Your great commitmentthrough a wide rangeof events has enabledthe hospice to surviveand prosper.MaketheWelcome to the autumn 2021 newsletter from Eden ValleyHospice and Jigsaw Children’s Hospice, which celebratesour 30th Anniversary.This edition provides us with an opportunity to look backover the past 30 years and see the great contributionthe hospice has made to our patients, their families, andthe wider community. It also enables us to celebrate thefantastic work of our staff, volunteers, and your amazingsupport, all of which has enabled the hospice to offer such vital care for our patients.Over those 30 years, there have been many memorable events, including a royal visit by the Duchessof Wessex who came to see us in June 2015. There have also been so many visitors and entertainerswho have brought such fun and happiness to our patients, from donkeys to Caribbean dancers; ukulelebands to opera singers; Disney princesses to circus performers; magicians to llamas… and I have just seenSuperman and the Incredible Hulk walking hand in hand past my window!There have been so many great celebrations and we have enjoyed many joyous parties including themost beautiful weddings. Thank you to everyone who helped make these events possibleWe have welcomed a menagerie of pets that often visit and even stay with their owners while in our care.These include big dogs and little dogs, good cats and naughty cats, well-behaved goldfish and even theoccasional inquisitive lizard. Our special therapy dog, Junior the golden cocker spaniel, is a superstarwho brings great joy to all our children in Jigsaw.Your generosity has been and continues to be so amazing. We rely on 80 per cent of our funding tocome from charitable donations. Your great commitment through a wide range of events has enabled thehospice to survive and prosper. Legacies are an important part of financial sustainability and I know thatwithout them we would, particularly over the Covid-19 pandemic, have struggled financially.I would also like to thank our truly wonderful volunteers, without whom we could not function – a HUGEthank you to all. In addition, our great patrons and supporters who have been with us every step of theway.The hospice provides such an important service every single day. This newsletter gives examples thatshow the difference the hospice makes to the patients and families we serve. This can only be donethrough your kindness and generosity. Please accept my heartfelt thanks for all your support and yourcommitment to Eden Valley Hospice and Jigsaw Children’s Hospice.Here’s to the next 30 years…and beyond!With my very best wishesTrishProfessor Patricia LivseyChief Executive2021 is a very special year for Eden Valley Hospice as wecelebrate our 30th anniversary. The continuing concernsover Covid may be preventing us from organising anevent to mark this occasion, but it will not stop us fromcelebrating this achievement and your support.Most importantly, we have launched our appeal toencourage people to include a gift to the hospice in theirwill, after thinking of their family and friends.The appeal aims to encourage 300 people to make apledge or tell us of an existing gift in your Will, as part ofour birthday celebrations. To celebrate how importantthe hospice is to the community, an advert featuringaround 30 staff, volunteers and families will air on ITVBorder on demand in October.We had great support from local families and thecommunity who responded to our appeal for volunteersto take part in the filming.Everyone from the Gillford Gilles football team to ourvolunteer gardeners, children and parents whose liveshave been touched by the hospice and, of course, ourdedicated staff team appear in the advert.pledgeWe have also been fortunate to team up with TheCumberland News which is supporting the appeal.The appeal is all the more important because thecoronavirus pandemic has hit the hospice hard, makingthis, our 30th anniversary year, one of the mostdifficult financially.It is only down to the generosity of kind supportersleaving a gift in their Will that the hospice hasn’t beenmore adversely affected during the pandemic. One inthree to four of the hospice’s patients are cared for dueto legacy gifts. Every gift makes a difference.Legacies are vital to secure the future of the hospice andcare for local people and their families so please encourageothers to join you in supporting Eden Valley Hospice.Finally, watch out for the giant birthday cards that will becirculating around Carlisle and Cumbria in the run-up toour ‘birthday’ at the end of October. We hope hundredsof people will get a chance to sign a card and support ouranniversary celebrations.Call 01228 810801 to find out more or make thepledge today. See page 12 for our look back athow the hospice began.3243
