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Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...

6 AnnA MArie ChAMpion

6 AnnA MArie ChAMpion CYnThiA friSinA grAY THe reaCHing for THe sTars foundaTion Cathleen lyle murray award Reaching For The Stars . A Foundation Of Hope For Children With Cerebral Palsy was started by Anna Marie Champion and Cynthia Frisina Gray in late 2004 . We are two mothers determined to go above and beyond what is currently possible to make a profound difference in the lives of our children and others, who suffer the negative physical, emotional and social impact of Cerebral Palsy . We saw the need that exists for more progressive research on the causes and possible cures and treatments for children with CP . We realized… .”if not us…then who?”…and RFTS, Inc . was born . Mission: Foster national Cerebral Palsy research with the goal of expediting the creation of new medicines and effective treatments for children with Cerebral Palsy . We will also focus on: • Building community awareness, education and patient advocacy, on a nation-wide basis, among care givers and health care providers regarding new and promising research, treatments and therapies . • Developing and promoting new discoveries and clinical research programs that will advance the pharmacological, surgical and therapeutic treatment of CP . aWard reCiPienTs linda masTandrea duncan Wyeth award Linda Mastandrea was the second born of a pair of twins, who became the fourth and fifth children to their parents, in Chicago, IL . At age 3, Linda was diagnosed with cerebral palsy, spastic diplegia . Linda was mainstreamed throughout school, graduating 7th in her high school class of 452 from Bolingbrook High School . Linda went on to earn her BA from the University of Illinois in 986, and her J .D . from Chicago-Kent College of Law in 994 . It was while she was an undergraduate student at U of I that she became acquainted with the world of wheelchair athletics, and was introduced to the concept of disability advocacy . From 990- 999, Linda had the honor of representing the United States at the Paralympic Games twice, World Championships three times, and two other international competitions . In those competitions, she won 5 gold and 5 silver medals in wheelchair track, setting world and Paralympic records in five events, thanks to the support she received from the Rehabilitation Institute of Chicago’s Wirtz Sports Program . While in training for these various events, Linda discovered her passion for the law, graduating from Chicago-Kent and passing the bar exam on the first attempt . Linda’s goal was to assist people with disabilities who have experienced discrimination in employment, housing, public accommodations, and access to government services . She has taught Disability Law at Chicago-Kent College of Law, the Legal Environment of Business at University of Phoenix Online, lectured all around the nation on disability law and advocacy, and is currently editing a book entitled “An Encyclopedia of Disability Sport .” She has received numerous awards for her accomplishments, including being named one of Crain’s Chicago Business Forty Under 40, the International Olympic Committee President’s Disabled Athlete Award, the David Award from the Italo-American National Union, and was named an Outstanding Woman Leader in Sports by the YWCA of Du- Page . But Linda isn’t one to rest on her laurels . She is active in giving back to the community as well . She has served as Vice President to the National Disability Sports Alliance, Secretary to the Associate Board of the Rehabilitation Institute of Chicago, and was the first disabled athlete to serve on the United States Olympic Committee Board of Directors . She also serves on the Public Policy and Vocational Action Committees for the Rehabilitation Institute of Chicago’s Board of Directors, and on the Legal Advisory Committee for Access Living .

aWard reCiPienTs, continued For eight years, Linda provided her expertise to Hartford Financial Services as part of Team Ability, a diverse group of athletes and professionals, speaking to various audiences on topics ranging from motivation and inspiration to disability law and compliance issues . Linda is now beginning a new challenge—starting her own law practice . Linda represents individuals with disabilities in discrimination claims, and also provides training for employers and businesses on how to comply with the law . Linda brings a wealth of knowledge, expertise, information and inspiration to any audience . Whether the topic is overcoming barriers or how the Americans with Disabilities Act relates to the insurance industry, she can enthrall, educate and enlighten five people or five thousand . sHubHra mukHerJee, md & adriane griffen, mPH, CHes fred P. sage award *View abstract on page 45 Shubhra (Sue) Mukherjee is a Pediatric and Adolescent Physiatrist at the Rehabilitation Institute of Chicago, and at Children’s Memorial Hospital in Chicago . She is working on developing transition services for youth and young adults with disabilities . She is a member of the Children’s Memorial Spina Bifida Clinic, and has helped to re-establish an adult care clinic for graduates of the Children’s Spina Bifida clinic . She is (proudly) a product of Canada, and says she is indebted to those who trained and worked with her . This award is shared with Adrienne Griffin of the Spina Bifida Association and Amy Rauworth of the National Center for Physical Activity and Disability . They wish to thank the youth that participated in the making of this video, and hope that it is enjoyed by many . Adriane K. Griffen is currently the Director of Public Health Programs for the Spina Bifida Association (SBA) where she is responsible for all aspects of program and campaign management including audience research, program design, evaluation, and development . Ms . Griffen serves as the Chair of the National Council on Folic Acid, a partnership of over 80 national organizations and associations, state folic acid councils and government agencies whose mission is to improve health by promoting the benefits and consumption of folic acid . In addition, Ms . Griffen serves as SBA’s liaison to the Partners of the National Center on Birth Defects and Developmental Disabilities, a group of external partners which serves to support the work of this Center at the Centers for Disease Control and Prevention . Previously, she managed SBA’s Recurrence Prevention Program where she initiated this national social marketing effort to increase awareness of folic acid . Prior to joining SBA, Ms . Griffen was the Marketing and Outreach Manager for the National Health Information Center, a service of the Office of Disease Prevention and Health Promotion (ODPHP) . In addition, Ms . Griffen was a Summer Intramural Training Awards Fellow at the Prevention Research Branch of the National Institute of Child Health and Human Development (NICHD), National Institutes of Health (NIH) . She holds a Master of Public Health from The George Washington University School of Public Health and Health Services, and is a Certified Health Education Specialist Jeanne CHarles, PHd & andreW gordon, PHd gayle g. arnold award for best scientific Paper of 2007 Jeanne Charles, PT, MSW, PhD is an Assistant Professor in the Emory University School of Medicine, Division of Physical Therapy . She received a B .S . in Physical Therapy form the State University of New York at Buffalo, an M .S .W . from the State University of New York at Stony Brook, and her Ph .D . in Kinesiology from Teachers College, Columbia University . Her research is focused on the neural mechanisms underlying upper extremity impairments in children with hemiplegic cerebral palsy, and in testing the efficacy of new rehabilitation strategies to improve impaired upper extremity function in this population . Dr . Charles along with Dr . Andrew Gordon have investigated the efficacy of a modified form of Constraint- Induced Movement Therapy and developed an intensive bimanual training protocol for children with hemiplegia, Hand-Arm Bimanual Intensive Therapy (HABIT) . Dr . Charles is the 2002 recipient of the Hughes Award presented by the Pediatric Section of the American Physical Therapy Association . 7

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