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MSWA Bulletin Magazine Makuru / Winter 2024

Front page pic: All smiles as MSWA breaks ground on new specialised homes for West Aussies. Inside: - World MS Day celebrations - Caroline Clarke-Smith: 25 years of service - Embracing the season of Makuru - Making a splash at Albany Swim

Front page pic: All smiles as MSWA breaks ground on new specialised homes for West Aussies.

Inside:
- World MS Day celebrations
- Caroline Clarke-Smith: 25 years of service
- Embracing the season of Makuru
- Making a splash at Albany Swim

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All smiles as <strong>MSWA</strong> breaks ground on new<br />

specialised homes for West Aussies.<br />

Inside<br />

<strong>Bulletin</strong><br />

YOUR <strong>MSWA</strong> MAGAZINE<br />

MAKURU | WINTER <strong>2024</strong><br />

mswa.org.au


Client Artist Michelle Hall.<br />

WILSON CENTRE<br />

29 Parkhill Way<br />

9365 4888<br />

Contact Us<br />

If you would like to comment on anything you read in<br />

this <strong>Bulletin</strong>, please email bulletin@mswa.org.au<br />

For general feedback or complaints, please contact<br />

feedback@mswa.org.au<br />

Editorial Working Group<br />

Nicola Washington, Tony Millar, Emily Ace,<br />

Tammie Chu and Nicolette Murphy.<br />

Contributors<br />

Thank you to all of our <strong>MSWA</strong> contributors from across<br />

our orgnisation, who take to the time to share their<br />

knowledge and expertise for the benefit of our readers.<br />

If there is a topic you would like to see included in our<br />

next edition, please email bulletin@mswa.org.au with<br />

your suggestion.<br />

Welcome to the <strong>Makuru</strong> <strong>2024</strong><br />

edition of <strong>Bulletin</strong><br />

The Nooongar Season “<strong>Makuru</strong>” is represented by the dark<br />

blue colour, symbolising the cold and wet weather typical of the<br />

season. <strong>Makuru</strong> is the time for animals to pair up in preparation<br />

