unexpected rewardsconfessions of a volunteer by Lesley RidgewayBack in 1998, I took myself off toBendigo to complete a degree inOutdoor Education. At that time, I hadbeen involved in camp programs, teambuilding/personal development and trainthe trainer programs for 5 years. In myfinal year in 2000, I was required to dovarious forms of field placement. It wasthere on the noticeboard of potentialplacements that my relationship with the<strong>Epilepsy</strong> Foundation of Victoria began.I made an appointment with LisaRath in order to learn more about it alland for Lisa to assess my suitabilityas a volunteer. The contact up to thispoint was impressive. I had spokento Rosemary from Melbourne andLisa from Bendigo and enjoyed thefriendliness and professionalism thatwas given. After my appointment withLisa, I intuitively knew that I wasgoing to be more involved with thisorganisation that just a once off campexperience. I sensed and liked thenurturing and highly organised feelingthat I had so far. Lucky for me that Lisaassessed me as a suitable volunteer.I attended the adult camp that year,re-acquainting with Lisa and meetingJan Burns, the camp co-ordinator.Another staff member, Camille Heagneywas brilliant with the volunteer ‘getto know you’ activities and with theoverall camp activity program. Again,I was impressed with the efficiency,organisation and professionalism inwhich the camp was run.The following year, I attendedthe Family Camp to find that it wasCamille’s last camp as she was soon tobe leaving the <strong>Epilepsy</strong> Foundation. Imentioned to Jan that I would be happyto co-ordinate programs in the future ifthey needed someone. Jan thought thatsounded like a good idea. That was eightyears and 16 camps ago.I have really enjoyed each and everycamp experience, but it is more thanthat for me. It is about friendships andrelationships. I have developed lovelyfriendships with Jan and Lisa, twowomen that I highly respect for whatthey do and how they do it. The love,the care, the warmth that they give tochildren and their families, and adultswith epilepsy is inspirational. I havelearned from them and continue to do so.Talking with and listening to people atcamp, particularly mums and dads is sovery eye opening, rewarding, sad, joyful,heart breaking and also very funny attimes. I may never see them again orthey may come to several more camps.As a volunteer, I am giving of myselfand expect nothing in return. Butthere’s the catch because I get so muchin return. I get enrichment in so manyways. Sharing in people’s lives for afew days, people with, or affected by,epilepsy offer insight into their world– hardships and struggles, joys anddisappointments, hilarity and sadness.You know, it is largely hardships andstruggles, but for most people on camp,they find others in their very samepredicament, they share stories, theymake friends, they swap numbers, theycry (for all sorts of reasons), they laughand relax for the first time in ages.Seeing people relax, talk and laughtogether. That is what is special. That iswhat makes me feel enriched because Iam a very small part of this wonderfulprocess.I walk away from each camp havingexperienced all this, having the honourof seeing inside and sharing otherpeople’s worlds. My experiences at campmake me a better person and no amountof money or reward can do that. It is therole of a volunteer and the relationshipsthat allow me to receive more than Igive.The photo is of a mural made atthe last family camp. Every family isrepresented in their own individualunique and beautifully creative way. Wehave just started doing these at the lastfew camps. We will need a lot of walls tohang them on if we keep doing it. Thismural can be viewed at the Foundations’office in Camberwell.24 THE EPILEPSY REPORT MAY <strong>2008</strong>
Providing epilepsy services to a region covering almost 2.5 million square kilometres– unimaginable? … not for Mark Francis, Services Manager for The <strong>Epilepsy</strong> Centreof South <strong>Australia</strong> and The Northern Territory. For this is his ‘office’ and the isolatedcommunities he assists, his ‘clients’.<strong>Epilepsy</strong> Awareness Programassisting rural and remote communitiesThe <strong>Epilepsy</strong> Awareness Programhas been a major focus for The<strong>Epilepsy</strong> Centre.The aim of the project is to providequality services for people with epilepsy,their families and the communitythroughout regional South <strong>Australia</strong> andThe Northen Territory.The State of South <strong>Australia</strong> covers anarea of 1,043,514 sq. km. so as you canimagine many miles have been coveredalong highways and unsealed dustyroads since this program began.Just to give you an idea of thedistances covered since the programbegan – Coober Pedy to the north isapproximately 835 kms, west to Cedunais around 770 kms, the most southernregion of Mt Gambier lies 435 kms fomAdelaide and to the east it is 245 kms toRenmark. And this is only one way! Areliable vehicle is essential and we weredelighted when Community Benfit SAfunded the purchase of a vehicle thatcould handle the many road conditionsone encounters on these trips.Many rural and remote areas havebeen visited and assistance has beenprovided to indigenous communities,school communities, rural supportgroups, nuring and medical staff in ruralhospitals and nursing homes, hospitals,child care centre, GP clinics, libraries,field days and workplaces.The <strong>Epilepsy</strong> Awareness Programprovides these communities with acomprehensive range of services.Assistance varies from providing generalepilepsy education, teacher training,medical staff training, formulating careplans, referring clients to health andwelfare agencies, counselling, advocacyand support.The results of this program aretangible. There is now greater awarenessand knowledge about epilepsy in allthe communities and the provision ofnew support groups and counsellingservices for those people living withepilepsy in such remote locationshave had a marked effect on theirself esteem and confidence. We havealso seen improvement in the healthand independence of people livingwith epilepsy in these communities.The program has gone a long way indemystifiying epilepsy, particularly inindigenous communities.To date, twenty one schools haveparticipated in the program. Thisexpansion of our services for schoolsin regional areas has resulted in schoolcommunities becoming ‘<strong>Epilepsy</strong>Aware’. But our work here has onlybegan as there are over 310 schools yetto be visited in rural areas.Similarly, the expanded service is wellregarded by regional medical providersas the provision of current informationon epilepsy, seizure recognition andmedications has greatly increased theirepilepsy knowledge.In the Northern Territory, we havebegun to mirror our services offeredin rural and remote SA. So far, wehave provided support, training andinformation services to areas such asTennant Creek, Jabiru, Humpty Doo,Katherine and Pine Creek. We haveestablished relationships with a numberof Aboriginal Health Centres and havepartnered with other Disability andHealth Support Agencies to deliverservices collaboratively throughout theNorthern TerritoryAs part of our commitment to ruraland remote communities, we are aboutto embark on an exciting project toconnect people in rural and remoteareas to the <strong>Epilepsy</strong> Centre via VideoLink up. We plan to pilot the project inMt Gambier in the South East of South<strong>Australia</strong>. This project will enablesupport groups to have access to ourfacilitators via video link as well asenabling our workshops to be streamedlive giving participants in rural areas theability to interact with the speakers andother participants. Our plan is to extendthis service throughout South <strong>Australia</strong>and The Northern Territory.The <strong>Epilepsy</strong> Centre provides supportto people living with epilepsy and theirfamilies and the community throughoutregions that cover nearly 2.5 millionsquare kilometres which is why thisproject is so important for us to continueto deliver vital support services to ruraland remote communities.10,000 people assisted in rural areas ...• 1360 students and over 100 education staff across 21 schools in rural areas• Education was provided to 200 nursing and medical staff in rural hospitals and nursing homes• Delivered over 5000 pamphlets to hospitals, schools, child care centres, GP clinics and libraries etc• Support groups set up in Mt Gambier and Pt Lincoln with more planned for Whyalla, Naracoorte and Pt Pirie• Provided community education / information to over 1000 people through field days, general information sessions and workplacesTHE EPILEPSY REPORT MAY <strong>2008</strong> 25