Eden Valley Hospice and Jigsaw Spring 2021 Newsletter

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Eden Valley Hospice

Jigsaw, Cumbria’s Children’s Hospice

Eden Valley Hospice & Jigsaw Shops

Spring 2021

@EVHospice

@JigsawHospice

eden_valley_hospice

jigsawchildrenshospice

Registered Charity Number 1008796

www.edenvalleyhospice.org

www.jigsawhospice.org

Inside this issue:

“Apparently the only time he

pressed the buzzer for the

nurses to come was to tell

them that those blooming

rabbits were eating the

plants again.”

Sandra Campbell

Page 4

“It is a privilege to work with

people as they approach

end of life care and I am

proud to be part of a team

offering genuine holistic

care.”

Rebecca Jenkinson

Page 8

“They move mountains to

cater for their patients care,

with dignity”

Charles Deans

Page 11

2


Welcome to the Spring 2021

newsletter from Eden Valley

Hospice and Jigsaw, Cumbria

Children’s Hospice.

Like most charities the past year has been a great

challenge for us as we have had to navigate our way

through the Covid-19 pandemic. We have made the

required adjustments to our services to make sure we

keep everything safe for all our patients, their families

plus staff and our fabulous volunteers. We have

complied with all the government’s stringent health

and safety requirements and adapted to

ensure that we maintain our services.

Picture Courtesy of the

Cumberland News/News and Star

As the Chief Executive I feel enormously proud that our staff have shown such great

commitment and worked tirelessly to ensure that our inpatient beds have continued to offer the

much-needed care and support to patients, including some patients that are Covid-19 positive.

Also, the ongoing support we offer to our Day Hospice patients and our Jigsaw children, young

adults and their families.

Due to the government requirements, we have seen a huge drop in our charitable funding as

shops had to close and community fundraising was put on-hold. This has meant that we have

entered 2021 with a deficit budget and we are looking at ways to maintain our financial stability.

We are grateful to everyone for the fantastic support we have received both in terms of

individual giving and people supporting each other through a range of activities and their

generous donations. In addition, we truly appreciate the gifts in Wills we received that have

really helped to ensure our current financial security. Thank you.

We are hoping that as we come out of this current Covid-19 lockdown and everything starts to

get back to the new ‘normal’ that we will be able to reinvigorate a wide range of activities. This

year is our 30th Anniversary and we would like you to join us in celebrating the great work you

have made possible and continue to do for our community by helping us to raise the funds we

so desperately need to ensure our service can continue for the next 30 years and beyond.

Thank you for all your support and your commitment to Eden Valley Hospice and Jigsaw.

With my very best wishes

Trish

Professor Patricia Livsey

Chief Executive

32


“This year has been my first at Eden Valley

Hospice and what a year it has been.”

Jenny Wilson

This March marked the first anniversary of the

nationwide lockdown and implementation of the

Covid-19 restrictions. Over the last 12 months,

the care at Eden Valley Hospice and Jigsaw has

adapted and changed as we continued to care for

local people with life limiting illnesses.

Jenny Wilson, Head of Clinical Services at the hospice

explains,

“To support continued high quality care for patients,

despite significant staff sickness and to protect the

most vulnerable service users, the decision was

initially made to suspend face to face Jigsaw and Day

Hospice services. All clinical staff were asked to work

on the Adult In-Patient Unit to support ongoing care.

“I have been so impressed by the professionalism,

flexibility and hard work of all the team over the last

year and I am proud to be part of the team. We are all

looking forward to expanding the work of Jigsaw and

services offered by Day Hospice as we move through

2021.

“This year has been my first at Eden Valley Hospice

and what a year it has been. The challenges presented

to all health care providers are unprecedented and

have required all providing care, particularly End of Life

care, to balance infection control measures against

protecting the human rights of vulnerable patients and

their families.

“The visiting restrictions and need to wear surgical

masks during patient interactions have challenged staff

in many ways but have also resulted in imaginative and

creative responses and initiatives.

“The support of the local community throughout the

Covid-19 pandemic has been outstanding. They have

helped in numerous ways, including making multiple

sets of scrubs to wear for patient care, the donations of

gloves and face masks etc. Equally the demonstration

of their support week after week with public clapping

has lead to tears for many staff, including myself.

Jenny Wilson (Pictured Right)

“There are many moments that have stood out for me

in the last 12 months, including staff agreeing, almost

overnight, to a change in their shift pattern in order to

maintain clinical cover for the In-Patient Unit.

“The look of joy on the faces of the Jigsaw staff when

we re-opened to our first respite care after three

months of suspended service. The smile of a child who

was using the newly installed wheelchair swing in the

Jigsaw garden. The support staff gave a patient to do

her hair and make-up before she had a Zoom call with

her son. The sadness of having to restrict visiting.