Pandemic meantnew role for JacquiThe pandemic and lockdown restrictions meant newways of working for Eden Valley Hospice. With thechildren’s hospice Jigsaw closed to protect the mostvulnerable children, Jacqui Clapperton, previous JigsawActivities Coordinator and now Healthcare Assistant,found herself redeployed to the adult unit to assistwith the complex care needed.But she believes the enforced changes have led to amore flexible and united team across the whole of theDurdar Road site.“The pandemic hit and it was a case of, Jacqui, you’regoing to have to retrain, do your healthcare and workon the adult unit which is basically what all Jigsaw staffdid,” she said.Jacqui came to Eden Valley five years ago as a volunteerand within months she had a staff position, applyingthe skills she brought from her previous work as ateaching assistant.“Children were the area of experience that I had so Iapplied to be a volunteer at Jigsaw, came, absolutely fellin love with the place and never left. It sent me off in adirection that I wasn’t expecting and I’m so glad that Idid because I’m so happy working here.”She starts her working day at 7.15am, meets the nightshift for the handover and says good morning to thepatients, introduces herself to any she has not metbefore, offers them breakfast, and looks after whateverthey need for the course of her 12-hour shift.Inspired by Freda’s careFreda Brown was in Eden Valley Hospice for onlyone night but so impressed were her family by thecare for her that her daughter Karen Robertsonhas become a dedicated fundraiser.Freda was diagnosed with lung cancer in December2017 and died just a few weeks later, aged 63.Karen, of Whiteclosegate, Carlisle, explained: “Theconsultant said there were three options: she couldstay in hospital but she was towards the end of her life;she could possibly come home; or go to the hospice.And my mum chose to go to the hospice.”At Eden Valley, her family was immediately struck byhow different it was to the hospital.Freda and Jim with their grandsonSamuel, Karen’s eldest son.“We became one team and we all worked on the adultunit which obviously at the time was really busy. I didmy training on the job within the year.I am now a fully qualified healthcare assistant and Iwork between both units. My skills have shot up sincecoming onto the ward because I’m doing things nowthat I would never have dreamed of before.“Before the pandemic Jigsaw was a separate unitto the adult one altogether because of the natureof the care and separate skill sets. We were literallythrown together because of the pandemic and tome it’s been one of the better things that havecome out of it because we really do work as oneteam now.”Jacqui, far leftJacqui said: “We want patients to be as comfortableand as pain-free as they can be and we want them tohave - hard as it is to say - as nice a death as they can ifthey’re not able to be discharged to a home setting.“Palliative care, I feel, is almost as important as curativebecause we are the people looking after these patients atthe end of their life. It’s a big thing and I take it so seriously.When I’m in work I’m invested in what I’m doing. I workwith an amazing team of people who do an amazing joband hopefully we all make a difference with the support ofthe local community who help fund this care.“That’s what we’re here for - to make a difference tothe patients who come through our doors. That’s ourmain priority.”Karen said: “The hospital staff were absolutelywonderful but they’re run off their feet.“As soon as we got to the hospice it was a very differenttype of treatment. They weren’t just about the patient,they were about the family as a whole. Jean, the nursewho was assigned to look after my mum, was verycaring with my dad. She calmed him and took him for atour while other nurses helped get my mum settled in.“After my mum died she didn’t look like my mum. Andthe nurses said you mustn’t worry, we’ll look after her.We went back the next day and I just couldn’t believe it- it was my mum looking so calm and rested.“The staff had cared for her even after she’d died.They made my mum look like my mum again which wasjust incredible.”Freda and her husband Jim had long supported thehospice through its lottery. And Karen herself, whoruns Baby and Toddler Swimmers and the pool atOrton Grange, had done the London Marathon twicefor children’s cancer causes in memory of her sisterLynsey who had died of leukaemia aged 12.Now she felt she had to do something for Eden Valley.“We decided to do a charity ball. We booked theShepherd’s Inn and we ended up just about filling theplace. Everybody had such a wonderful night and it wasjust over £10,000 that we raised.”She did the same again in 2019, raising £8,500, but thepandemic put paid to any plans for 2020. She’s notstopping, however.“For the rest of my life I will raise money for the hospice.My target is to raise £100,000 for them - we’ve got£20,000 so a few pounds to go. We’re always gratefulto the hospice for the care that they gave my mum.“That care continues and we need to make sure thatalways happens, that care is there for families if theyneed it.”5465Jim and Freda.Freda with daughter Karen onher wedding day.