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mokenamessengerdaily.com life & arts<br />
the mokena messenger | January 23, 2020 | 27<br />
Woman’s grief turns into<br />
inspiration to help others cope<br />
3<br />
T.J. Kremer III, Editor<br />
When Rachael and David<br />
Fedor lost their son<br />
Jason in May 2010, the<br />
grief was almost unbearable.<br />
Jason was born with a<br />
rare condition called Trisomy<br />
13, a chromosomal<br />
condition associated with<br />
severe intellectual disability<br />
and physical abnormalities<br />
in many parts<br />
of the body, according<br />
to the National Institute<br />
of Health. Only 5-10<br />
percent of children born<br />
with this condition survive<br />
past their first year<br />
of life.<br />
Jason lived to be only 6<br />
weeks old.<br />
“After he passed it was<br />
really hard on our family,”<br />
Rachael said. “We<br />
had our 3-year-old son,<br />
who all of a sudden had a<br />
brother and then all of a<br />
sudden he’s gone.”<br />
And that’s when the anger<br />
set in.<br />
Rachael began attending<br />
bereavement counseling,<br />
which helped<br />
some, but something was<br />
still lacking on her path<br />
to finding some kind of<br />
peace.<br />
“As I was going I kept<br />
saying, ‘I want to do<br />
more. This can’t be the<br />
end of my story,’” she<br />
said.<br />
It was the bereavement<br />
coordinator who told Rachael<br />
to “turn your anger<br />
into something good, turn<br />
it into something beautiful.”<br />
“I will never forget<br />
that because that was, I<br />
think, the stepping stone I<br />
needed. I needed to find a<br />
way to turn my anger and<br />
sadness into something<br />
more,” Rachael said.<br />
And so Rachael began<br />
collecting materials she<br />
had received after Jason’s<br />
death from friends and<br />
family and she put them<br />
in boxes. Then she took<br />
those boxes and offered<br />
them to hospice workers<br />
to pass along to other<br />
families who had lost or<br />
were in the process of<br />
losing a child much too<br />
soon.<br />
With that gesture,<br />
Heavenly Brothers NFP<br />
was born.<br />
On Jason’s first birthday,<br />
Rachael delivered six<br />
of the boxes; today, Heavenly<br />
Brothers has handed<br />
out more than 1,100<br />
boxes via approximately<br />
15 hospitals, women’s<br />
centers and hospice centers,<br />
as well as individual<br />
requests that are sent directly<br />
to the nonprofit organization.<br />
The boxes are free of<br />
charge and include items<br />
such as candles, books,<br />
seeds to plant in remembrance<br />
of the child, music<br />
and special keepsake statues<br />
to help others cope<br />
with their loss and remind<br />
them that there can be a<br />
path toward inner peace.<br />
But Rachael didn’t stop<br />
there. She also started a<br />
group for other mothers<br />
to meet and share their<br />
feelings together.<br />
“I wanted more than<br />
just sending out a box; I<br />
wanted to create a friendship<br />
or a place for people<br />
to come and feel safe as<br />
they grow through loss,”<br />
she said.<br />
Rachael said that creating<br />
those bonds with<br />
other families also helped<br />
strengthen her bond with<br />
her faith.<br />
“My faith grew more<br />
after I lost my son,” she<br />
said. “And one of the reasons,<br />
I feel, is because<br />
without knowing there’s<br />
hope, that God does hold<br />
him in heaven with him,<br />
then what’s the point of<br />
everything.<br />
“Originally, yeah, I<br />
blamed God. I questioned<br />
him. I was angry with<br />
him. I had all that anger<br />
and I didn’t know what<br />
to do with it. And I gave<br />
it to God. … He took that<br />
anger and he made me see<br />
that his goal was not to<br />
take my son at 6-and-ahalf<br />
weeks and bring him<br />
to heaven, but his goal<br />
is to take me through the<br />
loss and bring me hope<br />
knowing that he is healing<br />
my broken heart. …<br />
Without faith, I wouldn’t<br />
know how to deal with<br />
loss.”<br />
Rachael said she plans<br />
to continue reaching out to<br />
more hospitals and families<br />
in order to see Heavenly<br />
Brothers grow “and<br />
to continue to see more<br />
families find comfort in<br />
that and finding a way to<br />
give back to others.”<br />
In previous years,<br />
Heavenly Brothers has<br />
held an annual fundraiser;<br />
however, this year Heavenly<br />
Brothers is teaming<br />
up with Emily and Frank<br />
Smith’s Stephen Smith<br />
Family Fun Run at Union<br />
Creek Park in Tinley Park<br />
May 2, which will also<br />
mark the ninth anniversary<br />
of Jason’s death.<br />
For more information on<br />
Heavenly Brothers NFP,<br />
visit heavenly brothers<br />
boxes.com.<br />
Mokena resident Rachael Fedor sits with a photo of her late son Jason, who died<br />
at 6 weeks old. Fedor now runs Heavenly Brothers NFP, an organization that<br />
creates free boxes for memories for families who have lost a child. T.J. Kremer<br />
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