“These memories are both positive and negative, but

we have always tried as a team to keep the needs of

those we care for at the heart of every decision we

make.”

Over the last 12 months, the kindness, generosity

and support of the local community has been truly

overwhelming. The support of local people has helped

Eden Valley Hospice and Jigsaw every day to care

for and support people when they need the hospice

the most. From supporting Don Marks’ Protect Your

Local Hospice Campaign to taking part in your own

fundraising challenge, you have made a difference.

Thank You!

43


“I will always remember the

care that my Dad, and us as a

family, received from all the

staff at the hospice with great

fondness.”

- Amanda Lowis

For three decades Eden Valley Hospice and

Jigsaw have held the hands of local people during

the most challenging times in their lives. Your

vital support has created precious memories

for thousands of local people and even though

technology, medication and our care have

changed over the decades our specialist care

teams have continued to support local people.

In 2008, the hospice supported Jim (James) Miskelly

and almost 13 years later his Daughter Sandra Campbell

still has special memories of Eden Valley Hospice.

Sandra explained, “We will be eternally grateful to

all the staff at the hospice for making Dad’s last

few weeks special and allowing Bracken my golden

retriever, his best buddy, to be by his side.

“I think he would be most impressed with the new

garden and the wall to keep those blooming rabbits

out! I will treasure the last few nights that I had with

him as I slept by his side holding his hand and was

there by his side as he slipped away to look after an

extra special garden in the sky (I do hope they got

him a greenhouse!).”

Due to the challenges presented by Covid-19

our care has changed and adapted to meet the

needs of our patients, their families and the local

community. Despite some of the challenges

being difficult for staff, patients and their families,

the hospice has continued to support the local

community and local NHS during these challenging

times.

“All Dads are amazing but he was one in a million.

Losing his right hand as a teenager whilst helping

out at Whinfell Forest, near Penrith, never stopped

him carrying on with a normal life, spending over 40

years working as a welder for Bendalls in Carlisle,

driving a manual car, peeling potatoes and tying his

own shoe laces were a few of the ‘normal’ things he

did.

“He was an avid gardener all his life, spending most

of his days in his garden and greenhouse potting up

many plants and vegetables. So when the staff at

the hospice discovered this they would move his bed

in different positions so he could get a better view

of the garden, plants and birds, oh, and the rabbits!

Apparently the only time he pressed the buzzer

for the nurses to come was to tell them that those

blooming rabbits were eating the plants again!

54


me run from Carlisle to Gretna. The whole time I was

running I was inspired by my Dad’s outlook on life and

how positive he was in such a sad time for us all as a

family.

“Dad was the strength in our family and the one who

would push us to believe in ourselves and what we are

capable of. I am so proud that I was able to complete

this challenge before he passed.

“I will always remember the care that my Dad, and we

as a family, received from all the staff at the hospice

with great fondness. They treated my Dad with dignity

and supported my mum, sister and myself every step

of the way.

In 2020, during the Covid-19 pandemic, we

supported David Jackson and his family. David’s

daughter, Amanda Lowis, talks about the vital care

her Dad and family received.

“Dad was at peace when he left us and that was mainly

down to the hospice and being able to be with us, his

family, when he needed us the most.”

Amanda explained “In July [2020] my Dad was admitted

to Eden Valley Hospice for some support with his

cancer treatment. Although it was in the height of

the pandemic they were very supportive and made it

possible for my Mum to visit him each day. My sister

and I were also able to visit him on occasions too.

“As time passed, Dad’s cancer progressed rapidly and

it became apparent that he would spend his last days

under the amazing care of the hospice. After visiting

the hospice and seeing first-hand what fantastic work

all the staff do I felt that I wanted to give something

back and my Dad also wanted to do some kind of

fundraising.

“I looked through the hospice’s website and came

across the 20km in 2020 challenge. I thought “that’s

a great idea, I can spread it into small runs,” however

my husband had other ideas and challenged me to

complete my first ever 10km run. On completing the

run he signed me up to another 10km which saw

The specialist, compassionate care provided by Eden Valley Hospice and Jigsaw

is needed more than ever by the local community. Donate today to ensure local

families,with life limiting illnesses will be able to access vital care and a comforting

hand to hold when they need it the most.

65


“I can honestly say hand on heart that what I am doing is no chore

to me. I take a lot of comfort knowing my efforts are helping

children and families.” Shaun Jones, Jigsaw Fundraiser.

In March 2020 as the country entered its first

lockdown Shaun Jones began to run every day.

Fast forward a year and Shaun has continued this

amazing running challenge, completing at least

six miles every day and raising over £2,000 for

Jigsaw. The challenge is special for Shaun and his

family as his daughter, Katie, was cared for at the

children’s hospice.

