Our Impact 2019-2020

nicbta

Annual review of our activity 2019-2020.

Annual review

of our activity

2019-2020


Welcome

The last 12 months have seen us take big steps forward in our mission.

I was particularly pleased to spearhead our work towards finding a cure

for tinnitus. In August, we published a highly regarded research paper

identifying the barriers to finding a cure and what needs to be done next.

We then backed this up by launching our own research fund and using

our Tinnitus Manifesto to lobby the Government for increased funding into

tinnitus research. Over 100,000 people signed our petition!

We have completed the second year of our project to assess the

social value of our work. The independent review found that for every

£1 invested in BTA services, we delivered an incredible £12.72 return

on investment, which is a huge achievement.

Being successful in our application for a significant grant from the

National Lottery Community Fund’s Digital Fund was also a major

success, allowing us to become digitally fit for the future, to better meet

your needs and to support more people than ever before.

The positive impact we have on the lives of people living with tinnitus

would simply not be possible without the support of all our funders and

donors. We are extremely grateful and I would like to extend my personal

gratitude for this generosity.

Looking to 2020-21, we cannot ignore the impact that the Covid-19

pandemic will have on all of us and on the future of the BTA.

Whilst we are confident of surviving the immediate crisis,

it is impossible to think that the BTA will remain

unaffected in the mid-term.

Our Vision

We want a world where no one suffers

from tinnitus.

Our Values

Our Mission

To drive progress towards a cure

and deliver excellent support to help

people living with tinnitus.

Those living with tinnitus will always be at

the heart of what we do and I am immensely

proud that we have adapted to ensure that

all of our services continue to be available,

despite such challenging circumstances.

I remain optimistic about what the future

holds for the tinnitus community and

the BTA.

David Stockdale

Chief Executive

Compassion

Address the needs of our community

with empathy and kindness

Integrity

Treat everyone with fairness, openness

and honesty

Trust

Be objective and current, justifying

what we do and say based on evidence

Boldness

Be courageous in everything that we do

and constantly challenge



2019-2020 Highlights

Our year in numbers

1,311,667

people benefitted from accessing

our support services. A 29%

increase on last year!

103,000

people signed our petition urging

the Government to commit more

funding to tinnitus research.

224

professionals attended our events,

workshops and lectures to improve

the quality of support offered to

tinnitus patients.

425

pairs of earplugs were given away

at two university freshers fairs.

226%

more video views on our YouTube

channel during Tinnitus Week

2020, compared to Tinnitus

Week 2019.

35,747

social media followers – getting

the tinnitus community talking.

A 30% increase on last year.

1,291,933

unique visitors to our website –

providing reliable information

about tinnitus.

£12.72

for every £1 we spend - the value

of our social return on investment.

2

tinnitus debates in parliament – as

a result of the Tinnitus Roundtable

event and Manifesto.

6,141

helpline calls answered – providing

empathy and understanding to

people with tinnitus.



The impact we made this year

Research into a cure

We published a paper asking ‘Why is there no cure for tinnitus?’.

The study – which has had a staggering 50,000+ views

– identified the key barriers to finding a cure, meaning

we now know what research areas to prioritise

going forward.

In January, we hosted a Tinnitus Roundtable event

at the House of Commons, sponsored by Sir John

Hayes MP, who has tinnitus himself. The event brought

together leading academics, politicians, research

funders, patient support groups, clinicians and people

with tinnitus, and led to the publication of the first

ever Tinnitus Manifesto.

Tinnitus Manifesto

The Manifesto sets out three steps the Government

must take to give people with tinnitus hope for a cure.

This need was also raised by Baroness Blackwood

in the House of Lords, and we received a commitment from the Health

Secretary to look at funding for tinnitus research. Key press coverage -

from ITV, The Times, the Daily Mail, The Independent, and the Daily Mirror

- raised further awareness for the campaign, tinnitus and the BTA.

Petition

We launched a petition during Tinnitus Week, which urged

the Government to commit more funding to tinnitus research.

The petition is also the evidence of demand that we need to back up

the Manifesto calls. We smashed our target of 10,000 by attracting

103,000 signatures by the end of February.

Social return on investment

This is a method for measuring how effectively we are

using our resources to create value for the community.

For every £1 we spend delivering services, an average

of £12.72 in additional social value is created (Social

Value Business independent review). This is double

the expected return of an average voluntary sector

organisation. We are one of just 52 organisations

nationally to achieve the Social Value Quality Mark

level 3.

Support groups

Our support group network has grown from 105 to 115

groups in 2019-20. In September 2019, we launched

the BTA Gold Standard, which celebrates tinnitus

support groups that are working hard to be inclusive

and sustainable long term. We’re pleased to have

awarded 11 groups with the Gold Standard in 2019-20.

Our public events

Our information days and tinnitus expo events

provided members of the public with an ‘under one

roof’ opportunity to access seminars, lectures, tasters,

face-to-face advice, and exhibitors.

From information day event feedback during the year,

96% of attendees said they learnt something new and

97% found it helpful to be with others who had tinnitus.

This evidence reflects the positive impact our public

events are having on people’s ability to manage tinnitus.

Helpline improvements and new web chat

We introduced new web chat and text support services to

offer more people the chance to get discreet and flexible

information and advice, which is also more accessible for

people with hearing loss. Towards the end of March, we

also successfully moved all helpline functions to operate

remotely in response to Covid-19 restrictions.



Claire became the

face of our Tinnitus

Week campaign.

Here’s her story.

Claire Eveleigh, 34, is a mum-of-two from

New Milton near Bournemouth and has had

tinnitus since July 2019.