for breeding in the upcoming months. It is also when blueberry lily,<br />

purple flags, and weeping peppermint flowers begin to flourish. 1<br />

Client Engagement Department<br />

Our experienced teams will provide you with<br />

personalised support throughout your service journey<br />

with <strong>MSWA</strong>. From helping you to access funding, to<br />

working with you to get the most from your selected<br />

services, our trained staff are here to help.<br />

For more information, please contact 9365 4888.<br />

Our services include:<br />

• Counselling, Peer Support and Health Education<br />

• Community Support & In-home Care<br />

• Dietetics<br />

• Occupational Therapy<br />

• Outreach<br />

• Physiotherapy<br />

• Social Welfare<br />

• Speech Pathology<br />

• Nursing<br />

• Support Coordination<br />

Nursing Support<br />

Our Neurological Liaison Nurses are usually the first<br />

point of contact after the neurologist’s diagnosis.<br />

Community Nurse: 9365 4888<br />

Monday to Friday (8.00am - 4.00pm)<br />

Outreach at <strong>MSWA</strong><br />

If you live in Perth, Rockingham, Bunbury or Albany and<br />

are interested in a trial to experience the Outreach<br />

community, get in touch via outreach@mswa.org.au<br />

Employment Support<br />

The <strong>MSWA</strong> Employment Support Service is the only<br />

specialist employment service for people living with<br />

multiple sclerosis and other neurological conditions in<br />

Western Australia. Our team can help you to stay<br />

in your current job or find employment in the open<br />

labour market.<br />

Please call: 1300 865 209<br />

See all our supports and services at mswa.org.au<br />

Switch to <strong>Bulletin</strong> online today!<br />

Help us reduce our environmental impact by going<br />

digital and connect with more engaging content.<br />

Email us at marketing@mswa.org.au to sign up.<br />

1 <br />

Reference: Edith Cowan University, Cultural Leadership:<br />

Noongar Six Seasons.<br />

PHOTO: Dylan Alcock.<br />

Acknowledgement of Country<br />

In the spirit of reconciliation, <strong>MSWA</strong> acknowledges the<br />

Traditional Custodians of the many lands and language<br />

groups of Western Australia, and their connections to<br />

land, sea and community. We pay our respect to their<br />

Elders past and present, and extend that respect to all<br />

Aboriginal and Torres Strait Islander peoples today.<br />

2 3


From our CEO<br />

Melanie Kiely<br />

Client Services<br />

Nicki Washington – Chief Client Operations Officer<br />

Greetings to all of you in our <strong>MSWA</strong><br />

community. I cannot believe we are<br />

almost halfway through the year<br />

and yet the warm weather stayed<br />

with us well into the month of May,<br />

with so little rain. I hope as we<br />

embark into the season of <strong>Makuru</strong><br />

we see our waterways refill after<br />

such a dry season.<br />

Looking back over the past three<br />

months, we have had many<br />

significant milestones.<br />

Our Montario Quarter development<br />

has finally commenced. We had a<br />

wonderful Construction Launch<br />

with the Minister of Health and the<br />

new Director General of Health. This<br />

jointly funded project will provide<br />

new homes for the current residents<br />

of the Quadriplegic Centre, three<br />

of whom helped us break ground<br />

– Enzo, Celia, and Angelo – as<br />

well as other West Aussies with<br />

neurological conditions requiring<br />

high support care.<br />

In our focus on expanding our<br />

community to include corporates<br />

and other partners who want to help<br />

us make a positive impact, we’ve<br />

signed our first landmark –<br />

partnership with the State Buildings,<br />

who will provide a range of support<br />

to our fundraising efforts. I<br />

personally attended the signing, and<br />

I’m so encouraged by the goodwill<br />

of organisations, such as the<br />

State Buildings, to support and get<br />

involved in what we do.<br />

Our Client Co-Design and Advisory<br />

Committee is a year down the<br />

track and has agreed to meet more<br />

frequently, we’re learning so much<br />

from each other. It sounds obvious to<br />

co-design with the community you are<br />

trying to help, but sometimes we’re<br />

too focused on getting things done<br />

and we have fallen into this trap in<br />

the past. I can’t thank the committee<br />

and our Client base enough for being<br />

open and honest in our discussions,<br />

so we can support you better.<br />

We’ve seen some big statements from<br />

the Government following the NDIS<br />

Review recommendations and more<br />

recently the budget announcement.<br />

<strong>MSWA</strong> agrees with most of the<br />

observations and recommendations<br />

of the review, but the devil is in the<br />

timing and the detail. Both, sadly, are<br />

still lacking and we look forward to<br />

working with the Government through<br />

our advocacy channels and peak<br />

bodies to get this clarity for all of you.<br />

Looking ahead, we have our <strong>MSWA</strong><br />

Step Up around the corner on<br />

Sunday, June 23. These are tough<br />

times for fundraising with the cost-ofliving<br />

pressures, but please do what<br />

you can and come along. It is a lot of<br />

fun – even I enjoyed it and believe me,<br />

stairs and cardio are not my thing!<br />

The great atmosphere is what got<br />

me to the top last year – twice!<br />

Lastly, I want to pay tribute to<br />

two wonderful members of our<br />

community.<br />

Firstly, to <strong>MSWA</strong>'s longest-serving<br />

volunteer, Marie Harris. Marie<br />

passed away earlier this year, having<br />

volunteered with <strong>MSWA</strong> for over 30<br />

years. Marie lived a truly incredible<br />

life, having founded the Masters<br />

Swimming Club in Bunbury and<br />

boasting a huge collection of medals<br />

for her swimming achievements<br />

particularly in backstroke. In 2016,<br />

Marie received the WA Volunteer<br />

Service Award for her years of<br />

dedication to <strong>MSWA</strong>, in which<br />

she connected newly diagnosed<br />

Clients to services, volunteered her<br />

time in Bunbury Outreach, raised<br />

awareness for MS and actively<br />

fundraised for our cause. You can<br />

read more about Marie's story<br />

here: https://bit.ly/3yMk96L.<br />

Marie will be sorely missed, and<br />

we can’t thank her enough for her<br />

years of dedication.<br />

Secondly, I would like to give our<br />

thanks to Lynda Whitton who was<br />

a National Advocate with Multiple<br />

Sclerosis Australia since the<br />

program's inception - an extensive<br />

tenure of 13 years! In this role she<br />

ensured our WA community had<br />

a voice at the national table. After<br />

resigning from the role in 2023, she<br />

passed the baton onto Susan Hyde<br />

who we profiled in our last edition<br />

of <strong>Bulletin</strong>. Your years of service is<br />

truly appreciated by our community.<br />

Thank you.<br />

Go well and enjoy the winter now<br />

that it is finally arriving - I know my<br />

plants most certainly are!<br />

Welcome to the <strong>Makuru</strong> edition<br />

of <strong>Bulletin</strong>. As featured on our front<br />

page, we are very excited to see the<br />

progression of our new residential<br />

site at Montario Quarter. We have<br />

been meeting with the current<br />

residents of the Quadriplegic Centre<br />

to provide key updates on the new<br />

building and will be developing<br />

plans for the smooth transition of<br />

residents to their new homes.<br />

Recognising our people<br />

We are so proud of our <strong>MSWA</strong><br />

nurses and the incredible work<br />

they do to support our Clients, so<br />

it was fantastic to celebrate them<br />

with a morning tea in honour of<br />

International Nurses Day in May.<br />

May also allowed us the opportunity<br />

to recognise the amazing<br />

contribution of our many <strong>MSWA</strong><br />

volunteers with a luncheon – you can<br />

read all about it and see the pictures<br />

on page 22.<br />

To our amazing nurses and<br />

volunteers, THANK YOU.<br />

Massage Services<br />

Knowing how important massage is<br />

for our Clients, we recently sought<br />

feedback and reviewed our service<br />

delivery with the aim of increasing<br />

our massage services.<br />

Considering the information we<br />

received, <strong>MSWA</strong> will now contribute<br />

50 per cent off the current<br />

fee-for-service rate for eligible<br />

Clients. There will be no limit on the<br />

frequency of appointments, though<br />

this will be subject to availability.<br />

As the service grows and evolves,<br />

there may come a time when we<br />

will need to make changes to<br />

ensure continuity and accessibility<br />

of the service. This includes, but<br />

is not limited to, the price, offers<br />

or promotions, appointment<br />

bookings, and cancellations. Should<br />

that be the case, we will ensure<br />

that any changes will be clearly<br />

communicated in a timely manner.<br />

If you would like to know how to<br />

access this service, please<br />

contact our Physiotherapy team on<br />

9365 4834 or physio@mswa.org.au.<br />

Residential Accommodation<br />

We will be holding open days across<br />

our accommodation sites in June<br />

and July, which is a great opportunity<br />

to wander around our residential<br />

homes and learn about the<br />

accommodation services we offer.<br />

Butler will be open on 25 June,<br />

Treendale on 25 July and Fern River<br />

also on 25 July, which will coincide with<br />

their Christmas in July celebration!<br />

We'd love you to visit us, so<br />

please register your interest at<br />

residential.managers@mswa.org.au.<br />

New service<br />

We are pleased to introduce a new<br />

Wellbeing service at <strong>MSWA</strong>, which<br />

aims to empower individuals using<br />

evidence-based tools and resources<br />

to overcome obstacles and foster<br />

resiliency. The comprehensive<br />

approach provides a holistic<br />

platform for personal growth<br />

and development. Find out more<br />

on page 27.<br />

Art Exhibition<br />

The <strong>MSWA</strong> art exhibition award<br />

ceremony took place at Wilson<br />

Outreach in May, where we<br />

celebrated all our talented artists.<br />

Jodee Pereira was announced our<br />

People’s Choice winner, as voted<br />

by the visitors to our Mega Home<br />

Lottery home, so well-done Jodee!<br />

Read more on page 15.<br />

Client Service<br />

Delivery Model<br />

We have started the next phase<br />

of work across our Client service<br />

delivery model. The project aims<br />

to find ways to improve how you<br />

receive support and services. Over<br />

the coming months, we will engage<br />

with a number of Client groups<br />

to gain feedback on how we can<br />

improve the holistic Client journey<br />

and will seek to discover what<br />

matters most to you.<br />

As always, your feedback is<br />

important to us so if you have<br />

anything you would like to share,<br />

please contact us on<br />

feedback@mswa.org.au.<br />

4 5


Client Engagement<br />

<strong>MSWA</strong> news<br />

Federal Budget provides<br />

future insight<br />

Breaking Ground<br />

Montario Quarter Construction Launch<br />

As I get older, certain things that<br />

used to seem mundane or boring<br />

to me have unexpectedly grown in<br />

interest and importance. Sleep for<br />

instance, is a far more important<br />

discussion for me now than it ever<br />

was during my younger, carefree<br />

days. Perhaps stranger still, I have<br />

become increasingly excited by the<br />

annual Federal Budget release and<br />

its impact on both NDIS and Aged<br />

Care participants. (Yes, I used the<br />

words exciting and Federal Budget<br />

in the same sentence). So, what<br />

was included in this year’s Budget<br />

and what does it mean?<br />

NDIS<br />

For a long time, much of what you<br />

have been hearing from the NDIA<br />

and the Government has been<br />

about reducing expenditure, so it<br />

should be no surprise to anyone<br />

that this Budget focused on the<br />

same thing. During his post-budget<br />

communications Minister Shorten<br />

reported that the NDIS will only<br />

increase by $1.5b over the next<br />

four years. This is fine, except that<br />

between the 2022/23 and 2023/24<br />

financial years, NDIS expenditure<br />

increased by $7.4b. According to<br />

Minister Shorten, this drop will<br />

be due to the NDIS review and<br />

proposed legislation changes. This<br />

makes sense; but it should be noted<br />

that these changes haven't been<br />

approved and the detail is uncertain.<br />

In good news, the budget committed<br />

$129.8m to consultation with the<br />

disability community around the<br />

recommendations of the review’s<br />

report.<br />

This shows that the Government is<br />

committed to co-design principals<br />

in improving the scheme. In<br />

addition, $5.3m was allocated to<br />

the Independent Health and Aged<br />

Care Pricing Authority to reform<br />

current NDIS pricing arrangements,<br />

including a review of pricing<br />

approaches and strategy. This is a<br />

win as the current pricing strategy<br />

is too rigid and impacts both<br />

participants and providers alike.<br />

There is also $20m over two years<br />

to assist people with disability,<br />

their families, and their carers to<br />

overcome challenges they face<br />

when accessing supports, and<br />

$45.5m over four years to establish a<br />

NDIS Evidence Advisory Committee<br />

which will provide advice around<br />

the appropriateness of disability<br />

supports through the NDIS.<br />

Aged Care – Home Care Packages<br />

While the NDIS received the most<br />

attention, the Government didn’t<br />

forget about the Aged Care sector<br />

which has also recently undergone<br />

its own significant review. The<br />

Government has committed $2.2b<br />

to aged care which should help to<br />

implement the recommendations and<br />

reforms from the Royal Commission<br />

into Aged Care Quality and Safety.<br />

One good outcome of this allocation<br />

is that the Government has allocated<br />

$531.4m for an extra 24,100 Home<br />

Care Packages in <strong>2024</strong>-25. This<br />

is expected to reduce wait-times<br />

to six months and will mean that<br />

approximately 300,000 Home Care<br />

Packages will be accessible across<br />

Australia; both great outcomes.<br />

The Government also allocated<br />

$111m towards strengthening the<br />

Quality and Safety Commission and<br />

$65.6m over four years, to attract<br />

and retain aged care workers to<br />

help ensure quality services across<br />

the sector.<br />

One not so good announcement<br />

from this year’s budget was the<br />

deferral once again of the New<br />

Aged Care Act until 1 July 2025. This<br />

follows deferral from the past two<br />

budgets. Despite waiting for reform<br />

for some time, deferring another<br />

year is a prudent decision due to the<br />

lack of confirmed detail.<br />

Across both the NDIS and HCP<br />

sectors this Federal Budget has<br />

pointed to changes coming over<br />

the horizon. While the devil is in the<br />

detail and some things are slow in<br />

appearing, the Government seems<br />

focused on getting both schemes<br />

right, and that’s something to get<br />

excited about.<br />

So, what does<br />

this all mean?<br />

Read Geoff’s<br />

full article<br />

online here:<br />

Geoff Hutchinson<br />

Manager Client Engagement<br />

<strong>MSWA</strong> is proud to announce the launch of construction<br />

for the Montario Quarter, a significant milestone in our<br />

ongoing commitment to supporting individuals with<br />

neuro conditions or spinal cord injuries in WA.<br />

The construction launch event, held on 8 May, <strong>2024</strong> was<br />

a resounding success, marking a pivotal moment in<br />

this important community development. The ceremony<br />

featured a Turning of the Sod, symbolising the start<br />

of the construction phase, and was attended by key<br />

stakeholders and supporters. The event underscored the<br />

collaborative efforts that have brought this project<br />

to fruition.<br />

The new facility, which will be overseen by <strong>MSWA</strong>'s team<br />

of allied health and clinical professionals, will prioritise<br />

the accommodation of Quadriplegic Centre Clients,<br />

including Enzo, Celia, and Angelo who helped celebrate<br />

the construction launch.<br />

<strong>MSWA</strong>'s $12.8m investment, supplemented by $14m<br />

from the Department of Health, brings the total<br />

investment in this long-awaited project to $26.8m.<br />

"We recognise the urgent need for more comprehensive<br />

independent living options for individuals with<br />

disabilities," said Melanie Kiely, CEO of <strong>MSWA</strong>.<br />

"This investment reaffirms our dedication to improving<br />

the lives of those we support in the WA community.”<br />

With 20 state-of-the-art apartments, the Montario<br />

Quarter will offer long-term, high support living options<br />

that promote independence in daily activities.<br />

Steve Corbett, <strong>MSWA</strong> Manager Property Development<br />

and Construction, highlighted the unique features<br />

of the facility.<br />

“This ultra-modern Shenton Park facility will present<br />

a unique style of accommodation choice that would<br />

otherwise not be available in the West Australian market.<br />

“Over many years, <strong>MSWA</strong> has enhanced important<br />

design features in each new development. We pride<br />

ourselves on listening to residents, staff, and visitors,<br />

making changes that work best for everyone’s needs.<br />

Enzo, Quadriplegic Centre resident.<br />

“This continuous cycle of improvement makes <strong>MSWA</strong><br />

accommodation better than the typical standards and<br />

codes buildings must comply with. Passive building<br />

elements and assistive technology will be a welcomed<br />

convenience for Quad Centre residents, as will the<br />

landscaped gardens within and surrounding their<br />

new homes."<br />

<strong>MSWA</strong> will provide 24-hour care, seven days a week<br />

through its dedicated team to ensure top-tier support for<br />

all residents.<br />

We extend our heartfelt thanks to the residents and<br />

carers of the Quadriplegic Centre for their patience<br />

and ongoing contributions to the development process,<br />

as well as to the Department of Health, and the <strong>MSWA</strong><br />

