The information book - Paediatric Integrated Cancer Service

More documents

Recommendations

Info

The Information Book …for families of a child with cancer This information is for you and your family. The information is what other parents and the Children’s Cancer Centre think might be useful. It is about the facilities and services for your child, you and your family. It gives an overview of childhood cancer, diagnosis and treatment in simple terms. The Information Book will answer some questions now, during and after your child’s treatment. It won’t answer every question and won’t give all the information that you want. The best answers and information will come from the team who looks after your child. They know you will have more questions. So, ask the team any questions, big or small, about anything you read or hear. And if you need, ask again. The Information Book has seven sections: Section 1. Your Child is about your child’s diagnosis and what will happen next. Section 2. Section 3. Section 4. Section 5. Section 6. Section 7. Your Child’s Hospital is about the ward, outpatients, the emergency department, hospital and local facilities. Living With Cancer has information to help when your child is at home. Cancer is about children’s cancer, treatment and side effects. More Support lists the people, groups and places where you may find useful information. Tell Me is a reference section describing people your child might meet and procedures your child might have. It explains some medical terms and abbreviations and has Frequently Asked Questions. My Child’s Information is a section where you can file and keep information specific to your child. The contents pages will give you an idea of what’s in the book and where to find it. Hot Numbers and Quick Help guides are also provided in The Information Book. You may wish to use the colour inserts between the sections to mark the topics that are most useful for you. Updated March 2011 1
100129 Updated March 2011 The Information Book is a revised version of A Guide For Parents Of Children With Cancer (2000). The Guide was written and produced by the nursing team at the Children’s Cancer Centre at the RCH for use by parents. It was revised in 2006 as The Information Book. The revision was facilitated by the Paediatric Integrated Cancer Service (PICS) with input from a guiding group of professional staff from RCH, Monash Children’s and Peter Mac. The Information Book, 2011 Edition 2.1, includes sections for regional centres and a review of all existing materials. 100129 Updated March 2011 Thanks are due to The Children’s Cancer Centre Parent Advisory Group (CCCPAG) for their comments, advice and assistance throughout the process. We are grateful to the KOALA Foundation for funding the costs of producing The Information Book. Produced by ERC The Royal Children’s Hospital Melbourne 50 Flemington Road Parkville 3052 Supported by Coordinated and facilitated by the Paediatric Integrated Cancer Service for the Children’s Cancer Centre at The Royal Children’s Hospital, Monash Children’s – Southern Health and The Peter MacCallum Cancer Centre. Updated March 2011 2 Updated March 2011
Page 1: Coordinated and facilitated by the
Page 5 and 6: Outpatients at the CCC (RCH) ......
Page 7 and 8: Hospital facilities................
Page 9 and 10: 4 Cancer Children’s cancers & tre
Page 11 and 12: Parents Cancer Connect - Cancer Cou
Page 13 and 14: Ultrasound scan....................
Page 15 and 16: We are grateful to the KOALA Founda
Page 17 and 18: YOUR CHILD’S DIAGNOSIS: Your chil
Page 19 and 20: Your child’s team Many people wil
Page 21 and 22: The ward The Children’s Cancer Ce
Page 23 and 24: SCHOOL - AGE CHILDREN & ADOLESCENTS
Page 25 and 26: A menu monitor will collect your ch
Page 27 and 28: Sharing the ward The ward is a shar
Page 29 and 30: ...and going home: what to take The
Page 31 and 32: Blood test Before seeing the doctor
Page 33 and 34: Going nuts with Macadamia “Going
Page 35 and 36: Sec.2.0:16 Your child’s hospital
Page 37 and 38: Medical Appointments CCC Outpatient
Page 39 and 40: The Peter Mac team The Paediatric,
Page 41 and 42: Radiotherapy planning Planning for
