5 years ago

Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...


24 Program HigHligHTs, continued iC03 ConTinued... Target audience: This course is relevant to clinicians involved in the diagnosis and treatment of cerebral palsy . Individuals conducting clinical research to delineate pnenotypic abnormalities and phenotype-genotype correlations . In addition, this course should target individuals in interested in the treatment of genetic causes of cerebral palsy . Course summary: The presenters will share their experience in a joint clinic that provides Physical Medicine and Rehabilitation in association with Medical Genetics services to treat patients with abnormal muscle tone and motor control difficulties such as cerebral palsy . We will briefly review basic concepts such as hypotonia, hypertonia, spasticity, and cerebral palsy as they relate to neurologic dysfunction associated with genetic causes, anatomic genetic developmental changes, and brain injury . The Online Mendelian Inheritance in Man lists 567 genetic conditions that involve hypotonia, 244 spasticity, 65 hypertonia and 64 cerebral palsy . We will review the most common conditions and their clinical presentation, delineating their phenotype . Finally, we will discuss the diagnostic work up in a step by step manner to determine the etiology of muscle tone abnormalities and motor dysfunction secondary to genetically-based CNS disorders . iC04 - measuring THe qualiTy of life of CHildren WiTH Cerebral Palsy location: Meeting Room Unni Narayanan, MBBS; Kristie Bjornson, PhD, PT; Shannon Weir, BSc Course level: Basic Purpose: To enhance the understanding of the assessment of QOL of children with cerebral palsy and the major areas of consideration for selecting QOL instruments . Target audience: Health professionals, including physiatrists, orthopedic surgeons, pediatricians and physical therapists, who are involved in research with children with cerebral palsy . Course summary: This workshop will include an overview of how QOL is measured and the issues in measuring QOL for children . This discussion will be facilitated by examples of the authors’ new QOL instruments for children with cerebral palsy (Cerebral Palsy Quality of Life Questionnaire for Children, CP QOL- Child and the Caregiver Priorities and Child Health Index of Life with Disabilities, CPCHILD) . There will also be a discussion of the interpretation of existing QOL instruments and the clinical utility and application of QOL measures in the clinical and research settings . iC05 - evaluaTion and TreaTmenT of CrouCH gaiT in individuals WiTH Cerebral Palsy location: Ballroom A Jean Stout, PT, MS; James Gage, MD; Tom Novacheck, MD, Michael Schwartz, PhD Course level: Intermediate Purpose: The specific etiology of crouch gait is poorly understood . Consequently, treatment outcomes have been poor . This course will discuss the mechanism of crouch gait in cerebral palsy and the principles that need to be employed to correct it . Target audience: Pediatric orthopaedists, physiatrists and physical therapists who encounter children with cerebral palsy and crouch gait in their clinical practice . Course summary: This course will summarize Gillette Children’s experience with crouch gait in cerebral palsy . A description and principles of crouch gait including the influence of abnormal forces during growth, lever arm dysfunction, and the importance of the plantarflexion knee-extension couple will be discussed . Contributions of abnormal muscle growth and the relative length of primary muscle groups including the soleus, gastrocnemius, vasti, gluteus maximus, hamstrings, rectus femoris, and hip flexors will be described . The role of physical therapy and orthotics and the contribution of each before will also discussed . Based on an understanding of the principles and pathology, the course will illustrate and emphasize treatment with appropriate case examples . iC06 - adulTs WiTH Cerebral Palsy: HealTH, fiTness, and moTor funCTion location: Meeting Room Susan H. Brown, PhD; Edward A. Hurvitz, MD; Colleen A. Lewis, PhD; Margaret A. Turk, MD Course level: Intermediate Purpose: To provide an overview of functional ability in adults with cerebral palsy (CP) including epidemiology, physical fitness, exercise, and rehabilitative approaches aimed at improving performance . Current research demonstrating the effectiveness of sensorimotor training in this population will also be presented . Target audience: This course will be relevant to physicians, physical therapists, occupational therapists and other rehabilitation specialists, particularly those who currently provide care to adults with CP, as well as rehabilitation researchers . Course summary: Much of our understanding of motor impairment in cerebral palsy has been derived from studies of pediatric populations . Data on the impact of aging and subsequent changes in functional ability are limited . Additionally, standard treatment approaches such as physical therapy are frequently underutilized, due, in part, to difficulties in finding specialists with an interest in adult CP . In this course, presenters will provide attendees with current information related to changes in functional ability across the lifespan in CP as well as issues related to physical fitness and exercise . The role of physical activity in improving motor function will be explained using current models of brain plasticity . Lastly, the results of an upper limb, home-based sensorimotor training program using the internet will be presented . Case studies and group data will be used to highlight future directions for research and therapeutic practices .

