5 years ago

Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...

44 1-Application of the

44 1-Application of the AACPDM Proposed Classification System for Cerebral Palsy to Clinical Practice Kathleen L. Stark, DO; Katherine Brasington, MHS,OTR/L; Tricia Bucci, MPT; MJ Giacomelli, MA, CCC/S; Kristen E. Knost, RD, LDN; Gina M. Lesoski, RN, BSN; Catherine Chesmar-Sheldon, BSW 2-Definition and Classification of Negative Motor Signs in Childhood Karin W. Baker, MD; Deborah J. Gaebler-Spria, MD; Terrance D. Sanger, MD, PhD; Daofen Chen, PhD; Mauricio R. Delgado, MD; Mark Hallett, MD; Jonathan W. Mink, PhD 3-Growth Charts for Persons with Cerebral Palsy, Stratified by Level of Motor Functioning and Feeding Ability Steven M. Day, PhD; David J. Strauss, PhD; Pierre J. Vachon, PhD; Lewis Rosenbloom, FRCPCH; Robert M. Shavelle, PhD, MBA; Yvonne W. Wu, MD, MPH 4-Prevalence of Cerebral Palsy for Children Born at 20-27 Weeks Gestational Age and 500-1249 Grams Birth Weight Within a Population-based Program over 30 Years Charlene MT. Robertson, MD, FRCP(C); Mah-Joe Watt, MD, FRCP(C); Yutaka Yasui, PhD 5-Family Needs Assessment in Cerebral Palsy Clinic: Assessment of Perceived Needs of Families with Children Living with Cerebral Palsy Constance F. Buran, DNS, RN; Sherrie L. Criss, RN, BSN; Patricia A. Grayson, RN, CPNP; Kathleen J. Sawin, DNS, CPNP, FAAN 6-Balancing Hope and Reality: Parental Definitions of Quality of Life in Children with Neurodevelopmental Disabilities Elaine E. Stashinko, PhD; Beth Wieczorek, MSN, PNP; Amy Jewell, MS; Heather Kammann; Alexander Hoon, MD, MPH 7-Preschool - High School Partnership to Enhance Motor Development of Infants and Young Children with Movement Dysfunction Darl W. Vander Linden, PT, PhD; Dan Conley, PT, MS 8-Autism with Co-morbid Developmental Disabilities: Barriers to Diagnosis Miriam A. Kalichman, MD; Cynthia L. Booth, RN, MPH 9-How Parent-Physician Advocacy Leads to Successful Legislation for Children with Disabilities Rebecca Hanson, MD; Cynthia Gray 10-Family Incurred Cost of Caring for a Child with a Disability: A Pilot Study. Donna Anderson, PhD; Serge Dumont, PhD; Konrad Fassbender, PhD; Phillip Jacobs, PhD; Sylvie Treault, PhD, OT; Leila Azzaria, MA 11-Choking Poster Katherine Mace, BSN, RN; Katherine Mace, BSN, RN 12-Complications of Intrathecal Baclofen Therapy and Continuity of Care Concerns as Determined by a Performance Improvement (PI) Project Dahlia Reid, RN, CCRC; Catherine Thompson; Steven Sparagana, MD; Mauricio Delgado, MD 13-An Examination of the Role of Surface Electromyography in the Botulinum Toxin A Injection Decisionmaking Process in Children with Cerebral Palsy Sylvia Ounpuu, MSc; Melany Westwell, PT, MS; Peter A. DeLuca, MD 14-Factors Influencing Outcome in Pediatric Rehabilitation: Community Re-entry Janet H. Allaire, MA; Kevin Elgin, MHA; Kelly F. Bell, MBA; Laurie Sewell, CTRS; Anna King, CTRS; Joy Button, CTRS 