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Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...

22 free PaPers e:

22 free PaPers e: develoPmenTal PediaTriCs Location: Ballroom B Moderator: Jean Stansbury, CPNP 1:30-1:38 E1-A Comparison of Community Function and Quality of Life between Adults with Spina Bifida and Cerebral Palsy - Christin L. Minter, MA; Chester M. Tylkowski, MD; Kathryn Bylica-Perryman, MS; Dwana Knapp, MSW; Natalie N. Stroupe 1:39-1:47 E2-Participation in Society among Adults with Cerebral Palsy - Christin L. Minter, MA; Chester M. Tylkowski, MD; Kathryn Bylica-Perryman, MS; Dwana Knapp, MSW 1:48-1:55 E3-Transition into Adulthood of Young Adults with Cerebral Palsy: Limitations in Achieving Independent Life - Marij Roebroeck, PhD; Mireille Donkervoort, PhD; Diana Wiegerink, MSc; Jetty van Meeteren, MD, PhD; Henk Stam, MD, PhD 1:56-2:03 E4-A Comprehensive Review of Function, Satisfaction, Physical and Psychological Health in Adults with Cerebral Palsy - Christin L. Minter, MA; Chester Tylkowski, MD; Kathryn Bylica-Perryman, MS; Dwana Knapp, MSW Discussion: 2:04-2:16 2:17-2:24 E5-Fracture Incidence Before and After Pamidronate Treatment in Children with Cerebral Palsy - Steven Bachrach, MD; Heidi H. Kecskemethy, RD, CSP; H. Theodore Harcke, MD 2:25-2:32 E6-Growth and Nutritional Status in Residential Versus Home-Living Children and Adolescents With Quadripelgic Cerebral Palsy - Richard Ivan Grossberg, MD; Richard C. Henderson, MD; Jeanine Matuszewski; Natasha Menon; Julie Johnson, MD; Heidi H. Kecskemethy, RD, CSP; Lois Vogel, MS, PT, PCS; Rebecca Ravas, PT, MS; Megan Wyatt, MPT; Steven J. Bachrach, MD; Richard D. Stevenson, MD 2:33-2:40 E7-Growth Curves for Children with Myelomeningocele Using Longitudinal Data - Richard C. Adams, MD; Amy Keefover-Hicks, MS, RN; Richard Browne, PhD; Dana S. Hardin, MD 2:41-2:48 E8-Low Bone Density’s Association with Severe Pain in Children with Cerebral Palsy - Christine M. Houlihan, MD; Michelle Kuperminc, MD; Matthew Gurka, PhD; Richard D. Stevenson, MD Discussion: 2:49-3:00 free PaPers f: orTHoPaediCs Location: Ballroom C Moderator: Luciano Dias, MD 1:30-1:38 F1-In Vivo Quantification of 3D Knee Joint Kinematics in Cerebral Palsy - Frances T. Sheehan, PhD; Andrea R. Seisler, MS; Katharine E. Alter, MD 1:39-1:47 F2-Predictors of Outcome of Distal Rectus Femoris Transfer Surgery in Children with Cerebral Palsy - Robert M. Kay, MD; Susan A. Rethlefsen, PT; Galen Kam, MD; Tishya AL Wren, PhD 1:48-1:55 F3-Factor Analysis Reveals Clusters of Inter-related Gait Variables Linked to Terminal Swing Knee Extension in Children with Cerebral Palsy - Joanne Valvano, PT, PhD; James J. Carollo, PhD, PE; Bobbie Lutz, PT, MS; Frank Chang, MD; Zhoaxing Pan, PhD 1:56-2:03 F4-Correlation between Kinematic Deviations at Knee and Degree of Femoral Anteversion in Cerebral Palsy - Luigi Piccinini; Veronica Cimolin; Anna Carla Turconi, MD; Manuela Galli; Marcello Crivellini Discussion: 2:04-2:16 Program HigHligHTs, continued 2:17-2:24 F5-Accuracy and Reliability of a New Telerehabilitation System for Administration of the Edinburg Visual Gait Scale for Children with Cerebral Palsy (EVGS) - Leanne M. Johnston, PhD, BPhty(Hons1); Trevor Russell, PhD, BPhty; Karen Doyle, BPhty(Hons1); Robyn Grote, BSc, GradDipPhty; MBioMed- Eng, PhD; Teresa Phillips, BBioMedEng