community whose backing has made this impactful<br />

investment possible.<br />

We look forward to the completion of Montario Quarter<br />

and the positive impact it will have on the lives of its<br />

future residents.<br />

Marianne Green<br />

Senior Marketing Officer<br />

Quadriplegic Centre Clients, Minister of Health<br />

Amber-Jade Sanderson, and <strong>MSWA</strong> CEO Melanie Kiely.<br />

6<br />

7


Research<br />

Multiple<br />

Sclerosis<br />

Australia<br />

Potential stroke game-changer<br />

New report calls for<br />

faster MS diagnosis<br />

A potential world-first drug to<br />

protect the brain from injury after<br />

stroke, currently in a national<br />

clinical trial led by Perth-based<br />

Argenica Therapeutics, was<br />

developed by WA scientists<br />

Professor Bruno Meloni and<br />

Clinical Professor Neville Knuckey<br />

and their team at the Perron<br />

Institute and The University of<br />

Western Australia.<br />

Every 19 minutes, an Australian<br />

experiences a stroke for the first<br />

time in their life. When a stroke<br />

strikes, it can attack up to 1.9 million<br />

brain cells per minute. Stroke is one<br />

of Australia’s biggest killers with<br />

about half a million Australians living<br />

with the effects of stroke. Globally,<br />

one in four people over the age of 25<br />

will have a stroke in their lifetime.<br />

<strong>MSWA</strong> is proud to have contributed<br />

early funding from 2018 to 2022 to<br />

Professors Meloni, Knuckey and<br />

their team’s research which enabled<br />

part of the preclinical testing on the<br />

effectiveness of the neuroprotective<br />

peptide ARG-007 as the lead<br />

therapeutic drug to potentially<br />

reduce brain tissue death after an<br />

ischaemic stroke, the most common<br />

type of stroke. This occurs when<br />

blood clots block arteries supplying<br />

blood to the brain.<br />

“The subsequent interruption of<br />

blood supply and lack of oxygen<br />

from a stroke leads to a massive<br />

influx of calcium into brain cells<br />

to cause brain tissue damage,”<br />

Professor Meloni said. “During a<br />

stroke, most of the brain damage<br />

occurs within three to four hours.”<br />

L-R Clinical Professor Neville Knuckey and<br />

Professor Bruno Meloni in the Perron Institute lab.<br />

“ARG-007 has unique properties<br />

that inhibit the influx of calcium.<br />

If administered soon after stroke<br />

onset, it has the potential to protect<br />

the brain from permanent strokerelated<br />

conditions.”<br />

Earlier this year, the clinical trials<br />

for ARG-007 progressed to Phase 2<br />

to dose stroke patients at up to 10<br />

hospital sites across Australia.<br />

The Phase 2 trial is designed to test<br />

the safety and preliminary efficacy<br />

of ARG-007 in acute ischaemic<br />

stroke patients.<br />

This step forward was made<br />

possible after the Phase 1 trial was<br />

completed last year and confirmed<br />

the drug was safe and tolerable in<br />

healthy volunteers who had never<br />

experienced stroke.<br />

The clinical trials for this highly<br />

promising therapy are the<br />

culmination of almost three decades<br />

of research by Professor Meloni<br />

to understand the mechanisms<br />

involved in brain injury after stroke<br />

and identifying potential –<br />

neuroprotective targets to aid the<br />

development of new therapies to<br />

reduce injury.<br />

“Due to its neuroprotective<br />

mechanisms of action, ARG-007<br />

shows promise as a neuroprotective<br />

therapeutic for other acute<br />

disorders such as neonatal<br />

asphyxia and traumatic brain injury,<br />

and chronic neurodegenerative<br />

conditions such as Alzheimer’s<br />

disease and Parkinson’s disease.”<br />

“These trials can take many years<br />

but could be a game changer. We’re<br />

hoping it will reduce brain damage<br />

after a stroke and improve patient<br />

outcomes,” said Professor Meloni.<br />

“It would be incredible if the<br />

Phase 2 and 3 clinical trials were<br />

successful and ARG-007 became<br />

a standard model of care for stroke<br />

patients worldwide.”<br />

Julia Tran<br />

<strong>MSWA</strong> Research Coordinator<br />

New report calls for faster<br />

MS diagnosis<br />

A new report has revealed the prolonged time to<br />

diagnose multiple sclerosis (MS) and highlighted the<br />

urgent need for increased investment in MS research<br />

and enhanced awareness of the disease.<br />

The 'My Diagnosis' report produced by MS Australia and<br />

released on World MS Day has revealed the average<br />

time from onset of symptoms to an MS diagnosis<br />

extends nearly four years.<br />

The report draws on data from the Australian MS<br />

Longitudinal Study (AMSLS), a survey-based research<br />

study established in 2002 that collects patient-reported<br />

outcomes from 2,500 people living with MS.<br />

A review of that data by the Menzies Institute for Medical<br />

Research at the University of Tasmania examines trends<br />

in MS diagnosis over the past 25 years.<br />

Since the introduction of the first disease-modifying<br />

therapies for MS treatment in 1996, the average time<br />

to diagnosis has reduced from five years and almost<br />

four months in 1997-2000, to three years and almost<br />

11 months in 2017-21.<br />

My diagnosis experience<br />

Laura Birchall<br />

"Waiting for a diagnosis had an enormous impact on me<br />

emotionally, my ability to focus and my ability to work,"<br />

"I think if something feels a little bit off, even if it's not<br />

stopping you from doing your day-to-day activities. If<br />

there's been a change, if something doesn't feel right,<br />

talk to people in your life about it, and listen to them<br />

when they tell you to go to the doctor.”<br />

While this reduction in diagnosis times is good news<br />

at a population level, there are still many people who<br />

experience a very long wait time to diagnosis.<br />

To improve MS diagnosis time, the report details three<br />

key areas that need to be addressed:<br />

• Improved funding for research to help identify<br />

methods for earlier detection and intervention of MS.<br />

• Better education and awareness of MS among<br />

healthcare professionals.<br />

• Better community understanding of early<br />

MS symptoms.<br />

Dr Julia Morahan, Head of Research at MS Australia,<br />

said delays in receiving an MS diagnosis is critical lost<br />

time for people living with the condition, which can result<br />

in irreversible damage and profound mental distress.<br />

"We know that the longer it takes to get a diagnosis<br />

of MS, the greater the risk of damage occurring and<br />

disability accumulating, which can ultimately diminish a<br />

person's quality of life," Dr Morahan said.<br />

Read the<br />

full report:<br />

8<br />

9


<strong>MSWA</strong> news<br />

<strong>MSWA</strong> and State Buildings<br />

team up to amplify impact<br />

Community news<br />

Katanning’s generosity<br />

to aid <strong>MSWA</strong><br />

Thank<br />

you!<br />

<strong>MSWA</strong> is proud to announce<br />

the signing of our first official<br />

partnership with State Buildings in<br />

May, a significant milestone for our<br />

respective organisations, driven by<br />

a shared goal to positively impact<br />

the WA community.<br />

The new partnership leverages<br />

our mutual strengths to develop<br />

positive initiatives that will benefit<br />

<strong>MSWA</strong> Clients including, a platform<br />

to share their stories through COMO<br />

Conversations events, corporate<br />

volunteering opportunities and<br />

support for <strong>MSWA</strong>’s lottery, freeing<br />

up additional funds to be directly<br />

invested in research and support<br />

for people living with neurological<br />

conditions.<br />

To celebrate this partnership, Clients<br />

and supporters of <strong>MSWA</strong> can<br />

access an exclusive code to receive<br />

20 per cent off the best available<br />

rate on all rooms and suites at<br />

COMO The Treasury, located in the<br />

State Buildings. Available for stays<br />

from now until 31 May 2025 using<br />

the QR link below! Simply quote the<br />

code ‘<strong>MSWA</strong>’ when prompted.<br />

As part of State Buildings’<br />

commitment to foster an inclusive<br />

community, the hotel offers fully<br />

accessible heritage rooms, to ensure<br />

guests with additional physical<br />

needs can relax and unwind in style.<br />

<strong>MSWA</strong> Head of Philanthropy and<br />

Partnerships Angela Thisainayagan<br />

said the partnership would bring<br />

together expertise, networks and<br />

resources to create initiatives that<br />

foster change.<br />

“We are proud to work in partnership<br />

with the State Buildings team to<br />

actively pursue our shared goals<br />

and to make a positive social impact<br />

for our community,” she said.<br />

“This partnership will enable <strong>MSWA</strong><br />

to direct more resources towards<br />

fulfilling our purpose of supporting<br />

West Australians living with<br />

neurological conditions, as we work<br />

together to build more inclusive,<br />

compassionate and accessible<br />

communities.”<br />

The agreement follows a<br />

collaboration for the <strong>2024</strong> Mega<br />

Home Lottery, in which COMO The<br />

Treasury finished the Marmion Grand<br />

Prize home with the luxury touches of<br />

their renowned hotel rooms.<br />

Located at Perth’s Point Zero –<br />

the marker from which all distances<br />

to Perth are measured – the State<br />

Buildings has been the heartbeat<br />

of the city since 1875 and –<br />

continues to be a meeting place to<br />

bring community together.<br />

Over its 140-year history, the former<br />

government building once housed<br />

the State Treasury, Immigration<br />

Officers, a Police Court and Perth’s<br />

original general Post Office (just<br />

to name a few) but has been reinvigorated<br />

as a vibrant hub of<br />

retail and dining options, including<br />

restaurants Wildflower, POST, Cape<br />

Arid Rooms, Petition and Long Chim.<br />

State Buildings General Manager<br />

Jesse Tibert was proud to partner<br />

with a like-minded organisation<br />

and was eager to see what could<br />

be achieved over the two-year<br />

partnership.<br />

“Both <strong>MSWA</strong> and State Buildings<br />

are aligned in our commitment to<br />

supporting the West Australian<br />

community and by working together<br />

our impact can be amplified,” Mr<br />

Tibert said.<br />

“We look forward to delivering on a<br />

number of exciting initiatives and<br />

connecting with the neurological<br />

community to gain understanding<br />

and insight as we work to shape a<br />

better community for all.”<br />

<strong>MSWA</strong> CEO Melanie Kiely offered her heartfelt thanks<br />

to Katanning Rotary Club’s Treasurer Cameron Taylor<br />

and his wife Fiona Taylor for the club’s choice to name<br />

<strong>MSWA</strong> as the 2023 major beneficiary of their annual<br />

fundraiser for the second time, the first in 2018.<br />

For a regional club with around 25 members, Katanning<br />

Rotary Club has been going above and beyond for<br />

many years to give back to those in need through their<br />

impressive fundraising efforts.<br />

While they conduct smaller fundraisers throughout<br />

the year, their annual major fundraising event is an<br />

international dinner which has become a highlight in<br />

the town’s social calendar, with over 200 people<br />

attending and digging deep to support their chosen<br />

cause for the year.<br />

“Each year we decide on a dedicated main recipient<br />

of our fundraising efforts which is usually determined<br />

by something that’s recently impacted people in our<br />

community,” said Cameron.<br />

“Our annual international dinner major fundraiser gets<br />

the whole community together and we pick a different<br />

country and cuisine to celebrate each year as we have<br />

an extremely multicultural community.”<br />

“In other years we’ve supported organisations like the<br />

Royal Flying Doctor Service, Ronald McDonald House,<br />

and Cancer Council, while also divvying up the monies to<br />

community services like local schools, local aged care<br />

facilities, local youth activities, food banks and more.”<br />

In any given year the club can successfully raise around<br />

$35,000, which is spread across a whole range of<br />

different organisations. Of course, some of that goes<br />

back into the club to enable them to continue and expand<br />

their fundraising efforts.<br />

The decision to choose <strong>MSWA</strong> as the 2023 major<br />

beneficiary was close to Cameron’s heart as his wife<br />

Fiona was diagnosed with multiple sclerosis in 2022.<br />

Katanning Rotary Club Treasurer Cameron Taylor,<br />

his wife Fiona Taylor, <strong>MSWA</strong> CEO Melanie Kiely and<br />

<strong>MSWA</strong> CMO Tony Millar.<br />

“I personally have known a few people with MS over the<br />

years, there were a couple of people in our community<br />

back in 2017 and that’s when we first decided to donate<br />

to <strong>MSWA</strong>,” he said.<br />

“But it recently became very close to home with my<br />

wife’s diagnosis, and it was a unanimous club decision to<br />

choose <strong>MSWA</strong> again for 2023.”<br />

“We know that a portion of the funds we donate goes<br />

into ongoing groundbreaking research and that’s really<br />

important to us; the medication my wife is on is fairly<br />

new and has been determined by her neurologist as<br />

the best treatment for her and we’re sure the funds<br />

available to <strong>MSWA</strong> contributed towards that research,<br />

knowledge, and ability to be able to target medication to<br />

the particulars of Fiona’s case.”<br />

We extend our sincerest gratitude to the Katanning<br />

Rotary Club and the wider Katanning community for<br />

their generosity in choosing to support <strong>MSWA</strong> and<br />

the work we do to empower those living with a<br />

neurological condition.<br />

10 11


Community news<br />

Emma and Amy’s thyme<br />

to make a difference<br />

For Perth business owners, Emma and Amy Southern, it<br />

was an obvious choice to donate the proceeds of their<br />

first cookbook to <strong>MSWA</strong>, having both battled with MS<br />

for years. The pair were both diagnosed with MS over<br />

a decade ago, a fact that often surprises those who<br />

encounter them.<br />

“It’s always a bit of a shock for people when they learn<br />

about Amy and my MS diagnosis,” remarked Emma.<br />

“Interestingly, our MS diagnosis didn’t lead us to meet<br />

each other, it was actually through a friend.”<br />

Their fateful encounter occurred six years ago at a<br />

mutual friend’s farewell party. The conversation took an<br />

unexpected turn when Amy made a light-hearted remark<br />

about having MS, prompting Emma to respond.<br />

“I remember telling Amy that she shouldn’t joke about<br />

having MS because I have it,” Emma recalled. “To my<br />

surprise, Amy revealed that she also had MS. That’s when<br />

the connection clicked.”<br />

As they exchanged details about their respective<br />

neurologists and treatments, a sense of disbelief washed<br />

over Emma.<br />

The similarities were uncanny – Amy’s neurologist<br />

practiced in the same facility where Emma sees her<br />

neurologists, and they visit the same hospital to receive<br />

the same treatment of Tysabri every month.<br />

“It turns out, for years, we missed crossing paths with<br />

each other within a week apart every month. How<br />

strange is that!” Emma remarked.<br />

“Back then, we would have to visit the hospital every<br />

month and it would take up most of our day. Now, all we<br />

do is a simple injection in the comfort of our home.”<br />

This enabled them to lead more active lifestyles and<br />

pursue their passions for travel and food without the<br />

restrictions of regular hospital appointments.<br />

Both avid travellers, Emma and Amy relish in exploring<br />

local cuisines.<br />

“We enjoy trying out various local restaurants and cafes<br />

whenever we travel,” Emma mentioned.<br />

“We’ve been making our own spice blends at home for<br />

cooking, and during COVID, we thought why not make it a<br />

business and share it with others!” Amy added.<br />

The pair established Outer Spice, offering a unique line<br />

of curated spice and seasoning blends. Since launching<br />

in November 2020, the business has received numerous<br />

accolades, including being named Producer of the<br />

Year for the 2023 Swan Business Awards and winning<br />

International Flavor Awards and Scovie Awards in<br />

United States.<br />

Amy is also a certified international barbecue judge with<br />

the Kansas City Barbecue Society, and her tastebuds<br />

and knowledge about flavour and food, proves to be<br />

useful for the business as well!<br />

“It’s wonderful how we’re able to connect with the<br />

community through food. It’s a really good feeling seeing<br />

returning customers. People bought our products. They<br />

liked it and they came back for more!” Emma said.<br />

The successes from their business have also given the<br />

pair the confidence to release their first cookbook - Spice<br />

Odyssey Recipes from Outer Spice – Cookbook Vol.1.<br />

The cookbook contains finger-licking recipes using their<br />

curated blend of spice and seasoning blends, with part of<br />

the proceeds going towards <strong>MSWA</strong>.<br />

“Our stories are unique in that we both have MS<br />

and we’re in a fortunate position to give back to the<br />

community,” Emma commented.<br />

The pair has also contributed to fundraising for <strong>MSWA</strong>, with<br />

Emma having taken part in the <strong>MSWA</strong> Ocean Ride twice.<br />

Emma provided some words of encouragements for<br />

those living with MS.<br />

“When I first got diagnosed, I felt like it was the end of the<br />

world. I went down the rabbit hole on the internet, I stayed<br />

awake at night and panicked about my future. But with<br />

the right resources and people around you, it’s going to<br />

be manageable, and you can live with it!”<br />

Amy added, “Research and advancements in medicine<br />

have come a long way and has made a big difference<br />

for the MS community. You don’t have to feel alone, there<br />

is help.”<br />

<strong>MSWA</strong> would like to thank Emma and Amy for sharing their story with MS,<br />

and for their contribution to improving the lives of West Australians living<br />

