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<strong>Spring</strong> <strong>2019</strong><br />

The magazine of <strong>Deafblind</strong> <strong>UK</strong> – putting you in the picture<br />

Gaby and Dilwyn<br />

Inside:<br />

• nThe right to an assessment<br />

• nMember news: Dilwyn’s story<br />

• nWhat to do when things get difficult<br />

p20<br />

Using OXSIGHT<br />

glasses to read a menu


What’s inside?<br />

P4<br />

P6<br />

P8<br />

News<br />

News<br />

Member News<br />

What’s On<br />

Information<br />

P9 Tell us what you think<br />

P10 <strong>Deafblind</strong><br />

Awareness Week<br />

P12 Take the stress out<br />

of shopping<br />

P14 The right to an<br />

assessment<br />

P16 Accessibility review<br />

– Leeds Castle<br />

P18 A Condition – Diabetic<br />

Retinopathy<br />

P20 Expanding your<br />

field of vision<br />

Features<br />

P22 Marie celebrates 15<br />

years of volunteering<br />

P24 What to do when<br />

things get difficult<br />

P26 Digital Update<br />

P28 Regional Roundup<br />

P30 A word of thanks<br />

An elderly woman walking with<br />

a <strong>Deafblind</strong> <strong>UK</strong> staff member<br />

Editor:<br />

Naomi Dainty<br />

info@deafblind.org.uk<br />

Design:<br />

Lovely Cuppa Design<br />

Published by:<br />

<strong>Deafblind</strong> <strong>UK</strong><br />

© <strong>Deafblind</strong> <strong>UK</strong> <strong>2019</strong><br />

Pass it on<br />

When you have finished with<br />

this magazine, please pass<br />

it on to family and friends or<br />

even donate it to your local<br />

doctor’s waiting rooms.<br />

Welcome to the <strong>Spring</strong> edition of <strong>Open</strong> <strong>Hand</strong> which<br />

features <strong>Deafblind</strong> <strong>UK</strong>’s activities, useful information<br />