Program HigHligHTs, continued 2:25-2:32 F6-Absolute Torque Level Contributes to Fatigue Resistance of the Hamstrings and Quadriceps in Cerebral Palsy - Noelle G. Moreau, PhD, PT; Li Li, PhD; Diane L. Damiano, PhD, PT 2:33-2:40 F7-Lower Extremity Surgery Improves Gait in Ambulatory Children with Cerebral Palsy - George E. Gorton; Donna J. Oeffinger, PhD; Anita Bagley, PhD; Sarah P. Rogers, MPH; Chester Tylkowski, MD 2:41-2:48 F8-Gait Parameters of Cerebral Palsy before and 1, 3, 10 and 20 Years after Selective Dorsal Rhizotomy - Nelleke Gertrude Langerak, MSc; Jonathan C. Peter, MBChB; Lize van der Merwe, PhD; Christopher L. Vaughan, PhD; Robert Patrick Lamberts, MSc; Graham Fieggen, MBChB Discussion: 2:49-3:00 3:00 - 5:00 PM AACPDM Amazing Race Team Challenge Bring your comfortable shoes and adventurous spirit, and be prepared to explore the city of Vancouver with your new friends/colleagues on Thursday afternoon . No experience or teammates needed . See instructions and sign-up sheets on the bulletin boards, near registration . 3:00 - 5:00 PM Instructional Courses #1 - #9 iC01 - unConvenTional rx location: Meeting Room 2 Kristi L. Kirschner MD, Sue Mukherjee MD, Ross Hays MD Course level: Intermediate Purpose: To provide a practical and moral framework for responding to parents who request unusual or unconventional treatments on behalf of their child with a developmental disability . The “Ashley Treatment”, or growth attenuation intervention, will be used as a paradigmatic example of such a request . Target audience: Healthcare providers who work with patients with developmental disabilities and their families Course summary: When working with parents of children with profound developmental disabilities, healthcare providers are often asked about a range of unconventional treatment approaches . Such queries can present a challenge for the health care team . When a parent refuses a high benefit, low burden treatment such as vaccines or a feeding tube for a malnourished child, questions may arise about parental fitness, or even occasionally abuse or neglect . When a parent requests an unproven or controversial treatment, obligations to protect the child’s best interest and at least do no harm often emerge . A secondary concern may be the utilization of societal and insurance based resources for questionable benefits . The controversial growth attenuation treatment, otherwise known as the “Ashley Treatment” is one such example . This interactive instructional course will explore practical ways in which physicians and other health care providers for children with extensive developmental disorders can respond to such concerns and queries . iC02 - neuroimaging ii: advanCed TeCHniques in neurodeveloPmenTal disabiliTies location: Meeting Room 8 Alexander H Hoon Jr., MD, MPH; Steven N Breiter, MD; Eric B Levey, MD Course level: Intermediate/Advanced Purpose: To advance understanding of the clinical and research applications of diffusion weighted imaging (DWI), diffusion tensor imaging (DTI), magnetic resonance spectroscopy (MRS) and functional magnetic resonance imaging (fMRI) in children with Neurodevelopmental Disabilities (NDD) . Target audience: NDD professionals interested in using advanced imaging techniques in clinical care and research . Course summary: When added to conventional MR imaging, advanced techniques such as DTI, DWI, MRS and fMRI provide a more complete picture of structural and functional brain abnormalities in NDD . These techniques show connections between neuronal activity and brain function, map white matter development, and facilitate early identification and treatment of high-risk infants . They offer promise to further enhance our understanding of the pathophysiology and treatment of neurological disorders including periventricular white matter injury, hypoxic ischemic encephalopathy, mitochondrial encephalomyopathies and childhood stroke . Using these four groups as models, the use of these techniques will be demonstrated . Given the complexity of the topic, the approach will be slow, stepwise and methodical . The format will be discussion rather than lecture, with the expectation of energetic audience participation and questions throughout the course . Learnerbased Course Objectives iC03 - THe geneTiCs of Cerebral Palsy: inHeriTed CP location: Meeting Room 2 Luis F. Escobar, MD; Laura J. Wilner, MD Course level: Intermediate Purpose: This course is designed to assist clinicians in differentiating disorders which lead to static or progressive encephalopathy according to their etiology and clinical presentation . We will review clinical situations in which progressive disease should be suspected and specialized treatment needed . We will also provide a current review of the diagnostic procedures to follow in order to differentiate the static from progressive disease in association to dysmorphologic or biochemical conditions that induce neurologic dysfunction such as Cerebral Palsy with a genetic etiology . 23

program - American Academy for Cerebral Palsy and ...
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prospectus - American Academy for Cerebral Palsy and ...
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prospectus - American Academy for Cerebral Palsy and ...
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