“It came on suddenly after a rare night out

where I’d listened to loud music. It was a low

droning noise which I could also feel. I went

to see my GP and was told it wasn’t anything

to worry about and would pass in a couple

of weeks.

“It carried on. I went back to my GP several

times and was eventually diagnosed with

tinnitus, and referred to an ear, nose and

throat (ENT) specialist and a tinnitus clinic.

None of it was much help really and people

were quite dismissive.

“More funding into tinnitus

research is vital, as currently

there just aren’t enough

options for people like me”

How you’ve helped

The generosity of our supporters and donors

drives everything that we do. We’re delighted to

share some of our fantastic fundraisers’ stories.

Anthony

After opening up to others about his tinnitus, Anthony

decided to challenge himself to take part in the Great

South Run to raise awareness of tinnitus and for anyone

who is struggling. he achieved a personal best time of

1 hr 27 mins and raised an incredible £659.43.

Lorna

Lorna took part in our Virtual Step Challenge and set herself the

goal of walking five miles every day in September. She managed

to exceed this and walked 170 miles throughout the month. Lorna

smashed her £400 target and raised an amazing £565.28.

Adam

“Raising money for tinnitus research is important to me

as I work with people who suffer with it and would love

to see developments to help them.”

“I started having suicidal thoughts. I was very scared and thought

my two young children would be better off without me. I couldn’t focus

on them; I was too preoccupied with listening to these horrible sounds.

I was prescribed antidepressants.

“I went to a support group which I found through the British Tinnitus

Association, and realised that people have struggled and come out on

the other side. Now I do yoga and mindful meditation to help overcome

the anxiety, although I still have my bad days. I live for my children and

spend a lot of time outside with them. They are my main distraction and

my family is really supportive.

“I remember before I had tinnitus I would never have given it a thought

and yet now it is often all I can think about. It’s difficult to accept that I’ll

have these noises in my head for the rest of my life. You can’t escape it,

it’s with you everywhere you go, all day long. This is why more funding into

tinnitus research is vital, as currently there just aren’t enough options for

people like me.”

Adam raised money specifically for tinnitus research

during Tinnitus Week by saying goodbye to his long

locks. As well as raising over £800 for the BTA, he

also donated his hair to the Little Princess Trust.

Ian

In April last year, Ian challenged himself to his first

ever sprint triathlon in Lincoln to raise awareness

and funds for the BTA as his wife has lived with

tinnitus for many years. He wanted to highlight the

issue of tinnitus not being classified as a disability.

Ian finished his first triathlon in 1 hr 48 mins and

exceeded his target of £500 with a total of £622.



Leaving a gift in your

Will: Together we can

silence tinnitus

Gifts in Wills pay for around half

of our work to help people with

tinnitus.

The majority of the research projects

we have supported would not be possible

without kind donations made in Wills.

You can request to leave a gift in your Will for our

work supporting people with tinnitus or ring-fence for

tinnitus research. The choice is yours.

Did you know?

Currently, 40% of people will die without a Will. This could lead

to significant costs, and a lot of stress for the family left behind.

A gift left in your Will is an opportunity to give more than

you might ever have been able to give in your lifetime.

An opportunity to provide support, advice and

compassion for people with tinnitus long

into the future.

Plans for the future

We have outlined a number of key priorities to

shape the future of the charity.

During the next period we will further develop our

support services and research programmes by:

– Increased Research

– Development of a tinnitus biobank – a major

fundraising project.

– Commissioning projects through our research

grants programme with additional funding.

– Extended Partnerships and Communication

– Establish an international research network.

– Publish the Tinnitus Cure Map electronically.

– Continuing to lobby for the key priorities

identified in the Tinnitus Manifesto.

– Working in partnership with RNID on out joint

financed PhD.

– Develop Support Services

– Developing our support services to include

digital tools and services.

– Continual improvement of our engagement

with service users.

An opportunity to fund vital research

towards a cure for tinnitus.

We strongly recommend you use

a solicitor to help make your Will, to ensure

that it is legally valid and that your wishes

will be carried out exactly as you want.

If you are interested in leaving a gift to

the British Tinnitus Association, and need

more information, please contact David

Steele on 0114 250 9933 or email

davidsteele@tinnitus.org.uk

David and Torryn - Chief Executives of the British

and American Tinnitus Associations.



Thank you to all our supporters.

We can’t do it without you.

Thanks to the generous support of our members, donors,

fundraisers and grant-making organisations, we have been

able to make a huge difference to people living with tinnitus.

Here’s where the money came from and how we spent it.

Income 2019-20

Overall income £1,346,491

49% Legacies

29% Trusts, foundations & corporates

7% Personal donations

5% Sale of goods

5% Membership

5% Sales of services

1% Bank interest

Cost of services 2019-20

Overall spend £996,458

26% Our services

21% Tinnitus research

20% Training events/conference/free-to-public events

19% Fundraising

5% Cost of goods sold

5% Staff costs

3% Admin/premises

2% Governance/legal

Why we need your help:

– The number of people living with

tinnitus in the UK is set to rise by more

than half a million people by 2028.

– There are around 1.05 million GP

consultations for tinnitus in the UK

each year, and tinnitus costs the NHS

£750 million annually, with a cost

to society of £2.7 billion per year.

– The BTA needs to raise over

£1 million each year to continue

our UK-wide support.

British Tinnitus Association

Ground Floor, Unit 5

Acorn Business Park

Sheffield S8 0TB

0114 250 9933

info@tinnitus.org.uk

www.tinnitus.org.uk

Reg Charity No: 1011145

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