with neurological conditions.<br />

Frocking up for a fabulous future<br />

When you fill a garden with a gaggle of gorgeous ladies<br />

(and one finely suited gentleman), you can be certain of<br />

two things; there will be bubbles and there will be fun!<br />

And this well-dressed flock sure knows how to create<br />

a circle of support around the guest of honour, Noelle<br />

Grausser, who was diagnosed with MS in 2006.<br />

Event hostess with the mostest Marlisa, Noelle’s<br />

daughter, spent weeks meticulously planning the charity<br />

event, with the funds to be donated for purpose of MS<br />

research in the hope for a brighter future.<br />

Initially setting her sights on a $3,000 target, Marlisa<br />

smashed it out of the park with a little help from her<br />

friends to raise $4,200!<br />

The stroke of genius was a live auction for a coveted<br />

6-night stay at Marlisa’s boutique retreat hotel in Lombok,<br />

called ‘Naia’, where Noelle often helps to perform<br />

accessibility testing.<br />

“That in itself raised over $1,500! I was so excited,”<br />

Marlissa said.<br />

With cost-of-living pressures mounting, Marlisa said<br />

fundraising was becoming an increasingly hard task,<br />

but believed it was Noelle’s inspirational attitude that<br />

spurred her guests to dig deep.<br />

Having been diagnosed the week of Christmas,<br />

Marlisa recounted the difficulty of grappling with the<br />

life-changing news, while her mum defiantly hid her<br />

symptoms from the family so as not to take away from<br />

the occasion.<br />

Scan the QR code to get your<br />

copy of the Spicy Odyssey<br />

Recipes from Outer Spice.<br />

“They know my mum’s story; they know how strong,<br />

determined and resilient she is,” Marlisa said.<br />

“They see how she continues to live life to her fullest<br />

and not allow MS to control her, and I think that’s why we<br />

get the support from the people around us, they are in<br />

admiration of her strength and her capability.”<br />

The success of the event left Marlisa with an<br />

overwhelming sense of pride.<br />

“The vibe of the day was electric, everyone was there<br />

because they wanted to have a good time and to show<br />

their support for mum,” she beamed.<br />

“It just shows that when there are tough days, people are<br />

always there in your corner backing you.<br />

“And for the staff at <strong>MSWA</strong> to give up their time on the<br />

weekend to come along, including therapists Akiko,<br />

Yasuko, Oli and his wife Rosie, it shows the next level of<br />

support that <strong>MSWA</strong> provides in looking after people with<br />

neurological conditions – and that is a real credit.”<br />

Our heartfelt thanks to Marlisa for her incredible fundraising<br />

effort, your selfless contribution means so much.<br />

Interested in hosting your own community<br />

fundraising event?<br />

Reach out to events@mswa.org.au for advice!<br />

12 13


Community news<br />

Community news<br />

Life-changing<br />

phone calls<br />

Scan to watch the<br />

Grand Prize winner call.<br />

Introducing our<br />

People's Choice winner!<br />

<strong>MSWA</strong> recently made some lifechanging<br />

phone calls to everyday<br />

West Australians, informing them<br />

of their lucky win in the Mega Home<br />

Lottery. This included family man<br />

David, who was pinching himself<br />

when he received the news of<br />

winning the $3.6m Grand Prize.<br />

David, along with his wife Julie and<br />

daughter Jo, were in awe of their<br />

stunning new abode. The $3.1m<br />

Marmion home was just mere<br />

minutes from the beach and had<br />

been newly renovated by awardwinning<br />

renovators, Lux Interiors.<br />

“I received the phone call and<br />

thought somebody was pulling my<br />

leg! It still hasn’t sunk in for me yet<br />

that this is ours!” David exclaimed.<br />

This is the tenth year in a row David<br />

has supported the Mega Home<br />

Lottery and when asked why he has<br />

supported the cause year after<br />

year, David said the biggest reason<br />

why he continued to buy tickets was<br />

<strong>MSWA</strong>'s focus on research and to<br />

ultimately find a cure.<br />

“<strong>MSWA</strong> is also helping people<br />

with neurological conditions in the<br />

community. They’re approaching<br />

it from both ends and that for me,<br />

means a lot, and why I’ve supported<br />

them for the past few years.”<br />

Jo, David’s daughter also shared<br />

their family’s story of moving to<br />

Western Australia and starting life<br />

from scratch.<br />

“About 10 years ago, mum and dad<br />

uprooted their whole life to look after<br />

their son’s children. They have been<br />

grandparents raising grandchildren,<br />

and it hasn’t been easy,” she said.<br />

“This couldn’t have happened to<br />

two more deserving people. This is<br />

going to make a world of difference<br />

to them and their grandchildren, who<br />

will now be looked after for the rest<br />

of their lives.”<br />

Earlier this year, Raelene became<br />

the newest resident of North<br />

Fremantle, having won the Early Bird<br />

Prize of the $1.6m fully refurbished<br />

apartment. It was the twelfth year in<br />

a row that Raelene, and her partner,<br />

Rick, had supported the cause.<br />

“There’s nothing better than the<br />

feeling that you’ve contributed… it’s<br />

such a worthy cause. I’ll continue to<br />

encourage others to buy a ticket,”<br />

Raelene said.<br />

“We’re evidence that ordinary<br />

people can win!”<br />

Early bird winners<br />

Raelene and Rick.<br />

Scan to watch the<br />

winner call.<br />

Grand prize winners David<br />

and family with <strong>MSWA</strong> CEO<br />

Melanie Kiely.<br />

Alongside the Early Bird Prize and the<br />

Grand Prize winners, there were also<br />

15,000 other lucky winners who took<br />

home a range of amazing prizes,<br />

including electronics, holidays, cash<br />

prizes and gift vouchers.<br />

This is the first time we’ve extended<br />

the invitation to staff members<br />

from across our organisation to ring<br />

some of our major prize winners and<br />

inform them of the good news. It<br />

was definitely a special moment for<br />

our team!<br />

Our People and Culture Officer, Madii,<br />

made a call to one of our $10,000<br />

cash prize winners, who was beyond<br />

ecstatic to have won the prize, “oh<br />

my gosh, you’re joking? I had told my<br />

partner we would win something, and<br />

it actually happened!”<br />

Our Marketing Officer, Sam, also<br />

spoke to the winner of our Antarctica<br />

Trip for two, valued at $16,000,<br />

who said "it's my first time winning<br />

something this big. It’s beyond my<br />

wildest dreams and I’m so excited for<br />

my trip!”<br />

The <strong>MSWA</strong> Mega Home Lottery<br />

<strong>2024</strong>A campaign draws to a close<br />

raising over $20m. A huge thank you<br />

to everyone who has contributed<br />

to the cause, to help us invest in<br />

life-changing research and fund vital<br />

services to help Western Australians<br />

living with neurological conditions.<br />

After the success of our inaugural art exhibition at the Mega Home<br />

Lottery Grand Prize home, we relocated the collection our <strong>MSWA</strong><br />

Wilson Service Centre.<br />

By showcasing the artworks here, <strong>MSWA</strong> Clients, staff and<br />

members of the wider community had the chance to visit,<br />

view and enjoy the exhibition.<br />

On 21 May, we celebrated the end of the exhibition with a morning tea f<br />

or Clients and staff, and presented the 'People's Choice Award'.<br />

When viewing the exhibition, the public was encouraged to vote for<br />

their favourite artwork. Over 600 votes were cast and Mother and<br />

Son Take on MS was awarded ‘People’s Choice’! Artist Jodee Pereira<br />

won herself a trophy and a $500 voucher. Congratulations Jodee!<br />

Jodee and her son Josh were both diagnosed with MS at the same time<br />

and the artwork was inspired by their shared journey.<br />

“The concept was something Josh came up with and his idea was for us<br />

to do it together," Jodee said..<br />

“Life not Limits is <strong>MSWA</strong>’s tagline and ... [this] resonates so well with us,<br />

and you can see this in our painting.”<br />

Mother and Son Take on MS<br />

By Jodee Pereira<br />

Colour surrounds us as we challenge the daily<br />

struggles of multiple sclerosis. Mother inspired<br />

by son, son inspired by mother, everyday.<br />

We created this together, with lesions in place,<br />

drawn and painted expressing our life.<br />

A special thanks to our teams<br />

across Marketing, Outreach<br />

and Facilities who brought this<br />

exhibition to life!<br />

Missed out on the <strong>MSWA</strong> Art<br />

Exhibition? Scan the QR code to<br />

view the gallery of artworks.<br />

14 15


Our People<br />

25 years of service celebrated:<br />

Caroline Clarke Smith<br />

A lot can change over three decades, just ask<br />

Caroline who recently retired from <strong>MSWA</strong> after<br />

25 years of service, both as a long-time volunteer<br />

and staff member.<br />

Many Albany locals are familiar with Caroline,<br />

characterised by her big smile and her light-hearted<br />

humour, she first connected with <strong>MSWA</strong> when she moved<br />

to Albany 30 years ago.<br />

Caroline vividly remembers her first visit to Albany,<br />

awestruck by its lush greenery and the beautiful<br />

coastline of the region – a far cry from the red dirt<br />

desert landscape at Kalgoorlie, where she first stayed<br />

upon moving to Western Australia from regional New<br />

South Wales.<br />

“Albany just looked like a dream vacation spot!” Caroline<br />

beamed.<br />

Persuaded by the stunning seascape, Caroline relocated<br />

to Albany with her husband.<br />

It was during this time that Caroline received her MS<br />

diagnosis and got in touch with her local outreach group,<br />

then known as the MS Society. It provided a valuable<br />

opportunity for her to connect with peers who shared<br />

similar neurological conditions.<br />

“I got in touch with the local outreach, because I didn’t<br />

know anyone down here, and it was a good opportunity<br />

for me to meet people who experienced the same things<br />

I do. I’m still in contact with these people today!”<br />

In 2009, when the Albany Outreach Coordinator position<br />

became available, Caroline thought she would fill it<br />

temporarily.<br />

“I was offered the position on a part-time basis until<br />

they could find someone else to take on the role.<br />

One thing led to another, and I was there for 15 years!”<br />

Caroline chuckled.<br />

“I should have told them I’m still waiting for you to find<br />

someone else to fill my role.”<br />

Reflecting on her journey, Caroline remembers her<br />

time fondly as the <strong>MSWA</strong> Outreach Coordinator,<br />

particularly interacting with Clients and seeing their<br />

faces light up when they achieved a new milestone or<br />

learned new skills.<br />

But nothing quite compares to her memories of<br />

organising and participating in the <strong>MSWA</strong> Albany Swim<br />

every year. Besides reaching out to local businesses<br />

for sponsorships and prize donations, she has also<br />

participated in the eight-hour swimming relay every year<br />

since its inception in 2012.<br />

“One year I was in the pool, and I had to pull two kids,<br />

one on a crocodile floatie and the other one using the<br />

kickboard, and I was pulling them both, doing laps up and<br />

down the pool. It was hilarious!”<br />

Due to an MS flare-up, <strong>2024</strong> was the first time Caroline<br />

did not participate in the swim.<br />

“I’m still a bit disappointed that I can’t participate in the<br />

swim anymore, but hey I did my time.”<br />

Caroline witnessed firsthand the growth of <strong>MSWA</strong> from<br />

an outreach group to an organisation offering services to<br />

people living with neurological conditions and the direct<br />

impact it has made on Albany's community of people<br />

living with neurological conditions.<br />

“Back then, I received a visit twice a year from the<br />

nursing and physio team,” she remembers.<br />

"As more people moved to Albany, demand for <strong>MSWA</strong>'s<br />

services grew, with people putting their hands up, saying,<br />

'We really want this.'"<br />

“Over time, the organisation became more streamlined<br />

and employed staff members, which upgraded the<br />

services from phone conversations to now being able to<br />

get services from the new Albany Service Centre.”<br />

“It’s great, because people can tangibly see where all the<br />

funds raised have gone towards.”<br />

Caroline highlights the importance of having services in<br />

regional WA, and the difference it makes to members of<br />

the tight knit community.<br />

“It’s a long trip for us folks in Albany to go up to Perth and<br />

see a neurologist or to access any allied health service.”<br />

“It makes a world of a difference to meet someone<br />

locally, who is in the know and can actually help you.”<br />

Now in retirement, Caroline is focused on recovery after<br />

undergoing spinal fusion surgery. She is also excited for<br />

some much-needed rest and for the chance to take a<br />

step back and unwind, including catching up with friends<br />

for a cuppa.<br />

Caroline has been a much-loved and key member of<br />

our team in Albany for decades, and her friendly smile<br />

will be missed now that she is hanging up her flippers<br />

and retiring. <strong>MSWA</strong> would like to express our sincerest<br />

appreciation to Caroline for her 25 years of dedicated<br />

service and wish her a swift recovery!<br />

Caroline at the new Albany Service Centre.<br />

Caroline participating in the <strong>MSWA</strong> Albany Swim.<br />

16 17


Client Special Contributions<br />

feature<br />

World MS Day<br />

‘My MS Diagnosis’<br />

World MS Day is celebrated on 30 May every year, and we’re proud to have<br />

organised a number of initiatives to acknowledge and celebrate this day of<br />

significance with our Clients, staff and the wider WA community.<br />

This year’s theme, ‘My MS Diagnosis,’ provides a great opportunity to start a conversation<br />

and raise awareness about MS. We can all bring attention to the barriers and challenges<br />

faced by people living with this condition, while highlighting the importance of continued advocacy,<br />

