treatment strategies addressing deficits in feed <strong>for</strong>ward<br />

postural control in infants <strong>and</strong> children with neurological conditions.<br />

48<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Saturday, October 19, 2013<br />

1:30 pm–3:30 pm Instructional Courses 26-38<br />

IC 38 - FITNESS - FUN - FRIENDS - THE POTENTIAL OF ADAPTED PHYSICAL ACTIVITY<br />

Authors: Tor Erik H. Nyquist, Master; Reidun Jahnsen, PT PhD; Astrid J. Nyquist, PhD<br />

Level: Intermediate<br />

Purpose: This course will look at potential benefits to persons with disabilities by being introduced to/participating in adapted physical<br />

activities, like; enhancement of basic skills, fitness, empowerment <strong>and</strong> motivation <strong>for</strong> “Active Living.”<br />

Target Audience: Multidisciplinary - anyone with interest in adapted physical activity<br />

Course Summary: The course is mainly based on experiences from Beitostølen Healthsport Center (BHC). BHC is a pioneer institution<br />

within rehabilitation in Norway, recognized as an official part of the national specialist health service system in physical medicine <strong>and</strong><br />

rehabilitation. Over a long period of time there has been research cooperation with the Norwegian School of Sport Sciences. A result of<br />

this cooperation are two PhD dissertations with the themes “Physical Activity <strong>and</strong> Motivation in young adults with a physical disability”<br />

(Saebu 2011) <strong>and</strong> “I can participate! Children with disabilities <strong>and</strong> participation in physical activity - a mixed methods study in a habilitation<br />

context” (Nyquist 2012). Earlier research at BHC resulted in the <strong>program</strong>: “The Local Environment Model” (Nyquist 2007), focusing on transfer<br />

of learned skills to the home environment. This model is implemented in the <strong>program</strong>s at BHC <strong>and</strong> are made use of by professionals <strong>and</strong><br />

families around the country in cooperation with BHC.<br />

Learning Objectives:<br />

1) To learn about different <strong>program</strong>s at BHC with the purpose of enhancing learning <strong>and</strong> motivation of children with disabilities to actively<br />

participate in physical activities.<br />

2) Clinic - research <strong>and</strong> return. To discuss how systematic clinical work can become a source <strong>for</strong> research, which can generate knowledge<br />

that can be brought back to the clinic.<br />

3) To discuss certain instruments that can document participation, which is the ultimate goal of a stay at BHC.<br />

4) To reflect upon, <strong>and</strong> discuss, topics related to the presentations <strong>and</strong> own experiences.<br />

AACPDM 67 th Annual Meeting • Research & Practice 49


Scientific Posters<br />

SP1 - REDUCTION IN THALAMIC VOLUME IN CONGENITAL HEMIPLEGIA<br />

Simon Scheck, BSc MBBS scholar; Kerstin Panneck, BSc; Roslyn N. Boyd, PhD PT; Stephen Rose, PhD Physics<br />

SP2 - ADULTS WITH CEREBRAL PALSY: INDEPENDENT LIVING FACTORS AND PERCEIVED QUALITY OF LIFE<br />

Eunice Y. Shen, PhD DPT; Darcy Umphred, PhD; Jane K. Sweeney, PhD; Kim Nixon-Cave, PhD<br />

SP3 - NEONATAL MICROSTRUCTURAL DEVELOPMENT OF THE CORPUS CALLOSUM AND GAIT TEMPORAL-SPATIAL<br />

PARAMETERS IN VERY LOW BIRTH WEIGHT PRETERM CHILDREN AT 18-20 MONTHS: A DIFFUSION IMAGING STUDY<br />

Katelyn Cahill-Rowley, MS; Rachel Vassar, BA; Megan Thompson, BS; Corey Gatewood, BA; Dong-Wook Rha, MD; Naama Barnea-Goraly, MD; David<br />

K. Stevenson, MD; Jessica Rose, PhD<br />

SP4 - STRETCHED SARCOMERES MAY CONTRIBUTE TO CONTRACTURE IN CEREBRAL PALSY<br />

Margie Mathewson, MS; Samuel Ward, PT PhD; Henry Chambers, MD; Richard Lieber, PhD<br />

SP5 - NEONATAL MICROSTRUCTURAL DEVELOPMENT OF THE LEFT SUPERIOR TEMPORAL GYRUS AND COGNITIVE<br />

DEVELOPMENT IN VERY LOW BIRTH WEIGHT PRETERM CHILDREN AT 18-20 MONTHS: A DIFFUSION IMAGING STUDY<br />

Rachel Vassar, BA; Naama Barnea-Goraly, MD; Katelyn Cahill-Rowley, MA; David K. Stevenson, MD; Susan Hintz, MD; Jessica Rose, PhD<br />

SP6 - RELATIONSHIP BETWEEN EXECUTIVE FUNCTION AND SENSORY/MOTOR FUNCTIONING IN CHILDREN AND<br />

ADOLESCENTS WITH CONGENITAL HEMIPLEGIA<br />

Stephanie Ross, BS (Hons) MSc; Koa Whittingham, PhD BS (Hons) BA; Roslyn N. Boyd, PhD PT<br />

SP7 - QUANTITATIVE MUSCLE ULTRASOUND IN CHILDREN WITH SPASTIC CEREBRAL PALSY<br />

Christian A. Pitcher, BSc(Hons); Catherine M. Elliott, PhD; Jane Valentine, FRACP FAFRM; Fausto Antonio Panizzolo, MEng; Katherine Stannage, MBBS;<br />

Siobhan Reid, PhD<br />

SP8 - CONSTRAINT INDUCED MOVEMENT THERAPY MEDIATES RECOVERY OF NORMAL CORTICAL ACTIVATION IN<br />

CHILDREN WITH CEREBRAL PALSY<br />

Mario I. Romero, PhD; Fenghua Tian, PhD; Bilal Khan, MS; Angela Shierk, OT; Heather Roberts, OT MHA; Linsley B. Smith, RN BSN; Nancy J. Clegg, RN,<br />

CNS PhD; George Alex<strong>and</strong>rakis, PhD; Hanli Liu, PhD; Mauricio R. Delgado, MD FRCPC FAAN<br />

SP9 - LANGUAGE DELAY, SOCIOECONOMIC DISADVANTAGE AND PARTICIPATION IN EARLY INTERVENTION SERVICES<br />

Janet Patterson, MD; Sarah A. Sobotka, MD MSCP; Kruti Acharya, MD; Dana L. Suskind, MD; Shannon G. Sapolich, BA; Kristin R. Leffel, BS; Elizabeth<br />

Suskind, BS; Michael Msall, MD<br />

SP10 - HIP JOINT KINETICS AS CLINICALLY MEANINGFUL OUTCOMES FOR THERAPEUTIC TRIALS IN 4-6 YEAR OLD BOYS<br />

WITH DUCHENNE MUSCULAR DYSTROPHY<br />

Kent Heberer, MS; Eileen G. Fowler, PhD PT; Loretta Staudt, MS PT; Susan Sienko Thomas, MA; Cathleen Buckon, MS; Anita Bagley, PhD MPH; Craig M.<br />

McDonald, MD; Michael Sussman, MD<br />

SP11 - KNEE AND ANKLE ROBOTIC MOTOR REHABILITATION IN CHILDREN WITH CEREBRAL PALSY<br />

Kai Chen, PhD; Charley Liu, BS; Yupeng Ren, MS; Chung-Yong Yang, MS; Lin Liu, MD; Liang Wang, MS; Deborah Gaebler-Spira, MD; Liqun Zhang, PhD<br />

SP12 - INTERVENTION TO ADVANCE POSTURAL TRANSITIONS IN YOUNG CHILDREN WITH NEUROMOTOR DISABILITIES<br />

AND RESULTING EFFECTS ON TRUNK AND PELVIC MOVEMENT<br />

Swati M. Surkar, PT; Max J. Kurz, PhD.; S<strong>and</strong>ra Willette, M. S. P. T.; Lynne Capoun, M.S. P.T.; Xin Zhang, M. D.; Regina Harbourne, PhD<br />

