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2013 FINALProgramFor more in<strong>for</strong>mation visitwww.aacpdm.org


2<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


2012-2013 BOARD OF DIRECTORSPresidentMaureen O’Donnell, MD MSc FRCPCChild Health BCUniversity of British ColumbiaVancouver, British ColumbiaFirst Vice PresidentRichard D. Stevenson, MDUniversity of Virginia Children’s HospitalCharlottesville, VirginiaSecond Vice PresidentDarcy Fehlings, MD MSc FRCPCHoll<strong>and</strong> Bloorview KidsRehabilitation HospitalToronto, OntarioTreasurer / Past President (2010-2011)Scott Hoffinger, MDStan<strong>for</strong>d University School of MedicineBerkeley, Cali<strong>for</strong>niaTreasurer-ElectJoshua Hyman, MDNew York Presbyterian Morgan StanleyChildren’s HospitalNew York, New YorkSecretaryAnnette Majnemer, PhD OTMcGill UniversityMontreal, QuebecSecretary- ElectJohanna Darrah, PhD PTUniversity of AlbertaEdmonton, AlbertaPast President (2011-2012)Joseph Dutkowsky, MDBassett Medical CenterCooperstown, New YorkColumbia <strong>Cerebral</strong> <strong>Palsy</strong> CenterNew York, New YorkDirectors at LargeMauricio R. Delgado, MD FRCPC FAANTexas Scottish Rite Hospital <strong>for</strong> ChildrenDallas, TexasUnni Narayanan, MBBS MSc FRCS(C)The Hospital <strong>for</strong> Sick ChildrenToronto, OntarioJilda Vargus-Adams, MD MScCincinnati Children’s HospitalMedical CenterCincinnati, OhioLaura K. Vogtle, PhD OTR/L FAOTAUniversity of Alabama at BirminghamBirmingham, AlabamaLesley E. Wiart, PhD PTAlberta Health ServicesEdmonton, AlbertaGordon Worley, MDDuke University Medical CenterDurham, North CarolinaWelcome to Milwaukee!We are excited, thrilled, <strong>and</strong> yes, downright ‘revved’ about the 67th AnnualScientific Meeting of the AACPDM that is taking place in a beautiful venue inthe heart of downtown Milwaukee. Thank you <strong>for</strong> making the decision to spendprecious time with us. The planning committee has worked hard so that you willnot be disappointed.The theme <strong>for</strong> this year’s meeting is “Research <strong>and</strong> Practice” (alternatively Practice <strong>and</strong> Research) <strong>and</strong> we havedeveloped the meeting content to explore the interrelationships between the two <strong>and</strong> how they necessarily<strong>and</strong> properly work together to improve care <strong>for</strong> children <strong>and</strong> adults with childhood-set disabilities. Thetheme weaves together all of the plenary sessions <strong>and</strong> creates a context <strong>for</strong> all of our sessions together. Wehope you enjoy the sessions! And I hope that you will engage with us in considering how far we have comein our research <strong>and</strong> practice <strong>and</strong> imagining where we need to go.The meeting, as usual, is packed with all kinds of learning opportunities. The pre-conference symposia, thebreakfast seminars, the plenary sessions, the instructional courses, the free paper sessions, <strong>and</strong> the scientific<strong>and</strong> demonstration posters all provide different modalities to participate in professional education. Weincreased the number of free papers from 72 to 90, increased scientific posters from 39 to 67, <strong>and</strong> increasedthe number of demonstration posters. The hard-working Scientific Program Committee reviewed 447abstract submissions this year! And because of the flexibility offered by the venue <strong>and</strong> the quality of thesubmissions, we were able to increase the opportunities <strong>for</strong> faculty to present their work.An essential part of each yearly meeting is the opportunity to connect with friends <strong>and</strong> colleagues fromaround the Globe. As with the Toronto meeting, we have created in<strong>for</strong>mal <strong>and</strong> com<strong>for</strong>table spaces wherewe can meet <strong>and</strong> share ideas. Both the hotel <strong>and</strong> the conference center are replete with spaces <strong>for</strong> in<strong>for</strong>mal,planned or spontaneous gatherings, so we hope you will take advantage of them. We are also incorporatinga touch of technology with the introduction of the first Annual Meeting Mobile App. For those that are techsavvy(or just “wannabes”), we encourage you to give it a whirl <strong>and</strong> let us know what you think!In addition to these in<strong>for</strong>mal opportunities to meet with colleagues, join us <strong>for</strong> our social events! Be surenot to miss out on the President’s Welcome Reception on Wednesday night to be held at the beautifulMilwaukee Art Museum, located on the shores of Lake Michigan. Get reacquainted with old friends <strong>and</strong>meet some new ones while enjoying refreshments, music, <strong>and</strong> art in this remarkable, iconic structure. Duringthe reception we will be introducing the LifeShots Photo Gallery. We had a fabulous response to this newdisplay, so please take a look! Thursday evening is the wine <strong>and</strong> cheese poster <strong>and</strong> exhibit viewing session.Enjoy some Wisconsin cheeses <strong>and</strong> your favorite beverage while perusing the posters <strong>and</strong> exhibits. Finally,on Friday come join us <strong>for</strong> a fun evening of motorcycles, music, <strong>and</strong> dancing at the Harley Davidson Museumjust blocks away from the hotel. The Harley Davidson motorcycle has become symbolic of the <strong>American</strong>spirit <strong>and</strong> this museum captures all the highlights of the “history of the Hog” <strong>and</strong> then some! There will beopportunity to tour the museum, followed by a mid-west buffet, a live b<strong>and</strong>, <strong>and</strong> the opportunity to dance abit. There is a little something <strong>for</strong> everyone at the Harley, <strong>and</strong> dress is casual, so please come!Finally, we would like to say a big “Thank You” to all our sponsors <strong>and</strong> exhibitors who have contributed tomake this meeting a success. The innovations <strong>and</strong> products on display will inspire us!I happen to love Milwaukee <strong>and</strong> I love this annual meeting! If this is your first trip to either, then I thinkyou are in <strong>for</strong> a treat! Enjoy the city <strong>and</strong> all it has to offer. Don’t <strong>for</strong>get to explore the RiverWalk nearby <strong>for</strong>plenty of good shopping, exercise, food, or beer (yes, it’s true) <strong>and</strong> take your picture with “the Fonz”! Enjoythe meeting <strong>and</strong> introduce yourself to someone new. Engage in your sessions <strong>and</strong> join the conversation aswe work together to improve research <strong>and</strong> practice <strong>for</strong> the care of all with child-onset disabilities <strong>and</strong> theirfamilies.Welcome to our Annual Meeting!Richard Stevenson, MDCharlottesville, VAAACPDM First Vice President555 East Wells Street, Suite 1100 • Milwaukee, WI 53202 • Phone (414) 918-3014 • Fax (414) 276-2146 • www.aacpdm.org • info@aacpdm.orgAACPDM 67 th Annual Meeting • Research & Practice 3


Meeting at a GlanceWEDNESDAY, OCTOBER 16, 2013Location7:00 am - 5:30 pm Registration Open Street level, lobby7:30 am - 8:30 am AACPDM Board of Directors <strong>and</strong> Committee Breakfast Room 2028:00 am - 12:00 pm Gait <strong>and</strong> Clinical Movement Analysis Society Symposium Ballroom C&D8:30 am - 12:30 pm Tour of Children’s Hospital of Wisconsin Bus loading, Hilton Hotel,6th St. entrance8:50 am - 11:15 am AACPDM Board <strong>and</strong> Committee Meetings Room 20211:30 am - 12:45 pm AACPDM Board of Directors <strong>and</strong> Committee Lunch Room 2021:00 pm - 5:00 pm AACPDM Board of Directors Meeting Room 201 C&D1:00 pm - 5:00 pm PRE-CONFERENCE SESSIONSPC 1 Promoting Health-Related Fitness Beyond Childhood <strong>for</strong> Persons with Childhood OnsetDisabilityPC 2 Bridge to Independence: A Model <strong>for</strong> Family Curriculum DevelopmentPC 3 New Clinical Horizons <strong>and</strong> Emerging Mobility Technologies - A Research Driven ProcessPC 4 Review of Ultrasound Guidance <strong>for</strong> Botulinum Toxin Therapy: Didactic <strong>and</strong> H<strong>and</strong>s-OnTraining ProgramRoom 103 A&BRoom 102 DRoom 102 A-CRoom 101 A&B6:30 pm - 8:30 pm AACPDM President’s Welcome Reception Milwaukee Art Museum -Bus loading, Hilton Hotel6th St entranceTHURSDAY, OCTOBER 17, 2013Location6:30 am - 6:00 pm Registration Open Street level, lobby6:00 am - 6:45 am Get Fit! Zumba® Upper level, lobby7:00 am - 7:50 am Breakfast Seminars 1-6 See pages 22-247:00 am - 7:50 am Continental Breakfast, Exhibit Hall & Posters Ballroom A&B8:00 am - 10:15 am GENERAL SESSION:Ballroom C&DWelcome & Exchange of Gavel - Maureen O’Donnell, MD <strong>and</strong> Richard Stevenson, MDRichard Stevenson, MDResearch <strong>and</strong> Practice in Childhood Disability: What comes next?Presidential Guest Lectureship - Peter Rosenbaum, MDClassification in Developmental Disability: Evidence of OCD, or a Step Forward?Lifetime Achievement Award PresentationOverview of Scientific Program10:15 am - 10:45 am COFFEE BREAK/EXHIBITS & POSTERS Ballroom A&B10:45 am - 12:45 pm FREE PAPER SESSIONSA. Well BeingB. Therapies <strong>and</strong> Interventions Part 1C. OrthopedicsRoom 103 A-CRoom 101 B-DBallroom C&D12:45 pm - 2:00 pm AACPDM Annual Membership Business Meeting Room 10212:45 pm - 2:00 pm LUNCH BREAK On your own2:00 pm - 4:00 pm Instructional Courses 1-13 & 32 See pages 27-344:00 pm - 4:30 pm COFFEE BREAK/EXHIBITS & POSTERS Ballroom A&B4:30 pm - 6:30 pm GENERAL SESSIONBallroom C&DBasic Science LecturesVittorio Gallo, PhDNeurobiology of White Matter Injury in the Premature brainSteven Back, MDBrain Injury in the Premature Infant: Have We Been Thinking About This All Wrong?Guest Lecture - Gerald Harris, PhD, PETechnologies <strong>for</strong> the Assessment <strong>and</strong> Care of Children with <strong>Cerebral</strong> <strong>Palsy</strong>Corbett Ryan Pathways Pioneer Award Presentation2013 Research Grant Presentation & 2012 Research Grant UpdatePoster Highlights7:00 pm - 8:00 pm WINE & CHEESE RECEPTION - Exhibit Hall open Ballroom A&B6:30 pm Past Presidents’ Reception <strong>and</strong> Dinner Oak Room - Hilton7:15 pm - 9:30 pm Family ForumAdapted Sports Demonstration - Pettit CenterBuses loading, Hilton Hotel,6th St entrance8:00 pm Dine Around - Milwaukee Sign up at Registration Desk4<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Meeting at a GlanceFRIDAY, OCTOBER 18, 2013Location6:30 am - 6:00 pm Registration Open Street level, lobby6:00 am - 6:45 am Get Fit! Y-Stretch Flow Upper level, lobby7:00 am - 7:50 am Breakfast Seminars 7-12 See pages 36-387:00 am - 7:50 am Continental Breakfast, Exhibit Hall & Posters Ballroom A&B8:00 am - 10:00 am GENERAL SESSIONBallroom C&DCathleen Lyle Murray Award & Presentation - Rick GuidottiPositive Exposure - The Spirit of DifferenceGuest Lectureship - Annette Majnemer, PhD, OTOutcome Measures: What’s Up With That?EACD Lecture - Allan Colver, MDQuality of Life <strong>and</strong> Participation of Children <strong>and</strong> Young People with <strong>Cerebral</strong> <strong>Palsy</strong>Mentorship Award Presentation10:00 am - 10:30 am COFFEE BREAK/EXHIBITS & POSTERS Ballroom A&B10:30 am - 12:30 pm FREE PAPER SESSIONSD. Gait AmbulationE. Therapies <strong>and</strong> Interventions Part 2F. Feeding/Nutrition/Complex CareBallroom C&DRoom 103 A-CRoom 101 B-D12:30 pm - 1:30 pm FLASHPOINT LUNCHEONRoom 102Sponsored by Medtronic12:30 pm - 1:30 pm International Affairs Luncehon Room 201 B12:30 pm - 1:30 pm LUNCH BREAK On your own1:30 pm - 3:30 pm GENERAL SESSIONBallroom C&DChambers Family Lifespan Lectureship - Edward Hurvitz, MDHealth <strong>and</strong> Fitness in <strong>Cerebral</strong> <strong>Palsy</strong>: What We Need to KnowGuest Lectureship - Diane Damiano, PhD, PTHow Meaningful is a Mean Group Response to Physical Therapy <strong>for</strong> Chidlren with <strong>Cerebral</strong> <strong>Palsy</strong>Guest Lectureship - Kerr Graham, MDThe Right Treatment <strong>for</strong> the Right ChildAward Presentations-Fred P Sage-Duncan Wyeth Award3:00 pm - 6:00 pm Family ForumRoom 102 CCo-sponsored with Reaching <strong>for</strong> the Stars. A Foundation of Hope <strong>for</strong> Children with <strong>Cerebral</strong> <strong>Palsy</strong>3:30 pm - 4:00 pm COFFEE BREAK/EXHIBITS & POSTERS Ballroom A-B4:00 pm - 6:00 pm Instructional Courses 14-25 See pages 43-486:30 pm - Midnight Evening Celebration at the Harley-Davidson® Museum Trolley loading, Hilton Hotel,6th St entranceSATURDAY, OCTOBER 19, 2013Location7:00 am - 5:00 pm Registration Open Street level, lobby6:00 am - 6:45 am Get Fit! Walk/Run Meet at Registration Desk7:00 am - 7:50 am Breakfast Seminars 13-18 See pages 49-517:00 am - 7:50 am Continental Breakfast & Posters Ballroom A&B8:00 am - 10:00 am FREE PAPER SESSIONSG. Muscle/Botox/MRI/BrainH. Measures ComorbidityI. Epidemiology DiagnosisBallroom C&DRoom 101 B-DRoom 101 A-C8:00 am - 10:15 am Complex Care Special Interest Group Meeting 203 D10:00 am - 10:15 am COFFEE BREAK & POSTERS Ballroom A-B10:15 am - 11:45 am GENERAL SESSIONBallroom C&DGayle G Arnold Award PresentationsGayle G Arnold Lectureships - Iona Novak, PhD, OT & Dianne Russell, PhDYou Really Need A Babel FishCPRIF Best Scientific Poster Award12:00 pm - 1:30 pm LUNCH BREAKAACPDM Committees working lunchFinal Poster ReviewOn your ownRoom 102Ballroom A&B1:15 pm - 5:00 pm AACPDM Board of Directors Meeting Room 202 B1:30 pm - 3:30 pm Instructional Courses 26-31, 33-38 See pags 54-60AACPDM 67 th Annual Meeting • Research & Practice 5


TABLE OF CONTENTSWelcome Letter ....................................................3Meeting at a Glance. .............................................4-5Mobile App in<strong>for</strong>mation. ...........................................9Convention Center Map. ...........................................8General Meeting In<strong>for</strong>mationPurpose, Objectives, Mission, Vision .............................10Continuing Medical Education CME / CEU / CE Credits . . . . . . . . . .10Board of Directors <strong>and</strong> Committee Meetings,Annual Membership Business Meeting & Lunch. ................11Hours at a Glance: Registration Desk, Exhibit Hall,Poster Viewing, Speaker Ready Room ...........................11Membership Benefits of the AACPDM /Win Free 2014 Registration. .....................................13Poster Viewing, Speaker Ready Room ...........................11About AACPDMAwards .........................................................16International <strong>and</strong> Student Scholarship Recipients ...............17Invited Lecturers. ...............................................14Scientific Program <strong>and</strong> Social Events ScheduleWednesday. ....................................................18Thursday .......................................................22Friday ..........................................................36Saturday. .......................................................49Scientific Posters ..................................................63Demonstration Posters ............................................67Fred P Sage Award submissions ...................................62Past <strong>and</strong> Future Presidents. ........................................69AcknowledgementsSponsors .......................................................70Exhibitors. ......................................................71Disclosures. .......................................................75Author Index ......................................................80Save the Date 2014. ...............................................916<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


67th Annual MeetingOctober 16-19, 2013Wisconsin CenterMilwaukee, Wisconsin, USAFuture Annual MeetingsSeptember 10-14, 2014San Diego Bayfront HiltonSan Diego, Cali<strong>for</strong>nia, USAOctober 21-24, 2015JW Marriott AustinAustin, Texas, USAAACPDM office:555 E. Wells Street, Suite 1100Milwaukee, WI 53202-3823Tel: 1-414-918-3014Fax: 1-414-276-2146Email: info@aacpdm.orgWebsite: www.aacpdm.orgStaffTracy Burr, CAE, Executive DirectorMarie Grevsmuehl, Meetings ManagerJesse Cunningham, Project CoordinatorAACPDM Board of Directors2012-2013 AACPDM BOARD OF DIRECTORSMaureen O’Donnell, MD, MSc, FRCPC - PresidentRichard D. Stevenson, MD – First Vice PresidentDarcy Fehlings, MD, MSc, FRCPC – Second Vice PresidentScott Hoffinger, MD – Acting Treasurer/Past PresidentJoshua Hyman, MD – Treasurer-electAnnette Majnemer, PhD, OT – SecretaryJohanna Darrah, PhD, PT – Secretary-electJoseph Dutkowsky, MD – Past PresidentMauricio R. Delgado, MD, FRCPC, FAAN - DirectorUnni Narayanan, MBBS, MSc, FRCS(C) – DirectorJilda Vargus-Adams, MD, MSc – DirectorLaura Vogtle, PhD, OTR/L, FAOTA - DirectorLesley Wiart, PhD, PT – DirectorGordon Worley, MD – DirectorEX-OFFFICIO BOARD MEMBERSPeter Baxter, MD – Editor DMCNAlfred Scherzer, MD, MSPH, EdD – HistorianLynne Romeiser Logan, PT, PCS, PhD – Newsletter editorSusan Sienko Thomas, MA – WebmasterTracy Burr, CAE BBA – Executive Director2013 LOCAL HOSTElizabeth Moberg-Wolff, MD2013 SCIENTIFIC PROGRAM COMMITTEEMark Romness, MD– Scientific Program co-chairLisa Samson-Fang, MD– Scientific Program co-chairIona Novak, PhD, MSc (Hons) BAppSc, OT - Scientific ProgramCo-chair-electWade Shrader, MD – Scientific Program Co-chair electDeirdre McDowell, PT, PCSChristine Houlihan, MDMary Ann Nelin, MDKatharine Alter, MDEdward Dabrowski, MDStephanie DeLuca, PhDCarol Boliek, PhDSharon Ramey, MDBenjamin Shore, MD, FRCSCElaine Stashinko, PhD, RNAACPDM 67 th Annual Meeting • Research & Practice 7


Map of Wisconsin CenterMezzanine LevelStreet LevelPostersExhibitHall8<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


AACPDM 67 th Annual Meeting2013 Mobile ApplicationDetails & Download InstructionsAACPDM is pleased to announce the interactive smartphone application <strong>for</strong>this year’s AACPDM 67th Annual Meeting. The app is available <strong>for</strong> iPad, iPhone,Android, BlackBerry, <strong>and</strong> any smartphone that has web-enabled browsercapability, <strong>and</strong> offers many useful year-round features. App users can access thefollowing:• The Dashboard keeps you organized with up-to-the-minuteExhibitor, Speaker, <strong>and</strong> Session in<strong>for</strong>mation• About AACPDM 67th Annual Meeting 2013 keeps all eventin<strong>for</strong>mation in one place• My Schedule organizes your schedule with one click• Alerts allow you to receive important real-timecommunications from AACPDM• Keep up with industry news on Facebook groups• Built-in Twitter feed to follow <strong>and</strong> join in on the show chatter• Complete session evaluations• Locate <strong>and</strong> bookmark Exhibitors you want to visit on theFloor Plan Map• Connect with your colleagues using the Friends feature• Share your event photos <strong>and</strong> experiences with the PhotoGallery• Find Milwaukee Local PlacesDownloading the AACPDM 67th Annual Meeting 2013 Mobile App is easy!For iPhone (plus iPad & iPod Touch) <strong>and</strong> Android phones, visit your App Store or Google Play on your device<strong>and</strong> search <strong>for</strong> AACPDM 2013.For All Other Phone Types (including BlackBerry <strong>and</strong> all other web browser-enabledphones): While on your smartphone, point your mobile browser to http://m.core-apps.com/aacpdm2013 OR Scan the QR code! From there you will be directed to downloadthe proper version of the app <strong>for</strong> your particular device, or on some phones, bookmarkthis page <strong>for</strong> future reference.AACPDM 67 th Annual Meeting • Research & Practice 9


General Meeting In<strong>for</strong>mationPURPOSEThe educational program of the <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong><strong>Palsy</strong> <strong>and</strong> Developmental Medicine (AACPDM) is designed toprovide targeted opportunities <strong>for</strong> dissemination of in<strong>for</strong>mationin the basic sciences, prevention, diagnosis, treatment, <strong>and</strong>technical advances as applied to persons with childhood onsetdisabilities. The program provides a <strong>for</strong>um <strong>for</strong> discussion of scientificdevelopments <strong>and</strong> clinical advances in the care of people withthese conditions. By presenting <strong>for</strong>ums which foster interdisciplinarycommunication <strong>and</strong> interchange among all allied health careprofessionals concerned with individuals with cerebral palsy <strong>and</strong>neurodevelopmental disorders, this program’s purpose is to ensurethat the qualified personnel have the skills <strong>and</strong> knowledge derivedfrom practices that have been determined through research <strong>and</strong>experience to be successful in serving children with disabilities. Thepurpose is also to encourage teambuilding within organizations <strong>and</strong>institutions, encourage multicenter studies, develop in<strong>for</strong>mation<strong>for</strong> parents, <strong>and</strong> find a consensus on the optimal care of variousconditions.OBJECTIVES• To disseminate in<strong>for</strong>mation on new developments in applied<strong>and</strong> translational sciences, prevention, diagnosis, treatment<strong>and</strong> technology <strong>for</strong> individuals with cerebral palsy <strong>and</strong> otherchildhood onset disabilities.• To create an interdisciplinary <strong>for</strong>um to facilitate communication<strong>and</strong> team-building between professionals who are providingservices <strong>and</strong> care <strong>for</strong> individuals with childhood onset disabilities.• To facilitate the integration between research <strong>and</strong> practiceto improve the well being of people with childhood onsetdisabilities.TARGET AUDIENCEAll health care professionals, clinicians, researchers <strong>and</strong> healthadministrators who are concerned with the care of patients withcerebral palsy <strong>and</strong> other childhood-onset disabilities, including:Developmental <strong>and</strong> other pediatricians, neurologists, physiatrists,orthopedic <strong>and</strong> neuro-surgeons, physical <strong>and</strong> occupationaltherapists, speech <strong>and</strong> language pathologists, orthotists, dieticians,rehabilitation engineers, kinesthiologists, nurses, psychologists,special education teachers <strong>and</strong> educators.NOTE: All levels of skill will be addressed.AACPDM VISIONA global leader in the multidisciplinary scientific education <strong>for</strong>health professionals <strong>and</strong> researchers dedicated to the well-being ofthe people with childhood-onset disabilities.AACPDM MISSIONProvide multidisciplinary scientific education <strong>for</strong> health professionals<strong>and</strong> promote excellence in research <strong>and</strong> services <strong>for</strong> the benefit ofpeople with cerebral palsy <strong>and</strong> childhood-onset disabilities.ABSTRACT SUPPLEMENTFree Paper <strong>and</strong> Scientific Poster abstracts accepted <strong>for</strong> presentationat the AACPDM 67th Annual Meeting have been published in asupplement of Developmental Medicine <strong>and</strong> Child Neurology. Eachattendee will receive one copy of the supplement along with theirregistration materials.CONTINUING MEDICAL EDUCATIONONLINE SELF-REPORTING SYSTEM FOR CME / CEU / CECREDITSAfter the AACPDM 67th Annual Meeting, all registrants will receivean instructional email about reporting <strong>and</strong> printing out their owncontinuing education certificates. The online self-reporting will beopen by no later than November 2013. To verify your correct emailaddress, please visit the registration desk be<strong>for</strong>e you leave themeeting.Please note: In self-reporting, if you miss more than 15 minutes of asession/course, it is not considered full attendance, <strong>and</strong> cannot beclaimed.CERTIFICATE OF ATTENDANCEAll attendees may claim a Certificate of Attendance. Access this <strong>for</strong>mat the Registration Desk.ACCME Accreditation StatementThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> DevelopmentalMedicine (AACPDM) is accredited by the Accreditation Council<strong>for</strong> Continuing Medical Education to provide continuing medicaleducation <strong>for</strong> physicians.AMA Credit Designation StatementThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> DevelopmentalMedicine (AACPDM) designates this live activity <strong>for</strong> a maximum of32.5 AMA PRA Category 1 Credits. Physicians should claim only thecredit commensurate with the extent of their participation in theactivity.Physical Therapists / Physical Therapy AssistantsThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong>Developmental Medicine is recognized as anApproval Agency by the Physical TherapyBoard of Cali<strong>for</strong>nia.http://ptbc.ca.gov/licensees/cc_agency.shtmlThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong>Developmental Medicine has been approved bythe Wisconsin Physical Therapy Association, WPTA Course #15257 <strong>for</strong>up to 32.5 Contact Hours.Occupational Therapists / Occupational Therapy AssistantsThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> DevelopmentalMedicine is an Approved Provider of Continuing Education bythe <strong>American</strong> Occupational Therapy Association (AOTA) #6379.Occupational Therapists <strong>and</strong> Occupational Therapy Assistants will beable to claim a maximum of 3.25 AOTA CEU’s. All sessions during the67th Annual Meeting are available <strong>for</strong> credit:Note: The assignment of AOTA CEUs does not imply endorsement ofspecific course content, products, or clinical procedures by AOTA.NURSING CREDITSThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> DevelopmentalMedicine (AACPDM) is a Provider approved by the Cali<strong>for</strong>nia Boardof Registered Nursing, Provider # CEP 14720, <strong>for</strong> 32.5 Contact Hours.10<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


General Meeting In<strong>for</strong>mationTicketed SessionsVarious sessions <strong>and</strong> events at the Annual Meeting require a ticket<strong>for</strong> admission. This aids in controlling room capacity. Pre-registeredattendees will find event tickets in their registration envelope.Additional tickets <strong>for</strong> courses <strong>and</strong> events may be obtained at theregistration desk. For some events or sessions, an additional fee mayapply. All tickets are distributed pending availability. Door monitorswill be present <strong>for</strong> ticketed sessions.AACPDM Board of Directors MeetingsWednesday, October 167:30 am – 8:30 am (Breakfast) – Room 2028:50 am – 11:15 am – Room 20211:30 am – 12:45 pm (Lunch) – Room 2021:00 pm – 5:00 pm – Room 201 C&DSaturday, October 1912:00 pm – 5:00 pm (Lunch Meeting) – Room 102AACPDM Committee MeetingsWednesday, October 167:30 am – 8:45 am (Breakfast) – Room 2028:50 am – 11:15 am – Room 20211:30 am – 12:45 pm (Lunch) – Room 202Saturday, October 1912:00 pm – 1:30 pm Working Lunch – Room 102AACPDM Annual Membership BusinessMeeting <strong>and</strong> LunchCurrent members only. Pre-registration is required.Thursday, October 1712:45 pm – 2:00 pm – Room 1022013 Business Meeting AgendaWelcome: Richard Stevenson, MD - PresidentTreasurer’s Report: Joshua Hyman, MD – TreasurerStrategic Planning: Maureen O’Donnell MD MSc FRCPC - PresidentCommittee Reports:Adapted Sports & Recreation Chair: Joyce Oleszek, MDAdvocacy Chair: Dennis A. Hart, MDAwards Chair: Christine Houlihan, MDComplex Care Chair: Laurie Glader, MDContinuing Education Chair: Carole Tucker, PhD, PTInternational Affairs Chair: Francisco Valencia, MDLife Span Care Chair: Garey Noritz, MDMembership Chair: Jeanne Roof Charles, PhD, PT, MSWMultimedia Education Chair: Mary-Ann Nelin, MDPublications Chair: Hank Chambers, MDResearch Chair: Katharine Alter, MDTreatment Outcomes Chair: Kat Kolaski, MD/Linda Krach, MDExhibits – Ballroom A&BOn Thursday <strong>and</strong> Friday, a complimentary continental breakfastwill be served in the exhibit hall. All participants are urged to allowadequate time in your daily schedule to visit the exhibits, as they arean integral part of the success of the meeting.Visit & Win Returns! Have a minimum of 20 exhibitors place asticker on our card next to their company organization. Turn inyour completed card to the Meeting Registration desk by 3:00pmFriday, October 18th. The winner of the drawing will receive freeregistration <strong>for</strong> the 2014 Annual Meeting or an Apple iPad ®.Hours at a GlanceSatellite Registration in the Hilton Hotel LobbyTuesday, October 15th 5:00 pm - 8:00 pmRegistration at the Wisconsin CenterWednesday, October 16 7:00 am - 5:30 pmThursday, October 17 6:30 am - 6:30 pmFriday, October 18 6:30 am - 6:00 pmSaturday, October 19 7:00 am - 5:00 pmExhibit Hall/ Poster Viewing – Ballroom A&BThursday, October 177:00 am - 7:50 am Continental Breakfast10:15 am - 4:30 pm6:30 pm - 8:00 pm Wine <strong>and</strong> Cheese Poster <strong>and</strong> Exhibit ViewingSessionFriday, October 177:00 am - 7:50 am Continental Breakfast10:00 am - 3:30 pm BreakSaturday, September 157:00 am - 7:30 am Continental Breakfast10:00 am - 10:15 am Poster Viewing12:00 pm - 1:30 pm Poster ViewingSpeaker Ready Room - Room 103 DWednesday, October 16 10:00 am - 6:00 pmThursday, October 17 7:00 am - 6:00 pmFriday, October 18 7:00 am - 4:00 pmSaturday, October 19 7:00 am - 2:00 pmGuest AttendanceAACPDM asks registered attendees to refrain from taking children,spouses, or guests to any educational sessions or functions offeredat the Annual Meeting that are not included in the guest attendanceregistration. Please urge your guests to wear their name badges atall times.AACPDM 67 th Annual Meeting • Research & Practice 11


General Meeting In<strong>for</strong>mationE-PosterAn E-Poster is an electronic version of the traditional paper posterin PowerPoint <strong>for</strong>mat, <strong>and</strong> is displayed on a monitor. In additionto traditional paper posters on bulletin boards, Scientific <strong>and</strong>Demonstration Poster Presenters were also required to submit theirposter as an E-Poster. There will be computer kiosks throughout theWisconsin Center dedicated to E-Posters. They will also be postedon the AACPDM website during <strong>and</strong> 2 months after the meeting.E-Posters increase exposure to the work <strong>and</strong> allow people to viewthe poster in the com<strong>for</strong>t of their hotel room or even at home afterthe meeting. Thank you to all the Poster Presenters who took on theextra work to participate in the Poster Preview <strong>and</strong>/or submited anE-Poster!No SmokingSmoking is prohibited at all Annual Meeting sessions <strong>and</strong> events.AttireAttire <strong>for</strong> the educational sessions of the meeting is business casual.All social events are casual. Please bring a jacket or sweater, as roomtemperatures may vary.Camera/Recording PolicyIt is the policy of AACPDM that no cameras are permitted in themeeting sessions, exhibit hall, or poster sessions. Please refrain fromtaking any photos in those locations. Audio or videotaping is strictlyprohibited.FDA DisclaimerSome medical devices or pharmaceuticals not cleared by the FDAor cleared by the FDA <strong>for</strong> a specific use only may be used “off-label”(i.e., a use not described on the product’s label) if, in the judgmentof the treating physician, such use is medically indicated to treat apatient’s condition. “Off label” uses of a device or pharmaceuticalmay be described in AACPDM educational programs or publicationsso long as the lack of FDA clearance <strong>for</strong> such uses is also disclosed.Results from scientific studies known to the author or presenterrelating to the described intended use should be discussed, if sodoing will not adversely affect the study or violate some otherregulatory requirement. Some drugs or medical devices describedor demonstrated in <strong>Academy</strong> educational materials or programshave not been cleared by the FDA or have been cleared by the FDA<strong>for</strong> specific use only. The FDA has stated that it is the responsibility ofthe physician to determine the FDA clearance status of each drug ordevice he or she wishes to use in practice.<strong>American</strong>s with Disabilities ActThe AACPDM wishes to ensure that no individual with a disabilityis excluded, denied services, or otherwise treated differently thanother individuals because of the absence of auxiliary aides <strong>and</strong>services. If you need any auxiliary aids or services identified in the<strong>American</strong>s with Disabilities Act please notify AACPDM at least 14working days prior to the program to allow time to acquire thesupport needed.SESSION EVALUATIONSWe need your feedback! As a dedicated learner during the 67thAnnual Meeting we truly value your feedback on the individualsessions, general sessions as well as the overall meetingexperience. The future leadership of the AACPDM uses thisin<strong>for</strong>mation to improve on the future educational offerings <strong>and</strong>to make your experience the most productive <strong>and</strong> realistic inbringing back practical in<strong>for</strong>mation to your practice.Please take a moment to provide your feedback on 67th AnnualMeeting in the in the following ways:• The Annual Meeting website will include access to theonline survey tool to complete various session evaluations.You will be able to access the internet on various internet cafékiosks OR take time in your hotel room – all attendees receivecomplimentary internet in your hotel room. VISIT: http://www.aacpdm.org/meetings/2013/• Participants will be asked to provide input on the educationalprogram of the 67th Annual Meeting through the online CME /CEU Claim System when claiming credit <strong>for</strong> participation.Insurance/Liabilities <strong>and</strong> DisclaimerThe AACPDM will not be held responsible <strong>for</strong> injuries or <strong>for</strong> loss ordamage to property incurred by participants or guests at the AnnualMeeting, including those participating in social <strong>and</strong> fitness events.Participants <strong>and</strong> guests are encouraged to take out insurance tocover loss incurred in the event of cancellation, medical expenses, ordamage to or loss of personal effects when traveling outside of theirown country. The AACPDM cannot be held liable <strong>for</strong> any hindranceor disruption of Annual Meeting proceedings arising from natural,political, social or economic events, or other un<strong>for</strong>eseen incidentsbeyond its control. Registration of a participant implies acceptanceof this condition. The material presented at this continuing medicaleducation activity is made available <strong>for</strong> education purposes only.The material is not intended to represent the only, nor necessarilythe best, methods or procedures appropriate <strong>for</strong> the medicalsituations discussed, but rather is intended to present an approach,view, statement, or opinion of the faculty that may be helpful toothers who face similar situations.DisclosureThe presenting authors on the Free Papers <strong>and</strong> Posters areunderlined. All corresponding authors were responsible <strong>for</strong>querying the co-authors regarding the disclosure of their work. TheAACPDM does not view the existence of these disclosed interestsor commitments as necessarily implying bias or decreasing thevalue of the author’s participation in the course. To follow ACCMEguidelines the <strong>Academy</strong> has identified the options to disclose asfollows: a. Research or institutional support has been received b.Miscellaneous, non-income support (e.g., equipment or services),commercially derived honoraria, or other nonresearch relatedfunding (e.g., paid travel) has been received c. Royalties have beenreceived d. Stock or stock options held e. Consultant or employee f.Received nothing of value g. Did not respond or unable to contactOne or more of these letters appears by each author’s nameindicating their disclosure. Please see disclosure Index at the back ofthe program.12<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Membership BenefitsHow can you benefit from membership in the <strong>American</strong> <strong>Academy</strong><strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine?Continuing EducationAnnual Meeting: An international <strong>for</strong>um <strong>for</strong> the dissemination <strong>and</strong>exchange of new knowledge, ideas <strong>and</strong> educational in<strong>for</strong>mationbetween participants from all disciplines. Monthly Gr<strong>and</strong> RoundWebinars: A series of online lectures presented by AACPDMmembers on various topics that have been identified as being ofsignificant interest to our membership. Participants have the optionof listening to the Gr<strong>and</strong> Round <strong>and</strong> communicating with thespeaker online or interacting directly with the speaker through a tollfree telephone line.PublicationsDevelopmental Medicine <strong>and</strong> Child Neurology (DMCN) is the officialpublication of the AACPDM. This peer reviewed journal is recognizedinternationally as the leader in the field. Members can choose toselect from a list of Clinics in Developmental Medicine series booksin place of DMCN Journal. This option is available to Fellow Membersof the AACPDM. The AACPDM distributes an eNewsletter <strong>and</strong>periodic broadcast emails about various events <strong>and</strong> activities in theindustry. Members assist in developing in<strong>for</strong>mational materials tokeep the public in<strong>for</strong>med about advances in treating cerebral palsy<strong>and</strong> other developmental disabilities.ResearchThe AACPDM offers the opportunity <strong>for</strong> members to apply <strong>for</strong> aResearch Grant. The purpose of this research grant is to providesupport to bring together investigators from geographicallydisparate locations, obtain statistical consultation <strong>and</strong> develop amulticenter research study plan. The goal is to provide the <strong>for</strong>um<strong>and</strong> initial planning to develop a successful grant submission <strong>for</strong> fullfunding through some larger agency (e.g., NIH, UCP, NIDRR, CDC,CIHR etc). The grant should focus on an important clinical questionrelevant to the membership of AACPDM, <strong>and</strong> the involvement of amultidisciplinary team is expected.WebsiteMembers can visit the AACPDM website, the Members Only section,<strong>and</strong> a host of related in<strong>for</strong>mation. Contribute, borrow, or just browse<strong>for</strong> your education, or your colleagues <strong>and</strong> patients.CommitteesThe heart of the <strong>Academy</strong> is our committees. These committeesoffer networking <strong>and</strong> opportunities to explore areas of deep interestwith a wide range of professionals from the membership.AdvocacyAdapted Sports <strong>and</strong> RecreationAwardsComplex Care (ad-hoc)Continuing EducationInternational AffairsLifespan CareMembershipMultimedia EducationNominatingResearchScientific ProgramTreatment OutcomesOther committees support the overall work of the organization.Who are AACPDM members?All health care professionals, clinicians, researchers <strong>and</strong> healthadministrators who are concerned with the care of patients withcerebral palsy <strong>and</strong> other childhood-onset disabilities, including:Developmental <strong>and</strong> other Pediatricians, Neurologists, Physiatrists,Orthopedic <strong>and</strong> Neuro-Surgeons, Physical <strong>and</strong> OccupationalTherapists, Speech <strong>and</strong> Language Pathologists, Orthotists, Dieticians,Rehab Engineers, Kinesthiologists, Nurses, Psychologists, SpecialEducation Teachers, <strong>and</strong> Educators.Win Free Registration to the AACPDM68th Annual Meeting!All new members* that join the AACPDM while attending the67th Annual Meeting will be entered in a r<strong>and</strong>om drawing towin free registration to the 2014 Annual Meeting in San Diego,CA. To apply <strong>for</strong> membership <strong>and</strong> be entered into the drawing,please pick up an application at the Registration Desk. Visitwww.aacpdm.org/membership <strong>for</strong> more in<strong>for</strong>mation.*Must fulfull all requirements <strong>for</strong> membership.AACPDM 67 th Annual Meeting • Research & Practice 13


