C:\Documents and Settings\Jody - Osteogenesis Imperfecta ...

2 0 0 7 

A n n u a l 

R e p o r t 

a l l i n t h i s 

T O G E T H E R

A Message From the President 

The Osteogenesis Imperfecta 

Foundation continues to embody its 

mission to improve the quality of life 

for people living with OI through 

education, awareness, mutual support 

and research to find better treatments 

and a cure. We are eternally grateful 

for all of the volunteers, staff and 

board members who have worked 

extremely hard this year to allow us to 

continue the work that we do to 

support the OI community. 

The Foundation's Clinical Care 

Strategies in Osteogenesis Imperfecta 

scientific meeting in March of 2007, 

which was co-funded by the Children's 

Kenneth D. Finkel 

Brittle Bone Foundation and the 

Buchbinder Family, will have a 

tremendous impact on how the medical 

community cares for patients with 

osteogenesis imperfecta. This meeting focused on research data that informs 

clinical decision making. The results were recommendations for quality medical 

care for people of all ages and all types of OI. More than 60 clinic directors and 

researchers came together for this meeting: an unprecedented partnership of many 

of the best minds working in OI. 

A record number of research grant proposals were received this year. These 

proposals represent nearly three times the number of OI Foundation proposals 

received last year. This level of OI-centered research will only speed the course of 

treatment and a possible cure for osteogenesis imperfecta. 

The Foundation also has been busy on the education front, revising and 

updating 12 fact sheets and creating 14 new ones. In addition, work has begun on 

Emily’s First Day!, a story book and teachers guide featuring a child with mild OI. 

As you read about our accomplishments of FY 2007, please know that without 

you none of this would have been possible. Thank you for making the OI Foundation 

and its mission a priority in your life. 

Kenneth D. Finkel 

President, OI Foundation Board of Directors 

© 2007 Osteogenesis Imperfecta Foundation. All rights reserved. 

Page 2 OI Foundation FY 2007 Annual Report

Osteogenesis Imperfecta 

Osteogenesis imperfecta (OI) causes brittle bones which break very easily. A cough or sneeze can break 

a rib, rolling over can break a leg. When a child is born with OI, parents struggle to handle a child who is in 

constant pain. Hugging, diapering, dressing, or simply picking the infant up can cause a fracture. Throughout 

a person with OI's lifetime, (s)he will have numerous broken bones and surgery to try to correct bone 

deformities and straighten the bones so (s)he can live independently. 

Fractures, which can number in the hundreds over the lifetime of a person with severe OI, lead to 

other challenges. Casts. Braces. Surgery. Wheelchairs. Absence from school or work. Long periods of 

recovery. And the effects of OI go beyond fractures. People with OI may also have early hearing loss, spinal 

curvature, brittle teeth, and respiratory problems. 

Fortunately, OI does not compromise intellectual ability or mental health, and people with OI can 

succeed in school and the workplace, develop satisfying social and family relationships, and live independently. 

To pursue these goals, they face many challenges-limited mobility and physical pain, societal 

prejudices and architectural barriers. The Osteogenesis Imperfecta (OI) Foundation helps people face the 

challenges of coping with OI so that they can live satisfying and successful lives. 

Most cases of OI originate with a faulty gene that affects the formation of type 1 collagen, the major 

building block of bone and other connective tissues. This causes the body to manufacture either too little 

type 1 collagen or poor quality type 1 collagen. 

There are seven recognized types of OI, representing a wide variation in severity. People with the 

mildest form of OI, Type I, may have just a few or as many as several dozen fractures in a lifetime, be of 

normal or near-normal height, and may experience hearing loss, dental problems, and other complications. 

Babies born with the most severe type of OI, Type II, often have respiratory problems in addition to very 

fragile bones, and may die at or shortly after birth. OI Type III causes those affected to have dozens or 

even hundreds of fractures in a lifetime-including fractures present at birth-as well as very short stature 

and other health problems caused by bone deformities. Type IV OI usually falls somewhere between Type I 

and Type III in severity. Types V, VI, and VII, novel forms of OI, have only recently been identified and are 

similar to Type IV in severity. They are characterized by abnormalities in the structure of the bone but do 

not have a collagen defect. 

The OI Foundation Mission 

The nonprofit Osteogenesis Imperfecta (OI) Foundation, Inc., was founded in 1970 when a group of 

parents of children with OI joined together to provide mutual support, enhance public and professional 

awareness of OI, and promote research. The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the 

only voluntary national health organization dedicated to helping people cope with the problems associated 

with osteogenesis imperfecta. 

Over almost four decades, the OI Foundation has grown into a partnership of 100,000 members, 

supporters, donors, volunteers, researchers, medical professionals and a small staff who work together to: 

• Fund research to find treatments and a cure; 

• Educate and inform; 

• Facilitate mutual support; and 

• Raise public awareness and foster support for the Foundation's mission 

OI Foundation FY 2007 Annual Report Page 3

Financial 

From the Auditors 

The Board of Directors of the 

Osteogenesis Imperfecta Foundation 

Gaithersburg, Maryland 

We have audited the accompanying statements of financial position of the 

Osteogenesis Imperfecta Foundation (the Foundation) as of June 30, 2007 and 

2006 and the related statements of activities and cash flows for the years then 

ended. These financial statements are the responsibility of the Foundation's 

management. Our responsibility is to express an opinion on these financial 

statements based on our audits. 

We conducted our audits in accordance with auditing standards generally 

accepted in the United States of America. Those standards require that we 

plan and perform the audits to obtain reasonable assurance about whether the 

financial statements are free of material misstatement. An audit includes 

examining, on a test basis, evidence supporting the amounts and disclosures 

in the financial statements. An audit also includes assessing the accounting 

principles used and significant estimates made by the management, as well as 

evaluating the overall financial statement presentation. We believe that our 

audits provide a reasonable basis for our opinion. 

In our opinion, the financial statements referred to above present fairly, in 

all material respects, the financial position of the Osteogenesis Imperfecta 

Foundation as of June 30, 2007 and 2006, and its changes in net assets and its 

cash flows for the years then ended in conformity with accounting principles 

generally accepted in the United States of America. 

Our audits were made for the purpose of forming an opinion on the basic 

financial statements of the Osteogenesis Imperfecta Foundation taken as a 

whole. The accompanying supplemental schedules of expenses by program and 

temporarily restricted net assets for the years ended June 30, 2007 and 2006 

are presented for purposes of additional analysis and are not a required part of 

the basic financial statements. The information for the years ended June 30, 

2007 and 2006 has been subjected to the auditing procedures applied in the 

audits of the basic financial statements and, in our opinion, is fairly stated in 

all material respects in relation to the basic financial statements taken as a 

whole. 

September 7, 2007 

Washington, DC 


Financial 


Accomplishments 

From July 1, 2006 to June 30, 2007, the OI Foundation made great strides forward in its mission areas - 

reaching more people with critical information, facilitating progress in OI research, building awareness, and 

fostering connections between people and families in the OI community. 

Research: 

• In FY07, research investment of $356,567 included 

$313,421 in fellowships and seed grants, $7,185 for 

a meeting to organize the Linked Clinical Research 

Centers project and $35,961 for the sixth OI 

scientific meeting. Fellowships and seed grants 

were co-funded by the Children's Brittle Bone 

Foundation. 

• The sixth OI scientific meeting, "Clinical Care 

Strategies in Osteogenesis Imperfecta" was held in 

Rosemont, IL, from March 26-28, 2007. During the 

meeting, more than 60 clinic directors and researchers 

discussed and finalized the recommendations 

for quality medical care for people with OI of 

all ages and types. This brings us closer to the goal 

that people with OI will be able to receive evidence-based 

quality care, instead of "best guess 

care." 

• Studies describing the discovery of two recessive 

forms of OI were published in 2006. Roy Morello, 

Ph.D., a Michael Geisman Research Fellow, identified 

a recessive form of OI, and his work was 

published in the prestigious medical journal, Cell, 

in October 2006. Then, in December 2006, the New 

England Journal of Medicine published a study led 

by Joan Marini, M.D., Ph.D., that showed that a 

previously unexplained form of lethal OI results 

from a genetic defect in CRTAP, or cartilage 

associated protein. 

Education: 

• 570 people participated in the 15th Biennial 

National Conference on OI in Omaha, NE from July 

20-22, 2006. This included 31 scholarship recipients 

and 240 first-time attendees. During this 

three-day event, people with OI and their families 

enjoyed access to 46 medical and information 

sessions and a variety of social activities, including 

a trip to the Henry Doorly Zoo. With the help of 

Children's Hospital in Omaha, the Foundation also 

provided a Continuing Medical Education (CME) 

program on OI to 130 medical professionals. 

• The Foundation revised and updated 12 fact sheets 

and created 14 new facts sheets on topics of 

concern to people with OI, includingAdoption & 

Foster Parent Information, Vertebral Fracture 

Prevention, Cochlear Implants, and Osteonecrosis 

of the Jaw (ONJ). 

Left to right: Heller An Shapiro, former Executive Director; 

Michael Johnston and Jamie Kendall, outgoing Board members; 

Ken Finkel, President. Not shown: outgoing Board members 

Tracy Mulroy and Russell Sneiderman. 

• A volunteer advisory committee of adults, parents, 

children, and educators with OI was organized to 

make recommendations on the story outline and 

teachers guide for Emily's First Day!. This story 

book features a child with Type I OI. Modeled after 

the OI Foundation's successful Jason's First Day! 

(which features a child with moderate or Type IV 

OI), this book is designed to be read aloud in prekindergarten, 

kindergarten and first grade classes 

to introduce OI and the concept of being different 

to the students. This new resource will be available 

some time in 2008. 

Awareness: 

• Articles about osteogenesis imperfecta appeared in 

People magazine and Reader's Digest this year, as 

well as 15 local publications and four Internet ones. 

The OI Foundation responded to eight requests for 

information from media, compared to seven in 

FY06. 

• The Foundation began a redesign process for its 

website, thanks to the support of the Bergman 

family. A committee of volunteers provided input 

on design, and content. The proposed changes will 

make information easier to access and add several 

interactive features. The new site will debut in 

early 2008. 

Mutual Support: 

• The OI Foundation supports families through its 

National Resource Center and Information on 


Demand service. Phone calls, letters and e-mails 

are answered individually by trained staff. More 

than 6,000 inquiries were responded to this year. 

Questions come from new parents, family members, 

health care providers and from adults increasingly 

concerned about their own OI-related 

health problems. 

• The foundation web site continues to provide 

better information to more and more people. This 

year more than 162,000 people visited our web 

site. 

• Breakthrough, the Foundation's quarterly newsletter, 

continues to be available free of charge, 

thanks to some generous donors. A monthly enewsletter 

is distributed to more than 6,600 

subscribers. 

• People of all ages participate in our weekly chat 

rooms on Sunday evenings. Key Pals a pen pal 

program allows children to connect with other kids 

who live with OI. 

• Volunteers all over the country have contributed 

thousands of hours this year to raise funds and help 

their peers by hosting 36 support and network 

groups in 25 states. In addition, 167 support 

volunteers in 43 states provide phone support to 

others in the OI community. 

Active Support & Network Groups 

Throughout The Nation: 

Alabama 

(Goodyear) Arizona 

(Mesa) Arizona 

(Northern) California 

(Southern) California 

Colorado 

Delaware 

(Ft. Myers/Tampa) Florida 

(Jacksonville) Florida 

Georgia 

Illinois 

Indiana 

Iowa 

Kansas 

Kentucky 

Massachusetts 

Michigan 

Minnesota 

Missouri 

New Jersey 

New York 

(Southwest) Ohio 

(Northeast) Ohio 

(Northern) Ohio 

Oregon 

(Pittsburgh) Pennsylvania 

(Central) Texas 

(Dallas) Texas 

(Houston) Texas 

(San Antonio) Texas 

Utah 

Washington 

Wisconsin 


Education and Support 

New Materials from the OI Foundation 

These publications are available on the OI Foundation web site www.oif.org or by contacting the 

Foundation at (301) 947-0083, 1-800-981-2663, or Bonelink@oif.org. 

New Fact Sheets 

Social & Emotional Issues 

Adaptive Equipment 

Adoption & foster parent 

Information 

Adults & Fracture Care 

Cochlear Implants 

Learning to Drive 

Planning a Family 

Summer Camps 

Swimming for Fun & fitness 

Understanding Recessive OI 

Vertebral Fracture Information 

Vertebral Fracture Prevention 

What is Osteonecrosis of the 

Jaw (ONJ)? 

What is Scoliosis? 

CaringBridge Helps You Keep in Touch 

When you really need the 

support of friends, neighbors and 

relatives, you often don't have the 

time to share information. 

CaringBridge is a free, nonprofit 

web service that connects family 

and friends to share information, 

love and support during a 

health crisis, treatment and 

recovery. CaringBridge lets you 

use the Internet to easily share 

your experiences with a selected 

group of friends and family, and 

receive messages in return. 

The OI Foundation is 

partnering with CaringBridge to 

bring you this free, internet 

service that can help you stay 

connected. Founded in 1997, 

CaringBridge now connects more 

than 15 million people each year. 

The service is always free, private 

and personalized, and it takes just 

a few moments to set up your own 

CaringBridge website. 

Revised and Updated 

in 2007 

OI: An Introduction for Medical 

Professionals, Individuals & 

Families 

Adults: Maintaining Health 

Bone Mineral Density 

Bone Structure 

Dental Care 

Fast Facts about OI 

Hearing Loss and OI 

Home Modifications 

Nutrition 

Preparing for a Child's Surgery 

Rodding Surgery 

Understanding Type I OI 

CaringBridge's mission is to bring 

together a global community of 

care powered by the love of family 

and friends in an easy, accessible, 

and private way. 

A recent article by Shelly Reese 

on nurse.com describes a mother 

who benefits from CaringBridge 

during her daughter's frequent 

hospitalizations. In the middle of 

the night during her daughter 

Sophia's frequent hospitalizations, 

she'll head down to the family 

resource center and update 

Sophia's CaringBridge site. She 

posts photos of Sophia on the 

website and keeps an online 

Coming in 2008 

Emily's First Day! 

A picture book about a child with 

type I OI who is starting school 

Guide to OI for Pediatricians 

and Family Practice Physicians 

A free booklet from the OI 

Foundation and the NIH 

New OI Foundation Web Site 

www.oif.org 

Same address, but with a whole 

new look and many new interactive 

features 

journal tracking her good days as 

well as her bad ones. "When it's 2 

AM and I'm in the hospital with 

Sophia and I'm really struggling, I 

can go on CaringBridge and see 

someone's message and that 

really makes me feel less 

isolated. It's been really useful in 

my own healing." 