15-Proposal for Interdisciplinary Cerebral Palsy Clinic with a Clinical Nurse Specialist Carolyn M. Chowne 16-A Home-based Virtual Reality Therapy System for Children with Hemiplegic Cerebral Palsy William P. Li; Darcy Fehlings, MD, MSc, FRCP(C); Sophie Lam-Damji, BSc, OT; Tom Chau, PhD, PEng 17-Challenge-opportunity-change: Creating a Collaborative Partnership Nursing Care Delivery Model Rita D. Janke, RN, BSN, MSN; Alda Antunes Silvestre, RN, BSN, MSN 18-Navigating Through Life with a Baclofen Pump: Rules of the Road Beverley Tann, RN; Janet Simpson, RN 19-The Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) Questionnaire: A Manual & Interpretation Guide Unni G. Narayanan, MBBS, FRCSC, (MSc); Shannon Weir, BSc, (MSc); Darcy L. Fehlings, MD, MSc, FRCPC 20-Intra and Interrater Reliability of Myotonometer measurements of Muscle Tone Asa Lidstrom; Gunnar Ahlsten, PhD, MD; Helga Hirschfeld, RPT, Dr med sc; Simone Norrlin, RPT, Dr med sc demonsTraTion PosTers 21-Sorting out Dystonia and Spasticity in Cerebral Palsy Using 3-D Gait Analysis: Implications for Stiffknee Gait, Toe Walking, and Rhizotomy ‘Candidates’ Kimberly A. Wesdock, PT, MS, PCS; Susan M. Blair, MSPT; Erin B. Rasnake, MSPT; George Masiello, BSEET; Eugenio Monasterio, MD; Chester H. Sharps, MD 22-The Treatment of Painful Hip in Cerebral Palsy Patients by Total Hip Arthroplasty Bradley S. Raphael, MD; Leon Root, MD; Josh Dines, MD 23-Physical Therapist Perceptions of Treating Orthopedic Impairments in Adults with Childhood-onset Neuromotor Disabilities Kelsi N. Compton-Griffifth, DPT; Anne Turner, MSPT; Nancy Cicirello, EdD, MPH, PT; Peter Blasco, MD 24-Impact of Video Evaluation on Surgical Procedure Determination Michelle G. Carlson, MD; Jennifer P. Lewin, OTR/L; Laura J. Spincola, CHES 25-Communicating Together: A Summer Camp for Girls with Rett Syndrome Kerry L. Haugh, DPT; Kim Thomashow, MS, OTR/L; Jane Murphy, MS, SLP-CCC; Kerry Roediger, MS, SLP-CCC 26-The C.A.G.E: A Community Based Adapted Physical Activity Approach Karen L. Robinson, MA; John C. Andersen, MD, FRCPC 27-A Group Visit Model Program for Children Who Are Visually Impaired Gregory S. Liptak, MD, MPH; Nienke P. Dosa, MD; Therese R. Welch, PhD 28-Quantitative Evaluation of Upper Extremity Discoordination in Cerebral Palsy Using a 3D Robotic System Theresa M. Sukal, BBE; Kristin J. Krosschell, PT, MA, PCS; Julius PA Dewald, PT, PhD 29-Best Practices in Transition to Adulthood for Youth with Disabilities: An Evidence-based Approach Debra Stewart, MSc; Beverley J. Antle, PhD; Helen Healy, OT; Mary Law, PhD; Nancy Young, PhD 30-Project SELF: Preparing Professionals to Facilitate Self-Determination Patricia M. Blasco, PhD; Ruth A. Falco, PhD; Leslie J. Munson, PhD 31-Building Consensus on Best Practices for Transition to Adult Health Services for Youth with Disabilities and Special Health Care Needs Helen Healy, OT Reg (Ont); Yani Hamdani, MA, OT, Reg (Ont)