Invited LecturersPRESIDENTIAL GUEST LECTURERCLASSIFICATION IN DEVELOPMENTAL DISABILITY: EVIDENCEOF OCD, OR A STEP FORWARD?Peter Rosenbaum, MD, FRCP(C)Dr. Rosenbaum, Professor of Paediatrics at McMasterUniversity, has held a Tier 1 Canada Research Chairsince 2001. In 1989 he co-founded CanChild Centre<strong>for</strong> Childhood Disability Research at McMaster.Dr. Rosenbaum has held more than 80 peerreviewedresearch grants <strong>and</strong> is a contributingauthor to almost 300 peer-reviewed journal articles<strong>and</strong> book chapters. He co-authored ‘<strong>Cerebral</strong> <strong>Palsy</strong>: From Diagnosisto Adult Life’ (2012), <strong>and</strong> has co-editing the recently-released ‘LifeQuality Outcomes of Children <strong>and</strong> Young Adults with Neurological<strong>and</strong> Developmental Conditions’.Dr. Rosenbaum’s accomplishments have been recognized nationally<strong>and</strong> internationally. Notable he has received an Honorary Doctor ofScience, Université Laval (2005); was the first Canadian President ofAACPDM; <strong>and</strong> received the <strong>Academy</strong>’s Mentorship Award in 2007.BASIC SCIENCE LECTURESNEUROBIOLOGY OF WHITE MATTER INJURY IN THEPREMATURE BRAINVittorio Gallo, PhDDr. Gallo is presently the Director of the Center<strong>for</strong> Neuroscience Research at Children’s NationalMedical Center in Washington, DC <strong>and</strong> the Directorof the Intellectual <strong>and</strong> Developmental DisabilitiesResearch Center (IDDRC) at Children’s. He holdsan endowed Chair in Neuroscience, the Wolf-PackChair in Neuroscience. Dr. Gallo is also Professor ofPediatrics, Pharmacology <strong>and</strong> Physiology at the George WashingtonUniversity School of Medicine. Dr. Gallo is also the Director of theIntellectual <strong>and</strong> Developmental Disabilities Research Center (IDDRC)<strong>and</strong> of the T32 IDDRC Postdoctoral Training Program at Children’s. Heis Adjunct Professor at Georgetown University (Dept. Pharmacology)<strong>and</strong> at University of Maryl<strong>and</strong>, College Park (Neuroscience <strong>and</strong>Cognitive Science Program). Dr. Gallo has recently joined the facultyat the Child Study Center of Yale University School of Medicine as anAdjunct Professor.Research in Dr. Gallo’s Center focuses on brain development<strong>and</strong> developmental disabilities. Dr. Gallo’s research team workson the early postnatal development <strong>and</strong> pathology of the threemajor types of cells of the central nervous system, neurons,oligodendrocytes <strong>and</strong> astrocytes.BRAIN INJURY IN THE PREMATURE INFANT: HAVE WE BEENTHINKING ABOUT THIS ALL WRONG?Stephen A. Back, MDDr. Back received his Ph.D. in Pharmacology in 1989<strong>and</strong> his M.D. in 1990 from the University of Cali<strong>for</strong>nia,Irvine. He is Professor of Pediatrics, Neurology<strong>and</strong> Anesthesiology at Oregon Health & ScienceUniversity-Doernbecher Children’s Hospital. He isDirector of the Division of Pediatric Neuroscience<strong>and</strong> holds the Clyde <strong>and</strong> Elda Munson Professorshipin Pediatric Research. At Harvard, he completed a research fellowshipin the laboratory of Dr. Joseph Volpe <strong>and</strong> a clinical fellowship incerebral palsy supported by the United <strong>Cerebral</strong> <strong>Palsy</strong> Foundation. InDr. Volpe’s lab, Dr. Back defined maturation-dependent mechanismsof vulnerability of the oligodendrocyte lineage to oxidative stress <strong>and</strong>defined oligodendrocyte lineage maturation during human whitematter development. The current research interests of Dr. Back’slab include: cellular, molecular <strong>and</strong> high field MRI studies to definechronic cerebral gray <strong>and</strong> white matter lesions arising from hypoxiaischemiain human, rodents <strong>and</strong> fetal sheep; anesthesia toxicity tonon-human primate CNS white matter; role of the extracellular matrixin myelination failure in the neonate, multiple sclerosis <strong>and</strong> dementia;<strong>and</strong> cerebral white matter injury related to vascular cognitiveimpairment in the aging human brain. The long-term objective ofthe studies in Dr. Back’s lab is to develop successful interventions topromote regeneration <strong>and</strong> repair of brain injury.Sponsored by: Mac Keith Press <strong>and</strong> <strong>Cerebral</strong> <strong>Palsy</strong> International ResearchFoundation (CPIRF)GUEST LECTURESHIPSTECHNOLOGIES FOR THE ASSESSMENT AND CARE OFCHILDREN WITH CEREBRAL PALSYGerald Harris, PhD, PEDr. Harris is a Professor of Biomedical Engineeringat Marquette University. He has served as Presidentof the IEEE Engineering in Medicine <strong>and</strong> BiologySociety (EMBS) <strong>and</strong> the Gait <strong>and</strong> Clinical MovementAnalysis Society. He is a Fellow of the <strong>American</strong><strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> DevelopmentMedicine.OUTCOME MEASURES: WHAT’S UP WITH THAT?Annette Majnemer, OT, PhD, FCAHSDr. Majnemer is an occupational therapist withdoctoral training in the neurosciences. She is Directorof the School of Physical & Occupational Therapy<strong>and</strong> Associate Dean, Faculty of Medicine at McGillUniversity. She is a Professor, cross-appointed tothe Departments of Pediatrics <strong>and</strong> Neurology &Neurosurgery, <strong>and</strong> is a Research Associate at theMontreal Children’s Hospital-McGill University Health Centre. She is anominated Fellow of the Canadian <strong>Academy</strong> of Health Sciences. Hercurrent research interests focus on intrinsic <strong>and</strong> extrinsic determinantsof participation, rehabilitation service needs <strong>and</strong> utilization patterns<strong>and</strong> knowledge translation strategies that promote best practice. Dr.Majnemer is Co-Editor of Physical & Occupational Therapy in Pediatrics<strong>and</strong> Associate Editor of Developmental Medicine Child Neurology.She leads a bilingual website called Childhood Disability LINK thatprovides user-friendly in<strong>for</strong>mation about recent research findings tofamilies <strong>and</strong> clinicians. It is with pleasure that she has served on theExecutive <strong>and</strong> the Board of Directors of the AACPDM.EUROPEAN ACADEMY OF CHILDHOOD DISABILITYQUALITY OF LIFE AND PARTICIPATION OF CHILDREN ANDYOUNG PEOPLE WITH CEREBRAL PALSYAllan Colver, MDNewcastle University, Engl<strong>and</strong>Professor Colver was appointed ConsultantCommunity Paediatrician in 1986. From 1997, heoccupied research positions at Newcastle University<strong>and</strong> is now Professor of Community Child Health.Professor Colver co-founded the North of Engl<strong>and</strong>Collaborative <strong>Cerebral</strong> <strong>Palsy</strong> Survey <strong>and</strong> the14<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Invited LecturersStrategic Research Group of the British <strong>Academy</strong> of ChildhoodDisability.From 1999-2004 he was a member of the National ScreeningCommittee (Child Health) <strong>and</strong> from 2007-2010 Chair of the BritishPaediatric Surveillance Unit.His earlier research included studies of child accident prevention,health surveillance of preschool children <strong>and</strong> screening. His researchis currently directed to:1 Participation <strong>and</strong> Quality of Life of disabled children; he leads astudy across Europe www.ncl.ac.uk/sparcle/2 Transition of young people with complex health needs. Heleads a Research Programme in the UK http://research.ncl.ac.uk/transition/3 A r<strong>and</strong>omised controlled trial of different medications <strong>for</strong>managing drooling.HOW MEANINGFUL IS A MEAN GROUP RESPONSE TOPHYSICAL THERAPY FOR CHILDREN WITH CEREBRAL PALSY?Diane Damiano, PhD, PTDr. Damiano is a tenure-track scientist <strong>and</strong> Chief ofthe Functional <strong>and</strong> Applied Biomechanics Sectionat National Institutes of Health Clinical Centerin Bethesda, Maryl<strong>and</strong>. Her research focuses onthe design <strong>and</strong> investigation of activity-based ordevice-augmented rehabilitation programs topromote optimal motor functioning <strong>and</strong> enhancemuscle <strong>and</strong> neural plasticity. She is the Past President of the<strong>American</strong> <strong>Academy</strong> of <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine.She is on the Editorial Board of Developmental Medicine <strong>and</strong> ChildNeurology, Neurorehabilitation <strong>and</strong> Neural Repair, <strong>and</strong> the Journal ofPediatric Rehabilitation <strong>and</strong> has published over 80 articles <strong>and</strong> bookchapters.THE RIGHT TREATMENT FOR THE RIGHT CHILDKerr Graham, MDDr. Graham is The University of Melbourne Professorof Orthopaedic Surgery <strong>and</strong> Director of the HughWilliamson Gait Laboratory at The Royal Children’sHospital in Melbourne. He is involved in an activeclinical <strong>and</strong> research program, <strong>for</strong> children withcerebral palsy.He is Associate Editor <strong>for</strong> Developmental Medicine<strong>and</strong> Child Neurology (DMCN) <strong>and</strong> The King James IV Professor of TheRoyal College of Surgeons in Edinburgh <strong>for</strong> 2012/13.CHAMBERS FAMILY LIFESPAN LECTURESHIPHEALTH AND FITNESS IN CEREBRAL PALSY: WHAT WE NEEDTO KNOWEdward Hurvitz, MDDr. Hurvitz is Professor <strong>and</strong> Chair, Department ofPhysical Medicine <strong>and</strong> Rehabilitation (PM&R) at theUniversity of Michigan Medical School. He is theJames W. Rae Collegiate Professor. His focus hasbeen on individuals with cerebral palsy <strong>and</strong> otherbrain-related syndromes that start in the childhoodyears. His research relates to health, fitness,obesity <strong>and</strong> cardiometabolic risk in cerebral palsy; upper extremityrehabilitation; <strong>and</strong> outcomes of pediatric interventions in the adultyears. Dr. Hurvitz co-chairs the <strong>Cerebral</strong> <strong>Palsy</strong> Research Consortiumof Michigan. He served on the NIH sponsored Children’s Motor StudyGroup. He has presented in Europe, Israel, <strong>and</strong> across North America.He is a long-time member of the AACPDM, <strong>and</strong> has chaired theLifespan committee.GAYLE G. ARNOLD LECTURESHIPYOU REALLY NEED A BABEL FISHIona Novak, PhD, MSc (Hons) BAppScOTAssociate Professor Novak is the Head of Researchat <strong>Cerebral</strong> <strong>Palsy</strong> Alliance, University of Notre DameAustralia. Iona is a Fulbright Scholar establishing“Xcellerate” - an <strong>American</strong>-Australian <strong>Cerebral</strong><strong>Palsy</strong> Stem Cell Research Consortium that poolscollective ef<strong>for</strong>ts to find a cure. Driven by aninternal belief that research <strong>and</strong> healthcare has thepotential to change lives, Iona has pursued projects <strong>and</strong> roles withthe greatest possible impact on children <strong>and</strong> families, including,leadership of the Australian <strong>Cerebral</strong> <strong>Palsy</strong> Register. In the last10 years she has given over 90 international keynotes <strong>and</strong> beenawarded $11mil in research grant funding.Dianne Russell, PhDDr. Russell is a Knowledge Translation (KT) Specialistwith CanChild Centre <strong>for</strong> Childhood DisabilityResearch at McMaster University, Hamilton, Canadawhere CanChild’s partnership with children’scentres has allowed her to practice “integratedknowledge translation”. Dianne has evaluated aninnovative KT strategy using Knowledge Brokers to facilitate theuptake of measures in clinical practice. She has contributed to thescience of KT through publications <strong>and</strong> workshops <strong>and</strong> is leadinga 5 year KT strategic planning initiative at CanChild. Her passion isto be at the <strong>for</strong>efront of engaging with knowledge users includingfamilies, service providers, <strong>and</strong> policy decision-makers <strong>and</strong> bringingevidence to those who need it.CATHLEEN LYLE MURRAY AWARD ANDLECTURESHIPPOSITIVE EXPOSURE – THE SPIRIT OF DIFFERENCERick GuidottiMr. Guidotti, an award-winning <strong>for</strong>mer fashionphotographer, has spent the past fifteenyears working internationally with advocacyorganizations/NGOs, medical schools, universities<strong>and</strong> other educational institutions to effect a seachangein societal attitudes towards individualsliving with genetic difference.Rick is the founder <strong>and</strong> director of Positive Exposure, an innovativearts, education <strong>and</strong> advocacy organization working with individualsliving with genetic dierence. Positive Exposure utilizes the visualarts to signicantly impact the fields of genetics, mental health <strong>and</strong>human rights.AACPDM 67 th Annual Meeting • Research & Practice 15


AACPDM AwardsCorbett Ryan Pathways Pioneer AwardThe recipient of the award will represent excellence in the pursuit of<strong>and</strong> quality of life who also happens to live with a personal physicalchallenge. The recipient will have the following:• Motivation <strong>and</strong> achievement in pursuing <strong>and</strong> accomplishingpersonal <strong>and</strong> vocational/professional goals• A creative approach to their pursuit of education <strong>and</strong> participationin their vocation/profession• A positive approach to lifeThe recipient serves as a role model to persons in their sphere ofinfluence <strong>and</strong> demonstrates sensitivity to others <strong>and</strong> respect <strong>for</strong> self.2013 Recipient: Richard Donovan, MBACathleen Lyle Murray AwardThe Cathleen Lyle Murray Foundation lecturer <strong>and</strong> award recipientis selected on the basis of their impact on society through theirhumanitarian ef<strong>for</strong>ts to enhance the lives of persons with severemultiple disabilities. The award recipient demonstrates an effective<strong>and</strong> unique humanitarian approach through advocacy, legislation,clinical services, life experiences, etc., that can be shared with the<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicineto help promote better underst<strong>and</strong>ing of <strong>and</strong> advancement insociety of persons with disabilities.2013 Recipient: Rick GuidottiDuncan Wyeth AwardThis award is named after Duncan Wyeth, who has been both anout¬st<strong>and</strong>ing athlete <strong>and</strong> advocate. The award is presented to anindividual who has promoted sports <strong>and</strong>/or recreation in their area<strong>for</strong> individuals with disabilities. The recipient may be an athlete,coach, or sponsor.2013 Recipient: Jermy LadeGayle G. Arnold Award <strong>for</strong> Best FreePapersThis award is presented to the best Free Paper that was submittedto the current year’s Annual Meeting. To be eligible <strong>for</strong> this award,an abstract is nominated by the Awards Committee. Authors arethen invited to submit a full manuscript <strong>for</strong> final judging. Theaward of $2,000 is provided by the Children’s Hospital in Richmond,Virginia. The editors of DMCN Journal request to have first optionon publication of this winning paper, as long as the authors complywith the publishing requirements of Mac Keith Press.In 2013, Arnold Awards are being given to papers from the 2012Annual Meeting <strong>and</strong> the 2013 Annual Meeting.2013 Recipient: Richard Lieber, PhD2013 Recipient: Sudarshan Dayanidhi, PT, PhD<strong>Cerebral</strong> <strong>Palsy</strong> International ResearchFoundation’s Best Scientific PosterAwardEach year, the AACPDM awards the CPI Research Foundation’s BestScientific Poster Award. During the Annual Meeting, the AwardsCommittee carefully reviews <strong>and</strong> grades all of the scientific postersthat are being considered <strong>for</strong> the award. The award recipient isselected as the highest rated poster from all committee memberratings. The Awards Committee presents this award during theaward ceremony on the final day of the meeting.2013 Recipient: People’s Choice – Winner will be announcedafter the Annual Meeting on the AACPDM website.Mac Keith Press promosing careerAwardThis award is presented to an outst<strong>and</strong>ing scientist who has madesignificant contributions to the basic science of cerebral palsy <strong>and</strong>childhood onset disabilities.2013 Recipient: Winner to be announced on Saturday,October 19th!Lifetime Achievement AwardThis award is presented to an <strong>Academy</strong> member who has madeoutst<strong>and</strong>ing significant <strong>and</strong> creative contributions to the benefit ofpersons with cerebral palsy <strong>and</strong> other childhood-onset disabilities.2013 Recipient: John McLaughlin, MDMentorship AwardThis award recognizes an individual who has demonstratedoutst<strong>and</strong>ing leadership <strong>for</strong> trainees <strong>and</strong> colleagues in the field ofcerebral palsy <strong>and</strong> other developmental disabilities. The ResearchCommittee considers the breadth <strong>and</strong> depth of the nominee’scontribution <strong>and</strong> impact on improv¬ing services <strong>and</strong> care,promoting professional education <strong>and</strong> research <strong>for</strong> individuals withdisabilities, <strong>and</strong> the sustainability of the nominee’s mentorshipover time. The award recipient must be a current member of theAACPDM.2013 Recipient: Freeman Miller, MDFred P. Sage AwardThe Sage Award is given to the best audio/visual submissionpresenting clinical, research, or educational material on CD-ROMor DVD in a digital <strong>for</strong>mat. The award is named after Fred Sage, MD,past president (1981) <strong>and</strong> Chairman of the A/V Committee of theAACPDM. Dr. Sage envisioned the great potential of audio-visual usein the <strong>Academy</strong>. He advocated <strong>for</strong> ways to popularize this method ofteaching, <strong>and</strong> this interest eventually lead to the Fred P. Sage Award<strong>for</strong> the best program submitted each year.2013 Recipient: A. Sebastian Schroeder, MD; Steffen Beweck,MD; Urban Fietzek, MD; Florian Heinen, Prof.,MD16<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Grants <strong>and</strong> ScholarshipsAACPDM Research GrantThe purpose of this research grant is to provide support to bringtogether investigators from geographically disparate locations,obtain statistical consultation <strong>and</strong> develop a multi-center researchstudy plan. The goal is to provide the <strong>for</strong>um <strong>and</strong> initial planning todevelop a successful grant submission <strong>for</strong> full funding through alarger agency (e.g., NIH, UCP, NIDRR, CDC, CIHR). The grant focuseson an important clinical question that is relevant to the membershipof AACPDM <strong>and</strong> should involve a multidisciplinary team. The grant isopen to all members of the AACPDM.2013 Research Project: “Developing the InternationalClassification of Functioning core sets <strong>for</strong> children with cerebralpalsy: a consensus meeting”.Research Team:Dr. Veronica Schiariti, University of British Columbia, Vancouver,British Columbia, Canada.Dr. Maureen O’Donnell, University of British Columbia, Vancouver,British Columbia, Canada.Dr. Alarcos Cieza, University of Southampton, UK. Ludwig-Maximilians-University, Munich, GermanyDr. L. Mâsse, University of British Columbia, Vancouver, BritishColumbia, Canada.Dr. Anne Klassen, McMaster University, Hamilton, Ontario, Canada.ScholarshipsAACPDM International <strong>and</strong> Student Scholarship RecipientsThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> DevelopmentalMedicine Scholarship Program supports the mission of the AACPDMto improve the health <strong>and</strong> general status of children <strong>and</strong> adults withcerebral palsy, developmental disorders <strong>and</strong> childhood acquireddisabilities. The <strong>Academy</strong> seeks international applicants who arehighly motivated, currently in clinical practice, <strong>and</strong> who are in aposition which will enable them to disseminate knowledge acquiredat the meeting to others in their home country once they return.Particular emphasis is placed on assisting those from areas withunder supported medical systems <strong>and</strong> limited financial resources.The AACPDM also awards scholarships to students each year so thatthey may attend the Annual Meeting.2013 International Scholarship WinnersKristie Bell-AustraliaRoberta Bikuliciene-LithuaniaMauro Cardoso Lins-BrazilSajee Anuradha Gamage-Sri LankaNava Gelkop-IsraelAndres Gil Salcedo-ColombiaRoksana Hoque-BangladeshShahnaz Ibrahim-PakistanLeanne Johnston-AustraliaGopi Kitnasamy-IndiaStephanie Ross-AustraliaTamar Silberg-IsraelVikas Trivedi-IndiaRoselyn Valerin-Costa Rica2013 Student Scholarship WinnersKatherine A. Benfer, B SpPath, MPHKatelyn Cahill-Rowley, MSCourtney M. Chapman, MSPeter J. Chung, MDJoseph S. Domino, BSMaaike M. Eken, MScClaudio L. Ferre, MAKent R. Heberer, MS BioengineeringBreanna K. HoldenShannon M. Knights, MDRachel L. Lenhart, MSLisa C. Letzkus, CPNP-AC MSN BSN RNMargie Mathewson, MSLaura Miller, OT MHSMLouise E. Mitchell, PT MHStLauren J. PhillipsChristian A. Pitcher, BSc(Hons)Veronica Schiariti, MDEvan D. ShehaSwati M. Surkar, M.S. PTMelissa D. Svoboda, MDRachel Vassar2013 OrthoPediatrics Travel Scholarship WinnersClaire Beimesch, MDAshlee Bolger, MDAna deCampas, PhD PTGregory Firth, MDJeannie Harden, MDJulieanne Sees, MDAACPDM 67 th Annual Meeting • Research & Practice 17


2013 Scientific Program OverviewWednesday, October 16This year’s program was developed from a submission total of 450 abstracts. All electronically submitted abstracts were independently ratedby the multidisciplinary scientific program committee of 14 members (see page 7 of the program). The committee met in March 2013 toreview the abstracts <strong>and</strong> finalize the program (e.g. Scientific paper or poster, instructional course/breakfast seminars). Scientific papers <strong>and</strong>Posters were rated (masked to authors) on research question/objectives, design, methodology, conclusions <strong>and</strong> relative impact, relevance<strong>and</strong> importance to the care <strong>and</strong> treatment of children with childhood onset disabilities. Instructional Courses <strong>and</strong> Breakfast Seminars wererated (unmasked) on course objectives, content, presenters <strong>and</strong> level of impact, relevance <strong>and</strong> importance to conference attendees <strong>and</strong> theAACPDM membership at large. The feedback from the previous year’s evaluations are utilized in the process of creating the program withthe aim of better meeting the needs of meeting attendees.The 2013 program includes:6 Keynote presentations4 Plenary presentations90 Scientific Papers67 Scientific Posters40 Demonstration Posters4 Pre-Conference Sessions1 GCMAS Joint Symposium38 Instructional Courses16 Breakfast SeminarsScientific Review Process• Blinded abstracts submitted electronically• Abstracts are scored independently by the program committeewith scores submitted electronically <strong>and</strong> then tallied/averaged• Highest scored abstracts are selected• Program Committee meets in March to make final decisions re:scientific program planning <strong>and</strong> to ensure that the program isbalanced in content.Free Papers <strong>and</strong> Posters are rated on:• Research Question/Objectives• Research Design, Methodology• Impact, Relevance & ImportanceInstructional Courses <strong>and</strong> Breakfast Seminars are rated on:• Course Objectives• Content/Presenters• Impact, Relevance & ImportanceWednesday, October 168:00 am – 12:00 pm GCMAS SymposiumChanges in Practice Due to Motion Analysis ResearchLocation: Ballroom C&DAuthors/Presenters: Robert Kay MD, Tom Novacheck MD, Sylvia Õunpuu MSc, Kristan Pierz MD, Susan Rethlefsen PT, Pam Thomason B Phty, MPhysio, <strong>and</strong> Tishya Wren, PhDCourse Level: Beginner, intermediate, <strong>and</strong> advanced.Purpose: The purpose of this course is to highlight the changes in our underst<strong>and</strong>ing of movement pathology <strong>and</strong> treatment outcomes,<strong>and</strong> the resulting evolution in treatment paradigms, <strong>for</strong> persons with cerebral palsy <strong>and</strong> other neuromuscular disorders resulting frommotion analysis research.Target Audience: Clinicians who evaluate <strong>and</strong> provide treatment <strong>for</strong> ambulatory children <strong>and</strong> youth with cerebral palsy <strong>and</strong> othermovement disorders will benefit from this symposium. Prior experience analyzing <strong>and</strong> interpreting motion analysis data is beneficial, but notrequired.Course Summary: This course will provide a detailed review of how research using comprehensive motion analysis techniques haschanged our underst<strong>and</strong>ing of gait pathomechanics <strong>and</strong> treatment outcomes <strong>and</strong>, as a result, has changed the course of treatment inchildren with cerebral palsy <strong>and</strong> other neuromuscular disorders. The course will begin with a discussion of how research using motionanalysis has improved our underst<strong>and</strong>ing of movement pathology in a variety of neuromuscular disorders. Specific gait pathologies such asunderst<strong>and</strong>ing transverse plane rotational problems <strong>and</strong> the relationship between dynamic motion <strong>and</strong> clinical examination measures willbe highlighted. We will then discuss changes in treatment approaches resulting from motion analysis research such as the development ofrectus femoris transfers <strong>and</strong> distal femoral extension osteotomies, as well as different orthosis designs. This will be followed by a review ofhow motion analysis research has led to an improved underst<strong>and</strong>ing of long-term treatment outcomes. The program will conclude with adiscussion of recent research developments advancing the use of motion analysis in clinical applications such as the gait profile score <strong>and</strong>state-of-the-art algorithms to assist in treatment planning.Learning Objectives:At the end of the symposium participants will be able to discuss:1) How motion analysis research has improved our underst<strong>and</strong>ing of motion pathology.2) How motion analysis research is improving our underst<strong>and</strong>ing of the relationship between pathological movement <strong>and</strong> treatmentdecision-making.3) How motion analysis research has contributed to the underst<strong>and</strong>ing of treatment outcomes (short <strong>and</strong> long-term).4) How motion analysis research has led to the development of new surgical interventions <strong>and</strong> treatment paradigms.18<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Wednesday, October 16: Pre-Conference Sessions1:00 pm – 5:00 pm PC 1 - Promoting health-related fitness beyond childhood <strong>for</strong> persons withchildhood onset disabilityCo-Sponsored by the Lifespan Care CommitteeLocation: 103 A&BAuthors/Presenters: Garey Norvitz, MD; Jim Rimmer, PhD; Margaret A. Turk, MD; Mark Peterson, PhD; Wilma van der Slot, MD, PhD; DebbieThorpe, PT, PhD, PCS.Course Level: IntermediatePurpose: Individuals with childhood-onset disabilities are the least physically active members of society, placing them at high risk <strong>for</strong> theco-morbidities associated with inactivity. This AACPDM specialty day course will focus on the promotion of health <strong>and</strong> fitness <strong>for</strong> adults withcerebral palsy (CP). By virtue of discussing the type <strong>and</strong> amount of physical activity required by adults with CP to improve <strong>and</strong>/or maintaintheir health <strong>and</strong> fitness, this course will provide consumers <strong>and</strong> rehabilitation professionals knowledge with which to help design the mostappropriate health <strong>and</strong> fitness programs to promote community participation, help minimize or prevent secondary conditions, <strong>and</strong> enhancequality of life <strong>for</strong> adults with cerebral palsy.Target Audience: This course is targeted to health care providers <strong>for</strong> children <strong>and</strong> adults with childhood onset disabilities. It is also highlyrelevant to individuals with childhood-onset disabilities <strong>and</strong> their families. We welcome professional <strong>and</strong> consumer organizations, <strong>and</strong>individuals who strive <strong>for</strong> a good lifelong health <strong>for</strong> individuals with childhood onset disabilities.Course Summary: This course includes various presentations <strong>and</strong> an interactive panel discussion. The speakers will identify the evidencerelated to cardio metabolic deficiency <strong>and</strong> recognize the importance of a comprehensive health promotion program <strong>for</strong> persons withchildhood-onset disability. Pertinent evidence on health <strong>and</strong> fitness <strong>for</strong> persons with childhood-onset disabilities will be reviewed. Throughdiscussion, we will explore strategies to design <strong>and</strong> implement successful health promotion programs <strong>for</strong> adults with childhood onsetdisability. This AACPDM specialty day on lifespan care <strong>for</strong> adults with childhood-onset disability will promote knowledge exchange between(adult <strong>and</strong> pediatric) health care providers, individuals with childhood-onset disabilities <strong>and</strong> their families.Learning Objectives:1) Recognize <strong>and</strong> eliminate barriers to physical activity <strong>for</strong> people with cerebral palsy.2) Identify key strategies <strong>for</strong> promoting inclusive health <strong>and</strong> fitness among people with cerebral palsy.3) Underst<strong>and</strong> how to use internet-based self-management programs to promote health <strong>and</strong> fitness in people with cerebral palsy.4) Identify the successes <strong>and</strong> barriers of health promotion programs <strong>for</strong> adults <strong>and</strong> children with disabilities.5) Describe the confluence of factors that contribute to accelerated muscle wasting <strong>and</strong> metabolic dysregulation in cerebral palsy.6) Identify levels of physical activity, fitness <strong>and</strong> strain in adults with cerebral palsy.7) Identify a modular treatment to enhance physical activity <strong>and</strong> sports in persons with childhood onset disorders.8) Integrate in<strong>for</strong>mation from current research <strong>and</strong> model programs into the design <strong>and</strong> implementation of fitness <strong>and</strong> physical activityprograms <strong>for</strong> adults with cerebral palsy.Wednesday, October 161:00 pm – 5:00 pm PC 2 - Bridge to Independence: A model <strong>for</strong> family curriculum developmentLocation: 102 DAuthors/Presenters: Simone C.O. Conceição, Ph.D., University of Wisconsin-Milwaukee, Holly Colby, RN, MS, Children’s Hospital of Wisconsin, SarahJohaningsmeir, BA, Medical College of WisconsinCourse level: Beginner to advancedTarget audience: This session is relevant to healthcare or service providers who want to begin teaching families or to improve theirteaching by applying health literacy principles <strong>and</strong> adult education strategies <strong>for</strong> developing their own teaching materials.Purpose: To teach healthcare professionals how to develop <strong>and</strong> implement teaching <strong>for</strong> families using the Bridge to Independence carecoordination curriculum as the model.Course Summary: This session will provide instruction about how the Bridge to Independence care coordination curriculum wasdeveloped. The curriculum development process used collaborative design with input from care coordination experts, an adult educationexpert, primary care providers, <strong>and</strong> family caregivers. We will demonstrate how to design materials following health literacy principles. Adulteducation strategies will be shared to promote optimal learning by family caregivers. We will describe the implementation of the curriculumwith one-on-one teaching by health care providers <strong>and</strong> teaching by family lay trainers to groups. Outcomes from these teaching ef<strong>for</strong>ts willbe shared, including family quality of life, care coordination skills <strong>and</strong> knowledge, <strong>and</strong> measures of Lay Trainer teaching skills. We will discusspractical challenges encountered, such as finding time to teach <strong>and</strong> attracting an audience. Attendees will use Bridge to Independence as amodel <strong>for</strong> planning, designing, <strong>and</strong> practicing how they will deliver education to family caregivers.Learning objectives:1) Gain familiarity with the Bridge to Independence care coordination curriculum.2) Underst<strong>and</strong> principles of health literacy used in curriculum design <strong>and</strong> implementation.3) Recognize common challenges to implementing teaching.4) Apply curriculum design <strong>and</strong> implementation strategies to teach health <strong>and</strong> related in<strong>for</strong>mation to families.AACPDM 67 th Annual Meeting • Research & Practice 19


Wednesday, October 16: Pre-Conference SessionsWednesday, October 161:00 pm – 5:00 pm PC 3 - New Clinical Horizons <strong>and</strong> Emerging Mobility Technologies - A ResearchDriven ProcessLocation: 102 A-CAuthors/Presenters: Deborah Gaebler-Spira, MD, Adam Graf, MS, Gerald Harris, PhD,PE Katie Konop, MS, Joseph Krzak, PhD, PT, Ben McHenry,PhD, Susan Riedel, MS, Brooke Slavens, PhD, Peter Smith, MD, Larry Vogel, MD, <strong>and</strong> Li Qun Zhang, PhDCourse Level: Beginner, intermediate, <strong>and</strong> advanced. Prior exposure to motion analysis <strong>and</strong> data interpretation is useful but not required.Purpose: The purpose of this course is to examine emerging clinical applications resulting from advances in mobility assessment <strong>and</strong>assisted therapy. These research driven applications integrate clinical need with novel technologies to offer more effective methods ofmobility analysis <strong>and</strong> therapeutic treatment.Target Audience: Clinicians <strong>and</strong> practitioners who assess <strong>and</strong> treat children <strong>and</strong> young adults with movement disorders will benefitfrom this symposium <strong>and</strong> the h<strong>and</strong>s-on practicum. The application focus is on children <strong>and</strong> young adults with cerebral palsy <strong>and</strong> otherneuromuscular disorders.Course Summary: This course will provide significant exposure to emerging applications in human motion analysis <strong>and</strong> robotic assistedmovement therapy. The research driven symposium will offer a balanced presentation of upper <strong>and</strong> lower extremity motion analysisapplications which employ advanced modeling techniques <strong>and</strong> technologies to improve pre-treatment assessment <strong>and</strong> post-treatmentfollow-up. The upper extremity applications will address the internal joint dem<strong>and</strong>s of children <strong>and</strong> young adults who use anterior <strong>and</strong>posterior walkers, Lofstr<strong>and</strong> (Canadian) crutches, <strong>and</strong> manual wheelchairs. The lower extremity applications will address the segmentalmotion dem<strong>and</strong>s of the hindfoot, <strong>for</strong>efoot <strong>and</strong> hallux in children with equinovarus <strong>and</strong> planovalgus foot de<strong>for</strong>mities who are c<strong>and</strong>idates<strong>for</strong> both conservative <strong>and</strong> surgical care. Novel fluoroscopic technology will be discussed which allows in vivo examination of the talocrural<strong>and</strong> subtalar joints during walking while shod <strong>and</strong> with orthotics. An application example of robotic assisted movement therapy will bepresented in terms of setting subject-specific goals which can be modified throughout the progression of treatment. The importance ofintegrated gaming strategies <strong>for</strong> upper extremity assessment <strong>and</strong> therapy with a markerless system (Microsoft Kinect) will be presented <strong>and</strong>demonstrated during a h<strong>and</strong>s-on practicum. The session will conclude with a discussion of emerging applications <strong>and</strong> novel technologiesresulting from recent research.Learning Objectives:1) How recent research is advancing our underst<strong>and</strong>ing of upper extremity mobility <strong>and</strong> the longer term implications of assistive deviceuse in children2) How recent research is advancing our underst<strong>and</strong>ing of segmental foot motion <strong>and</strong> how this knowledge is being used to make betterclinical decisions3) How fluoroscopic imaging of the hindfoot is increasing our knowledge of bony hindfoot dynamics <strong>and</strong> the potential <strong>for</strong> future clinicalapplication4) Important features of robotic assisted movement therapy <strong>and</strong> how this technology can be useful in the clinician’s treatment arena5) How gaming strategies are integrated with therapy dem<strong>and</strong>s in the current clinical environment20<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Wednesday, October 16: Pre-Conference Sessions1:00 pm – 5:00 pm PC 4 - Review of Ultrasound Guidance <strong>for</strong> Botulinum toxin Therapy: Didactic <strong>and</strong>H<strong>and</strong>s-On Training ProgramLocation: 101 A&BAuthors/Presenters: Katharine Alter, MD, Florian Heinen, MD, Steffen Berweck, MD, Sebastian Schroder, MD, Hank Chambers, MD, StephenNichols, MD, Robert Cooper, MD, Christine Jansen MD, Rita Ayyangar, MD, Heakyung Kim, MDCourse Level: IntermediateTarget Audience: Physicians (PMR, orthopedics, neurology, developmental pediatrics)Purpose: Botulinum toxin therapy is a commonly accepted treatment <strong>for</strong> patients with problematic spasticity associated with the uppermotor neuron syndrome. A variety of guidance techniques are used <strong>for</strong> target localization when per<strong>for</strong>ming BoNT therapy. Traditionaltechniques have recognized limitations, leading clinicians to explore <strong>for</strong> a more accurate targeting technique. B mode ultrasound isincreasingly recognized as a more accurate alternative to traditional techniques. Access to h<strong>and</strong>s on training in US guidance techniques,specific <strong>for</strong> BoNT therapy, remains a barrier <strong>for</strong> physicians interested in becoming proficient in these US guided procedures.Course purpose:1) Provide a review of US physics.2) Demonstrate US guidance techniques <strong>for</strong> commonly targeted muscles.3) To provide participants with h<strong>and</strong>s-on US training relevant <strong>for</strong> BoNT injections, in small group settings.4) Participants are expected to gain skills in basic US scanning techniques, US muscle pattern recognition <strong>and</strong> in US guided proceduralskills.Course Summary: This course will be divided into 3 sections; didactic lectures on Ultrasound physic <strong>and</strong> scanning techniques, ademonstration of US scanning <strong>for</strong> muscles in the upper limb, lower limb, neck <strong>and</strong> salivary gl<strong>and</strong>. The demonstration section will be followedby small group, h<strong>and</strong>s on scanning sessions where participants will gain experience in US scanning <strong>and</strong> identification of key muscle groups.The small group sessions will be led by AACPDM faculty experience with using US guidance <strong>for</strong> BoNT injections <strong>and</strong> other procedures.One practice station will include training in needle visualization/procedural techniques using a blue phantom or technique to simulate liveinjection scanning.During the h<strong>and</strong>s on session of the course participants will scan/work in pairs or small groups with each participant serving as an “ultrasoundmodel” during scanning. This <strong>for</strong>mat provides participants with the experience in US scanning pitfalls including frequently encounteredindividual variations in muscle pattern, depth, size <strong>and</strong> echotexture. To facilitate scanning of limb, head/neck muscles <strong>and</strong> salivary gl<strong>and</strong>sparticipants are expected to dress casually in shorts, T-shirts or other com<strong>for</strong>table clothingThe number of participants in the course will be limited to provide h<strong>and</strong>s on training. Participants are expected to work in pair groups <strong>for</strong> scanning,to wear com<strong>for</strong>table, casual clothing (T-shirts/shorts) to facilitate practice scanning. A few volunteers are needed. Contact meetings@aacpdm.org <strong>for</strong>additional in<strong>for</strong>mation.Learning Objectives:1) Attendees will learn the basics of US physics <strong>and</strong> techniques required <strong>for</strong> ultrasound (US) guided chemodenervation procedures.2) Attendees will identify the advantages <strong>and</strong> disadvantages of Anatomic guidance techniques, EMG, E- Stim <strong>and</strong> Ultrasound guidance <strong>for</strong>BoNT injections.3) At the end of the course attendees will identify key upper <strong>and</strong> lower limb muscles when using B mode US.4) Attendees will identify the ultrasound echotexture properties of muscle, nerve <strong>and</strong> tendon in longitudinal <strong>and</strong> cross section. Attendeeswill identify 2 procedural approaches used in US guided needle insertion learth.Wednesday, October 166:30 pm – 8:30 pm President’s Welcome ReceptionLocation: Milwaukee Art MuseumThe Annual Meeting officially begins with the President’s Welcome Reception on Wednesday evening. This is a great opportunity to networkin a relaxed <strong>and</strong> fun setting. This reception will be at the Milwaukee Art Museum <strong>and</strong> will feature great food, complimentary drink tickets <strong>and</strong>most importantly a chance to reconnect with old friends or meet some new ones.Buses will be loading from the Hilton Hotel, 6th St. entrance.AACPDM 67 th Annual Meeting • Research & Practice 21


Thursday, October 17, 20136:00 am-6:45 am Get Fit! Zumba®Location: Upper level lobby areaDitch the workout <strong>and</strong> join the party! Zumba is a dynamic,danced-based class set to the fusion of Latin <strong>and</strong> international music featuringaerobic fitness.7:00 am–7:50 am Continental BreakfastLocation: Exhibit Hall, Ballroom A & BTHURsday, October 177:00 am–7:50 am Breakfast Seminars 1-6BRK 1 - FACTORS THAT INFLUENCE EFFECTIVENESS OF ROBOTIC-ASSISTED THERAPIES IN CHILDREN WITH CEREBRALPALSYLocation: 201 C&DAuthors: Sebastian Schroeder, MD; Steffen Berweck, PD MD; Deborah Gaebler-Spira, MD; Florian Heinen, MD; Andreas Meyer Heim, PD MDLevel: BasicPurpose: To demonstrate <strong>and</strong> discuss interactions between specific patient characteristics, therapy settings, <strong>and</strong> adequate outcomemeasures <strong>for</strong> planning <strong>and</strong> assessing robotic-assisted therapies.Target Audience: Physicians, therapists which are using / planning to use robotic-assisted therapies <strong>for</strong> children with CP.Course Summary: Robotic assisted therapies are increasingly being used to improve motor abilities in children with CP, but theeffectiveness of these usually expensive <strong>and</strong> time consuming interventions is not clearly determined across the heterogenity of pediatricmovement disorders. Different therapy settings throughout different institutions <strong>and</strong> heterogenicity of patient characteristics (age,phenomenology, GMFCS level) still limit the value of outcome evaluation using systematic reviews. This session will demonstrate personalexperience gained during more than 7 years of using robotic-assisted treadmill therapy on the levels of function, activity <strong>and</strong> participation.Factors that influence effectiveness will be presented <strong>and</strong> discussed in relation to WHO-ICF domains <strong>and</strong> will be set into the context ofactual literature.Learning Objectives:1) To become familiar with the impact of patient specific factors (e.g. diagnosis, gender, age, GMFCS level, etc.) on effectiveness of roboticassisted therapy.2) To become familiar with the impact of treatment specific factors (e.g. the combination with botulinum toxin injections, treatmentintensity) on the effectiveness of therapy.3) To gain experience with the potential effect size of presented outcome measures on different ICF domains (e.g. using GMFM 66, COPM)in correlation to the influencing factors.4) To help to estimate the right expectations about the individual’s outcome <strong>for</strong> communication with the patients <strong>and</strong> parents.BRK 2 - TREATING COMPLEX FEEDING DISORDERS IN AN INTENSIVE, DAY TREATMENT SETTINGLocation: 202 AAuthor: Mary C. Bickley, MedLevel: IntermediatePurpose: Describe the essential elements necessary to treat children with complex feeding disorders in an intensive, day treatment modelTarget Audience: Physicians, therapists, educatorsCourse Summary: Feeding therapy provided at the local level is traditionally done on a once per week or less basis. This service provisioncan be hampered by developmental issues, illness, parent participation <strong>and</strong> therapist availability. Parents frequently report frustrationwith slow progress. Mrs. Bickley will discuss an alternative to this traditional service provision that allows <strong>for</strong> concentrated focus on holisticevaluation, individuation of treatment that is provided in a family centered environment on an intensive basis. Parents report greaterunderst<strong>and</strong>ing of their individual child’s difficulties, therapy needs <strong>and</strong> comprehension of the long term plan following admission to this twoweek program.Learning Objectives:1) Participants will identify the barriers to normal eating patterns in medically complex children.2) Participants will identify elements of holistic evaluation that will allow <strong>for</strong> individualization of treatment.3) Participants will identify the essential elements necessary to develop <strong>and</strong> promote efficient/effective eating patterns in children.4) Participants will identify the benefits/drawbacks of intensive day treatment model <strong>for</strong> feeding disorders.22<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Thursday, October 17, 20137:00 am–7:50 am Breakfast Seminars 1-6BRK 3 - MANAGEMENT OF CHRONIC PAIN IN CHILDREN WITH CHRONIC MEDICAL CONDITIONSLocation: 202 CAuthor: Joelle Mast, PhD MDLevel: IntermediatePurpose: Chronic pain is under recognized <strong>and</strong> undertreated in children with chronic medical conditions such as cerebral palsy <strong>and</strong> sicklecell anemia. The purpose of this seminar is to increase awareness <strong>and</strong> provide management guidelines <strong>for</strong> the treatment of chronic pain.Target Audience: Pediatricians, neurologists, psychologists, physiatrists, orthopedic <strong>and</strong> neuro-surgeons, physical <strong>and</strong> occupationaltherapists, speech <strong>and</strong> language therapists, nurses, concerned with the care of people who have cerebral palsy <strong>and</strong> other chronic medicalconditionsCourse Summary: This lecture will familiarize the audience with the spectrum of pain syndromes, such as CPRS <strong>and</strong> RLS as well asmusculoskeletal pain. Assessment tools, both pain scales <strong>and</strong> functional scales will be reviewed. Management including when <strong>and</strong> how touse opiate therapy <strong>and</strong> how to treat side effects will be discussed. Risk assessment <strong>and</strong> medico-legal issues will be covered.Learning Objectives:1) Underst<strong>and</strong> the presentation of chronic pain in children.2) Be able to manage chronic pain with both pharmacologic <strong>and</strong> nonpharmacologic interventions.3) Know treatments <strong>for</strong> side effects of pain medications.4) Underst<strong>and</strong> the medicolegal requirements of pain management in terms of accountability of both patient <strong>and</strong> practitioner.BRK 4 - BONE HEALTH IN CHILDREN WITH PHYSICAL DISABILITIESLocation: 201 BAuthors: Steven Bachrach, MD; Tessa Gresley-Jones, BScN MN NP-PaedsLevel: IntermediatePurpose: To review the evidence around prevention, surveillance <strong>and</strong> treatment of osteoporosis <strong>and</strong> fragility fractures in children withmobility restrictions while providing practical strategies to translate knowledge into practice on this topic.Target Audience: Physicians, nurses, therapists, parentsCourse Summary: Children with physical disabilities <strong>and</strong> mobility restrictions are at increased risk <strong>for</strong> developing osteoporosis.Approximately 20% of children <strong>and</strong> young adults with cerebral palsy who cannot walk independently develop fragility fractures. Fracturescan cause significant pain <strong>and</strong> impairment, as well as impact family functioning. There<strong>for</strong>e, it is important <strong>for</strong> caregivers <strong>and</strong> health careproviders to know how to improve bone mineral density <strong>and</strong> prevent fragility fractures in these children. We will review the evidence aroundprevention, surveillance <strong>and</strong> treatment of osteoporosis <strong>and</strong> fragility fractures in children with mobility restrictions. We will also introduce aclinical practice guideline <strong>for</strong> children with <strong>Cerebral</strong> <strong>Palsy</strong> at risk <strong>for</strong> osteoporosis as well as practical tools to facilitate knowledge translationof this practice guideline. The presenters will prompt participants to engage in discussion about gaps in the evidence <strong>and</strong> challenges in theirown clinical practice, specifically around monitoring vitamin D levels, use of DXA scans <strong>and</strong> decision making around bisphosphonates.Learning Objectives:1) To identify key components of the prevention <strong>and</strong> evaluation of low bone mineral density in children with disabilities.2) To develop skill in implementing nutrition based interventions <strong>for</strong> preventing <strong>and</strong> treating low bone mineral density in children withdisabilities.3) To underst<strong>and</strong> how bone density is measured in patients with disabilities <strong>and</strong> what the measurements mean.4) To underst<strong>and</strong> the evidence <strong>for</strong> treatment modalities of osteoporosis of children with physical disabilities, specifically bisphosphonates.THURsday, October 17AACPDM 67 th Annual Meeting • Research & Practice 23