Speaking at the beginning of the challenge Shaun

explained, “There isn’t a children’s hospice in our area,

so we would go to Derian House in Chorley. But with

me working in Carlisle, it was handy to go to Jigsaw

because I could travel up in the car with Katie. Me or her

mam would sit with Katie in the back of the car just in

case she would have any seizures or choking incidents.

“It was great coming up to Jigsaw with her because

I could go to work and the family would have a day in

Carlisle. We could then come home, leaving Katie in

Carlisle at the children’s hospice for a couple of days.

Jigsaw has a friendly atmosphere, it was brilliant. It just

had a nice homely connection with it. We never had any

worries with leaving her, it was brilliant.

“When we did lose Katie, I went around to Jigsaw for

a cuppa and I said that I would do an event one day to

raise money for what they have done for us. It is just

giving something back and to show we appreciate

things. That’s my drive and I know the fundraising will

be appreciated.

“I thought that I was going to have to flog myself for a

50 mile event, because whatever I do, I can’t just do the

same again and expect people to sponsor me. I have

to keep building on it and I thought that I would have to

do something big. But this lockdown came about and

because the government said you could exercise once

a day I called them my running tokens, use them or lose

them.”

Over the following days, weeks and months Shaun

has run at least six miles every day, including half

marathons and a marathon. Since starting the

challenge Shaun has completed thousands of miles of

running as he supports his local children’s hospice.

Shaun continued, “It is a win win for me, raising money

for such a good cause and at the same time my running

has kicked on another level. I always said body willing I

will give it a go and I feel I’m too close to 365 days now

to stop. I have started to count down the days in my

head already.

“I can honestly say hand on heart that what I am doing

is no chore to me. I take a lot of comfort knowing my

efforts are helping children and families that sadly have

to put on a brave face and get on with life everyday

as we did. They have the hard job and respite is so

important.”

The kindness and generosity of Shaun’s family and

friends has seen him smash his initial fundraising

target of £100, with the current fundraising total

standing at over £2,000.

6

To find out more about Shaun’s fundraising challenge or if you have been inspired to

make a donation please visit www.justgiving.com/fundraising/shaun-jones15


When we tell our son he’s going

to Jigsaw his face beams.

Heather Young

likes, dislikes and complex health needs. This is so

reassuring for us as parents, but also for the children,

giving the whole family confidence to be away from

each other. To refresh and get ready for whatever lies

ahead in what can be very uncertain times with usually

only one very sad outcome.

“When we tell our son he’s going to Jigsaw his face

beams. He loves going, he feels that he is going for a

sleepover with his mates, he loves the banter with the

staff and his friends and having his bed in the lounge to

watch TV, which is something we can’t do at home.

Robbie

Caring for children has always been at the heart

of Eden Valley Hospice and Jigsaw, with one of

the first patients cared for at the hospice being a

young child. Although providing care for children

had never been planned in 1991, the opening of the

hospice helped to reach families in need.

Speaking about the early days of Eden Valley Hospice

Sr. Bernadette, one of the first people to work at the

hospice, explained “On 2 October [1991] the building

inspection took place. While all this was going on Sr.

Carol was using her artistic talents to paint murals on

the walls of what would be the children’s ward. Who

would have thought then that in the years to come on

this spot there would be a beautiful, modern unit solely

for the care of children.”

After welcoming our first children in 1991 and 1992 the

hospice provided both day care and respite for children

from across Cumbria and it soon became apparent that

a purpose built facility would be valuable to many local

families. In 2007 Jigsaw’s homely, purpose built facility

was officially opened and in the following years we

have welcomed many local families to Jigsaw, including

Heather Young and her son Robbie.

Heather explained, “Robbie has been accessing Jigsaw

for several years. We as a family love the home from

home atmosphere and how the staff take time to

get to know the children and young adults with their

“He is occupied and stimulated, never bored. He thrives

on the attention and we know he is safe and gets the

care he needs. This means we can relax knowing he is in

safe hands with dedicated staff.

“Jigsaw supports us as a family emotionally through

the most difficult times that a family can ever go

through but we have got the most amazing memories

too, including dressing up on World Book Day, making

Valentines Day cards, baking scrummy cakes, going

to the races, and siblings meeting up to support each

other. This is so important as siblings feel very lonely

and isolated unable to relate to others.

“It’s also nice to know as a parent that there are other

families who are on similar journeys and riding the same

storm even though we are often in different boats, we

can emotionally relate and often chat about the same

issues. We would be lost without the dedication of the

amazing staff and this valuable asset to our son’s life.”

Over the last 12 months the care at Jigsaw has had

to change with the children’s hospice temporarily

suspending its care within the building to protect our

families. However, this did not mean our care stopped

as we offered online care and support for our families,

plus staff were always at the end of the phone when

needed the most.

