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chapter 2 - National Federation of Voluntary Bodies

chapter 2 - National Federation of Voluntary Bodies

Informing Families

Informing Families Consultation and Research Report Presence of additional staff members As with the parent questionnaire, professional respondents were asked to list the additional staff members present if more than one staff member attended the disclosure, and four spaces were provided in the questionnaire for the purpose of listing those present. 270 responses were given to this question and are categorised in Table 5.45 below. Paediatric nurses were mentioned in the highest number of instances as being additional staff members. Paediatricians, Psychologists, Midwives, and Trainee Doctors were the next highest instances in terms of additional staff members in attendance. Table 5.45 - Presence of additional staff members Disciplines Present The disciplines present when the news was given were... n= Percentage Audiologist 6 2.2% Cardiologist 1 0.4% Clinical Nurse Specialist 1 0.4% Consultant 13 4.8% Consultant Anaesthetist 2 0.7% Consultant ENT 3 1.1% Dermatologist 1 0.4% Doctor 2 0.7% Family Members 1 0.4% Foetal Medicine Specialist 1 0.4% GP 2 0.7% Genetic Counsellor 1 0.4% Guidance Counsellor 1 0.4% Interpreter 2 0.7% Midwife 23 8.5% Midwife Manager 4 1.5% Neonatal Nurse 4 1.5% Neonatologist 2 0.7% Neurologist 2 0.7% Neurology Nurse Specialist 1 0.4% Nurse 17 6.3% Obstetrician/Gynaecologist 7 2.6% Occupational Therapist 7 2.6% Paediatric Nurse 29 10.7% Paediatrician 26 9.6% Parent 3 1.1% Physiotherapist 5 1.9% Psychiatrist 4 1.5% Psychologist 25 9.3% Psychotherapist 1 0.4% Public Health Nurse 5 1.9% Social Worker 16 5.9% Speech and Language Therapist 10 3.7% Teacher 5 1.9% Trainee Cardiologist 1 0.4% Trainee Doctor 18 6.7% Trainee Paediatrician 9 3.3% Trainee Psychologist 1 0.4% Trainee Social Worker 1 0.4% Ultrasonographer 2 0.7% Other 5 1.9% 115 5. NATIONAL QUESTIONNAIRE SURVEY OF PARENTS AND PROFESSIONALS

Informing Families Consultation and Research Report Service Setting for Disclosure Professional respondents were asked to indicate the service settings in which the diagnoses were given to the parents, and so doing were given a number of spaces in order to capture each setting if the diagnosis had taken place in a number of stages or across settings. As with the parent questionnaires there was a spread of service settings reported from hospital, community and disability services. In contrast with approximately two fifths of the instances recorded by parents taking place in the Maternity Hospital, this was the setting for less than 2% of the cases described by professionals. Paediatric Hospitals and Early Services were mentioned in many instances, in keeping with the parent cases reported, and a category not previously reported in the parent questionnaires; Child and Adolescent Mental Health Services, also featured frequently. 168 responses were given to this question in total. Service Settings Table 5.46 - Service setting for disclosure n= Percentage Audiology Department 1 0.6 % Autism Services 1 0.6 % Child and Adolescent Mental Health Services 15 8.9% Cardiology Unit 1 0.6 % Career Guidance 1 0.6 % Child Guidance/Development Clinic 2 1.2% Clinic 1 0.6 % Community Care Psychology Services 1 0.6 % Community Care Services 2 1.2% Community Paediatric Services 1 0.6 % Dept. of Education & Science (NEPS) 1 0.6 % Dept. of Education & Science Learning Support 1 0.6 % Disability Service Provider 3 1.8% Ear, Nose and Throat Services 1 0.6 % Early Services 14 8.3% Foetal Assessment Unit 6 3.6% Hospital 4 2.4% Intellectual Disability Service Provider 2 1.2% Maternity Hospital/Unit 3 1.8 % Neonatal Unit 5 3.0 % Obstetric Unit 5 3.0% Oncology Unit 1 0.6% Outpatients Dept/Clinic 5 3.0% Paediatric Hospital/Unit 63 37.5% Paediatric ICU 4 2.4% Paediatric Neurology Services 1 0.6% Prenatal Diagnosis Services 4 2.4% Prenatal Ultrasound 4 2.4% Scan Unit 1 0.6% SCBU/NICU 5 3.0% School 2 1.2% Speech and Language Services 1 0.6% Others 6 3.6% 116

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