SP13 - ACCURATELY MEASURING OBESITY IN SPINA BIFIDA<br />

Annie Kennelly, BA; Sue Mukherjee, MD<br />

SP14 - CENTRAL ADIPOSITY IS AN INDEPENDENT RISK FACTOR FOR LOW VITAMIN D AMONG ADULTS WITH CEREBRAL<br />

PALSY<br />

Mark Peterson, PhD.; Heidi J. Haapala, MD; Edward A. Hurvitz, MD<br />

SP15 - RESILIENCE AMONG FAMILY CAREGIVERS OF CHILDREN WITH SEVERE NEURODISABILITIES REQUIRING CHRONIC<br />

RESPIRATORY MANAGEMENT<br />

Timothy Elliott, PhD; Robert H. Warren, MD; Ryan Blucker, PhD; Jack Berry, PhD; Jessica Chang, BA; Ann Marie Warren, PhD<br />

SP16 - PREVALENCE AND CHARACTERISTICS OF POSTNEONATAL CEREBRAL PALSY, METROPOLITAN ATLANTA, 1991-<br />

2008<br />

Deborah Christensen, PhD; Marshalyn Yeargin-Allsopp, MD; Kim Van Naarden Braun, PhD; Nancy S. Doernberg, BA; Georgina Peacock, MD<br />

SP17 - THE EFFECTS OF INTENSE LOCOMOTOR AEROBIC EXERCISE AND COGNITIVE LOAD ON POSTURAL STABILITY<br />

DURING STANDING FOR CHILDREN WITH CEREBRAL PALSY<br />

Claire Gane; Sophie-Krystale Dufour; Jan Andrysek, PhD PEng; Laurent J. Bouyer, PhD; Brad<strong>for</strong>d J. McFadyen, PhD; Julien I. Voisin, PhD erg; Désirée B.<br />

Maltais, PhD pht<br />

SP18 - A STUDY OF CHOREA IN CHILDREN<br />

Debabrata Ghosh, MD, DM; Stephen Sreshta, BA; Kohila Velayudam, MD<br />

50<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Scientific Posters<br />

SP19 - COMPENSATORY GAIT PATTERNS SECONDARY TO ISOLATED ANKLE EQUINUS<br />

Lisa C. Drefus, PT DPT; David Scher, MD; Jocelyn F. Hafer, BS MS<br />

SP20 - CHANGES IN ANKLE JOINT STIFFNESS FOLLOWING INTELLIGENT STRETCHING AND ACTIVE MOVEMENT TRAINING<br />

David J. Fogelman, MD; Paul Uhing; Lin Liu, MS; Kai Chen, PhD; Sang Hoon Kang, PhD; Yupeng Ren, MS; Liang Wang, MS; Charley Liu, BS; Deborah<br />

Gaebler-Spira, MD; Liqun Zhang, PhD<br />

SP21 - SAFETY OF TRANSCRANIAL DIRECT CURRENT STIMULATION IN PEDIATRIC HEMIPARESIS: DETERMINING THE<br />

OPTIMAL STIMULATION SITE<br />

Bernadette T. Gillick, PhD MSPT PT; Tim Feyma, MD; Jeremiah Menk, MS; Linda E. Krach, MD<br />

SP22 - CONCURRENT VALIDITY OF THE STEPWATCH AND ACTIGRAPH® IN AMBULANT CHILDREN WITH CEREBRAL PALSY<br />

Emma M. McGuire, PT; Louise E. Mitchell, PT MHSt; Roslyn N. Boyd, PhD PT MBioMech<br />

SP23 - PRIAPISM AS A SIGN OF INTRATHECAL BACLOFEN WITHDRAWAL: A CASE SERIES<br />

Nanette Aldahondo, MD; Linda E. Krach, MD<br />

SP24 - ED USE AMONG CHILDREN WITH COMPLEX DISABILITIES AND TRACHEOSTOMY-DEPENDENCIES<br />

Nancy Murphy, MD; Jeremy Meier, MD; William Gershan, MD; Harlan Muntz, MD; Caroline Hagedorn, PNP; Christine Hartling, RRT; Karen Valentine, MS<br />

SP25 - PHYSICIAN-PATIENT COMMUNICATION IS A KEY FACTOR ASSOCIATED WITH MALPRACTICE LITIGATION IN<br />

NEONATAL BRACHIAL PLEXUS PALSY<br />

Joseph Domino, BS; Connie McGovern, BA; Kate Wan-Chu Chang, MA; Lynda Yang, MD PhD<br />

SP26 - SWALLOWING FUNCTION FOR PEDIATRIC PATIENTS WITH A TRACHEOTOMY TUBE<br />

Rima I. Birutis, MA; Susan Brady, MA; Mary Keen, MD; Michele Wesling, MS<br />

SP27 - SOMATOSENSORY DEFICITS IN CHILDREN WITH NEONATAL BRACHIAL PLEXUS PALSY<br />

Lauren J. Phillips, BS; Cory W. Wernimont, MPT; Kathy L. Kern, MS; Virginia Nelson, MD MPH; Lynda Yang, MD PhD; Susan H. Brown, PhD<br />

SP28 - INTERVENTION TO ADVANCE POSTURAL TRANSITIONS AND PROBLEM SOLVING ABILITY IN CHILDREN WITH<br />

CEREBRAL PALSY<br />

Xin Zhang, DPT MD; Swati M. Surkar, PhD PT; S<strong>and</strong>ra Willette, PT MS PCS; Max J. Kurz, PhD; Lynne Capoun, PT MS PCS; Regina Harbourne, PhD PT PCS<br />

SP29 - PAIN REDUCTION FOLLOWING CEREBRAL PALSY SURGERY<br />

David Yngve, MD; Matthew De La Cruz, BS<br />

SP30 - PARENT PERCEPTIONS OF THE QUALITY OF LIFE (QOL) AND HEALTHCARE SATISFACTION FOR THEIR CHILDREN<br />

WITH COMPLEX CHRONIC CONDITIONS (CCCS)<br />

Kathy Garcia, MD; Karen Valentine, MS; Caroline Hagedorn, PNP; Karen Buchi, MD; Nancy Murphy, MD<br />

SP31 - CHILD GENDER AND PARENTAL NURTURANCE IN CHILDREN WITH AND WITHOUT A NEURODEVELOPMENTAL<br />

CONDITION<br />

Danielle N. Shapiro, PhD; Seth Warschausky, PhD<br />

SP32 - EARLY MOTOR TRAJECTORIES IN VERY LOW BIRTH WEIGHT PREMATURE INFANTS: USE OF DIFFUSION TENSOR<br />

IMAGING, GENERAL MOVEMENT ASSESSMENT AND THE TEST OF INFANT MOTOR PERFORMANCE<br />

Colleen Peyton, PT DPT PCS; Lars Adde, PT PhD; Edward Yang, MD PhD; Jessica Piantino, MD; Toril Fjørtoft, PT MSc; Michael Schreiber, MD; Michael<br />

Msall, MD<br />

SP33 - DO THE STATE- TRAIT ANXIETY LEVELS IN THE MOTHERS OF CHILDREN WITH CEREBRAL PALSY DIFFER COMPARED<br />

WITH MOTHERS OF HEALTHY CHILDREN?<br />

Pelin Pistav-Akmese, M.Sc; Akmer Mutlu, PT PhD<br />

SP34 - EXERCISE, LIFE SATISFACTION AND DEPRESSIVE SYMPTOMS AMONG INDIVIDUALS WITH PEDIATRIC-ONSET<br />

SPINAL CORD INJURY<br />

Am<strong>and</strong>a Ward, M.A.; Kathy Zebracki, PhD.; Lawrence C. Vogel, MD<br />

