St Wilfrid's Hospice - Reaching Out - Spring Summer 2019

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Our latest Reaching Out magazine, find out what is happening near you

SPRING/SUMMER 2019

Reaching

ut

NEWS FROM ST WILFRID’S HOSPICE / EASTBOURNE

Complementary

therapies at St Wilfrid’s

see page 3

Sign up to

an exciting

challenge event

see page 8

Please contact us 01323 434200 / stwhospice.org stwhospice stwilfridstweet stwhospice


Appointments are

limited, so book NOW!

June is Free

Wills Month

for St Wilfrid’s Hospice

If you wish to write your will, or amend an

existing one, and if you or your partner are

over 55, you can do so during the month of

June at any one of the solicitors listed below.

We do ask that you consider making a donation

to St Wilfrid’s Hospice, either in your will, or at the time

of your appointment, to help fund its vital, local work.

Simply select a solicitor from the list, below, and give

them a call to make your appointment.

One in three nurses

at St Wilfrid’s is

paid for through

gifts left to the hospice

in wills

You can become a guardian of this vital local heritage.

EASTBOURNE

EASTBOURNE

HAILSHAM

UCKFIELD

Barwells

6 Hyde Gardens

01323 411505

Hobson & Latham

47 Gildredge Road

01323 412333

Barwells

2 Market Square

01323 814010

Dawson Hart

9 Church Street

01825 762281

Cornfield Law

47 Cornfield Road

01323 412512

Lawson Lewis Blakers

11 Hyde Gardens

01323 720142

Hart Reade

Old Manor House

01323 841481

Sentry Legals

89 High Street

01825 729840

Gaby Hardwicke

33 The Avenue

01323 435900

Hart Reade

104 South Street

01323 727321

Hart Reade

3b Meads Street

01323 407577

Heringtons

39 Gildredge Road

01323 411020

McCarthy Webb

21 Wish Road

01323 400530

Mayo Wynne Baxter

20 Gildredge Road

01323 730543

Sentry Legals

52 Meads Street

01323 409849

Stephen Rimmer

28-30 Hyde Gardens

01323 644222

POLEGATE

Cornfield Law

1 North Street

01323 871100

Hart Reade

55 High Street

01323 487051

SEAFORD

Barwells

10 Sutton Park Road

01323 899331

SO Legal

Suite D, Eden House

01825 703082

Registered Charity Number 283686

SO Legal

15 Gildredge Road

01323 407555

Mayo Wynne Baxter

Jubilee House

01323 891412


The

things

we do!

Complementary therapies are an

integral part of the holistic approach

to patient care at St Wilfrid’s

Our people

The hospice offers courses of treatment

in massage, aromatherapy, reiki and

reflexology to help patients manage the

pain, stress and anxiety that can come

with a serious illness. There are two

Complementary Therapists, Angie and

Anna, and six volunteers who work to

deliver treatments within the hospice..

We spoke to Angie about a typical day

in her role: ‘In the morning I visit the

IPU to deliver treatments to inpatients.

This could include hand massage,

reflexology or aromatherapy, which

involves inhaling essential oils or

massaging them into the skin.

‘I had one patient who had lost his

appetite. He told me about the mandarin

tarts his mum baked for him as a child,

so I used mandarin oil for his course of

aromatherapy. It really helped to stimulate

his appetite so he could enjoy food again.

‘We then see outpatients in the afternoon

– either in the Wellbeing Centre at the

hospice or in their own homes. There’s

also a weekly relaxation group where

patients learn techniques that can help

them in stressful situations – some say

Angie and Anna

they have used them while having

treatment, for example. It’s so rewarding

as feedback is instant, just seeing a patient

relax or smile.’

Emily Bowler, Therapies Team Manager

added: ‘We’re working hard to reach more

people in our community. The volunteers

who have recently joined the team will

help us deliver more treatments in patients’

homes and outside of normal working

hours, which make us a lot more flexible

‘One of our volunteers is a trained

acupuncturist, which means we will also

be able to offer a more diverse range of

treatments.’

If you’re qualified at Level 3 or equivalen

in massage, we’d love to hear from you!

We’re always looking for volunteers to

join our Complementary Therapies team.

Visit stwhospice.org/come-and-volunteer

for more information.

