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Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...

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36 Program HigHligHTs, continued iC22 - HiP disPlaCemenT in CHildren WiTH Cerebral Palsy: WHaT We knoW, WHaT We don’T knoW and WHaT We Would like To knoW location: Ballroom B Pamela Jane Thomason, BPhty, MPhysio; H. Kerr Graham, MD, Jason Howard, MD Course level: Intermediate Purpose: To provide a comprehensive overview of hip disease in children with cerebral palsy . The evidence for different management regimes will be discussed . This course will discuss latest data from a population based cohort study and through an interactive process, derive audience based hip surveillance and management guidelines . Target audience: Physiotherapists, Pediatricians and Orthopedic Surgeons, involved in the assessment and management of children with cerebral palsy . Course summary: The purpose of this interactive workshop is to critically review the evidence in respect of spastic hip disease in cerebral palsy and to develop guidelines for hip surveillance and management of hip displacement for children with cerebral palsy . Hip surveillance is suggested as the best method for early detection, early intervention and prevention of late dislocation and painful degenerative joint disease . The indications and measurements required for hip surveillance will be discussed . Through interactive discussion guidelines on the minimum data set for hip surveillance and radiological measurement of hip displacement will be developed . The limited evidence on prevention and management of established hip displacement will be discussed as a basis for future clinical trials . New information in respect of the incidence of hip displacement, risk factors and surgical outcomes from a large, population-based study will be summarized at the start of the workshop, to provide the starting point for a lively, interactive group discussion . iC23 - Cerebral Palsy regisTers: esTablisHing, mainTaining and using location: Meeting Room 8 Sarah J. McIntyre, MPS; Iona E. Novak, MSc; Eve Blair, PhD; Eva Nordmark, PhD; Lena Westbom, MD, PhD; Marianne Arner, MD Course level: All Purpose: The purpose of this instructional course is to outline the different types of registers already being used for cerebral palsy and the benefits of each . Results from these registers will be shared with the group . The participants will learn steps required to establish a register, strategies required to market and maintain a register and future directions and possibilities for combining register data throughout the world . Target audience: This instructional course is relevant to consumers, clinicians, researchers and those who are involved in policy for people with cerebral palsy . Registers rely on clinicians to ensure maximum ascertainment and clinicians rely on registers for population data to lobby for changes in policy and funding . Course summary: Registers have a vital role to play in the monitoring, management and prevention of cerebral palsy and its associated impairments . Sweden and Australia have developed and been using registers since the 970s and representatives from these registers will share the many lessons learnt about establishing and maintaining a register . Up to date statistics around the incidence and prevalence of cerebral palsy will also be given . Current findings from Australian aetiology and population research will be shared . Registers are also powerful tools used to evaluate intervention and prevent secondary impairments . Findings from CPUP will be discussed, for example, no child followed by CPUP has developed a hip dislocation . This workshop aims to inspire a cross-section of disciplines to work together to maximise outcomes for clients with CP and to reduce the incidence of CP . iC24 - from infanCy To adulTHood: a ParTnersHiP for managing CHildHood-onseT disabiliTy location: Meeting Room 9 Joanne Maxwell, MSc, BSc.OT; Helen Healy, OT; Joanne Zee, BSc.PT; Dolly Menna-Dack Course level: Basic/Intermediate Purpose: To share the experience of developing and implementing a demonstration lifespan model of service (a partnership initiative of a pediatric and an adult rehab centre) which addresses the changing healthcare needs of persons with childhood-onset disabilities as the individual grows from a child to youth, from youth to young adult, and from young adult to adult . Target audience: The content of this workshop is relevant to health professionals, service providers, and caregivers of persons with childhood-onset disabilities from infancy to adulthood . Course summary: This course will include: (a) introduction to the Lifespan Model for persons with childhood-onset disabilities including early preparation for transfer, a formal transfer assessment in the pediatric setting, a coordinated transfer process, an initial transfer assessment in the adult setting, and ongoing disability management throughout adulthood, (b) presentation of the framework for “Growing Up Ready”, an evidenced-based, comprehensive, auditable set of tools, resources and roles which supports children and youth in preparing for adult life . The framework incorporates the shared management approach (Kieckhefer & Trahms, 2000; Gall, Kingsnorth & Healy, 2006) and includes family and youth facilitators as members of the interdisciplinary team, (c) the development and implementation of an adult service for the management of chronic disabilities of childhood-onset, and (d) sharing of the adult healthcare experience by a young adult with juvenile arthritis as a means of demonstrating the need for a coordinated, partnership approach to lifespan services . iC25 - neuroPlasTiCiTy in CHildren WiTH Cerebral Palsy: CurrenT researCH and imPliCaTions for CliniCal PraCTiCe location: Ballroom C Giovanni Cioni, MD; Andrea Guzzetta, MD, PhD; Roslyn Boyd, PhD; Marijke Eyssen, MD Course level: Intermediate to Advanced Purpose: The course examines the link between brain damage, brain plasticity and functional outcome in children with cerebral palsy and infants born preterm . Participants will be introduced to current knowledge on this domain as unraveled by advanced brain imaging and multimodal technical assessment of the brain . The focus will be on current research into neuroplasticity and the implications for clinical practice in the management of children with cerebral palsy and infants born preterm .