for members and research findings.<br />

Since the last issue, not only have we had to assess<br />

whether there would be any implications for us <strong>from</strong><br />

the various Brexit options but we have had to deal with<br />

a ‘perfect storm’ of lower than expected income <strong>from</strong><br />

our care and support services. This is a result of Local<br />

Authorities reviewing their contracts and also the effects of<br />

reduced voluntary income.<br />

However, we have set an achievable budget for the coming<br />

year and, with an increase in staff in our fundraising team,<br />

we are confident of a sustainable financial future.<br />

We believe that we now have the resources to grow our<br />

services; initially focusing on digital inclusion and providing<br />

easier and more regular access to activities.<br />

Finally, I am pleased to confirm that the Annual General<br />

Meeting (AGM) will take place on 26th June. For more<br />

information, please contact us<br />

using the details on the back<br />

of this magazine.<br />

Steve Conway<br />

Chief Executive<br />

Steve Conway<br />

2 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 3


News<br />

New online Blue<br />

Badge service<br />

The Department of Transport has launched a new service to<br />

apply for a Blue Badge online. This means that you no longer<br />

need to send important documents in the post and applications<br />

are processed more quickly. An offline system will still be<br />

available for those who are not able to apply online.<br />

For more information visit www.gov.uk/apply-blue-badge.<br />

RNIB Bright Box<br />

Our friends at RNIB have<br />

created three different<br />

packs of goodies for<br />

partially sighted people<br />

which can be delivered to<br />

your door free of charge.<br />

Bright Boxes include handy<br />

signature guides, bank note<br />

checkers and bumpons.<br />

If you’re registered blind<br />

or partially sighted and<br />

live in England, subscribe<br />

online at: www.rnib.org.uk/<br />

brightbox.<br />

Blue badge sign<br />

<strong>Deafblind</strong><br />

Friendly Awards<br />

Do you know anyone who<br />

has gone the extra mile to<br />

help someone with sight and<br />

hearing loss? This might be your<br />

hairdresser, shop assistant or<br />

a friendly neighbour. If so, then<br />

send us their details to nominate<br />

them for a <strong>Deafblind</strong> Friendly<br />

Award which will be presented<br />

during<br />

<strong>Deafblind</strong><br />

Awareness<br />

Week in<br />

June.<br />

Our first charity shop<br />

We are excited to announce<br />

the opening of our first charity<br />

shop! All profits <strong>from</strong> the shop<br />

go straight back into the charity<br />

and help us continue to support<br />

people with combined sight and<br />

hearing loss. The shop is at The<br />

Werrington Centre, Staniland<br />

Way, Peterborough PE4 6NA<br />

and will be open Monday –<br />

Saturday 9.00am – 4.30pm.<br />

New holiday<br />

accommodation for<br />

<strong>Deafblind</strong> <strong>UK</strong> members<br />

Our discounted holidays have<br />

been so popular that we have<br />

fundraised for and bought a<br />

third caravan! This is located<br />

in Hopton, Norfolk and we are<br />

now taking bookings for <strong>2019</strong>.<br />

For more information visit:<br />

www.deafblind.org.uk/whatwe-do/holidays<br />

or contact us<br />

using the details on the back of<br />

this magazine.<br />

<strong>Deafblind</strong> <strong>UK</strong><br />

Conference Centre<br />

The <strong>Deafblind</strong> <strong>UK</strong><br />

Conference Centre in<br />

Peterborough is now taking<br />

bookings for evenings and<br />

weekends in addition to<br />

mid-week bookings.<br />

All proceeds go directly<br />

to the charity, so if you’re<br />

looking for a meeting room<br />

please consider us!<br />

Synapptic TV Box<br />

Our friends at Synapptic have<br />

launched a new TV Box which<br />

plugs into a normal TV to give<br />

visually impaired people a<br />

highly usable and simple<br />

menu system. This makes it<br />

simple and easy to find what<br />

you want to watch. For more<br />

information contact Synapptic:<br />

www.synapptic.com.<br />

A waitress pouring coffee<br />

4 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 5<br />

The new <strong>Deafblind</strong> <strong>UK</strong> caravan<br />

The <strong>Deafblind</strong> <strong>UK</strong><br />

Conference Centre


Member News<br />

Dilwyn’s story<br />

Dilwyn and Gaby<br />

Discounted holidays<br />

Book now for <strong>2019</strong>!<br />

Our self-catering<br />

holidays are selling fast.<br />

Contact us today to<br />

book one of our luxury<br />

caravans at heavily<br />

discounted rates.<br />

Hopton-on-Sea, Norfolk<br />

Dilwyn, 88, lives alone near<br />

Wrexham. He began losing<br />

his sight 19 years ago and is<br />

now completely blind.<br />

He says, “The biggest<br />

challenge is being on my own<br />

for over 40 hours a week.<br />

Isolation is the hardest thing.<br />

I asked my local social services<br />

for help and they told me about<br />

<strong>Deafblind</strong> <strong>UK</strong>.”<br />

Dilwyn was soon introduced<br />

to Gaby, a <strong>Deafblind</strong> <strong>UK</strong><br />

volunteer companion and they<br />

immediately felt comfortable<br />

together. Gaby said: “I visit<br />

Dilwyn every Wednesday for<br />

2-3 hours at a time. We have a<br />

coffee and a chat. It’s nice, we<br />

have become good friends.”<br />

Dilwyn has also been welcomed<br />

to our social group in Wrexham.<br />

He has enjoyed making new<br />

friends and his self-confidence<br />

has dramatically improved -<br />

he even agreed to give a talk<br />

about his life and career!<br />

Dilwyn says: “Every meeting,<br />

before I even walk through the<br />

door at the group, my friend<br />

shouts: “Hi Dilwyn!” and it’s<br />

absolutely lovely!”<br />

Chambery, Hopton-on-Sea, Norfolk<br />

Prestatyn, North Wales<br />

Each of our caravans is furnished to the highest<br />

specification and located on idyllic parks which<br />

