6 months ago

The Star: March 30, 2017

4 Thursday

4 Thursday March 30 2017 Latest Christchurch news at www. .kiwi The Star News Toby’s dreams fading into darkness • By Gabrielle Stuart TOBY MATTHEWS has always had big dreams – he wants to be a firefighter, or a builder like his dad. But his dreams may now be impossible. Toby is deaf, and learned last year that he is also going blind. He has Usher syndrome, a very rare and incurable genetic condition. He was born deaf, but now his vision is tunnelling, so the area he can see is slowly getting smaller. His parents, Logan and Meg Matthews, said they had no idea what the condition was when they were called by a doctor last year, and told their son was going blind. “We were told to Google it,” Mr Matthews said. Because it is so rare, they did not know how long Toby’s vision might last. “There is no time frame, no answers, no way to fix it. Which I think is the hardest thing, not knowing how it is going to end, or when,” he said. They are now trying to fill Toby’s life with as many experiences as possible, before his world goes dark. In May, Mr Matthews plans to take Toby to Africa, to spend two weeks helping to build a school for children in Zimbabwe. “We thought it would be a great opportunity for Toby, while he’s got some vision, to go overseas and do that exploring that most of us do when we’re SUPPORT: Toby’s parents, Meg and Logan Matthews, want to help him do everything he can while still being able to see, such as working on his woodworking skills. PHOTO: GEOFF SLOAN older and take for granted,” he said. Toby has his heart set on seeing a tiger – and although they are unlikely to find tigers in Zimbabwe, Mr Matthews said they planned to go on a safari to see the wildlife, and visit places such as Victoria Falls. They are also trying to teach him ways to cope as he gradually loses his vision. Toby already knows sign language, but they are teaching him finger spelling – and he was already begging for a guide dog, Mr Matthews said. But he said going out at night could be terrifying for Toby, as he had lost night vision, and navigating was becoming frustrating. “He comes home most days with cuts or bruises, because he’s walked into a pole or tripped over something,” he said. He said the hardest part was hearing Toby talk about his big dreams for the future, and not knowing what to tell him. “As his vision gets worse you realise those dreams he has, he won’t be able to do.” •Friends have set up a Givealittle page for Toby, to help pay for his trip to Zimbabwe. It can be found at cause/tobymatthews Building or renovating? Open Day This Sunday 10am–4pm See the latest in home electrical technology and style options at the PDL by Schneider Electric Vision Studio open day Try out our home automation solution in an interactive environment, and see our award winning Saturn Zen and other stylish ranges to complement your design. Talk to our experts to find out more about USB chargers, pop-up power outlets and other great innovations that can simplify living. Be in to WIN a Bluetooth Home Audio Kit at our open day! FREE EVENT PDL by Schneider Electric Vision Studio open day Sunday 2nd April, 10am–4pm 11 Moncur Place, Addington – off Wrights Road Free car parking PLUS from 11am–1pm, a Resene Colour Expert will be giving advice on colour. SCHSTR002

