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Tuggeranong United FCkicks a goal for epilepsyFor the past 3 years, the Tuggeranong United Football Club(TUFC) have joined forces with Epilepsy ACT to holdtwo annual events, the ‘Adam Fry Memorial Shield’ and the‘Dawn to Dusk 12 Hour Non Stop Football Match’.Both days operate around two themes, one is thecelebration and enjoyment as a player and spectator in oneof the world’s greatest games –football. The other, and thisis even more important, is that the days are dedicated toraising awareness and funds for epilepsy. Through sausagesizzles, raffles, player and spectator donations, the events havemanaged to raise over $3000 towards local charity EpilepsyACT.In 2006, Tuggeranong United Football Club decided it wouldalso like the challenge of putting together a non-stop footballmatch for 12 hours straight and for the past two years havebeen succesful at it. The day has also been dedicated to raisingmuch needed monies for Epilepsy ACT through participantdonations. Participants in the day include males and females,young and old, professional and amateur players. The gameis split between two teams, the Kambah United “Greens” andthe Wanniassa “Golds”, and involves a series of 20-minute“roll-on, roll-off” matches. At the end of the day the scores forboth sides are added up, with the first year ending in an 83 alldraw while in 2007 the “Greens” defeated the “Golds” 109 to104. The event is held every November in conjunction with theTuggeranong Community Festival.Executive Director of Epilepsy ACT, Jacinta Cummins said‘Research shows that people with epilepsy are often excludedfrom team sports. By working together and raising awarenessof epilepsy within the sporting community we hope that willsoon be a thing of the past in the ACT.’Team Manager, Matthew ‘Macca’ McDonald added‘Tuggeranong United Football Club has supported EpilepsyACT for a number of years and as a player it is rewarding tohelp a worthwhile cause through our footballing community.I look forward to our further support through the world game!’The ‘Adam Fry Memorial Shield’ is held in memory of clubplayer, Adam Fry, who tragically lost his life at a young age in2004. This event was held for the 4th year in April and broughttogether teams from numerous clubs throughout Canberra,including Canberra Olympic, Belwest, ANU, Gungahlin, andTuggeranong who are all keen to support and play for such aworthy cause.‘It’s a great way to remember our friend who loved the gameof football and its also a day to allow everyone in the club andthe community to show its support for Epilepsy ACT,’ said‘Macca’ McDonald.Tuggeranong United Football Club Patron and FederalMember for Canberra, Annette Ellis MP on attending thisyear’s event said ‘It was a great afternoon and most enjoyablefor me, I was particularly pleased to see Adam’s parents wereable to attend. This event is a terrific concept that honoursthe memory of Adam and maintains the connection betweenAdam’s family and Epilepsy ACT. My congratulations to theTuggeranong United Soccer Club and to the other teams whocompeted. The funds raised will be welcome by EpilepsyACT who provide wonderful support to the community.’Tuggeranong United Football Club hopes to be able tocontinue these two events well into the future, with theexpectation that they will continue to get bigger and better.18 THE EPILEPSY REPORT MAY 2008
The Epilepsy Centre, SA/NTMoving MountainsThe Governor of South Australia,His Excellency Rear AdmiralKevin Scarce AC CSC RANR, in thepresence of The Epilepsy Centre’sChief Executive Officer, Robert Cole,together with the Board and more than120 special guests, officially openedThe Epilepsy Centre in Hindmarsh, onThursday, 1 May 2008.When asked the reason for the moveRobert Cole said “The Epilepsy Centrerelocated offices to Hindmarsh to allowgreater access to the region’s mostvulnerable consumers and that the newspace is well suited to the needs of TheEpilepsy Centre, offering a balance ofmeeting and office space.“The relocation was a great move asit allowed staff to work closely withthe community on projects improvingservices to people living with epilepsy.Robert added, “This Centre continuesthe tradition of excellent responseto people living with epilepsy. TheEpilepsy Centre has a 32 year trackrecord of helping those who need usmost and this service centre will help usto deliver our services more effectivelyand efficiently.“In the past 12 months alone, we haveassisted over 6,500 people. Over half ofthose enquiries were dealt with faceto-face.I’m sure the new location willensure The Epilepsy Centre assists evenmore people needing assistance.“We have grown to become the majororganisation in South Australia andthe Northern Territory representingpeople living with epilepsy. We existto improve the health, well being andquality of life of people with Epilepsyby providing services in the areasof: Advice, Advocacy, CommunityEducation, Referral Services,Counselling and Support.”The Epilepsy Centre relocation wasdriven by a need for more efficientspace utilisation, and reduced operatingexpenses noted Mr Cole.The historic Hindmarsh MemorialInstitute, built as a tribute to the citizensof Hindmarsh commemorating TheGreat War 1914-1918, was opened in1922 by Governor Weigall. It is nowhome to The Centre and is located at 266Port Road, Hindmarsh, South Australia.The Epilepsy Centre can be contactedon 1300 852 853 or for more information,visit www.epilepsycentre.org.au .Photos: Robert Cole, His Excellency Rear AdmiralKevin Scarce AC CSC RANR Governor of SouthAustralia, Mrs Scarce and Barbara Rajkowska,President The Epilespy Centre SA/NT at the officialopening of The Epilepsy Centre andThe Epilepsy Centre’s new premises, the historicHindmarsh Memorial Institute.THE EPILEPSY REPORT MAY 200819
Page 2: WELCOMEThe exciting development in
Page 11 and 12: Epilepsy andsocial stigma:myths and
Page 14 and 15: Martin RaffaeleSteppinga personal j
Page 16: An invitation from theEpilepsy Foun
Page 21 and 22: the provider must be willing to neg
Page 23 and 24: my favouritething aboutcamp?epileps
Page 25 and 26: Providing epilepsy services to a re
Page 27 and 28: An interview with Little PossWhere
Page 29 and 30: Enduring power of attorney(financia
Page 31 and 32: face2faceJacinta Cummins joined Epi

May 2008 - Epilepsy Australia

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May 2008 - Epilepsy Australia

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