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Look Inside Young Adult Road Map

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Young Adult Road Map: A Step-By-Step Guide to Navigating Wellness, Independent Living, and Transition Services for People in Their Teens and Twenties. Copyright © 2018, Wendy Lowe Besmann. Young Adult Road Map is based, in part, on the related (2017) Guide and curriculum, Family Road Map: A Step-By-Step Guide to Navigating Health, Education, and Insurance Services for Families with Special Needs, Copyright © Wendy Lowe Besmann. All rights reserved. The information in this volume is intended to be advice from families, young adults, and service providers for the benefit of families and young adults who must navigate wellness, independent living, and transition services. It is not a substitute for consultation with a qualified health care professional or educational provider. No part of this book may be reproduced, translated, stored in a retrieval system, translated into another language, incorporated into a training curriculum, or transmitted in any form or by any means without written permission from Melton Hill Media, LLC. For reprint and other permissions, please contact wendy@meltonhillmedia.com. For use of this book, Family Road Map Institute, a training academy and learning portal, has developed training curricula geared towards social workers, counselors, clinicians, family support partners, parents, case managers, and school staff. For more information, visit https://familyroadmap.org In 2018, Team Up for Families (TUFF), was chartered as a non-profit, family-run organization for the purpose of partnering with other agencies to study the effectiveness of peer-based training curricula in supporting and increasing access to appropriate services for children, youth, and young adults with special needs. For information, please contact Heather Hall, hhall@teamupforfamilies.org . Printed in the United States of America. This book is printed on acid-free paper. Last digit is print number: 9 8 7 6 5 4 3 2 1 Published by Melton Hill Media, LLC. 9119 Solway Ferry Road, Oak Ridge, TN 37830 www.meltonhillmedia.com Library of Congress Cataloging-in-Publication Data: Besmann, Wendy Lowe and Douglass, Kimberly Young Adult Road Map: A Step-By-Step Guide to Navigating Wellness, Independent Living, and Transition Services for People in Their Teens and Twenties. Includes bibliographical references ISBN-13 978-0-9816793-6-5 1. Young Adult Non-Fiction (Special Needs) 2. Young Adult Non-Fiction (Intellectual and Developmental) 3. Young Adult Non-Fiction (Health--Behavioral and Emotional) Library of Congress Control Number: 2018936316 2

Table of Contents Welcome to the Young Adult Road Map .................................... page 5 Introduction A map to finding out where you fit in… Why it helps to “change the conversation” about your future… Your Transition Job Description... The Guiding Star for navigating systems... Symbols in this Guide. Guiding Star Point One: Set GOALS.......................................... page 9 Identifying Strengths, Concerns, and “The Big Picture” Five kinds of personal strengths that can help you solve problems… Thinking about your concerns… Setting priorities… Seeing “The Big Picture” of the everyday life you want to live. Guiding Star Point Two: Learn SYSTEM BASICS......................... page 13 Navigating Medical, Behavioral, and Insurance Systems Key words for first steps… Who’s who in health care… Choosing someone to evaluate you… Tips for a first clinician visit… Understanding the treatment plan… Piecing together the insurance puzzle… Where to get medical and behavioral health care. Guiding Star Point Three: Build RELATIONSHIPS........................ page 33 Working with Providers to Meet Goals and Solve Problems Getting your medical provider’s full attention… Using patient portals… Explaining your point of view… Good questions about medication… Sending updates… What to do when someone’s not listening… Practicing assertiveness. Guiding Star Point Four: Manage INFORMATION........................ page 43 Using Personal Records and Data to Tell Your Story Organizing your records… Avoiding medication mix-ups… Getting to know your pharmacist… Medication safety tips… Recording treatment progress… Sharing details with your provider… Asking questions about information you don’t understand. Guiding Star Point Five: Find SUPPORT.................................... page 55 Creating a Network to Meet Challenges and Seek Community Building your personal network… Locating resources to meet the unexpected… Building a network of trust… Durable power of attorney… Knowing when to seek emotional support… Thinking critically about social media... Living an “independent and interdependent” life. Guiding Star Close-Up: The Bridge to Everywhere....................... page 63 A Five-Point Plan for Transition Services Making informed choices about life after high school… Switching to new provider networks… Applying for government programs… Getting adult services and supports… Using strengths and concerns to solve transition problems… The college bridge… The Guiding Star to anywhere you travel. Glossary and Resources........................................................ page 71 Common terms used in health, education, and insurance systems; medical abbreviations that may appear on your prescriptions and medication bottles or in your medical files. 3