John is on dialysis at home, all night seven nights a week, and is due to receive a kidney from hissister later this yearMy most intimate relationship these daysseems to be with my dialysis machine.Emotions of living donation 7
Nicholas has been ondialysis for 21 yearsand is awaiting atransplantDialysis changesyour life,but it doesn’thave to destroy it
When your life isnormal, you wantit to be moreexciting. Whenyou’re on dialysis,you realise howexciting normal is.10 Emotions of living donation
I was glad to have all the tests.At least I know I’m really fit!18 Emotions of living donation
The morning of the transplantMark is donating a kidney to his father, Gordon.On the morning of the operation, they wait sideby side on the ward.When I heard dad needed a kidney I just said -‘OK mate have one of mine’and at that stage I didn’t even knowthat I had two.20 Emotions of living donation
Humour helps us get through this.It’s a practical thing really. I’ve got two workingkidneys and he’s got none. The solution is obvious.22 Emotions of living donation
Kidneys from live donors have thegreatest chance of working well. SurgeonMany donors ask me if there’sanything they won’t be able todo after the operation. Myanswer is that the only thingthey can’t do is donateanother kidney! SurgeonEmotions of living donation 29
I enjoy the moment when the kidney is connectedto its new owner and it works straight away. Surgeon
After the transplantAfter the operation, the donor and recipient will spend anumber of days in hospital to aid recovery - the time variesfor everyone. Both the donor and recipient will return to thehospital for checks. Many donors and recipients feel able toreturn to work after three months.It’s weird, I feel reallygood now I’ve done it.DonorI’ll be takinga lot of medication,but I won’t survivewithout it.Recipient32 Emotions of living donation
It was all aboutgetting backto normal.That’s all wewanted. RecipientEmotions of living donation 35
After 3 months, I’mback running my pub.Regulars say I’m lessshort-tempered and morejovial now – they’re right,that’s how I feel.Gordon, RecipientIt’s not a pain-freeprocess but it’smanageable. RecipientEmotions of living donation 37
Donors and recipientsDonors can be close family members, but can also befamily without a genetic link e.g. a husband or wife, andthere are also occasions where friends are donors.I could see my sister’s sufferingand she was crying so much.All I could think was how quickly canI give my kidney.38 Emotions of living donationTapati travelled fromIndia to donate herkidney to her sister
I really hope he canhave a normal life again.I’d like John to havewhat I have in life.Ours is a good story –a great story.There were no problems.The operationwas the lightat the end ofthe tunnel.We had todo it for thekids. We had nofamily life.Holly is donating her kidneyto her brother John.When best friends Terry and Sue findthat Mark needs a kidney, they both offer,but Terry is the best match.Maggie donated a kidneyto her 16 year old son, Sam.Susan donated a kidneyto her partner Richard.
Fulfilling the dreamThe freedom allowed by transplantation is what matters tomany - the ability to go on holiday, spend a day out withthe family, socialise, eat without worrying about the content,drink fluids freely, and enjoy the feeling of more energy.
After the operation,all the lights wereswitched on.I can drink, I can eat what I want and gowhere I want and I have a social life again.44 Emotions of living donation
The joy of going on a normal family holidayis something I can’t put into words.
I know he doesn’t want meto keep thanking him,so I can’t.Words fail me anyway.If you would like to talk about livingdonation as an option, please ask tospeak to the transplant co-ordinator, theliving donor surgeon or kidney specialistat the hospital, where you, your relativeor friend are being treated.For medical information on theprocess of living donation and details ofsteps involved in the process there area number of new leaflets available.This portfolio has been put together withthe help of many donors and recipientswho have given so generously of theirtime. We would like to thank:TAPATI BANERJEE, TERRY AND SUE BARKER, MANJUBHATTACHARYA, THOMAS BLAND, JOHN ENGLISH,SANDRA HANCHER, NELITA AND PHILIP HOLT,NICHOLAS HUGHES, SUSAN JACKS, MAGGIE ANDSAM JOHNSON, MARILYN JONES, EVRAL LAING, IANLINDON, LYNDA AND MADDIE O’CONNOR, PAULINEPAYNE, HOLLY PULLAR, DAWN AND DAVID ROACH,MARK AND KAREN RYE AND DAUGHTER ERIN,GORDON SIMMONS, MARK SIMMONS, STEPHENSIMPSON, RICHARD SOUTHAN, JUNE THOMAS.Staff at Guy's and St Thomas' NHS Trustand Queen Elizabeth Hospital,Birmingham have also helpedenormously and thanks to:MARIA BAILEY, MR GEOFF KOFFMAN, SUE MOORE,MR ANDREW READY, MR JOHN TAYLOR, AND TOLISA BURNAPP FOR ALL HER SUPPORTAND ENTHUSIASM.With thanks to: MR CHRIS RUDGE AND UKTRANSPLANT FOR THEIR SUPPORT AND TOANDY FARRANT.This portfolio and an accompanyingexhibition have been supported byNovartis, as part of its science andhealth education programme, whichis an important element of a broaderCorporate Citizenship programme. Thecompany is a world leader in the researchand development of medicines to protectand improve health and well-being.Novartis works in partnership withthe transplant community throughoutthe world to support a broad range ofinitiatives and pioneering research intonew treatments for transplant patients.For more information you may alsofind these organisations useful:National Kidney Federationwww.kidney.org.ukHelpline 0845 601 0209Kidney Research UKwww.kidneyresearchuk.orgHelpline 01733 704661Transplant Support Networkwww.transplantsupportnetwork.org.ukHelpline 01535 210 101UK Transplantwww.uktransplant.org.ukHelpline 0117 975 7575
The portfolio has been inspired by the thoughtsand feelings of people who have been throughliving kidney donation. Dr Jennie Jewitt-Harrisand Victoria Lush have spent time talking todonors and recipients about their emotionsbefore and after donation.Photography and interviewsDr Jennie Jewitt-Harrisand Victoria LushDesignBlueprint Design Company Ltd© Novartis 2005