are close to the beach. For more information or<br />

to book your holiday, call us on 0800 132230<br />

or email: info@deafblind.org.uk.<br />

6 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 7


What’s On<br />

Here’s your roundup of the<br />

best places to be over the<br />

next few months. If you<br />

know of any events that<br />

you think we should list<br />

here, please let us know!<br />

Dolphin Software Events<br />

A series of events to introduce<br />

people with visual impairments<br />

to different technology and<br />

lifestyle solutions.<br />

24th April <strong>2019</strong><br />

Vision Support, Avow 21<br />

Edgerton Street, Wrexham<br />

LL11 1ND<br />

3rd June <strong>2019</strong><br />

<strong>Open</strong> Day Bristol, Newman Hall<br />

Grange Court Road, Westbury<br />

on Trym, Bristol BS9 4DR<br />

Low Vision and<br />

Hearing Loss Day<br />

A free event for anyone who<br />

is affected by sight loss,<br />

hearing loss or both! Come<br />

along and discover tools and<br />

services to improve life with<br />

sight and hearing loss.<br />

For more information visit:<br />

www.deafblind.org.uk/events<br />

Low vision<br />

and hearing<br />

loss day logo<br />

28th June <strong>2019</strong><br />

10.30am – 3.30pm<br />

<strong>Deafblind</strong> <strong>UK</strong>, Cygnet Road,<br />

Peterborough PE7 8FD<br />

Guide Dogs Forums<br />

A series of events for people who<br />

are blind or partially sighted, their<br />

friends, family or carers to share<br />

and provide information and raise<br />

concerns in a positive manner<br />

directly to change makers.<br />

8th May <strong>2019</strong><br />

11.00am – 1.00pm<br />

The Annesley House<br />

Hotel, Norwich NR2 2LA<br />

22nd May <strong>2019</strong><br />

12.00pm – 2.00pm<br />

Parkside Fire Station,<br />

Cambridge CB1 1JF<br />

5th June <strong>2019</strong><br />

11.00am – 1.00pm<br />

RNIB, Midgate House,<br />

Peterborough PE1 1TN<br />

Tell us what<br />

you think<br />

Who better to shape the<br />

future of our services than<br />

the people who benefit most?<br />

Our member forums are<br />

informative and engaging<br />

events where you can give us<br />

feedback about our services<br />

and make suggestions for<br />

our ongoing work. They are<br />

also a great opportunity to<br />

meet other members and talk<br />

to <strong>Deafblind</strong> <strong>UK</strong> staff.<br />

Members and staff at a<br />

recent forum<br />

Forums are planned<br />

for the following dates,<br />

so contact us to book<br />

your place! Please note<br />

that the forum can only<br />

go ahead if at least 20<br />

people book in.<br />

Northern Ireland<br />

Thursday 11th April<br />

North Wales<br />

Tuesday 7th May<br />

South Wales<br />

Thursday 23rd May<br />

Bristol<br />

Tuesday 4th June<br />

North of England<br />

Tuesday 16th July<br />

West Midlands<br />

Thursday 18th July<br />

National Forum<br />

(Peterborough)<br />

Tuesday 15th October<br />

To book a place at your local forum, call 0800 132 230<br />

or email: feedback@deafblind.org.uk<br />

8 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 9


Join us for <strong>Deafblind</strong><br />

Awareness Week <strong>2019</strong>!<br />

We are already thinking about summer as we look forward to<br />

another <strong>Deafblind</strong> Awareness Week. This year’s events will<br />

take place between Monday 24th June and Sunday 30th June.<br />

woodland walk or get involved<br />

in some tree planting?<br />

Alternatively, you could hold a<br />

bake sale or coffee morning,<br />

leave a collection pot in your<br />

local pub, shop or café, or<br />

simply share our cause on<br />

social media.<br />

What is <strong>Deafblind</strong><br />

Awareness Week?<br />

<strong>Deafblind</strong> Awareness Week<br />

commemorates the birthday<br />

of Helen Keller (1880-1968),<br />

a prominent author and political<br />

activist who became the first<br />

deafblind person to earn a<br />

Bachelor of Arts degree.<br />

The week aims to raise<br />

awareness of dual sensory loss<br />

which currently affects nearly<br />

400,000 people in the <strong>UK</strong>.<br />

Throughout <strong>Deafblind</strong> Awareness<br />

Week we will be helping<br />

more people to understand<br />

deafblindness and ensure that<br />

they know where to go for help.<br />

We encourage everyone to get<br />

involved in the week, whether<br />

it is by helping us to spread the<br />

word and support more people or<br />

by holding a fundraising activity<br />

or doing a challenge event.<br />

A picnic set up on<br />

a table outside<br />

The Great Outdoors<br />

This year <strong>Deafblind</strong> Awareness<br />

Week will be focussed around<br />

The Great Outdoors. We want<br />

to encourage as many people<br />

as possible to experience the<br />

health and wellbeing benefits of<br />

being outdoors. Studies have<br />

shown that getting outdoors,<br />

even for a short walk, can:<br />

• nDecrease stress levels<br />

• nLower blood pressure<br />

• nImprove short-term memory<br />

• nFight fatigue<br />

Walking through a forest<br />

A trip outdoors, whether it’s the<br />

beach, a nature trail, or even<br />

your own back garden is a<br />

delight for all the senses. From<br />

the smells of forest leaves to<br />

the texture of sand, it’s hugely<br />

beneficial to get away <strong>from</strong><br />

the stresses of daily life with a<br />

simple walk outside.<br />

Get involved!<br />

There’s lots you can do to<br />

support <strong>Deafblind</strong> Awareness<br />

Week. For the thrill-seekers<br />

among you, take part in our<br />

tandem skydive or swim a mile<br />

in open water in the Great East<br />

Swim. Or, why not go for a<br />

picnic in your local park, try a<br />

Dates for your diary<br />

• nGreat East Swim<br />

22nd June, Suffolk<br />

• nTandem Skydive<br />

23rd June, Sibson<br />

Airfield, Peterborough<br />

• nLow Vision and<br />

Hearing Loss Day<br />

28th June, Peterborough<br />

(see more on page 8)<br />

The Great East Swim<br />