If you would like this kind of 

support, then check out the easy 

directions for building and 

maintaining your web page, as 

well as letting people know about 

your page. Information is available 

by clicking on the CaringBridge 

logo on the OI Foundation web site 

www.oif.org. For more information 

about CaringBridge, visit 

their web site 

www.caringbridge.org. 


Research 

Richard Wenstrup, M.D., Elected Medical Advisory Council Chairperson 

Richard J. Wenstrup, M.D., who began his term as chair of the Medical Advisory Council on July 1, 2006, 

is Chief Medical Officer at Myriad Genetics, Inc. in Salt Lake City, UT. Previously, he served as Director of 

Connective Tissue Clinics and Director of the Molecular Genetics Diagnostic Laboratory, Division of Human 

Genetics at Cincinnati Children's Hospital. 

Dr. Wenstrup is currently testing the use of ribozymes to inactivate mutant collagen genes, and studying 

the cellular effects of abnormal collagen deposition in osteoblast cells. He earned his M.D. at the University of 

Cincinnati Medical School, and has previously served in a number of academic appointments, including 

Director of the Connective Tissue Diagnostic Facility, at the Departments of Medicine and Pediatrics, Duke 

University. Dr. Wenstrup has been a member of the OI Foundation Medical Advisory Council since July 2005. 

He chaired the Scientific Review Committee at its inception in 1999, developing a thorough medical review 

process to make grant funding recommendations to the Board of Directors. 

Recessive Form of OI Discovered by Foundation-funded Researcher 

Medical Advisory Council members collaborate to speed results 

(Excerpted from the November 2006 issue of Breakthrough) 

An important article on the genetics of OI was 

published in the October 19, 2006 issue of Cell, a 

prestigious medical journal. Research by OI Foundation 

Michael Geisman Research Fellow Roy Morello, 

Ph.D., identifies a recessive form of OI. This will 

greatly improve OI diagnosis and family counseling 

for people with a family history of lethal or severe OI 

(similar to Types II and III), or Type VII OI who do not 

have a collagen mutation. 

The research studied a protein called CRTAP 

(Cartilage Associated Protein) that is important for 

bone formation. Dr. Morello's mouse studies first 

showed the importance of this protein for bone, 

leading the way for human genetic studies. When the 

researchers found that CRTAP was in the same 

chromosomal location as Type VII OI, the genetic 

connection was made. When CRTAP is in low supply, it 

causes the mild bone fragility of Type VII OI. When it 

is absent, it causes more severe symptoms that are 

similar to Types II and III OI. 

Important discoveries often are the result of 

teamwork. OI Foundation Medical Advisory Council 

members Francis Glorieux, M.D., Ph.D., Shriners 

Hospital for Children, Montreal; Peter Byers, M.D., 

University of Washington; and Joan Marini, M.D., 

Ph.D., National Institutes of Health contributed to 

this research. Dr. Glorieux discovered the Type VII 

form of OI. Dr. Byers provided severe OI tissue 

samples. Independent research from Dr. Marini 

identified mutations in the identical gene in several 

cases of recessive lethal OI. Discussions begun during 

the OI Foundation's scientific meetings contributed to 

these collaborations. 

Donations to the OI Foundation Research Fund 

from members of the OI community were a crucial 

part of these important discoveries. Dr. Morello's 

research was funded in part by a Michael Geisman 

Research Fellowship from the OI Foundation and the 

Children's Brittle Bone Foundation. 

Up to now, research indicated that almost all 

cases of OI were caused by a dominant genetic 

mutation in the Type I collagen genes, meaning that 

only one copy of the OI gene would be necessary for a 

person to have OI. This new research found that 

lethal or severe OI can also be associated with a 

recessive form of inheritance caused by changes in 

the CRTAP gene. In this situation, the parents do not 

have OI, but they both carry a mutation for it in their 

genes. For a child to have OI, he or she must inherit 

the OI-causing CRTAP mutation from both parents. 

When a child has recessive OI, there is a 25 percent 

chance per pregnancy that the parents will have 

another child with OI. Siblings of a person with a 

recessive form of OI have a 50 percent chance of 

being a carrier of the recessive gene. 

New diagnostic tests based on this research have 

been developed at Baylor College of Medicine in 

Houston, TX, and at the National Institutes of Health 

(NIH) in Bethesda, MD. Research continues into the 

possibility of other recessive forms of OI. 

CRTAP is Required for Prolyl 3-Hydroxylation and 

Mutations Cause Recessive Osteogenesis Imperfecta, 

Roy Morello et al. Cell 127, 291-304, October 20, 

2006. 


Research 

Historic Sixth Annual Scientific Meeting Will Improve Medical Care 

The Foundation's sixth 

annual scientific meeting, 

Clinical Care Strategies in 

Osteogenesis Imperfecta, 

exceeded its goals. Prior to the 

meeting, working groups met to 

develop recommendations for 

quality medical care for people 

with OI of all ages and types. 

During the meeting, more than 

60 clinic directors and researchers 

discussed and finalized the 

recommendations. Several local 

families shared their personal 

experiences with medical care. 

The dialogue was productive, 

focusing on defining the best 

medical care for people with OI. 

When the recommendations are 

completed and published in a 

few months, people with OI will 

be able to receive evidencebased 

quality care, instead of 

"best guess care." 

One of the most valuable 

results that comes from holding 

annual scientific meetings is 

improved collaboration and 

communication between many 

of the best minds working in OI and bone research 

today. An essential part of this meeting occurred 

when participants met in small groups to share their 

most difficult cases. Everyone learned from the 

discussion and suggestions that were made. 

The Foundation's Linked Clinical Research 

Centers (LCRC) took a big step forward as standard 

intake forms were developed and criteria for becoming 

a Center was agreed on. A pilot test linking the 

first four Centers is expected to begin in Fall 2007. 

Sponsored by the OI Foundation and the Children's 

Brittle Bone Foundation, the LCRC will improve the 

quality of life and lifespan of adults with OI by 

defining the standard of care for people with OI, 

developing a means by which people with OI in 

different parts of the U.S. all have access to the 

Orthopedic Surgeons at the Clinical Care Strategies in Osteogenesis Imperfecta 

scientific meeting share ideas about surgical technique in OI. Standing from left to right: 

Laura Tosi, M.D., Children's Hospital National Medical Center; Peter Smith, M.D., Shriners 

Hospital for Children, Chicago; Paul Esposito, M.D., Omaha Children's Hospital and Univ. of 

Nebraska Medical Center Metabolic Bone Diseases Clinic; Cathleen Raggio, M.D., Hospital 

for Special Surgery and Center for Skeletal Dysplasias & OI Clinic, New York; and Fred 

Shapiro, M.D., Children's Hospital, Boston. Seated from left to right: Francois Fassier, M.D., 

Shriners Hospital for Children, Montreal; and Paul Sponseller, M.D., OI Clinic at the Kennedy 

Krieger Institute, Baltimore. 

highest standard of care, and advancing the standard 

of care and improving potential for a cure through 

patient related research. 

Major support for this meeting was provided by 

the Buchbinder Family Foundation. The Buchbinder 

Family Foundation pledged $250,000 over five years 

to make future annual meetings possible. Now Clinic 

Directors and Researchers can plan to collaborate and 

work together annually to improve care and speed up 

research for people with OI. 


Donor Profile 

P.J. and Jennifer Kimball 

When our wonderful granddaughter, Molly, was 

born two years ago, none of us was prepared for her 

challenging OI diagnosis. She was a little baby with a 

complicated medical course that none of us knew how 

to navigate. Her great-grandmother said: "Stay 

tuned for the miracles. I'm sure they will come. They 

may not be in the size or shape you were expecting, 

but I'm sure they 

will come." Our 

daughter and sonin-law 

got up to 

speed as quickly 

as they could, but 

it was a very 

confusing and 

difficult time. 

Trying to find 

professionals who 

had experience 

with OI was a 

trial. One of 

Molly's 

pediatricians 

mentioned the OI 

Foundation 

website and that 

was how our 

relationship with 

the OI Foundation 

began - this was 

one of those miracles. The Foundation gave us a 

wealth of information and resources. We bought 

Standing from left to right: PJ, Jennifer and Tripp Kimball; Seated from left to 

right: Jim, Molly, and Sarah Sullivan. 

books, downloaded information sheets from the OI 

website and read voraciously. 

We were excited to learn about the OI 

Conference and 

immediately began to 

plan how to get the 

entire family and both 

sets of grandparents to 

Omaha in July 2006. 

This OI Foundationsponsored 

conference 

gave us an opportunity 

to meet families who 

were living and thriving with OI and to connect with 

professionals who might help guide Molly's care. The 

conference was comforting, informative and FUN! 

When you have a baby who is given a weighty 

diagnosis, sometimes all you can see initially is the 

disorder. Now two years later, we see a happy, fun 

We have made the OI Foundation a 

priority in our charitable giving, 

because of all that the OI Foundation 

has done for us and our family. 

little girl who has taught us so much and has truly 

brought us all closer - another of those miracles. 

We have made the OI Foundation a priority in our 

charitable giving, because of all that the OI 

Foundation has done for us and our family. Our 

extended family also embraces giving to the 

Foundation and makes contributions in lieu of 

birthday or 

Christmas gifts - 

this warms our heart 

tremendously. 

Recently, we began 

working on a major 

fund raising effort 

for the OI 

Foundation, in hopes 

that our efforts will 

benefit other 

families with OI, 

giving them the 

same vital support 

that we have 

received. The ability 

to gain fact-based 

answers to questions 

about OI and read 

about or talk with 

other OI patients, is 

exciting and 

comforting. 

Readers might find Molly's blog an interesting 

little adventure. Sarah and Jim Sullivan, Molly's 

parents, have created this site, and it is: 

(jsulliv.googlepages.com/molly) 

We look forward to the progress that we as a 

family make in 

understanding Molly's 

PJ and Jennifer Kimball 

(a.k.a "Poppy and Mimi") 

condition, and we look 

forward to following the 

progress that the OI 

Foundation provides for 

continuing research in OI. 

The OI Foundation is 

another one of those 

miracles. 


Fundraising 

Supporters of the OI Foundation showed no shortage of creativity in developing a variety of interesting 

events designed to build awareness of OI in their communities and generate critical financial support. 

From July 1, 2006 - June 30, 2007, these volunteers reached thousands of people through 22 fundraising 

events across the nation, raising more than $500,000 in net proceeds to benefit the Foundation's mission. 

Golf Tournaments - Golf tournaments have proven to be a successful way for volunteers in the OI community 

to do something they love, while introducing local businesses and larger corporations to osteogenesis 

imperfecta. 

• Riley's Gathering Place Golf Outing, Wood Dale, IL - Patrick Fromelt and Anthony Benish 

• Miracle Michael Fund Charity Golf Outing, Naperville, IL - John and Beth Shultz 

• North Jersey District UPS United Way 

Golf Invitational, Hamburg, NJ - Dean 

Britt and Tony Gerbasio 

• Bennett Clayton Foundation Charity 

Golf Event, St. Peter, MN - Paula Coomer, 

Erin DeBlieck and Brenda DeBlieck 

• Kroger OI Foundation Charity Golf 

Tournament and Auction, Roanoke, VA - 

Joe Antolini, Art Jaklitsch, Norm Slocum, 

Kristen Antolini, and Pete Williams 

• OI Foundation DC Metro Golf Tournament, 

Ashburn, VA-Karen Orejuela, Roger 

Bache, Jacqueline Bourgeois, Michael 

McDonald, and David Vurdelja 

• OI Charity Golf Tournament, Miami, OK 

- Mike, Tina, & Dakota Berry and Jim, 

Leah & Jacob Everett 

• Southern California Petroleum Industry 

Charity Association Golf & Tennis 

Tournament, Pasadena, CA - Thomas 

Ritchie, Frank Fossati, Heidi Glauser, 

Michelle Hofhine and Marybeth Parke 

Roan McRae, who served as Tournament Chairperson in 2005, 

purchased this painting by 12-year-old Nicole Hofhine for $1,200 at 

the SCPICA event auction on Oct. 27, 2006. 

Other Fundraising Events - These walk-n-wheel events, seafood festivals, dinners, luncheons, and other 

activities bring families dealing with OI together, serving as the basis for new friendships and sometimes, 

even for a new OI Network or Support group. 

• Bingo Night for OI, Ledyard, CT - Paula Furber 

• Bash by the Bay Seafood Festival, Margate City, NJ - Chery Sacchetti 

• 24-Hour OI Blog-a-thon, Nationwide - Joe Schmidt 

• New Jersey Beefsteak Dinner, Garfield, NJ - Rosemarie Kasper, Jo Ann Berkenbush, and Beverly 

Krudys 

• Daughters of Penelope Fashion Show & Luncheon, Bethesda, MD - Lil Bakalis, Joanne Stathes, and 

the members of Arion Chapter 298 

• Dinner and Gospel Benefit Concert, Pleasant Grove, Al - The Pleasant Grove Church of the 

Nazarene, in honor of Stephen Hudson 

• Old Country Store Christmas Eve Breakfast, Jackson, TN - Clark, Juanita & Elizabeth Shaw and 

Deborah Laman 

• Red Hatters Afternoon Tea Party, St. Louis, MO - Mary Caldwell 

• Mary Poppins theater event and reception, New York, NY - Jeffrey & Andrea Stewart, Eleanor 

Seepes, and Robin Wright 

• OI Beef and Beer Benefit, West Chester, PA - Greg, Leigh, & Mallie Holman and the team at Advanced 

AV 

• Fine Wines, Strong Bones, Washington DC - Roger & Gayle Bache, Jacqueline Bourgeois, Vivianne 

Couts, Tim Dombro & Jamie Kendall, Kyle & Tracy Mulroy, Lyn Reid, and David Vurdelja. 

• Massachusetts Making Strides for OI Walk, Silent Auction, and Family Fun Day, Framingham, MA - 

Christine Wyman Rossi 


Fundraising 

Bone China Tea - Our phantom tea party event set a new fundraising record, topping $40,000 for the first 

time ever! Forty-nine volunteer 'hosts' brought in gifts totaling $42,393 from 794 donors. Bone China Tea was 

chaired by Susie and Jenny Wilson. 

$5,000 and up! 