In recent weeks and months, the buzz of activity

has returned to Jigsaw as the staff welcomed back

children, young adults and their families. To keep up to

date with all the activities happening in Jigsaw make

sure you follow our social media pages on Facebook,

Instagram and Twitter.

7


“It is a privilege to work with people

as they approach end of life care

and I am proud to be part of a team

offering genuine holistic care.”

Rebecca Jenkinson, Adult In-Patient Team Lead

2021 is a special and significant

year for Eden Valley Hospice and

Jigsaw as the hospice celebrates

30 years of caring for local

people with life limiting illnesses.

Over the last three decades

your care teams have helped

thousands of local people as

special memories are created.

One year after Eden Valley Hospice

welcomed its first Day Hospice

patients, the Adult In-Patient Unit

opened. One of the first nurses

to join the hospice was Rebecca

Jenkinson who has now worked at

the hospice for 29 years.

Rebecca explained, “I started

working at Eden Valley Hospice

when the Adult Unit opened in the

summer of 1992. I had moved to

Carlisle the previous year newly

married and a newly qualified Nurse.

I am sharing my 30th Wedding

Anniversary with Eden Valley

Hospice.

“When Eden Valley Hospice opened,

Margaret Dunne was the Matron,

she was an inspiration to the nursing

team, teaching us the foundations

of palliative and end of life care. It is a

privilege to work with people as they

approach end of life care and I am

proud to be part of a team offering

genuine holistic care.

“We recognise that alongside

physical symptoms, patients may

have spiritual, psychological and

social issues contributing to their

distress. Having the time to spend

with patients and their families

and working alongside the skilled

clinical and support teams to provide

this care is a very important and

rewarding part of my role.”

In the last three decades technology,

medication and our care have

changed, but one thing has remained

constant... time. Our staff are

fortunate to have the time to spend

with our patients and their families

during the difficult times and this is

possible thanks to the support of the

local community.

Rebecca continued, “As a charity,

the hospice continues to be well

supported by the local community,

but expectations have changed.

Treatments have improved and

patients are living longer with their

diagnosis and as a result can have

more challenging symptoms and

needs. It is essential that the team

have current, evidence based

knowledge in order to manage

these symptoms.

“The hospice building has also

evolved over the years. Although

we had two children’s beds

when we opened, we now have

a children’s unit, Jigsaw, which

accommodates four inpatients and

four day patients when running

at full capacity pre Covid-19. Day

Hospice has been extended and

there has been the addition of the

Sandra Fisher Centre, which houses

our Family Support Team.”

Due to the challenges presented by

Covid-19 our care has changed and

adapted to meet the needs of the

local community. Like many health

care workers, our staff are working

in PPE which has made it harder to

have difficult conversations with our

patients at important times in their

lives. The softer side of palliative

care has become harder and the PPE

can make it difficult for patients to

understand their environment and

the homely feel of the hospice.

8


Rebecca added, “The last 12 months have been

incredibly challenging for everyone. Covid-19

resulted in Day Hospice and Jigsaw temporary

closing and the three clinical teams merging to

cover the Adult Unit. It is a credit to the whole

team to see how everyone has worked together

to support patients and families. Some of the

Jigsaw staff have only ever cared for children, so

nursing adults was a huge change for them.

“The environment we now work in is very different to

how it was a year ago. Our shift patterns have changed,

we have sinks in the corridors for additional hand

washing, we all wear masks from arriving in the building

to leaving, only removing them for breaks. This impacts

on interacting with patients as we rely so much on facial

expression, particularly at sad and difficult times. As well

as masks we now wear visors, aprons and gloves when

entering a patient’s room.

“On the other hand, there have been changes that have

enhanced patient care. Our Health Care Assistants have

willingly extended their roles to support the registered

nurses, including second checking controlled drugs. This

has been a huge advantage in patient care, as previously

we needed two qualified nurses to check and dispense

medication, which sometimes required nurses to leave a

patient to carry out these checks.

“The most difficult change for us all over the past year,

has been the restrictions around visiting. We have

always gone the extra mile in accommodating patients’

friends and families to be with them, welcoming them

to stop in the patients room, the guest room or the

flat. We have always had an open visiting policy and

had no issues with visitors coming in at any time. The

implementation of very restricted visiting, in line with

government guidelines, has been very upsetting for

patients, families, friends and staff.

“On a positive note, I feel we are emerging a stronger and

more united team ready to embrace the next chapter of

the Eden Valley Hospice Story.”

The specialist, compassionate care provided by Eden

Valley Hospice and Jigsaw is needed more than ever

by the local community. With the support of the local

community our care teams will be there for local people

as we move into a new chapter for hospice care and

another 30 years of supporting local people.

Rebecca concluded, “Eden Valley Hospice has supported

me to personally improve my knowledge and education.

I completed a nationally recognised 18-month specialist

palliative care course and have a teaching qualification.