To get involved with any of these events,<br />

please email: fundraising@deafblind.org.uk<br />

10 <strong>Open</strong> <strong>Hand</strong><br />

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Taking the stress<br />

out of shopping<br />

For many visually and<br />

hearing-impaired people<br />

a simple trip to the<br />

supermarket can be a<br />

stressful experience. A lack<br />

of natural light, too many<br />

crowds and loud background<br />

noise may deter people <strong>from</strong><br />

making essential trips.<br />

Thankfully, <strong>UK</strong> supermarkets are<br />

now making changes to ensure<br />

that the shopping experience<br />

is more pleasant for everyone.<br />

There are also more alternatives<br />

available now for those who<br />

prefer not to venture out.<br />

Slow shopping<br />

In 2016, supermarket chain<br />

Sainsbury’s introduced “Slow<br />

Shopping”. Between 1pm<br />

and 3pm on Tuesdays, staff<br />

members are on hand to<br />

greet elderly and vulnerable<br />

customers, while chairs are<br />

placed at the end of aisles if<br />

shoppers need a rest.<br />

This slow shopping initiative has<br />

since been introduced to other<br />

stores across the <strong>UK</strong>, including<br />

Southgate Shopping Centre,<br />

Waitrose Bath, Asda Clacton-on-<br />

Sea, and Tesco and Marks and<br />

Spencer, Kingston Park.<br />

In July 2018, supermarket chain<br />

Morrisons also launched a<br />

“Quieter Hour” between 9am and<br />

10am on Saturday mornings.<br />

During this time they have<br />

pledged to dim the lights, turn<br />

off all music and radios, avoid<br />

in-store announcements, reduce<br />

check-out noises, lessen trolley<br />

movement and inform customers<br />

that it is Quieter Hour.<br />

Person holding a basket<br />

full of vegetables<br />

Making your shopping<br />

experience less stressful<br />

For an easier shopping<br />

experience, consider:<br />

• nMaking a list in advance<br />

• nTaking a friend or relative<br />

with you<br />

• nShopping during less busy<br />

or “quiet hours”<br />

• nContact the customer service<br />

desk in advance to find out<br />

what support they can offer<br />

Alternatives to<br />

supermarket shopping<br />

Online shopping has increased<br />

considerably in recent years,<br />

almost doubling between 2010<br />

and 2016. Customers can<br />

choose <strong>from</strong> ordering groceries<br />

for delivery <strong>from</strong> Asda, Tesco,<br />

Morrisons, Sainsbury’s and<br />

Waitrose, or they can also<br />

choose click-and-collect, both<br />

of which allow them to choose a<br />

convenient time.<br />

For other shopping, such as<br />

gifts, clothes or household<br />

items, many online retailers<br />

now have just a small delivery<br />

charge or even free delivery<br />

over a certain spend. Other<br />

initiatives such as Amazon<br />

Prime provide next day delivery<br />

for a yearly or monthly charge,<br />

seven days a week.<br />

To find a “slow shop” store<br />

near you, visit:<br />

www.slowshopping.org.uk<br />

Our digital support service<br />

can help you get set up for<br />

online shopping – contact us<br />

using the details on the back<br />

of this magazine.<br />

A tablet and a laptop<br />

<strong>Deafblind</strong> <strong>UK</strong> is<br />

working with shopping<br />

centres such as<br />

Serpentine Green<br />

in Peterborough to<br />

help staff understand<br />

the challenges of<br />

deafblindness.<br />

12 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 13


The right to an<br />

assessment<br />

For years, <strong>Deafblind</strong> <strong>UK</strong><br />

and other charities have<br />

campaigned for the rights<br />

of people with dual sensory<br />

loss. This has now been<br />

acknowledged in specific<br />

legislation (The Care Act 2014)<br />

but do enough people know<br />

about this?<br />

We wanted to discover whether<br />

people with sight and hearing<br />

loss know that they are entitled<br />

to a specialist deafblind<br />

assessment and potentially<br />

further support. So, in<br />

conjunction with students <strong>from</strong><br />

Form filling<br />

the University of Cambridge,<br />

we spoke to deafblind people<br />

across Cambridgeshire to<br />

find out.<br />

Worryingly, only 15% of<br />

respondents had heard of<br />

The Care Act and just over half<br />

of these could tell us anything<br />

about their rights. Some<br />

knew that they had the right<br />

to an assessment, that their<br />

assessor should be trained<br />

in deafblindness and that an<br />

assessment should address<br />

the need for one-to-one<br />

human contact.<br />

Whilst these responses are<br />

correct, it is disappointing that<br />

so few people know about their<br />

entitlements and that so many<br />

more people could be benefiting<br />

<strong>from</strong> further support.<br />

Your rights<br />

If sight and hearing loss affects<br />

your mobility, communication<br />

and access to information,<br />

you are entitled to:<br />

• nA deafblind assessment<br />

to determine whether you<br />

have eligible needs for care<br />

and support.<br />

Your local authority must:<br />

• nRecognise that you may not<br />

necessarily be able to benefit<br />

<strong>from</strong> mainstream services or<br />

those services aimed primarily<br />

at blind people or deaf people<br />

who are able to rely on their<br />

other senses.<br />

• nEnsure that deafblind people<br />

are able to access specifically<br />

trained one-to-one support<br />

workers if they are assessed<br />

as requiring one.<br />

• nProvide information about<br />

services in ways which are<br />

accessible to deafblind people.<br />

We would like to thank<br />

our members who took<br />

part in this research,<br />

and students <strong>from</strong><br />

Cambridge Hub’s Social<br />

Innovation Programme<br />

(SIP) for working with us<br />

on this project.<br />

Chatting on<br />

the phone<br />

For more information<br />

about assessments<br />

or to request an<br />

assessment through<br />