SP35 - SCHOOL BASED PHYSICAL THERAPISTS PERCEPTIONS OF SCHOOL BASED PHYSICAL THERAPY PRACTICE: AN EX-<br />

POST FACTO INTERPRETIVE PHENOMENOLOGICAL STUDY<br />

Sheryl L. Holt, MS PhD/ABD; Janice Kuperstein, PhD<br />

SP36 - OBESITY-RELATED HEALTH PROMOTION INTERVENTIONS FOR CHILDREN AND YOUNG PEOPLE WITH PHYSICAL<br />

DISABILITIES: STATE OF THE EVIDENCE<br />

Amy McPherson, PhD; Rebecca Keith, BASc; Judy Swift, PhD<br />

SP37 - BILATERAL SENSORY AND MOTOR ASPECTS OF HAND FUNCTION IN PATIENTS WITH CHILDHOOD-ONSET<br />

HEMIDYSTONIA<br />

Sahana N. Kukke, PhD; Ana Carolina de Campos, PT PhD; Lindsey Curatalo, MS; Laurie Ohlrich, PT; Katharine Alter, MD; Mark Hallett, MD; Diane<br />

Damiano, PhD PT<br />

AACPDM 67 th Annual Meeting • Research & Practice 51


Scientific Posters<br />

SP38 - IMPACT OF PRETERM VERSUS TERM BIRTH ON COMORBIDITIES AND FUNCTIONAL OUTCOMES IN PRESCHOOL<br />

AGE CHILDREN WITH CEREBRAL PALSY<br />

Evyn Arnfield, BA; Rachel Jordan, BA; Laura Pareezer, BA; Robert Ware, PhD; Roslyn N. Boyd, PhD PT<br />

SP39 - LOW LUMBAR SPINE BONE DENSITY IN PREMENOPAUSAL WOMEN AND MEN UNDER 50 YEARS OF AGE WITH<br />

CEREBRAL PALSY IS RELATED TO IMMOBILITY<br />

Eileen G. Fowler, PhD, PT; S<strong>and</strong>hya Rao, PT; Aurelia Nattiv, MD; Kent Heberer, MS; William L. Oppenheim, MD<br />

SP40 - MOTOR LEARNING OF A BIMANUAL TASK IN CHILDREN WITH UNILATERAL CEREBRAL PALSY<br />

Ya Ching Hung, EdD; Andrew Gordon, PhD<br />

SP41 - WHAT SERVICES DO CHILDREN WITH A DUAL DIAGNOSIS OF DOWN SYNDROME AND AUTISM RECEIVE?<br />

Kathryn K. Ostermaier, MD; Carl D. Tapia, MD MPH; Adiaha Franklin, MD MPH; Robert G. Voigt, MD<br />

SP42 - TEST RETEST REPRODUCIBILITY AND PARENT-CHILD CONCORDANCE OF THE DIMENSIONS OF MASTERY<br />

QUESTIONNAIRE IN SCHOOL AGED CHILDREN WITH CONGENITAL HEMIPLEGIA<br />

Laura Miller, BSc (OT)(Hons) MHSM; Jenny Ziviani, PhD MEd BA BSc(OT); Kerry Marnane, BSc (OT)(Hons); Roslyn N. Boyd, PhD PT<br />

SP43 - RELIABILITY AND RESPONSIVENESS OF THE GROSS MOTOR FUNCTION MEASURE-88 IN CHILDREN WITH<br />

CEREBRAL PALSY<br />

MinYoung Kim, PhD; Jooyeon Ko, PhD<br />

SP44 - LOWER EXTREMITY MIRRORING DURING SELECTIVE VOLUNTARY MOTOR CONTROL ASSESSMENT IN PATIENTS<br />

WITH SPASTIC CEREBRAL PALSY<br />

Loretta Staudt, MS, PT; Marcia B. Greenberg, MS PT; Kent Heberer, MS; William L. Oppenheim, MD; Eileen G. Fowler, PT PhD<br />

SP45 - LONG TERM PROGNOSIS OF OBSTETRIC BRACHIAL PLEXUS PALSY<br />

Ann-Kristin G. Elvrum, OT/PhD-student; Gunn Hulleberg, MD; Merethe Br<strong>and</strong>al, PT; Torstein Vik, PhD<br />

SP46 - MOTOR SEQUENCE LEARNING IN CHILDREN WITH SPASTIC CEREBRAL PALSY: DIFFERENTIATION BETWEEN<br />

GENERAL SKILL LEARNING AND IMPLICIT SEQUENCE LEARNING<br />

Tamar Silberg, PhD; Moran Gofer-Levi, MA; Amichai Brezner, MD; Eli Vakil, PhD<br />

SP47 - SEGMENTAL TRUNK ACQUISITION AND REACHING IN TYPICALLY DEVELOPING INFANTS<br />

Jaya Rachwani, PT. MS.; Victor Santamaria, PT MS; S<strong>and</strong>ra Saavedra, PT PhD; Staci Wood, Student; Francine Porter, MS.; Marjorie Woollacott, PhD<br />

SP48 - THE EFFECT OF TREATMENT OF SLEEP APNEA ON DEVELOPMENTAL OUTCOMES AMONG CHILDREN WITH DOWN<br />

SYNDROME<br />

Kathryn K. Ostermaier, MD; Carl D. Tapia, MD MPH; Robert G. Voigt, MD<br />

SP49 - EFFECTS OF HOME-BASED LOCOMOTOR TREADMILL TRAINING ON GROSS MOTOR FUNCTION IN YOUNG<br />

CHILDREN WITH CEREBRAL PALSY<br />

Katrin Mattern-Baxter, PT DPT PCS; Stefani McNeil, MPT PCS; Jim K. Mansoor, PhD<br />

SP50 - IMPACT OF CARING FOR CHILDREN WITH MEDICAL COMPLEXITY AND FRAGILITY DUE TO MULTIPLE CHRONIC<br />

CONDITIONS ON FAMILY LIFE<br />

Carmen G. M<strong>and</strong>ic, MPH, ScD; Sarah Johaningsmeir, BA; Timothy E. Corden, MD; Alex<strong>and</strong>er L. Okun, MD; Alison Earle, PhD; Dolores Acevedo-Garcia,<br />

PhD, MPA-URP; John Gordon, MD<br />

SP51 - LONG-TERM OUTCOMES AFTER SELECTIVE DORSAL RHIZOTOMY<br />

Nanette Aldahondo, MD; Linda E. Krach, MD; Joyce Trost, PT; Tom Novacheck, MD; Mary Dunn, MD; Michael Schwartz, PhD<br />

SP52 - AN AUSTRALIAN POPULATION STUDY OF FACTORS ASSOCIATED WITH MRI PATTERNS IN CEREBRAL PALSY<br />

Susan M. Reid, BAppSc MClinEpi PhD; Charuta Dagia, MBBS MD FRCR; Michael R. Ditchfield, MBBS MD FRANZCR; John B. Carlin, BSc(Hons) PhD;<br />

Dinah Reddihough, MD BSc FRACP FAFRM<br />

SP53 - AGREEMENT BETWEEN PARENTS AND CLINICIANS FOR THE COMMUNICATION FUNCTION CLASSIFICATION<br />

SYSTEM (CFCS) OF CHILDREN WITH CEREBRAL PALSY<br />

Akmer Mutlu, PT, PhD; Ozgun Kaya-Kara, PT, MSc; Mintaze Kerem-Gunel, PT PhD; Ayse Livanelioglu, PT PhD; Sevilay Karahan, PhD; Mary Jo C.<br />

Hidecker, PhD<br />

SP54 - THE EFFECTS OF MEDICAL COMPLEXITY ON THE DEVELOPMENT OF FIDGETY MOVEMENTS AND FEASIBILITY<br />

OF SCREENING UTILIZING THE GENERAL MOVEMENT ASSESSMENT FOR NEONATAL AND CARDIAC INTENSIVE CARE<br />

INPATIENTS AND GRADUATES<br />

Mary Weck, PT; Lars Adde, PT PHD; Ragnhild Stoen, MD; Toril Fjortoft, PT MSc; Lynn Boswell, PT MS; Raye-Ann De Regnier, MD<br />

SP55 - MUSCLE FATIGUE DURING REPETITIVE MAXIMAL VOLUNTARY CONTRACTIONS; A COMPARISON BETWEEN<br />

CHILDREN WITH CEREBRAL PALSY, TYPICALLY DEVELOPING CHILDREN AND YOUNG HEALTHY ADULTS<br />

Maaike M Eken, MSc; Annet Dallmeijer, PhD; Han Houdijk, PhD; Caroline Doorenbosch, PhD<br />