Program HigHligHTs, continued iC25 ConTinued... Target audience: Health professionals interested in the link between brain damage, brain plasticity and functional outcome in cerebral palsy and children born preterm . This course is very current and relevant to researchers and clinicians including physicians, neurologists, paediatricians, rehabilitation specialists, psychologists, neurosurgeons, physical and occupational therapists and speech therapists . Course summary: The course will focus on current knowledge of neuroplasticity and reorganization after early brain lesions in children with Cerebral Palsy and infants born preterm . The emphasis will be on the motor, somatosensory, visual, cognitive and language systems . The current state of knowledge of advanced brain imaging techniques (including the advantages and limitations) of functional (fMRI), functional connectivity, diffusion weighted/tensor imaging/tractography (DWI, DTI) will be explained as research is presented and the use of multimodal approaches with transcranial magnetic stimulation (TMS), MEG and fMRI to describe brain reorganisation in congenital brain damage . Practical aspects on study design, reproducibility, interpretation and the study of treatment effects will also be covered . iC26 – sPeeCH disorders in CHildren and adulTs WiTH Cerebral Palsy location: Meeting Room 3 Marilyn Seif Workinger, PhD Course level: Intermediate Purpose: This course will provide an overview of the dysarthrias seen in individuals with cerebral palsy . A framework for assessment and treatment will be provided . Target audience: This course is relevant to clinicians providing assessment and treatment services for children and adults with cerebral palsy, and to researchers looking at quality of life, treatment outcomes and functional skill levels in these individuals . Course summary: Dysarthria is the most common speech disorder in individuals with cerebral palsy . Accurate assessment and successful treatment of speech disorders in children and adults with cerebral palsy is dependent upon an understanding of the disorder, a subsystems approach to evaluation of the speech of each individual and application of appropriate treatment methods . This course will familiarize attendees with a natural history of speech disorders and specific speech problems common to individuals with cerebral palsy . A framework for assessment and treatment will be provided . Prognosis for improvement and appropriate goal setting will be discussed . New directions in treatment will be presented . iC27 - TesT of infanT moTor PerformanCe: from researCH To PraCTiCe location: Meeting Room Gay L. Girolami, PT, MS; Suzann K. Campbell, PT, PhD, FAPTA; Thubi Hlapang-Kolobe, PT, PhD; Beth Osten, OTR/L, MS; Maureen Lenke, OTR/L Course level: Intermediate Purpose: The purpose of this presentation is to improve clinicians’ understanding of the validity, reliability and clinical application of the Test of Infant Motor Performance (TIMP) . The TIMP can be used both in special care nursery settings and in early intervention programs to evaluate infant motor performance, develop treatment plans and assess outcomes, as well as facilitating communication among caregivers in different settings . Target audience: This course will be relevant for clinicians treating preterm infants in NICUs, EI programs and other clinical setting, individuals conducting assessment and interventional research, and physicians working with preterm or at risk infants . Course summary: The TIMP was developed to fill an unmet need for an assessment of posture and movement spanning the range from 34 weeks gestation to 4 months post-conceptual age . TIMP items are related to demands for movement placed on infants during daily life interactions . The test is an assessment of the posture and movement skills needed by infants for daily life activities . Research on the TIMP has been show to be: • sensitive to changes in motor performance over time, • accurate in identifying infants at high risk for poor motor outcome • useful in planning and assessing interventional outcomes for babies with below average scores on the TIMP 3:30 - 5:30 PM Instructional Courses #28 - #36 iC28 - measuring sPasTiCiTy WiTH THe Tardieu sCale location: Ballroom A Mauricio R. Delgado, MD, FRCPC; Charter Rushing, MPT; Carol Chambers, PT, MS, PCS Course level: Basic Purpose: To train health professionals on how to measure spasticity in children using the Tardieu Scale . Target audience: Health professionals involved with measuring spasticity . This course will be relevant to physical therapists, occupational therapists, pediatricians, orthopedists, physiatrists, neurologists, neurosurgeons, and others . Course summary: This course will instruct participants on how to measure spasticity in children by using the Tardieu Scale . It will begin with the definition, underlying pathophysiology and clinical characteristics of spasticity . This course will include a description of the components of the Tardieu Scale, including the correct execution of the scale on various muscle groups, the proper positioning and maneuvering of the patient, the visual joint angle assessment, the different types of velocities used to move limbs and the various responses which may be obtained . Video will be utilized to demonstrate how to use the Tardieu Scale . In addition, difficult cases will be shown and discussed to maximize participants’ understanding of the scale . 37

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