<strong>Deafblind</strong> <strong>UK</strong>, please<br />

contact us using the<br />

details on the back of<br />

this magazine.<br />

14 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 15


<strong>Spring</strong> at Leeds Castle<br />

The keypads on these<br />

devices have been designed<br />

in conjunction with the RNIB<br />

and Action for Blind People<br />

to ensure full compliance with<br />

access guides for visuallyimpaired<br />

guests.<br />

Maidens Tower and Castle<br />

Accessibility Review:<br />

Leeds Castle<br />

Known by many as the<br />

“loveliest castle in the world”,<br />

the historic Leeds Castle<br />

celebrates its 900th birthday<br />

in <strong>2019</strong>. Contrary to the name,<br />

it is located in Maidstone,<br />

Kent and is easily accessible<br />

off the M20 motorway or by<br />

Bearsted train station.<br />

Catherine of Aragon, as well<br />

as a Jacobean country house,<br />

Georgian mansion and a retreat<br />

for Lady Baillie who left it to the<br />

Leeds Castle Foundation in<br />

1976 when it was opened to the<br />

general public.<br />

Accessible facilities<br />

at the castle<br />

The Castle Shop provides<br />

audio tours at a reduced rate<br />

for visitors with disabilities. The<br />

devices are lightweight and<br />

hand-held, while there are also<br />

hands-free stereo headphones<br />

for visitors with walking aids.<br />

Guide dogs are welcome<br />

at Leeds Castle and there<br />

are multiple accessible<br />

entrances for wheelchair users.<br />

Wheelchairs are also available<br />

free of charge, although mobility<br />

scooters are not permitted. A<br />

free mobility bus is available<br />

near the ticket office which<br />

offers regular trips to the main<br />

entrance. Many attractions are<br />

wheelchair-friendly, including<br />

the Castle View Restaurant,<br />

The Gatehouse, The Black<br />

Swan Ferry Boat and many<br />

gardens, as well as car parking.<br />

Some areas are limited due<br />

to the castle’s ancient building<br />

design but alternative tours<br />

are available.<br />

Offering a rich history, the<br />

• nMotors by the Moat:<br />

castle was built by Robert<br />

11th to 12th May<br />

de Crevecoeur as a Norman<br />

• nMedieval Jousting<br />

stronghold before it became<br />

Tournament:<br />

a royal property for six of<br />

25th to 27th May<br />

England’s medieval queens.<br />

It also served as a palace for<br />

Henry VIII and his first wife,<br />

For more information, visit:<br />

16 <strong>Open</strong> <strong>Hand</strong><br />

www.leeds-castle.com <strong>Open</strong> <strong>Hand</strong> 17<br />

Guide dogs at Leeds Castle<br />

What’s On<br />

Falconry displays are<br />

available during school<br />

holidays, weekends<br />

between October and<br />

March, and daily <strong>from</strong><br />

April to September.<br />

Admission includes<br />

entry into the Gatehouse<br />

Museum, garden and more,<br />

while there are events to<br />

look forward to this spring:<br />

• nEaster Fun with the<br />

Junk Orchestra:<br />

19th to 22nd April


A condition:<br />

What is diabetic<br />

retinopathy?<br />

Developing in stages over<br />

time, diabetic retinopathy is<br />

one of the leading causes of<br />

sight loss across the world.<br />

It can affect any age group,<br />

with national screening being<br />

offered <strong>from</strong> the age of 12<br />

to identify the early signs.<br />

If left untreated it can lead<br />

to blindness, although it<br />

takes several years for the<br />

condition to develop.<br />

What causes<br />

diabetic retinopathy?<br />

Currently affecting around a third<br />

of the diabetic population, diabetic<br />

retinopathy (DR) is a complication<br />

caused by high blood sugar<br />

levels which damages the retina.<br />

The retina is made of cells that<br />

convert light into electric signals,<br />

which are sent to the brain and<br />

turned into images.<br />

To function properly, the<br />

retina needs a constant blood<br />

supply. If the blood sugar is<br />

persistently too high the blood<br />

vessels supplying the retina can<br />

become damaged.<br />

Signs and symptoms<br />

Early stages of DR do not usually<br />

present symptoms, however<br />

you should always seek medical<br />

assistance if you notice:<br />

• nBlurred or patchy vision<br />

• nEye pain or redness<br />

• n“Floaters” – shapes in your<br />

field of vision<br />

• nWorsening vision or sudden<br />

total loss<br />

A human eye<br />

Over time a persistently<br />

high blood sugar level<br />

can damage these blood<br />

vessels. This happens in<br />

three stages:<br />

1 There are small<br />

changes in the eye but<br />

sight is not affected and<br />

treatment is not needed.<br />

There is an increased<br />

risk of future sight loss.<br />

2 There are greater<br />

changes to the eye<br />

including retinal bleeds.<br />

Sight is affected and<br />

diabetic screenings<br />

should increase to every<br />

3-6 months.<br />

3 There are significant<br />

changes in the eye,<br />

bleeds and retinal<br />

detachment. There is<br />

significant sight loss<br />

and treatment can<br />

stabilise but cannot<br />

improve your sight.<br />

Treatment<br />

and prevention<br />

The risk of developing DR can<br />

be reduced by controlling your<br />

blood sugar, blood pressure<br />

and cholesterol levels alongside<br />

taking all prescribed diabetic<br />

medications and living a<br />

generally healthy lifestyle.<br />

(Your GP can give advice about<br />

a healthy lifestyle). Also, ensure<br />

you attend your yearly diabetic<br />

eye screening appointment.<br />

Depending on the severity of<br />

the condition, laser treatments,<br />

eye injections or even eye<br />

surgery may treat DR.<br />

Having a sight test<br />

National charity Diabetes <strong>UK</strong> offers local support<br />

groups and advice lines, though you should always<br />

consult your GP for medical advice.<br />

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<strong>Open</strong> <strong>Hand</strong> 19


