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Living With Tinnitus

Help and advice for people living with tinnitus, from the only tinnitus-focused UK charity

Help and advice for people living with tinnitus, from the only tinnitus-focused UK charity

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<strong>Living</strong><br />

with<br />

tinnitus<br />

Helpline 0800 018 0527<br />

Text/SMS 07531 416841<br />

Web tinnitus.org.uk<br />

Email helpline@tinnitus.org.uk<br />

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What is<br />

tinnitus?<br />

<strong>Tinnitus</strong> is the perception of<br />

noises in the head and/or the<br />

ears which have no external<br />

source. It is not a disease<br />

or illness; it is a symptom<br />

generated within the<br />

auditory system.<br />

The noise may be in one or<br />

both ears, or in the head, or<br />

it may be difficult to pinpoint<br />

its exact location. The noise<br />

may be low, medium or high<br />

pitched. There may be<br />

a single noise or two or more<br />

components. The noise may<br />

be continuous or it may<br />

come and go.<br />

Who gets<br />

tinnitus?<br />

Everyone can - regardless of age<br />

<strong>Tinnitus</strong> is especially common<br />

after you’ve been exposed<br />

to loud noises.<br />

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1 in 7<br />

adults in<br />

the UK have<br />

persistent<br />

tinnitus<br />

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What causes<br />

tinnitus?<br />

It is not clear what causes tinnitus but it can<br />

be associated with:<br />

Hearing loss<br />

The delicate hair cells in the inner ear may reduce<br />

in number due to ‘wear and tear’ as people age.<br />

This gradual change can cause hearing loss,<br />

which makes tinnitus more noticeable as it is<br />

not masked by external sound.<br />

Ear Infections<br />

Middle ear infections can cause hearing loss<br />

and tinnitus. Symptoms will normally be<br />

temporary, but it is important to have<br />

the underlying infection treated by a GP.<br />

Stress and anxiety<br />

It is not always clear whether stress causes<br />

the onset of tinnitus. However, tinnitus may be<br />

more noticeable if you are anxious or stressed.<br />

Exposure to loud noise<br />

Hair cells can also be damaged by exposure<br />

to loud noise, which could generate tinnitus.<br />

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Find your<br />

silence<br />

<strong>Tinnitus</strong> is rarely an<br />

indication of a serious<br />

disorder, but it is wise to see<br />

your doctor if you think you<br />

have it. Your GP will be able<br />

to refer you to specialist<br />

Ear, Nose and Throat (ENT)<br />

and Audiology services.<br />

An ENT specialist will take<br />

a medical history from<br />

you, perform a clinical<br />

examination and arrange<br />

for any tests, such as<br />

hearing tests. You should<br />

then be referred to the<br />

Audiology service for help<br />

in managing your tinnitus.<br />

There are several<br />

strategies that<br />

can be very helpful<br />

in managing<br />

the condition.<br />

tinnitus.org.uk<br />

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• Information:<br />

Finding out more about the condition - especially that it is<br />

very common and that you are not alone - can make you<br />

feel better.<br />

• Counselling:<br />

Techniques such as Cognitive Behavioural Therapy (CBT)<br />

can be helpful, either as a standalone therapy or combined<br />

with sound therapy.<br />

• Correcting any hearing loss:<br />

If your tinnitus is accompanied by any hearing loss, then<br />

trying to correct this loss with hearing aids is often very<br />

helpful.<br />

• Sound therapy:<br />

If the noises seem louder at quiet times, such as at night,<br />

it may help to have some environmental or natural sound<br />

from an app, a CD, a sound generator, or even a fan or<br />

ticking clock in the background. Some people use in-ear<br />

sound generators.<br />

• Relaxation:<br />

Learning to relax is probably one of the most useful things<br />

you can do to help yourself. Those who practice relaxation<br />

techniques say they reduce the loudness of their tinnitus<br />

and help them become indifferent to it.<br />

• Mindfulness:<br />