Thursday, October 17, 2013THURsday, October 177:00 am–7:50 am Breakfast Seminars 1-6BRK 5 - EVALUATION AND INSIGHTS IN SECONDARY DYSTONIA AND CHOREOATHETOSIS IN DYSKINETIC CPLocation: 202 D&EAuthors: Elegast Monbaliu, PT PhD student; Hilde Feys, PT PhDLevel: BasicPurpose: To improve insights in the clinical presentation of secondary dystonia <strong>and</strong> choreoathetosis in dyskinetic CP.Target Audience: This training course is relevant to most paediatric health care professionals: medical doctors, physical therapists,occupational therapists, speech <strong>and</strong> language therapists, kinesiologistsCourse Summary: In the past two decades, interest in cerebral palsy (CP) has increased remarkably. However, compared with the spasticCP type, the assessment <strong>and</strong> treatment of patients with dyskinetic CP are still underreported. This lack of research is underst<strong>and</strong>able inview of the complexity of dystonia <strong>and</strong> choreoathetosis in dyskinetic CP, rendering it difficult to measure. According to the Surveillance of<strong>Cerebral</strong> <strong>Palsy</strong> in Europe (SCPE), dyskinetic CP is characterized by involuntary, uncontrolled, recurring, occasionally stereotyped movementsin which the primitive reflex patterns predominate <strong>and</strong> muscle tone varies. Dyskinetic CP is further subdivided into secondary dystonia<strong>and</strong> choreoathetosis. This breakfast session is subdivided in four parts. First, definition <strong>and</strong> classification of CP will be presented with specialattention <strong>for</strong> the discrimination between dystonia <strong>and</strong> choreoathetosis, based on the definitions of the SCPE <strong>and</strong> the Task<strong>for</strong>ce on ChildhoodMotor Disorders. Secondly, pathological signs will be reviewed in accordance with the International Classification of Functioning, Health <strong>and</strong>Disability model (ICF), specifically within the ICF body function <strong>and</strong> structure. The third part will focus on clinical assessment, with specialattention <strong>for</strong> the newly developed Dyskinesia Impairment Scale. In the fourth part, the possibility will be given to discuss <strong>and</strong> to evaluatedystonia <strong>and</strong> choreoathetosis in an interactive way with the audience using videos <strong>and</strong> clinical cases.Learning Objectives:1) To clarify the currently definition <strong>and</strong> classification of dyskinetic CP.2) To gain insight in the distinction between dystonia <strong>and</strong> choreoathetosis.3) To illustrate the clinical presentation of secondary dystonia <strong>and</strong> choreoathetosis in dyskinetic CP.4) To review the currently available clinical assessment scales <strong>for</strong> secondary dystonia <strong>and</strong> choreoathetosis in dyskinetic CP.BRK 6 - TRANSITIONING YOUTH WITH DISABILITIES TO ADULTHOOD: SUCCESSFUL APPLICATION OF PROVEN MODELSFOR CLINICIANS AND CARE PROVIDERSLocation: 203 A&BAuthor: Susan C. Labhard, MSN RNLevel: IntermediatePurpose: To provide practical innovations in support of successful transition programs <strong>for</strong> youth with disabilities beyond medical needsalone. Concepts applicable to health care professionals in a variety of settings.Target Audience: Clinicians, therapists, care providers, <strong>and</strong> educators of all disciplines.Course Summary: Transition is a process that can be especially challenging <strong>for</strong> those with disabilities <strong>and</strong> the people that care aboutthem. Transition issues from finding adult providers to sexuality in<strong>for</strong>mation (<strong>for</strong> youth with physical or developmental disabilities) will beillustrated <strong>and</strong> practical solutions discussed with audience. Participants can expect to come away with positive approaches applicable toyouth <strong>and</strong> to their practice setting.Learning Objectives:1) Underst<strong>and</strong> the importance of a Transitions Program <strong>for</strong> youth with disabilities citing AAP Guidelines <strong>and</strong> evidence-based practiceoutcomes.2) Learn about tools <strong>for</strong> the development of a “person-centered” Transitions Program beyond medical needs alone.3) Illustrate the use of a computer-based, Transition Resources Mind-Map to quickly locate adult providers <strong>and</strong> a variety of other applicabletransition resources.4) Explore innovative methods of providing transition in<strong>for</strong>mation to patients <strong>and</strong> families in a variety of settings from clinic to a successfulTransitions Day Camp.24<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Thursday, October 17, 20138:00 am-10:15 am General SessionLocation: Ballroom C&DWelcome <strong>and</strong> Exchange of GavelMaureen O’Donnell, President <strong>and</strong> Richard Stevenson, First Vice PresidentResearch <strong>and</strong> Practice in Childhood Disability: What Comes Next?Richard Stevenson, MDPresidential Guest LecturerClassification in Developmental Disability: Evidence of OCD, or a Step Forward?Peter Rosenbaum, MD, FRCP(C)10:15 am-10:45 am Coffee Break - Posters <strong>and</strong> ExhibitsLocation: Exhibit Hall, Ballroom A&BExp<strong>and</strong>ed breaks throughout the morning <strong>and</strong> afternoon sessions will give you a chance to visit the exhibits <strong>and</strong> posters. Plan tomeet a friend during one of these times <strong>and</strong> just catch up!THURsday, October 1710:45am -12:45 pm Free Paper sessions A-CFree Paper Session A: Well BeingLocation: 103 A-CA1 - SIBLING RELATIONSHIPS: PERSPECTIVES OF CHILDREN WITH CEREBRAL PALSY AND THEIR SIBLINGSLeanne M. Johnston, PhD; Samantha Walter, MA; Cathryne Lang, PhDA2 - PSYCHOLOGICAL WELLBEING OF CAREGIVERS OF ADOLESCENTS WITH CP: IMPACT OF ADOLESCENTCHARACTERISTICS AND FAMILY SUPPORT SERVICESLeanne M. Johnston, PhD; Breanna Holden, MA; Cathryne Lang, PhDA3 - COPING WITH CHILDHOOD ONSET DISABILITY AND PSYCHOSOCIAL OUTCOMES: A COMPARISON OF COPINGPATTERNS ACROSS THE LIFESPANAlicia M. January, PhD; Erin H. Kelly, PhD; Kathy Zebracki, PhD; Heather F. Russell, PhD; Lawrence C. Vogel, MDA4 - LOOK AROUND ME: ENVIRONMENTAL CONTEXT FOR ADOLESCENTS WITH CEREBRAL PALSY (CP)Keiko Shikako-Thomas, PhD; Norbert Schmitz, PhD; Allan Colver, MD; Lucy Lach, PhD; Michael Shevell, MD CM; Mary Law, PhD; Chantal Poulin, MDCM; Annette Majnemer, PhDA5 - AN EXPLORATORY ANALYSIS OF FACTORS THAT IMPACT SELF CONCEPT (SC) IN CHILDREN WITH CEREBRAL PALSY (CP)Greta von der Luft, PT PhD MEd; Betty DeBoer, PhD; Sara Martino, PhDA6 - STABILITY OF LEISURE PARTICIPATION FROM SCHOOL-AGE TO ADOLESCENCE IN CHILDREN WITH CEREBRAL PALSYAnnette Majnemer, PhD; Keiko Shikako-Thomas, PhD; Mary Law, PhD; Norbert Schmitz, PhD; Michael Shevell, MD CM; Lucy Lach, PhD; ChantalPoulin, MDA7 - PREDICTORS OF PARTICIPATION OF ADOLESCENTS WITH CEREBRAL PALSY: A EUROPEAN LONGITUDINAL STUDYHeather O. Dickinson, BSc PhD; Van M. Dang, MD; Allan Colver, MD FRCPCH; Jérôme Fauconnier, MDA8 - RELATIONSHIP BETWEEN DAILY PHYSICAL ACTIVITY PERFORMANCE AND FUNCTIONAL MOBILITY CAPACITY ANDPERFORMANCE IN TODDLERS WITH CEREBRAL PALSYKristie L. Bell, PhD; Stina Oftedal, RD; Peter S. Davies, PhD; Robert Ware, PhD; Roslyn N. Boyd, PhD PTA9 - DOUBLE JEOPARDY: MULTIPLE VICTIMIZATIONS AMONG YOUTH WITH DISABILITY IN THE US CHILD WELFARESYSTEM VAMONG YOUTH WITH DISABILITY IN THE US CHILD WELFARE SYSTEMKristin L. Berg, MSW; Cheng-Shi Shiu, MSW; Michael Msall, MDAACPDM 67 th Annual Meeting • Research & Practice 25


Thursday, October 17, 201310:45am -12:45 pm Free Paper Sessions A-CFree Paper Session A: Well BeingA10 - RELATIONSHIP BETWEEN HEALTH RESOURCE COST AND PERFORMANCE OUTCOMES IN PRESCHOOL AGECHILDREN WITH CEREBRAL PALSY; ECONOMIC ANALYSISRachel Jordan, BA Physiotherapy; Michael David, PhD; Laura Pareezer, BA; Megan Kentish, MS; Lynne McKinlay, MD; Robert Ware, PhD; Roslyn N.Boyd, PhD PTFree Paper Session B: Therapies <strong>and</strong> Interventions - Part 1Location: 101 B-DB1 - EFFECTS OF STUDENT-MENTORED PROGRESSIVE RESISTANCE EXERCISE TRAINING ON WORK TASK PERFORMANCEAND MUSCLE STRENGTH IN YOUNG PEOPLE WITH DOWN SYNDROME: A RANDOMIZED CONTROLLED TRIALNicholas Taylor, PhD ; Nora Shields, PhD; Elin Wee, BPhysio (Hons); Simone O’Shea, PhD; Bo Fernhall, PhDTHURsday, October 17B2 - EFFECTS OF STRUCTURED VS. UNSTRUCTURED INTENSIVE BIMANUAL TRAINING ON HAND FUNCTION ANDPLASTICITY IN MOTOR CORTEXKathleen Friel, PhD; Hsing-Ching Kuo, PT MS; Jaimie Gowatsky, MS; Claudio L. Ferre, MS; Jason Fuller, PhD; Jason Carmel, MD PhD; Arielle Stan<strong>for</strong>d,MD; Sarah Lisanby, MD; Yannick Bleyenheuft, PhD; Andrew Gordon, PhDB3 - CONSTRAINT-INDUCED MOVEMENT THERAPY AND BIMANUAL TRAINING IN CHILDREN WITH HEMIPLEGICCEREBRAL PALSY PROVIDED IN A SPECIAL EDUCATION PRESCHOOL AND KINDERGARTEN SETTINGNava Gelkop, PT MSc; Dikla Burstein Gol, OT MA; Anat Lahav, PT MSc; Amichai Brezner, MD; Saleh Oraibi, PT PhD; Claudio Ferre, MSc; Andrew Gordon,PhDB4 - RANDOMISED TRIAL OF THE DENSITY AND CONTEXT OF UPPER LIMB INTENSIVE GROUP COMPARED TOINDIVIDUALISED TRAINING FOR CHILDREN WITH CONGENITAL HEMIPLEGIALeanne Sakzewski, PhD OT; Roslyn N. Boyd, PhD PT; Laura Miller, OT; Joanne Bowden, OT; Jenny Ziviani, PhD OTB5 - EFFECTIVENESS OF A SIX-MONTH PHYSICAL ACTIVITY STIMULATION PROGRAM FOR CHILDREN WITH CEREBRALPALSYAnnet Dallmeijer, PhD; Leontien van Wely, MSc; Astrid Balemans, MSc; Jules Becher, MD PhDB6 - INTRAVENTRICULAR BACLOFEN FOR THE TREATMENT OF SECONDARY DYSTONIA AND SPASTICITY: CLINICALOUTCOMES, DOSING, AND SIDE EFFECTSTaryn M. Bragg, MD MS; Emily Meyer, MS CPNP APNPB7 - EFFECT OF LIDOCAINE IONTOPHORESIS COMBINED WITH PHYSICAL THERAPY INTERVENTION ON GAIT ANDSPASTICITY IN CHILDREN WITH SPASTIC HEMIPLEGIC CEREBRAL PALSYFatma A. Hegazy, PT, PhD; Yasser Salem, PT PhD MS NCS PCSB8 - BOTULINUM TOXIN INJECTIONS IN LOWER EXTREMITIES INCREASE PHYSICAL ACTIVITY IN UPPER EXTREMITIES INCHILDREN WITH CEREBRAL PALSYEva Pontén, MD PhDB9 - RESULTS OF SELECTIVE MOTOR FASCICULOTOMY IN SPASTIC UPPER LIMBS DUE TO CEREBRAL PALSYAniruddh K. Purohit, MCh; Srikanth S. Reddy, MS; Aneel K. Puligopu, MChB10 - EFFICACY OF UPPER LIMB THERAPIES FOR CHILDREN WITH CONGENITAL HEMIPLEGIA TO IMPROVE ACTIVITY ANDINDIVIDUALISED OUTCOMES: SYSTEMATIC REVIEW AND META-ANALYSIS UPDATELeanne Sakzewski, PhD OT; Roslyn N. Boyd, PhD PTFree Paper Session C: OrthopedicsLocation: Ballroom C&DC1 - THE IMPACT OF COMPLEMENTARY AND ALTERNATIVE MEDICINE ON HIP DEVELOPMENT IN CHILDREN WITHCEREBRAL PALSYKate Willoughby, BPT DPT; Kim Jachno, BSc PGBiostats; Soon Ghee Ang, MBBS; Pam Thomason, BPT MPT; H Kerr Graham, MD FRCS (Ed) FRACSC2 - RADIOLOGICAL OUTCOME OF HIP SURGERY IN CHILDREN WITH GROSS MOTOR FUNCTION CLASSIFICATION SYSTEM(GMFCS) IV AND V CEREBRAL PALSYNichola C. Wilson, MD FRACS; Shiran Zhang, BHB; Anna H. Mackey, PT PhD; N. S. Stott, MD FRACS PhDC3 - ACETABULAR REMODELING FOLLOWING FEMORAL VARUS DEROTATIONAL OSTEOTOMY IN CHILDREN WITHCEREBRAL PALSYJulie Ma, BA; Franklin Chang, MD; Eduardo Novais, MD; Zhaoxing Pan, PhD26<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Thursday, October 17, 201310:45am -12:45 pm Free Paper sessions A-CFree Paper session C: OrthopedicsC4 - SHOULD ROUTINE PROXIMAL FEMORAL HARDWARE REMOVAL BE PERFORMED IN CHILDREN WITH CEREBRALPALSY?Walter H. Truong, MD; Tom Novacheck, MD; Eyun-Jung Shin, BS(Hons) MSc; Jasjit J. Lochab, BS MBBS; Ariel Rischall, BS; Andrew Howard, MSc MD;Unni G. Narayanan, MBBS MSc MDC5 - SCOLIOSIS SURGERY IN CEREBRAL PALSY SPASTIC QUADRIPLEGIC PATIENTS: IS FUSION TO THE SACRUM ALWAYSNECESSARY? A MINIMUM 4 YEAR FOLLOW UPNicholas O. deGiorgio-Miller, MBChB; Bruce Hodgson, MBChBC6 - REPORTED OUTCOMES OF LOWER LIMB ORTHOPAEDIC SURGERY IN CHILDREN AND ADOLESCENTS WITH CEREBRALPALSY: A MAPPING REVIEWNichola C. Wilson, MD FRACS; Jimmy Chong, MD; Anna H. Mackey, PT PhD; N. S. Stott, MD PhDC7 - ORTHOPEDIC ISSUES IN LIPOMYELOMENINGOCELE: HOW DOES IT DIFFER FROM SPINA BIFIDA?Lee Segal, MD; Wojciech Czoch, MD; William Hennrikus, MD; M. W. Shrader, MD; Paul Kanev, MD; C<strong>and</strong>ice Welsh, BSNC8 - OPTIMAL PATELLAR POSITION VARIES FOR DIFFERENT WALKING POSTURESRachel L. Lenhart, MS; Michael H. Schwartz, PhD; Darryl G. Thelen, PhDC9 - POSTOPERATIVE PAIN CONTROL IN PATIENTS WITH CEREBRAL PALSY AND SCOLIOSIS: ARE WE UNDERMEDICATINGOUR PATIENTS?M. W. Shrader, MD; John Jones, MD; Mir<strong>and</strong>a Falk, MMS; Lee Segal, MD; C<strong>and</strong>ice Welsh, BSNC10 - POSTOPERATIVE PAIN IN CEREBRAL PALSY: ARE PATIENTS WITH CEREBRAL PALSY BEING UNDERMEDICATED?Joshua Hyman, MD; David P. Roye, MD; Evan D. Sheha, BS; Hiroko Matsumoto, MA; Anthony Essilfie, BS12:45 – 2:00 pm AACPDM Members’ Business Meeting <strong>and</strong> LunchLocation: 102This ticketed event is about the business of the <strong>Academy</strong> <strong>and</strong> serves a very important role – <strong>and</strong> you will have lunch provided <strong>and</strong> see yourcolleagues that perhaps you haven’t bumped into yet. Be sure to come if you are an AACPDM member!THURsday, October 172:00 pm – 4:00 pm Instructional Courses 1-13 & 32IC 1 - PART I: APPLYING SELECTIVE DORSAL RHIZOTOMY (SDR) TO IMPROVE GAIT AND AMBULATORY FUNCTION IN THECHILD WITH CEREBRAL PALSYLocation: 203 CAuthors: Marcie Ward, MD; Tom Novacheck, MD; Peter Kim, MD, PhDLevel: IntermediatePurpose: To educate providers regarding SDR, a collaborative approach to evaluating c<strong>and</strong>idates including gait analysis, the surgery, therehabilitation <strong>and</strong> outcome data.Target Audience: Physicians, surgeons, <strong>and</strong> therapists who want to know more about SDR, or consider SDR a potential treatment option <strong>for</strong>their patients.Course Summary: This course is Part I of a two part course. It will discuss the selection criteria associated with predictable outcomes <strong>for</strong>tone reduction <strong>and</strong> improved ambulation after SDR. A multidisciplinary approach will be explained <strong>and</strong> include selection criteria whichsuggest a favorable outcome can be predicted if SDR is pursued. Applicable gait analysis principles will be highlighted. Surgical technique<strong>and</strong> postoperative rehabilitation will be discussed. Research will be presented on short term <strong>and</strong> long term outcome data. The audience willparticipate through an electronic audience response system.Learning Objectives:1) Describe characteristics of patients that are consistent with a predictable positive result following SDR.2) Learn the benefits of a multidisciplinary collaborative evaluation of the ambulatory patient with cerebral palsy.3) Explore the techniques of rhizotomy <strong>and</strong> the benefits of utilizing a selective approach in the procedure.4) Review the post SDR short <strong>and</strong> long term outcomes data.AACPDM 67 th Annual Meeting • Research & Practice 27


Thursday, October 17, 2013THURsday, October 172:00 pm – 4:00 pm Instructional Courses 1-13 & 32IC 2 - EARLY PREDICTION OF CEREBRAL PALSY IN THE YOUNG INFANT BY OBSERVATION OF GENERAL MOVEMENTSLocation: Ballroom C&DAuthors: Colleen Peyton, PT DPT; Lars Adde, PT PhDLevel: IntermediatePurpose: To bring participants up to date on concepts <strong>and</strong> research related to the early prediction of cerebral palsy in the young infant byobservation of general movements (GMs).Target Audience: Physicians, physical <strong>and</strong> occupational therapistsCourse Summary: Analysis of GMs, observable at less than five months post-term, has been shown to predict the development of CPwith a high degree of certainty. At this age, the characteristics of GMs change if there has been an injury to the nervous system. Generalmovement assessment (GMA) has been described in several studies, <strong>and</strong> it has been suggested that the method may also predict thedevelopment of neurological disorders other than CP. Emerging evidence suggests that a computerized software tool also has the ability topredict cerebral palsy through video analysis of GMs. This session is intended <strong>for</strong> clinicians <strong>and</strong> researchers with the goal of underst<strong>and</strong>ingthe current evidence <strong>and</strong> concepts surrounding analysis of infant spontaneous movement <strong>and</strong> the prediction of neurological dysfunction.Video examples of normal <strong>and</strong> abnormal infant general movements will be presented. The session is not intended as a General MovementAssessment course, but as an introduction to current concepts <strong>and</strong> research.Learning Objectives:1) Discuss the history <strong>and</strong> evolution of infant neurological assessment <strong>and</strong> its clinical implication.2) Explain neural mechanisms behind spontaneous movements in the infant.3) Describe normal <strong>and</strong> abnormal <strong>for</strong>ms of infant general movements <strong>and</strong> their predictive value <strong>for</strong> neurological impairment.4) Discuss current research regarding prediction of cerebral palsy in the infant through analysis of spontaneous movement.IC 3 - CUTTING EDGE CARE IN EPILEPSY MANAGEMENT, FROM STATE OF THE ART MEDICAL MANAGEMENT THROUGHSURGICAL OUTCOMESLocation: 203 AAuthors: Maureen R. Nelson, MD; Dave Clarke, MD; Mark R. Lee, MD PhD; Jeff Titus, PhDLevel: AdvancedPurpose: The knowledge base <strong>for</strong> epilepsy management is exploding currently, with new medications, amazing technology <strong>for</strong> evaluation,including medication <strong>and</strong> radiographic combinations, <strong>and</strong> advancing surgical decision-making options <strong>and</strong> techniques.Target Audience: Pediatricians, physiatrists, neurologists, neurosurgeons, physical <strong>and</strong> occupational therapists, speech <strong>and</strong> languagepathologists, nurses, psychologistsCourse Summary: This course will cover interdisciplinary, cutting edge approach to the management of children with epilepsy. The latesttechnology <strong>for</strong> evaluation will be shown, including neuropsychological evaluation, imaging, <strong>and</strong> how these can be used in combination.Use of this in<strong>for</strong>mation to optimize care will be discussed. A logical treatment approach, including the use of the latest medications <strong>and</strong>their profiles, dietary management, vagal nerve stimulators, <strong>and</strong> surgery will be presented. Surgical options will be presented, includingrehabilitation interactions.Learning Objectives:1) Refine your medical management of children with epilepsy, including post-brain injury.2) Refine your underst<strong>and</strong>ing of potential problems with use of anti-epileptic medications.3) Develop an underst<strong>and</strong>ing of the specificity <strong>and</strong> precision possible in epilepsy evaluations.4) Develop an underst<strong>and</strong>ing of surgical approaches in various types of intractable epilepsy.28<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Thursday, October 17, 20132:00 pm – 4:00 pm Instructional Courses 1-13 & 32IC 4 - EREHABILITATION: USING VIRTUAL REALITY TECHNOLOGIES (VRTS) IN REHABILITATION FOR INDIVIDUALS WITHCEREBRAL PALSYLocation: 103 A-CAuthors: Roslyn N. Boyd, PhD PT; Louise E. Mitchell, PT MHSt; Darcy Fehlings, MD MSc; Elaine Biddiss, PhD; Betina Rasmussen, OT; Mette Kliim-Due, PTLevel: BasicPurpose: This course will summarize current evidence <strong>and</strong> familiarize attendees with VRTs to assist their integration into clinical practice.Target Audience: Occupational therapists, physiotherapists, physicians <strong>and</strong> psychologistsCourse Summary: This course will provide an overview of the evidence <strong>for</strong> VRTs used <strong>for</strong> ERehabilitation of individuals with cerebral palsy(CP). The workshop will focus on a) presenting the development <strong>and</strong> current evidence <strong>for</strong> Move it To improve it (Mitii), a virtual, web-based<strong>and</strong> individualized training system, b) discussing current evidence <strong>for</strong> use of commercially available systems such as “Wii”, <strong>and</strong> c) reviewingthe use of a novel multi-player “Exergame” consisting of a stationary cycling unit powering an avatar in customized computer games. Theworkshop will include time <strong>for</strong> attendees to trial these virtual reality plat<strong>for</strong>ms.Learning Objectives:1) Review the current evidence <strong>for</strong> the use of VRTs <strong>for</strong> ERehabilitation.2) Underst<strong>and</strong> clinical frameworks to guide decision making when using ERehabiliation.3) Learn current ERehabiliation models adopted in research settings <strong>and</strong> explore how these might be implemented in clinical practice.4) Become familiar with the application of virtual reality technologies as rehabilitation tools.IC 5 - WHERE DOES THE HIP SIT? MANAGING HIP DISPLACEMENT WITHIN THE OVERALL CONTEXT OF THE CHILD WITHCEREBRAL PALSYLocation: 201 C&DAuthors: Pam Thomason, MPT; Kate Willoughby, PhD; Paulo Selber, MD; H Kerr Graham, MDLevel: IntermediatePurpose: This updated course will focus on the practical application of evidence <strong>for</strong> the surveillance <strong>and</strong> management of hip displacementin children with CP. This course will help participants navigate the management options in relation to complex <strong>and</strong> sometimes competingneeds of the child <strong>and</strong> familyTarget Audience: Physical therapists, paediatricians, orthopaedic surgeons, rehabilitation physiciansCourse Summary: In the context of previously presented <strong>and</strong> new evidence this course will provide an overview <strong>and</strong> practical approachto the management of hip displacement. The difficulties of developing <strong>and</strong> implementing management algorithms will be explored.Participants learning will be enhanced through interactive case studies including management of children with hemiplegia <strong>and</strong> children<strong>for</strong> whom the complex nature of their disability extends far beyond the hip. The recently revised Australian St<strong>and</strong>ards of Care <strong>for</strong> hipsurveillance will be presented. The outcome of surgical <strong>and</strong> non-surgical management including new evidence of the effectiveness of nonsurgicaloptions (CAM) explored. Newly developed parent fact sheets will be available along with the revised Australian St<strong>and</strong>ards of Care.A focus will be interactive case studies that will provide participants with rationale to support their decision making about managing hipdisplacement <strong>for</strong> children in their care.Learning Objectives:1) Gain knowledge of the evidence <strong>for</strong> management of hip displacement.2) Underst<strong>and</strong> the rationale <strong>for</strong> <strong>and</strong> timing of surgical intervention.3) Underst<strong>and</strong> the management of hip displacement in relation to severity of the motor disorder <strong>and</strong> to complex <strong>and</strong> competing needs ofthe child.4) Gain knowledge of the evidence <strong>for</strong> long term outcomes of surgical <strong>and</strong> non surgical interventions.THURsday, October 17AACPDM 67 th Annual Meeting • Research & Practice 29


Thursday, October 17, 20132:00 pm – 4:00 pm Instructional Courses 1-13 & 32IC 8 - THE ICF IN RESEARCH AND CLINICAL PRACTICELocation: 202 AAuthors: Stephanie C. DeLuca, PhD; Charlene Butler, EdD; Benjamin J. Shore, MD; Linda E. Krach, MD; Kat Kolaski, MDLevel: BasicPurpose: Participants will gain underst<strong>and</strong>ing of <strong>and</strong> improve skills in using the International Classification of Functioning, Disability, <strong>and</strong>Health (ICF) framework <strong>and</strong> the ICF version <strong>for</strong> Children <strong>and</strong> Youth (ICF-CY).Target Audience: AACPDM MembersCourse Summary: The ICF is a conceptual framework utilizing specific terminology to describe health across the lifespan. It has beenadopted by over 90 countries <strong>and</strong> endorsed by 191 WHO members. The ICF includes 3 major domains: body function <strong>and</strong> structure;activities; <strong>and</strong> participation. Domains are supplemented by consideration of environmental <strong>and</strong> personal contextual factors, <strong>and</strong> aredefined within multiple categories using universal qualifying codes to promote precise descriptions. The ICF-CY is designed to capturespecific functional characteristics affecting the developing child. The AACPDM’s Treatment Outcomes Committee’s (TOC) methodology<strong>for</strong> systematic reviews requires authors report outcomes using the ICF model. As communications become more global, it is increasinglyimportant <strong>for</strong> clinicians <strong>and</strong> researchers to use a common language when describing outcomes as they critically appraise <strong>and</strong> disseminatein<strong>for</strong>mation. The ICF framework provides such a common language; however, use of the ICF framework can be challenging. Representativesof the TOC will present in<strong>for</strong>mation to better enable AACPDM members to underst<strong>and</strong>, access, <strong>and</strong> apply the ICF framework. Presenters willreview the conceptual strengths of the ICF, outline the ICF model <strong>and</strong> its components, give practical illustrations of the coding system, <strong>and</strong>consider its limitations. They will explore <strong>and</strong> highlight the relationship between the ICF-CY <strong>and</strong> available childhood health <strong>and</strong> disabilitymeasures as used by clinicians <strong>and</strong> researchers. Audience members will have an opportunity to discuss ways to promote the ICF measureswhen reporting outcomes in future publications <strong>and</strong> presentations.Learning Objectives:1) To underst<strong>and</strong> the ICF <strong>and</strong> ICF-CY components.2) To recognize strengths <strong>and</strong> limitations of the ICF model.3) To underst<strong>and</strong> how currently available childhood disability <strong>and</strong> health measures are aligned with the ICF-CY.4) To promote discussions about the ICF <strong>for</strong> a wide array of clinical <strong>and</strong> research purposes.THURsday, October 17IC 9 - THE YEAR’S TOP TEN ARTICLES ON DEVELOPMENTAL DISABILITIESLocation: 101 B-DAuthors: Gordon Worley, MD; Richard C. Adams, MDLevel: IntermediatePurpose: To present summaries of the ten most important articles on developmental disabilities published in the past year (2012 to 2013),<strong>and</strong> to encourage discussion about them by participants.Target Audience: Physicians <strong>and</strong> nurses who treat children with developmental disabilities <strong>and</strong> want to keep abreast of the latestevidence-based, scientific findings that have the greatest impact on care. Although therapists are welcome <strong>and</strong> some articles may berelevant to their practices, most papers will have a medical focus.Course Summary: The top ten clinically relevant articles published in English between Autumn 2012 <strong>and</strong> Summer 2013 will be presentedto the audience. Articles will be chosen from the presenters’ personal experience as well as from searches in Medicine <strong>and</strong> CINAHL (CurrentIn<strong>for</strong>mation in Nursing <strong>and</strong> Allied Health Literature). Categories from which the articles will be chosen include the following: attention deficithyperactivity disorder, autism, cerebral palsy, Down syndrome, mental retardation, spina bifida, <strong>and</strong> spinal cord injury. They will be selectedusing the following criteria: (1) impact on clinical care, (2) scientific merit of the study [validity], <strong>and</strong> (3) generalizability to practice. Thepresenters will summarize the ten articles in reverse order (saving number one <strong>for</strong> last). Their impact on clinical practice, place in the contextof current care, <strong>and</strong> their implications <strong>for</strong> future research will be discussed. The audience will be encouraged to respond to each article as it ispresented. A copy of the references <strong>and</strong> abstracts will be given to the attendees.Learning Objectives:1) Summarize the major conclusions of each of the ten articles presented.2) Identify areas in which additional research is needed.3) Evaluate the utility of each of the articles <strong>for</strong> their own clinical practice.4) Be inspired by the presentations to seek articles on their own.AACPDM 67 th Annual Meeting • Research & Practice 31


Thursday, October 17, 2013THURsday, October 172:00 pm – 4:00 pm Instructional Courses 1-13 & 32IC 10 - PEDIATRIC SCI IN INFANTS AND YOUNG CHILDRENLocation: 202 BAuthors: Lawrence C. Vogel, MD; Kathy Zebracki, PhD; Mary J. Mulcahey, PhDLevel: IntermediatePurpose: Highlight innovative aspects of caring <strong>for</strong> young children with SCI.Target Audience: Physicians <strong>and</strong> AHPCourse Summary: Overview of pediatric SCI, including epidemiology as a function of age at injury <strong>and</strong> management of medical/orthopaedic complications unique in children under 5 years of age. Discuss neurological evaluation <strong>and</strong> classification in young childrenwith SCI. Highlight psychosocial <strong>and</strong> sexuality issues <strong>for</strong> children with SCI <strong>and</strong> their families. Review rehabilitation <strong>and</strong> habilitation of youngchildren with SCI. Conclude with 2 case presentations with workshop attendee participationLearning Objectives:1) State the incidence of scoliosis <strong>and</strong> indications <strong>for</strong> bracing.2) State the limitations of using the ISNCSCI in children 5 years <strong>and</strong> younger.3) Describe major psychosocial issues <strong>for</strong> children with SCI <strong>and</strong> their families.4) State the youngest age that a child could begin using a power wheel chair.IC 11 - THE IMPORTANCE OF BEING EARNEST ABOUT SHANK AND THIGH KINEMATICS WHEN DESIGNING, ALIGNING ANDTUNING ANKLE-FOOT ORTHOSIS FOOTWEAR COMBINATIONS (AFO-FCS)Location: 202 DAuthors: Elaine Owen, MSc SRP MCSP; Deborah Gaebler-Spira, MD; Stefania Fatone, PhD BPO; Donald McGovern, CPOLevel: IntermediatePurpose: This course aims to introduce participants to the importance of segment kinematics in underst<strong>and</strong>ing <strong>and</strong> classifying st<strong>and</strong>ing<strong>and</strong> gait as well as designing, aligning <strong>and</strong> tuning AFO-FCs. This approach will be placed within the context of the International Classificationof Function.Target Audience: Relevant to clinicians <strong>and</strong> researchers including physical therapists, orthotists, rehabilitation engineers, pediatricneurologists, pediatric orthopaedic surgeons, pediatric physiatrists, paediatricians, kinesiologistsCourse Summary: Maximizing mobility <strong>and</strong> function often includes the use of orthoses. This course presents a fresh approach to theanalysis of normal <strong>and</strong> pathological st<strong>and</strong>ing <strong>and</strong> gait. Many current myths about st<strong>and</strong>ing, gait <strong>and</strong> orthotic intervention will be challenged<strong>and</strong> their origins explored e.g. the commonly held notion that the ankle angle in an AFO should be neutral. A more objective underst<strong>and</strong>ingof st<strong>and</strong>ing, gait <strong>and</strong> optimum orthotic intervention will be offered. Video Vector <strong>and</strong> 3D gait lab examples will include use of un-tuned <strong>and</strong>tuned AFO-FCs <strong>for</strong> st<strong>and</strong>ing <strong>and</strong> gait. Printed h<strong>and</strong>outs <strong>and</strong> CD providedLearning Objectives:1) Discuss the kinematics <strong>and</strong> kinetics of normal <strong>and</strong> pathological gait <strong>and</strong> st<strong>and</strong>ing, with equal emphasis on segment <strong>and</strong> jointkinematics.2) Categorize pathological gait by segment deviation.3) Discuss a clinical algorithm to determine the optimum sagittal ankle angle in an AFO.4) Discuss a clinical algorithm to design, align <strong>and</strong> tune AFO-FCs.32<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Thursday, October 17, 20132:00 pm – 4:00 pm Instructional Courses 1-13 & 32IC 12 - DIAGNOSTIC APPROACH TO THE ATAXIC CHILDLocation: 201 AAuthors: Andrea Poretti, MD; Hilary Gwynn, MD; Alec Hoon, MDLevel: IntermediatePurpose: To provide a diagnostic approach to the ataxic child based on clinical history, neurological examination, <strong>and</strong> in depthidentification of the clinical manifestation of motor, cognitive, <strong>and</strong> additional investigations.Target Audience: Clinicians involved in the diagnostic evaluation of children with ataxia.Course Summary: Ataxia comes from the Greek <strong>and</strong> means “lack of order”. In medicine, ataxia refers to impaired ability to coordinatemuscle activity in the execution of voluntary movements. An unsteady, broad-based gait is the main clinical manifestation of ataxia.Additional clinical findings may be present depending on the etiology of ataxia. Generally, lesions affecting 3 main systems may causeataxia: cerebellum, sensory <strong>and</strong> vestibular system. Additionally, ataxia may be functional or psychogenic. According to the amount of timeover which symptoms present <strong>and</strong> evolve, different <strong>for</strong>ms of ataxia have been defined: non-progressive, progressive, acute, episodic, <strong>and</strong>intermittent. Based on selected, illustrative clinical situations, we will discuss how clinical history, neurological examination <strong>and</strong> additionalinvestigations (e.g. neuroimaging, electrophysiology, laboratory investigations) may help to differentiate between the different <strong>for</strong>ms ofataxia in children.Learning Objectives:1) The participant will identify the different systems that, if affected, may cause ataxia.2) The participant will recognize the role of clinical history <strong>and</strong> neurological examination in differentiating pediatric ataxia secondary tocerebellar, sensory, <strong>and</strong> vestibular lesions <strong>and</strong> functional ataxia.3) The participant will recognize the targeted indication of additional investigations in pediatric ataxia.4) The participant will identify common etiologies of the different ataxia types in children.IC 13 - ADVANCES IN THE NEUROPSYCHOLOGY OF CEREBRAL PALSYLocation: 202 CAuthors: Seth A. Warschausky, PhD; Jacqueline Kaufman, PhD; Heidi Haapala, MDLevel: IntermediatePurpose: To improve clinicians’ underst<strong>and</strong>ing of attention, executive function, visuospatial <strong>and</strong> other neuropsychological risks associatedwith CP including brain-behavior relations that underlie cognitive impairments. To describe neuropsychological applications to medicalpractice including monitoring iatrogenic effects, examining treatment outcomes, <strong>and</strong> <strong>for</strong>mulating school recommendations.Target Audience: This course is designed <strong>for</strong> physicians, therapists <strong>and</strong> educators who treat children with CP, <strong>and</strong> researchers who examinecognitive factors.Course Summary: Faculty from the University of Michigan’s Adapted Cognitive Assessment Laboratory (ACAL) illustrate key concepts in theneuropsychology of CP with findings from the NIH <strong>and</strong> DOED/NIDRR funded studies of 170 children with CP. An overview of cutting edgeunderst<strong>and</strong>ings of the neuropsychology of CP incorporates these findings. Practice guidelines <strong>and</strong> empirically grounded applications toclinical practice are described.Learning Objectives:1) To review the nature of neuropsychological assessment <strong>and</strong> new developments in accessible tests of cognitive functions.2) To refine knowledge of specific neuropsychological risks associated with CP.3) To refine underst<strong>and</strong>ing of the neuropathology associated with specific neuropsychological risks.4) To develop an underst<strong>and</strong>ing of the important clinical applications of neuropsychological assessment of children with CP.THURsday, October 17AACPDM 67 th Annual Meeting • Research & Practice 33


Thursday, October 17, 2013THURsday, October 17Instructional Course 32 has been added to Thursday, October 17 th Instructional Course OfferingIC 32 - USE OF GAIT ANALYSIS IN SURGICAL TREATMENT PLANNING FOR PATIENTS WITH DEVELOPMENTAL DISABILITIESLocation: 201 BAuthors: Robert M. Kay, MD; Deirdre Ryan, MD; Susan Rethlefsen, PT DPTLevel: IntermediatePurpose: To educate attendees in use of gait analysis <strong>for</strong> evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.Target Audience: Physicians, physical <strong>and</strong> occupational therapistsCourse Summary: Faculty will introduce attendees to computerized gait analysis data collection <strong>and</strong> interpretation. They will discuss howdata are used in planning <strong>for</strong> surgical <strong>and</strong> non-surgical intervention in children with CP <strong>and</strong> myelomeningocele. Discussion will focus oncommon clinical problems <strong>and</strong> ways gait analysis alters treatment plans. Content will be based on the presenters’ clinical expertise <strong>and</strong>evidence-based review of literature. Computerized gait data, videos, photographs <strong>and</strong> x-rays will be used. Attendees will participate inbreakout sessions in which gait data will be interpreted <strong>and</strong> treatment plans determined <strong>for</strong> sample cases.Learning Objectives:1) List common gait problems in CP <strong>and</strong> myelomeningocele.2) Identify deviations on joint kinematic, kinetic <strong>and</strong> EMG plots.3) Outline a treatment plan <strong>for</strong> a child with CP or myelomeningocele using gait analysis data.4) Gain perspective on the complexity of evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.4:00 pm–4:30 pm Coffee Break - Posters <strong>and</strong> ExhibitsLocation: Exhibit Hall, Ballroom A&BExp<strong>and</strong>ed breaks throughout the morning <strong>and</strong> afternoon sessions will give you a chance to visit the exhibits <strong>and</strong> posters. Plan tomeet a friend during one of these times <strong>and</strong> just catch up!4:30 pm-6:15 pm General SessionLocation: Ballroom C&DBasic Science LectureNeurobiology of White Matter Injury in the Premature BrainVittorio Gallo, PhDBasic Science LectureBrain injury in the premature infant: Have we been thinking about this all wrong?Stephen A. Back, MDSponsored by: Mac Keith Press <strong>and</strong> <strong>Cerebral</strong> <strong>Palsy</strong> International Research Foundation (CPIRF)Guest LectureshipTechnologies <strong>for</strong> the ASSESSMENT <strong>and</strong> Care of Children with cerebral <strong>Palsy</strong>Gerald Harris, PhD, PE34<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Thursday, October 17, 20136:15 pm- 7:30 pm Wine <strong>and</strong> Cheese Poster <strong>and</strong> Exhibit Viewing SessionLocation: Exhibit Hall, Ballroom A&BAlways popular <strong>and</strong> well attended. Enjoy a glass of wine <strong>and</strong> light hors d’oeuvres in the Exhibit Hall <strong>and</strong> Foyer areas while visiting ourexhibitors <strong>and</strong> view ing the scientific <strong>and</strong> demonstration posters. Posters will be displayed on both bulletin boards <strong>and</strong> at E-Poster kiosks. Thisis an opportunity to meet with the 2013 exhibiting participants who are key contributors to the success of our meeting.Sponsored by: Medtronic7:15 pm-9:30 pm FAMILY FORUM: Adaptive Sports PresentationLocation: Pettit National Ice CenterAn evening at the Pettit National Ice Center. This event will feature the Wisconsin Skeeters, a local sled hockey team, scrimmaging <strong>and</strong>demonstrating sled hockey skills. Afterwards, patients, families <strong>and</strong> healthcare professionals are encouraged to try the sled hockeyequipment <strong>and</strong> skate at the Pettit Center. Complimentary skate rental is provided. There is no charge <strong>for</strong> this event, but registration isrequired.Buses will be loading from the Hilton Hotel 6th St. entrance at 7:15 pm.evening options - Dine AroundOnce on site, you can sign up to dine at a great local restaurant at which reservations have already been made <strong>for</strong> you.THURsday, October 17AACPDM 67 th Annual Meeting • Research & Practice 35


Friday, October 18, 20136:00 am-6:45 am Get Fit! Y-Stretch FlowLocation: Upper level lobby areaA blend of Yoga, Pilates, <strong>and</strong> Tai Chi set to inspiring music. Flow through poses <strong>and</strong> sequences <strong>for</strong> strength, balance <strong>and</strong> flexibility. Y-StretchFlow is a journey that will leave you feeling stronger, balanced <strong>and</strong> energized. Room is carpeted.7:00 am–7:50 am Continental Breakfast - Poster Viewing/Exhibits are openLocation: Exhibit Hall, Ballroom A&BFRIday, October 187:00 am–7:50 am Breakfast Seminars 7-12BRK 7 - MOTION GAMING TECHNOLOGY FOR INDIVIDUALS WITH MOVEMENT DISORDERSLocation: 201 C&DAuthor: Peter J. Chung, MD; Eileen G. Fowler, PhD PT; William L. Oppenheim, MDLevel: BasicPurpose: Describe developments in motion-based video gaming, review the evidence <strong>for</strong> its use in individuals with disabilities, <strong>and</strong> sharework on software development to increase accessibility.Target Audience: Physicians, therapists, researchers, <strong>and</strong> educatorsCourse Summary: Video games have been increasingly adopted by <strong>American</strong> households with a majority of families engaging in videogames on a regular basis. Recent advances have introduced novel input devices utilizing motion-based gaming at relatively low-cost.These technologies have been tried in rehabilitative <strong>and</strong> therapeutic programs. The Microsoft (MS) Kinect is a revolutionary game plat<strong>for</strong>mthat uses a depth-sensing camera to capture body movement in space. Unlike other mediums, the MS Kinect does not require fine motorcontrol. Dr. Chung will review studies on video game technology <strong>and</strong> its applications in people with disabilities; he will also discuss currentwork being conducted by the UCLA Center <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> the University of Southern Cali<strong>for</strong>nia-Institute <strong>for</strong> Creative Technology(USC-ICT) with funding support from the <strong>Cerebral</strong> <strong>Palsy</strong> International Research Foundation on the MS Kinect to increase video gameaccessibility <strong>for</strong> individuals with severe movement disorders.Learning Objectives:1) To underst<strong>and</strong> how developments in commercial video gaming have made the technology more accessible to individuals withmovement disorders.2) To underst<strong>and</strong> the potential benefits <strong>and</strong> limitations to motion-based video gaming in individuals with severe movement disorders.3) To become familiar with software development to increase video games access <strong>for</strong> individuals with neuromuscular disabilities,including three specific games.4) To provide suggestions <strong>for</strong> directions in software development.Sponsored by: <strong>Cerebral</strong> <strong>Palsy</strong> International Research Foundation (CPIRF)BRK 8 - CHRONIC DISEASE RISK AMONG ADULTS WITH CP: THE ROLE OF PREMATURE AGING, OBESITY, AND SEDENTARYBEHAVIORLocation: 202 AAuthors: Mark Peterson, PhD; Edward A. Hurvitz, MDLevel: IntermediatePurpose: This course will discuss secondary muscle dysfunction <strong>and</strong> chronic disease risk in adults with cerebral palsy (CP), includingin<strong>for</strong>mation pertaining to the health implications of chronic sedentary behavior. We will specifically focus on the negative physiologic <strong>and</strong>metabolic consequences of extreme sedentary behavior, as well as viable strategies to reduce these secondary risks <strong>and</strong> improve function.Target Audience: Physicians, therapists, nurses, program coordinators, exercise physiologistsCourse Summary: Evidence indicates that movement proficiency among children with CP is inversely associated with sedentary behavior<strong>and</strong> positively linked to habitual physical activity. Sedentary behavior has received significant attention as a robust predictor of chronicdisease <strong>and</strong> mortality among adults, <strong>and</strong> moreover, is known to accelerate muscle wasting. Although decrements in muscle mass <strong>and</strong>strength are typically considered the primary contributing factors of gross motor decline in CP, it is likely that these changes are actually thedirect consequence of years spent accumulating extremely sedentary lifestyles. Recent evidence indicates that increasing or maintainingbaseline activity participation is predictive of greater survival in older adults, even among those with obesity or functional limitations.Thus, reducing sedentary behavior in patients with CP should be the first line of defense <strong>for</strong> improving health, <strong>and</strong> may well be the mostsustainable strategy to ensure preservation of gross function, cardiometabolic health, <strong>and</strong> successful participation in society.Learning Objectives:1) To describe the extent of sedentary behavior in CP as compared to a typical inactive adult.2) To discuss possible etiologies of muscle pathology <strong>and</strong> metabolic decline associated with sedentary behavior, including losses of function<strong>and</strong> mobility, decreases in muscle quality, alterations in adipose tissue deposition <strong>and</strong> distribution, <strong>and</strong> chronic, aberrant inflammation.3) To define possible strategies <strong>for</strong> ameliorating health risk through reducing sedentary behavior in CP.36<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Friday, October 18, 20137:00 am–7:50 am Breakfast Seminars 7-12BRK 9 - RELATIONSHIPS AND SEXUALITY: AN IMPORTANT ISSUE FOR CARE PROVIDERS TO ADDRESS IN HELPINGINDIVIDUALS WITH PHYSICAL OR DEVELOPMENTAL DISABILITIES TO IMPROVE THEIR QUALITY OF LIFELocation: 202 BAuthor: Susan C. Labhard, MSN RNLevel: BasicPurpose: Relationships <strong>and</strong> sexuality are an important part of the transition to adulthood <strong>for</strong> youth with disabilities. Participants will be ableto provide appropriate diagnosis-related teaching in a creative <strong>and</strong> professional manner. Providers will learn that dealing with the sexualconsequences of disabilities may not be a barrier to sexual fulfillment.Target Audience: Clinicians, therapists, care providers, <strong>and</strong> educatorsCourse Summary: It is up to the provider or trusted adult, to offer appropriate in<strong>for</strong>mation on sexuality, <strong>for</strong> youth with developmentalor physical disabilities, so they can develop a satisfactory type of relationship--no matter what their ability. To improve knowledge ofthe importance of relationships <strong>and</strong> sexuality <strong>for</strong> youth with disabilities, evidence-based <strong>and</strong> diagnosis-based teaching solutions will beprovided. Participants will learn how to approach this subject with renewed confidence.Learning Objectives:1) To elevate underst<strong>and</strong>ing of the importance of friends, relationships <strong>and</strong> sexuality <strong>for</strong> youth with disabilities, in helping youth to attain asatisfactory quality of life.2) Apply evidence-based practice guidelines <strong>for</strong> teaching youth with disabilities about the importance of social success in developinghealthy relationships <strong>and</strong> sexuality.3) Learn how to apply useful references <strong>and</strong> resources <strong>for</strong> teaching providers, <strong>and</strong> caregivers about disease prevention <strong>and</strong> options totraditional sexual expression.4) Explore with audience, problems <strong>and</strong> solutions in teaching an individual with a disability about relationships <strong>and</strong> sexuality related totheir diagnosis.BRK 10 - MOTOR DELAYS: EARLY IDENTIFICATION AND EVALUATIONLocation: 202 CAuthors: Garey Noritz, MD; Peter Rosenbaum, MDLevel: BasicPurpose: To educate pediatric providers about new initiatives in gross motor developmental screening that may impact their practices.Target Audience: Physicians <strong>and</strong> other pediatric providers, including educators <strong>and</strong> therapists, who work with young children <strong>and</strong> need tobe aware of motor development.Course Summary: A recent emphasis on developmental screening has improved detection of children with atypical developmentaltrajectories, allowing earlier identification, diagnosis <strong>and</strong> treatment. Primary care pediatricians report discom<strong>for</strong>t with the examination,evaluation, <strong>and</strong> management of children with gross motor delay. In collaboration with the Centers <strong>for</strong> Disease Control <strong>and</strong> Prevention/National Center on Birth Defects <strong>and</strong> Developmental Disabilities, an interdisciplinary workgroup of the <strong>American</strong> <strong>Academy</strong> of Pediatricsdrafted an algorithm <strong>and</strong> statement <strong>for</strong> medical home providers to improve their recognition <strong>and</strong> management of children with suspectedor confirmed gross motor delays. The major goals of this initiative are to improve detection of neuromotor delays, help primary careclinicians identify those children that need urgent attention, <strong>and</strong> to drive prompt, appropriate referrals to pediatric subspecialists.Learning Objectives:1) Participants will explore the application of a new clinical algorithm <strong>for</strong> the screening of children’s neuromotor development.2) Participants will recognize the importance of early motor screening by primary care providers <strong>and</strong> the initial steps in management thatguide referrals to subspecialists.3) Participants will improve their knowledge of neuromotor “red flags”- those signs or symptoms that should alert clinicians that anexpedited referral is needed.4) By viewing videos of children with neuromotor diseases, participants will improve their detection of young children with neuromotordelays.FRIday, October 18AACPDM 67 th Annual Meeting • Research & Practice 37