Reaching Out : Spring/Summer 2019 3


New projects

How external funding helps

Apart from fundraising by local people, St Wilfrid’s is also granted

funding through trusts and grants. In the past year we have been

awarded funding for three exciting new projects

Male Carers Project

Research - and our own experience - tells

us that male carers tend not to access

support in the same way as women;

do they need less support, or are

our services less suited to them?

This 14-month project, funded by the

St James’s Place Foundation, uses

an innovative service improvement

methodology, called experienced-based

co-design. In a nutshell, male carers

working alongside hospice staff will

help to identify the stumbling blocks

to accessing care before ‘co-designing’

improvements together. It is the first

time the methodology has

been used in a hospice, so

we’re excited to be involved.

Building on Closer to You

Closer to You, our campaign to

provide more of our services

closer to where people live, is set to be

rolled out even further thanks to funding

from the National Lottery Community

Fund. Volunteers will provide social

support and companionship to patients

in their own homes as part of our

existing Community Support Volunteer

Programme. The project will also fund

a programme training volunteers to

support patients’ rehabilitative goals -

such as breathing techniques and

outdoor mobility practice.

The Seahorse Project

One in 29 children

in the UK is

bereaved every day,

and many are not

offered the support

they need. The

Seahorse Project,

funded through a grant from Children in

Need, aims to reach more children aged

6 to 18 in the East Sussex area who are

bereaved in any circumstance – including

road traffic collisions, sudden deaths and

suicide – alongside children bereaved

under the hospice. We are recruiting an

additional Bereavement Counsellor and

will work more closely with local schools

to spread awareness about childhood

bereavement – and that talking about

it is okay.

Reaching Out : Spring/Summer 2019 5


Working for

St Wilfrid’s in

memory of ‘Popsy’

One of our Care at Home Care Assistants,

Hannah Gadd, told us about her inspiration

Our people

Hannah now

Terry Morris, known as Popsy to his close

family, had been under the care of

St Wilfrid’s for quite some time before

he died at the hospice last year.

His granddaughter, Hannah, witnessed

how St Wilfrid’s supported Terry; she saw

the work of the nurses and healthcare

assistants who regularly visited Terry

at home to help care for him. She then

witnessed the Inpatient Unit at work

when Terry was admitted for the last

few weeks of his life.

One of the nurses suggested that Hannah

should consider joining the new Care at

Home team as a Care Assistant. A busy

Hannah and Terry

mum with two daughters, Hannah opted

for the role of Bank Care Assistant with

flexible shifts. Her work can involve

helping patients with their personal care,

mobility issues or medication.

‘Sometimes it might be help with washing

or transferring to and from bed,’ said

Hannah, ‘anything that allows them to be

as independent as possible as they draw

closer to the end of life.’

And what does Hannah get out of it?

‘The knowledge that I am helping

someone; helping them to be as

independent as they possibly can be

during what can be the toughest time of

their lives. I absolutely love it!’

And what does she think Popsy

would think? ‘It really is because

of Popsy’s care that I work at St

Wilfrid’s and my ambition, now,

is to train as a nurse. He would

be so pleased.’

Your donations help to support the

work carried out by our Care at

Home team who provide invaluable

personal care to patients in their

own homes.

Reaching Out : Spring/Summer 2019 7


Do something amazing

this summer!

Whether you’re looking for a solo

adventure or a challenge with family

and friends, we’ve got something to suit

everyone. Get some sponsorship for your

endeavours and you will be helping us to

provide essential end-of-life care

SIGN UP NOW!

stwhospice.org/

events 01323 434221

or fundraising@

stwhospice.org

8

Eastbourne Triathlon

Official Charity Partner 201

Saturday 15th June

Take on the challenge of this multidiscipline

event against the backdrop

of Beachy Head, the South Downs and

Eastbourne’s prom.

Register from £59

eastbournetriathlon.co.uk

Bungee Jump at

Beach Life Festival

Saturday 13th July

One, two, three… bungee!! You can

experience 175ft of exhilarating freefall

and bounce on the bunjee cord at this

festival in Eastbourne. It’s a little bit mad

but it’s a lot of fun. Do you dare?