52<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Scientific Posters<br />

SP56 - EVALUATION OF PELVIC OBLIQUITY: AN IMPORTANT CONTRIBUTOR TO SEATING DIFFICULTY IN PATIENTS WITH<br />

NEUROMUSCULAR SCOLIOSIS<br />

Joel Torretti, MD; Rodney Brenneman, MD; M. W. Shrader, MD; Vernon Chinchilli, PhD; Kelly V<strong>and</strong>erhave, MD; Lee Segal, MD; C<strong>and</strong>ice Welsh, BSN<br />

SP57 - QUEENSLAND CEREBRAL PALSY REGISTER - SUCCESSFUL CONSENT-BASED ASCERTAINMENT OF A 10-YEAR<br />

COHORT<br />

Michael deLacy, BS MS; Christalla Louca, BS; Leanne Johnston, BS PhD<br />

SP58 - “HE DOES NOT SEE HIMSELF AS BEING DIFFERENT”: A QUALITATIVE ANALYSIS OF CHILDREN AND CAREGIVERS<br />

REPORTS ON RELEVANT AREAS OF FUNCTIONING IN CP USING THE ICF-CY CODING SYSTEM<br />

Veronica Schiariti, MD MHSc PhD(C); Louise Mâsse, PhD; Anne Klassen, PhD; Karen Sauve, MSc; Alarcos Cieza, PhD; Maureen O’Donnell, MD<br />

SP59 - ACETABULAR REMODELING AFTER VARUS DEROTATIONAL OSTEOTOMY IN CEREBRAL PALSY: DO WE NEED TO DO<br />

THE PELVIS?<br />

Benjamin J. Shore, MD FRCSC; Dustin Powell, MS; Patricia Miller, MS; Travis Matheney, MD; Brian Snyder, MD PhD<br />

SP60 - MOTOR LEARNING IN VIRTUAL REALITY AS A MARKER FOR SPASTICITY AND DYSTONIA<br />

Citlali Lopez-Ortiz, PhD MA; Juila M. Simkowski, BS; Khushboo Doshi, BS; Wendolyn Gomez, BS; Jennifer Warnick, BS; Deborah Gaebler-Spira, MD<br />

SP61 - BRAIN LESIONS RELATE TO GAIT PATHOLOGY IN CHILDREN WITH UNILATERAL AND BILATERAL CEREBRAL PALSY<br />

Leen Van Gestel, PhD; Els Ortibus, PhD MD; Pieter Meyns, PhD; Paul De Cock, PhD MD; Stefan Sunaert, PhD MD; Andrea Guzzetta, PhD MD; Erwin<br />

Aertbeliën, PhD; Hilde Feys, PhD; Jaak Duysens, PhD MD; Kaat Desloovere, PhD<br />

SP62 - HOME-BASED BIMANUAL TRAINING FOR YOUNG CHILDREN WITH HEMIPLEGIA: IS IT FEASIBLE TO TRAIN<br />

CAREGIVERS AS INTERVENTIONISTS?<br />

Claudio L. Ferre, MA; Ya Ching Hung, PhD; Marina Br<strong>and</strong>ão, PhD; Jason Carmel, MD PhD; Andrew Gordon, PhD<br />

SP63 - IMPROVING CHILD QUALITY OF LIFE AND PARENT PSYCHOLOGICAL FUNCTIONING WITH A PARENTING<br />

INTERVENTION INCORPORARTING ACCEPTANCE AND COMMITMENT THERAPY<br />

Koa Whittingham, PhD; Matthew S<strong>and</strong>ers, PhD; Lynne McKinlay, MD; Roslyn N. Boyd, PhD PT<br />

SP64 - SPORADIC FIDGETY MOVEMENTS AND ABNORMAL MOTOR REPERTOIRE IS COMMON IN EXTREMELY PRETERM<br />

BORN INFANTS<br />

Toril Fjørtoft, MSc; Ragnhild Støen, PhD; R<strong>and</strong>i Vågen, PT; Gunn Kristin Øberg, PhD; Cathrine Labori, PT; Nils Thomas Sognstad, PhD; Inger Elisabeth<br />

Silberg, MD; Marianne Loennecken, PT; Unn Inger Møinicken, PT; Lars Adde, PT PhD<br />

SP65 - SELF-REPORTED MENTAL HEALTH IN CHILDREN WITH CEREBRAL PALSY 8-18 YEARS OLD AND ASSOCIATIONS<br />

WITH RECURRENT MUSCULOSKELETAL PAIN<br />

Kjersti Ramstad, PhD; Reidun Jahnsen, PhD; Trond H. Diseth, PhD<br />

SP66 - IS TENDON TRANSFER SURGERY IN UPPER EXTREMITY CEREBRAL PALSY MORE EFFECTIVE THAN BOTULINUM<br />

TOXIN INJECTIONS OR REGULAR ONGOING THERAPY?<br />

Anita Bagley, PhD, MPH; Michelle James, MD; Ann Van Heest, MD; Wendy Tomhave, OTR/L<br />

SP67 - COMPARISON OF BONE DENSITY AND QUALITY OF LIFE IN PREPUBERTAL CHILDREN WITH AND WITHOUT<br />

CEREBRAL PALSY<br />

Christine M. Houlihan, MD; Richard Stevenson, MD; Michelle Kuperminc, MD; Mark Conaway, PhD<br />

AACPDM 67 th Annual Meeting • Research & Practice 53


Demonstration Posters<br />

DP1 - TRACKING RECOVERY FROM ORTHOPEDIC SURGERY IN YOUTH WITH CEREBRAL PALSY USING THE STEP WATCH<br />

Ameeka George, BS; Nancy Lennon, MPT<br />

DP2 - THE ICANFUNCTION APP - THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING APPLICATION<br />

Olaf Kraus de Camargo, MD PhD FRCPC; Leo Godreault, BScN; Jerad Godreault, BIT<br />

DP3 - INNOVATION MEETS RETRO: THE RETURN OF THE HOUSE CALL BY YOUR SIDE PEDIATRICS AT UVA<br />

Jim Ogan, MD<br />

DP4 - USE OF THE FUNCTIONAL ELECTRICAL STIMULATION BIKE IN THE POST-OPERATIVE REHABILITATION OF A CHILD<br />

WITH CEREBRAL PALSY<br />

Tanya M. St. John, BSc MSc MScPT; Jacqueline Purtzki, MD FRCPC<br />

DP5 - FIGHTING OSTEOPENIA WITH WHEELCHAIR BOXING: A NOVEL WAY TO BUILD A HEALTHIER SKELETON<br />

Mary E. Gannotti, PT PhD; Robyn K. Fuchs, PhD<br />

DP6 - A NEW MODEL OF CARE: A NURSE PRACTITIONER LED COMPLEX CARE CLINIC<br />

Tessa Gresley-Jones, BScN MN, NP-Paeds<br />

DP7 - COMMUNITY SERVICE: STRUCTURED DANCE CLASS FOR CEREBRAL PALSY AFTER SCHOOL<br />

Citlali Lopez-Ortiz, PhD; Tara Egan, PT; Mary Dubon, MD; Deborah Gaebler-Spira, MD<br />

DP8 - ‘NEUROGAME’ THERAPY FOR REHABILITATION IN CHILDREN WITH CEREBRAL PALSY<br />

Torey J. Gilbertson, PT DPT PCS; Dianne Rios, OTR/L ScD; Katherine Miller, BS; Karli Gutman, BS; Hanna Prange, BS; Robert Price, MSME; Chet Moritz,<br />

PhD; Sarah W. McCoy, PT PhD FAPTA<br />

DP9 - WORLDWIDE CLINICAL PROGRAMS WITH DYSPORT® (ABOBOTULINUMTOXINA) IN SPASTICITY AND FUNCTIONAL<br />

IMPAIRMENTS IN CHILDREN WITH DYNAMIC EQUINUS FOOT DEFORMITY DUE TO CEREBRAL PALSY<br />

Anissa Tse, BMBS FRCSI FFPM; Philippe Picaut, Pharm D DABT; Jorge Carranza, MD; Mark Gormley, MD; Gadi Revivo, DO; Barry S. Russman, MD; Ann<br />