The Star Latest Christchurch news at www. .kiwi Thursday March 30 2017 5 Meet the Warriors boss • By Gordon Findlater RUGBY LEAGUE fans will have the chance to meet the man behind the Warriors at the League4Life Foundation’s fundraiser next week. Warriors chief executive Jim Doyle established the foundation during his time as boss of New Zealand Rugby League. He will be the guest speaker at the fundraiser on Friday, April 7, at the Cashmere Club. Former Warrior and Kiwi Jerome Ropati will also make a guest appearance at the event which will be hosted by Sir Peter Leitch. “I’ll talk about the foundation and no doubt about my time in business, as well as my time with the NRL and the Warriors,” said Doyle. The foundation is a registered charity, established to support New Zealanders involved in rugby league who have experienced hardship in their lives. LEAGUE LEADER: Jim Doyle will be the guest speaker at a League4Life Foundation fundraiser at the Cashmere Club next week. Former Warrior and Kiwi, Jerome Ropati (below), will also make a guest appearance. PHOTO: FIONA GOODALL “Being able to help people who have needed it the most was the reason we put the foundation together. It’s a big reward to be able to help those who wouldn’t be able to otherwise,” said Doyle. •Tables of 10 and individual seats are still available for the fundraiser. All proceeds from the ticket sales will go to the League4Life Foundation. For tickets, phone 021 119 0268 00281905 160g No Rats & Mice One Feed 00258078 $ 9 50 2400W Blower Vacuum 45L collection bag. 350km/h air speed. $ 98 50 4 Shelf Boltless Unit 1524 x 813 x 305mm. 02760114 $ 29 2L Window Wonder Outdoor Glass Cleaner Spray on, let sit, rinse off. 00288491 $ 16 91 Close Coupled Toilet Suite 5 trap set out 140mm. WELS 3 Star (3L/6L). 08902065 $ 99 185mm Circular Saw 1200W. Blade included. 00314984 $ 69 98 Tulip Bulbs Assorted colours. 00134152 $ 8 92 12 Rail Clothes Airer 8.4m drying space. 04510092 $ 7 98 VOLUNTEERS WANTED FOR Sex Hormones, Mood and Cognition Study Our research team at the University of Otago, Christchurch, is looking for females with UNTREATED Polycystic Ovarian syndrome (PCOS) to assist in a study examining the relationship between sex hormones, mood, cognitive function and emotion processing in females. If you have been diagnosed with PCOS or have related symptoms including excessive hair growth on face, back, neck, severe acne issues, ovarian cysts, menstrual irregularities and are not on any current treatment for this, you will be eligible to participate in the study. We will assess mood and cognition in two one-hour testing sessions which will include computerized tests and pen-and-paper tasks (which assess memory, attention and emotion processing) and questionnaires measuring mood/depression. If you are considered eligible to participate, you will be assessed by an endocrinologist for no expenses of your own and will recommend appropriate treatment and refer you back to your G.P. Volunteers we are recruiting must: • Be between the ages of 16-40 years. • No major neurological or mental illness (e.g: Schizophrenia or Bipolar disorder) or serious head injury • Have intact ovaries • Not be pregnant or menopausal • Not be seeking treatment for infertility If you would like more information or are interested in assisting with this research, please contact Mayouri Sukhapure at: or 027 307 6502. Paint Roller Kit 230mm. Includes roller cover, frame & paint tray. 01560226 2000W Flat Fan Heater White. 04441962 $ 3 75 40L Pine Bark Nuggets 00341718 $ 7 98 150W Portable Halogen Worklight 07070597 $ 13 50 $ 24 90 Easycoat Interior Low sheen. $ 78 White. 08904072 Photoelectric Smoke Alarm Includes 10 year battery. 00171466 $ 22 Kwila Decking FSC ® certified. Grip tread. 90 x 19mm. 00062735 Dual Purpose Ladder 2.1 - 3.8m. Aluminium. 120kg load rating. 00860047 $ 155 $ 5 98 Our Policy is Lowest Prices, and we’re committed to it. Our price guarantee means that where, despite our procedures supporting our Policy, you find a competitor’s lower price on the same stocked item, 15% This excludes trade quotes, stock liquidations and commercial quantities. PER LINEAL MTR Open Monday to Friday 7am – 7pm, Saturday & Sunday 8am – 6pm This study has been approved of by the University of Otago Human Ethics Committee (Health). If you have any concerns about the ethical conduct of the research you may contact the Committee through the Human Ethics Committee Administrator (phone +64 3 479 8256 or email Any issues you raise will be treated in confidence and investigated, and you will be informed of the outcome. Not all services and products featured are available in all stores, but may be ordered. See in store for product availability. We reserve the right to restrict the purchase of commercial quantities. All prices quoted are inclusive of GST. Prices valid until Sunday 9th April 2017, or while stocks last. BUNZ17505