mulTimedia absTraCTs *All multimedia abstracts will be availbale to view . Stop by the registration desk for more details . mm1: Teens on the move: an exercise dvd for People with spina bifida S Mukherjee, MD; A Rauworth, MS, RCEP; AK Griffen, MPH, CHES Rehabilitation Institute of Chicago, 345 E. Superior Street, Chicago, IL 60611 This DVD/video product features young people with spina bifida, demonstrating a complete suite of exercises . Obesity and inactivity have been noted to be issues for youth with mobility impairments, as in spina bifida . This DVD was developed to offer an appealing option for regular exercise, as well as education in how to perform those exercises independently, for someone with spina bifida . Spina bifida teen focus groups were consulted to provide input which guided the development of this product . The DVD is in three sections: Stretching, aerobic activity with warm up, and resistive exercise using weights and resistive bands . The aerobic activity utilizes appealing music with a strong beat, and dance choreography . It features teens of varying ability levels enjoying exercise with their peers, and can also be used by non-disabled peers and family members . Bright colors and varying setting including a gym, teen common area, and a lake front park add to the appeal . Medical information is provided in teen friendly language by a young adult peer, in short segments that “pop up” throughout the video . In this DVD, the teens themselves are the demonstrators and activity experts, putting them in an active role, empowering other teens to become more active . Although the video is geared towards people with spina bifida, teens can invite participation from able-bodied peers and family members, and join into or create an active family dynamic . The product would be of interest to teens with spina bifida, their families, physical therapists, and physical education teachers as a new teen friendly option for regular exercise, or for education on exercise . 76 minutes mm2: Together…assuring the best for all Children’s Physical development F Kurkowsky, BS A ; G Girolami, PT B Pathways Awareness Foundation: a 150 N. Michigan Avenue, Suite 2100, Chicago, IL; b 2591 Compass Road, Glenview, IL Pathways Awareness Foundation (PAF), founded in 988, is a nonprofit organization with a mission to educate parents and healthcare providers about the critical importance of early detection and early therapy for motor delays . PAF’s sister organization, Pathways Center (PC), founded in 985, is also a nonprofit organization that provides evidence-based treatment for infants and children and serves as a “best-practice” resource for pediatric therapist in the Chicago, IL area . The highlight of this film is two children, born 0 years apart, united by their determination to reach towards independence and to get the most out of their lives . Eleven year old Marcel and ½ year old Sophia work like Olympians to achieve their fullest potential . Their stores demonstrate how early therapeutic intervention has enriched their lives immeasurably and enabled them to make a smooth transition to a brighter future . For both of these children, their progress is a testament to the resilience of the human spirit . The film’s focus on the parents’ perspective has made it especially insightful for health professionals . For parents of infants with disabilities it is an amazing opportunity for them to see that their child can achieve full or high levels of participation in their home, school and community . 2 minutes mm3: video evaluation of the upper extremity in Children with Cerebral Palsy JP Lewin, OTR/L; LJ Spincola, MS, CHES; MG Carlson, MD Hospital for Special Surgery, 523 E. 72nd Street, New York, NY 10021 Background/Objective: Videotaping systematic therapeutic evaluation of the upper extremity in children with cerebral palsy allows for a precise representation of ability . Video enables repeated review of the assessment, allowing the care team to improve diagnostic accuracy as it relates to the development of a treatment plan . Systematic evaluation, including upper extremity motion and function, is the key component to creating a comprehensive representation of the child’s abilities and limitations . Description: The video evaluation is comprised of range of motion, manual muscle testing, sensory testing, grip and pinch strength, functional assessments, and ambulation tasks . Evaluation incorporates clinical-based measurements, standardized testing (Melbourne Assessment of Unilateral Upper Limb Function) and patientdriven activities (children are asked to bring games/toys from their everyday lives that are meaningful and present a challenge due to physical limitations) . The video delineates each portion of the evaluation, the methods of videotaping used to best demonstrate and enhance the child’s actual performance, and other tips for creating a useful and precise evaluation . Significance: Video evaluation is a tool that can be utilized pre-surgically, post-surgically and as an annual assessment to chart change . The systematic and consistent nature of the video allows the care team to record and monitor functional ability of time . Sharing our procedure for videotaping this comprehensive evaluation will allow health care professionals to utilize this practice to potentially improve diagnosis and treatment . 45

program - American Academy for Cerebral Palsy and ...
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