Life changing<br />

Using OXSIGHT<br />

glasses to read a menu<br />

technology<br />

For those of us with vision<br />

impairments, the idea of<br />

being able to see more really<br />

would be life changing. This<br />

dream could now be reality<br />

for some thanks to our<br />

friends at OXSIGHT.<br />

OXSIGHT glasses can improve<br />

sight for visually impaired people.<br />

They are designed to enhance<br />

vision for people with peripheral<br />

sight loss caused by conditions<br />

such as Glaucoma, Diabetes,<br />

Retinitis Pigmentosa and other<br />

degenerative eye diseases.<br />

vision. This can allow a user<br />

with peripheral sight loss to<br />

experience a full 68 degree<br />

field of vision.<br />

<strong>Deafblind</strong> <strong>UK</strong>’s Chairman Bob<br />

Nolan uses the glasses. He said:<br />

“The moment when I first tried<br />

on the OXSIGHT glasses will<br />

stay with me for a long time.<br />

I was talking with one of my<br />

family members and I could<br />

only make out her head and<br />

shoulders in a dimly lit room.<br />

When I put the glasses on it<br />

brightened up everything and<br />

I could clearly see not one but<br />

five members of my family!<br />

When you have less than five<br />

degree vision as I do, looking<br />

through the glasses is nothing<br />

short of miraculous.”<br />

The company was founded<br />

in 2016 by a team whose<br />

research into how the brain<br />

manages visual information<br />

began at Oxford University.<br />

OXSIGHT has since<br />

established partnerships with<br />

globally recognised partners<br />

<strong>from</strong> both the sight impaired<br />

and technology communities<br />

including: Google, The Royal<br />

National Institute of Blind<br />

People (RNIB), Guide Dogs<br />

Association, The University<br />

of Oxford, NIHR i4i, and The<br />

Royal Academy of Engineering.<br />

loss conditions. They are<br />

currently providing trials, fitting,<br />

and clinical support at their<br />

clinics in London, Oxford and<br />

Greater Manchester. Funding<br />

support for OXSIGHT devices<br />

is available through the<br />

Government’s Access to Work<br />

scheme, as well as through a<br />

0% finance plan.<br />

The glasses are fitted with a<br />

camera which streams a live<br />

feed into two high resolution<br />

Epson®-powered video<br />

OXSIGHT glasses<br />

displays. These screens are<br />

placed directly in front of the<br />

eyes and the images produced<br />

are manipulated to fit into<br />

To find out if OXSIGHT<br />

the user’s area of usable<br />

OXSIGHT glasses are suitable glasses could help you,<br />

for people with certain sight visit: www.oxsight.co.uk<br />

20 <strong>Open</strong> <strong>Hand</strong><br />

or call 01865 580255. <strong>Open</strong> <strong>Hand</strong> 21<br />

Wearing OXSIGHT<br />

glasses at the BBC


Marie celebrates 15 years of<br />

volunteering with <strong>Deafblind</strong> <strong>UK</strong><br />

Marie Meredith <strong>from</strong> Bangor has recently celebrated her<br />

15th anniversary of volunteering for <strong>Deafblind</strong> <strong>UK</strong>.<br />

Marie celebrating 15<br />

years of volunteering<br />

With encouragement <strong>from</strong> her<br />

daughter, Marie admits she “fell<br />

into” volunteering. Marie explains:<br />

“My daughter started volunteering<br />

and as she couldn’t drive, I<br />

agreed to join too so I could drive<br />

her. I ended up going in to visit<br />

<strong>Deafblind</strong> <strong>UK</strong> members with her<br />

and then, when my daughter<br />

moved away to University, I<br />

agreed to take over and carry on<br />

seeing her members!”<br />

Marie says: “I’ve visited 9 or 10<br />

members during my 15 years<br />

and they’ve all been different<br />

types of people, it’s been so<br />

interesting. I also try and spread<br />

the word locally with anyone<br />

I know who has a sight and<br />

hearing loss that there is help<br />

available <strong>from</strong> <strong>Deafblind</strong> <strong>UK</strong>.”<br />

Volunteering with <strong>Deafblind</strong><br />

<strong>UK</strong> has also benefited Marie’s<br />

wellbeing. Marie explains: “I<br />

feel it’s in my nature to help<br />

people as I used to be a nurse.<br />

I really don’t like to see people<br />

suffering and if I can help in any<br />

way I try to. That’s why I enjoy<br />

volunteering, because I get a<br />

reward for it too.”<br />

After experiencing volunteering<br />

for so long Marie remains<br />

the strongest advocate for<br />

volunteering with <strong>Deafblind</strong> <strong>UK</strong>:<br />

“I would definitely recommend<br />

volunteering with <strong>Deafblind</strong> <strong>UK</strong>.<br />

You get to make a difference to<br />

people and make them happy,<br />

you’ll be supported throughout<br />

and receive all the training<br />

you need before you start and<br />

during your role. <strong>Deafblind</strong><br />

<strong>UK</strong> staff have always been<br />

supportive, I’ve been able to<br />

meet other volunteers in the<br />

regular get-togethers we’ve had<br />

in North Wales.”<br />

When asked what Marie would<br />

say to someone thinking of<br />

volunteering with <strong>Deafblind</strong> <strong>UK</strong>,<br />

Marie’s response couldn’t have<br />

been clearer: “Go for it! I never<br />

thought I’d be volunteering for<br />

so long but as I enjoy it I can’t<br />

stop! I’ve loved it.”<br />

A huge thank you and<br />

congratulations go to<br />

Marie <strong>from</strong> everyone at<br />

<strong>Deafblind</strong> <strong>UK</strong>.<br />

If you are inspired by Marie’s story and would like to<br />

volunteer for <strong>Deafblind</strong> <strong>UK</strong> please contact us to find<br />

