MSWA Bulletin Magazine Makuru / Winter 2024
Front page pic: All smiles as MSWA breaks ground on new specialised homes for West Aussies. Inside: - World MS Day celebrations - Caroline Clarke-Smith: 25 years of service - Embracing the season of Makuru - Making a splash at Albany Swim
Front page pic: All smiles as MSWA breaks ground on new specialised homes for West Aussies.
Inside:
- World MS Day celebrations
- Caroline Clarke-Smith: 25 years of service
- Embracing the season of Makuru
- Making a splash at Albany Swim
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All smiles as <strong>MSWA</strong> breaks ground on new<br />
specialised homes for West Aussies.<br />
Inside<br />
<strong>Bulletin</strong><br />
YOUR <strong>MSWA</strong> MAGAZINE<br />
MAKURU | WINTER <strong>2024</strong><br />
mswa.org.au
Client Artist Michelle Hall.<br />
WILSON CENTRE<br />
29 Parkhill Way<br />
9365 4888<br />
Contact Us<br />
If you would like to comment on anything you read in<br />
this <strong>Bulletin</strong>, please email bulletin@mswa.org.au<br />
For general feedback or complaints, please contact<br />
feedback@mswa.org.au<br />
Editorial Working Group<br />
Nicola Washington, Tony Millar, Emily Ace,<br />
Tammie Chu and Nicolette Murphy.<br />
Contributors<br />
Thank you to all of our <strong>MSWA</strong> contributors from across<br />
our orgnisation, who take to the time to share their<br />
knowledge and expertise for the benefit of our readers.<br />
If there is a topic you would like to see included in our<br />
next edition, please email bulletin@mswa.org.au with<br />
your suggestion.<br />
Welcome to the <strong>Makuru</strong> <strong>2024</strong><br />
edition of <strong>Bulletin</strong><br />
The Nooongar Season “<strong>Makuru</strong>” is represented by the dark<br />
blue colour, symbolising the cold and wet weather typical of the<br />
season. <strong>Makuru</strong> is the time for animals to pair up in preparation<br />
for breeding in the upcoming months. It is also when blueberry lily,<br />
purple flags, and weeping peppermint flowers begin to flourish. 1<br />
Client Engagement Department<br />
Our experienced teams will provide you with<br />
personalised support throughout your service journey<br />
with <strong>MSWA</strong>. From helping you to access funding, to<br />
working with you to get the most from your selected<br />
services, our trained staff are here to help.<br />
For more information, please contact 9365 4888.<br />
Our services include:<br />
• Counselling, Peer Support and Health Education<br />
• Community Support & In-home Care<br />
• Dietetics<br />
• Occupational Therapy<br />
• Outreach<br />
• Physiotherapy<br />
• Social Welfare<br />
• Speech Pathology<br />
• Nursing<br />
• Support Coordination<br />
Nursing Support<br />
Our Neurological Liaison Nurses are usually the first<br />
point of contact after the neurologist’s diagnosis.<br />
Community Nurse: 9365 4888<br />
Monday to Friday (8.00am - 4.00pm)<br />
Outreach at <strong>MSWA</strong><br />
If you live in Perth, Rockingham, Bunbury or Albany and<br />
are interested in a trial to experience the Outreach<br />
community, get in touch via outreach@mswa.org.au<br />
Employment Support<br />
The <strong>MSWA</strong> Employment Support Service is the only<br />
specialist employment service for people living with<br />
multiple sclerosis and other neurological conditions in<br />
Western Australia. Our team can help you to stay<br />
in your current job or find employment in the open<br />
labour market.<br />
Please call: 1300 865 209<br />
See all our supports and services at mswa.org.au<br />
Switch to <strong>Bulletin</strong> online today!<br />
Help us reduce our environmental impact by going<br />
digital and connect with more engaging content.<br />
Email us at marketing@mswa.org.au to sign up.<br />
1 <br />
Reference: Edith Cowan University, Cultural Leadership:<br />
Noongar Six Seasons.<br />
PHOTO: Dylan Alcock.<br />
Acknowledgement of Country<br />
In the spirit of reconciliation, <strong>MSWA</strong> acknowledges the<br />
Traditional Custodians of the many lands and language<br />
groups of Western Australia, and their connections to<br />
land, sea and community. We pay our respect to their<br />
Elders past and present, and extend that respect to all<br />
Aboriginal and Torres Strait Islander peoples today.<br />
2 3
From our CEO<br />
Melanie Kiely<br />
Client Services<br />
Nicki Washington – Chief Client Operations Officer<br />
Greetings to all of you in our <strong>MSWA</strong><br />
community. I cannot believe we are<br />
almost halfway through the year<br />
and yet the warm weather stayed<br />
with us well into the month of May,<br />
with so little rain. I hope as we<br />
embark into the season of <strong>Makuru</strong><br />
we see our waterways refill after<br />
such a dry season.<br />
Looking back over the past three<br />
months, we have had many<br />
significant milestones.<br />
Our Montario Quarter development<br />
has finally commenced. We had a<br />
wonderful Construction Launch<br />
with the Minister of Health and the<br />
new Director General of Health. This<br />
jointly funded project will provide<br />
new homes for the current residents<br />
of the Quadriplegic Centre, three<br />
of whom helped us break ground<br />
– Enzo, Celia, and Angelo – as<br />
well as other West Aussies with<br />
neurological conditions requiring<br />
high support care.<br />
In our focus on expanding our<br />
community to include corporates<br />
and other partners who want to help<br />
us make a positive impact, we’ve<br />
signed our first landmark –<br />
partnership with the State Buildings,<br />
who will provide a range of support<br />
to our fundraising efforts. I<br />
personally attended the signing, and<br />
I’m so encouraged by the goodwill<br />
of organisations, such as the<br />
State Buildings, to support and get<br />
involved in what we do.<br />
Our Client Co-Design and Advisory<br />
Committee is a year down the<br />
track and has agreed to meet more<br />
frequently, we’re learning so much<br />
from each other. It sounds obvious to<br />
co-design with the community you are<br />
trying to help, but sometimes we’re<br />
too focused on getting things done<br />
and we have fallen into this trap in<br />
the past. I can’t thank the committee<br />
and our Client base enough for being<br />
open and honest in our discussions,<br />
so we can support you better.<br />
We’ve seen some big statements from<br />
the Government following the NDIS<br />
Review recommendations and more<br />
recently the budget announcement.<br />
<strong>MSWA</strong> agrees with most of the<br />
observations and recommendations<br />
of the review, but the devil is in the<br />
timing and the detail. Both, sadly, are<br />
still lacking and we look forward to<br />
working with the Government through<br />
our advocacy channels and peak<br />
bodies to get this clarity for all of you.<br />
Looking ahead, we have our <strong>MSWA</strong><br />
Step Up around the corner on<br />
Sunday, June 23. These are tough<br />
times for fundraising with the cost-ofliving<br />
pressures, but please do what<br />
you can and come along. It is a lot of<br />
fun – even I enjoyed it and believe me,<br />
stairs and cardio are not my thing!<br />
The great atmosphere is what got<br />
me to the top last year – twice!<br />
Lastly, I want to pay tribute to<br />
two wonderful members of our<br />
community.<br />
Firstly, to <strong>MSWA</strong>'s longest-serving<br />
volunteer, Marie Harris. Marie<br />
passed away earlier this year, having<br />
volunteered with <strong>MSWA</strong> for over 30<br />
years. Marie lived a truly incredible<br />
life, having founded the Masters<br />
Swimming Club in Bunbury and<br />
boasting a huge collection of medals<br />
for her swimming achievements<br />
particularly in backstroke. In 2016,<br />
Marie received the WA Volunteer<br />
Service Award for her years of<br />
dedication to <strong>MSWA</strong>, in which<br />
she connected newly diagnosed<br />
Clients to services, volunteered her<br />
time in Bunbury Outreach, raised<br />
awareness for MS and actively<br />
fundraised for our cause. You can<br />
read more about Marie's story<br />
here: https://bit.ly/3yMk96L.<br />
Marie will be sorely missed, and<br />
we can’t thank her enough for her<br />
years of dedication.<br />
Secondly, I would like to give our<br />
thanks to Lynda Whitton who was<br />
a National Advocate with Multiple<br />
Sclerosis Australia since the<br />
program's inception - an extensive<br />
tenure of 13 years! In this role she<br />
ensured our WA community had<br />
a voice at the national table. After<br />
resigning from the role in 2023, she<br />
passed the baton onto Susan Hyde<br />
who we profiled in our last edition<br />
of <strong>Bulletin</strong>. Your years of service is<br />
truly appreciated by our community.<br />
Thank you.<br />
Go well and enjoy the winter now<br />
that it is finally arriving - I know my<br />
plants most certainly are!<br />
Welcome to the <strong>Makuru</strong> edition<br />
of <strong>Bulletin</strong>. As featured on our front<br />
page, we are very excited to see the<br />
progression of our new residential<br />
site at Montario Quarter. We have<br />
been meeting with the current<br />
residents of the Quadriplegic Centre<br />
to provide key updates on the new<br />
building and will be developing<br />
plans for the smooth transition of<br />
residents to their new homes.<br />
Recognising our people<br />
We are so proud of our <strong>MSWA</strong><br />
nurses and the incredible work<br />
they do to support our Clients, so<br />
it was fantastic to celebrate them<br />
with a morning tea in honour of<br />
International Nurses Day in May.<br />
May also allowed us the opportunity<br />
to recognise the amazing<br />
contribution of our many <strong>MSWA</strong><br />
volunteers with a luncheon – you can<br />
read all about it and see the pictures<br />
on page 22.<br />
To our amazing nurses and<br />
volunteers, THANK YOU.<br />
Massage Services<br />
Knowing how important massage is<br />
for our Clients, we recently sought<br />
feedback and reviewed our service<br />
delivery with the aim of increasing<br />
our massage services.<br />
Considering the information we<br />
received, <strong>MSWA</strong> will now contribute<br />
50 per cent off the current<br />
fee-for-service rate for eligible<br />
Clients. There will be no limit on the<br />
frequency of appointments, though<br />
this will be subject to availability.<br />
As the service grows and evolves,<br />
there may come a time when we<br />
will need to make changes to<br />
ensure continuity and accessibility<br />
of the service. This includes, but<br />
is not limited to, the price, offers<br />
or promotions, appointment<br />
bookings, and cancellations. Should<br />
that be the case, we will ensure<br />
that any changes will be clearly<br />
communicated in a timely manner.<br />
If you would like to know how to<br />
access this service, please<br />
contact our Physiotherapy team on<br />
9365 4834 or physio@mswa.org.au.<br />
Residential Accommodation<br />
We will be holding open days across<br />
our accommodation sites in June<br />
and July, which is a great opportunity<br />
to wander around our residential<br />
homes and learn about the<br />
accommodation services we offer.<br />
Butler will be open on 25 June,<br />
Treendale on 25 July and Fern River<br />
also on 25 July, which will coincide with<br />
their Christmas in July celebration!<br />
We'd love you to visit us, so<br />
please register your interest at<br />
residential.managers@mswa.org.au.<br />
New service<br />
We are pleased to introduce a new<br />
Wellbeing service at <strong>MSWA</strong>, which<br />
aims to empower individuals using<br />
evidence-based tools and resources<br />
to overcome obstacles and foster<br />
resiliency. The comprehensive<br />
approach provides a holistic<br />
platform for personal growth<br />
and development. Find out more<br />
on page 27.<br />
Art Exhibition<br />
The <strong>MSWA</strong> art exhibition award<br />
ceremony took place at Wilson<br />
Outreach in May, where we<br />
celebrated all our talented artists.<br />
Jodee Pereira was announced our<br />
People’s Choice winner, as voted<br />
by the visitors to our Mega Home<br />
Lottery home, so well-done Jodee!<br />
Read more on page 15.<br />
Client Service<br />
Delivery Model<br />
We have started the next phase<br />
of work across our Client service<br />
delivery model. The project aims<br />
to find ways to improve how you<br />
receive support and services. Over<br />
the coming months, we will engage<br />
with a number of Client groups<br />
to gain feedback on how we can<br />
improve the holistic Client journey<br />
and will seek to discover what<br />
matters most to you.<br />
As always, your feedback is<br />
important to us so if you have<br />
anything you would like to share,<br />
please contact us on<br />
feedback@mswa.org.au.<br />
4 5
Client Engagement<br />
<strong>MSWA</strong> news<br />
Federal Budget provides<br />
future insight<br />
Breaking Ground<br />
Montario Quarter Construction Launch<br />
As I get older, certain things that<br />
used to seem mundane or boring<br />
to me have unexpectedly grown in<br />
interest and importance. Sleep for<br />
instance, is a far more important<br />
discussion for me now than it ever<br />