Free if you raise £100+

beachlifefestival.co.uk

Reaching Out : Spring/Summer 2019

Ultra Challenge Series

Various dates

Whether along a magnificent coastline, or

on trails through stunning countryside, an

Ultra Challenge will be unforgettable.

Choose from the full challenge (100K),

the half challenge (50K) or the quarter

challenge (25K)

Our pick of the 2019

Ultra Challenges calendar :

London 2 Brighton Challenge

Saturday 25th May

South Coast Challenge

Saturday 31st August

Thames Bridges Trek

Saturday 7th September

Thames Path Challenge

Saturday 7th September

Register from £5

ultrachallenge.com


Challenge events

Sussex Hospices Trail

Sunday 1st September

This series of mapped walks criss-cross

the county, connecting the 12 hospice

areas that Friends of Sussex Hospices

(FoSH) support.

Choose from the 26 routes on the FoSH

website, sign up as an individual or with a

group of friends. friendsofsussexhospices.

org.uk/sussex-hospice-trail

London to Brighton Cycle

Sunday 15th September

Skydive

Saturday 21st September

Experience the intoxicating thrill of a

10,000ft skydive with other adrenaline

seeking St Wilfrid’s supporters at our

hospice-skydive days at Headcorn Airfield.

After training, experience a dizzying

ascent to 10,000ft before an exhilarating

freefall into a parachute-controlled

descent.

Register for £70

stwhospice.org/events

The 55-mile route is fully sign-posted so

that you can keep your eyes on the road

and enjoy the wonderful surrounding

countryside. Entry includes lunch, regular

water stops and roaming mechanical

support.

Register for £55 – until 30th June /

£60 – from 1st July

stwhospice.org/events

Beachy Head Marathon / 10k

Saturday 26th October

One of the biggest off-road marathons

in the UK, the Beachy Head Marathon is

popular for its scenic and challenging

route across the South Downs.

The 10k run sets off just after the

marathon with a route comprising of

breathtaking views and challenges.

Register for £45 (marathon) / £28 (10K)

beachyheadmarathon.co.uk

Great Wall of China Trek

Saturday 31st October to Sunday 8th November 2020

Experience one of the seven wonders of the world,

the Great Wall of China with St Wilfrid’s Hospice in 2020.

Challenge yourself by trekking through remote and rugged

landscapes and learn more about the history, culture and

cuisine of this iconic country.

Come to our information evening at the hospice on Tuesday

2nd July at 6.30pm. Call 01323 434241 to register your interest.

Register for £330. stwhospice.org/events

Reaching Out : Spring/Summer 2019 9


Volunteering

Chris and some of her fellow volunteers’

‘I feel like a butterfly coming out of a cocoo ’

Following her diagnosis of early-onset vascular dementia, Chris Maddocks

discovered a new-found confidence hrough volunteering with St Wilfrid’s

In 2016, Chris suffered three strokes

and was diagnosed with early-onset

dementia, having not long turned 60. ‘That

devastated me,’ she said. ‘I went home and

cried for three months, because I thought I

had been given a death sentence.’

Chris later decided to contact Alzheimer’s

Society, who encouraged her to attend the

Society’s Live Well programme, which she

described as a ‘real lifesaver.’ The Society

helped to rebuild Chris’ confidence, which

then led to her applying to become a Host

Volunteer on the hospice’s Inpatient Unit

last year.

‘I was worried I wouldn’t even get an

interview: there is still a stigma around

dementia, but I talked openly about my

diagnosis and was listened to. I have been

offered additional support to carry out my

role, but I haven’t needed it yet.’

Staff and other volunteers have already

started to notice a huge difference

in Chris’ sense of confidence and

independence, and she has been

discussing her possible involvement in

running sessions to increase awareness

of her diagnosis among St Wilfrid’s

volunteers. In May, Chris, and staff from

the hospice and Alzheimer’s Society,

will be presenting her experiences as a

hospice volunteer living with dementia at

the International Conference on Palliative

Dementia Care in Belfast.

As she said: ‘It’s

nerve-racking but

a privilege to be

asked; a bit like

it’s a privilege

working at

St Wilfrid’s -

everyone appreciates

you - staff and patients.

I feel like a butterfly coming out of a

cocoon; I went from feeling useless to

feeling useful.’

Would you like

to volunteer for

the hospice?

