Born to Survive - American Stroke Association

E V E R Y D A Y Connecting You to Helpful Ideas
R e s o u r c e s
American Stroke Association’s New Online
Discussion Boards for Parents of Young
Children with Stroke
Visit www.discussions.americanheart.org and
register to participate in this ongoing discussion area
for parents of children age 0–18 who have experienced
stroke. Scroll down to the Stroke Survivors and Family
Caregivers section for this new topic area.
Children’s Hemiplegia and Stroke
Association (CHASA)
CHASA is an online support organization for families
of pediatric stroke survivors as well as children with
hemiplegia and cerebral palsy. Their Web site includes:
• extensive information, from rehab to vacations and
potty training.
• definitions and information on early intervention,
types of providers and infant development.
• an “Ask the Expert” section for pediatric neurology,
physical and occupational therapy, and orthotics.
CHASA also sponsors e-mail support groups and an
annual retreat.
www.chasa.org
Suite 305, PMB 149
4101 W. Green Oaks
Arlington, TX 76016
Parents Association of Children with
Hemiplegia and/or Stroke (PACHS)
PACHS is a Chicago-area support and information
group. They seek to give families of children with
hemiplegia, hemiparesis, diplegia and/or stroke a
chance to connect and interact in person. In addition
to family support and local resource information, the
research link on their Web site gives clear, user-friendly
information about ongoing research and new studies
looking for subjects.
http://pachs.org
January/February 2006
The Technical Assistance Alliance for
Parent Centers
The Technical Assistance Alliance for Parent Centers
supports parents of children with disabilities in
meeting the educational needs of their children. Parent
Training and Information Centers and Community
Parent Resource Centers in each state provide
training and information to parents of infants, toddlers,
children, and youth with disabilities.
888-248-0822
www.taalliance.org
Baby Builders
Baby Builders sells a helpful video of a developmental
exercise program created by a physical therapist for
children at risk.
877-627-8222
www.babybuilders.com
Parent to Parent-USA
Parent to Parent-USA (P2P-USA) is an alliance
of statewide Parent to Parent programs following
established best practice standards. Parent to Parent
programs provide emotional and informational support
to families of children who have special needs, most
notably by matching parents seeking support with an
experienced, trained “Supporting Parent.”
www.p2pusa.org
Lekotek
Lekotek makes the world of play accessible to children
with all types of disabilities through special play
and learning centers where they can have fun with
traditional toys, adapted toys, books and computers
borrowed from Lekotek toy-lending libraries. There are
33 Lekotek sites nationwide.
National Lekotek Center
3204 West Armitage Ave.
Chicago, IL 60647
773-276-5164
Toy Resource Helpline: 800-366-PLAY
www.lekotek.org