was during my younger, carefree<br />
days. Perhaps stranger still, I have<br />
become increasingly excited by the<br />
annual Federal Budget release and<br />
its impact on both NDIS and Aged<br />
Care participants. (Yes, I used the<br />
words exciting and Federal Budget<br />
in the same sentence). So, what<br />
was included in this year’s Budget<br />
and what does it mean?<br />
NDIS<br />
For a long time, much of what you<br />
have been hearing from the NDIA<br />
and the Government has been<br />
about reducing expenditure, so it<br />
should be no surprise to anyone<br />
that this Budget focused on the<br />
same thing. During his post-budget<br />
communications Minister Shorten<br />
reported that the NDIS will only<br />
increase by $1.5b over the next<br />
four years. This is fine, except that<br />
between the 2022/23 and 2023/24<br />
financial years, NDIS expenditure<br />
increased by $7.4b. According to<br />
Minister Shorten, this drop will<br />
be due to the NDIS review and<br />
proposed legislation changes. This<br />
makes sense; but it should be noted<br />
that these changes haven't been<br />
approved and the detail is uncertain.<br />
In good news, the budget committed<br />
$129.8m to consultation with the<br />
disability community around the<br />
recommendations of the review’s<br />
report.<br />
This shows that the Government is<br />
committed to co-design principals<br />
in improving the scheme. In<br />
addition, $5.3m was allocated to<br />
the Independent Health and Aged<br />
Care Pricing Authority to reform<br />
current NDIS pricing arrangements,<br />
including a review of pricing<br />
approaches and strategy. This is a<br />
win as the current pricing strategy<br />
is too rigid and impacts both<br />
participants and providers alike.<br />
There is also $20m over two years<br />
to assist people with disability,<br />
their families, and their carers to<br />
overcome challenges they face<br />
when accessing supports, and<br />
$45.5m over four years to establish a<br />
NDIS Evidence Advisory Committee<br />
which will provide advice around<br />
the appropriateness of disability<br />
supports through the NDIS.<br />
Aged Care – Home Care Packages<br />
While the NDIS received the most<br />
attention, the Government didn’t<br />
forget about the Aged Care sector<br />
which has also recently undergone<br />
its own significant review. The<br />
Government has committed $2.2b<br />
to aged care which should help to<br />
implement the recommendations and<br />
reforms from the Royal Commission<br />
into Aged Care Quality and Safety.<br />
One good outcome of this allocation<br />
is that the Government has allocated<br />
$531.4m for an extra 24,100 Home<br />
Care Packages in <strong>2024</strong>-25. This<br />
is expected to reduce wait-times<br />
to six months and will mean that<br />
approximately 300,000 Home Care<br />
Packages will be accessible across<br />
Australia; both great outcomes.<br />
The Government also allocated<br />
$111m towards strengthening the<br />
Quality and Safety Commission and<br />
$65.6m over four years, to attract<br />
and retain aged care workers to<br />
help ensure quality services across<br />
the sector.<br />
One not so good announcement<br />
from this year’s budget was the<br />
deferral once again of the New<br />
Aged Care Act until 1 July 2025. This<br />
follows deferral from the past two<br />
budgets. Despite waiting for reform<br />
for some time, deferring another<br />
year is a prudent decision due to the<br />
lack of confirmed detail.<br />
Across both the NDIS and HCP<br />
sectors this Federal Budget has<br />
pointed to changes coming over<br />
the horizon. While the devil is in the<br />
detail and some things are slow in<br />
appearing, the Government seems<br />
focused on getting both schemes<br />
right, and that’s something to get<br />
excited about.<br />
So, what does<br />
this all mean?<br />
Read Geoff’s<br />
full article<br />
online here:<br />
Geoff Hutchinson<br />
Manager Client Engagement<br />
<strong>MSWA</strong> is proud to announce the launch of construction<br />
for the Montario Quarter, a significant milestone in our<br />
ongoing commitment to supporting individuals with<br />
neuro conditions or spinal cord injuries in WA.<br />
The construction launch event, held on 8 May, <strong>2024</strong> was<br />
a resounding success, marking a pivotal moment in<br />
this important community development. The ceremony<br />
featured a Turning of the Sod, symbolising the start<br />
of the construction phase, and was attended by key<br />
stakeholders and supporters. The event underscored the<br />
collaborative efforts that have brought this project<br />
to fruition.<br />
The new facility, which will be overseen by <strong>MSWA</strong>'s team<br />
of allied health and clinical professionals, will prioritise<br />
the accommodation of Quadriplegic Centre Clients,<br />
including Enzo, Celia, and Angelo who helped celebrate<br />
the construction launch.<br />
<strong>MSWA</strong>'s $12.8m investment, supplemented by $14m<br />
from the Department of Health, brings the total<br />
investment in this long-awaited project to $26.8m.<br />
"We recognise the urgent need for more comprehensive<br />
independent living options for individuals with<br />
disabilities," said Melanie Kiely, CEO of <strong>MSWA</strong>.<br />
"This investment reaffirms our dedication to improving<br />
the lives of those we support in the WA community.”<br />
With 20 state-of-the-art apartments, the Montario<br />
Quarter will offer long-term, high support living options<br />
that promote independence in daily activities.<br />
Steve Corbett, <strong>MSWA</strong> Manager Property Development<br />
and Construction, highlighted the unique features<br />
of the facility.<br />
“This ultra-modern Shenton Park facility will present<br />
a unique style of accommodation choice that would<br />
otherwise not be available in the West Australian market.<br />
“Over many years, <strong>MSWA</strong> has enhanced important<br />
design features in each new development. We pride<br />
ourselves on listening to residents, staff, and visitors,<br />
making changes that work best for everyone’s needs.<br />
Enzo, Quadriplegic Centre resident.<br />
“This continuous cycle of improvement makes <strong>MSWA</strong><br />
accommodation better than the typical standards and<br />
codes buildings must comply with. Passive building<br />
elements and assistive technology will be a welcomed<br />
convenience for Quad Centre residents, as will the<br />
landscaped gardens within and surrounding their<br />
new homes."<br />
<strong>MSWA</strong> will provide 24-hour care, seven days a week<br />
through its dedicated team to ensure top-tier support for<br />
all residents.<br />
We extend our heartfelt thanks to the residents and<br />
carers of the Quadriplegic Centre for their patience<br />
and ongoing contributions to the development process,<br />
as well as to the Department of Health, and the <strong>MSWA</strong><br />
community whose backing has made this impactful<br />
investment possible.<br />
We look forward to the completion of Montario Quarter<br />
and the positive impact it will have on the lives of its<br />
future residents.<br />
Marianne Green<br />
Senior Marketing Officer<br />
Quadriplegic Centre Clients, Minister of Health<br />
Amber-Jade Sanderson, and <strong>MSWA</strong> CEO Melanie Kiely.<br />
6<br />
7
Research<br />
Multiple<br />
Sclerosis<br />
Australia<br />
Potential stroke game-changer<br />
New report calls for<br />
faster MS diagnosis<br />
A potential world-first drug to<br />
protect the brain from injury after<br />
stroke, currently in a national<br />
clinical trial led by Perth-based<br />
Argenica Therapeutics, was<br />
developed by WA scientists<br />
Professor Bruno Meloni and<br />
Clinical Professor Neville Knuckey<br />
and their team at the Perron<br />
Institute and The University of<br />
Western Australia.<br />
Every 19 minutes, an Australian<br />
experiences a stroke for the first<br />
time in their life. When a stroke<br />
strikes, it can attack up to 1.9 million<br />
brain cells per minute. Stroke is one<br />
of Australia’s biggest killers with<br />
about half a million Australians living<br />
with the effects of stroke. Globally,<br />
one in four people over the age of 25<br />
will have a stroke in their lifetime.<br />
<strong>MSWA</strong> is proud to have contributed<br />
early funding from 2018 to 2022 to<br />
Professors Meloni, Knuckey and<br />
their team’s research which enabled<br />
part of the preclinical testing on the<br />
effectiveness of the neuroprotective<br />
peptide ARG-007 as the lead<br />
therapeutic drug to potentially<br />
reduce brain tissue death after an<br />
ischaemic stroke, the most common<br />
type of stroke. This occurs when<br />
blood clots block arteries supplying<br />
blood to the brain.<br />
“The subsequent interruption of<br />
blood supply and lack of oxygen<br />
from a stroke leads to a massive<br />
influx of calcium into brain cells<br />
to cause brain tissue damage,”<br />
Professor Meloni said. “During a<br />
stroke, most of the brain damage<br />
occurs within three to four hours.”<br />
L-R Clinical Professor Neville Knuckey and<br />
Professor Bruno Meloni in the Perron Institute lab.<br />
“ARG-007 has unique properties<br />
that inhibit the influx of calcium.<br />
If administered soon after stroke<br />
onset, it has the potential to protect<br />
the brain from permanent strokerelated<br />
conditions.”<br />
Earlier this year, the clinical trials<br />
for ARG-007 progressed to Phase 2<br />
to dose stroke patients at up to 10<br />
hospital sites across Australia.<br />
The Phase 2 trial is designed to test<br />
the safety and preliminary efficacy<br />
of ARG-007 in acute ischaemic<br />
stroke patients.<br />
This step forward was made<br />
possible after the Phase 1 trial was<br />
completed last year and confirmed<br />
the drug was safe and tolerable in<br />
healthy volunteers who had never<br />
experienced stroke.<br />
The clinical trials for this highly<br />
promising therapy are the<br />
culmination of almost three decades<br />
of research by Professor Meloni<br />
to understand the mechanisms<br />
involved in brain injury after stroke<br />
and identifying potential –<br />
neuroprotective targets to aid the<br />
development of new therapies to<br />
reduce injury.<br />
“Due to its neuroprotective<br />
mechanisms of action, ARG-007<br />
shows promise as a neuroprotective<br />
therapeutic for other acute<br />
disorders such as neonatal<br />
asphyxia and traumatic brain injury,<br />
and chronic neurodegenerative<br />
conditions such as Alzheimer’s<br />
disease and Parkinson’s disease.”<br />
“These trials can take many years<br />
but could be a game changer. We’re<br />
hoping it will reduce brain damage<br />
after a stroke and improve patient<br />
outcomes,” said Professor Meloni.<br />
“It would be incredible if the<br />
Phase 2 and 3 clinical trials were<br />
successful and ARG-007 became<br />
a standard model of care for stroke<br />
patients worldwide.”<br />
Julia Tran<br />
<strong>MSWA</strong> Research Coordinator<br />
New report calls for faster<br />
MS diagnosis<br />
A new report has revealed the prolonged time to<br />
diagnose multiple sclerosis (MS) and highlighted the<br />
urgent need for increased investment in MS research<br />
and enhanced awareness of the disease.<br />
The 'My Diagnosis' report produced by MS Australia and<br />
released on World MS Day has revealed the average<br />
time from onset of symptoms to an MS diagnosis<br />
extends nearly four years.<br />
The report draws on data from the Australian MS<br />
Longitudinal Study (AMSLS), a survey-based research<br />
study established in 2002 that collects patient-reported<br />
outcomes from 2,500 people living with MS.<br />
A review of that data by the Menzies Institute for Medical<br />
Research at the University of Tasmania examines trends<br />
in MS diagnosis over the past 25 years.<br />
Since the introduction of the first disease-modifying<br />
therapies for MS treatment in 1996, the average time<br />
to diagnosis has reduced from five years and almost<br />
four months in 1997-2000, to three years and almost<br />
11 months in 2017-21.<br />
My diagnosis experience<br />
Laura Birchall<br />
"Waiting for a diagnosis had an enormous impact on me<br />
emotionally, my ability to focus and my ability to work,"<br />
"I think if something feels a little bit off, even if it's not<br />
stopping you from doing your day-to-day activities. If<br />
there's been a change, if something doesn't feel right,<br />
talk to people in your life about it, and listen to them<br />
when they tell you to go to the doctor.”<br />
While this reduction in diagnosis times is good news<br />
at a population level, there are still many people who<br />
experience a very long wait time to diagnosis.<br />
To improve MS diagnosis time, the report details three<br />
key areas that need to be addressed:<br />
• Improved funding for research to help identify<br />
methods for earlier detection and intervention of MS.<br />
• Better education and awareness of MS among<br />
healthcare professionals.<br />
• Better community understanding of early<br />
MS symptoms.<br />
Dr Julia Morahan, Head of Research at MS Australia,<br />
said delays in receiving an MS diagnosis is critical lost<br />