Tilton, MD; Mauricio R. Delgado, MD<br />

DP10 - MANGEMENT OF THE PEDIATRIC PATIENT WITH NONORAL FEEDING NEEDS; IMPLEMENTING A MODEL OF CARE<br />

Wendelin A. Burdo-Hartman, MD; Garey Noritz, MD<br />

DP11 - A DYNAMIC RESPONSE AFO IN THE CORRECTION OF CROUCH GAIT FOR A CHILD WITH CP<br />

Maya Evans, MD; Kimberley Zvara, MD; Xue-Cheng Liu, MD PhD; Davin Heyd, CO<br />

DP12 - HONK! AN INCLUSIVE THEATRE PROGRAM FOR TYPICAL AND SPECIAL NEEDS CHILDREN<br />

M.W. Shrader, MD; Carol Shrader, BA; Steve Rodriquez, NA; Sharon Rodriquez, NA; C<strong>and</strong>ice Welsh, BSN<br />

DP13 - A CONCEPT ANALYSIS OF CONSCIOUSNESS<br />

Lisa C. Letzkus, RN MSN<br />

DP14 - A SYSTEMS APPROACH TO THE DEVELOPMENT OF FEEDING SKILLS AND FEEDING DISORDERS<br />

Rhoda P. Erhardt, MS OTR/L FAOTA<br />

DP15 - IMPACT OF THE AFFORDABLE CARE ACT ON PEOPLE WITH CHILD-ONSET DISABILITIES<br />

Rishi Agrawal, MD, MPH<br />

DP16 - ASSISTIVE TECHNOLOGY AND NEURO-DEVELOPMENTAL TREATMENT: IMPROVING FUNCTION THROUGH<br />

ENHANCING MOTIVATION<br />

John Damiao, MS OTR/L ATP; Jamie Clemson, PT C/NDT; Patricia Longinott, PT DPT C/NDT; Lisa Gradziel, PT DPT C/NDT<br />

DP17 - CHARACTERISTICS OF DYSPLASTIC ACETABULA IN CEREBRAL PALSY WITH THREE-DIMENSIONAL COMPUTER<br />

EVALUATION: A CASE REPORT<br />

Marek Jozwiak, MD PhD; Michal Rychlik, PhD; Po-Jung Brian Chen, MD PT; Maciej Idzior, MD PhD Bartosz J. Musielak, MD<br />

DP18 - SPORTS PARTICIPATION BY AN INDIVIDUAL WITH CERBRAL PALSY AFTER INTRATHECAL BACLOFEN PUMP<br />

PLACEMENT<br />

Louise Spierre, MD; Elise Carrigan, ARNP FNP-BC, Christine Thorogood, MD<br />

DP19 - OUTCOME IN CHILDREN WITH CEREBRAL PALSY UNDERGOING ADDUCTOR MYOTOMY: CAREGIVER RESPONSES<br />

ON THE RIC CARE AND COMFORT QUESTIONNAIRE<br />

Courtney M. Chapman, MS; Joanna Foley, BSN; Beverly Tann, BSN; Vineeta T. Swaroop, MD; Luciano Dias, MD; Deborah Gaebler-Spira, MD<br />

DP20 - HAITI, POSITIVE CHANGES AFTER THE EARTH QUAKE: IMPROVING THE LIVES OF ONE FAMILY-ONE VILLAGE AT A<br />

TIME<br />

Kerstin M. Sobus, MD, PT; Aubree Dell, RN<br />

DP21 - DEVELOPMENTAL TRAJECTORIES OF CHILDREN WITH CEREBRAL PALSY: THE ‘ON TRACK’ STUDY<br />

Doreen Bartlett, PT/PhD; Sarah McCoy, PT PhD; Lisa Chiarello, PT PhD; Robert Palisano, PT ScD; Lynn Jeffries, PT Phd; Alyssa LaForme Fiss, PT PhD;<br />

Steven Hanna, PhD; Jan Willem Gorter, MD PhD<br />

54<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Demonstration Posters<br />

DP22 - PEDIATRIC COMPLEX CARE: AN INTEGRATED APPROACH TO UNITE HOSPITAL AND COMMUNITY BASED CARE<br />

Joanna Soscia, MN; Sherri Adams, MN; Kim Milbury, MN<br />

DP23 - THE SPECIAL NEEDS PROGRAM: A MODEL CARE COORDINATION PROGRAM AT THE CHILDREN’S HOSPITAL OF<br />

WISCONSIN<br />

Tera Bartelt, RN; Sarah Johaningsmeir, BA; Alex<strong>and</strong>er L. Okun, MD; Holly Colby, RN; John Gordon, MD<br />

DP24 - TRANSITION AND TELEHEALTH: WILL THE TWO “TS” EVER CROSS?<br />

S<strong>and</strong>ra Whisler, MD MS; Jennifer Benson, MD; Lourdes Vizcarra, MD; Jennifer DiTucci, RD; Adrian Rodriquez; Mario Torres, BBA<br />

DP25 - THE F-WORDS IN CHILDHOOD DISABILITY: A VALUES STATEMENT FOR CHILDREN, FAMILIES AND SERVICE<br />

PROVIDERS<br />

Peter Rosenbaum, MD; Jan Willem Gorter, MD PhD; Niina Kolehmainen, PhD; Chantal C<strong>and</strong>en, PhD; Diane Kay<br />

DP26 - WHEN TWO OF THE SAME DISCIPLINE ARE TREATING; CONCURRENT THERAPY IN PEDIATRIC REHABILITATION<br />

Marilyn Wright, BscPT MEd MSc; S<strong>and</strong>y Gaik, BSc OT MEd; Kathleen Dekker, MHSc<br />

DP27 - USE OF ROBOTICS IN A PEDIATRIC CONSTRAINT INDUCED MOVEMENT THERAPY PROGRAM<br />

Teressa Garcia Reidy, MS, OTR/L; Frank Pidcock, MD; Joan Carney, EdD; Erin Naber, PT DPT; Patricia Turlington, PT, PCS<br />

DP28 - PASSIVE STRETCHING AND ACTIVE STRENGTHENING THROUGH USE OF ROBOTICS, COMBINED WITH<br />

FUNCTIONAL STRENGTH TRAINING, TO IMPROVE GROSS MOTOR ABILITY IN CHILDREN DIAGNOSED WITH CEREBRAL<br />

PALSY: A CLINICAL APPROACH<br />

Sarah Grubich, DPT; Jessica Trenkle, DPT<br />

DP29 - POSITIONING FOR HIP HEALTH: A CLINICAL RESOURCE<br />

Lynore McLean, BScPT; Sonja Magnuson, MScRehabSc; Sherylin Gasior, MScOT<br />

DP30 - DELIVERING UPPER LIMB REHABILITATION FOR CHILDREN WITH UNILATERAL CEREBRAL PALSY: BARRIERS AND<br />

ENABLERS<br />

Leanne Sakzewski, PhD, OT; Jenny Ziviani, PhD OT; Roslyn N. Boyd, PhD PT<br />

DP31 - IMPLEMENTATION OF ASK ME 3 TO ENHANCE HIGH-RISK PATIENTS’ KNOWLEDGE AND CURIOSITY OF THEIR<br />

SPECIFIC DIAGNOSES AND AT-HOME CARE PLANS<br />

Kim Marber, MSN, RN, CPN<br />

DP32 - HEALTHLINK, A CURRICULUM FOR NURSES<br />

Kathy K. Pagliuca, RN<br />

DP33 - CREATING A TOOL TO PROMOTE ENABLING AND EMPOWERMENT OF FAMILIES IN A PEDIATRIC REHABILITATION<br />

CENTER<br />

Louise Koclas, MD; Sylvie Thibault, College; Martine Paternotte, BSc<br />

DP34 - G AND GJS: A MULTI-DISCIPLINARY ENTERAL FEEDING PROGRAM<br />

Joanna Soscia, MN; Sherri Adams, MN; Kim Milbury, MN<br />

DP35 - TRAINING WITH THE AMADEO HAND ROBOT IN CHILDREN WITH HEMIPLEGIA: A PILOT STUDY<br />

Lauri Bishop, DPT; Andrew Gordon, PhD; Heakyung Kim, MD<br />

DP36 - A STRIDE SIMULATOR. A DEVELOPMENT OF A DEVICE IN LINE WITH LATEST KNOWLEDGE<br />

Bjorg Gudjonsdottir, MS; Haraldur Thorkelsson, BS<br />

DP37 - USE OF VIDEO-BASED MODELING IN OCCUPATIONAL THERAPY FOR CHILDREN WITH DEVELOPMENTAL<br />

DISABILITIES<br />

Kristen Brevoort, MOT OTR/L; Jennifer Schmit, PhD DPT<br />

DP38 - OFF-AXIS ELLIPTICAL TRAINING TO REDUCE GAIT ABNORMALITIES IN CHILDREN WITH CEREBRAL PALSY<br />

Liang-Ching Tsai, PhD; Yupeng Ren, MS; Liang Wang, MS; Song Joo Lee, MS; Sang Hoon Kang, PhD; Deborah Gaebler-Spira, MD; Liqun Zhang, PhD<br />

