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Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...

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38 Program HigHligHTs, continued iC29 - visual imPairmenT and Cerebral Palsy location: Meeting Room Joseph P. Dutkowsky, MD; Karen L. Dutkowsky, MEd Course level: Intermediate Purpose: The incidence of visual impairment in people with cerebral palsy is reported to be anywhere from 28% to 75% . All though seen in the past as primarily as an issue of education, visual impairment impacts nearly all multidisciplinary aspects of children and adults with cerebral palsy . Visual impairment in a child affects the ability of physical and occupational therapists to maximize the child’s capabilities . It affects gait and thus the analysis of gait and any interventions that may be considered . Powered mobility and even the optimization of seating systems are dependent of an understanding of a person’s visual abilities and impairments . Societal barriers to independence as well as strategies for medical and nursing care over the lifespan must address the visual capabilities of an individual . This course will combine a medical and educational approach to teach multidisciplinary professionals who work with people with cerebral palsy to recognize (and experience) general and specific issues of visual impairment, provide strategies for dealing with these issues, and appreciate the need to interface with professionals in the field of Vision to enhance the overall care of people with cerebral palsy . Target audience: All professionals, medical, nursing, therapists, educators, orthotists, clinical engineers, and students who provide direct service to people with cerebral palsy . Course summary: Course participants will be given an anatomical understanding for the causes of visual impairment in people with cerebral palsy . Attention will then be focused on the functional limitations resulting from various forms of visual impairment . Participants will be introduced to techniques of minimizing visual impairment in the education, home, and public environments . Participants will be broken up into groups and will don visual impairment simulators to experience the effect of visual impairment on educational, motor function, and mobility tasks . Professionals, of various disciplines, will work within their fields of expertise to try to assist the participant with the simulated visual impairment . Finally, the participants will be debriefed as to their experiences with the simulations and how they may incorporate what they have learned through this experience in their future encounters with the people with visual impairments and cerebral palsy that they serve . iC30 - imProving neuro-moTor ouTComes of PreTerm infanTs: from assessmenT To inTervenTion location: Ballroom C Alicia J. Spittle, BPhysio, MSc; Roslyn N. Boyd, BSc, MSc, PhD; Laurie M. Snider, BSc(IT), MA, PhD Course level: Intermediate Purpose: The presenters will combine their research and clinical experience to ( ) examine the clinimetric properties of current early motor assessments (neonatal and over the first year) (2) examine the efficacy of early developmental interventions and (3) to examine the relationship between brain structure and motor development for infants born preterm who are at risk of developing cerebral palsy and/ or Developmental Co ordination Disorder (DCD) . Target audience: Health professionals (including Physiotherapists, Occupational Therapists) involved in the research and management, prescription and provision of motor assessments and developmental care programs for infants born preterm or at risk of developing cerebral palsy and DCD . Course summary: The presenters will combine their research experience and clinical expertise to critique current and new approaches to early motor assessment from the neonatal period to early infancy based on their clinical utility, psychometric properties and focus for assessment including prediction of outcome . Contemporary thinking on practical family focused developmental intervention programs will be presented and the current efficacy of such programs will be discussed based on the findings of a recent Cochrane review . A secondary focus of the symposium will be to present recent findings on the relationship between early motor development and brain structure on MRI for infants born preterm . An interactive approach with clinical case studies and research data will be used to highlight different options for management . iC31 - evaluaTing single subJeCT researCH designs: evidenCe levels and rigor location: Meeting Room 8 Lynne Romeiser Logan, PT, MA, PCS; Susan R. Harris, PT, PhD, FAPTA; Carolyn B. Heriza, PT, EdD, FAPTA; Robbin Hickman, PT, MHS, PCS Course level: Intermediate/Advanced Purpose: The purpose of this course is to review single subject research design (SSRD) paradigms and discuss a set of recently developed guidelines to assist in critical review of single subject research . These guidelines are intended to facilitate the inclusion of SSRD into the current methodology of systematic review developed by the AACPDM through the Outcomes Committee . We also intend to provide clinicians with a strategy for incorporating SSRD evidence into their own clinical decision-making . Target audience: This course is relevant to clinicians and researchers interested in critically evaluating or conducting SSRD . Some background in SSRD is advantageous as this is not an introductory course on how to conduct designs but rather a more advanced course on how to evaluate the methodological quality/rigor and evidence level for each type of design . The course will provide clinicians with a framework for evaluating the evidence levels and methodological rigor (methodological quality/rigor) of SSRD publications in the literature . Course summary: Evaluative scales and guidelines exist to help clinicians and scientists to critically review published results of group-design studies, e .g . randomized controlled trials, cohort studies, as part of their decision-making processes . However, much of the current research in rehabilitation and social sciences utilizes single subject research designs for which no criteria exist to guide the critical review process . Members of the SSRD committee will briefly review 6 different types of SSRD, describing strengths and weaknesses of each . Methodology for assigning levels of evidence and quality/rigor for SSRD will be reviewed . Course participants will read and grade one published SSRD article using these levels and rigor criteria .