time for people living with the condition, which can result<br />
in irreversible damage and profound mental distress.<br />
"We know that the longer it takes to get a diagnosis<br />
of MS, the greater the risk of damage occurring and<br />
disability accumulating, which can ultimately diminish a<br />
person's quality of life," Dr Morahan said.<br />
Read the<br />
full report:<br />
8<br />
9
<strong>MSWA</strong> news<br />
<strong>MSWA</strong> and State Buildings<br />
team up to amplify impact<br />
Community news<br />
Katanning’s generosity<br />
to aid <strong>MSWA</strong><br />
Thank<br />
you!<br />
<strong>MSWA</strong> is proud to announce<br />
the signing of our first official<br />
partnership with State Buildings in<br />
May, a significant milestone for our<br />
respective organisations, driven by<br />
a shared goal to positively impact<br />
the WA community.<br />
The new partnership leverages<br />
our mutual strengths to develop<br />
positive initiatives that will benefit<br />
<strong>MSWA</strong> Clients including, a platform<br />
to share their stories through COMO<br />
Conversations events, corporate<br />
volunteering opportunities and<br />
support for <strong>MSWA</strong>’s lottery, freeing<br />
up additional funds to be directly<br />
invested in research and support<br />
for people living with neurological<br />
conditions.<br />
To celebrate this partnership, Clients<br />
and supporters of <strong>MSWA</strong> can<br />
access an exclusive code to receive<br />
20 per cent off the best available<br />
rate on all rooms and suites at<br />
COMO The Treasury, located in the<br />
State Buildings. Available for stays<br />
from now until 31 May 2025 using<br />
the QR link below! Simply quote the<br />
code ‘<strong>MSWA</strong>’ when prompted.<br />
As part of State Buildings’<br />
commitment to foster an inclusive<br />
community, the hotel offers fully<br />
accessible heritage rooms, to ensure<br />
guests with additional physical<br />
needs can relax and unwind in style.<br />
<strong>MSWA</strong> Head of Philanthropy and<br />
Partnerships Angela Thisainayagan<br />
said the partnership would bring<br />
together expertise, networks and<br />
resources to create initiatives that<br />
foster change.<br />
“We are proud to work in partnership<br />
with the State Buildings team to<br />
actively pursue our shared goals<br />
and to make a positive social impact<br />
for our community,” she said.<br />
“This partnership will enable <strong>MSWA</strong><br />
to direct more resources towards<br />
fulfilling our purpose of supporting<br />
West Australians living with<br />
neurological conditions, as we work<br />
together to build more inclusive,<br />
compassionate and accessible<br />
communities.”<br />
The agreement follows a<br />
collaboration for the <strong>2024</strong> Mega<br />
Home Lottery, in which COMO The<br />
Treasury finished the Marmion Grand<br />
Prize home with the luxury touches of<br />
their renowned hotel rooms.<br />
Located at Perth’s Point Zero –<br />
the marker from which all distances<br />
to Perth are measured – the State<br />
Buildings has been the heartbeat<br />
of the city since 1875 and –<br />
continues to be a meeting place to<br />
bring community together.<br />
Over its 140-year history, the former<br />
government building once housed<br />
the State Treasury, Immigration<br />
Officers, a Police Court and Perth’s<br />
original general Post Office (just<br />
to name a few) but has been reinvigorated<br />
as a vibrant hub of<br />
retail and dining options, including<br />
restaurants Wildflower, POST, Cape<br />
Arid Rooms, Petition and Long Chim.<br />
State Buildings General Manager<br />
Jesse Tibert was proud to partner<br />
with a like-minded organisation<br />
and was eager to see what could<br />
be achieved over the two-year<br />
partnership.<br />
“Both <strong>MSWA</strong> and State Buildings<br />
are aligned in our commitment to<br />
supporting the West Australian<br />
community and by working together<br />
our impact can be amplified,” Mr<br />
Tibert said.<br />
“We look forward to delivering on a<br />
number of exciting initiatives and<br />
connecting with the neurological<br />
community to gain understanding<br />
and insight as we work to shape a<br />
better community for all.”<br />
<strong>MSWA</strong> CEO Melanie Kiely offered her heartfelt thanks<br />
to Katanning Rotary Club’s Treasurer Cameron Taylor<br />
and his wife Fiona Taylor for the club’s choice to name<br />
<strong>MSWA</strong> as the 2023 major beneficiary of their annual<br />
fundraiser for the second time, the first in 2018.<br />
For a regional club with around 25 members, Katanning<br />
Rotary Club has been going above and beyond for<br />
many years to give back to those in need through their<br />
impressive fundraising efforts.<br />
While they conduct smaller fundraisers throughout<br />
the year, their annual major fundraising event is an<br />
international dinner which has become a highlight in<br />
the town’s social calendar, with over 200 people<br />
attending and digging deep to support their chosen<br />
cause for the year.<br />
“Each year we decide on a dedicated main recipient<br />
of our fundraising efforts which is usually determined<br />
by something that’s recently impacted people in our<br />
community,” said Cameron.<br />
“Our annual international dinner major fundraiser gets<br />
the whole community together and we pick a different<br />
country and cuisine to celebrate each year as we have<br />
an extremely multicultural community.”<br />
“In other years we’ve supported organisations like the<br />
Royal Flying Doctor Service, Ronald McDonald House,<br />
and Cancer Council, while also divvying up the monies to<br />
community services like local schools, local aged care<br />
facilities, local youth activities, food banks and more.”<br />
In any given year the club can successfully raise around<br />
$35,000, which is spread across a whole range of<br />
different organisations. Of course, some of that goes<br />
back into the club to enable them to continue and expand<br />
their fundraising efforts.<br />
The decision to choose <strong>MSWA</strong> as the 2023 major<br />
beneficiary was close to Cameron’s heart as his wife<br />
Fiona was diagnosed with multiple sclerosis in 2022.<br />
Katanning Rotary Club Treasurer Cameron Taylor,<br />
his wife Fiona Taylor, <strong>MSWA</strong> CEO Melanie Kiely and<br />
<strong>MSWA</strong> CMO Tony Millar.<br />
“I personally have known a few people with MS over the<br />
years, there were a couple of people in our community<br />
back in 2017 and that’s when we first decided to donate<br />
to <strong>MSWA</strong>,” he said.<br />
“But it recently became very close to home with my<br />
wife’s diagnosis, and it was a unanimous club decision to<br />
choose <strong>MSWA</strong> again for 2023.”<br />
“We know that a portion of the funds we donate goes<br />
into ongoing groundbreaking research and that’s really<br />
important to us; the medication my wife is on is fairly<br />
new and has been determined by her neurologist as<br />
the best treatment for her and we’re sure the funds<br />
available to <strong>MSWA</strong> contributed towards that research,<br />
knowledge, and ability to be able to target medication to<br />
the particulars of Fiona’s case.”<br />
We extend our sincerest gratitude to the Katanning<br />
Rotary Club and the wider Katanning community for<br />
their generosity in choosing to support <strong>MSWA</strong> and<br />
the work we do to empower those living with a<br />
neurological condition.<br />
10 11
Community news<br />
Emma and Amy’s thyme<br />
to make a difference<br />
For Perth business owners, Emma and Amy Southern, it<br />
was an obvious choice to donate the proceeds of their<br />
first cookbook to <strong>MSWA</strong>, having both battled with MS<br />
for years. The pair were both diagnosed with MS over<br />
a decade ago, a fact that often surprises those who<br />
encounter them.<br />
“It’s always a bit of a shock for people when they learn<br />
about Amy and my MS diagnosis,” remarked Emma.<br />
“Interestingly, our MS diagnosis didn’t lead us to meet<br />
each other, it was actually through a friend.”<br />
Their fateful encounter occurred six years ago at a<br />
mutual friend’s farewell party. The conversation took an<br />
unexpected turn when Amy made a light-hearted remark<br />
about having MS, prompting Emma to respond.<br />
“I remember telling Amy that she shouldn’t joke about<br />
having MS because I have it,” Emma recalled. “To my<br />
surprise, Amy revealed that she also had MS. That’s when<br />
the connection clicked.”<br />
As they exchanged details about their respective<br />
neurologists and treatments, a sense of disbelief washed<br />
over Emma.<br />
The similarities were uncanny – Amy’s neurologist<br />
practiced in the same facility where Emma sees her<br />
neurologists, and they visit the same hospital to receive<br />
the same treatment of Tysabri every month.<br />
“It turns out, for years, we missed crossing paths with<br />
each other within a week apart every month. How<br />
strange is that!” Emma remarked.<br />
“Back then, we would have to visit the hospital every<br />
month and it would take up most of our day. Now, all we<br />
do is a simple injection in the comfort of our home.”<br />
This enabled them to lead more active lifestyles and<br />
pursue their passions for travel and food without the<br />
restrictions of regular hospital appointments.<br />
Both avid travellers, Emma and Amy relish in exploring<br />
local cuisines.<br />
“We enjoy trying out various local restaurants and cafes<br />
whenever we travel,” Emma mentioned.<br />
“We’ve been making our own spice blends at home for<br />
cooking, and during COVID, we thought why not make it a<br />
business and share it with others!” Amy added.<br />
The pair established Outer Spice, offering a unique line<br />
of curated spice and seasoning blends. Since launching<br />
in November 2020, the business has received numerous<br />
accolades, including being named Producer of the<br />
Year for the 2023 Swan Business Awards and winning<br />
International Flavor Awards and Scovie Awards in<br />
United States.<br />
Amy is also a certified international barbecue judge with<br />
the Kansas City Barbecue Society, and her tastebuds<br />
and knowledge about flavour and food, proves to be<br />
useful for the business as well!<br />
“It’s wonderful how we’re able to connect with the<br />
community through food. It’s a really good feeling seeing<br />
returning customers. People bought our products. They<br />
liked it and they came back for more!” Emma said.<br />
The successes from their business have also given the<br />
pair the confidence to release their first cookbook - Spice<br />
Odyssey Recipes from Outer Spice – Cookbook Vol.1.<br />
The cookbook contains finger-licking recipes using their<br />
curated blend of spice and seasoning blends, with part of<br />
the proceeds going towards <strong>MSWA</strong>.<br />
“Our stories are unique in that we both have MS<br />
and we’re in a fortunate position to give back to the<br />
community,” Emma commented.<br />
The pair has also contributed to fundraising for <strong>MSWA</strong>, with<br />
Emma having taken part in the <strong>MSWA</strong> Ocean Ride twice.<br />
Emma provided some words of encouragements for<br />
those living with MS.<br />
“When I first got diagnosed, I felt like it was the end of the<br />
world. I went down the rabbit hole on the internet, I stayed<br />
awake at night and panicked about my future. But with<br />
the right resources and people around you, it’s going to<br />
be manageable, and you can live with it!”<br />
Amy added, “Research and advancements in medicine<br />
have come a long way and has made a big difference<br />
for the MS community. You don’t have to feel alone, there<br />
is help.”<br />
<strong>MSWA</strong> would like to thank Emma and Amy for sharing their story with MS,<br />
and for their contribution to improving the lives of West Australians living<br />
with neurological conditions.<br />
Frocking up for a fabulous future<br />
When you fill a garden with a gaggle of gorgeous ladies<br />
(and one finely suited gentleman), you can be certain of<br />
two things; there will be bubbles and there will be fun!<br />
And this well-dressed flock sure knows how to create<br />
a circle of support around the guest of honour, Noelle<br />
Grausser, who was diagnosed with MS in 2006.<br />
Event hostess with the mostest Marlisa, Noelle’s<br />
daughter, spent weeks meticulously planning the charity<br />
event, with the funds to be donated for purpose of MS<br />
research in the hope for a brighter future.<br />
Initially setting her sights on a $3,000 target, Marlisa<br />
smashed it out of the park with a little help from her<br />
friends to raise $4,200!<br />
The stroke of genius was a live auction for a coveted<br />
6-night stay at Marlisa’s boutique retreat hotel in Lombok,<br />
called ‘Naia’, where Noelle often helps to perform<br />
accessibility testing.<br />
“That in itself raised over $1,500! I was so excited,”<br />
Marlissa said.<br />
With cost-of-living pressures mounting, Marlisa said<br />
fundraising was becoming an increasingly hard task,<br />
but believed it was Noelle’s inspirational attitude that<br />
spurred her guests to dig deep.<br />
Having been diagnosed the week of Christmas,<br />