Friday, October 18, 20137:00 am–7:50 am Breakfast Seminars 7-12BRK 11 - ENGAGING IN RESEARCH WITH CHILDREN WITH NEURODEVELOPMENTAL DISABILITIES: CONSENT AND ASSENTISSUESLocation: 201 AAuthors: Elaine Stashinko, PhD; Alec Hoon, MD MPH; Leila Jamal, ScMLevel: IntermediatePurpose: To critically review the federal guidelines on consent <strong>and</strong> assent of children <strong>and</strong> related bioethical issues including research assent<strong>and</strong> dissent with intellectually challenged children, genetic consent issues <strong>and</strong> consideration <strong>for</strong> establishment of cell lines <strong>for</strong> future stemcell research. The team will share knowledge <strong>and</strong> experiences related to emerging genetic issues <strong>and</strong> stimulate discussion related to clinicalresearch within this special population.Target Audience: Interdisciplinary focus including physicians, nurses, therapists, <strong>and</strong> research coordinators conducting research withchildren with neurodevelopmental disabilities <strong>and</strong> their families.Course Summary: In<strong>for</strong>med consent is one of the primary ethical considerations in human subjects research. Research with children whohave neurodevelopmental disabilities may involve many complex issues including research with vulnerable populations, genetic testingprotocols <strong>and</strong> consent <strong>for</strong> establishment of cell lines. The team will share knowledge <strong>and</strong> experiences related to emerging genetic issues<strong>and</strong> stimulate discussion related to clinical research <strong>and</strong> the consent/assent process within this special population.Learning Objectives:1) Identify the basic ethical principles that underlie in<strong>for</strong>med consent in research with children.2) Describe practical considerations in implementing the assent requirement in pediatric research.3) Describe the risks associated with participating in genetic studies.4) Outline potential conflicts related to the dual provider/researcher role in clinical research <strong>and</strong> implications <strong>for</strong> the consent process.FRIday, October 18BRK 12 - SINGLE EVENT MULTILEVEL SURGERY IN SPASTIC DIPLEGIA: UNDERSTANDING THE EVIDENCELocation: 201 BAuthors: H Kerr Graham, MD FRCS (Ed) FRACS; Pam Thomason, MPTLevel: IntermediatePurpose: To discuss the need <strong>for</strong> continuous monitoring of clinical outcomes, how to per<strong>for</strong>m a clinical audit of gait improvement surgery<strong>and</strong> what is the perfect research design?Target Audience: Physiotherapists, orthopaedic surgeons, rehabilitation physicians, researchersCourse Summary: New outcome tools including the Gait Profile Score (GPS), Movement Analysis Profile (MAP) <strong>and</strong> Gait Variable Scores(GVS) have the potential to revolutionize outcomes research <strong>for</strong> any study where the aims of the intervention include improving gaitfunction. The authors have conducted <strong>and</strong> published the 1st RCT of Single Event Multilevel Surgery (SEMLS) (n=19) <strong>and</strong> more recentlypublished the outcomes at 5 year follow-up. The RCT outcomes in GPS terms, were similar to the outcomes of a large retrospective study ofSEMLS (n= 121) from the same unit. This intriguing finding will provide a basis <strong>for</strong> a presentation <strong>and</strong> discussion on how to per<strong>for</strong>m a clinicalaudit of SEMLS, the need <strong>for</strong> continuous monitoring of clinical outcomes <strong>and</strong> what the perfect research design might look like. Specifically,does the RCT trump a prospective cohort study?Learning Objectives:1) To gain an underst<strong>and</strong>ing of the Gait Profile Score <strong>and</strong> how to interpret changes reported in research studies.2) To gain knowledge of practical tools <strong>for</strong> monitoring <strong>and</strong> auditing outcomes of gait improvement surgery.3) To gain an underst<strong>and</strong>ing of the strengths <strong>and</strong> weaknesses of different clinical trial designs <strong>for</strong> gait correction surgery.4) To gain knowledge of the evidence <strong>for</strong> gait improvement surgery.38<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Friday, October 18, 20138:00 am–10:00 am General SessionLocation: Ballroom A&BCathleen Lyle Murray Award LectureshipPositive Exposure: The Spirit of DifferenceRick GuidottiGuest LectureshipOutcome measures: What’s up with that?Annette Majnemer, OT, PhD, FCAHSGuest Lectureship - European <strong>Academy</strong> of Childhood DisabilityQuality of life <strong>and</strong> participation of children <strong>and</strong> young people with cerebral palsyAllan Colver, MD10:00 am-10:30 am Coffee Break - Posters <strong>and</strong> ExhibitsLocation: Exhibit Hall, Ballroom A&BExp<strong>and</strong>ed breaks throughout the morning <strong>and</strong> afternoon sessions will give you a chance to visit the exhibits <strong>and</strong> posters. Plan to meet afriend during one of these times <strong>and</strong> just catch up!10:30 am–12:30 pm Free Paper sessions D-FFree Paper session D: Gait AmbulationLocation: Ballroom C&DD1 - AN INVESTIGATION INTO THE ABILITY OF THREE ACCELEROMETRY-BASED DEVICES TO DETECT THE INCREASEDENERGY COST OF LOCOMOTION IN AMBULATORY ADULTS AND CHILDREN WITH CEREBRAL PALSYJennifer Ryan, B.Sc. (Physio); Ailish McGahey, B.Sc. (Physio); Brenda McLoughlin, B.Sc. (Physio); Michael Walsh, MMedSc; John Gormley, PhDD2 - VALIDITY OF THE RT3 ACCELEROMETER AT MEASURING PHYSICAL ACTIVITY INTENSITY IN ADULTS AND CHILDRENWITH CEREBRAL PALSYJennifer Ryan, B.Sc (Physio); Ailish McGahey, B.Sc. (Physio); Brenda McLoughlin, B.Sc. (Physio); Michael Walsh, MMedSc; John Gormley, PhDD3 - HOW ACTIVE ARE THEY? VALIDATION AND COMPARISON OF UNI- AND TRIAXIAL ACCELEROMETERS IN TODDLERSWITH CEREBRAL PALSYKristie L. Bell, PhD; Stina Oftedal, RD; Peter S. Davies, PhD; Robert Ware, PhD; Roslyn N. Boyd, PhD PTD4 - A GAIT-ACTIVATED NEUROMUSCULAR STIMULATION DEVICE IMPROVES STRENGTH, MUSCLE GROWTH ANDELASTICITY IN CHILDREN WITH HEMIPARETIC CEREBRAL PALSYNathalie L. Maitre, MD PhD; Shirley Gogliotti, PT; Ellen Shaw, DPT; Laura Flynn, PT PCS; Ashley Schilling, DPT; Cherri Rooks, MSPT; Jeremy Chan, BS;Emily Bush, BA; Erica Wehrwein, PhD; Bruce Damon, PhD;D5 - CONTROL OF WALKING SPEED IN CHILDREN WITH CEREBRAL PALSYJon Davids, MD; Suzy Chen, BS; Mitell Sison-Williamson, MS; Anita Bagley, PhD MPHD6 - CHANGE IN STRENGTH-TO-WEIGHT RATIO WITH AGE IN AMBULATORY CHILDREN WITH CEREBRAL PALSYJon Davids, MD; Donna Oeffinger, PhD; Anita Bagley, PhD MPH; Mitell Sison-Williamson, MS; George Gorton, BSD7 - CHANGES IN SECONDARY EFFECTS OF LEVER-ARM DYSFUNCTION IN CHILDREN WITH SPASTIC DIPLEGIAFOLLOWING BILATERAL FEMORAL DEROTATION OSTEOTOMIESJean L. Stout, PT MS; James R. Gage, MD; Tom Novacheck, MDFRIday, October 18AACPDM 67 th Annual Meeting • Research & Practice 39


Friday, October 18, 201310:30 am–12:30 pm Free Paper sessions D-FFree Paper session D: Gait AmbulationD8 - PREDICTING CHANGES IN GAIT ASSOCIATED WITH ANKLE FOOT ORTHOSIS USE IN CHILDREN WITH CEREBRALPALSYAndrew Ries, MS; Michael Schwartz, PhD; Tom Novacheck, MD; Adam Rozumalski, MSD9 - THE PHYSIOLOGIC STRAIN OF WALKING IN CHILDREN AND YOUTH WITH CEREBRAL PALSYNancy Lennon, M.S., P.T.; Freeman Miller, MD; Kirk Dabney, MD; John Henley, PhD; Katherine Sommers, B.S.D10 - GAIT PATTERNS IN DIPLEGIC SPASTIC CEREBRAL PALSY - A CLASSIFICATION BASED AT 1805 CASESMauro C. Morais Filho, MD; Catia M. Kawamura, PT; José Augusto F. Lopes, MSc; Daniella L. Neves, MD; Michelle Cardoso, MD; Jordana Caiafa, MDFRIday, October 18Free Paper Session E: Therapies <strong>and</strong> Interventions - Part 2Location: 103 A-CE1 - IMPACT OF PERSONAL AND ENVIRONMENTAL FACTORS ON MASTERY MOTIVATION IN CHILDREN WITH CONGENITALHEMIPLEGIALaura Miller, BSc(OT) (Hons) MHSM; Jenny Ziviani, PhD MEd BA BSC(OT); Robert Ware, PhD; Roslyn N. Boyd, PhD PTE2 - MASTERY MOTIVATION AS A PREDICTOR OF OCCUPATIONAL PERFORMANCE FOLLOWING UPPER LIMBINTERVENTION FOR SCHOOL AGED CHILDREN WITH CONGENITAL HEMIPLEGIALaura Miller, BSc(OT)(Hons) MHSM; Jenny Ziviani, PhD MEd BA BSc (OT); Robert Ware, PhD; Roslyn N. Boyd, PhD PTE3 - PRELIMINARY RESULTS OF A RANDOMIZED CONTROLLED TRIAL EVALUATING THE EFFECTIVENESS OF ANINDIVIDUALLY DEFINED, GOAL-ORIENTED PHYSICAL THERAPY PROGRAM IN CHILDREN WITH CEREBRAL PALSYInge Franki, PT PT MSc; Kaat Desloovere, PhD; Jos De Cat, PT MSc; Guy Molenaers, MD PhD; Christine Van den Broeck, PT PhDE4 - IMPROVING CHILD AND PARENTING OUTCOMES FOLLOWING PEDIATRIC ACQUIRED BRAIN INJURY (ABI): AN RCT OFA PARENTING PROGRAMRoslyn N. Boyd, PhD, PT; Koa Whittingham, PhD; Felicity L. Brown, BS; Kate Sofronoff, PhD; Lynne McKinlay, FRACPE5 - PARENTING INTERVENTION IMPROVES BEHAVIORAL AND EMOTIONAL OUTCOMES OF CHILDREN WITH CP: AN RCTRoslyn N. Boyd, PhD PT; Koa Whittingham, PhD; Matthew S<strong>and</strong>ers, PhD; Lynne McKinlay, PhDE6 - HOME- AND LAB-BASED ROBOTIC PASSIVE AND ACTIVE MOVEMENT TRAINING OF ANKLE IMPAIRMENTS INCEREBRAL PALSYLiqun Zhang, PhD; Lin Liu, MS; Kai Chen, PhD; Chung-Yong Yang, PhD; Liang Wang, MS; Charley Liu, BS; Yupeng Ren, MS; Winnie Wu, PhD; Wei-QunSong, MD; Deborah Gaebler-Spira, MD;E7 - THE EFFECT OF INDIVIDUALIZED PROGRESSIVE RESISTANCE TRAINING ON MOBILITY IN ADOLESCENTS AND YOUNGADULTS WITH CEREBRAL PALSYNicholas Taylor, PhD; Karen J. Dodd, PhD; Richard Baker, PhD; Kate Willoughby, BPT, DPT; Pam Thomason, BPT, MPT; H Kerr Graham, MD, FRCS(Ed), FRACSE8 - RELATIONSHIP OF REHABILITATION AND COMMUNITY SERVICES TO GROSS MOTOR, SELF-CARE, ANDPARTICIPATION IN YOUNG CHILDREN WITH CEREBRAL PALSYSarah W. McCoy, PT PhD; Doreen Bartlett, PT PhD; Robert Palisano, PT ScD; Lisa Chiarello, PT PhD; Lynn Jeffries, PT PhD; Alyssa LaForme Fiss, PT PhDE9 - THE IMPACT OF AN INTERACTIVE COMPUTER MULTI-PLAYER EXERGAME CYCLING PROGRAM ON PHYSICAL FITNESSAND HEALTH-RELATED QUALITY OF LIFE IN YOUTH WITH GROSS MOTOR FUNCTION CLASSIFICATION SYSTEM LEVEL IIICEREBRAL PALSYShannon Knights, MD; Nicholas Graham, BS MSc PhD; Lauren Switzer, MSc; Briar Findlay, BS; Zi Ye, BS; Hamilton Hern<strong>and</strong>ez, MSc; Darcy Fehlings, MDMSc FRCPCE10 - CONSTRAINT-INDUCED MOVEMENT THERAPY IMPROVES CORTICAL SENSORY PERCEPTION AND UPPEREXTREMITY FUNCTION IN CHILDREN WITH HEMIPARETIC CEREBRAL PALSYNathalie L. Maitre, MD PhD; Gena Henderson, DPT; Lu Wang, PhD; Megan L. Auld, PhD; Jennifer Pearson, OT; Suzanne Satterfield, OT; Sasha Key, PhDFree Paper Session F: Feeding/Nutrition/Complex CareLocation: 101 B-DF1 - SECONDARY CONDITIONS AMONG YOUTH WITH SPINAL CORD INJURIESErin H. Kelly, PhD; Ann Flanagan, PT PCS; Lawrence C. Vogel, MDF2 - FAT DISTRIBUTION IN CHILDREN AND ADOLESCENTS WITH MYELOMENINGOCELENicole Mueske, M.S.; Deirdre Ryan, MD; Alex<strong>and</strong>er Van Speybroeck, MD; Tishya Wren, PhD.40<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Friday, October 18, 201310:30 am–12:30 pm Free Paper Sessions D-FFree Paper Session F: Feeding/Nutrition/Complex CareF3 - BODY COMPOSITION RELATED TO HEALTH AND ENVIRONMENTAL FACTORS IN AMBULATORY CHILDREN WITHCEREBRAL PALSYDonna Oeffinger, PhD; Neeley Buhr, MS; Janet Walker, MDF4 - INTRAMUSCULAR FAT IN AMBULANT YOUNG ADULTS WITH BILATERAL SPASTIC CEREBRAL PALSYJonathan J. Noble, MSc BSc; Geoffery D. Charles-Edwards, PhD; Stephen F. Keevil, PhD; Martin Gough, FRCSI; Adam Shortl<strong>and</strong>, PhDF5 - “LEARN FROM EVERY PATIENT”: FEASIBILITY AND EARLY RESULTS OF CLINICAL CARE AND RESEARCH INTEGRATIONTO OPERATIONALIZE A LEARNING HEALTH SYSTEMGarey Noritz, MD; Linda P. Lowes, PhD; Abigail Tidball, PT; Amy J. Newmeyer, MD; Lamara Love, RN; Sha Clark, MSW LISW; Michelle Miller, MD; WilliamSmoyer, MDF6 - PARENT PERSPECTIVES ON SEASONAL INFLUENZA VACCINATION OF CHILDREN WITH CEREBRAL PALSY,INTELLECTUAL DISABILITY AND EPILEPSYDeborah Christensen, PhD; Georgina Peacock, MD MPH FAAP; Michael Smith, MD MSCE; Adina de Coteau, MPH; Cynthia Moore, MD PhDF7 - FACTORS INFLUENCING RECURRENT READMISSIONS AMONG CHILDREN WITH DISABILITIES IN A SPECIALTYCHILDREN’S HOSPITALMary Braddock, MD MPH; Steven Koop, MD; Lei Zhang, MSc; Ginny Leutgeb, BA; Colette Salmanowicz, MBA; Joyce Trost, PTF8 - PARENT REPORTED FEEDING ABILITY IS ASSOCIATED WITH DIETARY INTAKE, GROWTH AND BODY COMPOSITION INPRESCHOOL AGED CHILDREN WITH CEREBRAL PALSYKristie L. Bell, PhD; Kelly A. Weir, M Sp Path; Katherine A. Benfer, MPH; Robert Ware, PhD; Richard Stevenson, MD; Peter S. Davies, PhD; Roslyn N. Boyd, PhD PTF9 - FOOD TEXTURES HABITUALLY CONSUMED BY PRESCHOOL-AGED CHILDREN WITH CEREBRAL PALSY: RELATIONSHIPTO OROPHARYNGEAL DYSPHAGIA AND FUNCTIONAL GROSS MOTOR SKILLSKatherine A. Benfer, MPH BSpPath; Kelly A. Weir, MSpPath BSpThy; Kristie L. Bell, PhD BHthSc (Nutr Dt); Robert Ware, PhD; Peter S. Davies, PhD MPhilBSci; Roslyn N. Boyd, PhD PTF10 - FUNCTIONAL OROPHARYNGEAL IMPAIRMENTS AND THEIR RELATIONSHIP TO GROSS MOTOR SKILLS IN YOUNGCHILDREN WITH CEREBRAL PALSYKatherine A. Benfer, MPH BSpPath; Kelly A. Weir, MSpPath BSpThy; Kristie L. Bell, PhD BHthSci (NtrDt); Robert Ware, PhD; Peter S. Davies, PhD MPhilBSci; Roslyn N. Boyd, PhD PT12:30 pm – 1:30 pm Flashpoint LuncheonLocation: 102Come <strong>and</strong> listen to face paced, cutting edge in<strong>for</strong>mation from three recognized experts! Luncheon issponsored by Medtronic. Registration is required.Dr. Linda Krach – Intrathecal Baclofen TherapyFRIday, October 18Dr. Benjamin Shore – What’s new in OrthopedicsDr. Gordon Worley – Studies of Autologous Cord Blood Infusion in <strong>Cerebral</strong> <strong>Palsy</strong>: An Update.AACPDM 67 th Annual Meeting • Research & Practice 41


Friday, October 18, 201312:30 pm – 1:30 pm International Affairs LuncheonLocation: 201 BDuring the luncheon International Scholarship recipients from various geographic locations will present their work. Attendees will beencouraged to share their own experiences <strong>and</strong> participate in a larger discussion.12:30 pm – 1:30 pm Exhibits <strong>and</strong> Posters are open1:30 pm – 3:30 pm General SessionLocation: Ballroom C&DChambers Family Lifespan LectureshipHealth <strong>and</strong> Fitness in <strong>Cerebral</strong> <strong>Palsy</strong>: What We Need to KnowEdward Hurvitz, MDGuest LectureshipHow Meaningful is a Mean Group Response to Physical Therapy <strong>for</strong> Children with <strong>Cerebral</strong><strong>Palsy</strong>?Diane Damiano, PhD, PTFRIday, October 18Guest LectureshipThe right treatment <strong>for</strong> the right childKerr Graham, MD3:30 pm – 4:30 pm Coffee Break - Posters <strong>and</strong> ExhibitsLocation: Exhibit Hall, Ballroom A&BExp<strong>and</strong>ed breaks throughout the morning <strong>and</strong> afternoon sessions will give you a chance to visit the exhibits <strong>and</strong> posters. Plan to meet afriend during one of these times <strong>and</strong> just catch up!3:00 pm – 6:00 pm family <strong>for</strong>umLocation: 102 CThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine will host this special session <strong>for</strong> local-area patients, families <strong>and</strong>medical professionals living with cerebral palsy <strong>and</strong> other childhood-onset disabilities to meet with leading experts. This <strong>for</strong>um provideseducation about the progress being made in medical research <strong>and</strong> offers an interactive question <strong>and</strong> answer period. This truly uniquesession a free event <strong>and</strong> open to the public.The Family Forum is co-sponsored with the “Reaching <strong>for</strong> the Stars. A Foundation of Hope <strong>for</strong> Children with <strong>Cerebral</strong> <strong>Palsy</strong>”42<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Friday, October 18, 20134:00 pm – 6:00 pm Instructional Courses 14-25IC 14 - AN INTERDISCIPLINARY APPROACH TO FEEDING PROBLEMS IN CHILDREN WITH CEREBRAL PALSY AND OTHERNEURODEVELOPMENTAL DISABILITIESLocation: 202 D&EAuthors: Eric B. Levey, MD; Peter Girolami, PhD; Donna Reigstad, OTR/LLevel: IntermediatePurpose: To share our approach <strong>and</strong> experience in evaluating <strong>and</strong> treating children with neurodevelopmental disabilities (NDD) <strong>and</strong>feeding problems with special emphasis on children with dysphagia.Target Audience: Occupational therapists, speech-language pathologists, psychologists, dieticians, pediatriciansCourse Summary: Feeding problems in children with NDD are due to a variety of medical, developmental, behavioral, <strong>and</strong> psychosocialfactors, often necessitating an interdisciplinary approach to treatment. Our interdisciplinary feeding program at Kennedy Krieger Instituteincludes Pediatrics, GI, Nutrition, OT, SLP, Behavioral Psychology <strong>and</strong> Social Work. We have evaluated <strong>and</strong> treated children with a range ofNDD including CP, autism spectrum disorders, <strong>and</strong> Down Syndrome. While most children with NDD, benefit from a gradual, longitudinalapproach to treatment, some children benefit from a burst of intensive feeding therapy provided over a number weeks. We will highlightsome successes (<strong>and</strong> failures) in treating children with refractory feeding problems in our Day Treatment <strong>and</strong> Inpatient Programs. Casestudies will have a special focus on the interdisciplinary management of dysphagia, including the use of oral-motor tools, strategies toadvance textures, <strong>and</strong> combined oral-motor <strong>and</strong> behavioral protocols used to promote safety <strong>and</strong> increase efficiency.Learning Objectives:1) To review signs/symptoms of GI dysmotility <strong>and</strong> discuss management strategies.2) To review oral-motor <strong>and</strong> sensory issues that contribute to feeding problems <strong>and</strong> discuss approaches to therapy.3) To review commonly used evidence-based behavioral techniques that can be applied to feeding problems in this population.4) To describe a combined oral-motor <strong>and</strong> behavioral approach to treatment of feeding problems.IC 15 - PART II: OUTCOMES OF SELECTIVE DORSAL RHIZOTOMY AND PATIENT SELECTION PROCESS IN GMFCS LEVELS I,II, AND III: CASE BASED FOCUS SUPPORTED BY OUTCOME DATALocation: 202 CAuthors: Michael H. Schwartz, PhD; Linda E. Krach, MD; Rocio Riveros Charry, PT; Michael Healy, MD; Marcie Ward, MDLevel: AdvancedPurpose: This course will highlight Selective Dorsal Rhizotomy (SDR) focusing on outcome data <strong>and</strong> how to apply that data <strong>for</strong> safe patientselection. Challenging individual cases will be covered with emphasis on audience participation <strong>and</strong> collaborative discussion.Target Audience: Developmental pediatricians, pediatric neurologists, neurosurgeons, orthopedists, physiatrists <strong>and</strong> physical therapistswho want to discuss more in depth patient selection questions regarding SDR, <strong>and</strong> who consider SDR as a potential treatment option <strong>for</strong>their patients.Course Summary: This course is Part II of a two part course. It is designed to discuss the outcome data associated with predictable tonereduction <strong>and</strong> improved ambulation after selective dorsal rhizotomy. Case examples will be reviewed in detail showing preoperative <strong>and</strong>postoperative data. Applicable history <strong>and</strong> physical exam findings, gait analysis principles <strong>and</strong> patient/family goals will be highlighted.Participant interaction will be accomplished through audience response system software.Learning Objectives:1) Evaluate the available research related to selective dorsal rhizotomy outcomes.2) Recognize patterns in patients which are consistent with appropriateness <strong>for</strong> selective dorsal rhizotomy.3) Identify the aspects of a patient’s gait that may be improved by selective dorsal rhizotomy in GMFCS levels I - III.4) Collaborate with colleagues to discuss the merits of SDR <strong>and</strong> avoid pitfalls in patient selection.FRIday, October 18AACPDM 67 th Annual Meeting • Research & Practice 43


Friday, October 18, 20134:00 pm – 6:00 pm Instructional Courses 14-25IC 16 - BACK TO BASICS - STRETCHING COMBINED WITH EXERCISINGLocation: Ballroom C&DAuthors: Deborah Gaebler-Spira, MD; Theresa Clancy, PT; Theresa Sukal-Moulton, DPT, PHDLevel: IntermediatePurpose: To provide an in-depth evidence based course on stretching, combined with active use. The course will provide in<strong>for</strong>mationon robotic biomechanical measurements of stretching protocols that gain range of motion, strength, selective motor control <strong>and</strong>reduce spasticity. The contribution of an intelligent robotic stretcher <strong>and</strong> exerciser, provides clinical <strong>and</strong> research treatment, along withquantification measurement <strong>for</strong> the impairments associated with reduced function in cerebral palsy.Target Audience: physical therapists, physicians, orthotists, occupational therapists, orthopedic surgeonsCourse Summary: Stretching is often a portion of the prescribed physical therapy program <strong>for</strong> children with cerebral palsy (CP), but thereis a lack of high-level studies that conclusively support stretching specifically as effective treatment. However, with stretching, voluntarymovement training can be more effective. This course will review the mechanics of stretching, the neural structures <strong>and</strong> tissues involved, <strong>and</strong>the literature evaluating stretching as a treatment modality. A device that controls <strong>for</strong> stretching variables, velocity of stretch, limits of stretch<strong>and</strong> hold of stretch, followed with motor control training has been used in CP rehabilitation with partial support from the NIDRR RERC.The device has clinical research capacities as well as therapy intervention. The course will demonstrate the collaboration <strong>and</strong> interaction ofclinicians, bioengineers <strong>and</strong> research scientists to maximize improvements through combined stretching <strong>and</strong> movement control training.We will describe the challenges <strong>and</strong> successes of adapting a research protocol to clinical care <strong>for</strong> outpatient <strong>and</strong> home use.Learning Objectives:1) To provide current neural <strong>and</strong> biomechanical underst<strong>and</strong>ing of muscle tightness, stretching <strong>and</strong> the relationship between the tendon<strong>and</strong> muscle during stretch.2) To underst<strong>and</strong> the level of evidence that supports or refutes the use of stretching as part of a rehabilitation program.3) To underst<strong>and</strong> the anticipated clinical gains related to the addition of targeted motor control training following stretching.4) To underst<strong>and</strong> the advantages of studying a stretching <strong>and</strong> motor control training program with controlled variables.FRIday, October 18IC 17 - ADAPTIVE RECREATION FOR CHILDREN AND YOUTH WITH CEREBRAL PALSY AND OTHER CHILDHOOD-ONSETDISABILITIES (COD)Location: 203 A&BAuthors: Jennifer E. Miros, MPT; Désirée B. Maltais, PhD PT; Keiko Shikako-Thomas, PhD OTLevel: BasicPurpose: To help clinicians <strong>and</strong> parents underst<strong>and</strong> the role of recreational activities <strong>for</strong> children <strong>and</strong> youth with COD. This course will alsoteach how <strong>and</strong> why to start adaptive recreational opportunities in their area. We will outline the social, psychological, <strong>and</strong> physical benefitsof recreational programs.Target Audience: This course is relevant to clinicians <strong>and</strong> parents/care givers of children <strong>and</strong> youth with COD who are interested inpromoting recreational opportunities.Course Summary: Adaptive Recreation activities are done <strong>for</strong> enjoyment, amusement, leisure <strong>and</strong>/or pleasure. Children <strong>and</strong> youth livingwith a disability need to be given the opportunity to participate in recreational activities. These activities can range from highly organizedphysical or sporting activities to unorganized sedentary activities. This course will summarize <strong>and</strong> give examples of effective adaptiverecreation options <strong>for</strong> children <strong>and</strong> youth with COD.Learning Objectives:1) To underst<strong>and</strong> the benefits of participation in adaptive recreational activities, recreation as a right, the role of recreation in differentintervention programs <strong>and</strong> professional role in promoting participation in recreation.2) To learn about the intrinsic <strong>and</strong> extrinsic factors that influence participation in structured <strong>and</strong> unstructured adaptive recreationalactivities.3) To acquire awareness on the different stakeholders that need to be involved in the development of a successful recreation promotionplan.4) To underst<strong>and</strong> <strong>and</strong> evaluate the benefits of participating in an adaptive recreation program.44<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Friday, October 18, 20134:00 pm – 6:00 pm Instructional Courses 14-25IC 18 - THE ADDITIONAL VALUE OF GAIT ANALYSIS IN THE IDENTIFICATION OF SPECIFIC PHYSICAL THERAPY TREATMENTGOALS FOR AMBULANT CHILDREN WITH CEREBRAL PALSYLocation: 202 AAuthors: Inge Franki, PT; Jos De Cat, PT; Guy Molenaers, MD PhD; Christine Van den Broeck, PT PhDLevel: IntermediatePurpose: 1.To demonstrate how a clinical decision process based on the ICF <strong>and</strong> the HOAC-II can contribute to a reliable identificationof target problems in PT of children with CP 2. To demonstrate how the additional in<strong>for</strong>mation of gait analysis (3DGA) can support theidentification of target problems in ambulant children with CP. 3. To provide a structural basis <strong>for</strong> the definition of specific PT goals inchildren with CPTarget Audience: Occupational <strong>and</strong> physical therapists (basic knowledge of 3DGA is required)Course Summary: 1. Theoretical background A structured clinical decision approach based on the ICF <strong>and</strong> the HOAC-II to identify targetproblems in gross motor function of children with CP will be introduced. It will demonstrate how the results of instrumented 3DGA fitwithin this context <strong>and</strong> can provide more insight in the specific, underlying motor problem <strong>and</strong> the definition of specific PT goals. 2. Clinicalexample An example of a clinical case study will be provided. The results of the clinical examination, gross motor function examination <strong>and</strong>3DGAwill be overviewed. The speakers will demonstrate how the structure of the ICF provided a comprehensive summary of the results. TheHOAC-II contributed to explore the interlinkage between the different levels <strong>and</strong> the definition of underlying target problems. The additionalvalue of the results of the 3DGA will be underlined <strong>and</strong> specific PT goals will be defined. 3. Group work 3.1 The results of another clinicalexample will be presented 3.2 In smaller groups, the target problems <strong>and</strong> specific PT goals <strong>for</strong> this child will be discussed 3.3 A final groupdiscussion will compare the ideas of the different groupsLearning Objectives:1) To provide insight in how the ICF can be used <strong>for</strong> a comprehensive overview of the examination results of a child with CP.2) To provide insight in how the HOAC-II can support the identification of an underlying target problem.3) To demonstrate how the ICF <strong>and</strong> the HOAC-II can be used in the definition of specific PT goals.4) To demonstrate the additional value of the results of 3DGA in the definition of specific PT goals.IC 19 - THE KNEE IS THE KEY IN SPASTIC DIPLEGIALocation: 103 A-CAuthors: Jillian M. Rodda, PhD; Paulo Selber, MD; Jeffrey Young, MDLevel: IntermediatePurpose: Examine knee management in spastic diplegia(SD) using evidence based guidelines <strong>and</strong> clinical evaluation pre/post single eventmultilevel surgery.Target Audience: Orthopedic surgeons, PMR, physical therapistsCourse Summary: Knee extension in SD is critical to ambulation if it is to be sustained in the long term. Incomplete knee extension,recurrent flexion de<strong>for</strong>mities <strong>and</strong> associated de<strong>for</strong>mities at other joints post surgery are major issues. Interventions will be discussed withrespect to timing according to GMFCS level, age, severity, <strong>and</strong> pathomechanics1,2,3. Non surgical <strong>and</strong> surgical techniques described include:PRST, neurolytic blocks, hamstring lengthening <strong>and</strong> transfer, distal femoral extension osteotomy, patellar tendon shortening <strong>and</strong> distalfemoral growth plate surgery. Cases studies with long term follow-up will be presented.Learning Objectives:1) Underst<strong>and</strong> biomechanics of the knee <strong>and</strong> sagittal gait patterns in SD.2) Use of Diagnostic Matrix (integrating physical exam, gait data, radiology, mobility scales) to provide basis <strong>for</strong> development ofmanagement strategies.3) Distinguish between surgical techniques targeting restoration of knee extension.4) Appropriate application of surgical techniques to different patients, considering risks/benefits of techniques.FRIday, October 18AACPDM 67 th Annual Meeting • Research & Practice 45


Friday, October 18, 20134:00 pm – 6:00 pm Instructional Courses 14-25IC 20 - ORTHOPAEDIC TREATMENT OF PATIENTS WITH MYELOMENINGOCELE AND THE ROLE OF EARLY ADAPTIVEMOBILITYLocation: 203 CAuthors: Vineeta T. Swaroop, MD; Lauren Rosen, PT MPT MSMS, ATP/SMS; Luciano Dias, MD; Lauro Machado Neto, MDLevel: IntermediatePurpose: To review the overall orthopaedic care of patients with myelomeningocele including pathology of the hip, knee, ankle/foot, <strong>and</strong>rotational de<strong>for</strong>mities. Course will center around new advances in treatment <strong>and</strong> current evidence-based treatment recommendations, witha focus on the importance of early adaptive mobility.Target Audience: This course is relevant to all clinicians caring <strong>for</strong> patients with myelomeningocele including orthopaedic surgeons,physiatrists, physical <strong>and</strong> occupational therapists, orthotists, <strong>and</strong> pediatricians.Course Summary: The orthopaedic treatment of patients with myelomeningocele will be covered, focusing specifically on recent advancesin treatment <strong>and</strong> evidence-based care. Whenever possible, case-based discussion will be utilized. Topics addressed will include use of theFunctional Mobility Scale <strong>for</strong> classification; the role of motion analysis in treatment; the case <strong>for</strong> early adaptive mobility; relationship betweencrutch- walking, trunk movement, <strong>and</strong> valgus stress at the knee joint; current treatment recommendations <strong>for</strong> hip dislocation; update on thetreatment of clubfoot <strong>and</strong> vertical talus; use of a custom-molded total body splint as an alternative to spica casting.Learning Objectives:1) To underst<strong>and</strong> the importance of early adaptive mobility <strong>and</strong> review the supporting research.2) To gain knowledge of how to utilize the Functional Mobility Scale to classify patients <strong>for</strong> clinical, research, <strong>and</strong> outcomes uses.3) To underst<strong>and</strong> the role computerized gait analysis plays in the assessment <strong>and</strong> treatment of patients with myelomeningocele.4) To underst<strong>and</strong> the current treatment recommendations <strong>for</strong> hip dislocation/ subluxation, valgus stress at the knee joint, clubfoot/verticaltalus <strong>and</strong> other orthopaedic problems.FRIday, October 18IC 21 - DOES TRACHEOSTOMY IMPROVE QUALITY OF LIFE FOR CHILDREN WITH UPPER MOTOR NEURON DISEASE ANDFOR THEIR FAMILIES? A DEBATELocation: 202 BAuthors: Alex<strong>and</strong>er L. Okun, MD; Garey Noritz, MD; Janine Winters, MDLevel: AdvancedPurpose: 1.To examine whether the benefits of tracheostomy outweigh the risks <strong>and</strong> burdens <strong>for</strong> individuals with compromised upper <strong>and</strong>lower airway function due to severe cerebral palsy or other childhood onset central nervous system disabilities 2. To explore the experienceof families <strong>and</strong> loved ones involved in their care.Target Audience: Physicians, nurses, occupational, physical, respiratory <strong>and</strong> speech <strong>and</strong> language therapists, home care professionals,mental health professionals, family caregiversCourse Summary: An in-depth, critical review of medical <strong>and</strong> psychosocial factors pertinent to collaborative decision-making abouttracheostomy in this group.Learning Objectives:1) Underst<strong>and</strong> the association of upper motor neuron dysfunction with the risk of significant upper <strong>and</strong> lower airways compromise due todisturbances of pharyngeal tone, swallowing, h<strong>and</strong>ling of secretions <strong>and</strong> airway protective reflexes.2) Review current, evidence based, practical <strong>and</strong> balanced recommendations regarding medical <strong>and</strong> surgical treatments, includingtracheostomy, <strong>for</strong> individuals in this group.3) Integrate research findings on health status, hospitalizations, survival <strong>and</strong> quality of life <strong>for</strong> individuals in this group, <strong>and</strong> the experiencesof family caregivers, into ethically sound decision-making practices to improve their well being.4) Foster interdisciplinary communication <strong>and</strong> interchange among all allied health care professionals around this topic, anticipating adiversity of views <strong>and</strong> in<strong>for</strong>ming experiences.46<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Friday, October 18, 20134:00 pm – 6:00 pm Instructional Courses 14-25IC 22 - FETAL ALCOHOL SYNDROMELocation: 201 C&DAuthors: Peter A. Blasco, MD; Melissa Svoboda, MDLevel: IntermediatePurpose: To present the evolution of the recognition of the Fetal Alcohol Syndrome as an entity <strong>and</strong> to delineate the clinical diagnosticfeatures of FAS.Target Audience: All clinicians involved in the evaluation <strong>and</strong>/or care of children with neurodevelopmental disabilities.Course Summary: Alcohol is ubiquitous, <strong>and</strong> 15% of women of child-bearing age consume alcohol regularly to a moderate or heavydegree. In child development clinics the presumed diagnosis of or question of FAS frequently comes up. Less than half of the referredchildren will actually have FAS. The diagnostic criteria that have evolved <strong>for</strong> FAS will be discussed, <strong>and</strong> FAS epidemiology will be reviewed.The pathology <strong>and</strong> physiology of alcohol as a teratogen will be described. Long-term neurodevelopmental problems <strong>and</strong> functionaloutcomes will be reviewed. Recommendations <strong>for</strong> alcohol intake during pregnancy, <strong>and</strong> resources available <strong>for</strong> children, families, <strong>and</strong>pregnant women will be covered.Learning Objectives:1) To describe the precise criteria <strong>for</strong> making the diagnosis of fetal alcohol syndrome.2) To provide the tools <strong>for</strong> objectively identifying the physical features of FAS.3) To underst<strong>and</strong> the pathophysiologic mechanisms by which alcohol acts as a teratogen.4) To underst<strong>and</strong> the long-term neurodevelopmental problems that children with FAS encounter.IC 23 - WHOSE LIFE IS IT ANYWAY? MEASURING MEANINGFUL OUTCOMES FOR CHILDREN WITH SEVERE DISABILITIESLocation: 101 B-DAuthors: Unni G. Narayanan, MBBS MSc FRCSC; Shannon Weir, BSc MScLevel: IntermediatePurpose: Explore the concepts of QOL/HRQL in children with severe chronic disabilities, using the Caregiver Priorities <strong>and</strong> Child HealthIndex of Life with Disabilities (CPCHILD©) Questionnaire as a working example.Target Audience: Health care professionals involved in the care of, or clinical research with, children with chronic disabilities.Course Summary: The impact of health care interventions is more meaningfully assessed using patient based outcome measures such asquality of life. This course will explore the concepts of patient priorities, quality of life (QOL) <strong>and</strong> health related quality of life (HRQL), <strong>and</strong> theimperative <strong>for</strong>, <strong>and</strong> the challenges involved in, conceptualizing these constructs <strong>for</strong> children with severe disabilities, using the example of theCPCHILD Questionnaire. The development of the CPCHILD will be used as an example to illustrate the science behind the measurement ofoutcomes. Participants will become familiar with the conceptual underpinnings <strong>and</strong> the validation of this instrument as well as the potentialapplications of the questionnaire in the evaluation of the effectiveness of the different interventions used to treat children with severedisabilities.Learning Objectives:1) Define the concepts of quality of life (QOL) <strong>and</strong> health related quality of life (HRQL).2) Discuss the challenges inherent to the measurement of children’s QOL/HRQL <strong>and</strong> the major domains to select <strong>and</strong> evaluate QOLinstruments <strong>for</strong> children. Introduce the framework of patient priorities.3) Demonstrate how QOL/HRQL instruments are constructed, using the development of the CPCHILD <strong>and</strong> other examples to underst<strong>and</strong>the properties of reliability, validity <strong>and</strong> responsiveness.4) Discuss the application, scoring <strong>and</strong> interpretation of the CPCHILD Questionnaire.FRIday, October 18AACPDM 67 th Annual Meeting • Research & Practice 47


