FA Family News 3/01 - Fanconi Anemia Research Fund
FA Family News 3/01 - Fanconi Anemia Research Fund
FA Family News 3/01 - Fanconi Anemia Research Fund
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New Staff<br />
Since the last newsletter, we have<br />
experienced some turnover among our<br />
staff. Susan Castillo resigned as Director<br />
of Development at the end of<br />
December to fulfill her duties as a senator<br />
in the Oregon State Legislature.<br />
Joachim Schulz, our Executive Director,<br />
resigned in July to open a consulting<br />
business. He has since become<br />
a Director of Development with Holt<br />
International Adoptions, which is<br />
based in Eugene. We miss them both<br />
and wish them well in their new<br />
endeavors!<br />
Jill Emerson<br />
Jill Emerson joined us in early<br />
December as an administrative and<br />
family support assistant. She recently<br />
retired from the North Slope Borough<br />
School District in Barrow, Alaska,<br />
where she had a 25-year career as a<br />
schoolteacher and technology coordinator.<br />
She also worked for the Alaska<br />
Department of Education as a co-leader<br />
of the Alaska Math Consortium. Jill<br />
received her Bachelors and Masters<br />
degrees at the University of Oregon.<br />
She is delighted to return to the relative<br />
warmth of Eugene after the many years<br />
in Barrow!<br />
Mary Ellen Eiler<br />
Mary Ellen Eiler was selected by<br />
the Board of Directors for the Executive<br />
Director position and began her<br />
duties at the end of July, 2000. She<br />
served on <strong>FA</strong>RF’s Board of Directors<br />
from 1997-2000, and was Board President<br />
for two years.<br />
Mary Ellen retired in 1997 from a<br />
31-year career with the state of Oregon,<br />
first as a regional administrator<br />
for Children’s Services Division and,<br />
later, as the superintendent for the Oregon<br />
Youth Authority.<br />
Mary Ellen is an exceptionally hard<br />
worker, who devotes countless weekends<br />
and evenings to our <strong>Fund</strong>, in<br />
additional to her regular work schedule.<br />
She is well-organized, thorough,<br />
and tenacious. She has a keen intellect,<br />
and has quickly gained an understanding<br />
of the complexities of <strong>Fanconi</strong><br />
anemia. We are deeply grateful<br />
for her dedication to this effort, and<br />
her willingness to devote her precious<br />
time to our cause.<br />
PGD for <strong>Fanconi</strong> <strong>Anemia</strong> at the<br />
Reproductive Genetics Institute<br />
continued from page 6<br />
or not, and $2,500 to determine HLA<br />
compatibility with the <strong>FA</strong> patient).<br />
There are additional costs for medication<br />
and the IVF procedures. The RGI<br />
can carry out the in vitro fertilization<br />
and embryo transfer at the Chicago<br />
facility. The RGI has relationships with<br />
IVF centers around the world, so that<br />
the IVF process can sometimes be done<br />
locally, while the genetic analysis is<br />
done at the Chicago facility.<br />
For further information<br />
and contacts:<br />
Reproductive Genetics Institute<br />
2825 North Halsted St.<br />
Chicago, IL 60657<br />
phone: 773-472-4900<br />
or 773-296-7095<br />
<strong>FA</strong>X: 773-871-5221<br />
e-mail: horwitz@uic.edu,<br />
or rgi@flash.net<br />
Christina Masciangelo, M.S.,<br />
Genetic Counselor;<br />
Allen Horwitz, M.D., Ph.D.,<br />
Director of Medical Genetics;<br />
Yury Verlinsky, Ph.D.,<br />
Director of RGI<br />
Use of Logo<br />
This is just a reminder to our <strong>FA</strong><br />
families: please use our logo or<br />
letterhead only after you have<br />
consulted the staff of the <strong>FA</strong><br />
<strong>Research</strong> <strong>Fund</strong>, and received their<br />
approval. This is necessary to be<br />
sure our messages are accurate<br />
and consistent. It also helps to<br />
avoid legal complications. We are<br />
happy to collaborate on fundraisers<br />
and mailings.<br />
Spring 20<strong>01</strong> 19