Bonnie Landrum & Mike Johnston 

$2,000 - $4,999 

Carmellya, Breman Jr., & Alana 

Anderson 

Alec Cabacungan 

Beth Gero 

Susan Wilson 

$1,500 - $1,999 

Elise Ludwig 

Chris & Cyndi Nolan 

Andrea & Addie Wisniewski 

$1,000 - $1,499 

Judi Clarke 

The Finkels 

Melinda Marston 

Robin & Mickey Rowland 

$500 - $999 

Jessica Bernstein 

Gail, George, & Michelle Bunker 

Shelby, James, & Jessica Carter 

Amy & James Dias 

The Furbers 

Sylvan Ganz 

The Glickmans 

Carmela Hurt 

Jonna Jones 

Karen Vowell 

$250 - $499 

Megan Asmus 

Adam & Donna Ayers 

Emily Enright 

Don Gardner 

Shellie Gruenwald 

Jackie Roberts 

Diane Ross 

Elle Sawyer 

Kay West 

Kerry & Susan Wright 

Matching Gifts from your Employer 

Double the Impact of your Gift! 

Up to $249 

Audrey Chambliss 

Bev Coffin 

R.L. Correllus 

Jenna Cummings 

Jamie Kendall 

Kathleen Knuf-Felte for Emma 

Knuf 

Robert & Phyllis Martin 

Kimberly McKee 

Linda Morehouse 

Michelle Moscardelli 

Maureen Naughton 

Edward & Doris Painter 

Sandy & Emily Scalzo 

Deb Selig 

Halley & Peggy Szpaichler 

Debbie Wiederhold 

Jennie Wilkie 

The OI Foundation has made it easier to determine if your company matches charitable 

contributions! 

Many companies sponsor matching gift programs to encourage employees to support their favorite 

charitable organizations. The OI Foundation is now providing donors with instant online information 

about their employers' matching programs. With more donors making gifts online, this program 

makes it easy to identify which companies match employee giving to charitable organizations. 

Simply visit www.matchinggifts.com/oif on the Foundation's website, and key in your employer's 

name to learn instantly if your gift can be matched by your organization. You will also be able to view 

your company's match policy, including minimum and maximum gift amount eligibility, gift ratio, 

procedure for getting the gift matched, and any special comments. 

If you have any questions about this or any other aspect of matching gifts, contact Director of 

Development John O'Brien at jobrien@oif.org or 1-800-981-2663. 


Fundraising 

Foundation launches OI National Walk-n-Wheel Program 

This year, the Foundation launched a national walk-n-wheel program, 

Making Strides for Better Bones, following in the footsteps of a number 

of talented volunteers who previously organized their own very successful 

events. 

Now all of these fundraisers will be organized under one banner, 

meaning the Foundation will provide event organizers with brochures, 

pledge sheets, web pages for raising pledges, sponsor information, Tshirts, 

water bottles, and support from staff and veteran volunteers. 

Making Strides for Better Bones will accomplish three primary 

objectives: 

• Build awareness of osteogenesis imperfecta (OI); 

• Promote activities that lead to better bones; and 

• Raise money to support the Foundation's research, education, 

awareness, and mutual support activities. 

New York Theater Guests Enjoy Meeting 

with Mary Poppins Cast Members 

Approximately 84 friends of the OI Foundation gathered 

in New York City on April 13 to watch the Broadway 

production of Mary Poppins and to support our work. 

After the show, guests enjoyed a private question-andanswer 

session with two Mary Poppins cast members. This 

was arranged by actress Kristin Carbone, who played Mrs. 

Banks that evening and also serves as an understudy for the 

role of Mary Poppins. 

Guests also attended a Mary Poppins-themed reception, 

hosted by Ernst & Young at 5 Times Square. 

At the reception, they dined on traditional English fare, 

including miniature beef Wellingtons, fish & chips, miniature 

meat pies, English tea sandwiches, scones, English triffle, 

and other treats. Servers contributed to the atmosphere by 

dressing in black with black make-up on their faces to look 

like chimney 

sweeps. 

Immediate 

Past President 

Jamie Kendall 

Volunteers Robin Wright and Ellie Seepes tend 

bar at the Mary Poppins pre-show reception. 

Two-year-old Jack Rossi joined the 

Making Strides for OI walk-n-wheel 

event in Framingham, MA on June 24. 

Organized by his mother, Christine 

Wyman Rossi, this event raised almost 

$50,000 for the Foundation. 

"As people in the OI community start new events, we have a real 

opportunity to put OI on the map. Doctors, educators and neighbors will 

gain new understanding and familiarity with OI, and new awareness of how much people with OI can 

accomplish," explained former Executive Director Heller An Shapiro. 

To learn more, visit www.oif.org/oiwalk, or contact Associate Director of Development Stuart Tart at 

development@oif.org or 1-800-981-2663. 

Jamie Kendall, Immediate Past President, auctions 

off a Mary Poppins poster, signed by the cast. 

Former Executive Director Heller An Shapiro holds 

the poster. 

conducted a live auction of two pieces of memorabilia from the 

show: A Mary Poppins umbrella, signed by the cast, with a parrot 

on the handle, and a framed show poster, also autographed by the 

cast. Together, these two items fetched $875. 

This third annual New York theater outing was organized by 

Board members Jeffrey Stewart and Caren Loguercio and 

volunteers Andrea Stewart, Eleanor Seepes and Robin Wright. 

Board member James Sharples also attended. 


Fundraising 

Foundation Honors Three with Unbreakable Spirit Awards 

On May 12, 2007, the OI 

Foundation presented Unbreakable 

Spirit Awards to Indianapolis 

attorney Greg Fehribach, People 

Senior Writer Jill Smolowe, and 

the Daughters of Penelope, Arion 

Chapter 298. 

The Daughters of Penelope 

is an organization primarily 

made up of women of Greek 

descent that is focused on 

philanthropic, educational and 

cultural activities. Members of 

Arion Chapter No. 298, located 

in Silver Spring, MD, have 

demonstrated a real commitment 

to helping children with OI by 

naming the OI Foundation as the 

beneficiary of its annual fashion 

show luncheon during the past 

two years. 

These ladies have gone even 

further to help the OI community 

by involving other Daughters of 

Penelope chapters in supporting OI 

research, informational resources, 

and services to families. In fact, 

chapter leaders successfully 

persuaded their 

four-state 

district to adopt 

the OI Foundation 

as its 

district charity 

during 2006- 

2007. 

As an 

attorney and a 

consultant on 

accessibility 

design issues, 

Greg Fehribach 

works in Indianapolis 

and 

Greg Fehribach 

nationwide to make public buildings 

accessible for everyone living 

with OI and other disabilities that 

affect their mobility. By sharing his 

talents, expertise, and life experi- 

Board president Ken Finkel congratulates Greg Fehribach on his Unbreakable Spirit 

Award, while former Executive Director Heller An Shapiro looks on. 

ence, he has opened up wonderful 

moving portrait of how a lifelong 

resources like the Indiana 

medical disorder 

State Museum, the 

like osteogenesis 

Indiana governors' 

imperfecta (OI) 

residence, and 

impacts a family 

Conseco Fieldhouse 

emotionally, finan- 

to tens of thoucially, 

and medically. 

sands of Americans 

Ms. Smolowe's clear 

who otherwise could 

prose provided an 

not enjoy them 

accurate description 

fully. He is a past 

of the disorder, 

member of the OI 

showed people 

Foundation's Board 

where they can turn 

of Directors. 

for help, and raised 

In its August 

awareness of this 

21, 2006 edition, Jill Smolowe 

rare condition 

People magazine 

among the American 

published a power- 

public. 

ful feature article, 

written by Jill Smolowe, about the 

struggles faced by a family whose 

young daughter lives with OI. 

Titled Keeping Hope Alive, this 

article provided readers with a 


Financial 

Notes to Financial Statements 

June 30, 2007 and 2006 

1. DESCRIPTION OF THE ORGANIZATION 

The Osteogenesis Imperfecta Foundation (the Foundation) is a Georgia 

non-stock corporation incorporated in 1970 with the primary purpose 

of improving the quality of life for people affected by this bone 

disorder through research into treatments and a cure, education, 

awareness, and mutual support. 

The underlying categories represent the major program areas of the 

Foundation: 

Public Awareness - The Foundation strives to build public awareness 

and generate additional support among people with OI, community 

organizations, public agencies, and medical professionals. The 

Foundation offers medically verified information on osteogenesis 

imperfecta, from medical issues to daily living strategies, via phone, 

internet, fax, and mail. The Foundation also reaches out with print 

publications, press releases, DVDs, e-newsletters, and the web site. 

The Foundation has a 30-second Public Service Announcement designed 

to be aired on local television stations. 

Education and Support - The Foundation publishes four books for 

families and children, and three for medical and school professionals; 

three instructional DVDs, with companion guides, for families; fact 

sheets on frequently requested topics; audiocassettes with expert 

advice; Guides to OI for Occupational and Physical Therapists and 

Nurses; a quarterly newsletter, a monthly e-newsletter, and over 30 

fact sheets. In addition, the Foundation's website at www.oif.org 

contains up to date information on all aspects of living with OI. 

Foundation staff and volunteers respond to more than 6,000 inquiries 

a year, and use these contacts to assess the need for additional 

resources. Topics covered include schooling, pain management, 

psychological needs of the family, child abuse, fracture management, 

physical fitness, hearing loss, dental needs and aging. The Foundation 

is continually developing new information resources in response to the 

needs of families, adults, and professionals working with those 

affected by osteogenesis imperfecta. 

Conference - The Foundation's principal education event is the 

Biennial National Conference on OI, which provides more than 550 

people with OI and their families with medical, research, and coping 

information. For many, it's the first opportunity to meet others who 

are living with OI. 

Research - The Foundation funds grants to support research training 

of people who aspire to develop long-term and relevant career 

understanding in order to treat or cure osteogenesis imperfecta; 

seed grants to researchers to prepare preliminary data as a basis for 

potential application to external major research funding resources or 

other long-term collaborative research efforts; research-related 

activities adopted by the Board of Directors involving medical 

symposiums, meetings, conferences, continuing medical education 

(CME) seminars, and advocacy efforts to encourage research by 

federal agencies; and indirect administration of research funds, 

including actual costs to administer and advance all of the above 

research efforts of the Foundation. In 2004, the Foundation began 

funding a long term project to develop linked clinical research centers 

to improve quality of care and increase research results. Included in 

the centers project is an osteogenesis imperfecta registry to improve 

knowledge of the natural history of osteogenesis imperfecta. 

2. SUMMARY OF SIGNIFICANT ACCOUNTING POLICIES 

Basis of Accounting 

The financial statements have been prepared on the accrual basis of 

accounting in accordance with generally accepted accounting 

principles. Accordingly, revenues are recognized when earned and 

expenses are recognized when incurred. 

Estimates 

The preparation of financial statements in conformity with generally 

accepted accounting principles requires management to make 

estimates and assumptions that affect certain reported amounts and 

disclosures. Accordingly, actual results could differ from those 

estimates. 

Cash and Equivalents 

The Foundation considers all highly liquid investments purchased with 

an original maturity of three months or less to be cash equivalents. 

Inventory 

Inventory is recorded at cost using the first in, first out (FIFO) method 

of inventory valuation. 

Prepaid Expenses 

The Foundation records expenses incurred in advance for general 


Financial 



operations and the biennial national conference as prepaid expenses. 

Pledges Receivable 

Pledges receivable represents amounts which have been promised but 

not yet received. Pledges are recorded at the original value less an 

estimate of uncollectible pledges. Pledges beyond one year are 

discounted to reflect the present value of the pledge. 

Accounts Receivable 

Accounts receivable are recorded at the original invoice value less an 

estimate for allowance for doubtful accounts. Management determines 

the estimate of allowance for doubtful accounts by applying 

historical trends to the aging of accounts receivable. Accounts 

receivables are directly written off when deemed uncollectible. If 

ultimately collected, they are recognized as revenue in the period 

collected. Based on Managements estimate of collectible accounts 

receivable, the allowance for doubtful accounts as of June 30, 2007 and 

2006 was zero and zero, respectively. 

Fixed Assets 

The Foundation has a capitalization policy for qualifying assets in 

excess of $300. Furniture and equipment are reported at cost. 

Assets and capital lease purchases are depreciated over a two to ten 

year estimated life using the straight-line method. Depreciation 

expense for the years ended June 30, 2007 and 2006 was $10,320 and 

$10,465, respectively. 

Investments 

Investments are recorded at market value. Realized and unrealized 

gains and losses on investments are reported on the statement of 

activities as they occur. 

Research Grant Awards 

Research grants awarded prior to year end, but not distributed are 

recorded as grants payable and expensed accordingly. 

Deferred Revenue 

The Foundation records income for conference fees which have been 

paid in advance as deferred revenue. 

Gifts and bequests of property 

Gifts and bequests of property are recorded at the earlier of the date 

received or when the bequest is no longer subject to probate and its 

value can be reasonably estimated. Gifts and bequests are valued at 

their estimated fair market value on the date they are recorded. 

Net Assets 

Net assets are reported by the Foundation in accordance with 

Financial Accounting Standards Board (FASB) 116 and 117. Accordingly, 

net assets have been reported using the following categories. 

Unrestricted 

Unrestricted net assets represent resources over which the Board 

of Directors has discretionary control, and are used to carry out 

operations of the Foundation in accordance with their bylaws. 

Designated net assets, also known as the Endowment Fund, have 

been reserved by the Board of Directors. For the years ended 

June 30, 2007 and 2006 the balance of the Endowment Fund 

investment was $1,735,365 and $1,515,106, respectively. 

Temporarily Restricted 

Temporarily restricted net assets represent contributions and 

grants, which have been restricted by donors for specific programs 

or activities. Restrictions, which have been met by the passage of 

time or expenditure of net assets, are reported as revenues 

released from restrictions on the statement of activities. 

Temporarily restricted funds received and utilized in the same 

operating period are reported as unrestricted revenue on the 

statement of activities. For the years ended June 30, 2007 and 

2006, the Foundation received $900,140 and $661,407, respectively, 

in temporarily restricted contributions and grants. As of June 30, 

2007 and 2006, temporarily restricted net assets were $638,720 

and $473,064, respectively. 

Permanently Restricted Funds 

Permanently restricted net assets represent contributions which 

have been restricted by donors indefinitely. The permanently 

restricted net assets have been identified by the Foundation and 

the Endowment Fund. Investment income generated from the 

principal of the permanently restricted net assets has been 

designated by the Board of Directors for reinvestment in the 

Endowment Fund. For the year ended June 30, 2007 the Foundation 

did not receive any permanently restricted contributions. As 

of June 30, 2007 and 2006, permanently restricted net assets were 


Financial 



$54,488 and $54,488, respectively. 

