Living With Tinnitus
Help and advice for people living with tinnitus, from the only tinnitus-focused UK charity
Help and advice for people living with tinnitus, from the only tinnitus-focused UK charity
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<strong>Living</strong><br />
with<br />
tinnitus<br />
Helpline 0800 018 0527<br />
Text/SMS 07531 416841<br />
Web tinnitus.org.uk<br />
Email helpline@tinnitus.org.uk<br />
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What is<br />
tinnitus?<br />
<strong>Tinnitus</strong> is the perception of<br />
noises in the head and/or the<br />
ears which have no external<br />
source. It is not a disease<br />
or illness; it is a symptom<br />
generated within the<br />
auditory system.<br />
The noise may be in one or<br />
both ears, or in the head, or<br />
it may be difficult to pinpoint<br />
its exact location. The noise<br />
may be low, medium or high<br />
pitched. There may be<br />
a single noise or two or more<br />
components. The noise may<br />
be continuous or it may<br />
come and go.<br />
Who gets<br />
tinnitus?<br />
Everyone can - regardless of age<br />
<strong>Tinnitus</strong> is especially common<br />
after you’ve been exposed<br />
to loud noises.<br />
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1 in 7<br />
adults in<br />
the UK have<br />
persistent<br />
tinnitus<br />
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What causes<br />
tinnitus?<br />
It is not clear what causes tinnitus but it can<br />
be associated with:<br />
Hearing loss<br />
The delicate hair cells in the inner ear may reduce<br />
in number due to ‘wear and tear’ as people age.<br />
This gradual change can cause hearing loss,<br />
which makes tinnitus more noticeable as it is<br />
not masked by external sound.<br />
Ear Infections<br />
Middle ear infections can cause hearing loss<br />
and tinnitus. Symptoms will normally be<br />
temporary, but it is important to have<br />
the underlying infection treated by a GP.<br />
Stress and anxiety<br />
It is not always clear whether stress causes<br />
the onset of tinnitus. However, tinnitus may be<br />
more noticeable if you are anxious or stressed.<br />
Exposure to loud noise<br />
Hair cells can also be damaged by exposure<br />
to loud noise, which could generate tinnitus.<br />
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Find your<br />
silence<br />
<strong>Tinnitus</strong> is rarely an<br />
indication of a serious<br />
disorder, but it is wise to see<br />
your doctor if you think you<br />
have it. Your GP will be able<br />
to refer you to specialist<br />
Ear, Nose and Throat (ENT)<br />
and Audiology services.<br />
An ENT specialist will take<br />
a medical history from<br />
you, perform a clinical<br />
examination and arrange<br />
for any tests, such as<br />
hearing tests. You should<br />
then be referred to the<br />
Audiology service for help<br />
in managing your tinnitus.<br />
There are several<br />
strategies that<br />
can be very helpful<br />
in managing<br />
the condition.<br />
tinnitus.org.uk<br />
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• Information:<br />
Finding out more about the condition - especially that it is<br />
very common and that you are not alone - can make you<br />
feel better.<br />
• Counselling:<br />
Techniques such as Cognitive Behavioural Therapy (CBT)<br />
can be helpful, either as a standalone therapy or combined<br />
with sound therapy.<br />
• Correcting any hearing loss:<br />
If your tinnitus is accompanied by any hearing loss, then<br />
trying to correct this loss with hearing aids is often very<br />
helpful.<br />
• Sound therapy:<br />
If the noises seem louder at quiet times, such as at night,<br />
it may help to have some environmental or natural sound<br />
from an app, a CD, a sound generator, or even a fan or<br />
ticking clock in the background. Some people use in-ear<br />
sound generators.<br />
• Relaxation:<br />
Learning to relax is probably one of the most useful things<br />
you can do to help yourself. Those who practice relaxation<br />
techniques say they reduce the loudness of their tinnitus<br />
and help them become indifferent to it.<br />
• Mindfulness:<br />
Mindfulness is a form of meditation that is all about learning<br />
to pay attention to our experience in a specific way. It has<br />
been proven to make tinnitus less intrusive, to a point<br />
where it is no longer a problem for people.<br />
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How can<br />
we help?<br />
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Our vision is a world<br />
where no one suffers with<br />
tinnitus. That is a powerful<br />
statement and one we<br />