DP39 - CAN PATTERNED MULTI-CHANNEL ELECTRICAL STIMULATION BE SIMULTANEOUSLY DELIVERED DURING<br />

ROBOTIC GAIT TRAINING IN CHILDREN WITH CEREBRAL PALSY?<br />

Jilda N. Vargus-Adams, MD; Jennifer Schmit, DPT PhD; Eryn Olesinski; Amy Bailes, PT PCS<br />

DP40 - SIT UP, GET UP AND GO: ESTABLISHING A PROGRESSIVE MOBILITY PROGRAM<br />

Lisa C. Letzkus, MSN<br />

AACPDM 67 th Annual Meeting • Research & Practice 55


AACPDM Awards<br />

Corbett Ryan Pathways Pioneer Award<br />

The recipient of the award will represent excellence in the pursuit of <strong>and</strong> quality of life who also happens to<br />

live with a personal physical challenge. The recipient will have the following:<br />

• Motivation <strong>and</strong> achievement in pursuing <strong>and</strong> accomplish ing personal <strong>and</strong> vocational/professional goals<br />

• A creative approach to their pursuit of education <strong>and</strong> par ticipation in their vocation/profession<br />

• A positive approach to life. The recipient serves as a role model to persons in their sphere of influence <strong>and</strong> demonstrates sensitivity to<br />

others <strong>and</strong> respect <strong>for</strong> self.<br />

Cathleen Lyle Murray Award<br />

The Cathleen Lyle Murray Foundation award recipient is selected on the basis of their impact on society through their humanitarian ef<strong>for</strong>ts<br />

to enhance the lives of persons with severe multiple disabilities. The award recipient demonstrates an effective <strong>and</strong> unique humanitarian<br />

approach through advocacy, legislation, clinical services, life experiences, etc., that can be shared with the AACPDM to help promote bet ter<br />

underst<strong>and</strong>ing of <strong>and</strong> advancement in society of persons with disabilities.<br />

Gayle G. Arnold Award <strong>for</strong> Best Free Paper<br />

Two Gayle Arnold awards will be presented at the 2013 Annual Meeting. One award is presented at the 2012 AACPDM Annual Meeting.<br />

The second award is given to the best abstract submitted <strong>for</strong> the 2013 Annual meeting. To be eligible <strong>for</strong> this award, an abstract is first<br />

nominated by the Awards Committee. Then the authors are invited to submit a manuscript <strong>for</strong> final judging. The award of $2,000 is provided<br />

by the Children’s Hospital in Richmond, Virginia. The editors of Developmental Medicine <strong>and</strong> Child Neurology Journal request to have first<br />

option on publication of this winning paper, as long as the authors comply with the publishing requirements of Mac Keith Press.<br />

CPI Research Foundation’s Best Scientific Poster Award<br />

Each year, the AACPDM awards the CPI Research Foundation’s Best Scientific Poster Award. The award recipient is selected as the highest<br />

rated poster from all committee member ratings.<br />

Lifetime Achievement Award<br />

This award is specifically selected by the First Vice President. The recipient of this award has, during their lifetime, made creative contribu tions<br />

of outst<strong>and</strong>ing significance to the field of medicine <strong>and</strong> <strong>for</strong> the benefit of patients with cerebral palsy <strong>and</strong> other childhood-onset disabilities.<br />

Fred P. Sage Award<br />

The Sage Award is given to the best audio/visual submission presenting clinical, research, or educational material on CD-ROM or DVD in a<br />

digital <strong>for</strong>mat. The award is named after Fred Sage, MD, past president (1981) <strong>and</strong> Chairman of the A/V Com mittee of the AACPDM. Dr. Sage<br />

envisioned the great potential of audio-visual use in the <strong>Academy</strong>. He advocated <strong>for</strong> ways to popularize this method of teaching, <strong>and</strong> this<br />

interest eventually lead to the Fred P. Sage Award <strong>for</strong> the best <strong>program</strong> submitted each year.<br />

Mentorship Award<br />

This award recognizes an individual who has demonstrated outst<strong>and</strong>ing leadership <strong>for</strong> trainees <strong>and</strong> colleagues in the field of cerebral palsy<br />

<strong>and</strong> other developmental disabilities. The Research Committee considers the breadth <strong>and</strong> depth of the nominee’s contribution <strong>and</strong> impact<br />

on improving services <strong>and</strong> care, promoting professional education <strong>and</strong> research <strong>for</strong> indi viduals with disabilities, <strong>and</strong> the sustainability of the<br />

nominee’s mentorship over time. The award recipient must be a current member of the AACPDM.<br />

Mac Keith Press Promising Career Award<br />

Mac Keith Press sponsors this award <strong>for</strong> the best Free Paper or Scientific Poster by an author who is within four years of completion of<br />

training <strong>and</strong> commencement of current career. The award recipient must be a member of the AACPDM or have an application pending. The<br />

recipient is selected by the Awards Committee on site <strong>and</strong> awarded after the Annual Meeting.<br />

Duncan Wyeth Award<br />

This award is named after Duncan Wyeth, who has been both an outst<strong>and</strong>ing athlete <strong>and</strong> advocate. The award is presented to an individual<br />

who has promoted sports <strong>and</strong>/or recreation in their area <strong>for</strong> individuals with disabilities. The recipient may be an athlete, coach, or sponsor.<br />

56<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


Connecting with AACPDM<br />

Future Annual Meetings<br />

68 th Annual Meeting<br />

September 10-13, 2014 – Hilton San Diego Bayfront, San Diego, CA, US<br />

AACPDM office<br />

555 E Wells St. Suite 1100<br />

Milwaukee, WI 53202<br />

414-918-3014<br />

2012-2013 AACPDM Board of Directors<br />

Maureen O’Donnell, MD, MSc, FRCPC - President<br />

Richard D. Stevenson, MD – First Vice President<br />

Darcy Fehlings, MD, MSc, FRCPC – Second Vice President<br />

Scott Hoffinger, MD – Acting Treasurer/Past President<br />

Joshua Hyman, MD – Treasurer-elect<br />

Annette Majnemer, PhD, OT – Secretary<br />

Johanna Darrah, PhD, PT – Secretary-elect<br />

Joseph Dutkowsky, MD – Past President<br />

Mauricio R. Delgado, MD, FRCPC, FAAN - Director<br />

Unni Narayanan, MBBS, MSc, FRCS(C) – Director<br />

Jilda Vargus-Adams, MD, MSc – Director<br />

Laura Vogtle, PhD, OTR/L, FAOTA - Director<br />

Lesley Wiart, PhD, PT – Director<br />

Gordon Worley, MD – Director<br />

Ex-Offficio Board Members<br />

Peter Baxter, MD – Editor DMCN<br />

Alfred Scherzer, MD, MSPH, EdD – Historian<br />

Lynne Romeiser Logan, PT, PCS, PhD – Newsletter editor<br />

Susan Sienko Thomas, MA – Webmaster<br />

Mark Romness, MD – Scientific Program co-chair<br />

Lisa Samson-Fang, MD – Scientific Program co-chair<br />

Tracy L Burr, CAE, BBA – Executive Director<br />

2013 Scientific Program Committee<br />

Mark Romness, MD – Scientific Program co-chair<br />

Lisa Samson-Fang, MD – Scientific Program co-chair<br />

Iona Novak, PhD - Scientific Program co-chair-elect<br />

Wade Shrader, MD – Scientific Program co-chair elect<br />

Christine Houlihan, MD<br />

Mary Ann Nelin, MD<br />

Katharine Alter, MD<br />

Edward Dabrowski, MD<br />

Stephanie DeLuca, PhD<br />

Carol Boliek, PhD<br />

Benjamin Shore, MD FRCSC<br />

Elaine Stashinko, PhD, RN<br />

Sharon Ramey, PhD<br />

Kat Kolaski, MD<br />

Barbara Weissman, MD<br />

Deborah Gaebler-Spira, MD<br />

2013 Local Host<br />

Elizabeth Moberg-Wolff, MD<br />

AACPDM 67 th Annual Meeting • Research & Practice 57


Meeting Policies <strong>and</strong> Disclaimers<br />

Disclaimers FDA Disclaimer<br />

Some medical devices or pharmaceuticals not cleared by the FDA or cleared by the FDA <strong>for</strong> a specific use only may be used “off-label” (i.e.,<br />