I enjoy the teaching aspect of my role which includes

sessions for new staff, students, district nurses, GP

Registrars and pre Covid-19 a guest educator at the

University of Cumbria.

“I have lots of memories caring for patients and their

families at such a difficult time, some of whom were

real characters, others with many things in common

with me and those who were quiet and humbling in

their acceptance. I have worked with some excellent

colleagues over the years, who have been brilliant role

models and have supported me and helped develop my

knowledge and skills.

“The hospice was opened in 1993 by HRH Duchess of

Kent and we were visited by HRH Countess of Wessex in

2015, both of which were lovely, memorable occasions.”

9


Shop online and support

your hospice

With our high street shops closed in Carlisle, Penrith, Wigton and Brampton, a small team of retail

volunteers have continued to raise vital funds for the hospice through our eBay store. The online store

is an Aladdin’s cave of good quality donated items, offering something for everybody.

In 2020, the shop raised almost £42,000 to help local

people with life limiting illnesses during a challenging

year. Volunteers David, Maurice and Jackie explain

more about our eBay store.

David explained, “The eBay shop sells anything

above £10. Ranging from bric-a-brac, collectables,

antiques, gold and silver jewellery, midcentury

furniture, vintage clothing, vintage and

contemporary paintings, prints, vinyl LPs, books,

electricals and cameras, anything our shops sell we

sell online. eBay reaches most of the world as well,

so we often send items to the US, Japan and Europe

which helps to maximise the price.

“The best part about volunteering within the eBay

shop is the challenge to identify and research

potential items, to find the current market value

and then photograph and accurately describe each

item. The information helps the item to achieve its

maximum value, to respect our supporters and raise

funds for the hospice

Jackie added, “I really enjoy helping to increase

income and raise vital funds for the hospice, finding

items other people have discarded and selling them

on eBay. Plus, the volunteers are okay for the crack

too.”

With over 700 items listed on the eBay page at any

one time and with items ranging from collectables to

furniture, there really is something for everybody.

Some of the best selling items have included

anything rare and collectable, jewellery and porcelain

items. But what items have stood out for our

volunteers?

Maurice explained, “A model steam locomotive which

was donated and raised £1,695. We also received a

collection of thimbles which sold extremely well for

£2,000 and model railway locomotives and rolling

stock which raised £1,200. We also received a fully

furnished dolls house which sold for £3,000.”

Jackie added, “Items which stand out for me are

a jewelled butterfly brooch which sold for £375, a

limited edition figure which sold for £295 and a piano

which raised £2,000.”

David concluded, “Memorable for me were some

vintage household and decorative items which we

sold to a film and theatre company. Other interesting

items include old keys, 100 old pennies, branded

old wood hangers and Scandinavian and Scottish

designer silver jewellery.”

Over the last 12 months our eBay shop has

provided an invaluable source of income to Eden

Valley Hospice and Jigsaw whilst our shops have

been closed. The eBay store has provided hospice

supporters, the local community and people all

over the world with the opportunity to purchase

wonderful items and help the care, support and

compassion provided to local people.

10

David, eBay volunteer

Whether you are looking to treat yourself, purchase

a present for a loved one or want to add to your

collection we are sure the Eden Valley Hospice and

Jigsaw eBay shop has something for everybody.

To view the range of items currently available to

purchase, please visit

www.ebay.co.uk/str/edenhospice


“They move mountains

to cater for their patients’

care, with dignity.”Charles Deans, Hospice Fundraiser

Earlier this year Charles Deans set himself the

challenge to push himself in his wheelchair

virtually from Land’s End to John O’Groats in aid of

Eden Valley Hospice and The Calvert Trust. In just

10 weeks Charles completed the 874 miles, with

the final stage of the challenge from the Calvert

Trust, Keswick, to the hospice in Carlisle.

Since 2006 Charles has been an incomplete paraplegic

and a wheelchair user unable to access the Lake

District, a place where he enjoyed spending time prior

to his injury. On 30 December 2020 Charles and his

wheelchair reached Dodd Summit, followed by the

summit of Latrigg a few days later.

As the country was placed into a new lockdown in the

New Year Charles set himself the mammoth Land’s End

to John O’Groat’s Challenge to support two charities

close to his heart.

Charles explained, “Both charities are close to my

heart. As a wheelchair user I believe the Calvert Trust

gives people with disabilities the opportunity to fulfil

their personal goals without restrictions, whilst being

able to appreciate the outdoors within the Lake District

National Park.

“Eden Valley Hospice is very dear to me as they looked

after my sister Helen when we as a family felt helpless.

They move mountains to cater for their patients’ care,

with dignity.

“I know both charities are struggling because of the

current pandemic so I wanted to highlight this and

challenge myself to raise funds that are urgently

needed to keep these charities open for other people to

enjoy when the pandemic is over.”