Mindfulness is a form of meditation that is all about learning<br />

to pay attention to our experience in a specific way. It has<br />

been proven to make tinnitus less intrusive, to a point<br />

where it is no longer a problem for people.<br />

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How can<br />

we help?<br />

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Our vision is a world<br />

where no one suffers with<br />

tinnitus. That is a powerful<br />

statement and one we<br />

believe is achievable.<br />

It is achievable now to<br />

an extent, in that there<br />

are management tools<br />

and methods available to<br />

enable many not to ‘suffer’.<br />

Support available:<br />

However, we also want to<br />

find better ways to manage<br />

tinnitus – and a cure.<br />

We offer support and<br />

information to people with<br />

tinnitus - and their friends,<br />

family and carers – in a<br />

number of different ways.<br />

• Helpline<br />

• Web chat<br />

• Email support<br />

• Website<br />

• Information<br />

leaflets<br />

• SMS chat<br />

• Take on <strong>Tinnitus</strong><br />

• <strong>Tinnitus</strong> support groups<br />

• Online workshops<br />

• Webinars<br />

Read on to find the right ones for you!<br />

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Our <strong>Tinnitus</strong><br />

Support Team<br />

We speak to nearly 13,000<br />

people every year - on the<br />

phone, via web chat or<br />

by email - and offer them<br />

support, advice and help.<br />

Our <strong>Tinnitus</strong> Support<br />

Team can give you clear<br />

information about tinnitus,<br />

signpost you to local<br />

support services, and offer<br />

you empathy, understanding<br />

and hope.<br />

Our team of experienced and<br />

trusted advisers talk<br />

to people with tinnitus year<br />

round. No question is<br />

too big or small for us<br />

to answer.<br />

Please note although<br />

we have an in-depth<br />

knowledge of tinnitus,<br />

we are not medically<br />

qualified, so we aren’t able<br />

to give medical advice.<br />

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I can’t thank you<br />

enough for being<br />

there, I was ready<br />

to give up.<br />

Helpline 0800 018 0527<br />

Text/SMS 07531 416841<br />

Email helpline@tinnitus.org.uk<br />

Webchat tinnitus.org.uk<br />

Monday to Friday, 9am–5pm<br />

excluding bank holidays<br />

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Our website<br />

tinnitus.org.uk<br />

We are the most<br />

comprehensive source of<br />

tinnitus information<br />

on the internet.<br />

There are sections<br />

on tinnitus support,<br />

understanding tinnitus,<br />

reviews of tinnitus<br />

treatments, updates on<br />

tinnitus research, events<br />

specifically looking at<br />

tinnitus, a tinnitus clinic<br />

finder and many ways for<br />

you to join us in the fight<br />

against tinnitus.<br />

Our website is designed<br />

to work on all types<br />

of devices, including<br />

smartphones and tablets.<br />

So up-to-date, reliable<br />

tinnitus information<br />

can always be at your<br />

fingertips.<br />

Our website is<br />

visited by over<br />

1.3 million<br />

people every year<br />

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Our information<br />

leaflets<br />

We have an extensive range of leaflets on living with<br />

tinnitus and related conditions, including leaflets<br />

for children.<br />

We offer them in large print, and four of our leaflets are<br />

in Easy Read format with simple text and illustrations.<br />

Our leaflets are written by experts and are rigorously<br />

checked and assessed to make sure that our information<br />

is clear, accurate and up-to-date.<br />

Our <strong>Tinnitus</strong> Support Team can give<br />

you details of the range, or they can<br />

be downloaded from our website<br />

tinnitus.org.uk.<br />

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Take on<br />

<strong>Tinnitus</strong><br />

takeontinnitus.co.uk is our free tinnitus<br />

e-learning programme. It will guide you through<br />

some facts about tinnitus and help you with<br />

some simple strategies to keep it under control.<br />

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Developed with tinnitus experts and e-learning specialists,<br />