Friday, October 18, 20134:00 pm – 6:00 pm Instructional Courses 14-25IC 24 - INNOVATIVE HIGH-VALUE HEALTHCARE DELIVERY MODELS FOR CHILDREN WITH COMPLEX CHRONIC MEDICALCONDITIONSLocation: 201 BAuthors: Irene C. Dietz, MD; Nancy Murphy, MD; Jim Ogan, MDLevel: IntermediatePurpose: Discuss novel approaches to the care of children with complex chronic conditionsTarget Audience: All healthcare providers <strong>for</strong> children with complex chronic conditions <strong>and</strong> disabilities.Course Summary: Based on the current literature, define <strong>and</strong> discuss children with CMCs associated medical, developmental, functional<strong>and</strong> psychosocial needs. Panelists will present three unique programs contrasting primary care, consultative <strong>and</strong> home-based deliverymodels. We will explore the pros <strong>and</strong> cons of these different care models.Learning Objectives:1) Define <strong>and</strong> describe children with CMCs <strong>and</strong> disabilities <strong>and</strong> technology dependencies.2) Discuss healthcare value of three models of healthcare delivery <strong>for</strong> children with complex chronic conditions.3) Identify the pros <strong>and</strong> cons of healthcare delivery models <strong>for</strong> children with CMCs.FRIday, October 18IC 25 - ALBERTA INFANT MOTOR SCALE (AIMS): A CLINICAL REFRESHER AND UPDATE ON EVALUATION OF AIMSNORMATIVE DATALocation: 201 AAuthors: Johanna Darrah, PhD PT; Doreen Bartlett, PhDLevel: IntermediatePurpose: This course will present updated in<strong>for</strong>mation pertaining to the administration of the AIMS, interpretation of scores, <strong>and</strong> the validityof the normative data.Target Audience: Physicians, occupational therapists, physical therapists, <strong>and</strong> nurses, preferably with previous experience using the AIMS.Course Summary: Common scoring issues will be identified <strong>and</strong> discussed. The interpretation of percentile rank scores will be reviewedincorporating the results of a longitudinal study evaluating the stability of AIMS scores over time. The results of a recent study that reevaluatedthe validity of the present normative data will be shared <strong>and</strong> the implications discussed. This study is based on data from therecent assessments of 650 Canadian infants. Course participants will have an opportunity to view videos <strong>and</strong> discuss their scores together.In addition, participants will score one AIMS assessment video independently <strong>and</strong> the presenters will provide them with e-mail feedbackregarding their item-by-item agreement with the gold st<strong>and</strong>ard scoring. Previous experience with the AIMS is beneficial as this instructionalcourse is not an AIMS training course but rather an opportunity to share experiences using the AIMS <strong>and</strong> to ask questions about clinical <strong>and</strong>research uses of the AIMS. Participant discussion will be encouraged.Learning Objectives:1) To discuss common administration <strong>and</strong> scoring issues using the AIMS.2) To underst<strong>and</strong> the interpretation of an AIMS percentile score <strong>and</strong> how to present it to families <strong>and</strong> caregivers.3) To discuss the results of a recent study re-evaluating the normative data.4) To receive personal feedback on scoring of an AIMS assessment.6:30 pm – midnight Evening CelebrationCelebrate Friday Night at the Harley-Davidson Museum ® !Join your old friends <strong>and</strong> new colleagues at an Annual Meeting favorite event. There willbe opportunities to tour the Harley-Davidson Museum® <strong>and</strong> take a stationary ride on aHarley-Davidson® motorcycle. As is also our tradition, there will be music <strong>and</strong> dancing laterin the evening. There will be a trolley running between the Hilton hotel <strong>and</strong> the museumcontinuously until midnight.Tickets are $50.00 each. A limited number of tickets may be available at the Registration Desk.Dress <strong>for</strong> this event is casual.48<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Saturday, October 19, 20136:00 am–6:50 am Get Fit! Walk/RunLocation: Meet by Registration Desk, Wisconsin CenterStart your day off in an active way. Fitness experts will lead a running group <strong>and</strong> a walking group outside — rain or shine.7:00 am–7:50 am Continental Breakfast/Poster ViewingLocation: Exhibit Hall, Ballroom A&B7:00 am–7:50 am Breakfast Seminars 13-18BRK 13 - SPEECH AND LANGUAGE DEVELOPMENT IN YOUNG CHILDREN WITH CEREBRAL PALSYLocation: 201 C&DAuthors: Emily McFadd, MS; Kristen Allison, MA; Ashlyn Smith, PhD; Katherine C. Hustad, PhDLevel: BasicPurpose: To describe findings from recent research characterizing speech <strong>and</strong> language profiles in young children with cerebral palsy <strong>and</strong>its clinical significance, highlighting the need <strong>for</strong> early intervention.Target Audience: Physicians, therapists, educators, nursesCourse Summary: Our research program focuses on identifying <strong>and</strong> describing impairment-based speech <strong>and</strong> language profiles <strong>and</strong>tracking communication development in a longitudinal sample of over 100 children with CP. Speech <strong>and</strong> language impairments arecommon in children with CP, but can often be difficult to assess <strong>and</strong> identify at young ages due to wide variability in communication skills<strong>and</strong> the influence of motor impairment in this population. Underst<strong>and</strong>ing early predictors of later communication outcomes is important tohelp identify children who need therapy earlier <strong>and</strong> to tailor intervention to maximize functional outcomes. Presenters will show longitudinaldata <strong>and</strong> discuss the emergence of communication profiles of children with CP during early childhood. Video examples of children with arange of speech <strong>and</strong> language impairments will be shown, <strong>and</strong> the role of early speech <strong>and</strong> language intervention will be discussed.Learning Objectives:1) To underst<strong>and</strong> current research evidence on trajectories of speech <strong>and</strong> language development <strong>and</strong> communication profiles in youngchildren with CP.2) To recognize challenges involved in identifying speech <strong>and</strong> language impairments in young children with CP.3) To underst<strong>and</strong> the range of communication challenges observed in this population, <strong>and</strong> describe the impact of both speechimpairment <strong>and</strong> language impairment on communication function.4) To underst<strong>and</strong> the importance of referring young children with CP <strong>for</strong> speech <strong>and</strong> language evaluations.BRK 14 - REHABILITATION PROTOCOLS AFTER SINGLE-EVENT MULTILEVEL SURGERYLocation: 201 BAuthors: Katie Walt, DPT ; Jean L. Stout, PT MSLevel: IntermediatePurpose: To discuss treatment protocols <strong>for</strong> rehabilitation after single-event multilevel surgery (SEMLS) <strong>for</strong> children <strong>and</strong> adolescents withcerebral palsy.Target Audience: Pediatric orthopaedists, physiatrists <strong>and</strong> physical therapists who encounter <strong>and</strong> care <strong>for</strong> children with cerebral palsy afterorthopaedic surgery.Course Summary: This course will summarize the role of physical therapy post-SEMLS <strong>and</strong> our rehabilitation experience <strong>for</strong> children withcerebral palsy. Aspects from initial gait analysis <strong>and</strong> pre-operative teaching to specific post-operative protocols will be described. The role ofan inpatient rehabilitation episode of care <strong>and</strong> the patient selection process will be discussed. A brief description of lever-arm dysfunction<strong>and</strong> its influence on muscle function, strength, <strong>and</strong> the impact on rehabilitation will be included. The course will illustrate <strong>and</strong> emphasizetreatment with appropriate case examples.Learning Objectives:1) Describe how lever-arm dysfunction impacts muscle function <strong>and</strong> ability to strengthen be<strong>for</strong>e surgery.2) Discuss specific post-operative treatment protocols <strong>for</strong> bony <strong>and</strong>/or soft tissue procedures after SEMLS.3) Identify patients who may benefit from an inpatient rehabilitation episode of care <strong>and</strong> describe components of the program structure.4) Discuss goal setting <strong>and</strong> patient/family expectations.Saturday, October 19AACPDM 67 th Annual Meeting • Research & Practice 49


Saturday, October 19, 20137:00 am–7:50 am Breakfast Seminars 13-18BRK 15 - EVIDENCE-BASED CALCULATIONS OF LIFE EXPECTANCY OF CHILDREN AND ADULTS WITH CEREBRAL PALSYAND OTHER DEVELOPMENTAL DISABILITIESLocation: 202 CAuthors: Scott J. Kush, MD JD MPH; Steven M. Day, PhD; Robert J. Reynolds, MPHLevel: IntermediatePurpose: To describe <strong>and</strong> demonstrate the process of calculating life expectancy based on published medical evidence regarding survivalprobabilities <strong>and</strong> mortality rates <strong>for</strong> children with cerebral palsy <strong>and</strong> other developmental disabilities.Target Audience: Physicians, nurses, therapists, <strong>and</strong> educatorsCourse Summary: There are great advantages to having an underst<strong>and</strong>ing of longevity expectations in the developmentally disabled.There is a scientific process <strong>for</strong> calculating life expectancy <strong>for</strong> those affected by cerebral palsy <strong>and</strong> other developmental disabilities. Thisprocess involves knowing the individual’s disability <strong>and</strong> functional abilities, examining the available literature on the condition, using a lifetable, <strong>and</strong> per<strong>for</strong>ming a series of calculations. Drs. Kush <strong>and</strong> Day will discuss with participants how to use the life table, locate <strong>and</strong> analyzethe medical evidence, <strong>and</strong> calculate life expectancy <strong>for</strong> children <strong>and</strong> adults with cerebral palsy <strong>and</strong> other developmental disabilities.Participants will be provided with a basic life table spreadsheet, mortality rates derived from various studies, <strong>and</strong> links to pertinent articles.They will leave the session with a basic underst<strong>and</strong>ing of the st<strong>and</strong>ard methodology <strong>for</strong> calculating life expectancy <strong>for</strong> persons withparticular medical conditions that affect mortality risk.Learning Objectives:1) To underst<strong>and</strong> the life table, its history, <strong>and</strong> its use in determining life expectancy.2) To underst<strong>and</strong> how life expectancy may be affected by cerebral palsy <strong>and</strong> other developmental disabilities.3) To underst<strong>and</strong> the relationship between peer-reviewed published evidence regarding survival <strong>and</strong> the life table <strong>and</strong> life expectancy.4) To underst<strong>and</strong> how to calculate life expectancy <strong>for</strong> an individual with cerebral palsy or other developmental disability using evidencefound in published studies.Saturday, October 19BRK 16 - PRINCIPLES OF RESPIRATORY MANAGEMENT IN PATIENTS WITH NEURODISABILITY WHO HAVE SECONDARYPULMONARY COMPLICATIONSLocation: 202 D&EAuthors: Robert H. Warren, MD; Denise Willis, BS RRT-NPSLevel: IntermediatePurpose: To review the basic principles of respiratory care management including aerosol medications, respiratory therapy equipment used<strong>for</strong> airway clearance, <strong>and</strong> devices <strong>for</strong> stabilization of pulmonary insufficiency.Target Audience: Physicians, nurses, respiratory therapists, educatorsCourse Summary: The discussion will demonstrate how individual respiratory care plans using medication <strong>and</strong> equipment are developedbased on the primary neurodisability, the extent to which that disability affects respiratory function, <strong>and</strong> the specific clinical picture ofrespiratory symptoms. The concept of a Pulmonary Composite of characteristics present in all patients can be used <strong>for</strong> clinical determinationof the respiratory care plan regardless of the specific diagnosis of either acquired or congenital neurodisability.Learning Objectives:1) Identify specific aerosol <strong>and</strong> oral or enterally provided medications used to reduce airway secretions, decrease airway inflammation, <strong>and</strong>create mobilization <strong>and</strong> thinning of secretions to promote airway clearance.2) Discuss respiratory therapy equipment used in conjunction with medication to provide airway stability <strong>and</strong> prevent <strong>and</strong> reduce severityof acute respiratory events.3) Discuss the clinical assessment of respiratory function with emphasis on charting the course of progressive pulmonary insufficiencyover time to include decision making regarding use of mechanical ventilator devices <strong>for</strong> intermittent or continuous support.4) Discuss the critical role of caregiver underst<strong>and</strong>ing of respiratory symptomatology <strong>and</strong> the tools used to provide that educationto caregivers. Develop the individualized respiratory care plans utilizing a foundation of a knowledge base <strong>and</strong> mastery of clinicalassessment of the patient.50<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Saturday, October 19, 20137:00 am–7:50 am Breakfast Seminars 13-18BRK 17 - Tweet This! Social Media <strong>for</strong> the Medical ProfessionalLocation: 201 AAuthor: Jilda Vargus-Adams, MD; Cynthia FrisinaLevel: BeginnerPurpose: Introduce participants to major <strong>for</strong>ms of social media utilized in medical practice.Target Audience: All those curious about social mediaCourse Summary: Presenters will review social media including Facebook, Twitter, LinkedIn, GooglePlus, blogs, <strong>and</strong> interactive onlineplat<strong>for</strong>ms <strong>and</strong> discuss roles <strong>for</strong> enhancing professional medical practices. Participants will gain practical experience utilizing social media, seemeaningful examples of effective social media in medical practice, <strong>and</strong> learn about potential pitfalls <strong>for</strong> medical professionals in the realmsof social media.Learning Objectives:1) Describe Twitter, Facebook <strong>and</strong> other social media in common usage.2) Explain why a medical professional would utilize social media.3) Create an effective online presence.4) Have fun.BRK 18 - THE ART OF MENTORINGLocation: 202 BAuthors: Peter A. Blasco, MD; Peter Rosenbaum, MD; Barry S. Russman, MDLevel: AdvancedPurpose: To discuss/debate the attributes that characterize the good mentor <strong>and</strong> to explore the features essential to establishing a goodmentor - mentee relationshipTarget Audience: Individuals striving to make teaching/training a substantial element of their career; individuals in training seeking arelationship with a good mentor.Course Summary: Teaching requires a sound grasp of factual in<strong>for</strong>mation but is as much art as it is science. It is an acquired skill <strong>and</strong> isnot easy to do well. The mentor - mentee relationship is a very special one <strong>and</strong> involves many attributes beyond good teaching. Success inmentoring - - guiding a young or at least relatively naïve learner - - is dependent upon mastery of the elements of teaching <strong>and</strong> consciousattention to the elements of personal interaction. The entire session will be conducted as a seminar discussion involving panel responseto proposed attributes important <strong>for</strong> the mentor to nurture in him or herself <strong>and</strong> in crafting the relationship with a mentee, coupled withaudience input on each element.Learning Objectives:1) To determine if there is or is not consensus on the characteristics of the good mentor.2) To explore elements of the mentor-mentee relationship.3) To touch on special considerations of the mentoring relationship; e.g., racial, ethnic, cultural differences; personal <strong>and</strong> personalityinteractions.4) To provide resources on teaching <strong>and</strong> mentoring strategies.8:00 am–10:15 am Complex Care Special Interest Group meetingLocation: 203 DA returning favorite - take note of where it is in the program in case you want to attend! The Complex Care Special Interest Group meetson Saturday morning <strong>and</strong> you are welcome to attend. This is a diverse group of health professionals dedicated to the care of childrenwith medical complexity. They will discuss ongoing projects including development of an educational curriculum <strong>for</strong> complex care <strong>and</strong>identification of priorities <strong>for</strong> clinical research.8:00 am–10:00 am Free Paper Sessions G-IFree Paper Session G: Muscle/Botox/MRI/BrainLocation: Ballroom C&DG1 - REDUCED SATELLITE CELL NUMBER IN SITU IN CONTRACTURES FROM CHILDREN WITH CEREBRAL PALSYSudarshan Dayanidhi, PT PhD; Peter Dykstra, GED; Vera Lyubasyuk, BS; Bryon R. McKay, PhD; Henry Chambers, MD; Richard Lieber, PhDG2 - REORGANIZATION OF THALAMOCORTICAL PROJECTIONS IS ASSOCIATED WITH DEFICITS IN SENSORIMOTORFUNCTION IN CHILDREN WITH CONGENITAL HEMIPLEGIARoslyn N. Boyd, PhD, PT; Henry Tsao, PhD PT, MBBS scholar; Kerstin Panneck, BSc; Stephen Rose, PhD PhysicsSaturday, October 19AACPDM 67 th Annual Meeting • Research & Practice 51


Saturday, October 19, 20138:00 am–10:00 am Free Paper Sessions G-IFree Paper Session G: Muscle/Botox/MRI/BrainG3 - ASSESSMENT OF THE BRAIN MRI STRUCTURAL CONNECTOME REVEALS ALTERED CONNECTIVITY IN CHILDREN WITHUNILATERAL CPRoslyn N. Boyd, PhD PT; Kerstin Panneck, BSc; Stephen Rose, PhD PhysicsG4 - SYSTEMATIC REVIEW OF POPULATION-BASED STUDIES OF BRAIN IMAGING PATTERNS IN CEREBRAL PALSYSusan M. Reid, BApSc MClinEpi PhD; Charuta Dagia, MBBS MD FRCR FRANZCR; Michael R. Ditchfield, MBBS MD FRANZCR; John B. Carlin, BSc(Hons)PhD; Dinah Reddihough, MD BSc FRACP FAFRMG5 - TENDON STRUCTURE AND EXTRACELLULAR MATRIX COMPONENTS ARE AFFECTED BY SPASTICITY IN CEREBRALPALSY PATIENTSNicola M. Portinaro, PhD; Artemisia Panou, PhD; Nicoletta Gagliano, PhD; Isabella Dalle-Donne, PhD; Carla Martinelli, PhD; Aldo Milzani, PhD;Aless<strong>and</strong>ra Menon, PhD; Graziano Colombo, PhDG6 - THE EFFECT OF BOTULINUM TOXIN ON MUSCLE VOLUME IN CHILDREN WITH CEREBRAL PALSYAdam Shortl<strong>and</strong>, PhD; Charlie F. Fairhurst, MCh; Martin Gough, FRCSI; Tanya Forster, MScG7 - MUSCLE HISTOPATHOLOGY IN CHILDREN WITH SPASTIC CEREBRAL PALSY RECEIVING BOTULINUM TOXIN TYPE-ACatherine M. Elliott, PhD; Jane Valentine, FRACP; Vicki Fabian, MBBCh, DTM&H, FFPath, FRCPA; Siobhan Reid, PhD; Katherine Stannage, FRACP;Christian A. Pitcher, BS; Kevin Ellies, BS;G8 - BOTULINUM NEUROTOXIN TYPE-A IN SPASTIC CEREBRAL PALSY: A COMPARISON OF MUSCLE SIZE AND STRENGTHIN TREATED AND UNTREATED CHILDRENChristian A. Pitcher, BSc(Hons); Caroline Davis, BSc(Hons); Catherine M. Elliott, PhD; Katherine Langdon, FRACP FAFRM; Jane Valentine, FRACP FAFRM;Siobhan Reid, PhDG9 - CONFLICT OF INTEREST IN THE ASSESSMENT OF BOTULINUM TOXIN A INJECTIONS IN PATIENTS WITH CEREBRALPALSY: A SYSTEMATIC REVIEWTae Gyun Kim, MD; Chin Youb Chung, MD; Kyoung Min Lee, MD; Seung Yeol Lee, MD; Young Choi, MD; Soon-Sun Kwon, PhD; Sang Hyeong Lee, MD;Dae Gyu Kwon, MD; Ki Hyuk Sung, MD; Moon Seok Park, MDG10 - DETERMINING THE OPTIMUM FREQUENCY OF BOTULINUM TOXIN INJECTIONS TO THE GASTROCSOLEUS INCHILDREN WITH CEREBRAL PALSY - A RCTT<strong>and</strong>y Hastings-Ison, BAppSci PT; Barry Rawicki, MB BS FRACP; Richard Baker, PhD CEng; Christine Blackburn, DipPT(Lon); Michael Fahey, MB BS PhDFRACP; Pam Simpson, BSc(Hons); H Kerr Graham, MD FRCS(Ed), FRACSSaturday, October 19Free Paper Session H: Measures ComorbidityLocation: 101 B-DH1 - CHARACTERISTICS OF PAIN IN CHILDREN AND YOUTH WITH CEREBRAL PALSYLauren Switzer, MSc; Melanie Penner, MD; Wen Yan Xie, BMSc; Darcy Fehlings, MD MScH2 - DEVELOPING A CEREBRAL PALSY CHRONIC PAIN ASSESSMENT TOOLKIT: A SYSTEMATIC REVIEW OF THE EVIDENCEShauna Kingsnorth, PhD; Ellie Adler, MA; Noam Ami, MSc; Tessa Gresley-Jones, NP; Deepali Mankad, MD; Nick Joachimides, RN CRN(cIIWCC MClSc;Linda Fay, OTREg(Ont); Naomi Slonim, PhD CPsych; Darcy Fehlings, MD MScH3 - RASCH ANALYSIS OF THE PEDIATRIC OUTCOMES DATA COLLECTION INSTRUMENT (PODCI) IN 720 PATIENTS WITHCEREBRAL PALSYYoung Choi, MD; Chin Youb Chung, MD; Kyoung Min Lee, MD; Seung Yeol Lee, MD; Tae Gyun Kim, MD; Soon-Sun Kwon, PhD; Sang Hyeong Lee, MD;Dae Gyu Kwon, MD; Ki Hyuk Sung, MD; Moon Seok Park, MDH4 - VALIDATION OF PROMIS IN CHILDHOOD CEREBRAL PALSYJilda N. Vargus-Adams, MD MSc; C. Jeffrey Jacobson, PhD; Adam C. Carle, PhD; Jennifer Farrell, MA; Esi Morgan-DeWitt, MD MSCEH5 - MEASURING PHYSICAL ACTIVITY IN YOUTH WITH CEREBRAL PALSY WHO ARE AMBULATORYMargaret E. O’Neil, PhD PT MPH; Maria Fragala-Pinkham, DPT, MS; Jeffrey Forman, MD; Nancy Lennon, MS PT; Ameeka George, BS; Stewart Trost, PhDH6 - SELF-REPORTED QUALITY OF LIFE OF 13-17-YEAR-OLD ADOLESCENTS WITH CEREBRAL PALSY: SPARCLE, A CROSS-SECTIONAL EUROPEAN STUDYHeather O. Dickinson, BSc PhD; Allan Colver, MD FRCPCHH7 - SPATIAL COGNITION IN INFANTS WITH MYELOMENINGOCELE: TRANSITION FROM IMMOBILITY TO MOBILITYMonica Rivera, PT MS DPTSc; David Anderson, PhD; S<strong>and</strong>ra Radtka, PT PhD; Campos Joseph, PhD52<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Saturday, October 19, 20138:00 am–10:00 am Free Paper Sessions G-IFree Paper Session H: Measures ComorbidityH8 - WHAT DO ‘SOCIAL COMMUNICATION’ ABILITIES OF PRESCHOOL CHILDREN WITH ASD LOOK LIKE? A QUALITATIVECASE STUDYBriano Di Rezze, PhD; Martha Cousins, MSc; Peter Rosenbaum, MD; Lonnie Zwaigenbaum, MD; Mary Jo C. Hidecker, PhD; Mary Law, PhD; PeterSzatmari, MDH9 - THE ACCOMMODATIVE PROCESS IN CHILDREN AND ADOLESCENTS WITH AND WITHOUT CEREBRAL PALSYKristina Tedroff, MD PhD; Kerstin Hellgren, MD PhD; Lena Jacobson, MD PhD; Rune Brautaset, PhD; Tony Pansell, PhDH10 - COGNITIVE PROFILE IN ADULTS WITH CEREBRAL PALSY ACCORDING TO EMPLOYMENT STATUSHelene Hoye, MS; Grethe Manum, MD PhD; Solrun Sigurdardottir, PhDFree Paper Session I: Epidemiology DiagnosisLocation: 103 A-CI1 - INFANTS WITH CONGENITAL HEART DISEASE ARE AT RISK FOR ABNORMAL GENERAL MOVEMENTSLynn Boswell, PT MS; Lars Adde, PT PHD; Nguyenvu Nguyen, MD; Ragnhild Stoen, MD; Toril Fjortoft, PT MSc; Mary Weck, PT; Annamarie Hayner, M ed;Raye-Ann De Regnier, MDI2 - THE TRAJECTORY OF THE ASSOCIATION OF GENERAL MOVEMENTS ASSESSMENT WITH GROSS MOTOR OUTCOMESFOR CHILDREN BORN PRETERM AT TWELVE MONTHS, THREE YEARS AND SIX YEARS OF AGELaurie Snider, OT PhD; Annette Majnemer, OT PhD; Barbara Mazer, PhDI3 - IS THE DIAGNOSIS OF CP AT AGE TWO STABLE OVER TIME? ASSESSMENT OF A LOW BIRTH WEIGHT COHORT AT AGESTWO, SIX AND NINESteven J. Korzeniewski, PhD MS MA; Jennifer A. Pinto-Martin, PhD MPH; Agnes H. Whitaker, MD; Judith F. Feldman, PhD; John M. Lorenz, MD; NigelPaneth, MD MPHI4 - MOVEMENT DISORDER AND GROSS MOTOR FUNCTION IN CHILDREN WITH CEREBRAL PALSY: CHANGES AT SKELETALMATURITY IN A POPULATION BASED COHORTH Kerr Graham, MD FRCS (Ed) FRACS; Soon Ghee Ang, MB BS; Fiona Dobson, PhD; Pam Thomason, BPT, MPT; Pam Simpson, BSc; Dinah Reddihough,MD FRACP FAFRMI5 - CLINICAL PATTERNS OF CHILDHOOD DYSTONIA AND CHOREOATHETOSIS IN DYSKINETIC CPElegast Monbaliu, MSc; Els Ortibus, MD PhD; Peter Prinzie, MSc PhD; Paul De Cock, MD PhD; Katrijn Klingels, MSc PhD; Lieve Heyrman, MSc; Hilde Feys,MSc PhDI6 - EVIDENCE OF SOCIOECONOMIC AND RACIAL/ETHNIC DISPARITIES IN THE PREVALENCE OF CEREBRAL PALSY AMONG8 YEAR-OLD CHILDREN IN THE U.SMaureen Durkin, PhD, DrPH; Matthew Maenner, PhD; Martha Wingate, DrPH; Russell Kirby, PhD; Ruth Benedict, OT DrPH; Deborah Christensen, PhD;Kim Van Naarden Braun, PhD; Marshalyn Yeargin-Allsopp, MDI7 - RECENT UPDATES FROM THE CALIFORNIA DATABASEJordan Brooks, PhD MPH; David Strauss, PhD FASA; Robert Shavelle, PhD MBA; Linh Tran, MPHI8 - IS THE ASSOCIATION BETWEEN PRE-ECLAMPSIA AND CEREBRAL PALSY MEDIATED SOLELY THROUGH PRETERMBIRTH? A POPULATION BASED COHORT STUDYKristin M. Str<strong>and</strong>, MS; Runa Heimstad, MD PhD; Ann-Charlotte Iversen, PhD; Rigmor Austgulen, MD PhD; Guro L. Andersen, MD PhD; Lorentz M. Irgens,MD PhD; Torstein Vik, MD PhDI9 - APOLIPOPROTEIN E REGULATOR GENES AND SEVERITY OF CEREBRAL PALSYEspen Lien, MD; Guro L. Andersen, MD PhD; Yongde Bao, PhD; Heather Gordish-Dressman, PhD; Jon S. Skranes, MD PhD; Torstein Vik, MD PhD; JamesA. Blackman, MD MPHI10 - SCOLIOSIS IN CEREBRAL PALSY: A POPULATION BASED STUDYH Kerr Graham, MD FRCS (Ed) FRACS; Soon Ghee Ang, MB BS; Michael Johnson, FRACS; Ian Torode, FRACS; Pam Simpson, BScSaturday, October 1910:00 am–10:15 am Coffee Break - Posters <strong>and</strong> ExhibitsLocation: Ballroom A&BAACPDM 67 th Annual Meeting • Research & Practice 53


Saturday, October 19, 201310:15 am–11:45 am General SessionLocation: Ballroom C&DGayle G. Arnold LectureshipYou really need a babel fishIona Novak, PhD MSc(Hons) BApp ScOT<strong>and</strong>Dianne Russell, PhD12:00 pm–1:30 pm Lunch on your ownSaturday, October 191:30 pm–3:30 pm Instructional Courses 26-38Location: 202 AIC 26 - LINKING STRUCTURE AND FUNCTION: DOSING PARAMETERS AND PROTOCOLS FOR CURRENT AND NOVELTHERAPIES TO IMPROVE MUSCLE AND BONE OUTCOMES IN CEREBRAL PALSYAuthors: Noelle G. Moreau, PT PhD; Robyn K. Fuchs, PhD; Mary E. Gannotti, PT PhDLevel: IntermediatePurpose: To review the current state of the science <strong>for</strong> interventions that target muscle <strong>and</strong> bone <strong>for</strong> people with cerebral palsy (CP); <strong>and</strong> toidentify effective dosing parameters <strong>for</strong> frequency, volume, duration, intensity, <strong>and</strong> movement speed.Target Audience: Pediatricians, physical <strong>and</strong> occupational therapists, orthopedic surgeonsCourse Summary: Rehabilitation strategies vary greatly due to vast differences in the dosing of interventions. This course will explorethe state of the science in dosing as it relates to children with CP <strong>for</strong> the musculoskeletal system. The speakers will place an emphasis ontreatment strategies with established criteria <strong>for</strong> dosing—including frequency, volume, duration, intensity, <strong>and</strong> movement speed —with afocus on structural <strong>and</strong> functional changes of muscle <strong>and</strong> bone. Plasticity <strong>and</strong> recovery outcomes will guide the clinical discussion on howto use targeted interventions by applying the best available evidence. Minimal <strong>and</strong> optimal dosing parameters will be discussed.Learning Objectives:1) Evaluate current interventions <strong>and</strong> their potential to influence structural changes in muscle <strong>and</strong> bone in children with CP.2) Differentiate between levels of evidence of effective interventions <strong>for</strong> muscle <strong>and</strong> bone adaptation.3) Analyze what we currently know regarding dosing parameters <strong>and</strong> protocols <strong>for</strong> improvements in muscle <strong>and</strong> bone structure <strong>and</strong> function.4) Integrate the knowledge of dosing parameters from evidence-based research with clinical expertise.54<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Saturday, October 19, 20131:30 pm–3:30 pm Instructional Courses 26-38Location: 203 CIC 27 - EMERGING ROLE OF DEEP BRAIN STIMULATION IN DYSTONIC CEREBRAL PALSYAuthors: Warren A. Marks, MD; Eric Levey, MD; Alec Hoon, MDLevel: IntermediatePurpose: To explain the emerging role of deep brain stimulation in the treatment of medically refractory dystonia due to cerebral palsy.Target Audience: Physicians, therapists <strong>and</strong> nurses involved in treating children <strong>and</strong> adults with cerebral palsy.Course Summary: As a background, there will be a review of the pathophysiology <strong>and</strong> classification of cerebral palsies, with an emphasison the dystonic component. Dystonia will be defined so that participants will be better able to differentiate spasticity <strong>for</strong>m dystonia. This isincreasingly important as more specific treatment options <strong>for</strong> each <strong>for</strong>m of hypertonia become more widely accessible. The basal ganglia playa central role in the pathophysiology of extrapyramidal movement disorders. Underst<strong>and</strong>ing the structural <strong>and</strong> neurochemical pathways ofthe basal ganglia are vital to underst<strong>and</strong>ing dystonia <strong>and</strong> potential treatment options. Pharmacologic options <strong>for</strong> dystonia will be reviewed.Direct stimulation of the basal ganglia is emerging as a treatment option <strong>for</strong> various <strong>for</strong>ms of medically refractory dystonia, including dyskineticcerebral palsy. The evolving role of DBS in the treatment of cerebral palsy will be explored, including outcomes <strong>and</strong> challenges.Learning Objectives:1) To underst<strong>and</strong> the different types of abnormal tone that can be part of the cerebral palsy.2) To underst<strong>and</strong> the central role of the basal ganglia in the pathophysiology of cerebral palsy.3) To have a basic underst<strong>and</strong>ing of how deep brain stimulation works.4) To underst<strong>and</strong> the emerging role of neuromodulation (deep brain stimulation) in the treatment of dystonia due to cerebral palsy?IC 28 - SUBJECTIVE VERSUS OBJECTIVE EVALUATIONS FOR LOWER LIMB ORTHOTIC PRESCRIPTION: BELIEFS VS.EVIDENCE AND THE LABORATORY VS. PATIENT ENVIRONMENTLocation: 201 BAuthors: Marcie Ward, MD; Sue Sohrweide, PT; Aaron Rasmussen, CPOLevel: IntermediatePurpose: To explore <strong>and</strong> compare the benefits <strong>and</strong> limitations in subjective clinical evaluation of patients <strong>and</strong> objective gait analysis whendetermining ideal orthotic prescription.Target Audience: Physicians, orthotists, <strong>and</strong> therapists who prescribe, provide or recommend lower limb orthotics <strong>for</strong> their patients.Course Summary: Orthotic prescription is typically a subjective decision. Function goals <strong>and</strong> alignment goals can conflict. Physicians,therapists, <strong>and</strong> orthotists may differ in their opinions regarding the type of orthotic to provide. Gait <strong>and</strong> motion analysis offers someobjective evidence to guide this decision making. This course will review some of the available literature guiding orthotic prescriptionincluding consensus recommendations <strong>and</strong> how to apply them clinically. The available in<strong>for</strong>mation gait analysis provides will be discussedto highlight some pros <strong>and</strong> cons of various orthotic designs in a few commonly treated gait patterns. Case studies will illustrate patients inwhom orthotics may or may not be of benefit. The audience will choose by electronic audience response system the type of orthotic theywould recommend based on first physical exam data, second after the addition of gait video, <strong>and</strong> finally when gait data is added. Discussionwill also include patient care needs <strong>and</strong> goals that may influence the final orthotic that is provided.Learning Objectives:1) Discuss typical alignment <strong>and</strong> functional goals in orthotic prescription.2) Review the available literature guiding orthotic prescription.3) Explore gait analysis data <strong>for</strong> evidence suggestive of improved function <strong>and</strong>/or alignment with the application of orthotics.4) Consider the short-term <strong>and</strong> long-term goals in orthotic prescription <strong>and</strong> how patient goals <strong>and</strong> compliance influence prescriptionchoice.Saturday, October 19AACPDM 67 th Annual Meeting • Research & Practice 55


Saturday, October 19, 20131:30 pm–3:30 pm Instructional Courses 26-38Location: 101 B-DIC 29 - NEUROPLASTIC RESPONSES TO REHABILITATION IN CHILDREN AND INFANTS WITH CEREBRAL PALSYAuthors: Jill Heathcock, MPT PhD; Andrew Gordon, PhD; Thubi Kolobe, PT PhD; Laura Prosser, PT PhDLevel: IntermediatePurpose: This course will present the state of the science in rehabilitation <strong>and</strong> dosing as it relates to children with <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong>includes two main topic areas: 1) current <strong>and</strong> novel rehabilitation protocols, <strong>and</strong> 2) brain plasticity specific to dosing <strong>and</strong> early brain injury.This workshop will help attendees integrate evidence on neuroplastic adaptations to rehabilitation into their clinical practice.Target Audience: Physicians, occupational <strong>and</strong> physical therapists, speech <strong>and</strong> language therapists, nursesCourse Summary: Using the ICF model this course will familiarize the participant with the current research on the responses of the brain topediatric neurorehabilitation. An emphasis will be placed on rehabilitation with known efficacy <strong>and</strong> established criteria <strong>for</strong> dosing includingfrequency, intensity, type of treatment, <strong>and</strong> timing. A focus will be on structural <strong>and</strong> functional changes in the context of lower <strong>and</strong> higherintensity protocols. Plasticity <strong>and</strong> recovery outcomes will guide the clinical discussion on how to use targeted interventions by applying bestavailable evidence. Minimal <strong>and</strong> optimal dosing parameters will be discussed. The <strong>for</strong>mat <strong>for</strong> this session will include lecture <strong>and</strong> interactivediscussions between presenters <strong>and</strong> attendees. The multidisciplinary panel consisting of researchers <strong>and</strong> clinicians will also guide workshopattendees through case examples that focus on plasticity <strong>and</strong> rehabilitation.Learning Objectives:1) To evaluate current interventions <strong>and</strong> their potential to influence structure-behavior change in children with CP.2) To evaluate dosing parameters <strong>and</strong> their potential to change brain structure <strong>and</strong> function.3) To apply relevant pediatric neurorehabilitation evidence to functional outcomes in infants <strong>and</strong> children.4) To integrate knowledge of brain plasticity <strong>and</strong> recovery in the context of clinical guidelines.Saturday, October 19IC 30 - SALIVA CONTROL IN CEREBRAL PALSY: MULTIDISCIPLINARY MANAGEMENT AND RESEARCH FINDINGS FROM THEAUSTRALIAN AND DUTCH DROOLING TEAMSLocation: 201 AAuthors: Dinah Reddihough, MD; Karen van Hulst, MSc; Jan van der Burg, PhD; David Chong, FRACSLevel: IntermediatePurpose: The objectives of this workshop are to - 1. Describe the assessment process <strong>and</strong> the interventions that are recommended <strong>for</strong> poorsaliva control. 2. Present the results of research into assessment, behavioural strategies, the effectiveness of medication, botulinum toxininjections <strong>and</strong> saliva control surgery.Target Audience: Physicians, dentists, speech <strong>and</strong> language therapists, occupational <strong>and</strong> physiotherapists, nurses, psychologists, teachersCourse Summary: Drooling impedes socialization, interpersonal relationships, <strong>and</strong> integration into school <strong>and</strong> community life <strong>and</strong> maylimit employment options in adults. Saliva control clinics in Australia <strong>and</strong> the Netherl<strong>and</strong>s have adopted a hierarchical approach to thetreatment of drooling, from the least to the most invasive. The assessment of the child with saliva control problems (anterior <strong>and</strong> posteriordrooling), including the available clinical <strong>and</strong> research tools, will be discussed with the role played by each multidisciplinary team member.The research evidence underlying the various management options will be presented along with in<strong>for</strong>mation as to how treatment isselected <strong>for</strong> the individual child.Learning Objectives:1) To underst<strong>and</strong> the factors that impede saliva control.2) To gain knowledge about the various assessment tools that are available <strong>and</strong> the issues to be considered when assessing children withsaliva control problems including oral health, concomitant medications <strong>and</strong> child / family factors.3) To underst<strong>and</strong> the treatment options: behavioral, speech pathology management techniques, medication, botulinum toxin, palatalappliances, surgery.4) To develop an appreciation of the research evidence <strong>for</strong> the various approaches.This course is sponsored by Merz Pharmaceuticals56<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Saturday, October 19, 20131:30 pm–3:30 pm Instructional Courses 26-38Location: 203 EIC 31 - CEREBRAL PALSY, NEUROGENIC BLADDER AND OUTCOMES OF LIFETIME CAREAuthors: Kevin P. Murphy, MD; Jenna Katorski, CNP; Charles Durkee, MDLevel: IntermediatePurpose: To create awareness, basic underst<strong>and</strong>ing <strong>and</strong> skill in the diagnosis <strong>and</strong> treatment of symptomatic neurogenic bladder in children<strong>and</strong> adults with cerebral palsy (CP).Target Audience: Physicians, nurses, physical, occupational <strong>and</strong> speech therapists.Course Summary: Urinary incontinence has been identified as a problem in people with CP. Multiple studies have shown neurogenicbladder (NB) to be a common cause of incontinence in the population of people with CP present in over 16% of those symptomatic. Manyother causes of incontinence are present in addition to NB in this population <strong>and</strong> need to be identified <strong>for</strong> proper intervention <strong>and</strong> optimaloutcome. This problem of young <strong>and</strong> old, often neglected but easily treated, has a 90% success rate of achieving continence in selectedindividuals with conservative care. The course will focus on identifying those individuals needing appropriate diagnosis <strong>and</strong> care bothmedical <strong>and</strong> surgical. Nursing interventions will be discussed including specialty catheterization techniques, lifespan care protocols <strong>and</strong>basic computerized urodynamic studies. A surgical discussion will include review of bladder augmentation, urinary <strong>and</strong> ureteral diversion<strong>and</strong> the Mitrofanoff procedures. Case examples will be presented in the final segment.Learning Objectives:1) To list multiple causes of urinary incontinence in people with CP across the lifespan.2) To identify the appropriate individual with CP most capable of achieving urinary continence within a functional toileting environment(FTE).3) To display a basic underst<strong>and</strong>ing of urodynamic testing, catheterization techniques, medications <strong>and</strong> protocols of care as it relates tothe individual with CP.4) To appreciate the surgical urology options of care <strong>for</strong> the individual with CP including, bladder augmentation, ureteral <strong>and</strong> urinarydiversion <strong>and</strong> the appendicovesicostomy (Mitrofanoff ) procedures.IC 32 - USE OF GAIT ANALYSIS IN SURGICAL TREATMENT PLANNING FOR PATIENTS WITH DEVELOPMENTAL DISABILITIESAuthors: Robert M. Kay, MD; Deirdre Ryan, MD; Susan Rethlefsen, PT DPTLevel: IntermediatePurpose: To educate attendees in use of gait analysis <strong>for</strong> evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.Target Audience: Physicians, physical <strong>and</strong> occupational therapistsCourse Summary: Faculty will introduce attendees to computerized gait analysis data collection <strong>and</strong> interpretation. They will discuss howdata are used in planning <strong>for</strong> surgical <strong>and</strong> non-surgical intervention in children with CP <strong>and</strong> myelomeningocele. Discussion will focus oncommon clinical problems <strong>and</strong> ways gait analysis alters treatment plans. Content will be based on the presenters’ clinical expertise <strong>and</strong>evidence-based review of literature. Computerized gait data, videos, photographs <strong>and</strong> x-rays will be used. Attendees will participate inbreakout sessions in which gait data will be interpreted <strong>and</strong> treatment plans determined <strong>for</strong> sample cases.Learning Objectives:1) List common gait problems in CP <strong>and</strong> myelomeningocele.2) Identify deviations on joint kinematic, kinetic <strong>and</strong> EMG plots.3) Outline a treatment plan <strong>for</strong> a child with CP or myelomeningocele using gait analysis data.4) Gain perspective on the complexity of evaluation <strong>and</strong> treatment planning <strong>for</strong> children with developmental disabilities.Instructional Course 32 has been moved toThursday, October 17, 2013 2:00 PM–4:00PMSaturday, October 19AACPDM 67 th Annual Meeting • Research & Practice 57