Page 43 and 44: Generally there are set meal times
Page 45 and 46: Showers & toilet facilities Showers
Page 47 and 48: Social Work Social Work Department
Page 49 and 50: The ward Monash Children’s has tw
Page 51 and 52: • Bring familiar items from home
Page 53 and 54:
Parking Monash Medical Centre’s c
Page 55 and 56:
...and going home: what to take The
Page 57 and 58:
On arrival for your child’s appoi
Page 59 and 60:
Sec.2.2:12 Your child’s hospital
Page 61 and 62:
Social Work and interpreters Social
Page 63 and 64:
Sec.2.2:16 Your child’s hospital
Page 65 and 66:
Sec.2.3:2 Your child’s regional h
Page 67 and 68:
Coming to hospital: what to bring..
Page 69 and 70:
Parent meals Meals will be provided
Page 71 and 72:
Television Please do not bring in a
Page 73 and 74:
Quick Help If you are concerned abo
Page 75 and 76:
Sec.2.3:12 Your child’s regional
Page 77 and 78:
Page 79 and 80:
Food can be bought in the hospital
Page 81 and 82:
Television Please do not bring in a
Page 83 and 84:
Page 85 and 86:
Page 87 and 88:
Page 89 and 90:
• The Hospital Dining Room, First
Page 91 and 92:
Visitors Parents have 24 hours acce
Page 93 and 94:
Page 95 and 96:
Page 97 and 98:
Page 99 and 100:
If the food on the menu does not su
Page 101 and 102:
Associate Unit Managers (AUM) manag
Page 103 and 104:
Page 105 and 106:
Page 107 and 108:
Page 109 and 110:
Morning and afternoon tea is also o
Page 111 and 112:
A Appointments Do you have a follow
Page 113 and 114:
Sec.2.7:8 Your child’s regional h
Page 115 and 116:
Page 117 and 118:
Page 119 and 120:
Pharmacy Pharmacy is located on the
Page 121 and 122:
Hospital facilities ATM cash point
Page 123 and 124:
Page 125 and 126:
Page 127 and 128:
Before the procedure • Talk with
Page 129 and 130:
Fatigue & sleepiness Fatigue is a c
Page 131 and 132:
DO NOT bring your child directly to
Page 133 and 134:
Signs of Measles • Sneezing, wate
Page 135 and 136:
Hints to increase the nutrition lev
Page 137 and 138:
Check your child’s mouth regularl
Page 139 and 140:
Hints to help your child take medic
Page 141 and 142:
The health support plan should be m
Page 143 and 144:
Professional development opportunit
Page 145 and 146:
• When visiting households with a
Page 147 and 148:
Helping your child cope with illnes
Page 149 and 150:
Taking care of your relationships H
Page 151 and 152:
• Some siblings benefit from canc
Page 153 and 154:
With your workmates Sometimes, cont
Page 155 and 156:
• Stay with your brother or siste
Page 157 and 158:
Before doctors decide the best way
Page 159 and 160:
The reason your Consultant Oncologi
Page 161 and 162:
Radiotherapy is a very effective tr
Page 163 and 164:
Examples of complementary & alterna
Page 165 and 166:
Low neutrophil count Neutrophils ar
Page 167 and 168:
Digestive system side effects - Mou
Page 169 and 170:
Hair & skin side effects Some treat
Page 171 and 172:
Reproductive system side effects Im
Page 173 and 174:
Nursing & medical supportive care S
Page 175 and 176:
During this time we are also prepar
Page 177 and 178:
Other assistance Ambulance transpor
Page 179 and 180:
Parent Advisory Group (CCCPAG) The
Page 181 and 182:
KOALA Foundation The Kids Oncology
Page 183 and 184:
Fundraising groups Cancer In Kids A
Page 185 and 186:
The Royal Children’s Hospital Fou
Page 187 and 188:
Seeking Information Websites, the i
Page 189 and 190:
Sec.5:14 More support Updated March
Page 191 and 192:
Associate Nurse Unit Managers Assoc
Page 193 and 194:
Neuropsychologist The Neuropsycholo
Page 195 and 196:
Patient Services Assistants (PSA) P
Page 197 and 198:
Echocardiogram An ultrasound test i
Page 199 and 200:
With the Insuflon in place your chi
Page 201 and 202:
BOLUS - intravenous drug administer
Page 203 and 204:
INTRAVENOUS (IV) - method to admini
Page 205 and 206:
THROMBOCYTOPENIA - a reduction in t
Page 207 and 208:
Frequently asked questions During y
Page 209 and 210:
House cleaning Is it necessary to s
Page 211 and 212:
Sec.6:22 Tell Me… Updated March 2
show all

The information book - Paediatric Integrated Cancer Service

You also want an ePaper? Increase the reach of your titles

Delete template?

Save as template?