Marlisa recounted the difficulty of grappling with the<br />
life-changing news, while her mum defiantly hid her<br />
symptoms from the family so as not to take away from<br />
the occasion.<br />
Scan the QR code to get your<br />
copy of the Spicy Odyssey<br />
Recipes from Outer Spice.<br />
“They know my mum’s story; they know how strong,<br />
determined and resilient she is,” Marlisa said.<br />
“They see how she continues to live life to her fullest<br />
and not allow MS to control her, and I think that’s why we<br />
get the support from the people around us, they are in<br />
admiration of her strength and her capability.”<br />
The success of the event left Marlisa with an<br />
overwhelming sense of pride.<br />
“The vibe of the day was electric, everyone was there<br />
because they wanted to have a good time and to show<br />
their support for mum,” she beamed.<br />
“It just shows that when there are tough days, people are<br />
always there in your corner backing you.<br />
“And for the staff at <strong>MSWA</strong> to give up their time on the<br />
weekend to come along, including therapists Akiko,<br />
Yasuko, Oli and his wife Rosie, it shows the next level of<br />
support that <strong>MSWA</strong> provides in looking after people with<br />
neurological conditions – and that is a real credit.”<br />
Our heartfelt thanks to Marlisa for her incredible fundraising<br />
effort, your selfless contribution means so much.<br />
Interested in hosting your own community<br />
fundraising event?<br />
Reach out to events@mswa.org.au for advice!<br />
12 13
Community news<br />
Community news<br />
Life-changing<br />
phone calls<br />
Scan to watch the<br />
Grand Prize winner call.<br />
Introducing our<br />
People's Choice winner!<br />
<strong>MSWA</strong> recently made some lifechanging<br />
phone calls to everyday<br />
West Australians, informing them<br />
of their lucky win in the Mega Home<br />
Lottery. This included family man<br />
David, who was pinching himself<br />
when he received the news of<br />
winning the $3.6m Grand Prize.<br />
David, along with his wife Julie and<br />
daughter Jo, were in awe of their<br />
stunning new abode. The $3.1m<br />
Marmion home was just mere<br />
minutes from the beach and had<br />
been newly renovated by awardwinning<br />
renovators, Lux Interiors.<br />
“I received the phone call and<br />
thought somebody was pulling my<br />
leg! It still hasn’t sunk in for me yet<br />
that this is ours!” David exclaimed.<br />
This is the tenth year in a row David<br />
has supported the Mega Home<br />
Lottery and when asked why he has<br />
supported the cause year after<br />
year, David said the biggest reason<br />
why he continued to buy tickets was<br />
<strong>MSWA</strong>'s focus on research and to<br />
ultimately find a cure.<br />
“<strong>MSWA</strong> is also helping people<br />
with neurological conditions in the<br />
community. They’re approaching<br />
it from both ends and that for me,<br />
means a lot, and why I’ve supported<br />
them for the past few years.”<br />
Jo, David’s daughter also shared<br />
their family’s story of moving to<br />
Western Australia and starting life<br />
from scratch.<br />
“About 10 years ago, mum and dad<br />
uprooted their whole life to look after<br />
their son’s children. They have been<br />
grandparents raising grandchildren,<br />
and it hasn’t been easy,” she said.<br />
“This couldn’t have happened to<br />
two more deserving people. This is<br />
going to make a world of difference<br />
to them and their grandchildren, who<br />
will now be looked after for the rest<br />
of their lives.”<br />
Earlier this year, Raelene became<br />
the newest resident of North<br />
Fremantle, having won the Early Bird<br />
Prize of the $1.6m fully refurbished<br />
apartment. It was the twelfth year in<br />
a row that Raelene, and her partner,<br />
Rick, had supported the cause.<br />
“There’s nothing better than the<br />
feeling that you’ve contributed… it’s<br />
such a worthy cause. I’ll continue to<br />
encourage others to buy a ticket,”<br />
Raelene said.<br />
“We’re evidence that ordinary<br />
people can win!”<br />
Early bird winners<br />
Raelene and Rick.<br />
Scan to watch the<br />
winner call.<br />
Grand prize winners David<br />
and family with <strong>MSWA</strong> CEO<br />
Melanie Kiely.<br />
Alongside the Early Bird Prize and the<br />
Grand Prize winners, there were also<br />
15,000 other lucky winners who took<br />
home a range of amazing prizes,<br />
including electronics, holidays, cash<br />
prizes and gift vouchers.<br />
This is the first time we’ve extended<br />
the invitation to staff members<br />
from across our organisation to ring<br />
some of our major prize winners and<br />
inform them of the good news. It<br />
was definitely a special moment for<br />
our team!<br />
Our People and Culture Officer, Madii,<br />
made a call to one of our $10,000<br />
cash prize winners, who was beyond<br />
ecstatic to have won the prize, “oh<br />
my gosh, you’re joking? I had told my<br />
partner we would win something, and<br />
it actually happened!”<br />
Our Marketing Officer, Sam, also<br />
spoke to the winner of our Antarctica<br />
Trip for two, valued at $16,000,<br />
who said "it's my first time winning<br />
something this big. It’s beyond my<br />
wildest dreams and I’m so excited for<br />
my trip!”<br />
The <strong>MSWA</strong> Mega Home Lottery<br />
<strong>2024</strong>A campaign draws to a close<br />
raising over $20m. A huge thank you<br />
to everyone who has contributed<br />
to the cause, to help us invest in<br />
life-changing research and fund vital<br />
services to help Western Australians<br />
living with neurological conditions.<br />
After the success of our inaugural art exhibition at the Mega Home<br />
Lottery Grand Prize home, we relocated the collection our <strong>MSWA</strong><br />
Wilson Service Centre.<br />
By showcasing the artworks here, <strong>MSWA</strong> Clients, staff and<br />
members of the wider community had the chance to visit,<br />
view and enjoy the exhibition.<br />
On 21 May, we celebrated the end of the exhibition with a morning tea f<br />
or Clients and staff, and presented the 'People's Choice Award'.<br />
When viewing the exhibition, the public was encouraged to vote for<br />
their favourite artwork. Over 600 votes were cast and Mother and<br />
Son Take on MS was awarded ‘People’s Choice’! Artist Jodee Pereira<br />
won herself a trophy and a $500 voucher. Congratulations Jodee!<br />
Jodee and her son Josh were both diagnosed with MS at the same time<br />
and the artwork was inspired by their shared journey.<br />
“The concept was something Josh came up with and his idea was for us<br />
to do it together," Jodee said..<br />
“Life not Limits is <strong>MSWA</strong>’s tagline and ... [this] resonates so well with us,<br />
and you can see this in our painting.”<br />
Mother and Son Take on MS<br />
By Jodee Pereira<br />
Colour surrounds us as we challenge the daily<br />
struggles of multiple sclerosis. Mother inspired<br />
by son, son inspired by mother, everyday.<br />
We created this together, with lesions in place,<br />
drawn and painted expressing our life.<br />
A special thanks to our teams<br />
across Marketing, Outreach<br />
and Facilities who brought this<br />
exhibition to life!<br />
Missed out on the <strong>MSWA</strong> Art<br />
Exhibition? Scan the QR code to<br />
view the gallery of artworks.<br />
14 15
Our People<br />
25 years of service celebrated:<br />
Caroline Clarke Smith<br />
A lot can change over three decades, just ask<br />
Caroline who recently retired from <strong>MSWA</strong> after<br />
25 years of service, both as a long-time volunteer<br />
and staff member.<br />
Many Albany locals are familiar with Caroline,<br />
characterised by her big smile and her light-hearted<br />
humour, she first connected with <strong>MSWA</strong> when she moved<br />
to Albany 30 years ago.<br />
Caroline vividly remembers her first visit to Albany,<br />
awestruck by its lush greenery and the beautiful<br />
coastline of the region – a far cry from the red dirt<br />
desert landscape at Kalgoorlie, where she first stayed<br />
upon moving to Western Australia from regional New<br />
South Wales.<br />
“Albany just looked like a dream vacation spot!” Caroline<br />
beamed.<br />
Persuaded by the stunning seascape, Caroline relocated<br />
to Albany with her husband.<br />
It was during this time that Caroline received her MS<br />
diagnosis and got in touch with her local outreach group,<br />
then known as the MS Society. It provided a valuable<br />
opportunity for her to connect with peers who shared<br />
similar neurological conditions.<br />
“I got in touch with the local outreach, because I didn’t<br />
know anyone down here, and it was a good opportunity<br />
for me to meet people who experienced the same things<br />
I do. I’m still in contact with these people today!”<br />
In 2009, when the Albany Outreach Coordinator position<br />
became available, Caroline thought she would fill it<br />
temporarily.<br />
“I was offered the position on a part-time basis until<br />
they could find someone else to take on the role.<br />
One thing led to another, and I was there for 15 years!”<br />
Caroline chuckled.<br />
“I should have told them I’m still waiting for you to find<br />
someone else to fill my role.”<br />
Reflecting on her journey, Caroline remembers her<br />
time fondly as the <strong>MSWA</strong> Outreach Coordinator,<br />
particularly interacting with Clients and seeing their<br />
faces light up when they achieved a new milestone or<br />
learned new skills.<br />
But nothing quite compares to her memories of<br />
organising and participating in the <strong>MSWA</strong> Albany Swim<br />
every year. Besides reaching out to local businesses<br />
for sponsorships and prize donations, she has also<br />
participated in the eight-hour swimming relay every year<br />
since its inception in 2012.<br />
“One year I was in the pool, and I had to pull two kids,<br />
one on a crocodile floatie and the other one using the<br />
kickboard, and I was pulling them both, doing laps up and<br />
down the pool. It was hilarious!”<br />
Due to an MS flare-up, <strong>2024</strong> was the first time Caroline<br />
did not participate in the swim.<br />
“I’m still a bit disappointed that I can’t participate in the<br />
swim anymore, but hey I did my time.”<br />
Caroline witnessed firsthand the growth of <strong>MSWA</strong> from<br />
an outreach group to an organisation offering services to<br />
people living with neurological conditions and the direct<br />
impact it has made on Albany's community of people<br />
living with neurological conditions.<br />
“Back then, I received a visit twice a year from the<br />
nursing and physio team,” she remembers.<br />
"As more people moved to Albany, demand for <strong>MSWA</strong>'s<br />
services grew, with people putting their hands up, saying,<br />
'We really want this.'"<br />
“Over time, the organisation became more streamlined<br />
and employed staff members, which upgraded the<br />
services from phone conversations to now being able to<br />
get services from the new Albany Service Centre.”<br />
“It’s great, because people can tangibly see where all the<br />
funds raised have gone towards.”<br />
Caroline highlights the importance of having services in<br />
regional WA, and the difference it makes to members of<br />
the tight knit community.<br />
“It’s a long trip for us folks in Albany to go up to Perth and<br />
see a neurologist or to access any allied health service.”<br />
“It makes a world of a difference to meet someone<br />
locally, who is in the know and can actually help you.”<br />
Now in retirement, Caroline is focused on recovery after<br />
undergoing spinal fusion surgery. She is also excited for<br />
some much-needed rest and for the chance to take a<br />
step back and unwind, including catching up with friends<br />
for a cuppa.<br />
Caroline has been a much-loved and key member of<br />
our team in Albany for decades, and her friendly smile<br />
will be missed now that she is hanging up her flippers<br />
and retiring. <strong>MSWA</strong> would like to express our sincerest<br />
appreciation to Caroline for her 25 years of dedicated<br />
service and wish her a swift recovery!<br />
Caroline at the new Albany Service Centre.<br />
Caroline participating in the <strong>MSWA</strong> Albany Swim.<br />
16 17
Client Special Contributions<br />
feature<br />
World MS Day<br />
‘My MS Diagnosis’<br />
World MS Day is celebrated on 30 May every year, and we’re proud to have<br />
organised a number of initiatives to acknowledge and celebrate this day of<br />
significance with our Clients, staff and the wider WA community.<br />
This year’s theme, ‘My MS Diagnosis,’ provides a great opportunity to start a conversation<br />
and raise awareness about MS. We can all bring attention to the barriers and challenges<br />
faced by people living with this condition, while highlighting the importance of continued advocacy,<br />
research and education to ensure a brighter future for the MS community.<br />
Art Without Limits<br />
In celebration of our incredibly talented <strong>MSWA</strong> Client<br />
artist community, we unveiled the Art Without Limits<br />
exhibition in the heart of Perth city at the iconic Central<br />
Park Tower.<br />
The exhibition featured a variety of stunning pieces, from<br />
