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chapter 2 - National Federation of Voluntary Bodies

chapter 2 - National Federation of Voluntary Bodies

5.3.8. Staff Support

5.3.8. Staff Support Table 5.70 - Service type of disciplines subsequently involved Service Type n= Percentage Cardiology Unit 1 0.8% Child Guidance/Development Clinic 1 0.8% Child’s Home 4 3.1% Cochlear Implant Department 1 0.8% College of Speech and Language Therapists 1 0.8% Community Care Services 28 22.0% Dept of Education and Science 2 1.6% Disability Service Provider 16 12.6% Early Services 1 0.8% General Practice 2 1.6% Genetics Centre 1 0.8% Hospital 21 16.5% Hospital/Community 4 3.1% Intellectual Disability Service Provider 1 0.8% Learning Disability Service Provider 1 0.8% Maternity Hospital/Unit 12 9.4% Outpatients Dept/Clinic 1 0.8% Paediatric Hospital/Unit 15 11.8% Paediatric ICU 1 0.8% Physical Disability Service Provider 1 0.8% Rehab Clinic 1 0.8% SCBU/NICU 3 2.4% Special Education 2 1.6% Other 6 4.7% Informing Families Consultation and Research Report A further key element in relation to the disclosure process which was raised during the focus group consultation was the need to provide staff members with adequate support and debriefing opportunities.The results in Table 5.71 below show that roughly equal numbers of staff members did and did not debrief, with almost two fifths of professionals reviewing or debriefing with a colleague or team member after the news was given to parents. Table 5.71 - Reviewing with colleagues n= Did you review/debrief following with a colleague Yes No Missing or team member after the news was given to the parents? 177 39.5% 34.9% 61 In relation to those who were in training at the time that the disclosure being described took place, 20 individuals indicated that they had obtained advice from senior colleague. Table 5.72 - Advice from senior colleague Information Sharing If you were alone and in training, was there n= Yes No Not applicable Missing a senior colleague from whom you obtained advice? 144 8.4% 2.9% 49.2% 94 129 5. NATIONAL QUESTIONNAIRE SURVEY OF PARENTS AND PROFESSIONALS

Informing Families Consultation and Research Report 5.3.9. Professionals Satisfaction with Disclosure Professionals’ satisfaction with disclosure In relation to the specific disclosure that the professionals had described as being their last experience, respondents indicated their own levels of satisfaction with how the family had been informed. The responses to this question are presented in Figure 5.20 below. Two thirds (62.2%) of professionals were either 'Satisfied' or 'Very Satisfied' with the way in which the family was informed of their child's disability. This contrasts with 36.4% of parents who indicated these responses. A small minority of professionals (5.0%) indicated that they were 'Dissatisfied' with how the diagnosis was disclosed, and no respondents were ‘Very Dissatisfied’. Don’t know 1.7% Dissatisfied 5% Missing 22.7% Figure 5.20 - Professional’s satisfaction with disclosure Very Satisfied 22.3% Neither Satisfied nor Dissatisfied 8.4% Professionals’ assessment of parent satisfaction with disclosure Having reported their own levels of satisfaction with how the disclosure was handled, professionals then expressed their assessment of how satisfied the family was with how they had been given the news of their child’s disability. The majority of professional respondents (54.2%) indicated that they felt parents were 'Satisfied' or 'Very Satisfied' with how they had been informed of their child's disability. Eleven respondents (4.6%) were of the opinion that the parents were 'Dissatisfied' or 'Very Dissatisfied' with how their child’s diagnosis had been disclosed. Very Dissatisfied 0.4% Figure 5.21 - Professional’s view of parents’ satisfaction with disclosure Don’t know 6.3% Missing 21.8% Dissatisfied 4.2% 130 Satisfied 39.9% Very Satisfied 12.2% Neither Satisfied nor Dissatisfied 13.0% Satisfied 42.0% Neither Satisfied nor Dissatisfied Dissatisfied Don’t know Missing Very Satisfied Satisfied Neither Satisfied nor Dissatisfied Dissatisfied Very Dissatisfied Don’t know Missing Very Satisfied Satisfied

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