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chapter 2 - National Federation of Voluntary Bodies

chapter 2 - National Federation of Voluntary Bodies

Table 5.87 - Training

Table 5.87 - Training Informing Families Consultation and Research Report Training Parent Professional Amalgamated Agree & Agree & Agreement Strongly Strongly Percentage Agree Agree Staff members are trained in communication skills 95.7% 94.5% 95.1% Staff members are trained in good practice for informing families of their child’s disability 95.1% 94.5% 94.8% Staff members have a good understanding of disability 95.7% 95.0% 95.4% Table 5.88 - Information & Support Information & Support Parent Professional Amalgamated Agree & Agree & Agreement Strongly Strongly Percentage Agree Agree Parents are asked how much information they wish to receive 82.1% 74.8% 78.5% Parents are asked when they would like to receive information 80.4% 78.6% 79.5% An interpreter is provided if English is not the first language of the parents 88.6% 94.1% 91.4% Staff members check that parents have understood what has been discussed 89.1% 95.0% 92.1% Parents are given a written summary of the consultation 81.5% 68.9% 75.2% Parents are not left alone for a long period without support 79.3% 87.8% 83.6% Parents are given time alone together to absorb the news 87.5% 88.7% 88.1% Parents are given written information (leaflets, books etc.,) about their child’s disability/diagnosis 87.5% 88.7% 88.1% The written information given to parents is in their first language 89.1% 90.8% 90.0% Parents are given the option of information about support groups 89.7% 93.3% 91.5% Parents are given the option of contact with other families 79.9% 81.9% 80.9% Parents are offered the option of counselling 84.8% 84.0% 84.4% Parents are offered contact with a social worker/liaison person 85.3% 88.2% 86.8% Parents are kept up to date at all times, with honest information 90.8% 95.0% 92.9% Table 5.89 - Referral Referral Parent Professional Amalgamated Agree & Agree & Agreement Strongly Strongly Percentage Agree Agree Parents are referred to early services as soon as possible 91.3% 95.0% 93.2% Parents are given information about the service they are referred to 91.8% 95.4% 93.6% 137 5. NATIONAL QUESTIONNAIRE SURVEY OF PARENTS AND PROFESSIONALS

Informing Families Consultation and Research Report Organisation & Planning Table 5.90 - Organisation & Planning Parent Professional Amalgamated Agree & Agree & Agreement Strongly Strongly Percentage Agree Agree Staff members share information, so that parents do not have to give the same history or information to many different people Staff members coming on to new shifts are informed that parents have been given the news that their 88.0% 93.7% 90.9% child has a disability The GP is informed about the child’s disability by 90.2% 94.1% 92.2% those giving the news to the parents The Public Health Nurse is informed about the child’s 90.8% 90.8% 90.8% disability by those giving the news to parents If the diagnosis has been given in the maternity hospital and the mother is staying overnight, a partner or a family 86.4% 82.8% 84.6% member/friend is offered the choice to stay also The family are offered the choice of accommodation 87.5% 81.1% 84.3% on their own, after the diagnosis Parents are offered a follow-up appointment within a 80.4% 71.4% 75.9% maximum of two weeks to discuss the diagnosis. 90.8% 87.8% 89.3% 138

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