Views
5 years ago

chapter 2 - National Federation of Voluntary Bodies

chapter 2 - National Federation of Voluntary Bodies

Frequency 40 30 20 10 0

Frequency 40 30 20 10 0 Figure 5.13 – Length of time since the professional last informed a family | | 1 2 3 4 5 6 8 9 13 1822 26 30 31 35 39 41 44 52 104 156 No. of weeks When referring to the last time that they had been involved in the disclosure of a disability to a child’s family, over two fifths (43.3%) of the professional respondents described their role as being involved in supporting both the family and the professional delivering the news. Slightly fewer (39.1%) were responsible for giving the diagnosis in the particular case being described. Child’s Diagnosis The professional respondents were asked what stage of diagnosis was being communicated the last time that they gave the news or supported a family receiving the news; raising a concern, communicating a suspected diagnosis, or confirming a diagnosis. In Figure 5.14 below we can see that there was a relatively even spread of responses as to the stage of diagnosis the respondents were involved in, with the most common stage reported being that of ‘communicating a suspected diagnosis’. Fifty-five respondents did not respond to this particular question. No. of Cases 100 80 60 40 20 0 33 18 9 8 21 7 2 22 10 8 Figure 5.14 – Stage of diagnosis the professional was involved in disclosing 51 Raising a concern 85 2 12 109 Informing Families Consultation and Research Report 1 Communicating a suspected diagnosis 2 2 2 5 3 3 1 1 81 Confirming a diagnosis 5. NATIONAL QUESTIONNAIRE SURVEY OF PARENTS AND PROFESSIONALS

Informing Families Consultation and Research Report It was possible for the professionals to give the family a clear diagnosis in just over two fifths of the cases (41.6%). Table 5.37 below indicates the types of disability that were present. As with the parent questionnaire, respondents indicated more than one category in many cases, and in keeping with the findings of the parent questionnaire, intellectual disability was again the most common type of disability present. Table 5.37 - Types of Disability Present Types of Disability Present n= Percentage Physical disability 63 26.5% Sensory disability 30 12.6% Intellectual disability 82 34.5% Multiple disability 49 20.6% Autistic spectrum 27 11.3% Missing 52 21.8% Severity of disability Professionals were asked if any terms indicating the likely severity of the child’s disability had been used in relation to the child’s diagnosis. Multiple categories were indicated by a number of professionals in answer to this question. Similar levels of moderate, severe and profound disabilities were present in the parent questionnaire however the percentage of professional respondents who indicated mild disability was less than half of those in the parent questionnaire. Table 5.38 - Severity of Disability Terms used in relation to child’s disability: n= Percentage Mild 26 10.9% Moderate 45 18.9% Severe 39 16.4% Profound 13 5.5% None of these 69 29.0% Other 21 8.8% Don’t Know 5 2.1% Missing 56 23.5% Syndrome or Disability Name Respondents were asked to specify where possible the name of the syndrome/condition diagnosed. As with the parent questionnaire results, there was a wide range of disabilities reported from across physical, intellectual and sensory disabilities, and autistic spectrum disorder, and these are set out in Table 5.39 opposite. This table was categorised in conjunction with a Consultant Paediatrician and a Consultant Obstetrician/Gynaecologist. 110

Best Practice Guidelines - National Federation of Voluntary Bodies
presentation - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
Next Steps Project - National Federation of Voluntary Bodies
Open hearts - National Federation of Voluntary Bodies
Annual Report 2008 - National Federation of Voluntary Bodies
Annual Report 2005 - National Federation of Voluntary Bodies
Questions re final document - National Federation of Voluntary Bodies
friendships and taboos - National Federation of Voluntary Bodies
Annual Report 2011 - National Federation of Voluntary Bodies
Toward Having a Good Life - National Federation of Voluntary Bodies
Achieve More 2 - National Council for Voluntary Organisations
annual report 2006 annual report 2006 - National Federation of ...
Fish friers Review - Mar / Apr 2012 - Issue 2 - National Federation of ...
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
Programme - National Federation of Voluntary Bodies
Programme - National Federation of Voluntary Bodies
The National Federation of Voluntary Bodies Living Options for ...
Programme available here - National Federation of Voluntary Bodies
Research Strategy - National Federation of Voluntary Bodies
Annual Report 2010 - National Federation of Voluntary Bodies
Equal Citizens - National Federation of Voluntary Bodies
Annual Report 2007 - National Federation of Voluntary Bodies
Community Participation - National Federation of Voluntary Bodies
NEXT STEPS PROJECT - National Federation of Voluntary Bodies
Reading list - National Federation of Voluntary Bodies