Look at the

volunteer section at

stwhospice.org

Reaching Out : Spring/Summer 2019 11


When Kerry saw that last year’s

Kapow was taking place on the first

anniversary of her husband’s death,

she knew she had to get involved

Kiah, Connor, Bradley and Kerry

‘Taking part in

Kapow felt so positive’

Shawn was diagnosed with kidney cancer

in March 2016, and by 2017 his condition

had started to rapidly deteriorate. He

spent February to June of that year in and

out of hospital, and was at St Wilfrid’s for

two days before he died on 9th June 2017,

aged 49.

Kerry told us: ‘When Shawn was admitted

to the hospice such a weight was lifted

off our shoulders. We could spend time

together as a family as we weren’t

Shawn

restricted by visiting times; it made an

indescribable difference

‘During the short time Shawn was at

St Wilfrid’s and since then, we have

received so much care and support.’

12

Reaching Out : Spring/Summer 2019


Your stories

Kerry has chosen to honour Shawn’s life

by living her own to the full every day:

‘People say that what has happened is

tragic, which it is, but you can’t focus

on that, you have to keep living life; it’s

what he would have wanted us to do.

‘Shawn died the day before our daughter,

Kiah’s, 18th birthday, and we didn’t know

whether to go ahead with her party, but

we realised that Shawn had given us

a gift: in leaving us the day before the

party, he gave us a sense of certainty,

we didn’t have to worry about being

interrupted by a phone call bringing bad

news. Instead, we could celebrate and

surround each other with love.’

good to give

something back

to the hospice.’

Since Kapow,

Kerry has

taken part in the Beachy Head 10K

and Eastbourne Half Marathon to raise

funds for the hospice and in February

this year, she held a 1980s-themed party

for what would have been Shawn’s

50th birthday, which raised more than

£2,500 for St Wilfrid’s. But Kerry isn’t

stopping there: earlier this year, several

of her poems about loss and living well

through grief, were featured in The Grief

Practice, a workbook that draws on the

experiences of the bereaved to help

others in the same situation.

And Kerry, Kiah and Bradley will be

returning for this year’s Kapow and

Kerry’s also thinking of joining the

hospice as a Host Volunteer.

‘I like the feeling of giving something

back,’ she said, ‘and I can’t really explain

it, but I feel so drawn to St Wilfrid’s.’

Kerry at the hospice

As the first anniversary of Shawn’s death

approached, Kerry was thinking of

positive ways to remember the occasion,

when she saw that Kapow, St Wilfrid’s

superhero-themed 5K fun-run was taking

place the very same day: ‘I knew we had

to do it. Kiah and Bradley, who is now

12, dressed as Dash and Violet from The

Incredibles; it could have been a sad

occasion, but instead we felt so positive.

It was a fun thing to do and it felt

Thank you so much to Kerry and we

hope that she, Kiah and Bradley really

enjoy Kapow again this year.

Sign up for

Kapow now!

Want to join us on 23rd June?

To find out mo e

and register, go to

stwhospice.org/kapow

Reaching Out : Spring/Summer 2019 13


Social media

You said it!

We are always pleased to read your comments on our social

media channels. Why not join in and be part of the converstion?

My husband has banned

me from going to the

Furniture Centre.

I always buy something!

Lisa

MD @SimonGrovesPRG

had a great day last Friday

at @stwilfridstweet’s ‘Jail

and Bail’! He managed to

raise an impressive £1,645.

PRG Marketing Comms

14

You provide a

much needed and

fantastic service.

#dyingwithdignity

#compassioninaction

Victoria

My husband always

brightened up when they

visited. They treated him

like a normal human

being and made him

forget about his illness.

Beverlie

Amazing team of

nurses and carers,

from administering

medication to sitting

all night with my

dad to give us a

break. Thank you.

Dennis

Reaching Out : Spring/Summer 2019

I belonged to the

men’s cooking group

group; I thoroughly

enjoyed the company,

and the expertise and

patience shown by the

occupational therapist.

Ken

One of my favourite

memories of Dad’s last

few weeks at St Wilfrids

is Dad and my husband

sat in the late afternoon

sunshine, enjoying a

beer together. If you

didn’t know any better,

we could have been

a family on a holiday.