research and education to ensure a brighter future for the MS community.<br />

Art Without Limits<br />

In celebration of our incredibly talented <strong>MSWA</strong> Client<br />

artist community, we unveiled the Art Without Limits<br />

exhibition in the heart of Perth city at the iconic Central<br />

Park Tower.<br />

The exhibition featured a variety of stunning pieces, from<br />

sensory art and intricate handiwork to fine art drawings.<br />

It was truly a testament to the diversity of talent within<br />

our community of artists at <strong>MSWA</strong>. The exhibition ran for<br />

five days, and the public was welcomed to marvel at the<br />

pieces and start a conversation in acknowledgement of<br />

World MS Day.<br />

Our Client artists were also invited to a morning tea to<br />

celebrate the exhibition. They were beaming with joy and<br />

pride as they wandered through the space, admired the<br />

pieces and snapped some photos with their works.<br />

“I could not have imagined my artwork would be<br />

displayed here in the city! My artwork is inspired by an<br />

old house in York I used to live in many years ago.”<br />

Sheila Hayfield<br />

Client artist<br />

“I like to create junk journals using recycled paper to create<br />

scrapbooks. This is the first time I’ve created a hanging piece,<br />

but I still wanted to make it interactive, so you can pull out letters<br />

and cards from the artwork. It’s also the first time I’ve included<br />

photos of my family in my art – there are photos of great<br />

grandmother, grandad and dad on there too!”<br />

Susan Finlay<br />

Client artist<br />

18 19


Client Special Contributions<br />

feature<br />

World MS Day<br />

‘My MS Diagnosis’<br />

Quiz Night for MS<br />

In an <strong>MSWA</strong> first, we hosted a Quiz Night at the Perth<br />

Town Hall in celebration of World MS Day. Families,<br />

carers, and <strong>MSWA</strong> team members came together for a<br />

night of friendly competition, with a quiz night hosted by<br />

Bamboozled Quizmasters.<br />

Our participants were exceptionally skilled at the quizzes,<br />

so much so that we had a three-way tie for first place!<br />

Ironically, team ‘The Participation Award’ emerged<br />

victorious, winning first place, beating team ‘Lord Ne-Yo’<br />

and team ‘Brand-Aids’.<br />

Wendy Lowe, Dion Russell and Angelica Franz were the<br />

lucky winners of our raffle, with thanks to our sponsors<br />

State Buildings, Retravision and Optus Stadium for<br />

donating some incredible prizes. Over $800 was raised<br />

to help set-up the new Butler Outreach pilot program.<br />

Perth lights up red<br />

Iconic landmarks and bridges across Perth were<br />

lit up red in recognition of World MS Day!<br />

This included:<br />

• Fraser Avenue Tree Lights - Kings Park<br />

• Council House<br />

• Trafalgar Bridge<br />

• Matagarup Bridge<br />

• Mount Street Bridge<br />

• Northbridge Tunnel, Sky Ribbon<br />

• Joondalup Drive Bridge<br />

The WA community was encouraged to<br />

take photos and spread awareness of the day<br />

with the hashtag #WorldMSDay.<br />

Hunting for red hearts<br />

<strong>MSWA</strong> team members also celebrated World MS Day with a fun Heart Challenge!<br />

Chocolate hearts were hidden across our offices and service centres, with<br />

staff encouraged to be on the look-out and share their exciting findings. Senior<br />

Physiotherapy Assistant, Zoe Harrisson, found a chocolate heart near the coffee<br />

corner at the Beechboro hub – her usual first stop when she arrives for work!<br />

Thank you to<br />

everyone who<br />

contributed this<br />

World MS Day by<br />

sharing their stories,<br />

raising awareness<br />

and campaigning<br />

for change for West<br />

Australians living<br />

with MS.<br />

Senior Physiotherapy<br />

Assistant Zoe Harrisson.<br />

Document Control &<br />

Policy Compliance Officer<br />

Beata Potrawiak.<br />

Scan the QR<br />

code to view the<br />

photo gallery.<br />

20<br />

21


Client Our People Contributions<br />

Our People<br />

National Volunteer Week<br />

Growing together<br />

Shining the spotlight<br />

on event volunteers<br />

National Volunteer Week is an important opportunity to<br />

reflect on the significant impact our <strong>MSWA</strong> volunteers<br />

have on our community. This year’s national theme,<br />

‘Something for Everyone’, highlights the potential of each<br />

of us to volunteer, whether in big or small ways, as a onetime<br />

effort or constant commitment. There is something<br />

each of us can do to make a difference.<br />

At <strong>MSWA</strong>, we’re fortunate to have many amazing people volunteering their time for our events. Event volunteers<br />

often arrive early and stay long after participants have gone home, yet they remain enthusiastic and dedicated to<br />

help out until the end. They are the true unsung heroes behind our events at <strong>MSWA</strong>.<br />

On behalf of the <strong>MSWA</strong> Events team, we wanted to express our gratitude and shine a spotlight on Graham Little and<br />

Chris Genev, who have devoted countless hours to volunteering with <strong>MSWA</strong> over the years. We nominated these two<br />