sensory art and intricate handiwork to fine art drawings.<br />
It was truly a testament to the diversity of talent within<br />
our community of artists at <strong>MSWA</strong>. The exhibition ran for<br />
five days, and the public was welcomed to marvel at the<br />
pieces and start a conversation in acknowledgement of<br />
World MS Day.<br />
Our Client artists were also invited to a morning tea to<br />
celebrate the exhibition. They were beaming with joy and<br />
pride as they wandered through the space, admired the<br />
pieces and snapped some photos with their works.<br />
“I could not have imagined my artwork would be<br />
displayed here in the city! My artwork is inspired by an<br />
old house in York I used to live in many years ago.”<br />
Sheila Hayfield<br />
Client artist<br />
“I like to create junk journals using recycled paper to create<br />
scrapbooks. This is the first time I’ve created a hanging piece,<br />
but I still wanted to make it interactive, so you can pull out letters<br />
and cards from the artwork. It’s also the first time I’ve included<br />
photos of my family in my art – there are photos of great<br />
grandmother, grandad and dad on there too!”<br />
Susan Finlay<br />
Client artist<br />
18 19
Client Special Contributions<br />
feature<br />
World MS Day<br />
‘My MS Diagnosis’<br />
Quiz Night for MS<br />
In an <strong>MSWA</strong> first, we hosted a Quiz Night at the Perth<br />
Town Hall in celebration of World MS Day. Families,<br />
carers, and <strong>MSWA</strong> team members came together for a<br />
night of friendly competition, with a quiz night hosted by<br />
Bamboozled Quizmasters.<br />
Our participants were exceptionally skilled at the quizzes,<br />
so much so that we had a three-way tie for first place!<br />
Ironically, team ‘The Participation Award’ emerged<br />
victorious, winning first place, beating team ‘Lord Ne-Yo’<br />
and team ‘Brand-Aids’.<br />
Wendy Lowe, Dion Russell and Angelica Franz were the<br />
lucky winners of our raffle, with thanks to our sponsors<br />
State Buildings, Retravision and Optus Stadium for<br />
donating some incredible prizes. Over $800 was raised<br />
to help set-up the new Butler Outreach pilot program.<br />
Perth lights up red<br />
Iconic landmarks and bridges across Perth were<br />
lit up red in recognition of World MS Day!<br />
This included:<br />
• Fraser Avenue Tree Lights - Kings Park<br />
• Council House<br />
• Trafalgar Bridge<br />
• Matagarup Bridge<br />
• Mount Street Bridge<br />
• Northbridge Tunnel, Sky Ribbon<br />
• Joondalup Drive Bridge<br />
The WA community was encouraged to<br />
take photos and spread awareness of the day<br />
with the hashtag #WorldMSDay.<br />
Hunting for red hearts<br />
<strong>MSWA</strong> team members also celebrated World MS Day with a fun Heart Challenge!<br />
Chocolate hearts were hidden across our offices and service centres, with<br />
staff encouraged to be on the look-out and share their exciting findings. Senior<br />
Physiotherapy Assistant, Zoe Harrisson, found a chocolate heart near the coffee<br />
corner at the Beechboro hub – her usual first stop when she arrives for work!<br />
Thank you to<br />
everyone who<br />
contributed this<br />
World MS Day by<br />
sharing their stories,<br />
raising awareness<br />
and campaigning<br />
for change for West<br />
Australians living<br />
with MS.<br />
Senior Physiotherapy<br />
Assistant Zoe Harrisson.<br />
Document Control &<br />
Policy Compliance Officer<br />
Beata Potrawiak.<br />
Scan the QR<br />
code to view the<br />
photo gallery.<br />
20<br />
21
Client Our People Contributions<br />
Our People<br />
National Volunteer Week<br />
Growing together<br />
Shining the spotlight<br />
on event volunteers<br />
National Volunteer Week is an important opportunity to<br />
reflect on the significant impact our <strong>MSWA</strong> volunteers<br />
have on our community. This year’s national theme,<br />
‘Something for Everyone’, highlights the potential of each<br />
of us to volunteer, whether in big or small ways, as a onetime<br />
effort or constant commitment. There is something<br />
each of us can do to make a difference.<br />
At <strong>MSWA</strong>, we’re fortunate to have many amazing people volunteering their time for our events. Event volunteers<br />
often arrive early and stay long after participants have gone home, yet they remain enthusiastic and dedicated to<br />
help out until the end. They are the true unsung heroes behind our events at <strong>MSWA</strong>.<br />
On behalf of the <strong>MSWA</strong> Events team, we wanted to express our gratitude and shine a spotlight on Graham Little and<br />
Chris Genev, who have devoted countless hours to volunteering with <strong>MSWA</strong> over the years. We nominated these two<br />
extraordinary individuals for the WA Volunteer of the Year Awards.<br />
On 21 May, <strong>MSWA</strong> volunteers were invited to join us<br />
for the Volunteer Appreciation Lunch at the RAAFA Club<br />
in Bull Creek. Thirty-five volunteers attended,<br />
and each volunteer was presented with a volunteer<br />
appreciation certificate along with a ‘grow jar’<br />
and the <strong>2024</strong> Volunteering Australia lapel pin.<br />
Each grow jar contained different fruit or<br />
vegetable seeds, from basil to strawberry, coriander<br />
and sunflower. These jars each had a message<br />
attached, ‘thank you for growing with us’, representing<br />
the integral role volunteers play in helping <strong>MSWA</strong><br />
grow and our ability to provide services to the<br />
neurological community of WA.<br />
During the luncheon, we also celebrated the incredible<br />
milestones achieved by our volunteers, including:<br />
• Sister Marie Moriarty, volunteering for nearly 30 years<br />
• Lesley Pitt, volunteering for 18 years<br />
• Claire Kennelly, volunteering for 15 years<br />
Whether it’s just for one day or decades<br />
of service, <strong>MSWA</strong> extends our gratitude<br />
and thanks to every single volunteers.<br />
We couldn’t do what we do without you!<br />
Jeni Donald<br />
People & Culture Advisor<br />
Graham Little<br />
Graham Little is just a regular fella, who loves to<br />
spend time looking after his grandchildren and<br />
travelling with his wife, yet he always finds time to<br />
give back to the community. We have been fortunate<br />
to have him at <strong>MSWA</strong> events since 2014. You may<br />
have spotted him volunteering at the <strong>MSWA</strong> Step<br />
Up, Ocean Ride, Areana Ascent and the Central Park<br />
Plunge. He can also be seen out and about at the<br />
Perth CBD on 30 May every year, shaking collection<br />
tins for donations on World MS Day.<br />
Graham is always eager to help when possible,<br />
fitting our events into his busy volunteering<br />
schedule. He also volunteers his time with the<br />
Telethon Community Cinemas, WA Cancer Council,<br />
or attending other large sporting events around<br />
Perth and regional areas.<br />
Chris Genev<br />
Chris Genev, another long-time <strong>MSWA</strong> volunteer,<br />
has been volunteering with us since 2016, after a<br />
friend suggested her to get involved. She’s become<br />
a regular face at all our event including the <strong>MSWA</strong><br />
Ocean Ride, Areana Ascent, Step Up, Charity Dinner<br />
Auctions, and the Central Park Plunge. She manages<br />
all this while working full-time and volunteering at<br />
numerous community events around Perth. Like<br />
Graham, she plays a big role at of the Telethon<br />
Community Cinemas, serving as the Night Manager.<br />
In our eyes, these two are worth their weight in<br />
gold and are our Event Volunteers of the Year!<br />
Trish Watson<br />
Events and Giving Officer<br />
22 23
Client Contributions<br />
Client poetry<br />
What you don’t see<br />
From the outside I look fine, I look as normal as can be,<br />
but deep down inside, I’m scared of just what might be.<br />
I look strong and normal with maybe a slight shake,<br />
but while you are sleeping, I am still wide awake.<br />
I carry on with my day as if nothing has changed,<br />
but I am dealing with words that have been totally rearranged.<br />
I walk every day and you think nothing is wrong,<br />
but my stride has slowed down, and my will nearly gone.<br />
I push myself physically, you see me at the gym,<br />
but I hide the pain in my body when the rigidity sets in.<br />
You say I look good, still look the same,<br />
but when I look in the mirror, all I see is shame.<br />
I try to stay social, be a part of many things,<br />
but my thoughts have now changed as the anxiety creeps in.<br />
I keep smiling and think, ‘hey, things could be worse’,<br />
but the sadness inside me makes me feel like I’ve been cursed.<br />
So if you don’t hear from me, please don’t feel ignored,<br />
I am just trying to survive the tiredness and this life – my new norm!<br />
I intend to stay positive, beat this damn thing,<br />
and with your help and support, I can achieve anything.<br />
Rebecca Baskerville<br />
Accepting<br />
Smallest tasks provoke exhaustion,<br />
Prompting aggravated frustration,<br />
Taking time out to recover essential,<br />
Reflecting on restricted potential,<br />
Mobility everyday challenging,<br />
Constraints like vultures gathering,<br />
Others’ attempts to intercede,<br />
Only amplify the growing need,<br />
Reacting with stubborn insistence,<br />
Unrealistic fanciful resistance,<br />
Overreacting willfully shocking,<br />
Reality at the door a-knocking.<br />
Several options to embrace,<br />
Roll over without a trace,<br />
Retreat within and isolate,<br />
Resist and slowly percolate,<br />
Become a white flag waver,<br />
and from your life surrender.<br />
Rather than surrendering,<br />
or the past lamenting,<br />
or proficiency pretending,<br />
Why not simply try ACCEPTING?<br />
Accept what is,<br />
Let go of what was,<br />
Have faith in what will be.<br />
Peter Jones<br />
February <strong>2024</strong><br />
Wake up humanity!<br />
My name is Nina, and this is my view from<br />
where I sit every day.<br />
I am aged 49 and I was diagnosed with MS at the age of<br />
14. I have MS, but that is not my whole identity.<br />
I am an amazing being, I exist on this amazing planet<br />
earth, and I am so, so passionate about our earth. I would<br />
like to wake humanity up to realise the gift it has been<br />
given for free! I wanted to write a message to my fellow<br />
human beings. We are the most capable species of this<br />
planet, and we need to come together to protect and<br />
save the one thing that is so precious, this earth.<br />
The earth, the complexity of this planet just overwhelms<br />
me. All of nature is so perfectly interconnected, we are<br />
all such amazing beings, we are all put together so<br />
intricately just like trees, just like all the other animals.<br />
When I look at the trees and the importance of the root<br />
system, that is what holds the earth together, that is<br />
what knits the earth together. Without the root system, it<br />
wouldn’t be able to be so strong. The importance of trees<br />
cannot be understated. I feel like the trees are my family,<br />
they are my brothers and sisters. The earth and I are one.<br />
From where I sit and observe, humanity’s path has been<br />
taken off compass, compared to the trajectory we were<br />
on. Humanity has been infected with a seed of greed<br />
and we are destroying our planet and ourselves. The<br />
floods and fires are getting greater and stronger, and<br />
every living creature is suffering. We are destroying our<br />
environment and the habitats of animals everywhere. My<br />
chest tears apart with pain to see this suffering.<br />
All our human focus must be put on saving this ‘ball’. We<br />
forget how important everything is to every life form who<br />
relies on this ball for its own existence. We must care for<br />
all these life forms, for without them there is no earth and<br />
without the earth we are doomed.<br />
There are so many of us humans and if we all decided to<br />
work together on this most important thing, if we put all<br />
our focus into this, we would save the earth.<br />
Most of us humans are able bodied and can save this<br />
planet, why aren’t we all out there saving the earth! It is so<br />
important to get back to nature, out of the office and your<br />
apartments and reconnect to our earth.<br />
Unfortunately, it seems like humans only learn through<br />
hardship and suffering. Please, let’s get onto it before it’s<br />
catastrophic. I find it soul destroying to be a part of this<br />
human race that is destroying this beautiful home<br />
of mine.<br />
How dare we take advantage of this sensational gift.<br />
Our earth needs us to find the way before it’s too late.<br />
I really hope that you can hear my message and continue<br />
to spread my message for me.<br />
Thank you,<br />
Nina<br />
<strong>MSWA</strong> Client<br />
24 25
Counselling<br />
Embracing<br />
<strong>Makuru</strong><br />
Wellbeing<br />
Cultivating mindfulness:<br />
new Wellbeing service<br />
New Service<br />
Alert!<br />
June and July are the coldest and<br />
wettest months of the year. Often<br />
associated to the winter season,<br />
it is also the Noongar season of<br />
<strong>Makuru</strong>, characterised by shorter<br />
days and gloomy skies. Despite the<br />
change in weather, winter brings<br />