Amelia

Keep in touch

Visit our website, like us

on Facebook or follow us

on Instagram or Twitter.

Keep up to date with all

that we’re doing and join in.

I really enjoyed the

fire walk. It was

such an amazing,

powerfully positive

experience. Yan

Fabulous ‘tour’ around

@stwilfridstweet

Hospice in Eastbourne.

You can get a haircut

there for a donation

- who knew! Lovely

memory tree and family

garden. And a truly warm

and loving atmosphere.

#love Bavard Bar

We’re delighted to have

been able to play a part

in such a worthwhile

cause. Hailsham

Community College

stwhospice

stwilfridstweet

stwhospice


Donate now!

Could you help our patients with a donation? We rely on your support for over two thirds of the

funds we need to provide free hospice care. Please fill in this form and send with your payment

to: St Wilfrid’s Hospice, 1 Broadwater Way, Eastbourne, East Sussex BN22 9PZ

Your details

Title

First name

Surname

Address

Postcode

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I’m donating in memory of (their name)

Their relationship to me is

Gift Aid

If you can, please add 25% to your donation at no additional cost to you.

Please tick if the following statement applies to you: I am a UK taxpayer and I would like

St Wilfrid’s Hospice (Eastbourne) to treat any donation that I have made for the four tax years prior

to the year of this declaration, and all donations I make from the date of this declaration until I notify

St Wilfrid’s Hospice (Eastbourne) otherwise, as Gift Aid donations. Date

Regular Giving

Please pay to the account of St Wilfrid’s Hospice (Eastbourne), Barclays Bank PLC, Eastbourne

Sort code: 20-27-91, Account no: 90450839 the sum of £

(amount in figures)

On the (day) of (month) 20 (year) and on the same day of each subsequent month until

further notice (please allow one month’s leeway).

Bank name & address

Account name

Sort code

Account no

Signature

One-off donatio

Date

I enclose a donation of £50 £100 £500 Other £

Please make cheques payable to St Wilfrid’s Hospice (Eastbourne) OR debit my credit card

Type of card

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Expiry date

/

Signature

Date

Please tick if you would like to have your donation acknowledged

Registered Charity No: 283686

Please turn over to let us know your contact preferences →

Reaching Out : Spring/Summer 2019 15


Can we stay in touch?

If you have helped the hospice in the past, we like to thank you and keep you informed

about our news and events. We feel there is a legitimate interest in keeping you up to

date with the work we are doing and letting you know how you can get involved. This

would normally be by mail.

However, it is easier and cheaper for us to contact you by email.

If you would prefer contact by email, please

tick this box and provide us with your email

address on the previous page; sending it back

to us in the pre-paid envelope supplied

Tick here if you would prefer

not to be contacted by St Wilfrid’s

We will never sell or share your data with

a third party but may use publicly available

information to ensure that what we send you

matches your interests.

For information about how we use your data please go to stwhospice.org/yourdata

Where your money goes

Thanks to your support, we have been

able to build on Closer to You, our

longer-term campaign which aims to

bring more of our services closer to

where people live. We now support

more than 1,550 patients a year and

the expansion of our Nursing and

Therapies teams this year will enable us

to support even more. We are reaching

more people with conditions other than

cancer, such as COPD and heart failure,

and we have secured additional funding

for a big expansion of social support

for patients and families over the next

three years. Thank you for all you have

helped us to achieve so far.

16

Reaching Out : Spring/Summer 2019


Your stories

Mark and Becky

Chiddfest –

it’s all about family

This popular local music festival returns for its sixth year

in July. We found out more about the people behind it

We met pub landlord, Mark Thomas, and

his business partner, Becky Taylor, in

his pub, the Yew Tree Inn in Chiddingly.

Mark wanted to talk to us about the

history of Chiddfest and the extraordinary

fundraising of his mother, Anne, who has

helped raise money for St Wilfrid’s before

it even came into existence.