out more about the different roles available.<br />

22 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 23


An elderly woman<br />

walking with a <strong>Deafblind</strong><br />

<strong>UK</strong> staff member<br />

go to the bank or to support<br />

with shopping, to help make<br />

sure that you don’t miss out on<br />

any information. They will also<br />

support you to carry on with<br />

your hobbies, making sure sight<br />

and hearing loss doesn’t stop<br />

you doing what you love.<br />

Our support workers will<br />

communicate with you in the<br />

way you want, whether this is<br />

British Sign Language (BSL),<br />

<strong>Deafblind</strong> Manual, block<br />

alphabet, clear speech or<br />

any other method.<br />

What to do when<br />

things get difficult<br />

Living with any level of sight<br />

and hearing loss can be<br />

hard; you might find yourself<br />

relying on family and friends<br />

to help you with reading<br />

post or making calls, you<br />

might be avoiding personal<br />

appointments because of the<br />

communication barriers they<br />

present. But did you know<br />

that there is support available<br />

for when you need some<br />

extra help?<br />

<strong>Deafblind</strong> <strong>UK</strong> Care and Support<br />

is a truly unique service that<br />

combines personal support with<br />

communication and guiding<br />

to help those with sight and<br />

hearing loss continue to live as<br />

independently as possible.<br />

A support worker could visit<br />

you at home and work with you<br />

to do whatever you want. This<br />

might be helping you with post<br />

and paying bills, or it might<br />

be helping you to get to your<br />

appointments,<br />

Communicating with<br />

<strong>Deafblind</strong> Manual<br />

Our care and support service is a paid for service,<br />

you can access it in the following ways:<br />

Personal budgets<br />

If you have a personal<br />

budget <strong>from</strong> your local<br />

authority following a<br />

deafblind assessment,<br />

you can arrange your<br />

own support.<br />

Through your<br />

local authority<br />

If you are eligible for support<br />

following a deafblind<br />

assessment, but your local<br />

authority holds your budget,<br />

ask them if you can use<br />

<strong>Deafblind</strong> <strong>UK</strong> Care and<br />

Support as your provider.<br />

Self funding<br />

If you are not eligible for<br />

support <strong>from</strong> your local<br />

authority, you can arrange and<br />

pay for support yourself. We<br />

recommend that you check<br />

whether you are eligible for<br />

funded support first.<br />

A piggy bank<br />

Contact us using the details on the back of this<br />

magazine to see if we operate in your area.<br />

24 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 25


Digital Update<br />

Our digital support service helps people make the most of devices,<br />

apps and products to help them continue to do what they love.<br />

Welcome Solomon<br />

“Hello, I’m Solomon. I have<br />

recently joined <strong>Deafblind</strong><br />

<strong>UK</strong>’s digital inclusion team<br />

in London and wow, what a<br />

start it has been! My job is to<br />

reach out to people affected<br />

by sight and hearing loss and<br />

help them to use technology<br />

to their advantage. Since I<br />

started in November, I have<br />

run a digital workshop with a<br />

patient support group, delivered<br />

digital showcases at <strong>Deafblind</strong><br />

<strong>UK</strong> social groups and visited<br />

deafblind people in their own<br />

homes to support them with<br />

digital technology.<br />

I’m astounded<br />

at just how<br />

many devices<br />

and apps on<br />

the market<br />

today can<br />

help people<br />

with sensory<br />

loss. I always Digital Inclusion<br />

include a Officer, Solomon<br />

review of the<br />

most relevant products in my<br />

talks and the reaction has been<br />

fantastic! There are so many<br />

people who want to find out more<br />

about how technology can help<br />

them, I’m going to be very busy!”<br />

Jim’s story<br />

Jim is a retired children’s<br />

book author who still enjoys<br />

creative writing. However, the<br />

onset of macular degeneration<br />

together with a detached<br />

retina makes it difficult for<br />

Jim to use his computer. He<br />

has been working with our<br />

digital support team for the<br />

past year and has learned<br />

to set a sharper background<br />

colour, configure a simpler<br />

file view and set advanced<br />

MS Word editing options. Jim<br />

said: “I could no longer read<br />

the screen but showing me<br />

simple Windows magnification<br />

keystrokes together with the<br />

built in screen reader support<br />

is proving indispensable. You<br />

have made all the difference<br />

for me being able to continue<br />

to use my computer!”<br />

Free app –<br />

Dolphin EasyReader<br />

Dolphin EasyReader is a free<br />

app designed for readers with<br />

dyslexia or low vision. It allows<br />

you to read and/or have books<br />

and newspapers read back<br />

to you. Through the app you<br />

can access the popular book<br />

and newspaper libraries such<br />

as the RNIB online talking<br />

books service or the Project<br />

Gutenberg free ebook library.<br />

We think it’s great, give it a go!<br />

The University of Bradford<br />

We recently visited the University of Bradford to talk to<br />

social work and social care students about the use of<br />

adaptive technology for sensory impairments. Students were<br />

particularly interested to hear about products such as talking<br />

phones, sophisticated Braille note takers and screen readers.<br />

Dolphin EasyReader<br />

To find out more about<br />

our digital support<br />

service, contact us using<br />

the details on the back of<br />

Solomon helping Jim<br />

26 <strong>Open</strong> <strong>Hand</strong><br />

this magazine. <strong>Open</strong> <strong>Hand</strong> 27


Regional Roundup: Yorkshire<br />

Meet our Outreach Officer, Andrew, and find out what we’re<br />

up to in Yorkshire!<br />

Welcome Andrew<br />

“Hello, I’m Andrew and it’s my<br />

job to deliver <strong>Deafblind</strong> <strong>UK</strong><br />

services in West and South<br />

Yorkshire. I joined <strong>Deafblind</strong> <strong>UK</strong><br />

in June 2018 having worked<br />

and volunteered for hearing<br />

loss charities throughout my<br />

career. In my previous role I<br />

specialised in using technology<br />

to help people remain<br />

independent, so for information<br />

about hearing loops, amplifiers,<br />

alerting systems and all things<br />

technical, I’m your man!<br />