believe is achievable.<br />
It is achievable now to<br />
an extent, in that there<br />
are management tools<br />
and methods available to<br />
enable many not to ‘suffer’.<br />
Support available:<br />
However, we also want to<br />
find better ways to manage<br />
tinnitus – and a cure.<br />
We offer support and<br />
information to people with<br />
tinnitus - and their friends,<br />
family and carers – in a<br />
number of different ways.<br />
• Helpline<br />
• Web chat<br />
• Email support<br />
• Website<br />
• Information<br />
leaflets<br />
• SMS chat<br />
• Take on <strong>Tinnitus</strong><br />
• <strong>Tinnitus</strong> support groups<br />
• Online workshops<br />
• Webinars<br />
Read on to find the right ones for you!<br />
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Our <strong>Tinnitus</strong><br />
Support Team<br />
We speak to nearly 13,000<br />
people every year - on the<br />
phone, via web chat or<br />
by email - and offer them<br />
support, advice and help.<br />
Our <strong>Tinnitus</strong> Support<br />
Team can give you clear<br />
information about tinnitus,<br />
signpost you to local<br />
support services, and offer<br />
you empathy, understanding<br />
and hope.<br />
Our team of experienced and<br />
trusted advisers talk<br />
to people with tinnitus year<br />
round. No question is<br />
too big or small for us<br />
to answer.<br />
Please note although<br />
we have an in-depth<br />
knowledge of tinnitus,<br />
we are not medically<br />
qualified, so we aren’t able<br />
to give medical advice.<br />
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I can’t thank you<br />
enough for being<br />
there, I was ready<br />
to give up.<br />
Helpline 0800 018 0527<br />
Text/SMS 07531 416841<br />
Email helpline@tinnitus.org.uk<br />
Webchat tinnitus.org.uk<br />
Monday to Friday, 9am–5pm<br />
excluding bank holidays<br />
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Our website<br />
tinnitus.org.uk<br />
We are the most<br />
comprehensive source of<br />
tinnitus information<br />
on the internet.<br />
There are sections<br />
on tinnitus support,<br />
understanding tinnitus,<br />
reviews of tinnitus<br />
treatments, updates on<br />
tinnitus research, events<br />
specifically looking at<br />
tinnitus, a tinnitus clinic<br />
finder and many ways for<br />
you to join us in the fight<br />
against tinnitus.<br />
Our website is designed<br />
to work on all types<br />
of devices, including<br />
smartphones and tablets.<br />
So up-to-date, reliable<br />
tinnitus information<br />
can always be at your<br />
fingertips.<br />
Our website is<br />
visited by over<br />
1.3 million<br />
people every year<br />
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Our information<br />
leaflets<br />
We have an extensive range of leaflets on living with<br />
tinnitus and related conditions, including leaflets<br />
for children.<br />
We offer them in large print, and four of our leaflets are<br />
in Easy Read format with simple text and illustrations.<br />
Our leaflets are written by experts and are rigorously<br />
checked and assessed to make sure that our information<br />
is clear, accurate and up-to-date.<br />
Our <strong>Tinnitus</strong> Support Team can give<br />
you details of the range, or they can<br />
be downloaded from our website<br />
tinnitus.org.uk.<br />
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Take on<br />
<strong>Tinnitus</strong><br />
takeontinnitus.co.uk is our free tinnitus<br />
e-learning programme. It will guide you through<br />
some facts about tinnitus and help you with<br />
some simple strategies to keep it under control.<br />
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Developed with tinnitus experts and e-learning specialists,<br />
takeontinnitus.co.uk starts with an initial taster session<br />
and then has seven learning modules covering:<br />
• The fundamentals of tinnitus<br />
• Hearing and tinnitus<br />
• Benefits of using sound<br />
• <strong>Tinnitus</strong> and relaxation<br />
• Sleep and tinnitus<br />
• The benefits of talking about it<br />
• <strong>Living</strong> your life with tinnitus<br />
Each module takes just 10 to 15 minutes to complete<br />
and includes a range of interactive exercises, video clips<br />
and self-tests.<br />
I really love the<br />
Take on <strong>Tinnitus</strong> website,<br />
it’s a brilliant resource.<br />
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Support<br />
Forum<br />
Our online forum is available 24 hours a day, seven days<br />
a week to enable you to talk to others with tinnitus.<br />
Forum members understand what you are going through<br />
and can help support you through the bad times –<br />