‘Mum got invited to join a committee in

the village to help raise money for the

proposed new hospice. We are a farming

family and on the property is a big barn;

and it was used to hold a Caribbeanthemed

evening as a fundraiser. It was

really successful, raising over £1,100 –

we’re talking early 80s, so it was a good

amount. After that, Mum continued with

Anne and Bryan

her involvement and St Wilfrid’s

became, and still is, the charity that we

championed. There are lots of other

local good causes, but everyone knows

someone who has been touched by the

care of St Wilfrid’s and it seemed right

that we should carry on supporting them

after Mum’s early involvement. →

Reaching Out : Spring/Summer 2019 17


Scouting for Girls headline this year

‘Little did we know at that time that my

dad, Bryan, would need their care years

later. In fact, we had started planning

our first music festival in 2014 when

he died under the care of St Wilfrid’s.

Unfortunately, while he was aware of it,

he wasn’t around to see it happen; I don’t

think the music would have been to his

taste, but he would have loved to come

along with Mum to people watch.

‘That first year, we had about 500 people

visit over the course of the weekend and

this year, we expect around 3,000. While

we still feature local bands, as we did in

the early days, we also have some big

names appearing now. This year, for

instance, we have Scouting for Girls

headlining on the Saturday night. It’s

become a lot bigger, but retains a

relaxed, family-friendly feel. And every

year, we continue to support

St Wilfrid’s.

‘The hospice looked after Dad so

well and us, as a family, too, and that is

always a good incentive to put Chiddfest

on and raise more money for this great

local cause.’

Thank you so much to Mark and all

the Thomas family for their amazing

fundraising.

Chiddfest takes place

from 26th to 28th July

Details about tickets and

camping can be found at:

chiddfestchapter.co.uk

More hospice heroes

We are always in awe of what you do to

raise money for us… just look at these two!

After finishing this year’s Eastbourne Half

Marathon, Matt Halls performed more

than 1,000 burpees – one for every pound

he had been given in sponsorship! He

ended up raising £1,900 for the hospice,

giving back

for the care

we gave

his mother,

Jacqueline.

Matt presents his

fundraising cheque

to the hospice

Bet Faulkner

returned from

injury to run the

London Marathon

to raise more than £2,000

for St Wilfrid’s after the hospice

cared for her parents, Alan and Sian.

Bet getting

some training in

If you’re looking to raise money for

St Wilfrid’s, do contact our Fundraising

team for help. Just call 01323 434241

Reaching Out : Spring/Summer 2019 19


Summer diary dates

Enjoy some time with family and friends

St Wilfrid’s gardens

Wednesday 3rd July

Gain an insight into the five different garden

we have at St Wilfrid’s as we open them up for

tours for the first time. The event has limited

space so please book your tickets - £5 each -

by calling 01323 434280.

Be a superhero at KAPOW!

Sunday 23rd June

Feeling inspired by

Kerry’s story on page

12? Then why not sign

up to this fabulously

fun 5K run? Go to

stwhospice.org/kapow

to find out more

A very special teddy

bear’s picnic - any time

Gather the kids for

a summer time treat

and have a Wilfie Bear

Picnic on the beach,

in the garden or at the

local park. Recipes

and games and very

special Wilfie bunting

are all available on

Wilfie’s web page

stwhospice.org/picnic.

Open Gardens

Sunday 26th May

Do also visit the other beautiful

gardens that make up our Open

Gardens programme this year

Sunday 26th May

13 Bowden Rise, Seaford

Saturday 1st June

Sherrington Manor, Selmeston

Sunday 2nd June

Sunniva Harte’s Garden, Hankham

Saturday 15th June

Folkington Place, Polegate

Saturday 22nd June

Misty Acres, Horsebridge

Saturday 29th June

Friston Place, Friston

Sunday 7th July

2a Downs Road, Willingdon

Saturday 20th July

Knightsbridge House,

Hellingly

Saturday 27th July

29 Eridge Road,

Eastbourne

For more

information about

any of our Open

Gardens go to

stwhospice.org or

call 01323 434280.

22

Reaching Out : Spring/Summer 2019


Free legacy seminar

in conjunction with

Stephen Rimmer LLP

Thursday 30th May 2019 at

St Wilfrid’s Hospice, 11am

for 11.30am, booking essential

This seminar provides an introduction to the importance of making a will,

different types of gifts, inheritance tax and charities, keeping your will up to

date, and lasting powers of attorney. Lunch will be provided and tours of the

hospice are possible. A limited number of places are available, so contact

John Summers john.summers@stwhospice.org to book your place now.

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