In the last 10 weeks Charles and his family have

travelled around north Cumbria as they racked up the

miles virtually travelling the length of Great Britain

in aid of their chosen charities. To date Charles has

raised over £13,000 to be shared between Eden Valley

Hospice and the Calvert Trust.

Charles continued, “I have most enjoyed the freedom

of the challenge, being able to challenge myself and the

exhilaration of being out on the roads in my wheelchair.

However, the pain, the flat tyres and the awful weather

that we have had have proven to be a big challenge for

me. But it’s all worth it for such good causes.

“This challenge is not possible for me to do on my own.

My wife, Sara, my daughters Ebony and Lois and my

nephew Will Ismay have all been involved from the

beginning. Without them, I couldn’t do this.”

Through the virtual Land’s End to John O’Groats

Challenge Charles has been sharing regular updates

on his progress, including videos of him completing

the challenge. You can keep up to date with Charles’

challenge via his Facebook and Instagram pages, simply

search for Charles Deans Wainwrights.

If you have been inspired to sponsor Charles as he

raises money in aid of Eden Valley Hospice and the

Calvert Trust please visit Virgin Money Giving and

search for Charles Deans Land’s End to John O’Groats

Virtual Challenge.

You can make a difference!

In 2021, to celebrate the hospice’s 30 Anniversary, we will be hosting a range of exciting

fundraising events. To find out more visit page 16 or www.edenvalleyhospice.org

or www.jigsawhospice.org

11


The hospice staff took us from

the coalface of daily care and

gave use special moments

together, the greatest gifts the

Millennium could bring. Michelle

For over 30 years our staff and volunteers have

held peoples hands, provided a listening ear and

supported them during the challenging times.

Memories of Eden Valley Hospice and Jigsaw can

stay with people for many years. Whether this is

a memory of their loved ones, the gardens at the

hospice or an anniversary celebration we helped

to make happen, everyday precious memories are

created at the hospice.

As part of our 30th Anniversary celebrations we have

been looking through our archives and discovering

many memories from the local community which we

wanted to share with you. In one special letter sent

over 20 years ago, Michelle describes her family’s

experiences at Eden Valley Hospice.

“There was no fooling Mum who must have registered

our anxiety, and therefore asked to be admitted to the

local hospice, a place which she had never visited but

held in implicit trust. On Millennium Eve she left her

home with Dad and we handed her over to their expert

care, knowing that time had come for change as the

year 2000 dawned.

“In my head something told me that my mum was on a

journey, and she had just secured a ticket in club class.

All would be well.

“The happiest and most precious times were spent

over the next few days. We were enriched daily, as if

drinking from the Horn of Plenty and could drink no

more. The hospice staff took us from the coalface of

daily care and gave us special moments together, the

greatest gift the Millennium could bring.

“Mum was very ill and growing weaker, but it didn’t

matter because we were together and could just

concentrate on being a unit. We were made to feel

welcome and told to treat the place as our home, from

the eldest, down to Jemima, not forgetting the family

boxer dog, Otto. We became overwhelmed by the love

and the care from all involved, towards each of us.

“Initially we wanted to stay, but Mum still ruled the

roost, and we were sent home, being told that the

whole point of her being there was so that we could go

away and sleep. The next night we all became afraid and

kept a vigil at her bedside, wrapped in blankets by the

night nurses and energised by their tea and coffee until

dawn beckoned. Remarkably, the whole environment

of the hospice helped us work through our worst

nightmares.

“We learned to stand back a little. We learned to feel

safe. We learned to respect what Mum wanted and

needed. We had come there to live. The next night

we each went home, leaving Mum and Dad together

to have their time alone. I woke early and drove in at

daybreak to meet the arriving nurses on their early

shift. From the car park I saw that behind-the curtains

my Mum’s room was still lit. Butterflies stirred in my

stomach and I felt anxious. But the light hadn’t gone

out. The sister, who linked me as we walked together

through the semi darkness, reassured me. I was so

pleased to see Mum again, I later confessed ‘How could

I have been afraid when I was only going to see my

Mum!’

“All our family and relatives came to make their goodbyes.

There were so many visitors I was afraid Mum

was being crowded out. I knew she would have hated

everyone sitting around the bed, waiting. I managed to

persuade them to retreat to the lounges. These were

warm, cheerful areas, bright with Christmas trees

and fat with chocolates, where we laughed, cried,

reminisced and were just together, in between peeking

in on Mum and giving her peace and quiet with Dad, or

one of us.

12


“We learned to love Mum but to let go, and soon I

realised that if she wanted to make any decisions

about herself, she needed to have the space and time

to do this. We needed to allow her some dignity and

privacy. If we couldn’t do this, we would have failed her

miserably.