extraordinary individuals for the WA Volunteer of the Year Awards.<br />

On 21 May, <strong>MSWA</strong> volunteers were invited to join us<br />

for the Volunteer Appreciation Lunch at the RAAFA Club<br />

in Bull Creek. Thirty-five volunteers attended,<br />

and each volunteer was presented with a volunteer<br />

appreciation certificate along with a ‘grow jar’<br />

and the <strong>2024</strong> Volunteering Australia lapel pin.<br />

Each grow jar contained different fruit or<br />

vegetable seeds, from basil to strawberry, coriander<br />

and sunflower. These jars each had a message<br />

attached, ‘thank you for growing with us’, representing<br />

the integral role volunteers play in helping <strong>MSWA</strong><br />

grow and our ability to provide services to the<br />

neurological community of WA.<br />

During the luncheon, we also celebrated the incredible<br />

milestones achieved by our volunteers, including:<br />

• Sister Marie Moriarty, volunteering for nearly 30 years<br />

• Lesley Pitt, volunteering for 18 years<br />

• Claire Kennelly, volunteering for 15 years<br />

Whether it’s just for one day or decades<br />

of service, <strong>MSWA</strong> extends our gratitude<br />

and thanks to every single volunteers.<br />

We couldn’t do what we do without you!<br />

Jeni Donald<br />

People & Culture Advisor<br />

Graham Little<br />

Graham Little is just a regular fella, who loves to<br />

spend time looking after his grandchildren and<br />

travelling with his wife, yet he always finds time to<br />

give back to the community. We have been fortunate<br />

to have him at <strong>MSWA</strong> events since 2014. You may<br />

have spotted him volunteering at the <strong>MSWA</strong> Step<br />

Up, Ocean Ride, Areana Ascent and the Central Park<br />

Plunge. He can also be seen out and about at the<br />

Perth CBD on 30 May every year, shaking collection<br />

tins for donations on World MS Day.<br />

Graham is always eager to help when possible,<br />

fitting our events into his busy volunteering<br />

schedule. He also volunteers his time with the<br />

Telethon Community Cinemas, WA Cancer Council,<br />

or attending other large sporting events around<br />

Perth and regional areas.<br />

Chris Genev<br />

Chris Genev, another long-time <strong>MSWA</strong> volunteer,<br />

has been volunteering with us since 2016, after a<br />

friend suggested her to get involved. She’s become<br />

a regular face at all our event including the <strong>MSWA</strong><br />

Ocean Ride, Areana Ascent, Step Up, Charity Dinner<br />

Auctions, and the Central Park Plunge. She manages<br />

all this while working full-time and volunteering at<br />

numerous community events around Perth. Like<br />

Graham, she plays a big role at of the Telethon<br />

Community Cinemas, serving as the Night Manager.<br />

In our eyes, these two are worth their weight in<br />

gold and are our Event Volunteers of the Year!<br />

Trish Watson<br />

Events and Giving Officer<br />

22 23


Client Contributions<br />

Client poetry<br />

What you don’t see<br />

From the outside I look fine, I look as normal as can be,<br />

but deep down inside, I’m scared of just what might be.<br />

I look strong and normal with maybe a slight shake,<br />

but while you are sleeping, I am still wide awake.<br />

I carry on with my day as if nothing has changed,<br />

but I am dealing with words that have been totally rearranged.<br />

I walk every day and you think nothing is wrong,<br />

but my stride has slowed down, and my will nearly gone.<br />

I push myself physically, you see me at the gym,<br />

but I hide the pain in my body when the rigidity sets in.<br />

You say I look good, still look the same,<br />

but when I look in the mirror, all I see is shame.<br />

I try to stay social, be a part of many things,<br />

but my thoughts have now changed as the anxiety creeps in.<br />

I keep smiling and think, ‘hey, things could be worse’,<br />

but the sadness inside me makes me feel like I’ve been cursed.<br />

So if you don’t hear from me, please don’t feel ignored,<br />

I am just trying to survive the tiredness and this life – my new norm!<br />

I intend to stay positive, beat this damn thing,<br />

and with your help and support, I can achieve anything.<br />

Rebecca Baskerville<br />

Accepting<br />

Smallest tasks provoke exhaustion,<br />

Prompting aggravated frustration,<br />

Taking time out to recover essential,<br />

Reflecting on restricted potential,<br />

Mobility everyday challenging,<br />

Constraints like vultures gathering,<br />

Others’ attempts to intercede,<br />

Only amplify the growing need,<br />

Reacting with stubborn insistence,<br />

Unrealistic fanciful resistance,<br />

Overreacting willfully shocking,<br />

Reality at the door a-knocking.<br />

Several options to embrace,<br />

Roll over without a trace,<br />

Retreat within and isolate,<br />

Resist and slowly percolate,<br />

Become a white flag waver,<br />

and from your life surrender.<br />

Rather than surrendering,<br />

or the past lamenting,<br />

or proficiency pretending,<br />

Why not simply try ACCEPTING?<br />

Accept what is,<br />

Let go of what was,<br />

Have faith in what will be.<br />

Peter Jones<br />

February <strong>2024</strong><br />

Wake up humanity!<br />

My name is Nina, and this is my view from<br />

where I sit every day.<br />

I am aged 49 and I was diagnosed with MS at the age of<br />

14. I have MS, but that is not my whole identity.<br />

I am an amazing being, I exist on this amazing planet<br />

earth, and I am so, so passionate about our earth. I would<br />

like to wake humanity up to realise the gift it has been<br />

given for free! I wanted to write a message to my fellow<br />

human beings. We are the most capable species of this<br />

planet, and we need to come together to protect and<br />

save the one thing that is so precious, this earth.<br />

The earth, the complexity of this planet just overwhelms<br />

me. All of nature is so perfectly interconnected, we are<br />

all such amazing beings, we are all put together so<br />

intricately just like trees, just like all the other animals.<br />

When I look at the trees and the importance of the root<br />

system, that is what holds the earth together, that is<br />

what knits the earth together. Without the root system, it<br />

wouldn’t be able to be so strong. The importance of trees<br />

cannot be understated. I feel like the trees are my family,<br />

they are my brothers and sisters. The earth and I are one.<br />

From where I sit and observe, humanity’s path has been<br />

taken off compass, compared to the trajectory we were<br />

on. Humanity has been infected with a seed of greed<br />

and we are destroying our planet and ourselves. The<br />

floods and fires are getting greater and stronger, and<br />

every living creature is suffering. We are destroying our<br />

environment and the habitats of animals everywhere. My<br />

chest tears apart with pain to see this suffering.<br />

All our human focus must be put on saving this ‘ball’. We<br />

forget how important everything is to every life form who<br />

relies on this ball for its own existence. We must care for<br />

all these life forms, for without them there is no earth and<br />

without the earth we are doomed.<br />

There are so many of us humans and if we all decided to<br />

work together on this most important thing, if we put all<br />

our focus into this, we would save the earth.<br />

Most of us humans are able bodied and can save this<br />

planet, why aren’t we all out there saving the earth! It is so<br />

important to get back to nature, out of the office and your<br />

apartments and reconnect to our earth.<br />

Unfortunately, it seems like humans only learn through<br />

hardship and suffering. Please, let’s get onto it before it’s<br />

catastrophic. I find it soul destroying to be a part of this<br />

human race that is destroying this beautiful home<br />

of mine.<br />

How dare we take advantage of this sensational gift.<br />

Our earth needs us to find the way before it’s too late.<br />

I really hope that you can hear my message and continue<br />

to spread my message for me.<br />

Thank you,<br />

Nina<br />

<strong>MSWA</strong> Client<br />

24 25


Counselling<br />

Embracing<br />

<strong>Makuru</strong><br />

Wellbeing<br />

Cultivating mindfulness:<br />

new Wellbeing service<br />

New Service<br />

Alert!<br />

June and July are the coldest and<br />

wettest months of the year. Often<br />

associated to the winter season,<br />

it is also the Noongar season of<br />

<strong>Makuru</strong>, characterised by shorter<br />

days and gloomy skies. Despite the<br />

change in weather, winter brings<br />

a unique set of psychological<br />

benefits that can positively impact<br />

our mental wellbeing, providing a<br />

sense of comfort and joy during the<br />

colder months.<br />

<strong>Makuru</strong> provides us the opportunity<br />

for introspection and reflection.<br />

The quieter, more contemplative<br />

atmosphere can encourage us<br />

to slow down, take stock of our<br />

lives, and reflect on our goals<br />

and priorities. This period of<br />

introspection can be valuable for<br />

personal growth and self-discovery,<br />

as we have the time and space to<br />

delve deeper into our thoughts<br />

and emotions.<br />

During the winter season we<br />

naturally seek for cosiness and<br />

comfort, which can be incredibly<br />

soothing for the mind and body.<br />

Curling up by the fireplace with a<br />

warm blanket, enjoying a hot cup of<br />

tea, or taking a leisure stroll in nature<br />

can evoke feelings of relaxation<br />

and contentment. These simple<br />

pleasures can help reduce<br />

stress and anxiety, providing a<br />

much-needed respite from the<br />

hustle and bustle of everyday life.<br />

Getting outdoors during the colder<br />

months can boost our mood and<br />

enhance our sense of wellbeing.<br />

Gentle physical exercise helps<br />

our body to release endorphins,<br />

reducing stress and anxiety, and<br />

elevating our mood.<br />

The winter season fosters a sense<br />

of community and togetherness,<br />

as seen in gatherings around the<br />

dinner table with family or friends.<br />

These shared experiences can<br />

deepen our sense of belonging and<br />

strengthen our support networks.<br />

The beautiful winter landscapes<br />

can also have a profound impact<br />

on our mental health. The sight of<br />

rain, thunderstorms, dew on grass,<br />

and amazing cloudscapes can<br />

evoke feelings of awe and wonder,<br />

fostering a sense of appreciation<br />

for the natural world. Studies have<br />

shown that exposure to nature can<br />

reduce stress, improve mood, and<br />

increase feelings of happiness<br />

and wellbeing.<br />

The season of <strong>Makuru</strong> also teaches<br />

us a valuable lesson in resilience<br />

and adaptability. Dealing with the<br />

challenges of cold weather, slippery<br />

roads, and seasonal illnesses can<br />

help build our coping skills and<br />

fortitude. By facing and overcoming<br />

these obstacles, we develop a sense<br />

of strength and perseverance that<br />

can serve us well in other areas of<br />

our lives.<br />

While winter may have its<br />

challenges, it also offers a wealth<br />

of psychological benefits that can<br />

enhance our overall wellbeing.<br />

From fostering introspection and<br />

reflection to providing comfort and<br />

joy, winter has the power to nourish<br />

our minds and souls.<br />

By embracing the unique gifts of<br />

<strong>Makuru</strong>, we can cultivate a sense of<br />

gratitude, resilience, and happiness<br />

that will carry us through the colder<br />

months and beyond.<br />

Jean Hudson<br />

<strong>MSWA</strong> Senior Counsellor<br />

Credit: Shawn Pang<br />

Feeling stressed, busy,<br />

overwhelmed or experiencing all<br />

of these emotions at once? In the<br />

hustle and bustle of life, it can be<br />

difficult to prioritise and put your<br />

wellbeing first.<br />

If you’re feeling these emotions, you<br />

may be interested in <strong>MSWA</strong>’s newly<br />

introduced Wellbeing service.<br />

The service is centred around<br />

resiliency and health promotion,<br />

utilising evidence-based tools and<br />

resources to help Clients overcome<br />

obstacles, foster resiliency and<br />

feel empowered.<br />

Through this service, individuals<br />

can cultivate mental and physical<br />

resilience through deliberate<br />

practices like mindfulness,<br />

which can help reduce stress and<br />

anxiety levels, while enhancing<br />

overall wellbeing.<br />

We are introducing a range of<br />

modules to teach easy-to-follow<br />

mindfulness practices that can be<br />

implemented into your daily routine<br />

and significantly improve your<br />

overall wellbeing. These techniques<br />

can be practiced independently<br />

or in combination with one<br />

another to build up your wellness<br />

toolbox, and help you manage<br />

everyday challenges.<br />

Module 1: Grounding<br />

This practice involves using breath<br />

and senses to conduct a gentle<br />

guided body scan, bringing our<br />

focus back to the present moment<br />

and encouraging us to ‘drop the<br />

struggle’. By repeatedly practicing<br />

this technique, it can help us feel<br />

renewed and recharged.<br />

Module 2:<br />

Quieting the overactive mind<br />

Similar to strengthening physical<br />

muscles, this practice strengthens<br />

‘mental muscles’ by being mindful<br />

of our thoughts and learning to take<br />

control of them, directing them to<br />

be more helpful to us. Part of this<br />

practice is learning how to ‘unhook’<br />

from ‘sticky thoughts’ to gain more<br />

clarity and focus in your mind.<br />

Module 3: Befriending our emotions<br />

Often, our default way of dealing<br />

with challenging feelings is to push<br />

them down and distract ourselves.<br />

This can cause more stress in our<br />

system which is not beneficial for<br />

our physical health.<br />

Learning to be mindful of our<br />

emotions begins with recognising<br />

our feelings and understanding the<br />

wise messages they can bring.<br />

This practice is great to help<br />

process and manage<br />

difficult emotions and<br />

can help increase our<br />

emotional resilience.<br />

Module 4: Self Compassion<br />

When our reality does not match our<br />

expectations or where we would like<br />

to be, it can be difficult to accept.<br />

Often, we are our biggest self-critics.<br />

Part of the Self Compassion<br />

practice is the concept of ‘radical<br />

acceptance’. That is accepting<br />

what is not under your control and<br />

embracing what is happening now in<br />

a non-judgmental way.<br />

If you are interested in participating<br />

in the above, or other wellbeing<br />

modules on offer to help fill your<br />

wellbeing toolbox, please contact<br />

<strong>MSWA</strong> Wellbeing Manager<br />

michaela.mundy@mswa.org.au<br />

or enquire with your Client<br />

Liaison Coordinator.<br />

Janice Petrovic<br />

<strong>MSWA</strong> Counsellor<br />

26 27


Employment Support<br />

Occupational Therapy<br />

New Service<br />

Alert!<br />

Creating employment<br />

connections<br />

Rehabilitation of the mind<br />

Calling all valued <strong>MSWA</strong> Clients who are employers,<br />

who may own, or are connected to, a WA business.<br />

Have you ever considered registering as a supportive<br />

employer to help other Clients seeking employment?<br />

This is your sign!<br />

So how can we make the change that<br />

needs to happen?<br />

Answer: Clients supporting each other.<br />

Do you find yourself forgetting names of people,<br />

losing track of yourself in conversation or having<br />

trouble paying attention? You’re not alone; in fact,<br />

1 in 25 people living with a neurological condition<br />

experience memory impairment.<br />

The Chamber of Commerce and Industry of Western<br />

Australia (CCIWA) recently released their report Tapping<br />

the Talent Pool of People with Disabilities 1 which makes<br />

a strong case for why more WA businesses should be<br />

building more diverse and inclusive workplaces.<br />

Specifically, the report summarised hiring a person with<br />

a disability is not just about being socially responsible,<br />

but it is an important strategic direction for businesses<br />

to build innovation, resilience, and give businesses a<br />

competitive advantage.<br />

Despite these benefits, CCIWA’s survey of WA<br />

businesses found only 60 per cent employ people with<br />

disability, and a similar percentage of respondents cited<br />

making little progress in attracting and retaining people<br />

with disabilities.<br />

For many businesses, challenges cited include a lack<br />

of applicants or an inability to coordinate workplace<br />

adjustments. It found employers often lack confidence<br />

in hiring people from this valuable group because of the<br />

perceived costs associated to coordinate adjustments<br />

and concerns about productivity.<br />

Discussions with both employee and employer groups<br />

found the barriers to employment were actually linked to<br />

discrimination, poor understanding of rights, limited job<br />

availability and marketing, insufficient support, limited<br />

access to skills training and education, inadequate<br />

workplace flexibility, disincentive for employment and<br />

lack of knowledge and confidence.<br />

Peta Flynn<br />

Employment Support Consultant<br />

1<br />

CCIWA Report <strong>2024</strong> (Tapping the talent pool of people with<br />

disabilities) A copy of the report can be emailed on request.<br />

https://cciwa.com/policy-submission/tapping-the-talentpool-of-people-with-disabilities/.<br />

Our <strong>MSWA</strong> Employment Support Service (ESS)<br />

can help break down barriers to employing a person<br />

with a disability.<br />

Our team is made up of employment support consultants<br />

who specialise in finding and maintaining employment<br />

for people living with a neurological condition, as well<br />

as supporting people who already have work to be<br />

successful in the workplace.<br />

Led by Leigh McCaffrey, the ESS team is made up of<br />

allied health therapists who apply clinical knowledge to<br />

help jobseekers find work that fits them best, for long<br />

term success.<br />

This involves advocacy with employers, regular contact<br />

to proactively address challenges, coordinating<br />

equipment through Job Access to assist in the<br />

workplace, providing recommendations for clinical<br />

interventions and listening to celebrate success or<br />

provide support when needed. Best of all, this support is<br />

free for both employers and employees.<br />

If you, or someone you know, has a business and wants<br />

to build a diverse and innovative workforce, we ask you to<br />

consider contacting the ESS team at <strong>MSWA</strong>.<br />

By taking this step, you can do your part to break down<br />

barriers around neurological conditions, nurture an<br />

inclusive organisation culture, support your recruitment<br />

team, reduce stigma and help build a positive and highly<br />

engaged workforce.<br />

Register to be involved in employing a person<br />

with a neurological condition via<br />

employment.services@mswa.org.au.<br />

Cognition is an umbrella term, used to describe how we<br />

use our brain to think. The word comes from the Latin<br />

meaning ‘to know’. Cognition refers to the complex, highlevel<br />

functions of our brain, which includes processing<br />

information, attention, memory, planning, problem<br />

solving, visual perception and verbal fluency. Right now,<br />

you’re using your cognition to read this article!<br />

It is reported that cognitive impairment affects 65 per<br />

cent of people with multiple sclerosis, 25 per cent of<br />

people with Parkinson’s disease and 60 per cent of<br />

people who have experienced a stroke. Some common<br />

deficits observed in those living with neurological<br />

conditions include a slower ability to process<br />

information, difficulties with memory, attention<br />

and learning.<br />

Cognitive Services<br />

Just as our physical bodies benefit from rehabilitation,<br />

so can our minds.<br />

The <strong>MSWA</strong> Occupational Therapy team provides a<br />

cognition service to assist Clients to improve their ability<br />

to conduct everyday tasks. Part of this service involves<br />

a comprehensive assessment and goal setting to help<br />

guide intervention measures, with the objective of<br />

seeing some meaningful changes in your daily life. This<br />

is often achieved through one-on-one sessions with your<br />

occupational therapist.<br />

MEMORehab<br />

The newly introduced program by <strong>MSWA</strong>, MEMORehab, is<br />

a six-week cognition program focused on improving our<br />

attention and memory to carry out everyday tasks. The<br />

program involves a weekly one-hour online session with<br />

our Occupational Therapy team.<br />

The evidence-based program has been proven to<br />

improve everyday memory in people with neurological<br />

disorders, even years after onset. As a result of the<br />

program, Clients reported to have used more cognitive<br />

strategies to support their memory, meet their memory<br />

related goals, and demonstrate improved learning ability.<br />

Clients have described the program as enjoyable,<br />

relevant and helpful in understanding their condition.<br />

Notably, Clients have commended the practicality<br />

of the program for providing strategies that can be<br />

implemented in their daily life.<br />

Additionally, Clients felt less anxious and more confident,<br />

with an increased reliance on their memory enabling<br />

them to maintain their independence. Some Clients have<br />

even achieved significant goals, such as staying at work.<br />

If you are interested in our cognition service or<br />

in the MEMORehab program, please contact our<br />

Occupational Therapy team via ot.groups@mswa.org.au<br />

Sarah Coutinho and Tamara McWhirter<br />

<strong>MSWA</strong> Occupational Therapists<br />

28 29


Nursing<br />

Continence matters:<br />

Part two<br />

Continuing from part one of our Continence Series, let’s delve into the topic of an overactive<br />

bladder discussing its symptoms, symptoms management and treatment options.<br />