Income Taxes 

The Foundation is a nonprofit organization, which is exempt from 

federal income taxes under the provision of Section 501(c)(3) of the 

Internal Revenue Code. However, the Foundation is subject to 

unrelated business income tax for activities conducted outside its tax 

exempt purpose. During 2007 and 2006, the Foundation did not 

conduct unrelated business activities. 

Functional Allocation of Expenses 

The costs of providing the various programs and other activities have 

been summarized on a functional basis in the Statement of Activities. 

Accordingly, certain costs have been allocated among the programs 

and supporting services benefited. 

Donated Services and Materials 

Contributions of services are recognized if the services received 

create or enhance nonfinancial assets or require specialized skills, and 

are provided by individuals possessing those skills and would typically 

need to be purchased if not provided by donation. Contributed 

services and promises to give services that do not meet the above 

criteria are not recognized. During 2007 and 2006, the Foundation 

received $4,714 and $59,663 in donated materials or services, 

respectively. 

In addition, the Foundation has estimated that total volunteer time 

donated during the years ended June 30, 2007 and 2006 was 

approximately $444,498 and $524,701, respectively, valued at $17.55 

per hour. These services are not recorded in the accompanying 

financial statements as they did not meet the requirements as noted 

above in the previous paragraph. 

3. INVESTMENTS 

The value of investments was as follows: 

June 30, 2007 June 30, 2006 

Cost Market Cost Market 

Equities $ 1,043,682 $ 1,153,789 $ 970,479 $ 993,295 

Corporate bonds 699,331 683,105 633,075 610,055 

Total $ 1,743,013 $ 1,836,894 $ 1,603,554 $ 1,603,350 

The market value of stocks is estimated based on quoted market 

prices for those investments. None of the investments are held for 

trading purposes. 

4. PLEDGES RECEIVABLE 

June 30, June 30 

2007 2006 

Pledges receivable were as follows: 

Pledges due in less than one year $ 310,709 $ 159,512 

Due in one to five years 35,715 - 

Total pledges receivable $ 346,424 $ - 

Less: Allowance for doubtful pledges ( 13,856) ( 10,328) 

Net pledges receivable $ 332,568 $ 149,184 

5. MARJORIE D. BUYNAK CHARITABLE FUND 

The Foundation was named as a beneficiary of a charitable remainder 

trust upon the death of the annuitant. As a result, $15,500 was 

invested in a perpetual trust administered by a third party. The 

Foundation has the right to receive income earned on the asset. The 

principal asset is permanently restricted. 

6. COMMITMENTS 

The Foundation entered into a thirty-six month agreement for the 

lease of office space commencing December 1, 2007. The lease 

provides for monthly payments of $6,618. The lease provides for 

annual escalation increases at a rate of 3% per annum. Rent expense 

for the years ended June 30, 2007 and 2006 was $85,042 and $82,565, 

respectively. 

The Foundation has entered into several agreements for office 

equipment and support services. Future minimum payments under all 

lease agreements are as follows: 

2008 $ 93,481 

2009 82,810 

2010 34,250 

Total $ 210,541 

During 2005, the Foundation entered into an agreement with a human 

resources leasing group to provide all related human resource 

services for employees. The agreement is on a month to month basis 


People 

Lifetime Members 

Mr. & Mrs. Joe Antolini 

Ann Armstrong 

Asset Allocation & Management Co. 

Mr. & Mrs. Robert Ayers 

Mr. & Mrs. Roger Bache 

Melvyn & Elena Baez 

James & Gina Baxter 

Mr. & Mrs. Armand Benassi 

Jo Ann Berkenbush 

Mrs. Marcia Bernstein 

Diane Bessler-Hackett 

Ms. Judith Clarke Blackwood 

Frank Blankemeyer 

Mr. & Mrs. Michael Boyar 

Mr. & Mrs. John Braitmayer 

Mr. & Mrs. Robert Brendel 

Fred & Harriett Bridges 

Dr. & Mrs. William Brock 

Charles & Paula C. Brunell 

Andy & Ronda Bryson 

Dominick Bucci 

Mr. & Mrs. Kenneth Buck 

Mr. & Mrs. George Bunker 

Peter Byers, M.D. 

C'Jack Realty Associates 

Tom, Diane & Jennifer Camp 

Tom & Patricia Camp 

Mr. & Mrs. David Cannington 

Kathleen Caruso 

Jeanne Charnas 

Dr. John Cheronis & Shirley 

Browner 

Ms. Linda Chinn 

Walter Ciejek 

James Clinansmith 

Robbin & Shannon Cohen 

Mr. & Mrs. George Collett 

Mr. & Mrs. Leslie Cook 

Victoria Cramer 

Robert & Peggy Davey 

Michael & Mary Delfosse 

Joel DeLisa, M.D. 

Donald R. Dillon 

Donald & Colleen Dillon 

Edalca Holdings, Ltd. 

Mr. & Mrs. Robert Eichenberg 



Merrick Elfman & Therese 

Wareham 

Kendall & Barbara Everson 

Eleanor Faber 

Peter Fahey 

Family Investments, Ltd. 

William & Bernice Fehribach 

Mr. & Mrs. Eloy Fernandez 

Oteiza Figaredo 

Kathleen Finegan 

Kenneth D. & Ann D. Finkel 

Sherry Frost 

Mr. & Mrs. Kenneth Furber 

Mrs. Gemma Geisman 

Mr. & Mrs. Charles Glauser 

Kris & Kerry Glicken 

Mr. & Mrs. Scott Hammond 

Barbara Ann Hanson 

Odille Hansen 

Ms. Barbara Ann Hanson 

William Harmon 

Wilbur & Nancy Harris 

Prof. Sergiu Hart 

Mr. & Mrs. Harry Headley 

Susan Hekstra 

Sarah Hersh 

Lou & Terri Holtmann 

Billie Horne 

Mr. & Mrs. Tom Hughes 

Sherry B. Ingram 

Tom & Joan Jacobs 

Mr. & Mrs. Carl James 

Sarah Jameson 

Mr. & Mrs. Matt Johnson 

Michael Johnston & Dr. Bonnie 

Landrum 

Chaplain & Mrs. Roy Johnston 

Dr. & Mrs. James Joy 

Mr. Nelson Julius 

Rosemarie Kasper 

Eleanor Resnick Katz 

Susumu Kawamura 

Mr. & Mrs. James Kendall 

Jamie Kendall 

Dr. & Mrs. James Kilman 

Dr. & Mrs. Larry Kipperman 

and may be cancelled by the Foundation with 30 days written notice. 

7. CONCENTRATION OF RISK 

The Foundation maintains cash balances in a financial institution which 

is insured by the Federal Deposit Insurance Corporation for amounts 

up to $100,000. The Foundation is exposed to concentrations of credit 

risk at times when cash balances exceed the FDIC limit. The 

Foundation has not experienced any losses and believes they are not 

exposed to significant risk. 

8. SUBSEQUENT EVENT 

During July 2007, the Foundation entered into an agreement for 

website redesign. The total amount of the agreement shall not 

exceed $40,000 and is payable in installments as work progresses. In 

accordance with the Foundation's accounting policies, the cost 

associated with the website redesign qualifies for capitalization. 

Accordingly, the costs of the website redesign will be amortized over 

the useful life of five years using the straight-line method. 

During fiscal year 2007, the Foundation received a five-year pledge to 

fund the cost of the website redesign. The pledge is temporarily 

restricted and will be released in accordance with the Foundation's 

net asset policy as expenses related to the website are incurred. 

Steve & Bonnie Kipperman 

Mr. & Mrs. Greg Kowis 

Kroger Food Stores 

Beverly Krudys 

Dan & Cher Krudys 

Dr. & Mrs. Richard Kruse 

Dan & Nancie LaDuke 

Corinne Landrum 

Kathy Lange 

Henry & Ruth Lapkin 

Patrick Leach 

Michael & Rachel Ledbetter 

Ms. Anna Miriam Lennartson 

Mr. & Mrs. Sherwood Lennartson 

Mr. William Lewellen 

Ms. Dorothy Lindberg 

Mr. & Mrs. John Mandeville 

Debra Martin 

Joseph & Peggy Martorano 

Lee & Elaine Matson 

Ms. Mary Ellen McCollom 

Ms. Susan McLinn 

Mr. & Mrs. Doug Montgomery 

Ms. Bridget Moore 

Robert & Laura Motycka 

Laurel Newmark 

Katherine Nicht 

Mr. Roy Oliver 

Open Doors for the Handicapped 

Mr. Daniel Aguirre Pace 

Mary Parke 

Edward & Kendrick Pascoe 

Gary Patti 

Mark & Kimberly Peck 

Mr. Michael Pelkey & Mrs. Angela 

Mancuso 

Cheryl & Rebecca Perritt 

Paul & Ramona Petry 

Mr. & Mrs. Robert Phillips 

Aileen G. Potter 

Mr. & Mrs. Joseph Poupard 

Colleen Priest 

Richard, Theresa & Jonathan Reed 

The Reese Family 

Mr. & Mrs. Doug Reeser 

Mr. & Mrs. Dan Reilly 

Mr. & Mrs. J. P. Richard 

Marcos G. & Yazmin J. Ronquillo 

Jeff & Cathy Roques 

Mr. & Mrs. John Rose 

Mr. & Mrs. Richard Ross 

Mr. & Mrs. David Safianoff 

Ada Mae Saxton 

Marita Schmidt 

William Schmidt 

Dr. & Mrs. Alan Schnall 

Cheryl Sharp 

Mr. & Mrs. Clark Shaw 

Mr. & Mrs. Sidney Simmonds 

Grace Sisco 

Mr. & Mrs. Alexander Smith 

Michelle Smith 

Peter Smith, M.D. 

Patricia Snow 

William & Arlene Solof 

Southern California Petroleum 

Industry 

Mr. & Mrs. Gerry Sperling 

Dr. Earl Stanley 

Thomas & Sandra Stapleton 

Shirlee Stern 

Sarah Catherine Stone 

Gladys Strauch 

Mr. & Mrs. Peter Strauch Jr. 

Mr. Dan Syrstad 

Mr. & Mrs. Jerry Thomas 

Larry & Alice Tomas 

David Vernick, M.D. 

John & Catherine Voorde 

Mr. Jeffery E. Wacaster 

Sarah Wassmuth 

Mr. & Mrs. Norm Webb 

Mr. & Mrs. Ralph West 

Donald Whedon 

Mr. & Mrs. Bob White 

Jennifer White 

Mr. & Mrs. Dan Williamson 

Jennifer Wilson 

Susan Wilson 

Ben Woner 

Eddie & Pam Wood 

Mr. & Mrs. Carl Zenger 

Mr. & Mrs. David Zenger 


People 

Board of Directors 

2007-2008 

Member Professional Affiliation Home Residence 

Roger Bache (Treasurer) Raytheon Rockville, MD 

Anthony Benish Cook-Illinois Corp. Downers Grove, IL 

Jacqueline R.F. Bourgeois Womble Carlyle Sandridge and Rice Alexandria, VA 

Anna C. Curry Troutman Sanders Atlanta, GA 

Ken Finkel (President) National Automotive Lines, Inc. Indianapolis, IN 

Parker Folse, III (1st Vice President) Susman Godfrey, LLP Bainbridge Island, WA 

Randy D. Graise Randel Enterprises Southfield, MI 

Greg Holman ConAgra Foods West Chester, PA 

Caren Loguercio, Esq. New York State Supreme Court Mount Sinai, NY 

Christine Wyman Rossi (Secretary) EMC Corporation Framingham, MA 

Chery Sacchetti Community Volunteer Margate City, NJ 

Robert (Sandy) Sandhaus, M.D., Ph.D. National Jewish Medical & Research Ctr. Bow Mar, CO 

Neeru Sharma General Motors Sterling Heights, MI 

James Sharples Level Travel Coatesville, PA 

Jeffrey Stewart (2nd Vice President) S2 Group Rye, NY 

Denise Tarantino Efficient Frontier Express New York, NY & CA 

Sharon Trahan Fusion Living Shoreview, MN 

Richard J. Wentrup, M.D. (MAC Chair) Myriad Genetics, Inc. Salt Lake City, UT 

Tracy Smith Hart 

Chief Executive Officer 

thart@oif.org 

Tom Costanzo 

Director of Finance and 

Administration 

tcostanzo@oif.org 

Osteogenesis Imperfecta Foundation Staff 

All staff members also can be reached by phone at (800) 981-2663 or (301) 947-0083. 

Mary Beth Huber 

Information & Resource Director 

mhuber@oif.org 

Marie Maffey 

Information & Resource Specialist 

mmaffey@oif.org 

John O'Brien 

Director of Development 

jobrien@oif.org 

Erika Ruebensaal 

Associate Director of Events 

eruebensaal@oif.org 

Osteogenesis Imperfecta Foundation 

Medical Advisory Council 

2007-2008 

Chair, Richard J. Wenstrup, M.D. 

Peter Byers, M.D. 

Hollis Chaney, M.D. 

Holly Cintas, PT, Ph.D. 

Lynn Gerber, M.D. 

Francis Glorieux, M.D., Ph.D. 

James K. Hartsfield, Jr., D.M.D., Ph.D., M.D. 

Deborah Krakow, M.D. 

Joan Marini, M.D., Ph.D. 

Jenny Stup 

Administrative Assistant 

jstup@oif.org 

Desiree Swain 

Database Manager 

dswain@oif.org 

Stuart Tart 

Associate Director of Development 

start@oif.org 

Darwin Prockop, M.D., Ph.D. 

David Rowe, M.D. 

Jay Shapiro, M.D. 


Laura Tosi, M.D. 

David Vernick, M.D. 

Matthew Warman, M.D. 

Michael Whyte, M.D. 


Honor Roll of Donors 

July 1, 2006 to June 30, 2007 

Henry and Gilda Buchbinder 

The Charitable & Research Fn., Inc. 

Children's Brittle Bones Foundation 

Connecticut Walk-a-thon 

Robert & LaDorna Eichenberg 

Fine Wines, Strong Bones 

Parker & Carol Folse, III 

Estate of Randy Kohler 


Massachusetts Making Strides for OI 

Walk, Silent Auction, and Family Fun Day 

Harold A. Sofield Society 

$50,000 or more 

Henry & Gilda Buchbinder 

Sam & Amanda Bergman 

The Charitable & Research Fn., Inc. 

Children's Brittle Bone Foundation 

Parker & Carol Folse, III 


Frank & Denise Quattrone Foundation 

S.C.P.I. Charity Association 

Mildred "Midge" Peck Society 

$25,000-$49,999 

Fine Wines, Strong Bones 

MA Making Strides for OI Walk, 

Silent Auction, and Family Fun Day 

New Jersey Making Strides for OI 

Miracle Michael Fund 

United Way of Tri State Inc. 