a use not described on the product’s label) if, in the judgment of the treating physician, such use is medically indicated to treat a patient’s<br />

condition. “Off label” uses of a device or pharmaceutical may be described in AACPDM educational <strong>program</strong>s or publications so long as<br />

the lack of FDA clearance <strong>for</strong> such uses is also disclosed. Results from scientific studies known to the author or presenter relating to the<br />

described intended use should be discussed, if so doing will not adversely affect the study or violate some other regulatory requirement.<br />

Some drugs or medical devices described or demonstrated in <strong>Academy</strong> educational materials or <strong>program</strong>s have not been cleared by the<br />

FDA or have been cleared by the FDA <strong>for</strong> specific use only. The FDA has stated that it is the responsibility of the physician to determine the<br />

FDA clear ance status of each drug or device he or she wishes to use in practice.<br />

<strong>American</strong>s with Disabilities Act<br />

The AACPDM wishes to ensure that no individual with a disabil ity is excluded, denied services, or otherwise treated differ ently than other<br />

individuals because of the absence of auxiliary aides <strong>and</strong> services. If you need any auxiliary aids or services identified in the <strong>American</strong>s with<br />

Disabilities Act, please notify AACPDM at least 14 working days prior to the <strong>program</strong> to al low time to acquire the support needed.<br />

Insurance/Liabilities <strong>and</strong> Disclaimer<br />

The AACPDM will not be held responsible <strong>for</strong> injuries or <strong>for</strong> loss or damage to property incurred by participants or guests at the Annual<br />

Meeting, including those participating in social events <strong>and</strong> fitness activities. Participants <strong>and</strong> guests are encouraged to take out insurance<br />

to cover loss incurred in the event of cancellation, medical expenses, or damage to or loss of personal effects when traveling outside of<br />

their own country. The AACPDM cannot be held liable <strong>for</strong> any hindrance or disruption of Annual Meeting proceedings arising from natural,<br />

political, social or economic events, or other un<strong>for</strong>eseen incidents beyond its control. Registration of a participant implies acceptance of this<br />

condition. The material presented at this continuing medical education activity is made available <strong>for</strong> education purposes only. The material<br />

is not intended to represent the only, nor necessarily the best, methods or procedures appropriate <strong>for</strong> the medical situations discussed, but<br />

rather is intended to present an approach, view, statement, or opinion of the faculty that may be helpful to others who face similar situations.<br />

Disclosure<br />

The presenting authors on the free papers <strong>and</strong> posters are underlined. All corresponding authors were respon sible <strong>for</strong> querying the coauthors<br />

regarding the disclosure of their work. The AACPDM does not view the existence of these disclosed interests or commitments as<br />

necessarily implying bias or decreasing the value of the author’s participation in the course. To follow ACCME guidelines, the <strong>Academy</strong> has<br />

identified the options to disclose as follows:<br />

a. Research or institutional support has been received<br />

b. Miscellaneous, non-income support (e.g. equipment or services), commercially derived honoraria, or other non-re search related funding<br />

(e.g. paid travel) has been received<br />

c. Royalties have been received<br />

d. Stock or stock options held<br />

e. Consultant or employee<br />

f. Received nothing of value<br />

g. Did not respond or unable to contact<br />

One or more of these letters appears by each author’s name indicating their disclosure.<br />

Attire<br />

Attire <strong>for</strong> the educational sessions of the meeting is business casual. Please bring a jacket or sweater, as room temperatures may vary.<br />

Camera/Recording Policy<br />

It is the policy of AACPDM that no cameras are permitted in the meeting sessions, exhibit hall, or poster session. Please refrain from taking<br />

any pictures or video recording.<br />

58<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


AACPDM Member Benefits<br />

How can you benefit from membership in the <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine? - put in a shaded box<br />

below the banner<br />

Annual Meeting : An international <strong>for</strong>um <strong>for</strong> the dissemination <strong>and</strong> exchange of new knowledge, ideas <strong>and</strong> educational in<strong>for</strong>mation<br />

between participants from all disciplines.<br />

Each year, the <strong>Academy</strong> offers International Scholarships <strong>and</strong> Student Scholarships to members to assist with the cost of attending the<br />

Annual Meeting . Financial support <strong>for</strong> the creation of new international meetings that are related to cerebral palsy <strong>and</strong> developmental<br />

medicine is also available through the Development Grant.<br />

Gr<strong>and</strong> Round Webinars: Periodic interactive lectures will be presented by AACPDM members <strong>and</strong> on various topics that are of significant<br />

interest to our membership. Participants have the option to communicate with the speaker online or by telephone. Only current AACPDM<br />

members have access to past webinars on the website.<br />

Networking: Membership in AACPDM facilitates making contacts with medical professionals <strong>and</strong> researchers with similar interests.<br />

This diverse group of professionals is bound together by a unified interest in improving the lives of people with cerebral palsy <strong>and</strong><br />

developmental disabilities.<br />

Publications: Developmental Medicine <strong>and</strong> Child Neurology (DMCN) is the official journal of the AACPDM. This peer reviewed journal is<br />

recognized internationally as the leader in the field. Fellow Members receive a FREE subscription to DMCN, or they may choose to select<br />

from a list of Clinics in Developmental Medicine series books in place of the DMCN Journal.<br />

AACPDM creates a quarterly newsletter <strong>and</strong> periodic broad cast emails about various events <strong>and</strong> activities in the industry. Members assist<br />

in developing in<strong>for</strong>mational materials to keep the public in<strong>for</strong>med about advances in treating cerebral palsy <strong>and</strong> other developmental<br />

disabilities.<br />

Research: AACPDM offers the opportunity <strong>for</strong> members to apply <strong>for</strong> a Re search Planning Grant. The purpose of this grant is to provide<br />

financial support to bring together investigators from geo graphically disparate locations, obtain statistical consultation <strong>and</strong> develop a multicenter<br />

research study plan. The goal is to provide the <strong>for</strong>um <strong>and</strong> initial planning to develop a successful grant submission <strong>for</strong> full funding<br />

through some larger agency (e.g., NIH, UCP, NIDRR, CDC, CIHR etc). The grant should focus on an important clinical question relevant to the<br />

membership of AACPDM <strong>and</strong> the involvement of a multidisciplinary team is expected.<br />

Website: Members can visit the Members Only section of the AACPDM website <strong>for</strong> a wide variety of in<strong>for</strong>mation not available to non<br />

members including Sage Award Videos, membership contact in<strong>for</strong>mation <strong>and</strong> other educational opportunities.<br />

Committees: The heart of the <strong>Academy</strong> is our committees. These com mittees offer networking <strong>and</strong> opportunities to explore areas of deep<br />

interest with a wide range of professionals from the membership.<br />

• Adapted Sports <strong>and</strong> Recreation<br />

• Advocacy<br />

• Awards<br />

• Continuing Education<br />

• Complex Care<br />

• International Affairs<br />

• Life Span Care<br />

• Membership<br />

• Multimedia Education<br />

• Nominating<br />

• Research<br />

• Scientific Program<br />

• Treatment Outcomes<br />

AACPDM 67 th Annual Meeting • Research & Practice 59


AACPDM 67th Annual Meeting Registration Form<br />

Early Bird Deadline: SEPtember 4, 2013<br />

Advance Registration Deadline: September 27, 2013<br />

You may also register online at www.aacpdm.org/meetings/2013<br />

After September 18, you may register on-site only.<br />

Please print or type clearly. This is how your in<strong>for</strong>mation will appear on your name badge.<br />