What is an overactive bladder?<br />

Our bladder, also known as the detrusor muscle, is a<br />

hollow muscular organ that acts as a reservoir for your<br />

urine. When full, the muscle will contract to release urine.<br />

An overactive bladder refers to when your bladder<br />

contracts before it is full, sometimes contracting when<br />

you are not ready.<br />

What are the symptoms of an<br />

overactive bladder?<br />

Urinary urgency is the main symptom of an overactive<br />

bladder, it is an immediate feeling to use the toilet. It can<br />

be sudden, strong and hard to hold in.<br />

You may go to the toilet often and find it hard to hold it in<br />

before you get to the toilet. At times, you may leak urine<br />

on the way to the toilet.<br />

Factors that can affect urinary urgency includes:<br />

• Irritated bladder<br />

• Consumption of caffeine or alcohol<br />

• Not drinking enough fluid, leading to having strong,<br />

dark urine<br />

• Bladder infections and constipations<br />

• Having a neurological condition<br />

How is urinary urgency measured?<br />

Urinary urgency can be graded on a scale from 0-4.<br />

0 No urgency<br />

1 Mild urgency<br />

2<br />

3<br />

4<br />

Moderate<br />

urgency<br />

Severe<br />

urgency<br />

Urge<br />

incontinence<br />

I felt no need to empty.<br />

I emptied for other reasons.<br />

I could put it off as long as needed.<br />

I had no fear of wetting myself.<br />

I could put it off for a short time.<br />

I had no fear of wetting myself.<br />

I could not put it off.<br />

I had to rush to the toilet.<br />

I feared I would wet myself.<br />

I leaked before I could get<br />

to the toilet.<br />

How to manage an overactive bladder<br />

Drinking well<br />

Drinking plenty of fluids can help alleviate an overactive<br />

bladder. Fluids can include milk, juice and soup, however<br />

water is the best!<br />

Try to cut down on caffeine and alcohol consumption<br />

as this may upset your bladder. Look out for consuming<br />

coffee, tea, chocolate flavoured beverages and fizzy<br />

drinks such as sparkling water, cola and energy sports<br />

drinks, as these all contain caffeine.<br />

Eating well<br />

Eat plenty of vegetables, fruit, legumes (beans), grains,<br />

nuts and seeds every day. This will increase your fibre<br />

intake and help you go to the toilet regularly.<br />

It is also important to drink plenty of water when<br />

increasing fibre in your diet to prevent constipation,<br />

which can cause urinary infections and urgency.<br />

It’s a delicate balance and you can reach out to the<br />

<strong>MSWA</strong> Dietetics team to assist you in making choices<br />

regarding your diet.<br />

Live a healthy lifestyle<br />

Keep active! Exercising regularly will help to regulate your<br />

bowels. It is recommended to do at least 30 minutes of<br />

exercise, or what is recommended by your doctor or <strong>MSWA</strong><br />

Continence Physiotherapist. Simple physical activity such<br />

as brisk walking can help keep your bowel regular.<br />

Quitting smoking can lead to reduction in overactive<br />

bladder symptoms. Eliminating alcohol intake can greatly<br />

reduce the symptoms from urge incontinence.<br />

Look after your pelvic floor muscles<br />

The pelvic floor muscles give you the ability to control the<br />

release of urine, faeces and to delay emptying until it is<br />

convenient.<br />

Like any muscle of the body, pelvic floor muscles can<br />

be trained with regular, targeted exercise. Try to avoid<br />

putting extra strain on the pelvic floor muscles when<br />

using the toilet.<br />

Consult a pelvic health physiotherapist or nurse<br />

continence specialist on how you can exercise your<br />

pelvic floor muscles the right way.<br />

Practice good toilet habits<br />

Practising good toilet habits helps improve bladder and<br />

bowel health. It is normal to use the restroom four to six<br />

times a day, and you shouldn’t have to wake up multiple<br />

times in the night to empty your bladder.<br />

Good toilet habits include:<br />

• Try to go to the toilet only when your bladder is full.<br />

• Do not go to the toilet ‘just in case’ – only go when you<br />

need to.<br />

• Take your time and relax when you are on the toilet.<br />

If you rush this process, you may not empty<br />

your bladder fully and over time you could get a<br />

bladder infection.<br />

• When emptying your bowels, do not strain your<br />

bowels. This puts extra pressure onto your pelvic floor<br />

muscles and may weaken the muscles.<br />

• Use the correct sitting position on the toilet – sit on<br />

the toilet, place your elbows on your knees and lean<br />

forward. Do not hover over the toilet seat.<br />

Seek help<br />

If you experience any urinary incontinence, whether it<br />

is an overactive bladder or any of the symptoms listed<br />

above, it is important to seek help.<br />

Reach out to a continence nurse specialist, pelvic health<br />

physiotherapists, or your local GP.<br />

Where to find more information:<br />

Treatment for overactive bladder<br />

Behavioural therapy is often the first method employed<br />

to help manage an overactive bladder. It is highly<br />

effective with minimal side effects.<br />

This includes:<br />

• Bladder training<br />

• Healthy weight<br />

• Intermittent catheterisation<br />

• Pelvic floor muscles exercises<br />

Medications can relax the bladder and relieve symptoms<br />

of an overactive bladder, reducing episodes of urge<br />

incontinence. Consult your doctor to prescribe the<br />

right medication for you, it is available in various forms<br />

including via a pill, skin patch or a gel.<br />

Consider botox injections if necessary. Your doctor can<br />

inject this neurotoxin into your bladder to temporarily<br />

stop it from contracting too much, relaxing the muscle<br />

and increasing the amount of urine the bladder can hold.<br />

Nerve stimulation involves sending mild electrical<br />

pulses to specific nerves to improve overactive bladder<br />

symptoms. Similar to how a pacemaker functions<br />

for your heart! The two methods that can help with<br />

overactive bladders are sacral nerve stimulation and the<br />

percutaneous tibial nerve stimulation.<br />

For the next part of our Continence Series, we will<br />

focus on the underactive bladder.<br />

Neetu Kainth & Dee Lucey<br />

Continence Nurse Specialists<br />

Continence Foundation of Australia provides free, confidential information and advice regarding<br />

incontinence issues and can also direct you to local services.<br />

1800 33 00 66 (Monday-Friday, 8am-8pm AEST).<br />

www.continence.org.au<br />

30 31


Physiotherapy<br />

Dietetics<br />

Shape up<br />

for Step Up<br />

<strong>Winter</strong> warmer recipe:<br />

Minestrone Soup<br />

In the lead up to the <strong>2024</strong> <strong>MSWA</strong> Step Up, <strong>MSWA</strong> Accredited Exercise<br />

Physiologists (AEP) have prepared an easy-to-follow video guide with<br />

exercises and stretches to help you prepare for event day!<br />

<strong>MSWA</strong> AEPs specialise in exercise and movement of the body for the<br />

prevention and management of chronic diseases and injuries.<br />

The handy guide includes warmups, cool downs and resistance training<br />

exercises that will help you prepare for Step Up. This can also be<br />

integrated into your daily exercise routines!<br />

Training for Step Up<br />

Ascending the 48 flights of stairs at Central Park Tower is no easy task, so<br />

it’s vital to get moving and train your body for the big day.<br />

Resistance training is important because it has many health benefits,<br />

such as improving muscle strength to protect your joints from injury. In the<br />

lead up to Step Up, we advise at least three days of resistance exercise.<br />

Some simple resistance exercises we recommend:<br />

• Step back lunges<br />

• Glute bridge<br />

• Step back to high knee drive<br />

Complete three sets of eight reps.<br />

As well, it’s important to get your steps in. Make sure to schedule in at<br />

least two days of step exercises. You can head to Jacob’s Ladder at King’s<br />

Park or the Manning Park stairs. Ascending these stairs would take you<br />

around 20 minutes.<br />

Warm up exercises<br />

Before starting your workouts, it’s<br />

important to warm up your body<br />

to help loosen your joints, improve<br />

blood flow to your muscles,<br />

and prepare your mind to be<br />

physically active.<br />

Our favourites are:<br />

• Star jumps<br />

• Burpee<br />

• Squats<br />

Complete 10 reps of<br />

each exercise.<br />

Cool down stretches<br />

A proper cool down is essential<br />

after working out because it<br />

promotes faster recovery<br />

and decrease the severity of<br />

delayed onset muscle soreness<br />

or DOMS.<br />

Our favourites are:<br />

• Hamstrings<br />

• Glutes<br />

• Quads<br />

Hold your stretch for at least<br />

45 seconds each side.<br />

Good luck to all our climbers and wish you all the best for Step Up!<br />

Tips for event day<br />

1. Pace yourself<br />

Start easier than what you<br />

think you need, as it gets<br />

challenging pretty quickly!<br />

2. Control your breathing<br />

Take deep breaths while<br />

going up the stairs.<br />

Your body needs the oxygen<br />

to power you up<br />

the stairs.<br />

3. Keep moving!<br />

Most of all, it is important to<br />

keep moving even if it is at<br />

a slower pace. This will help<br />

with maintaining blood flow<br />

to your muscles and it’s a<br />

good mental challenge!<br />

Scan the QR<br />

code to view<br />

the video<br />

demonstrations.<br />

Is there anything more comforting than a steaming bowl of soup to chase away the winter chill?<br />

If you’re craving a taste of warmth and nourishment this season, look no further. We’ve crafted a tasty minestrone<br />

soup recipe – easy-to-follow, nutrient-packed, and bursting with flavour – to keep you cosy all winter long.<br />