Legacy Circle 

$10,000-$24,999 

Estate of Janet Arnold 

Bash by the Bay 

Bennett Clayton Foundation 

for Children with OI 

DC Metro Golf Tournament 

Degna Spoldi Private Family 

Eichenberg-Larson Charitable Foundation 

New Jersey Beefsteak Dinner 

OI Charity Golf Tournament, OK 

Riley’s Gathering Place Golf Outing 

John & Carolyn Tipton 

UPS United Way North Jersey District 

Annual Golf Invitational 

United Way of Greater Kansas City 

Breakthrough Society 

$100,000 or more 

Cumulative lifetime giving 

William G. McGowan Charitable Fund 

Miracle Michael Fund 

New Jersey Beefsteak Dinner 

New Jersey Making Strides for OI 

Frank & Denise Quattrone Foundation 

S.C.P.I. Charity Association 

UPS United Way North Jersey District 

Annual Golf Invitational 

UPS employees 

Achievement Circle 

$5,000-$9,999 

Advanced Audio Visual Sales, Inc. 

Baylee Aaron Taylor Memorial Foundation 

Michael & Susan Boyar 

Ms. Judith Clarke 

Cook-Illinois Corp. 

Ms. Leslie Devereaux 

Randy & Heather Guss 

Jamie Kendall and Tim Dombro 

Microsoft Matching Gifts Program 

Daniel & Joan Mulcahy 

Edward and Kendrick Pascoe 

Albert & Linda Rosecan Charitable Foundation 

Susman Godfrey, L.L.P. 

Technical Needs North, Inc 

The TJX Foundation, Inc. 

United Way of Central Indiana 

Veris Consulting, LLC 

Womble Carlyle Sandridge & Rice 

Optimism Circle 

$2,500-$4,999 

Argon ST, Inc. 

Bluegrass Orthopaedics & Hand 

Surgery 

Mr. Peter Boes 

Jacqueline & Julien Bourgeois 

Cleveland, Waters and Bass, P.A. 

Delta Solutions & Technologies, Inc. 

Mr. Donald Dillon 

Hilb Rogal & Hobbs 

Brian & Kristin Lenahan 

The Logan Foundation 



July 1, 2006 to June 30, 2007 

Thomas & Rachael McCarthy, III 

Merck Partnership For Giving 

NEPS, LLC 

Silver Hill Lions Club 

Tomlinson Industries/The Meyer Co. 

Ted & Sharon Trahan 

United Way Of The Plains 

United Way of The National Capital Area 

Wellpoint Associate Giving Campaign 

Estate of Peter Willmann 

Resiliency Circle 

$1,000-$2,499 

Dr. & Mrs. Richard Alexander 

Mr. Donald Arendarczyk 

Arlington Community Foundation 

Aurora Health Care Employees 

Roger & Gayle Bache 

Baxter International Foundation 

Anthony & Jennifer Benish 

Mrs. Diane Bessler-Hackett 

Mr. Woody Binnicker, Jr. 

Woody & Janice Binnicker 

Mark & Martha Birdwhistell 

Mrs. Patricia Boyd 

John & Nancy Braitmayer 

Mrs. Frances C. Bruno 

William & Tere Canida 

Cardholder Management Services 

George & Pat Collett 

Ms. Laura Conlon 

Constans Culver Foundation 

Controlled Systems HVAC, Inc. 

Credit One 

CT Bingo Fundraiser 

Peter and Nancy DeLegge 

Therese Wareham & Merrick Elfman 

Ester Eisenberg Charitable Trust 

Eutawville IGA 

Peter & Helen Fahey 

Howard & Graceann Felson 

Mr. & Mrs. Kenneth Finkel 

General Motors Foundation 

Mr. Henry Glickel 

H. Lee & Sandy Godfrey 

Wilbur & Nancy Harris 

Paul & Carol Henderson 

Mr. Robert Heyne 

Hilb Rogal & Hobbs 

Mr. Lawrence Hitch 

Dr. & Mrs. Walter Holman, Jr. 

JM Caribbean Distributors, Inc. 

Mrs. Eileen Johnson 

Ms. Catherine Kenvin 

LT Business Dynamics PC 

Jeffrey and Claudia Lee 

Michael & Caren Loguercio 

Long Fence and Home 

Mr. & Mrs. John Lucas 

Donald & Cindarae Malin 

The Mario & Theresa Spola Family 

Foundation 

Eric & Mary McNutt 

Meg Asset Management, Inc. 

Meyner and Landis LLP 

Wayne & Patricia Miller 

Mondrian Investment Partners (U.S.) 

Eckart & Marina Nuernberger 

Orrin T. Shapiro Memorial Fn., Inc. 

Mr. & Mrs. Leroy Pera 

Permobil, Inc. 

John & Lisa Peterson 

Herman & Carla Phillips 

Pleasant Grove Church of the Nazarene 

Prairie States Terminal, Inc. 

Pro Clean Service Co. 

Resolute Capital Management 

Ms. Leslyn Green Rigoni 

Riley's Gathering Place, Inc. 

Ms. Amy Rossi 

Mickey & Robin Rowland 

Dr. & Mrs. Alan Schnall 

Ms. Theresa Sears 

Mr. & Mrs. Gene Seay 

James & Heather Sharples 

Simmonds & Klima, Ltd. 

Marion Sobey Estate 

Space & Defense Systems, Inc. 

Mr. Robert Steigerwald 

Ms. Shirlee Stern 

Jeffrey & Andrea Stewart 

Stifel Nicolaus 

Mr. James Stolpa 

TD Banknorth, N.A. 

Mr. & Mrs. Anthony Taccone 

Ms. Denise Tarantino 

Temple Beth Torah 

Mr. & Mrs. Jerry Thomas 

U.S. Titles, Inc. 

United Way of Caroline County, 

Inc. 



July 1, 2006 to June 30, 2007 

United Way of Bergen County 

United Way of Central Maryland 

United Way of Kitsap County 

United Way of Northeast Florida 

Washington Mutual Employee 

Giving 

Washington Strategic Consulting, 

LLC 

Mr. Mark Wawro 

John & Elizabeth Woods 

Dan & Heidi Wright 

Encouragement Circle 

$500-$999 

Adam Cab 

Aqua Treat, Inc. 

Automated Financial Systems, Inc. 

A. Richard & Elaine Bailey 

Michael & Ellen Bendel-Stenzel, 

M.D. 

John & Ellen Benish 

Carl & Julie Bergman 

Ms. Bonnie Bolden 

Mitchell & Sandra Bragin 

Mr. Rick Brenner 

Buffalo's Southwest Cafe 

Camden County Energy 

Capital Area United Way 

Mr. Mark Carson 

Mr. Michael Casey 

Chase Bank, NA 

Ed & Aileen Clarke 

Mr. Joseph Clemente 

Mr. Roger Cleveland 

Ms. Christina Cogdill 

Mr. Jesse Cohn 

Ms. Rosie Coleman 

Commerce Bank 

Ms. Vivianne Couts 

Ken & Diane Dietterich 

Mr. Brian Duprey 

Entertainment Publications 

Patrick & Sharon Fromelt 

Ms. Heather Garrison 

Ms. Ann Marie Geiger 

Gerard Sheet Metal Fab., Inc. 

The Gillette Company Matching 

Gifts 

GlaxoSmithKline Foundation 

Michael & Theresa Gray 

Ms. Ilyse Greenberg 

Jeffrey & Teri Greene 

Kevin & Ellen Haley 

Ms. Odille Hansen 

Mr. & Mrs. Lee Heldt 

Larry & Terrie Henry 

Mr. William Higgins 

Walter & Joyce Holman, Sr. 

J A Bisignaro Mechanical Equipment 

Joanna Jankowicz Foundation 

Bonnie Landrum & Michael 

Johnston 

Ms. Rosemarie Kasper 

Ms. Karen Kiarsis 

L-3 Communications 

Ms. Louise LeBlanc 

Ms. Sylvia Leaf 

Timothy & Lisa Lindon 

Louis & Ida Katz Foundation 

Mr. Frank Lundy 

Mr. Charles MacDonald 

Margate PBA No. 65 

Michael and Nancy Marotta 

Mr. Randal Marshalek 

Ms. Susan Matelich 

Eric & Isabelle Mayer 

Christopher & Melinda McMahon 

Merchants Terminal Corporation 

Ira & Barbara Miller 

Mr. Scott Miller 

J.C. & Neil Milner 

Mountain Resort Properties, Inc. 

Ms. Kristen Nelson 

Mrs. Laurel Newmark 

Mr. Dennis Olson & Ms. Nita 

Johnson 

Mr. Michael Otworth 

Phoenix Physical Therapy, PLLC 

John & Judith Potorski 

Powers Family Trust 

RSM McGladrey, Inc. 

Rehabilitation Equipment 

David & Nancy Reid 

Ms. Anne Marie Renick 

Miss Purita Reyes 

Mr. John Ribakusky 

John & Christine Wyman Rossi 

Mr. William Ryan 

SPK Associates 

Sacred Heart Academy 

Thomas & Susan Salice 

Scott & Susan Sander 

Ray & Marlene Schatz 

Mark & Nancy Schroeder 

Ms. Susan Scoughton 

Michael & Sarah Sheehan 

Sidney & Barbara Simmonds 

Mr. Michael Skok 

Jeffrey & Sharon Stedman 

Peter & Gretchen Strauch, Jr. 

TNT Electric 

Ms. Jeanne Temple 

Terrace Supply Company 

Terance & Doris Thayer 

Joe & Denise Thedford 

Thomas H. Lee Partners, L.P. 

Mr. Frank Ullman 

United Way of Pierce County 

United Way of Yellowstone 

United Way of Orange County 

United Way of SE PA 

United Way of Tucson & Southern 

AZ 

UnitedHealth Group Employee 

Giving 

Wachovia Foundation-Matching 

Gifts 

Mr. James Wagner 

Walmart #507 

Jay & Diann Watson 

Martin & Susan Wayne 

Gregg & Paula Weinberg 

Mr. George J. Weise 

George & Joan Whipple 

Ms. Robin Wright 

Supporting Members 

$100-$499 

ANONYMOUS 

A-Village Refrigeration 

Abbott Laboratories Employee Giving 

Mr. Daniel Abel 

Mr. Joseph Abitante 

Able Products, Inc. 

Joan Ablon, Ph.D. 

Robert & Jeanne Ablondi 

Mr. William Acklin 

Ms. Kathleen Adamczyk 

Ms. Karen Adame 

Mr. Mario Agosin 

Mike & Jill Aiello 

Mr. & Mrs. Richard Alexander 

Lester & Patricia Allen 

Ms. Marie Allizon 

Mrs. Regina Altieri 

Pacifico Amaro, M.D. 

Charleen Amato, D.C. 

Mr. & Mrs. Robert Amato 

Mr. David Amenhauser 

Ms. Carol Andersohn 

Joe & Martha Antolini 

Aon Foundation 

Joe & Trina Armand 

Mr. Chad Armstrong 

Mrs. Christina Arnold 

William & Diana Artosky 

Mr. Alexander Ashachik 

Robert & Lynda Asmus 

David & Diane Aument 

Austin Hewitt & Sons, Inc. 

Auto Xpress Service Center, Inc. 

Automation Equipment Sales 

Robert & Donna Ayers 

BBRG, Inc. 

Mr. & Mrs. John Bachman 



July 1, 2006 to June 30, 2007 

Mr. Lee Bailey 

Mr. Gregory Ballinger 

Bank Of New England 

Bank of America Matching Gifts 

John & Emily Barker 

William & Debra Barnes 

Ms. L. Barbara Barrett 

Ms. Trearty Bartley 

Martin & Isabelle Barylski 

Everett & Velvet Bass 

Ms. Velina Batchvarov 

Allan & Aimee Bauer 

Frank & Brooke Bauer 

Dave & Joyce Baughman 

Mrs. Jennifer Baumeister 

Mr. Vernon Bay 

Mrs. Mary Beach 

Eric Adolph & Teresa Beam 

Thomas and Mary Beckman 

Mr. & Mrs. David Bednarcik 

Mr. Harry Beisswenger 

Mr. Stevens Belknap 

Mr. Robert Bell 

Mr. Michael Bellas 

Michael & Donna Bellerose 

Ms. Beverly Bembridge 

John & Phyllis Benanti 

John & Kimberly Bench 

Steve & Suzanne Bennett 

Mr. Wayne Benoit 

Jason & Patricia Bentley 

Gerald & Emily Berendt 

John & Carolyn Berger 

Ms. Jo Ann Berkenbush 

James & Donna Bernie 

Mike & Tina Berry 

John & Catherine Bertorelli 

Ms. Jane Bertschinger 

Ms. Hattie Best 

Steven & Jacquelyn Biagini 

Mr. Mabry Binnicker 

Ms. Pamela Binnicker 

Ms. Sandra Binnicker 

Mr. Christopher Bishop 

Mr. Edward T. Blackwell 

Mr. Thomas Blackwood 

John & Ellen Blair 

John & Laurie Blaisdell 

William & Julia Blanchard 

Mr. Samuel Blasco 

Mr. Robert Blattenberg 

Ms. Amy Bliek 

Blitz U.S.A., Inc. 

Ms. Elizabeth Boes 

Mr. Paul Boes 

Ms. Lenora Jean Bolden 

Tom Buffkin & Kelven Book 

Mr. & Mrs. Franklin Booth, Sr. 

Mr. Edward F. Borden, Jr. 

Mr. James Bork 

Ms. Linda Boryczka 

Mr. David Bourne 

Ed & Mary Bouton 

Box Hill Barbershop 

Ms. Leslie Bradford 

Ms. Lucy Braid 

Vincent & Joy Brannon 

David Brasel & Andrew Haukebo, 

M.D. 

Martin & Linda Brenerman 

Mr. & Mrs. Stephen Brennan 

Brennan & Clark LTD., L.L.C. 

Max & Virginia Brenner 

Mr. Mark Brezinski 

Federico & Dolores Briseno 

Ms. Kim Brost 

Mr. Ken Brown 

Ms. Lavonne Brown 

Ms. Rebecca Brown 

Mr. & Mrs. Stanford Brown 

Ms. Becky Bruce 

Ms. Jean Bruemmer 

Ms. Margaret Brugeman 

Ms. Bethany Bryant 

Grady & Jewel Buchanan 

Mr. & Mrs. Charles Buck, Sr. 