Name: First/Given<br />

Last/Family<br />

Degree(s), Designation<br />

Company/Institution Name<br />

Address<br />

City, State or Province, Postal Code, Country<br />

Phone<br />

Email<br />

Special Needs (accessibility, diet, other) Please indicate:______________________________________________________________<br />

I am a member of GCMAS: yes no<br />

I am a member of the following societies: _____________________________________________________________________________<br />

Continuing Medical Education CME/CEU: Please select all that apply: MD PT OT RN Certificate of Attendance<br />

Annual Meeting Basic Registration Rates<br />

Early Bird<br />

Registration<br />

Advance<br />

Registration<br />

Onsite<br />

Registration<br />

By September 4 September 5–18 after September 18<br />

AACPDM Member: ID #____________________________ $470* $570* $600<br />

*Residents of Wisconsin may receive the AACPDM Member rates listed above. Write WI in the Member ID space above.<br />

Non-Member $605 $725 $750<br />

Full-Time Student $170 $200 $275<br />

Milwaukee Area Student $25 $25 $25<br />

Past President (Complimentary Instructional Courses) $250 $300 $300<br />

One Day Pass: Day attending: __________<br />

(if more than one day, must pay full registration fee) (**Wednesday One Day Pass<br />

includes GCMAS Symposium <strong>and</strong> one Pre-Conference Session)<br />

$200<br />

Wed. only: $150**<br />

$275<br />

Wed. only: $150**<br />

$300<br />

Wed. only: $150**<br />

Accompanying Guest*** $150 $150 $175<br />

Guest Name:______________________________________________________________ (this name will appear on the name badge)<br />

*** Guest rates cover Social Events: President’s Welcome Reception, Wine & Cheese Exhibit/Poster Viewing Session, <strong>and</strong> Harley-Davidson Museum® event.<br />

Session/Event Registration Fees<br />

Wednesday, October 16, 2013<br />

GCMAS Symposium ($75):<br />

Morning Session 8:00 am - 12:00 pm<br />

S1: Changes In Practice due to Motion Analysis Research<br />

Pre-Conference Sessions ($75): Select ONE<br />

Afternoon Session 1:00 pm - 5:00 pm<br />

PC1: Promoting health-related fitness beyond childhood<br />

PC2: Bridge to Independence: A model <strong>for</strong> family curriculum<br />

development<br />

PC3: New Clinical Horizons <strong>and</strong> Emerging Mobility Techniques<br />

PC4: Review of Ultrasound Guidance <strong>for</strong> Botulinum toxin Therapy<br />

Thursday, October 17, 2013<br />

Breakfast Session ($35): Rank 1st, 2nd & 3rd choice. Attendance is limited<br />

(50 max.)<br />

BRK1____ BRK 2____ BRK 3____ BRK 4____<br />

BRK 5____ BRK 6____<br />

Instructional Courses ($50): Select ONE.<br />

IC1 - IC13 & IC32 IC#_____________<br />

60<br />

<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • PRELIMINARY PROGRAM


AACPDM 67th Annual Meeting Registration Form<br />

Session/Event Registration Fees<br />

Friday, October 18, 2013<br />

Breakfast Session ($35): Rank 1st, 2nd & 3rd choice.<br />

Attendance is limited (50 max.)<br />

BRK 7____ BRK 8____ BRK 9____ BRK 10____<br />

BRK 11____ BRK 12____<br />

Instructional Courses ($50): Select ONE.<br />

IC14 - IC25 IC#____________<br />

International Affairs Luncheon ($45)<br />

Harley-Davidson Museum® Event ($50)<br />

Saturday, October 19, 2013<br />

Breakfast Session ($35): Rank 1st, 2nd & 3rd choice.<br />

Attendance is limited (50 max.)<br />

BRK 13____ BRK 14____ BRK 15____ BRK 16____<br />

BRK 17____ BRK 18____<br />

Instructional Courses ($50 each): Select ONE.<br />

IC25 - IC31 & IC33 - IC38 IC#____________<br />

IC32 has moved to Thursday, October 17, 2013<br />

Complimentary Special Events – Registration Required<br />

One ticket <strong>for</strong> each of the following events is complimentary, but tickets<br />

must be requested in advance. Tickets are only available to registered<br />

attendees <strong>and</strong> their registered accompanying guests.<br />

Tuesday, October 15<br />

Orthopedic Surgery Center <strong>for</strong> Motion Analysis tour<br />

Wednesday, October 16<br />

Children’s Hospital of Wisconsin tour<br />

President’s Welcome Reception<br />

Yes, I plan on attending the President’s Welcome Reception, <strong>and</strong><br />

my ____ guest(s) will be accompanying me.<br />

Thursday, October 17<br />

Membership Business Meeting & Boxed Lunch (AACPDM membership<br />

required)<br />

Yes, I am a member, <strong>and</strong> I plan on attending the Membership<br />

Business Meeting & Boxed Lunch.<br />

Friday, October 18<br />

Flashpoint Luncheon<br />

Yes, I plan to attend the Flashpoint Luncheon<br />

TOTAL REGISTRATION<br />

Basic Registration Fee<br />

Accompanying Guest(s)<br />

GCMAS Symposium<br />

Pre-Conference Session (Max of 1) ($75)<br />

Breakfast Sessions (Maximum of 3) ($35 each)<br />

$_________<br />

$_________<br />

$_________<br />

$_________<br />

$_________<br />

Instructional Courses (Max of 3) ($50 each)<br />

$_________<br />

International Affairs Luncheon ($45)<br />

$_________<br />

Harley-Davidson Museum® Event ($50)<br />

$_________<br />

AACPDM Endowment Fund Donation (optional)<br />

$_________<br />

TOTAL DUE $_________<br />

Payment In<strong>for</strong>mation<br />

Please make checks payable to AACPDM in US Dollars or provide credit card<br />

in<strong>for</strong>mation.<br />

Check enclosed<br />

VISA MC AMEX Discover<br />

Card Number __ __ _ ___ _ ___ / __ __ __ __ __ __ / __ __ __ ___ _ __ / __ __ __ __ __ __<br />

Expiration Date ___ __ _ __ / ___ __ _ __<br />

Security Code ___ __ _ _<br />

Signature: ____________________________________________<br />

Registration Deadline: All registration <strong>for</strong>ms must be received in the<br />

AACPDM office by September 27, 2013. After that date, registrations will<br />

only be accepted on site at the Annual Meeting.<br />

Submission In<strong>for</strong>mation<br />

Online: Register online at www.aacpdm.org/meetings/2013.<br />

Fax: Please fax this registration <strong>for</strong>m along with credit card payment to the<br />

AACPDM Office at (414)276-2146.<br />

Mail: Please mail this <strong>for</strong>m with appropriate check or credit card payment<br />

to:<br />

AACPDM<br />

555 E. Wells Street, Suite 1100<br />

Milwaukee, WI 53202<br />

Email: info@aacpdm.org<br />

Cancellation Policy: Attendee Cancellation Policy: All requests <strong>for</strong> cancellation must be received in writing by September 27, 2013.<br />

A 75% refund will be granted <strong>for</strong> requests received be<strong>for</strong>e this date. No refunds will be granted after September 27, 2013. All refunds will be processed after<br />

the meeting takes place. Provider Cancellation Policy: Cancellations of the annual meeting activities by the AACPDM will result in all pre-registered attendees<br />

receiving a 100% refund.<br />

A confirmation of your registration will be mailed to you within 14 business days of receipt of your <strong>for</strong>m. If you do not receive a confirmation within 14 days,<br />

please call the AACPDM Office at (414) 918-3014 or email info@aacpdm.org.<br />

AACPDM 67 th Annual Meeting • Research & Practice 61

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!