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Marfan Syndrome:

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PHYSICAL<br />

EDUCATION<br />

AND ACTIVITY<br />

GUIDELINES<br />

Prepared by the NMF<br />

Professional Advisory Board<br />

This document is an<br />

overview of physical activity<br />

guidelines for people who<br />

have <strong>Marfan</strong> syndrome.<br />

A separate document is<br />

included in the additional<br />

resources section to provide<br />

detailed curriculum<br />

modifications for PE<br />

teachers.<br />

SPECIAL RESOURCES FOR THE<br />

PHYSICAL EDUCATION TEACHER 1<br />

Exercise is important for people with <strong>Marfan</strong> syndrome just as it is for<br />

everyone. It instills a sense of physical and psychological well-being,<br />

improves exercise endurance, lowers blood pressure, reduces weight, regulates<br />

metabolism and gastrointestinal function, increases bone density and<br />

physical strength, and often leads to beneficial lifestyle changes, such as<br />

smoking cessation, moderation of alcohol consumption and improved<br />

nutrition.<br />

People with <strong>Marfan</strong> syndrome and their families, as well as physical<br />

educators and healthcare professionals charged with overseeing the<br />

physical activity of people with <strong>Marfan</strong> syndrome, should be aware of<br />

the following:<br />

• Changes in connective tissue that give rise to the medical problems<br />

of <strong>Marfan</strong> syndrome.<br />

• Different forms of exercise and their impact on <strong>Marfan</strong> syndrome.<br />

• Basic guidelines for physical activities that should enable people with<br />

<strong>Marfan</strong> syndrome to participate safely.

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