Program HigHligHTs, continued iC07 - afTer inJeCTions WiTH boTulinum Toxin a - WHaT HaPPens noW? sPeCifiC afTer-Care To imProve THe effeCT of bTx-a inJeCTions in THe loWer limbs for CHildren WiTH Cerebral Palsy location: Ballroom B Guy Molenaers, MD, PhD; Kerr Graham, MD, PhD; Henry G. Chambers, MD; Anja Van Campenhout, MD; Kaat Desloovere, PhD Course level: Intermediate Purpose: The purpose of this course is to provide the audience with an overview of the optimal after-care for Botulinum Toxin A (BTX-A) injections for children with cerebral palsy (CP), and to highlight crucial success factors to improve the functional effect of the injections . Target audience: The course will be relevant to orthopaedic surgeons, (neuro) paediatricians, physicians, kinesiologists, physical therapists and other health care providers involved in the multidisciplinary treatment of children with CP . Course summary: An in depth discussion of crucial factors that determine the outcome success will be preceded by an introduction to the use of BTX-A and by guidelines for different target groups, with specific goal-settings . Special focus will be on recent developments in treatment strategies . The contribution of each crucial factor in the after-care will be thoroughly explored and illustrated with objective data from clinical practice and specific clinical cases . The course will cover all aspects of appropriate post injection care, including serial casting, orthotic management, physiotherapy and outcome measurements . Special attention will be given to proper patient selection with individually defined goal-settings . Emphasis will be placed on physiotherapy aims and specific day- and night orthoses, to improve and prolong the effect of the injections in the lower limbs and on the longitudinal follow-up of BTX-A treatment . Interactive educational case presentations will be provided . iC08 – models of uPPer limb Training in CHildren WiTH Cerebral Palsy – do We aCHieve WHaT We WanT? location: Ballroom C Rosyln N. Boyd, PhD, MSc, PT; Andrew Gordon, PhD; Jeanne Charles, PhD, PT Course level: Intermediate Purpose: This workshop will examine the efficacy, content and context of the current theories and approaches to upper limb training in children with cerebral palsy with a focus on children with congenital hemiplegia . The presenters will combine their research and clinical experience to debate and critique current upper limb training paradigms in the context of theories of motor learning and the effectiveness of upper limb training . Target audience: Health professionals involved in the research and management, prescription and provision of upper limb training for children with cerebral palsy and use of adjunctive treatments such as BTX-A . Course summary: This workshop focuses on the different models of upper limb training aimed at improving outcomes for children with congenital hemiplegia . Recently completed randomized trials examining the effectiveness of different approaches to upper limb training including Motor Learning, Constraint Induced Movement Training or Forced Use and Bimanual training (HABIT) with or without the use of adjunctive treatments such as intramuscular injections of Botulinum toxin A will be presented . This course will highlight the efficacy, features and content of various training models as well as the potential limitations . The three presenters will present their models of upper limb training and brief results from their recent clinical trials . The various models cover approaches such as structured practice, activity-based practice with constraint induced approaches or bimanual approaches to upper limb training . iC09 - menTal reTardaTion – WHaT do We do WiTH all THese numbers? location: Meeting Room 3 William O. Walker, Jr. MD Course level: Intermediate Purpose: To update health professionals on current definitions, diagnostic studies and management strategies for individuals with mental retardation . Target audience: Health professionals with a basic understanding of mental retardation who are interested in updating / increasing their knowledge concerning appropriate medical evaluation and support service delivery and management . This course will be relevant to pediatricians, physical therapists, occupational therapists, speech therapists, neurologists, educators, psychologists and others . Course summary: The course will compare the American Association on Intellectual and Developmental Disabilities (AAIDD) and DSM IV definitions of mental retardation . Appropriate methods to identify and document individual strengths and deficits for cognitive and adaptive skills and indications for current diagnostic studies (genetic, imaging, and metabolic) outlined in the recommendations of several recent consensus statements (Genetics, Neurology) will be described . Monitoring and treatment of associated medical conditions (seizures, mental health diagnoses, autism) within the concept of a “medical home” will be outlined . The concept of “levels of support” including the application of the Supports Intensity Scale (SIS), will be introduced . Current concepts of mental retardation as a “diagnosis” with the World Health Organization’s International Classification of Function (WHO ICF) concept of disability will be integrated . 5:00 - 6:00 PM Wine, Beer, Cheese and Poster Viewing Session This session will be hosted in Exhibit Hall A with a casual atmosphere to view and discuss the scientific and demonstration posters on display . With over 00 posters to view and the samplings of local wine, beer and cheese, you will be captivated . 7:00 - 9:00 PM Dine Around Vancouver Networking Event After you’ve worked up an appetite from the AACPDM Team Challenge, take the evening to dine around town and visit with fellow attendees . Up to 0 participating area restaurants will have tables reserved for groups of 4 or more . Details will be available at the registration area . 25

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prospectus - American Academy for Cerebral Palsy and ...
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