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9 months ago

Selwyn Times: July 11, 2017

12 Tuesday

12 Tuesday July 11 2017 Latest Christchurch news at www. .kiwi SELWYN TIMES News Little battler’s GET CONNECTED WITH Scorch Broadband 0800 726 724 www.scorch.co.nz DO yOU Have PaInfUl OsteOartHrItIs DO YOU HAVE PAINFUL affeCtInG One OSTEOARTHRITIS Or BOtH knees? AFFECTING ONE If so OR you BOTH may KNEES? be eligible to take part in a trial to If test so you the may painkilling be eligible effect to take of the part medication in a trial nortriptyline. to test the painkilling effect of the medication nortriptyline. Nortriptyline has been in use for other conditions Nortriptyline for many has been years in and use it may for be other effective conditions in reducing for many pain years in and osteoarthritis. may be effective in reducing pain in osteoarthritis. Our trial will test this effect by treating a group Our trial of people will test with this effect either by nortriptyline treating a group or an of identical people placebo with either and nortriptyline comparing the or levels an of identical pain in placebo the two and groups. comparing the levels of pain in the two groups. Knee Arthritis Nortriptyline In Knee Arthritis (NortIKA Study) wHO Is rUnnInG tHe stUDy? WHO IS RUNNING THE STUDY? A group of researchers based at the University of A Otago, group Christchurch of researchers based are conducting at the University the study. of Otago, Christchurch are conducting the study. The group includes GPs, a rheumatologist, a pain The specialist, group includes an orthopaedic GPs, a rheumatologist, surgeon and a an occupational pain specialist, therapist. an orthopaedic surgeon and an occupational therapist. wHO Is PayInG fOr tHe stUDy? WHO IS PAYING FOR THE STUDY? The study is funded by a grant from the The study is funded by grant from the Health Health Research Council of New Zealand. Research Council of New Zealand. Family organises thank you for helping little Jonty • By Gabrielle Stuart WEEDONS School pupil Jonty was just 10-weeksold when his parents had to watch him being prepared for surgery for the first time. That was five years ago, and Sam and Maree Smolenski have since become very familiar with the hospital. For the first 96 days of his life, Jonty was kept in neonatal intensive care. He had problems seeing, hearing and eating, and seemed to be hit far harder by colds and flus than other children. Yet the doctors could not understand what was causing Jonty’s problems – and it was three years AT HOME ON A HORSE: Jonty having fun at Riding for the Disabled. before they had an answer, Mrs Smolenski said. That came almost by chance, she said. Jonty has trichothiodystrophy – a recessive genetic disorder so rare he is the only person in New Zealand currently diagnosed with it. But a geneticist at Christchurch Hospital had seen cases before, and recognised the symptoms, including Jonty’s distinctive brittle hair, she said. “He has never ever had a hair cut. There is a guy on Home Alone who gets his hair singed, and he’s left with just knobbles around his head. When Jonty was a wee baby in neonatal care he looked like that. His first lot of hair just rubbed right off and knobbled up around his head,” she said. Although they finally knew the cause of their son’s problems, it came with bad news – it was untreatable, and many children with the condition died young, she said. “It was quite a shock. We don’t know how long we’ll have with Jonty. Every winter there’s a risk he might get an illness he doesn’t recover from,” she said. Spending so much time in hospital away from their two other children, Lachie, 7, and Ruby, 3, made it harder, she said. wHat wOUlD Be InvOlveD If I tOOk Part? You WHAT would WOULD take study BE medicine INVOLVED in addition IF I to your TOOK usual PART? treatment for 14 weeks. At You the would start and take end study of medicine the study in your addition pain to levels your and usual other treatment information 14 weeks. will be recorded. At the start and end of the study your pain levels and other information will be recorded. fOr fUrtHer InfOrmatIOn aBOUt tHe trIal Or tO reGIster FOR FURTHER fOr INFORMATION tHe nOrtIka ABOUT stUDy THE TRIAL OR TO REGISTER FOR THE NORTIKA STUDY Phone: 03 364 3645 Phone: 03 364 3645 Email: gpresearch.uoc@otago.ac.nz Email: gpresearch.uoc@otago.ac.nz Website: www.otago.ac.nz/nortika Website: www.otago.ac.nz/nortika Principal Investigator: Ben Hudson Department of General Practice, University of Otago, Christchurch Principal Investigator: Ben Hudson Department of General Practice, University of Otago, Christchurch

SELWYN TIMES Latest Christchurch news at www. .kiwi Tuesday July 11 2017 13 ISAAC THEATRE ROYAL CHRISTCHURCH 25th July- 10am, 12pm & 3pm 26th july - 10am & 12pm BOOK: 0800 TICKETEK www.isaactheatreroyal.co.nz PRESENTED BY: parents give back But that was when the community rallied. Mr Smolenski is a harness racing trainer and driver, and comes from a racing family – his grandfather was driving and training legend Jack Smolenski. The racing community rallied last year to raise more than $75,000 for the family, with even world driving champion Dexter Dunn wearing special racing colours in Jonty’s honour as a fundraiser. That meant the whole family could go to international conferences in the United States last year and again this year to meet with specialists and with other people who have the condition, Mrs Smolenski said. This year, she said the family were approached by Addington Raceway, asking if the family needed more help. But instead, they wanted to do something to give back, she said. The family have planned a fundraising race night and dinner on July 21, raising money for some of the local organisations that have helped them. She said many were locally run and struggled with funding, but “We don’t know how long we’ll have with Jonty. Every winter there’s a risk he might get an illness he doesn’t recover from.” – Maree Smolenski made life a lot easier for families like hers. “It’s not an easy road, but it’s made easier by the support of everyone around us, our personal friends and family and also the wider community and organisations around us. You go back to that saying, it takes a village to raise a child, and that’s especially true when it’s a special child.” TOUGH: Five-year-old Jonty has a laugh with his mum Maree Smolenski as he finishes Weedons School for the day. PHOTO: MARTIN HUNTER She said more than $5000 worth of spot prizes had already been donated to be given away on the night, including accommodation at Terrace Downs Resort and Hanmer Springs. SUPPORT: The harness racing community rallied to raise money for Jonty and his family, including world driving champion Dexter Dunn who wore special racing colours as a fundraiser. Individual tickets to the race night, which include dinner and a drink, cost $75, while business packages, which include race naming rights and a table for 10, cost $1400. Money raised would be donated to The Maia Foundation, CCS Disability Action Canterbury, Christchurch Riding For The Disabled, SmileDial, Van Asch Deaf Education Centre and Blind and Low Vision Education Network NZ. •More information and tickets to the fundraiser can be found at www.addington. co.nz or from the family’s Facebook page, Our Jonty’s Journey. Ready to get your land use consent to farm for Selwyn? We’ll help you get started, so you can get sorted by the June deadline. There is a lot to figure out – Consents, Farm Environment Plans, Nutrient Budgets and Audits. For help, drop in and have a chat with Environment Canterbury staff about getting your consent to farm, or call 0800 324 636. Regular information sessions are held in Darfield and Leeston. “ I would thoroughly recommend other farmers go to these sessions. There’s nothing like talking to someone. At the very least, they will tell you what you have to do. I know now where I can get help and they can take you through all the information on the computer.” Ness, Leeston, cropping farmer. DROP-IN SESSIONS Darfield The first Wednesday of every month. Selwyn-Rakaia Vet Services, 62 South Terrace, Darfield, 1-4pm. Leeston The third Tuesday of every month. Leeston Library, 19 Messines St, 1-4pm. For session information visit www.canterburywater.farm/events ECN/064/SEL