Saturday, October 19, 20131:30 pm–3:30 pm Instructional Courses 26-38IC 33 - TOE WALKING: HOW DO YOU KNOW WHO TO WORRY ABOUT?Location: 202 D&EAuthors: Kristan A. Pierz, MD; Sylvia Ounpuu, MScLevel: BasicPurpose: The purpose of this course is to describe the many variations of toe walking to help clinicians underst<strong>and</strong> the diversity ofpresentation, underlying diagnoses, <strong>and</strong> treatment options.Target Audience: Physicians, mid-level practitioners, physical therapists, orthotists, kinesiologists, <strong>and</strong> others who are interested in a moredetailed underst<strong>and</strong>ing of toe walking <strong>and</strong> how to assess <strong>for</strong> underlying diagnoses.Course Summary: Toe walking is frequently seen in childhood. Although the idiopathic version is common, caregivers need to be aware ofunderlying, often subtle, etiologies that warrant evaluation <strong>and</strong> timely treatment. This course will begin with a selection of videos of patientswho toe walk followed by a brief review of disorders that may result in toe walking (e.g. spasticity/cerebral palsy, weakness/hereditarysensory motor neuropathies, limb asymmetry/leg length difference/hip dysplasia/joint contractures/tumors, sensory integration disorders,<strong>and</strong> idiopathic/habitual patterning). The course will provide an overview of the comprehensive assessment of toe walking including thefollowing: visual/video analysis, physical exam, kinematics, <strong>and</strong> electromyography (EMG) <strong>and</strong> how each of these components can support orrefute differential diagnoses. The initial cases will then be examined in more detail, focusing on the gait parameter differences. Clinical examfindings, sagittal plane ankle/knee/hip/pelvis kinematic profiles, <strong>and</strong> EMG data will be used to support or refute different diagnoses <strong>and</strong>treatment options.Learning Objectives:1) Be familiar with the limitations of assessing toe walking by observation alone.2) Be familiar with many of the underlying diagnoses associated with the clinical presentation of toe walking.3) Be familiar with the components of computerized gait analysis relevant to toe walking.4) Be aware of “red flags” or gait features of toe walkers that warrant additional evaluation or treatment.Saturday, October 19IC 34 - REVIEW OF NEUROPHARMACOLOGY IN PEDIATRIC BRAIN INJURYLocation: 101 AAuthors: John Pelegano, MD; Jilda N. Vargus-Adams, MD MSc; Micah W. Baird, MDLevel: IntermediatePurpose: This course will present a review of the literature <strong>and</strong> current practices regarding the use of neuropharmacologic agents in thetreatment of children with moderate to severe acquired brain injuries (ABI).Target Audience: Physicians, physician assistants, advanced practice nurses, occupational <strong>and</strong> physiotherapists, speech <strong>and</strong> languagepathologists, nursesCourse Summary: A 2010 study estimated that the number of hospitalizations <strong>for</strong> Traumatic Brain Injury in children ages 0 -14 years wasjust over 35,000 annually. Over the past several years there has been increasing use of pharmacologic agents as adjuncts to the rehabilitationof these individuals. Though most of the limited number of clinical studies that have been per<strong>for</strong>med to date have been per<strong>for</strong>med in theadult population these medications are increasingly finding their way into pediatric usage. This course will provide a review of existingliterature on this topic <strong>and</strong> provide a framework <strong>for</strong> the judicious use of these agents in clinical settings.Learning Objectives:1) To become aware of the array of neuropharmacologic agents which have been utilized to augment the rehabilitation of children withABI’s.2) To review the available literature on neuropharmacology in ABI including ratings of Level of Evidence.3) Become familiar with a clinical framework <strong>for</strong> the judicious use of these medications in children with ABI.4) Become familiar with those areas of neuropharmacology in ABI requiring further study.58<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Saturday, October 19, 20131:30 pm–3:30 pm Instructional Courses 26-38IC 35 - “IT IS MY LIFE”. SELF-MANAGEMENT PROMOTION IN ADOLESCENTS AND YOUNG ADULTS WITH CHILDHOODONSET DISABILITYLocation: 203 A&BAuthors: Wilma M. van der Slot, MD PhD; Jan Willem Gorter, MD PhD FRCPCLevel: IntermediatePurpose: This course aims to improve knowledge of age-appropriate treatment of young people with childhood onset disability. We willshare expertise from The Netherl<strong>and</strong>s <strong>and</strong> Canada on interventions to promote self-management capabilities of adolescents <strong>and</strong> youngadults with disabilities.Target Audience: Health care professionals working with youth <strong>and</strong> adults with childhood onset disabilities or interested in effectivetransition programs.Course Summary: Youth with childhood onset disabilities often experience poor healthcare <strong>and</strong> a delayed transition to adulthoodin several life areas. A key element <strong>for</strong> young people with a disability is to learn how to self-manage their health <strong>and</strong> their life. In thepresentation of The Netherl<strong>and</strong>s we will share our experience with a modular transition program with a special focus on self-management<strong>and</strong> autonomy. We will present our novel intervention ‘Manage Your Life’, which provides training of self-management skills in youngadults <strong>and</strong> the Rotterdam Transition Profile (RTP). The Canadian presentation will draw on the ongoing 4-year Transition to Adulthood withCyber Guide Evaluation (TRACE) study that entails innovative transition resources <strong>for</strong> youth with chronic health conditions. The TRACEstudy investigates the use of two transition resources designed to promote self-care management: the Youth KIT© <strong>and</strong> an online TransitionCoordinator.Learning Objectives:1) To learn about models of transitional care in The Netherl<strong>and</strong>s <strong>and</strong> in Canada.2) To learn methods to promote self-management of young people with disabilities.3) Illustrate the application of the RTP <strong>for</strong> goal setting.4) To learn from lived experiences of youth <strong>and</strong> caregivers.IC 36 - THE CVI RANGE: AN ASSESSMENT OF FUNCTIONAL VISION IN CHILDREN WHO HAVE CORTICAL VISUALIMPAIRMENTLocation: 202 BAuthors: Christine A. Roman, PhD; Alan Lantzy, MDLevel: IntermediatePurpose: The purpose of this course is to provide in<strong>for</strong>mation <strong>and</strong> procedures <strong>for</strong> conducting The CVI Range; a reliable <strong>and</strong> valid evaluationthat determines the degree of affect of CVI in individuals 6 months- 21 years of age.Target Audience: Pediatric medical providers, therapists <strong>and</strong> parentsCourse Summary: This course will provide content that will enable participants to learn the principles <strong>and</strong> procedures <strong>for</strong> conductingThe CVI Range. The CVI Range (Roman, 2007), is a functional vision assessment used to determine the degree of affect of cortical visualimpairment. The CVI Range results place the individual’s level of CVI on a 0-10 scale <strong>and</strong> that numeric range can also be used to guideintervention strategies. The presentation will include observation, interview <strong>and</strong> direct assessment methods used to obtain the range score.The CVI Range is designed to investigate the unique visual <strong>and</strong> behavioral characteristics associated with CVI. These characteristics are thedefining elements used to describe <strong>and</strong> define cortical visual impairment. The CVI Range is a valid <strong>and</strong> reliable assessment (Newcomb,2010) <strong>and</strong> produces stable in<strong>for</strong>mation about visual functioning. Improvements in the functional vision of individuals with cortical visualimpairment is expected to improve; The CVI Range provides a consistent method to monitor improvements <strong>and</strong> to guide interventionstrategies to facilitate future improvements. This presentation will present results of several studies that have evaluated the validity of TheCVI Range <strong>and</strong> use of The CVI Range in clinical <strong>and</strong> educational settings. Video sample of individuals conducting The CVI Range will be usedin this Instructional Course. Participants will be provided with an opportunity to complete <strong>and</strong> score The CVI Range via video assessmentexperience.Learning Objectives:1) Participants will be able to identify the unique visual <strong>and</strong> behavioral characteristics associated with CVI.2) Participants will be able to conduct assessment techniques associated with use of The CVI Range.3) Participants will be able to determine the level of CVI across a range from little or no visual functioning (score of zero) to near agetypicalvisual functioning (score of 10).4) Participants will be able to increase underst<strong>and</strong>ing of the research associated with the use of The CVI Range.Saturday, October 19AACPDM 67 th Annual Meeting • Research & Practice 59


Saturday, October 19, 20131:30 pm–3:30 pm Instructional Courses 26-38IC 37 - THE FRAMEWORK OF MOVEMENT: UPDATING THE EVIDENCE ON ANTICIPATORY POSTURAL CONTROL INCHILDREN WITH CEREBRAL PALSY AND IMPLICATIONS FOR PRACTICELocation: 201 C&DAuthors: Gay L. Girolami, PT PhD; Deborah Gaebler-Spira, MDLevel: IntermediatePurpose: This instructional course is designed to review the importance of postural control <strong>for</strong> function <strong>and</strong> participation <strong>and</strong> to updatethe evidence on the internal <strong>and</strong> external actions which elicit the need <strong>for</strong> feed <strong>for</strong>ward (anticipatory) postural control <strong>and</strong> to presentapplications <strong>for</strong> clinical practice.Target Audience: Physical therapists, occupational therapists, physiatrists, pediatricians, orthopedic surgeonsCourse Summary: This instructional course will describe the importance of postural control <strong>and</strong> the prognostic implications <strong>for</strong>participation <strong>for</strong> children with cerebral palsy (CP). A review of the recent evidence on anticipatory postural adjustments (APAs) in childrenwith typical development <strong>and</strong> CP will deepen the participants’ underst<strong>and</strong>ing of postural control. Application of the research evidence toclinical practice <strong>and</strong> ideas <strong>for</strong> treatment based on the research will also be presented.Learning Objectives:1) The participants will be able to describe the importance of postural control <strong>and</strong> the prognostic implications <strong>for</strong> function <strong>and</strong>participation in children with CP.2) The participants will be able to explain how impaired postural control can impact all aspects of the ICF model.3) The participants will be able to discuss activity <strong>and</strong> participation implications of altered APAs <strong>and</strong> strategies to improve these posturalmechanisms in children with CP.4) Based on the evidence presented, the participants will be able to design treatment strategies addressing deficits in feed <strong>for</strong>wardpostural control in infants <strong>and</strong> children with neurological conditions.Saturday, October 19IC 38 - FITNESS - FUN - FRIENDS - THE POTENTIAL OF ADAPTED PHYSICAL ACTIVITYLocation: 203 DAuthors: Tor Erik H. Nyquist, Master; Reidun Jahnsen, PT PhD; Astrid J. Nyquist, PhDLevel: IntermediatePurpose: This course will look at potential benefits to persons with disabilities by being introduced to/participating in adapted physicalactivities, like; enhancement of basic skills, fitness, empowerment <strong>and</strong> motivation <strong>for</strong> “Active Living.”Target Audience: Multidisciplinary - anyone with interest in adapted physical activityCourse Summary: The course is mainly based on experiences from Beitostølen Healthsport Center (BHC). BHC is a pioneer institutionwithin rehabilitation in Norway, recognized as an official part of the national specialist health service system in physical medicine <strong>and</strong>rehabilitation. Over a long period of time there has been research cooperation with the Norwegian School of Sport Sciences. A result ofthis cooperation are two PhD dissertations with the themes “Physical Activity <strong>and</strong> Motivation in young adults with a physical disability”(Saebu 2011) <strong>and</strong> “I can participate! Children with disabilities <strong>and</strong> participation in physical activity - a mixed methods study in a habilitationcontext” (Nyquist 2012). Earlier research at BHC resulted in the program: “The Local Environment Model” (Nyquist 2007), focusing on transferof learned skills to the home environment. This model is implemented in the programs at BHC <strong>and</strong> are made use of by professionals <strong>and</strong>families around the country in cooperation with BHC.Learning Objectives:1) To learn about different programs at BHC with the purpose of enhancing learning <strong>and</strong> motivation of children with disabilities to activelyparticipate in physical activities.2) Clinic - research <strong>and</strong> return. To discuss how systematic clinical work can become a source <strong>for</strong> research, which can generate knowledgethat can be brought back to the clinic.3) To discuss certain instruments that can document participation, which is the ultimate goal of a stay at BHC.4) To reflect upon, <strong>and</strong> discuss, topics related to the presentations <strong>and</strong> own experiences.60<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Fred P. Sage AwardWinner of the 2013 Fred P. Sage AwardA New Media Educational Program on Musculoskeletal Ultrasound to Improve Quality of Care in Children with <strong>Cerebral</strong> <strong>Palsy</strong> - web based program.http://www.munichultrasoundcourse.com/A. Sebastian Schroeder, MD; Steffen Beweck, MD; Urban Fietzek, MD; Florian Heinen, Prof., MDHonorable Mentions to the following submissions:Normal <strong>and</strong> Atypical H<strong>and</strong> Prefences : Part 1: Emerging <strong>and</strong> Mature H<strong>and</strong> Preferences <strong>and</strong> Congruencies. Part 2: Factors influencing h<strong>and</strong> prefencesin persons with disabilities - CD based program.Rhoda P Erhardt, MS, OTR/L, FAOTAWheelchair based exercises <strong>for</strong> people with ostengenesis imperfecta DVDFrances Baratta-Ziska, BS, PT, MS, PCS, Cathleen Raggio, MDPositioning your baby – DVD based programJan Lawrence, PT62<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Scientific PostersSP1 - REDUCTION IN THALAMIC VOLUME IN CONGENITAL HEMIPLEGIASimon Scheck, BSc MBBS scholar; Kerstin Panneck, BSc; Roslyn N. Boyd, PhD PT; Stephen Rose, PhD PhysicsSP2 - ADULTS WITH CEREBRAL PALSY: INDEPENDENT LIVING FACTORS AND PERCEIVED QUALITY OF LIFEEunice Y. Shen, PhD DPT; Darcy Umphred, PhD; Jane K. Sweeney, PhD; Kim Nixon-Cave, PhDSP3 - NEONATAL MICROSTRUCTURAL DEVELOPMENT OF THE CORPUS CALLOSUM AND GAIT TEMPORAL-SPATIALPARAMETERS IN VERY LOW BIRTH WEIGHT PRETERM CHILDREN AT 18-20 MONTHS: A DIFFUSION IMAGING STUDYKatelyn Cahill-Rowley, MS; Rachel Vassar, BA; Megan Thompson, BS; Corey Gatewood, BA; Dong-Wook Rha, MD; Naama Barnea-Goraly, MD; DavidK. Stevenson, MD; Jessica Rose, PhDSP4 - STRETCHED SARCOMERES MAY CONTRIBUTE TO CONTRACTURE IN CEREBRAL PALSYMargie Mathewson, MS; Samuel Ward, PT PhD; Henry Chambers, MD; Richard Lieber, PhDSP5 - NEONATAL MICROSTRUCTURAL DEVELOPMENT OF THE LEFT SUPERIOR TEMPORAL GYRUS AND COGNITIVEDEVELOPMENT IN VERY LOW BIRTH WEIGHT PRETERM CHILDREN AT 18-20 MONTHS: A DIFFUSION IMAGING STUDYRachel Vassar, BA; Naama Barnea-Goraly, MD; Katelyn Cahill-Rowley, MA; David K. Stevenson, MD; Susan Hintz, MD; Jessica Rose, PhDSP6 - RELATIONSHIP BETWEEN EXECUTIVE FUNCTION AND SENSORY/MOTOR FUNCTIONING IN CHILDREN ANDADOLESCENTS WITH CONGENITAL HEMIPLEGIAStephanie Ross, BS (Hons) MSc; Koa Whittingham, PhD BS (Hons) BA; Roslyn N. Boyd, PhD PTSP7 - QUANTITATIVE MUSCLE ULTRASOUND IN CHILDREN WITH SPASTIC CEREBRAL PALSYChristian A. Pitcher, BSc(Hons); Catherine M. Elliott, PhD; Jane Valentine, FRACP FAFRM; Fausto Antonio Panizzolo, MEng; Katherine Stannage, MBBS;Siobhan Reid, PhDSP8 - CONSTRAINT INDUCED MOVEMENT THERAPY MEDIATES RECOVERY OF NORMAL CORTICAL ACTIVATION INCHILDREN WITH CEREBRAL PALSYMario I. Romero, PhD; Fenghua Tian, PhD; Bilal Khan, MS; Angela Shierk, OT; Heather Roberts, OT MHA; Linsley B. Smith, RN BSN; Nancy J. Clegg, RN,CNS PhD; George Alex<strong>and</strong>rakis, PhD; Hanli Liu, PhD; Mauricio R. Delgado, MD FRCPC FAANSP9 - LANGUAGE DELAY, SOCIOECONOMIC DISADVANTAGE AND PARTICIPATION IN EARLY INTERVENTION SERVICESJanet Patterson, MD; Sarah A. Sobotka, MD MSCP; Kruti Acharya, MD; Dana L. Suskind, MD; Shannon G. Sapolich, BA; Kristin R. Leffel, BS; ElizabethSuskind, BS; Michael Msall, MDSP10 - HIP JOINT KINETICS AS CLINICALLY MEANINGFUL OUTCOMES FOR THERAPEUTIC TRIALS IN 4-6 YEAR OLD BOYSWITH DUCHENNE MUSCULAR DYSTROPHYKent Heberer, MS; Eileen G. Fowler, PhD PT; Loretta Staudt, MS PT; Susan Sienko Thomas, MA; Cathleen Buckon, MS; Anita Bagley, PhD MPH; Craig M.McDonald, MD; Michael Sussman, MDSP11 - KNEE AND ANKLE ROBOTIC MOTOR REHABILITATION IN CHILDREN WITH CEREBRAL PALSYKai Chen, PhD; Charley Liu, BS; Yupeng Ren, MS; Chung-Yong Yang, MS; Lin Liu, MD; Liang Wang, MS; Deborah Gaebler-Spira, MD; Liqun Zhang, PhDSP12 - INTERVENTION TO ADVANCE POSTURAL TRANSITIONS IN YOUNG CHILDREN WITH NEUROMOTOR DISABILITIESAND RESULTING EFFECTS ON TRUNK AND PELVIC MOVEMENTSwati M. Surkar, PT; Max J. Kurz, PhD.; S<strong>and</strong>ra Willette, M. S. P. T.; Lynne Capoun, M.S. P.T.; Xin Zhang, M. D.; Regina Harbourne, PhDSP13 - ACCURATELY MEASURING OBESITY IN SPINA BIFIDAAnnie Kennelly, BA; Sue Mukherjee, MDSP14 - CENTRAL ADIPOSITY IS AN INDEPENDENT RISK FACTOR FOR LOW VITAMIN D AMONG ADULTS WITH CEREBRALPALSYMark Peterson, PhD.; Heidi J. Haapala, MD; Edward A. Hurvitz, MDSP15 - RESILIENCE AMONG FAMILY CAREGIVERS OF CHILDREN WITH SEVERE NEURODISABILITIES REQUIRING CHRONICRESPIRATORY MANAGEMENTTimothy Elliott, PhD; Robert H. Warren, MD; Ryan Blucker, PhD; Jack Berry, PhD; Jessica Chang, BA; Ann Marie Warren, PhDSP16 - PREVALENCE AND CHARACTERISTICS OF POSTNEONATAL CEREBRAL PALSY, METROPOLITAN ATLANTA, 1991-2008Deborah Christensen, PhD; Marshalyn Yeargin-Allsopp, MD; Kim Van Naarden Braun, PhD; Nancy S. Doernberg, BA; Georgina Peacock, MDSP17 - THE EFFECTS OF INTENSE LOCOMOTOR AEROBIC EXERCISE AND COGNITIVE LOAD ON POSTURAL STABILITYDURING STANDING FOR CHILDREN WITH CEREBRAL PALSYClaire Gane; Sophie-Krystale Dufour; Jan Andrysek, PhD PEng; Laurent J. Bouyer, PhD; Brad<strong>for</strong>d J. McFadyen, PhD; Julien I. Voisin, PhD erg; Désirée B.Maltais, PhD phtSP18 - A STUDY OF CHOREA IN CHILDRENDebabrata Ghosh, MD, DM; Stephen Sreshta, BA; Kohila Velayudam, MDAACPDM 67 th Annual Meeting • Research & Practice 63


Scientific PostersSP19 - COMPENSATORY GAIT PATTERNS SECONDARY TO ISOLATED ANKLE EQUINUSLisa C. Drefus, PT DPT; David Scher, MD; Jocelyn F. Hafer, BS MSSP20 - CHANGES IN ANKLE JOINT STIFFNESS FOLLOWING INTELLIGENT STRETCHING AND ACTIVE MOVEMENT TRAININGDavid J. Fogelman, MD; Paul Uhing; Lin Liu, MS; Kai Chen, PhD; Sang Hoon Kang, PhD; Yupeng Ren, MS; Liang Wang, MS; Charley Liu, BS; DeborahGaebler-Spira, MD; Liqun Zhang, PhDSP21 - SAFETY OF TRANSCRANIAL DIRECT CURRENT STIMULATION IN PEDIATRIC HEMIPARESIS: DETERMINING THEOPTIMAL STIMULATION SITEBernadette T. Gillick, PhD MSPT PT; Tim Feyma, MD; Jeremiah Menk, MS; Linda E. Krach, MDSP22 - CONCURRENT VALIDITY OF THE STEPWATCH AND ACTIGRAPH® IN AMBULANT CHILDREN WITH CEREBRAL PALSYEmma M. McGuire, PT; Louise E. Mitchell, PT MHSt; Roslyn N. Boyd, PhD PT MBioMechSP23 - PRIAPISM AS A SIGN OF INTRATHECAL BACLOFEN WITHDRAWAL: A CASE SERIESNanette Aldahondo, MD; Linda E. Krach, MDSP24 - ED USE AMONG CHILDREN WITH COMPLEX DISABILITIES AND TRACHEOSTOMY-DEPENDENCIESNancy Murphy, MD; Jeremy Meier, MD; William Gershan, MD; Harlan Muntz, MD; Caroline Hagedorn, PNP; Christine Hartling, RRT; Karen Valentine, MSSP25 - PHYSICIAN-PATIENT COMMUNICATION IS A KEY FACTOR ASSOCIATED WITH MALPRACTICE LITIGATION INNEONATAL BRACHIAL PLEXUS PALSYJoseph Domino, BS; Connie McGovern, BA; Kate Wan-Chu Chang, MA; Lynda Yang, MD PhDSP26 - SWALLOWING FUNCTION FOR PEDIATRIC PATIENTS WITH A TRACHEOTOMY TUBERima I. Birutis, MA; Susan Brady, MA; Mary Keen, MD; Michele Wesling, MSSP27 - SOMATOSENSORY DEFICITS IN CHILDREN WITH NEONATAL BRACHIAL PLEXUS PALSYLauren J. Phillips, BS; Cory W. Wernimont, MPT; Kathy L. Kern, MS; Virginia Nelson, MD MPH; Lynda Yang, MD PhD; Susan H. Brown, PhDSP28 - INTERVENTION TO ADVANCE POSTURAL TRANSITIONS AND PROBLEM SOLVING ABILITY IN CHILDREN WITHCEREBRAL PALSYXin Zhang, DPT MD; Swati M. Surkar, PhD PT; S<strong>and</strong>ra Willette, PT MS PCS; Max J. Kurz, PhD; Lynne Capoun, PT MS PCS; Regina Harbourne, PhD PT PCSSP29 - PAIN REDUCTION FOLLOWING CEREBRAL PALSY SURGERYDavid Yngve, MD; Matthew De La Cruz, BSSP30 - PARENT PERCEPTIONS OF THE QUALITY OF LIFE (QOL) AND HEALTHCARE SATISFACTION FOR THEIR CHILDRENWITH COMPLEX CHRONIC CONDITIONS (CCCS)Kathy Garcia, MD; Karen Valentine, MS; Caroline Hagedorn, PNP; Karen Buchi, MD; Nancy Murphy, MDSP31 - CHILD GENDER AND PARENTAL NURTURANCE IN CHILDREN WITH AND WITHOUT A NEURODEVELOPMENTALCONDITIONDanielle N. Shapiro, PhD; Seth Warschausky, PhDSP32 - EARLY MOTOR TRAJECTORIES IN VERY LOW BIRTH WEIGHT PREMATURE INFANTS: USE OF DIFFUSION TENSORIMAGING, GENERAL MOVEMENT ASSESSMENT AND THE TEST OF INFANT MOTOR PERFORMANCEColleen Peyton, PT DPT PCS; Lars Adde, PT PhD; Edward Yang, MD PhD; Jessica Piantino, MD; Toril Fjørtoft, PT MSc; Michael Schreiber, MD; MichaelMsall, MDSP33 - DO THE STATE- TRAIT ANXIETY LEVELS IN THE MOTHERS OF CHILDREN WITH CEREBRAL PALSY DIFFER COMPAREDWITH MOTHERS OF HEALTHY CHILDREN?Pelin Pistav-Akmese, M.Sc; Akmer Mutlu, PT PhDSP34 - EXERCISE, LIFE SATISFACTION AND DEPRESSIVE SYMPTOMS AMONG INDIVIDUALS WITH PEDIATRIC-ONSETSPINAL CORD INJURYAm<strong>and</strong>a Ward, M.A.; Kathy Zebracki, PhD.; Lawrence C. Vogel, MDSP35 - SCHOOL BASED PHYSICAL THERAPISTS PERCEPTIONS OF SCHOOL BASED PHYSICAL THERAPY PRACTICE: AN EX-POST FACTO INTERPRETIVE PHENOMENOLOGICAL STUDYSheryl L. Holt, MS PhD/ABD; Janice Kuperstein, PhDSP36 - OBESITY-RELATED HEALTH PROMOTION INTERVENTIONS FOR CHILDREN AND YOUNG PEOPLE WITH PHYSICALDISABILITIES: STATE OF THE EVIDENCEAmy McPherson, PhD; Rebecca Keith, BASc; Judy Swift, PhDSP37 - BILATERAL SENSORY AND MOTOR ASPECTS OF HAND FUNCTION IN PATIENTS WITH CHILDHOOD-ONSETHEMIDYSTONIASahana N. Kukke, PhD; Ana Carolina de Campos, PT PhD; Lindsey Curatalo, MS; Laurie Ohlrich, PT; Katharine Alter, MD; Mark Hallett, MD; DianeDamiano, PhD PT64<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Scientific PostersSP38 - IMPACT OF PRETERM VERSUS TERM BIRTH ON COMORBIDITIES AND FUNCTIONAL OUTCOMES IN PRESCHOOLAGE CHILDREN WITH CEREBRAL PALSYEvyn Arnfield, BA; Rachel Jordan, BA; Laura Pareezer, BA; Robert Ware, PhD; Roslyn N. Boyd, PhD PTSP39 - LOW LUMBAR SPINE BONE DENSITY IN PREMENOPAUSAL WOMEN AND MEN UNDER 50 YEARS OF AGE WITHCEREBRAL PALSY IS RELATED TO IMMOBILITYEileen G. Fowler, PhD, PT; S<strong>and</strong>hya Rao, PT; Aurelia Nattiv, MD; Kent Heberer, MS; William L. Oppenheim, MDSP40 - MOTOR LEARNING OF A BIMANUAL TASK IN CHILDREN WITH UNILATERAL CEREBRAL PALSYYa Ching Hung, EdD; Andrew Gordon, PhDSP41 - WHAT SERVICES DO CHILDREN WITH A DUAL DIAGNOSIS OF DOWN SYNDROME AND AUTISM RECEIVE?Kathryn K. Ostermaier, MD; Carl D. Tapia, MD MPH; Adiaha Franklin, MD MPH; Robert G. Voigt, MDSP42 - TEST RETEST REPRODUCIBILITY AND PARENT-CHILD CONCORDANCE OF THE DIMENSIONS OF MASTERYQUESTIONNAIRE IN SCHOOL AGED CHILDREN WITH CONGENITAL HEMIPLEGIALaura Miller, BSc (OT)(Hons) MHSM; Jenny Ziviani, PhD MEd BA BSc(OT); Kerry Marnane, BSc (OT)(Hons); Roslyn N. Boyd, PhD PTSP43 - RELIABILITY AND RESPONSIVENESS OF THE GROSS MOTOR FUNCTION MEASURE-88 IN CHILDREN WITHCEREBRAL PALSYMinYoung Kim, PhD; Jooyeon Ko, PhDSP44 - LOWER EXTREMITY MIRRORING DURING SELECTIVE VOLUNTARY MOTOR CONTROL ASSESSMENT IN PATIENTSWITH SPASTIC CEREBRAL PALSYLoretta Staudt, MS, PT; Marcia B. Greenberg, MS PT; Kent Heberer, MS; William L. Oppenheim, MD; Eileen G. Fowler, PT PhDSP45 - LONG TERM PROGNOSIS OF OBSTETRIC BRACHIAL PLEXUS PALSYAnn-Kristin G. Elvrum, OT/PhD-student; Gunn Hulleberg, MD; Merethe Br<strong>and</strong>al, PT; Torstein Vik, PhDSP46 - MOTOR SEQUENCE LEARNING IN CHILDREN WITH SPASTIC CEREBRAL PALSY: DIFFERENTIATION BETWEENGENERAL SKILL LEARNING AND IMPLICIT SEQUENCE LEARNINGTamar Silberg, PhD; Moran Gofer-Levi, MA; Amichai Brezner, MD; Eli Vakil, PhDSP47 - SEGMENTAL TRUNK ACQUISITION AND REACHING IN TYPICALLY DEVELOPING INFANTSJaya Rachwani, PT. MS.; Victor Santamaria, PT MS; S<strong>and</strong>ra Saavedra, PT PhD; Staci Wood, Student; Francine Porter, MS.; Marjorie Woollacott, PhDSP48 - THE EFFECT OF TREATMENT OF SLEEP APNEA ON DEVELOPMENTAL OUTCOMES AMONG CHILDREN WITH DOWNSYNDROMEKathryn K. Ostermaier, MD; Carl D. Tapia, MD MPH; Robert G. Voigt, MDSP49 - EFFECTS OF HOME-BASED LOCOMOTOR TREADMILL TRAINING ON GROSS MOTOR FUNCTION IN YOUNGCHILDREN WITH CEREBRAL PALSYKatrin Mattern-Baxter, PT DPT PCS; Stefani McNeil, MPT PCS; Jim K. Mansoor, PhDSP50 - IMPACT OF CARING FOR CHILDREN WITH MEDICAL COMPLEXITY AND FRAGILITY DUE TO MULTIPLE CHRONICCONDITIONS ON FAMILY LIFECarmen G. M<strong>and</strong>ic, MPH, ScD; Sarah Johaningsmeir, BA; Timothy E. Corden, MD; Alex<strong>and</strong>er L. Okun, MD; Alison Earle, PhD; Dolores Acevedo-Garcia,PhD, MPA-URP; John Gordon, MDSP51 - LONG-TERM OUTCOMES AFTER SELECTIVE DORSAL RHIZOTOMYNanette Aldahondo, MD; Linda E. Krach, MD; Joyce Trost, PT; Tom Novacheck, MD; Mary Dunn, MD; Michael Schwartz, PhDSP52 - AN AUSTRALIAN POPULATION STUDY OF FACTORS ASSOCIATED WITH MRI PATTERNS IN CEREBRAL PALSYSusan M. Reid, BAppSc MClinEpi PhD; Charuta Dagia, MBBS MD FRCR; Michael R. Ditchfield, MBBS MD FRANZCR; John B. Carlin, BSc(Hons) PhD;Dinah Reddihough, MD BSc FRACP FAFRMSP53 - AGREEMENT BETWEEN PARENTS AND CLINICIANS FOR THE COMMUNICATION FUNCTION CLASSIFICATIONSYSTEM (CFCS) OF CHILDREN WITH CEREBRAL PALSYAkmer Mutlu, PT, PhD; Ozgun Kaya-Kara, PT, MSc; Mintaze Kerem-Gunel, PT PhD; Ayse Livanelioglu, PT PhD; Sevilay Karahan, PhD; Mary Jo C.Hidecker, PhDSP54 - THE EFFECTS OF MEDICAL COMPLEXITY ON THE DEVELOPMENT OF FIDGETY MOVEMENTS AND FEASIBILITYOF SCREENING UTILIZING THE GENERAL MOVEMENT ASSESSMENT FOR NEONATAL AND CARDIAC INTENSIVE CAREINPATIENTS AND GRADUATESMary Weck, PT; Lars Adde, PT PHD; Ragnhild Stoen, MD; Toril Fjortoft, PT MSc; Lynn Boswell, PT MS; Raye-Ann De Regnier, MDSP55 - MUSCLE FATIGUE DURING REPETITIVE MAXIMAL VOLUNTARY CONTRACTIONS; A COMPARISON BETWEENCHILDREN WITH CEREBRAL PALSY, TYPICALLY DEVELOPING CHILDREN AND YOUNG HEALTHY ADULTSMaaike M Eken, MSc; Annet Dallmeijer, PhD; Han Houdijk, PhD; Caroline Doorenbosch, PhDAACPDM 67 th Annual Meeting • Research & Practice 65


Scientific PostersSP56 - EVALUATION OF PELVIC OBLIQUITY: AN IMPORTANT CONTRIBUTOR TO SEATING DIFFICULTY IN PATIENTS WITHNEUROMUSCULAR SCOLIOSISJoel Torretti, MD; Rodney Brenneman, MD; M. W. Shrader, MD; Vernon Chinchilli, PhD; Kelly V<strong>and</strong>erhave, MD; Lee Segal, MD; C<strong>and</strong>ice Welsh, BSNSP57 - QUEENSLAND CEREBRAL PALSY REGISTER - SUCCESSFUL CONSENT-BASED ASCERTAINMENT OF A 10-YEARCOHORTMichael deLacy, BS MS; Christalla Louca, BS; Leanne Johnston, BS PhDSP58 - “HE DOES NOT SEE HIMSELF AS BEING DIFFERENT”: A QUALITATIVE ANALYSIS OF CHILDREN AND CAREGIVERSREPORTS ON RELEVANT AREAS OF FUNCTIONING IN CP USING THE ICF-CY CODING SYSTEMVeronica Schiariti, MD MHSc PhD(C); Louise Mâsse, PhD; Anne Klassen, PhD; Karen Sauve, MSc; Alarcos Cieza, PhD; Maureen O’Donnell, MDSP59 - ACETABULAR REMODELING AFTER VARUS DEROTATIONAL OSTEOTOMY IN CEREBRAL PALSY: DO WE NEED TO DOTHE PELVIS?Benjamin J. Shore, MD FRCSC; Dustin Powell, MS; Patricia Miller, MS; Travis Matheney, MD; Brian Snyder, MD PhDSP60 - MOTOR LEARNING IN VIRTUAL REALITY AS A MARKER FOR SPASTICITY AND DYSTONIACitlali Lopez-Ortiz, PhD MA; Juila M. Simkowski, BS; Khushboo Doshi, BS; Wendolyn Gomez, BS; Jennifer Warnick, BS; Deborah Gaebler-Spira, MDSP61 - BRAIN LESIONS RELATE TO GAIT PATHOLOGY IN CHILDREN WITH UNILATERAL AND BILATERAL CEREBRAL PALSYLeen Van Gestel, PhD; Els Ortibus, PhD MD; Pieter Meyns, PhD; Paul De Cock, PhD MD; Stefan Sunaert, PhD MD; Andrea Guzzetta, PhD MD; ErwinAertbeliën, PhD; Hilde Feys, PhD; Jaak Duysens, PhD MD; Kaat Desloovere, PhDSP62 - HOME-BASED BIMANUAL TRAINING FOR YOUNG CHILDREN WITH HEMIPLEGIA: IS IT FEASIBLE TO TRAINCAREGIVERS AS INTERVENTIONISTS?Claudio L. Ferre, MA; Ya Ching Hung, PhD; Marina Br<strong>and</strong>ão, PhD; Jason Carmel, MD PhD; Andrew Gordon, PhDSP63 - IMPROVING CHILD QUALITY OF LIFE AND PARENT PSYCHOLOGICAL FUNCTIONING WITH A PARENTINGINTERVENTION INCORPORARTING ACCEPTANCE AND COMMITMENT THERAPYKoa Whittingham, PhD; Matthew S<strong>and</strong>ers, PhD; Lynne McKinlay, MD; Roslyn N. Boyd, PhD PTSP64 - SPORADIC FIDGETY MOVEMENTS AND ABNORMAL MOTOR REPERTOIRE IS COMMON IN EXTREMELY PRETERMBORN INFANTSToril Fjørtoft, MSc; Ragnhild Støen, PhD; R<strong>and</strong>i Vågen, PT; Gunn Kristin Øberg, PhD; Cathrine Labori, PT; Nils Thomas Sognstad, PhD; Inger ElisabethSilberg, MD; Marianne Loennecken, PT; Unn Inger Møinicken, PT; Lars Adde, PT PhDSP65 - SELF-REPORTED MENTAL HEALTH IN CHILDREN WITH CEREBRAL PALSY 8-18 YEARS OLD AND ASSOCIATIONSWITH RECURRENT MUSCULOSKELETAL PAINKjersti Ramstad, PhD; Reidun Jahnsen, PhD; Trond H. Diseth, PhDSP66 - IS TENDON TRANSFER SURGERY IN UPPER EXTREMITY CEREBRAL PALSY MORE EFFECTIVE THAN BOTULINUMTOXIN INJECTIONS OR REGULAR ONGOING THERAPY?Anita Bagley, PhD, MPH; Michelle James, MD; Ann Van Heest, MD; Wendy Tomhave, OTR/LSP67 - COMPARISON OF BONE DENSITY AND QUALITY OF LIFE IN PREPUBERTAL CHILDREN WITH AND WITHOUTCEREBRAL PALSYChristine M. Houlihan, MD; Richard Stevenson, MD; Michelle Kuperminc, MD; Mark Conaway, PhD66<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Demonstration PostersDP1 - TRACKING RECOVERY FROM ORTHOPEDIC SURGERY IN YOUTH WITH CEREBRAL PALSY USING THE STEP WATCHAmeeka George, BS; Nancy Lennon, MPTDP2 - THE ICANFUNCTION APP - THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING APPLICATIONOlaf Kraus de Camargo, MD PhD FRCPC; Leo Godreault, BScN; Jerad Godreault, BITDP3 - INNOVATION MEETS RETRO: THE RETURN OF THE HOUSE CALL BY YOUR SIDE PEDIATRICS AT UVAJim Ogan, MDDP4 - USE OF THE FUNCTIONAL ELECTRICAL STIMULATION BIKE IN THE POST-OPERATIVE REHABILITATION OF A CHILDWITH CEREBRAL PALSYTanya M. St. John, BSc MSc MScPT; Jacqueline Purtzki, MD FRCPCDP5 - FIGHTING OSTEOPENIA WITH WHEELCHAIR BOXING: A NOVEL WAY TO BUILD A HEALTHIER SKELETONMary E. Gannotti, PT PhD; Robyn K. Fuchs, PhDDP6 - A NEW MODEL OF CARE: A NURSE PRACTITIONER LED COMPLEX CARE CLINICTessa Gresley-Jones, BScN MN, NP-PaedsDP7 - COMMUNITY SERVICE: STRUCTURED DANCE CLASS FOR CEREBRAL PALSY AFTER SCHOOLCitlali Lopez-Ortiz, PhD; Tara Egan, PT; Mary Dubon, MD; Deborah Gaebler-Spira, MDDP8 - ‘NEUROGAME’ THERAPY FOR REHABILITATION IN CHILDREN WITH CEREBRAL PALSYTorey J. Gilbertson, PT DPT PCS; Dianne Rios, OTR/L ScD; Katherine Miller, BS; Karli Gutman, BS; Hanna Prange, BS; Robert Price, MSME; Chet Moritz,PhD; Sarah W. McCoy, PT PhD FAPTADP9 - WORLDWIDE CLINICAL PROGRAMS WITH DYSPORT® (ABOBOTULINUMTOXINA) IN SPASTICITY AND FUNCTIONALIMPAIRMENTS IN CHILDREN WITH DYNAMIC EQUINUS FOOT DEFORMITY DUE TO CEREBRAL PALSYAnissa Tse, BMBS FRCSI FFPM; Philippe Picaut, Pharm D DABT; Jorge Carranza, MD; Mark Gormley, MD; Gadi Revivo, DO; Barry S. Russman, MD; AnnTilton, MD; Mauricio R. Delgado, MDDP10 - MANGEMENT OF THE PEDIATRIC PATIENT WITH NONORAL FEEDING NEEDS; IMPLEMENTING A MODEL OF CAREWendelin A. Burdo-Hartman, MD; Garey Noritz, MDDP11 - A DYNAMIC RESPONSE AFO IN THE CORRECTION OF CROUCH GAIT FOR A CHILD WITH CPMaya Evans, MD; Kimberley Zvara, MD; Xue-Cheng Liu, MD PhD; Davin Heyd, CODP12 - HONK! AN INCLUSIVE THEATRE PROGRAM FOR TYPICAL AND SPECIAL NEEDS CHILDRENM.W. Shrader, MD; Carol Shrader, BA; Steve Rodriquez, NA; Sharon Rodriquez, NA; C<strong>and</strong>ice Welsh, BSNDP13 - A CONCEPT ANALYSIS OF CONSCIOUSNESSLisa C. Letzkus, RN MSNDP14 - A SYSTEMS APPROACH TO THE DEVELOPMENT OF FEEDING SKILLS AND FEEDING DISORDERSRhoda P. Erhardt, MS OTR/L FAOTADP15 - IMPACT OF THE AFFORDABLE CARE ACT ON PEOPLE WITH CHILD-ONSET DISABILITIESRishi Agrawal, MD, MPHDP16 - ASSISTIVE TECHNOLOGY AND NEURO-DEVELOPMENTAL TREATMENT: IMPROVING FUNCTION THROUGHENHANCING MOTIVATIONJohn Damiao, MS OTR/L ATP; Jamie Clemson, PT C/NDT; Patricia Longinott, PT DPT C/NDT; Lisa Gradziel, PT DPT C/NDTDP17 - CHARACTERISTICS OF DYSPLASTIC ACETABULA IN CEREBRAL PALSY WITH THREE-DIMENSIONAL COMPUTEREVALUATION: A CASE REPORTMarek Jozwiak, MD PhD; Michal Rychlik, PhD; Po-Jung Brian Chen, MD PT; Maciej Idzior, MD PhD Bartosz J. Musielak, MDDP18 - SPORTS PARTICIPATION BY AN INDIVIDUAL WITH CERBRAL PALSY AFTER INTRATHECAL BACLOFEN PUMPPLACEMENTLouise Spierre, MD; Elise Carrigan, ARNP FNP-BC, Christine Thorogood, MDDP19 - OUTCOME IN CHILDREN WITH CEREBRAL PALSY UNDERGOING ADDUCTOR MYOTOMY: CAREGIVER RESPONSESON THE RIC CARE AND COMFORT QUESTIONNAIRECourtney M. Chapman, MS; Joanna Foley, BSN; Beverly Tann, BSN; Vineeta T. Swaroop, MD; Luciano Dias, MD; Deborah Gaebler-Spira, MDDP20 - HAITI, POSITIVE CHANGES AFTER THE EARTH QUAKE: IMPROVING THE LIVES OF ONE FAMILY-ONE VILLAGE AT ATIMEKerstin M. Sobus, MD, PT; Aubree Dell, RNDP21 - DEVELOPMENTAL TRAJECTORIES OF CHILDREN WITH CEREBRAL PALSY: THE ‘ON TRACK’ STUDYDoreen Bartlett, PT/PhD; Sarah McCoy, PT PhD; Lisa Chiarello, PT PhD; Robert Palisano, PT ScD; Lynn Jeffries, PT Phd; Alyssa LaForme Fiss, PT PhD;Steven Hanna, PhD; Jan Willem Gorter, MD PhDAACPDM 67 th Annual Meeting • Research & Practice 67


Demonstration PostersDP22 - PEDIATRIC COMPLEX CARE: AN INTEGRATED APPROACH TO UNITE HOSPITAL AND COMMUNITY BASED CAREJoanna Soscia, MN; Sherri Adams, MN; Kim Milbury, MNDP23 - THE SPECIAL NEEDS PROGRAM: A MODEL CARE COORDINATION PROGRAM AT THE CHILDREN’S HOSPITAL OFWISCONSINTera Bartelt, RN; Sarah Johaningsmeir, BA; Alex<strong>and</strong>er L. Okun, MD; Holly Colby, RN; John Gordon, MDDP24 - TRANSITION AND TELEHEALTH: WILL THE TWO “TS” EVER CROSS?S<strong>and</strong>ra Whisler, MD MS; Jennifer Benson, MD; Lourdes Vizcarra, MD; Jennifer DiTucci, RD; Adrian Rodriquez; Mario Torres, BBADP25 - THE F-WORDS IN CHILDHOOD DISABILITY: A VALUES STATEMENT FOR CHILDREN, FAMILIES AND SERVICEPROVIDERSPeter Rosenbaum, MD; Jan Willem Gorter, MD PhD; Niina Kolehmainen, PhD; Chantal C<strong>and</strong>en, PhD; Diane KayDP26 - WHEN TWO OF THE SAME DISCIPLINE ARE TREATING; CONCURRENT THERAPY IN PEDIATRIC REHABILITATIONMarilyn Wright, BscPT MEd MSc; S<strong>and</strong>y Gaik, BSc OT MEd; Kathleen Dekker, MHScDP27 - USE OF ROBOTICS IN A PEDIATRIC CONSTRAINT INDUCED MOVEMENT THERAPY PROGRAMTeressa Garcia Reidy, MS, OTR/L; Frank Pidcock, MD; Joan Carney, EdD; Erin Naber, PT DPT; Patricia Turlington, PT, PCSDP28 - PASSIVE STRETCHING AND ACTIVE STRENGTHENING THROUGH USE OF ROBOTICS, COMBINED WITHFUNCTIONAL STRENGTH TRAINING, TO IMPROVE GROSS MOTOR ABILITY IN CHILDREN DIAGNOSED WITH CEREBRALPALSY: A CLINICAL APPROACHSarah Grubich, DPT; Jessica Trenkle, DPTDP29 - POSITIONING FOR HIP HEALTH: A CLINICAL RESOURCELynore McLean, BScPT; Sonja Magnuson, MScRehabSc; Sherylin Gasior, MScOTDP30 - DELIVERING UPPER LIMB REHABILITATION FOR CHILDREN WITH UNILATERAL CEREBRAL PALSY: BARRIERS ANDENABLERSLeanne Sakzewski, PhD, OT; Jenny Ziviani, PhD OT; Roslyn N. Boyd, PhD PTDP31 - IMPLEMENTATION OF ASK ME 3 TO ENHANCE HIGH-RISK PATIENTS’ KNOWLEDGE AND CURIOSITY OF THEIRSPECIFIC DIAGNOSES AND AT-HOME CARE PLANSKim Marben, MSN, RN, CPNDP32 - HEALTHLINK, A CURRICULUM FOR NURSESKathy K. Pagliuca, RNDP33 - CREATING A TOOL TO PROMOTE ENABLING AND EMPOWERMENT OF FAMILIES IN A PEDIATRIC REHABILITATIONCENTERLouise Koclas, MD; Sylvie Thibault, College; Martine Paternotte, BScDP34 - G AND GJS: A MULTI-DISCIPLINARY ENTERAL FEEDING PROGRAMJoanna Soscia, MN; Sherri Adams, MN; Kim Milbury, MNDP35 - TRAINING WITH THE AMADEO HAND ROBOT IN CHILDREN WITH HEMIPLEGIA: A PILOT STUDYLauri Bishop, DPT; Andrew Gordon, PhD; Heakyung Kim, MDDP36 - A STRIDE SIMULATOR. A DEVELOPMENT OF A DEVICE IN LINE WITH LATEST KNOWLEDGEBjorg Gudjonsdottir, MS; Haraldur Thorkelsson, BSDP37 - USE OF VIDEO-BASED MODELING IN OCCUPATIONAL THERAPY FOR CHILDREN WITH DEVELOPMENTALDISABILITIESKristen Brevoort, MOT OTR/L; Jennifer Schmit, PhD DPTDP38 - OFF-AXIS ELLIPTICAL TRAINING TO REDUCE GAIT ABNORMALITIES IN CHILDREN WITH CEREBRAL PALSYLiang-Ching Tsai, PhD; Yupeng Ren, MS; Liang Wang, MS; Song Joo Lee, MS; Sang Hoon Kang, PhD; Deborah Gaebler-Spira, MD; Liqun Zhang, PhDDP39 - CAN PATTERNED MULTI-CHANNEL ELECTRICAL STIMULATION BE SIMULTANEOUSLY DELIVERED DURINGROBOTIC GAIT TRAINING IN CHILDREN WITH CEREBRAL PALSY?Jilda N. Vargus-Adams, MD; Jennifer Schmit, DPT PhD; Eryn Olesinski; Amy Bailes, PT PCSDP40 - SIT UP, GET UP AND GO: ESTABLISHING A PROGRESSIVE MOBILITY PROGRAMLisa C. Letzkus, MSN68<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