Buffalo Run Casino 

Matthew Johnson & Susan Bundock 

Mrs. Linda Buonadies 

Ms. Susan Burkhardt 

Henry Chamberlain & Lisa Burns 

Ms. Lydia Burroughs 

Ms. Patricia Burrowes 

Mr. & Mrs. Robert Butler 

Stephen & Joanne Butler 

Butler Print & Laminating, Inc. 

C.S.S.T., Inc. 

CAPE 

Gil & Alma Cabacungan 

Mr. Anthony Cacich 

Ms. Patricia Cadenhead 

Cadwalader, Wickersham & Taft LLP 

Ms. Barbara Califf 

Mr. Richard Califf 

Pat & Pauline Callahan 

Calvi Electric Company 

Mr. Matthew Cambra 

Ms. Barbara Cambria 

Mr. Michael Cammisa 

Paul Leutgeb & Diane Camp 

Anthony & Deborah Campbell 

Mr. Matthew Campbell 

Camperland Of Oklahoma, LLC 

Ms. Brenda Caplan 

Ms. Olive Capriotti 

Mr. John Capuano 

Arturo & Kelly Caraballo 

Mr. & Mrs. Rich Carapezzi 

James & Linda Carmichael 

Thomas & Gigi Carroll 

Patrick & Sharon Casey 

Mr. & Mrs. Michael Casper 

Ms. Kittie Cassity 

Ms. Lisa Chapdelaine 

John & Virginia Chapel 

Chavant, Inc. 

George & Catherine Chave 

Jay & Peg Chiappa 

Ms. Yui Chow 

Ms. Gayle Christen 

Mr. Don Christiansen 

Christopher McMahon Contracting 

Church of Christ 

Mr. Michael Ciccola 

Mr. James Cino 

Circle M Auto Sales 

Bartholomew & Cheryl Cirenza 

Cirignano Contracting, Inc. 

Dan & Diane Cirilli 

Pam Rubin & Larry Clark 

Ms. Sharon Clarke 

Claymont Holdings, LLC 

Ms. Barbara Clayton 

Clear Creek Cabinetry 

Mr. James Clemens 

Andrew & Susan Clifford 

Mr. Kenneth Cloeren 

Lloyd & Maureen Cochran 

Ms. Martha Cochran 

Mrs. Christie Cohen 

Larry & Ruth Cohen 

Mr. Peter Cole 

Mr. Paul Colligan 

Lynn & Carol Collins 

Mr. Eugene Colucci 

John & Mary Comford 

Community Bank & Trust 

Christopher & Anne Companion 

Mr. Daniel Cone 

Mr. Martin Cone 

Mr. James & Canda Conlon 

Mrs. Marita Connolly Schmidt 

Frank & Patricia Connor 

Consigli Construction 

Mr. David Cooper 

Edna & Ron Copeland 

Copiers Plus 

Mrs. Juliette Corazon 

Mrs. Anne Corbeille 

Ms. Jessica Corkery 

Ms. Linda Corkery 

Mrs. Lisa Megliola Corridan 

Andre & Jude Ann Cote 

Cottman Transmission 

Countryside Motors, Inc. 

Covenant Presbyterian Church 

Mr. Roy Cranford 

Creative Montessori Center 

Ms. Kathy Cross 

Cross Sound Ferry Services, Inc. 

Mr. & Mrs. Tom Cummings 

Daniel & Margaret Curley 

Mr. John Curran 

Dan & Deborah Dagit 

D.F. Dahlen, D.M.D. 

Eric & Traci Dahlinger 

Mr. James Dale 

Mrs. Fortunate Dallal 

Mr. Ray Damiano 

Mr. Joe Daniel 

Mr. Christopher Daniels 

Mr. Mark Daniels 

Daughters of Penelope 337, District 3 

Robert & Peggy Davey 

Mr. Crayton Davidson 



July 1, 2006 to June 30, 2007 

Marvin & Bette Davidson 

Donn & Mary Anne Davis 

John & Marianne Davis 

Ms. Kathy Davis 

Mr. Randal Davis 

Ms. Clare DeCosmo 

Mr. & Mrs. Patrick DeGrace 

Mr. Jason DeLuca 

Ms. Jennifer DeMenezes 

Ms. Denise DeVinny 

Ms. Ann Dedman 

Jed & Peg Deegan 

Mr. Steven Delaney 

Ms. Teresa Dellinger 

Mr. J.L. Demaria 

Ms. Alicia Depto 

Dr. & Mrs. Richard Derian 

Mr. Jay Deubler 

Mrs. Patricia Devine 

Mr. Chris Diamantis 

Ms. Amity Dias 

Malinda Dice-Shah, D.D.S., M.P.H. 

Digital Media Trends, LLC 

Mr. Donald R. Dillon, Jr. 

Mr. & Mrs. Michael Dimino 

Dimitri J. Ververelli, Inc. 

Ms. Genevieve Dimmitt 

William & Judith Dinkins 

Discover Re Managers, Inc. 

David & Sharlene Dixon 

Mr. & Mrs. Allan Dob 

Mrs. Peg Dombro 

Doney Medical, Inc. 

Mrs. Pamela Donlin 

Tim & Marianne Donovan 

Gregory & Jean Donzella 

Gerald & Sandra Doran 

Robert & Margaret Dory 

Mr. Mike Dougherty 

Bruce & Shari Douglas 

Mr. William Downey, III 

Mr. Peter Doyle 

Ms. Maureen Drach 

Mel & Carolyn Drapkin 

Mr. Don Dreyer 

Ms. Donna Dubs 

Mr. & Mrs. Douglas Duess 

Ms. Martha Dugan 

Mr. Joseph Duggan 

Richard & Diti Dumas 

John & Ellen Dunagan 

W. Duncan 

Ms. Betty Dunham 

Doug & Calvine Dunnan 

Mr. Peter Dunne 

Thomas & Paula Duringer 

Mrs. Doris Dyen 

EMC Corporation 

Eagle Products 

Mr. John Early 

Mr. Peter Early 

John & Diane Eckstein 

Paul & Florence Eckstein 

Darrin & Tammi Edgecombe 

Jeff & Carla Edmisten 

Edward W. Richards & Assoc., P.C. 

Ms. Deborah Egidio 

Thomas & Dorothy Egidio 

Ms. Karol Ehrhart 

Ms. Molly Ehrlich 

Mr. & Mrs. William Einstein 

Mr. & Mrs. Phillip Eisenberg 

Electronic Security System, Inc. 

Gregory & Dorothy Elk 

Mr. Mark Elliot 

Mr. Eugene Ellis 

Peter & Angela Elmore 

Stanley & Emily Elmore 

Jonathan & Janis Engel 

Mr. Dennis English 

Ms. Sharon Lee Envall 

Mr. David Erbach 

Ms. Alice Erskine 

Mr. Jeffrey Eslinger 

Richard & June Estlin 

Amos & Doris Everett 

Fred & Ethelyn Faig 

Mr. Daniel Falasca 

Fallon Community Health Plan 

Family Dental Associates 

Ms. Myrtle Fantroy 

Farr, Miller & Washington, LLC 

Mr. Brian Farrell 

Mr. Anthony Farrow 

Mr. Robert Faske 

Fats Inc. 

Mr. Rich Fecher 

Ms. Kathleen Feely 

Mr. & Mrs. Paul Feller 

Ms. Nicole Ferrari 

Festival of Giving, MA 

Mr. & Mrs. David B. Fetterolf 

Mr. Jerome Feuiltault 

Ms. Jane Fieldcamp 

Mrs. Helen Fields 

Mr. James Fields 

Fifteen Hundred, LLC T/A NIX 

Mr. Gary Fike 

Mr. Maurice Finkel 

Fiona Rose Murphey Foundation 

First Presbyterian Church 

Lorenz & Stephanie Fischer-Zernin 

Fitness Together 

Harvey & Hedy Flechner 

Mr. & Mrs. Ronald Flechsig 

Ms. Celia Fleischaker 

Mr. John Fleming 

Mr. Albertus Flowers 

Ms. Susan Flynn 

Ms. Debra Forcier 

Ms. Karen Forsythe 

Frank & Connie Fossati 

Ms. Mary Jane Foster 

Tom & Sara Foulkes 

Lea H. Fowler, DMD 

Joel & Cydney Fox 

Foxwoods Resort Casino 

Mr. David Frankil 

Mr. John Franzen 

Mrs. Esther Freed 

Freeman Health System 

Jeff & Suzanne Freudberg 

David & Rhoda Fritz 

Ms. Pamela Kay Fromelt 

Mr. Duane Frost 

Mr. John Frost 

Mr. & Mrs. Felton Furber 

Future Die Cast & Engineering, Inc. 

Mr. Scott Galloway 

Dean & Laurie Gallup 

Mr. Michael Garcia 

Don & Renee Gardner 

Mr. Henry Garell 

Mr. Brian Garrison 

Ms. Elizabeth Garthe 

Paul & Catherine Gatto 

Rainer Gawlick 

Dr. & Mrs. Emanuel Gaziano 

James & Mary Geisman 

Ms. Steven Geryk 

Ms. Kay Gibson 

Mr. Robert Gibson 

Daniel & Donna Gietl 

Gerard & Joyce Gietl 

Thomas & Susan Gillespie 

The Gillette Company United Way 

Mrs. Deb Gingrich 

Ms. Marlene Ginsberg-Dichiacchio 

Mrs. Martha Glanville 

Glasco Insurance & Financial Services 

Charles & Heidi Glauser 

Deborah & David Glickman 

Michael & Carol Goebel 

Terrence & Bridget Goggin 

The Gold Foundation 

John & Barbara Goodrich 

Ms. Frieda Gorelick 

Mrs. Betty Gorham 

Michael & Marjory Gouthro 

Mr. Todd Graff 

Granby Telephone Co. 

Paul & Dina Granger 

Ms. Frances Gray 

Michael & Susan Gray 

Greater Twin Cities United Way 

Ms. Virginia Greene 

Ms. Diane Greenhalgh 

Mrs. Linda Greidanus 

Ms. Rhoda Greif 

Elmer & Wendy Grenke 

Bill & Elnora Griffith 

Ms. Peggy Grigg 

Mr. & Mrs. Dick Grohs 

Mr. Ewel Grossberg 

Werner & Gisela Gruenwald 

Mr. Robert J. Guerra 

Patricia Gietl & Ronald Guidotti 

Mrs. Karen Guzak 

Jean Haffenreffer 

Haggen Corp. Office 

Gerald & Kathleen Haggerty, Sr. 

Gerard & Kathleen Haggerty 

Donald & Barbara Hagy 

Mr. Paul Halter 

Hardwood Creations 



July 1, 2006 to June 30, 2007 

Jim & Kathy Harmer 

Mr. William Harmon 

Ms. Marilee Harrald-Pilz 

Mr. & Mrs. Michael Harrington 

Mrs. Jean Harris 

Hartley & Hartley, LLC 

Ms. Deborah Hasbrouck 

Mrs. Hattie Hatfield 

Mary & Mark Haviland 

Hawkins Construction 

Ms. Peggy Hawman 

Mr. M. Haymes 

Ms. Kelly Heaps 

Ms. Patricia Heath 

Brian & Leeann Heffernan 

Mr. James Heggie, III 

Ms. Lynn Hemmendinger 

John & Jennie Hench 

J.C. & Susan Henry, III 

Ms. Meghan Henshon 

Ms. Dorothy Lee Hernandez 

Gerald & Dixie Hertel 

Mr. Dean Hesser 

Carl & Marie Hewitt 

Mr. & Mrs. George Hewitt 

Mrs. Jenan Hicks 

Hilco, Inc. 

John & Ruth Hill 

Ms. Pauline Hill 

Scott & Tracie Hill 

Mr. Thomas Hiltner 

Frederick & Kimberly Holdsworth 

Ms. Juanita Holiday 

Mr. David Holman 

Greg & Leigh Holman 

Mr. & Mrs. Walter Holman, III 

Mr. William Holman 

Douglas & Marilyn Holmberg 

Mr. & Mrs. Jon Holtzman 

Jerry & Cindy Holub 

The Home Depot Foundation 

Brad & Martha Honnold 

Mr. Joseph Horowitz 

John & Joyce Hough 

Ms. Ruth Hovden 

Mr. Raymond Howe 

Howie Law Office, PLLC 

The Hoyt Organization 

Mr. Rick Huberty 

Jason & Sandra Huff 

Ms. Judith Hufnagel 

Ms. Shirley Hughes 

Ms. Tara Hughes 

Mr. Charles Humston, Jr. 

Ms. Elizabeth Hunsaker 

John & Cheryl Hunt 

Mr. Michael S. Hurley 

Mr. Paul Hurst 

Steve & Virginia Hustead 

Ms. Judith Hutchison 

Mr. Robert Hutter 

Mr. David Hynson 

Iaconelli Contracting Co., Inc. 

Illinois Tool Works Foundation 

Independent Charities of America 

Industrial Construction Services, 

Richard & Jessica Inskeep 

Integris Health 

Intelligence Gaming, Inc. 

Ms. Geraldine Irola 

JTH Financial Services 

Nick & Mary Ann Jacobs 

Thomas & Elizabeth Jacobs 

Ms. Julie Jakopic 

Ms. Cindy James 

Mr. Robert James 

Bill & Rose Janis 

Jaro Corp 

Mrs. Judith Jarvis 

Mr. Arthur Jensen, Jr. 

Jerry White Insurance Agency 

Jewish Foundation Of Memphis 

Mr. Glenn Johnson 

Ms. Kelly Johnson 

Mr. & Mrs. Kenny Johnson 

Robert & Kimberly Johnson 

Theodore & Loetta Johnson 

Johnson & Johnson Family of 

Companies 

Dan & Suzanne Johnston 

Mr. Raymond O. Johnston 

Chaplain & Mrs. Roy Johnston 

Jolie Papier, LTD. 

Ms. Joan Jonas, PA 

Mr. Bruce Jones 

Mr. Raymond Jones 

Joplin Industrial Electric, Inc. 

Lisle Joynt 

Mr. McRay Judge, III 

Mr. Nelson Julius 

K.J. Door Service, Inc. 