a unique set of psychological<br />
benefits that can positively impact<br />
our mental wellbeing, providing a<br />
sense of comfort and joy during the<br />
colder months.<br />
<strong>Makuru</strong> provides us the opportunity<br />
for introspection and reflection.<br />
The quieter, more contemplative<br />
atmosphere can encourage us<br />
to slow down, take stock of our<br />
lives, and reflect on our goals<br />
and priorities. This period of<br />
introspection can be valuable for<br />
personal growth and self-discovery,<br />
as we have the time and space to<br />
delve deeper into our thoughts<br />
and emotions.<br />
During the winter season we<br />
naturally seek for cosiness and<br />
comfort, which can be incredibly<br />
soothing for the mind and body.<br />
Curling up by the fireplace with a<br />
warm blanket, enjoying a hot cup of<br />
tea, or taking a leisure stroll in nature<br />
can evoke feelings of relaxation<br />
and contentment. These simple<br />
pleasures can help reduce<br />
stress and anxiety, providing a<br />
much-needed respite from the<br />
hustle and bustle of everyday life.<br />
Getting outdoors during the colder<br />
months can boost our mood and<br />
enhance our sense of wellbeing.<br />
Gentle physical exercise helps<br />
our body to release endorphins,<br />
reducing stress and anxiety, and<br />
elevating our mood.<br />
The winter season fosters a sense<br />
of community and togetherness,<br />
as seen in gatherings around the<br />
dinner table with family or friends.<br />
These shared experiences can<br />
deepen our sense of belonging and<br />
strengthen our support networks.<br />
The beautiful winter landscapes<br />
can also have a profound impact<br />
on our mental health. The sight of<br />
rain, thunderstorms, dew on grass,<br />
and amazing cloudscapes can<br />
evoke feelings of awe and wonder,<br />
fostering a sense of appreciation<br />
for the natural world. Studies have<br />
shown that exposure to nature can<br />
reduce stress, improve mood, and<br />
increase feelings of happiness<br />
and wellbeing.<br />
The season of <strong>Makuru</strong> also teaches<br />
us a valuable lesson in resilience<br />
and adaptability. Dealing with the<br />
challenges of cold weather, slippery<br />
roads, and seasonal illnesses can<br />
help build our coping skills and<br />
fortitude. By facing and overcoming<br />
these obstacles, we develop a sense<br />
of strength and perseverance that<br />
can serve us well in other areas of<br />
our lives.<br />
While winter may have its<br />
challenges, it also offers a wealth<br />
of psychological benefits that can<br />
enhance our overall wellbeing.<br />
From fostering introspection and<br />
reflection to providing comfort and<br />
joy, winter has the power to nourish<br />
our minds and souls.<br />
By embracing the unique gifts of<br />
<strong>Makuru</strong>, we can cultivate a sense of<br />
gratitude, resilience, and happiness<br />
that will carry us through the colder<br />
months and beyond.<br />
Jean Hudson<br />
<strong>MSWA</strong> Senior Counsellor<br />
Credit: Shawn Pang<br />
Feeling stressed, busy,<br />
overwhelmed or experiencing all<br />
of these emotions at once? In the<br />
hustle and bustle of life, it can be<br />
difficult to prioritise and put your<br />
wellbeing first.<br />
If you’re feeling these emotions, you<br />
may be interested in <strong>MSWA</strong>’s newly<br />
introduced Wellbeing service.<br />
The service is centred around<br />
resiliency and health promotion,<br />
utilising evidence-based tools and<br />
resources to help Clients overcome<br />
obstacles, foster resiliency and<br />
feel empowered.<br />
Through this service, individuals<br />
can cultivate mental and physical<br />
resilience through deliberate<br />
practices like mindfulness,<br />
which can help reduce stress and<br />
anxiety levels, while enhancing<br />
overall wellbeing.<br />
We are introducing a range of<br />
modules to teach easy-to-follow<br />
mindfulness practices that can be<br />
implemented into your daily routine<br />
and significantly improve your<br />
overall wellbeing. These techniques<br />
can be practiced independently<br />
or in combination with one<br />
another to build up your wellness<br />
toolbox, and help you manage<br />
everyday challenges.<br />
Module 1: Grounding<br />
This practice involves using breath<br />
and senses to conduct a gentle<br />
guided body scan, bringing our<br />
focus back to the present moment<br />
and encouraging us to ‘drop the<br />
struggle’. By repeatedly practicing<br />
this technique, it can help us feel<br />
renewed and recharged.<br />
Module 2:<br />
Quieting the overactive mind<br />
Similar to strengthening physical<br />
muscles, this practice strengthens<br />
‘mental muscles’ by being mindful<br />
of our thoughts and learning to take<br />
control of them, directing them to<br />
be more helpful to us. Part of this<br />
practice is learning how to ‘unhook’<br />
from ‘sticky thoughts’ to gain more<br />
clarity and focus in your mind.<br />
Module 3: Befriending our emotions<br />
Often, our default way of dealing<br />
with challenging feelings is to push<br />
them down and distract ourselves.<br />
This can cause more stress in our<br />
system which is not beneficial for<br />
our physical health.<br />
Learning to be mindful of our<br />
emotions begins with recognising<br />
our feelings and understanding the<br />
wise messages they can bring.<br />
This practice is great to help<br />
process and manage<br />
difficult emotions and<br />
can help increase our<br />
emotional resilience.<br />
Module 4: Self Compassion<br />
When our reality does not match our<br />
expectations or where we would like<br />
to be, it can be difficult to accept.<br />
Often, we are our biggest self-critics.<br />
Part of the Self Compassion<br />
practice is the concept of ‘radical<br />
acceptance’. That is accepting<br />
what is not under your control and<br />
embracing what is happening now in<br />
a non-judgmental way.<br />
If you are interested in participating<br />
in the above, or other wellbeing<br />
modules on offer to help fill your<br />
wellbeing toolbox, please contact<br />
<strong>MSWA</strong> Wellbeing Manager<br />
michaela.mundy@mswa.org.au<br />
or enquire with your Client<br />
Liaison Coordinator.<br />
Janice Petrovic<br />
<strong>MSWA</strong> Counsellor<br />
26 27
Employment Support<br />
Occupational Therapy<br />
New Service<br />
Alert!<br />
Creating employment<br />
connections<br />
Rehabilitation of the mind<br />
Calling all valued <strong>MSWA</strong> Clients who are employers,<br />
who may own, or are connected to, a WA business.<br />
Have you ever considered registering as a supportive<br />
employer to help other Clients seeking employment?<br />
This is your sign!<br />
So how can we make the change that<br />
needs to happen?<br />
Answer: Clients supporting each other.<br />
Do you find yourself forgetting names of people,<br />
losing track of yourself in conversation or having<br />
trouble paying attention? You’re not alone; in fact,<br />
1 in 25 people living with a neurological condition<br />
experience memory impairment.<br />
The Chamber of Commerce and Industry of Western<br />
Australia (CCIWA) recently released their report Tapping<br />
the Talent Pool of People with Disabilities 1 which makes<br />
a strong case for why more WA businesses should be<br />
building more diverse and inclusive workplaces.<br />
Specifically, the report summarised hiring a person with<br />
a disability is not just about being socially responsible,<br />
but it is an important strategic direction for businesses<br />
to build innovation, resilience, and give businesses a<br />
competitive advantage.<br />
Despite these benefits, CCIWA’s survey of WA<br />
businesses found only 60 per cent employ people with<br />
disability, and a similar percentage of respondents cited<br />
making little progress in attracting and retaining people<br />
with disabilities.<br />
For many businesses, challenges cited include a lack<br />
of applicants or an inability to coordinate workplace<br />
adjustments. It found employers often lack confidence<br />
in hiring people from this valuable group because of the<br />
perceived costs associated to coordinate adjustments<br />
and concerns about productivity.<br />
Discussions with both employee and employer groups<br />
found the barriers to employment were actually linked to<br />
discrimination, poor understanding of rights, limited job<br />
availability and marketing, insufficient support, limited<br />
access to skills training and education, inadequate<br />
workplace flexibility, disincentive for employment and<br />
lack of knowledge and confidence.<br />
Peta Flynn<br />
Employment Support Consultant<br />
1<br />
CCIWA Report <strong>2024</strong> (Tapping the talent pool of people with<br />
disabilities) A copy of the report can be emailed on request.<br />
https://cciwa.com/policy-submission/tapping-the-talentpool-of-people-with-disabilities/.<br />
Our <strong>MSWA</strong> Employment Support Service (ESS)<br />
can help break down barriers to employing a person<br />
with a disability.<br />
Our team is made up of employment support consultants<br />
who specialise in finding and maintaining employment<br />
for people living with a neurological condition, as well<br />
as supporting people who already have work to be<br />
successful in the workplace.<br />
Led by Leigh McCaffrey, the ESS team is made up of<br />
allied health therapists who apply clinical knowledge to<br />
help jobseekers find work that fits them best, for long<br />
term success.<br />
This involves advocacy with employers, regular contact<br />
to proactively address challenges, coordinating<br />
equipment through Job Access to assist in the<br />
workplace, providing recommendations for clinical<br />
interventions and listening to celebrate success or<br />
provide support when needed. Best of all, this support is<br />
free for both employers and employees.<br />
If you, or someone you know, has a business and wants<br />
to build a diverse and innovative workforce, we ask you to<br />
consider contacting the ESS team at <strong>MSWA</strong>.<br />
By taking this step, you can do your part to break down<br />
barriers around neurological conditions, nurture an<br />
inclusive organisation culture, support your recruitment<br />
team, reduce stigma and help build a positive and highly<br />
engaged workforce.<br />
Register to be involved in employing a person<br />
with a neurological condition via<br />
employment.services@mswa.org.au.<br />
Cognition is an umbrella term, used to describe how we<br />
use our brain to think. The word comes from the Latin<br />
meaning ‘to know’. Cognition refers to the complex, highlevel<br />
functions of our brain, which includes processing<br />
information, attention, memory, planning, problem<br />
solving, visual perception and verbal fluency. Right now,<br />
you’re using your cognition to read this article!<br />
It is reported that cognitive impairment affects 65 per<br />
cent of people with multiple sclerosis, 25 per cent of<br />
people with Parkinson’s disease and 60 per cent of<br />
people who have experienced a stroke. Some common<br />
deficits observed in those living with neurological<br />
conditions include a slower ability to process<br />
information, difficulties with memory, attention<br />
and learning.<br />
Cognitive Services<br />
Just as our physical bodies benefit from rehabilitation,<br />
so can our minds.<br />
The <strong>MSWA</strong> Occupational Therapy team provides a<br />
cognition service to assist Clients to improve their ability<br />
to conduct everyday tasks. Part of this service involves<br />
a comprehensive assessment and goal setting to help<br />
guide intervention measures, with the objective of<br />
seeing some meaningful changes in your daily life. This<br />
is often achieved through one-on-one sessions with your<br />
occupational therapist.<br />
MEMORehab<br />
The newly introduced program by <strong>MSWA</strong>, MEMORehab, is<br />
a six-week cognition program focused on improving our<br />
attention and memory to carry out everyday tasks. The<br />
program involves a weekly one-hour online session with<br />
our Occupational Therapy team.<br />
The evidence-based program has been proven to<br />
improve everyday memory in people with neurological<br />
disorders, even years after onset. As a result of the<br />
program, Clients reported to have used more cognitive<br />
strategies to support their memory, meet their memory<br />
related goals, and demonstrate improved learning ability.<br />
Clients have described the program as enjoyable,<br />
relevant and helpful in understanding their condition.<br />
Notably, Clients have commended the practicality<br />
of the program for providing strategies that can be<br />
implemented in their daily life.<br />
Additionally, Clients felt less anxious and more confident,<br />
with an increased reliance on their memory enabling<br />
them to maintain their independence. Some Clients have<br />
even achieved significant goals, such as staying at work.<br />
If you are interested in our cognition service or<br />
in the MEMORehab program, please contact our<br />
Occupational Therapy team via ot.groups@mswa.org.au<br />
Sarah Coutinho and Tamara McWhirter<br />
<strong>MSWA</strong> Occupational Therapists<br />
28 29
Nursing<br />