AACPDM Past <strong>and</strong> Future Presidents1948 Winthrop D. Phelps1949 George G. Deaver1950 Earl R. Carlson1951 Bronson Crothers1952 Leslie B. Hohman1953 Arnold, Gesell1954 Meyer A. Perlstein1955 Lenox D. Baker1956 Margaret H. Jones Kanaar1957 Nicholson J. Eastman1958 William T. Green1959 Alvin J. Ingram1960 Raymond R. Rembolt1961 G.W.N. Eggers1962 Jessie Wright1963 Russell Meyers1964 Eric Denhoff1965 Chester A. Swinyard1966 Samuel B. Thompson1967 Sedgwick Mead1968 William Berenberg1969 J. William Hillman1970 Harriet E. Gillette1971 Henry H. Banks1972 Lawrence T. Taft1973 Robert L. Samilson1974 D. Elliott O’Reilly1975 Hans Zellweger1976 Eugene E. Bleck1977 Leon Greenspan1978 Gerald Solomons1979 Hyman R. Soboloff1980 Leonard F. Bender1981 Fred P. Sage1982 Paul H. Pearson1983 Harold B. Levy1984 David H. Sutherl<strong>and</strong>1985 Robert V. Groover1986 Alfred L. Scherzer1987 Robert P. Christopher1988 Leon Root1989 Alfred Healy1990 Gayle G. Arnold1991 James R. Gage1992 John F. McLaughlin1993 Michael A. Alex<strong>and</strong>er1994 Helen M. Horstmann1995 Charlene Butler1996 Robert K. Rosenthal1997 Peter L. Rosenbaum1998 Peter L. Rosenbaum1999 Dennis C. Harper2000 John F. Mantovani2001 Michael D. Sussman2002 Michael D. Sussman2003 James A. Blackman2004 Robert W. Armstrong2005 Luciano S. Dias2006 Barry S. Russman2007 William L. Oppenheim2008 Diane L. Damiano2009 Hank Chambers2010 Deborah Gaebler-Spira2011 Scott Hoffinger2012 Joseph Dutkowsky2013 Maureen O’Donnell2014 Richard Stevenson2015 Darcy Fehlings2016 Eileen FowlerAACPDM 67 th Annual Meeting • Research & Practice 69


SponsorsThe <strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine is grateful to the following organizations <strong>for</strong> theirgenerous support of the 67th Annual Meeting in 2013:Premium Level SponsorPlatinum Level SponsorGold Level SponsorSilver Level SponsorsBronze Level SponsorsDr. <strong>and</strong> Mrs. William L. OppenheimEssential SupportersCathleen Lyle Murray FoundationDr. Hank Chambers <strong>and</strong> FamilyDr. Maureen O’Donnell70<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Exhibiting <strong>and</strong> Sponsoring OrganiziationsName Website DescriptionAllard USA www.allardusa.com Providing innovative products including SWASH® (managementof sitting instability <strong>and</strong> scissoring gait), the ToeOFF® Family ofProducts (dynamic response carbon composite AFO’s - nowavailable in pediatric sizes!) COMBO (<strong>for</strong> management of footdropcombined with genu-recurvatum), CHECK (com<strong>for</strong>tablehyperextension knee control), & the new CSUS line of soft goodbracing.Bioness, Inc www.bioness.com Bioness is the leading provider of innovative technologiesthat help people regain mobility <strong>and</strong> independence. Bionesstechnology solutions include functional electrical stimulation(FES) systems <strong>and</strong> over-ground dynamic body weight supportsystems that provide functional <strong>and</strong> therapeutic benefits toindividuals with central nervous system disorders <strong>and</strong> orthopedicinjuries.Boston Brace www.bostonbrace.com Known <strong>for</strong> advancements in the treatment of idiopathic scoliosis,Boston Brace is a company that thrives on innovation. A recentinnovation is the Dynamic Movement Orthoses (DMO.) A DMOprovides deep pressure <strong>for</strong> proprioception while utilizing tensionpanels <strong>for</strong> positioning <strong>and</strong> posture.BTS Bioengineering Corp www.btsbioengineering.comBTS Bioengineering is born with the purpose to improve thequality of life through the human body movement evaluation.Our systems supply practitioners with fast, accurate <strong>and</strong> noninvasivequantitative analysis of patients’ biomechanical <strong>and</strong>neuromuscular parameters. BTS systems are used <strong>for</strong> bodymotion dysfunctions assessment to establish the most successfultherapies.Cascade DAFO www.dafo.com Cascade Dafo, Inc., creator of the original DAFO® (Dynamic AnkleFoot Orthosis), is the industry’s leading manufacturer of pediatriclower-extremity braces. The patient-focused company createsinnovative products unmatched in quality, fit, <strong>and</strong> function --backed with a Full (90-Day) Warranty <strong>and</strong> exceptional customersupport. Visit www.cascadedafo.com or call 800.848.7332.CIR Systems/GAITrite www.gaitrite.com GAITRite is a truly portable pressure sensitive walkway with aquick 5 minute setup measuring temporal spatial parameters,providing easy identification of gait anomalies. The system comesin various lengths which record <strong>and</strong> analyze multiple gait cycles ina single walk, allowing accurate testing of patients.Cook Children’sHealthcare Systemwww.cookchildrens.orgWith one of the largest, most technologically advanced pediatricneurosciences programs in the southwestern United States, CookChildren’s Health Care System is redefining the future of childrenwith neurological conditions. Our leading edge programs <strong>and</strong>services include pediatric deep brain stimulation, Level 4 EMU,MEG <strong>and</strong> iMRI <strong>for</strong> epilepsy treatment.EasySt<strong>and</strong> www.easyst<strong>and</strong>.com For over twenty years, Altimate Medical has been leading theindustry by creating unsurpassed sit to st<strong>and</strong> technology <strong>for</strong> thosewith disabilities. Designed by a C6-7 quadriplegic, EasySt<strong>and</strong>’s lineof st<strong>and</strong>ing frames <strong>and</strong> equipment has helped to improve thequality of life <strong>for</strong> kids <strong>and</strong> adults using wheelchairs worldwide.Easy Walking Inc www.easy-walking.com Easy Walking, Inc makers if the Upn’ Go a partial weight bearingbody-support, dynamic rehab tool <strong>for</strong> gait development.Introduces the Upn’ Free the next step in gait trainers.Freedom Concepts www.freedomconcepts.com Freedom Concepts has been imagining, designing, <strong>and</strong> buildinga full line of adaptive bicycles, alternative seating, <strong>and</strong> mobilitydevices <strong>for</strong> over twenty years. Freedom Concepts products allowindividuals from 18-months-old, all the way through to adulthoodto discover mobility <strong>and</strong> enjoy life. www.freedomconcepts.comBoothNumber(s)14111534 & 3533379231AACPDM 67 th Annual Meeting • Research & Practice 71


Exhibiting <strong>and</strong> Sponsoring OrganiziationsName Website DescriptionGillette Children’s www.gillettechildrens.org Gillette Children’s Specialty Healthcare, an independent, not<strong>for</strong>-profitSpecialty Healthcarehospital <strong>and</strong> clinics, is internationally recognized <strong>for</strong> itswork in the diagnosis <strong>and</strong> treatment of children, adolescents <strong>and</strong>young adults with chronic conditions, including cerebral palsy,brain <strong>and</strong> spinal cord inju ries, complex orthopaedic problems,arthritis, neurological conditions, spina bifida <strong>and</strong> craniofacialanomalies.Gundersen HealthSystemHocoma, IncBronze Level Sponsorwww.gundersenhealth.org/medcareerswww.hocoma.comGundersen Health System, based in La Crosse, Wisconsin, invitesyou to join us in our mission to deliver excellence in patientcare, education, <strong>and</strong> research, <strong>and</strong> to improve health in thecommunities we serve. We are a physician-led organization,employing nearly 500 medical staff across all medical <strong>and</strong> surgicalspecialties.Hocoma is the leader in robotic rehabilitation therapy <strong>for</strong>neurological movement disorders. We are a globally active medicaltechnology company based near Zurich, Switzerl<strong>and</strong>. We developinnovative therapy solutions such as the Lokomat by workingclosely with leading clinics <strong>and</strong> research centers. Our products areapplied successfully in renowned clinics <strong>and</strong> research institutesworldwide in the field of rehabilitation medicine. Our therapysolutions support the treatment of neurological patients withmovement disorders caused by stroke, spinal cord injury, traumaticbrain injury, multiple sclerosis, cerebral palsy or other neurologicaldiseases <strong>and</strong> injuries as well as low back pain patients.Innovative Neurotronics www.walkaide.com Innovative Neurotronics presents the Pediatric WalkAide System,the state-of-art Neuro-Rehab Functional Electrical Stimulationsystem <strong>for</strong> treatment of foot drop in children with cerebral palsy(CP). The Pediatric WalkAide System is the ideal solution <strong>for</strong>mobility needs & rehabilitation of the growing children with CP.Kennedy Krieger Institute www.kennedykrieger.org Located in the Baltimore/Washington region, the Kennedy KriegerInstitute is internationally recognized <strong>for</strong> improving the lives of19,000 children <strong>and</strong> adolescents with disorders <strong>and</strong> injuries of thebrain, spinal cord, <strong>and</strong> musculoskeletal system each year, throughinpatient <strong>and</strong> outpatient clinics; home <strong>and</strong> community services;<strong>and</strong> school-based programs.MallinckrodtPharmaceuticalsSilver Level Sponsorwww.mallinckrodt.comMallinckrodt Pharmaceuticals is dedicated to providing <strong>and</strong>advancing quality intrathecal medications. With a focus onmeeting customer needs by providing quality products atcompetitive prices with convenient distribution, Mallinckrodt alsohas a robust research <strong>and</strong> development program dedicated tofuture intrathecal medications. For more in<strong>for</strong>mation, visit www.mallinckrodt.com.McKie Splints, LLC www.mckiesplints.com McKie Splints, LLC manufactures neoprene thumb splints,supinator straps <strong>and</strong> custom wrist-h<strong>and</strong> orthoses. The designsare stream-lined <strong>and</strong> biomechanically aligned to assist weakermuscles during grasp <strong>and</strong> reach. Available in six appealing colorsour products are sized <strong>for</strong> premies to adults. Prices are reasonable.We ship worldwide.Medtronic, IncPremier Level Sponsorwww.medtronic.comAt Medtronic, we’re committed to Innovating <strong>for</strong> life by pushingthe boundaries of medical technology <strong>and</strong> changing the waythe world treats chronic disease. We continually find ways to helppeople live better, longer. Visit our booth to learn more about ourtreatments that may help people with cerebral palsy.BoothNumber(s)16214a281229 & 3031A17 & 1872<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Exhibiting <strong>and</strong> Sponsoring OrganiziationsName Website DescriptionMerz Neurosciences, a http://www.merzusa.com Merz North America is a specialty healthcare company thatdivision of Merz Northdevelops <strong>and</strong> commercializes innovative treatment solutions inAmericaaesthetics, dermatology <strong>and</strong> neurology in the U.S. <strong>and</strong> Canada.Gold Level SponsorOur ambition is to become a recognized leader in the treatmentof movement disorders, <strong>and</strong> in aesthetics <strong>and</strong> dermatology.Nemours/Alfred I.duPont Hospital <strong>for</strong>ChildrenOrthoPediatricsPlatinum Level SponsorPathways.orgEssential Supporterwww.nemours.orgwww.orthopediatrics.comwww.pathways.orgRanked 5th in the nation <strong>for</strong> pediatric orthopedics by U.S. News &World Report, the <strong>Cerebral</strong> <strong>Palsy</strong> Program at duPont Hospital <strong>for</strong>Children, brings together specialists in orthopedics, neurology,neurosurgery <strong>and</strong> rehabilitation to help children reach theirfull potential. One of the largest cerebral palsy programs in themid-Atlantic region, we are located in Wilmington, Delaware.nemoursdupont.orgOrthoPediatrics® is the leading medical device companydeveloping anatomically appropriate implants <strong>and</strong> specializedinstruments <strong>for</strong> children with orthopedic conditions, givingpediatric orthopedic surgeons <strong>and</strong> caregivers the ability to treatchildren with innovative technologies specifically designed tomeet their needs. Orthopediatrics is a truly different company…The Worldwide Leader in Pediatric Orthopedics.Since 1985, Pathways.org has used outcome-based research <strong>and</strong>multimedia as tools to promote each child’s fullest inclusion.Pathways.org creates materials under the direction of thePathways.org Medical Round Table. We strive to empower healthprofessionals <strong>and</strong> parents with the knowledge of the benefitof early detection <strong>and</strong> early intervention <strong>for</strong> children’s sensory,motor, <strong>and</strong> communication development.Pega Medical, Inc www.pegamedical.com Pega Medical is the first medical device manufacturer fully devotedto the development of specialty orthopedic implants <strong>for</strong> children.Our expertise in de<strong>for</strong>mity correction <strong>and</strong> growth modulation hasresulted in unique products <strong>for</strong> the treatment of de<strong>for</strong>mities inpediatric patients with CP, OI, SCFE <strong>and</strong> other bone diseases.Pro-Tech Orthopedics www.protech-intl.com Pro-Tech Orthopedics is a Massachusetts based custom orthoticsmanufacturer that also offers the Sensory Dynamic Orthosis,a made to measure product, designed to provide dynamiccompression to increase sensory <strong>and</strong> proprioceptive feedback <strong>and</strong>provide musculo-skeletal support.ProtoKinetics www.protokinetics.com Movement analysis systems <strong>for</strong> dynamic <strong>and</strong> st<strong>and</strong>ing studies.Export pressure, temporal <strong>and</strong> spatial parameters over a varietyof protocols, alongside EMG data from wireless surface probes.Quantify the phases of gait, pressure transitions, muscle activity<strong>and</strong> their corresponding symmetries during the evaluation <strong>and</strong>research of individuals with cerebral palsy.Rehabtek LLC www.rehabtek.com With a focus on cutting-edge technologies in robotics <strong>and</strong>biomedical engineering, Rehabtek develops medical devicesuseful in physical medicine <strong>and</strong> rehabilitation clinical practice.With close collaborations with clinicians in rehabilitation hospital/clinics, Rehabtek develops technologies that help reduceimpairments <strong>and</strong> improve function of patients with neurologicaldisorders <strong>and</strong> musculoskeletal injury.Restorative Therapies, Incwww.restorative-therapies.comRestorative Therapies is the leader in Functional ElectricalStimulation systems <strong>for</strong> arms, legs <strong>and</strong> trunk muscles. FES relaxesspasms <strong>and</strong> enables muscles to work even though muscles maybe compromised from neurological impairment. Our cycling,stepping <strong>and</strong> elliptical systems are available <strong>for</strong> pediatrics <strong>and</strong>adults in the clinic or home.BoothNumber(s)22819 & 20253623A4 & 52113AACPDM 67 th Annual Meeting • Research & Practice 73


Exhibiting <strong>and</strong> Sponsoring OrganiziationsName Website DescriptionRide Designs® www.ridedesigns.com Ride Designs® is unique in being both a practicing seating clinic<strong>and</strong> manufacturer. Ride’s seating solutions originate from ourclinic’s direct care of thous<strong>and</strong>s of people with complex seatingneeds. A highly experienced team of therapists, orthotists,<strong>and</strong> engineers have translated clinical solutions into patentedprocesses <strong>and</strong> innovative products.Schriners Hospital <strong>for</strong>Children®www.schrinershospital<strong>for</strong>children.orgLed by a team of board-certified, fellowship-trained surgeons withsubspecialty pediatric orthopaedic expertise, Shriners Hospitals<strong>for</strong> Children treats all children with the same high level of careregardless of the families’ ability to pay. A perfect source <strong>for</strong> all ofyour pediatric orthopaedic, cleft lip & palate, <strong>and</strong> spinal cord injuryreferrals; we accept a growing list of private insurance programs,Medicaid, <strong>and</strong> the uninsured.StimDesigns, LLC www.stimdesigns.com StimDesigns LLC is a <strong>for</strong>ward thinking company that designs<strong>and</strong> distributes innovative solutions to enhance neuromuscularrehabilitation. Products <strong>and</strong> systems incorporate techniquesthat augment neuroplasticity to improve people’s musclerecovery, function, independence <strong>and</strong> quality of life. StimDesignsdistributes the pioneering Galileo side-alternating vibrationproduct line from Germany.Tech4POD,Marquette Universitywww.tech4pod.orgTech4POD is an acronym <strong>for</strong> the Rehabilitation EngineeringResearch Center on Technologies <strong>for</strong> Children with OrthopaedicDisabilities funded by NIDRR (H133E100007). Tech4POD is anational center that focuses on advanced engineering research<strong>and</strong> development based on innovative technologies. Furtherin<strong>for</strong>mation can be obtained at Tech4POD.org. The ProjectDirector/PI is Dr. Gerald F. Harris.Tekscan, Inc www.tekscan.com Tekscan manufactures a broad range of tools <strong>for</strong> better pressureoffloading <strong>and</strong> enhanced gait analysis. Our systems use paperthin,high-resolution sensors to accurately measure plantarpressure distribution, timing <strong>and</strong> Center of Force (CoF) trajectoryin dynamic evaluations. The unique in<strong>for</strong>mation these systemsprovide helps you objectively validate treatments <strong>and</strong> improveoutcomes.Ultraflex Systems Inc www.ultraflexsystems.com Ultraflex dynamic stimulus braces address the rehabilitationchallenges associated with neurological <strong>and</strong> congenitalpresentations, gait dysfunction, <strong>and</strong> complex orthopedicconditions. Ultraflex therapeutic/at rest orthoses maintain <strong>and</strong>increase muscle length <strong>and</strong> improve passive range of motion.Ultraflex functional/gait orthoses provide unrestricted motion <strong>and</strong>customized stability.Wiley www.wiley.com Wiley is the leading society publisher. We publish on behalf ofmore societies <strong>and</strong> membership associations than anybody else,<strong>and</strong> offer libraries <strong>and</strong> individuals 1250 online journals, thous<strong>and</strong>sof books <strong>and</strong> e-books, reviews, reference works, databases, <strong>and</strong>more. Our online resource: onlinelibrary.wiley.com.BoothNumber(s)3124A3262426 & 271074<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Disclosure IndexA=Research <strong>and</strong> institutional Support has been receivedB=Miscellaneous non-income support (e.g. equipment or services),commercially derived honoraria, or other non-research relatedfunding (e.g. paid travel)C=Royalties have been receivedD=Stock or Stock options heldE=Consultant or employee <strong>for</strong>F=Nothing to DiscloseBreakfastBRK 1 Gaeber-Spira, D (A - Ultraflex, A - CNS, E - Merz), Berweck, S(E - Merz Pharma), Schroeder, S (A - Merz Pharma), Heinen, F (E - MerzPharma, A - Merz Pharma)BRK 2 Bickley, M (F)BRK 3 Mast, J (F)BRK 4 Bachrach, S (F) Gresley-Jones, T (F)BRK 5 Monbaliu, E (F) Feys, H (F)BRK 6 Labhard, S (F)BRK 7 Oppenheim, W (F) Chung, P (F) Fowler, E (F)BRK 8 Peterson, M (F) Hurvitz, E (F)BRK 9 Labhard, S (F)BRK 10 Noritz, G (F) Rosenbaum, P (F)BRK 11 Jamal, L (F) Stashinko, E (F) Hoon, A (F)BRK 12 Thomason, P (F) Graham, H (F)BRK 13 McFadd, E (F) Allison, K (F) Smith, A (F) Hustad, K (F)BRK 14 Stout, J (F) Walt, K (F)BRK 15 Day, S (F) Reynolds, R (F) Kush, S (F)BRK 16 Willis, D (F) Warren, R (F)BRK 17 Vargus-Adams, J (F) Thornton, L (F) Frisina, C (F)BRK 18 Rosenbaum, P (F) Russman, B (F) Blasco, P (F)Demonstration PosterDP1 George, A (F) Lennon, N (F)DP2 Kraus de Camargo, O (F) Godreault, L (F) Godreault, J (F)DP3 Ogan, J (F)DP4 Purtzki, J (F) St. John, T (F)DP5 Gannotti, M (F) Fuchs, R (F)DP6 Gresley-Jones, T (F)DP7 Lopez-Ortiz, C (F) Egan, T (F) Dubon, M (F) Gaeber-Spira, D (F)DP8 Rios, D (F) Gilbertson, T (F) McCoy, S (F) Miller, K (F) Gutman, K (F)Prange, H (F) Price, R (F) Moritz, C (F)DP9 Tse, A (E - Ipsen Innovation), Carranza, J (A - Ipsen Innovation,B - Ipsen Mexico), Picaut, P (E - Ipsen Innovation), Delgado, M (A -Ipsen Innovation), Gormley, M (A - Ipsen, A - Allergan), Russman, B(A - Ipsen Innovation), Revivo, G (F) Tilton, A (A - Ipsen Innovation, A- Metronics, B - Metronics)DP10 Burdo-Hartman, W (F) Noritz, G (F)DP11 Evans, M (F) Liu, X (F) Heyd, D (F) Zvara, K (F)DP12 Shrader, C (F) Rodriquez, S (F) F) Welsh, C (F) Shrader, M (F)DP13 Letzkus, L (F)DP14 Erhardt, R (F)DP15 Agrawal, R (F)DP16 Damiao, J (F) Gradziel, L (F) Clemson, J (F) Longinott, P (F)DP17 Idzior, M (F) Jozwiak, M (F) Chen, P (F) Musielak, B (F) Rychlik,M (F)DP18 Spierre, L (F)DP19 Chapman, C (F) Foley, J (F) Tann, B (F) Swaroop, V (F) Dias, L (F)Gaeber-Spira, D (F)DP20 Sobus, K (F) Dell, A (F)DP21 Bartlett, D (F) McCoy, S (F) Chiarello, L (F) Palisano, R (F) Jeffries,L (F) LaForme Fiss, A (F) Hanna, S (F) Gorter, J (F)DP22 Milbury, K (F) Soscia, J (F) Adams, S (F)DP23 Bartelt, T (F) Johaningsmeir, S (F) Okun, A (F) Gordon, J (F)Colby, H (F)DP24 Benson, J (F) DiTucci, J (F) Rodriquez, A (F) Vizcarra, L (F)Whisler, S (F) Torres, M (F)DP25 Rosenbaum, P (F) Kolehmainen, N (F) C<strong>and</strong>en, C (F) Gorter, J(F)DP26 Dekker, K (F) Wright, M (F) Gaik, S (F)DP27 Pidcock, F (F) Carney, J (F) Garcia Reidy, T (F) Naber, E (F)Turlington, P (F)DP28 Trenkle, J (F) Grubich, S (F)DP29 McLean, L (F) Magnuson, S (F) Gasior, S (F)DP30 Boyd, R (F) Ziviani, J (F) Sakzewski, L (F)DP31 Dworak, J (F)DP32 Pagliuca, K (F)DP33 Thibault, S (F) Paternotte, M (F) Koclas, L (F)DP34 Soscia, J (F) Milbury, K (F) Adams, S (F)DP35 Kim, H (F) Gordon, A (F) Bishop, L (F)DP36 Thorkelsson, H (F) Gudjonsdottir, B (F)DP37 Brevoort, K (F) Schmit, J (F)DP38 Lee, S (F) Tsai, L (F) Wang, L (F) Kang, S (F) Gaeber-Spira, D (F)Ren, Y (F) Zhang, L (F)DP39 Vargus-Adams, J (F) Schmit, J (F) Olesinski, E (F) Bailes, A (F)DP40 Letzkus, L (F)Free PaperA1 Walter, S (F) Lang, C (F) Johnston, L (F)A2 Holden, B (F) Lang, C (F) Johnston, L (F)A3 January, A (F) Vogel, L (F) Zebracki, K (F) Kelly, E (F) Russell, H (F)A4 Shikako-Thomas, K (F) Schmitz, N (F) Lach, L (F) Shevell, M (F)Colver, A (F) Law, M (F) Poulin, C (F) Majnemer, A (F)A5 von der Luft, G (F) DeBoer, B (F) Martino, S (F)A6 Majnemer, A (F) Shikako-Thomas, K (F) Law, M (F) Schmitz, N (F)Shevell, M (F) Lach, L (F) Poulin, C (F)A7 Fauconnier, J (F) Dang, V (F) Dickinson, H (F) Colver, A (F)AACPDM 67 th Annual Meeting • Research & Practice 75


Disclosure IndexA8 Oftedal, S (F) Bell, K (F) Davies, P (F) Ware, R (F) Boyd, R (F)A9 Berg, K (F) Shiu, C (F) Msall, M (F)A10 Kentish, M (F) Jordan, R (F) Boyd, R (F) Pareezer, L (F) McKinlay, L(F) David, M (F) Ware, R (F)B1 Taylor, N (F) Fernhall, B (F) O‘Shea, S (F) Wee, E (F) Shields, N (F)B2 Gowatsky, J (F) Kuo, H (F) Friel, K (F) Fuller, J (F) Gordon, A (F) Ferre,C (F) Carmel, J (F) Stan<strong>for</strong>d, A (F) Lisanby, S (F) Bleyenheuft, Y (F)B3 Burstein Gol, D (F) Lahav, A (F) Brezner, A (F) Oraibi, S (F) Ferre, C(F) Gelkop, N (F) Gordon, A (F)B4 Sakzewski, L (F) Boyd, R (F) Miller, L (F) Bowden, J (F) Ziviani, J (F)B5 Dallmeijer, A (F) Becher, J (F) van Wely, L (F) Balemans, A (F)B6 Meyer, E (F) Bragg, T (F)B7 Hegazy, F (F) Salem, Y (F)B8 Pontén, E (F)B9 Puligopu, A (F) Reddy, S (F) Purohit, A (F)B10 Sakzewski, L (F) Boyd, R (F)C1 Ang, S (F) Graham, H (F) Willoughby, K (F) Jachno, K (F) Thomason,P (F)C2 Zhang, S (F) Wilson, N (F) Mackey, A (F) Stott, N (F)C3 Ma, J (F) Chang, F (F) Novais, E (F) Pan, Z (F)C4 Truong, W (F) Novacheck, T (F) Shin, E (F) Howard, A (F)Narayanan, U (F) Rischall, A (F) Lochab, J (F)C5 Hodgson, B (F) deGiorgio-Miller, N (F)C6 Mackey, A (F) Stott, N (F) Wilson, N (F) Chong, J (F)C7 Segal, L (F) Czoch, W (F) Hennrikus, W (F) Shrader, M (F) Kanev, P(F) Welsh, C (F)C8 Lenhart, R (F) Schwartz, M (F) Thelen, D (F)C9 Jones, J (F) Falk, M (F) Shrader, M (F) Segal, L (F) Welsh, C (F)C10 Sheha, E (F) Essilfie, A (F) Matsumoto, H (A - SRS, A - POSNA,A - CWSDRF, A - CPIRF), Roye, D (A - SRS, A - POSNA, A - OMeGA,A - Biomet, E - Stryker, B - CWSDSG, A - CPIRF), Hyman, J (A - SRS, A- OMeGA, E - SICOT (board member), E - AACPDM (board member),A - CPIRF)D1 Ryan, J (F) McGahey, A (F) Walsh, M (F) Gormley, J (F) McLoughlin,B (F)D2 Ryan, J (F) McGahey, A (F) McLoughlin, B (F) Walsh, M (F) Gormley,J (F)D3 Ware, R (F) Oftedal, S (F) Bell, K (F) Davies, P (F) Boyd, R (F)D4 Maitre, N (F) Gogliotti, S (F) Damon, B (F) Shaw, E (F) Flynn, L (F)Schilling, A (F) Chan, J (F) Wehrwein, E (F) Rooks, C (F) Bush, E (F)D5 Chen, S (F) Sison-Williamson, M (F) Davids, J (F) Bagley, A (F)D6 Gorton, G (F) Oeffinger, D (F) Davids, J (F) Bagley, A (F) Sison-Williamson, M (F)D7 Stout, J (F) Novacheck, T (F) Gage, J (F)D8 Ries, A (F) Schwartz, M (F) Novacheck, T (F) Rozumalski, A (F)D9 Dabney, K (F) Lennon, N (F) Miller, F (F) Henley, J (F) Sommers, K(F)D10 Morais Filho, M (F) Kawamura, C (F) Lopes, J (F) Neves, D (F)Cardoso, M (F) Caiafa, J (F)E1 Miller, L (F) Ziviani, J (F) Ware, R (F) Boyd, R (F)E2 Miller, L (F) Ziviani, J (F) Ware, R (F) Boyd, R (F)E3 Franki, I (F) Desloovere, K (F) De Cat, J (F) Molenaers, G (F) Van denBroeck, C (F)E4 McKinlay, L (F) Sofronoff, K (F) Boyd, R (A - National Health <strong>and</strong>Medical Research Council, A - Smart State Fellowship), Whittingham,K (A - National Health <strong>and</strong> Medical Research Council), Brown, F (A -Queensl<strong>and</strong> Children‘s Medical Research Institute)E5 S<strong>and</strong>ers, M (F) McKinlay, L (F) Whittingham, K (F) Boyd, R (F)E6 Ren, Y (F) Liu, L (F) Wu, W (F) Chen, K (F) Yang, C (F) Liu, C (F) Wang,L (F) Zhang, L (F) Gaebler-Spira, D (F) Song, W (F)E7 Dodd, K (F) Willoughby, K (F) Thomason, P (F) Graham, H (F) Baker,R (F) Taylor, N (F)E8 McCoy, S (F) Bartlett, D (F) Palisano, R (F) Chiarello, L (F) Jeffries, L(F) LaForme Fiss, A (F)E9 Findlay, B (F) Knights, S (F) Fehlings, D (F) Switzer, L (F) Graham, N(F) Ye, Z (F) Hern<strong>and</strong>ez, H (F)E10 Maitre, N (F) Key, S (F) Wang, L (F) Henderson, G (F) Pearson, J (F)Satterfield, S (F) Auld, M (F)F1 Kelly, E (F) Flanagan, A (F) Vogel, L (F)F2 Mueske, N (F) Ryan, D (F) Van Speybroeck, A (F) Wren, T (F)F3 Oeffinger, D (F) Buhr, N (F) Walker, J (F)F4 Noble, J (F) Charles-Edwards, G (F) Keevil, S (F) Gough, M (F)Shortl<strong>and</strong>, A (F)F5 Lowes, L (F) Noritz, G (F) Tidball, A (F) Newmeyer, A (F) Smoyer, W(F) Love, L (F) Miller, M (F) Clark, S (F)F6 Smith, M (F) de Coteau, A (F) Moore, C (F) Peacock, G (F)Christensen, D (F)F7 Koop, S (F) Braddock, M (F) Zhang, L (F) Leutgeb, G (F)Salmanowicz, C (F) Trost, J (F)F8 Bell, K (F) Weir, K (F) Benfer, K (F) Ware, R (F) Stevenson, R (F)Davies, P (F) Boyd, R (F)F9 Benfer, K (F) Weir, K (F) Bell, K (F) Ware, R (F) Davies, P (F) Boyd, R (F)F10 Weir, K (F) Bell, K (F) Davies, P (F) Benfer, K (F) Ware, R (F) Boyd, R(F)G1 Dayanidhi, S (F) Dykstra, P (F) McKay, B (F) Lyubasyuk, V(F) Chambers, H (A - Allergan Corp, E - Allergan Corp, E - MerzPharmaceuticals, E - Orthopediatrics), Lieber, R (A - NIH, E - AllerganCorp, C - Lippincott Williams & WIlkins)G2 Boyd, R (F) Tsao, H (F) Panneck, K (F) Rose, S (F)G3 Panneck, K (F) Rose, S (F) Boyd, R (F)G4 Dagia, C (F) Ditchfield, M (F) Carlin, J (F) Reid, S (F) Reddihough,D (F)G5 Panou, A (F) Gagliano, N (F) Dalle-Donne, I (F) Martinelli, C (F)Colombo, G (F) Portinaro, N (F) Milzani, A (F) Menon, A (F)G6 Forster, T (F) Shortl<strong>and</strong>, A (A) Fairhurst, C (A) Gough, M (A)G7 Valentine, J (F) Reid, S (F) Stannage, K (F) Fabian, V (F) Pitcher, C (F)Elliott, C (F) Ellies, K (F)G8 Pitcher, C (F) Davis, C (F) Elliott, C (F) Langdon, K (F) Valentine, J (F)Reid, S (F)76<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Disclosure IndexG9 Park, M (F) Chung, C (F) Lee, S (F) Lee, K (F) Kwon, D (F) Sung, K (F)Lee, S (F) Choi, Y (F) Kim, T (F) Kwon, S (F)G10 Rawicki, B (F) Blackburn, C (F) Baker, R (F) Fahey, M (F) Simpson,P (F) Hastings-Ison, T (F) Graham, H (F)H1 Switzer, L (F) Penner, M (F) Fehlings, D (F) Xie, W (F)H2 Kingsnorth, S (F) Adler, E (F) Ami, N (F) Gresley-Jones, T (F)Fehlings, D (F) Slonim, N (F) Mankad, D (F) Joachimides, N (F) Fay, L(F)H3 Choi, Y (F) Chung, C (F) Lee, K (F) Lee, S (F) Kim, T (F) Lee, S (F)Kwon, D (F) Sung, K (F) Park, M (F) Kwon, S (F)H4 Vargus-Adams, J (F) Farrell, J (F) Carle, A (F) Morgan-DeWitt, E (F)Jacobson, C (F)H5 Fragala-Pinkham, M (F) Forman, J (F) O‘Neil, M (F) Lennon, N (F)Trost, S (F) George, A (F)H6 Colver, A (F) Dickinson, H (F)H7 Anderson, D (F) Radtka, S (F) Joseph, C (F) Rivera, M (F)H8 Di Rezze, B (F) Cousins, M (F) Rosenbaum, P (F) Hidecker, M (F)Zwaigenbaum, L (F) Law, M (F) Szatmari, P (F)H9 Tedroff, K (C - Medtronic), Hellgren, K (F) Jacobson, L (F) Brautaset,R (F) Pansell, T (F)H10 Manum, G (F) Sigurdardottir, S (F) Hoye, H (F)I1 Nguyen, N (F) Hayner, A (F) Boswell, L (F) Adde, L (F) Stoen, R (F)Fjortoft, T (F) Weck, M (F) De Regnier, R (F)I2 Mazer, B (F) Snider, L (F) Majnemer, A (F)I3 Korzeniewski, S (F) Pinto-Martin, J (F) Lorenz, J (F) Whitaker, A (F)Feldman, J (F) Paneth, N (F)I4 Graham, H (F) Ang, S (F) Dobson, F (F) Thomason, P (F) Simpson, P(F) Reddihough, D (F)I5 Prinzie, P (F) Ortibus, E (F) Monbaliu, E (F) De Cock, P (F) Klingels, K(F) Heyrman, L (F) Feys, H (F)I6 Durkin, M (F) Maenner, M (F) Benedict, R (F) Wingate, M (F) Kirby, R(F) Christensen, D (F) Van Naarden Braun, K (F) Yeargin-Allsopp, M (F)I7 Strauss, D (F) Shavelle, R (F) Tran, L (F) Brooks, J (F)I8 Heimstad, R (F) Iversen, A (F) Str<strong>and</strong>, K (F) Austgulen, R (F)Andersen, G (F) Irgens, L (F) Vik, T (F)I9 Lien, E (F) Andersen, G (F) Bao, Y (F) Skranes, J (F) Gordish-Dressman, H (F) Blackman, J (F) Vik, T (F)I10 Graham, H (F) Ang, S (F) Simpson, P (F) Johnson, M (F) Torode, I(F)Instructional CourseIC 1 Ward, M (F) Novacheck, T (F) Graupman, P (F) Kim, Peter (F)IC 2 Adde, L (F) Peyton, C (F)IC 3 Clarke, D (F) Lee, M (F) Titus, J (F) Nelson, M (F)IC 4 Mitchell, L (F) Boyd, R (F) Fehlings, D (F) Biddiss, E (F) Rasmussen,B (F) Kliim-Due, M (F)IC 5 Thomason, P (F) Willoughby, K (F) Selber, P (F) Graham, H (F)IC 6 Shrader, M (F) Noritz, G (F) Chambers, H (F)IC 7 Stout, J (F) Riveros Charry, R (F)IC 8 Krach, L (F) DeLuca, S (F) Butler, C (F) Shore, B (F) Kolaski, K (F)IC 9 Worley, G (F) Adams, R (F)IC 10 Vogel, L (F) Zebracki, K (F) Mulcahey, M (F)IC 11 Owen, E (F) Gaeber-Spira, D (F) Fatone, S (F) McGovern, D (F)IC 12 Hoon, A (F) Poretti, A (F) Gwynn, H (A - DALF-CP-1002 Protocol-Part B, Acordia Therapeutics at Kennedy Krieger Institute, JohnsHopkins, Baltimore, MD)IC 13 Kaufman, J (F) Hapaala, H (F) Warschausky, S (F)IC 14 Levey, E (F) Girolami, P (F) Reigstad, D (F)IC 15 Healy, M (F) Ward, M (F) Schwartz, M (F) Krach, L (F) RiverosCharry, R (F)IC 16 Clancy, T (F) Sukol-Moulton, T (F) Gaeber-Spira, D (F) Zhang, L(E - rehab tek)IC 17 Miros, J (F) Shikako-Thomas, K (F) Maltais, D (F)IC 18 Franki, I (F) De Cat, J (F) Molenaers, G (F) Van den Broeck, C (F)IC 19 Rodda, J (F) Selber, P (F) Young, J (F)IC 20 Swaroop, V (F) Dias, L (F) Rosen, L (F) Machedo Neto, L (F)IC 21 Noritz, G (F) Winters, J (F) Okun, A (F)IC 22 Blasco, P (F) Svoboda, M (F)IC 23 Weir, S (F) Narayanan, U (F)IC 24 Dietz, I (F) Murphy, N (F) Ogan, J (F)IC 25 Darrah, J (F) Bartlett, D (F)IC 26 Gannotti, M (F) Moreau, N (F) Fuchs, R (F)IC 27 Marks, W (F) Hoon, A (F) Levey, E (F)IC 28 Ward, M (F) Sohrweide, S (F) Rasmussen, A (F)IC 29 Heathcock, J (F) Kolobe, T (F) Gordon, A (F) Prosser, L (F)IC 30 van der Burg, J (F) van Hulst, K (F) Reid, S (F) Baker, L (F)IC 31 Murphy, K (F) Katorski, J (F) Durkee, C (F)IC 32 Kay, R (F) Ryan, D (F) Rethlefsen, S (F)IC 33 Pierz, K (F) Ounpuu, S (F)IC 34 Baird, M (F) Pelegano, J (F) Vargus-Adams, J (F)IC 35 van der Slot, W (F) Gorter, J (F)IC 36 Roman, C (F) Lantzy, A (F)IC 37 Girolami, G (F) Gaebler-Spira, D (F)IC 38 Nyquist, A (F) Jahnsen, R (F) Nyquist, T (F)Scientific PosterSP1 Scheck, S (F) Rose, S (F) Boyd, R (F) Panneck, K (F)SP2 Shen, E (F) Umphred, D (F) Sweeney, J (F) Nixon-Cave, K (F)SP3 Cahill-Rowley, K (F) Vassar, R (F) Thompson, M (F) Gatewood, C(F) Rha, D (F) Barnea-Goraly, N (F) Rose, J (F) Stevenson, D (F)SP4 Mathewson, M (F) Ward, S (A - NIH), Lieber, R (A - NIH, C -Lippincott Williams & Wilkins, E - Allergan Inc), Chambers, H (A- Allergan Corp, E - Allergan Corp, E - Orthopediatrics, E - MerzPharmaceuticals)SP5 Hintz, S (F) Vassar, R (F) Barnea-Goraly, N (F) Cahill-Rowley, K (F)Stevenson, D (F) Rose, J (F)SP6 Ross, S (F) Boyd, R (F) Whittingham, K (F)AACPDM 67 th Annual Meeting • Research & Practice 77