Wayne & Dalena Kahn 

Mr. Matthew Kahovec 

Mrs. Danielle Kaidanow 

Dr. & Mrs. Joseph Kaiser 

Paul & Laura Kanitra 

Marshall Karro, Attorney At Law 

Jeffrey & Phyllis Katz 

Howard & Myrna Kayton 

Ms. Betty Keah 

Mr. Andrew Keegan 

Mr. Brian Keets 

Mr. & Mrs. Thomas Kelahan 

Ms. Jolene Kellogg 

Michael & Nicole Kellough 

Brian & Judith Kelly 

Mrs. Carol Kelly 

Ms. Diane Kelly 

Ms. Joan Kelly 

Ms. Mary Ann Kemnitz 

Andrew & Keri Kendall 

Mr. & Mrs. James Kendall 

Warren & Susan Kendall 

William & Pat Kendall 

Mrs. Holly Kennedy 

Kennedy Krieger Institute 

Mr. David Kern 

Ms. Bonnie Kershner 

Kevin Corcoran Real Estate 

P.J. & Jennifer Kimball 

Roy & Lorraine Kimball 

Dr. Larry Kipperman 


Mr. Timothy Kirk 

Mr. & Mrs. Daniel Klapperich 

Ms. Lauri Klaus 

Kline McAnney American Legion Post 

Dr. & Mrs. Eric Knox 

Kevin & Lori Knuf 

Mr. Robert Koeck 

Mr. Robert Kogan 

Mrs. Judith Kong 

Lea-Rachel Kosnik, Ph.D. 

Kenneth Krat, DDS, P.A. 

Mrs. Karla Kreklow 

Mr. & Mrs. Paul Kuester 

George and Annette Kugler 

Jim & Cindy Kuster 

Louis & Bernice Kwiatkowski 

Ms. Claire LaRocca 

Ms. Carol Lackey 

Lake Locations, LLC 

Lake View Yacht Club 

Ms. Katie Lancaster 

Fred & Ann Landay 

Mr. Lee Lane 

Larry & Deborah Lapkin 

Mr. & Mrs. Raymond Lathrop 

Mr. Glennon Laufer 

Law Offices Of Amari & Locallo 

Law Offices of Michael W. Fleming 

Law Offices/Collins & Collins 

Lawrenceburg National Bank 

Mr. Patrick Leach 

David & Virginia Leali 

Brendan & Maria Lee, M.D., Ph.D. 

Thomas & Patricia Lelich 

Sherwood & Britta Lennartson 

Ms. Elsie Leon 

Lerch, Vinci & Higgins 

Richard & Sandra Levan 

David & Diana Lewallen 

Ms. Deborah Lewis 

Ms. Gina Lewis 

Ms. Josephine Horst Lewis 

Lieberman Management Services, Inc. 

Lighting Systems Upgrade, Inc. 

Lima Radio Hospital, Inc. 

Brian & Tammy Lindstrand 

Ms. Nancy Linville 

Mr. Kenneth Llano 

Mrs. Karen Logterman 

Mr. Michael Loguercio, Sr. 

Steven & Jill Lohr Chase 

Arnold & Jean London 

Ms. Laurie Long 

May & Jason Long 

John & Lucile Carole Lopez 

Julio & Belinda Lopez 

Donald & Patricia Lott 

Mr. Brian Lucas 

Mike & Nancy Lucero 

Lance & Amie Ludwig 

Mr. William Lumpkin 

Ms. Laura Lund 



July 1, 2006 to June 30, 2007 

Ms. Susan Lund 

Mrs. Annette Lupo 

Dr. & Mrs. Lowell Lutter 

Michael and Mabel Lux 

Lux Orthotics & Prosthetics, Inc. 

Ms. Molly Lynch 

Joseph & Dana Lynn 

MHF Design Consultants, Inc. 

MRMArchitecture 

Michael & Laurie MacDonald 

Thomas & Kathleen MacDonald 

Ms. Danielle MacInnes 

Donald & Ellen MacKenzie 

Ms. Lisa MacVicar 

Alfred & Jacqueline Macaluso 

Mr. Brian Mach 

Mr. John Machir 

Mrs. Imogene Maggard 

Ryan & Jennifer Maher 

Frank & Carol Malmstedt 

Mr. & Mrs. Frederick Maloney 

Mrs. Betsy Manela 

Mr. Joseph Mangiaracina 

Mr. Richard Manley 

Ms. Wanda Manuel 

Mr. Daniel Markey 

Bernard & Nancy Markstein, III 

Marlyn Sheet Metal, Inc. 

Albert & Melinda Marston 

Carl & Mary Anne Martin 

Mary Lou Hale's School of Dance 

Mary Poppins Raffle 

Mr. Robert Mason 

Ms. Gail Masteller-Kane 

Lewis & Barbara Masters 

Kent & Sandra Mathis 

Mark & Marylin Mathis 

Ms. Jean Matle 

Mr. Jeremy Mattern 

Kevin Sullivan & Sarah Maus 

Mrs. Mary Jean Maus 

Douglas & Joanne May 

Mr. & Mrs. Joe Mayes 

Mr. Brian Maynard 

Mr. & Mrs. John McBride 

Thomas & Mary Ann McBride, Jr. 

Tom & Ilene McBride, III 

McCabe, Weisberg & Conway, P.C. 

Mr. Marvin McCarley 

Mr. & Mrs. Joseph McCarthy 

Mr. & Mrs. L. Milton McClure 

Mrs. Mary Ellen McCollom 

Mr. Michael McCulloch, PC 

Mr. & Mrs. William McCurdy 

Mr. Michael McDonnell 

Matthew & Katherine McDonough 

Ms. Sally McElroy 

Mr. & Mrs. F. Hampton McFadden, Jr. 

Mr. & Mrs. Thomas McGarry 

Steve & Jennie McKee 

Ms. Kelly McKone 

Ms. Beth McLain 

Mrs. Caroline McLain 

Jason & Deborah McLaughlin 

John & Janet McMaster 

Peter & Kathleen McMenamin 

Mrs. Barbara McNeely 

Mr. & Mrs. Bill McNutt 

Ms. Patricia McPherson 

Dr. & Mrs. Gerald McWilliams 

Mr. Ronald Mead 

Mr. S. Meek 

Mr. Tom Melanson 

Dr. & Mrs. Frederick Mendelsohn 

Merrill Lynch & Co. Foundation, Inc. 

Ms. Lauren Merriman 

Mrs. Bernadette Messana 

Karl & Theresa Messerschmitt 

Mr. & Mrs. Gene Messner 

Mr. Vinay Metira 

Miami Building Supply, LLC 

Ms. Anne Michaud 

Micro Design Services, LLC 

Mr. David Middlebrook 

Ms. Danya Middlesworth 

Ms. Jamie Milcarek 

Edward Millar, M.D. 

James & Debra Miller 

Jeffrey & Nancy Miller 

Ms. Martha Miller 

Thomas and Peggy Miller 

Ms. Donna Mills 

Mrs. Connie Milstein 

Minooka Subaru 

Ms. Judith Mischel 

Mrs. Becky Mitchell 

Mr. Ron Mitchell 

Michael Gotzsche & Mary Moench 

Mr. James Moffett 

Ms. Leslie Mollard 

Ms. Pamela Monaghan 

Mark & Kathleen Montana 

Montville Lions Club II 

Mrs. Shirley Moody 

Bryan & Marlys Morrison 

Mr. Richard Morse 

Ms. Anna Mortsfield 

Frank & Agnes Moscardelli 

Motorcars Honda 

Mr. David Mucha 

Paul & Nicolle Muehr 

Kyle & Tracy Mulroy 

Ms. Karen Muransky 

Chuck & Christina Murphy 

Joseph & Hilary Murphy 

Tom & Christy Murphy 

Mrs. Carol Ann Murray 

Mr. Tom Murray 

Myers Park Mortgage, Inc. 

Mr. Kevin Nagle 

Richard & Dawn Napolitano 

Richard & Judy Nardella 

Ms. Kelly Naughton 

Ms. Anna Navatta 

Mr. Martin Neat 

Andre & Elaine Nelson 

Douglas & Linda Nelson 

Neo Chiropractic Clinic 

Ms. Georgia Nesselrode 

Charles & Iola Newton 

Ms. Judith Newton 

Mr. David Nicholas 

Tom & Laura Nixon 

Lloyd & Joyce Nohl 

Gary & Cynthia Nolan 

Mr. Clement Noll, Jr. 

Norris Insulation, Inc. 

North American Electric, Inc. 

Northern Trust Company 

William & Anne O'Donnell, Jr. 

John & Ginger O'Malley 

Ms. Margaret O'Neill 

Mr. & Mrs. Timothy O'Neill 

Mr. John O'Shaughnessy 

Ms. Joan Ockay 

Ms. Lee Ann Olsen 

Mr. Brian Olson 

Omaha Weavers & Spinners Guild 

Mr. Robert Oppenlander 

Henry & Karen Orejuela 

Mr. Dave Orstad 

Kenneth & Patricia Ortmann 

Osborn Drugs, Inc. 

PILR LLC Technology Service 

Ann & Borden Painter 

Mr. Anthony Panagos 

Ms. Jennifer Panhorst 

Mr. Richard Panico 

Mr. James Paolino 

Mr. Mark Papich 

Mr. Donald Parker 

Frank & Anna Parker 

Mr. Roger Parker, D.V.M. 

Ms. Jenny Parkhill 

Mr. Gerald Parkinson 

Ms. Laura Parks 

William & Anne Paschen 

Leland & Nancy Paton 

Mr. Stephen Patterson 

Mr. & Mrs. Gary Patti 

Jane & Bill Pearson 

Pearson Penguin Putnam, Inc. 

Mark & Kimberly Peck 

Pellegrino & Felstein, LLC 

Pentucket Bank 

Jack & Andrea Perkins 

Mr. Spencer O. Perlman 

Ms. Patricia Perry 

Ms. Jenni-Marie Peterson 

James & Pamela Petitpren 

Mr. Edward Petzer 

Pfizer Foundation Matching Gifts 

Patrick Sullivan & Kathleen Pfleghaar 

Mr. Stan Phillips 

Terry & Elizabeth Phillips 

Ms. Carol Piechoski 

Don & Sis Pierce 

Tod & Dawn Pike 

Josh Pineo & Bandmates 

Ms. Deborah Pinheiro 

Mr. & Mrs. Richard Pinney 

Ms. Rudy Piskulick 

Mr. Boris Piskun 

Mr. Earl Pixley 

Play Nice Children's Boutique, Inc. 



July 1, 2006 to June 30, 2007 

Pleasantdale Presbyterian Church 

Plumbers & Steamfitters 

Melvin & Marion Poliakoff 

Mr. John Polomano, Jr. 

Ms. Elena Potkonjak-Clymer 

Ms. Aileen Potter 

Devin Potter 

Father Joseph Pranzo 

Ms. Alicia Prather 

Mr. William Pratt 

Eric & Andrea Preissler 

Ms. Carol Previte 

Ms. Colleen Priest 

Pro-Lube Maintenance Cnt 

Terrence & Joanne Prorok 

Mr. Samuel Pruett 

Ms. Jennifer Prybolsky 

Marcia Ann Pulich 

Donald & Theresa Putnam 

James & Rosemary Quinn 

Ms. Cecilia Quintero 

R & P Construction Of NJ, Inc. 

Melanie Rak, M.D. 

Mr. & Mrs. George Rakolta 

Ms. Miley Ramirez 

Mrs. Linda Ramos 

Rao Designs 

Mr. Richard Raschke 

Mr. Neal Rauch 

Kevin & Linda Ray 

Ms. Maureen Ray 

Vaughan & Margaret Reale 

Red Hat Tea Party 

Ms. Diane Redvay 

Mr. & Mrs. Richard Rees 

The Reese Family 

Doug and Diane Reeser 

Mr. Jeff Reeves 

Reeves Tire & Automotive Company 

Ms. Louise Rehmann 

Rehmann Industries 

Kevin & Maria Reichart 

Paul & Lyn Reid 

Mr. & Mrs. Lawrence Reuben 

Mr. Christopher Reuter 

Mr. & Mrs. John Reuter 

Charles & Frances Reynolds 

Ms. Emily Reynolds 

Ms. Patrice Rhodes 

Ms. Jane Riback 

Mr. & Mrs. Francis Ribaudo 

Ribaudo's Auto Repair 

Mr. Hampton Rich 

Ms. Delores Richards 

Ms. Joan Richmond 

Mr. Richard Richmond 

Richmond Brothers, Inc. 

Ms. Mary Ridgway 

John & Jane Riester 

Sigmund & Carol Rimm 

Edward & Roxanne Rios 

Paul & Joanne Ritacco 

Mrs. Jean Robbins 

Bo & Shirley Roberts 

Guy & Meisie Roberts 

Mr. & Mrs. Benny Robinson 

Howard & Donna Robinson 

Ms. Elaine Roccia 

Francis & Armi Rodill 

Stephen & Tina Rogers 

Mr. & Mrs. Peter Roll 

Marcos & Yazmin Ronquillo 

David & Sue Rosen 

Samuel Rosenfeld, M.D. 

Mr. Larry Rosenthal 

Roseview Dairy 

Hugo & Renee Rossi 

Robert & Louise Rossi 

Mr. James Rourke 

Bill & Sheila Rowland 

Ms. Denise Rozell 

Mr. Michael Ruffolo 

Mr. Richard Runci 

Ms. Marie Rundo 

Russel Automotive 

Elisabeth Schuler Russell 

Ms. Gayla Russell 

Mr. Randy Russell 

SPX Foundation 

Mrs. Chery Sacchetti 

Dr. Theodore Safford 

Ronit & Adam Sanders 

Robert Sandhaus, M.D., Ph.D. 

William & Margaret Sandwick 

Ms. Joan Sant 

Mr. JT Santomieri 

Mrs. Maria Santos 

John Sardella, D.D.S. 

John & Mary Sarkos 

Scott & Eleanor Sawyer 

Roger & Marilyn Scalzo 

Ms. Amy Scarola 

Mr. Kenneth Schaffer, Jr. 

Ms. Elizabeth Schaller 

Ms. Melanie Schanz 

Mr. & Mrs. Mark Scharenbroich 

Mr. Louis Scherb 

Jack & Janice Schlafle 

Eric & Kathleen Schlingloff 

Mr. Allan Schlossberg, DMD 

Dr. & Mrs. David Schmeling 

Pam & John Schmidt 

Ms. Virginia Schmidt 

Mr. William Schmidt 

Mr. & Mrs. Thomas Schneider 

Scholes Electric & Communications 

Rev. Melvin Schoonover 

Mr. Travis Schraufnagel 

Robert & Rita Schubert 

Daniel & Cathleen Schuh 

Mr. Michael Schwartz 

Ms. Barbara Seaman 

Security Bank & Trust Company 

Seelig Family Foundation 

Ms. Eleanor Seepes 

Seiden Foods, Inc. 

Mitchell & Maxine Selig 

ServiceMaster Residential & 

James & Mariann Seybold 

Shangri-La Realty, Inc. 

