program - American Academy for Cerebral Palsy and ...

Wednesday, October 16: Pre-Conference Sessions
1:00 pm – 5:00 pm PC 1 - Promoting health-related fitness beyond childhood for persons with
childhood onset disability
Co-Sponsored by the Lifespan Care Committee
Authors/Presenters: Garey Norvitz, MD; Jim Rimmer, PhD; Margaret A. Turk, MD; Mark Peterson, PhD; Wilma van der Slot, MD, PhD; Debbie
Thorpe, PT, PhD, PCS.
Course Level: Intermediate
Purpose: Individuals with childhood-onset disabilities are the least physically active members of society, placing them at high risk for the
co-morbidities associated with inactivity. This AACPDM specialty day course will focus on the promotion of health and fitness for adults with
cerebral palsy (CP). By virtue of discussing the type and amount of physical activity required by adults with CP to improve and/or maintain
their health and fitness, this course will provide consumers and rehabilitation professionals knowledge with which to help design the most
appropriate health and fitness programs to promote community participation, help minimize or prevent secondary conditions, and enhance
quality of life for adults with cerebral palsy.
Target Audience: This course is targeted to health care providers for children and adults with childhood onset disabilities. It is also highly
relevant to individuals with childhood-onset disabilities and their families. We welcome professional and consumer organizations, and
individuals who strive for a good lifelong health for individuals with childhood onset disabilities.
Course Summary: This course includes various presentations and an interactive panel discussion. The speakers will identify the evidence
related to cardio metabolic deficiency and recognize the importance of a comprehensive health promotion program for persons with
childhood-onset disability. Pertinent evidence on health and fitness for persons with childhood-onset disabilities will be reviewed. Through
discussion, we will explore strategies to design and implement successful health promotion programs for adults with childhood onset
disability. This AACPDM specialty day on lifespan care for adults with childhood-onset disability will promote knowledge exchange between
(adult and pediatric) health care providers, individuals with childhood-onset disabilities and their families.
Learning Objectives:
1) Recognize and eliminate barriers to physical activity for people with cerebral palsy.
2) Identify key strategies for promoting inclusive health and fitness among people with cerebral palsy.
3) Understand how to use internet-based self-management programs to promote health and fitness in people with cerebral palsy.
4) Identify the successes and barriers of health promotion programs for adults and children with disabilities.
5) Describe the confluence of factors that contribute to accelerated muscle wasting and metabolic dysregulation in cerebral palsy.
6) Identify levels of physical activity, fitness and strain in adults with cerebral palsy.
7) Identify a modular treatment to enhance physical activity and sports in persons with childhood onset disorders.
8) Integrate information from current research and model programs into the design and implementation of fitness and physical activity
programs for adults with cerebral palsy.
1:00 pm – 5:00 pm PC 2 - Bridge to Independence: A model for family curriculum development
Authors/Presenters: Simone C.O. Conceição, Ph.D., University of Wisconsin-Milwaukee, Holly Colby, RN, MS, Children’s Hospital of Wisconsin,
Sarah Johaningsmeir, BA, Medical College of Wisconsin
Course level: Beginner to advanced
Target audience: This session is relevant to healthcare or service providers who want to begin teaching families or to improve their
teaching by applying health literacy principles and adult education strategies for developing their own teaching materials.
Purpose: To teach healthcare professionals how to develop and implement teaching for families using the Bridge to Independence care
coordination curriculum as the model.
Course Summary: This session will provide instruction about how the Bridge to Independence care coordination curriculum was
developed. The curriculum development process used collaborative design with input from care coordination experts, an adult education
expert, primary care providers, and family caregivers. We will demonstrate how to design materials following health literacy principles. Adult
education strategies will be shared to promote optimal learning by family caregivers. We will describe the implementation of the curriculum
with one-on-one teaching by health care providers and teaching by family lay trainers to groups. Outcomes from these teaching efforts will
be shared, including family quality of life, care coordination skills and knowledge, and measures of Lay Trainer teaching skills. We will discuss
practical challenges encountered, such as finding time to teach and attracting an audience. Attendees will use Bridge to Independence as a
model for planning, designing, and practicing how they will deliver education to family caregivers.
Learning objectives:
1) Gain familiarity with the Bridge to Independence care coordination curriculum.
2) Understand principles of health literacy used in curriculum design and implementation.
3) Recognize common challenges to implementing teaching.
4) Apply curriculum design and implementation strategies to teach health and related information to families.
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American Academy for Cerebral Palsy and Developmental Medicine • PRELIMINARY PROGRAM