Continence matters:<br />
Part two<br />
Continuing from part one of our Continence Series, let’s delve into the topic of an overactive<br />
bladder discussing its symptoms, symptoms management and treatment options.<br />
What is an overactive bladder?<br />
Our bladder, also known as the detrusor muscle, is a<br />
hollow muscular organ that acts as a reservoir for your<br />
urine. When full, the muscle will contract to release urine.<br />
An overactive bladder refers to when your bladder<br />
contracts before it is full, sometimes contracting when<br />
you are not ready.<br />
What are the symptoms of an<br />
overactive bladder?<br />
Urinary urgency is the main symptom of an overactive<br />
bladder, it is an immediate feeling to use the toilet. It can<br />
be sudden, strong and hard to hold in.<br />
You may go to the toilet often and find it hard to hold it in<br />
before you get to the toilet. At times, you may leak urine<br />
on the way to the toilet.<br />
Factors that can affect urinary urgency includes:<br />
• Irritated bladder<br />
• Consumption of caffeine or alcohol<br />
• Not drinking enough fluid, leading to having strong,<br />
dark urine<br />
• Bladder infections and constipations<br />
• Having a neurological condition<br />
How is urinary urgency measured?<br />
Urinary urgency can be graded on a scale from 0-4.<br />
0 No urgency<br />
1 Mild urgency<br />
2<br />
3<br />
4<br />
Moderate<br />
urgency<br />
Severe<br />
urgency<br />
Urge<br />
incontinence<br />
I felt no need to empty.<br />
I emptied for other reasons.<br />
I could put it off as long as needed.<br />
I had no fear of wetting myself.<br />
I could put it off for a short time.<br />
I had no fear of wetting myself.<br />
I could not put it off.<br />
I had to rush to the toilet.<br />
I feared I would wet myself.<br />
I leaked before I could get<br />
to the toilet.<br />
How to manage an overactive bladder<br />
Drinking well<br />
Drinking plenty of fluids can help alleviate an overactive<br />
bladder. Fluids can include milk, juice and soup, however<br />
water is the best!<br />
Try to cut down on caffeine and alcohol consumption<br />
as this may upset your bladder. Look out for consuming<br />
coffee, tea, chocolate flavoured beverages and fizzy<br />
drinks such as sparkling water, cola and energy sports<br />
drinks, as these all contain caffeine.<br />
Eating well<br />
Eat plenty of vegetables, fruit, legumes (beans), grains,<br />
nuts and seeds every day. This will increase your fibre<br />
intake and help you go to the toilet regularly.<br />
It is also important to drink plenty of water when<br />
increasing fibre in your diet to prevent constipation,<br />
which can cause urinary infections and urgency.<br />
It’s a delicate balance and you can reach out to the<br />
<strong>MSWA</strong> Dietetics team to assist you in making choices<br />
regarding your diet.<br />
Live a healthy lifestyle<br />
Keep active! Exercising regularly will help to regulate your<br />
bowels. It is recommended to do at least 30 minutes of<br />
exercise, or what is recommended by your doctor or <strong>MSWA</strong><br />
Continence Physiotherapist. Simple physical activity such<br />
as brisk walking can help keep your bowel regular.<br />
Quitting smoking can lead to reduction in overactive<br />
bladder symptoms. Eliminating alcohol intake can greatly<br />
reduce the symptoms from urge incontinence.<br />
Look after your pelvic floor muscles<br />
The pelvic floor muscles give you the ability to control the<br />
release of urine, faeces and to delay emptying until it is<br />
convenient.<br />
Like any muscle of the body, pelvic floor muscles can<br />
be trained with regular, targeted exercise. Try to avoid<br />
putting extra strain on the pelvic floor muscles when<br />
using the toilet.<br />
Consult a pelvic health physiotherapist or nurse<br />
continence specialist on how you can exercise your<br />
pelvic floor muscles the right way.<br />
Practice good toilet habits<br />
Practising good toilet habits helps improve bladder and<br />
bowel health. It is normal to use the restroom four to six<br />
times a day, and you shouldn’t have to wake up multiple<br />
times in the night to empty your bladder.<br />
Good toilet habits include:<br />
• Try to go to the toilet only when your bladder is full.<br />
• Do not go to the toilet ‘just in case’ – only go when you<br />
need to.<br />
• Take your time and relax when you are on the toilet.<br />
If you rush this process, you may not empty<br />
your bladder fully and over time you could get a<br />
bladder infection.<br />
• When emptying your bowels, do not strain your<br />
bowels. This puts extra pressure onto your pelvic floor<br />
muscles and may weaken the muscles.<br />
• Use the correct sitting position on the toilet – sit on<br />
the toilet, place your elbows on your knees and lean<br />
forward. Do not hover over the toilet seat.<br />
Seek help<br />
If you experience any urinary incontinence, whether it<br />
is an overactive bladder or any of the symptoms listed<br />
above, it is important to seek help.<br />
Reach out to a continence nurse specialist, pelvic health<br />
physiotherapists, or your local GP.<br />
Where to find more information:<br />
Treatment for overactive bladder<br />
Behavioural therapy is often the first method employed<br />
to help manage an overactive bladder. It is highly<br />
effective with minimal side effects.<br />
This includes:<br />
• Bladder training<br />
• Healthy weight<br />
• Intermittent catheterisation<br />
• Pelvic floor muscles exercises<br />
Medications can relax the bladder and relieve symptoms<br />
of an overactive bladder, reducing episodes of urge<br />
incontinence. Consult your doctor to prescribe the<br />
right medication for you, it is available in various forms<br />
including via a pill, skin patch or a gel.<br />
Consider botox injections if necessary. Your doctor can<br />
inject this neurotoxin into your bladder to temporarily<br />
stop it from contracting too much, relaxing the muscle<br />
and increasing the amount of urine the bladder can hold.<br />
Nerve stimulation involves sending mild electrical<br />
pulses to specific nerves to improve overactive bladder<br />
symptoms. Similar to how a pacemaker functions<br />
for your heart! The two methods that can help with<br />
overactive bladders are sacral nerve stimulation and the<br />
percutaneous tibial nerve stimulation.<br />
For the next part of our Continence Series, we will<br />
focus on the underactive bladder.<br />
Neetu Kainth & Dee Lucey<br />
Continence Nurse Specialists<br />
Continence Foundation of Australia provides free, confidential information and advice regarding<br />
incontinence issues and can also direct you to local services.<br />
1800 33 00 66 (Monday-Friday, 8am-8pm AEST).<br />
www.continence.org.au<br />
30 31
Physiotherapy<br />
Dietetics<br />
Shape up<br />
for Step Up<br />
<strong>Winter</strong> warmer recipe:<br />
Minestrone Soup<br />
In the lead up to the <strong>2024</strong> <strong>MSWA</strong> Step Up, <strong>MSWA</strong> Accredited Exercise<br />
Physiologists (AEP) have prepared an easy-to-follow video guide with<br />
exercises and stretches to help you prepare for event day!<br />
<strong>MSWA</strong> AEPs specialise in exercise and movement of the body for the<br />
prevention and management of chronic diseases and injuries.<br />
The handy guide includes warmups, cool downs and resistance training<br />
exercises that will help you prepare for Step Up. This can also be<br />
integrated into your daily exercise routines!<br />
Training for Step Up<br />
Ascending the 48 flights of stairs at Central Park Tower is no easy task, so<br />
it’s vital to get moving and train your body for the big day.<br />
Resistance training is important because it has many health benefits,<br />
such as improving muscle strength to protect your joints from injury. In the<br />
lead up to Step Up, we advise at least three days of resistance exercise.<br />
Some simple resistance exercises we recommend:<br />
• Step back lunges<br />
• Glute bridge<br />
• Step back to high knee drive<br />
Complete three sets of eight reps.<br />
As well, it’s important to get your steps in. Make sure to schedule in at<br />
least two days of step exercises. You can head to Jacob’s Ladder at King’s<br />
Park or the Manning Park stairs. Ascending these stairs would take you<br />
around 20 minutes.<br />
Warm up exercises<br />
Before starting your workouts, it’s<br />
important to warm up your body<br />
to help loosen your joints, improve<br />
blood flow to your muscles,<br />
and prepare your mind to be<br />
physically active.<br />
Our favourites are:<br />
• Star jumps<br />
• Burpee<br />
• Squats<br />
Complete 10 reps of<br />
each exercise.<br />
Cool down stretches<br />
A proper cool down is essential<br />
after working out because it<br />
promotes faster recovery<br />
and decrease the severity of<br />
delayed onset muscle soreness<br />
or DOMS.<br />
Our favourites are:<br />
• Hamstrings<br />
• Glutes<br />
• Quads<br />
Hold your stretch for at least<br />
45 seconds each side.<br />
Good luck to all our climbers and wish you all the best for Step Up!<br />
Tips for event day<br />
1. Pace yourself<br />
Start easier than what you<br />
think you need, as it gets<br />
challenging pretty quickly!<br />
2. Control your breathing<br />
Take deep breaths while<br />
going up the stairs.<br />
Your body needs the oxygen<br />
to power you up<br />
the stairs.<br />
3. Keep moving!<br />
Most of all, it is important to<br />
keep moving even if it is at<br />
a slower pace. This will help<br />
with maintaining blood flow<br />
to your muscles and it’s a<br />
good mental challenge!<br />
Scan the QR<br />
code to view<br />
the video<br />
demonstrations.<br />
Is there anything more comforting than a steaming bowl of soup to chase away the winter chill?<br />
If you’re craving a taste of warmth and nourishment this season, look no further. We’ve crafted a tasty minestrone<br />
soup recipe – easy-to-follow, nutrient-packed, and bursting with flavour – to keep you cosy all winter long.<br />
Minestrone Soup Recipe<br />
Ingredients<br />
• 1 tbs extra virgin olive oil<br />
• 1 onion, diced<br />
• 4 cloves garlic, finely chopped<br />
• 1 tbs mixed Italian dried herbs<br />
• 2 tbs tomato paste<br />
• 2 stalks celery, thinly sliced<br />
• 1 carrot, diced<br />
• 1 large Carisma potato, diced<br />
• 1 zucchini, diced<br />
• 800g can no-added-salt diced tomatoes<br />
• 2 cups salt-reduced chicken or vegetable stock<br />
• 400g can no-added-salt red kidney beans,<br />
drained and rinsed<br />
• 1 cup protein pasta<br />
• ½ cup parmesan cheese, grated<br />
• Mozzarella cheese, to serve, optional<br />
• Grain and seed bread, to serve, optional<br />
Misty Reinkowsky<br />
<strong>MSWA</strong> Senior Dietitian<br />
Share your culinary creations<br />
by tagging us on social media<br />
or sending your photos to<br />
marketing@mswa.org.au.<br />
Method<br />
1. Place a large pot over medium heat. Heat olive oil and<br />
add diced onion. Cook for 5 minutes or until brown.<br />
2. Add garlic, Italian herbs and tomato paste. Stir the pot<br />
and cook for 2 minutes.<br />
3. Turn up the heat to high and add vegetables – celery,<br />
carrot, Carisma potato and zucchini. Cook for<br />
5 minutes, stirring the pot.<br />
4. Add canned tomatoes, chicken/vegetable stock and<br />
kidney beans. Pour in 3 cups of water and bring soup<br />
to a simmer for 20 minutes.<br />
5. Add pasta of your choice and stir well. Cook with the<br />
lid off for 15 minutes, or until pasta is cooked.<br />
6. Turn off the heat and stir in the parmesan.<br />
Serve with grated mozzarella cheese<br />
and bread and enjoy!<br />
32 33
Events<br />
A splash with a difference<br />
<strong>2024</strong> <strong>MSWA</strong> Albany Swim<br />
In April, the Great Southern community came together<br />
once again for the 12th annual <strong>MSWA</strong> Albany Swim.<br />
This year, the <strong>MSWA</strong> Albany Swim reached a<br />
significant milestone, with our thousandth swimmer<br />
making a splash!<br />
Eight teams, totalling 81 swimmers, participated in<br />
a colourful display of costumes for the eight-hour<br />
marathon swim at the Albany Leisure and Aquatic Centre.<br />
A remarkable 8,510 laps were completed, nearly double<br />
last year's count, with the Albany Swimming Club<br />
completing the most laps, swimming an impressive<br />
1,634 laps.<br />
Over the past 12 years, the swim has fundraised over<br />
$300,000 for the <strong>MSWA</strong> cause, with this year’s event<br />
raising an astounding $29,000. Congratulations to Team<br />
Marines for being our Highest Team Fundraisers, with<br />
over $12,000 raised. A special mention goes to Rechelle<br />
Wright for being our Highest Individual Fundraiser, raising<br />
well over $3,000!<br />
This feel-good community event brings together Albany<br />
locals, Great Southern residents, and <strong>MSWA</strong> Clients<br />
and staff to raise funds and awareness for neurological<br />
conditions. Participants enjoy the friendly challenge of<br />
the event and value giving back to their local community<br />
through fundraising.<br />
Most swimmers return year-after-year because of their<br />
connection to the cause and willingness to support<br />
<strong>MSWA</strong>, including Albany local, Marina Pietropaolo<br />
who has participated in the swim every year since its<br />