Disclosure IndexSP7 Panizzolo, F (F) Pitcher, C (F) Elliott, C (F) Valentine, J (F)Stannage, K (F) Reid, S (F)SP8 Romero, M (F) Shierk, A (F) Tian, F (F) Smith, L (F) Delgado, M (F)Khan, B (F) Liu, H (F) Alex<strong>and</strong>rakis, G (F) Clegg, N (F) Roberts, H (F)SP9 Patterson, J (F) Sobotka, S (F) Acharya, K (F) Msall, M (F) Suskind,D (F) Sapolich, S (F) Suskind, E (F) Leffel, K (F)SP10 Heberer, K (F) Fowler, E (F) Staudt, L (F) Sienko Thomas, S (F)Buckon, C (F) McDonald, C (F) Sussman, M (F) Bagley, A (F)SP11 Liu, C (F) Yang, C (F) Chen, K (F) Ren, Y (F) Liu, L (F) Wang, L (F)Gaebler-Spira, D (F) Zhang, L (F)SP12 Kurz, M (F) Willette, S (F) Surkar, S (F) Capoun, L (F) Zhang, X (F)Harbourne, R (F)SP13 Mukherjee, S (F) Kennelly, A (F)SP14 Haapala, H (F) Peterson, M (F) Hurvitz, E (F)SP15 Warren, R (F) Elliott, T (F) Warren, A (F) Blucker, R (F) Chang, J (F)Berry, J (F)SP16 Yeargin-Allsopp, M (F) Doernberg, N (F) Christensen, D (F) VanNaarden Braun, K (F) Peacock, G (F)SP17 Gane, C (F) Dufour, S (F) McFadyen, B (F) Bouyer, L (F) Maltais, D(F) Voisin, J (F) Andrysek, J (F)SP18 Ghosh, D (F) Sreshta, S (F) Velayudam, K (F)SP19 Scher, D (F) Hafer, J (F) Drefus, L (F)SP20 Fogelman, D (F) Liu, L (F) Gaeber-Spira, D (F) Uhing, P (F)Zhang, L (F) Chen, K (F) Ren, Y (F) Kang, S (F) Wang, L (F) Liu, C (F)SP21 Gillick, B (F) Feyma, T (F) Menk, J (F) Krach, L (F)SP22 Mitchell, L (F) Boyd, R (F) McGuire, E (F)SP23 Aldahondo, N (F) Krach, L (E - Medtronic, A - Medtronic)SP24 Gershan, W (F) Meier, J (F) Muntz, H (F) Hagedorn, C (F)Hartling, C (F) Murphy, N (F) Valentine, K (F)SP25 Domino, J (F) McGovern, C (F) Chang, K (F) Yang, L (F)SP26 Brady, S (F) Birutis, R (F) Keen, M (F) Wesling, M (F)SP27 Wernimont, C (F) Kern, K (F) Phillips, L (F) Nelson, V (F) Yang, L(F) Brown, S (F)SP28 Zhang, X (F) Surkar, S (F) Willette, S (F) Kurz, M (F) Capoun, L (F)Harbourne, R (F)SP29 De La Cruz, M (F) Yngve, D (F)SP30 Murphy, N (F) Garcia, K (F) Valentine, K (F) Buchi, K (F)Hagedorn, C (F)SP31 Shapiro, D (F) Warschausky, S (F)SP32 Peyton, C (F) Yang, E (F) Adde, L (F) Piantino, J (F) Fjørtoft, T (F)Schreiber, M (F) Msall, M (F)SP33 Mutlu, A (F) Pistav-Akmese, P (F)SP34 Ward, A (F) Zebracki, K (F) Vogel, L (F)SP35 Holt, S (F) Kuperstein, J (F)SP36 Keith, R (F) Swift, J (F) McPherson, A (F)SP37 de Campos, A (F) Kukke, S (F) Curatalo, L (F) Ohlrich, L (F) Alter,K (F) Hallett, M (F) Damiano, D (F)SP38 Jordan, R (F) Arnfield, E (F) Pareezer, L (F) Ware, R (F) Boyd, R (F)SP39 Nattiv, A (F) Fowler, E (F) Heberer, K (F) Oppenheim, W (F) Rao,S (F)SP40 Hung, Y (F) Gordon, A (F)SP41 Ostermaier, K (F) Tapia, C (F) Franklin, A (F) Voigt, R (F)SP42 Miller, L (F) Boyd, R (F) Ziviani, J (F) Marnane, K (F)SP43 Ko, J (F) Kim, M (F)SP44 Heberer, K (F) Greenberg, M (F) Oppenheim, W (F) Fowler, E (F)Staudt, L (F)SP45 Elvrum, A (F) Br<strong>and</strong>al, M (F) Hulleberg, G (F) Vik, T (F)SP46 Silberg, T (F) Gofer-Levi, M (F) Vakil, E (F) Brezner, A (F)SP47 Rachwani, J (F) Santamaria, V (F) Saavedra, S (F) Wood, S (F)Porter, F (F) Woollacott, M (F)SP48 Ostermaier, K (F) Tapia, C (F) Voigt, R (F)SP49 McNeil, S (F) Mansoor, J (F) Mattern-Baxter, K (F)SP50 M<strong>and</strong>ic, C (F) Johaningsmeir, S (F) Gordon, J (F) Corden, T (F)Acevedo-Garcia, D (F) Earle, A (F) Okun, A (F)SP51 Aldahondo, N (F) Krach, L (E - Medtronic, A - Medtronic),Novacheck, T (F) Schwartz, M (E - Medtronic), Trost, J (F) Dunn, M (F)SP52 Reid, S (F) Dagia, C (F) Ditchfield, M (F) Carlin, J (F) Reddihough,D (F)SP53 Kaya-Kara, O (F) Mutlu, A (F) Kerem-Gunel, M (F) Livanelioglu, A(F) Karahan, S (F) Hidecker, M (F)SP54 Boswell, L (F) Weck, M (F) Adde, L (F) Stoen, R (F) Fjortoft, T (F)De Regnier, R (F)SP55 Eken, M (F) Dallmeijer, A (F) Doorenbosch, C (F) Houdijk, H (F)SP56 Torretti, J (F) Brenneman, R (F) Chinchilli, V (F) V<strong>and</strong>erhave, K (F)Shrader, M (F) Segal, L (F) Welsh, C (F)SP57 Louca, C (F) deLacy, M (F) Johnston, L (F)SP58 Schiariti, V (F) Mâsse, L (F) Klassen, A (F) O‘Donnell, M (F) Cieza,A (F) Sauve, K (F)SP59 Shore, B (F) Powell, D (F) Miller, P (F) Matheney, T (F) Snyder, B(F)SP60 Lopez-Ortiz, C (F) Gaeber-Spira, D (F) Simkowski, J (F) Doshi, K(F) Gomez, W (F) Warnick, J (F)SP61 Meyns, P (F) Van Gestel, L (F) De Cock, P (F) Sunaert, S (F)Guzzetta, A (F) Aertbeliën, E (F) Feys, H (F) Duysens, J (F) Desloovere,K (F) Ortibus, E (F)SP62 Br<strong>and</strong>ão, M (F) Carmel, J (F) Ferre, C (F) Hung, Y (F) Gordon, A(F)SP63 Whittingham, K (F) S<strong>and</strong>ers, M (F) McKinlay, L (F) Boyd, R (F)SP64 Fjørtoft, T (F) Støen, R (F) Vågen, R (F) Øberg, G (F) Labori, C(F) Sognstad, N (F) Silberg, I (F) Loennecken, M (F) Møinicken, U (F)Adde, L (F)SP65 Diseth, T (F) Ramstad, K (F) Jahnsen, R (F)SP66 Bagley, A (F) James, M (F) Van Heest, A (F) Tomhave, W (F)SP67 Kuperminc, M (F) Houlihan, C (F) Stevenson, R (F) Conaway, M(F)78<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Disclosure IndexInvited SpeakersBack, S (F)Colver, A (F)Damiano, D (F)Gallo, V (F)Graham, K (A - Allergan Inc, E - Merz)Harris, G (A - NIDRR)Hurvitz, E (F)Majnemer, A (F)Novak, I (F)Rosenbaum, P (F)Russell, D (F)GCMAS SymposiumGCMAS Kay, R (F ) Novacheck, T (F) Ounpuu, S (F ) Pierz, K (F)Rethlefsen, S (F) Thomason, P (F) Wren, T (F)Pre-Conference SessionsPC1 Norvitz, G (F) Rimmer, J (F) Turk, M (E - Disability <strong>and</strong> HealthJournal, Elsevier,Inc) Peterson, M (F) van der Slot, W (F) Thorpe, D (F)PC2 Conceição, S (F) Colby, H (F) Johaningsmeir, S (F)PC3 Gaebler-Spira, D (F) Graf, A (F) Harris, G (A - NIDRR) Konop, K (F)Krzak, J (F) McHenry, B (F) Riedel, S (F) Slavens, B (F) Smith, P (F) Vogel,L (F) Zhang, L (E - Rehabtek, A - NIH, NSF, NIDRR)PC4 Alter, K (F) Heinen, F (E - Merz Pharma, A - Merz Pharma)Berweck, S (E - Merz Pharma) Schroeder, S (A - Merz Pharma)Chambers, H (A - Allergan Corp, E - Allergan Corp, E - MerzPharmaceuticals, E - Orthopediatrics) Nichols, S (F) Cooper, R (F)Jansen, C (F)Scientific Program CommitteeAlter, K (E - Allergan, Ipsen)Boliek, C (F)Dabrowski, E (E - Merz)DeLuca, S (F)Gaebler-Spira, D (A - NSF, NIH, NIDRR, UPIR)Givon, U (A - Medisan Israel, B - Medisan Isreal)Houlihan, C (F)Kolaski, K (F)Nelin, M (F)Novak, I (F)Ramey, S (F)Romness, M (E - Thomas Reuters)Samson-Fang, L (D - Vertract)Shore, B (F)Shrader, W (F)Stashinko, E (F)Weissman, B (E - NIDRR, TBI Children)Board of DirectorsDarrah, J (F)Delgado, M (A-Ipsen)Dutkowsky, J (F)Fehlings, D (F)Halligan, A (F)Hoffinger, S (A - AACPDM, D - Orthopediatrics, E - Orthopediatrics)Hyman, J (F)Majnemer, A (F)Narayanan, U (F)O’Donnell, M (F)Scherzer, A (F)Sienko-Thomas (F)Stevenson, R (F)Vargus-Adams, J (F)Vogtle, L (F)Wiart, L (F)Worley, G (F)AACPDM 67 th Annual Meeting • Research & Practice 79


Author IndexAAcevedo-Garcia, Dolores .......................................SP50Acharya, Kruti ...................................................SP9Adams, Richard C. ...............................................IC 9Adams, Sherri ...........................................DP22, DP34Adde, Lars. .................................SP32, SP54, SP64, I1, IC 2Adler, Ellie. .......................................................H2Aertbeliën, Erwin. ..............................................SP61Agrawal, Rishi .................................................DP15Aldahondo, Nanette. .....................................SP23, SP51Alex<strong>and</strong>rakis, George. ...........................................SP8Allison, Kristen ...............................................BRK 13Alter, Katharine. ...........................................PC4, SP37Ami, Noam. ......................................................H2Andersen, Guro L. ..............................................I8, I9Anderson, David .................................................H7Andrysek, Jan ..................................................SP17Ang, Soon Ghee. ..........................................C1, I4, I10Arnfield, Evyn ..................................................SP38Auld, Megan L. ..................................................E10Austgulen, Rigmor ................................................I8Ayyangar, Rita ...................................................PC4BBachrach, Steven ..............................................BRK 4Back, Steven ........................................Plenary speakerBaker, Louise ...................................................IC 30Bailes, Amy. ...................................................DP39Baird, Micah W. .................................................IC 34Baker, Richard . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . E7, G10Balemans, Astrid .................................................B5Bao, Yongde. ......................................................I9Barnea-Goraly, Naama. .....................................SP3, SP5Bartelt, Tera ..............................................DP23, PC2Bartlett, Doreen ......................................DP21, IC 25, E8Becher, Jules .....................................................B5Bell, Kristie L. ......................................A8, D3, F8, F9, F10Benedict, Ruth ....................................................I6Benfer, Katherine A. ......................................F8, F9, F10Benson, Jennifer. ..............................................DP24Berg, Kristin L. ....................................................A9Berry, Jack. .....................................................SP15Berweck, Steffen .........................................PC4, BRK 1Bickley, Mary C.. ...............................................BRK 2Biddiss, Elaine ...................................................IC 4Birutis, Rima I. ..................................................SP26Bishop, Lauri ..................................................DP35Blackburn, Christine .............................................G10Blackman, James A. ...............................................I9Blasco, Peter A. .........................................IC 22, BRK 18Bleyenheuft, Yannick .............................................B2Blucker, Ryan ...................................................SP15Boswell, Lynn ...............................................SP54, I1Bouyer, Laurent J................................................SP17Bowden, Joanne .................................................B4Boyd, Roslyn N.......DP30, SP1, SP6, SP22, SP38, SP42, SP63, IC 4, A8,A10, B4, B10, D3, E1, E2, E4, E5, F8, F9, F10, G2, G3Braddock, Mary ..................................................F7Brady, Susan ...................................................SP26Bragg, Taryn M....................................................B6Br<strong>and</strong>al, Merethe ...............................................SP45Br<strong>and</strong>ão, Marina................................................SP62Brautaset, Rune ..................................................H9Brenneman, Rodney............................................SP56Brevoort, Kristen ..............................................DP37Brezner, Amichai ...........................................SP46, B3Brooks, Jordan.....................................................I7Brown, Felicity L. .................................................E4Brown, Susan H. ................................................SP27Buchi, Karen....................................................SP30Buckon, Cathleen ..............................................SP10Buhr, Neeley .....................................................F3Burdo-Hartman, Wendelin A. ..................................DP10Burstein Gol, Dikla ................................................B3Bush, Emily.......................................................D4Butler, Charlene .................................................IC 8CCahill-Rowley, Katelyn ......................................SP3, SP5Caiafa, Jordana ..................................................D10C<strong>and</strong>en, Chantal ..............................................DP25Capoun, Lynne ...........................................SP12, SP28Cardoso, Michelle ...............................................D10Carle, Adam C. ...................................................H4Carlin, John B. ..............................................SP52, G4Carmel, Jason ..............................................SP62, B2Carney, Joan ..................................................DP27Carranza, Jorge................................................. DP9Carrigan, Elise .................................................DP18Chambers, Henry..................................PC4, SP4, IC 6, G180<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Author IndexChan, Jeremy ....................................................D4Chang, Franklin ..................................................C3Chang, Jessica. .................................................SP15Chang, Kate Wan-Chu ..........................................SP25Chapman, Courtney M.. .......................................DP19Charles-Edwards, Geoffery D. .....................................F4Chen, Kai. ............................................SP11, SP20, E6Chen, Po-Jung Brian. ..........................................DP17Chen, Suzy .......................................................D5Chiarello, Lisa ..............................................DP21, E8Chinchilli, Vernon. ..............................................SP56Choi, Young ..................................................G9, H3Chong, David ..................................................IC 30Chong, Jimmy. ...................................................C6Christensen, Deborah ................................... SP16, I6, F6Chung, Chin Youb ............................................G9, H3Chung, Peter J. ................................................BRK 7Cieza, Alarcos ..................................................SP58Clancy, Theresa. ................................................IC 16Clark, Sha ........................................................F5Clarke, Dave. ....................................................IC 3Clegg, Nancy J. ..................................................SP8Clemson, Jamie ...............................................DP16Colby, Holly ..............................................PC2, DP23Colombo, Graziano. ..............................................G5Colver, Allan. ............................ A4, A7, H6, Plenary speakerConaway, Mark. ................................................SP67Conceição, Simone. .............................................PC2Cooper, Robert. .................................................PC4Corden, Timothy E. .............................................SP50Cousins, Martha ..................................................H8Curatalo, Lindsey ...............................................SP37Czoch, Wojciech. .................................................C7DDabney, Kirk. .....................................................D9Dagia, Charuta .............................................SP52, G4Dalle-Donne, Isabella. ............................................G5Dallmeijer, Annet. ..........................................SP55, B5Damiano, Diane ...............................SP37, Plenary speakerDamiao, John .................................................DP16Damon, Bruce. ...................................................D4Dang, Van M. .....................................................A7Darrah, Johanna. ...............................................IC 25David, Michael ..................................................A10Davids, Jon...................................................D5, D6Davies, Peter S. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .A8, D3, F8, F9, F10Davis, Caroline ...................................................G8Day, Steven M. ...............................................BRK 15Dayanidhi, Sudarshan ............................................G1de Campos, Ana Carolina.......................................SP37De Cat, Jos . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . IC 18, E3De Cock, Paul ...............................................SP61, I5de Coteau, Adina.................................................F6De La Cruz, Matthew ...........................................SP29De Regnier, Raye-Ann .......................................SP54, I1DeBoer, Betty ....................................................A5deGiorgio-Miller, Nicholas O. .....................................C5Dekker, Kathleen . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . DP26deLacy, Michael ................................................SP57Delgado, Mauricio R. .......................................DP9, SP8Dell, Aubree...................................................DP20DeLuca, Stephanie C.............................................IC 8Desloovere, Kaat ...........................................SP61, E3Di Rezze, Briano ..................................................H8Dias, Luciano ............................................DP19, IC 20Dickinson, Heather O. ........................................A7, H6Dietz, Irene C. ..................................................IC 24Diseth, Trond H. ................................................SP65Ditchfield, Michael R. .......................................SP52, G4DiTucci, Jennifer...............................................DP24Dobson, Fiona ....................................................I4Dodd, Karen J.....................................................E7Doernberg, Nancy S. ...........................................SP16Domino, Joseph................................................SP25Doorenbosch, Caroline .........................................SP55Doshi, Khushboo...............................................SP60Drefus, Lisa C. ..................................................SP19Dubon, Mary ................................................... DP7Dufour, Sophie-Krystale ........................................SP17Dunn, Mary ....................................................SP51Durkee, Charles ................................................IC 31Durkin, Maureen ..................................................I6Duysens, Jaak ..................................................SP61Dykstra, Peter ....................................................G1AACPDM 67 th Annual Meeting • Research & Practice 81


Author IndexEEarle, Alison ....................................................SP50Egan, Tara ...................................................... DP7Eken, Maaike M ................................................SP55Ellies, Kevin. ......................................................G7Elliott, Catherine M.. .....................................SP7, G7, G8Elliott, Timothy .................................................SP15Elvrum, Ann-Kristin G. ..........................................SP45Erhardt, Rhoda P. ..............................................DP14Essilfie, Anthony. ................................................C10Evans, Maya ...................................................DP11FFabian, Vicki ......................................................G7Fahey, Michael ..................................................G10Fairhurst, Charlie F. ...............................................G6Falk, Mir<strong>and</strong>a .....................................................C9Farrell, Jennifer ...................................................H4Fatone, Stefania ................................................IC 11Fauconnier, Jérôme ..............................................A7Fay, Linda ........................................................H2Fehlings, Darcy .......................................IC 4, E9, H1, H2Feldman, Judith F. .................................................I3Fernhall, Bo ......................................................B1Ferre, Claudio ...........................................B2, B3, SP62Feyma, Tim. ....................................................SP21Feys, Hilde ...........................................SP61, BRK 5, I5Findlay, Briar. .....................................................E9Fjørtoft, Toril ....................................SP32, SP64, SP54, I1Flanagan, Ann. ...................................................F1Flynn, Laura ......................................................D4Fogelman, David J. .............................................SP20Foley, Joanna. .................................................DP19Forman, Jeffrey. ..................................................H5Forster, Tanya. ....................................................G6Fowler, Eileen G.. ............................SP10, SP39, SP44, BRK 7Fragala-Pinkham, Maria. ..........................................H5Franki, Inge ................................................IC 18, E3Franklin, Adiaha ................................................SP41Friel, Kathleen ....................................................B2Frisina, Cynthia ..............................................BRK 17Fuchs, Robyn K. .......................................... DP5, IC 26Fuller, Jason ......................................................B2GGaebler-Spira, Deborah ..........PC3, DP7, DP19, DP38, SP20, SP60,. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .BRK 1, IC 11, IC 16, SP11, E6, IC 37Gage, James R. ...................................................D7Gagliano, Nicoletta ...............................................G5Gaik, S<strong>and</strong>y ...................................................DP26Gallo, Vittorio........................................Plenary speakerGane, Claire ....................................................SP17Gannotti, Mary E. ......................................... DP5, IC 26Garcia, Kathy ...................................................SP30Garcia Reidy, Teressa...........................................DP27Gasior, Sherylin................................................DP29Gatewood, Corey................................................SP3Gelkop, Nava .....................................................B3George, Ameeka ............................................DP1, H5Gershan, William ...............................................SP24Ghosh, Debabrata..............................................SP18Gilbertson, Torey J. ............................................. DP8Gillick, Bernadette T. ............................................SP21Girolami, Peter ...........................................IC 14, IC 37Godreault, Jerad................................................ DP2Godreault, Leo ................................................. DP2Gofer-Levi, Moran ..............................................SP46Gogliotti, Shirley .................................................D4Gomez, Wendolyn .............................................SP60Gordish-Dressman, Heather .......................................I9Gordon, Andrew .....................DP35, SP40, SP62, IC 29, B2, B3Gordon, John ...........................................DP23, SP50Gormley, John ...............................................D1, D2Gormley, Mark ................................................. DP9Gorter, Jan Willem .................................DP21, DP25, IC 35Gorton, George ..................................................D6Gough, Martin ............................................... F4, G6Gowatsky, Jaimie .................................................B2Gradziel, Lisa ..................................................DP16Graf, Adam ......................................................PC3Graham, H Kerr...........................BRK 12, IC 5, C1, E7, G10, I4I10, PC3, Plenary SpeakerGraham, Nicholas ................................................E9Greenberg, Marcia B. ...........................................SP44Gresley-Jones, Tessa ..................................DP6, BRK 4, H2Grubich, Sarah ................................................DP28Gudjonsdottir, Bjorg...........................................DP36Guidotti, Rick........................................Plenary speaker82<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Author IndexGutman, Karli .................................................. DP8Guzzetta, Andrea. ..............................................SP61Gwynn, Hilary ..................................................IC 12HHaapala, Heidi J.. .........................................SP14, IC 13Hafer, Jocelyn F. ................................................SP19Hagedorn, Caroline ......................................SP24, SP30Hallett, Mark ...................................................SP37Hanna, Steven. ................................................DP21Harbourne, Regina .......................................SP12, SP28Harris, Gerald ..................................PC3, Plenary speakerHartling, Christine ..............................................SP24Hastings-Ison, T<strong>and</strong>y ............................................G10Hayner, Annamarie ................................................I1Healy, Michael. .................................................IC 15Heathcock, Jill. .................................................IC 29Heberer, Kent ......................................SP10, SP39, SP44Hegazy, Fatma A. .................................................B7Heimstad, Runa ...................................................I8Heinen, Florian ...........................................PC4, BRK 1Hellgren, Kerstin. .................................................H9Henderson, Gena ...............................................E10Henley, John .....................................................D9Hennrikus, William ...............................................C7Hern<strong>and</strong>ez, Hamilton. ............................................E9Heyd, Davin ...................................................DP11Heyrman, Lieve ...................................................I5Hidecker, Mary Jo C. ........................................SP53, H8Hintz, Susan. ....................................................SP5Hodgson, Bruce ..................................................C5Holden, Breanna .................................................A2Holt, Sheryl L. ..................................................SP35Hoon, Alec .......................................BRK 11, IC 12, IC 27Houdijk, Han . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .SP55Houlihan, Christine M. ..........................................SP67Howard, Andrew .................................................C4Hoye, Helene. ...................................................H10Hulleberg, Gunn ...............................................SP45Hung, Ya Ching. ..........................................SP40, SP62Hurvitz, Edward A.. .....................SP14, BRK 8, Plenary speakerHustad, Katherine C.. .........................................BRK 13Hyman, Joshua. .................................................C10IIdzior, Maciej ..................................................DP17Irgens, Lorentz M. .................................................I8Iversen, Ann-Charlotte ............................................I8JJachno, Kim ......................................................C1Jacobson, C. Jeffrey ..............................................H4Jacobson, Lena...................................................H9Jahnsen, Reidun..........................................SP65, IC 38Jamal, Leila...................................................BRK 11James, Michelle ................................................SP66Jansen, Christine ................................................PC4January, Alicia M. .................................................A3Jeffries, Lynn ...............................................DP21, E8Joachimides, Nick ................................................H2Johaningsmeir, Sarah...............................PC2, DP23, SP50Johnson, Michael ................................................I10Johnston, Leanne M. ...................................A1, A2, SP57Jones, John ......................................................C9Jordan, Rachel ............................................SP38, A10Joseph, Campos..................................................H7Jozwiak, Marek ................................................DP17KKanev, Paul.......................................................C7Kang, Sang Hoon........................................DP38, SP20Karahan, Sevilay ................................................SP53Katorski, Jenna .................................................IC 31Kaufman, Jacqueline ...........................................IC 13Kawamura, Catia M. .............................................D10Kay, Diane.....................................................DP25Kay, Robert M..........................................GCMAS, IC 32Kaya-Kara, Ozgun ..............................................SP53Keen, Mary .....................................................SP26Keevil, Stephen F..................................................F4Keith, Rebecca .................................................SP36Kelly, Erin H. .................................................. A3, F1Kennelly, Annie ................................................SP13Kentish, Megan .................................................A10Kerem-Gunel, Mintaze..........................................SP53Kern, Kathy L....................................................SP27Key, Sasha.......................................................E10Khan, Bilal .......................................................SP8Kim, Heakyung ...........................................PC4, DP35Kim, MinYoung.................................................SP43AACPDM 67 th Annual Meeting • Research & Practice 83


Author IndexKim, Peter .......................................................IC 1Kim, Tae Gyun ................................................G9, H3Kingsnorth, Shauna ..............................................H2Kirby, Russell ......................................................I6Klassen, Anne ..................................................SP58Kliim-Due, Mette ................................................IC 4Klingels, Katrijn. ...................................................I5Knights, Shannon ................................................E9Ko, Jooyeon ....................................................SP43Koclas, Louise .................................................DP33Kolaski, Kat ......................................................IC 8Kolehmainen, Niina ...........................................DP25Kolobe, Thubi ..................................................IC 29Konop, Katie ....................................................PC3Koop, Steven. ....................................................F7Korzeniewski, Steven J. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . I3Krach, Linda E.. ..........................SP21, SP23, SP51, IC 8, IC 15Kraus de Camargo, Olaf. ........................................ DP2Krzak, Joseph. ...................................................PC3Kukke, Sahana N. ...............................................SP37Kuo, Hsing-Ching ................................................B2Kuperminc, Michelle ...........................................SP67Kuperstein, Janice ..............................................SP35Kurz, Max J.. ..............................................SP12, SP28Kush, Scott J. .................................................BRK 15Kwon, Dae Gyu. ..............................................G9, H3Kwon, Soon-Sun .............................................G9, H3LLabhard, Susan C. ......................................BRK 6, BRK 9Labori, Cathrine ................................................SP64Lach, Lucy. ...................................................A4, A6LaForme Fiss, Alyssa ........................................DP21, E8Lahav, Anat ......................................................B3Lang, Cathryne. ..............................................A1, A2Langdon, Katherine ..............................................G8Lantzy, Alan ....................................................IC 36Law, Mary ................................................A4, A6, H8Lee, Kyoung Min .............................................G9, H3Lee, Mark R .....................................................IC 3Lee, Sang Hyeong ............................................G9, H3Lee, Seung Yeol ..............................................G9, H3Lee, Song Joo .................................................DP38Leffel, Kristin R. ..................................................SP9Lenhart, Rachel L. ................................................C8Lennon, Nancy ..........................................DP1, D9, H5Letzkus, Lisa C. ..........................................DP13, DP40Leutgeb, Ginny...................................................F7Levey, Eric B. .............................................IC 14, IC 27Lieber, Richard ..............................................SP4, G1Lien, Espen........................................................I9Lisanby, Sarah ....................................................B2Liu, Charley ..........................................SP11, SP20, E6Liu, Hanli ........................................................SP8Liu, Lin ...............................................SP11, SP20, E6Liu, Xue-Cheng ...............................................DP11Livanelioglu, Ayse . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .SP53Lochab, Jasjit J. ...................................................C4Loennecken, Marianne .........................................SP64Longinott, Patricia .............................................DP16Lopes, José Augusto F............................................D10Lopez-Ortiz, Citlali.........................................DP7, SP60Lorenz, John M. ...................................................I3Louca, Christalla................................................SP57Love, Lamara .....................................................F5Lowes, Linda P. ...................................................F5Lyubasyuk, Vera ..................................................G1MMa, Julie .........................................................C3Machado-Neto, Lauro IC20Mackey, Anna H. .............................................C2, C6Maenner, Matthew ................................................I6Magnuson, Sonja..............................................DP29Maitre, Nathalie L. ...........................................D4, E10Majnemer, Annette........................A4, A6, I2, Plenary speakerMaltais, Désirée B. ........................................SP17, IC 17M<strong>and</strong>ic, Carmen G. .............................................SP50Mankad, Deepali .................................................H2Mansoor, Jim K. ................................................SP49Manum, Grethe .................................................H10Marben, Kim ..................................................DP 31Marks, Warren A.................................................IC 27Marnane, Kerry .................................................SP42Martinelli, Carla...................................................G5Martino, Sara .....................................................A5Mâsse, Louise ..................................................SP58Mast, Joelle ...................................................BRK 3Matheney, Travis ...............................................SP59Mathewson, Margie .............................................SP484<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Author IndexMatsumoto, Hiroko. .............................................C10Mattern-Baxter, Katrin ..........................................SP49Mazer, Barbara ....................................................I2McCoy, Sarah W.. ......................................DP8, E8, DP21McDonald, Craig M. ............................................SP10McFadd, Emily. ...............................................BRK 13McFadyen, Brad<strong>for</strong>d J. ..........................................SP17McGahey, Ailish ..............................................D1, D2McGovern, Connie .............................................SP25McGovern, Donald .............................................IC 11McGuire, Emma M. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .SP22McHenry, Ben ...................................................PC3McKay, Bryon R. ..................................................G1McKinlay, Lynne ....................................SP63, A10, E4, E5McLean, Lynore ...............................................DP29McLoughlin, Brenda ..........................................D1, D2McNeil, Stefani .................................................SP49McPherson, Amy ...............................................SP36Meier, Jeremy ..................................................SP24Menk, Jeremiah ................................................SP21Menon, Aless<strong>and</strong>ra. ..............................................G5Meyer, Emily .....................................................B6Meyer Heim, Andreas .........................................BRK 1Meyns, Pieter. ..................................................SP61Milbury, Kim ............................................DP22, DP34Miller, Freeman. ..................................................D9Miller, Katherine ................................................ DP8Miller, Laura .........................................SP42, B4, E1, E2Miller, Michelle ...................................................F5Miller, Patricia ..................................................SP59Milzani, Aldo .....................................................G5Miros, Jennifer E. ...............................................IC 17Mitchell, Louise E. .........................................SP22, IC 4Molenaers, Guy ............................................IC 18, E3Monbaliu, Elegast ..........................................BRK 5, I5Moore, Cynthia. ..................................................F6Morais Filho, Mauro C. ...........................................D10Moreau, Noelle G. ..............................................IC 26Morgan-DeWitt, Esi. ..............................................H4Moritz, Chet. ................................................... DP8Møinicken, Unn Inger ..........................................SP64Msall, Michael .........................................SP9, SP32, A9Mueske, Nicole. ..................................................F2Mukherjee, Sue.................................................SP13Mulcahey, Mary J. ..............................................IC 10Muntz, Harlan ..................................................SP24Murphy, Kevin P.................................................IC 31Murphy, Nancy.....................................SP24, SP30, IC 24Musielak, Bartosz J. ............................................DP17Mutlu, Akmer ............................................SP33, SP53NNaber, Erin ....................................................DP27Narayanan, Unni G. .........................................IC 23, C4Nattiv, Aurelia ..................................................SP39Nelson, Maureen ...............................................IC 3Nelson, Virginia.................................................SP27Neves, Daniella L.................................................D10Newmeyer, Amy J.................................................F5Nguyen, Nguyenvu ...............................................I1Nichols, Stephen ................................................PC4Nixon-Cave, Kim ................................................SP2Noble, Jonathan J.................................................F4Noritz, Garey .......................PC1, DP10, BRK 10, IC 6, F5, IC 21Novacheck, Tom ......................GCMAS, SP51, IC 1, C4, D7, D8Novais, Eduardo ..................................................C3Novak, Iona .........................................Plenary speakerNyquist, Astrid J.................................................IC 38Nyquist, Tor Erik H...............................................IC 38OO’Donnell, Maureen ............................................SP58O’Neil, Margaret E.................................................H5O’Shea, Simone ..................................................B1Oeffinger, Donna.............................................D6, F3Oftedal, Stina.................................................A8, D3Ogan, Jim ................................................ DP3, IC 24Ohlrich, Laurie .................................................SP37Okun, Alex<strong>and</strong>er L. ................................DP23, SP50, IC 21Olesinski, Eryn.................................................DP39Oppenheim, William L. ............................SP39, SP44, BRK 7Oraibi, Saleh......................................................B3Ortibus, Els ..................................................SP61, I5Ostermaier, Kathryn K.....................................SP41, SP48Ounpuu, Sylvia ........................................GCMAS, IC 33Owen, Elaine ...................................................IC 11Øberg, Gunn Kristin ............................................SP64AACPDM 67 th Annual Meeting • Research & Practice 85


Author IndexPPagliuca, Kathy K.. .............................................DP32Palisano, Robert ............................................DP21, E8Pan, Zhaoxing. ...................................................C3Paneth, Nigel. .....................................................I3Panizzolo, Fausto Antonio .......................................SP7Panneck, Kerstin. ........................................SP1, G2, G3Panou, Artemisia .................................................G5Pansell, Tony .....................................................H9Pareezer, Laura ............................................SP38, A10Park, Moon Seok .............................................G9, H3Paternotte, Martine. ...........................................DP33Patterson, Janet .................................................SP9Peacock, Georgina .........................................SP16, F6Pearson, Jennifer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . E10Pelegano, John. ................................................IC 34Penner, Melanie ..................................................H1Peterson, Mark .....................................PC1, SP14, BRK 8Peyton, Colleen ...........................................SP32, IC 2Phillips, Lauren J. ...............................................SP27Piantino, Jessica ................................................SP32Picaut, Philippe. ................................................ DP9Pidcock, Frank. ................................................DP27Pierz, Kristan A. ........................................GCMAS, IC 33Pinto-Martin, Jennifer A. ...........................................I3Pistav-Akmese, Pelin. ...........................................SP33Pitcher, Christian A.. .....................................SP7, G7, G8Pontén, Eva ......................................................B8Poretti, Andrea .................................................IC 12Porter, Francine ................................................SP47Portinaro, Nicola M. ..............................................G5Poulin, Chantal ...............................................A4, A6Powell, Dustin. .................................................SP59Prange, Hanna ................................................. DP8Price, Robert ................................................... DP8Prinzie, Peter ......................................................I5Prosser, Laura ..................................................IC 29Puligopu, Aneel K.. ...............................................B9Purohit, Aniruddh K.. .............................................B9Purtzki, Jacqueline ............................................. DP4RRachwani, Jaya .................................................SP47Radtka, S<strong>and</strong>ra ...................................................H7Ramstad, Kjersti ................................................SP65Rao, S<strong>and</strong>hya...................................................SP39Rasmussen, Aaron..............................................IC 28Rasmussen, Betina ..............................................IC 4Rawicki, Barry ...................................................G10Reddihough, Dinah ...............................SP52, IC 30, G4, I4Reddy, Srikanth S. ................................................B9Reid, Siobhan ...........................................SP7, G7, G8Reid, Susan M.........................................SP52, G4, IC 30Reigstad, Donna ...............................................IC 14Ren, Yupeng ...................................DP38, SP11, SP20, E6Rethlefsen, Susan .....................................GCMAS, IC 32Revivo, Gadi.................................................... DP9Reynolds, Robert J. ...........................................BRK 15Rha, Dong-Wook ................................................SP3Riedel, Susan ....................................................PC3Ries, Andrew .....................................................D8Rimmer, Jim.....................................................PC1Rios, Dianne.................................................... DP8Rischall, Ariel .....................................................C4Rivera, Monica ...................................................H7Riveros Charry, Rocio ......................................IC 7, IC 15Roberts, Heather ................................................SP8Rodda, Jillian M. ................................................IC 19Rodriquez, Adrian .............................................DP24Rodriquez, Sharon.............................................DP12Rodriquez, Steve ..............................................DP12Roman, Christine A. ............................................IC 36Romero, Mario I..................................................SP8Rooks, Cherri .....................................................D4Rose, Jessica ...............................................SP3, SP5Rose, Stephen...........................................SP1, G2, G3Rosen, Lauren ..................................................IC 20Rosenbaum, Peter.........DP25, BRK 10, H8, BRK 18, Plenary speakerRoss, Stephanie .................................................SP6Roye, David P. ...................................................C10Rozumalski, Adam................................................D8Russell, Dianne ......................................Plenary speakerRussell, Heather F. ................................................A3Russman, Barry S.........................................DP9, BRK 18Ryan, Deirdre...............................................IC 32, F2Ryan, Jennifer ................................................D1, D2Rychlik, Michal ................................................DP1786<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Author IndexSSaavedra, S<strong>and</strong>ra ...............................................SP47Sakzewski, Leanne. ....................................DP30, B4, B10Salem, Yasser .....................................................B7Salmanowicz, Colette ............................................F7S<strong>and</strong>ers, Matthew ..........................................SP63, E5Santamaria, Victor ..............................................SP47Sapolich, Shannon G.. ...........................................SP9Satterfield, Suzanne .............................................E10Sauve, Karen ...................................................SP58Scheck, Simon ..................................................SP1Scher, David. ...................................................SP19Schiariti, Veronica ..............................................SP58Schilling, Ashley ..................................................D4Schmit, Jennifer .........................................DP37, DP39Schmitz, Norbert .............................................A4, A6Schreiber, Michael. .............................................SP32Schroeder, Sebastian .....................................PC4, BRK 1Schwartz, Michael H. .............................IC 15, C8, SP51, D8Segal, Lee ..............................................SP56, C7, C9Selber, Paulo ..............................................IC 5, IC 19Shapiro, Danielle N.. ............................................SP31Shavelle, Robert ...................................................I7Shaw, Ellen. ......................................................D4Sheha, Evan D. ..................................................C10Shen, Eunice Y. ..................................................SP2Shevell, Michael ..............................................A4, A6Shields, Nora .....................................................B1Shierk, Angela. ..................................................SP8Shikako-Thomas, Keiko .................................IC 17, A4, A6Shin, Eyun-Jung ..................................................C4Shiu, Cheng-Shi ..................................................A9Shore, Benjamin J. .........................................SP59, IC 8Shortl<strong>and</strong>, Adam . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . F4, G6Shrader, Carol .................................................DP12Shrader, M. W. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . DP12, SP56, IC 6, C7, C9Sienko Thomas, Susan ..........................................SP10Sigurdardottir, Solrun. ...........................................H10Silberg, Inger Elisabeth .........................................SP64Silberg, Tamar ..................................................SP46Simkowski, Juila M. .............................................SP60Simpson, Pam. ...........................................G10, I4, I10Sison-Williamson, Mitell ......................................D5, D6Skranes, Jon S.. ....................................................I9Slavens, Brooke..................................................PC3Slonim, Naomi ...................................................H2Smith, Ashlyn ................................................BRK 13Smith, Linsley B. .................................................SP8Smith, Michael ...................................................F6Smith, Peter .....................................................PC3Smoyer, William ..................................................F5Snider, Laurie......................................................I2Snyder, Brian ...................................................SP59Sobotka, Sarah A.................................................SP9Sobus, Kerstin M. ..............................................DP20Sofronoff, Kate ...................................................E4Sognstad, Nils Thomas .........................................SP64Sohrweide, Sue ................................................IC 28Sommers, Katherine..............................................D9Song, Wei-Qun ...................................................E6Soscia, Joanna ..........................................DP22, DP34Spierre, Louise.................................................DP18Sreshta, Stephen ...............................................SP18St. John, Tanya M. .............................................. DP4Stan<strong>for</strong>d, Arielle ..................................................B2Stannage, Katherine.........................................SP7, G7Stashinko, Elaine .............................................BRK 11Staudt, Loretta ...........................................SP10, SP44Stevenson, David K. ........................................SP3, SP5Stevenson, Richard .........................................SP67, F8Stott, N. S. ....................................................C2, C6Stout, Jean L. ........................................BRK 14, IC 7, D7Støen, Ragnhild .......................................SP64, SP54, I1Str<strong>and</strong>, Kristin M. ..................................................I8Strauss, David .....................................................I7Sukol-Moulton, Theresa ........................................IC 16Sunaert, Stefan .................................................SP61Sung, Ki Hyuk ................................................G9, H3Surkar, Swati M. ..........................................SP12, SP28Suskind, Dana L..................................................SP9Suskind, Elizabeth ...............................................SP9Sussman, Michael . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .SP10Svoboda, Melissa...............................................IC 22Swaroop, Vineeta T.......................................DP19, IC 20Sweeney, Jane K. ................................................SP2Swift, Judy .....................................................SP36Switzer, Lauren ...............................................E9, H1Szatmari, Peter ...................................................H8AACPDM 67 th Annual Meeting • Research & Practice 87


Author IndexTTann, Beverly ..................................................DP19Tapia, Carl D. .............................................SP41, SP48Taylor, Nicholas. ...............................................B1, E7Tedroff, Kristina. ..................................................H9Thelen, Darryl G.. .................................................C8Thibault, Sylvie ................................................DP33Thomason, Pam ...................... GCMAS, BRK 12, IC 5, C1, E7, I4Thompson, Megan ..............................................SP3Thorkelsson, Haraldur .........................................DP36Thornton, Lisa ...............................................BRK 17Thorogood, Christine. .........................................DP18Thorpe, Debbie .................................................PC1Tian, Fenghua ...................................................SP8Tidball, Abigail ...................................................F5Tilton, Ann ..................................................... DP9Titus, Jeff ........................................................IC 3Tomhave, Wendy. ..............................................SP66Torode, Ian .......................................................I10Torres, Mario ..................................................DP24Torretti, Joel ....................................................SP56Tran, Linh .........................................................I7Trenkle, Jessica ................................................DP28Trost, Joyce ................................................SP51, F7Trost, Stewart ....................................................H5Truong, Walter H. .................................................C4Tsai, Liang-Ching ..............................................DP38Tsao, Henry ......................................................G2Tse, Anissa ..................................................... DP9Turk, Margaret. ..................................................PC1Turlington, Patricia ............................................DP27UUhing, Paul. ....................................................SP20Umphred, Darcy ................................................SP2VVågen, R<strong>and</strong>i ...................................................SP64Vakil, Eli ........................................................SP46Valentine, Jane ..........................................SP7, G7, G8Valentine, Karen ..........................................SP24, SP30Van den Broeck, Christine ..................................IC 18, E3van der Burg, Jan ...............................................IC 30van der Slot, Wilma M. .................................... PC1, IC 35Van Gestel, Leen. ...............................................SP61Van Heest, Ann. ................................................SP66van Hulst, Karen ................................................IC 30Van Naarden Braun, Kim.....................................SP16, I6Van Speybroeck, Alex<strong>and</strong>er.......................................F2van Wely, Leontien ...............................................B5V<strong>and</strong>erhave, Kelly ..............................................SP56Vargus-Adams, Jilda N. ...................... DP39, IC 34, H4, BRK 17Vassar, Rachel ..............................................SP3, SP5Velayudam, Kohila..............................................SP18Vik, Torstein ..............................................SP45, I8, I9Vizcarra, Lourdes ..............................................DP24Vogel, Lawrence C. ...........................PC3, SP34, IC 10, A3, F1Voigt, Robert G. ..........................................SP41, SP48Voisin, Julien I...................................................SP17von der Luft, Greta ...............................................A5WWalker, Janet .....................................................F3Walsh, Michael . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . D1, D2Walt, Katie....................................................BRK 14Walter, Samantha ................................................A1Wang, Liang....................................DP38, SP11, SP20, E6Wang, Lu........................................................E10Ward, Am<strong>and</strong>a .................................................SP34Ward, Marcie ........................................IC 1, IC 15, IC 28Ward, Samuel ...................................................SP4Ware, Robert ....................SP38, A8, A10, D3, E1, E2, F8, F9, F10Warnick, Jennifer ...............................................SP60Warren, Ann Marie .............................................SP15Warren, Robert H. ......................................SP15, BRK 16Warschausky, Seth A. ....................................IC 13, SP 31Weck, Mary .................................................SP54, I1Wee, Elin .........................................................B1Wehrwein, Erica ..................................................D4Weir, Kelly A. .............................................F8, F9, F10Weir, Shannon..................................................IC 23Welsh, C<strong>and</strong>ice...................................DP12, SP56, C7, C9Wernimont, Cory W. ............................................SP27Wesling, Michele ...............................................SP26Whisler, S<strong>and</strong>ra................................................DP24Whitaker, Agnes H. ................................................I3Whittingham, Koa ..................................SP6, SP63, E4, E5Willette, S<strong>and</strong>ra ..........................................SP12, SP28Willis, Denise .................................................BRK 16Willoughby, Kate .........................................IC 5, C1, E7Wilson, Nichola C. ............................................C2, C688<strong>American</strong> <strong>Academy</strong> <strong>for</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>and</strong> Developmental Medicine • FINAL PROGRAM


Author IndexWingate, Martha ..................................................I6Winters, Janine .................................................IC 21Wood, Staci ....................................................SP47Woollacott, Marjorie. ...........................................SP47Worley, Gordon .................................................IC 9Wren, Tishya. .............................................GCMAS, F2Wright, Marilyn. ...............................................DP26Wu, Winnie. ......................................................E6XXie, Wen Yan .....................................................H1YYang, Chung-Yong .........................................SP11, E6Yang, Edward ..................................................SP32Yang, Lynda ..............................................SP25, SP27Ye, Zi .............................................................E9Yeargin-Allsopp, Marshalyn. .................................SP16, I6Yngve, David ...................................................SP29Young, Jeffrey ..................................................IC 19ZZebracki, Kathy. ......................................SP34, IC 10, A3Zhang, Lei. .......................................................F7Zhang, LiQun .............................PC3, DP38, SP11, SP20, E6Zhang, Shiran ....................................................C2Zhang, Xin ...............................................SP12, SP28Ziviani, Jenny. .................................DP30, SP42, B4, E1, E2Zvara, Kimberley ..............................................DP11Zwaigenbaum, Lonnie ...........................................H8AACPDM 67 th Annual Meeting • Research & Practice 89


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