takeontinnitus.co.uk starts with an initial taster session<br />

and then has seven learning modules covering:<br />

• The fundamentals of tinnitus<br />

• Hearing and tinnitus<br />

• Benefits of using sound<br />

• <strong>Tinnitus</strong> and relaxation<br />

• Sleep and tinnitus<br />

• The benefits of talking about it<br />

• <strong>Living</strong> your life with tinnitus<br />

Each module takes just 10 to 15 minutes to complete<br />

and includes a range of interactive exercises, video clips<br />

and self-tests.<br />

I really love the<br />

Take on <strong>Tinnitus</strong> website,<br />

it’s a brilliant resource.<br />

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Support<br />

Forum<br />

Our online forum is available 24 hours a day, seven days<br />

a week to enable you to talk to others with tinnitus.<br />

Forum members understand what you are going through<br />

and can help support you through the bad times –<br />

and will celebrate with you on the good days!<br />

healthunlocked.com/<strong>Tinnitus</strong>UK<br />

Support Groups<br />

We have around 110 active support groups around the<br />

country. We also offer free online tinnitus support groups.<br />

To find one for you, visit our website<br />

tinnitus.org.uk/groups<br />

Many people find that the personal contact and sharing<br />

experiences with others living with tinnitus very useful.<br />

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Events and webinars<br />

Our tinnitus information events aim to reduce<br />

stress, confusion and isolation, improve wellbeing<br />

and enable you to cope with your tinnitus better.<br />

We offer events in different formats,<br />

including online workshops and webinars.<br />

They are led by tinnitus experts, and cover<br />

topics such as tinnitus management, mindfulness<br />

and helping you prepare for your appointment.<br />

For details of our future events, see tinnitus.org.uk<br />

I got so much more from today<br />

than from any other medical<br />

professional.<br />

Knowing that I am not alone<br />

and have the support of people I<br />

have never met but who care!<br />

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Tackling<br />

tinnitus<br />

together<br />

Your support funds our<br />

vital support services and<br />

worldwide research to find<br />

a cure for tinnitus.<br />

Each year we help more than<br />

1.5 million people across the<br />

world to cope with the daily<br />

struggle of living with tinnitus.<br />

And, as you read this guide,<br />

teams from King’s College<br />

London to the Macquarie<br />

University in Australia are<br />

conducting potentially<br />

life-changing research<br />

funded by <strong>Tinnitus</strong> UK into<br />

tinnitus in both children<br />

and adults.<br />

We receive no direct<br />

government or NHS funding.<br />

Each year, we rely on our<br />

generous supporters to raise<br />

the £1 million we need to<br />

keep our vital work going.<br />

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Our work has the power<br />

to change lives:<br />

• Campaigning for change<br />

We’re pressing the Department of Health and Social<br />

Care to fund essential research into tinnitus<br />

and hearing loss.<br />

• Supporting GPs and Audiologists<br />

We educate healthcare professionals and audiology<br />

specialist on the impact of tinnitus - which can often<br />

be trivialised.<br />

• Delivering hope<br />

We’re pushing for a <strong>Tinnitus</strong> Biobank in the UK<br />

which could be the next step to finding a cure.<br />

To keep this fight going - we need your support.<br />

Please donate today at tinnitus.org.uk/donate<br />

or by calling 01142 509933.<br />

Thank you.<br />

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Membership<br />

Our members are at<br />

the heart of everything<br />

we do<br />

Our members provide us with outstanding support and play a<br />

key role in everything we do. By becoming<br />

a member, you can ensure no-one faces tinnitus alone.<br />

Membership means you become part of a mutually supportive<br />

community, as well as being the first to find out about the latest<br />

tinnitus research. You’ll also receive some great membership<br />

benefits for just £20 a year.<br />

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Member benefits:<br />

• Our exclusive membership magazine, Quiet<br />

• The chance to have your say and vote for our trustees<br />

• Our monthly e-newsletter, Focus<br />

• A variety of discounts on products for tinnitus<br />

• 2 free webinars and a £5 webinar library discount<br />

• New members also receive a free gift to help<br />

focus the mind<br />

For more information about our membership<br />

Visit us at tinnitus.org.uk/membership<br />

Email us at info@tinnitus.org.uk<br />

Call us on 0114 250 9933<br />

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It does<br />

get better<br />

Studies have shown that, over time, in most<br />

cases tinnitus disappears completely or the<br />

noises reduce to a manageable level as the<br />

brain loses interest and stops listening for<br />

the signal. This is called habituation.<br />

The time this takes varies from person<br />

to person – but it does happen!<br />

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Ground Floor, Unit 5,<br />

Acorn Business Park,<br />

Woodseats Close,<br />

Sheffield S8 0TB<br />

How we<br />

can help:<br />

Version 5.0 Issued January 2023.<br />

To be reviewed by January 2026. © <strong>Tinnitus</strong> UK<br />

Registered charity no: 1011145 | Registered in England<br />

Company limited by guarantee no: 2709302.<br />

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