Program HigHligHTs, continued iC32 - advanCed inTerPreTaTion of CliniCal gaiT analysis daTa in CHildren WiTH sPina bifida location: Meeting Room 2 Luciano Dias, MD; Claudia Kelp-Lenane, PT; Melissa Colthrust, MS; Laura Johnson, MS Course level: Advanced Purpose: To provide specialized tools and interpretation methodologies when analyzing the gait of children with spina bifida using 3D gait analysis . This diagnosis specific interpretation will assist in developing effective treatment plans for children with spina bifida . Target audience: Health professionals who are involved in the care of children with myelomeningocele and professionals involved in the interpretation of gait analysis data . This course is relevant to orthopaedic surgeons, physiatrists, physical therapists, biomedical engineers, and kinesiologists . Course summary: The course will begin with a brief summary of ambulatory issues in children with spina bifida . Next, the course will explain a gait analysis protocol for children with spina bifida including a diagnosis specific physical evaluation . The majority of the course will focus on the use of clinical gait analysis when interpreting the gait of children with spina bifida . Several case studies will be presented in depth covering a range of physical and ambulatory abnormalities often seen with this diagnosis . Examples of case studies include patients with: Hip and/or knee flexion contractures, hip adduction contractures, hip rotational deformities, and tibia rotational deformities . Attendee participation will be encouraged as presenters identify expected “normal” and “abnormal” gait patterns given the patient’s lesion level, ambulatory status, and physical examination findings . The course will also cover indicators an orthopaedic surgeon should utilize when considering specific surgical interventions . iC33 - undersTanding develoPmenTs and advanCes in ConduCTive eduCaTion location: Meeting Room 3 Roberta O’Shea, PT, PhD; Helen Bourke-Taylor, OTR/L, PhD; Monika Robinson OTR/L Course level: Intermediate Purpose: This course will describe the theoretical underpinnings of conductive education and how it has changed over the past decade . Transdisciplinary Conductive Education (CE) is now a viable option for efficient and effective service delivery . Target audience: This course is relevant to therapists, physicians, and service providers interested in expanding treatment options for children or adults with motor impairments . Course summary: Faculty from Governor State University’s Certificate Program in the Principles of CE will share knowledge of how motor control and motor learning are addressed through CE . The course discusses learning principles and motivations that allow CE to be different from traditional rehabilitation models . Five unique aspects are described in depth-- the conductor or class leader; strategies known as rhythmic intention, task series, equipment, and the structured program . This treatment approach utilizes peer groups, principles of motor learning, and rhythmic intention to teach functional independence skills, promote self actualization, and improve quality of life . The course discusses international influences on the evolution of CE . Videotaped case examples and treatment session will assist the participants in experiencing transdisciplinary CE . The need for systemic change in service delivery models and how CE can contribute to more effective and efficient rehabilitation models will be discussed . Therapists will also learn of advanced training opportunities in CE . iC34 - advoCaCy for CHildren WiTH Cerebral Palsy and oTHer disabiliTies location: Meeting Room 9 Lainie Holman, MD; Amy Houtrow, MD, MPH; Paul Newacheck, DrPH Course level: Basic Purpose: The purpose of this instructional course is to provide audience members with the tools necessary to advocate successfully for children with disabilities . Target audience: All members of the AACPDM community, including, but not limited to physicians, nurses, researchers, therapists, teachers, case managers, social workers, family members and community leaders who are interested in improving their advocacy skills . Course summary: Advocacy is an essential role for individuals involved in the care of children with disabilities . Formal advocacy coursework is often lacking in professional training . Providers frequently identify barriers to advocacy that could be easily overcome with training and planning . This course is intended to provide a framework for increasing advocacy for children with disabilities . Interactive didactics based on the American Academy of Pediatrics and Family Voices advocacy programs will be given followed by both large and small group advocacy planning . Audience members will be able to incorporate the information gained into practice into their day-to-day lives as well as have a basis for achieving advocacy on a grander scale . iC35 - oCCuPaTional THeraPy, PHysiCal THeraPy and orTHoTiC managemenT of CHildren WiTH sPinal musCular aTroPHy location: Ballroom B Kristin J. Krosschell, PT, MA, PCS, FAACPDM; Jo Anne Maczulskli, MA, OTR/L, FAACPDM; Donald McGovern, CPO, FAAOP Course level: Basic Purpose: To provide health professionals with a basic understanding of the natural history of spinal muscular atrophy (SMA) . To introduce health professionals to assessment and intervention techniques for OT, PT and orthotics appropriate for children with SMA . To provide clinicians with the knowledge to identify functional goals and quality of life goals for the SMA population . To improve the understanding of outcome tools commonly used in research and the clinical setting to objectively assess children with SMA . Target audience: This course is relevant for clinicians treating children with SMA in the clinical setting and to individuals conducting research with this population . Course summary: This course is designed as an introduction to the evaluation and treatment of individuals with spinal muscular atrophy . The course will begin with a discussion of the natural history of the disorder . Classification terminology will be introduced (diagnostic vs . functional) . Neurological, orthopedic, and respiratory issues will be presented . An overview of orthotic and adaptive equipment options will be covered . Various outcome measures currently utilized in SMA clinical research trials will be discussed . 39

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