“We decided that the only visitors permitted to her

room were the immediate family. Our parish priests and

the hospice staff cared for us in a manner which I am

privileged to have experienced but can never requite.

Mum was always beautiful to us, but with their help

she sustained even more radiance, both spiritually and

physically. Again, the quiet and the peace fell upon us

and we were as one.

“By this time, we had spent five days at the hospice. We

were sleeping peacefully at night. We were loved and

cared for, all of us, and we were together. We held no

fear. Mum had her privacy, dignity, was respected and

free from pain.

“Despite her being very ill by this time, I was able to

maintain some communication with Mum; nothing to

do with my speech therapy training; it was just because

we knew each other so well. She told me special things

in those last few days, which I will hold precious and

remember forever. I am so grateful for having shared

those moments. She told me that she was sorry, but

she couldn’t come home. But she didn’t say when she

would be leaving.

“That day a snow flurry blew in the pink winter

sunshine. It seemed as if all the angels from Heaven had

come and descended on earth, creating a comforting

blanket of serenity while dressing the hills and trees in

shimmering white.

“Early the next morning my brother called me to say I

should come quickly. While he was out of the room, she

made her exit, alone with Dad. Always careful about her

appearance, the nurses had just finished making her

beautiful and so she had decided she was ready, before

another day of bustling visitors began. I went over and

gently stroked her head, telling her how proud I was of

her. As I looked out of the window the sun was rising

over the horizon. It was time to turn out the lamps,

because dawn had finally arrived.”

Families, fundraisers and volunteers, everybody has

a memory to share about Eden Valley Hospice and

Jigsaw. Whether a loved one was cared for at the

hospice or you have taken part in a fundraising event,

every day precious memories are created with the

support of the local community.

To help with our 30th Anniversary celebrations we

would like you to share your memories. Whether this

is a story, a picture or a video, we want you to share

your memories during our special year. For more

information please visit www.edenvalleyhospcie.org,

www.jigsawhopsice.org or email communications@

edenvalleyhospice.org

13


Just 1% will make a

difference

Did you know... You can leave 1% in your Will to the hospice so those closest to you

inherit 99%?

Your Will is one of the most important documents

that you’ll make in your lifetime. Having a Will

means you can decide how your estate is

distributed after you die. It is the only way you

can guarantee your family, friends and favourite

causes get what you want from your estate.

Writing a Will is an important milestone in everybody’s

life. Not only will your Will safeguard your loved ones’

future, but a special gift to Eden Valley Hospice and

Jigsaw can make a huge difference for years to come.

If you die without a Will your husband, wife or registered

civil partner will not automatically inherit your entire

estate. You will have no control over where your estate

goes after your death. To ensure your personal wishes

are carried out, you should make a Will.

Leaving a gift in your Will is a valuable way to support

the work of the hospice and to ensure we provide a

comforting hand to hold for our patients in the future.

Last year, approximately 25% of our income was made

via gifts in Wills.

Karen Durden, Legacy Manager, said “We are incredibly

grateful to those people who, many years ago, decided

to support the hospice in this way. The care for one in

four patients is possible through gifts in Wills.

“No matter how large or small your gift is, it will help

support local people with life limiting illnesses.”

Throughout April, the hospice is offering the local

community the opportunity and time to talk about

their Will and the future. Make a Will Month is your

opportunity to secure your family’s future whilst

helping to provide care to people with life limiting

illnesses.

It is up to you how much to donate but as a guide we

suggest £130 for a single basic Will, £200 for a pair of

basic mirror Wills and £40 for a codicil.

Karen continued, “For many people making and talking

about their Will is something which they put off for

years, but with the support of the local solicitors the

hospice is delighted to be able to provide you with this

opportunity to talk about your Will and support the

hospice.

“Eden Valley Hospice and Jigsaw would like to thank all

of the partner solicitors for very kindly offering their

services free of charge throughout Make a Will Month.

The campaign allows people to secure the future of

their loved ones whilst supporting the care provided by

Eden Valley Hospice and Jigsaw.”

There’s no obligation to make a gift to Eden Valley

Hospice and Jigsaw in your Will to take part in Make a

Will Month, but by leaving a special gift to the hospice

you will help local people receive the specialist care and

compassion when they need it the most.

If you would like more information about leaving a gift in your Will

or Make a Will Month, please visit www.edenvalleyhospice.org

or call 01228 810801.

14


Over 30

Chances to Win!

As we celebrate the hospice’s 30th Anniversary, we

are giving you more than 30 opportunities to win in the

Eden Valley Hospice and Jigsaw Spring Raffle.

In just a few months, one lucky winner will receive the

top prize of £1,000 just in time to treat yourself during

the summer months. In addition to this fantastic top

prize, one lucky person will receive a £100 second prize

and 30 lucky supporters will each receive £30 as third

prize.

