MSSANT Network Magazine Winter 16
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Inside | <strong>Winter</strong> 20<strong>16</strong><br />
Letter from the Editor<br />
Libby Cassidy<br />
The Multiple Sclerosis<br />
Society of SA & NT (Inc.)<br />
Telephone (08) 7002 6500<br />
Fax (08) 7002 6599<br />
MS Assist Freecall 1800 812 311<br />
msassist@ms.asn.au<br />
Client Services<br />
Directory<br />
GENERAL MANAGER – CLIENT SERVICES<br />
Sue Shapland (08) 9365 4840<br />
HEAD OFFICE – FROM 28 JUNE<br />
341 North East Road<br />
Hillcrest (08) 7002 6500<br />
MULTIPLE SOLUTIONS<br />
BRIGHTON<br />
7a Sturt Road (08) 8198 1400<br />
CHRISTIES BEACH<br />
Unit J/111 Beach Road (08) 8392 0100<br />
ENFIELD<br />
273 Main North Road (08) 8360 0800<br />
MODBURY<br />
31 Smart Road (08) 8203 6600<br />
MORPHETT VALE<br />
Shop 3/204<br />
Main South Road (08) 8187 2100<br />
SALISBURY<br />
6-8 John Street (08) 8256 3700<br />
TORRENSVILLE<br />
130 Henley Beach Road (08) 8<strong>16</strong>4 1550<br />
WOODVILLE<br />
51 Woodville Road (08) 8345 8700<br />
Please direct all enquiries to<br />
MS Assist on 1800 812 311<br />
or email msassist@ms.asn.au<br />
Contact Us<br />
If you would like to comment<br />
on anything you read in this<br />
<strong>Network</strong> please email<br />
feedback@ms.asn.au<br />
or write to<br />
MS SA & NT, PO Box 377,<br />
Salisbury South DC SA 5106<br />
The <strong>Network</strong> can also be viewed at<br />
ms.asn.au<br />
The Editor welcomes unsolicited submissions.<br />
All articles are subject to a reviewing process.<br />
The views expressed are those of the Authors<br />
and do not necessarily reflect the view of the<br />
Society’s staff, advisors, Directors or officers.<br />
Letter from the Editor 3<br />
From the desk of the CEO 4<br />
A message from the General Manager – Client Services 5<br />
Round-up of research and other items of interest 6-9<br />
NDIS Updates 10<br />
Protect yourself against the flu 11<br />
Swallowing: Everyone’s doing it. But no one is talking about it! 12<br />
Calcium, Vitamin D and MS 13<br />
Reducing the risk of falls 14<br />
Workplace Solutions 15<br />
MS is a family matter – an article on family resilience <strong>16</strong>-17<br />
Insuring your Mobility Scooter 18<br />
Equipment Matters 19<br />
Peer Support 20-21<br />
Information Sessions 20<strong>16</strong> 22-23<br />
That’s life with Narelle 24<br />
The law of infinite potentiality 25<br />
Naracoorte Auxiliary not slowing down 26<br />
Outreach news 26<br />
World MS Day 27<br />
MS Game Changer Lottery 27<br />
NURSING<br />
Our nursing team is usually the first point of contact, after the neurologist, for anyone<br />
diagnosed with multiple sclerosis. We’re committed to providing holistic support so you have<br />
a greater understanding of what to expect from your condition.<br />
OCCUPATIONAL THERAPY<br />
Occupational therapists work with Clients referred through the Disability and Community<br />
Services Program, providing assessments and recommendations for aids and equipment.<br />
SOCIAL WELFARE<br />
Our welfare officer is here to provide information about entitlements,<br />
how to access community services, advocacy and other essential supports.<br />
PEER SUPPORT<br />
Peer support groups help people living with multiple sclerosis provide support for each<br />
other and share their experiences. There are several groups meeting across the state.<br />
They provide a safe place for the sharing of information and helping each other.<br />
Welcome to our <strong>Winter</strong> 20<strong>16</strong> edition of <strong>Network</strong>!<br />
I am amazed at how quickly the time has passed since<br />
I joined <strong>MSSANT</strong> as Brand & Communications Manager,<br />
and your <strong>Network</strong> Editor, but this edition is my fourth and<br />
sees me approaching my one-year anniversary in the<br />
role. It is a privilege to get to know all of you and further<br />
understand the world of multiple sclerosis, thank you for<br />
having me on board.<br />
It is a very exciting time to be part of <strong>MSSANT</strong>, and with<br />
each edition of <strong>Network</strong> it is so pleasing to read about the<br />
positive and important growth that the MS Society is taking.<br />
The future of the Society is certainly very bright indeed.<br />
This month, the Head Office team excitedly prepares for our<br />
move to new premises. This move represents more than just<br />
a new office. It will see our Client Services Team being able<br />
to provide healthcare services for people with MS from a<br />
new central location in Hillcrest. It will see the return of our<br />
‘head office’ being Client facing and having that important<br />
day to day interaction with all of you. There are plans in<br />
place to provide physiotherapy, group programs, host<br />
education sessions and offer a ‘drop in’ space for Clients<br />
who just need to pay us a visit from time to time. Whilst this<br />
is clearly of great value for our Clients, it is very important<br />
for us, and the staff are very excited with these plans.<br />
Tune in to our next edition to see how the move went and<br />
get more details on the roll out of these services.<br />
Meanwhile we have assembled a fantastic edition of<br />
<strong>Network</strong> for your reading pleasure! There are some very<br />
useful articles from Sandra Wallace, Occupational Therapist,<br />
focussing on equipment, what to do to insure it and take<br />
care of it.<br />
11 May saw the first Swallowing Awareness Day in Australia,<br />
shedding light on what is an often overlooked issue that<br />
can be frightening, or even life threatening. Read Jamaica<br />
Grantis’s summary of the day, and the issues surrounding<br />
swallowing disorders, on page 12.<br />
A special thanks this edition goes to Mary-Anne Edge, who<br />
has yet again put together a fantastic range of Information<br />
Sessions for you over the next quarter. A lot of time and<br />
effort goes into planning these sessions, and we get a<br />
lot of feedback about how much our Clients value them –<br />
so thank you Mary-Anne! They are part of our endeavours<br />
to provide a support network to you along with our Peer<br />
Support Groups.<br />
If you have any ideas for sessions or need more<br />
information, call MS Assist on 1800 812 311 or<br />
email us at feedback@ms.asn.au<br />
As always, I invite you to send your feedback<br />
or your story ideas to feedback@ms.asn.au; I would<br />
love to hear from you. Stay safe and warm this<br />
<strong>Winter</strong> and I look forward to bringing you our next<br />
edition of <strong>Network</strong>.<br />
Do you want to receive the <strong>Network</strong><br />
online? Want monthly information<br />
updates?<br />
Register your email address today to start receiving our<br />
monthly e-newsletter and the <strong>Network</strong> magazine online.<br />
Just email feedback@ms.asn.au or call 08 7002 6500 and let<br />
us know your current email address.<br />
2 <strong>Winter</strong> 20<strong>16</strong> The MS Society of South Australia & Northern Territory The MS Society of South Australia & Northern Territory <strong>Winter</strong> 20<strong>16</strong> 3