Minestrone Soup Recipe<br />

Ingredients<br />

• 1 tbs extra virgin olive oil<br />

• 1 onion, diced<br />

• 4 cloves garlic, finely chopped<br />

• 1 tbs mixed Italian dried herbs<br />

• 2 tbs tomato paste<br />

• 2 stalks celery, thinly sliced<br />

• 1 carrot, diced<br />

• 1 large Carisma potato, diced<br />

• 1 zucchini, diced<br />

• 800g can no-added-salt diced tomatoes<br />

• 2 cups salt-reduced chicken or vegetable stock<br />

• 400g can no-added-salt red kidney beans,<br />

drained and rinsed<br />

• 1 cup protein pasta<br />

• ½ cup parmesan cheese, grated<br />

• Mozzarella cheese, to serve, optional<br />

• Grain and seed bread, to serve, optional<br />

Misty Reinkowsky<br />

<strong>MSWA</strong> Senior Dietitian<br />

Share your culinary creations<br />

by tagging us on social media<br />

or sending your photos to<br />

marketing@mswa.org.au.<br />

Method<br />

1. Place a large pot over medium heat. Heat olive oil and<br />

add diced onion. Cook for 5 minutes or until brown.<br />

2. Add garlic, Italian herbs and tomato paste. Stir the pot<br />

and cook for 2 minutes.<br />

3. Turn up the heat to high and add vegetables – celery,<br />

carrot, Carisma potato and zucchini. Cook for<br />

5 minutes, stirring the pot.<br />

4. Add canned tomatoes, chicken/vegetable stock and<br />

kidney beans. Pour in 3 cups of water and bring soup<br />

to a simmer for 20 minutes.<br />

5. Add pasta of your choice and stir well. Cook with the<br />

lid off for 15 minutes, or until pasta is cooked.<br />

6. Turn off the heat and stir in the parmesan.<br />

Serve with grated mozzarella cheese<br />

and bread and enjoy!<br />

32 33


Events<br />

A splash with a difference<br />

<strong>2024</strong> <strong>MSWA</strong> Albany Swim<br />

In April, the Great Southern community came together<br />

once again for the 12th annual <strong>MSWA</strong> Albany Swim.<br />

This year, the <strong>MSWA</strong> Albany Swim reached a<br />

significant milestone, with our thousandth swimmer<br />

making a splash!<br />

Eight teams, totalling 81 swimmers, participated in<br />

a colourful display of costumes for the eight-hour<br />

marathon swim at the Albany Leisure and Aquatic Centre.<br />

A remarkable 8,510 laps were completed, nearly double<br />

last year's count, with the Albany Swimming Club<br />

completing the most laps, swimming an impressive<br />

1,634 laps.<br />

Over the past 12 years, the swim has fundraised over<br />

$300,000 for the <strong>MSWA</strong> cause, with this year’s event<br />

raising an astounding $29,000. Congratulations to Team<br />

Marines for being our Highest Team Fundraisers, with<br />

over $12,000 raised. A special mention goes to Rechelle<br />

Wright for being our Highest Individual Fundraiser, raising<br />

well over $3,000!<br />

This feel-good community event brings together Albany<br />

locals, Great Southern residents, and <strong>MSWA</strong> Clients<br />

and staff to raise funds and awareness for neurological<br />

conditions. Participants enjoy the friendly challenge of<br />

the event and value giving back to their local community<br />

through fundraising.<br />

Most swimmers return year-after-year because of their<br />

connection to the cause and willingness to support<br />

<strong>MSWA</strong>, including Albany local, Marina Pietropaolo<br />

who has participated in the swim every year since its<br />

inception.<br />

Having lived with MS for over 20 years, this is a cause<br />

that is close to Marina’s heart.<br />

Diagnosed at 25 years old, Marina underwent a complex<br />

treatment journey, where she frequently changed her<br />

prescription medications and relied on painkillers to<br />

manage severe side effects from her medication, on top<br />

of her MS symptoms.<br />

“The first 14 years after my diagnosis were the hardest,”<br />

said Marina, “I experienced multiple MS attacks, and it<br />

was debilitating.”<br />

Team Marine swim participant, Angela Gorman.<br />

With the advancement of treatment options, Marina is<br />

now living life to her full potential. She has opened her<br />

own architecture business and leads a more active<br />

lifestyle. Experiencing this difference has brought<br />

renewed hope for Marina.<br />

“Research makes a big difference. I have seen it come a<br />

long way. It gives me hope for people who are diagnosed<br />

today that do not have to do the hard yards I did to get to<br />

where I am now.”<br />

Despite not being a strong swimmer, it has not<br />

deterred Marina from participating, and she has since<br />

trained herself to be more confident in the water. Her<br />

determination, enthusiasm, and positive attitude have<br />

inspired others in the community to take part.<br />

Marina’s husband, Remo, and son, Santino, have<br />

been active fundraisers for the cause for years. Both<br />

musicians comfortable in the spotlight, the star duo has<br />

emceed the event for the past few years.<br />

“This is a fantastic event. The community comes<br />

together, we bond for the cause, and it is really fun! We<br />

come away from it exhausted, but we would do it again<br />

and again. We love it that much!” Marina said.<br />

Marina Pietropoalo,<br />

left, with Team Marines.<br />

Over the past 12 years, funds raised through the swim<br />

have assisted in the development of Albany’s service<br />

centre and accommodation facilities and continue to<br />

support the centre’s operations. Our accommodation<br />

offers Clients 24/7 care in a homely environment, while<br />

the centre provides tailored services such as yoga,<br />

hydrotherapy, massage, and physiotherapy.<br />

It is thanks to dedicated fundraisers like Marina and<br />

her family, that <strong>MSWA</strong> can positively impact the lives of<br />

people living with neurological conditions in the Great<br />

Southern and beyond.<br />

We would also like to thank our sponsors who made this<br />

event possible: City of Albany, Southern Ports Albany,<br />

WizLoans Albany, CBD Architects, Moss Conveyancing,<br />

Bathroom Decor & Tiles, Poolside Cafe and Storage<br />

Solutions WA.<br />

<strong>MSWA</strong> extends its congratulations and appreciation<br />

to the Great Southern community for their unwavering<br />

and continuous support for the <strong>MSWA</strong> Albany Swim.<br />

Scan the QR to access<br />

the gallery of photos<br />

from the event!<br />

<strong>MSWA</strong> Albany Swim Participants.<br />

Emcees Santino and Remo Pietropaolo.<br />

34 35


Social Connections<br />

Everything Outreach<br />

Accommodation Adventures<br />

Trishaw adventures<br />

In April, Clients from Rockingham<br />

Outreach enjoyed a special fun<br />

day on the foreshore, basking in<br />

the sunshine!<br />

Thanks to the volunteers from<br />

Cycling Without Age Rockingham,<br />

Clients were able to ride on<br />

trishaws powered by the volunteers.<br />

We are grateful to the team at<br />

Cycling Without Age Rockingham<br />

for creating such a memorable<br />

experience for our Clients!<br />

A splash of colour<br />

Our Clients recently added their own splash of colour to<br />

the wet area in the Butler Accommodation activity room.<br />

The colourful floral artwork has been integrated into the<br />

splashback panel, serving both functionally to protect<br />

the walls from moisture and also adding a pop of colour!<br />

Well done to our Clients and our Facilities Team for<br />

blending this amazing artwork into the interior design.<br />

St Patrick’s at Treendale<br />

The residents at Treendale Gardens had a splendid<br />

celebration for St Patrick’s Day. Recreation Officer,<br />

Susie, assisted the residents to create their own St<br />

Patrick’s Day headwear. Some Clients made the classic<br />

leprechaun hat, while others opted for the lucky four-leaf<br />

clover design. The Clients and our staff had a fun time<br />

celebrating the occasion!<br />

Harmony Week<br />

On 21 March, residents, families and staff from Fern<br />

River gathered to celebrate the cultural diversity within<br />

our community and share what makes us all unique for<br />

Harmony Week.<br />

Mother’s Day raffle<br />

<strong>MSWA</strong> team member Donna<br />

and Client Essie were the lucky<br />

winners of the Mother’s Day raffle<br />

at Wilson Outreach. The hamper<br />

prize included an exquisite selection<br />

of tea, coffee and coffee mugs.<br />

Remarkably, this was the second<br />

year that Donna has won a prize<br />

for the raffle. Both winners were<br />

overwhelmed by the gift. Happy<br />

Mother’s Day to all!<br />

A sweet visit<br />

Clients and staff from Beechboro<br />

Outreach enjoyed a delightful visit to<br />

the Whistlers Chocolate Company<br />

in Swan Valley. They created many<br />

sweet memories, indulging in a<br />

delicious morning tea, marvelling at<br />

the chocolate structures on display<br />

and connecting with one another.<br />

Clients were each gifted a goodie<br />

bag of sweet treats to take home.<br />

Easter celebrations<br />

For Easter, Clients and staff at<br />

Wilson Outreach channelled their<br />

creativity to design some beautiful<br />

Easter decorations. The Wilson<br />

OpShop Café was also in full swing,<br />

with some egg-cellent sweet treats<br />

whipped up in celebration of the<br />

festivity. The <strong>MSWA</strong> team also<br />

sported some easter bunny ears for<br />

the occasion.<br />

Harmony Week recognises our diversity, bringing<br />

together Australians from all different backgrounds. It’s<br />

about inclusiveness, respect, and a sense of belonging<br />

for everyone.<br />

Staff donned traditional attire and shared various aspects<br />

of their culture. There were demonstrations of singing,<br />

lessons on how to use chopsticks and a compilation of<br />

music from around the world played on the cello.<br />

Staff who were unable to attend shared photos of<br />

themselves in traditional attire, which were displayed.<br />

Residents enjoyed guessing who the staff members<br />

were, as many looked quite different in their<br />

traditional attire!<br />

Jacqui Sheveleff<br />

We also played a game of Guess Who, by matching facts<br />

about Fern River residents to the respective person. This<br />

activity was a wonderful way for staff and residents to<br />

learn more about each other, encourage investigative<br />

communication and highlight the rich stories behind our<br />

residents’ lives.<br />

Supported Accommodation Coordinator<br />

36 37


News in brief<br />

Save the date<br />

Upcoming events<br />

21 June<br />

MND Global Awareness Day<br />

5-11 August<br />

National Stroke Week<br />

Building our team<br />

The Talent and Diversity team has been active in the community, raising<br />

awareness about the incredible work <strong>MSWA</strong> is doing and recruiting great talent.<br />

The team recently attended the Belmont Career Expo which welcomed over<br />

900 participants. They also visited regional events, including the South West<br />

Career Expo at the Bunbury Catholic College Gymnasium.<br />

Connection opportunities<br />

in the community *<br />

All Neurological<br />

Conditions<br />

Community Perth<br />

International Nurses Day<br />

International Nurses Day is celebrated every year on<br />

12 May, Florence Nightingale's Birthday, to commemorate<br />

and celebrate the incredible work of nurses.<br />

The <strong>MSWA</strong> nursing team came together to celebrate with<br />

a morning tea at our Wilson Service Centre. We would like<br />

to once again extend our appreciation to our <strong>MSWA</strong><br />

nurses for their effort, dedication, and resilience in<br />

providing quality care to all our Clients.<br />

Submit your article to us<br />

If you or someone you know is interested in joining the <strong>MSWA</strong> team, please visit<br />

our website for more information: www.mswa.org.au/work-with-us/apply-now.<br />

WA National Disability Support Awards<br />

The <strong>MSWA</strong> team celebrated in style at the gala dinner<br />

for the WA National Disability Support Awards <strong>2024</strong>.<br />

Congratulations to Randall Rooney, Melissa Coombs<br />

and our Employment Support Services Team for their<br />

nominations.<br />

We are beyond proud of our team for their tremendous<br />

effort and the exceptional service they deliver to empower<br />

our Clients to reach their goals and live their best lives!<br />

Do you have a story about living with a neurological condition in WA that other <strong>MSWA</strong> Clients might like to read?<br />

We invite you to share your experiences with us.<br />

Email your submission to bulletin@mswa.org.au for consideration.<br />

Suggestions, complaints and compliments<br />

We want to hear from you. Your feedback helps us to understand what is working well and where we can improve.<br />

You can raise a concern or acknowledge the support an <strong>MSWA</strong> staff member has provided by telephoning 6454 3146,<br />

via feedback@mswa.org.au or writing to Quality and Compliance; Locked Bag 2, BENTLEY DC 6983.<br />

For more information, visit mswa.org.au/about-mswa/contact-us.<br />

<strong>2024</strong> <strong>MSWA</strong> Step Up<br />

Sunday, 23 June <strong>2024</strong><br />

8am – 12pm<br />

Central Park Tower<br />

<strong>MSWA</strong> Step Up is back again this<br />

year! Take part and join hundreds<br />

of West Australians in this unique<br />

stair-climbing event to climb<br />

Perth’s tallest building – Central<br />

Park Tower - this weekend!<br />

Registrations for the one-up and<br />

mini-climb are available on event<br />

day, so come on down and get<br />

involved - even if it's just to soak up<br />

the atmosphere. best of all, Clients<br />

and staff can climb for free.<br />

Not a fan of stair climbing? Join the<br />

volunteer team to cheer and support<br />

our climbers on event day. There is<br />

a range of volunteering positions<br />

available, from the ground level and<br />

all the way up the building - there is<br />

something for everyone!<br />

Register your interest to volunteer<br />

by scanning the QR code below,<br />

or contact events@mswa.org.au<br />

to register.<br />

Fatigue Management<br />

Workshop<br />

Tuesday, 13 August <strong>2024</strong><br />

10am – 1pm<br />

Online – registration essential<br />

Are you struggling to regulate your<br />

body temperature? Come along<br />

to <strong>MSWA</strong>’s Fatigue Management<br />

workshop to learn more about how<br />

your body responds to temperature<br />

and how you can manage it.<br />

In this interactive workshop, our<br />

OT Team will cover topics such as<br />

thermoregulation, its effects and<br />

impacts, strategies for coping<br />

in both cool and warm climates,<br />

assistive technologies that can<br />

aid in temperature regulation, and<br />

ways to acquire funding for these<br />

technologies.<br />

To reserve your spot email:<br />

ot.groups@mswa.org.au<br />

Readathon<br />

Calling all adults, kids, and families:<br />

are you ready to embark on a reading<br />

adventure supporting an incredible<br />

cause? The <strong>2024</strong> MS Readathon<br />

has officially launched and we<br />

invite you to take on the reading and<br />

fundraising challenge!<br />

Visit www.msreadathon.org.au<br />

to register now.<br />

Join the All Neurological Conditions<br />

Community Perth peer support<br />

group, to meet new friends and<br />

make connections. This group<br />

provides a safe space for sharing<br />

experiences and challenges related<br />

to your neurological condition.<br />

The group hosts monthly coffee<br />

catch-ups, social and art events,<br />

offering plenty of opportunities to<br />

connect with the community.<br />

Family, friends, carers and support<br />

workers are encouraged and<br />

welcomed at all events.<br />

You can join the Facebook group<br />

by visiting: https://bit.ly/4dFSLr8<br />

MS/Neurological<br />

Social Group (Perth)<br />

The MS/Neurological Social Group<br />

is an inclusive peer support group<br />

for those living with a neurological<br />

condition in Perth. Carers, support<br />

workers, family and friends of those<br />

living with a neurological condition<br />

are welcomed to join the group.<br />

The group hosts monthly catch-ups,<br />

and you’re encouraged to organise<br />

your own, simply by posting in the<br />

Facebook group.<br />

To join the Facebook group visit:<br />

https://bit.ly/3K6RXhr. If you would<br />

like more information, email:<br />

basil.merendino@gmail.com.<br />

*These groups are led by members in<br />

the community, outside of <strong>MSWA</strong>.<br />

38 39


World MS Day gave the<br />

community the opportunity to<br />

reflect on Thursday, 30 May<br />

as the city lit up red in honour<br />

of the important occasion.<br />

To find out more about our services,<br />

create connections or show support<br />

for our cause, visit mswa.org.au.

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