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Frequently Asked Questions - Urological Society of Australia and ...

Frequently Asked Questions - Urological Society of Australia and ...

Frequently Asked Questions - Urological Society of Australia and

Frequently Asked QuestionsThe following are some of the most Frequently Asked Questions by USANZ users of the PRIAS database.For more FAQs, click here to link to the Frequently Asked Questions section of the PRIAS website.If you have a question regarding PRIAS that is not answered here, please contact the USANZ PRIAS Project DatabaseManager - Email: priasinfo@usanz.org.au | Phone: +61 2 9362 8644Questions on Patient Inclusion:Q: What is the standard follow-up visit scheme in PRIASand what data is required at each visit?A: A standard follow-up scheme is as follows: LAB, EVALUA-TION, LAB, BIOPSY.•••LAB visit: you are required to enter data on Date, PSAdate and PSA value (free PSA, Charlson and commentsare optional)EVALUATION visit: same as above plus DREBIOPSY visit: as above plus number of cores andGleason.Q: I want to enter patients retrospectively (patients whohave been on active surveillance for a certain amount oftime, but outside of the PRIAS-study). Is this possible?A: Yes, the dates of all the previous visits can be enteredretrospectively. It should however be kept in mind that it isan essential part of the protocol that the PRIAS-timetable isfollowed when follow-up visits are planned. It is preferablethat PRIAS is used prospectively. Urologists must ensureinformed consent is sought before retrospectively enteringa patient in PRIAS.Example 1: A patient is on active surveillance for 2 yearsnow. His PSA has been evaluated every 3 months, his clinicalstage every 6 months. Standard repeat biopsies after 1year were however not performed.- The patient data is not suitable to be retrospectivelyentered into the PRIAS-study; repeat biopsies after 1 yearare required.Example 2: A patient has been diagnosed with prostatecancer 4 months ago and an active surveillance-policy hasbeen chosen. 1 month ago his PSA was checked.- This patient until now conforms to the PRIAS-timetableand can be included into the study at this moment. Thetimetable should be followed from then on. This meansthat the next visit (which will be follow-up visit # 2,standard planned after 6 months) has to be planned after2 months and should consist of a PSA-measurement andclinical evaluation. 3 months after that visit the PSA shouldbe measured again, another 3 months later a completecheck including repeat biopsies should be performed, andso on.Example 3: A patient is on active surveillance for just over1 year now. Clinical evaluation and PSA-measurementswere performed every 3 months. No repeat biopsieshave been performed until this day.- This patient could be entered into the database,but repeat biopsies should be planned as soon aspossible, to collect all the necessary data. Afterthis has been done and all the data is entered,this patient continues to visit 5, which has to beplanned 15 months after the inclusion date andshould consist of a lab-visit (PSA-measurement).More information and examples regarding retrospectiveentering of data can be found in theFrequently Asked Questions section of the PRIASwebsite. Click here.Q: Trouble-shooting retrospective entering ofdata:Example 1: If a urologist is retrospectively enteringinformation, how do they add in the 12 monthbiopsy information. The only active entry windowis a Lab visit, despite the biopsy being done at theright time interval post-diagnosis.The PRIAS website follows a fixed scheme basedon the date of diagnosis, as per the followingexample:1. October 2005: Lab PSA test2. January 2006: Evaluation PSA test & Physicalexamination3. April 2006: Lab PSA test4. July 2006: Biopsy PSA test & Physical examination& biopsy5. October 2006: Lab PSA test6. January 2007: Evaluation PSA test & Physicalexamination7. April 2007: Lab PSA test...etcA: If a urologist does not have all this data, ie: thereis data for visit #1 but not for visits 2 and 3, theurologist should contact the USANZ PRIAS ProjectDatabase Manager. ‘Dummy’ visits will need to beentered (this can only be done by administrator accounts).By adding ‘dummy’ visits to enter missingdata, the PRIAS scheme can be followed.Example 2: The type of visit is coming up “LAB”when biopsy details are being requested, and viceversa. Is there any option to change the type of

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