Dear Friends - National Alopecia Areata Foundation
Dear Friends - National Alopecia Areata Foundation
Dear Friends - National Alopecia Areata Foundation
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Our Web site:<br />
www.naaf.org<br />
In accord with our <strong>Foundation</strong>’s<br />
mission, our Web site seeks to<br />
provide visitors with a reliable<br />
source of support, awareness,<br />
and information on research pertaining<br />
to alopecia areata. The<br />
content is divided into the following<br />
sections: Request Information,<br />
Research, News & Events,<br />
Support, Conference, Helpful<br />
Products, Links for Locks, Kids<br />
Konnect, Make a Donation, and<br />
Frequently Asked Questions.<br />
The NAAF Web site is often an<br />
individual’s first source of information<br />
on alopecia areata. With that<br />
in mind, we strive to keep our Web<br />
site empathetic and understanding<br />
yet current and informative.<br />
Brochures and Special<br />
Publications<br />
NAAF produces four main educational<br />
brochures to help people<br />
with alopecia areata. These include<br />
a general overview on the<br />
disease and current treatments for<br />
it, tips on coping, and brochures<br />
for children and for parents.<br />
NAAF also has a special School<br />
Pack that parents can share with<br />
their child’s school principal and<br />
teachers, and this has been in<br />
great demand.<br />
Our Newsletter<br />
NAAF produces a quarterly<br />
newsletter that is continually<br />
praised by its recipients. This newsletter<br />
updates everyone on the<br />
latest medical, research, support,<br />
and cosmetic information. There is<br />
also a special kids’ section.<br />
General Communications<br />
(via telephone, email,<br />
snail mail)<br />
Each year NAAF receives thousands<br />
of requests for information<br />
and support via telephone, email,<br />
and snail mail. All of these requests<br />
are answered promptly and<br />
compassionately.<br />
Annual Patient Conference<br />
The 19th Annual Patient Conference<br />
featured a presentation by<br />
David Norris, MD, Professor at the<br />
University of Colorado Health Sciences<br />
Center in Denver and Chair<br />
of the NAAF Scientific Advisory<br />
Council, on “Recent Progress in<br />
Hair Research and Related Diseases.”<br />
Other key speakers included<br />
Richard Strick, MD, Clinical Professor<br />
of Dermatology at the David<br />
Geffen School of Medicine at<br />
the University of California, Los<br />
Angeles, and a NAAF Scientific<br />
Advisory Council Member, who<br />
discussed “Clinical Aspects of<br />
<strong>Alopecia</strong> <strong>Areata</strong>,” and Karen<br />
Mallin, MD, Clinical Professor at<br />
the University of Miami School<br />
of Medicine in Florida, who educated<br />
adults and parents on how<br />
to cope with alopecia areata emotionally.<br />
Regional Update Meetings<br />
NAAF has been holding small<br />
regional meetings throughout<br />
the United States to update local<br />
NAAF donors on the latest<br />
alopecia areata happenings. Five<br />
of these regional meetings were<br />
held in 2004—in Orlando, Florida;<br />
New York City; Fort Myers, Florida;<br />
Woodland Hills, California; and<br />
Washington, DC.<br />
NATIONAL ALOPECIA AREATA FOUNDATION ANNUAL REPORT 2004 3