inception.<br />
Having lived with MS for over 20 years, this is a cause<br />
that is close to Marina’s heart.<br />
Diagnosed at 25 years old, Marina underwent a complex<br />
treatment journey, where she frequently changed her<br />
prescription medications and relied on painkillers to<br />
manage severe side effects from her medication, on top<br />
of her MS symptoms.<br />
“The first 14 years after my diagnosis were the hardest,”<br />
said Marina, “I experienced multiple MS attacks, and it<br />
was debilitating.”<br />
Team Marine swim participant, Angela Gorman.<br />
With the advancement of treatment options, Marina is<br />
now living life to her full potential. She has opened her<br />
own architecture business and leads a more active<br />
lifestyle. Experiencing this difference has brought<br />
renewed hope for Marina.<br />
“Research makes a big difference. I have seen it come a<br />
long way. It gives me hope for people who are diagnosed<br />
today that do not have to do the hard yards I did to get to<br />
where I am now.”<br />
Despite not being a strong swimmer, it has not<br />
deterred Marina from participating, and she has since<br />
trained herself to be more confident in the water. Her<br />
determination, enthusiasm, and positive attitude have<br />
inspired others in the community to take part.<br />
Marina’s husband, Remo, and son, Santino, have<br />
been active fundraisers for the cause for years. Both<br />
musicians comfortable in the spotlight, the star duo has<br />
emceed the event for the past few years.<br />
“This is a fantastic event. The community comes<br />
together, we bond for the cause, and it is really fun! We<br />
come away from it exhausted, but we would do it again<br />
and again. We love it that much!” Marina said.<br />
Marina Pietropoalo,<br />
left, with Team Marines.<br />
Over the past 12 years, funds raised through the swim<br />
have assisted in the development of Albany’s service<br />
centre and accommodation facilities and continue to<br />
support the centre’s operations. Our accommodation<br />
offers Clients 24/7 care in a homely environment, while<br />
the centre provides tailored services such as yoga,<br />
hydrotherapy, massage, and physiotherapy.<br />
It is thanks to dedicated fundraisers like Marina and<br />
her family, that <strong>MSWA</strong> can positively impact the lives of<br />
people living with neurological conditions in the Great<br />
Southern and beyond.<br />
We would also like to thank our sponsors who made this<br />
event possible: City of Albany, Southern Ports Albany,<br />
WizLoans Albany, CBD Architects, Moss Conveyancing,<br />
Bathroom Decor & Tiles, Poolside Cafe and Storage<br />
Solutions WA.<br />
<strong>MSWA</strong> extends its congratulations and appreciation<br />
to the Great Southern community for their unwavering<br />
and continuous support for the <strong>MSWA</strong> Albany Swim.<br />
Scan the QR to access<br />
the gallery of photos<br />
from the event!<br />
<strong>MSWA</strong> Albany Swim Participants.<br />
Emcees Santino and Remo Pietropaolo.<br />
34 35
Social Connections<br />
Everything Outreach<br />
Accommodation Adventures<br />
Trishaw adventures<br />
In April, Clients from Rockingham<br />
Outreach enjoyed a special fun<br />
day on the foreshore, basking in<br />
the sunshine!<br />
Thanks to the volunteers from<br />
Cycling Without Age Rockingham,<br />
Clients were able to ride on<br />
trishaws powered by the volunteers.<br />
We are grateful to the team at<br />
Cycling Without Age Rockingham<br />
for creating such a memorable<br />
experience for our Clients!<br />
A splash of colour<br />
Our Clients recently added their own splash of colour to<br />
the wet area in the Butler Accommodation activity room.<br />
The colourful floral artwork has been integrated into the<br />
splashback panel, serving both functionally to protect<br />
the walls from moisture and also adding a pop of colour!<br />
Well done to our Clients and our Facilities Team for<br />
blending this amazing artwork into the interior design.<br />
St Patrick’s at Treendale<br />
The residents at Treendale Gardens had a splendid<br />
celebration for St Patrick’s Day. Recreation Officer,<br />
Susie, assisted the residents to create their own St<br />
Patrick’s Day headwear. Some Clients made the classic<br />
leprechaun hat, while others opted for the lucky four-leaf<br />
clover design. The Clients and our staff had a fun time<br />
celebrating the occasion!<br />
Harmony Week<br />
On 21 March, residents, families and staff from Fern<br />
River gathered to celebrate the cultural diversity within<br />
our community and share what makes us all unique for<br />
Harmony Week.<br />
Mother’s Day raffle<br />
<strong>MSWA</strong> team member Donna<br />
and Client Essie were the lucky<br />
winners of the Mother’s Day raffle<br />
at Wilson Outreach. The hamper<br />
prize included an exquisite selection<br />
of tea, coffee and coffee mugs.<br />
Remarkably, this was the second<br />
year that Donna has won a prize<br />
for the raffle. Both winners were<br />
overwhelmed by the gift. Happy<br />
Mother’s Day to all!<br />
A sweet visit<br />
Clients and staff from Beechboro<br />
Outreach enjoyed a delightful visit to<br />
the Whistlers Chocolate Company<br />
in Swan Valley. They created many<br />
sweet memories, indulging in a<br />
delicious morning tea, marvelling at<br />
the chocolate structures on display<br />
and connecting with one another.<br />
Clients were each gifted a goodie<br />
bag of sweet treats to take home.<br />
Easter celebrations<br />
For Easter, Clients and staff at<br />
Wilson Outreach channelled their<br />
creativity to design some beautiful<br />
Easter decorations. The Wilson<br />
OpShop Café was also in full swing,<br />
with some egg-cellent sweet treats<br />
whipped up in celebration of the<br />
festivity. The <strong>MSWA</strong> team also<br />
sported some easter bunny ears for<br />
the occasion.<br />
Harmony Week recognises our diversity, bringing<br />
together Australians from all different backgrounds. It’s<br />
about inclusiveness, respect, and a sense of belonging<br />
for everyone.<br />
Staff donned traditional attire and shared various aspects<br />
of their culture. There were demonstrations of singing,<br />
lessons on how to use chopsticks and a compilation of<br />
music from around the world played on the cello.<br />
Staff who were unable to attend shared photos of<br />
themselves in traditional attire, which were displayed.<br />
Residents enjoyed guessing who the staff members<br />
were, as many looked quite different in their<br />
traditional attire!<br />
Jacqui Sheveleff<br />
We also played a game of Guess Who, by matching facts<br />
about Fern River residents to the respective person. This<br />
activity was a wonderful way for staff and residents to<br />
learn more about each other, encourage investigative<br />
communication and highlight the rich stories behind our<br />
residents’ lives.<br />
Supported Accommodation Coordinator<br />
36 37
News in brief<br />
Save the date<br />
Upcoming events<br />
21 June<br />
MND Global Awareness Day<br />
5-11 August<br />
National Stroke Week<br />
Building our team<br />
The Talent and Diversity team has been active in the community, raising<br />
awareness about the incredible work <strong>MSWA</strong> is doing and recruiting great talent.<br />
The team recently attended the Belmont Career Expo which welcomed over<br />
900 participants. They also visited regional events, including the South West<br />
Career Expo at the Bunbury Catholic College Gymnasium.<br />
Connection opportunities<br />
in the community *<br />
All Neurological<br />
Conditions<br />
Community Perth<br />
International Nurses Day<br />
International Nurses Day is celebrated every year on<br />
12 May, Florence Nightingale's Birthday, to commemorate<br />
and celebrate the incredible work of nurses.<br />
The <strong>MSWA</strong> nursing team came together to celebrate with<br />
a morning tea at our Wilson Service Centre. We would like<br />
to once again extend our appreciation to our <strong>MSWA</strong><br />
nurses for their effort, dedication, and resilience in<br />
providing quality care to all our Clients.<br />
Submit your article to us<br />
If you or someone you know is interested in joining the <strong>MSWA</strong> team, please visit<br />
our website for more information: www.mswa.org.au/work-with-us/apply-now.<br />
WA National Disability Support Awards<br />
The <strong>MSWA</strong> team celebrated in style at the gala dinner<br />
for the WA National Disability Support Awards <strong>2024</strong>.<br />
Congratulations to Randall Rooney, Melissa Coombs<br />
and our Employment Support Services Team for their<br />
nominations.<br />
We are beyond proud of our team for their tremendous<br />
effort and the exceptional service they deliver to empower<br />
our Clients to reach their goals and live their best lives!<br />
Do you have a story about living with a neurological condition in WA that other <strong>MSWA</strong> Clients might like to read?<br />
We invite you to share your experiences with us.<br />
Email your submission to bulletin@mswa.org.au for consideration.<br />
Suggestions, complaints and compliments<br />
We want to hear from you. Your feedback helps us to understand what is working well and where we can improve.<br />
You can raise a concern or acknowledge the support an <strong>MSWA</strong> staff member has provided by telephoning 6454 3146,<br />
via feedback@mswa.org.au or writing to Quality and Compliance; Locked Bag 2, BENTLEY DC 6983.<br />
For more information, visit mswa.org.au/about-mswa/contact-us.<br />
<strong>2024</strong> <strong>MSWA</strong> Step Up<br />
Sunday, 23 June <strong>2024</strong><br />
8am – 12pm<br />
Central Park Tower<br />
<strong>MSWA</strong> Step Up is back again this<br />
year! Take part and join hundreds<br />
of West Australians in this unique<br />
stair-climbing event to climb<br />
Perth’s tallest building – Central<br />
Park Tower - this weekend!<br />
Registrations for the one-up and<br />
mini-climb are available on event<br />
day, so come on down and get<br />
involved - even if it's just to soak up<br />
the atmosphere. best of all, Clients<br />
and staff can climb for free.<br />
Not a fan of stair climbing? Join the<br />
volunteer team to cheer and support<br />
our climbers on event day. There is<br />
a range of volunteering positions<br />
available, from the ground level and<br />
all the way up the building - there is<br />
something for everyone!<br />
Register your interest to volunteer<br />
by scanning the QR code below,<br />
or contact events@mswa.org.au<br />
to register.<br />
Fatigue Management<br />
Workshop<br />
Tuesday, 13 August <strong>2024</strong><br />
10am – 1pm<br />
Online – registration essential<br />
Are you struggling to regulate your<br />
body temperature? Come along<br />
to <strong>MSWA</strong>’s Fatigue Management<br />
workshop to learn more about how<br />
your body responds to temperature<br />
and how you can manage it.<br />
In this interactive workshop, our<br />
OT Team will cover topics such as<br />
thermoregulation, its effects and<br />
impacts, strategies for coping<br />
in both cool and warm climates,<br />
assistive technologies that can<br />
aid in temperature regulation, and<br />
ways to acquire funding for these<br />
technologies.<br />
To reserve your spot email:<br />
ot.groups@mswa.org.au<br />
Readathon<br />
Calling all adults, kids, and families:<br />
are you ready to embark on a reading<br />
adventure supporting an incredible<br />
cause? The <strong>2024</strong> MS Readathon<br />
has officially launched and we<br />
invite you to take on the reading and<br />
fundraising challenge!<br />
Visit www.msreadathon.org.au<br />
to register now.<br />
Join the All Neurological Conditions<br />
Community Perth peer support<br />
group, to meet new friends and<br />
make connections. This group<br />
provides a safe space for sharing<br />
experiences and challenges related<br />
to your neurological condition.<br />
The group hosts monthly coffee<br />
catch-ups, social and art events,<br />
offering plenty of opportunities to<br />
connect with the community.<br />
Family, friends, carers and support<br />
workers are encouraged and<br />
welcomed at all events.<br />
You can join the Facebook group<br />
by visiting: https://bit.ly/4dFSLr8<br />
MS/Neurological<br />
Social Group (Perth)<br />
The MS/Neurological Social Group<br />
is an inclusive peer support group<br />
for those living with a neurological<br />
condition in Perth. Carers, support<br />
workers, family and friends of those<br />
living with a neurological condition<br />
are welcomed to join the group.<br />
The group hosts monthly catch-ups,<br />
and you’re encouraged to organise<br />
your own, simply by posting in the<br />
Facebook group.<br />
To join the Facebook group visit:<br />
https://bit.ly/3K6RXhr. If you would<br />
like more information, email:<br />
basil.merendino@gmail.com.<br />
*These groups are led by members in<br />
the community, outside of <strong>MSWA</strong>.<br />
38 39
World MS Day gave the<br />
community the opportunity to<br />
reflect on Thursday, 30 May<br />
as the city lit up red in honour<br />
of the important occasion.<br />
To find out more about our services,<br />
create connections or show support<br />
for our cause, visit mswa.org.au.