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TSA Annual Report 2020

Tuberous Sclerosis Australia (TSA)'s Annual Report for 2020.

Tuberous Sclerosis Australia (TSA)'s Annual Report for 2020.

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Thank you

Thanks to your generosity TSA has helped thousands of people affected by TSC. Together we have had a major

impact on the TSC community. Even during the uncertainty created by the COVID-19 pandemic, our community

has continued to get involved in supporting our work and for this we are incredibly grateful. We hope you share

in our sense of pride for the work we have done and will continue to do supporting individuals and families living

with TSC. This wouldn’t be possible without your help.

TSC Heroes raise $21,350

Thank you to all the TSC Heroes who raised funds

and awareness for TSA by joining in these events:

Pink Triathlon Kate signed up to test her strength

at the Pink Triathlon. Kate completed the 300m

swim, 9km ride plus 3km run and raised $2,057 for

TSA. Kate's workplace, SC Johnson matched Kate’s

donations bringing the total to $4,115.

City2Surf In addition to awarding TSA a grant

to develop the Parachute Packs, our partner nib

foundation got a team of 30 staff together to

participate in Sydney’s City2Surf. They raised

$3,121 and then nib matched every dollar.

Sydney Half Marathon Natasha ran in Sydney’s

Half Marathon in honour of her granddaughter

who was diagnosed with TSC late last year and

raised $4,000.

Melbourne Marathon In October Ben ran the

Melbourne Marathon and raised $1,345. Ben's

daughter lives with TSC which is why he signed up

to make a difference for people living with TSC.

New York and London Marathons Tess ran the

New York and London Marathons and raised

$2,618 in honour of her niece who has been

diagnosed with TSC.

Sun Run Our long-standing TSC Hero Melissa has

done yet another TSC hero event for us, inspired by

her godson Sammy. She has raised over $1,200.

East Gippsland Cycle Our General Manager,

Jackie and her husband John cycled 130kms on

the East Gippsland Rail Trail and raised $1,830.

TSC Champions donate $10,782

Our regular givers, known as TSC Champions,

make monthly contributions to TSA. These are

vital donations we can rely upon each month

to carry out our work

TSC Members contribute $21,365

We are incredibly grateful to our new and long

standing members who each year give so

generously by renewing their membership and

making a valuable contribution in support of

TSA.

Special Events

Lizzie's Lunch 2020 was a little different

this year due to COVID-19. We were unable to

proceed with our usual get together but, thanks to the generosity

of many of our regular guests, our call for donations to support our

Lizzie’s ‘Calorie Free’ Lunch raised $3,060.

Comedy for a Cure came to Sydney on

Saturday 26 October 2019. Over 150

guests joined us at Paddo RSL for a

fantastic night of fun and laughter

featuring a great line up of

comedians including Peter Berner,

Rob McHugh

Lizzie Hoo and Rob McHugh. We raised almost $27,000.

Padstow Bowls and Snooker Club held

their annual Christmas in July fundraiser a

little late this year but still raised

$8,141 at their dinner in September.

Over 100 guests attended. Thanks to

John and Donna, whose granddaughter

has TSC, for inspiring this support for TSA.

Nambour Christian College in

Queensland held a "wear blue for TSA"

fundraiser. Holly's brother, Koby has

TSC so when Holly suggested holding

a gold coin donation day to help other

families like hers everyone got involved

and they raised $418.

An in memory collection was held by

the Catlow family who recently lost their

beloved Betty. Betty was very close to

her granddaughter Amanda who has

TSC. The family requested donations

be made to TSA to honour Betty,

raising $3,100.

TSC Global Awareness Day and

#Tatts4TSC was held despite the challenges

and restrictions of the coronavirus pandemic,

and our dedicated TSC community and your

generous family and friends, raised almost

$7,000. Shout outs to The Rossano Family,

Rachel Bennett, Amber Reid and Jamie from

Green Leaves Early Learning Albany Creek.

THANKYOU!

Padstow Bowls John

and Barry

Nambour Christian College

Betty Catlow with her

grandaughter Amanda

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