Views
5 years ago

chapter 2 - National Federation of Voluntary Bodies

chapter 2 - National Federation of Voluntary Bodies

Table 5.39 - Disability

Table 5.39 - Disability or syndrome name Name of syndrome n= Percentage Acquired brain injury (ABI) 1 0.4% Autistic Spectrum Disorder 13 5.5% Cardiac 3 1.3% Cerebral Palsy 5 2.1% Chromosal (non Down Syndrome) 10 4.2% Cleft lip and/or palate 1 0.4% Congenital deafness 2 0.8% Downs Syndrome 17 7.1% F.A.P. 1 0.4% Genetic (non chromosal) 4 1.7% Hearing loss/deafness 3 1.3% Hydrocephalus (non Down Syndrome) 2 0.8% Learning/Intellectual disability 11 4.6% Lissencephally 1 0.4% Mito chondrial disorder 2 0.8% Musculo skeletal 4 1.7% Neurological 1 0.4% Occular 1 0.4% Renal 2 0.8% Respitatory 1 0.4% Specific language impairment 1 0.4% Spina Bifida 1 0.4% Very rare syndrome 3 1.3% Other 3 1.3% Missing 145 60.9% Total 238 100% Informing Families Consultation and Research Report Child’s Age at diagnosis In responding to the stage at which the diagnosis they were describing had been given to the family; during pregnancy, at birth, or at a later stage, a much smaller proportion of families (less than 15%) were reported in the Professional Questionnaire as having received the diagnosis at the time of birth compared with 46.2% of respondents to the Parent Questionnaire. Almost one quarter of professionals did not respond to this question. Time of diagnosis Table 5.40 - Stage at which diagnosis given n= Percentage Before birth 25 10.5% At birth 34 14.3% At the time of adoption 5 2.1% At a later time 119 50.0% Missing 55 23.1% 111 5. NATIONAL QUESTIONNAIRE SURVEY OF PARENTS AND PROFESSIONALS

Informing Families Consultation and Research Report Of the 50% of the families reported who did not receive their child’s diagnosis at or before birth, there was a wide spread of ages as to when the diagnosis took place. Figures 5.15 and 5.16 below show these age ranges, broken down into those that occurred within the first year after the child’s birth (31.9%), and those that took place after the child was one year of age (68.1%). Frequency Frequency 8 6 4 2 0 20 15 10 5 0 7 1 week Figure 5.15 – Time of diagnosis – children aged less than 1 year 1 2 weeks 3 weeks 2 2 1 1 month 6 2 2 4 6 9 11 months 3 months 5 months 8 months 10 months weeks months months months months Figure 5.16 – Time of diagnosis – children aged 1 year or more 12 20 10 10 7 112 4 3 Age of Child 2 6 3 3 4 3 3 2 2 2 2 1 1 1 1 1 1 | 0 5 10 15 20 Age of Child in Years

Best Practice Guidelines - National Federation of Voluntary Bodies
presentation - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
Next Steps Project - National Federation of Voluntary Bodies
Open hearts - National Federation of Voluntary Bodies
Questions re final document - National Federation of Voluntary Bodies
Annual Report 2008 - National Federation of Voluntary Bodies
Annual Report 2005 - National Federation of Voluntary Bodies
Annual Report 2011 - National Federation of Voluntary Bodies
friendships and taboos - National Federation of Voluntary Bodies
Toward Having a Good Life - National Federation of Voluntary Bodies
Achieve More 2 - National Council for Voluntary Organisations
annual report 2006 annual report 2006 - National Federation of ...
Fish friers Review - Mar / Apr 2012 - Issue 2 - National Federation of ...
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
here - National Federation of Voluntary Bodies
Programme - National Federation of Voluntary Bodies
Programme - National Federation of Voluntary Bodies
Community Participation - National Federation of Voluntary Bodies
NEXT STEPS PROJECT - National Federation of Voluntary Bodies
Reading list - National Federation of Voluntary Bodies
Easy to read programme - National Federation of Voluntary Bodies
The National Federation of Voluntary Bodies Living Options for ...
Research Strategy - National Federation of Voluntary Bodies
Programme available here - National Federation of Voluntary Bodies
Fed Vol-A4x4NL-61760 - National Federation of Voluntary Bodies
Annual Report 2010 - National Federation of Voluntary Bodies