I was born deaf and rely on two<br />

hearing aids but I communicate<br />

through clear<br />

speech –<br />

although I<br />

am qualified<br />

in BSL.<br />

I studied<br />

Social Care<br />

and Deaf<br />

Studies at<br />

university,<br />

where I met my good friend<br />

and <strong>Deafblind</strong> Northern Ireland<br />

Outreach Officer, James.<br />

If there’s anything I can help<br />

you with please do not hesitate<br />

to contact me.”<br />

Calling all volunteers!<br />

We are urgently looking for volunteer<br />

companions to visit or call some of our more<br />

isolated members on a regular basis. This is<br />

truly rewarding and gives some people a rare<br />

chance to interact with others. If you or anyone<br />

you know might be interested in volunteering<br />

with us then please contact us.<br />

Andrew Barnes,<br />

Outreach Officer for<br />

Yorkshire<br />

Preventing<br />

social isolation<br />

in rural areas<br />

Living in a rural area, as many<br />

Yorkshire residents do, means<br />

that opportunities for social<br />

interaction can be more limited<br />

than in larger towns and cities –<br />

but it is just as important.<br />

We would love to hear about<br />

any social groups or clubs that<br />

members in Yorkshire go to<br />

so that we can recommend<br />

these to other people. Also, if<br />

you would like to meet up with<br />

another <strong>Deafblind</strong> <strong>UK</strong> member<br />

in your local area then please<br />

let us know and we will do what<br />

we can to arrange this for you.<br />

People talking<br />

Liz (SRSB), Andrew (<strong>Deafblind</strong><br />

<strong>UK</strong>) and Tracy (SRSB)<br />

Out and<br />

about<br />

We have been working<br />

closely with Sheffield<br />

Royal Society for the Blind<br />

(SRSB) and The Macular<br />

Society to raise awareness<br />

of sight and hearing loss<br />

in the local area. Together,<br />

we have attended some<br />

local events and are busy<br />

planning some activities<br />

for <strong>Deafblind</strong> Awareness<br />

Week in June.<br />

To find out more about<br />

our services in Yorkshire,<br />

contact Andrew Barnes<br />

on 07940 858749.<br />

28 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 29


A word of thanks<br />

We couldn’t do the life-changing work that we do<br />

without the generous support of fundraisers, donors,<br />

partners and volunteers.<br />

Running for <strong>Deafblind</strong> <strong>UK</strong><br />

Support a<br />

good cause<br />

<strong>Deafblind</strong> <strong>UK</strong> supports<br />

thousands of people with<br />

combined sight and hearing<br />

loss. But we couldn’t do it<br />

without support <strong>from</strong> our<br />

members and their friends and<br />

family. Do you know someone<br />

who might want to use our<br />

conference centre, take on a<br />

challenge event for us or even<br />

volunteer for us? If so please<br />

contact us using the details on<br />

the back of this magazine.<br />

Hello Abellio<br />

We’d like to say a huge<br />

thank you to Abellio for<br />

making <strong>Deafblind</strong> <strong>UK</strong><br />

it’s charity of the year!<br />

Abellio is one of the <strong>UK</strong>’s<br />

leading transport providers<br />

operating buses and trains<br />

across the country. We are<br />

looking forward to working<br />

with the team on fundraising<br />

and awareness raising<br />

projects later this year.<br />

Abellio<br />

logo<br />

Run, Patrick, Run!<br />

Well done to Patrick who has just<br />

completed his third marathon<br />

for <strong>Deafblind</strong> <strong>UK</strong>! Patrick has<br />

now raised nearly<br />

£3,000 for deafblind<br />

people. Thank you<br />

very much!<br />

Good luck London<br />

The very best of luck to<br />

everyone running the London<br />

Marathon later this month,<br />

especially Team DB<strong>UK</strong>!<br />

Rachel, Michael, Jo, Lucy,<br />

Adam and Hilary will be<br />

running for <strong>Deafblind</strong> <strong>UK</strong>.<br />

If you would like to get<br />

involved in fundraising<br />

for <strong>Deafblind</strong> <strong>UK</strong>, please<br />

contact us using the<br />

Good luck everyone!<br />

details on the back of<br />

30 <strong>Open</strong> <strong>Hand</strong><br />

<strong>Open</strong> <strong>Hand</strong> 31<br />

Patrick<br />

Serpentine Green<br />

Thank you to Serpentine<br />

Green shopping centre in<br />

Peterborough for its ongoing<br />

support. The centre has been<br />

more than accommodating<br />

in holding collections and<br />

awareness events for us and<br />

helping us to spread the word<br />

about deafblindness.<br />

Dobbies Garden Centre<br />

Thank you to Dobbies in<br />

Peterborough for donating coat<br />

hangers and “D-bars” to our<br />

new charity shop!<br />

Cooking for raffle prizes<br />

Thank you to COOK<br />

and Steamer Trading in<br />

Stamford for kindly donating<br />

very generous raffle prizes<br />

for our fundraising activities.<br />

Progressive Property<br />

Thank you to Progressive<br />

Property for hiring rooms in<br />

our conference centre over<br />

multiple recent weekends.<br />

These bookings have allowed<br />

us to support 21 deafblind<br />

people for a whole year!<br />

<strong>Deafblind</strong> <strong>UK</strong><br />

Conference Centre<br />

this magazine.<br />

Serpentine Green<br />

shopping centre


How can we help you?<br />

Information<br />

and advice<br />

Community outreach<br />

Casework<br />

Home, telephone and<br />

email befriending<br />

Social groups<br />

Digital support<br />

Heavily discounted<br />

holidays<br />

If you would like to access<br />

any of the services we offer<br />

please contact us:<br />

0800 132 320<br />

info@deafblind.org.uk<br />

07950 008870 www.deafblind.org.uk<br />

<strong>Deafblind</strong> <strong>UK</strong> is a registered charity. We have to raise £35,000<br />

every week to be able to keep supporting our members.<br />

If you would like to make a regular or one off donation please<br />

go to: www.deafblind.org.uk/donate or call 0800 132 320<br />

Contact us<br />

<strong>Deafblind</strong> <strong>UK</strong><br />

National Centre for<br />

<strong>Deafblind</strong>ness<br />

John and Lucille van<br />

Geest Place<br />

Cygnet Road<br />

Peterborough<br />

PE7 8FD<br />

Tel/Text phone: 0800 132 320<br />

Fax: 01733 358 356<br />

email: info@deafblind.org.uk<br />

www.deafblind.org.uk<br />

DB<strong>UK</strong>Charity<br />

@<strong>Deafblind</strong><strong>UK</strong><br />

Registered Charity No: 802976<br />

Company Reg No: 2426281<br />

32 <strong>Open</strong> <strong>Hand</strong>

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