Tickets to win one of these fantastic prizes are just

£1 each or you can receive a book of 20 tickets today

by calling the Lottery Team on 01228 810801 or email

lottery@edenvalleyhospice.org. To celebrate the

hospice’s 30th Anniversary, why not round up your

donation to £30 and help the hospice support local

people for another 30 years.

This year’s draw will be made on Monday 21 June 2021

with raffle tickets returned to the hospice by Tuesday 15

June 2021.

“I was happy to round up my monthly subscription

because it’s only £1.32 per month, which wouldn’t

even cover the cost of a coffee or sandwich.”

You can make your lottery payments go further

by adding just a small donation every time you

play. More than 600 lottery players have signed

up to our Keep the Change campaign, with each

small donation helping to raise approximately

£9,000 for the hospice each year.

One Lottery player explained, “We signed up to our

Keep the Change because it was a very simple task to

round it up. It helps the hospice and makes the maths

easier on the bank statement. It is a painless way to

help.”

Keep the Change allows you to round up your lottery

payments and make a small donation to Eden Valley

Hospice and Jigsaw. Each donation will help the hospice

to provide a hand to hold for local people when they

need our specialist care the most.

The hospice lottery costs just £2 a week to play and

offers you the opportunity to win one of 58 weekly

prizes, including a top prize of £1,000, plus a potential

rollover of up to £10,000. By rounding up your monthly,

quarterly, 6 monthly or annual lottery payments, each

small donation will make a big difference.

Ally Duncan, Lottery Manager, explained “We have

been truly overwhelmed by the kindness and

generosity of our lottery players who have already

signed up to Keep the Change. By rounding up their

lottery payments our valued supporters have been

making an additional donation between £1 and £8,

when adding together all the donations our supporters

really are making a big difference.”

If you would like to find out more about the hospice lottery or Keep the Change

please visit www.edenvalleyhospice.org, www.jigsawhospice.org

or call 01228 817614.

15


Challenge yourself during our

30th Anniversary

For over 30 years the support of the local community has helped to build the hospice, purchase specialist

equipment and provide vital care to local people with life limiting illnesses. From making a donation

to challenging yourself at an event, every pound raised will help local people today, tomorrow and for

years to come. After the challenges of 2020, the hospice is delighted to announce a wide range of new

opportunities for you to make a difference and support the hospice. Throughout the year we will be

monitoring government guidance and may have to make changes to some of our events.

July 2021 - Sunday 18 – Morecambe Bay Walk at 11.45am

August 2021 - Saturday 7 – New for 2021! Bikes, Boats, Boots in the Lake District

September 2021 - Sunday 12 – Great North Run

October 2021 - Sunday 3 – London Marathon -Sunday 3 – Great Cumbrian Run

October 2022 - Trek Nepal and Community Project

Plus, many more events will be announced over the coming weeks and months. Keep checking the Eden Valley

Hospice and Jigsaw social media pages and websites for more information.

If you have been inspired to host your own fundraising event in aid of Eden Valley Hospice and Jigsaw and would

like any support, advice or guidance please contact the Fundraising Team on 01228 810801 or email fundraising@

edenvalleyhospice.org

Now more than ever, your donations will make a difference!

Celebrate the hospice’s 30th Anniversary by making a donation and provide a caring hand for people to hold when they

need it the most. Every pound donated will make a big difference to local people with life limiting illnesses.

Every donation received will help our patients and their families to receive vital and specialist care and support. This

newsletter celebrates the personalised care we provide to every family at the hospice, and this is made possible thanks

to your donations.

My donation is £....................................................................................... (Cheques should be made payable to Eden Valley Hospice and Jigsaw)

Title:......................................................................................................................................................................................................................................................

Forename:...........................................................................................................................................................................................................................................

Surname:.............................................................................................................................................................................................................................................

Address:...............................................................................................................................................................................................................................................

Date.......................................................................................................................................................................................................................................................

Post Code:...........................................................................................................................................................................................................................................

Telephone:...........................................................................................................................................................................................................................................

Email:.....................................................................................................................................................................................................................................................

If you wish to donate by credit or debit card please call 01228 810801. You can also make your donation online at

www.edenvalleyhospice.org or www.jigsawhospice.org

If you are a UK Taxpayer we are able to recover the tax paid on your donations at no extra cost to you boosting your donation by 25p

in every £1 you donate. In order to Gift Aid your donation you must tick one of the boxes below.

I want to Gift Aid my donation and any donations I make in the future or have made in the last 4 years.

I am a UK taxpayer and understand that if I pay less Income Tax and/or Capital gains in the current tax year than the amount of Gift Aid

claimed on all donations it is my responsibility to pay the difference.

Once completed, please return to:

FREEPOST TRLY-KCCK-SZKX, Eden Valley Hospice, Durdar Road, CARLISLE, CA2 4SD.

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