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Reach Out, April 2016, isue 103

The latest news from Tuberous Sclerosis Australia and up to date information on tuberous sclerosis information, support and research.

The latest news from Tuberous Sclerosis Australia and up to date information on tuberous sclerosis information, support and research.

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TSA News<br />

A Farewell Editorial<br />

David Matheson<br />

After editing <strong>Reach</strong> <strong>Out</strong> for sixteen years<br />

I have decided that it is time for me to<br />

hand over to a new Editor.<br />

Over the last sixteen years <strong>Reach</strong><br />

<strong>Out</strong> has changed and evolved along with<br />

Tuberous Sclerosis Australia. But what has<br />

remained the same is that Tuberous Sclerosis<br />

Australia and <strong>Reach</strong> <strong>Out</strong> remain focused on<br />

families and individuals affected by Tuberous<br />

Sclerosis Complex. As Editor of <strong>Reach</strong> <strong>Out</strong> I have<br />

always tried to provide content that is of interest and value<br />

What has remained the same is<br />

that Tuberous Sclerosis Australia and<br />

<strong>Reach</strong> <strong>Out</strong> remain focused on families<br />

and individuals affected by Tuberous<br />

Sclerosis Complex<br />

to people living with TSC. I hope that <strong>Reach</strong> <strong>Out</strong><br />

continues to help make the difficult task of living<br />

with TSC a little bit easier.<br />

During my time as Editor I have appreciated<br />

the opportunity to share news, stories and<br />

information with readers. Contributions from<br />

many people have made this possible, and gave<br />

me encouragement to continue the work.<br />

What I have valued most is the personal<br />

stories that people have shared about their experiences<br />

of living with Tuberous Sclerosis Complex.<br />

These stories are all different, some focusing on the<br />

challenges of having a child with TSC, and some about adults who<br />

live with the condition. While most of these stories have described<br />

enormous difficulties, many also contain a strong sense of hope<br />

and resilience. For me, these stories are a great inspiration.<br />

Thank you to everyone who has contributed to and supported<br />

<strong>Reach</strong> <strong>Out</strong> over the last sixteen years.<br />

Clare Stuart, General Manager of TSA, has acted in the role of editor<br />

for this issue.<br />

Help us find the next editor of <strong>Reach</strong> <strong>Out</strong><br />

The volunteer editor of <strong>Reach</strong> <strong>Out</strong><br />

coordinates contributions from<br />

TSA staff and volunteers and works with<br />

the paid graphic designers to ensure a<br />

high quality publication. Significant<br />

support is provided by the TSA General<br />

Manager, including with content planning<br />

and production.<br />

Ideally, they will have experience in<br />

print or online publishing; health communication;<br />

or not for profit communications<br />

or marketing.<br />

This is an opportunity to make a<br />

real difference to the lives of people<br />

living with TSC in Australia. If you, or<br />

someone you know, is interested, email<br />

clare@tsa.org.au.<br />

<strong>Reach</strong> <strong>Out</strong> Official journal of Tuberous Sclerosis<br />

Australia, Inc.<br />

18 Central Rd, Beverly Hills NSW 2209<br />

Telephone: 1300 733 435<br />

Website: www.tsa.org.au<br />

Email: info@tsa.org.au<br />

ABN 20 681 174 734<br />

Incorporation no. Y 07116-42<br />

Registered Charity CC25313<br />

Disclaimer<br />

The opinions expressed in this journal are those of the<br />

authors and are not official pronouncements of TSA Inc.<br />

Permission<br />

Permission must be sought from the authors or publishers<br />

to reproduce in any way articles or information contained in<br />

this journal. Once permission is received the source must be<br />

acknowledged.<br />

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