and will celebrate with you on the good days!<br />
healthunlocked.com/<strong>Tinnitus</strong>UK<br />
Support Groups<br />
We have around 110 active support groups around the<br />
country. We also offer free online tinnitus support groups.<br />
To find one for you, visit our website<br />
tinnitus.org.uk/groups<br />
Many people find that the personal contact and sharing<br />
experiences with others living with tinnitus very useful.<br />
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Events and webinars<br />
Our tinnitus information events aim to reduce<br />
stress, confusion and isolation, improve wellbeing<br />
and enable you to cope with your tinnitus better.<br />
We offer events in different formats,<br />
including online workshops and webinars.<br />
They are led by tinnitus experts, and cover<br />
topics such as tinnitus management, mindfulness<br />
and helping you prepare for your appointment.<br />
For details of our future events, see tinnitus.org.uk<br />
I got so much more from today<br />
than from any other medical<br />
professional.<br />
Knowing that I am not alone<br />
and have the support of people I<br />
have never met but who care!<br />
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Tackling<br />
tinnitus<br />
together<br />
Your support funds our<br />
vital support services and<br />
worldwide research to find<br />
a cure for tinnitus.<br />
Each year we help more than<br />
1.5 million people across the<br />
world to cope with the daily<br />
struggle of living with tinnitus.<br />
And, as you read this guide,<br />
teams from King’s College<br />
London to the Macquarie<br />
University in Australia are<br />
conducting potentially<br />
life-changing research<br />
funded by <strong>Tinnitus</strong> UK into<br />
tinnitus in both children<br />
and adults.<br />
We receive no direct<br />
government or NHS funding.<br />
Each year, we rely on our<br />
generous supporters to raise<br />
the £1 million we need to<br />
keep our vital work going.<br />
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Our work has the power<br />
to change lives:<br />
• Campaigning for change<br />
We’re pressing the Department of Health and Social<br />
Care to fund essential research into tinnitus<br />
and hearing loss.<br />
• Supporting GPs and Audiologists<br />
We educate healthcare professionals and audiology<br />
specialist on the impact of tinnitus - which can often<br />
be trivialised.<br />
• Delivering hope<br />
We’re pushing for a <strong>Tinnitus</strong> Biobank in the UK<br />
which could be the next step to finding a cure.<br />
To keep this fight going - we need your support.<br />
Please donate today at tinnitus.org.uk/donate<br />
or by calling 01142 509933.<br />
Thank you.<br />
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Membership<br />
Our members are at<br />
the heart of everything<br />
we do<br />
Our members provide us with outstanding support and play a<br />
key role in everything we do. By becoming<br />
a member, you can ensure no-one faces tinnitus alone.<br />
Membership means you become part of a mutually supportive<br />
community, as well as being the first to find out about the latest<br />
tinnitus research. You’ll also receive some great membership<br />
benefits for just £20 a year.<br />
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Member benefits:<br />
• Our exclusive membership magazine, Quiet<br />
• The chance to have your say and vote for our trustees<br />
• Our monthly e-newsletter, Focus<br />
• A variety of discounts on products for tinnitus<br />
• 2 free webinars and a £5 webinar library discount<br />
• New members also receive a free gift to help<br />
focus the mind<br />
For more information about our membership<br />
Visit us at tinnitus.org.uk/membership<br />
Email us at info@tinnitus.org.uk<br />
Call us on 0114 250 9933<br />
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It does<br />
get better<br />
Studies have shown that, over time, in most<br />
cases tinnitus disappears completely or the<br />
noises reduce to a manageable level as the<br />
brain loses interest and stops listening for<br />
the signal. This is called habituation.<br />
The time this takes varies from person<br />
to person – but it does happen!<br />
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Ground Floor, Unit 5,<br />
Acorn Business Park,<br />
Woodseats Close,<br />
Sheffield S8 0TB<br />
How we<br />
can help:<br />
Version 5.0 Issued January 2023.<br />
To be reviewed by January 2026. © <strong>Tinnitus</strong> UK<br />
Registered charity no: 1011145 | Registered in England<br />
Company limited by guarantee no: 2709302.<br />
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