Douglas & Diana Shanks 

Jeffrey & Kelly Shannon 

Sharla Feldscher Public Relations 

Gurdev & Vimla Sharma 

Ms. Cherylanne Sharp 

Mr. Robert Shavelson 

Clark & Juanita Shaw 

Robert & Susan Polakoff Shaw 

Ms. Diane Shen 

Ms. Sheri Shiels 

Basil & Constance Shorb, III 

Mr. Matthew Shorb 

Ms. Barbara Sibigtroth 

Mary & John Sieber 

Ms. Diane Siegel 

Jim & Jennifer Signora 

Ms. Leslie Sikora 

Robert & Patricia Sikora 

Mrs. Eva Silver 

Ms. Teresa Simpson 

Simpson's Express 

Simpson's Systems 

Craig & Nancy Sinard 

Ms. Carol Skram 

Mr. Lou Slater 

Smart And Associates, LLP 

Mr. Archibald Smith 

Carlos & Cristina Smith 

Mr. & Mrs. Charles W. Smith 

Mr. Christopher Smith 

Clark Smith, M.D. 

Ms. Edith Smith 

Mr. Edward Smith 

John & Michelle Smith 


Mr. Ralph Smith 

Willie & Barbara Smith 

Raymond & Darlene Sneed 

Richard & Andrea Sneed 

Mr. & Mrs. Horacio Sobol 

Ms. Patricia Sottile 

Mr. Michael Sparaco 

Mr. John Spencer 

Gerry & Maida Sperling 

Mr. Harvey Spielman 

Marshall & Vicki Spurrier 

State Bank and Trust 

Ms. Julia Staunton 

Edward & Cheryl Stefkovich 

Mr. Chris Stephens 

John & Kerry Stetz 

Ms. Candice Stevens 

Ms. Mary Stevens 

Stewart's Restaurants, Inc. 

Keith & Robin Stobart 

William & Charlotte Stouder 

Dale & Shirley Stouffer 

Mrs. May Strange 

Mr. & Mrs. Mackenzie Strathy 

John & Kate Strautman 

Mr. Matt Strickland 

Don & Betty Stroud 

Jerome & Sandy Strubhart 

John and Mary Strysik 

Stanley & Karen Stutz, M.D. 



July 1, 2006 to June 30, 2007 

Ms. Jaisy Styles 

Mrs. Joanne Sullivan 

Ms. Maggie Sullivan 

Randy & Berta Summers 

Dr. & Mrs. Stephen Sundberg 

Superior Protection, Inc. 

Gregory & Laura Jean Supple 

Ms. Jennifer Surmeian 

Mr. Harvey Susnick 

Duncan and Ada Sutherland, III 

Mr. Darrell Sutton 

Mr. Chris Suyko 

Mr. Jonathan Swain 

Mrs. Evelyn Rome Tabas 

Mr. Stuart Tart 

Mr. Floyd Taub 

Mr. & Mrs. Greg Taverrite 

Ms. Tracy Taylor 

Team Systems, Inc. 

Mr. Richard Temple 

Ms. Jennifer Tenby 

Mr. & Mrs. Steve Terhune 

Mr. John Thatcher, Esq. 

The Animal Clinic, P.S.C. 

The Arena Club 

The Baupost Group, L.L.C. 

The Davinci Group 

The First National Bank & Trust 

Mr. James Thebery 

Kevin & Deborah Thomas 

Thomas Company, Inc. 

Mark & Mary Thompson 

Ms. Judith Thorp 

Larry & Marie Thurber 

TiLite 

Ms. Melinda Tice 

Mark & Erin Tillman 

Ms. Larissa Timmerberg 

Brad Tinkle, M.D., Ph.D. 

Mr. David Tisius 

Mr. William Tocchi 

Mrs. Kerime Toksu 

Mr. William Tolonen 

Ms. Tricia Tonra 

Total Electronics Contracting, Inc. 

Ms. Cheryl Tracy 

Mr. & Mrs. Donald Trahan 

Joe & Tonya Treinen 

Trend Manor Furniture Manufacturing 

Trenton Avenue Pharmacy, Inc. 

James & Linda Trippi 

Tristate HVAC Equipment, LLP 

Tropicana Casino & Resorts 

Mark & Elizabeth Trucco 

True Value 

Ms. Rachel Trusty 

Mr. Robert Turchin 

Derrick & Sabrina Turner 

Ms. Emma Turner 

Mr. Robert S. Turner, II 

Twin Oaks Custom Cabinets, Inc. 

U.S. Alloys, Inc. 

USAFunds 

Ms. Susan Ullman 

Jon & Liz Umholtz 

Unemployment Cost Reduction Corp. 

United Way of Alabama 

United Way of Buffalo & Erie County 

United Way of Camden County 

United Way of Central Alabama 

United Way of Chester County 

United Way of Kentucky 

United Way of New England 

United Way of Rockland County 

United Way of San Diego County 

United Way of Waco/McLennan Co. 

United Way of York County 

United Way of the Capital Area, Inc. 

United Way of the Virginia Peninsula 

Scott & Trina Uttley 

Ms. Audrey Van Der Wende 

Ms. Cassandra Van Derslice 

G. Robert & Joyce VanSchooneveld, 

Jr. 

Will & Ann VanWey 

Jacob & Ida Vandalen 

Ms. Megan Varon 

Ms. Stephanie Varon 

Vincent & Linda Vassallo, Jr. 

Theodore & Adrian Vecchione 

Vector Marketing Corporation 

Mark Vitale, D.M.D. 

Tracy Vitols 

Ms. Rhonda Voelz 

Mr. David D. Vurdelja 

Wachovia Corporation 

Don & Violet Waldecker 

Mr. Bob Walden 

Walk For Cierra, PA 

Walk For Isaac 

Ms. Cynthia Wallace 

Trent & Gail Walters 

Thuan Aik Wan 

Ms. Sue Ward 

Mrs. Elizabeth Warren 

Larry & Kathy Warren 

Joe & Jo-El Waterman 

Wauna Mill 

Weatherby Construction & Renovation 

Mr. Tom Wedell 

Dr. & Mrs. Stuart Weich 

Phil & Amy Weiland 

Mr. Charles Weilbrenner 

David and Cydney Weisberg 

Mr. C. Evan Weisman 

Welch State Bank 

Wellspring Financial 

Mr. David White 

Mrs. Elke White 

Wholesale Beauty Club, Inc. 

Ms. Eileen Wiesner 

Norman & Joyce Wilcox 

Arthur & Judith Williams 

George & Deborah Williams 

Glenn & Kirsten Williams 

Ms. Michelle Williams 

Mrs. Jennifer Wilson 

Ms. Susan Wilson 

Ms. Kathryne Windham 

Wisdom's Pump Service, Inc. 

Bob & Alison Wise 

Mr. Daniel Wish 

John & Andrea Wisniewski 

Mark & Cindy Wisniewski & The Frazier 

Mr. & Mrs. Robert Witz 

Lauren & Virginia Wolfe 

Ms. Karen Wolynez 

Woodworth Chevrolet-Cadillac-Buick, 

Ms. Virginia Worthington 

Eric & Margaret Wright 

Richard & Mary Ellen Wyman 

Ms. Jin Yang 

Duck & Hyun Yoo 

Mr. Karl Young 

Mr. Troy Young 

Mr. Alfonso Zamora 

Nicholas & Mariann Zampetti, Jr. 

Kerry & Erika Zemp 

The OI Foundation gratefully 

acknowledges the generous 

individuals, foundations, and 

corporations whose support helps 

us fund research and provide 

services to people with OI and 

their families. These are listings 

of donors from July 1, 2006 to 

June 30, 2007. We regret any 

error or omission, and ask that 

corrections be brought to our 

attention. 



July 1, 2006 to June 30, 2007 

Workplace Giving Donors 

We truly appreciate the many people who contributed to the Foundation through the Combined Federal 

Campaign, the United Way, state employee charitable campaigns, or company workplace giving programs. We 

were notified of these contributions between July 1, 2006 and June 30, 2007. 

We regret any errors or omissions, and ask that corrections be brought to our attention. 

Nicole Anderson 

Christopher Assmann 

Melvyn & Elena Baez 

Brian T. Baldwin 

Kenneth Bishop 

Elizabeth Boes 

Jacqueline & Julien Bourgeois 

Nickle Brown 

Amy Bryan 

Catherine Bryan 

Robert & Alice Cameron 

Paula Cericola 

Leilani Chestnut 

Kathleen Conley 

Marco Conners 

Bill, Michelle & Sarah Cramer 

Beth Crawford 

Andrew Currier 

Dan & Deborah Dagit 

Linda Depoy 

Gregory Deye 

Kathleen F Egan 

Lorna Estep 

Bradley Files 

Tammy Garrison 

Ann Marie Geiger 

Joelle Gordon 

Emily Hauenstein 

Catherine Hill 

Brian Hobbs 

Sierra Hodges 

Laura Hoffman 

Chad Hrdina 

Cody Huber 

Sandra Johnson 

Sheila Jones 

Lisa Kennedy 


Cynthia Kirkland 

Edward & Mary Krepps 

James & Linda Kuhn 

Melissa Lagasse 

Roger Lehnherr 

Fred & Jean Major 

Joe & Jane Marino 

Thomas McGarry 

Christopher & Kala Meyering 

Johnny Miller 

Danny & Jennifer Moffat 

Twelve-year-old Boy with OI Rallies UPS Employees to Give 

After Jeffrey Krudys was born in 1995, UPS employees responded. 

More than 400 employees -- from union mechanics to package 

sorters to district managers -- opened their hearts and wallets in 

1996 after they learned about his painful bones. And the commitment 

to contributing to the OI Foundation continues through transfers to 

new states and new jobs within UPS. 

Now 12 years old, Jeffrey took a personal role in fund raising for 

the OI Foundation. In June 2007, he accompanied former Executive 

Director Heller An Shapiro and spoke to groups of UPS employees in 

the Kansas District about his life and how their gifts can help the 

Foundation. In addition, he shared his story in a brochure on the 

Jeffrey Krudys pictured above with UPS 

employees. 

Kim Mulder 

Jonathan & Sharon Mutnick 

Francine Olewinski 

Scott Olsen 

Cheryl Owens 

Michelle Jean Potorsk 

James & Rosemarie Quinn 

Kim Rogers 

Mandel Savoy 

Elizabeth Sullivan 

Joanne Swanson 

Cheryl Sylvester 

Lacey Tabeest 

Kismet Toksu 

Ernest Tollerson 

Barry Tyree 

Jeanette Van Norden 

Jeffrey & Patricia Voss 

Joe & Donna Voss 

Jill Westeyn 

Paul & Beth Whitmore 

Don, Debbie & Daniel Wiederhold 

Word & Brown Insurance 

Administrators 

special relationship between UPS employees and the OI Foundation. 

This brochure was available to employees during the United Way 

campaigns in the Kansas District and several other UPS districts 

across the nation. 

"When my parents needed help, they found it at the OI Foundation," he stated in the brochure. "When I 

was a baby, my parents had to learn how to dress me and move me without breaking my bones. And the 

Foundation is still helping us with answers to our questions, connections to other families, and research to 

find a cure for me." 

UPS employees support the OI Foundation in many districts: Florida, Kansas, Long Island, Metro Jersey, 

North Jersey, Northern California, and others. In fact, for 10 years, the North Jersey District has made annual 

contributions to the Foundation from its annual UPS United Way Golf Invitational. To date, these gifts have 

totaled more than $168,000, just from this one event! 

Since 1996, UPS employees nationwide have contributed more than $1.1 million to improve the lives of 

people with OI. 


Gift Giving Clubs 

At the heart of every effective foundation, we find a leadership group that provides strength, character 

and purpose, which distinguishes it from all others. The OI Foundation draws strength from nearly 2,000 

supporters. In recognition of their extraordinary concern for, and impact on, the OI community, the following 

OI Leadership Giving Clubs are established. 

Named Giving Societies and Benefits 

Encouragement Circle $500-$999 

• Special Acknowledgement in the OI Foundation Annual Report 

• Acknowledgement letter from Board President 

Resiliency Circle $1,000 - $2,499 

In addition to all the above 

• Special Acknowledgement in the OI Foundation newsletter Breakthrough 

• Special invitation to annual donor reception 

Optimism Circle $2,500 - $4,999 

• In addition to all the above 

• Special invitations to OI Foundation sponsored events 

Achievement Circle $5,000 - $9,999 


• Periodic updates from Medical Advisory Council 

Legacy Circle $10,000 - $24,999 


• Invitation to Legacy Dinner 

Mildred "Midge" Peck Society $25,000 - $49,999 


• Society Medal Ceremony during National Conference 

Harold A. Sofield, M.D. Society $50,000 - $99,999 


• Special invitation to Medical Advisory Council Reception during National Conference 

Breakthrough Society $100,000 or more cumulative lifetime giving 


• Press release on gift 

• Testimonial on OI Website 

• OI Foundation lifetime achievement award 

The Osteogenesis Imperfecta Foundation honors Mildred "Midge" Peck and Harold A. Sofield, M.D. by 

designating giving societies in their names. Established in 2006, The Midge Peck Society will recognize 

individuals and families making annual gifts of $25,000 to $49,999. The Harold A. Sofield, M.D. Society will 

honor those making annual gifts of $50,000 to $99,999. These gifts represent a new level of involvement, 

which helps bridge the gap between the increasing needs in the OI Community and the services available to 

meet them. 

Mildred "Midge" Peck Society $25,000-$49,999 

In 1970 Midge Peck along with Becky Keller, Renee Gardner and Gemma Geisman founded the OI 

Foundation. 

Harold A. Sofield Society, M.D. $50,000-$99,999 

During the late 1940's , Harold Sofield, M.D., Chief of Staff at the Shriners Hospital for Children 

developed a special interest in OI. In 1959 he co-wrote a seminal article describing the placement of 

stainless steel rods into bones to stabilize and strengthen them. His treatment proved extremely 

useful in the rehabilitation and prevention of fractures; it was adopted throughout the world and still 

forms the basis for orthopedic treatment of OI. Dr. Sofield hosted the first meeting of the families 

who would form the OI Foundation one year later. He served as the foundation's first Medical 

Advisory Council Chairman. 


Osteogenesis Imperfecta Foundation, Inc. 

804 W. Diamond Ave., Ste. 210 

Gaithersburg, MD 20878 

301.947.0083 

www.oif.org 

NON-PROFIT 

U.S. POSTAGE 

PAID 

Suburban, MD 

PERMIT #5857

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